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style="background-image:url(/files/data-landing-banner-2.jpg);" > <div class="container-fluid"> <h1><span>Data</span> </h1> <div class="row justify-content-center subtitle"> <div class="col-xl-8 col-lg-8 col-sm-12 col-xs-12"> <p>The NIH HEAL Initiative<sup>®</sup> has an extraordinary opportunity to make new discoveries using HEAL research data on pain and addiction, toward making a rapid and genuine impact.</p> </div> </div> </div> </div> </header> <main role="main"> <div class="container"> <a id="main-content" tabindex="-1"></a> <div class="row"> <div class="col-sm-12 breadcrumb-col col-md-7"> <div id="block-particle-breadcrumbs"> <nav aria-label="breadcrumb" role="navigation"> <ol class="breadcrumb"> <li class="breadcrumb-item gtm-breadcrumb"><a href="/" class="gtm-breadcrumb">Home</a></li> <li class="breadcrumb-item active is-active gtm-breadcrumb" aria-current="page">Data</li> </ol> </nav> </div> </div> <div class="col-sm-12 col-md-5"> </div> </div> </div> <div class="layout-content"> <div> <div id="block-particle-content"> <div> <div class="paragraph paragraph--type--basic-content paragraph--view-mode--default"> <div class="container"> <div class='basic-content content-align-left padding-bottom--1'> <div class='basic-content-grid-container ' style=''> <div class="basic-content-grid-no-media"> <div> <p>Researchers funded by the NIH HEAL Initiative are generating massive amounts of data toward addressing the intertwined public health challenges of undertreated pain, and opioid misuse, addiction, and overdose. To enable rapid application and new discovery, HEAL is committed to open science and requires that scientific papers reporting HEAL research be immediately publicly available upon publication. The initiative has also set up a cloud-based platform for user-friendly data analysis and sharing.</p> </div> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> About HEAL’s Data Ecosystem for Pain and Opioid Research </h2> <div class="basic-content-grid-right"> <p>The HEAL Data Ecosystem connects data across the HEAL research portfolio, enabling HEAL data to be accessed, analyzed, and used to make new discoveries. Through training, best practices, and methods for standardization, the HEAL Data Ecosystem empowers researchers to make their HEAL-generated data FAIR (findable, accessible, interoperable, and reusable).</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/heal-data-ecosystem> HEAL Data Ecosystem </a> </p> <div id="accordion-149570126" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/heal-data-ecosystem"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-about-thumb.jpg" width="620" height="355" alt="graphic of laptop screen showing icons for search, analyze, collaborate, and discover" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> Complying With the HEAL Data Sharing Policy </h2> <div class="basic-content-grid-right"> <p>The NIH HEAL Initiative has developed a quick and easy checklist to help HEAL-funded investigators make their data FAIR. The HEAL policy aligns with the NIH Data Management and Sharing Policy; the checklist defines HEAL-specific implementation requirements, such as using certain repositories and HEAL-defined metadata models.</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/complying-heal-data-sharing-policy> HEAL Data Sharing Policy </a> </p> <div id="accordion-395499888" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/complying-heal-data-sharing-policy"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-complying-thumb.jpg" width="620" height="356" alt="file folder icons flowing through the air between held laptops" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> HEAL Public Access and Data Sharing </h2> <div class="basic-content-grid-right"> <p>The HEAL Public Access and Data Sharing Policy creates an infrastructure that addresses the need for researchers, clinicians, and patients to collaborate on sharing their collective data and knowledge about opioid misuse and pain to provide scientific solutions to the opioid crisis.</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/public-access-data> HEAL Public Access and Data Sharing </a> </p> <div id="accordion-1673831333" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/public-access-data"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-public-access-thumb.jpg" width="620" height="356" alt="hands typing on laptop with wi-fi security icon floating over" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> HEAL Data Ecosystem Events and Outreach </h2> <div class="basic-content-grid-right"> <p>The HEAL Data Ecosystem occasionally holds events to share trainings and best practices for data management and sharing. They also conduct outreach to understand needs and practices of the HEAL research community. Watch videos of past informational events for the research community and read summaries and reports of data management and use practices.</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/ecosystem-events-outreach> HEAL Data Ecosystem Events and Outreach </a> </p> <div id="accordion-1534410927" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/ecosystem-events-outreach"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-events-thumb.jpg" width="620" height="356" alt="view from back of room of attendees sitting around tables focused on panel of speakers on stage" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> HEAL Data Ecosystem Collective Board </h2> <div class="basic-content-grid-right"> <p>In January 2022, HEAL established a Collective Board, with rotating members from various HEAL studies, to guide the overall strategy and direction of the HEAL Data Ecosystem.</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/data-ecosystem-collective-board> HEAL Data Ecosystem Collective Board </a> </p> <div id="accordion-473506327" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/data-ecosystem-collective-board"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-board-thumb.jpg" width="620" height="356" alt="people sitting around a large board room table" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> Common Data Elements (CDEs) Program </h2> <div class="basic-content-grid-right"> <p>Research data is maximally useful if it is collected in a standardized way to enable re-analysis and cross-study comparisons. Harmonized data collection is especially important for research studies related to conditions like pain in which many different types of data are collected, especially those related to patient-reported outcomes (PROs). Common data elements (CDEs) use controlled vocabularies that ensure standardized data collection. Use of CDEs improves the interpretability of HEAL findings, in particular for PROs.</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/common-data-elements> Common Data Elements (CDEs) Program </a> </p> <div id="accordion-2137174504" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/common-data-elements"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-CDE-program-thumb.jpg" width="620" height="356" alt="medical staff working on a tablet with health industry icons floating over" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> <div class="paragraph paragraph--type--content-accordion paragraph--view-mode--default"> <div class="container pt-3 basic-content-top-border"> <div class='basic-content content-align-right full'> <div class='basic-content-accordion-grid-container-right'> <h2 class='basic-content-grid-h2-right'> Common Data Elements (CDEs) Repository </h2> <div class="basic-content-grid-right"> <p>The NIH HEAL Initiative’s CDE repository houses core CDEs defined and used by HEAL, including case-report forms, variable names, and coding information. Supplemental CDEs will be available in the future.</p> <p> <a class="btn btn-secondary gtm-content-button mb-1" href=https://heal.nih.gov/data/common-data-elements-repository> Common Data Elements (CDEs) Repository </a> </p> <div id="accordion-580963559" class="accordion"> </div> </div> <div class="basic-content-grid-media-left"> <a href="https://heal.nih.gov/data/common-data-elements-repository"> <div> <div class="visually-hidden field-label">Image</div> <img loading="lazy" src="/files/data-CDE-repository-thumb.jpg" width="620" height="356" alt="a laptop open with file folders" class="img-fluid" /> </div> </a> </div> </div> </div> </div> </div> </div> </div> </div> </div> </main> <div class="container"> <p class="last-updated">Page last updated August 06, 2024</p> </div> </div> </div> <footer class="fluid-container p-3 footer" role="contentinfo"> <div class="container"> <div class="row"> <div class="col-12 col-md-3"> <div class="footer-logo"><a href="/"><img alt="NIH HEAL Initiative" 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