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u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_14707744" data-work_id="14707744" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/14707744/Illness_Perceptions_in_Patients_on_Predialysis_Care_Associations_With_Time_Until_Start_of_Dialysis_and_Decline_of_Kidney_Function">Illness Perceptions in Patients on Predialysis Care: Associations With Time Until Start of Dialysis and Decline of Kidney Function</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/14707744" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span 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class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_14707744 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="14707744"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 14707744, container: ".js-paper-rank-work_14707744", }); });</script></li><li class="js-percentile-work_14707744 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 14707744; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_14707744"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_14707744 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="14707744"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 14707744; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=14707744]").text(description); $(".js-view-count-work_14707744").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_14707744").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_30887126" data-work_id="30887126" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/30887126/Sodium_Restriction_in_Patients_With_CKD_A_Randomized_Controlled_Trial_of_Self_management_Support">Sodium Restriction in Patients With CKD: A Randomized Controlled Trial of Self-management Support</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest">Authors: Yvette Meuleman, Tiny Hoekstra, Friedo W. Dekker, Gerjan Navis, Liffert Vogt, Paul J.M. van der Boog, Willem Jan W. Bos, Gert A. van Montfrans, Sandra van Dijk, on behalf of the ESMO Study Group</div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/30887126" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="5ba9f1f70c00c4ba816c883e1092b0cf" rel="nofollow" data-download="{"attachment_id":53375593,"asset_id":30887126,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/53375593/download_file?st=MTczMjUxOTgxNCw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_30887126 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="30887126"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 30887126, container: ".js-paper-rank-work_30887126", }); });</script></li><li class="js-percentile-work_30887126 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 30887126; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_30887126"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_30887126 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="30887126"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 30887126; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=30887126]").text(description); $(".js-view-count-work_30887126").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_30887126").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_33312339" data-work_id="33312339" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/33312339/Health_Related_Quality_of_Life_Trajectories_During_Predialysis_Care_and_Associated_Illness_Perceptions">Health-Related Quality of Life Trajectories During Predialysis Care and Associated Illness Perceptions</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/33312339" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="ea9fdb38eb7a1902273e448f20881681" rel="nofollow" data-download="{"attachment_id":53375631,"asset_id":33312339,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/53375631/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_33312339 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="33312339"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 33312339, container: ".js-paper-rank-work_33312339", }); });</script></li><li class="js-percentile-work_33312339 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 33312339; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_33312339"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_33312339 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="33312339"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 33312339; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=33312339]").text(description); $(".js-view-count-work_33312339").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_33312339").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_33312348" data-work_id="33312348" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/33312348/Onderzoek_naar_betere_ondersteuning_Wat_gaat_er_fout_bij_minderen_met_zout">Onderzoek naar betere ondersteuning: Wat gaat er fout bij minderen met zout?</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest">Meuleman Y, Dekker FW, van Dijk S. Onderzoek naar betere ondersteuning: Wat gaat er fout bij minderen met zout? Wisselwerking. February 2016: 30-31.</div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/33312348" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="bed0eb1a617f894fd9fa610fadbb51ca" rel="nofollow" data-download="{"attachment_id":53375642,"asset_id":33312348,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/53375642/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_33312348 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="33312348"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 33312348, container: ".js-paper-rank-work_33312348", }); });</script></li><li class="js-percentile-work_33312348 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 33312348; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_33312348"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_33312348 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="33312348"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 33312348; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=33312348]").text(description); $(".js-view-count-work_33312348").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_33312348").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_34519184" data-work_id="34519184" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/34519184/Perceived_Sodium_Reduction_Barriers_Among_Patients_with_Chronic_Kidney_Disease_Which_Barriers_Are_Important_and_Which_Patients_Experience_Barriers">Perceived Sodium Reduction Barriers Among Patients with Chronic Kidney Disease: Which Barriers Are Important and Which Patients Experience Barriers</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Purpose The purposes of this study were to assess the importance of perceived sodium reduction barriers among patients with chronic kidney disease (CKD) and identify associated sociodemographic, clinical, and psychosocial factors. Method... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_34519184" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Purpose The purposes of this study were to assess the importance of perceived sodium reduction barriers among patients with chronic kidney disease (CKD) and identify associated sociodemographic, clinical, and psychosocial factors. Method A total of 156 patients with CKD completed a questionnaire assessing sodium reduction barriers (18 self-formulated items), depressive symptoms (Beck Depression Inventory), perceived autonomy support (Modified Health Care Climate Questionnaire), and self-efficacy (Partners in Health Questionnaire). Factor analysis was used to identify barrier domains. Correlation coefficients were computed to examine relationships between barrier domains and patient characteristics. Results Nine barrier domains were identified. Barriers perceived as important were as follows: high sodium content in products, lack of sodium feedback, lack of goal setting and discussing strategies for sodium reduction, and not experiencing CKD-related symptoms (mean scores > 3.0 on 5-point scales, ranging from 1 'no barrier' to 5 'very important barrier'). Other barriers (knowledge, attitude, coping skills when eating out, and professional support) were rated as moderately important (rated around midpoint), and the barrier 'intrinsic motiva-tion' was rated as somewhat important (mean score = 1.9). Sodium reduction barrier domains were not associated with gender and kidney function, but were associated with age, level of education, number of comorbidities, perceived autonomy support, depressive symptoms, and self-efficacy (range r = 0.17–0.35). Patients with lower self-efficacy and perceived autonomy support scores experienced most sodium reduction barriers. Conclusion Patients with CKD experience multiple important sodium reduction barriers and could benefit from support strategies that target various sodium reduction barriers and strengthen beliefs regarding self-efficacy and autonomy support. Additionally, environmental interventions should be implemented to reduce sodium levels in processed foods.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/34519184" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="0fcd0414e597de6254b4dada81c5ad98" rel="nofollow" data-download="{"attachment_id":54384365,"asset_id":34519184,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/54384365/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_34519184 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="34519184"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 34519184, container: ".js-paper-rank-work_34519184", }); });</script></li><li class="js-percentile-work_34519184 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 34519184; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_34519184"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_34519184 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="34519184"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 34519184; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=34519184]").text(description); $(".js-view-count-work_34519184").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_34519184").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_41797897 coauthored" data-work_id="41797897" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/41797897/Patient_reported_outcome_measures_selection_of_a_valid_questionnaire_for_routine_symptom_assessment_in_patients_with_advanced_chronic_kidney_disease_a_four_phase_mixed_methods_study">Patient-reported outcome measures: selection of a valid questionnaire for routine symptom assessment in patients with advanced chronic kidney disease -a four-phase mixed methods study</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: Patient-reported outcome measures (PROMs) are becoming increasingly important in healthcare. In nephrology, there is no agreement on which chronic kidney disease (CKD) symptom questionnaire to use. Therefore, the aim of this... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_41797897" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: Patient-reported outcome measures (PROMs) are becoming increasingly important in healthcare. In nephrology, there is no agreement on which chronic kidney disease (CKD) symptom questionnaire to use. Therefore, the aim of this study is to select a valid symptom questionnaire for routine assessment in patients with advanced CKD.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/41797897" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="2a1449d1407527ca6140f888067c1f6f" rel="nofollow" data-download="{"attachment_id":61948008,"asset_id":41797897,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/61948008/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-41797897">+1</span><div class="hidden js-additional-users-41797897"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/EWillik">Esmee van der Willik</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-41797897'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-41797897').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_41797897 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="41797897"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 41797897, container: ".js-paper-rank-work_41797897", }); });</script></li><li class="js-percentile-work_41797897 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 41797897; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_41797897"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_41797897 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="41797897"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 41797897; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=41797897]").text(description); $(".js-view-count-work_41797897").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_41797897").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45030874" data-work_id="45030874" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45030874/Patient_reported_outcome_measures_PROMs_making_sense_of_individual_PROM_scores_and_changes_in_PROM_scores_over_time">Patient-reported outcome measures (PROMs): making sense of individual PROM scores and changes in PROM scores over time</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45030874" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Patient-reported outcome measures (PROMs) are increasingly being used in nephrology care. However, in contrast to well-known clinical measures such as blood pressure, health-care professionals are less familiar with PROMs and the interpretation of PROM scores is therefore perceived as challenging. In this paper, we provide insight into the<br />interpretation of PROM scores by introducing the different types and characteristics of PROMs, and the most relevant concepts for the interpretation of PROM scores. Concepts such as minimal detectable change, minimal important change and response shift are explained and illustrated with examples from nephrology care.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45030874" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="89b205c903c2ae56c8ac6888efd4f536" rel="nofollow" data-download="{"attachment_id":65580976,"asset_id":45030874,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/65580976/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45030874 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45030874"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45030874, container: ".js-paper-rank-work_45030874", }); });</script></li><li class="js-percentile-work_45030874 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45030874; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45030874"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45030874 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45030874"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45030874; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45030874]").text(description); $(".js-view-count-work_45030874").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45030874").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45030958" data-work_id="45030958" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45030958/Funnel_plots_of_patient_reported_outcomes_to_evaluate_health_care_quality_Basic_principles_pitfalls_and_considerations_Patients_can_also_make_better_informed_decisions_for_example_in">Funnel plots of patient-reported outcomes to evaluate health- care quality: Basic principles, pitfalls and considerations Patients can also make better informed decisions, for example, in</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">A funnel plot is a graphical method to evaluate health-care quality by comparing hospital performances on certain outcomes. So far, in nephrology, this method has been applied to clinical outcomes like mortality and complications.... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45030958" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">A funnel plot is a graphical method to evaluate health-care quality by comparing hospital performances on certain outcomes. So far, in nephrology, this method has been applied to clinical outcomes like mortality and complications. However, patient-reported outcomes (PROs; eg, health-related quality of life [HRQOL]) are becoming increasingly important and should be incorporated into this quality assessment. Using funnel plots has several advantages, including clearly visualized precision, detection of volume-effects, discouragement of ranking hospitals and easy interpretation of results. However, without sufficient knowledge of underlying methods, it is easy to stumble into pitfalls, such as overinterpretation of standardized scores, incorrect direct comparisons of hospitals and assuming a hospital to be in-control (ie, to perform as expected) based on underpowered comparisons. Furthermore, application of funnel plots to PROs is accompanied by additional challenges related to the multi-dimensional nature of PROs and difficulties with measuring PROs. Before using funnel plots for PROs, high and consistent response rates, adequate case mix correction and high-quality PRO measures are required. In this article, we aim to provide insight into the use and interpretation of funnel plots by presenting an overview of the basic principles, pitfalls and considerations when applied to PROs, using examples from Dutch routine dialysis care.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45030958" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="42f3ba831419bafe9a03caa4b2e720b9" rel="nofollow" data-download="{"attachment_id":65581119,"asset_id":45030958,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/65581119/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45030958 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45030958"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45030958, container: ".js-paper-rank-work_45030958", }); });</script></li><li class="js-percentile-work_45030958 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45030958; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45030958"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45030958 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45030958"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45030958; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45030958]").text(description); $(".js-view-count-work_45030958").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45030958").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45030988" data-work_id="45030988" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45030988/Routinely_measuring_symptom_burden_and_health_related_quality_of_life_in_dialysis_patients_first_results_from_the_Dutch_registry_of_patient_reported_outcome_measures">Routinely measuring symptom burden and health-related quality of life in dialysis patients: first results from the Dutch registry of patient-reported outcome measures</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background. The use of patient-reported outcome measures (PROMs) is becoming increasingly important in healthcare. However, incorporation of PROMs into routine nephrological care is challenging. This study describes the first experience... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45030988" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background. The use of patient-reported outcome measures (PROMs) is becoming increasingly important in healthcare. However, incorporation of PROMs into routine nephrological care is challenging. This study describes the first experience with PROMs in Dutch routine dialysis care.<br /><br />Methods. A pilot study was conducted in dialysis patients in 16 centres. Patients were invited to complete PROMs at baseline and 3 and 6 months. PROMs consisted of the 12-item short-form and Dialysis Symptom Index to assess health-related quality of life (HRQoL) and symptom burden. Response rates, HRQoL and symptom burden scores were analysed. Qualitative research methods were used to gain insight into patients’ views on using PROMs in clinical practice.<br /><br />Results. In total, 512 patients (36%) completed 908 PROMs (24%) across three time points. Response rates varied from 6 to 70% among centres. Mean scores for physical and mental HRQoL were 35.6 [standard deviation (SD) 10.2] and 47.7 (SD 10.6), respectively. Patients experienced on average 10.8 (SD 6.1) symptoms with a symptom burden score of 30.7 (SD 22.0). Only 1–3% of the variation in PROM scores can be explained by differences between centres. Patients perceived discussing their HRQoL and symptom scores as insightful and valuable. Individual feedback on results was considered crucial. <br /><br />Conclusions. The first results show low average response rates with high variability among centres. Dialysis patients<br />experienced a high symptom burden and poor HRQoL. Using PROMs at the individual patient level is suitable and may<br />improve patient–professional communication and shared decision making. Further research is needed to investigate how<br />the collection and the use of PROMs can be successfully integrated into routine care to improve healthcare quality and<br />outcomes.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45030988" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="f192c196b7e7973dc43d1fc956c1d870" rel="nofollow" data-download="{"attachment_id":65581157,"asset_id":45030988,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/65581157/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45030988 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45030988"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45030988, container: ".js-paper-rank-work_45030988", }); });</script></li><li class="js-percentile-work_45030988 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45030988; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45030988"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45030988 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45030988"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45030988; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45030988]").text(description); $(".js-view-count-work_45030988").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45030988").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45593760" data-work_id="45593760" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45593760/Outcomes_after_kidney_transplantation_lets_focus_on_the_patients_perspectives">Outcomes after kidney transplantation, let's focus on the patients' perspectives</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Graft function and patient survival are traditionally the most used parameters to assess the objective benefits of kidney transplantation. Monitoring graft function, along with therapeutic drug concentrations and transplant complications,... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45593760" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Graft function and patient survival are traditionally the most used parameters to assess the objective benefits of kidney transplantation. Monitoring graft function, along with therapeutic drug concentrations and transplant complications, comprises the essence of outpatient management in kidney transplant recipients (KTRs). However, the patient's perspective is not always included in this process. Patients' perspectives on their health after kidney transplantation, albeit subjective, are increasingly acknowledged as valuable healthcare outcomes and should be considered in order to provide patient-centred healthcare. Such outcomes are known as patient-reported outcomes (PROs; e.g. health-related quality of life and symptom burden) and are captured using PRO measures (PROMs). So far, PROMs have not been routinely used in clinical care for KTRs. In this review we will introduce PROMs and their potential application and value in the field of kidney transplantation, describe commonly used PROMs in KTRs and discuss structural PROMs implementation into kidney transplantation care.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45593760" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a56b6391129451e0aa140babdff9fc85" rel="nofollow" data-download="{"attachment_id":66075116,"asset_id":45593760,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66075116/download_file?st=MTczMjUxOTgxNSw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45593760 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45593760"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45593760, container: ".js-paper-rank-work_45593760", }); });</script></li><li class="js-percentile-work_45593760 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45593760; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45593760"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45593760 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45593760"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45593760; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45593760]").text(description); $(".js-view-count-work_45593760").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45593760").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45593773" data-work_id="45593773" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45593773/Perspectives_and_experiences_of_patients_and_healthcare_professionals_with_geriatric_assessment_in_chronic_kidney_disease_a_qualitative_study">Perspectives and experiences of patients and healthcare professionals with geriatric assessment in chronic kidney disease: a qualitative study</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: Older patients with end-stage kidney disease (ESKD) often live with unidentified frailty and multimorbidity. Despite guideline recommendations, geriatric assessment is not part of standard clinical care, resulting in a missed... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45593773" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: Older patients with end-stage kidney disease (ESKD) often live with unidentified frailty and multimorbidity. Despite guideline recommendations, geriatric assessment is not part of standard clinical care, resulting in a missed opportunity to enhance (clinical) outcomes including quality of life in these patients. To develop routine geriatric assessment programs for patients approaching ESKD, it is crucial to understand patients' and professionals' experiences with and perspectives about the benefits, facilitators and barriers for geriatric assessment. Methods: In this qualitative study, semi-structured focus group discussions were conducted with ESKD patients, caregivers and professionals. Participants were purposively sampled from three Dutch hospital-based study-and routine care initiatives involving geriatric assessment for (pre-)ESKD care. Transcripts were analysed inductively using thematic analysis. Results: In six focus-groups, participants (n = 47) demonstrated four major themes: (1) Perceived characteristics of the older (pre)ESKD patient group. Patients and professionals recognized increased vulnerability and (cognitive) comorbidity, which is often unrelated to calendar age. Both believed that often patients are in need of additional support in various geriatric domains. (2) Experiences with geriatric assessment. Patients regarded the content and the time spent on the geriatric assessment predominantly positive. Professionals emphasized that assessment creates awareness among the whole treatment team for cognitive and social problems, shifting the focus from mainly somatic to multidimensional problems. Outcomes of geriatric assessment were observed to enhance a dialogue on suitability of treatment options, (re)adjust treatment and provide/seek additional (social) support. (3) Barriers and facilitators for implementation of geriatric assessment in routine care. Discussed barriers included lack of communication about goals and interpretation of geriatric assessment, burden for patients, illiteracy, and organizational aspects. Major facilitators are good multidisciplinary cooperation, involvement of geriatrics and multidisciplinary team meetings. (4) Desired characteristics of a suitable geriatric assessment concerned the scope and use of tests and timing of assessment.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45593773" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="8629e80efb847318524ae49f0838e0c3" rel="nofollow" data-download="{"attachment_id":66075134,"asset_id":45593773,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66075134/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45593773 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45593773"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45593773, container: ".js-paper-rank-work_45593773", }); });</script></li><li class="js-percentile-work_45593773 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45593773; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45593773"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45593773 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45593773"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45593773; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45593773]").text(description); $(".js-view-count-work_45593773").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45593773").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45593781" data-work_id="45593781" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45593781/Evidence_based_medicine_When_observational_studies_are_better_than_randomized_controlled_trials">Evidence-based medicine-When observational studies are better than randomized controlled trials</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">In evidence-based medicine, clinical research questions may be addressed by different study designs. This article describes when randomized controlled trials (RCT) are needed and when observational studies are more suitable. According to... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45593781" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">In evidence-based medicine, clinical research questions may be addressed by different study designs. This article describes when randomized controlled trials (RCT) are needed and when observational studies are more suitable. According to the Centre for Evidence-Based Medicine, study designs can be divided into analytic and non-analytic (descriptive) study designs. Analytic studies aim to quantify the association of an intervention (eg, treatment) or a naturally occurring exposure with an outcome. They can be subdivided into experimental (ie, RCT) and observational studies. The RCT is the best study design to evaluate the intended effect of an intervention, because the randomization procedure breaks the link between the allocation of the intervention and patient prognosis. If the randomization of the intervention or exposure is not possible, one needs to depend on observational analytic studies, but these studies usually suffer from bias and confounding. If the study focuses on unintended effects of interventions (ie, effects of an intervention that are not intended or foreseen), observational analytic studies are the most suitable study designs, provided that there is no link between the allocation of the intervention and the unintended effect. Furthermore, non-analytic studies (ie, descriptive studies) also rely on observational study designs. In summary, RCTs and observational study designs are inherently different, and depending on the study aim, they each have their own strengths and weaknesses. K E Y W O R D S confounding, epidemiology, methodology, observational research, randomized controlled trial</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45593781" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6da935d65e6907d2e3557e564af27f20" rel="nofollow" data-download="{"attachment_id":66075145,"asset_id":45593781,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66075145/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45593781 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45593781"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45593781, container: ".js-paper-rank-work_45593781", }); });</script></li><li class="js-percentile-work_45593781 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45593781; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45593781"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45593781 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45593781"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45593781; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45593781]").text(description); $(".js-view-count-work_45593781").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45593781").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_45593786" data-work_id="45593786" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/45593786/Experiences_with_and_attitudes_towards_geriatric_screening_among_older_emergency_department_patients_a_qualitative_study">Experiences with and attitudes towards geriatric screening among older emergency department patients: a qualitative study</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: The patient perspective on the use of screening for high risks of adverse health outcomes in Emergency Department (ED) care is underexposed, although it is an important perspective influencing implementation in routine care.... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_45593786" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: The patient perspective on the use of screening for high risks of adverse health outcomes in Emergency Department (ED) care is underexposed, although it is an important perspective influencing implementation in routine care. This study explores the experiences with, and attitudes towards geriatric screening in routine ED care among older people who visited the ED.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/45593786" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="0a4c4a4dab09732b8d177f76194f9484" rel="nofollow" data-download="{"attachment_id":66075157,"asset_id":45593786,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/66075157/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_45593786 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="45593786"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 45593786, container: ".js-paper-rank-work_45593786", }); });</script></li><li class="js-percentile-work_45593786 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 45593786; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_45593786"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_45593786 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="45593786"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 45593786; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=45593786]").text(description); $(".js-view-count-work_45593786").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_45593786").removeClass('hidden') })</script></div></li></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_61713162" data-work_id="61713162" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/61713162/Person_centred_care_provision_and_care_planning_in_chronic_kidney_disease_which_outcomes_matter_A_systematic_review_and_thematic_synthesis_of_qualitative_studies">Person centred care provision and care planning in chronic kidney disease: which outcomes matter? A systematic review and thematic synthesis of qualitative studies</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Rationale & Objective Explore priorities related to outcomes and barriers of adults with chronic kidney disease (CKD) regarding person centred care and care planning. Study design Systematic review of qualitative studies. Search Strategy... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_61713162" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Rationale & Objective Explore priorities related to outcomes and barriers of adults with chronic kidney disease (CKD) regarding person centred care and care planning. Study design Systematic review of qualitative studies. Search Strategy & Sources In July 2018 six bibliographic databases, and reference lists of included articles were searched for qualitative studies that included adults with CKD stages 1–5, not on dialysis or conservative management, without a previous kidney transplantation. Analytical Approach Three independent reviewers extracted and inductively coded data using thematic synthesis. Reporting quality was assessed using the COREQ and the review reported according to PRISMA and ENTREQ statements. Results Forty-six studies involving 1493 participants were eligible. The period after diagnosis of CKD is characterized by feelings of uncertainty, social isolation, financial burden, resentment and fear of the unknown. Patients show interest in ways to return to normality ...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/61713162" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="79e73bfaef154220da92d95d0d901630" rel="nofollow" data-download="{"attachment_id":74681101,"asset_id":61713162,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/74681101/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_61713162 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="61713162"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 61713162, container: ".js-paper-rank-work_61713162", }); });</script></li><li class="js-percentile-work_61713162 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 61713162; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_61713162"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_61713162 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="61713162"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 61713162; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=61713162]").text(description); $(".js-view-count-work_61713162").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_61713162").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="61713162"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i></div><span class="InlineList-item-text u-textTruncate u-pl6x"><a class="InlineList-item-text" data-has-card-for-ri="244814" href="https://www.academia.edu/Documents/in/Clinical_Sciences">Clinical Sciences</a><script data-card-contents-for-ri="244814" type="text/json">{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}</script></span></li><script>(function(){ if (false) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=61713162]'), work: {"id":61713162,"title":"Person centred care provision and care planning in chronic kidney disease: which outcomes matter? A systematic review and thematic synthesis of qualitative studies","created_at":"2021-11-15T08:20:31.139-08:00","owner_id":3148817,"url":"https://www.academia.edu/61713162/Person_centred_care_provision_and_care_planning_in_chronic_kidney_disease_which_outcomes_matter_A_systematic_review_and_thematic_synthesis_of_qualitative_studies","slug":"Person_centred_care_provision_and_care_planning_in_chronic_kidney_disease_which_outcomes_matter_A_systematic_review_and_thematic_synthesis_of_qualitative_studies","dom_id":"work_61713162","summary":"Rationale \u0026 Objective Explore priorities related to outcomes and barriers of adults with chronic kidney disease (CKD) regarding person centred care and care planning. Study design Systematic review of qualitative studies. Search Strategy \u0026 Sources In July 2018 six bibliographic databases, and reference lists of included articles were searched for qualitative studies that included adults with CKD stages 1–5, not on dialysis or conservative management, without a previous kidney transplantation. Analytical Approach Three independent reviewers extracted and inductively coded data using thematic synthesis. Reporting quality was assessed using the COREQ and the review reported according to PRISMA and ENTREQ statements. Results Forty-six studies involving 1493 participants were eligible. The period after diagnosis of CKD is characterized by feelings of uncertainty, social isolation, financial burden, resentment and fear of the unknown. Patients show interest in ways to return to normality ...","publication":"BMC Nephrology","publication_with_fallback":"BMC Nephrology","downloadable_attachments":[{"id":74681101,"asset_id":61713162,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/74681101/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/74681101/s12882-021-02489-6-libre.pdf?1636993508=\u0026response-content-disposition=attachment%3B+filename%3DPerson_centred_care_provision_and_care_p.pdf\u0026Expires=1732523416\u0026Signature=PNfqwQqirLu~7bNUYnR~JDHqSVKe8dL8-SN3Qedhth1APhO1yu5X4jEC2r54MrxoTHK2ivVZWW4xvVFhrlqeNkDfWOr83th~ADLTTxPoGyMOYT6GceocFC1KA5rYwHgr0ZJNo4k-wCMbyOfVZyXON~nRoK6mFOslMn951A-pETpLSMYGmi9iag6aC5WOi4lIh-Fx~X3KiD61NmjgISFAx40T2fdmLQtkKZB2tQhrEV9fLVEWl3CFg9VRrN9s2BZNgAhwoonm9zK2h7-EYPB42VtVWd1NrYBEdv~FxNMc0cz7S~J8BtfdlxLFB80D2tJJEyq0LLVq~IsrrrHZO709wg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/74681101/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/74681101/mini_magick20211115-14774-4usan4.png?1636993316"}],"downloadable_attachments_with_full_thumbnails":[{"id":74681101,"asset_id":61713162,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/74681101/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/74681101/s12882-021-02489-6-libre.pdf?1636993508=\u0026response-content-disposition=attachment%3B+filename%3DPerson_centred_care_provision_and_care_p.pdf\u0026Expires=1732523416\u0026Signature=PNfqwQqirLu~7bNUYnR~JDHqSVKe8dL8-SN3Qedhth1APhO1yu5X4jEC2r54MrxoTHK2ivVZWW4xvVFhrlqeNkDfWOr83th~ADLTTxPoGyMOYT6GceocFC1KA5rYwHgr0ZJNo4k-wCMbyOfVZyXON~nRoK6mFOslMn951A-pETpLSMYGmi9iag6aC5WOi4lIh-Fx~X3KiD61NmjgISFAx40T2fdmLQtkKZB2tQhrEV9fLVEWl3CFg9VRrN9s2BZNgAhwoonm9zK2h7-EYPB42VtVWd1NrYBEdv~FxNMc0cz7S~J8BtfdlxLFB80D2tJJEyq0LLVq~IsrrrHZO709wg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/74681101/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/74681101/mini_magick20211115-14774-4usan4.png?1636993316"}],"has_pdf":true,"has_fulltext":true,"page_count":16,"ordered_authors":[{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}],"research_interests":[{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}],"publication_year":null,"publication_year_with_fallback":2021,"paper_rank":null,"all_time_views":17,"active_discussion":{}}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_61713164" data-work_id="61713164" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/61713164/Mapping_health_related_quality_of_life_after_kidney_transplantation_by_group_comparisons_a_systematic_review">Mapping health-related quality of life after kidney transplantation by group comparisons: a systematic review</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background Health-related quality of life (HRQOL) is becoming an increasingly important outcome in kidney transplantation (KT). To describe HRQOL in kidney transplant recipients (KTRs), this systematic review summarizes literature that... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_61713164" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background Health-related quality of life (HRQOL) is becoming an increasingly important outcome in kidney transplantation (KT). To describe HRQOL in kidney transplant recipients (KTRs), this systematic review summarizes literature that compared HRQOL among KTRs and other relevant populations [i.e. patients receiving dialysis, patients on the waiting list (WL) for KT, patients with chronic kidney disease (CKD) not receiving renal replacement therapy (RRT), the general population (GP) and healthy controls (HCs)] and themselves before KT. Methods The literature search was conducted in PubMed, Embase, Web of Science and the Cochrane Library. Eligible studies published between January 2000 and October 2020 were included. Results Forty-four studies comprising 6929 KTRs were included in this systematic review. Despite the study heterogeneity, KTRs reported a higher HRQOL after KT compared with pre-transplantation and compared with patients receiving dialysis with or without being on the WL...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/61713164" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="e62513108d7159574fad0314169ff7fe" rel="nofollow" data-download="{"attachment_id":74681102,"asset_id":61713164,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/74681102/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_61713164 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="61713164"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 61713164, container: ".js-paper-rank-work_61713164", }); });</script></li><li class="js-percentile-work_61713164 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 61713164; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_61713164"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_61713164 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="61713164"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 61713164; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=61713164]").text(description); $(".js-view-count-work_61713164").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_61713164").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="61713164"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i></div><span class="InlineList-item-text u-textTruncate u-pl6x"><a class="InlineList-item-text" data-has-card-for-ri="244814" href="https://www.academia.edu/Documents/in/Clinical_Sciences">Clinical Sciences</a><script data-card-contents-for-ri="244814" type="text/json">{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}</script></span></li><script>(function(){ if (false) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=61713164]'), work: {"id":61713164,"title":"Mapping health-related quality of life after kidney transplantation by group comparisons: a systematic review","created_at":"2021-11-15T08:20:31.519-08:00","owner_id":3148817,"url":"https://www.academia.edu/61713164/Mapping_health_related_quality_of_life_after_kidney_transplantation_by_group_comparisons_a_systematic_review","slug":"Mapping_health_related_quality_of_life_after_kidney_transplantation_by_group_comparisons_a_systematic_review","dom_id":"work_61713164","summary":"Background Health-related quality of life (HRQOL) is becoming an increasingly important outcome in kidney transplantation (KT). To describe HRQOL in kidney transplant recipients (KTRs), this systematic review summarizes literature that compared HRQOL among KTRs and other relevant populations [i.e. patients receiving dialysis, patients on the waiting list (WL) for KT, patients with chronic kidney disease (CKD) not receiving renal replacement therapy (RRT), the general population (GP) and healthy controls (HCs)] and themselves before KT. Methods The literature search was conducted in PubMed, Embase, Web of Science and the Cochrane Library. Eligible studies published between January 2000 and October 2020 were included. Results Forty-four studies comprising 6929 KTRs were included in this systematic review. Despite the study heterogeneity, KTRs reported a higher HRQOL after KT compared with pre-transplantation and compared with patients receiving dialysis with or without being on the WL...","publication":"Nephrology Dialysis Transplantation","publication_with_fallback":"Nephrology Dialysis Transplantation","downloadable_attachments":[{"id":74681102,"asset_id":61713164,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/74681102/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/74681102/gfab232-libre.pdf?1636993507=\u0026response-content-disposition=attachment%3B+filename%3DMapping_health_related_quality_of_life_a.pdf\u0026Expires=1732523416\u0026Signature=SNW4PyhOIl7fi2tHXmiTqEKF9t5SHBaU2nb2fIHRlVJcrLORQLzKx2C5-Y4Nc4q08SIO~qpXrpGohmCoWzraXkzOVFDkZLUDm2jeZf57D0TlgM-gIaicEsUzKENQrPjUAeSTqfCeGIm4uZyvf-ywlLQz5hj0-j50VdKmmAEiijKJ3bVc4bfI10C0cOCSZ9TPbDn1L~PUS9jSTtgfi9wJ~B1XY5F5barN1XiC6ZxOaSTQl~JStSigjXVaZnAi5vf1PbLVbXQvuUlM~y5-EVJXXA1RLi4XuOCKi9roowqjEt-VEszrAA9McjK66ejktdwy8wF5Cmk2RTkZGpRZmxEZbA__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/74681102/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/74681102/mini_magick20211115-14254-12e3hof.png?1636993284"}],"downloadable_attachments_with_full_thumbnails":[{"id":74681102,"asset_id":61713164,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/74681102/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/74681102/gfab232-libre.pdf?1636993507=\u0026response-content-disposition=attachment%3B+filename%3DMapping_health_related_quality_of_life_a.pdf\u0026Expires=1732523416\u0026Signature=SNW4PyhOIl7fi2tHXmiTqEKF9t5SHBaU2nb2fIHRlVJcrLORQLzKx2C5-Y4Nc4q08SIO~qpXrpGohmCoWzraXkzOVFDkZLUDm2jeZf57D0TlgM-gIaicEsUzKENQrPjUAeSTqfCeGIm4uZyvf-ywlLQz5hj0-j50VdKmmAEiijKJ3bVc4bfI10C0cOCSZ9TPbDn1L~PUS9jSTtgfi9wJ~B1XY5F5barN1XiC6ZxOaSTQl~JStSigjXVaZnAi5vf1PbLVbXQvuUlM~y5-EVJXXA1RLi4XuOCKi9roowqjEt-VEszrAA9McjK66ejktdwy8wF5Cmk2RTkZGpRZmxEZbA__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/74681102/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/74681102/mini_magick20211115-14254-12e3hof.png?1636993284"}],"has_pdf":true,"has_fulltext":true,"page_count":13,"ordered_authors":[{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}],"research_interests":[{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}],"publication_year":null,"publication_year_with_fallback":2021,"paper_rank":null,"all_time_views":5,"active_discussion":{}}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_69566070" data-work_id="69566070" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/69566070/FC_112HEALTH_RELATED_Quality_of_Life_Hrqol_and_Symptom_Burden_Before_and_After_Start_of_Dialysis_in_Older_Patients">FC 112HEALTH-RELATED Quality of Life (Hrqol) and Symptom Burden Before and After Start of Dialysis in Older Patients</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background and Aims The number of older (≥65y) people with ESKD starting chronic dialysis increased substantially the past decade because of ageing of the population due to improved health care. In addition, older age is no longer a... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_69566070" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background and Aims The number of older (≥65y) people with ESKD starting chronic dialysis increased substantially the past decade because of ageing of the population due to improved health care. In addition, older age is no longer a contraindication for dialysis. Finally, older individuals are more often ineligible for kidney transplantation. Many older people with stage 5 CKD non-dialysis have a low health-related quality of life (HRQOL) and high symptom burden. In this group, improving HRQOL and lowering symptom burden may be deemed more important than solely the prolongation of life. Little is known about the effect of dialysis treatment on HRQOL and symptom burden. Therefore, we investigated the evolution of HRQOL and symptoms before and after the start of dialysis in older ESKD patients. Method The European Quality (EQUAL) study is an ongoing European prospective multi-center follow-up study in late stage 4/5 CKD patients aged ≥65 years. For the present analyses, we included al...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/69566070" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="fc4d3f5ff087cbd67f2a71b8d692330a" rel="nofollow" data-download="{"attachment_id":79613311,"asset_id":69566070,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/79613311/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_69566070 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="69566070"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 69566070, container: ".js-paper-rank-work_69566070", }); });</script></li><li class="js-percentile-work_69566070 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 69566070; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_69566070"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_69566070 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="69566070"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 69566070; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=69566070]").text(description); $(".js-view-count-work_69566070").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_69566070").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="69566070"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="26327" href="https://www.academia.edu/Documents/in/Medicine">Medicine</a>, <script data-card-contents-for-ri="26327" type="text/json">{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="244814" href="https://www.academia.edu/Documents/in/Clinical_Sciences">Clinical Sciences</a><script data-card-contents-for-ri="244814" type="text/json">{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=69566070]'), work: {"id":69566070,"title":"FC 112HEALTH-RELATED Quality of Life (Hrqol) and Symptom Burden Before and After Start of Dialysis in Older Patients","created_at":"2022-01-26T22:42:33.898-08:00","owner_id":3148817,"url":"https://www.academia.edu/69566070/FC_112HEALTH_RELATED_Quality_of_Life_Hrqol_and_Symptom_Burden_Before_and_After_Start_of_Dialysis_in_Older_Patients","slug":"FC_112HEALTH_RELATED_Quality_of_Life_Hrqol_and_Symptom_Burden_Before_and_After_Start_of_Dialysis_in_Older_Patients","dom_id":"work_69566070","summary":"Background and Aims The number of older (≥65y) people with ESKD starting chronic dialysis increased substantially the past decade because of ageing of the population due to improved health care. In addition, older age is no longer a contraindication for dialysis. Finally, older individuals are more often ineligible for kidney transplantation. Many older people with stage 5 CKD non-dialysis have a low health-related quality of life (HRQOL) and high symptom burden. In this group, improving HRQOL and lowering symptom burden may be deemed more important than solely the prolongation of life. Little is known about the effect of dialysis treatment on HRQOL and symptom burden. Therefore, we investigated the evolution of HRQOL and symptoms before and after the start of dialysis in older ESKD patients. Method The European Quality (EQUAL) study is an ongoing European prospective multi-center follow-up study in late stage 4/5 CKD patients aged ≥65 years. For the present analyses, we included al...","publication":"Nephrology Dialysis Transplantation","publication_with_fallback":"Nephrology Dialysis Transplantation","downloadable_attachments":[{"id":79613311,"asset_id":69566070,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/79613311/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/79613311/gfab129.002-libre.pdf?1643266580=\u0026response-content-disposition=attachment%3B+filename%3DFC_112HEALTH_RELATED_Quality_of_Life_Hrq.pdf\u0026Expires=1732523416\u0026Signature=V4-vx76T7UdSjBmSZXpDkrZ4qSNKX992S4JeTvAVqL~LJrGsT4-0hA0X45LGZDKZol~obDGJ-AfoJpxnvkhObvIK5VgMRqSYQi7MKzicPQjzmdFbJTkZMjukdv7uppV-J8I8kj7tQ7PhzYMA4pCfZT86q2mbXTzzfr7GEXmuujlKbzD1ssFSZ3~a7Sg8XMWX8UnZZMIPxGjgIkncMyooyCIcJOMZXOJaQpV5svj~pjtIf39nberDCPJ0exvfS1OCqhyVmXjvRY5zrYl0dM6-QIqt4vgk2Z6nJj927cJtr1cVD3-930yxN-eGpgT9qyVc~-bLD1bT7yiwcGfW3TrnPQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/79613311/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/79613311/mini_magick20220126-18224-1d983xk.png?1643265838"}],"downloadable_attachments_with_full_thumbnails":[{"id":79613311,"asset_id":69566070,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/79613311/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/79613311/gfab129.002-libre.pdf?1643266580=\u0026response-content-disposition=attachment%3B+filename%3DFC_112HEALTH_RELATED_Quality_of_Life_Hrq.pdf\u0026Expires=1732523416\u0026Signature=V4-vx76T7UdSjBmSZXpDkrZ4qSNKX992S4JeTvAVqL~LJrGsT4-0hA0X45LGZDKZol~obDGJ-AfoJpxnvkhObvIK5VgMRqSYQi7MKzicPQjzmdFbJTkZMjukdv7uppV-J8I8kj7tQ7PhzYMA4pCfZT86q2mbXTzzfr7GEXmuujlKbzD1ssFSZ3~a7Sg8XMWX8UnZZMIPxGjgIkncMyooyCIcJOMZXOJaQpV5svj~pjtIf39nberDCPJ0exvfS1OCqhyVmXjvRY5zrYl0dM6-QIqt4vgk2Z6nJj927cJtr1cVD3-930yxN-eGpgT9qyVc~-bLD1bT7yiwcGfW3TrnPQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/79613311/download_file?st=MTczMjUxOTgxNiw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/79613311/mini_magick20220126-18224-1d983xk.png?1643265838"}],"has_pdf":true,"has_fulltext":true,"page_count":2,"ordered_authors":[{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}],"research_interests":[{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine","nofollow":false},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}],"publication_year":null,"publication_year_with_fallback":2021,"paper_rank":null,"all_time_views":10,"active_discussion":{}}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_69566164" data-work_id="69566164" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/69566164/FC_068QUALITY_of_Life_Over_Time_in_Older_Men_and_Women_with_Advanced_CKD_Results_from_the_Equal_Study">FC 068QUALITY of Life Over Time in Older Men and Women with Advanced CKD - Results from the Equal Study</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background and Aims Differences between the sexes are apparent in the epidemiology of CKD. Cross-sectional studies show that women consistently report a poorer health-related quality of life (QoL) than men, however, longitudinal studies... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_69566164" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background and Aims Differences between the sexes are apparent in the epidemiology of CKD. Cross-sectional studies show that women consistently report a poorer health-related quality of life (QoL) than men, however, longitudinal studies are lacking. Here we investigate the sex-specific evolution of QoL over time in advanced CKD. As a secondary aim, we explore the sex-specific determinants of QoL. Method EQUAL is an observational prospective cohort study in stages 4 and 5 CKD patients ≥65 years not on dialysis with an incident estimated glomerular filtration rate (eGFR) &lt; 20 ml/min/1.73m². Data on QoL (measured using the RAND-36), clinical and demographic patient characteristics were collected between April 2012 and September 2020. QoL trajectories were modelled by sex using linear mixed models, and joint models were applied to deal with informative censoring. We followed patients until death or dialysis initiation. Results We included 5151 QoL measurements in 1416 patients over a...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/69566164" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="33c3c6055137fba4ef5ee5a4ab91b58d" rel="nofollow" data-download="{"attachment_id":79613380,"asset_id":69566164,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/79613380/download_file?st=MTczMjUxOTgxNyw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3148817" href="https://leidenuni.academia.edu/YvetteMeuleman">Yvette Meuleman</a><script data-card-contents-for-user="3148817" type="text/json">{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette Meuleman","profile_url":"https://leidenuni.academia.edu/YvetteMeuleman","photo":"https://0.academia-photos.com/3148817/1035038/152550293/s65_yvette.meuleman.jpg"}</script></span></span></li><li class="js-paper-rank-work_69566164 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="69566164"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 69566164, container: ".js-paper-rank-work_69566164", }); 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$(".js-view-count[data-work-id=69566164]").text(description); $(".js-view-count-work_69566164").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_69566164").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="69566164"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="26327" href="https://www.academia.edu/Documents/in/Medicine">Medicine</a>, <script data-card-contents-for-ri="26327" type="text/json">{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="244814" href="https://www.academia.edu/Documents/in/Clinical_Sciences">Clinical Sciences</a><script data-card-contents-for-ri="244814" type="text/json">{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=69566164]'), work: {"id":69566164,"title":"FC 068QUALITY of Life Over Time in Older Men and Women with Advanced CKD - Results from the Equal Study","created_at":"2022-01-26T22:42:58.292-08:00","owner_id":3148817,"url":"https://www.academia.edu/69566164/FC_068QUALITY_of_Life_Over_Time_in_Older_Men_and_Women_with_Advanced_CKD_Results_from_the_Equal_Study","slug":"FC_068QUALITY_of_Life_Over_Time_in_Older_Men_and_Women_with_Advanced_CKD_Results_from_the_Equal_Study","dom_id":"work_69566164","summary":"Background and Aims Differences between the sexes are apparent in the epidemiology of CKD. Cross-sectional studies show that women consistently report a poorer health-related quality of life (QoL) than men, however, longitudinal studies are lacking. Here we investigate the sex-specific evolution of QoL over time in advanced CKD. As a secondary aim, we explore the sex-specific determinants of QoL. Method EQUAL is an observational prospective cohort study in stages 4 and 5 CKD patients ≥65 years not on dialysis with an incident estimated glomerular filtration rate (eGFR) \u0026lt; 20 ml/min/1.73m². Data on QoL (measured using the RAND-36), clinical and demographic patient characteristics were collected between April 2012 and September 2020. QoL trajectories were modelled by sex using linear mixed models, and joint models were applied to deal with informative censoring. We followed patients until death or dialysis initiation. Results We included 5151 QoL measurements in 1416 patients over a...","publication":"Nephrology Dialysis Transplantation","publication_with_fallback":"Nephrology Dialysis Transplantation","downloadable_attachments":[{"id":79613380,"asset_id":69566164,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/79613380/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/79613380/gfab122.002-libre.pdf?1643266575=\u0026response-content-disposition=attachment%3B+filename%3DFC_068QUALITY_of_Life_Over_Time_in_Older.pdf\u0026Expires=1732523416\u0026Signature=hK3RVo4Z0x912L~ABWlBtAUWSJv6TXHUpMgbc3Gdk-EZrqkvQ3K-uiPqrLUNjaG8aa3MVIZksVo8mb5A-gi-QxD5QR0~A1OBMKaA0Ak6Km70WJA~af1AzgUxeYoLpLVzDV6OYul93Kh32byKyiejnN6NR2JnlFsqFbpQ2nCbHZg0zmsQny6o0qsmpuiq6MGIYdwsvD60uL1W0XbIJlk117KLXeoEdgMCph33fqGb6kKHpgHvMRNNicKB2eESuo9VuiuO~JrAzMIBBQy7Ap-EhIt~~xORrjt8zI3ZuP4Q96-qfJ4kb8ZzXebzXMvcdY8KrlUtWyb8C1PBFQa~ng3vYA__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/79613380/download_file?st=MTczMjUxOTgxNyw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/79613380/mini_magick20220126-27254-s9l869.png?1643265937"}],"downloadable_attachments_with_full_thumbnails":[{"id":79613380,"asset_id":69566164,"asset_type":"Work","always_allow_download":false,"scribd_thumbnail_url":"https://attachments.academia-assets.com/79613380/thumbnails/1.jpg","download_url":"https://d1wqtxts1xzle7.cloudfront.net/79613380/gfab122.002-libre.pdf?1643266575=\u0026response-content-disposition=attachment%3B+filename%3DFC_068QUALITY_of_Life_Over_Time_in_Older.pdf\u0026Expires=1732523417\u0026Signature=d-9bZoJ~KrFbrCkj8-EbJ~o6kZcUw8s2OyU7mjvMkbEk4OlQiM5w4CucBVq47--Jt~eUriFYVS03IhuqCEtqdGW3hLsv3OKfgiWIndmj--rsVaGGOVzUe0Tj7rM8aj95Xcg0INXBbuZnGqDyEmJToHm0KchXGrhy8FgZWk~h~Y-z8hzHNLnEeYNZADd~eBERIxdpWCHH2pUpmCrvZ18tEE7Y~qgRi5crH~HelYdj5jhdVLRpjYs5uwwEG0PjnGz-isLQxNo9KzVsYWFdoUWXgVfhbOmRT29iWwWG0ylx2U7gzlJAJ6VGvL9qKgdMKOeG5op9WHJ0jncRvrd74ei2yQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA","download_file_url":"https://www.academia.edu/attachments/79613380/download_file?st=MTczMjUxOTgxNyw4LjIyMi4yMDguMTQ2&","full_thumbnail_url":"https://0.academia-photos.com/attachment_thumbnails/79613380/mini_magick20220126-27254-s9l869.png?1643265937"}],"has_pdf":true,"has_fulltext":true,"page_count":1,"ordered_authors":[{"id":3148817,"first_name":"Yvette","last_name":"Meuleman","domain_name":"leidenuni","page_name":"YvetteMeuleman","display_name":"Yvette 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Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences","nofollow":false}</script><a class="InlineList-item-text" data-has-card-for-ri="981981" href="https://www.academia.edu/Documents/in/Wiley">Wiley</a><script data-card-contents-for-ri="981981" type="text/json">{"id":981981,"name":"Wiley","url":"https://www.academia.edu/Documents/in/Wiley","nofollow":false}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=76383998]'), work: {"id":76383998,"title":"Patient‐reported outcome measures ( PROMs ): making sense of individual PROM scores and changes in PROM scores over 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