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col-md-4"> <a href="https://www.vwmconsortium.org/the-core-protocol-for-phase-2-3-clinical-trials-in-vwm-is-now-published/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/Teamwork_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">21 augustus 2023</div> <div class="h4 card-news__title">The core protocol for phase 2/3 clinical trial(s) in VWM is now published</div> <div class="card-news__text">The core protocol for phase 2/3 clinical trial(s) in VWM, aimed to serve as a template for industry-sponsored clinical trials in VWM, is now published. </div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/calico-life-sciences-announces-first-participant-dosed-in-phase-1b-clinical-study-evaluating-abbv-cls-7262-for-the-treatment-of-vanishing-white-matter-disease/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/Teamwork_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">26 april 2023</div> <div class="h4 card-news__title">Calico Life Sciences Announces First Participant Dosed in Phase 1b Clinical Study Evaluating ABBV-CLS-7262 for the Treatment of Vanishing White Matter Disease</div> <div class="card-news__text">Calico Life Sciences Announces First Participant Dosed in Phase 1b Clinical Study Evaluating ABBV-CLS-7262 for the Treatment of Vanishing White Matter Disease</div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/calico-starts-phase-1b-study-evaluating-safety-tolerability-and-pharmacokinetics-of-eif2b-activator/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/iStock-1185390850_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">26 maart 2023</div> <div class="h4 card-news__title">Calico starts phase 1b study evaluating safety, tolerability and pharmacokinetics of eIF2B activator</div> <div class="card-news__text">Calico starts phase 1b study evaluating safety, tolerability and pharmacokinetics of eIF2B activator. </div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/the-vwm-consortium-designed-a-core-clinical-trial-protocol-paper-submitted/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/Teamwork_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">9 februari 2023</div> <div class="h4 card-news__title">The VWM Consortium designed a ‘core clinical trial protocol’ – paper submitted</div> <div class="card-news__text">The VWM Consortium designed a 'core clinical trial protocol', aimed to serve as a template for industry-sponsored clinical trials in VWM. </div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/the-vwm-consortium-paper-is-neurology-genetics-2-most-read-paper-of-2022/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2023/01/Screenshot-2023-01-05-at-13.42.10-640x480.png);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">5 januari 2023</div> <div class="h4 card-news__title">The VWM Consortium paper is Neurology Genetics’ #2 most read paper of 2022!</div> <div class="card-news__text">In an end-of-the-year countdown on Facebook, the scientific journal ‘Neurology: Genetics’ stated that their #2 most read paper of 2022 is the VWM Consortium paper on therapy trial design.</div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/public-statement-of-vwm-patient-advocates-regarding-clinical-trial-design-and-participation/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/iStock-1185390850_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">29 augustus 2022</div> <div class="h4 card-news__title">Public Statement of VWM patient advocates regarding clinical trial design and participation</div> <div class="card-news__text">This public statement from advocates of the VWM community demonstrates their close partnership with the VWM consortium in optimizing clinical trial design and future patient participation. </div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/1-year-update-guanabenz-vwm-clinical-trial/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/Doctor-and-child_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">25 juli 2022</div> <div class="h4 card-news__title">1 year update Guanabenz VWM clinical trial</div> <div class="card-news__text">The first trial participant was included on May 31st 2021, in this update we reflect on the first year of the clinical trial.</div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/the-vwm-consortium-published-an-expert-opinion-on-therapy-trial-design/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/iStock-187272969_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">7 februari 2022</div> <div class="h4 card-news__title">The VWM consortium published an expert opinion on therapy trial design</div> <div class="card-news__text">The first paper published by the VWM consortium & patient associations describes recommendations for VWM clinical trial design. </div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/guanabenz-vwm-clinical-trial-patient-enrollment-has-started/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/Doctor-and-child_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">2 juni 2021</div> <div class="h4 card-news__title">Guanabenz VWM clinical trial patient enrollment has started</div> <div class="card-news__text">We are pleased to announce that the first three VWM patients have been enrolled in the study and more patients will follow soon. </div> </div> </a> </div> <div class="col-12 col-sm-6 col-md-4"> <a href="https://www.vwmconsortium.org/first-vwm-consortium-presentation-at-ulf-family-conference-on-june-25th/" class="card card-news"> <div class="card-news__image" style="background-image: url(https://www.vwmconsortium.org/wp-content/uploads/2021/06/iStock-1185390850_medium-640x480.jpg);"> </div> <div class="card-news__content bg--white"> <div class="card-news__btn btn--round"> <div class="btn--round-arrow"></div> </div> <div class="card-news__date">1 juni 2021</div> <div class="h4 card-news__title">First VWM consortium presentation at ULF family conference – June 25th 2021</div> <div class="card-news__text">This conference focuses on providing scientific information to keep families informed of progress in the leukodystrophy field. Please join our presentation live.</div> </div> </a> </div> </div> <div class="row justify-content-center"> <div class="col"> <nav class='pagination'><span aria-current="page" class="page-numbers current">1</span> <a class="page-numbers" href="https://www.vwmconsortium.org/news/page/2/">2</a> <a class="next page-numbers" href="https://www.vwmconsortium.org/news/page/2/">»</a></nav> </div> </div> </div> </div> </div> </main> <footer class="footer p-l"> <div class="container"> <div class="row"> <div class="col-12 col-sm-6 footer__logo__text"> <div class="footer__logo__img"></div> <p>The Vanishing White Matter consortium consists of 9 (pediatric) neurologists from 8 academic medical centers worldwide, all involved in leukodystrophy patient care and research. The consortium started in 2019 to work on the overarching mission: enabling and accelerating therapeutics for Vanishing White Matter, accessible and affordable for all patients. To help us achieve our mission we interact with various partners, including patient / family / caregiver foundations, (medical) specialists, academic institutes, and biotech and pharma companies.</p> </div> <div class="col-12 col-sm-6 footer__registry"> <div class="footer__registry__content"> <h3 class="footer__registry__titel">VWM patient registry</h3> <div class="footer__registry__text"> <p>The Amsterdam Leukodystrophy Center has developed an online global registry for patients with Vanishing White Matter (VWM). The purpose of the registry is to gain as much insight as possible into the course of the disease, both in terms of clinical features and MRI. This database will play an important role in developing treatment strategies and making decisions about therapeutic trials. Information is needed about as many patients as possible.</p> </div> <a href="https://www.vwmconsortium.org/register-as-vanishing-white-matter-patient/" class="footer__registry__button btn btn--green">Register</a> </div> </div> </div> <div class="row footer__bar justify-content-between"> <div class="col-12 footer__bar-col"> <div class="footer__copyright"> <div class="footer__bar-links">© 2025 <p>Amsterdam UMC • <a href="https://www.amsterdamumc.org/research/disclaimer.htm" target="_blank" rel="noopener">Disclaimer</a> • <a href="https://www.amsterdamumc.org/research/general-privacy-statement.htm" target="_blank" rel="noopener">Privacy Policy</a></p> </div> </div> <a href="https://www.stoerebinken.nl/" class="footer__made-by" target="_blank">Website: Stoere Binken</a> </div> </div> </div> </footer> <script type="text/javascript" src="https://unpkg.com/aos@next/dist/aos.js?ver=6.7.2" id="aos-js"></script> <script type="text/javascript" src="https://www.vwmconsortium.org/wp-includes/js/imagesloaded.min.js?ver=5.0.0" id="imagesloaded-js"></script> <script type="text/javascript" src="https://www.vwmconsortium.org/wp-includes/js/masonry.min.js?ver=4.2.2" id="masonry-js"></script> </body> </html>