Advocacy Groups

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target="_blank"></a><div class="fb-share-text">share</div></h1> <h1 class="sub-head">Public Support Organizations and Websites</h1> <div class="break-2x"></div> <h4 class="sub-head"><a href="https://autoimmune.org/" title="American Autoimmune Related Diseases Association (AARDA)" target="_blank">American Autoimmune Related Diseases Association (AARDA)</a></h4> <p>Brings national focus to autoimmunity through research, education and patient services</p> <h4 class="sub-head"><a href="https://www.acpanow.com/" title="American Chronic Pain Association (ACPA)" target="_blank">American Chronic Pain Association (ACPA)</a></h4> <p>Founded in 1980 to provide resources for people coping with chronic pain</p> <h4 class="sub-head"><a href="https://www.lehman.cuny.edu/faculty/jfleitas/bandaides/" title="Bandaids and Blackboards" target="_blank">Bandaids and Blackboards</a></h4> <p>Started by a nurse working on her dissertation; focuses on children with chronic illness</p> <h4 class="sub-head"><a href="https://www.dailystrength.org/group/common-variable-immunodeficiency" title="CVID Support Group" target="_blank">CVID Support Group</a></h4> <p>This open forum is built to enable people facing life chanllenges living with CVID</p> <h4 class="sub-head"><a href="https://autoimmune-encephalitis.org/networks-brain-optimally-organized/" title="International Autoimmune-Encephalitis Organization" target="_blank">International Autoimmune-Encephalitis Organization</a></h4> <p>Critical thinking: How networks in the brain may be optimally organized</p> <h4 class="sub-head"><a href="https://keepkidshealthy.com/" title="KeepKidsHealthy.com" target="_blank">KeepKidsHealthy.com</a></h4> <p>A pediatrician's guide to children鈥檚 health and safety</p> <h4 class="sub-head"><a href="https://kidshealth.org/en/parents.html" title="KidsHealth.org" target="_blank">KidsHealth.org</a></h4> <p>Suggestions for how to deal with the medical and emotional impact of caring for an ill child</p> <h4 class="sub-head"><a href="https://understandingmyositis.org/" title="Myositis Support and Understanding" target="_blank">Myositis Support and Understanding</a></h4> <p>Research, education and advocacy within the Myositis community</p> <h4 class="sub-head"><a href="https://www.ncqa.org/" title="National Committee for Quality Assurance" target="_blank">National Committee for Quality Assurance</a></h4> <p>Provides free access to detailed report cards on health plans, clinical performance, member satisfaction, access to care and overall quality on its Health Plan Report Cards Online</p> <h4 class="sub-head"><a href="https://infusioncenter.net/" title="National Infusion Center Association (NICA)" target="_blank">National Infusion Center Association (NICA)</a></h4> <p>Established in 2010 as a 501(c)(3) non-profit organization formed to improve patient access to intravenous and injectable medications</p> <h4 class="sub-head"><a href="https://rarediseases.org/" title="National Organization for Rare Diseases" target="_blank">National Organization for Rare Diseases</a></h4> <p>Provides links to numerous other organizations that have disease-specific support groups and virtual communities for patients and caregivers</p> <h4 class="sub-head"><a href="https://www.pandasppn.org/what-are-pans-pandas/" title="PANDAS Physicians Network" target="_blank">PANDAS Physicians Network</a></h4> <p>What is PANS/PANDAS?</p> <h4 class="sub-head"><a href="https://www.patientadvocate.org/" title="Patient Advocate Foundation" target="_blank">Patient Advocate Foundation</a></h4> <p>A non-profit foundation seeking to ensure patient access to care, maintenance of employment and financial stability</p> <h4 class="sub-head"><a href="https://patientservicesinc.org/" title="Patient Services Incorporated" target="_blank">Patient Services Incorporated</a></h4> <p>A non-profit organization specializing in health insurance premium, pharmacy co-payment and co-payment waiver assistance for people with chronic illnesses</p> <h4 class="sub-head"><a href="https://www.foundationforpn.org/support/support-groups/" title="The Foundation for Peripheral Neuropathy" target="_blank">The Foundation for Peripheral Neuropathy</a></h4> <p>Find A Peripheral Neuropathy Support Group Near You</p> <h4 class="sub-head"><a href="https://www.webmd.com/" title="WebMD" target="_blank">WebMD</a></h4> <p>A handy medical reference that helps consumers take an active role in managing their health by providing objective healthcare and lifestyle information</p> </div>   <div class="col-md-3 sidebar interior" > <div class="row rt-nav hidden-xs hidden-sm"> <ul class="list-group sidebar-nav-v1" id="sidebar-nav"> <li class="list-group-item"><a href="/life-with-ig/ig-living-advocate-podcast.html">IG Living Advocate Podcast <span class="badge badge-igl">New</span></a></li> <li class="list-group-item"><a href="/life-with-ig/ask-the-experts.html">Ask the Experts</a></li> <li class="list-group-item"><a 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Advocacy Groups