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Patient Focus | Alnylam® Newsroom
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id="content_inner"> <div class="single taxonomy"> <div class="region region-content"> <div data-drupal-messages-fallback class="hidden"></div><div id="block-alnylam-page-title" class="block block-core block-page-title-block"> <h2 class="page_title"><strong>Patient Focus</strong></h2> </div> <div id="block-alnylam-content" class="block block-system block-system-main-block"> <div class="views-element-container"><div class="view view-taxonomy-term view-id-taxonomy_term view-display-id-page_1 js-view-dom-id-32a7f4e80ec58979f57f4585d82e0382d3a588a44332bab99d5e89017f03d3d6"> <div class="view-header"> <!-- Placeholder --> </div> <div class="view-content"> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr"> <img src="/sites/default/files/2023-09/ATTR%20holistic%20care%20feature%20image.png" /> </a> <span class="date">September 6, 2023</span> <a href="/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr"><span class="subject">First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Am ...</span></a> <span class="summary">Lorem ipsum</span> <a href="/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare"> <img src="/sites/default/files/2023-02/Clement%20Family%20Newsroom%20Article%20Feature.png" /> </a> <span class="date">February 28, 2023</span> <a href="/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare"><span class="subject">The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease ...</span></a> <span class="summary">Rare Disease Day unites the community to spread awareness and support the millions of people worldwide living with with a rare disease. </span> <a href="/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative"> <img src="/sites/default/files/2022-05/Alnylam%20VBNF%20Feature%20Image.png" /> </a> <span class="date">May 9, 2022</span> <a href="/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative"><span class="subject">Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies</span></a> <span class="summary">Alnylam worked with leading European economists and other healthcare experts to develop what we call the Value-Based Negotiation Framework (VBNF) to help...</span> <a href="/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/making-two-me-living-porphyria"> <img src="/sites/default/files/2022-04/Two%20of%20Me%20Living%20with%20Porphyria%20Feature.png" /> </a> <span class="date">April 2, 2022</span> <a href="/patient-focus/articles/making-two-me-living-porphyria"><span class="subject">The Making of Two of Me: Living with Porphyria</span></a> <span class="summary">Cynthia Lowen, Emmy-nominated filmmaker, talks about the making of Two of Me: Living with Porphyria.</span> <a href="/patient-focus/articles/making-two-me-living-porphyria">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership"> <img src="/sites/default/files/2022-04/Alnylam%20Health%20Equity%20RDD%20Article.png" /> </a> <span class="date">February 28, 2022</span> <a href="/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership"><span class="subject">Supporting Health Equity for All Through Leadership, Action and Partnership</span></a> <span class="summary">"Health equity" means that everyone has a fair and just opportunity to live the healthiest life possible, regardless of who they are, where they live or how...</span> <a href="/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report"> <img src="/sites/default/files/2022-04/Alnylam%202021%20Patient%20Access%20Philosophy%20Report%20Feature.png" /> </a> <span class="date">December 21, 2021</span> <a href="/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report"><span class="subject">Alnylam Publishes 2021 Patient Access Philosophy Report</span></a> <span class="summary">Alnylam has published its 2021 Patient Access Philosophy Report detailing its actions as a company to provide access to its medicines for those who may... </span> <a href="/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community"> <img src="/sites/default/files/2021-12/Alnylam%20FAMY%20Norrbotten%20Patient%20Advocacy%20Guest%20Post%20Feature.png" /> </a> <span class="date">December 16, 2021</span> <a href="/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community"><span class="subject">Guest Post: Creating Connections to Support the hATTR Amyloidosis Community</span></a> <span class="summary">Susanne Berglund is the Chancellor of FAMY Norrbotten, an amyloidosis patient advocacy group reflects on the importance of making connections to support...</span> <a href="/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about"> <img src="/sites/default/files/2021-09/Co-creating%20with%20patients%20feature.png" /> </a> <span class="date">September 6, 2021</span> <a href="/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about"><span class="subject">Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about AT ...</span></a> <span class="summary">Collaborating with patient organizations and patients is an essential part of our efforts to support people living with a complex rare disease like...</span> <a href="/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control"> <img src="/sites/default/files/2021-09/David%20-%20UK%20-%20hATTR%201_0.png" /> </a> <span class="date">September 4, 2021</span> <a href="/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control"><span class="subject">Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control</span></a> <span class="summary">David, from the UK, is living with hereditary ATTR amyloidosis. In this article, he discusses how he's using the STAR Symptom Tracker App to track his symptoms </span> <a href="/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control">Read More ›</a> </div> </div> <div class="views-row"> <div class="article"> <a href="/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease"> <img src="/sites/default/files/2021-04/LaVarne%20Burton%20Feature%20Image.png" /> </a> <span class="date">April 15, 2021</span> <a href="/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease"><span class="subject">Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease </span></a> <span class="summary">LaVarne Burton, President and CEO of the American Kidney Fund talks about the importance of partnerships...</span> <a href="/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease">Read More ›</a> </div> 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