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overflow: hidden; text-overflow: ellipsis; -webkit-line-clamp: 3; -webkit-box-orient: vertical; }</style><div class="col-xs-12 clearfix"><div class="u-floatLeft"><h1 class="PageHeader-title u-m0x u-fs30">Research Ethics</h1><div class="u-tcGrayDark">34,089 Followers</div><div class="u-tcGrayDark u-mt2x">Recent papers in <b>Research Ethics</b></div></div></div></div></div></div><div class="TabbedNavigation"><div class="container"><div class="row"><div class="col-xs-12 clearfix"><ul class="nav u-m0x u-p0x list-inline u-displayFlex"><li class="active"><a href="https://www.academia.edu/Documents/in/Research_Ethics">Top Papers</a></li><li><a href="https://www.academia.edu/Documents/in/Research_Ethics/MostCited">Most Cited Papers</a></li><li><a href="https://www.academia.edu/Documents/in/Research_Ethics/MostDownloaded">Most Downloaded Papers</a></li><li><a href="https://www.academia.edu/Documents/in/Research_Ethics/MostRecent">Newest Papers</a></li><li><a class="" href="https://www.academia.edu/People/Research_Ethics">People</a></li></ul></div><style type="text/css">ul.nav{flex-direction:row}@media(max-width: 567px){ul.nav{flex-direction:column}.TabbedNavigation li{max-width:100%}.TabbedNavigation li.active{background-color:var(--background-grey, #dddde2)}.TabbedNavigation li.active:before,.TabbedNavigation li.active:after{display:none}}</style></div></div></div><div class="container"><div class="row"><div class="col-xs-12"><div class="u-displayFlex"><div class="u-flexGrow1"><div class="works"><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_12014038" data-work_id="12014038" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/12014038/High_stakes_Testing_for_tracking_promotion_and_graduation_Edited_by_J_P_Heubert_and_R_M_Hauser_1999_Washington_DC_National_Academy_Press_Book_Review_">High stakes: Testing for tracking, promotion, and graduation. Edited by J. P. Heubert & R. M. Hauser. 1999. Washington, DC: National Academy Press. [Book Review]</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">If high-stakes standardized testing were to be abolished, as the report authors might like, American society as a whole would be much worse off, and so would many individual students. Probably the most unfairly affected would be the... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_12014038" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">If high-stakes standardized testing were to be abolished, as the report authors might like, American society as a whole would be much worse off, and so would many individual students. Probably the most unfairly affected would be the high achievers among the poor.Wealthy families who value academics have the choice of moving to a school district where their high achieving children can excel, or sending their children to a private school. It is a waste of money and otherwise too bad that they feel they must move, but they can. Poor families are not so mobile. <br />  High achieving students who cannot leave a school district where academic achievement is undervalued face varied pressures that impede them: pressure to fit in and be popular; to excel at sports; to work at low-pay, dead-end jobs to earn money for cars and parties; and so on. If they study hard and excel at academics, they will be taunted; disliked; called “nerd,” “geek,” “dork”; or be accused of “acting White.” <br />  The report spends considerable effort worrying about the feelings of students who might fail high-stakes tests, but little if any effort worrying about the social fallout of abandoning high academic standards. High-achieving students among our poor should be considered our country’s most precious human resources. <br />  For a variety of reasons, our society very badly needs these students to prosper; so their gifts and ambitions should be nurtured, not discouraged. The report, however, in the effect of its recommendations, would have these students treated as pariahs and have them feel guilty for wanting to work hard and succeed. After all, if these students work hard and succeed, won’t that make other students who do not want to work hard look and feel bad? <br />  Abandoning the enforcement of high academic standards will not eliminate pressures and hurt feelings among our youth, however. Pressure and hurt feelings are facts of life. Abandoning academics just means the pressures will come from and the hurt feelings will be caused by nonacademic aspects of these students’ lives. <br />  Is that really what we want? In radical egalitarian bliss, there will be no high-stakes tests, no academic standards enforced in any meaningful way, and no academic tracking. Academic progress in every school and for every student will be slowed to the preferred pace of the least motivated student.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/12014038" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="3dcb44142f12211ac51617a375e73377" rel="nofollow" data-download="{"attachment_id":37351234,"asset_id":12014038,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/37351234/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="4281505" href="https://204.academia.edu/RichardPhelps">Richard P Phelps</a><script data-card-contents-for-user="4281505" type="text/json">{"id":4281505,"first_name":"Richard","last_name":"Phelps","domain_name":"204","page_name":"RichardPhelps","display_name":"Richard P Phelps","profile_url":"https://204.academia.edu/RichardPhelps?f_ri=2504","photo":"https://0.academia-photos.com/4281505/1914892/2268535/s65_richard.phelps.jpg"}</script></span></span></li><li class="js-paper-rank-work_12014038 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="12014038"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 12014038, container: ".js-paper-rank-work_12014038", }); });</script></li><li class="js-percentile-work_12014038 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 12014038; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_12014038"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_12014038 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="12014038"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 12014038; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=12014038]").text(description); $(".js-view-count-work_12014038").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_12014038").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="12014038"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">9</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="922" href="https://www.academia.edu/Documents/in/Education">Education</a>, <script data-card-contents-for-ri="922" type="text/json">{"id":922,"name":"Education","url":"https://www.academia.edu/Documents/in/Education?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="1750" href="https://www.academia.edu/Documents/in/Assessment">Assessment</a>, <script data-card-contents-for-ri="1750" type="text/json">{"id":1750,"name":"Assessment","url":"https://www.academia.edu/Documents/in/Assessment?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="3398" href="https://www.academia.edu/Documents/in/Educational_Psychology">Educational Psychology</a><script data-card-contents-for-ri="3398" type="text/json">{"id":3398,"name":"Educational Psychology","url":"https://www.academia.edu/Documents/in/Educational_Psychology?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=12014038]'), work: {"id":12014038,"title":"High stakes: Testing for tracking, promotion, and graduation. Edited by J. P. Heubert \u0026 R. M. Hauser. 1999. Washington, DC: National Academy Press. [Book Review]","created_at":"2015-04-19T12:29:40.997-07:00","url":"https://www.academia.edu/12014038/High_stakes_Testing_for_tracking_promotion_and_graduation_Edited_by_J_P_Heubert_and_R_M_Hauser_1999_Washington_DC_National_Academy_Press_Book_Review_?f_ri=2504","dom_id":"work_12014038","summary":" If high-stakes standardized testing were to be abolished, as the report authors might like, American society as a whole would be much worse off, and so would many individual students. Probably the most unfairly affected would be the high achievers among the poor.Wealthy families who value academics have the choice of moving to a school district where their high achieving children can excel, or sending their children to a private school. It is a waste of money and otherwise too bad that they feel they must move, but they can. Poor families are not so mobile.\r\n High achieving students who cannot leave a school district where academic achievement is undervalued face varied pressures that impede them: pressure to fit in and be popular; to excel at sports; to work at low-pay, dead-end jobs to earn money for cars and parties; and so on. If they study hard and excel at academics, they will be taunted; disliked; called “nerd,” “geek,” “dork”; or be accused of “acting White.”\r\n The report spends considerable effort worrying about the feelings of students who might fail high-stakes tests, but little if any effort worrying about the social fallout of abandoning high academic standards. High-achieving students among our poor should be considered our country’s most precious human resources.\r\n For a variety of reasons, our society very badly needs these students to prosper; so their gifts and ambitions should be nurtured, not discouraged. The report, however, in the effect of its recommendations, would have these students treated as pariahs and have them feel guilty for wanting to work hard and succeed. After all, if these students work hard and succeed, won’t that make other students who do not want to work hard look and feel bad?\r\n Abandoning the enforcement of high academic standards will not eliminate pressures and hurt feelings among our youth, however. Pressure and hurt feelings are facts of life. Abandoning academics just means the pressures will come from and the hurt feelings will be caused by nonacademic aspects of these students’ lives.\r\n Is that really what we want? In radical egalitarian bliss, there will be no high-stakes tests, no academic standards enforced in any meaningful way, and no academic tracking. Academic progress in every school and for every student will be slowed to the preferred pace of the least motivated student.","downloadable_attachments":[{"id":37351234,"asset_id":12014038,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":4281505,"first_name":"Richard","last_name":"Phelps","domain_name":"204","page_name":"RichardPhelps","display_name":"Richard P Phelps","profile_url":"https://204.academia.edu/RichardPhelps?f_ri=2504","photo":"https://0.academia-photos.com/4281505/1914892/2268535/s65_richard.phelps.jpg"}],"research_interests":[{"id":922,"name":"Education","url":"https://www.academia.edu/Documents/in/Education?f_ri=2504","nofollow":false},{"id":1750,"name":"Assessment","url":"https://www.academia.edu/Documents/in/Assessment?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":3398,"name":"Educational Psychology","url":"https://www.academia.edu/Documents/in/Educational_Psychology?f_ri=2504","nofollow":false},{"id":3429,"name":"Educational Research","url":"https://www.academia.edu/Documents/in/Educational_Research?f_ri=2504"},{"id":4413,"name":"Educational Measurement","url":"https://www.academia.edu/Documents/in/Educational_Measurement?f_ri=2504"},{"id":4741,"name":"Educational evaluation","url":"https://www.academia.edu/Documents/in/Educational_evaluation?f_ri=2504"},{"id":9822,"name":"Education Policy","url":"https://www.academia.edu/Documents/in/Education_Policy?f_ri=2504"},{"id":1003635,"name":"Psychological and Educational Testing","url":"https://www.academia.edu/Documents/in/Psychological_and_Educational_Testing?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_15749984" data-work_id="15749984" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/15749984/Research_participants_perceptions_and_views_on_consent_for_biobank_research_a_review_of_empirical_data_and_ethical_analysis">Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_15749984" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background<br />Appropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of socio-empirical research on patients’ and healthy research participants’ experiences and views regarding consent to biobank research in light of ethical principles for appropriate information and consent.<br /><br />Methods<br />Review question: Which empirical data are available on research participants’ perceptions and views regarding information and elicitation of consent for biobank research? Search of articles published till March 1st 2014 in Pubmed. Review of abstracts and potentially relevant full text articles by two authors independently. As categories for content analysis we defined (i) understanding or recall of information, (ii) preferences regarding information or consent, and (iii) research participants’ concerns.<br /><br />Results<br />The search in Pubmed yielded 337 abstracts of which 10 articles were included in this study. Approaches to information and consent varied considerably across the selected studies. The majority of research participants opted for some version of limited consent when being informed about such possibility. Among the factors influencing the type of preferred consent were information about sponsoring of biobank research by pharmaceutical industry and participants’ trade-off between privacy and perceived utility. Studies investigating research participants’ understanding and recall regarding the consent procedure indicated considerable lack of both aspects. Research participants’ perceptions of benefits and harms differ across those studies.<br /><br />Conclusion<br />The knowledge, perceptions and views of research participants who have undergone a consent procedure within the context of biobank research raise several questions on the issue of how to inform and elicit consent in an ethically acceptable way. In our empirical-ethical analysis we develop suggestions on how the practice of eliciting consent in the biobank context should be improved.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/15749984" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="0e1b396f617261194d90b9e511e8ec71" rel="nofollow" data-download="{"attachment_id":38811191,"asset_id":15749984,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/38811191/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="1231121" href="https://unisg-it.academia.edu/FlavioDAbramo">Flavio D'Abramo</a><script data-card-contents-for-user="1231121" type="text/json">{"id":1231121,"first_name":"Flavio","last_name":"D'Abramo","domain_name":"unisg-it","page_name":"FlavioDAbramo","display_name":"Flavio D'Abramo","profile_url":"https://unisg-it.academia.edu/FlavioDAbramo?f_ri=2504","photo":"https://0.academia-photos.com/1231121/4949585/44867284/s65_flavio.d_abramo.jpg"}</script></span></span></li><li class="js-paper-rank-work_15749984 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="15749984"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 15749984, container: ".js-paper-rank-work_15749984", }); });</script></li><li class="js-percentile-work_15749984 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 15749984; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_15749984"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_15749984 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="15749984"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 15749984; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=15749984]").text(description); $(".js-view-count-work_15749984").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_15749984").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="15749984"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">5</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="8562" href="https://www.academia.edu/Documents/in/Informed_Consent">Informed Consent</a>, <script data-card-contents-for-ri="8562" type="text/json">{"id":8562,"name":"Informed Consent","url":"https://www.academia.edu/Documents/in/Informed_Consent?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="101544" href="https://www.academia.edu/Documents/in/Biobanking">Biobanking</a>, <script data-card-contents-for-ri="101544" type="text/json">{"id":101544,"name":"Biobanking","url":"https://www.academia.edu/Documents/in/Biobanking?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="102044" href="https://www.academia.edu/Documents/in/Biobanking_and_Society">Biobanking and Society</a><script data-card-contents-for-ri="102044" type="text/json">{"id":102044,"name":"Biobanking and Society","url":"https://www.academia.edu/Documents/in/Biobanking_and_Society?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=15749984]'), work: {"id":15749984,"title":"Research participants’ perceptions and views on consent for biobank research: a review of empirical data and ethical analysis","created_at":"2015-09-16T00:35:34.752-07:00","url":"https://www.academia.edu/15749984/Research_participants_perceptions_and_views_on_consent_for_biobank_research_a_review_of_empirical_data_and_ethical_analysis?f_ri=2504","dom_id":"work_15749984","summary":"Background\nAppropriate information and consent has been one of the most intensely discussed topics within the context of biobank research. In parallel to the normative debate, many socio-empirical studies have been conducted to gather experiences, preferences and views of patients, healthy research participants and further stakeholders. However, there is scarcity of literature which connects the normative debate about justifications for different consent models with findings gained in empirical research. In this paper we discuss findings of a limited review of socio-empirical research on patients’ and healthy research participants’ experiences and views regarding consent to biobank research in light of ethical principles for appropriate information and consent.\n\nMethods\nReview question: Which empirical data are available on research participants’ perceptions and views regarding information and elicitation of consent for biobank research? Search of articles published till March 1st 2014 in Pubmed. Review of abstracts and potentially relevant full text articles by two authors independently. As categories for content analysis we defined (i) understanding or recall of information, (ii) preferences regarding information or consent, and (iii) research participants’ concerns.\n\nResults\nThe search in Pubmed yielded 337 abstracts of which 10 articles were included in this study. Approaches to information and consent varied considerably across the selected studies. The majority of research participants opted for some version of limited consent when being informed about such possibility. Among the factors influencing the type of preferred consent were information about sponsoring of biobank research by pharmaceutical industry and participants’ trade-off between privacy and perceived utility. Studies investigating research participants’ understanding and recall regarding the consent procedure indicated considerable lack of both aspects. Research participants’ perceptions of benefits and harms differ across those studies.\n\nConclusion\nThe knowledge, perceptions and views of research participants who have undergone a consent procedure within the context of biobank research raise several questions on the issue of how to inform and elicit consent in an ethically acceptable way. In our empirical-ethical analysis we develop suggestions on how the practice of eliciting consent in the biobank context should be improved.\n","downloadable_attachments":[{"id":38811191,"asset_id":15749984,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":1231121,"first_name":"Flavio","last_name":"D'Abramo","domain_name":"unisg-it","page_name":"FlavioDAbramo","display_name":"Flavio D'Abramo","profile_url":"https://unisg-it.academia.edu/FlavioDAbramo?f_ri=2504","photo":"https://0.academia-photos.com/1231121/4949585/44867284/s65_flavio.d_abramo.jpg"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":8562,"name":"Informed Consent","url":"https://www.academia.edu/Documents/in/Informed_Consent?f_ri=2504","nofollow":false},{"id":101544,"name":"Biobanking","url":"https://www.academia.edu/Documents/in/Biobanking?f_ri=2504","nofollow":false},{"id":102044,"name":"Biobanking and Society","url":"https://www.academia.edu/Documents/in/Biobanking_and_Society?f_ri=2504","nofollow":false},{"id":1372737,"name":"Genomics Research","url":"https://www.academia.edu/Documents/in/Genomics_Research?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_40933944 coauthored" data-work_id="40933944" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/40933944/Conference_Report_Mysticism_and_Ethics_in_Islam_American_University_of_Beirut_2_3_May_2019_">Conference Report - Mysticism and Ethics in Islam (American University of Beirut, 2–3 May 2019)</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/40933944" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="fd5fd39d3c6697bad3bae334e22a1d39" rel="nofollow" data-download="{"attachment_id":61222662,"asset_id":40933944,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/61222662/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="61763884" href="https://carleton-ca.academia.edu/MohammedRustom">Mohammed Rustom</a><script data-card-contents-for-user="61763884" 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href="https://www.academia.edu/Documents/in/Virtue_Ethics">Virtue Ethics</a>, <script data-card-contents-for-ri="3468" type="text/json">{"id":3468,"name":"Virtue Ethics","url":"https://www.academia.edu/Documents/in/Virtue_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="4979" href="https://www.academia.edu/Documents/in/Islamic_Contemporary_Studies">Islamic Contemporary Studies</a><script data-card-contents-for-ri="4979" type="text/json">{"id":4979,"name":"Islamic Contemporary Studies","url":"https://www.academia.edu/Documents/in/Islamic_Contemporary_Studies?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=40933944]'), work: {"id":40933944,"title":"Conference Report - Mysticism and Ethics in Islam (American University of Beirut, 2–3 May 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itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/9973009/_Aggravated_Homosexuality_US_Influence_in_Ugandas_Anti_Homosexuality_Bill">"Aggravated Homosexuality": US Influence in Uganda's Anti-Homosexuality Bill</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Enacted February 24, 2014 and effective until August 1, 2014, Uganda’s Anti-Homosexuality Act targeted Ugandans of minority sexual orientations and gender identities—many of whom self-identify as 'kuchu'—by imposing life sentences for... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_9973009" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Enacted February 24, 2014 and effective until August 1, 2014, Uganda’s Anti-Homosexuality Act targeted Ugandans of minority sexual orientations and gender identities—many of whom self-identify as 'kuchu'—by imposing life sentences for homosexual sex and same-sex marriage. The original Anti-Homosexuality Bill introduced in 2009 promised even worse for kuchus: it would have mandated that all Ugandans report known homosexuals and threatened execution for serial offenders and other perpetrators of “aggravated homosexuality.” In the context of Ugandan political conflict, emerging international human rights norms, and global asymmetries of power, Uganda has become an ideological battlefront where competing actors—both US-based and Ugandan—advance their respective visions of a just and righteous global society. These factors mandate that US-based activists and organizations painstakingly consider how (or whether) they can advocate responsibly and effectively for international human rights related to gender identity and sexual orientation. Through interdisciplinary lenses and critical analysis, this paper explores three questions: <br /> <br />• How is Uganda distinct from other sites of antigay legislation? <br />• How have US-based organizations impacted Ugandan discourse and policy toward kuchus? <br />• How can US-based rights advocates and activists campaign for kuchus without doing them further harm?</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/9973009" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a0c68a4ace90bf793f9a2ae2727adfb3" rel="nofollow" data-download="{"attachment_id":57282256,"asset_id":9973009,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/57282256/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="690273" href="https://wisc.academia.edu/LeahEntenmann">Leah Entenmann</a><script data-card-contents-for-user="690273" type="text/json">{"id":690273,"first_name":"Leah","last_name":"Entenmann","domain_name":"wisc","page_name":"LeahEntenmann","display_name":"Leah Entenmann","profile_url":"https://wisc.academia.edu/LeahEntenmann?f_ri=2504","photo":"https://0.academia-photos.com/690273/357822/431928/s65_leah.kay.jpg"}</script></span></span></li><li class="js-paper-rank-work_9973009 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="9973009"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 9973009, container: ".js-paper-rank-work_9973009", }); 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$(".js-view-count[data-work-id=9973009]").text(description); $(".js-view-count-work_9973009").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_9973009").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="9973009"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">32</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="8" href="https://www.academia.edu/Documents/in/Critical_Theory">Critical Theory</a>, <script data-card-contents-for-ri="8" type="text/json">{"id":8,"name":"Critical Theory","url":"https://www.academia.edu/Documents/in/Critical_Theory?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="188" href="https://www.academia.edu/Documents/in/Cultural_Studies">Cultural Studies</a>, <script data-card-contents-for-ri="188" type="text/json">{"id":188,"name":"Cultural Studies","url":"https://www.academia.edu/Documents/in/Cultural_Studies?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="208" href="https://www.academia.edu/Documents/in/Social_Movements">Social Movements</a>, <script data-card-contents-for-ri="208" type="text/json">{"id":208,"name":"Social Movements","url":"https://www.academia.edu/Documents/in/Social_Movements?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="699" href="https://www.academia.edu/Documents/in/Queer_Studies">Queer Studies</a><script data-card-contents-for-ri="699" type="text/json">{"id":699,"name":"Queer Studies","url":"https://www.academia.edu/Documents/in/Queer_Studies?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=9973009]'), work: {"id":9973009,"title":"\"Aggravated Homosexuality\": US Influence in Uganda's Anti-Homosexuality Bill","created_at":"2015-01-01T14:42:57.703-08:00","url":"https://www.academia.edu/9973009/_Aggravated_Homosexuality_US_Influence_in_Ugandas_Anti_Homosexuality_Bill?f_ri=2504","dom_id":"work_9973009","summary":"Enacted February 24, 2014 and effective until August 1, 2014, Uganda’s Anti-Homosexuality Act targeted Ugandans of minority sexual orientations and gender identities—many of whom self-identify as 'kuchu'—by imposing life sentences for homosexual sex and same-sex marriage. The original Anti-Homosexuality Bill introduced in 2009 promised even worse for kuchus: it would have mandated that all Ugandans report known homosexuals and threatened execution for serial offenders and other perpetrators of “aggravated homosexuality.” In the context of Ugandan political conflict, emerging international human rights norms, and global asymmetries of power, Uganda has become an ideological battlefront where competing actors—both US-based and Ugandan—advance their respective visions of a just and righteous global society. These factors mandate that US-based activists and organizations painstakingly consider how (or whether) they can advocate responsibly and effectively for international human rights related to gender identity and sexual orientation. Through interdisciplinary lenses and critical analysis, this paper explores three questions:\r\n\r\n• How is Uganda distinct from other sites of antigay legislation?\r\n• How have US-based organizations impacted Ugandan discourse and policy toward kuchus?\r\n• How can US-based rights advocates and activists campaign for kuchus without doing them further harm?","downloadable_attachments":[{"id":57282256,"asset_id":9973009,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":690273,"first_name":"Leah","last_name":"Entenmann","domain_name":"wisc","page_name":"LeahEntenmann","display_name":"Leah Entenmann","profile_url":"https://wisc.academia.edu/LeahEntenmann?f_ri=2504","photo":"https://0.academia-photos.com/690273/357822/431928/s65_leah.kay.jpg"}],"research_interests":[{"id":8,"name":"Critical Theory","url":"https://www.academia.edu/Documents/in/Critical_Theory?f_ri=2504","nofollow":false},{"id":188,"name":"Cultural 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u-lineHeight1_5 u-tcGrayDarkest">The paper discusses the role that Islamic values can play in articulating Islam as an ethical tradition that can shape the international relations.</div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/7025305" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="21283e28a1b5baff862425a7ac3e0b6b" rel="nofollow" data-download="{"attachment_id":33683063,"asset_id":7025305,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button 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style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="7025305"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">145</a>  </div><span class="InlineList-item-text u-textTruncate u-pl11x"><a class="InlineList-item-text" data-has-card-for-ri="46" href="https://www.academia.edu/Documents/in/Business_Ethics">Business Ethics</a>, <script data-card-contents-for-ri="46" type="text/json">{"id":46,"name":"Business Ethics","url":"https://www.academia.edu/Documents/in/Business_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="106" href="https://www.academia.edu/Documents/in/Religion">Religion</a>, <script data-card-contents-for-ri="106" type="text/json">{"id":106,"name":"Religion","url":"https://www.academia.edu/Documents/in/Religion?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="120" href="https://www.academia.edu/Documents/in/New_Religious_Movements">New Religious Movements</a>, <script data-card-contents-for-ri="120" type="text/json">{"id":120,"name":"New Religious Movements","url":"https://www.academia.edu/Documents/in/New_Religious_Movements?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="122" href="https://www.academia.edu/Documents/in/Comparative_Religion">Comparative Religion</a><script data-card-contents-for-ri="122" type="text/json">{"id":122,"name":"Comparative Religion","url":"https://www.academia.edu/Documents/in/Comparative_Religion?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=7025305]'), work: {"id":7025305,"title":"Islam as an Ethical Tradition of International 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u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/8817976/Female_genital_mutilation_FGM_and_male_circumcision_Should_there_be_a_separate_ethical_discourse">Female genital mutilation (FGM) and male circumcision: Should there be a separate ethical discourse?</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">It is sometimes argued that the non-therapeutic, non-consensual alteration of children’s genitals should be discussed in two separate ethical discourses: one for girls (in which such alterations should be termed ‘female genital... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_8817976" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">It is sometimes argued that the non-therapeutic, non-consensual alteration of children’s genitals should be discussed in two separate ethical discourses: one for girls (in which such alterations should be termed ‘female genital mutilation’ or FGM), and one for boys (in which such alterations should be termed ‘male circumcision’). In this article, I call into question the moral and empirical basis for such a distinction, and argue that all children—whether female, male, or intersex—should be free from having parts of their genitals removed unless there is a pressing medical indication.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/8817976" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="3392181060a1ca99b6d766e9e9839f84" rel="nofollow" data-download="{"attachment_id":47841915,"asset_id":8817976,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/47841915/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="377433" href="https://oxford.academia.edu/BrianDEarp">Brian D . 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In this article, I call into question the moral and empirical basis for such a distinction, and argue that all children—whether female, male, or intersex—should be free from having parts of their genitals removed unless there is a pressing medical indication.","downloadable_attachments":[{"id":47841915,"asset_id":8817976,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":377433,"first_name":"Brian","last_name":"Earp","domain_name":"oxford","page_name":"BrianDEarp","display_name":"Brian D . 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data-work_id="24924144" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/24924144/Restrict_the_Recruitment_of_Involuntarily_Committed_Patients_for_Psychiatric_Research_JAMA_Psychiatry_April_2016_73_4_317_318">Restrict the Recruitment of Involuntarily Committed Patients for Psychiatric Research (JAMA Psychiatry,April 2016, 73:4, 317-318.</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Mentally ill patients who have been involuntarily confined under civil commitment laws are extraordinarily vulnerable to exploitation. Yet federal research guidelines are silent on whether such patients are legitimate targets for... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_24924144" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Mentally ill patients who have been involuntarily confined under civil commitment laws are extraordinarily vulnerable to exploitation. Yet federal research guidelines are silent on whether such patients are legitimate targets for recruitment into medical research studies.  Drawing on the controversial case of Dan Markingson at the University of Minnesota, we argue that action should be taken to restrict the recruitment of these patients as research subjects in psychiatric research studies.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/24924144" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6036172cec067005224eda0c5375f2f5" rel="nofollow" data-download="{"attachment_id":45252846,"asset_id":24924144,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45252846/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="48042233" href="https://independent.academia.edu/ElliottCarl">Carl Elliott</a><script data-card-contents-for-user="48042233" type="text/json">{"id":48042233,"first_name":"Carl","last_name":"Elliott","domain_name":"independent","page_name":"ElliottCarl","display_name":"Carl Elliott","profile_url":"https://independent.academia.edu/ElliottCarl?f_ri=2504","photo":"https://0.academia-photos.com/48042233/12655742/14078248/s65_carl.elliott.jpg"}</script></span></span></li><li class="js-paper-rank-work_24924144 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="24924144"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 24924144, container: ".js-paper-rank-work_24924144", }); });</script></li><li class="js-percentile-work_24924144 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 24924144; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_24924144"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_24924144 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="24924144"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 24924144; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=24924144]").text(description); $(".js-view-count-work_24924144").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_24924144").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="24924144"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">5</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="635" href="https://www.academia.edu/Documents/in/Psychiatry">Psychiatry</a>, <script data-card-contents-for-ri="635" type="text/json">{"id":635,"name":"Psychiatry","url":"https://www.academia.edu/Documents/in/Psychiatry?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="1414" href="https://www.academia.edu/Documents/in/Bioethics">Bioethics</a>, <script data-card-contents-for-ri="1414" type="text/json">{"id":1414,"name":"Bioethics","url":"https://www.academia.edu/Documents/in/Bioethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="7071" href="https://www.academia.edu/Documents/in/Forensic_psychiatry">Forensic psychiatry</a><script data-card-contents-for-ri="7071" type="text/json">{"id":7071,"name":"Forensic psychiatry","url":"https://www.academia.edu/Documents/in/Forensic_psychiatry?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=24924144]'), work: {"id":24924144,"title":"Restrict the Recruitment of Involuntarily Committed Patients for Psychiatric Research (JAMA Psychiatry,April 2016, 73:4, 317-318.","created_at":"2016-05-01T10:53:34.185-07:00","url":"https://www.academia.edu/24924144/Restrict_the_Recruitment_of_Involuntarily_Committed_Patients_for_Psychiatric_Research_JAMA_Psychiatry_April_2016_73_4_317_318?f_ri=2504","dom_id":"work_24924144","summary":"Mentally ill patients who have been involuntarily confined under civil commitment laws are extraordinarily vulnerable to exploitation. Yet federal research guidelines are silent on whether such patients are legitimate targets for recruitment into medical research studies. Drawing on the controversial case of Dan Markingson at the University of Minnesota, we argue that action should be taken to restrict the recruitment of these patients as research subjects in psychiatric research studies.","downloadable_attachments":[{"id":45252846,"asset_id":24924144,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":48042233,"first_name":"Carl","last_name":"Elliott","domain_name":"independent","page_name":"ElliottCarl","display_name":"Carl Elliott","profile_url":"https://independent.academia.edu/ElliottCarl?f_ri=2504","photo":"https://0.academia-photos.com/48042233/12655742/14078248/s65_carl.elliott.jpg"}],"research_interests":[{"id":635,"name":"Psychiatry","url":"https://www.academia.edu/Documents/in/Psychiatry?f_ri=2504","nofollow":false},{"id":1414,"name":"Bioethics","url":"https://www.academia.edu/Documents/in/Bioethics?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":7071,"name":"Forensic psychiatry","url":"https://www.academia.edu/Documents/in/Forensic_psychiatry?f_ri=2504","nofollow":false},{"id":33093,"name":"Medical and Research ethics","url":"https://www.academia.edu/Documents/in/Medical_and_Research_ethics?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_80378313" data-work_id="80378313" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/80378313/Transforming_higher_education_spaces_through_ethical_research_publication_a_critique_of_the_publish_or_perish_aphorism">Transforming higher education spaces through ethical research publication: a critique of the publish or perish aphorism</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The publish or perish aphorism declares publishing a condition for survival in academe. It resonates with the imperatives of neoliberalism that privilege individual success, entrepreneurship, prestige, promotion (self- and institutional)... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_80378313" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The publish or perish aphorism declares publishing a condition for survival in academe. It resonates with the imperatives of neoliberalism that privilege individual success, entrepreneurship, prestige, promotion (self- and institutional) and monetary gain. In this article, I contribute to the vast debates about this aphorism by arguing that its portrayal of publishing as exclusionary for survival of academics has ethical and social justice implications. First, it suggests that research processes are unethical because research participants are not informed of the exclusionary nature of publications. Second, the supposed contribution of research and publication for societal good is marginalised as academics try to find shortcuts to publish for their professional survival. Third, as an approach with a neoliberal feel, the publish or perish dictum elides social justice issues and undermines academic identities, and the dignity of the communities from which data are extracted are at jeopardy. I refer to multidisciplinary literature to outline the violence and exclusions that this aphorism produces. Ultimately, I propose that while publishing is an academic imperative, it can be transformational, ethical, democratic and accommodative of all those that it impacts.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/80378313" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="007b0e229b3ecae5c8a36d84bd0ad717" rel="nofollow" data-download="{"attachment_id":86838749,"asset_id":80378313,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/86838749/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="1248553" href="https://unisouthafr.academia.edu/NomaMadikizela">Noma Madikizela</a><script data-card-contents-for-user="1248553" type="text/json">{"id":1248553,"first_name":"Noma","last_name":"Madikizela","domain_name":"unisouthafr","page_name":"NomaMadikizela","display_name":"Noma Madikizela","profile_url":"https://unisouthafr.academia.edu/NomaMadikizela?f_ri=2504","photo":"https://0.academia-photos.com/1248553/35655533/30840464/s65_noma.madikizela.jpg"}</script></span></span></li><li class="js-paper-rank-work_80378313 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="80378313"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 80378313, container: ".js-paper-rank-work_80378313", }); 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$(".js-view-count[data-work-id=80378313]").text(description); $(".js-view-count-work_80378313").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_80378313").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="80378313"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">7</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="922" href="https://www.academia.edu/Documents/in/Education">Education</a>, <script data-card-contents-for-ri="922" type="text/json">{"id":922,"name":"Education","url":"https://www.academia.edu/Documents/in/Education?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="7818" href="https://www.academia.edu/Documents/in/Academic_Identities">Academic Identities</a>, <script data-card-contents-for-ri="7818" type="text/json">{"id":7818,"name":"Academic Identities","url":"https://www.academia.edu/Documents/in/Academic_Identities?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="22799" href="https://www.academia.edu/Documents/in/Higher_Education_Studies">Higher Education Studies</a><script data-card-contents-for-ri="22799" type="text/json">{"id":22799,"name":"Higher Education Studies","url":"https://www.academia.edu/Documents/in/Higher_Education_Studies?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=80378313]'), work: {"id":80378313,"title":"Transforming higher education spaces through ethical research publication: a critique of the publish or perish aphorism","created_at":"2022-05-31T08:35:07.734-07:00","url":"https://www.academia.edu/80378313/Transforming_higher_education_spaces_through_ethical_research_publication_a_critique_of_the_publish_or_perish_aphorism?f_ri=2504","dom_id":"work_80378313","summary":"The publish or perish aphorism declares publishing a condition for survival in academe. It resonates with the imperatives of neoliberalism that privilege individual success, entrepreneurship, prestige, promotion (self- and institutional) and monetary gain. In this article, I contribute to the vast debates about this aphorism by arguing that its portrayal of publishing as exclusionary for survival of academics has ethical and social justice implications. First, it suggests that research processes are unethical because research participants are not informed of the exclusionary nature of publications. Second, the supposed contribution of research and publication for societal good is marginalised as academics try to find shortcuts to publish for their professional survival. Third, as an approach with a neoliberal feel, the publish or perish dictum elides social justice issues and undermines academic identities, and the dignity of the communities from which data are extracted are at jeopardy. I refer to multidisciplinary literature to outline the violence and exclusions that this aphorism produces. Ultimately, I propose that while publishing is an academic imperative, it can be transformational, ethical, democratic and accommodative of all those that it impacts.","downloadable_attachments":[{"id":86838749,"asset_id":80378313,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":1248553,"first_name":"Noma","last_name":"Madikizela","domain_name":"unisouthafr","page_name":"NomaMadikizela","display_name":"Noma Madikizela","profile_url":"https://unisouthafr.academia.edu/NomaMadikizela?f_ri=2504","photo":"https://0.academia-photos.com/1248553/35655533/30840464/s65_noma.madikizela.jpg"}],"research_interests":[{"id":922,"name":"Education","url":"https://www.academia.edu/Documents/in/Education?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":7818,"name":"Academic Identities","url":"https://www.academia.edu/Documents/in/Academic_Identities?f_ri=2504","nofollow":false},{"id":22799,"name":"Higher Education Studies","url":"https://www.academia.edu/Documents/in/Higher_Education_Studies?f_ri=2504","nofollow":false},{"id":243364,"name":"Higher Education Development","url":"https://www.academia.edu/Documents/in/Higher_Education_Development?f_ri=2504"},{"id":868732,"name":"Aphorism","url":"https://www.academia.edu/Documents/in/Aphorism?f_ri=2504"},{"id":2217419,"name":"Publish or Perish","url":"https://www.academia.edu/Documents/in/Publish_or_Perish?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_68034403" data-work_id="68034403" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/68034403/Research_ethics_and_stem_cells_Is_it_time_to_re_think_current_approaches_to_oversight">Research ethics and stem cells: Is it time to re-think current approaches to oversight?</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/68034403" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="45415753802abcde480dbaa228875b82" rel="nofollow" data-download="{"attachment_id":78658283,"asset_id":68034403,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/78658283/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="212321054" href="https://independent.academia.edu/LoriKnowles">Lori Knowles</a><script data-card-contents-for-user="212321054" type="text/json">{"id":212321054,"first_name":"Lori","last_name":"Knowles","domain_name":"independent","page_name":"LoriKnowles","display_name":"Lori Knowles","profile_url":"https://independent.academia.edu/LoriKnowles?f_ri=2504","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_68034403 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="68034403"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 68034403, container: ".js-paper-rank-work_68034403", }); });</script></li><li class="js-percentile-work_68034403 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 68034403; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_68034403"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_68034403 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="68034403"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 68034403; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=68034403]").text(description); $(".js-view-count-work_68034403").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_68034403").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="68034403"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">13</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="3642" href="https://www.academia.edu/Documents/in/Stem_Cells">Stem Cells</a>, <script data-card-contents-for-ri="3642" type="text/json">{"id":3642,"name":"Stem Cells","url":"https://www.academia.edu/Documents/in/Stem_Cells?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="3699" href="https://www.academia.edu/Documents/in/Stem_cell_and_Regenerative_medicine">Stem cell and Regenerative medicine</a>, <script data-card-contents-for-ri="3699" type="text/json">{"id":3699,"name":"Stem cell and Regenerative medicine","url":"https://www.academia.edu/Documents/in/Stem_cell_and_Regenerative_medicine?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="4486" href="https://www.academia.edu/Documents/in/Political_Science">Political Science</a><script data-card-contents-for-ri="4486" type="text/json">{"id":4486,"name":"Political Science","url":"https://www.academia.edu/Documents/in/Political_Science?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=68034403]'), work: {"id":68034403,"title":"Research ethics and stem cells: Is it time to re-think current approaches to oversight?","created_at":"2022-01-13T21:30:38.191-08:00","url":"https://www.academia.edu/68034403/Research_ethics_and_stem_cells_Is_it_time_to_re_think_current_approaches_to_oversight?f_ri=2504","dom_id":"work_68034403","summary":null,"downloadable_attachments":[{"id":78658283,"asset_id":68034403,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":212321054,"first_name":"Lori","last_name":"Knowles","domain_name":"independent","page_name":"LoriKnowles","display_name":"Lori Knowles","profile_url":"https://independent.academia.edu/LoriKnowles?f_ri=2504","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":3642,"name":"Stem Cells","url":"https://www.academia.edu/Documents/in/Stem_Cells?f_ri=2504","nofollow":false},{"id":3699,"name":"Stem cell and Regenerative medicine","url":"https://www.academia.edu/Documents/in/Stem_cell_and_Regenerative_medicine?f_ri=2504","nofollow":false},{"id":4486,"name":"Political Science","url":"https://www.academia.edu/Documents/in/Political_Science?f_ri=2504","nofollow":false},{"id":12546,"name":"Science and Technology Policy","url":"https://www.academia.edu/Documents/in/Science_and_Technology_Policy?f_ri=2504"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=2504"},{"id":52048,"name":"Stem Cell Research","url":"https://www.academia.edu/Documents/in/Stem_Cell_Research?f_ri=2504"},{"id":54114,"name":"Canada","url":"https://www.academia.edu/Documents/in/Canada?f_ri=2504"},{"id":66744,"name":"Biomedical Research","url":"https://www.academia.edu/Documents/in/Biomedical_Research?f_ri=2504"},{"id":98134,"name":"United States","url":"https://www.academia.edu/Documents/in/United_States?f_ri=2504"},{"id":289699,"name":"Embryo Research","url":"https://www.academia.edu/Documents/in/Embryo_Research?f_ri=2504"},{"id":839672,"name":"Ethics Research","url":"https://www.academia.edu/Documents/in/Ethics_Research?f_ri=2504"},{"id":1681026,"name":"Biochemistry and cell biology","url":"https://www.academia.edu/Documents/in/Biochemistry_and_cell_biology?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_38420214" data-work_id="38420214" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/38420214/Research_Ethics_in_an_Age_of_Big_Data">Research Ethics in an Age of Big Data</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The era of big data introduces new considerations into the traditional context of research ethics. Ethical questions may be considered in terms of accuracy, humane treatment, informed participants, and the necessity and applicability of... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_38420214" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The era of big data introduces new considerations into the traditional context of research ethics. Ethical questions may be considered in terms of accuracy, humane treatment, informed participants, and the necessity and applicability of the work, but big data complicates these issues. Since social media participants reflect certain demographic<br />features, data drawn from those sources should not be taken to represent the general<br />population. Big data collection may be more invasive than necessary due to easy access,<br />and consent may be nonexistent. Data that was once anonymous may become identifiable, last indefinitely and conflict with goals for publication. Ways to respect ethics in big data research include involving participants throughout the process, avoiding collecting information that should remain private, notifying participants of their inclusion and providing them options to correct or delete personal information, and using public<br />channels to disseminate research</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/38420214" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="e416abf61073389a0891c999357be35e" rel="nofollow" data-download="{"attachment_id":58479015,"asset_id":38420214,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/58479015/download_file?st=MTczMjgyMTE4NCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="880920" href="https://pratt.academia.edu/ChrisAlenSula">Chris Alen Sula</a><script data-card-contents-for-user="880920" type="text/json">{"id":880920,"first_name":"Chris Alen","last_name":"Sula","domain_name":"pratt","page_name":"ChrisAlenSula","display_name":"Chris Alen Sula","profile_url":"https://pratt.academia.edu/ChrisAlenSula?f_ri=2504","photo":"https://0.academia-photos.com/880920/1101828/7620351/s65_chris_alen.sula.jpg"}</script></span></span></li><li class="js-paper-rank-work_38420214 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="38420214"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 38420214, container: ".js-paper-rank-work_38420214", }); 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$(".js-view-count[data-work-id=38420214]").text(description); $(".js-view-count-work_38420214").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_38420214").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="38420214"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">5</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="1230" href="https://www.academia.edu/Documents/in/Social_Research_Methods_and_Methodology">Social Research Methods and Methodology</a>, <script data-card-contents-for-ri="1230" type="text/json">{"id":1230,"name":"Social Research Methods and Methodology","url":"https://www.academia.edu/Documents/in/Social_Research_Methods_and_Methodology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2783" href="https://www.academia.edu/Documents/in/Privacy">Privacy</a>, <script data-card-contents-for-ri="2783" type="text/json">{"id":2783,"name":"Privacy","url":"https://www.academia.edu/Documents/in/Privacy?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="17743" href="https://www.academia.edu/Documents/in/Anonymity">Anonymity</a><script data-card-contents-for-ri="17743" type="text/json">{"id":17743,"name":"Anonymity","url":"https://www.academia.edu/Documents/in/Anonymity?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=38420214]'), work: {"id":38420214,"title":"Research Ethics in an Age of Big Data","created_at":"2019-02-22T14:48:39.681-08:00","url":"https://www.academia.edu/38420214/Research_Ethics_in_an_Age_of_Big_Data?f_ri=2504","dom_id":"work_38420214","summary":"The era of big data introduces new considerations into the traditional context of research ethics. Ethical questions may be considered in terms of accuracy, humane treatment, informed participants, and the necessity and applicability of the work, but big data complicates these issues. Since social media participants reflect certain demographic\nfeatures, data drawn from those sources should not be taken to represent the general\npopulation. Big data collection may be more invasive than necessary due to easy access,\nand consent may be nonexistent. Data that was once anonymous may become identifiable, last indefinitely and conflict with goals for publication. Ways to respect ethics in big data research include involving participants throughout the process, avoiding collecting information that should remain private, notifying participants of their inclusion and providing them options to correct or delete personal information, and using public\nchannels to disseminate research","downloadable_attachments":[{"id":58479015,"asset_id":38420214,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":880920,"first_name":"Chris Alen","last_name":"Sula","domain_name":"pratt","page_name":"ChrisAlenSula","display_name":"Chris Alen Sula","profile_url":"https://pratt.academia.edu/ChrisAlenSula?f_ri=2504","photo":"https://0.academia-photos.com/880920/1101828/7620351/s65_chris_alen.sula.jpg"}],"research_interests":[{"id":1230,"name":"Social Research Methods and Methodology","url":"https://www.academia.edu/Documents/in/Social_Research_Methods_and_Methodology?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":2783,"name":"Privacy","url":"https://www.academia.edu/Documents/in/Privacy?f_ri=2504","nofollow":false},{"id":17743,"name":"Anonymity","url":"https://www.academia.edu/Documents/in/Anonymity?f_ri=2504","nofollow":false},{"id":1712058,"name":"Big Data Ethics","url":"https://www.academia.edu/Documents/in/Big_Data_Ethics?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_36924130" data-work_id="36924130" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/36924130/THE_RESTORATION_OF_THE_BEAUTIFUL_SOUL_CONSTRUCT_IN_THE_LIVES_AND_WORKS_OF_SIX_VISUAL_ARTISTS_WASSILY_KANDINSKY_K%C3%84THE_KOLLWITZ_JACOB_LAWRENCE_MARK_ROTHKO_VINCENT_VAN_GOGH_REMEDIOS_VARO">THE RESTORATION OF THE BEAUTIFUL SOUL CONSTRUCT IN THE LIVES AND WORKS OF SIX VISUAL ARTISTS: WASSILY KANDINSKY, KÄTHE KOLLWITZ, JACOB LAWRENCE, MARK ROTHKO, VINCENT VAN GOGH, REMEDIOS VARO</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The Nobel Prize, arguably the most prestigious acknowledgement of ethical achievement, was established by Alfred Nobel to honor those who have performed “to the greatest benefit of mankind” (Nobel, 2018). Despite the many categories for... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_36924130" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The Nobel Prize, arguably the most prestigious acknowledgement of ethical achievement, was established by Alfred Nobel to honor those who have performed “to the greatest benefit of mankind” (Nobel, 2018). Despite the many categories for which Nobel laureates are recognized, there is no category that specifically recognizes the visual artist. In addition, many other direct and indirect measures of individual ethical achievement, such as Gallup’s annual most admired man and woman poll, rarely mention artists. This lack raises an important question: Do contributions to the visual arts fall outside the realm of ethics, thus rendering visual artists ineligible to stand as models of the ethical life?<br />This dissertation aims to cultivate an understanding of the visual artist as a type of ethical exemplar known as the “restored beautiful soul,” a theoretical construct proposed here for the first time in the Masi Model of the Artist as Restored Beautiful Soul (MMARBS). This construct combines the kalos kagathos ideal of the “beautiful soul,” which originated in ancient Greece as the fusion of the beautiful and the good and was revived by Enlightenment philosophers, with a restorative additional element of the communal. Using this new theoretical construct, this investigation analyzes the lives, practices, and influences of a sample of prominent late-nineteenth- and twentieth-century visual artists.<br />This investigation is not simply a theoretical foray into the construct of the ethical artist, however; it is also a practical contribution to the field of arts education. Currently, arts schools and art programs at institutions of higher learning offer little guidance to help aspiring young artists ground their lives and work in a comprehensive system of personal and professional ethics. To remedy this deficiency, arts educators can incorporate the case examples from this investigation into their own curricula, and, more important still, apply the restored beautiful soul construct (MMARBS) to other historical and contemporary artists. Thus, using this new construct, arts educators can develop one-of-a-kind curricula tailored to the needs of specific students, providing those students with role models to demonstrate what it means to maintain a sense of integrity with respect to one’s work, one’s viewers, and one’s community over a career spanning a lifetime.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/36924130" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="5a07e91bc4aa27bdb5274e1b3c19dd6e" rel="nofollow" data-download="{"attachment_id":56874163,"asset_id":36924130,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/56874163/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="83522005" href="https://bu.academia.edu/RobinMasi">Robin Masi</a><script data-card-contents-for-user="83522005" type="text/json">{"id":83522005,"first_name":"Robin","last_name":"Masi","domain_name":"bu","page_name":"RobinMasi","display_name":"Robin Masi","profile_url":"https://bu.academia.edu/RobinMasi?f_ri=2504","photo":"https://0.academia-photos.com/83522005/19983485/19771699/s65_robin.masi.jpg"}</script></span></span></li><li class="js-paper-rank-work_36924130 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="36924130"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 36924130, container: ".js-paper-rank-work_36924130", }); });</script></li><li class="js-percentile-work_36924130 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 36924130; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_36924130"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_36924130 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="36924130"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 36924130; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=36924130]").text(description); $(".js-view-count-work_36924130").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_36924130").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="36924130"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">7</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="814" href="https://www.academia.edu/Documents/in/Ethics">Ethics</a>, <script data-card-contents-for-ri="814" type="text/json">{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="3468" href="https://www.academia.edu/Documents/in/Virtue_Ethics">Virtue Ethics</a>, <script data-card-contents-for-ri="3468" type="text/json">{"id":3468,"name":"Virtue Ethics","url":"https://www.academia.edu/Documents/in/Virtue_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="15341" href="https://www.academia.edu/Documents/in/Aesthetics_and_Ethics">Aesthetics and Ethics</a><script data-card-contents-for-ri="15341" type="text/json">{"id":15341,"name":"Aesthetics and Ethics","url":"https://www.academia.edu/Documents/in/Aesthetics_and_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=36924130]'), work: {"id":36924130,"title":"THE RESTORATION OF THE BEAUTIFUL SOUL CONSTRUCT IN THE LIVES AND WORKS OF SIX VISUAL ARTISTS: WASSILY KANDINSKY, KÄTHE KOLLWITZ, JACOB LAWRENCE, MARK ROTHKO, VINCENT VAN GOGH, REMEDIOS VARO","created_at":"2018-06-26T13:47:53.823-07:00","url":"https://www.academia.edu/36924130/THE_RESTORATION_OF_THE_BEAUTIFUL_SOUL_CONSTRUCT_IN_THE_LIVES_AND_WORKS_OF_SIX_VISUAL_ARTISTS_WASSILY_KANDINSKY_K%C3%84THE_KOLLWITZ_JACOB_LAWRENCE_MARK_ROTHKO_VINCENT_VAN_GOGH_REMEDIOS_VARO?f_ri=2504","dom_id":"work_36924130","summary":"The Nobel Prize, arguably the most prestigious acknowledgement of ethical achievement, was established by Alfred Nobel to honor those who have performed “to the greatest benefit of mankind” (Nobel, 2018). Despite the many categories for which Nobel laureates are recognized, there is no category that specifically recognizes the visual artist. In addition, many other direct and indirect measures of individual ethical achievement, such as Gallup’s annual most admired man and woman poll, rarely mention artists. This lack raises an important question: Do contributions to the visual arts fall outside the realm of ethics, thus rendering visual artists ineligible to stand as models of the ethical life?\nThis dissertation aims to cultivate an understanding of the visual artist as a type of ethical exemplar known as the “restored beautiful soul,” a theoretical construct proposed here for the first time in the Masi Model of the Artist as Restored Beautiful Soul (MMARBS). This construct combines the kalos kagathos ideal of the “beautiful soul,” which originated in ancient Greece as the fusion of the beautiful and the good and was revived by Enlightenment philosophers, with a restorative additional element of the communal. Using this new theoretical construct, this investigation analyzes the lives, practices, and influences of a sample of prominent late-nineteenth- and twentieth-century visual artists.\nThis investigation is not simply a theoretical foray into the construct of the ethical artist, however; it is also a practical contribution to the field of arts education. Currently, arts schools and art programs at institutions of higher learning offer little guidance to help aspiring young artists ground their lives and work in a comprehensive system of personal and professional ethics. To remedy this deficiency, arts educators can incorporate the case examples from this investigation into their own curricula, and, more important still, apply the restored beautiful soul construct (MMARBS) to other historical and contemporary artists. Thus, using this new construct, arts educators can develop one-of-a-kind curricula tailored to the needs of specific students, providing those students with role models to demonstrate what it means to maintain a sense of integrity with respect to one’s work, one’s viewers, and one’s community over a career spanning a lifetime. \n","downloadable_attachments":[{"id":56874163,"asset_id":36924130,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":83522005,"first_name":"Robin","last_name":"Masi","domain_name":"bu","page_name":"RobinMasi","display_name":"Robin Masi","profile_url":"https://bu.academia.edu/RobinMasi?f_ri=2504","photo":"https://0.academia-photos.com/83522005/19983485/19771699/s65_robin.masi.jpg"}],"research_interests":[{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":3468,"name":"Virtue Ethics","url":"https://www.academia.edu/Documents/in/Virtue_Ethics?f_ri=2504","nofollow":false},{"id":15341,"name":"Aesthetics and Ethics","url":"https://www.academia.edu/Documents/in/Aesthetics_and_Ethics?f_ri=2504","nofollow":false},{"id":26558,"name":"Visual Arts","url":"https://www.academia.edu/Documents/in/Visual_Arts?f_ri=2504"},{"id":333506,"name":"Visual Arts, Art Education","url":"https://www.academia.edu/Documents/in/Visual_Arts_Art_Education?f_ri=2504"},{"id":920993,"name":"Visual Arts Education","url":"https://www.academia.edu/Documents/in/Visual_Arts_Education?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_47011405" data-work_id="47011405" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/47011405/Ethics_and_Governance_in_Social_Work_Research_in_the_UK">Ethics and Governance in Social Work Research in the UK</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/47011405" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="8756a688d1bf143a3588f5146760bdcb" rel="nofollow" data-download="{"attachment_id":66334714,"asset_id":47011405,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66334714/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="127669443" href="https://independent.academia.edu/LenaDominelli">Lena Dominelli</a><script data-card-contents-for-user="127669443" type="text/json">{"id":127669443,"first_name":"Lena","last_name":"Dominelli","domain_name":"independent","page_name":"LenaDominelli","display_name":"Lena Dominelli","profile_url":"https://independent.academia.edu/LenaDominelli?f_ri=2504","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_47011405 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="47011405"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 47011405, container: ".js-paper-rank-work_47011405", }); });</script></li><li class="js-percentile-work_47011405 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 47011405; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_47011405"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_47011405 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="47011405"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 47011405; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=47011405]").text(description); $(".js-view-count-work_47011405").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_47011405").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="47011405"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">6</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="940" href="https://www.academia.edu/Documents/in/Social_Work">Social Work</a>, <script data-card-contents-for-ri="940" type="text/json">{"id":940,"name":"Social Work","url":"https://www.academia.edu/Documents/in/Social_Work?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="18987" href="https://www.academia.edu/Documents/in/Natural_Science">Natural Science</a>, <script data-card-contents-for-ri="18987" type="text/json">{"id":18987,"name":"Natural Science","url":"https://www.academia.edu/Documents/in/Natural_Science?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="76440" href="https://www.academia.edu/Documents/in/It_Professional">It Professional</a><script data-card-contents-for-ri="76440" type="text/json">{"id":76440,"name":"It Professional","url":"https://www.academia.edu/Documents/in/It_Professional?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=47011405]'), work: {"id":47011405,"title":"Ethics and Governance in Social Work Research in the UK","created_at":"2021-04-20T10:44:26.614-07:00","url":"https://www.academia.edu/47011405/Ethics_and_Governance_in_Social_Work_Research_in_the_UK?f_ri=2504","dom_id":"work_47011405","summary":null,"downloadable_attachments":[{"id":66334714,"asset_id":47011405,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":127669443,"first_name":"Lena","last_name":"Dominelli","domain_name":"independent","page_name":"LenaDominelli","display_name":"Lena Dominelli","profile_url":"https://independent.academia.edu/LenaDominelli?f_ri=2504","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":940,"name":"Social Work","url":"https://www.academia.edu/Documents/in/Social_Work?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":18987,"name":"Natural Science","url":"https://www.academia.edu/Documents/in/Natural_Science?f_ri=2504","nofollow":false},{"id":76440,"name":"It Professional","url":"https://www.academia.edu/Documents/in/It_Professional?f_ri=2504","nofollow":false},{"id":165585,"name":"Qualitative Study","url":"https://www.academia.edu/Documents/in/Qualitative_Study?f_ri=2504"},{"id":1197942,"name":"Social Science","url":"https://www.academia.edu/Documents/in/Social_Science?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_1515413" data-work_id="1515413" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/1515413/Ethical_considerations_in_mental_health_research_with_racial_and_ethnic_minority_communities">Ethical considerations in mental health research with racial and ethnic minority communities</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/1515413" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="176aca74e26daa07f670e69cfa3ae130" rel="nofollow" data-download="{"attachment_id":12211061,"asset_id":1515413,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/12211061/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="1155382" href="https://utoronto.academia.edu/CharmaineWilliams">Charmaine C. Williams</a><script data-card-contents-for-user="1155382" type="text/json">{"id":1155382,"first_name":"Charmaine C.","last_name":"Williams","domain_name":"utoronto","page_name":"CharmaineWilliams","display_name":"Charmaine C. Williams","profile_url":"https://utoronto.academia.edu/CharmaineWilliams?f_ri=2504","photo":"https://0.academia-photos.com/1155382/419794/864604/s65_charmaine_c..williams.jpg"}</script></span></span></li><li class="js-paper-rank-work_1515413 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="1515413"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 1515413, container: ".js-paper-rank-work_1515413", }); });</script></li><li class="js-percentile-work_1515413 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 1515413; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_1515413"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_1515413 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="1515413"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 1515413; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=1515413]").text(description); $(".js-view-count-work_1515413").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_1515413").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="1515413"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i></div><span class="InlineList-item-text u-textTruncate u-pl6x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a><script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (false) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=1515413]'), work: {"id":1515413,"title":"Ethical considerations in mental health research with racial and ethnic minority communities","created_at":"2012-04-19T03:35:29.051-07:00","url":"https://www.academia.edu/1515413/Ethical_considerations_in_mental_health_research_with_racial_and_ethnic_minority_communities?f_ri=2504","dom_id":"work_1515413","summary":null,"downloadable_attachments":[{"id":12211061,"asset_id":1515413,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":1155382,"first_name":"Charmaine C.","last_name":"Williams","domain_name":"utoronto","page_name":"CharmaineWilliams","display_name":"Charmaine C. Williams","profile_url":"https://utoronto.academia.edu/CharmaineWilliams?f_ri=2504","photo":"https://0.academia-photos.com/1155382/419794/864604/s65_charmaine_c..williams.jpg"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_80732750" data-work_id="80732750" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/80732750/Learning_from_alcohol_policy_reforms_in_the_Northern_Territory_LEARNT_protocol_for_a_mixed_methods_study_examining_the_impacts_of_the_banned_drinker_register">Learning from alcohol (policy) reforms in the Northern Territory (LEARNT): protocol for a mixed-methods study examining the impacts of the banned drinker register</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">IntroductionThe Banned Drinker Register (BDR) was reintroduced in the Northern Territory (NT) in September 2017. The BDR is a supply reduction measure and involves placing people who consume alcohol at harmful levels on a register... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_80732750" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">IntroductionThe Banned Drinker Register (BDR) was reintroduced in the Northern Territory (NT) in September 2017. The BDR is a supply reduction measure and involves placing people who consume alcohol at harmful levels on a register prohibiting the purchase, possession and consumption of alcohol. The current study aims to evaluate the impacts of the reintroduction of the BDR, in the context of other major alcohol policy initiatives introduced across the NT such as Police Auxiliary Liquor Inspectors and a minimum unit price for alcohol of US$1.30 per standard drink.Methods and analysesThe Learning from Alcohol (policy) Reforms in the Northern Territory project will use a mixed-methods approach and contain four major components: epidemiological analysis of trends over time (outcomes include health, justice and social welfare data); individual-level data linkage including those on the BDR (outcomes include health and justice data); qualitative interviews with key stakeholders in the NT (...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/80732750" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6f98fe7af9d61e08bd10c5e5422e0de8" rel="nofollow" data-download="{"attachment_id":87017248,"asset_id":80732750,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/87017248/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="128162767" href="https://independent.academia.edu/BoffaJohn">John Boffa</a><script data-card-contents-for-user="128162767" type="text/json">{"id":128162767,"first_name":"John","last_name":"Boffa","domain_name":"independent","page_name":"BoffaJohn","display_name":"John Boffa","profile_url":"https://independent.academia.edu/BoffaJohn?f_ri=2504","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_80732750 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="80732750"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 80732750, container: ".js-paper-rank-work_80732750", }); });</script></li><li class="js-percentile-work_80732750 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 80732750; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_80732750"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_80732750 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="80732750"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 80732750; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=80732750]").text(description); $(".js-view-count-work_80732750").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_80732750").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="80732750"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">3</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="36437" href="https://www.academia.edu/Documents/in/Thematic_Analysis">Thematic Analysis</a>, <script data-card-contents-for-ri="36437" type="text/json">{"id":36437,"name":"Thematic Analysis","url":"https://www.academia.edu/Documents/in/Thematic_Analysis?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="88968" href="https://www.academia.edu/Documents/in/Record_Linkage">Record Linkage</a><script data-card-contents-for-ri="88968" type="text/json">{"id":88968,"name":"Record Linkage","url":"https://www.academia.edu/Documents/in/Record_Linkage?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=80732750]'), work: {"id":80732750,"title":"Learning from alcohol (policy) reforms in the Northern Territory (LEARNT): protocol for a mixed-methods study examining the impacts of the banned drinker register","created_at":"2022-06-05T03:44:06.029-07:00","url":"https://www.academia.edu/80732750/Learning_from_alcohol_policy_reforms_in_the_Northern_Territory_LEARNT_protocol_for_a_mixed_methods_study_examining_the_impacts_of_the_banned_drinker_register?f_ri=2504","dom_id":"work_80732750","summary":"IntroductionThe Banned Drinker Register (BDR) was reintroduced in the Northern Territory (NT) in September 2017. The BDR is a supply reduction measure and involves placing people who consume alcohol at harmful levels on a register prohibiting the purchase, possession and consumption of alcohol. The current study aims to evaluate the impacts of the reintroduction of the BDR, in the context of other major alcohol policy initiatives introduced across the NT such as Police Auxiliary Liquor Inspectors and a minimum unit price for alcohol of US$1.30 per standard drink.Methods and analysesThe Learning from Alcohol (policy) Reforms in the Northern Territory project will use a mixed-methods approach and contain four major components: epidemiological analysis of trends over time (outcomes include health, justice and social welfare data); individual-level data linkage including those on the BDR (outcomes include health and justice data); qualitative interviews with key stakeholders in the NT (...","downloadable_attachments":[{"id":87017248,"asset_id":80732750,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":128162767,"first_name":"John","last_name":"Boffa","domain_name":"independent","page_name":"BoffaJohn","display_name":"John Boffa","profile_url":"https://independent.academia.edu/BoffaJohn?f_ri=2504","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":36437,"name":"Thematic Analysis","url":"https://www.academia.edu/Documents/in/Thematic_Analysis?f_ri=2504","nofollow":false},{"id":88968,"name":"Record Linkage","url":"https://www.academia.edu/Documents/in/Record_Linkage?f_ri=2504","nofollow":false}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_71380938" data-work_id="71380938" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/71380938/Using_the_Online_Medium_for_Discursive_Research_About_People_With_Disabilities">Using the Online Medium for Discursive Research About People With Disabilities</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Online interviews are deemed an effective and appropriate approach for accessing discourse about the online experiences of people with disabilities. Some of the central arguments in support of conducting discursive research online, a type... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_71380938" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Online interviews are deemed an effective and appropriate approach for accessing discourse about the online experiences of people with disabilities. Some of the central arguments in support of conducting discursive research online, a type of qualitative approach, are delineated. Various practical benefits are considered for researchers, as well as participants—especially those with disabilities. Ethical issues surrounding access to, and the analysis of, readily available data in online communities are brought to the fore. In light of ethical dilemmas surrounding naturalistic data collection online, an alternative approach is offered, which utilizes online interviews with people with disabilities about their online experiences. A description of the data-collection process is given, including participants and recruitment, materials and procedures, rapport building, and security and ethics. Reflections on the process highlight how methodological pitfalls were managed and, in some cases...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/71380938" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6dcc3288840ad3e8c5cf59fb8817e336" rel="nofollow" data-download="{"attachment_id":80748054,"asset_id":71380938,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/80748054/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="54862353" href="https://independent.academia.edu/NatileneBowker">Natilene Bowker</a><script data-card-contents-for-user="54862353" type="text/json">{"id":54862353,"first_name":"Natilene","last_name":"Bowker","domain_name":"independent","page_name":"NatileneBowker","display_name":"Natilene Bowker","profile_url":"https://independent.academia.edu/NatileneBowker?f_ri=2504","photo":"https://0.academia-photos.com/54862353/32530847/29371639/s65_natilene.bowker.jpg"}</script></span></span></li><li class="js-paper-rank-work_71380938 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="71380938"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 71380938, container: ".js-paper-rank-work_71380938", }); });</script></li><li class="js-percentile-work_71380938 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 71380938; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_71380938"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_71380938 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="71380938"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 71380938; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=71380938]").text(description); $(".js-view-count-work_71380938").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_71380938").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="71380938"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">15</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="37" href="https://www.academia.edu/Documents/in/Information_Systems">Information Systems</a>, <script data-card-contents-for-ri="37" type="text/json">{"id":37,"name":"Information Systems","url":"https://www.academia.edu/Documents/in/Information_Systems?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="94" href="https://www.academia.edu/Documents/in/Discourse_Analysis">Discourse Analysis</a>, <script data-card-contents-for-ri="94" type="text/json">{"id":94,"name":"Discourse Analysis","url":"https://www.academia.edu/Documents/in/Discourse_Analysis?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="184" href="https://www.academia.edu/Documents/in/Sociology">Sociology</a>, <script data-card-contents-for-ri="184" type="text/json">{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="422" href="https://www.academia.edu/Documents/in/Computer_Science">Computer Science</a><script data-card-contents-for-ri="422" type="text/json">{"id":422,"name":"Computer Science","url":"https://www.academia.edu/Documents/in/Computer_Science?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=71380938]'), work: {"id":71380938,"title":"Using the Online Medium for Discursive Research About People With Disabilities","created_at":"2022-02-13T13:56:31.528-08:00","url":"https://www.academia.edu/71380938/Using_the_Online_Medium_for_Discursive_Research_About_People_With_Disabilities?f_ri=2504","dom_id":"work_71380938","summary":"Online interviews are deemed an effective and appropriate approach for accessing discourse about the online experiences of people with disabilities. Some of the central arguments in support of conducting discursive research online, a type of qualitative approach, are delineated. Various practical benefits are considered for researchers, as well as participants—especially those with disabilities. Ethical issues surrounding access to, and the analysis of, readily available data in online communities are brought to the fore. In light of ethical dilemmas surrounding naturalistic data collection online, an alternative approach is offered, which utilizes online interviews with people with disabilities about their online experiences. A description of the data-collection process is given, including participants and recruitment, materials and procedures, rapport building, and security and ethics. Reflections on the process highlight how methodological pitfalls were managed and, in some cases...","downloadable_attachments":[{"id":80748054,"asset_id":71380938,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":54862353,"first_name":"Natilene","last_name":"Bowker","domain_name":"independent","page_name":"NatileneBowker","display_name":"Natilene Bowker","profile_url":"https://independent.academia.edu/NatileneBowker?f_ri=2504","photo":"https://0.academia-photos.com/54862353/32530847/29371639/s65_natilene.bowker.jpg"}],"research_interests":[{"id":37,"name":"Information Systems","url":"https://www.academia.edu/Documents/in/Information_Systems?f_ri=2504","nofollow":false},{"id":94,"name":"Discourse Analysis","url":"https://www.academia.edu/Documents/in/Discourse_Analysis?f_ri=2504","nofollow":false},{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology?f_ri=2504","nofollow":false},{"id":422,"name":"Computer Science","url":"https://www.academia.edu/Documents/in/Computer_Science?f_ri=2504","nofollow":false},{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504"},{"id":892,"name":"Statistics","url":"https://www.academia.edu/Documents/in/Statistics?f_ri=2504"},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504"},{"id":2923,"name":"Methodology","url":"https://www.academia.edu/Documents/in/Methodology?f_ri=2504"},{"id":9032,"name":"Interaction","url":"https://www.academia.edu/Documents/in/Interaction?f_ri=2504"},{"id":11006,"name":"Computer Mediated Communication","url":"https://www.academia.edu/Documents/in/Computer_Mediated_Communication?f_ri=2504"},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=2504"},{"id":17743,"name":"Anonymity","url":"https://www.academia.edu/Documents/in/Anonymity?f_ri=2504"},{"id":59587,"name":"Library and Information Studies","url":"https://www.academia.edu/Documents/in/Library_and_Information_Studies?f_ri=2504"},{"id":153168,"name":"Data Collection","url":"https://www.academia.edu/Documents/in/Data_Collection?f_ri=2504"},{"id":1191356,"name":"Internet","url":"https://www.academia.edu/Documents/in/Internet?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_50782888" data-work_id="50782888" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/50782888/Ethical_Concerns_and_Issues_in_the_Publication_Process">Ethical Concerns and Issues in the Publication Process</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The current study suggests that any errors and other inaccuracies noted in the research process should be appropriately communicated to the editorial offices. This will try to eliminate the mistakes that may undermine the value of the... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_50782888" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The current study suggests that any errors and other inaccuracies noted in the research process should be appropriately communicated to the editorial offices. This will try to eliminate the mistakes that may undermine the value of the publication. The present research thus focuses on the ethical issues and concerns in the publication. Research design, data and methodology: A content analysis applied for this study is suitable because there exists enormous textual data in the realm of ethical concerns and issues in the publication process. The current study investigated manifest and critical themes regarding ethical concerns and issues for research publication. Results: Researchers should consider ethical principles based on suggestions of this study when carrying out a publication for the work to be acceptable in diverse regions and the journal should be made in account of completeness and ensure that all the relevant factors are considered to promote the research's accuracy. Conclusions: Ethical issues denote considerations and moral elements that should be considered by the authors while making a publication. They include Beneficence, which literacy means, do no harm, respect for confidentiality, and anonymity, which is about respecting the rights and dignity of subjects identified based on personal responsibility.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/50782888" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="83651744b5de6412f95781abbf79c2e9" rel="nofollow" data-download="{"attachment_id":68650406,"asset_id":50782888,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/68650406/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="187190547" href="https://eiu-vn.academia.edu/EungooKang">Eungoo Kang</a><script data-card-contents-for-user="187190547" type="text/json">{"id":187190547,"first_name":"Eungoo","last_name":"Kang","domain_name":"eiu-vn","page_name":"EungooKang","display_name":"Eungoo Kang","profile_url":"https://eiu-vn.academia.edu/EungooKang?f_ri=2504","photo":"https://0.academia-photos.com/187190547/51845914/39936683/s65_dr._eungoo.kang.jpg"}</script></span></span></li><li class="js-paper-rank-work_50782888 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="50782888"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 50782888, container: ".js-paper-rank-work_50782888", }); });</script></li><li class="js-percentile-work_50782888 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 50782888; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_50782888"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_50782888 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="50782888"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 50782888; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=50782888]").text(description); $(".js-view-count-work_50782888").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_50782888").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="50782888"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="513324" href="https://www.academia.edu/Documents/in/Publication_Ethics">Publication Ethics</a><script data-card-contents-for-ri="513324" type="text/json">{"id":513324,"name":"Publication Ethics","url":"https://www.academia.edu/Documents/in/Publication_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=50782888]'), work: {"id":50782888,"title":"Ethical Concerns and Issues in the Publication Process","created_at":"2021-08-07T12:57:22.477-07:00","url":"https://www.academia.edu/50782888/Ethical_Concerns_and_Issues_in_the_Publication_Process?f_ri=2504","dom_id":"work_50782888","summary":"The current study suggests that any errors and other inaccuracies noted in the research process should be appropriately communicated to the editorial offices. This will try to eliminate the mistakes that may undermine the value of the publication. The present research thus focuses on the ethical issues and concerns in the publication. Research design, data and methodology: A content analysis applied for this study is suitable because there exists enormous textual data in the realm of ethical concerns and issues in the publication process. The current study investigated manifest and critical themes regarding ethical concerns and issues for research publication. Results: Researchers should consider ethical principles based on suggestions of this study when carrying out a publication for the work to be acceptable in diverse regions and the journal should be made in account of completeness and ensure that all the relevant factors are considered to promote the research's accuracy. Conclusions: Ethical issues denote considerations and moral elements that should be considered by the authors while making a publication. They include Beneficence, which literacy means, do no harm, respect for confidentiality, and anonymity, which is about respecting the rights and dignity of subjects identified based on personal responsibility.","downloadable_attachments":[{"id":68650406,"asset_id":50782888,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":187190547,"first_name":"Eungoo","last_name":"Kang","domain_name":"eiu-vn","page_name":"EungooKang","display_name":"Eungoo Kang","profile_url":"https://eiu-vn.academia.edu/EungooKang?f_ri=2504","photo":"https://0.academia-photos.com/187190547/51845914/39936683/s65_dr._eungoo.kang.jpg"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":513324,"name":"Publication Ethics","url":"https://www.academia.edu/Documents/in/Publication_Ethics?f_ri=2504","nofollow":false}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_50279801" data-work_id="50279801" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/50279801/Az%C9%99rbaycanda_Elmi_T%C9%99dqiqat_M%C3%B6vcud_Yana%C5%9Fma_v%C9%99_Beyn%C9%99lxalq_T%C9%99cr%C3%BCb%C9%99_Scientific_Research_in_Azerbaijan_Current_Approach_and_International_Experience_">Azərbaycanda Elmi Tədqiqat: Mövcud Yanaşma və Beynəlxalq Təcrübə (Scientific Research in Azerbaijan: Current Approach and International Experience)</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Azərbaycanda sosial rifahın yüksəlməsinə xidmət edən ixrac potensiallı, müasir texnologiyalar əsasında qurulan sənaye müəssisələri üçün ixtisaslaşmış işçi qüvvəsi və bu müəssisələrin rəqabət qabiliyyətini qorumaq üçün tədqiqat və... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_50279801" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Azərbaycanda sosial rifahın yüksəlməsinə xidmət edən ixrac potensiallı, müasir texnologiyalar əsasında qurulan sənaye müəssisələri üçün ixtisaslaşmış işçi qüvvəsi və bu müəssisələrin rəqabət qabiliyyətini qorumaq üçün tədqiqat və təkmilləşdirmə işlərini apara bilən yüksək ixtisaslı kadrlar lazımdır. Həmin işçi qüvvəsini yaxşı qurulmuş təhsil sistemi təmin edirsə, yüksəkixtisaslı kadrları daha çox yaradıcı təfəkkürü inkişaf etdirən elmi fəaliyyət mühiti yetişdirir. Ölkənin 2012-ci ildə qəbul edilmiş «Azərbaycan 2020: Gələcəyə baxış» İnkişaf Konsepsiyasında elmə diqqətin yerli xüsusiyyətlər və qlobal meyillər nəzərə alınmaqla prioritetləşdiriləcəyi, mütərəqqi dünya elminə səmərəli inteqrasiya prosesinin davam etdiriləcəyi, habelə ölkədə innovativ iqtisadiyyatın yaradılması məqsədi ilə elm və istehsal arasındakı əlaqələrin gücləndiriləcəyi, tətbiqi elmi araşdırmaların bazarın tələbatına müvafiq aparılması üçün zəruri mexanizmlərin yaradılacağı hədəf olaraq göstərilib [Azərbaycan Respublikası Prezidentinin Administrasiyası, 2012]. Bunlar 2016-cı ildə qəbul edilmiş Azərbaycan Elminin İnkişaf Doktrinasında da ehtiva edilmişdir [Azərbaycan Milli Elmlər Akademiyası, 2016a]. Məqalədə bu hədəflər nəzərə alınaraq ölkədə elmi fəaliyyət prosesi aparıcı ölkələrdəki vəziyyətlə müqayisəli təhlil edilmiş, onu təkmilləşdirmək və stimullaşdırmaq üçün konseptual təkliflər verilmişdir.<br /><br />This article attempts to compare the state of the Research and Development (R&D) in the Republic of Azerbaijan with the practices of the leading countries in this area. Drawing from the best practices around the world, it proposes conceptual recommendations for the policymakers regarding the optimal distribution of R&D expenditures among the research areas (basic, applied, experimental); possible ways for the State to stimulate and direct diverse R&D activities in line with its strategic development goals; the issues of intellectual inbreeding, research ethics, research misconduct, predatory publishing; evaluation of researchers and assessment of research activities.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/50279801" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="3655b7df9abc0563516862c94d5ab206" rel="nofollow" data-download="{"attachment_id":68324686,"asset_id":50279801,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/68324686/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="197867915" href="https://independent.academia.edu/AzerbaijanJournalofEducationalSciences">Azerbaijan Journal of Educational Studies</a><script data-card-contents-for-user="197867915" type="text/json">{"id":197867915,"first_name":"Azerbaijan Journal","last_name":"of Educational Studies","domain_name":"independent","page_name":"AzerbaijanJournalofEducationalSciences","display_name":"Azerbaijan Journal of Educational Studies","profile_url":"https://independent.academia.edu/AzerbaijanJournalofEducationalSciences?f_ri=2504","photo":"https://0.academia-photos.com/197867915/59878281/125104376/s65_azerbaijan_journal.of_educational_studies.jpg"}</script></span></span></li><li class="js-paper-rank-work_50279801 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="50279801"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 50279801, container: ".js-paper-rank-work_50279801", }); });</script></li><li class="js-percentile-work_50279801 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 50279801; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_50279801"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_50279801 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="50279801"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 50279801; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=50279801]").text(description); $(".js-view-count-work_50279801").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_50279801").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="50279801"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">5</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="7288" href="https://www.academia.edu/Documents/in/Research_Misconduct">Research Misconduct</a>, <script data-card-contents-for-ri="7288" type="text/json">{"id":7288,"name":"Research Misconduct","url":"https://www.academia.edu/Documents/in/Research_Misconduct?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="43203" href="https://www.academia.edu/Documents/in/Research_Funding">Research Funding</a>, <script data-card-contents-for-ri="43203" type="text/json">{"id":43203,"name":"Research Funding","url":"https://www.academia.edu/Documents/in/Research_Funding?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="60791" href="https://www.academia.edu/Documents/in/Research_Policy">Research Policy</a><script data-card-contents-for-ri="60791" type="text/json">{"id":60791,"name":"Research Policy","url":"https://www.academia.edu/Documents/in/Research_Policy?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=50279801]'), work: {"id":50279801,"title":"Azərbaycanda Elmi Tədqiqat: Mövcud Yanaşma və Beynəlxalq Təcrübə (Scientific Research in Azerbaijan: Current Approach and International Experience)","created_at":"2021-07-26T12:28:44.539-07:00","url":"https://www.academia.edu/50279801/Az%C9%99rbaycanda_Elmi_T%C9%99dqiqat_M%C3%B6vcud_Yana%C5%9Fma_v%C9%99_Beyn%C9%99lxalq_T%C9%99cr%C3%BCb%C9%99_Scientific_Research_in_Azerbaijan_Current_Approach_and_International_Experience_?f_ri=2504","dom_id":"work_50279801","summary":"Azərbaycanda sosial rifahın yüksəlməsinə xidmət edən ixrac potensiallı, müasir texnologiyalar əsasında qurulan sənaye müəssisələri üçün ixtisaslaşmış işçi qüvvəsi və bu müəssisələrin rəqabət qabiliyyətini qorumaq üçün tədqiqat və təkmilləşdirmə işlərini apara bilən yüksək ixtisaslı kadrlar lazımdır. Həmin işçi qüvvəsini yaxşı qurulmuş təhsil sistemi təmin edirsə, yüksəkixtisaslı kadrları daha çox yaradıcı təfəkkürü inkişaf etdirən elmi fəaliyyət mühiti yetişdirir. Ölkənin 2012-ci ildə qəbul edilmiş «Azərbaycan 2020: Gələcəyə baxış» İnkişaf Konsepsiyasında elmə diqqətin yerli xüsusiyyətlər və qlobal meyillər nəzərə alınmaqla prioritetləşdiriləcəyi, mütərəqqi dünya elminə səmərəli inteqrasiya prosesinin davam etdiriləcəyi, habelə ölkədə innovativ iqtisadiyyatın yaradılması məqsədi ilə elm və istehsal arasındakı əlaqələrin gücləndiriləcəyi, tətbiqi elmi araşdırmaların bazarın tələbatına müvafiq aparılması üçün zəruri mexanizmlərin yaradılacağı hədəf olaraq göstərilib [Azərbaycan Respublikası Prezidentinin Administrasiyası, 2012]. Bunlar 2016-cı ildə qəbul edilmiş Azərbaycan Elminin İnkişaf Doktrinasında da ehtiva edilmişdir [Azərbaycan Milli Elmlər Akademiyası, 2016a]. Məqalədə bu hədəflər nəzərə alınaraq ölkədə elmi fəaliyyət prosesi aparıcı ölkələrdəki vəziyyətlə müqayisəli təhlil edilmiş, onu təkmilləşdirmək və stimullaşdırmaq üçün konseptual təkliflər verilmişdir.\n\nThis article attempts to compare the state of the Research and Development (R\u0026D) in the Republic of Azerbaijan with the practices of the leading countries in this area. Drawing from the best practices around the world, it proposes conceptual recommendations for the policymakers regarding the optimal distribution of R\u0026D expenditures among the research areas (basic, applied, experimental); possible ways for the State to stimulate and direct diverse R\u0026D activities in line with its strategic development goals; the issues of intellectual inbreeding, research ethics, research misconduct, predatory publishing; evaluation of researchers and assessment of research activities.","downloadable_attachments":[{"id":68324686,"asset_id":50279801,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":197867915,"first_name":"Azerbaijan Journal","last_name":"of Educational Studies","domain_name":"independent","page_name":"AzerbaijanJournalofEducationalSciences","display_name":"Azerbaijan Journal of Educational Studies","profile_url":"https://independent.academia.edu/AzerbaijanJournalofEducationalSciences?f_ri=2504","photo":"https://0.academia-photos.com/197867915/59878281/125104376/s65_azerbaijan_journal.of_educational_studies.jpg"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":7288,"name":"Research Misconduct","url":"https://www.academia.edu/Documents/in/Research_Misconduct?f_ri=2504","nofollow":false},{"id":43203,"name":"Research Funding","url":"https://www.academia.edu/Documents/in/Research_Funding?f_ri=2504","nofollow":false},{"id":60791,"name":"Research Policy","url":"https://www.academia.edu/Documents/in/Research_Policy?f_ri=2504","nofollow":false},{"id":3758912,"name":"predatory publishing","url":"https://www.academia.edu/Documents/in/predatory_publishing?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_47151178" data-work_id="47151178" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/47151178/Changing_the_Architectural_Profession_Evidence_Based_Design_the_New_Role_of_the_User_and_a_Process_Based_Approach">Changing the Architectural Profession - Evidence-Based Design, the New Role of the User and a Process-Based Approach</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/47151178" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="1c4b84a70ec0b93e0215874c8160942c" rel="nofollow" data-download="{"attachment_id":66396432,"asset_id":47151178,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66396432/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="5525" href="https://ucl.academia.edu/AlanPenn">Alan Penn</a><script data-card-contents-for-user="5525" type="text/json">{"id":5525,"first_name":"Alan","last_name":"Penn","domain_name":"ucl","page_name":"AlanPenn","display_name":"Alan Penn","profile_url":"https://ucl.academia.edu/AlanPenn?f_ri=2504","photo":"https://0.academia-photos.com/5525/2129/2164/s65_alan.penn.jpeg"}</script></span></span></li><li class="js-paper-rank-work_47151178 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="47151178"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 47151178, container: ".js-paper-rank-work_47151178", }); 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On artistic ethics in research.</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest">Chapter in the edited publication "If you are not there, where are you? Mapping the Experience of Absence Seizures Through Art.", co-edited by Henny Dörr and myself.</div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/40647043" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="0f16bcbf9c5f9601a3d3064008e35ce5" rel="nofollow" data-download="{"attachment_id":60929347,"asset_id":40647043,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/60929347/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="221697" href="https://fontyshogeschoolvoordekunsten.academia.edu/FalkH%C3%BCbner">Falk Hübner</a><script data-card-contents-for-user="221697" type="text/json">{"id":221697,"first_name":"Falk","last_name":"Hübner","domain_name":"fontyshogeschoolvoordekunsten","page_name":"FalkHübner","display_name":"Falk Hübner","profile_url":"https://fontyshogeschoolvoordekunsten.academia.edu/FalkH%C3%BCbner?f_ri=2504","photo":"https://0.academia-photos.com/221697/2644254/3076017/s65_falk.h_bner.jpg"}</script></span></span></li><li class="js-paper-rank-work_40647043 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="40647043"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 40647043, container: ".js-paper-rank-work_40647043", }); 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Mapping the Experience of Absence Seizures Through Art.\", co-edited by Henny Dörr and myself.","downloadable_attachments":[{"id":60929347,"asset_id":40647043,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":221697,"first_name":"Falk","last_name":"Hübner","domain_name":"fontyshogeschoolvoordekunsten","page_name":"FalkHübner","display_name":"Falk Hübner","profile_url":"https://fontyshogeschoolvoordekunsten.academia.edu/FalkH%C3%BCbner?f_ri=2504","photo":"https://0.academia-photos.com/221697/2644254/3076017/s65_falk.h_bner.jpg"}],"research_interests":[{"id":623,"name":"Neurology","url":"https://www.academia.edu/Documents/in/Neurology?f_ri=2504","nofollow":false},{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":4052,"name":"Arts Education","url":"https://www.academia.edu/Documents/in/Arts_Education?f_ri=2504","nofollow":false},{"id":5799,"name":"Transdisciplinarity","url":"https://www.academia.edu/Documents/in/Transdisciplinarity?f_ri=2504"},{"id":7648,"name":"Epilepsy","url":"https://www.academia.edu/Documents/in/Epilepsy?f_ri=2504"},{"id":20168,"name":"Artistic Research","url":"https://www.academia.edu/Documents/in/Artistic_Research?f_ri=2504"},{"id":22534,"name":"Practice-Based Research","url":"https://www.academia.edu/Documents/in/Practice-Based_Research?f_ri=2504"},{"id":25969,"name":"Art Education","url":"https://www.academia.edu/Documents/in/Art_Education?f_ri=2504"},{"id":26616,"name":"Arts Education and Pedagogy","url":"https://www.academia.edu/Documents/in/Arts_Education_and_Pedagogy?f_ri=2504"},{"id":49677,"name":"Arts-Based Educational Research","url":"https://www.academia.edu/Documents/in/Arts-Based_Educational_Research?f_ri=2504"},{"id":128608,"name":"Temporal Lobe Epilepsy","url":"https://www.academia.edu/Documents/in/Temporal_Lobe_Epilepsy?f_ri=2504"},{"id":275553,"name":"Arts \u0026 music in Healthcare and Education: Sector of Arts and music in the domain of Internet, ICT sector and Telecommunication society.","url":"https://www.academia.edu/Documents/in/Arts_and_music_in_Healthcare_and_Education_Sector_of_Arts_and_music_in_the_domain_of_Internet_ICT_se?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_3147386" data-work_id="3147386" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/3147386/Unraveling_Ethics_Illuminating_the_Moral_Dilemmas_of_Research_Ethics">Unraveling Ethics: Illuminating the Moral Dilemmas of Research Ethics</a></div></div><div class="u-pb4x 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data-has-card-for-ri="814" href="https://www.academia.edu/Documents/in/Ethics">Ethics</a>, <script data-card-contents-for-ri="814" type="text/json">{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="906" href="https://www.academia.edu/Documents/in/Applied_Ethics">Applied Ethics</a>, <script data-card-contents-for-ri="906" type="text/json">{"id":906,"name":"Applied Ethics","url":"https://www.academia.edu/Documents/in/Applied_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="1230" href="https://www.academia.edu/Documents/in/Social_Research_Methods_and_Methodology">Social Research Methods and Methodology</a>, <script data-card-contents-for-ri="1230" type="text/json">{"id":1230,"name":"Social Research Methods and Methodology","url":"https://www.academia.edu/Documents/in/Social_Research_Methods_and_Methodology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a><script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=3147386]'), work: {"id":3147386,"title":"Unraveling Ethics: Illuminating the Moral Dilemmas of Research Ethics","created_at":"2013-03-28T16:37:41.027-07:00","url":"https://www.academia.edu/3147386/Unraveling_Ethics_Illuminating_the_Moral_Dilemmas_of_Research_Ethics?f_ri=2504","dom_id":"work_3147386","summary":null,"downloadable_attachments":[{"id":31351773,"asset_id":3147386,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":3601187,"first_name":"Christine","last_name":"Halse","domain_name":"ied","page_name":"ChristineHalse","display_name":"Christine Halse","profile_url":"https://ied.academia.edu/ChristineHalse?f_ri=2504","photo":"https://0.academia-photos.com/3601187/5324991/6082943/s65_christine.halse.jpg"}],"research_interests":[{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false},{"id":906,"name":"Applied Ethics","url":"https://www.academia.edu/Documents/in/Applied_Ethics?f_ri=2504","nofollow":false},{"id":1230,"name":"Social Research Methods and Methodology","url":"https://www.academia.edu/Documents/in/Social_Research_Methods_and_Methodology?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":33242,"name":"Anorexia Nervosa","url":"https://www.academia.edu/Documents/in/Anorexia_Nervosa?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_428979" data-work_id="428979" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/428979/_Do_Not_Do_Unto_Others_Cultural_Misrecognition_and_the_Harms_of_Appropriation_in_an_Open_Source_World_with_A_Wylie_">“Do Not Do Unto Others...”: Cultural Misrecognition and the Harms of Appropriation in an Open-Source World (with A. Wylie)</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Human societies have a long history of incorporating elements of the past into the present; never more has this been the case than today. For centuries, if not millennia, creative artists and writers, architects and fashion designers,... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_428979" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Human societies have a long history of incorporating elements of the past into the present; never more has this been the case than today. For centuries, if not millennia, creative artists and writers, architects and fashion designers, publicists and advertisers have borrowed freely from the tangible and intangible heritage of other times and places. There is plentiful evidence of how fundamentally human achievement has depended upon the transmission of knowledge across cultures....In the context of increasingly rapid and global diffusion of tradition-specific images, ideas, and material culture, it is now often a default assumption that ancient objects and images are elements of a shared legacy of humanity.  In this spirit, a growing contingent of scholars and activists aggressively defend the free flow of ideas, images, and knowledge—within and between societies, ancient and modern—on grounds that this is essential to innovation and creativity. Proponents of the Open Access and A2K movements speak of the importance of sharing the world’s vast knowledge, while scholars such as Laurence Lessig, James Boyle, and Kembow McLeod (among others) point to the stifling effects of restrictions on open exchange. Frequently the advocates of open access draw attention to benefits that flow to the source communities and cultures (or their descendants), as well as to the recipients who draw inspiration from the cultural heritage of others. Even if economic benefits don’t flow equitably, so the argument goes, the open exchange of tradition-specific objects, practices, ideas, and knowledge may play an ambassadorial role, fostering cross-cultural understanding and respect....</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/428979" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="e7ada955969b9d850c87847147e1245e" rel="nofollow" data-download="{"attachment_id":31110341,"asset_id":428979,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/31110341/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="15427" href="https://sfu.academia.edu/GeorgeNicholas">George Nicholas</a><script data-card-contents-for-user="15427" type="text/json">{"id":15427,"first_name":"George","last_name":"Nicholas","domain_name":"sfu","page_name":"GeorgeNicholas","display_name":"George Nicholas","profile_url":"https://sfu.academia.edu/GeorgeNicholas?f_ri=2504","photo":"https://0.academia-photos.com/15427/5185/10841033/s65_george.nicholas.jpg"}</script></span></span></li><li class="js-paper-rank-work_428979 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="428979"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 428979, container: ".js-paper-rank-work_428979", }); 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$(".js-view-count[data-work-id=428979]").text(description); $(".js-view-count-work_428979").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_428979").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="428979"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">23</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="261" href="https://www.academia.edu/Documents/in/Geography">Geography</a>, <script data-card-contents-for-ri="261" type="text/json">{"id":261,"name":"Geography","url":"https://www.academia.edu/Documents/in/Geography?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="392" href="https://www.academia.edu/Documents/in/Archaeology">Archaeology</a>, <script data-card-contents-for-ri="392" type="text/json">{"id":392,"name":"Archaeology","url":"https://www.academia.edu/Documents/in/Archaeology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="767" href="https://www.academia.edu/Documents/in/Anthropology">Anthropology</a>, <script data-card-contents-for-ri="767" type="text/json">{"id":767,"name":"Anthropology","url":"https://www.academia.edu/Documents/in/Anthropology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="814" href="https://www.academia.edu/Documents/in/Ethics">Ethics</a><script data-card-contents-for-ri="814" type="text/json">{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=428979]'), work: {"id":428979,"title":"“Do Not Do Unto Others...”: Cultural Misrecognition and the Harms of Appropriation in an Open-Source World (with A. Wylie)","created_at":"2011-02-02T06:24:31.607-08:00","url":"https://www.academia.edu/428979/_Do_Not_Do_Unto_Others_Cultural_Misrecognition_and_the_Harms_of_Appropriation_in_an_Open_Source_World_with_A_Wylie_?f_ri=2504","dom_id":"work_428979","summary":"Human societies have a long history of incorporating elements of the past into the present; never more has this been the case than today. For centuries, if not millennia, creative artists and writers, architects and fashion designers, publicists and advertisers have borrowed freely from the tangible and intangible heritage of other times and places. There is plentiful evidence of how fundamentally human achievement has depended upon the transmission of knowledge across cultures....In the context of increasingly rapid and global diffusion of tradition-specific images, ideas, and material culture, it is now often a default assumption that ancient objects and images are elements of a shared legacy of humanity. In this spirit, a growing contingent of scholars and activists aggressively defend the free flow of ideas, images, and knowledge—within and between societies, ancient and modern—on grounds that this is essential to innovation and creativity. Proponents of the Open Access and A2K movements speak of the importance of sharing the world’s vast knowledge, while scholars such as Laurence Lessig, James Boyle, and Kembow McLeod (among others) point to the stifling effects of restrictions on open exchange. Frequently the advocates of open access draw attention to benefits that flow to the source communities and cultures (or their descendants), as well as to the recipients who draw inspiration from the cultural heritage of others. Even if economic benefits don’t flow equitably, so the argument goes, the open exchange of tradition-specific objects, practices, ideas, and knowledge may play an ambassadorial role, fostering cross-cultural understanding and respect.... \r\n","downloadable_attachments":[{"id":31110341,"asset_id":428979,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":15427,"first_name":"George","last_name":"Nicholas","domain_name":"sfu","page_name":"GeorgeNicholas","display_name":"George Nicholas","profile_url":"https://sfu.academia.edu/GeorgeNicholas?f_ri=2504","photo":"https://0.academia-photos.com/15427/5185/10841033/s65_george.nicholas.jpg"}],"research_interests":[{"id":261,"name":"Geography","url":"https://www.academia.edu/Documents/in/Geography?f_ri=2504","nofollow":false},{"id":392,"name":"Archaeology","url":"https://www.academia.edu/Documents/in/Archaeology?f_ri=2504","nofollow":false},{"id":767,"name":"Anthropology","url":"https://www.academia.edu/Documents/in/Anthropology?f_ri=2504","nofollow":false},{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false},{"id":926,"name":"Indigenous Studies","url":"https://www.academia.edu/Documents/in/Indigenous_Studies?f_ri=2504"},{"id":977,"name":"Development Studies","url":"https://www.academia.edu/Documents/in/Development_Studies?f_ri=2504"},{"id":1578,"name":"Participatory Research","url":"https://www.academia.edu/Documents/in/Participatory_Research?f_ri=2504"},{"id":2068,"name":"Ecotourism","url":"https://www.academia.edu/Documents/in/Ecotourism?f_ri=2504"},{"id":2132,"name":"Cultural Heritage","url":"https://www.academia.edu/Documents/in/Cultural_Heritage?f_ri=2504"},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504"},{"id":3470,"name":"Community Engagement \u0026 Participation","url":"https://www.academia.edu/Documents/in/Community_Engagement_and_Participation?f_ri=2504"},{"id":4071,"name":"Heritage Tourism","url":"https://www.academia.edu/Documents/in/Heritage_Tourism?f_ri=2504"},{"id":4524,"name":"Sustainable Development","url":"https://www.academia.edu/Documents/in/Sustainable_Development?f_ri=2504"},{"id":7453,"name":"Rural Development","url":"https://www.academia.edu/Documents/in/Rural_Development?f_ri=2504"},{"id":7860,"name":"Cultural Tourism","url":"https://www.academia.edu/Documents/in/Cultural_Tourism?f_ri=2504"},{"id":8331,"name":"Indigenous Knowledge","url":"https://www.academia.edu/Documents/in/Indigenous_Knowledge?f_ri=2504"},{"id":18689,"name":"Archaeological Ethics","url":"https://www.academia.edu/Documents/in/Archaeological_Ethics?f_ri=2504"},{"id":19764,"name":"Intangible Cultural Heritage (Culture)","url":"https://www.academia.edu/Documents/in/Intangible_Cultural_Heritage_Culture_?f_ri=2504"},{"id":44365,"name":"Community-Based Participatory Research","url":"https://www.academia.edu/Documents/in/Community-Based_Participatory_Research?f_ri=2504"},{"id":192701,"name":"Environment and Development","url":"https://www.academia.edu/Documents/in/Environment_and_Development?f_ri=2504"},{"id":575775,"name":"Cultural appropriation","url":"https://www.academia.edu/Documents/in/Cultural_appropriation?f_ri=2504"},{"id":799124,"name":"Sustainable/Responsible Tourism","url":"https://www.academia.edu/Documents/in/Sustainable_Responsible_Tourism?f_ri=2504"},{"id":931864,"name":"Nomadic/Indigenous People","url":"https://www.academia.edu/Documents/in/Nomadic_Indigenous_People?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_70049459" data-work_id="70049459" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/70049459/Fostering_Research_Integrity_through_Institutional_Policies_The_Case_of_a_Selected_Institution_of_Higher_Education">Fostering Research Integrity through Institutional Policies: The Case of a Selected Institution of Higher Education</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Truth, trust and integrity are essential to research at higher education institutions. These institutions have accordingly adopted several policies to foster research integrity. This article explores the likelihood that relevant policies... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_70049459" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Truth, trust and integrity are essential to research at higher education institutions. These institutions have accordingly adopted several policies to foster research integrity. This article explores the likelihood that relevant policies at a selected institution of higher education foster research integrity. The qualitative, single exploratory case study commences with a review of scholarly literature and results in a conceptual model used for a directed content analysis of relevant institutional policies. The findings indicate that these policies do complement each other in fostering research integrity. Further research will be necessary to establish whether policies indeed contribute to responsible researcher conduct.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/70049459" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="aa931827bb520f5ce1c0f3c880dd3f8b" rel="nofollow" data-download="{"attachment_id":79927736,"asset_id":70049459,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/79927736/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="4901821" href="https://unisouthafr.academia.edu/KobusWessels">Jacobus S Wessels</a><script data-card-contents-for-user="4901821" type="text/json">{"id":4901821,"first_name":"Jacobus","last_name":"Wessels","domain_name":"unisouthafr","page_name":"KobusWessels","display_name":"Jacobus S Wessels","profile_url":"https://unisouthafr.academia.edu/KobusWessels?f_ri=2504","photo":"https://0.academia-photos.com/4901821/2110138/14147529/s65_kobus.wessels.jpg"}</script></span></span></li><li class="js-paper-rank-work_70049459 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="70049459"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 70049459, container: ".js-paper-rank-work_70049459", }); 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$(".js-view-count[data-work-id=70049459]").text(description); $(".js-view-count-work_70049459").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_70049459").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="70049459"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">7</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="4486" href="https://www.academia.edu/Documents/in/Political_Science">Political Science</a>, <script data-card-contents-for-ri="4486" type="text/json">{"id":4486,"name":"Political Science","url":"https://www.academia.edu/Documents/in/Political_Science?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="7288" href="https://www.academia.edu/Documents/in/Research_Misconduct">Research Misconduct</a>, <script data-card-contents-for-ri="7288" type="text/json">{"id":7288,"name":"Research Misconduct","url":"https://www.academia.edu/Documents/in/Research_Misconduct?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="11035" href="https://www.academia.edu/Documents/in/Regulation">Regulation</a><script data-card-contents-for-ri="11035" type="text/json">{"id":11035,"name":"Regulation","url":"https://www.academia.edu/Documents/in/Regulation?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=70049459]'), work: {"id":70049459,"title":"Fostering Research Integrity through Institutional Policies: The Case of a Selected Institution of Higher Education","created_at":"2022-01-30T08:26:17.179-08:00","url":"https://www.academia.edu/70049459/Fostering_Research_Integrity_through_Institutional_Policies_The_Case_of_a_Selected_Institution_of_Higher_Education?f_ri=2504","dom_id":"work_70049459","summary":"Truth, trust and integrity are essential to research at higher education institutions. These institutions have accordingly adopted several policies to foster research integrity. This article explores the likelihood that relevant policies at a selected institution of higher education foster research integrity. The qualitative, single exploratory case study commences with a review of scholarly literature and results in a conceptual model used for a directed content analysis of relevant institutional policies. The findings indicate that these policies do complement each other in fostering research integrity. Further research will be necessary to establish whether policies indeed contribute to responsible researcher conduct.","downloadable_attachments":[{"id":79927736,"asset_id":70049459,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":4901821,"first_name":"Jacobus","last_name":"Wessels","domain_name":"unisouthafr","page_name":"KobusWessels","display_name":"Jacobus S Wessels","profile_url":"https://unisouthafr.academia.edu/KobusWessels?f_ri=2504","photo":"https://0.academia-photos.com/4901821/2110138/14147529/s65_kobus.wessels.jpg"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":4486,"name":"Political Science","url":"https://www.academia.edu/Documents/in/Political_Science?f_ri=2504","nofollow":false},{"id":7288,"name":"Research 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href="https://www.academia.edu/48509153/The_ethics_of_community_based_research_with_people_who_use_drugs_results_of_a_scoping_review">The ethics of community-based research with people who use drugs: results of a scoping review</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/48509153" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="5529ec1a31760e7d79ee461eadb2b551" rel="nofollow" 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Ethics","url":"https://www.academia.edu/Documents/in/Applied_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2484" href="https://www.academia.edu/Documents/in/Drugs_And_Addiction">Drugs And Addiction</a>, <script data-card-contents-for-ri="2484" type="text/json">{"id":2484,"name":"Drugs And Addiction","url":"https://www.academia.edu/Documents/in/Drugs_And_Addiction?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a><script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=48509153]'), work: {"id":48509153,"title":"The ethics of community-based research with people who 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Addiction","url":"https://www.academia.edu/Documents/in/Drugs_And_Addiction?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":3470,"name":"Community Engagement \u0026 Participation","url":"https://www.academia.edu/Documents/in/Community_Engagement_and_Participation?f_ri=2504"},{"id":20159,"name":"Capacity Building","url":"https://www.academia.edu/Documents/in/Capacity_Building?f_ri=2504"},{"id":40116,"name":"Community Based Participatory Research","url":"https://www.academia.edu/Documents/in/Community_Based_Participatory_Research?f_ri=2504"},{"id":144049,"name":"Attitude","url":"https://www.academia.edu/Documents/in/Attitude?f_ri=2504"},{"id":315990,"name":"Remuneration","url":"https://www.academia.edu/Documents/in/Remuneration?f_ri=2504"},{"id":359887,"name":"Hiv Aids","url":"https://www.academia.edu/Documents/in/Hiv_Aids-14?f_ri=2504"},{"id":988875,"name":"Drug Users","url":"https://www.academia.edu/Documents/in/Drug_Users?f_ri=2504"},{"id":1234717,"name":"Bioethical Issues","url":"https://www.academia.edu/Documents/in/Bioethical_Issues?f_ri=2504"},{"id":1423077,"name":"Substance-Related Disorders","url":"https://www.academia.edu/Documents/in/Substance-Related_Disorders?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_30837997 coauthored" data-work_id="30837997" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/30837997/Why_persons_choose_to_opt_out_of_an_exception_from_informed_consent_cardiac_arrest_trial">Why persons choose to opt out of an exception from informed consent cardiac arrest trial</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/30837997" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="1108ea34331bbfbf3ae7e18afc42e2fb" rel="nofollow" data-download="{"attachment_id":51268879,"asset_id":30837997,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/51268879/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase 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href="https://www.academia.edu/Documents/in/Informed_Consent">Informed Consent</a>, <script data-card-contents-for-ri="8562" type="text/json">{"id":8562,"name":"Informed Consent","url":"https://www.academia.edu/Documents/in/Informed_Consent?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="66744" href="https://www.academia.edu/Documents/in/Biomedical_Research">Biomedical Research</a>, <script data-card-contents-for-ri="66744" type="text/json">{"id":66744,"name":"Biomedical Research","url":"https://www.academia.edu/Documents/in/Biomedical_Research?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="99698" href="https://www.academia.edu/Documents/in/Resuscitation">Resuscitation</a><script data-card-contents-for-ri="99698" type="text/json">{"id":99698,"name":"Resuscitation","url":"https://www.academia.edu/Documents/in/Resuscitation?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) 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u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/1016879/When_is_deception_in_research_ethical">When is deception in research ethical?</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/1016879" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a19b25c3efcb7cae12b15cbb8d9e2ca0" rel="nofollow" data-download="{"attachment_id":6214860,"asset_id":1016879,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen 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Wilson","profile_url":"https://ucl.academia.edu/JamesWilson?f_ri=2504","photo":"https://0.academia-photos.com/147922/582089/723315/s65_james.wilson.jpeg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-1016879">+1</span><div class="hidden js-additional-users-1016879"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/NafsikaAthanassoulis">Nafsika Athanassoulis</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-1016879'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-1016879').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_1016879 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden 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data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="32101" href="https://www.academia.edu/Documents/in/Clinical_Ethics">Clinical Ethics</a><script data-card-contents-for-ri="32101" type="text/json">{"id":32101,"name":"Clinical Ethics","url":"https://www.academia.edu/Documents/in/Clinical_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=1016879]'), work: {"id":1016879,"title":"When is deception in research 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class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="1930511" href="https://ruc-dk.academia.edu/TobiasRaun">Tobias Raun</a><script data-card-contents-for-user="1930511" type="text/json">{"id":1930511,"first_name":"Tobias","last_name":"Raun","domain_name":"ruc-dk","page_name":"TobiasRaun","display_name":"Tobias Raun","profile_url":"https://ruc-dk.academia.edu/TobiasRaun?f_ri=2504","photo":"https://0.academia-photos.com/1930511/651339/82477848/s65_tobias.raun.jpg"}</script></span></span></li><li class="js-paper-rank-work_1235497 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="1235497"><i class="u-m1x fa fa-bar-chart"></i><strong 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Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2869" href="https://www.academia.edu/Documents/in/Digital_Media">Digital Media</a>, <script data-card-contents-for-ri="2869" type="text/json">{"id":2869,"name":"Digital Media","url":"https://www.academia.edu/Documents/in/Digital_Media?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="9246" href="https://www.academia.edu/Documents/in/Social_Media">Social Media</a>, <script data-card-contents-for-ri="9246" type="text/json">{"id":9246,"name":"Social Media","url":"https://www.academia.edu/Documents/in/Social_Media?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="12093" href="https://www.academia.edu/Documents/in/Theories_of_Gender_and_Transgender">Theories of Gender and Transgender</a><script data-card-contents-for-ri="12093" type="text/json">{"id":12093,"name":"Theories of Gender and Transgender","url":"https://www.academia.edu/Documents/in/Theories_of_Gender_and_Transgender?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=1235497]'), work: {"id":1235497,"title":"Mand nok? – Om kropsliggørelser og maskulitetsfortællinger i transkønnedes video blogs på 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class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/3105478/Beyond_informed_consent_how_is_it_possible_to_ethically_evaluate_Indigenous_programs">Beyond informed consent : how is it possible to ethically evaluate Indigenous programs?</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">"There are well-established ethical standards that apply to the conduct of research in Australia, including research within Indigenous contexts. Ethics committees oversee academic or institutional research design and practice to ensure... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_3105478" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">"There are well-established ethical standards that apply to the conduct of research in Australia, including research within Indigenous contexts. Ethics committees oversee academic or institutional research design and practice to ensure that methods are culturally appropriate and that the rights of individuals and communities are respected and protected. NHMRC guidelines specifically address the issues of Aboriginal and Torres Strait  Islander participants. The Australian Institute of Aboriginal and Torres Strait Islander Studies has produced a set of research  Ethics guidelines, structured around 14 principles. <br />Evaluation is a form of research which provides particular ethical issues. As well as being guided by the ethical guidelines set out above, the Australasian Evaluation Society’s guidelines for ethical conduct of evaluations also provide a standard that Australian evaluators in general would adhere to. <br />But do these ethics processes and guidelines take into account the complete array of issues that arise with program evaluations? The authors’ experiences and observations suggest that they do not, and they are supported by much of the international literature. After detailing some of the challenges faced by the authors and by others working in the northern Australian context, four potential areas of improvement are detailed. The seminar will be of particular interest to research and evaluation practitioners, commissioners of evaluation and organisations/agencies that are subject to evaluation. "</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/3105478" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="7a4ccb7aff0beae486a5a82c1677f031" rel="nofollow" data-download="{"attachment_id":31042769,"asset_id":3105478,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/31042769/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="2728170" href="https://batchelor.academia.edu/JohnGuenther">John Guenther</a><script data-card-contents-for-user="2728170" type="text/json">{"id":2728170,"first_name":"John","last_name":"Guenther","domain_name":"batchelor","page_name":"JohnGuenther","display_name":"John Guenther","profile_url":"https://batchelor.academia.edu/JohnGuenther?f_ri=2504","photo":"https://0.academia-photos.com/2728170/880451/35905751/s65_john.guenther.jpg"}</script></span></span></li><li class="js-paper-rank-work_3105478 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="3105478"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 3105478, container: ".js-paper-rank-work_3105478", }); 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$(".js-view-count[data-work-id=3105478]").text(description); $(".js-view-count-work_3105478").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_3105478").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="3105478"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">6</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="814" href="https://www.academia.edu/Documents/in/Ethics">Ethics</a>, <script data-card-contents-for-ri="814" type="text/json">{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2065" href="https://www.academia.edu/Documents/in/Research_Methodology">Research Methodology</a>, <script data-card-contents-for-ri="2065" type="text/json">{"id":2065,"name":"Research Methodology","url":"https://www.academia.edu/Documents/in/Research_Methodology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2807" href="https://www.academia.edu/Documents/in/Evaluation_Research">Evaluation Research</a><script data-card-contents-for-ri="2807" type="text/json">{"id":2807,"name":"Evaluation Research","url":"https://www.academia.edu/Documents/in/Evaluation_Research?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=3105478]'), work: {"id":3105478,"title":"Beyond informed consent : how is it possible to ethically evaluate Indigenous programs?","created_at":"2013-03-25T09:14:05.380-07:00","url":"https://www.academia.edu/3105478/Beyond_informed_consent_how_is_it_possible_to_ethically_evaluate_Indigenous_programs?f_ri=2504","dom_id":"work_3105478","summary":"\"There are well-established ethical standards that apply to the conduct of research in Australia, including research within Indigenous contexts. Ethics committees oversee academic or institutional research design and practice to ensure that methods are culturally appropriate and that the rights of individuals and communities are respected and protected. NHMRC guidelines specifically address the issues of Aboriginal and Torres Strait Islander participants. The Australian Institute of Aboriginal and Torres Strait Islander Studies has produced a set of research Ethics guidelines, structured around 14 principles.\r\nEvaluation is a form of research which provides particular ethical issues. As well as being guided by the ethical guidelines set out above, the Australasian Evaluation Society’s guidelines for ethical conduct of evaluations also provide a standard that Australian evaluators in general would adhere to.\r\nBut do these ethics processes and guidelines take into account the complete array of issues that arise with program evaluations? 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violence research: Cross-cultural issues</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/515153" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="0c099d0cba73bd16a81b2d8f49c8b42a" rel="nofollow" data-download="{"attachment_id":2467735,"asset_id":515153,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" 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class="js-paper-rank-work_515153 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="515153"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 515153, container: ".js-paper-rank-work_515153", }); });</script></li><li class="js-percentile-work_515153 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 515153; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_515153"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_515153 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="515153"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 515153; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=515153]").text(description); $(".js-view-count-work_515153").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_515153").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="515153"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="78198" href="https://www.academia.edu/Documents/in/Family_Violence">Family Violence</a><script data-card-contents-for-ri="78198" type="text/json">{"id":78198,"name":"Family Violence","url":"https://www.academia.edu/Documents/in/Family_Violence?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=515153]'), work: {"id":515153,"title":"Ethics in family violence research: Cross-cultural 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class="clearfix u-pv7x u-mb0x js-work-card work_1909519" data-work_id="1909519" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/1909519/Ethical_considerations_of_evidenced_based_practice">Ethical considerations of evidenced based practice</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/1909519" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="182d29311c51158140b7a1336febf9d3" rel="nofollow" data-download="{"attachment_id":27313350,"asset_id":1909519,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/27313350/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="1808674" href="https://tacoma-washington.academia.edu/RichFurman">Rich Furman</a><script data-card-contents-for-user="1808674" 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});</script></span><script>$(function() { $(".js-view-count-work_1909519").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="1909519"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">164</a>  </div><span class="InlineList-item-text u-textTruncate u-pl11x"><a class="InlineList-item-text" data-has-card-for-ri="1" href="https://www.academia.edu/Documents/in/Creative_Writing">Creative Writing</a>, <script data-card-contents-for-ri="1" type="text/json">{"id":1,"name":"Creative Writing","url":"https://www.academia.edu/Documents/in/Creative_Writing?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="8" href="https://www.academia.edu/Documents/in/Critical_Theory">Critical Theory</a>, <script data-card-contents-for-ri="8" type="text/json">{"id":8,"name":"Critical Theory","url":"https://www.academia.edu/Documents/in/Critical_Theory?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="26" href="https://www.academia.edu/Documents/in/Business">Business</a>, <script data-card-contents-for-ri="26" type="text/json">{"id":26,"name":"Business","url":"https://www.academia.edu/Documents/in/Business?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="38" href="https://www.academia.edu/Documents/in/Management">Management</a><script data-card-contents-for-ri="38" type="text/json">{"id":38,"name":"Management","url":"https://www.academia.edu/Documents/in/Management?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=1909519]'), work: {"id":1909519,"title":"Ethical considerations of evidenced based 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u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/38004542/The_Common_Rules_Reasonable_Person_Standard_for_Informed_Consent">The Common Rule's "Reasonable Person" Standard for Informed Consent</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Laura Odwazny and Benjamin Berkman have raised several challenges regarding the new reasonable person standard in the revised Common Rule, which states that informed consent requires potential research subjects be provided with... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_38004542" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Laura Odwazny and Benjamin Berkman have raised several challenges regarding the new reasonable person standard in the revised Common Rule, which states that informed consent requires potential research subjects be provided with information a reasonable person would want to know to make an informed decision on whether to participation in  a study. Our aim is to offer a response to the challenges Odwazny and Berkman's raise, which include the need for a reasonable person standard that can be applied consistently across IRBs and that doesn't stigmatize marginal groups. In response, we argue that the standard ought to be based in an Ordinary rather than Ideal Person conception of reasonable person and that the standard ought to employ what we call a Liberal Constraint: the reasonability standard must be malleable enough such that a wide variety of individuals with different, unique value systems would endorse it. We conclude by suggesting some of the likely consequences our view would have, if adopted.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/38004542" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="0d8429694ceb38db26db778cf7b9e26d" rel="nofollow" data-download="{"attachment_id":58024042,"asset_id":38004542,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/58024042/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="11249032" href="https://gcsc.academia.edu/RyanHubbard">Ryan Hubbard</a><script data-card-contents-for-user="11249032" type="text/json">{"id":11249032,"first_name":"Ryan","last_name":"Hubbard","domain_name":"gcsc","page_name":"RyanHubbard","display_name":"Ryan Hubbard","profile_url":"https://gcsc.academia.edu/RyanHubbard?f_ri=2504","photo":"https://0.academia-photos.com/11249032/3305702/3890138/s65_ryan.hubbard.jpg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-38004542">+1</span><div class="hidden js-additional-users-38004542"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/JakeGreenblum">Jake Greenblum</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-38004542'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-38004542').html(); 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Our aim is to offer a response to the challenges Odwazny and Berkman's raise, which include the need for a reasonable person standard that can be applied consistently across IRBs and that doesn't stigmatize marginal groups. In response, we argue that the standard ought to be based in an Ordinary rather than Ideal Person conception of reasonable person and that the standard ought to employ what we call a Liberal Constraint: the reasonability standard must be malleable enough such that a wide variety of individuals with different, unique value systems would endorse it. We conclude by suggesting some of the likely consequences our view would have, if adopted.","downloadable_attachments":[{"id":58024042,"asset_id":38004542,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":11249032,"first_name":"Ryan","last_name":"Hubbard","domain_name":"gcsc","page_name":"RyanHubbard","display_name":"Ryan Hubbard","profile_url":"https://gcsc.academia.edu/RyanHubbard?f_ri=2504","photo":"https://0.academia-photos.com/11249032/3305702/3890138/s65_ryan.hubbard.jpg"},{"id":42982138,"first_name":"Jake","last_name":"Greenblum","domain_name":"independent","page_name":"JakeGreenblum","display_name":"Jake Greenblum","profile_url":"https://independent.academia.edu/JakeGreenblum?f_ri=2504","photo":"https://0.academia-photos.com/42982138/28915387/26983338/s65_jake.greenblum.jpg"}],"research_interests":[{"id":1414,"name":"Bioethics","url":"https://www.academia.edu/Documents/in/Bioethics?f_ri=2504","nofollow":false},{"id":2504,"name":"Research 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evidence-based research ethics: A review of the substance abuse literature</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/3552109" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="70ec74a29641886b619ef3c1d66abb18" rel="nofollow" data-download="{"attachment_id":50236816,"asset_id":3552109,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" 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&#x27;teaching&#x27;, drawing on my own efforts to explore research ethics with undergraduate students. I first critically address what we &#x27;teach&#x27;... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_19531561" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">In this paper I want to talk about the use of participatory approaches to &#x27;teaching&#x27;, drawing on my own efforts to explore research ethics with undergraduate students. I first critically address what we &#x27;teach&#x27; regarding ethics in geography, given that &#x27;codes of ethics&#x27; and &#x27;good ...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/19531561" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6dab9b13f051d904a4a2afee1bdef4a9" rel="nofollow" data-download="{"attachment_id":54996472,"asset_id":19531561,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/54996472/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="180703" href="https://glasgow.academia.edu/kyeaskins">kye askins</a><script data-card-contents-for-user="180703" type="text/json">{"id":180703,"first_name":"kye","last_name":"askins","domain_name":"glasgow","page_name":"kyeaskins","display_name":"kye askins","profile_url":"https://glasgow.academia.edu/kyeaskins?f_ri=2504","photo":"https://0.academia-photos.com/180703/4436361/5144055/s65_kye.askins.jpg"}</script></span></span></li><li class="js-paper-rank-work_19531561 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="19531561"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 19531561, container: ".js-paper-rank-work_19531561", }); 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href="https://www.academia.edu/Documents/in/Intellectual_Disability">Intellectual Disability</a><script data-card-contents-for-ri="23868" type="text/json">{"id":23868,"name":"Intellectual Disability","url":"https://www.academia.edu/Documents/in/Intellectual_Disability?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=1152499]'), work: {"id":1152499,"title":"Capacity to consent to participate in researcha 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href="https://uow.academia.edu/MelissaJoyWolfe">Melissa Joy Wolfe</a><script data-card-contents-for-user="1531284" type="text/json">{"id":1531284,"first_name":"Melissa Joy","last_name":"Wolfe","domain_name":"uow","page_name":"MelissaJoyWolfe","display_name":"Melissa Joy Wolfe","profile_url":"https://uow.academia.edu/MelissaJoyWolfe?f_ri=2504","photo":"https://0.academia-photos.com/1531284/680418/15251456/s65_melissa.wolfe.jpg"}</script></span></span></li><li class="js-paper-rank-work_81929423 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="81929423"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 81929423, container: ".js-paper-rank-work_81929423", }); });</script></li><li class="js-percentile-work_81929423 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span 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href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="27903" href="https://www.academia.edu/Documents/in/Affect_Cultural_Theory_">Affect (Cultural Theory)</a>, <script data-card-contents-for-ri="27903" type="text/json">{"id":27903,"name":"Affect (Cultural Theory)","url":"https://www.academia.edu/Documents/in/Affect_Cultural_Theory_?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="35256" href="https://www.academia.edu/Documents/in/Shame">Shame</a><script data-card-contents-for-ri="35256" type="text/json">{"id":35256,"name":"Shame","url":"https://www.academia.edu/Documents/in/Shame?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new 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itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/21487021/Racialized_Discourses_Writing_Against_an_Essentialized_Story_About_Racism">Racialized Discourses: Writing Against an Essentialized Story About Racism</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">This paper is concerned with the ethics of knowledge production when conducting research on racial injustice. The discussion draws upon my doctoral research, in which I interviewed 23 racialized social workers in Toronto, Canada, about... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_21487021" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">This paper is concerned with the ethics of knowledge production when conducting research on racial injustice. The discussion draws upon my doctoral research, in which I interviewed 23 racialized social workers in Toronto, Canada, about their encounters with racism in the workplace. The discussion centres on my role as a racialized researcher and the effects of any assumed " insider-ness " on how I heard and interpreted participant narratives. Although the workers and I shared experiences of racism, I could not assume " sameness, " nor could I adopt an authentic voice about how racism is experienced. This paper examines the significance of producing research about racial domination, but argues for an anti-essentialist stance. I explore the ethical dilemmas involved through examining the dominant assumptions underlying insider research. Only when we come to be very clear about how race is lived, in its multiple manifestations, only when we come to appreciate its often hidden epistemic effects and its power over collective imaginations of public space, can we entertain even the remote possibility of its eventual transformations. (Alcoff, 2002, p. 267) This paper is concerned with the ethics of knowledge production when conducting research on racial injustice. I specifically examine the ethical dilemmas that arise from the assumptions that constitute insider/outsider debates in research, and I make the argument that the danger for essentialism poses significant risks to research. The discussion draws upon my doctoral research, in which I interviewed 23 racialized social workers in Toronto, Canada, about their encounters with racism in the workplace. The study focused on the ways in which racialized workers negotiate professional practice within a white-normed profession, with a specific emphasis the ways in which racial injustice manifests in everyday social work. The stories shared by participants in this study were emotionally heavy, complicated, hard to tell (and hear). The workers shared narratives describing how clients would refuse to work with them, utter racist comments toward them, and in some situations, used physical violence (Badwall, 2014). Furthermore, they relayed how co-workers and managers responded to these acts, which more often than not resulted in no action or support. Instead, their stories reveal the ways in which social work values of helping,</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/21487021" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="b16bf3438606f700821d765681098f5c" rel="nofollow" data-download="{"attachment_id":41913492,"asset_id":21487021,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/41913492/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="41523941" href="https://yorku.academia.edu/HarjeetBadwall">Harjeet Badwall</a><script data-card-contents-for-user="41523941" type="text/json">{"id":41523941,"first_name":"Harjeet","last_name":"Badwall","domain_name":"yorku","page_name":"HarjeetBadwall","display_name":"Harjeet Badwall","profile_url":"https://yorku.academia.edu/HarjeetBadwall?f_ri=2504","photo":"https://0.academia-photos.com/41523941/11288717/55272802/s65_harjeet.badwall.jpg"}</script></span></span></li><li class="js-paper-rank-work_21487021 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="21487021"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 21487021, container: ".js-paper-rank-work_21487021", }); 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$(".js-view-count[data-work-id=21487021]").text(description); $(".js-view-count-work_21487021").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_21487021").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="21487021"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">5</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="940" href="https://www.academia.edu/Documents/in/Social_Work">Social Work</a>, <script data-card-contents-for-ri="940" type="text/json">{"id":940,"name":"Social Work","url":"https://www.academia.edu/Documents/in/Social_Work?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="3277" href="https://www.academia.edu/Documents/in/Race_and_Racism">Race and Racism</a>, <script data-card-contents-for-ri="3277" type="text/json">{"id":3277,"name":"Race and Racism","url":"https://www.academia.edu/Documents/in/Race_and_Racism?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="5247" href="https://www.academia.edu/Documents/in/Critical_Race_Theory">Critical Race Theory</a><script data-card-contents-for-ri="5247" type="text/json">{"id":5247,"name":"Critical Race Theory","url":"https://www.academia.edu/Documents/in/Critical_Race_Theory?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=21487021]'), work: {"id":21487021,"title":"Racialized Discourses: Writing Against an Essentialized Story About Racism","created_at":"2016-02-02T19:24:01.987-08:00","url":"https://www.academia.edu/21487021/Racialized_Discourses_Writing_Against_an_Essentialized_Story_About_Racism?f_ri=2504","dom_id":"work_21487021","summary":"This paper is concerned with the ethics of knowledge production when conducting research on racial injustice. The discussion draws upon my doctoral research, in which I interviewed 23 racialized social workers in Toronto, Canada, about their encounters with racism in the workplace. The discussion centres on my role as a racialized researcher and the effects of any assumed \" insider-ness \" on how I heard and interpreted participant narratives. Although the workers and I shared experiences of racism, I could not assume \" sameness, \" nor could I adopt an authentic voice about how racism is experienced. This paper examines the significance of producing research about racial domination, but argues for an anti-essentialist stance. I explore the ethical dilemmas involved through examining the dominant assumptions underlying insider research. Only when we come to be very clear about how race is lived, in its multiple manifestations, only when we come to appreciate its often hidden epistemic effects and its power over collective imaginations of public space, can we entertain even the remote possibility of its eventual transformations. (Alcoff, 2002, p. 267) This paper is concerned with the ethics of knowledge production when conducting research on racial injustice. I specifically examine the ethical dilemmas that arise from the assumptions that constitute insider/outsider debates in research, and I make the argument that the danger for essentialism poses significant risks to research. The discussion draws upon my doctoral research, in which I interviewed 23 racialized social workers in Toronto, Canada, about their encounters with racism in the workplace. The study focused on the ways in which racialized workers negotiate professional practice within a white-normed profession, with a specific emphasis the ways in which racial injustice manifests in everyday social work. The stories shared by participants in this study were emotionally heavy, complicated, hard to tell (and hear). The workers shared narratives describing how clients would refuse to work with them, utter racist comments toward them, and in some situations, used physical violence (Badwall, 2014). Furthermore, they relayed how co-workers and managers responded to these acts, which more often than not resulted in no action or support. Instead, their stories reveal the ways in which social work values of helping,","downloadable_attachments":[{"id":41913492,"asset_id":21487021,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":41523941,"first_name":"Harjeet","last_name":"Badwall","domain_name":"yorku","page_name":"HarjeetBadwall","display_name":"Harjeet Badwall","profile_url":"https://yorku.academia.edu/HarjeetBadwall?f_ri=2504","photo":"https://0.academia-photos.com/41523941/11288717/55272802/s65_harjeet.badwall.jpg"}],"research_interests":[{"id":940,"name":"Social Work","url":"https://www.academia.edu/Documents/in/Social_Work?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":3277,"name":"Race and Racism","url":"https://www.academia.edu/Documents/in/Race_and_Racism?f_ri=2504","nofollow":false},{"id":5247,"name":"Critical Race Theory","url":"https://www.academia.edu/Documents/in/Critical_Race_Theory?f_ri=2504","nofollow":false},{"id":16069,"name":"Critical Race Theory and Whiteness theory","url":"https://www.academia.edu/Documents/in/Critical_Race_Theory_and_Whiteness_theory?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_3491622" data-work_id="3491622" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/3491622/Information_Ethics_On_the_Philosophical_Foundation_of_Computer_Ethics">Information Ethics: On the Philosophical Foundation of Computer Ethics</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The essential difficulty about Computer Ethics’ (CE) philosophical status is a methodological problem: standard ethical theories cannot easily be adapted to deal with CE-problems, which appear to strain their conceptual resources, and CE... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_3491622" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The essential difficulty about Computer Ethics’ (CE) philosophical status is a methodological problem: standard ethical theories cannot easily be adapted to deal with CE-problems, which appear to strain their conceptual resources, and CE requires a conceptual foundation as an ethical theory. Information Ethics (IE), the philosophical foundational counterpart of CE, can be seen as a particular case of ‘environmental’ ethics or ethics of the infosphere. What is good for an information entity and the infosphere in general? This is the ethical question asked by IE. The answer is provided by a minimalist theory of deserts: IE argues that there is something more elementary and fundamental than life and pain, namely being, understood as information, and entropy, and that any information entity is to be recognised as the centre of a minimal moral claim, which deserves recognition and should help to regulate the implementation of any information process involving it. IE can provide a valuable perspective from which to approach, with insight and adequate discernment, not only moral problems in CE, but also the whole range of conceptual and moral phenomena that form the ethical discourse.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/3491622" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="09fe6948dcae13035a3437c14ac6a8bd" rel="nofollow" data-download="{"attachment_id":45080516,"asset_id":3491622,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45080516/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="6616" href="https://yale.academia.edu/LucianoFloridi">Luciano Floridi</a><script data-card-contents-for-user="6616" type="text/json">{"id":6616,"first_name":"Luciano","last_name":"Floridi","domain_name":"yale","page_name":"LucianoFloridi","display_name":"Luciano Floridi","profile_url":"https://yale.academia.edu/LucianoFloridi?f_ri=2504","photo":"https://0.academia-photos.com/6616/2546/117746817/s65_luciano.floridi.jpg"}</script></span></span></li><li class="js-paper-rank-work_3491622 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="3491622"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 3491622, container: ".js-paper-rank-work_3491622", }); 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$(".js-view-count[data-work-id=3491622]").text(description); $(".js-view-count-work_3491622").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_3491622").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="3491622"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">34</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="37" href="https://www.academia.edu/Documents/in/Information_Systems">Information Systems</a>, <script data-card-contents-for-ri="37" type="text/json">{"id":37,"name":"Information Systems","url":"https://www.academia.edu/Documents/in/Information_Systems?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="46" href="https://www.academia.edu/Documents/in/Business_Ethics">Business Ethics</a>, <script data-card-contents-for-ri="46" type="text/json">{"id":46,"name":"Business Ethics","url":"https://www.academia.edu/Documents/in/Business_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="422" href="https://www.academia.edu/Documents/in/Computer_Science">Computer Science</a>, <script data-card-contents-for-ri="422" type="text/json">{"id":422,"name":"Computer Science","url":"https://www.academia.edu/Documents/in/Computer_Science?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="491" href="https://www.academia.edu/Documents/in/Information_Technology">Information Technology</a><script data-card-contents-for-ri="491" type="text/json">{"id":491,"name":"Information Technology","url":"https://www.academia.edu/Documents/in/Information_Technology?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=3491622]'), work: {"id":3491622,"title":"Information Ethics: On the Philosophical Foundation of Computer Ethics","created_at":"2013-05-08T04:08:51.709-07:00","url":"https://www.academia.edu/3491622/Information_Ethics_On_the_Philosophical_Foundation_of_Computer_Ethics?f_ri=2504","dom_id":"work_3491622","summary":"The essential difficulty about Computer Ethics’ (CE) philosophical status is a methodological problem: standard ethical theories cannot easily be adapted to deal with CE-problems, which appear to strain their conceptual resources, and CE requires a conceptual foundation as an ethical theory. Information Ethics (IE), the philosophical foundational counterpart of CE, can be seen as a particular case of ‘environmental’ ethics or ethics of the infosphere. What is good for an information entity and the infosphere in general? This is the ethical question asked by IE. The answer is provided by a minimalist theory of deserts: IE argues that there is something more elementary and fundamental than life and pain, namely being, understood as information, and entropy, and that any information entity is to be recognised as the centre of a minimal moral claim, which deserves recognition and should help to regulate the implementation of any information process involving it. IE can provide a valuable perspective from which to approach, with insight and adequate discernment, not only moral problems in CE, but also the whole range of conceptual and moral phenomena that form the ethical discourse.","downloadable_attachments":[{"id":45080516,"asset_id":3491622,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":6616,"first_name":"Luciano","last_name":"Floridi","domain_name":"yale","page_name":"LucianoFloridi","display_name":"Luciano Floridi","profile_url":"https://yale.academia.edu/LucianoFloridi?f_ri=2504","photo":"https://0.academia-photos.com/6616/2546/117746817/s65_luciano.floridi.jpg"}],"research_interests":[{"id":37,"name":"Information Systems","url":"https://www.academia.edu/Documents/in/Information_Systems?f_ri=2504","nofollow":false},{"id":46,"name":"Business Ethics","url":"https://www.academia.edu/Documents/in/Business_Ethics?f_ri=2504","nofollow":false},{"id":422,"name":"Computer Science","url":"https://www.academia.edu/Documents/in/Computer_Science?f_ri=2504","nofollow":false},{"id":491,"name":"Information Technology","url":"https://www.academia.edu/Documents/in/Information_Technology?f_ri=2504","nofollow":false},{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504"},{"id":904,"name":"Normative Ethics","url":"https://www.academia.edu/Documents/in/Normative_Ethics?f_ri=2504"},{"id":906,"name":"Applied Ethics","url":"https://www.academia.edu/Documents/in/Applied_Ethics?f_ri=2504"},{"id":907,"name":"Moral Psychology","url":"https://www.academia.edu/Documents/in/Moral_Psychology?f_ri=2504"},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504"},{"id":3234,"name":"Animal Ethics","url":"https://www.academia.edu/Documents/in/Animal_Ethics?f_ri=2504"},{"id":3376,"name":"Values","url":"https://www.academia.edu/Documents/in/Values?f_ri=2504"},{"id":3468,"name":"Virtue Ethics","url":"https://www.academia.edu/Documents/in/Virtue_Ethics?f_ri=2504"},{"id":4636,"name":"Information Ethics","url":"https://www.academia.edu/Documents/in/Information_Ethics?f_ri=2504"},{"id":4759,"name":"Computer Ethics","url":"https://www.academia.edu/Documents/in/Computer_Ethics?f_ri=2504"},{"id":7195,"name":"Media Ethics","url":"https://www.academia.edu/Documents/in/Media_Ethics?f_ri=2504"},{"id":7646,"name":"Professional Ethics","url":"https://www.academia.edu/Documents/in/Professional_Ethics?f_ri=2504"},{"id":7695,"name":"Environmental Ethics","url":"https://www.academia.edu/Documents/in/Environmental_Ethics?f_ri=2504"},{"id":8022,"name":"Mass-Media Ethics","url":"https://www.academia.edu/Documents/in/Mass-Media_Ethics?f_ri=2504"},{"id":8348,"name":"Library and Information Science","url":"https://www.academia.edu/Documents/in/Library_and_Information_Science?f_ri=2504"},{"id":9435,"name":"Medical 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economics","url":"https://www.academia.edu/Documents/in/Ethics_and_economics?f_ri=2504"},{"id":59532,"name":"Moral","url":"https://www.academia.edu/Documents/in/Moral?f_ri=2504"},{"id":94627,"name":"Deontology","url":"https://www.academia.edu/Documents/in/Deontology?f_ri=2504"},{"id":147142,"name":"Business \u0026 Ethics","url":"https://www.academia.edu/Documents/in/Business_and_Ethics?f_ri=2504"},{"id":155559,"name":"information technology in a global society, ethics in computing, IT issues in society","url":"https://www.academia.edu/Documents/in/information_technology_in_a_global_society_ethics_in_computing_IT_issues_in_society?f_ri=2504"},{"id":455058,"name":"Information and Computer Ethics","url":"https://www.academia.edu/Documents/in/Information_and_Computer_Ethics?f_ri=2504"},{"id":605990,"name":"Information Security and Ethical Hacking","url":"https://www.academia.edu/Documents/in/Information_Security_and_Ethical_Hacking?f_ri=2504"},{"id":741496,"name":"Information Technology Ethics","url":"https://www.academia.edu/Documents/in/Information_Technology_Ethics?f_ri=2504"},{"id":852586,"name":"Ethical, social, professional and legal issues in information systems","url":"https://www.academia.edu/Documents/in/Ethical_social_professional_and_legal_issues_in_information_systems?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_71370467 coauthored" data-work_id="71370467" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/71370467/The_Datafication_of_Wastewater_Legal_Ethical_and_Civic_Considerations">The Datafication of Wastewater: Legal, Ethical and Civic Considerations</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Wastewater analysis and surveillance are well-established practices whose use has dramatically expanded during the COVID-19 pandemic. In this article, we argue that the extraction of diverse types of data from wastewater is part of the... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_71370467" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Wastewater analysis and surveillance are well-established practices whose use has dramatically expanded during the COVID-19 pandemic. In this article, we argue that the extraction of diverse types of data from wastewater is part of the larger phenomenon of ‘datafication’. We explore the evolving technologies and uses of wastewater data and argue that there are insufficient legal and ethical frameworks in place to properly govern them. We begin with an overview of the different pur- poses for wastewater data analyses as well as the location and scale of collection. We then consider legal and ethical principles and oversight frameworks that shape current approaches to wastewater collection. After situating wastewater collection within its particular civic context, we argue in favour of greater engagement with legal and ethical issues and propose doing so through a civic perspective. Our paper concludes with a discussion of the normative shifts that are needed and how we might achieve these.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/71370467" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="31879" href="https://ryerson.academia.edu/PamelaRobinson">Pamela Robinson</a><script data-card-contents-for-user="31879" type="text/json">{"id":31879,"first_name":"Pamela","last_name":"Robinson","domain_name":"ryerson","page_name":"PamelaRobinson","display_name":"Pamela Robinson","profile_url":"https://ryerson.academia.edu/PamelaRobinson?f_ri=2504","photo":"https://0.academia-photos.com/31879/10294/60195614/s65_pamela.robinson.jpg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-71370467">+2</span><div class="hidden js-additional-users-71370467"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/TScassa">T. Scassa</a></span></div><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/RMosoff">Ryan Mosoff</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-71370467'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-71370467').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_71370467 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="71370467"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 71370467, container: ".js-paper-rank-work_71370467", }); });</script></li><li class="js-percentile-work_71370467 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 71370467; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_71370467"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_71370467 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="71370467"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 71370467; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=71370467]").text(description); $(".js-view-count-work_71370467").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_71370467").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="71370467"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">7</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="16288" href="https://www.academia.edu/Documents/in/Public_Health">Public Health</a>, <script data-card-contents-for-ri="16288" type="text/json">{"id":16288,"name":"Public Health","url":"https://www.academia.edu/Documents/in/Public_Health?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="97108" href="https://www.academia.edu/Documents/in/Data_Privacy">Data Privacy</a>, <script data-card-contents-for-ri="97108" type="text/json">{"id":97108,"name":"Data Privacy","url":"https://www.academia.edu/Documents/in/Data_Privacy?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="126300" href="https://www.academia.edu/Documents/in/Big_Data">Big Data</a><script data-card-contents-for-ri="126300" type="text/json">{"id":126300,"name":"Big Data","url":"https://www.academia.edu/Documents/in/Big_Data?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=71370467]'), work: {"id":71370467,"title":"The Datafication of Wastewater: Legal, Ethical and Civic Considerations","created_at":"2022-02-13T11:52:37.540-08:00","url":"https://www.academia.edu/71370467/The_Datafication_of_Wastewater_Legal_Ethical_and_Civic_Considerations?f_ri=2504","dom_id":"work_71370467","summary":"Wastewater analysis and surveillance are well-established practices whose use has dramatically expanded during the COVID-19 pandemic. In this article, we argue that the extraction of diverse types of data from wastewater is part of the larger phenomenon of ‘datafication’. We explore the evolving technologies and uses of wastewater data and argue that there are insufficient legal and ethical frameworks in place to properly govern them. We begin with an overview of the different pur- poses for wastewater data analyses as well as the location and scale of collection. We then consider legal and ethical principles and oversight frameworks that shape current approaches to wastewater collection. After situating wastewater collection within its particular civic context, we argue in favour of greater engagement with legal and ethical issues and propose doing so through a civic perspective. Our paper concludes with a discussion of the normative shifts that are needed and how we might achieve these.","downloadable_attachments":[],"ordered_authors":[{"id":31879,"first_name":"Pamela","last_name":"Robinson","domain_name":"ryerson","page_name":"PamelaRobinson","display_name":"Pamela Robinson","profile_url":"https://ryerson.academia.edu/PamelaRobinson?f_ri=2504","photo":"https://0.academia-photos.com/31879/10294/60195614/s65_pamela.robinson.jpg"},{"id":35007398,"first_name":"T.","last_name":"Scassa","domain_name":"independent","page_name":"TScassa","display_name":"T. Scassa","profile_url":"https://independent.academia.edu/TScassa?f_ri=2504","photo":"/images/s65_no_pic.png"},{"id":215503377,"first_name":"Ryan","last_name":"Mosoff","domain_name":"independent","page_name":"RMosoff","display_name":"Ryan Mosoff","profile_url":"https://independent.academia.edu/RMosoff?f_ri=2504","photo":"https://0.academia-photos.com/215503377/74057698/62548460/s65_ryan.mosoff.png"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":16288,"name":"Public Health","url":"https://www.academia.edu/Documents/in/Public_Health?f_ri=2504","nofollow":false},{"id":97108,"name":"Data Privacy","url":"https://www.academia.edu/Documents/in/Data_Privacy?f_ri=2504","nofollow":false},{"id":126300,"name":"Big Data","url":"https://www.academia.edu/Documents/in/Big_Data?f_ri=2504","nofollow":false},{"id":134136,"name":"Civics","url":"https://www.academia.edu/Documents/in/Civics?f_ri=2504"},{"id":1306671,"name":"Civics and Ethics","url":"https://www.academia.edu/Documents/in/Civics_and_Ethics?f_ri=2504"},{"id":2713116,"name":"Wastewater Based Epidemiology","url":"https://www.academia.edu/Documents/in/Wastewater_Based_Epidemiology?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_24789464 coauthored" data-work_id="24789464" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/24789464/Ethical_Use_of_Social_Media_to_Facilitate_Qualitative_Research">Ethical Use of Social Media to Facilitate Qualitative Research</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/24789464" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="4b4d91469d4515b9996d753479c23ee8" rel="nofollow" data-download="{"attachment_id":45117051,"asset_id":24789464,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45117051/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="43654229" href="https://independent.academia.edu/JBorlagdan">J. Borlagdan</a><script data-card-contents-for-user="43654229" type="text/json">{"id":43654229,"first_name":"J.","last_name":"Borlagdan","domain_name":"independent","page_name":"JBorlagdan","display_name":"J. Borlagdan","profile_url":"https://independent.academia.edu/JBorlagdan?f_ri=2504","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-24789464">+1</span><div class="hidden js-additional-users-24789464"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://flinders.academia.edu/DarleneMcNaughton">Darlene McNaughton</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-24789464'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-24789464').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_24789464 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="24789464"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 24789464, container: ".js-paper-rank-work_24789464", }); });</script></li><li class="js-percentile-work_24789464 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 24789464; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_24789464"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_24789464 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="24789464"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 24789464; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=24789464]").text(description); $(".js-view-count-work_24789464").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_24789464").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="24789464"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">6</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="184" href="https://www.academia.edu/Documents/in/Sociology">Sociology</a>, <script data-card-contents-for-ri="184" type="text/json">{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="1759" href="https://www.academia.edu/Documents/in/Internet_Studies">Internet Studies</a>, <script data-card-contents-for-ri="1759" type="text/json">{"id":1759,"name":"Internet Studies","url":"https://www.academia.edu/Documents/in/Internet_Studies?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="10416" href="https://www.academia.edu/Documents/in/Qualitative_Health_Research">Qualitative Health Research</a><script data-card-contents-for-ri="10416" type="text/json">{"id":10416,"name":"Qualitative Health Research","url":"https://www.academia.edu/Documents/in/Qualitative_Health_Research?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=24789464]'), work: {"id":24789464,"title":"Ethical Use of Social Media to Facilitate Qualitative Research","created_at":"2016-04-26T18:35:48.460-07:00","url":"https://www.academia.edu/24789464/Ethical_Use_of_Social_Media_to_Facilitate_Qualitative_Research?f_ri=2504","dom_id":"work_24789464","summary":null,"downloadable_attachments":[{"id":45117051,"asset_id":24789464,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":43654229,"first_name":"J.","last_name":"Borlagdan","domain_name":"independent","page_name":"JBorlagdan","display_name":"J. Borlagdan","profile_url":"https://independent.academia.edu/JBorlagdan?f_ri=2504","photo":"/images/s65_no_pic.png"},{"id":2868111,"first_name":"Darlene","last_name":"McNaughton","domain_name":"flinders","page_name":"DarleneMcNaughton","display_name":"Darlene McNaughton","profile_url":"https://flinders.academia.edu/DarleneMcNaughton?f_ri=2504","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology?f_ri=2504","nofollow":false},{"id":1759,"name":"Internet Studies","url":"https://www.academia.edu/Documents/in/Internet_Studies?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":10416,"name":"Qualitative Health Research","url":"https://www.academia.edu/Documents/in/Qualitative_Health_Research?f_ri=2504","nofollow":false},{"id":58119,"name":"Facebook Studies","url":"https://www.academia.edu/Documents/in/Facebook_Studies?f_ri=2504"},{"id":89910,"name":"Young Adults","url":"https://www.academia.edu/Documents/in/Young_Adults?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_19497167" data-work_id="19497167" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/19497167/Fl%C3%BCchtlinge_als_Gegenstand_in_der_Feldforschung">Flüchtlinge als “Gegenstand“ in der Feldforschung?</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><a href="http://fluechtlingsforschung.net/fluchtlinge-als-gegenstand-in-der-feldforschung/" rel="nofollow">http://fluechtlingsforschung.net/fluchtlinge-als-gegenstand-in-der-feldforschung/</a></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/19497167" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a0e7a05264a416c9a20d006aee147f6f" rel="nofollow" data-download="{"attachment_id":50553246,"asset_id":19497167,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/50553246/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="5215169" href="https://uni-muenster.academia.edu/UlrikeKrause">Ulrike Krause</a><script data-card-contents-for-user="5215169" type="text/json">{"id":5215169,"first_name":"Ulrike","last_name":"Krause","domain_name":"uni-muenster","page_name":"UlrikeKrause","display_name":"Ulrike Krause","profile_url":"https://uni-muenster.academia.edu/UlrikeKrause?f_ri=2504","photo":"https://0.academia-photos.com/5215169/7407025/8326127/s65_ulrike.krause.jpg"}</script></span></span></li><li class="js-paper-rank-work_19497167 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="19497167"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 19497167, container: ".js-paper-rank-work_19497167", }); 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$(".js-view-count[data-work-id=19497167]").text(description); $(".js-view-count-work_19497167").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_19497167").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="19497167"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i></div><span class="InlineList-item-text u-textTruncate u-pl6x"><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a><script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (false) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=19497167]'), work: {"id":19497167,"title":"Flüchtlinge als “Gegenstand“ in der Feldforschung?","created_at":"2015-12-05T03:23:56.117-08:00","url":"https://www.academia.edu/19497167/Fl%C3%BCchtlinge_als_Gegenstand_in_der_Feldforschung?f_ri=2504","dom_id":"work_19497167","summary":"http://fluechtlingsforschung.net/fluchtlinge-als-gegenstand-in-der-feldforschung/","downloadable_attachments":[{"id":50553246,"asset_id":19497167,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":5215169,"first_name":"Ulrike","last_name":"Krause","domain_name":"uni-muenster","page_name":"UlrikeKrause","display_name":"Ulrike Krause","profile_url":"https://uni-muenster.academia.edu/UlrikeKrause?f_ri=2504","photo":"https://0.academia-photos.com/5215169/7407025/8326127/s65_ulrike.krause.jpg"}],"research_interests":[{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45628972" data-work_id="45628972" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45628972/Mapping_the_Ethical_Issues_of_Brain_Organoid_Research_and_Application">Mapping the Ethical Issues of Brain Organoid Research and Application</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">In 2008, researchers created human three-dimensional neural tissue – known as the pioneering work of “brain organoids.” In recent years, some researchers have transplanted human brain organoids into animal brains for applicational... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45628972" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">In 2008, researchers created human three-dimensional neural tissue – known as the pioneering work of “brain organoids.” In recent years, some researchers have transplanted human brain organoids into animal brains for applicational purposes. With these experiments have come many ethical concerns. It is thus an urgent task to clarify what is ethically permissible and impermissible in brain organoid research. This paper seeks (1) to sort out the ethical issues related to brain organoid research and application and (2) to propose future directions for additional ethical consideration and policy debates in the field. Toward (1), this paper first outlines the current state of brain organoid research, and then briefly responds to previously raised related ethical concerns. Looking next at anticipated scientific developments in brain organoid research, we will discuss (i) ethical issues related to in vitro brain organoids, (ii) ethical issues raised when brain organoids form complexes or have relationships with other entities, and (iii) ethical issues of research ethics and governance. Finally, in pursuit of (2), we propose research policies that are mindful of the ethics of brain organoid research and application and also suggest the need for an international framework for research and application of brain organoids.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45628972" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="332d6aefb43ea8f6ab7b2e7e2d5e4c30" rel="nofollow" data-download="{"attachment_id":66120714,"asset_id":45628972,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66120714/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="2167" href="https://nycu.academia.edu/AlexandreErler">Alexandre Erler</a><script data-card-contents-for-user="2167" type="text/json">{"id":2167,"first_name":"Alexandre","last_name":"Erler","domain_name":"nycu","page_name":"AlexandreErler","display_name":"Alexandre Erler","profile_url":"https://nycu.academia.edu/AlexandreErler?f_ri=2504","photo":"https://0.academia-photos.com/2167/1028/56036517/s65_alexandre.erler.jpeg"}</script></span></span></li><li class="js-paper-rank-work_45628972 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45628972"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45628972, container: ".js-paper-rank-work_45628972", }); 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$(".js-view-count[data-work-id=45628972]").text(description); $(".js-view-count-work_45628972").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45628972").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="45628972"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">8</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="161" href="https://www.academia.edu/Documents/in/Neuroscience">Neuroscience</a>, <script data-card-contents-for-ri="161" type="text/json">{"id":161,"name":"Neuroscience","url":"https://www.academia.edu/Documents/in/Neuroscience?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="803" href="https://www.academia.edu/Documents/in/Philosophy">Philosophy</a>, <script data-card-contents-for-ri="803" type="text/json">{"id":803,"name":"Philosophy","url":"https://www.academia.edu/Documents/in/Philosophy?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="814" href="https://www.academia.edu/Documents/in/Ethics">Ethics</a>, <script data-card-contents-for-ri="814" type="text/json">{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="906" href="https://www.academia.edu/Documents/in/Applied_Ethics">Applied Ethics</a><script data-card-contents-for-ri="906" type="text/json">{"id":906,"name":"Applied Ethics","url":"https://www.academia.edu/Documents/in/Applied_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=45628972]'), work: {"id":45628972,"title":"Mapping the Ethical Issues of Brain Organoid Research and Application","created_at":"2021-03-28T07:32:16.957-07:00","url":"https://www.academia.edu/45628972/Mapping_the_Ethical_Issues_of_Brain_Organoid_Research_and_Application?f_ri=2504","dom_id":"work_45628972","summary":"In 2008, researchers created human three-dimensional neural tissue – known as the pioneering work of “brain organoids.” In recent years, some researchers have transplanted human brain organoids into animal brains for applicational purposes. With these experiments have come many ethical concerns. It is thus an urgent task to clarify what is ethically permissible and impermissible in brain organoid research. This paper seeks (1) to sort out the ethical issues related to brain organoid research and application and (2) to propose future directions for additional ethical consideration and policy debates in the field. Toward (1), this paper first outlines the current state of brain organoid research, and then briefly responds to previously raised related ethical concerns. Looking next at anticipated scientific developments in brain organoid research, we will discuss (i) ethical issues related to in vitro brain organoids, (ii) ethical issues raised when brain organoids form complexes or have relationships with other entities, and (iii) ethical issues of research ethics and governance. Finally, in pursuit of (2), we propose research policies that are mindful of the ethics of brain organoid research and application and also suggest the need for an international framework for research and application of brain organoids.","downloadable_attachments":[{"id":66120714,"asset_id":45628972,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":2167,"first_name":"Alexandre","last_name":"Erler","domain_name":"nycu","page_name":"AlexandreErler","display_name":"Alexandre Erler","profile_url":"https://nycu.academia.edu/AlexandreErler?f_ri=2504","photo":"https://0.academia-photos.com/2167/1028/56036517/s65_alexandre.erler.jpeg"}],"research_interests":[{"id":161,"name":"Neuroscience","url":"https://www.academia.edu/Documents/in/Neuroscience?f_ri=2504","nofollow":false},{"id":803,"name":"Philosophy","url":"https://www.academia.edu/Documents/in/Philosophy?f_ri=2504","nofollow":false},{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false},{"id":906,"name":"Applied Ethics","url":"https://www.academia.edu/Documents/in/Applied_Ethics?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504"},{"id":9240,"name":"Neuroethics","url":"https://www.academia.edu/Documents/in/Neuroethics?f_ri=2504"},{"id":61474,"name":"Brain","url":"https://www.academia.edu/Documents/in/Brain?f_ri=2504"},{"id":2421830,"name":"Organoids","url":"https://www.academia.edu/Documents/in/Organoids?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_48666727" data-work_id="48666727" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/48666727/The_ethics_of_data_collection_unintended_consequences">The ethics of data collection: unintended consequences?</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The aims is to consider the political and ethical challenges involved in conducting ethnographic managerial/organisational behaviour research within the highly regulated health and social care context, in light of the emergence of more... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_48666727" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The aims is to consider the political and ethical challenges involved in conducting ethnographic managerial/organisational behaviour research within the highly regulated health and social care context, in light of the emergence of more stringent &quot;ethical approval&quot; policies and requirements set by Local Research Ethics Committees in the United Kingdom. In the attempt and requirement to protect &quot;vulnerable&quot; employees, this paper aims to present an unintended paradox of consequences when participants voluntarily revealed themselves. The authors briefly review literature on research ethics and present an understanding of the ethical regulations currently existing within the British National Health Service. Within an ethnographic case study exploring the psychological contract, the authors consider the issues that arose during one stage of data collection: a qualitative questionnaire survey with 13 participants, including members of the lead author&#39;s team. Incorpo...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/48666727" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="1dd382f5ac8d8e80014d3797ef3acf46" rel="nofollow" data-download="{"attachment_id":67183112,"asset_id":48666727,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/67183112/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="45681333" href="https://bangor.academia.edu/DeliaWainwright">Delia Wainwright</a><script data-card-contents-for-user="45681333" type="text/json">{"id":45681333,"first_name":"Delia","last_name":"Wainwright","domain_name":"bangor","page_name":"DeliaWainwright","display_name":"Delia Wainwright","profile_url":"https://bangor.academia.edu/DeliaWainwright?f_ri=2504","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_48666727 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="48666727"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 48666727, container: ".js-paper-rank-work_48666727", }); 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$(".js-view-count[data-work-id=48666727]").text(description); $(".js-view-count-work_48666727").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_48666727").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="48666727"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">19</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="814" href="https://www.academia.edu/Documents/in/Ethics">Ethics</a>, <script data-card-contents-for-ri="814" type="text/json">{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2170" href="https://www.academia.edu/Documents/in/Ethnography">Ethnography</a>, <script data-card-contents-for-ri="2170" type="text/json">{"id":2170,"name":"Ethnography","url":"https://www.academia.edu/Documents/in/Ethnography?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2783" href="https://www.academia.edu/Documents/in/Privacy">Privacy</a><script data-card-contents-for-ri="2783" type="text/json">{"id":2783,"name":"Privacy","url":"https://www.academia.edu/Documents/in/Privacy?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=48666727]'), work: {"id":48666727,"title":"The ethics of data collection: unintended consequences?","created_at":"2021-05-05T03:03:21.896-07:00","url":"https://www.academia.edu/48666727/The_ethics_of_data_collection_unintended_consequences?f_ri=2504","dom_id":"work_48666727","summary":"The aims is to consider the political and ethical challenges involved in conducting ethnographic managerial/organisational behaviour research within the highly regulated health and social care context, in light of the emergence of more stringent \u0026quot;ethical approval\u0026quot; policies and requirements set by Local Research Ethics Committees in the United Kingdom. In the attempt and requirement to protect \u0026quot;vulnerable\u0026quot; employees, this paper aims to present an unintended paradox of consequences when participants voluntarily revealed themselves. The authors briefly review literature on research ethics and present an understanding of the ethical regulations currently existing within the British National Health Service. Within an ethnographic case study exploring the psychological contract, the authors consider the issues that arose during one stage of data collection: a qualitative questionnaire survey with 13 participants, including members of the lead author\u0026#39;s team. Incorpo...","downloadable_attachments":[{"id":67183112,"asset_id":48666727,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":45681333,"first_name":"Delia","last_name":"Wainwright","domain_name":"bangor","page_name":"DeliaWainwright","display_name":"Delia Wainwright","profile_url":"https://bangor.academia.edu/DeliaWainwright?f_ri=2504","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":814,"name":"Ethics","url":"https://www.academia.edu/Documents/in/Ethics?f_ri=2504","nofollow":false},{"id":2170,"name":"Ethnography","url":"https://www.academia.edu/Documents/in/Ethnography?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":2783,"name":"Privacy","url":"https://www.academia.edu/Documents/in/Privacy?f_ri=2504","nofollow":false},{"id":4205,"name":"Data Analysis","url":"https://www.academia.edu/Documents/in/Data_Analysis?f_ri=2504"},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=2504"},{"id":23342,"name":"Cultural Anthropology","url":"https://www.academia.edu/Documents/in/Cultural_Anthropology?f_ri=2504"},{"id":44293,"name":"Literature Review","url":"https://www.academia.edu/Documents/in/Literature_Review?f_ri=2504"},{"id":96047,"name":"Case Study","url":"https://www.academia.edu/Documents/in/Case_Study?f_ri=2504"},{"id":153168,"name":"Data Collection","url":"https://www.academia.edu/Documents/in/Data_Collection?f_ri=2504"},{"id":291274,"name":"Great Britain","url":"https://www.academia.edu/Documents/in/Great_Britain?f_ri=2504"},{"id":395473,"name":"Patient Care Team","url":"https://www.academia.edu/Documents/in/Patient_Care_Team?f_ri=2504"},{"id":406250,"name":"Data Handling","url":"https://www.academia.edu/Documents/in/Data_Handling?f_ri=2504"},{"id":839672,"name":"Ethics Research","url":"https://www.academia.edu/Documents/in/Ethics_Research?f_ri=2504"},{"id":980493,"name":"Psychological Contracts","url":"https://www.academia.edu/Documents/in/Psychological_Contracts?f_ri=2504"},{"id":1457067,"name":"Questionnaire Survey","url":"https://www.academia.edu/Documents/in/Questionnaire_Survey?f_ri=2504"},{"id":2500720,"name":"Review literature","url":"https://www.academia.edu/Documents/in/Review_literature?f_ri=2504"},{"id":3255947,"name":"anthropology cultural","url":"https://www.academia.edu/Documents/in/anthropology_cultural?f_ri=2504"},{"id":3763225,"name":"Medical and Health Sciences","url":"https://www.academia.edu/Documents/in/Medical_and_Health_Sciences?f_ri=2504"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_44600403" data-work_id="44600403" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/44600403/Analiza_praktyk_anonimizacji_danych_w_polskich_jako%C5%9Bciowych_badaniach_socjologicznych_na_tle_literatury_przedmiotu_oraz_zasad_etyczno_prawnych">Analiza praktyk anonimizacji danych w polskich jakościowych badaniach socjologicznych na tle literatury przedmiotu oraz zasad etyczno-prawnych</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Polish: Celem artykułu jest przedstawienie praktyk anonimizacji danych stosowanych w jakościowych badaniach społecznych polskich socjologów oraz stworzenie typologii stosowanych rozwiązań. Aby sprawdzić, jak badacze prezentują sposoby... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_44600403" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Polish: Celem artykułu jest przedstawienie praktyk anonimizacji danych stosowanych w jakościowych badaniach społecznych polskich socjologów oraz stworzenie typologii stosowanych rozwiązań. Aby sprawdzić, jak badacze prezentują sposoby anonimizacji danych, przeanalizowałam artykuły opublikowane w latach 2015–2019 w czterech ważnych polskich czasopismach socjologicznych. Na podstawie analizy wyróżniłam różne sposoby anonimizacji danych stosowane przez autorów artykułów, które poddane dodatkowej analizie skupień utworzyły cztery strategie anonimizowania danych: anonimizacji domyślnej podstawowej, z wiodącą rolą pseudonimizacji, anonimizacji rozszerzonej o anonimizację miejsca oraz anonimizacji rozszerzonej o charakterystykę cech na poziomie zbiorowości, a nie jednostki. Powstałe typy anonimizacji stanowią odzwierciedlenie typów występujących w literaturze przedmiotu i stanowią potwierdzenie tego, że badacze w znacznej części stosują anonimizację jako procedurę naturalną i nieodłączną część badań (zgodnie z zapisami „Kodeksu etyki socjologa” PTS). Używanie prawdziwych tożsamości uczestników badania oraz autoryzacja stanowią rzadkość. Wybierane strategie anonimizacji mają często postać prostej anonimizacji domyślnej, rzadziej stosowane są rozszerzone typy anonimizacji. <br />Słowa kluczowe: etyka badawcza, anonimizacja danych, poufność danych, autoryzacja danych, kodeksy etyczne <br /> <br />English: "The analysis of anonymisation practices in Polish qualitative sociological research in the light of the literature of the subject and ethical and legal regulations" Abstract: The aim of the article is to present the data anonymisation practices used in qualitative research by Polish sociologist and to combine those practices into types of data anonymisation. In order to realise this goal, I analysed the articles published in four major Polish sociological journals between 2015 and 2019. The analysis led to distinguishing various ways of data anonymisation which then were additionally combined into types of anonymisation by cluster analysis. Four types were identified: basic default anonymisation, leading pseudonymisation, anonymisation extended by location anonymisation, and anonymisation extended by providing the features of participants at a group level (not at an individual level). These types of anonymisation reflect the types of anonymisation that are described in the literature and confirm that researchers treat anonymisation as a natural and inherent part of social research (as stated in the “Sociologist’s code of ethics” by the Polish Sociological association). Researchers rarely use the real identities of research participants and the procedure of authorisation (clearance). The anonymisation strategies in the analysed articles are often the default ones and are rather simplified; extended anonymisation is used less often. <br />Keywords: research ethics, anonymisation, confidentiality, authorisation of data, codes of ethics</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/44600403" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="d505c7352c2612f0719d38738f1f61d9" rel="nofollow" data-download="{"attachment_id":65061744,"asset_id":44600403,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/65061744/download_file?st=MTczMjgyMTE4NSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="5177892" href="https://unilodz.academia.edu/SylwiaMecfal">Sylwia Mecfal</a><script data-card-contents-for-user="5177892" type="text/json">{"id":5177892,"first_name":"Sylwia","last_name":"Mecfal","domain_name":"unilodz","page_name":"SylwiaMecfal","display_name":"Sylwia Mecfal","profile_url":"https://unilodz.academia.edu/SylwiaMecfal?f_ri=2504","photo":"https://0.academia-photos.com/5177892/2279718/19044945/s65_sylwia.mecfal.jpg"}</script></span></span></li><li class="js-paper-rank-work_44600403 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="44600403"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 44600403, container: ".js-paper-rank-work_44600403", }); 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$(".js-view-count[data-work-id=44600403]").text(description); $(".js-view-count-work_44600403").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_44600403").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="44600403"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">4</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="184" href="https://www.academia.edu/Documents/in/Sociology">Sociology</a>, <script data-card-contents-for-ri="184" type="text/json">{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="2504" href="https://www.academia.edu/Documents/in/Research_Ethics">Research Ethics</a>, <script data-card-contents-for-ri="2504" type="text/json">{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="12135" href="https://www.academia.edu/Documents/in/Qualitative_Research">Qualitative Research</a>, <script data-card-contents-for-ri="12135" type="text/json">{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=2504","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="396310" href="https://www.academia.edu/Documents/in/Codes_of_Ethics">Codes of Ethics</a><script data-card-contents-for-ri="396310" type="text/json">{"id":396310,"name":"Codes of Ethics","url":"https://www.academia.edu/Documents/in/Codes_of_Ethics?f_ri=2504","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=44600403]'), work: {"id":44600403,"title":"Analiza praktyk anonimizacji danych w polskich jakościowych badaniach socjologicznych na tle literatury przedmiotu oraz zasad etyczno-prawnych","created_at":"2020-11-29T11:14:24.009-08:00","url":"https://www.academia.edu/44600403/Analiza_praktyk_anonimizacji_danych_w_polskich_jako%C5%9Bciowych_badaniach_socjologicznych_na_tle_literatury_przedmiotu_oraz_zasad_etyczno_prawnych?f_ri=2504","dom_id":"work_44600403","summary":"Polish: Celem artykułu jest przedstawienie praktyk anonimizacji danych stosowanych w jakościowych badaniach społecznych polskich socjologów oraz stworzenie typologii stosowanych rozwiązań. Aby sprawdzić, jak badacze prezentują sposoby anonimizacji danych, przeanalizowałam artykuły opublikowane w latach 2015–2019 w czterech ważnych polskich czasopismach socjologicznych. Na podstawie analizy wyróżniłam różne sposoby anonimizacji danych stosowane przez autorów artykułów, które poddane dodatkowej analizie skupień utworzyły cztery strategie anonimizowania danych: anonimizacji domyślnej podstawowej, z wiodącą rolą pseudonimizacji, anonimizacji rozszerzonej o anonimizację miejsca oraz anonimizacji rozszerzonej o charakterystykę cech na poziomie zbiorowości, a nie jednostki. Powstałe typy anonimizacji stanowią odzwierciedlenie typów występujących w literaturze przedmiotu i stanowią potwierdzenie tego, że badacze w znacznej części stosują anonimizację jako procedurę naturalną i nieodłączną część badań (zgodnie z zapisami „Kodeksu etyki socjologa” PTS). Używanie prawdziwych tożsamości uczestników badania oraz autoryzacja stanowią rzadkość. Wybierane strategie anonimizacji mają często postać prostej anonimizacji domyślnej, rzadziej stosowane są rozszerzone typy anonimizacji. \r\nSłowa kluczowe: etyka badawcza, anonimizacja danych, poufność danych, autoryzacja danych, kodeksy etyczne\r\n\r\nEnglish: \"The analysis of anonymisation practices in Polish qualitative sociological research in the light of the literature of the subject and ethical and legal regulations\" Abstract: The aim of the article is to present the data anonymisation practices used in qualitative research by Polish sociologist and to combine those practices into types of data anonymisation. In order to realise this goal, I analysed the articles published in four major Polish sociological journals between 2015 and 2019. The analysis led to distinguishing various ways of data anonymisation which then were additionally combined into types of anonymisation by cluster analysis. Four types were identified: basic default anonymisation, leading pseudonymisation, anonymisation extended by location anonymisation, and anonymisation extended by providing the features of participants at a group level (not at an individual level). These types of anonymisation reflect the types of anonymisation that are described in the literature and confirm that researchers treat anonymisation as a natural and inherent part of social research (as stated in the “Sociologist’s code of ethics” by the Polish Sociological association). Researchers rarely use the real identities of research participants and the procedure of authorisation (clearance). The anonymisation strategies in the analysed articles are often the default ones and are rather simplified; extended anonymisation is used less often. \r\nKeywords: research ethics, anonymisation, confidentiality, authorisation of data, codes of ethics","downloadable_attachments":[{"id":65061744,"asset_id":44600403,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":5177892,"first_name":"Sylwia","last_name":"Mecfal","domain_name":"unilodz","page_name":"SylwiaMecfal","display_name":"Sylwia Mecfal","profile_url":"https://unilodz.academia.edu/SylwiaMecfal?f_ri=2504","photo":"https://0.academia-photos.com/5177892/2279718/19044945/s65_sylwia.mecfal.jpg"}],"research_interests":[{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology?f_ri=2504","nofollow":false},{"id":2504,"name":"Research Ethics","url":"https://www.academia.edu/Documents/in/Research_Ethics?f_ri=2504","nofollow":false},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=2504","nofollow":false},{"id":396310,"name":"Codes of Ethics","url":"https://www.academia.edu/Documents/in/Codes_of_Ethics?f_ri=2504","nofollow":false}]}, }) } })();</script></ul></li></ul></div></div></div><div class="u-taCenter Pagination"><ul class="pagination"><li class="next_page"><a href="/Documents/in/Research_Ethics?after=50%2C44600403" rel="next">Next</a></li><li class="last next"><a href="/Documents/in/Research_Ethics?page=last">Last »</a></li></ul></div></div><div class="hidden-xs hidden-sm"><div class="u-pl6x"><div style="width: 300px;"><div class="panel panel-flat u-mt7x"><div class="panel-heading u-p5x"><div class="u-tcGrayDark u-taCenter u-fw700 u-textUppercase">Related Topics</div></div><ul class="list-group"><li class="list-group-item media_v2 u-mt0x u-p3x"><div class="media-body"><div class="u-tcGrayDarker u-fw700"><a class="u-tcGrayDarker" 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