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Patient Focus | Alnylam® Newsroom

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id="content_inner"> <div class="single taxonomy"> <div class="region region-content"> <div data-drupal-messages-fallback class="hidden"></div><div id="block-alnylam-page-title" class="block block-core block-page-title-block"> <h2 class="page_title"><strong>Patient Focus</strong></h2> </div> <div id="block-alnylam-content" class="block block-system block-system-main-block"> <div class="views-element-container"><div class="view view-taxonomy-term view-id-taxonomy_term view-display-id-page_1 js-view-dom-id-32a7f4e80ec58979f57f4585d82e0382d3a588a44332bab99d5e89017f03d3d6"> <div class="view-header"> <!-- Placeholder --> </div> <div class="view-content"> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr"> <img src="/sites/default/files/2023-09/ATTR%20holistic%20care%20feature%20image.png" /> </a> <span class="date">September 6, 2023</span> <a href="/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr"><span class="subject">First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Am ...</span></a> <span class="summary">Lorem ipsum</span> <a href="/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare"> <img src="/sites/default/files/2023-02/Clement%20Family%20Newsroom%20Article%20Feature.png" /> </a> <span class="date">February 28, 2023</span> <a href="/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare"><span class="subject">The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease ...</span></a> <span class="summary">Rare Disease Day unites the community to spread awareness and support the millions of people worldwide living with with a rare disease. </span> <a href="/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative"> <img src="/sites/default/files/2022-05/Alnylam%20VBNF%20Feature%20Image.png" /> </a> <span class="date">May 9, 2022</span> <a href="/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative"><span class="subject">Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies</span></a> <span class="summary">Alnylam worked with leading European economists and other healthcare experts to develop what we call the Value-Based Negotiation Framework (VBNF) to help...</span> <a href="/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/making-two-me-living-porphyria"> <img src="/sites/default/files/2022-04/Two%20of%20Me%20Living%20with%20Porphyria%20Feature.png" /> </a> <span class="date">April 2, 2022</span> <a href="/patient-focus/articles/making-two-me-living-porphyria"><span class="subject">The Making of Two of Me: Living with Porphyria</span></a> <span class="summary">Cynthia Lowen, Emmy-nominated filmmaker, talks about the making of Two of Me: Living with Porphyria.</span> <a href="/patient-focus/articles/making-two-me-living-porphyria">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership"> <img src="/sites/default/files/2022-04/Alnylam%20Health%20Equity%20RDD%20Article.png" /> </a> <span class="date">February 28, 2022</span> <a href="/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership"><span class="subject">Supporting Health Equity for All Through Leadership, Action and Partnership</span></a> <span class="summary">&quot;Health equity&quot; means that everyone has a fair and just opportunity to live the healthiest life possible, regardless of who they are, where they live or how...</span> <a href="/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report"> <img src="/sites/default/files/2022-04/Alnylam%202021%20Patient%20Access%20Philosophy%20Report%20Feature.png" /> </a> <span class="date">December 21, 2021</span> <a href="/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report"><span class="subject">Alnylam Publishes 2021 Patient Access Philosophy Report</span></a> <span class="summary">Alnylam has published its 2021 Patient Access Philosophy Report detailing its actions as a company to provide access to its medicines for those who may... </span> <a href="/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community"> <img src="/sites/default/files/2021-12/Alnylam%20FAMY%20Norrbotten%20Patient%20Advocacy%20Guest%20Post%20Feature.png" /> </a> <span class="date">December 16, 2021</span> <a href="/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community"><span class="subject">Guest Post: Creating Connections to Support the hATTR Amyloidosis Community</span></a> <span class="summary">Susanne Berglund is the Chancellor of FAMY Norrbotten, an amyloidosis patient advocacy group reflects on the importance of making connections to support...</span> <a href="/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about"> <img src="/sites/default/files/2021-09/Co-creating%20with%20patients%20feature.png" /> </a> <span class="date">September 6, 2021</span> <a href="/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about"><span class="subject">Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about AT ...</span></a> <span class="summary">Collaborating with patient organizations and patients is an essential part of our efforts to support people living with a complex rare disease like...</span> <a href="/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control"> <img src="/sites/default/files/2021-09/David%20-%20UK%20-%20hATTR%201_0.png" /> </a> <span class="date">September 4, 2021</span> <a href="/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control"><span class="subject">Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control</span></a> <span class="summary">David, from the UK, is living with hereditary ATTR amyloidosis. In this article, he discusses how he&#039;s using the STAR Symptom Tracker App to track his symptoms </span> <a href="/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease"> <img src="/sites/default/files/2021-04/LaVarne%20Burton%20Feature%20Image.png" /> </a> <span class="date">April 15, 2021</span> <a href="/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease"><span class="subject">Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease </span></a> <span class="summary">LaVarne Burton, President and CEO of the American Kidney Fund talks about the importance of partnerships...</span> <a href="/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease">Read More ›</a> </div> </div> </div> <nav class="pager" role="navigation" aria-labelledby="pagination-heading"> <h4 id="pagination-heading" class="visually-hidden">Pagination</h4> <ul class="pager__items js-pager__items"> <li class="pager__item is-active"> <a href="?page=0" title="Current page"> <span class="visually-hidden"> Current page </span>1</a> </li> <li class="pager__item"> <a href="?page=1" title="Go to page 2"> <span class="visually-hidden"> Page </span>2</a> </li> <li class="pager__item"> <a href="?page=2" title="Go to page 3"> <span class="visually-hidden"> Page </span>3</a> </li> <li class="pager__item"> <a href="?page=3" title="Go to page 4"> <span class="visually-hidden"> Page </span>4</a> </li> <li class="pager__item pager__item--next"> <a href="?page=1" title="Go to next page" rel="next"> <span class="visually-hidden">Next page</span> <span aria-hidden="true">›</span> </a> </li> <li class="pager__item pager__item--last"> <a href="?page=3" title="Go to last page"> <span class="visually-hidden">Last page</span> <span aria-hidden="true">»</span> </a> </li> </ul> </nav> <div class="feed-icons"> <a href="https://news.alnylam.com/taxonomy/term/4/feed" class="feed-icon"> Subscribe to Patient Focus </a> </div> </div> </div> </div> </div> </div> </div> </div> </main> <section class="new-footer"> <div class="top-dna-lines"> <div class="footer-dna-lines"> <div class="footer-container"> <div class="d-flex"> <div> <h2 class="footer-header">FOLLOW US</h2> <p class="footer-description"> Visit our social channels to learn more about the innovative work we are doing at Alnylam. </p> </div> <div class="right-icons d-flex"> <a target="_blank" href="https://www.youtube.com/channel/UCUZReY0GSAJ1w-MULQb9_Rw" ><img loading="eager" src="/sites/default/files/inline-images/youtube_icon.svg" /></a> <a target="_blank" href="https://www.facebook.com/AlnylamPharma/" ><img loading="eager" src="/sites/default/files/inline-images/fb_icon.svg" /></a> <a target="_blank" href="https://twitter.com/alnylam" ><img loading="eager" src="/sites/default/files/inline-images/x_icon.svg" /></a> <a target="_blank" href="https://www.linkedin.com/company/alnylam-pharmaceuticals/" ><img loading="eager" src="/sites/default/files/inline-images/linkedin_icon.svg" /></a> <a target="_blank" href="https://www.instagram.com/alnylampharma/" ><img loading="eager" src="/sites/default/files/inline-images/instagram_icon.svg" /></a> </div> </div> </div> </div> </div> </section> </div> </div> <footer> <div class="footer_inner clearfix"> <div class="footer_top_holder"> <div class="footer_top"> <div class="container"> <div class="container_inner"> <div class="four_columns clearfix"> <div class="col"> <h2 class="rounded"><a href="https://www.alnylam.com/about-alnylam/">Our Company</a></h2> <div class="textwidget"> <a href="https://www.alnylam.com/about-alnylam/">Our Company</a> <a href="https://www.alnylam.com/our-science/the-science-of-rnai">Our Science</a> <a href="https://www.alnylam.com/our-products">Our Products</a> <a href="https://news.alnylam.com/">Our News</a> </div> </div> <div class="col"> <h2 class="rounded"><a href="http://investors.alnylam.com/">Investors</a></h2> <div class="textwidget"> <a href="https://investors.alnylam.com/">Investors</a> <a href="https://www.alnylam.com/medical-professional-resources/">Medical Professionals</a> <a href="https://www.alnylam.com/patients/">Patients</a> <a href="https://www.alnylam.com/careers/">Job Seekers</a> </div> </div> <div class="col"> <h2 class="rounded"><a href="https://www.alnylam.com/alnylam-rnai-pipeline/clinical-trials/">Clinical Trials</a></h2> <div class="textwidget"> <a href="https://www.alnylam.com/alnylam-rnai-pipeline/clinical-trials/">Clinical Trials</a> <a href="https://www.alnylam.com/about-alnylam/corporate-responsibility/">Corporate Responsibility</a> <a href="https://www.alnylam.com/about-alnylam/diversity-inclusion/">Diversity, Equity &amp; 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