<?xml version="1.0" encoding="utf-8"?> <rss version="2.0" xml:base="https://news.alnylam.com/" xmlns:dc="http://purl.org/dc/elements/1.1/" xmlns:content="http://purl.org/rss/1.0/modules/content/" xmlns:foaf="http://xmlns.com/foaf/0.1/" xmlns:og="http://ogp.me/ns#" xmlns:rdfs="http://www.w3.org/2000/01/rdf-schema#" xmlns:schema="http://schema.org/" xmlns:sioc="http://rdfs.org/sioc/ns#" xmlns:sioct="http://rdfs.org/sioc/types#" xmlns:skos="http://www.w3.org/2004/02/skos/core#" xmlns:xsd="http://www.w3.org/2001/XMLSchema#"> <channel> <title>Patient Focus</title> <link>https://news.alnylam.com/</link> <description></description> <language>en</language> <item> <title>First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis</title> <link>https://news.alnylam.com/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;First Consensus Recommendations for Holistic Care of People Living With Hereditary ATTR Amyloidosis&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/tlane&quot; lang=&quot;&quot; about=&quot;/author/tlane&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;TLane&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2023-09-06T15:05:26+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Wed, 09/06/2023 - 15:05&lt;/span&gt; </description> <pubDate>Wed, 06 Sep 2023 15:05:26 +0000</pubDate> <dc:creator>TLane</dc:creator> <guid isPermaLink="false">155 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/first-consensus-recommendations-holistic-care-people-living-hereditary-attr#comments</comments> </item> <item> <title>The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease Journey</title> <link>https://news.alnylam.com/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;The Importance of Self-Advocacy: Supporting Patients and Caregivers in Their Rare Disease Journey&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/alnylam&quot; lang=&quot;&quot; about=&quot;/author/alnylam&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;Alnylam&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2023-02-28T20:19:40+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Tue, 02/28/2023 - 20:19&lt;/span&gt; </description> <pubDate>Tue, 28 Feb 2023 20:19:40 +0000</pubDate> <dc:creator>Alnylam</dc:creator> <guid isPermaLink="false">150 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/importance-self-advocacy-supporting-patients-and-caregivers-their-rare#comments</comments> </item> <item> <title>Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies</title> <link>https://news.alnylam.com/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Building a Collaborative Framework for Facilitating Patient Access to Innovative Therapies&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;span lang=&quot;&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot;&gt;Anonymous (not verified)&lt;/span&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2022-05-09T19:02:58+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Mon, 05/09/2022 - 19:02&lt;/span&gt; </description> <pubDate>Mon, 09 May 2022 19:02:58 +0000</pubDate> <dc:creator>Anonymous</dc:creator> <guid isPermaLink="false">125 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/building-collaborative-framework-facilitating-patient-access-innovative#comments</comments> </item> <item> <title>The Making of Two of Me: Living with Porphyria</title> <link>https://news.alnylam.com/patient-focus/articles/making-two-me-living-porphyria</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;The Making of Two of Me: Living with Porphyria&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/alnylam&quot; lang=&quot;&quot; about=&quot;/author/alnylam&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;Alnylam&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2022-04-02T16:33:19+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Sat, 04/02/2022 - 16:33&lt;/span&gt; </description> <pubDate>Sat, 02 Apr 2022 16:33:19 +0000</pubDate> <dc:creator>Alnylam</dc:creator> <guid isPermaLink="false">118 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/making-two-me-living-porphyria#comments</comments> </item> <item> <title>Supporting Health Equity for All Through Leadership, Action and Partnership</title> <link>https://news.alnylam.com/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Supporting Health Equity for All Through Leadership, Action and Partnership&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/alnylam&quot; lang=&quot;&quot; about=&quot;/author/alnylam&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;Alnylam&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2022-02-28T16:12:52+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Mon, 02/28/2022 - 16:12&lt;/span&gt; </description> <pubDate>Mon, 28 Feb 2022 16:12:52 +0000</pubDate> <dc:creator>Alnylam</dc:creator> <guid isPermaLink="false">117 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/supporting-health-equity-all-through-leadership-action-and-partnership#comments</comments> </item> <item> <title>Alnylam Publishes 2021 Patient Access Philosophy Report</title> <link>https://news.alnylam.com/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Alnylam Publishes 2021 Patient Access Philosophy Report&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/alnylam&quot; lang=&quot;&quot; about=&quot;/author/alnylam&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;Alnylam&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2021-12-21T13:50:11+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Tue, 12/21/2021 - 13:50&lt;/span&gt; </description> <pubDate>Tue, 21 Dec 2021 13:50:11 +0000</pubDate> <dc:creator>Alnylam</dc:creator> <guid isPermaLink="false">122 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/alnylam-publishes-2021-patient-access-philosophy-report#comments</comments> </item> <item> <title>Guest Post: Creating Connections to Support the hATTR Amyloidosis Community</title> <link>https://news.alnylam.com/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Guest Post: Creating Connections to Support the hATTR Amyloidosis Community&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/sberglund&quot; lang=&quot;&quot; about=&quot;/author/sberglund&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;sberglund&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2021-12-16T13:54:51+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Thu, 12/16/2021 - 13:54&lt;/span&gt; </description> <pubDate>Thu, 16 Dec 2021 13:54:51 +0000</pubDate> <dc:creator>sberglund</dc:creator> <guid isPermaLink="false">113 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/guest-post-creating-connections-support-hattr-amyloidosis-community#comments</comments> </item> <item> <title>Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about ATTR Amyloidosis</title> <link>https://news.alnylam.com/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Co-Creating with Patients, for Patients: Addressing Unmet Needs in Conversations about ATTR Amyloidosis&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/tlane&quot; lang=&quot;&quot; about=&quot;/author/tlane&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;TLane&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2021-09-06T17:53:08+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Mon, 09/06/2021 - 17:53&lt;/span&gt; </description> <pubDate>Mon, 06 Sep 2021 17:53:08 +0000</pubDate> <dc:creator>TLane</dc:creator> <guid isPermaLink="false">110 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/co-creating-patients-patients-addressing-unmet-needs-conversations-about#comments</comments> </item> <item> <title>Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control</title> <link>https://news.alnylam.com/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Guest Post: Tracking My hATTR Amyloidosis Symptoms to Take Back Control&lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;a title=&quot;View user profile.&quot; href=&quot;/author/david&quot; lang=&quot;&quot; about=&quot;/author/david&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot; class=&quot;username&quot;&gt;David&lt;/a&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2021-09-04T14:36:51+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Sat, 09/04/2021 - 14:36&lt;/span&gt; </description> <pubDate>Sat, 04 Sep 2021 14:36:51 +0000</pubDate> <dc:creator>David</dc:creator> <guid isPermaLink="false">109 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/guest-post-tracking-my-hattr-amyloidosis-symptoms-take-back-control#comments</comments> </item> <item> <title>Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease </title> <link>https://news.alnylam.com/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease</link> <description>&lt;span property=&quot;schema:name&quot; class=&quot;field field--name-title field--type-string field--label-hidden&quot;&gt;Guest Post: Partnering to Make a Positive Difference for People with Kidney Disease &lt;/span&gt; &lt;span rel=&quot;schema:author&quot; class=&quot;field field--name-uid field--type-entity-reference field--label-hidden&quot;&gt;&lt;span lang=&quot;&quot; about=&quot;/author/lburton&quot; typeof=&quot;schema:Person&quot; property=&quot;schema:name&quot; datatype=&quot;&quot;&gt;lburton&lt;/span&gt;&lt;/span&gt; &lt;span property=&quot;schema:dateCreated&quot; content=&quot;2021-04-15T17:29:38+00:00&quot; class=&quot;field field--name-created field--type-created field--label-hidden&quot;&gt;Thu, 04/15/2021 - 17:29&lt;/span&gt; </description> <pubDate>Thu, 15 Apr 2021 17:29:38 +0000</pubDate> <dc:creator>lburton</dc:creator> <guid isPermaLink="false">101 at https://news.alnylam.com</guid> <comments>https://news.alnylam.com/patient-focus/articles/guest-post-partnering-make-positive-difference-people-kidney-disease#comments</comments> </item> </channel> </rss>