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measures</h1><div class="u-tcGrayDark">3,875 Followers</div><div class="u-tcGrayDark u-mt2x">Recent papers in <b>Patient reported outcome measures</b></div></div></div></div></div></div><div class="TabbedNavigation"><div class="container"><div class="row"><div class="col-xs-12 clearfix"><ul class="nav u-m0x u-p0x list-inline u-displayFlex"><li class="active"><a href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Top Papers</a></li><li><a href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures/MostCited">Most Cited Papers</a></li><li><a href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures/MostDownloaded">Most Downloaded Papers</a></li><li><a href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures/MostRecent">Newest Papers</a></li><li><a class="" href="https://www.academia.edu/People/Patient_reported_outcome_measures">People</a></li></ul></div><style 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(GH) replacement therapy in GH-deficient adults: effects on quality of life, patient-reported outcomes and healthcare consumption</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest">Objective: The objective was to investigate the effects of 3 years of growth hormone (GH) replacement therapy in GH deficient (GHD) patients in Sweden.</div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/5003785" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="86958adb0daf53b2fc7f532673b31345" rel="nofollow" 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type="text/json">{"id":6630993,"first_name":"Anders","last_name":"Mattsson","domain_name":"pfizer","page_name":"AndersMattsson","display_name":"Anders Mattsson","profile_url":"https://pfizer.academia.edu/AndersMattsson?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_5003785 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="5003785"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 5003785, container: ".js-paper-rank-work_5003785", }); });</script></li><li class="js-percentile-work_5003785 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 5003785; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_5003785"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_5003785 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="5003785"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 5003785; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=5003785]").text(description); $(".js-view-count-work_5003785").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_5003785").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="5003785"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">17</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="167" rel="nofollow" href="https://www.academia.edu/Documents/in/Physiology">Physiology</a>, <script data-card-contents-for-ri="167" type="text/json">{"id":167,"name":"Physiology","url":"https://www.academia.edu/Documents/in/Physiology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="9112" rel="nofollow" href="https://www.academia.edu/Documents/in/Physical_Activity">Physical Activity</a>, <script data-card-contents-for-ri="9112" type="text/json">{"id":9112,"name":"Physical Activity","url":"https://www.academia.edu/Documents/in/Physical_Activity?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=5003785]'), work: {"id":5003785,"title":"Three-years of growth hormone (GH) replacement therapy in GH-deficient adults: effects on quality of life, patient-reported outcomes and healthcare consumption","created_at":"2013-11-05T16:28:09.703-08:00","url":"https://www.academia.edu/5003785/Three_years_of_growth_hormone_GH_replacement_therapy_in_GH_deficient_adults_effects_on_quality_of_life_patient_reported_outcomes_and_healthcare_consumption?f_ri=27171","dom_id":"work_5003785","summary":"Objective: The objective was to investigate the effects of 3 years of growth hormone (GH) replacement therapy in GH deficient (GHD) patients in Sweden.","downloadable_attachments":[{"id":49490555,"asset_id":5003785,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":6630993,"first_name":"Anders","last_name":"Mattsson","domain_name":"pfizer","page_name":"AndersMattsson","display_name":"Anders Mattsson","profile_url":"https://pfizer.academia.edu/AndersMattsson?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":167,"name":"Physiology","url":"https://www.academia.edu/Documents/in/Physiology?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":9112,"name":"Physical Activity","url":"https://www.academia.edu/Documents/in/Physical_Activity?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":44814,"name":"Sweden","url":"https://www.academia.edu/Documents/in/Sweden?f_ri=27171"},{"id":52562,"name":"Growth Hormone","url":"https://www.academia.edu/Documents/in/Growth_Hormone?f_ri=27171"},{"id":69565,"name":"Human Growth Hormone","url":"https://www.academia.edu/Documents/in/Human_Growth_Hormone?f_ri=27171"},{"id":113812,"name":"Gender Difference","url":"https://www.academia.edu/Documents/in/Gender_Difference?f_ri=27171"},{"id":125564,"name":"Statistical Significance","url":"https://www.academia.edu/Documents/in/Statistical_Significance?f_ri=27171"},{"id":191947,"name":"Growth hormone deficiency","url":"https://www.academia.edu/Documents/in/Growth_hormone_deficiency?f_ri=27171"},{"id":208591,"name":"Hypopituitarism","url":"https://www.academia.edu/Documents/in/Hypopituitarism?f_ri=27171"},{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":413195,"name":"Time Factors","url":"https://www.academia.edu/Documents/in/Time_Factors?f_ri=27171"},{"id":1225171,"name":"Syndrome","url":"https://www.academia.edu/Documents/in/Syndrome?f_ri=27171"},{"id":1621167,"name":"Hormone Replacement Therapy","url":"https://www.academia.edu/Documents/in/Hormone_Replacement_Therapy?f_ri=27171"},{"id":1681026,"name":"Biochemistry and cell biology","url":"https://www.academia.edu/Documents/in/Biochemistry_and_cell_biology?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_55712997" data-work_id="55712997" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/55712997/The_French_version_of_the_Juvenile_Arthritis_Multidimensional_Assessment_Report_JAMAR_">The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_55712997" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach&#39;s alpha, interscale correlations and construct validity (convergent and discriminant validity). A to...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/55712997" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a28cba21fd5dfdb85f5a29ce81b9df6e" rel="nofollow" data-download="{"attachment_id":71455441,"asset_id":55712997,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/71455441/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="36364374" href="https://independent.academia.edu/RichardMouy">Richard Mouy</a><script data-card-contents-for-user="36364374" type="text/json">{"id":36364374,"first_name":"Richard","last_name":"Mouy","domain_name":"independent","page_name":"RichardMouy","display_name":"Richard Mouy","profile_url":"https://independent.academia.edu/RichardMouy?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_55712997 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="55712997"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 55712997, container: ".js-paper-rank-work_55712997", }); });</script></li><li class="js-percentile-work_55712997 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 55712997; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_55712997"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_55712997 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="55712997"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 55712997; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=55712997]").text(description); $(".js-view-count-work_55712997").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_55712997").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="55712997"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">17</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="22506" rel="nofollow" href="https://www.academia.edu/Documents/in/Adolescent">Adolescent</a>, <script data-card-contents-for-ri="22506" type="text/json">{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=55712997]'), work: {"id":55712997,"title":"The French version of the Juvenile Arthritis Multidimensional Assessment Report (JAMAR)","created_at":"2021-10-05T13:07:58.648-07:00","url":"https://www.academia.edu/55712997/The_French_version_of_the_Juvenile_Arthritis_Multidimensional_Assessment_Report_JAMAR_?f_ri=27171","dom_id":"work_55712997","summary":"The Juvenile Arthritis Multidimensional Assessment Report (JAMAR) is a new parent/patient reported outcome measure that enables a thorough assessment of the disease status in children with juvenile idiopathic arthritis (JIA). We report the results of the cross-cultural adaptation and validation of the parent and patient versions of the JAMAR in the French language. The reading comprehension of the questionnaire was tested in 10 JIA parents and patients. Each participating centre was asked to collect demographic, clinical data and the JAMAR in 100 consecutive JIA patients or all consecutive patients seen in a 6-month period and to administer the JAMAR to 100 healthy children and their parents. The statistical validation phase explored descriptive statistics and the psychometric issues of the JAMAR: the three Likert assumptions, floor/ceiling effects, internal consistency, Cronbach\u0026#39;s alpha, interscale correlations and construct validity (convergent and discriminant validity). A to...","downloadable_attachments":[{"id":71455441,"asset_id":55712997,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":36364374,"first_name":"Richard","last_name":"Mouy","domain_name":"independent","page_name":"RichardMouy","display_name":"Richard Mouy","profile_url":"https://independent.academia.edu/RichardMouy?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":27336,"name":"France","url":"https://www.academia.edu/Documents/in/France?f_ri=27171"},{"id":64933,"name":"Child","url":"https://www.academia.edu/Documents/in/Child?f_ri=27171"},{"id":222261,"name":"Patients","url":"https://www.academia.edu/Documents/in/Patients?f_ri=27171"},{"id":232534,"name":"Health Status","url":"https://www.academia.edu/Documents/in/Health_Status?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":303598,"name":"Parents","url":"https://www.academia.edu/Documents/in/Parents?f_ri=27171"},{"id":489727,"name":"Prognosis","url":"https://www.academia.edu/Documents/in/Prognosis?f_ri=27171"},{"id":1318932,"name":"Predictive value of tests","url":"https://www.academia.edu/Documents/in/Predictive_value_of_tests?f_ri=27171"},{"id":1489115,"name":"Age of Onset","url":"https://www.academia.edu/Documents/in/Age_of_Onset?f_ri=27171"},{"id":1819399,"name":"Case Control Studies","url":"https://www.academia.edu/Documents/in/Case_Control_Studies?f_ri=27171"},{"id":2474752,"name":"Disability Evaluation","url":"https://www.academia.edu/Documents/in/Disability_Evaluation?f_ri=27171"},{"id":2489700,"name":"Child preschool","url":"https://www.academia.edu/Documents/in/Child_preschool?f_ri=27171"},{"id":2533306,"name":"cultural characteristics","url":"https://www.academia.edu/Documents/in/cultural_characteristics?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_68770498" data-work_id="68770498" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/68770498/An_International_Collaborative_Standardizing_a_Comprehensive_Patient_Centered_Outcomes_Measurement_Set_for_Colorectal_Cancer">An International Collaborative Standardizing a Comprehensive Patient-Centered Outcomes Measurement Set for Colorectal Cancer</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_68770498" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to patients. The International Consortium for Health Outcomes Measurement (ICHOM), a nonprofit initiative, was formed to define standard sets of outcomes by medical condition. In this article, we report the efforts of ICHOM&#39;s working group in colorectal cancer. The working group was composed of multidisciplinary oncology specialists in medicine, surgery, radiation therapy, palliative care, nursing, and pathology, along with patient representatives. Through a modified Delphi process during 8 months (July 8, 2015 to February 29, 2016), ICHOM led the working group to a consensus on a final recommended standard set. The process was supported by a systematic PubMed literature review (1042 randomized clinical trials and guidelines from June 3, 2005, to J...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/68770498" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="239178951abf21e14e6af207dcc079a6" rel="nofollow" data-download="{"attachment_id":79129257,"asset_id":68770498,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/79129257/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="163569519" href="https://kvsangathan.academia.edu/KimRyan">Kim Ryan</a><script data-card-contents-for-user="163569519" type="text/json">{"id":163569519,"first_name":"Kim","last_name":"Ryan","domain_name":"kvsangathan","page_name":"KimRyan","display_name":"Kim Ryan","profile_url":"https://kvsangathan.academia.edu/KimRyan?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_68770498 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="68770498"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 68770498, container: ".js-paper-rank-work_68770498", }); });</script></li><li class="js-percentile-work_68770498 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 68770498; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_68770498"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_68770498 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="68770498"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 68770498; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=68770498]").text(description); $(".js-view-count-work_68770498").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_68770498").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="68770498"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">8</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="4193" rel="nofollow" href="https://www.academia.edu/Documents/in/Focus_Groups">Focus Groups</a>, <script data-card-contents-for-ri="4193" type="text/json">{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12054" rel="nofollow" href="https://www.academia.edu/Documents/in/International_Cooperation">International Cooperation</a>, <script data-card-contents-for-ri="12054" type="text/json">{"id":12054,"name":"International Cooperation","url":"https://www.academia.edu/Documents/in/International_Cooperation?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="26327" rel="nofollow" href="https://www.academia.edu/Documents/in/Medicine">Medicine</a><script data-card-contents-for-ri="26327" type="text/json">{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=68770498]'), work: {"id":68770498,"title":"An International Collaborative Standardizing a Comprehensive Patient-Centered Outcomes Measurement Set for Colorectal Cancer","created_at":"2022-01-19T23:42:37.158-08:00","url":"https://www.academia.edu/68770498/An_International_Collaborative_Standardizing_a_Comprehensive_Patient_Centered_Outcomes_Measurement_Set_for_Colorectal_Cancer?f_ri=27171","dom_id":"work_68770498","summary":"Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to patients. The International Consortium for Health Outcomes Measurement (ICHOM), a nonprofit initiative, was formed to define standard sets of outcomes by medical condition. In this article, we report the efforts of ICHOM\u0026#39;s working group in colorectal cancer. The working group was composed of multidisciplinary oncology specialists in medicine, surgery, radiation therapy, palliative care, nursing, and pathology, along with patient representatives. Through a modified Delphi process during 8 months (July 8, 2015 to February 29, 2016), ICHOM led the working group to a consensus on a final recommended standard set. The process was supported by a systematic PubMed literature review (1042 randomized clinical trials and guidelines from June 3, 2005, to J...","downloadable_attachments":[{"id":79129257,"asset_id":68770498,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":163569519,"first_name":"Kim","last_name":"Ryan","domain_name":"kvsangathan","page_name":"KimRyan","display_name":"Kim Ryan","profile_url":"https://kvsangathan.academia.edu/KimRyan?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":12054,"name":"International Cooperation","url":"https://www.academia.edu/Documents/in/International_Cooperation?f_ri=27171","nofollow":true},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":1214081,"name":"Delphi Technique","url":"https://www.academia.edu/Documents/in/Delphi_Technique?f_ri=27171"},{"id":2440562,"name":"Colorectal Neoplasms","url":"https://www.academia.edu/Documents/in/Colorectal_Neoplasms?f_ri=27171"},{"id":3194761,"name":"Quality of health care","url":"https://www.academia.edu/Documents/in/Quality_of_health_care?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_9375731" data-work_id="9375731" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/9375731/Systematic_review_of_quality_of_life_in_the_management_of_vestibular_schwannoma">Systematic review of quality of life in the management of vestibular schwannoma</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Vestibular schwannoma (VS) is a benign tumour arising from the vestibular component of the vestibulocochlear nerve. Treatment protocols range from observation to microsurgical resection (MS) or radiation therapy using focused delivery... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_9375731" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Vestibular schwannoma (VS) is a benign tumour arising from the vestibular component of the vestibulocochlear nerve. Treatment protocols range from observation to microsurgical resection (MS) or radiation therapy using focused delivery techniques: either stereotactic radiosurgery (SRS) or stereotactic radiotherapy (SRT). Most reported outcome measures explore medically orientated results such as extent of resection or facial nerve function and do not give any insight into how the initial disease, the treatment or operative complications impinge upon the patient's quality of life (QoL). The primary aim of this review was to appraise the quality of research concerning the measurement of QoL in patients with VS. A systematic review was performed including trials of patients with newly diagnosed VS undergoing MS, SRT/SRS, or observation with a measure of QoL. Only trials of prospective design were included. Excluded trials included participants with recurrent disease or comorbidities, and studies reporting patients with VS in association with neurofibromatosis type 2. Each trial for inclusion was assessed for bias and underwent formal data extraction. Between 1973 and 2010, 47 unique trials were identified with eight trials of prospective design. All included studies were prospective non-randomised, observational convenience sampled trials. No randomised control trials or systematic reviews were identified. The most common QoL measure used was the Short Form Questionnaire (SF-36), although it has not been validated in VS. The included trials suggest that the treatment protocols of MS and SRS/SRT are of equal efficacy with regard to impact on QoL; however, the trials were hetereogenous and suffered from a variety of methodological deficiencies. Given this heterogeneity, no meta-analysis was able to be performed. The available literature on QoL in the treatment of VS suffers from significant methodological weaknesses making it difficult to make any assessment as to the efficacy on QoL of available treatment options for VS. Further well-designed, randomised prospective research is necessary to understand this condition, its effect on QoL and how QoL outcomes may be used alongside clinical indicators in making treatment decisions.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/9375731" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="3341cb46c2ad9a0839ee50d0d00d4c4f" rel="nofollow" data-download="{"attachment_id":47804967,"asset_id":9375731,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/47804967/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="21736671" href="https://independent.academia.edu/AndrewGauden">Andrew Gauden</a><script data-card-contents-for-user="21736671" type="text/json">{"id":21736671,"first_name":"Andrew","last_name":"Gauden","domain_name":"independent","page_name":"AndrewGauden","display_name":"Andrew Gauden","profile_url":"https://independent.academia.edu/AndrewGauden?f_ri=27171","photo":"https://0.academia-photos.com/21736671/6392923/7232384/s65_andrew.gauden.jpg"}</script></span></span></li><li class="js-paper-rank-work_9375731 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="9375731"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 9375731, container: ".js-paper-rank-work_9375731", }); });</script></li><li class="js-percentile-work_9375731 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 9375731; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_9375731"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_9375731 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="9375731"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 9375731; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=9375731]").text(description); $(".js-view-count-work_9375731").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_9375731").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="9375731"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">15</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="5525" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Neuroscience">Clinical Neuroscience</a>, <script data-card-contents-for-ri="5525" type="text/json">{"id":5525,"name":"Clinical Neuroscience","url":"https://www.academia.edu/Documents/in/Clinical_Neuroscience?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="10030" rel="nofollow" href="https://www.academia.edu/Documents/in/Radiation_Therapy">Radiation Therapy</a>, <script data-card-contents-for-ri="10030" type="text/json">{"id":10030,"name":"Radiation Therapy","url":"https://www.academia.edu/Documents/in/Radiation_Therapy?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=9375731]'), work: {"id":9375731,"title":"Systematic review of quality of life in the management of vestibular schwannoma","created_at":"2014-11-18T09:03:58.324-08:00","url":"https://www.academia.edu/9375731/Systematic_review_of_quality_of_life_in_the_management_of_vestibular_schwannoma?f_ri=27171","dom_id":"work_9375731","summary":"Vestibular schwannoma (VS) is a benign tumour arising from the vestibular component of the vestibulocochlear nerve. Treatment protocols range from observation to microsurgical resection (MS) or radiation therapy using focused delivery techniques: either stereotactic radiosurgery (SRS) or stereotactic radiotherapy (SRT). Most reported outcome measures explore medically orientated results such as extent of resection or facial nerve function and do not give any insight into how the initial disease, the treatment or operative complications impinge upon the patient's quality of life (QoL). The primary aim of this review was to appraise the quality of research concerning the measurement of QoL in patients with VS. A systematic review was performed including trials of patients with newly diagnosed VS undergoing MS, SRT/SRS, or observation with a measure of QoL. Only trials of prospective design were included. Excluded trials included participants with recurrent disease or comorbidities, and studies reporting patients with VS in association with neurofibromatosis type 2. Each trial for inclusion was assessed for bias and underwent formal data extraction. Between 1973 and 2010, 47 unique trials were identified with eight trials of prospective design. All included studies were prospective non-randomised, observational convenience sampled trials. No randomised control trials or systematic reviews were identified. The most common QoL measure used was the Short Form Questionnaire (SF-36), although it has not been validated in VS. The included trials suggest that the treatment protocols of MS and SRS/SRT are of equal efficacy with regard to impact on QoL; however, the trials were hetereogenous and suffered from a variety of methodological deficiencies. Given this heterogeneity, no meta-analysis was able to be performed. The available literature on QoL in the treatment of VS suffers from significant methodological weaknesses making it difficult to make any assessment as to the efficacy on QoL of available treatment options for VS. Further well-designed, randomised prospective research is necessary to understand this condition, its effect on QoL and how QoL outcomes may be used alongside clinical indicators in making treatment decisions.","downloadable_attachments":[{"id":47804967,"asset_id":9375731,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":21736671,"first_name":"Andrew","last_name":"Gauden","domain_name":"independent","page_name":"AndrewGauden","display_name":"Andrew Gauden","profile_url":"https://independent.academia.edu/AndrewGauden?f_ri=27171","photo":"https://0.academia-photos.com/21736671/6392923/7232384/s65_andrew.gauden.jpg"}],"research_interests":[{"id":5525,"name":"Clinical Neuroscience","url":"https://www.academia.edu/Documents/in/Clinical_Neuroscience?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":10030,"name":"Radiation Therapy","url":"https://www.academia.edu/Documents/in/Radiation_Therapy?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":49000,"name":"Observation","url":"https://www.academia.edu/Documents/in/Observation?f_ri=27171"},{"id":144052,"name":"Patient Satisfaction","url":"https://www.academia.edu/Documents/in/Patient_Satisfaction?f_ri=27171"},{"id":163143,"name":"STEM (short form)","url":"https://www.academia.edu/Documents/in/STEM_short_form_?f_ri=27171"},{"id":218206,"name":"Meta Analysis","url":"https://www.academia.edu/Documents/in/Meta_Analysis?f_ri=27171"},{"id":221411,"name":"Systematic review","url":"https://www.academia.edu/Documents/in/Systematic_review?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":251271,"name":"Facial Nerve","url":"https://www.academia.edu/Documents/in/Facial_Nerve?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":410459,"name":"Acoustic Neuroma","url":"https://www.academia.edu/Documents/in/Acoustic_Neuroma?f_ri=27171"},{"id":1203325,"name":"Data Extraction","url":"https://www.academia.edu/Documents/in/Data_Extraction?f_ri=27171"},{"id":1239755,"name":"Neurosciences","url":"https://www.academia.edu/Documents/in/Neurosciences?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_25438579" data-work_id="25438579" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/25438579/Quality_of_life_in_patients_with_benign_thyroid_disorders_A_review">Quality of life in patients with benign thyroid disorders. A review</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The importance of patient-reported outcomes such as health-related quality of life (HRQL) in clinical research is increasingly acknowledged. In order to yield valid results, the measurement properties of HRQL questionnaires must be... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_25438579" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The importance of patient-reported outcomes such as health-related quality of life (HRQL) in clinical research is increasingly acknowledged. In order to yield valid results, the measurement properties of HRQL questionnaires must be thoroughly investigated. One aspect of such a validation process is the demonstration of content validity, i.e. that the questionnaire covers all relevant aspects. We review studies reporting on consequences of thyroid disorders and present the frequency of identified aspects, both overall HRQL issues and classical thyroid symptoms, in order to evaluate which issues are relevant for patients with thyroid diseases. Furthermore, existing questionnaires for thyroid patients are reviewed. A systematic search was performed in the Medline, Cinahl and Psycinfo databases and the reference lists of the relevant articles were hand-searched. Seventy-five relevant studies were identified. According to these studies, patients with untreated thyroid disease suffer from a wide range of symptoms and have major impairment in most areas of HRQL. Furthermore, the studies indicate that impairments in HRQL are also frequent in the long term. Six HRQL questionnaires for thyroid patients were identified. Generally, data supporting the validity of these questionnaires were sparse. According to the available literature, the quality of life of thyroid patients is substantially impaired over a wide range of aspects of HRQL in the untreated phase and continues to be so in many patients also in the long term. Studies systematically exploring the relative importance of these various aspects to thyroid patients are lacking, as is a comprehensive, validated thyroid-specific HRQL questionnaire.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/25438579" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="fdee9c03ee3a916c06f14097a23fba71" rel="nofollow" data-download="{"attachment_id":45755272,"asset_id":25438579,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45755272/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="48841950" href="https://independent.academia.edu/SteenBonnema">Steen Bonnema</a><script data-card-contents-for-user="48841950" type="text/json">{"id":48841950,"first_name":"Steen","last_name":"Bonnema","domain_name":"independent","page_name":"SteenBonnema","display_name":"Steen Bonnema","profile_url":"https://independent.academia.edu/SteenBonnema?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_25438579 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="25438579"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 25438579, container: ".js-paper-rank-work_25438579", }); });</script></li><li class="js-percentile-work_25438579 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 25438579; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_25438579"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_25438579 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="25438579"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 25438579; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=25438579]").text(description); $(".js-view-count-work_25438579").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_25438579").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="25438579"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">12</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="66110" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_research">Clinical research</a>, <script data-card-contents-for-ri="66110" type="text/json">{"id":66110,"name":"Clinical research","url":"https://www.academia.edu/Documents/in/Clinical_research?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="82844" rel="nofollow" href="https://www.academia.edu/Documents/in/Health_related_Quality_of_Life">Health related Quality of Life</a><script data-card-contents-for-ri="82844" type="text/json">{"id":82844,"name":"Health related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=25438579]'), work: {"id":25438579,"title":"Quality of life in patients with benign thyroid disorders. A review","created_at":"2016-05-18T14:39:30.638-07:00","url":"https://www.academia.edu/25438579/Quality_of_life_in_patients_with_benign_thyroid_disorders_A_review?f_ri=27171","dom_id":"work_25438579","summary":"The importance of patient-reported outcomes such as health-related quality of life (HRQL) in clinical research is increasingly acknowledged. In order to yield valid results, the measurement properties of HRQL questionnaires must be thoroughly investigated. One aspect of such a validation process is the demonstration of content validity, i.e. that the questionnaire covers all relevant aspects. We review studies reporting on consequences of thyroid disorders and present the frequency of identified aspects, both overall HRQL issues and classical thyroid symptoms, in order to evaluate which issues are relevant for patients with thyroid diseases. Furthermore, existing questionnaires for thyroid patients are reviewed. A systematic search was performed in the Medline, Cinahl and Psycinfo databases and the reference lists of the relevant articles were hand-searched. Seventy-five relevant studies were identified. According to these studies, patients with untreated thyroid disease suffer from a wide range of symptoms and have major impairment in most areas of HRQL. Furthermore, the studies indicate that impairments in HRQL are also frequent in the long term. Six HRQL questionnaires for thyroid patients were identified. Generally, data supporting the validity of these questionnaires were sparse. According to the available literature, the quality of life of thyroid patients is substantially impaired over a wide range of aspects of HRQL in the untreated phase and continues to be so in many patients also in the long term. Studies systematically exploring the relative importance of these various aspects to thyroid patients are lacking, as is a comprehensive, validated thyroid-specific HRQL questionnaire.","downloadable_attachments":[{"id":45755272,"asset_id":25438579,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":48841950,"first_name":"Steen","last_name":"Bonnema","domain_name":"independent","page_name":"SteenBonnema","display_name":"Steen Bonnema","profile_url":"https://independent.academia.edu/SteenBonnema?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":66110,"name":"Clinical research","url":"https://www.academia.edu/Documents/in/Clinical_research?f_ri=27171","nofollow":true},{"id":82844,"name":"Health related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171","nofollow":true},{"id":203527,"name":"Medline","url":"https://www.academia.edu/Documents/in/Medline?f_ri=27171"},{"id":231186,"name":"Hypothyroidism","url":"https://www.academia.edu/Documents/in/Hypothyroidism?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":260797,"name":"Hyperthyroidism","url":"https://www.academia.edu/Documents/in/Hyperthyroidism?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":532052,"name":"Thyroid Diseases","url":"https://www.academia.edu/Documents/in/Thyroid_Diseases?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":1271415,"name":"Long Term Study","url":"https://www.academia.edu/Documents/in/Long_Term_Study?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_73413518 coauthored" data-work_id="73413518" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/73413518/Associations_between_Patient_Reported_and_Clinician_Reported_Outcome_Measures_in_Patients_after_Traumatic_Injuries_of_the_Lower_Limb">Associations between Patient-Reported and Clinician-Reported Outcome Measures in Patients after Traumatic Injuries of the Lower Limb</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Both clinician-reported outcome measures (CROMs) measures and patient-reported outcome measures (PROMs) are applied to evaluate outcomes in rehabilitation settings. The previous data show only a low to moderate correlation between these... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_73413518" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Both clinician-reported outcome measures (CROMs) measures and patient-reported outcome measures (PROMs) are applied to evaluate outcomes in rehabilitation settings. The previous data show only a low to moderate correlation between these measures. Relationships between functional performance measures (Clinician-Reported Outcome Measures, CROMs) and Patient-Reported Outcome Measures (PROMs) were analysed in rehabilitation patients with traumatic injuries of the lower limb. A cohort of 315 patients with 3 subgroups (127 hip, 101 knee and 87 ankle region) was analysed before and after 3 weeks of inpatient rehabilitation. All three groups showed significant improvements in PROMs with low to moderate effect sizes. Moderate to high effect sizes were found for CROMs. Correlation coefficients between CROMs and PROMs were low to moderate. The performance consistency between PROMs and CROMs ranged from 56.7% to 64.1%. In this cohort of rehabilitation patients with traumatic injuries, CROMs showed higher effect sizes than PROMs. When used in combination, patient-reported outcome and performance measures contribute to collecting complementary information, enabling the practitioner to make a more accurate clinical evaluation of the patient’s condition.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/73413518" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="fc8d9ba8be7aa9a63c74366df3b564a8" rel="nofollow" data-download="{"attachment_id":81944516,"asset_id":73413518,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/81944516/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="218248205" href="https://independent.academia.edu/HelenaNics">Helena Nics</a><script data-card-contents-for-user="218248205" type="text/json">{"id":218248205,"first_name":"Helena","last_name":"Nics","domain_name":"independent","page_name":"HelenaNics","display_name":"Helena Nics","profile_url":"https://independent.academia.edu/HelenaNics?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-73413518">+1</span><div class="hidden js-additional-users-73413518"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://lbg.academia.edu/VincentGrote">Vincent Grote</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-73413518'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-73413518').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_73413518 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="73413518"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 73413518, container: ".js-paper-rank-work_73413518", }); });</script></li><li class="js-percentile-work_73413518 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 73413518; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_73413518"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_73413518 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="73413518"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 73413518; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=73413518]").text(description); $(".js-view-count-work_73413518").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_73413518").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="73413518"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">3</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="2256" rel="nofollow" href="https://www.academia.edu/Documents/in/Rehabilitation">Rehabilitation</a>, <script data-card-contents-for-ri="2256" type="text/json">{"id":2256,"name":"Rehabilitation","url":"https://www.academia.edu/Documents/in/Rehabilitation?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12426" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment_Outcome">Treatment Outcome</a>, <script data-card-contents-for-ri="12426" type="text/json">{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=73413518]'), work: {"id":73413518,"title":"Associations between Patient-Reported and Clinician-Reported Outcome Measures in Patients after Traumatic Injuries of the Lower Limb","created_at":"2022-03-09T09:27:24.613-08:00","url":"https://www.academia.edu/73413518/Associations_between_Patient_Reported_and_Clinician_Reported_Outcome_Measures_in_Patients_after_Traumatic_Injuries_of_the_Lower_Limb?f_ri=27171","dom_id":"work_73413518","summary":"Both clinician-reported outcome measures (CROMs) measures and patient-reported outcome measures (PROMs) are applied to evaluate outcomes in rehabilitation settings. The previous data show only a low to moderate correlation between these measures. Relationships between functional performance measures (Clinician-Reported Outcome Measures, CROMs) and Patient-Reported Outcome Measures (PROMs) were analysed in rehabilitation patients with traumatic injuries of the lower limb. A cohort of 315 patients with 3 subgroups (127 hip, 101 knee and 87 ankle region) was analysed before and after 3 weeks of inpatient rehabilitation. All three groups showed significant improvements in PROMs with low to moderate effect sizes. Moderate to high effect sizes were found for CROMs. Correlation coefficients between CROMs and PROMs were low to moderate. The performance consistency between PROMs and CROMs ranged from 56.7% to 64.1%. In this cohort of rehabilitation patients with traumatic injuries, CROMs showed higher effect sizes than PROMs. When used in combination, patient-reported outcome and performance measures contribute to collecting complementary information, enabling the practitioner to make a more accurate clinical evaluation of the patient’s condition.","downloadable_attachments":[{"id":81944516,"asset_id":73413518,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":218248205,"first_name":"Helena","last_name":"Nics","domain_name":"independent","page_name":"HelenaNics","display_name":"Helena Nics","profile_url":"https://independent.academia.edu/HelenaNics?f_ri=27171","photo":"/images/s65_no_pic.png"},{"id":175083174,"first_name":"Vincent","last_name":"Grote","domain_name":"lbg","page_name":"VincentGrote","display_name":"Vincent Grote","profile_url":"https://lbg.academia.edu/VincentGrote?f_ri=27171","photo":"https://0.academia-photos.com/175083174/55003693/43168564/s65_vincent.grote.jpg"}],"research_interests":[{"id":2256,"name":"Rehabilitation","url":"https://www.academia.edu/Documents/in/Rehabilitation?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_7943007" data-work_id="7943007" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/7943007/Community_Mental_Health_Centres_Initiated_by_the_South_Eastern_Europe_Stability_Pact_Evaluation_in_Seven_Countries">Community Mental Health Centres Initiated by the South-Eastern Europe Stability Pact: Evaluation in Seven Countries</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Eight community mental health care centres (initiated by the South-Eastern Europe Stability Pact) in Albania, Bosnia-Herzegovina, Croatia, Macedonia, Moldova, Montenegro and Romania were evaluated. Characteristics of patients, patient... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_7943007" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Eight community mental health care centres (initiated by the South-Eastern Europe Stability Pact) in Albania, Bosnia-Herzegovina, Croatia, Macedonia, Moldova, Montenegro and Romania were evaluated. Characteristics of patients, patient reported outcomes and patient views of care were assessed in 305 psychiatric patients. Patient characteristics varied across centres, with most patients having long term psychotic disorders. Treatment satisfaction and therapeutic relationships were rated favourably. Subjective quality of life mean scores were rather low, with higher satisfaction with health and dissatisfaction with the financial and employment situation. Being unemployed was the only factor associated with poor quality of life and lower treatment satisfaction. Most developing centres target patients with persistent psychotic disorders. Care appears highly valued by the patients. The findings encourage establishing more centres in the region and call for employment schemes for people with mental illnesses.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/7943007" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a6363980dbdc9e8ff4a052c4c98a4bcb" rel="nofollow" data-download="{"attachment_id":48281380,"asset_id":7943007,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/48281380/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="15113183" href="https://independent.academia.edu/MonikaKonatar">Monika Konatar</a><script data-card-contents-for-user="15113183" type="text/json">{"id":15113183,"first_name":"Monika","last_name":"Konatar","domain_name":"independent","page_name":"MonikaKonatar","display_name":"Monika Konatar","profile_url":"https://independent.academia.edu/MonikaKonatar?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_7943007 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="7943007"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 7943007, container: ".js-paper-rank-work_7943007", }); });</script></li><li class="js-percentile-work_7943007 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 7943007; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_7943007"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_7943007 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="7943007"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 7943007; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=7943007]").text(description); $(".js-view-count-work_7943007").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_7943007").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="7943007"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">23</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="221" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychology">Psychology</a>, <script data-card-contents-for-ri="221" type="text/json">{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="1199" rel="nofollow" href="https://www.academia.edu/Documents/in/Eastern_Europe">Eastern Europe</a>, <script data-card-contents-for-ri="1199" type="text/json">{"id":1199,"name":"Eastern Europe","url":"https://www.academia.edu/Documents/in/Eastern_Europe?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2240" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychotherapy">Psychotherapy</a>, <script data-card-contents-for-ri="2240" type="text/json">{"id":2240,"name":"Psychotherapy","url":"https://www.academia.edu/Documents/in/Psychotherapy?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2827" rel="nofollow" href="https://www.academia.edu/Documents/in/Mental_Health">Mental Health</a><script data-card-contents-for-ri="2827" type="text/json">{"id":2827,"name":"Mental Health","url":"https://www.academia.edu/Documents/in/Mental_Health?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=7943007]'), work: {"id":7943007,"title":"Community Mental Health Centres Initiated by the South-Eastern Europe Stability Pact: Evaluation in Seven Countries","created_at":"2014-08-11T19:10:34.133-07:00","url":"https://www.academia.edu/7943007/Community_Mental_Health_Centres_Initiated_by_the_South_Eastern_Europe_Stability_Pact_Evaluation_in_Seven_Countries?f_ri=27171","dom_id":"work_7943007","summary":"Eight community mental health care centres (initiated by the South-Eastern Europe Stability Pact) in Albania, Bosnia-Herzegovina, Croatia, Macedonia, Moldova, Montenegro and Romania were evaluated. Characteristics of patients, patient reported outcomes and patient views of care were assessed in 305 psychiatric patients. Patient characteristics varied across centres, with most patients having long term psychotic disorders. Treatment satisfaction and therapeutic relationships were rated favourably. Subjective quality of life mean scores were rather low, with higher satisfaction with health and dissatisfaction with the financial and employment situation. Being unemployed was the only factor associated with poor quality of life and lower treatment satisfaction. Most developing centres target patients with persistent psychotic disorders. Care appears highly valued by the patients. The findings encourage establishing more centres in the region and call for employment schemes for people with mental illnesses.","downloadable_attachments":[{"id":48281380,"asset_id":7943007,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":15113183,"first_name":"Monika","last_name":"Konatar","domain_name":"independent","page_name":"MonikaKonatar","display_name":"Monika Konatar","profile_url":"https://independent.academia.edu/MonikaKonatar?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true},{"id":1199,"name":"Eastern Europe","url":"https://www.academia.edu/Documents/in/Eastern_Europe?f_ri=27171","nofollow":true},{"id":2240,"name":"Psychotherapy","url":"https://www.academia.edu/Documents/in/Psychotherapy?f_ri=27171","nofollow":true},{"id":2827,"name":"Mental Health","url":"https://www.academia.edu/Documents/in/Mental_Health?f_ri=27171","nofollow":true},{"id":3138,"name":"Community-Based Mental Health Services","url":"https://www.academia.edu/Documents/in/Community-Based_Mental_Health_Services?f_ri=27171"},{"id":7176,"name":"Unemployment","url":"https://www.academia.edu/Documents/in/Unemployment?f_ri=27171"},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171"},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":35141,"name":"Mental Illness","url":"https://www.academia.edu/Documents/in/Mental_Illness?f_ri=27171"},{"id":77031,"name":"Macedonia","url":"https://www.academia.edu/Documents/in/Macedonia?f_ri=27171"},{"id":81983,"name":"South Eastern Europe","url":"https://www.academia.edu/Documents/in/South_Eastern_Europe?f_ri=27171"},{"id":123230,"name":"Regression Analysis","url":"https://www.academia.edu/Documents/in/Regression_Analysis?f_ri=27171"},{"id":133057,"name":"Young Adult","url":"https://www.academia.edu/Documents/in/Young_Adult?f_ri=27171"},{"id":144052,"name":"Patient Satisfaction","url":"https://www.academia.edu/Documents/in/Patient_Satisfaction?f_ri=27171"},{"id":171144,"name":"Mental Disorders","url":"https://www.academia.edu/Documents/in/Mental_Disorders?f_ri=27171"},{"id":174468,"name":"Psychotic Disorder","url":"https://www.academia.edu/Documents/in/Psychotic_Disorder?f_ri=27171"},{"id":188911,"name":"Mental Health Care","url":"https://www.academia.edu/Documents/in/Mental_Health_Care?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":252665,"name":"Community Mental Health","url":"https://www.academia.edu/Documents/in/Community_Mental_Health?f_ri=27171"},{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171"},{"id":1034181,"name":"Cross Sectional Studies","url":"https://www.academia.edu/Documents/in/Cross_Sectional_Studies?f_ri=27171"},{"id":2345130,"name":"Socioeconomic Factors","url":"https://www.academia.edu/Documents/in/Socioeconomic_Factors?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_74081037" data-work_id="74081037" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/74081037/Parkinson_s_Inside_Out">Parkinson’s Inside Out</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/74081037" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="00a5acae9be6ae7cee9406afac8435a2" rel="nofollow" data-download="{"attachment_id":82362254,"asset_id":74081037,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/82362254/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="151267817" href="https://independent.academia.edu/SchellerDieter">Dieter Scheller</a><script data-card-contents-for-user="151267817" type="text/json">{"id":151267817,"first_name":"Dieter","last_name":"Scheller","domain_name":"independent","page_name":"SchellerDieter","display_name":"Dieter Scheller","profile_url":"https://independent.academia.edu/SchellerDieter?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_74081037 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="74081037"><i class="u-m1x fa 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view-count u-mr2x" data-work-id="74081037"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 74081037; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=74081037]").text(description); $(".js-view-count-work_74081037").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_74081037").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="74081037"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">6</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="221" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychology">Psychology</a>, <script data-card-contents-for-ri="221" type="text/json">{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="26327" rel="nofollow" href="https://www.academia.edu/Documents/in/Medicine">Medicine</a>, <script data-card-contents-for-ri="26327" type="text/json">{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="289271" rel="nofollow" href="https://www.academia.edu/Documents/in/Aged">Aged</a><script data-card-contents-for-ri="289271" type="text/json">{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=74081037]'), work: {"id":74081037,"title":"Parkinson’s Inside Out","created_at":"2022-03-19T10:38:53.547-07:00","url":"https://www.academia.edu/74081037/Parkinson_s_Inside_Out?f_ri=27171","dom_id":"work_74081037","summary":null,"downloadable_attachments":[{"id":82362254,"asset_id":74081037,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":151267817,"first_name":"Dieter","last_name":"Scheller","domain_name":"independent","page_name":"SchellerDieter","display_name":"Dieter Scheller","profile_url":"https://independent.academia.edu/SchellerDieter?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171","nofollow":true},{"id":1134529,"name":"Parkinson´s Disease","url":"https://www.academia.edu/Documents/in/Parkinson_s_Disease?f_ri=27171"},{"id":1541077,"name":"Parkinson Disease","url":"https://www.academia.edu/Documents/in/Parkinson_Disease?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_7692649" data-work_id="7692649" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/7692649/Patient_reported_outcome_in_neuromuscular_diseases_The_QoL_NMD_Qualitative_and_quantitative_generation_of_items">Patient reported outcome in neuromuscular diseases: The QoL-NMD. Qualitative and quantitative generation of items</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">special attention was paid to contextual and environmental factors. The final grid (G-MAP) was administered to 15 subjects with traumatic brain injury (TBI group) and 15 subjects with schizophrenia (TS group). Assessments of cognition,... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_7692649" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">special attention was paid to contextual and environmental factors. The final grid (G-MAP) was administered to 15 subjects with traumatic brain injury (TBI group) and 15 subjects with schizophrenia (TS group). Assessments of cognition, neurobehaviour, psychological and psychosocial functioning were also performed.Results.-The G-MAP is a 26 items tool related to 6 ICF sections, providing ordinal rating of activity limitations, participation restriction and contextual factors (social support, attitudes, systems and politics) for each item. The internal consistency of activity limitations (alpha = 0.89) and of participation restriction (alpha = 0.89) is satisfying. We observed no difference on psychological variables between the two groups, except for a lower social support in TS group. Results of G-MAP underline that the two groups are confronted with the same activity limitations in personal care, leisure and community life (non significant U of Mann-Whitney). However TS group seems to be more limited than TC group in interpersonal relationships, economic and social productivity and domestic life. TS group is also more concerned by participation restriction than TC group, except for community life.Conclusion.-The G-MAP is a useful, feasible and relevant tool for assessment of psychic or cognitive disability. It allows assessing in a detailed and individualized way participation restriction of a patient in his environment.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/7692649" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="d4ab8e9c7170d140e6fb27a392a0bdd4" rel="nofollow" data-download="{"attachment_id":48369605,"asset_id":7692649,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/48369605/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="14014222" href="https://univ-reims.academia.edu/MoustaphaDram%C3%A9">Moustapha Dramé</a><script data-card-contents-for-user="14014222" type="text/json">{"id":14014222,"first_name":"Moustapha","last_name":"Dramé","domain_name":"univ-reims","page_name":"MoustaphaDramé","display_name":"Moustapha Dramé","profile_url":"https://univ-reims.academia.edu/MoustaphaDram%C3%A9?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_7692649 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="7692649"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 7692649, container: ".js-paper-rank-work_7692649", }); });</script></li><li class="js-percentile-work_7692649 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 7692649; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_7692649"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_7692649 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="7692649"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 7692649; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=7692649]").text(description); $(".js-view-count-work_7692649").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_7692649").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="7692649"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">5</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="113272" rel="nofollow" href="https://www.academia.edu/Documents/in/Focus_Group">Focus Group</a>, <script data-card-contents-for-ri="113272" type="text/json">{"id":113272,"name":"Focus Group","url":"https://www.academia.edu/Documents/in/Focus_Group?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="244814" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Sciences">Clinical Sciences</a><script data-card-contents-for-ri="244814" type="text/json">{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=7692649]'), work: {"id":7692649,"title":"Patient reported outcome in neuromuscular diseases: The QoL-NMD. Qualitative and quantitative generation of items","created_at":"2014-07-16T23:40:54.065-07:00","url":"https://www.academia.edu/7692649/Patient_reported_outcome_in_neuromuscular_diseases_The_QoL_NMD_Qualitative_and_quantitative_generation_of_items?f_ri=27171","dom_id":"work_7692649","summary":"special attention was paid to contextual and environmental factors. The final grid (G-MAP) was administered to 15 subjects with traumatic brain injury (TBI group) and 15 subjects with schizophrenia (TS group). Assessments of cognition, neurobehaviour, psychological and psychosocial functioning were also performed.Results.-The G-MAP is a 26 items tool related to 6 ICF sections, providing ordinal rating of activity limitations, participation restriction and contextual factors (social support, attitudes, systems and politics) for each item. The internal consistency of activity limitations (alpha = 0.89) and of participation restriction (alpha = 0.89) is satisfying. We observed no difference on psychological variables between the two groups, except for a lower social support in TS group. Results of G-MAP underline that the two groups are confronted with the same activity limitations in personal care, leisure and community life (non significant U of Mann-Whitney). However TS group seems to be more limited than TC group in interpersonal relationships, economic and social productivity and domestic life. TS group is also more concerned by participation restriction than TC group, except for community life.Conclusion.-The G-MAP is a useful, feasible and relevant tool for assessment of psychic or cognitive disability. It allows assessing in a detailed and individualized way participation restriction of a patient in his environment.","downloadable_attachments":[{"id":48369605,"asset_id":7692649,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":14014222,"first_name":"Moustapha","last_name":"Dramé","domain_name":"univ-reims","page_name":"MoustaphaDramé","display_name":"Moustapha Dramé","profile_url":"https://univ-reims.academia.edu/MoustaphaDram%C3%A9?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":113272,"name":"Focus Group","url":"https://www.academia.edu/Documents/in/Focus_Group?f_ri=27171","nofollow":true},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171","nofollow":true},{"id":333719,"name":"Neuromuscular Disease","url":"https://www.academia.edu/Documents/in/Neuromuscular_Disease?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_25555600" data-work_id="25555600" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/25555600/Psychometric_Evaluation_of_Patient_Reported_Outcomes_in_Irritable_Bowel_Syndrome_Randomized_Controlled_Trials_A_Rome_Foundation_Report">Psychometric Evaluation of Patient-Reported Outcomes in Irritable Bowel Syndrome Randomized Controlled Trials: A Rome Foundation Report</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background-There is debate about how best to measure patient reported outcomes (PROs) in irritable bowel syndrome (IBS). We pooled data from clinical trials to measure the psychometric properties of IBS endpoints, including binary... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_25555600" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background-There is debate about how best to measure patient reported outcomes (PROs) in irritable bowel syndrome (IBS). We pooled data from clinical trials to measure the psychometric properties of IBS endpoints, including binary responses (e.g. "adequate relief") and 50% improvement in symptom severity.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/25555600" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="619eb57d7428e3311e2390d7d856864b" rel="nofollow" data-download="{"attachment_id":45888102,"asset_id":25555600,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45888102/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="49137620" href="https://independent.academia.edu/AllenMangel">Allen Mangel</a><script data-card-contents-for-user="49137620" type="text/json">{"id":49137620,"first_name":"Allen","last_name":"Mangel","domain_name":"independent","page_name":"AllenMangel","display_name":"Allen Mangel","profile_url":"https://independent.academia.edu/AllenMangel?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_25555600 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="25555600"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 25555600, container: ".js-paper-rank-work_25555600", }); });</script></li><li class="js-percentile-work_25555600 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 25555600; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_25555600"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_25555600 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="25555600"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 25555600; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=25555600]").text(description); $(".js-view-count-work_25555600").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_25555600").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="25555600"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">17</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="3274" rel="nofollow" href="https://www.academia.edu/Documents/in/Gastroenterology">Gastroenterology</a>, <script data-card-contents-for-ri="3274" type="text/json">{"id":3274,"name":"Gastroenterology","url":"https://www.academia.edu/Documents/in/Gastroenterology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12426" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment_Outcome">Treatment Outcome</a><script data-card-contents-for-ri="12426" type="text/json">{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=25555600]'), work: {"id":25555600,"title":"Psychometric Evaluation of Patient-Reported Outcomes in Irritable Bowel Syndrome Randomized Controlled Trials: A Rome Foundation Report","created_at":"2016-05-23T12:16:05.543-07:00","url":"https://www.academia.edu/25555600/Psychometric_Evaluation_of_Patient_Reported_Outcomes_in_Irritable_Bowel_Syndrome_Randomized_Controlled_Trials_A_Rome_Foundation_Report?f_ri=27171","dom_id":"work_25555600","summary":"Background-There is debate about how best to measure patient reported outcomes (PROs) in irritable bowel syndrome (IBS). We pooled data from clinical trials to measure the psychometric properties of IBS endpoints, including binary responses (e.g. \"adequate relief\") and 50% improvement in symptom severity.","downloadable_attachments":[{"id":45888102,"asset_id":25555600,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":49137620,"first_name":"Allen","last_name":"Mangel","domain_name":"independent","page_name":"AllenMangel","display_name":"Allen Mangel","profile_url":"https://independent.academia.edu/AllenMangel?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":3274,"name":"Gastroenterology","url":"https://www.academia.edu/Documents/in/Gastroenterology?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":144052,"name":"Patient Satisfaction","url":"https://www.academia.edu/Documents/in/Patient_Satisfaction?f_ri=27171"},{"id":214598,"name":"Irritable Bowel Syndrome","url":"https://www.academia.edu/Documents/in/Irritable_Bowel_Syndrome?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":413196,"name":"Randomized Controlled Trial","url":"https://www.academia.edu/Documents/in/Randomized_Controlled_Trial?f_ri=27171"},{"id":437772,"name":"Odds ratio","url":"https://www.academia.edu/Documents/in/Odds_ratio?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":1180715,"name":"Abdominal Pain","url":"https://www.academia.edu/Documents/in/Abdominal_Pain?f_ri=27171"},{"id":1239755,"name":"Neurosciences","url":"https://www.academia.edu/Documents/in/Neurosciences?f_ri=27171"},{"id":1262481,"name":"Pain Measurement","url":"https://www.academia.edu/Documents/in/Pain_Measurement?f_ri=27171"},{"id":1294607,"name":"Logistic Models","url":"https://www.academia.edu/Documents/in/Logistic_Models?f_ri=27171"},{"id":1318932,"name":"Predictive value of tests","url":"https://www.academia.edu/Documents/in/Predictive_value_of_tests?f_ri=27171"},{"id":2463800,"name":"Severity of Illness Index","url":"https://www.academia.edu/Documents/in/Severity_of_Illness_Index?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_59261058" data-work_id="59261058" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/59261058/Long_Term_Conditions_Questionnaire_LTCQ_initial_validation_survey_among_primary_care_patients_and_social_care_recipients_in_England">Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The aim of this study was to validate a new generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among a diverse sample of health and social care users in England. Cross-sectional validation survey.... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_59261058" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The aim of this study was to validate a new generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among a diverse sample of health and social care users in England. Cross-sectional validation survey. Data were collected through postal surveys (February 2016-January 2017). The sample included a healthcare cohort of patients recruited through primary care practices, and a social care cohort recruited through local government bodies that provide social care services. 1211 participants (24% confirmed social care recipients) took part in the study. Healthcare participants were recruited on the basis of having one of 11 specified long-term conditions (LTCs), and social care participants were recruited on the basis of receiving social care support for at least one LTC. The sample exhibited high multimorbidity, with 93% reporting two or more LTCs and 43% reporting a mental health condition. The LTCQ&#39;s construct validity was tested with reference to the...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/59261058" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="29d08e08c762b05f4727827d5580140c" rel="nofollow" data-download="{"attachment_id":73274238,"asset_id":59261058,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/73274238/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="187944230" href="https://independent.academia.edu/ChristineACourt">Christine A'Court</a><script data-card-contents-for-user="187944230" type="text/json">{"id":187944230,"first_name":"Christine","last_name":"A'Court","domain_name":"independent","page_name":"ChristineACourt","display_name":"Christine A'Court","profile_url":"https://independent.academia.edu/ChristineACourt?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_59261058 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="59261058"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 59261058, container: ".js-paper-rank-work_59261058", }); 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$(".js-view-count[data-work-id=59261058]").text(description); $(".js-view-count-work_59261058").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_59261058").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="59261058"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">15</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="940" rel="nofollow" href="https://www.academia.edu/Documents/in/Social_Work">Social Work</a>, <script data-card-contents-for-ri="940" type="text/json">{"id":940,"name":"Social Work","url":"https://www.academia.edu/Documents/in/Social_Work?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2974" rel="nofollow" href="https://www.academia.edu/Documents/in/Primary_Health_Care">Primary Health Care</a>, <script data-card-contents-for-ri="2974" type="text/json">{"id":2974,"name":"Primary Health Care","url":"https://www.academia.edu/Documents/in/Primary_Health_Care?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a><script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=59261058]'), work: {"id":59261058,"title":"Long-Term Conditions Questionnaire (LTCQ): initial validation survey among primary care patients and social care recipients in England","created_at":"2021-10-21T02:27:08.656-07:00","url":"https://www.academia.edu/59261058/Long_Term_Conditions_Questionnaire_LTCQ_initial_validation_survey_among_primary_care_patients_and_social_care_recipients_in_England?f_ri=27171","dom_id":"work_59261058","summary":"The aim of this study was to validate a new generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among a diverse sample of health and social care users in England. Cross-sectional validation survey. Data were collected through postal surveys (February 2016-January 2017). The sample included a healthcare cohort of patients recruited through primary care practices, and a social care cohort recruited through local government bodies that provide social care services. 1211 participants (24% confirmed social care recipients) took part in the study. Healthcare participants were recruited on the basis of having one of 11 specified long-term conditions (LTCs), and social care participants were recruited on the basis of receiving social care support for at least one LTC. The sample exhibited high multimorbidity, with 93% reporting two or more LTCs and 43% reporting a mental health condition. The LTCQ\u0026#39;s construct validity was tested with reference to the...","downloadable_attachments":[{"id":73274238,"asset_id":59261058,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":187944230,"first_name":"Christine","last_name":"A'Court","domain_name":"independent","page_name":"ChristineACourt","display_name":"Christine A'Court","profile_url":"https://independent.academia.edu/ChristineACourt?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":940,"name":"Social Work","url":"https://www.academia.edu/Documents/in/Social_Work?f_ri=27171","nofollow":true},{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":2974,"name":"Primary Health Care","url":"https://www.academia.edu/Documents/in/Primary_Health_Care?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":11015,"name":"Social Support","url":"https://www.academia.edu/Documents/in/Social_Support?f_ri=27171"},{"id":16841,"name":"Self Management","url":"https://www.academia.edu/Documents/in/Self_Management?f_ri=27171"},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":30494,"name":"England","url":"https://www.academia.edu/Documents/in/England?f_ri=27171"},{"id":97269,"name":"Chronic Disease","url":"https://www.academia.edu/Documents/in/Chronic_Disease?f_ri=27171"},{"id":133057,"name":"Young Adult","url":"https://www.academia.edu/Documents/in/Young_Adult?f_ri=27171"},{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":1034181,"name":"Cross Sectional Studies","url":"https://www.academia.edu/Documents/in/Cross_Sectional_Studies?f_ri=27171"},{"id":2486603,"name":"Surveys and Questionnaires","url":"https://www.academia.edu/Documents/in/Surveys_and_Questionnaires?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_7251449" data-work_id="7251449" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/7251449/Does_sex_therapy_work_How_can_we_know_Measuring_outcomes_in_sex_therapy">'Does sex therapy work? How can we know?': Measuring outcomes in sex therapy</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">We are still left with the issue of characterising what counts as successful outcome in sex therapy. The aim of this paper is to report the progress of the outcome measurement project initiated by the College of Sexual and Relationship... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_7251449" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">We are still left with the issue of characterising what counts as successful outcome in sex therapy. The aim of this paper is to report the progress of the outcome measurement project initiated by the College of Sexual and Relationship Therapists. In this report, I have reviewed the existing literature to answer the following question: “Does there currently exist a validated evaluation tool (or a package of tools) by which the effectiveness and success of sex therapy in dealing with sexual problems can be measured and demonstrated?”. I start with discussing some of the key dilemmas in relation to measuring outcomes in sex therapy and arrive at a conceptual framework to address this. I finish with suggesting a few measurement tools that can be utilised in this regard.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/7251449" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="b6eae40d574b4c12dedec38673e3966b" rel="nofollow" data-download="{"attachment_id":33867103,"asset_id":7251449,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/33867103/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="696536" href="https://independent.academia.edu/TabatabaieAlireza">Alireza Tabatabaie</a><script data-card-contents-for-user="696536" type="text/json">{"id":696536,"first_name":"Alireza","last_name":"Tabatabaie","domain_name":"independent","page_name":"TabatabaieAlireza","display_name":"Alireza Tabatabaie","profile_url":"https://independent.academia.edu/TabatabaieAlireza?f_ri=27171","photo":"https://0.academia-photos.com/696536/315057/9692882/s65_alireza.tabatabaie.jpg"}</script></span></span></li><li class="js-paper-rank-work_7251449 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="7251449"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 7251449, container: ".js-paper-rank-work_7251449", }); });</script></li><li class="js-percentile-work_7251449 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 7251449; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_7251449"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_7251449 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="7251449"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 7251449; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=7251449]").text(description); $(".js-view-count-work_7251449").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_7251449").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="7251449"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">10</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="221" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychology">Psychology</a>, <script data-card-contents-for-ri="221" type="text/json">{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="3279" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychotherapy_and_Counseling">Psychotherapy and Counseling</a>, <script data-card-contents-for-ri="3279" type="text/json">{"id":3279,"name":"Psychotherapy and Counseling","url":"https://www.academia.edu/Documents/in/Psychotherapy_and_Counseling?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="3563" rel="nofollow" href="https://www.academia.edu/Documents/in/Sexology">Sexology</a>, <script data-card-contents-for-ri="3563" type="text/json">{"id":3563,"name":"Sexology","url":"https://www.academia.edu/Documents/in/Sexology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="5409" rel="nofollow" href="https://www.academia.edu/Documents/in/Health_Outcomes">Health Outcomes</a><script data-card-contents-for-ri="5409" type="text/json">{"id":5409,"name":"Health Outcomes","url":"https://www.academia.edu/Documents/in/Health_Outcomes?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=7251449]'), work: {"id":7251449,"title":"'Does sex therapy work? How can we know?': Measuring outcomes in sex therapy","created_at":"2014-06-03T22:55:17.540-07:00","url":"https://www.academia.edu/7251449/Does_sex_therapy_work_How_can_we_know_Measuring_outcomes_in_sex_therapy?f_ri=27171","dom_id":"work_7251449","summary":"We are still left with the issue of characterising what counts as successful outcome in sex therapy. The aim of this paper is to report the progress of the outcome measurement project initiated by the College of Sexual and Relationship Therapists. In this report, I have reviewed the existing literature to answer the following question: “Does there currently exist a validated evaluation tool (or a package of tools) by which the effectiveness and success of sex therapy in dealing with sexual problems can be measured and demonstrated?”. I start with discussing some of the key dilemmas in relation to measuring outcomes in sex therapy and arrive at a conceptual framework to address this. I finish with suggesting a few measurement tools that can be utilised in this regard.","downloadable_attachments":[{"id":33867103,"asset_id":7251449,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":696536,"first_name":"Alireza","last_name":"Tabatabaie","domain_name":"independent","page_name":"TabatabaieAlireza","display_name":"Alireza Tabatabaie","profile_url":"https://independent.academia.edu/TabatabaieAlireza?f_ri=27171","photo":"https://0.academia-photos.com/696536/315057/9692882/s65_alireza.tabatabaie.jpg"}],"research_interests":[{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true},{"id":3279,"name":"Psychotherapy and Counseling","url":"https://www.academia.edu/Documents/in/Psychotherapy_and_Counseling?f_ri=27171","nofollow":true},{"id":3563,"name":"Sexology","url":"https://www.academia.edu/Documents/in/Sexology?f_ri=27171","nofollow":true},{"id":5409,"name":"Health Outcomes","url":"https://www.academia.edu/Documents/in/Health_Outcomes?f_ri=27171","nofollow":true},{"id":10868,"name":"Confidence","url":"https://www.academia.edu/Documents/in/Confidence?f_ri=27171"},{"id":25530,"name":"Intimacy","url":"https://www.academia.edu/Documents/in/Intimacy?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":45997,"name":"Sex Therapy","url":"https://www.academia.edu/Documents/in/Sex_Therapy?f_ri=27171"},{"id":56251,"name":"Sexual Satisfaction","url":"https://www.academia.edu/Documents/in/Sexual_Satisfaction?f_ri=27171"},{"id":84236,"name":"Sexual Medicine","url":"https://www.academia.edu/Documents/in/Sexual_Medicine?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_71481399" data-work_id="71481399" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/71481399/An_International_Collaborative_Standardizing_a_Comprehensive_Patient_Centered_Outcomes_Measurement_Set_for_Colorectal_Cancer">An International Collaborative Standardizing a Comprehensive Patient-Centered Outcomes Measurement Set for Colorectal Cancer</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_71481399" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to patients. The International Consortium for Health Outcomes Measurement (ICHOM), a nonprofit initiative, was formed to define standard sets of outcomes by medical condition. In this article, we report the efforts of ICHOM&#39;s working group in colorectal cancer. The working group was composed of multidisciplinary oncology specialists in medicine, surgery, radiation therapy, palliative care, nursing, and pathology, along with patient representatives. Through a modified Delphi process during 8 months (July 8, 2015 to February 29, 2016), ICHOM led the working group to a consensus on a final recommended standard set. The process was supported by a systematic PubMed literature review (1042 randomized clinical trials and guidelines from June 3, 2005, to J...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/71481399" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="38fb668d355d5aa30c4c855a2eb8d94f" rel="nofollow" data-download="{"attachment_id":80804955,"asset_id":71481399,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/80804955/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="111617738" href="https://independent.academia.edu/AndrewLynch22">Andrew Lynch</a><script data-card-contents-for-user="111617738" type="text/json">{"id":111617738,"first_name":"Andrew","last_name":"Lynch","domain_name":"independent","page_name":"AndrewLynch22","display_name":"Andrew Lynch","profile_url":"https://independent.academia.edu/AndrewLynch22?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_71481399 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="71481399"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 71481399, container: ".js-paper-rank-work_71481399", }); });</script></li><li class="js-percentile-work_71481399 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 71481399; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_71481399"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_71481399 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="71481399"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 71481399; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=71481399]").text(description); $(".js-view-count-work_71481399").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_71481399").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="71481399"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">8</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="4193" rel="nofollow" href="https://www.academia.edu/Documents/in/Focus_Groups">Focus Groups</a>, <script data-card-contents-for-ri="4193" type="text/json">{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12054" rel="nofollow" href="https://www.academia.edu/Documents/in/International_Cooperation">International Cooperation</a>, <script data-card-contents-for-ri="12054" type="text/json">{"id":12054,"name":"International Cooperation","url":"https://www.academia.edu/Documents/in/International_Cooperation?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="26327" rel="nofollow" href="https://www.academia.edu/Documents/in/Medicine">Medicine</a><script data-card-contents-for-ri="26327" type="text/json">{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=71481399]'), work: {"id":71481399,"title":"An International Collaborative Standardizing a Comprehensive Patient-Centered Outcomes Measurement Set for Colorectal Cancer","created_at":"2022-02-14T04:11:32.237-08:00","url":"https://www.academia.edu/71481399/An_International_Collaborative_Standardizing_a_Comprehensive_Patient_Centered_Outcomes_Measurement_Set_for_Colorectal_Cancer?f_ri=27171","dom_id":"work_71481399","summary":"Global health systems are shifting toward value-based care in an effort to drive better outcomes in the setting of rising health care costs. This shift requires a common definition of value, starting with the outcomes that matter most to patients. The International Consortium for Health Outcomes Measurement (ICHOM), a nonprofit initiative, was formed to define standard sets of outcomes by medical condition. In this article, we report the efforts of ICHOM\u0026#39;s working group in colorectal cancer. The working group was composed of multidisciplinary oncology specialists in medicine, surgery, radiation therapy, palliative care, nursing, and pathology, along with patient representatives. Through a modified Delphi process during 8 months (July 8, 2015 to February 29, 2016), ICHOM led the working group to a consensus on a final recommended standard set. The process was supported by a systematic PubMed literature review (1042 randomized clinical trials and guidelines from June 3, 2005, to J...","downloadable_attachments":[{"id":80804955,"asset_id":71481399,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":111617738,"first_name":"Andrew","last_name":"Lynch","domain_name":"independent","page_name":"AndrewLynch22","display_name":"Andrew Lynch","profile_url":"https://independent.academia.edu/AndrewLynch22?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":12054,"name":"International Cooperation","url":"https://www.academia.edu/Documents/in/International_Cooperation?f_ri=27171","nofollow":true},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":1214081,"name":"Delphi Technique","url":"https://www.academia.edu/Documents/in/Delphi_Technique?f_ri=27171"},{"id":2440562,"name":"Colorectal Neoplasms","url":"https://www.academia.edu/Documents/in/Colorectal_Neoplasms?f_ri=27171"},{"id":3194761,"name":"Quality of health care","url":"https://www.academia.edu/Documents/in/Quality_of_health_care?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_18472750 coauthored" data-work_id="18472750" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/18472750/Differences_in_Child_versus_Parent_Reports_of_the_Childs_Health_Related_Quality_of_Life_in_Children_with_Epilepsy_and_Healthy_Siblings">Differences in Child versus Parent Reports of the Child's Health-Related Quality of Life in Children with Epilepsy and Healthy Siblings</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objectives-Self-versus proxy-perspectives may produce different results that are important for clinical decision-making and for assessing outcomes in research studies. We examined differences in child versus parent-report of the child's... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_18472750" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objectives-Self-versus proxy-perspectives may produce different results that are important for clinical decision-making and for assessing outcomes in research studies. We examined differences in child versus parent-report of the child's health-related quality of life (HRQOL) in a large prospective, community-based study of newly diagnosed childhood epilepsy that included children with epilepsy (case) and sibling controls.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/18472750" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="d9df9186e22bfb259d983a90aebae94b" rel="nofollow" data-download="{"attachment_id":40081700,"asset_id":18472750,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/40081700/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="38656081" href="https://independent.academia.edu/StefanieVassar">Stefanie Vassar</a><script data-card-contents-for-user="38656081" type="text/json">{"id":38656081,"first_name":"Stefanie","last_name":"Vassar","domain_name":"independent","page_name":"StefanieVassar","display_name":"Stefanie Vassar","profile_url":"https://independent.academia.edu/StefanieVassar?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-18472750">+1</span><div class="hidden js-additional-users-18472750"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/BacaChristine">Christine Baca</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-18472750'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-18472750').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_18472750 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="18472750"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 18472750, container: ".js-paper-rank-work_18472750", }); });</script></li><li class="js-percentile-work_18472750 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 18472750; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_18472750"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_18472750 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="18472750"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 18472750; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=18472750]").text(description); $(".js-view-count-work_18472750").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_18472750").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="18472750"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">20</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2885" rel="nofollow" href="https://www.academia.edu/Documents/in/Child_health">Child health</a>, <script data-card-contents-for-ri="2885" type="text/json">{"id":2885,"name":"Child health","url":"https://www.academia.edu/Documents/in/Child_health?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7648" rel="nofollow" href="https://www.academia.edu/Documents/in/Epilepsy">Epilepsy</a>, <script data-card-contents-for-ri="7648" type="text/json">{"id":7648,"name":"Epilepsy","url":"https://www.academia.edu/Documents/in/Epilepsy?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="9741" rel="nofollow" href="https://www.academia.edu/Documents/in/Concepts_of_Value_in_Health_Care">Concepts of Value in Health Care</a><script data-card-contents-for-ri="9741" type="text/json">{"id":9741,"name":"Concepts of Value in Health Care","url":"https://www.academia.edu/Documents/in/Concepts_of_Value_in_Health_Care?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=18472750]'), work: {"id":18472750,"title":"Differences in Child versus Parent Reports of the Child's Health-Related Quality of Life in Children with Epilepsy and Healthy Siblings","created_at":"2015-11-16T15:17:14.949-08:00","url":"https://www.academia.edu/18472750/Differences_in_Child_versus_Parent_Reports_of_the_Childs_Health_Related_Quality_of_Life_in_Children_with_Epilepsy_and_Healthy_Siblings?f_ri=27171","dom_id":"work_18472750","summary":"Objectives-Self-versus proxy-perspectives may produce different results that are important for clinical decision-making and for assessing outcomes in research studies. We examined differences in child versus parent-report of the child's health-related quality of life (HRQOL) in a large prospective, community-based study of newly diagnosed childhood epilepsy that included children with epilepsy (case) and sibling controls.","downloadable_attachments":[{"id":40081700,"asset_id":18472750,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":38656081,"first_name":"Stefanie","last_name":"Vassar","domain_name":"independent","page_name":"StefanieVassar","display_name":"Stefanie Vassar","profile_url":"https://independent.academia.edu/StefanieVassar?f_ri=27171","photo":"/images/s65_no_pic.png"},{"id":38484632,"first_name":"Christine","last_name":"Baca","domain_name":"independent","page_name":"BacaChristine","display_name":"Christine Baca","profile_url":"https://independent.academia.edu/BacaChristine?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2885,"name":"Child health","url":"https://www.academia.edu/Documents/in/Child_health?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":7648,"name":"Epilepsy","url":"https://www.academia.edu/Documents/in/Epilepsy?f_ri=27171","nofollow":true},{"id":9741,"name":"Concepts of Value in Health Care","url":"https://www.academia.edu/Documents/in/Concepts_of_Value_in_Health_Care?f_ri=27171","nofollow":true},{"id":15430,"name":"Adolescent Health","url":"https://www.academia.edu/Documents/in/Adolescent_Health?f_ri=27171"},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":27659,"name":"Applied Economics","url":"https://www.academia.edu/Documents/in/Applied_Economics?f_ri=27171"},{"id":51740,"name":"Clinical Decision Making","url":"https://www.academia.edu/Documents/in/Clinical_Decision_Making?f_ri=27171"},{"id":62112,"name":"Prospective studies","url":"https://www.academia.edu/Documents/in/Prospective_studies?f_ri=27171"},{"id":64933,"name":"Child","url":"https://www.academia.edu/Documents/in/Child?f_ri=27171"},{"id":82844,"name":"Health related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171"},{"id":148161,"name":"Value","url":"https://www.academia.edu/Documents/in/Value?f_ri=27171"},{"id":148806,"name":"Siblings","url":"https://www.academia.edu/Documents/in/Siblings?f_ri=27171"},{"id":303598,"name":"Parents","url":"https://www.academia.edu/Documents/in/Parents?f_ri=27171"},{"id":323006,"name":"Outcomes Research","url":"https://www.academia.edu/Documents/in/Outcomes_Research?f_ri=27171"},{"id":344588,"name":"Self Assessment","url":"https://www.academia.edu/Documents/in/Self_Assessment?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":490637,"name":"Proxy","url":"https://www.academia.edu/Documents/in/Proxy?f_ri=27171"},{"id":1819399,"name":"Case Control Studies","url":"https://www.academia.edu/Documents/in/Case_Control_Studies?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_16109523" data-work_id="16109523" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/16109523/The_Suitability_of_Polycystic_Ovary_Syndrome_Specific_Questionnaires_for_Measuring_the_Impact_of_PCOS_on_Quality_of_Life_in_Clinical_Trials">The Suitability of Polycystic Ovary Syndrome-Specific Questionnaires for Measuring the Impact of PCOS on Quality of Life in Clinical Trials</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objectives: Generic patient-reported outcome (PRO) measures underestimate the impact of polycystic ovary syndrome (PCOS) on quality of life (QoL). The aim of this review was to identify PCOS-specific QoL measures and establish whether... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_16109523" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objectives: Generic patient-reported outcome (PRO) measures underestimate the impact of polycystic ovary syndrome (PCOS) on quality of life (QoL). The aim of this review was to identify PCOS-specific QoL measures and establish whether their development history and measurement properties support their use in clinical trials. Methods: A systematic search was conducted using terms synonymous with "PCOS" and "QoL." Following identification of measures, further searches were undertaken using the questionnaire name and abbreviation to explore its use, development history, and demonstrated measurement properties. Results: Of 56 abstracts screened, 21 reported using PRO measures. One PCOS-specific QoL measure was identified: the PolyCystic Ovary Syndrome Questionnaire (PCOSQ). Nine papers show that the PCOSQ's development history is somewhat incomplete, and that it does not have good content validity. The PCOSQ subscales demonstrate acceptable levels of reliability (0.70-0.97) and partial known-groups validity as well as convergent/divergent validity with other PRO instruments. Responsiveness to change is variable and minimally important differences have not been established.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/16109523" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="8c3fe405927bbcc4ef2931c7794e2309" rel="nofollow" data-download="{"attachment_id":42746332,"asset_id":16109523,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/42746332/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="35229907" href="https://deakin.academia.edu/JaneSpeight">Jane Speight</a><script data-card-contents-for-user="35229907" type="text/json">{"id":35229907,"first_name":"Jane","last_name":"Speight","domain_name":"deakin","page_name":"JaneSpeight","display_name":"Jane Speight","profile_url":"https://deakin.academia.edu/JaneSpeight?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_16109523 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="16109523"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 16109523, container: ".js-paper-rank-work_16109523", }); });</script></li><li class="js-percentile-work_16109523 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 16109523; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_16109523"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_16109523 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="16109523"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 16109523; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=16109523]").text(description); $(".js-view-count-work_16109523").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_16109523").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="16109523"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">9</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="4531" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Trial">Clinical Trial</a>, <script data-card-contents-for-ri="4531" type="text/json">{"id":4531,"name":"Clinical Trial","url":"https://www.academia.edu/Documents/in/Clinical_Trial?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12426" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment_Outcome">Treatment Outcome</a>, <script data-card-contents-for-ri="12426" type="text/json">{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=16109523]'), work: {"id":16109523,"title":"The Suitability of Polycystic Ovary Syndrome-Specific Questionnaires for Measuring the Impact of PCOS on Quality of Life in Clinical Trials","created_at":"2015-09-23T22:22:16.630-07:00","url":"https://www.academia.edu/16109523/The_Suitability_of_Polycystic_Ovary_Syndrome_Specific_Questionnaires_for_Measuring_the_Impact_of_PCOS_on_Quality_of_Life_in_Clinical_Trials?f_ri=27171","dom_id":"work_16109523","summary":"Objectives: Generic patient-reported outcome (PRO) measures underestimate the impact of polycystic ovary syndrome (PCOS) on quality of life (QoL). The aim of this review was to identify PCOS-specific QoL measures and establish whether their development history and measurement properties support their use in clinical trials. Methods: A systematic search was conducted using terms synonymous with \"PCOS\" and \"QoL.\" Following identification of measures, further searches were undertaken using the questionnaire name and abbreviation to explore its use, development history, and demonstrated measurement properties. Results: Of 56 abstracts screened, 21 reported using PRO measures. One PCOS-specific QoL measure was identified: the PolyCystic Ovary Syndrome Questionnaire (PCOSQ). Nine papers show that the PCOSQ's development history is somewhat incomplete, and that it does not have good content validity. The PCOSQ subscales demonstrate acceptable levels of reliability (0.70-0.97) and partial known-groups validity as well as convergent/divergent validity with other PRO instruments. Responsiveness to change is variable and minimally important differences have not been established.","downloadable_attachments":[{"id":42746332,"asset_id":16109523,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":35229907,"first_name":"Jane","last_name":"Speight","domain_name":"deakin","page_name":"JaneSpeight","display_name":"Jane Speight","profile_url":"https://deakin.academia.edu/JaneSpeight?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":4531,"name":"Clinical Trial","url":"https://www.academia.edu/Documents/in/Clinical_Trial?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":27659,"name":"Applied Economics","url":"https://www.academia.edu/Documents/in/Applied_Economics?f_ri=27171"},{"id":284336,"name":"Polycystic Ovary Syndrome","url":"https://www.academia.edu/Documents/in/Polycystic_Ovary_Syndrome?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_25496266" data-work_id="25496266" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/25496266/Shaping_built_environment_of_mental_health_hospitals">Shaping built environment of mental health hospitals.</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Shaping built environment of psychiatric hospitals is a process that requires predominantly adaptation of introduced solutions to particular patterns of patient behaviour. In contrast to other health care facilities, a psychiatric... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_25496266" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Shaping built environment of psychiatric hospitals is a process that requires predominantly adaptation of introduced solutions to particular patterns of patient behaviour. In contrast to other health care facilities, a psychiatric hospital admits patients with severe disorders of various origins. In a majority of cases, admitted patients in severe condition pose threat to themselves and/or for those around them.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/25496266" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="d6cc5a00785ba2fbf7217ea15157cddd" rel="nofollow" data-download="{"attachment_id":45813289,"asset_id":25496266,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45813289/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="9556000" href="https://independent.academia.edu/JakubBil">Jakub Bil</a><script data-card-contents-for-user="9556000" type="text/json">{"id":9556000,"first_name":"Jakub","last_name":"Bil","domain_name":"independent","page_name":"JakubBil","display_name":"Jakub Bil","profile_url":"https://independent.academia.edu/JakubBil?f_ri=27171","photo":"https://0.academia-photos.com/9556000/5891494/6690198/s65_jacob.bil.jpg"}</script></span></span></li><li class="js-paper-rank-work_25496266 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="25496266"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 25496266, container: ".js-paper-rank-work_25496266", }); });</script></li><li class="js-percentile-work_25496266 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 25496266; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_25496266"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_25496266 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="25496266"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 25496266; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=25496266]").text(description); $(".js-view-count-work_25496266").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_25496266").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="25496266"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">56</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="161" rel="nofollow" href="https://www.academia.edu/Documents/in/Neuroscience">Neuroscience</a>, <script data-card-contents-for-ri="161" type="text/json">{"id":161,"name":"Neuroscience","url":"https://www.academia.edu/Documents/in/Neuroscience?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="221" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychology">Psychology</a>, <script data-card-contents-for-ri="221" type="text/json">{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="226" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Psychology">Clinical Psychology</a>, <script data-card-contents-for-ri="226" type="text/json">{"id":226,"name":"Clinical Psychology","url":"https://www.academia.edu/Documents/in/Clinical_Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="230" rel="nofollow" href="https://www.academia.edu/Documents/in/Cognitive_Behavioral_Therapy">Cognitive Behavioral Therapy</a><script data-card-contents-for-ri="230" type="text/json">{"id":230,"name":"Cognitive Behavioral Therapy","url":"https://www.academia.edu/Documents/in/Cognitive_Behavioral_Therapy?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=25496266]'), work: {"id":25496266,"title":"Shaping built environment of mental health hospitals.","created_at":"2016-05-20T13:03:42.298-07:00","url":"https://www.academia.edu/25496266/Shaping_built_environment_of_mental_health_hospitals?f_ri=27171","dom_id":"work_25496266","summary":"Shaping built environment of psychiatric hospitals is a process that requires predominantly adaptation of introduced solutions to particular patterns of patient behaviour. In contrast to other health care facilities, a psychiatric hospital admits patients with severe disorders of various origins. In a majority of cases, admitted patients in severe condition pose threat to themselves and/or for those around them.","downloadable_attachments":[{"id":45813289,"asset_id":25496266,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":9556000,"first_name":"Jakub","last_name":"Bil","domain_name":"independent","page_name":"JakubBil","display_name":"Jakub Bil","profile_url":"https://independent.academia.edu/JakubBil?f_ri=27171","photo":"https://0.academia-photos.com/9556000/5891494/6690198/s65_jacob.bil.jpg"}],"research_interests":[{"id":161,"name":"Neuroscience","url":"https://www.academia.edu/Documents/in/Neuroscience?f_ri=27171","nofollow":true},{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true},{"id":226,"name":"Clinical Psychology","url":"https://www.academia.edu/Documents/in/Clinical_Psychology?f_ri=27171","nofollow":true},{"id":230,"name":"Cognitive Behavioral Therapy","url":"https://www.academia.edu/Documents/in/Cognitive_Behavioral_Therapy?f_ri=27171","nofollow":true},{"id":236,"name":"Cognitive Psychology","url":"https://www.academia.edu/Documents/in/Cognitive_Psychology?f_ri=27171"},{"id":237,"name":"Cognitive Science","url":"https://www.academia.edu/Documents/in/Cognitive_Science?f_ri=27171"},{"id":244,"name":"Psychoanalysis","url":"https://www.academia.edu/Documents/in/Psychoanalysis?f_ri=27171"},{"id":248,"name":"Social Psychology","url":"https://www.academia.edu/Documents/in/Social_Psychology?f_ri=27171"},{"id":251,"name":"Neuropsychology","url":"https://www.academia.edu/Documents/in/Neuropsychology?f_ri=27171"},{"id":252,"name":"Developmental Psychology","url":"https://www.academia.edu/Documents/in/Developmental_Psychology?f_ri=27171"},{"id":588,"name":"Nursing","url":"https://www.academia.edu/Documents/in/Nursing?f_ri=27171"},{"id":623,"name":"Neurology","url":"https://www.academia.edu/Documents/in/Neurology?f_ri=27171"},{"id":635,"name":"Psychiatry","url":"https://www.academia.edu/Documents/in/Psychiatry?f_ri=27171"},{"id":1047,"name":"Behavioral Sciences","url":"https://www.academia.edu/Documents/in/Behavioral_Sciences?f_ri=27171"},{"id":1314,"name":"Anxiety Disorders","url":"https://www.academia.edu/Documents/in/Anxiety_Disorders?f_ri=27171"},{"id":2827,"name":"Mental Health","url":"https://www.academia.edu/Documents/in/Mental_Health?f_ri=27171"},{"id":2834,"name":"Mental Health nursing","url":"https://www.academia.edu/Documents/in/Mental_Health_nursing?f_ri=27171"},{"id":3227,"name":"Schizophrenia","url":"https://www.academia.edu/Documents/in/Schizophrenia?f_ri=27171"},{"id":3230,"name":"Bipolar Disorder","url":"https://www.academia.edu/Documents/in/Bipolar_Disorder?f_ri=27171"},{"id":3286,"name":"Patient Safety","url":"https://www.academia.edu/Documents/in/Patient_Safety?f_ri=27171"},{"id":3398,"name":"Educational Psychology","url":"https://www.academia.edu/Documents/in/Educational_Psychology?f_ri=27171"},{"id":3662,"name":"Dementia","url":"https://www.academia.edu/Documents/in/Dementia?f_ri=27171"},{"id":3776,"name":"Alzheimer's Disease","url":"https://www.academia.edu/Documents/in/Alzheimers_Disease?f_ri=27171"},{"id":4259,"name":"Stigma","url":"https://www.academia.edu/Documents/in/Stigma?f_ri=27171"},{"id":5985,"name":"Evidence Based Nursing","url":"https://www.academia.edu/Documents/in/Evidence_Based_Nursing?f_ri=27171"},{"id":6247,"name":"Stigmatization","url":"https://www.academia.edu/Documents/in/Stigmatization?f_ri=27171"},{"id":6489,"name":"Psychiatric Epidemiology","url":"https://www.academia.edu/Documents/in/Psychiatric_Epidemiology?f_ri=27171"},{"id":6535,"name":"Psychiatric \u0026 Mental Health Nursing","url":"https://www.academia.edu/Documents/in/Psychiatric_and_Mental_Health_Nursing?f_ri=27171"},{"id":6601,"name":"Nurse Education","url":"https://www.academia.edu/Documents/in/Nurse_Education?f_ri=27171"},{"id":8075,"name":"Illness-related stigma","url":"https://www.academia.edu/Documents/in/Illness-related_stigma?f_ri=27171"},{"id":8780,"name":"Cognitive Neuropsychology","url":"https://www.academia.edu/Documents/in/Cognitive_Neuropsychology?f_ri=27171"},{"id":8981,"name":"Suicide","url":"https://www.academia.edu/Documents/in/Suicide?f_ri=27171"},{"id":8982,"name":"Suicide (Psychology)","url":"https://www.academia.edu/Documents/in/Suicide_Psychology_?f_ri=27171"},{"id":13331,"name":"History of Nursing","url":"https://www.academia.edu/Documents/in/History_of_Nursing?f_ri=27171"},{"id":18652,"name":"Suicide prevention","url":"https://www.academia.edu/Documents/in/Suicide_prevention?f_ri=27171"},{"id":20878,"name":"Doctor-patient communication","url":"https://www.academia.edu/Documents/in/Doctor-patient_communication?f_ri=27171"},{"id":21548,"name":"Cognitive Neuroscience","url":"https://www.academia.edu/Documents/in/Cognitive_Neuroscience?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":35141,"name":"Mental Illness","url":"https://www.academia.edu/Documents/in/Mental_Illness?f_ri=27171"},{"id":38676,"name":"Anxiety","url":"https://www.academia.edu/Documents/in/Anxiety?f_ri=27171"},{"id":43445,"name":"Patient-Centered Care","url":"https://www.academia.edu/Documents/in/Patient-Centered_Care?f_ri=27171"},{"id":46420,"name":"Mental Health 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itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/13009384/An_international_field_study_of_the_EORTC_QLQ_PR25_A_questionnaire_for_assessing_the_health_related_quality_of_life_of_patients_with_prostate_cancer">An international field study of the EORTC QLQ-PR25: A questionnaire for assessing the health-related quality of life of patients with prostate cancer</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Quality of life Patient-reported outcome Questionnaire Bladder function Urinary function Sexuality A B S T R A C T Aim: To evaluate the psychometrics of the EORTC QLQ-PR25, a questionnaire assessing the health-related quality of life of... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_13009384" data-show=".complete" 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href="https://www.academia.edu/35823589/La_valutazione_degli_esiti_nella_prospettiva_dei_pazienti_2017_pdf">La valutazione degli esiti nella prospettiva dei pazienti 2017.pdf</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">PROMs è l'acronimo di Patient-Reported Outcome Measures, ovvero misure di esito riportate dal paziente. Le prime misure di outcome riportate dal paziente risalgono agli anni '70, quando sono stati sviluppati ed utilizzati strumenti per la... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_35823589" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">PROMs è l'acronimo di Patient-Reported Outcome Measures, ovvero misure di esito riportate dal paziente. Le prime misure di outcome riportate dal paziente risalgono agli anni '70, quando sono stati sviluppati ed utilizzati strumenti per la raccolta routinaria delle misure di dolore provato dai pazienti e riportate direttamente dagli stessi, nell'ambito di trial clinici e valuta-zioni di efficacia di trattamenti 1. L'uso dei PROMs nell'ambito di questo tipo di studi si è molto diffuso, diventando l'ambito principale di applicazione degli stessi 2. Queste misure consentono infatti di integrare gli indicatori di esito basati su valutazioni cliniche prodotte dai profes-sionisti sanitari con le valutazioni che lo stesso paziente esprime in modo diretto del proprio stato di salute. In tal senso, i PROMs permettono di comprendere se un trattamento o in intervento specifici abbiano fatto la differenza per paziente, tanto in termini di condizioni di salute specifiche e generali, quanto di qualità della vita. I PROMs, infatti, sono questionari in grado di raccogliere informazioni di diverso tipo. La multidimensionalità dei PROMs con-sente di cogliere una serie ampia di aspetti; infatti, i questionari investigano generalmente una rosa di costrutti o dimensioni diversi che includono: sintomi, funzionalità, salute mentale/disagio psichico, percezione della propria salute, health-related quality of life. Ognuno dei costrutti è misurato mediante metriche che associano un valore alle risposte dei pazienti, al fine di produrre uno score. Più nel dettaglio, i questionari utilizzati per la raccolta dei PROMS includono strumenti standardizzati disease/condition-specific , cioè studiati per indagare gli esiti di un intervento o una patologia specifici, e strumenti generici, in grado di misurare la qualità della vita e lo stato di salute percepito dal paziente. Negli ultimi anni, il numero di misure specifiche è cresciuto esponenzialmente, permettendo l'utilizzo dei PROMs per la valutazione degli outcome prodotti in diversi percorsi assistenziali e da numerosi trattamenti, siano essi chirurgici, farmacologici, psicoterapeutici, riabilitativi, etc.. A questi si affiancano normalmente questionari generici, come l'EuroQol five dimensions questionnaire (EQ-5D) 3 e lo Short Form Health Survey (SF-36) 4. Si tratta di PROMs che misurano il benessere, la qualità della vita e lo stato di salute percepiti dai pazienti a prescindere dalla loro condizione specifica, dalla loro patologia e dalle loro caratteristiche individuali. Sono strumenti particolarmente utili per effettuare comparazioni tra gruppi o a livello aggregato, come nel caso dei trial clinici. Le modalità di somministrazione dei PROMs sono oggi oggetto di linee guida volte a standardizzare le procedure di raccolta dei dati e il loro uso, a massimizzare la comparabilità dei dati tra diversi trial clinici o studi osservazionali, così come tra diverse organizzazioni sanitarie o sistemi sanitari nell'ambito di sistemi continui di raccolta dei PROMs 5,6 .</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/35823589" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="3a318ae408c80d03e6fd4683cf0534e3" rel="nofollow" data-download="{"attachment_id":55701013,"asset_id":35823589,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/55701013/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="59522458" href="https://sssup.academia.edu/SDeRosis">Sabina De Rosis</a><script data-card-contents-for-user="59522458" type="text/json">{"id":59522458,"first_name":"Sabina","last_name":"De Rosis","domain_name":"sssup","page_name":"SDeRosis","display_name":"Sabina De Rosis","profile_url":"https://sssup.academia.edu/SDeRosis?f_ri=27171","photo":"https://0.academia-photos.com/59522458/15540375/16136616/s65_sabina.de_rosis.jpg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-35823589">+1</span><div class="hidden js-additional-users-35823589"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/ManilaBonciani">Manila Bonciani</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-35823589'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-35823589').html(); 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container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_35823589 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="35823589"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 35823589; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=35823589]").text(description); $(".js-view-count-work_35823589").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_35823589").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="35823589"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">3</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="169195" rel="nofollow" href="https://www.academia.edu/Documents/in/HTA">HTA</a>, <script data-card-contents-for-ri="169195" type="text/json">{"id":169195,"name":"HTA","url":"https://www.academia.edu/Documents/in/HTA?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="898998" rel="nofollow" href="https://www.academia.edu/Documents/in/PROMS">PROMS</a><script data-card-contents-for-ri="898998" type="text/json">{"id":898998,"name":"PROMS","url":"https://www.academia.edu/Documents/in/PROMS?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=35823589]'), work: {"id":35823589,"title":"La valutazione degli esiti nella prospettiva dei pazienti 2017.pdf","created_at":"2018-02-02T07:48:42.165-08:00","url":"https://www.academia.edu/35823589/La_valutazione_degli_esiti_nella_prospettiva_dei_pazienti_2017_pdf?f_ri=27171","dom_id":"work_35823589","summary":"PROMs è l'acronimo di Patient-Reported Outcome Measures, ovvero misure di esito riportate dal paziente. Le prime misure di outcome riportate dal paziente risalgono agli anni '70, quando sono stati sviluppati ed utilizzati strumenti per la raccolta routinaria delle misure di dolore provato dai pazienti e riportate direttamente dagli stessi, nell'ambito di trial clinici e valuta-zioni di efficacia di trattamenti 1. L'uso dei PROMs nell'ambito di questo tipo di studi si è molto diffuso, diventando l'ambito principale di applicazione degli stessi 2. Queste misure consentono infatti di integrare gli indicatori di esito basati su valutazioni cliniche prodotte dai profes-sionisti sanitari con le valutazioni che lo stesso paziente esprime in modo diretto del proprio stato di salute. In tal senso, i PROMs permettono di comprendere se un trattamento o in intervento specifici abbiano fatto la differenza per paziente, tanto in termini di condizioni di salute specifiche e generali, quanto di qualità della vita. I PROMs, infatti, sono questionari in grado di raccogliere informazioni di diverso tipo. La multidimensionalità dei PROMs con-sente di cogliere una serie ampia di aspetti; infatti, i questionari investigano generalmente una rosa di costrutti o dimensioni diversi che includono: sintomi, funzionalità, salute mentale/disagio psichico, percezione della propria salute, health-related quality of life. Ognuno dei costrutti è misurato mediante metriche che associano un valore alle risposte dei pazienti, al fine di produrre uno score. Più nel dettaglio, i questionari utilizzati per la raccolta dei PROMS includono strumenti standardizzati disease/condition-specific , cioè studiati per indagare gli esiti di un intervento o una patologia specifici, e strumenti generici, in grado di misurare la qualità della vita e lo stato di salute percepito dal paziente. Negli ultimi anni, il numero di misure specifiche è cresciuto esponenzialmente, permettendo l'utilizzo dei PROMs per la valutazione degli outcome prodotti in diversi percorsi assistenziali e da numerosi trattamenti, siano essi chirurgici, farmacologici, psicoterapeutici, riabilitativi, etc.. A questi si affiancano normalmente questionari generici, come l'EuroQol five dimensions questionnaire (EQ-5D) 3 e lo Short Form Health Survey (SF-36) 4. Si tratta di PROMs che misurano il benessere, la qualità della vita e lo stato di salute percepiti dai pazienti a prescindere dalla loro condizione specifica, dalla loro patologia e dalle loro caratteristiche individuali. Sono strumenti particolarmente utili per effettuare comparazioni tra gruppi o a livello aggregato, come nel caso dei trial clinici. Le modalità di somministrazione dei PROMs sono oggi oggetto di linee guida volte a standardizzare le procedure di raccolta dei dati e il loro uso, a massimizzare la comparabilità dei dati tra diversi trial clinici o studi osservazionali, così come tra diverse organizzazioni sanitarie o sistemi sanitari nell'ambito di sistemi continui di raccolta dei PROMs 5,6 .","downloadable_attachments":[{"id":55701013,"asset_id":35823589,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":59522458,"first_name":"Sabina","last_name":"De Rosis","domain_name":"sssup","page_name":"SDeRosis","display_name":"Sabina De Rosis","profile_url":"https://sssup.academia.edu/SDeRosis?f_ri=27171","photo":"https://0.academia-photos.com/59522458/15540375/16136616/s65_sabina.de_rosis.jpg"},{"id":75815817,"first_name":"Manila","last_name":"Bonciani","domain_name":"independent","page_name":"ManilaBonciani","display_name":"Manila Bonciani","profile_url":"https://independent.academia.edu/ManilaBonciani?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":169195,"name":"HTA","url":"https://www.academia.edu/Documents/in/HTA?f_ri=27171","nofollow":true},{"id":898998,"name":"PROMS","url":"https://www.academia.edu/Documents/in/PROMS?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_15730463" data-work_id="15730463" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/15730463/Validaci%C3%B3n_de_la_versi%C3%B3n_espa%C3%B1ola_del_Kansas_City_Cardiomyopathy_Questionnaire">Validación de la versión española del Kansas City Cardiomyopathy Questionnaire</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Historia del artı´culo: Recibido el 21 de enero de 2010 Aceptado el 21 de julio de 2010 On-line el xxx Palabras clave: Calidad de vida Insuficiencia cardiaca cró nica Propiedades mé tricas Resultados percibidos por los pacientes... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_15730463" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Historia del artı´culo: Recibido el 21 de enero de 2010 Aceptado el 21 de julio de 2010 On-line el xxx Palabras clave: Calidad de vida Insuficiencia cardiaca cró nica Propiedades mé tricas Resultados percibidos por los pacientes Cuestionarios R E S U M E N</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/15730463" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="5ed4597e1bdc42a4bf4f89e6075f866a" rel="nofollow" data-download="{"attachment_id":42923332,"asset_id":15730463,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/42923332/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="34912457" href="https://independent.academia.edu/RElosua">Roberto Elosua</a><script data-card-contents-for-user="34912457" type="text/json">{"id":34912457,"first_name":"Roberto","last_name":"Elosua","domain_name":"independent","page_name":"RElosua","display_name":"Roberto Elosua","profile_url":"https://independent.academia.edu/RElosua?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_15730463 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="15730463"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 15730463, container: ".js-paper-rank-work_15730463", }); });</script></li><li class="js-percentile-work_15730463 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 15730463; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_15730463"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_15730463 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="15730463"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 15730463; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=15730463]").text(description); $(".js-view-count-work_15730463").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_15730463").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="15730463"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">10</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="18174" rel="nofollow" href="https://www.academia.edu/Documents/in/Language">Language</a>, <script data-card-contents-for-ri="18174" type="text/json">{"id":18174,"name":"Language","url":"https://www.academia.edu/Documents/in/Language?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="23032" rel="nofollow" href="https://www.academia.edu/Documents/in/Tribology">Tribology</a>, <script data-card-contents-for-ri="23032" type="text/json">{"id":23032,"name":"Tribology","url":"https://www.academia.edu/Documents/in/Tribology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=15730463]'), work: {"id":15730463,"title":"Validación de la versión española del Kansas City Cardiomyopathy Questionnaire","created_at":"2015-09-15T09:22:54.677-07:00","url":"https://www.academia.edu/15730463/Validaci%C3%B3n_de_la_versi%C3%B3n_espa%C3%B1ola_del_Kansas_City_Cardiomyopathy_Questionnaire?f_ri=27171","dom_id":"work_15730463","summary":"Historia del artı´culo: Recibido el 21 de enero de 2010 Aceptado el 21 de julio de 2010 On-line el xxx Palabras clave: Calidad de vida Insuficiencia cardiaca cró nica Propiedades mé tricas Resultados percibidos por los pacientes Cuestionarios R E S U M E N","downloadable_attachments":[{"id":42923332,"asset_id":15730463,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":34912457,"first_name":"Roberto","last_name":"Elosua","domain_name":"independent","page_name":"RElosua","display_name":"Roberto Elosua","profile_url":"https://independent.academia.edu/RElosua?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":18174,"name":"Language","url":"https://www.academia.edu/Documents/in/Language?f_ri=27171","nofollow":true},{"id":23032,"name":"Tribology","url":"https://www.academia.edu/Documents/in/Tribology?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":40516,"name":"Spain","url":"https://www.academia.edu/Documents/in/Spain?f_ri=27171"},{"id":49633,"name":"Heart Failure","url":"https://www.academia.edu/Documents/in/Heart_Failure?f_ri=27171"},{"id":62112,"name":"Prospective studies","url":"https://www.academia.edu/Documents/in/Prospective_studies?f_ri=27171"},{"id":97269,"name":"Chronic Disease","url":"https://www.academia.edu/Documents/in/Chronic_Disease?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":411266,"name":"Chronic Heart Failure","url":"https://www.academia.edu/Documents/in/Chronic_Heart_Failure?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_3504221" data-work_id="3504221" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/3504221/Measuring_Quality_of_Life_in_Cosmetic_and_Reconstructive_Breast_Surgery_A_Systematic_Review_of_Patient_Reported_Outcomes_Instruments">Measuring Quality of Life in Cosmetic and Reconstructive Breast Surgery: A Systematic Review of Patient-Reported Outcomes Instruments</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: Patient-reported outcomes in cosmetic and reconstructive breast surgery are increasingly important for clinical research endeavors. Traditional surgical outcomes, centered on morbidity and mortality, remain important but are... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_3504221" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: Patient-reported outcomes in cosmetic and reconstructive breast surgery are increasingly important for clinical research endeavors. Traditional surgical outcomes, centered on morbidity and mortality, remain important but are no longer sufficient on their own. Quality of life has become a crucial research topic augmenting traditional concerns focused on complications and survival. Given this, reliable and valid patient questionnaires are essential for aesthetic and reconstructive breast surgeons. Methods: The authors performed a systematic literature review to identify patient-reported outcome measures developed and validated for use in cosmetic and reconstructive breast surgery patients. Qualifying instruments were assessed for adherence to international guidelines for health outcomes instrument development and validation. Results: The authors identified 227 health outcomes questionnaires used in breast surgery studies. After 135 generic instruments, 65 ad hoc instruments, seven oncologic instruments, 11 education questionnaires, and two non-English-language questionnaires were excluded, seven measures remained. Detailed analysis revealed that six of the seven measures had undergone limited development and validation. Only one measure, the Breast-Related Symptoms Questionnaire, demonstrated adequate development and validation in its target population. It had, nevertheless, significant content limitations. Conclusions: Valid, reliable, and responsive instruments to measure patientreported outcomes in cosmetic and reconstructive breast surgery are lacking. To demonstrate the benefits of aesthetic and reconstructive breast surgery, future research to rigorously develop and validate new cosmetic and reconstructive breast surgery-specific instruments is needed. (Plast. Reconstr. Surg. 120: 823, 2007.)</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/3504221" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="2d32de1ad3db60ba514197dd933ecec1" rel="nofollow" data-download="{"attachment_id":50259910,"asset_id":3504221,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/50259910/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="3087919" href="https://pcmd.academia.edu/StefanCano">Stefan Cano</a><script data-card-contents-for-user="3087919" type="text/json">{"id":3087919,"first_name":"Stefan","last_name":"Cano","domain_name":"pcmd","page_name":"StefanCano","display_name":"Stefan Cano","profile_url":"https://pcmd.academia.edu/StefanCano?f_ri=27171","photo":"https://0.academia-photos.com/3087919/1014471/1268345/s65_stefan.cano.jpg"}</script></span></span></li><li class="js-paper-rank-work_3504221 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="3504221"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 3504221, container: ".js-paper-rank-work_3504221", }); 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$(".js-view-count[data-work-id=3504221]").text(description); $(".js-view-count-work_3504221").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_3504221").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="3504221"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">13</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="3645" rel="nofollow" href="https://www.academia.edu/Documents/in/Evidence_Based_Medicine">Evidence Based Medicine</a>, <script data-card-contents-for-ri="3645" type="text/json">{"id":3645,"name":"Evidence Based Medicine","url":"https://www.academia.edu/Documents/in/Evidence_Based_Medicine?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="8942" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment">Treatment</a>, <script data-card-contents-for-ri="8942" type="text/json">{"id":8942,"name":"Treatment","url":"https://www.academia.edu/Documents/in/Treatment?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="10882" rel="nofollow" href="https://www.academia.edu/Documents/in/Evolution">Evolution</a><script data-card-contents-for-ri="10882" type="text/json">{"id":10882,"name":"Evolution","url":"https://www.academia.edu/Documents/in/Evolution?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=3504221]'), work: {"id":3504221,"title":"Measuring Quality of Life in Cosmetic and Reconstructive Breast Surgery: A Systematic Review of Patient-Reported Outcomes Instruments","created_at":"2013-05-09T21:39:52.730-07:00","url":"https://www.academia.edu/3504221/Measuring_Quality_of_Life_in_Cosmetic_and_Reconstructive_Breast_Surgery_A_Systematic_Review_of_Patient_Reported_Outcomes_Instruments?f_ri=27171","dom_id":"work_3504221","summary":"Background: Patient-reported outcomes in cosmetic and reconstructive breast surgery are increasingly important for clinical research endeavors. Traditional surgical outcomes, centered on morbidity and mortality, remain important but are no longer sufficient on their own. Quality of life has become a crucial research topic augmenting traditional concerns focused on complications and survival. Given this, reliable and valid patient questionnaires are essential for aesthetic and reconstructive breast surgeons. Methods: The authors performed a systematic literature review to identify patient-reported outcome measures developed and validated for use in cosmetic and reconstructive breast surgery patients. Qualifying instruments were assessed for adherence to international guidelines for health outcomes instrument development and validation. Results: The authors identified 227 health outcomes questionnaires used in breast surgery studies. After 135 generic instruments, 65 ad hoc instruments, seven oncologic instruments, 11 education questionnaires, and two non-English-language questionnaires were excluded, seven measures remained. Detailed analysis revealed that six of the seven measures had undergone limited development and validation. Only one measure, the Breast-Related Symptoms Questionnaire, demonstrated adequate development and validation in its target population. It had, nevertheless, significant content limitations. Conclusions: Valid, reliable, and responsive instruments to measure patientreported outcomes in cosmetic and reconstructive breast surgery are lacking. To demonstrate the benefits of aesthetic and reconstructive breast surgery, future research to rigorously develop and validate new cosmetic and reconstructive breast surgery-specific instruments is needed. (Plast. Reconstr. Surg. 120: 823, 2007.)","downloadable_attachments":[{"id":50259910,"asset_id":3504221,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":3087919,"first_name":"Stefan","last_name":"Cano","domain_name":"pcmd","page_name":"StefanCano","display_name":"Stefan Cano","profile_url":"https://pcmd.academia.edu/StefanCano?f_ri=27171","photo":"https://0.academia-photos.com/3087919/1014471/1268345/s65_stefan.cano.jpg"}],"research_interests":[{"id":3645,"name":"Evidence Based Medicine","url":"https://www.academia.edu/Documents/in/Evidence_Based_Medicine?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":8942,"name":"Treatment","url":"https://www.academia.edu/Documents/in/Treatment?f_ri=27171","nofollow":true},{"id":10882,"name":"Evolution","url":"https://www.academia.edu/Documents/in/Evolution?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":27497,"name":"Instrumentation","url":"https://www.academia.edu/Documents/in/Instrumentation?f_ri=27171"},{"id":53714,"name":"Plastic and Reconstructive Surgery","url":"https://www.academia.edu/Documents/in/Plastic_and_Reconstructive_Surgery?f_ri=27171"},{"id":130538,"name":"Plastic","url":"https://www.academia.edu/Documents/in/Plastic?f_ri=27171"},{"id":144052,"name":"Patient Satisfaction","url":"https://www.academia.edu/Documents/in/Patient_Satisfaction?f_ri=27171"},{"id":176895,"name":"Breast","url":"https://www.academia.edu/Documents/in/Breast?f_ri=27171"},{"id":221411,"name":"Systematic review","url":"https://www.academia.edu/Documents/in/Systematic_review?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_30389723 coauthored" data-work_id="30389723" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/30389723/Patient_experiences_with_oily_skin_The_qualitative_development_of_content_for_two_new_patient_reported_outcome_questionnaires">Patient experiences with oily skin: The qualitative development of content for two new patient reported outcome questionnaires</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objective: To develop the content for two new patient reported outcome (PRO) measures to: a) assess the severity of symptoms; and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from face to face, and... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_30389723" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objective: To develop the content for two new patient reported outcome (PRO) measures to: a) assess the severity of symptoms; and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from face to face, and internet focus groups in Germany and the US.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/30389723" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="2b000120ff83c39ce6d5f2ac4ab4dcf5" rel="nofollow" data-download="{"attachment_id":50838346,"asset_id":30389723,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/50838346/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="12252556" href="https://independent.academia.edu/MarkAtkinson5">Mark J Atkinson</a><script data-card-contents-for-user="12252556" type="text/json">{"id":12252556,"first_name":"Mark","last_name":"Atkinson","domain_name":"independent","page_name":"MarkAtkinson5","display_name":"Mark J Atkinson","profile_url":"https://independent.academia.edu/MarkAtkinson5?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-30389723">+1</span><div class="hidden js-additional-users-30389723"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a rel="nofollow" href="https://independent.academia.edu/UlrikeBlumepeytavi">Ulrike Blume-peytavi</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-30389723'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-30389723').html(); 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and b) the impact of facial skin oiliness on emotional wellbeing using qualitative data from face to face, and internet focus groups in Germany and the US.","downloadable_attachments":[{"id":50838346,"asset_id":30389723,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":12252556,"first_name":"Mark","last_name":"Atkinson","domain_name":"independent","page_name":"MarkAtkinson5","display_name":"Mark J Atkinson","profile_url":"https://independent.academia.edu/MarkAtkinson5?f_ri=27171","photo":"/images/s65_no_pic.png"},{"id":57929390,"first_name":"Ulrike","last_name":"Blume-peytavi","domain_name":"independent","page_name":"UlrikeBlumepeytavi","display_name":"Ulrike Blume-peytavi","profile_url":"https://independent.academia.edu/UlrikeBlumepeytavi?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":11636,"name":"Face","url":"https://www.academia.edu/Documents/in/Face?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":38310,"name":"Social impact","url":"https://www.academia.edu/Documents/in/Social_impact?f_ri=27171"},{"id":44529,"name":"Activities of Daily Living","url":"https://www.academia.edu/Documents/in/Activities_of_Daily_Living?f_ri=27171"},{"id":50576,"name":"Germany","url":"https://www.academia.edu/Documents/in/Germany?f_ri=27171"},{"id":57511,"name":"Cross-Cultural Comparison","url":"https://www.academia.edu/Documents/in/Cross-Cultural_Comparison?f_ri=27171"},{"id":69859,"name":"Face to Face","url":"https://www.academia.edu/Documents/in/Face_to_Face?f_ri=27171"},{"id":98134,"name":"United States","url":"https://www.academia.edu/Documents/in/United_States?f_ri=27171"},{"id":113272,"name":"Focus Group","url":"https://www.academia.edu/Documents/in/Focus_Group?f_ri=27171"},{"id":133057,"name":"Young Adult","url":"https://www.academia.edu/Documents/in/Young_Adult?f_ri=27171"},{"id":144052,"name":"Patient Satisfaction","url":"https://www.academia.edu/Documents/in/Patient_Satisfaction?f_ri=27171"},{"id":152341,"name":"Acne Vulgaris","url":"https://www.academia.edu/Documents/in/Acne_Vulgaris?f_ri=27171"},{"id":321147,"name":"Self Concept","url":"https://www.academia.edu/Documents/in/Self_Concept?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":356201,"name":"Qualitative Data","url":"https://www.academia.edu/Documents/in/Qualitative_Data?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":587943,"name":"Seborrheic Dermatitis","url":"https://www.academia.edu/Documents/in/Seborrheic_Dermatitis?f_ri=27171"},{"id":1191356,"name":"Internet","url":"https://www.academia.edu/Documents/in/Internet?f_ri=27171"},{"id":1662503,"name":"Health Quality","url":"https://www.academia.edu/Documents/in/Health_Quality?f_ri=27171"},{"id":2471462,"name":"Sickness Impact Profile","url":"https://www.academia.edu/Documents/in/Sickness_Impact_Profile?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_16326690" data-work_id="16326690" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/16326690/A_New_Frontier_in_Healthcare_Risk_Management_Working_to_Reduce_Avoidable_Patient_Suffering">A New Frontier in Healthcare Risk Management: Working to Reduce Avoidable Patient Suffering</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">This article presents a new avenue for healthcare risk managers to drive improvement for patients and healthcare organizations alike: Working to reduce avoidable patient suffering. It briefly describes the problem of patient suffering,... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_16326690" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">This article presents a new avenue for healthcare risk managers to drive improvement for patients and healthcare organizations alike: Working to reduce avoidable patient suffering. It briefly describes the problem of patient suffering, differentiates between avoidable and unavoidable suffering, and suggests that common risk management tools can be used to tackle the problem. It also highlights a success story from one large health system.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/16326690" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="885871800b77d15f97457d886641f40d" rel="nofollow" data-download="{"attachment_id":38945192,"asset_id":16326690,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/38945192/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="158154" href="https://ucsd.academia.edu/AlanCard">Alan Card</a><script data-card-contents-for-user="158154" type="text/json">{"id":158154,"first_name":"Alan","last_name":"Card","domain_name":"ucsd","page_name":"AlanCard","display_name":"Alan Card","profile_url":"https://ucsd.academia.edu/AlanCard?f_ri=27171","photo":"https://0.academia-photos.com/158154/414127/12010577/s65_alan.card.jpg"}</script></span></span></li><li class="js-paper-rank-work_16326690 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="16326690"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 16326690, container: ".js-paper-rank-work_16326690", }); 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mood disorders may be leveraged to inform priorities for research, define key treatment outcomes, and support decision-making in clinical care. The aim of this mixed-methods project was to... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_72355513" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: The lived experience of people with mood disorders may be leveraged to inform priorities for research, define key treatment outcomes, and support decision-making in clinical care. The aim of this mixed-methods project was to provide insight into how people with depression and bipolar disorder experience the impact of symptoms, their treatment preferences, and their definitions of wellness.<br />Methods: The project was implemented in two phases. In Phase 1, community-based participatory research was used to develop a web-based survey enquiring about living with a mood disorder, treatment experiences, and wellness priorities. In Phase 2, a series of focus groups were conducted to explore aspects of wellness in greater detail.<br />Results: Respondents (n= 6153) described the symptoms of mood disorders as having a significant, chronic impact on their lives. A holistic approach to treatment was desired by participants, but not necessarily experienced. Qualitative findings were used to further describe four highly ranked wellness priorities identified in the survey: ability to act independently or according to my own will; purpose in life; getting through the day; and contentment.<br />Limitations: Experience of a mood disorder was self-reported, and no formal confirmation of diagnosis occurred. Although the survey could not incorporate all possible wellness definitions, this was supplemented by qualitative focus groups.<br />Conclusion: The present findings provide important insights from the perspectives of individuals with lived experience of mood disorders. Implications of this for research and clinical practice are discussed, particularly with regards to measurement-based care and use of wellness-oriented clinical outcome assessments.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/72355513" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="7523553ee15a287cff7a5d5cfb1e4b93" rel="nofollow" data-download="{"attachment_id":81314078,"asset_id":72355513,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/81314078/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="44266719" href="https://ubc.academia.edu/EmmaMorton">Emma Morton</a><script data-card-contents-for-user="44266719" type="text/json">{"id":44266719,"first_name":"Emma","last_name":"Morton","domain_name":"ubc","page_name":"EmmaMorton","display_name":"Emma Morton","profile_url":"https://ubc.academia.edu/EmmaMorton?f_ri=27171","photo":"https://0.academia-photos.com/44266719/31468758/60603969/s65_emma.morton.jpg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-72355513">+1</span><div class="hidden js-additional-users-72355513"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/PamDardess">Pam Dardess</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-72355513'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-72355513').html(); 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container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_72355513 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="72355513"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 72355513; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=72355513]").text(description); $(".js-view-count-work_72355513").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_72355513").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="72355513"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">6</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="3217" rel="nofollow" href="https://www.academia.edu/Documents/in/Depression">Depression</a>, <script data-card-contents-for-ri="3217" type="text/json">{"id":3217,"name":"Depression","url":"https://www.academia.edu/Documents/in/Depression?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="3230" rel="nofollow" href="https://www.academia.edu/Documents/in/Bipolar_Disorder">Bipolar Disorder</a>, <script data-card-contents-for-ri="3230" type="text/json">{"id":3230,"name":"Bipolar Disorder","url":"https://www.academia.edu/Documents/in/Bipolar_Disorder?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=72355513]'), work: {"id":72355513,"title":"“Supporting Wellness”: A Depression and Bipolar Support Alliance Survey of lived experience perspectives and priorities for mood disorders treatment.","created_at":"2022-02-23T16:01:13.622-08:00","url":"https://www.academia.edu/72355513/_Supporting_Wellness_A_Depression_and_Bipolar_Support_Alliance_Survey_of_lived_experience_perspectives_and_priorities_for_mood_disorders_treatment?f_ri=27171","dom_id":"work_72355513","summary":"Background: The lived experience of people with mood disorders may be leveraged to inform priorities for research, define key treatment outcomes, and support decision-making in clinical care. The aim of this mixed-methods project was to provide insight into how people with depression and bipolar disorder experience the impact of symptoms, their treatment preferences, and their definitions of wellness.\nMethods: The project was implemented in two phases. In Phase 1, community-based participatory research was used to develop a web-based survey enquiring about living with a mood disorder, treatment experiences, and wellness priorities. In Phase 2, a series of focus groups were conducted to explore aspects of wellness in greater detail.\nResults: Respondents (n= 6153) described the symptoms of mood disorders as having a significant, chronic impact on their lives. A holistic approach to treatment was desired by participants, but not necessarily experienced. Qualitative findings were used to further describe four highly ranked wellness priorities identified in the survey: ability to act independently or according to my own will; purpose in life; getting through the day; and contentment.\nLimitations: Experience of a mood disorder was self-reported, and no formal confirmation of diagnosis occurred. Although the survey could not incorporate all possible wellness definitions, this was supplemented by qualitative focus groups.\nConclusion: The present findings provide important insights from the perspectives of individuals with lived experience of mood disorders. Implications of this for research and clinical practice are discussed, particularly with regards to measurement-based care and use of wellness-oriented clinical outcome assessments.","downloadable_attachments":[{"id":81314078,"asset_id":72355513,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":44266719,"first_name":"Emma","last_name":"Morton","domain_name":"ubc","page_name":"EmmaMorton","display_name":"Emma Morton","profile_url":"https://ubc.academia.edu/EmmaMorton?f_ri=27171","photo":"https://0.academia-photos.com/44266719/31468758/60603969/s65_emma.morton.jpg"},{"id":217185940,"first_name":"Pam","last_name":"Dardess","domain_name":"independent","page_name":"PamDardess","display_name":"Pam Dardess","profile_url":"https://independent.academia.edu/PamDardess?f_ri=27171","photo":"https://0.academia-photos.com/217185940/75519002/64030699/s65_pam.dardess.jpeg"}],"research_interests":[{"id":3217,"name":"Depression","url":"https://www.academia.edu/Documents/in/Depression?f_ri=27171","nofollow":true},{"id":3230,"name":"Bipolar Disorder","url":"https://www.academia.edu/Documents/in/Bipolar_Disorder?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":43445,"name":"Patient-Centered Care","url":"https://www.academia.edu/Documents/in/Patient-Centered_Care?f_ri=27171"},{"id":77794,"name":"Major Depressive Disorder","url":"https://www.academia.edu/Documents/in/Major_Depressive_Disorder?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_14718829" data-work_id="14718829" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/14718829/The_Copenhagen_Hip_and_Groin_Outcome_Score_HAGOS_development_and_validation_according_to_the_COSMIN_checklist">The Copenhagen Hip and Groin Outcome Score (HAGOS): development and validation according to the COSMIN checklist</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background Valid, reliable and responsive Patient-Reported Outcome (PRO) questionnaires for young to middle-aged, physically active individuals with hip and groin pain are lacking. Objective To develop and validate a new PRO in accordance... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_14718829" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background Valid, reliable and responsive Patient-Reported Outcome (PRO) questionnaires for young to middle-aged, physically active individuals with hip and groin pain are lacking. Objective To develop and validate a new PRO in accordance with the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) recommendations for use in young to middle-aged, physically active patients with longstanding hip and/or groin pain. Methods Preliminary patient interviews (content validity) included 25 patients. Validity, reliability and responsiveness were evaluated in a clinical study including 101 physically active patients (50 women); mean age 36 years, range 18-63 years. Results The Copenhagen Hip and Groin Outcome Score (HAGOS) consists of six separate subscales assessing Pain, Symptoms, Physical function in daily living, Physical function in Sport and Recreation, Participation in Physical Activities and hip and/or groin-related Quality of Life (QOL). Test-retest reliability was substantial, with intraclass correlation coeffi cients ranging from 0.82 to 0.91 for the six subscales. The smallest detectable change ranged from 17.7 to 33.8 points at the individual level and from 2.7 to 5.2 points at the group level for the different subscales. Construct validity and responsiveness were confi rmed with statistically signifi cant correlation coeffi cients (0.37-0.73, p < 0.01) for convergent construct validity and for responsiveness from 0.56 to 0.69, p < 0.01. Conclusion HAGOS has adequate measurement qualities for the assessment of symptoms, activity limitations, participation restrictions and QOL in physically active, young to middle-aged patients with longstanding hip and/or groin pain and is recommended for use in interventions where the patient's perspective and health-related QOL are of primary interest. Trial registration ClinicalTrials.gov NCT00716729</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/14718829" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="b38b82bd10f5ec2af2247ee9c8894771" rel="nofollow" data-download="{"attachment_id":43945017,"asset_id":14718829,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/43945017/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="33675876" href="https://southerndenmark.academia.edu/EwaRoos">Ewa Roos</a><script data-card-contents-for-user="33675876" type="text/json">{"id":33675876,"first_name":"Ewa","last_name":"Roos","domain_name":"southerndenmark","page_name":"EwaRoos","display_name":"Ewa Roos","profile_url":"https://southerndenmark.academia.edu/EwaRoos?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_14718829 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="14718829"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 14718829, container: ".js-paper-rank-work_14718829", }); 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$(".js-view-count[data-work-id=14718829]").text(description); $(".js-view-count-work_14718829").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_14718829").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="14718829"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">19</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="48" rel="nofollow" href="https://www.academia.edu/Documents/in/Engineering">Engineering</a>, <script data-card-contents-for-ri="48" type="text/json">{"id":48,"name":"Engineering","url":"https://www.academia.edu/Documents/in/Engineering?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="922" rel="nofollow" href="https://www.academia.edu/Documents/in/Education">Education</a>, <script data-card-contents-for-ri="922" type="text/json">{"id":922,"name":"Education","url":"https://www.academia.edu/Documents/in/Education?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="9112" rel="nofollow" href="https://www.academia.edu/Documents/in/Physical_Activity">Physical Activity</a><script data-card-contents-for-ri="9112" type="text/json">{"id":9112,"name":"Physical Activity","url":"https://www.academia.edu/Documents/in/Physical_Activity?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=14718829]'), work: {"id":14718829,"title":"The Copenhagen Hip and Groin Outcome Score (HAGOS): development and validation according to the COSMIN checklist","created_at":"2015-08-06T09:02:41.164-07:00","url":"https://www.academia.edu/14718829/The_Copenhagen_Hip_and_Groin_Outcome_Score_HAGOS_development_and_validation_according_to_the_COSMIN_checklist?f_ri=27171","dom_id":"work_14718829","summary":"Background Valid, reliable and responsive Patient-Reported Outcome (PRO) questionnaires for young to middle-aged, physically active individuals with hip and groin pain are lacking. Objective To develop and validate a new PRO in accordance with the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) recommendations for use in young to middle-aged, physically active patients with longstanding hip and/or groin pain. Methods Preliminary patient interviews (content validity) included 25 patients. Validity, reliability and responsiveness were evaluated in a clinical study including 101 physically active patients (50 women); mean age 36 years, range 18-63 years. Results The Copenhagen Hip and Groin Outcome Score (HAGOS) consists of six separate subscales assessing Pain, Symptoms, Physical function in daily living, Physical function in Sport and Recreation, Participation in Physical Activities and hip and/or groin-related Quality of Life (QOL). Test-retest reliability was substantial, with intraclass correlation coeffi cients ranging from 0.82 to 0.91 for the six subscales. The smallest detectable change ranged from 17.7 to 33.8 points at the individual level and from 2.7 to 5.2 points at the group level for the different subscales. Construct validity and responsiveness were confi rmed with statistically signifi cant correlation coeffi cients (0.37-0.73, p \u003c 0.01) for convergent construct validity and for responsiveness from 0.56 to 0.69, p \u003c 0.01. Conclusion HAGOS has adequate measurement qualities for the assessment of symptoms, activity limitations, participation restrictions and QOL in physically active, young to middle-aged patients with longstanding hip and/or groin pain and is recommended for use in interventions where the patient's perspective and health-related QOL are of primary interest. Trial registration ClinicalTrials.gov NCT00716729","downloadable_attachments":[{"id":43945017,"asset_id":14718829,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":33675876,"first_name":"Ewa","last_name":"Roos","domain_name":"southerndenmark","page_name":"EwaRoos","display_name":"Ewa Roos","profile_url":"https://southerndenmark.academia.edu/EwaRoos?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":48,"name":"Engineering","url":"https://www.academia.edu/Documents/in/Engineering?f_ri=27171","nofollow":true},{"id":922,"name":"Education","url":"https://www.academia.edu/Documents/in/Education?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":9112,"name":"Physical Activity","url":"https://www.academia.edu/Documents/in/Physical_Activity?f_ri=27171","nofollow":true},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":104434,"name":"Construct Validity","url":"https://www.academia.edu/Documents/in/Construct_Validity?f_ri=27171"},{"id":125564,"name":"Statistical Significance","url":"https://www.academia.edu/Documents/in/Statistical_Significance?f_ri=27171"},{"id":127182,"name":"Self Disclosure","url":"https://www.academia.edu/Documents/in/Self_Disclosure?f_ri=27171"},{"id":133057,"name":"Young Adult","url":"https://www.academia.edu/Documents/in/Young_Adult?f_ri=27171"},{"id":135185,"name":"Exercise","url":"https://www.academia.edu/Documents/in/Exercise?f_ri=27171"},{"id":153785,"name":"Musculoskeletal pain","url":"https://www.academia.edu/Documents/in/Musculoskeletal_pain?f_ri=27171"},{"id":317739,"name":"Intraclass Correlation Coefficient","url":"https://www.academia.edu/Documents/in/Intraclass_Correlation_Coefficient?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":546356,"name":"Clinical Study","url":"https://www.academia.edu/Documents/in/Clinical_Study?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":611814,"name":"Correlation coefficient","url":"https://www.academia.edu/Documents/in/Correlation_coefficient?f_ri=27171"},{"id":1115362,"name":"Physical Function","url":"https://www.academia.edu/Documents/in/Physical_Function?f_ri=27171"},{"id":1180715,"name":"Abdominal Pain","url":"https://www.academia.edu/Documents/in/Abdominal_Pain?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_38988229" data-work_id="38988229" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/38988229/Patient_partenaire_patient_expert_De_laccompagnement_%C3%A0_lautonomie">Patient partenaire, patient expert. De l'accompagnement à l'autonomie.</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Le patient expert est souvent évoqué pour qualifier les patients atteints de maladies chroniques qui, très souvent, suivent une formation en éducation thérapeutique. Les auteurs souhaitent démontrer que ce concept peut être étendu à tous... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_38988229" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Le patient expert est souvent évoqué pour qualifier les patients atteints de maladies chroniques qui, très souvent, suivent une formation en éducation thérapeutique. Les auteurs souhaitent démontrer que ce concept peut être étendu à tous les patients, pour en faire des patients partenaires de leur guérison, au cœur de leur processus de soin. Expert inné de sa santé, le patient invite autour de son parcours de prise en charge de multiples acteurs, soignants mais également accompagnateurs et aidants. S’appuyant sur une enquête et des situations cliniques variées, les auteurs proposent d’élargir le champ de vision des soignants, mais également des patients et proches aidants, sur les dynamiques fondamentales liant tous ces acteurs des soins pouvant les amener vers l’expertise. Avec un accompagnement bienveillant, compréhensible et cohérent, le patient n’est plus passif. Il acquiert un statut de partenaire de plus en plus actif. Confiant en ce riche réseau de soins autour de lui, il acquiert une densité de savoirs propice à la prise de décision, en pleine autonomie et en toute sécurité. L’intelligence collective autour des parcours de soins, de santé et de vie du patient autorise un raisonnement clinique supérieur, pour des ajustements efficients. Le patient peut être ainsi reconnu expert. Ces enjeux sont majeurs pour nos relations interpersonnelles et nos systèmes de soins. Ils imposent un langage commun et intelligible par tous qui doivent être pris en compte dans les parcours de formation initiaux ou continus des acteurs du soin.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/38988229" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="80114a8b020a41e41e4d783c967ca485" rel="nofollow" data-download="{"attachment_id":59094500,"asset_id":38988229,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/59094500/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="21656968" href="https://univ-lyon1.academia.edu/HuguesLefort">Hugues Lefort</a><script data-card-contents-for-user="21656968" type="text/json">{"id":21656968,"first_name":"Hugues","last_name":"Lefort","domain_name":"univ-lyon1","page_name":"HuguesLefort","display_name":"Hugues Lefort","profile_url":"https://univ-lyon1.academia.edu/HuguesLefort?f_ri=27171","photo":"https://0.academia-photos.com/21656968/5957733/47467151/s65_hugues.lefort.jpg"}</script></span></span></li><li class="js-paper-rank-work_38988229 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="38988229"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 38988229, container: ".js-paper-rank-work_38988229", }); 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$(".js-view-count[data-work-id=38988229]").text(description); $(".js-view-count-work_38988229").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_38988229").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="38988229"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">20</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="470" rel="nofollow" href="https://www.academia.edu/Documents/in/Expert_Systems">Expert Systems</a>, <script data-card-contents-for-ri="470" type="text/json">{"id":470,"name":"Expert Systems","url":"https://www.academia.edu/Documents/in/Expert_Systems?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="607" rel="nofollow" href="https://www.academia.edu/Documents/in/Emergency_Medicine">Emergency Medicine</a>, <script data-card-contents-for-ri="607" type="text/json">{"id":607,"name":"Emergency Medicine","url":"https://www.academia.edu/Documents/in/Emergency_Medicine?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="633" rel="nofollow" href="https://www.academia.edu/Documents/in/Primary_Care">Primary Care</a>, <script data-card-contents-for-ri="633" type="text/json">{"id":633,"name":"Primary Care","url":"https://www.academia.edu/Documents/in/Primary_Care?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2841" rel="nofollow" href="https://www.academia.edu/Documents/in/Career_Guidance_Counseling">Career Guidance Counseling</a><script data-card-contents-for-ri="2841" type="text/json">{"id":2841,"name":"Career Guidance Counseling","url":"https://www.academia.edu/Documents/in/Career_Guidance_Counseling?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=38988229]'), work: {"id":38988229,"title":"Patient partenaire, patient expert. De l'accompagnement à l'autonomie.","created_at":"2019-04-30T15:57:57.554-07:00","url":"https://www.academia.edu/38988229/Patient_partenaire_patient_expert_De_laccompagnement_%C3%A0_lautonomie?f_ri=27171","dom_id":"work_38988229","summary":"Le patient expert est souvent évoqué pour qualifier les patients atteints de maladies chroniques qui, très souvent, suivent une formation en éducation thérapeutique. Les auteurs souhaitent démontrer que ce concept peut être étendu à tous les patients, pour en faire des patients partenaires de leur guérison, au cœur de leur processus de soin. Expert inné de sa santé, le patient invite autour de son parcours de prise en charge de multiples acteurs, soignants mais également accompagnateurs et aidants. S’appuyant sur une enquête et des situations cliniques variées, les auteurs proposent d’élargir le champ de vision des soignants, mais également des patients et proches aidants, sur les dynamiques fondamentales liant tous ces acteurs des soins pouvant les amener vers l’expertise. Avec un accompagnement bienveillant, compréhensible et cohérent, le patient n’est plus passif. Il acquiert un statut de partenaire de plus en plus actif. Confiant en ce riche réseau de soins autour de lui, il acquiert une densité de savoirs propice à la prise de décision, en pleine autonomie et en toute sécurité. L’intelligence collective autour des parcours de soins, de santé et de vie du patient autorise un raisonnement clinique supérieur, pour des ajustements efficients. Le patient peut être ainsi reconnu expert. Ces enjeux sont majeurs pour nos relations interpersonnelles et nos systèmes de soins. Ils imposent un langage commun et intelligible par tous qui doivent être pris en compte dans les parcours de formation initiaux ou continus des acteurs du soin.","downloadable_attachments":[{"id":59094500,"asset_id":38988229,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":21656968,"first_name":"Hugues","last_name":"Lefort","domain_name":"univ-lyon1","page_name":"HuguesLefort","display_name":"Hugues Lefort","profile_url":"https://univ-lyon1.academia.edu/HuguesLefort?f_ri=27171","photo":"https://0.academia-photos.com/21656968/5957733/47467151/s65_hugues.lefort.jpg"}],"research_interests":[{"id":470,"name":"Expert Systems","url":"https://www.academia.edu/Documents/in/Expert_Systems?f_ri=27171","nofollow":true},{"id":607,"name":"Emergency Medicine","url":"https://www.academia.edu/Documents/in/Emergency_Medicine?f_ri=27171","nofollow":true},{"id":633,"name":"Primary Care","url":"https://www.academia.edu/Documents/in/Primary_Care?f_ri=27171","nofollow":true},{"id":2841,"name":"Career Guidance Counseling","url":"https://www.academia.edu/Documents/in/Career_Guidance_Counseling?f_ri=27171","nofollow":true},{"id":2974,"name":"Primary Health Care","url":"https://www.academia.edu/Documents/in/Primary_Health_Care?f_ri=27171"},{"id":3286,"name":"Patient Safety","url":"https://www.academia.edu/Documents/in/Patient_Safety?f_ri=27171"},{"id":4441,"name":"Health Care","url":"https://www.academia.edu/Documents/in/Health_Care?f_ri=27171"},{"id":6601,"name":"Nurse Education","url":"https://www.academia.edu/Documents/in/Nurse_Education?f_ri=27171"},{"id":8561,"name":"Patient Provider Communication","url":"https://www.academia.edu/Documents/in/Patient_Provider_Communication?f_ri=27171"},{"id":19566,"name":"Emergency Management","url":"https://www.academia.edu/Documents/in/Emergency_Management?f_ri=27171"},{"id":20878,"name":"Doctor-patient communication","url":"https://www.academia.edu/Documents/in/Doctor-patient_communication?f_ri=27171"},{"id":21559,"name":"Health Care Management","url":"https://www.academia.edu/Documents/in/Health_Care_Management?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":43445,"name":"Patient-Centered Care","url":"https://www.academia.edu/Documents/in/Patient-Centered_Care?f_ri=27171"},{"id":52710,"name":"Patient education","url":"https://www.academia.edu/Documents/in/Patient_education?f_ri=27171"},{"id":68047,"name":"Patient Experiences","url":"https://www.academia.edu/Documents/in/Patient_Experiences?f_ri=27171"},{"id":96679,"name":"Quality and patient safety","url":"https://www.academia.edu/Documents/in/Quality_and_patient_safety?f_ri=27171"},{"id":138182,"name":"Patient Empowerment","url":"https://www.academia.edu/Documents/in/Patient_Empowerment?f_ri=27171"},{"id":144052,"name":"Patient Satisfaction","url":"https://www.academia.edu/Documents/in/Patient_Satisfaction?f_ri=27171"},{"id":243803,"name":"Nurse","url":"https://www.academia.edu/Documents/in/Nurse?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_18395643" data-work_id="18395643" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/18395643/Systematic_review_of_health_related_quality_of_life_measures_for_children_with_respiratory_conditions">Systematic review of health-related quality of life measures for children with respiratory conditions</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/18395643" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="49ad7ec716a6cae0e80d09d067fc5f80" rel="nofollow" data-download="{"attachment_id":40032449,"asset_id":18395643,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/40032449/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="38395994" href="https://independent.academia.edu/AlexandraQuittner">Alexandra Quittner</a><script data-card-contents-for-user="38395994" type="text/json">{"id":38395994,"first_name":"Alexandra","last_name":"Quittner","domain_name":"independent","page_name":"AlexandraQuittner","display_name":"Alexandra Quittner","profile_url":"https://independent.academia.edu/AlexandraQuittner?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_18395643 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="18395643"><i 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class="js-view-count view-count u-mr2x" data-work-id="18395643"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 18395643; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=18395643]").text(description); $(".js-view-count-work_18395643").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_18395643").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="18395643"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">4</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="82844" rel="nofollow" href="https://www.academia.edu/Documents/in/Health_related_Quality_of_Life">Health related Quality of Life</a>, <script data-card-contents-for-ri="82844" type="text/json">{"id":82844,"name":"Health related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="221411" rel="nofollow" href="https://www.academia.edu/Documents/in/Systematic_review">Systematic review</a><script data-card-contents-for-ri="221411" type="text/json">{"id":221411,"name":"Systematic review","url":"https://www.academia.edu/Documents/in/Systematic_review?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=18395643]'), work: {"id":18395643,"title":"Systematic review of health-related quality of life measures for children with respiratory 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related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171","nofollow":true},{"id":221411,"name":"Systematic review","url":"https://www.academia.edu/Documents/in/Systematic_review?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_7138976" data-work_id="7138976" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/7138976/The_Health_Education_Impact_Questionnaire_heiQ_an_outcomes_and_evaluation_measure_for_patient_education_and_self_management_interventions_for_people_with_chronic_conditions">The Health Education Impact Questionnaire (heiQ): an outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objective: This paper describes the development and validation of the Health Education Impact Questionnaire (heiQ). The aim was to develop a user-friendly, relevant, and psychometrically sound instrument for the comprehensive evaluation... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_7138976" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objective: This paper describes the development and validation of the Health Education Impact Questionnaire (heiQ). The aim was to develop a user-friendly, relevant, and psychometrically sound instrument for the comprehensive evaluation of patient education programs, which can be applied across a broad range of chronic conditions. Methods: Item development for the heiQ was guided by a Program Logic Model, Concept Mapping, interviews with stakeholders and psychometric analyses. Construction (N = 591) and confirmatory (N = 598) samples were drawn from consumers of patient education programs and hospital outpatients. The properties of the heiQ were investigated using item response theory and structural equation modeling. Results: Over 90 candidate items were generated, with 42 items selected for inclusion in the final scale. Eight independent dimensions were derived: Positive and Active Engagement in Life (five items, Cronbach's alpha (a) = 0.86); Health Directed Behavior (four items, a = 0.80); Skill and Technique Acquisition (five items, a = 0.81); Constructive Attitudes and Approaches (five items, a = 0.81); Self-Monitoring and Insight (seven items, a = 0.70); Health Service Navigation (five items, a = 0.82); Social Integration and Support (five items, a = 0.86); and Emotional Wellbeing (six items, a = 0.89). Conclusion: The heiQ has high construct validity and is a reliable measure of a broad range of patient education program benefits. Practice Implications: The heiQ will provide valuable information to clinicians, researchers, policymakers and other stakeholders about the value of patient education programs in chronic disease management. #</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/7138976" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="5fb5596b9eced78001a979daf9979b93" rel="nofollow" data-download="{"attachment_id":48585812,"asset_id":7138976,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/48585812/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="2290034" href="https://deakin.academia.edu/RichardOsborne">Richard H Osborne</a><script data-card-contents-for-user="2290034" type="text/json">{"id":2290034,"first_name":"Richard","last_name":"Osborne","domain_name":"deakin","page_name":"RichardOsborne","display_name":"Richard H Osborne","profile_url":"https://deakin.academia.edu/RichardOsborne?f_ri=27171","photo":"https://0.academia-photos.com/2290034/727344/5206704/s65_richard.osborne.jpg"}</script></span></span></li><li class="js-paper-rank-work_7138976 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="7138976"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 7138976, container: ".js-paper-rank-work_7138976", }); 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$(".js-view-count[data-work-id=7138976]").text(description); $(".js-view-count-work_7138976").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_7138976").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="7138976"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">18</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="202" rel="nofollow" href="https://www.academia.edu/Documents/in/Program_Evaluation">Program Evaluation</a>, <script data-card-contents-for-ri="202" type="text/json">{"id":202,"name":"Program Evaluation","url":"https://www.academia.edu/Documents/in/Program_Evaluation?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="1048" rel="nofollow" href="https://www.academia.edu/Documents/in/Health_Behavior">Health Behavior</a>, <script data-card-contents-for-ri="1048" type="text/json">{"id":1048,"name":"Health Behavior","url":"https://www.academia.edu/Documents/in/Health_Behavior?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="6697" rel="nofollow" href="https://www.academia.edu/Documents/in/Australia">Australia</a><script data-card-contents-for-ri="6697" type="text/json">{"id":6697,"name":"Australia","url":"https://www.academia.edu/Documents/in/Australia?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=7138976]'), work: {"id":7138976,"title":"The Health Education Impact Questionnaire (heiQ): an outcomes and evaluation measure for patient education and self-management interventions for people with chronic conditions","created_at":"2014-05-23T11:57:58.551-07:00","url":"https://www.academia.edu/7138976/The_Health_Education_Impact_Questionnaire_heiQ_an_outcomes_and_evaluation_measure_for_patient_education_and_self_management_interventions_for_people_with_chronic_conditions?f_ri=27171","dom_id":"work_7138976","summary":"Objective: This paper describes the development and validation of the Health Education Impact Questionnaire (heiQ). The aim was to develop a user-friendly, relevant, and psychometrically sound instrument for the comprehensive evaluation of patient education programs, which can be applied across a broad range of chronic conditions. Methods: Item development for the heiQ was guided by a Program Logic Model, Concept Mapping, interviews with stakeholders and psychometric analyses. Construction (N = 591) and confirmatory (N = 598) samples were drawn from consumers of patient education programs and hospital outpatients. The properties of the heiQ were investigated using item response theory and structural equation modeling. Results: Over 90 candidate items were generated, with 42 items selected for inclusion in the final scale. Eight independent dimensions were derived: Positive and Active Engagement in Life (five items, Cronbach's alpha (a) = 0.86); Health Directed Behavior (four items, a = 0.80); Skill and Technique Acquisition (five items, a = 0.81); Constructive Attitudes and Approaches (five items, a = 0.81); Self-Monitoring and Insight (seven items, a = 0.70); Health Service Navigation (five items, a = 0.82); Social Integration and Support (five items, a = 0.86); and Emotional Wellbeing (six items, a = 0.89). Conclusion: The heiQ has high construct validity and is a reliable measure of a broad range of patient education program benefits. Practice Implications: The heiQ will provide valuable information to clinicians, researchers, policymakers and other stakeholders about the value of patient education programs in chronic disease management. #","downloadable_attachments":[{"id":48585812,"asset_id":7138976,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":2290034,"first_name":"Richard","last_name":"Osborne","domain_name":"deakin","page_name":"RichardOsborne","display_name":"Richard H Osborne","profile_url":"https://deakin.academia.edu/RichardOsborne?f_ri=27171","photo":"https://0.academia-photos.com/2290034/727344/5206704/s65_richard.osborne.jpg"}],"research_interests":[{"id":202,"name":"Program Evaluation","url":"https://www.academia.edu/Documents/in/Program_Evaluation?f_ri=27171","nofollow":true},{"id":1048,"name":"Health Behavior","url":"https://www.academia.edu/Documents/in/Health_Behavior?f_ri=27171","nofollow":true},{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":6697,"name":"Australia","url":"https://www.academia.edu/Documents/in/Australia?f_ri=27171","nofollow":true},{"id":7428,"name":"Health Education","url":"https://www.academia.edu/Documents/in/Health_Education?f_ri=27171"},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171"},{"id":9590,"name":"Self Care","url":"https://www.academia.edu/Documents/in/Self_Care?f_ri=27171"},{"id":25940,"name":"Questionnaire design","url":"https://www.academia.edu/Documents/in/Questionnaire_design?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":28850,"name":"Linear models","url":"https://www.academia.edu/Documents/in/Linear_models?f_ri=27171"},{"id":46406,"name":"Motivation","url":"https://www.academia.edu/Documents/in/Motivation?f_ri=27171"},{"id":50581,"name":"Self Efficacy","url":"https://www.academia.edu/Documents/in/Self_Efficacy?f_ri=27171"},{"id":52710,"name":"Patient education","url":"https://www.academia.edu/Documents/in/Patient_education?f_ri=27171"},{"id":97269,"name":"Chronic Disease","url":"https://www.academia.edu/Documents/in/Chronic_Disease?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":481843,"name":"Psychology of Power","url":"https://www.academia.edu/Documents/in/Psychology_of_Power?f_ri=27171"},{"id":816819,"name":"Psychological Models","url":"https://www.academia.edu/Documents/in/Psychological_Models?f_ri=27171"},{"id":906958,"name":"Disease Management","url":"https://www.academia.edu/Documents/in/Disease_Management?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_30387957" data-work_id="30387957" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/30387957/Qualitative_research_and_content_validity_developing_best_practices_based_on_science_and_experience">Qualitative research and content validity: developing best practices based on science and experience</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Purpose Establishing content validity for both new and existing patient-reported outcome (PRO) measures is central to a scientifically sound instrument development process. Methodological and logistical issues present a challenge in... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_30387957" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Purpose Establishing content validity for both new and existing patient-reported outcome (PRO) measures is central to a scientifically sound instrument development process. Methodological and logistical issues present a challenge in regard to determining the best practices for establishing content validity. Methods This paper provides an overview of the current state of knowledge regarding qualitative research to establish content validity based on the scientific methodological literature and authors' experience. Results Conceptual issues and frameworks for qualitative interview research, developing the interview discussion guide, reaching saturation, analysis of data, developing a theoretical model, item generation and cognitive debriefing are presented. Suggestions are offered for dealing with logistical issues regarding facilitator qualifications, ethics approval, sample recruitment, group logistics, taping and transcribing interviews, honoraria and documenting content validity. Conclusions It is hoped this paper will stimulate further discussion regarding best practices for establishing content validity so that, as the PRO field moves forward, qualitative research can be evaluated for quality and acceptability according to scientifically established principles.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/30387957" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="1973e32e31ad6ca891234535df5f11a1" rel="nofollow" data-download="{"attachment_id":50836687,"asset_id":30387957,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/50836687/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="57924557" href="https://independent.academia.edu/MerylBrod">Meryl Brod</a><script data-card-contents-for-user="57924557" type="text/json">{"id":57924557,"first_name":"Meryl","last_name":"Brod","domain_name":"independent","page_name":"MerylBrod","display_name":"Meryl Brod","profile_url":"https://independent.academia.edu/MerylBrod?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_30387957 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="30387957"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 30387957, container: ".js-paper-rank-work_30387957", }); });</script></li><li class="js-percentile-work_30387957 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 30387957; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_30387957"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_30387957 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="30387957"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 30387957; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=30387957]").text(description); $(".js-view-count-work_30387957").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_30387957").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="30387957"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">11</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="3709" rel="nofollow" href="https://www.academia.edu/Documents/in/Evidence_Based_Practice">Evidence Based Practice</a>, <script data-card-contents-for-ri="3709" type="text/json">{"id":3709,"name":"Evidence Based Practice","url":"https://www.academia.edu/Documents/in/Evidence_Based_Practice?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="4193" rel="nofollow" href="https://www.academia.edu/Documents/in/Focus_Groups">Focus Groups</a>, <script data-card-contents-for-ri="4193" type="text/json">{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12135" rel="nofollow" href="https://www.academia.edu/Documents/in/Qualitative_Research">Qualitative Research</a><script data-card-contents-for-ri="12135" type="text/json">{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=30387957]'), work: {"id":30387957,"title":"Qualitative research and content validity: developing best practices based on science and experience","created_at":"2016-12-11T15:22:40.837-08:00","url":"https://www.academia.edu/30387957/Qualitative_research_and_content_validity_developing_best_practices_based_on_science_and_experience?f_ri=27171","dom_id":"work_30387957","summary":"Purpose Establishing content validity for both new and existing patient-reported outcome (PRO) measures is central to a scientifically sound instrument development process. Methodological and logistical issues present a challenge in regard to determining the best practices for establishing content validity. Methods This paper provides an overview of the current state of knowledge regarding qualitative research to establish content validity based on the scientific methodological literature and authors' experience. Results Conceptual issues and frameworks for qualitative interview research, developing the interview discussion guide, reaching saturation, analysis of data, developing a theoretical model, item generation and cognitive debriefing are presented. Suggestions are offered for dealing with logistical issues regarding facilitator qualifications, ethics approval, sample recruitment, group logistics, taping and transcribing interviews, honoraria and documenting content validity. Conclusions It is hoped this paper will stimulate further discussion regarding best practices for establishing content validity so that, as the PRO field moves forward, qualitative research can be evaluated for quality and acceptability according to scientifically established principles.","downloadable_attachments":[{"id":50836687,"asset_id":30387957,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":57924557,"first_name":"Meryl","last_name":"Brod","domain_name":"independent","page_name":"MerylBrod","display_name":"Meryl Brod","profile_url":"https://independent.academia.edu/MerylBrod?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":3709,"name":"Evidence Based Practice","url":"https://www.academia.edu/Documents/in/Evidence_Based_Practice?f_ri=27171","nofollow":true},{"id":4193,"name":"Focus Groups","url":"https://www.academia.edu/Documents/in/Focus_Groups?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":83229,"name":"Best practice","url":"https://www.academia.edu/Documents/in/Best_practice?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":742038,"name":"Instrument Development","url":"https://www.academia.edu/Documents/in/Instrument_Development?f_ri=27171"},{"id":842184,"name":"Quality Life","url":"https://www.academia.edu/Documents/in/Quality_Life?f_ri=27171"},{"id":1154248,"name":"Theoretical Model","url":"https://www.academia.edu/Documents/in/Theoretical_Model?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_20351508" data-work_id="20351508" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/20351508/Clinical_and_psychometric_validation_of_the_EORTC_QLQ_CR29_questionnaire_module_to_assess_health_related_quality_of_life_in_patients_with_colorectal_cancer">Clinical and psychometric validation of the EORTC QLQ-CR29 questionnaire module to assess health-related quality of life in patients with colorectal cancer</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Colorectal cancer EORTC Validation A B S T R A C T This international study aimed to test the measurement properties of the updated European Organisation for Research and Treatment of Cancer (EORTC) questionnaire module for colorectal... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_20351508" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Colorectal cancer EORTC Validation A B S T R A C T This international study aimed to test the measurement properties of the updated European Organisation for Research and Treatment of Cancer (EORTC) questionnaire module for colorectal cancer, the QLQ-CR29. The QLQ-CR29 was administered with the QLQ-C30, core questionnaire, to 351 patients from seven countries. Questionnaire scaling and reliability were established and clinical and psychometric validity examined. Patient acceptability and understanding were assessed with a debriefing questionnaire. Multi-trait scaling analyses and face validity refined the module to four scales assessing urinary frequency, faecal seepage, stool consistency and body image and single items assessing other common problems following treatment for colorectal cancer. Scales distinguished between clinically distinct groups of patients and did not correlate with QLQ-C30 scales, demonstrating construct validity. The QLQ-CR29 scores were reproducible over time in stable health. 0959-8049/$ -see front matter Ó address: <a href="mailto:J.M.Blazeby@bristol.ac.uk" rel="nofollow">J.M.Blazeby@bristol.ac.uk</a> (J.M. Blazeby). E U R O P E A N J O U R N A L O F C A N C E R 4 5 ( 2 0 0 9 ) 3 0 1 7 -3 0 2 6 a v a i l a b l e a t w w w . s c i e n c e d i r e c t . c o m j o u r n a l h o m e p a g e : w w w . e j c o n l i n e . c o m</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/20351508" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="28d6f3a19b2c29cfd4ba1f7d9270020f" rel="nofollow" data-download="{"attachment_id":41965810,"asset_id":20351508,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/41965810/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="41668306" href="https://shfa.academia.edu/EHammerlid">E. 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E U R O P E A N J O U R N A L O F C A N C E R 4 5 ( 2 0 0 9 ) 3 0 1 7 -3 0 2 6 a v a i l a b l e a t w w w . s c i e n c e d i r e c t . c o m j o u r n a l h o m e p a g e : w w w . e j c o n l i n e . c o m","downloadable_attachments":[{"id":41965810,"asset_id":20351508,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":41668306,"first_name":"E.","last_name":"Hammerlid","domain_name":"shfa","page_name":"EHammerlid","display_name":"E. 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nica Propiedades mé tricas Resultados percibidos por los pacientes... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_21807614" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Historia del artı´culo: Recibido el 21 de enero de 2010 Aceptado el 21 de julio de 2010 On-line el xxx Palabras clave: Calidad de vida Insuficiencia cardiaca cró nica Propiedades mé tricas Resultados percibidos por los pacientes Cuestionarios R E S U M E N</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/21807614" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li 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none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 21807614; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_21807614"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_21807614 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="21807614"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 21807614; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=21807614]").text(description); $(".js-view-count-work_21807614").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_21807614").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="21807614"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">9</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="18174" rel="nofollow" href="https://www.academia.edu/Documents/in/Language">Language</a>, <script data-card-contents-for-ri="18174" type="text/json">{"id":18174,"name":"Language","url":"https://www.academia.edu/Documents/in/Language?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="40516" rel="nofollow" href="https://www.academia.edu/Documents/in/Spain">Spain</a><script data-card-contents-for-ri="40516" 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N","downloadable_attachments":[{"id":42568067,"asset_id":21807614,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":43032558,"first_name":"Josep","last_name":"Comín-Colet","domain_name":"uab","page_name":"JosepCominColet","display_name":"Josep Comín-Colet","profile_url":"https://uab.academia.edu/JosepCominColet?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":18174,"name":"Language","url":"https://www.academia.edu/Documents/in/Language?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":40516,"name":"Spain","url":"https://www.academia.edu/Documents/in/Spain?f_ri=27171","nofollow":true},{"id":49633,"name":"Heart Failure","url":"https://www.academia.edu/Documents/in/Heart_Failure?f_ri=27171"},{"id":62112,"name":"Prospective studies","url":"https://www.academia.edu/Documents/in/Prospective_studies?f_ri=27171"},{"id":97269,"name":"Chronic Disease","url":"https://www.academia.edu/Documents/in/Chronic_Disease?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":411266,"name":"Chronic Heart Failure","url":"https://www.academia.edu/Documents/in/Chronic_Heart_Failure?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_21615615" data-work_id="21615615" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/21615615/The_6_item_CTS_symptoms_scale_a_brief_outcomes_measure_for_carpal_tunnel_syndrome">The 6-item CTS symptoms scale: a brief outcomes measure for carpal tunnel syndrome</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objective To develop a psychometrically appropriate brief symptoms measure of carpal tunnel syndrome (CTS). Methods Preoperative CTS 11-item symptom severity and 8-item functional status scales from 693 patients (71% women) with CTS were... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_21615615" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objective To develop a psychometrically appropriate brief symptoms measure of carpal tunnel syndrome (CTS). Methods Preoperative CTS 11-item symptom severity and 8-item functional status scales from 693 patients (71% women) with CTS were subjected to exploratory factor analysis and item response theory (IRT) analysis yielding a revised CTS symptoms scale. A validation sample of 213 patients (68% women) with CTS completed the 11-item disabilities of the arm, shoulder and hand (QuickDASH), and the revised symptoms scale and 116 patients also completed the original CTS symptom severity scale (median interval 11 days). Results Of the 11 CTS symptom severity scale items, 2 items that on factor analysis associated with the functional status items were removed. After IRT recalibrations of the remaining symptom severity scale items, 2 non-fitting items were removed and 2 items were merged creating the 6-item CTS symptoms scale. Factor analysis showed one dominant factor explaining 58% of the variance. Reliability was high (Cronbach alpha = 0.86; IRT person separation reliability = 0.88). No item displayed significant differential item functioning. The 6-item CTS symptoms scale showed strong correlation with the QuickDASH (r = 0.70) and agreement with the original symptom severity scale (ICC = 0.80). Conclusion The 6-item CTS symptoms scale has good reliability and validity and can be used to measure symptom severity and treatment outcome in CTS.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/21615615" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="91e967dca8517f677d4fefbc25dc73f3" rel="nofollow" data-download="{"attachment_id":42195998,"asset_id":21615615,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/42195998/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="35306235" href="https://independent.academia.edu/IsamAtroshi">Isam Atroshi</a><script data-card-contents-for-user="35306235" type="text/json">{"id":35306235,"first_name":"Isam","last_name":"Atroshi","domain_name":"independent","page_name":"IsamAtroshi","display_name":"Isam Atroshi","profile_url":"https://independent.academia.edu/IsamAtroshi?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_21615615 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="21615615"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 21615615, container: ".js-paper-rank-work_21615615", }); });</script></li><li class="js-percentile-work_21615615 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 21615615; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_21615615"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_21615615 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="21615615"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 21615615; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=21615615]").text(description); $(".js-view-count-work_21615615").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_21615615").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="21615615"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">14</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="4887" rel="nofollow" href="https://www.academia.edu/Documents/in/Item_Response_Theory">Item Response Theory</a>, <script data-card-contents-for-ri="4887" type="text/json">{"id":4887,"name":"Item Response Theory","url":"https://www.academia.edu/Documents/in/Item_Response_Theory?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12426" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment_Outcome">Treatment Outcome</a><script data-card-contents-for-ri="12426" type="text/json">{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=21615615]'), work: {"id":21615615,"title":"The 6-item CTS symptoms scale: a brief outcomes measure for carpal tunnel syndrome","created_at":"2016-02-06T01:08:24.236-08:00","url":"https://www.academia.edu/21615615/The_6_item_CTS_symptoms_scale_a_brief_outcomes_measure_for_carpal_tunnel_syndrome?f_ri=27171","dom_id":"work_21615615","summary":"Objective To develop a psychometrically appropriate brief symptoms measure of carpal tunnel syndrome (CTS). Methods Preoperative CTS 11-item symptom severity and 8-item functional status scales from 693 patients (71% women) with CTS were subjected to exploratory factor analysis and item response theory (IRT) analysis yielding a revised CTS symptoms scale. A validation sample of 213 patients (68% women) with CTS completed the 11-item disabilities of the arm, shoulder and hand (QuickDASH), and the revised symptoms scale and 116 patients also completed the original CTS symptom severity scale (median interval 11 days). Results Of the 11 CTS symptom severity scale items, 2 items that on factor analysis associated with the functional status items were removed. After IRT recalibrations of the remaining symptom severity scale items, 2 non-fitting items were removed and 2 items were merged creating the 6-item CTS symptoms scale. Factor analysis showed one dominant factor explaining 58% of the variance. Reliability was high (Cronbach alpha = 0.86; IRT person separation reliability = 0.88). No item displayed significant differential item functioning. The 6-item CTS symptoms scale showed strong correlation with the QuickDASH (r = 0.70) and agreement with the original symptom severity scale (ICC = 0.80). Conclusion The 6-item CTS symptoms scale has good reliability and validity and can be used to measure symptom severity and treatment outcome in CTS.","downloadable_attachments":[{"id":42195998,"asset_id":21615615,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":35306235,"first_name":"Isam","last_name":"Atroshi","domain_name":"independent","page_name":"IsamAtroshi","display_name":"Isam Atroshi","profile_url":"https://independent.academia.edu/IsamAtroshi?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":4887,"name":"Item Response Theory","url":"https://www.academia.edu/Documents/in/Item_Response_Theory?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":60585,"name":"Factor analysis","url":"https://www.academia.edu/Documents/in/Factor_analysis?f_ri=27171"},{"id":67200,"name":"Differential Item Functioning","url":"https://www.academia.edu/Documents/in/Differential_Item_Functioning?f_ri=27171"},{"id":151407,"name":"Exploratory Factor Analysis","url":"https://www.academia.edu/Documents/in/Exploratory_Factor_Analysis?f_ri=27171"},{"id":220450,"name":"Carpal Tunnel Syndrome","url":"https://www.academia.edu/Documents/in/Carpal_Tunnel_Syndrome?f_ri=27171"},{"id":298035,"name":"Validity and Reliability","url":"https://www.academia.edu/Documents/in/Validity_and_Reliability?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":842184,"name":"Quality Life","url":"https://www.academia.edu/Documents/in/Quality_Life?f_ri=27171"},{"id":1441309,"name":"Functional Status","url":"https://www.academia.edu/Documents/in/Functional_Status?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_35789562" data-work_id="35789562" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/35789562/Quality_of_Life_before_and_after_Rhinoplasty_Surgery_measured_with_SF_36_RSES_and_WHOQOL_BREF">Quality of Life before and after Rhinoplasty Surgery measured with SF-36, RSES and WHOQOL-BREF</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background Rhinoplasty continues to be among the most popular surgical cosmetic treatments around the world. This is often a reflection of the significance of nose shapes in sociocultural, ethnic, and psychological contexts. Despite... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_35789562" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background<br />Rhinoplasty continues to be among the most popular surgical cosmetic treatments around the world. This is often a reflection of the significance of nose shapes in sociocultural, ethnic, and psychological contexts. Despite developments in the therapeutic field of cosmetic surgery, there is scarce information available within current literature concerning the effects of cosmetic procedures on quality of life (QOL), particularly in Iran. The purpose of this study was to survey QOL among Iranian adults before and after rhinoplasty.<br /><br />Methods<br />From July 2015 to July 2016, 83 patients over 16 years of age seeking cosmetic rhinoplasty were included in this study. Demographic information such as age, sex, marital status, education, occupation, and monthly income of patients were recorded. SF-36 version 2, Rosenberg self-esteem scale (RSES), and WHOQOL-BREF questionnaires were completed by a single trained interviewer for all patients, before and 6 months after rhinoplasty. Data analysis was conducted using SPSS ver. 16. Results before and after surgery were compared.<br /><br />Results<br />The mean age of the subjects was 24.87 ± 5.8 years, with a median of 24 years. The female-to-male ratio was 4.53:1. In all cases and all questionnaires, QOL was improved after rhinoplasty. Significant differences were observed on six subscales of SF-36 comprised bodily pain (p = 0.003), general health (p = 0.002), vitality (p = 0.005), social functioning (p < 0.001), emotional role (p = 0.02), and mental health state (p = 0.012). According to RSES and WHOQOL-BREF questionnaires, self-esteem (p = 0.002), psychological health (p < 0.001), social relationships (p < 0.001), and general quality of life (p = 0.011) indicated significant differences.<br /><br />Conclusions<br />Our data suggest that QOL can be improved after rhinoplasty in Iranian adult patients. With proper patient selection and a successful operation, improvement of QOL can be expected.<br /><br />Level of Evidence: Level III, risk / prognostic study</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/35789562" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="26bda5aeb918726a886d6d672f475c6c" rel="nofollow" data-download="{"attachment_id":55681227,"asset_id":35789562,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/55681227/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="21110809" href="https://sydney.academia.edu/JasonAbbasArmedaAramideh">Jason Abbas Aramideh</a><script data-card-contents-for-user="21110809" type="text/json">{"id":21110809,"first_name":"Jason Abbas","last_name":"Aramideh","domain_name":"sydney","page_name":"JasonAbbasArmedaAramideh","display_name":"Jason Abbas Aramideh","profile_url":"https://sydney.academia.edu/JasonAbbasArmedaAramideh?f_ri=27171","photo":"https://0.academia-photos.com/21110809/5824366/24408314/s65_jason_abbas.aramideh.jpg"}</script></span></span></li><li class="js-paper-rank-work_35789562 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="35789562"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 35789562, container: ".js-paper-rank-work_35789562", }); });</script></li><li class="js-percentile-work_35789562 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 35789562; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_35789562"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_35789562 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="35789562"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 35789562; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=35789562]").text(description); $(".js-view-count-work_35789562").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_35789562").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="35789562"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">6</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="67552" rel="nofollow" href="https://www.academia.edu/Documents/in/Cosmetic_surgery">Cosmetic surgery</a>, <script data-card-contents-for-ri="67552" type="text/json">{"id":67552,"name":"Cosmetic surgery","url":"https://www.academia.edu/Documents/in/Cosmetic_surgery?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="159303" rel="nofollow" href="https://www.academia.edu/Documents/in/Rhinoplasty">Rhinoplasty</a><script data-card-contents-for-ri="159303" type="text/json">{"id":159303,"name":"Rhinoplasty","url":"https://www.academia.edu/Documents/in/Rhinoplasty?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=35789562]'), work: {"id":35789562,"title":"Quality of Life before and after Rhinoplasty Surgery measured with SF-36, RSES and WHOQOL-BREF","created_at":"2018-01-29T17:02:19.367-08:00","url":"https://www.academia.edu/35789562/Quality_of_Life_before_and_after_Rhinoplasty_Surgery_measured_with_SF_36_RSES_and_WHOQOL_BREF?f_ri=27171","dom_id":"work_35789562","summary":"Background\nRhinoplasty continues to be among the most popular surgical cosmetic treatments around the world. This is often a reflection of the significance of nose shapes in sociocultural, ethnic, and psychological contexts. Despite developments in the therapeutic field of cosmetic surgery, there is scarce information available within current literature concerning the effects of cosmetic procedures on quality of life (QOL), particularly in Iran. The purpose of this study was to survey QOL among Iranian adults before and after rhinoplasty.\n\nMethods\nFrom July 2015 to July 2016, 83 patients over 16 years of age seeking cosmetic rhinoplasty were included in this study. Demographic information such as age, sex, marital status, education, occupation, and monthly income of patients were recorded. SF-36 version 2, Rosenberg self-esteem scale (RSES), and WHOQOL-BREF questionnaires were completed by a single trained interviewer for all patients, before and 6 months after rhinoplasty. Data analysis was conducted using SPSS ver. 16. Results before and after surgery were compared.\n\nResults\nThe mean age of the subjects was 24.87 ± 5.8 years, with a median of 24 years. The female-to-male ratio was 4.53:1. In all cases and all questionnaires, QOL was improved after rhinoplasty. Significant differences were observed on six subscales of SF-36 comprised bodily pain (p = 0.003), general health (p = 0.002), vitality (p = 0.005), social functioning (p \u003c 0.001), emotional role (p = 0.02), and mental health state (p = 0.012). According to RSES and WHOQOL-BREF questionnaires, self-esteem (p = 0.002), psychological health (p \u003c 0.001), social relationships (p \u003c 0.001), and general quality of life (p = 0.011) indicated significant differences.\n\nConclusions\nOur data suggest that QOL can be improved after rhinoplasty in Iranian adult patients. With proper patient selection and a successful operation, improvement of QOL can be expected.\n\nLevel of Evidence: Level III, risk / prognostic study","downloadable_attachments":[{"id":55681227,"asset_id":35789562,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":21110809,"first_name":"Jason Abbas","last_name":"Aramideh","domain_name":"sydney","page_name":"JasonAbbasArmedaAramideh","display_name":"Jason Abbas Aramideh","profile_url":"https://sydney.academia.edu/JasonAbbasArmedaAramideh?f_ri=27171","photo":"https://0.academia-photos.com/21110809/5824366/24408314/s65_jason_abbas.aramideh.jpg"}],"research_interests":[{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":67552,"name":"Cosmetic surgery","url":"https://www.academia.edu/Documents/in/Cosmetic_surgery?f_ri=27171","nofollow":true},{"id":159303,"name":"Rhinoplasty","url":"https://www.academia.edu/Documents/in/Rhinoplasty?f_ri=27171","nofollow":true},{"id":213076,"name":"Aesthetic Surgery","url":"https://www.academia.edu/Documents/in/Aesthetic_Surgery?f_ri=27171"},{"id":533097,"name":"Facial Aesthetic Surgery","url":"https://www.academia.edu/Documents/in/Facial_Aesthetic_Surgery?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_20991932 coauthored" data-work_id="20991932" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/20991932/Validation_of_the_Adult_Attention_Deficit_Hyperactivity_Disorder_Quality_of_Life_Scale_AAQoL_A_Disease_Specific_Quality_of_Life_Measure">Validation of the Adult Attention-Deficit/Hyperactivity Disorder Quality-of-Life Scale (AAQoL): A Disease-Specific Quality-of-Life Measure</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Introduction: A growing body of evidence suggests that symptoms of attention-deficit/hyperactivity disorder (ADHD) persist into adulthood and are associated with ongoing impairment and co-morbidity. The absence of a conceptually sound and... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_20991932" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Introduction: A growing body of evidence suggests that symptoms of attention-deficit/hyperactivity disorder (ADHD) persist into adulthood and are associated with ongoing impairment and co-morbidity. The absence of a conceptually sound and well-validated ADHD-specific quality-of-life measure has been an obstacle to understanding this impact. To address this gap, the Adult ADHD Quality-of-Life Scale (AAQoL) was developed based on well accepted methods for designing patient reported outcomes. The purpose of this study was to validate the AAQoL. Methods: Nine Hundred and Eighty Nine adults in a retrospective cohort study were administered the AAQoL and psychometric validation was conducted according to an a priori statistical analysis plan. Results: A 29-item AAQoL was found to have robust scale structure with four domains: Life Productivity, Psychological Health, Relationships and Life outlook. Internal consistency was adequate (0.93 for overall, 0.75-0.93 for subscales), and construct and knowngroups validity were supported. Conclusion: The AAQoL appears to be a valid measure of quality of life for adults with ADHD and can be considered for incorporation into future studies. The ability to quantify the quality-of-life consequences of adult ADHD should facilitate future research, assist clinicians in identifying appropriate treatment targets and contribute to the ultimate goal of improving the well-being and functioning of adults with ADHD.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/20991932" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="c83b042e7a3ec1b1ccec3a7ee84e8071" rel="nofollow" data-download="{"attachment_id":41660951,"asset_id":20991932,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/41660951/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="42063132" href="https://independent.academia.edu/JosephJohnston5">Joseph Johnston</a><script data-card-contents-for-user="42063132" type="text/json">{"id":42063132,"first_name":"Joseph","last_name":"Johnston","domain_name":"independent","page_name":"JosephJohnston5","display_name":"Joseph Johnston","profile_url":"https://independent.academia.edu/JosephJohnston5?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-20991932">+1</span><div class="hidden js-additional-users-20991932"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/RalphSwindle">Ralph Swindle</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-20991932'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-20991932').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_20991932 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="20991932"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 20991932, container: ".js-paper-rank-work_20991932", }); });</script></li><li class="js-percentile-work_20991932 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 20991932; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_20991932"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_20991932 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="20991932"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 20991932; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=20991932]").text(description); $(".js-view-count-work_20991932").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_20991932").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="20991932"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">18</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2350" rel="nofollow" href="https://www.academia.edu/Documents/in/Attention-Deficit_Hyperactivity_Disorder">Attention-Deficit/Hyperactivity Disorder</a>, <script data-card-contents-for-ri="2350" type="text/json">{"id":2350,"name":"Attention-Deficit/Hyperactivity Disorder","url":"https://www.academia.edu/Documents/in/Attention-Deficit_Hyperactivity_Disorder?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="5187" rel="nofollow" href="https://www.academia.edu/Documents/in/Statistical_Analysis">Statistical Analysis</a>, <script data-card-contents-for-ri="5187" type="text/json">{"id":5187,"name":"Statistical Analysis","url":"https://www.academia.edu/Documents/in/Statistical_Analysis?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a><script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=20991932]'), work: {"id":20991932,"title":"Validation of the Adult Attention-Deficit/Hyperactivity Disorder Quality-of-Life Scale (AAQoL): A Disease-Specific Quality-of-Life Measure","created_at":"2016-01-27T15:38:21.622-08:00","url":"https://www.academia.edu/20991932/Validation_of_the_Adult_Attention_Deficit_Hyperactivity_Disorder_Quality_of_Life_Scale_AAQoL_A_Disease_Specific_Quality_of_Life_Measure?f_ri=27171","dom_id":"work_20991932","summary":"Introduction: A growing body of evidence suggests that symptoms of attention-deficit/hyperactivity disorder (ADHD) persist into adulthood and are associated with ongoing impairment and co-morbidity. The absence of a conceptually sound and well-validated ADHD-specific quality-of-life measure has been an obstacle to understanding this impact. To address this gap, the Adult ADHD Quality-of-Life Scale (AAQoL) was developed based on well accepted methods for designing patient reported outcomes. The purpose of this study was to validate the AAQoL. Methods: Nine Hundred and Eighty Nine adults in a retrospective cohort study were administered the AAQoL and psychometric validation was conducted according to an a priori statistical analysis plan. Results: A 29-item AAQoL was found to have robust scale structure with four domains: Life Productivity, Psychological Health, Relationships and Life outlook. Internal consistency was adequate (0.93 for overall, 0.75-0.93 for subscales), and construct and knowngroups validity were supported. Conclusion: The AAQoL appears to be a valid measure of quality of life for adults with ADHD and can be considered for incorporation into future studies. The ability to quantify the quality-of-life consequences of adult ADHD should facilitate future research, assist clinicians in identifying appropriate treatment targets and contribute to the ultimate goal of improving the well-being and functioning of adults with ADHD.","downloadable_attachments":[{"id":41660951,"asset_id":20991932,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":42063132,"first_name":"Joseph","last_name":"Johnston","domain_name":"independent","page_name":"JosephJohnston5","display_name":"Joseph Johnston","profile_url":"https://independent.academia.edu/JosephJohnston5?f_ri=27171","photo":"/images/s65_no_pic.png"},{"id":42232134,"first_name":"Ralph","last_name":"Swindle","domain_name":"independent","page_name":"RalphSwindle","display_name":"Ralph Swindle","profile_url":"https://independent.academia.edu/RalphSwindle?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2350,"name":"Attention-Deficit/Hyperactivity Disorder","url":"https://www.academia.edu/Documents/in/Attention-Deficit_Hyperactivity_Disorder?f_ri=27171","nofollow":true},{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":5187,"name":"Statistical Analysis","url":"https://www.academia.edu/Documents/in/Statistical_Analysis?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":11015,"name":"Social Support","url":"https://www.academia.edu/Documents/in/Social_Support?f_ri=27171"},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":33668,"name":"Georgia","url":"https://www.academia.edu/Documents/in/Georgia?f_ri=27171"},{"id":42162,"name":"Emotions","url":"https://www.academia.edu/Documents/in/Emotions?f_ri=27171"},{"id":44529,"name":"Activities of Daily Living","url":"https://www.academia.edu/Documents/in/Activities_of_Daily_Living?f_ri=27171"},{"id":50113,"name":"California","url":"https://www.academia.edu/Documents/in/California?f_ri=27171"},{"id":50581,"name":"Self Efficacy","url":"https://www.academia.edu/Documents/in/Self_Efficacy?f_ri=27171"},{"id":131185,"name":"Cohort Study","url":"https://www.academia.edu/Documents/in/Cohort_Study?f_ri=27171"},{"id":172809,"name":"Interpersonal Relations","url":"https://www.academia.edu/Documents/in/Interpersonal_Relations?f_ri=27171"},{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":842184,"name":"Quality Life","url":"https://www.academia.edu/Documents/in/Quality_Life?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_5510554" data-work_id="5510554" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/5510554/Upper_Limb_functional_Index_Spanish_Version_Validation_HQoL_2013">Upper Limb functional Index - Spanish Version Validation HQoL 2013</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: The Upper Limb Functional Index (ULFI) is an internationally widely used outcome measure with robust, valid psychometric properties. The purpose of study is to develop and validate a ULFI Spanish-version (ULFI-Sp). Methods: A... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_5510554" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: The Upper Limb Functional Index (ULFI) is an internationally widely used outcome measure with robust, valid psychometric properties. The purpose of study is to develop and validate a ULFI Spanish-version (ULFI-Sp). Methods: A two stage observational study was conducted. The ULFI was cross-culturally adapted to Spanish through double forward and backward translations, the psychometric properties were then validated. Participants (n = 126) with various upper limb conditions of >12 weeks duration completed the ULFI-Sp, QuickDASH and the Euroqol Health Questionnaire 5 Dimensions (EQ-5D-3 L). The full sample determined internal consistency, concurrent criterion validity, construct validity and factor structure; a subgroup (n = 35) determined reliability at seven days. Results: The ULFI-Sp demonstrated high internal consistency (α = 0.94) and reliability (r = 0.93). Factor structure was one-dimensional and supported construct validity. Criterion validity with the EQ-5D-3 L was fair and inversely correlated (r = −0.59). The QuickDASH data was unavailable for analysis due to excessive missing responses. Conclusions: The ULFI-Sp is a valid upper limb outcome measure with similar psychometric properties to the English language version.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/5510554" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="e6857ecaa2690d5703f375e833fcd7d1" rel="nofollow" data-download="{"attachment_id":32614187,"asset_id":5510554,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/32614187/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="7654684" href="https://usc-au.academia.edu/CharlesPhilipGabel">Charles Philip Gabel</a><script data-card-contents-for-user="7654684" type="text/json">{"id":7654684,"first_name":"Charles Philip","last_name":"Gabel","domain_name":"usc-au","page_name":"CharlesPhilipGabel","display_name":"Charles Philip Gabel","profile_url":"https://usc-au.academia.edu/CharlesPhilipGabel?f_ri=27171","photo":"https://0.academia-photos.com/7654684/2767539/3226027/s65_charles_philip.gabel.jpg"}</script></span></span></li><li class="js-paper-rank-work_5510554 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="5510554"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 5510554, container: ".js-paper-rank-work_5510554", }); });</script></li><li class="js-percentile-work_5510554 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 5510554; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_5510554"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_5510554 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="5510554"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 5510554; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=5510554]").text(description); $(".js-view-count-work_5510554").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_5510554").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="5510554"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="698773" rel="nofollow" href="https://www.academia.edu/Documents/in/Upper_Limbs">Upper Limbs</a><script data-card-contents-for-ri="698773" type="text/json">{"id":698773,"name":"Upper Limbs","url":"https://www.academia.edu/Documents/in/Upper_Limbs?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=5510554]'), work: {"id":5510554,"title":"Upper Limb functional Index - Spanish Version Validation HQoL 2013","created_at":"2013-12-23T04:19:58.759-08:00","url":"https://www.academia.edu/5510554/Upper_Limb_functional_Index_Spanish_Version_Validation_HQoL_2013?f_ri=27171","dom_id":"work_5510554","summary":"Background: The Upper Limb Functional Index (ULFI) is an internationally widely used outcome measure with robust, valid psychometric properties. The purpose of study is to develop and validate a ULFI Spanish-version (ULFI-Sp). Methods: A two stage observational study was conducted. The ULFI was cross-culturally adapted to Spanish through double forward and backward translations, the psychometric properties were then validated. Participants (n = 126) with various upper limb conditions of \u003e12 weeks duration completed the ULFI-Sp, QuickDASH and the Euroqol Health Questionnaire 5 Dimensions (EQ-5D-3 L). The full sample determined internal consistency, concurrent criterion validity, construct validity and factor structure; a subgroup (n = 35) determined reliability at seven days. Results: The ULFI-Sp demonstrated high internal consistency (α = 0.94) and reliability (r = 0.93). Factor structure was one-dimensional and supported construct validity. Criterion validity with the EQ-5D-3 L was fair and inversely correlated (r = −0.59). The QuickDASH data was unavailable for analysis due to excessive missing responses. Conclusions: The ULFI-Sp is a valid upper limb outcome measure with similar psychometric properties to the English language version.","downloadable_attachments":[{"id":32614187,"asset_id":5510554,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":7654684,"first_name":"Charles Philip","last_name":"Gabel","domain_name":"usc-au","page_name":"CharlesPhilipGabel","display_name":"Charles Philip Gabel","profile_url":"https://usc-au.academia.edu/CharlesPhilipGabel?f_ri=27171","photo":"https://0.academia-photos.com/7654684/2767539/3226027/s65_charles_philip.gabel.jpg"}],"research_interests":[{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":698773,"name":"Upper Limbs","url":"https://www.academia.edu/Documents/in/Upper_Limbs?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_4924386" data-work_id="4924386" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/4924386/PRO_development_rigorous_qualitative_research_as_the_crucial_foundation">PRO development: rigorous qualitative research as the crucial foundation</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Recently published articles have described criteria to assess qualitative research in the health field in general, but very few articles have delineated qualitative methods to be used in the development of Patient-Reported Outcomes... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_4924386" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Recently published articles have described criteria to assess qualitative research in the health field in general, but very few articles have delineated qualitative methods to be used in the development of Patient-Reported Outcomes (PROs). In fact, how PROs are developed with subject input through focus groups and interviews has been given relatively short shrift in the PRO literature when compared to the plethora of quantitative articles on the psychometric properties of PROs. If documented at all, most PRO validation articles give little for the reader to evaluate the content validity of the measures and the credibility and trustworthiness of the methods used to develop them. Increasingly, however, scientists and authorities want to be assured that PRO items and scales have meaning and relevance to subjects. This article was developed by an international, interdisciplinary group of psychologists, psychometricians, regulatory experts, a physician, and a sociologist. It presents rigorous and appropriate qualitative research methods for developing PROs with content validity. The approach described combines an overarching phenomenological theoretical framework with grounded theory data collection and analysis methods to yield PRO items and scales that have content validity.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/4924386" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="26e4d0607c3caa2d19a48c70c911e78a" rel="nofollow" data-download="{"attachment_id":49555390,"asset_id":4924386,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/49555390/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="6456169" href="https://independent.academia.edu/KathrynLasch">Kathryn Lasch</a><script data-card-contents-for-user="6456169" type="text/json">{"id":6456169,"first_name":"Kathryn","last_name":"Lasch","domain_name":"independent","page_name":"KathrynLasch","display_name":"Kathryn Lasch","profile_url":"https://independent.academia.edu/KathrynLasch?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_4924386 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="4924386"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 4924386, container: ".js-paper-rank-work_4924386", }); 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$(".js-view-count[data-work-id=4924386]").text(description); $(".js-view-count-work_4924386").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_4924386").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="4924386"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">13</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12135" rel="nofollow" href="https://www.academia.edu/Documents/in/Qualitative_Research">Qualitative Research</a>, <script data-card-contents-for-ri="12135" type="text/json">{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="13675" rel="nofollow" href="https://www.academia.edu/Documents/in/Grounded_Theory">Grounded Theory</a>, <script data-card-contents-for-ri="13675" type="text/json">{"id":13675,"name":"Grounded Theory","url":"https://www.academia.edu/Documents/in/Grounded_Theory?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="22540" rel="nofollow" href="https://www.academia.edu/Documents/in/Qualitative_Research_Methods">Qualitative Research Methods</a><script data-card-contents-for-ri="22540" type="text/json">{"id":22540,"name":"Qualitative Research Methods","url":"https://www.academia.edu/Documents/in/Qualitative_Research_Methods?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=4924386]'), work: {"id":4924386,"title":"PRO development: rigorous qualitative research as the crucial foundation","created_at":"2013-10-29T04:23:47.712-07:00","url":"https://www.academia.edu/4924386/PRO_development_rigorous_qualitative_research_as_the_crucial_foundation?f_ri=27171","dom_id":"work_4924386","summary":"Recently published articles have described criteria to assess qualitative research in the health field in general, but very few articles have delineated qualitative methods to be used in the development of Patient-Reported Outcomes (PROs). In fact, how PROs are developed with subject input through focus groups and interviews has been given relatively short shrift in the PRO literature when compared to the plethora of quantitative articles on the psychometric properties of PROs. If documented at all, most PRO validation articles give little for the reader to evaluate the content validity of the measures and the credibility and trustworthiness of the methods used to develop them. Increasingly, however, scientists and authorities want to be assured that PRO items and scales have meaning and relevance to subjects. This article was developed by an international, interdisciplinary group of psychologists, psychometricians, regulatory experts, a physician, and a sociologist. It presents rigorous and appropriate qualitative research methods for developing PROs with content validity. The approach described combines an overarching phenomenological theoretical framework with grounded theory data collection and analysis methods to yield PRO items and scales that have content validity.","downloadable_attachments":[{"id":49555390,"asset_id":4924386,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":6456169,"first_name":"Kathryn","last_name":"Lasch","domain_name":"independent","page_name":"KathrynLasch","display_name":"Kathryn Lasch","profile_url":"https://independent.academia.edu/KathrynLasch?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research?f_ri=27171","nofollow":true},{"id":13675,"name":"Grounded Theory","url":"https://www.academia.edu/Documents/in/Grounded_Theory?f_ri=27171","nofollow":true},{"id":22540,"name":"Qualitative Research Methods","url":"https://www.academia.edu/Documents/in/Qualitative_Research_Methods?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":113272,"name":"Focus Group","url":"https://www.academia.edu/Documents/in/Focus_Group?f_ri=27171"},{"id":153168,"name":"Data Collection","url":"https://www.academia.edu/Documents/in/Data_Collection?f_ri=27171"},{"id":203835,"name":"Psychometric Properties","url":"https://www.academia.edu/Documents/in/Psychometric_Properties?f_ri=27171"},{"id":222261,"name":"Patients","url":"https://www.academia.edu/Documents/in/Patients?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":412636,"name":"Theoretical Framework","url":"https://www.academia.edu/Documents/in/Theoretical_Framework?f_ri=27171"},{"id":675549,"name":"Qualitative Method","url":"https://www.academia.edu/Documents/in/Qualitative_Method?f_ri=27171"},{"id":842184,"name":"Quality Life","url":"https://www.academia.edu/Documents/in/Quality_Life?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_16420844" data-work_id="16420844" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/16420844/Measuring_Effectiveness">Measuring Effectiveness</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Measuring the effectiveness of medical interventions faces three epistemological challenges: the choice of good measuring instruments, the use of appropriate analytic measures, and the use of a reliable method of extrapolating measures... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_16420844" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Measuring the effectiveness of medical interventions faces three epistemological challenges: the choice of good measuring instruments, the use of appropriate analytic measures, and the use of a reliable method of extrapolating measures from an experimental context to a more general context. In practice each of these challenges contributes to overestimating the effectiveness of medical interventions. These challenges suggest the need for corrective normative principles. The instruments employed in clinical research should measure patient-relevant and disease-specific parameters, and should not be sensitive to parameters that are only indirectly relevant. Effectiveness always should be measured and reported in absolute terms (using measures such as ‘absolute risk reduction’), and only sometimes should effectiveness also be measured and reported in relative terms (using measures such as ‘relative risk reduction’)—employment of relative measures promotes an informal fallacy akin to the base-rate fallacy, which can be exploited to exaggerate claims of effectiveness. Finally, extrapolating from research settings to clinical settings should more rigorously take into account possible ways in which the intervention in question can fail to be effective in a target population.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/16420844" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="b6ea80a562d0622cfe748cf11e7f4dc6" rel="nofollow" data-download="{"attachment_id":38987336,"asset_id":16420844,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/38987336/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="2705106" href="https://nanyang.academia.edu/JacobStegenga">Jacob Stegenga</a><script data-card-contents-for-user="2705106" type="text/json">{"id":2705106,"first_name":"Jacob","last_name":"Stegenga","domain_name":"nanyang","page_name":"JacobStegenga","display_name":"Jacob Stegenga","profile_url":"https://nanyang.academia.edu/JacobStegenga?f_ri=27171","photo":"https://0.academia-photos.com/2705106/868699/146434953/s65_jacob.stegenga.jpg"}</script></span></span></li><li class="js-paper-rank-work_16420844 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="16420844"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 16420844, container: ".js-paper-rank-work_16420844", }); 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$(".js-view-count[data-work-id=16420844]").text(description); $(".js-view-count-work_16420844").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_16420844").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="16420844"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">12</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="821" rel="nofollow" href="https://www.academia.edu/Documents/in/Philosophy_of_Science">Philosophy of Science</a>, <script data-card-contents-for-ri="821" type="text/json">{"id":821,"name":"Philosophy of Science","url":"https://www.academia.edu/Documents/in/Philosophy_of_Science?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="1558" rel="nofollow" href="https://www.academia.edu/Documents/in/Research_Methods_and_Methodology">Research Methods and Methodology</a>, <script data-card-contents-for-ri="1558" type="text/json">{"id":1558,"name":"Research Methods and Methodology","url":"https://www.academia.edu/Documents/in/Research_Methods_and_Methodology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="1821" rel="nofollow" href="https://www.academia.edu/Documents/in/Effectiveness">Effectiveness</a>, <script data-card-contents-for-ri="1821" type="text/json">{"id":1821,"name":"Effectiveness","url":"https://www.academia.edu/Documents/in/Effectiveness?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="2065" rel="nofollow" href="https://www.academia.edu/Documents/in/Research_Methodology">Research Methodology</a><script data-card-contents-for-ri="2065" type="text/json">{"id":2065,"name":"Research Methodology","url":"https://www.academia.edu/Documents/in/Research_Methodology?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=16420844]'), work: {"id":16420844,"title":"Measuring Effectiveness","created_at":"2015-10-03T02:44:54.559-07:00","url":"https://www.academia.edu/16420844/Measuring_Effectiveness?f_ri=27171","dom_id":"work_16420844","summary":"Measuring the effectiveness of medical interventions faces three epistemological challenges: the choice of good measuring instruments, the use of appropriate analytic measures, and the use of a reliable method of extrapolating measures from an experimental context to a more general context. In practice each of these challenges contributes to overestimating the effectiveness of medical interventions. These challenges suggest the need for corrective normative principles. The instruments employed in clinical research should measure patient-relevant and disease-specific parameters, and should not be sensitive to parameters that are only indirectly relevant. Effectiveness always should be measured and reported in absolute terms (using measures such as ‘absolute risk reduction’), and only sometimes should effectiveness also be measured and reported in relative terms (using measures such as ‘relative risk reduction’)—employment of relative measures promotes an informal fallacy akin to the base-rate fallacy, which can be exploited to exaggerate claims of effectiveness. Finally, extrapolating from research settings to clinical settings should more rigorously take into account possible ways in which the intervention in question can fail to be effective in a target population.","downloadable_attachments":[{"id":38987336,"asset_id":16420844,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":2705106,"first_name":"Jacob","last_name":"Stegenga","domain_name":"nanyang","page_name":"JacobStegenga","display_name":"Jacob Stegenga","profile_url":"https://nanyang.academia.edu/JacobStegenga?f_ri=27171","photo":"https://0.academia-photos.com/2705106/868699/146434953/s65_jacob.stegenga.jpg"}],"research_interests":[{"id":821,"name":"Philosophy of Science","url":"https://www.academia.edu/Documents/in/Philosophy_of_Science?f_ri=27171","nofollow":true},{"id":1558,"name":"Research Methods and Methodology","url":"https://www.academia.edu/Documents/in/Research_Methods_and_Methodology?f_ri=27171","nofollow":true},{"id":1821,"name":"Effectiveness","url":"https://www.academia.edu/Documents/in/Effectiveness?f_ri=27171","nofollow":true},{"id":2065,"name":"Research Methodology","url":"https://www.academia.edu/Documents/in/Research_Methodology?f_ri=27171","nofollow":true},{"id":4060,"name":"Applied Statistics","url":"https://www.academia.edu/Documents/in/Applied_Statistics?f_ri=27171"},{"id":4440,"name":"Philosophy of Medicine","url":"https://www.academia.edu/Documents/in/Philosophy_of_Medicine?f_ri=27171"},{"id":5409,"name":"Health Outcomes","url":"https://www.academia.edu/Documents/in/Health_Outcomes?f_ri=27171"},{"id":11400,"name":"Philosophy of Social Science","url":"https://www.academia.edu/Documents/in/Philosophy_of_Social_Science?f_ri=27171"},{"id":12620,"name":"Quantitative Methods","url":"https://www.academia.edu/Documents/in/Quantitative_Methods?f_ri=27171"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":952977,"name":"Extrapolation","url":"https://www.academia.edu/Documents/in/Extrapolation?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_9662145" data-work_id="9662145" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/9662145/Principles_of_Good_Practice_for_the_Translation_and_Cultural_Adaptation_Process_for_Patient_Reported_Outcomes_PRO_Measures_Report_of_the_ISPOR_Task_Force_for_Translation_and_Cultural_Adaptation">Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">In 1999, ISPOR formed the Quality of Life Special Interest group (QoL-SIG)-Translation and Cultural Adaptation group (TCA group) to stimulate discussion on and create guidelines and standards for the translation and cultural adaptation of... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_9662145" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">In 1999, ISPOR formed the Quality of Life Special Interest group (QoL-SIG)-Translation and Cultural Adaptation group (TCA group) to stimulate discussion on and create guidelines and standards for the translation and cultural adaptation of patient-reported outcome (PRO) measures. After identifying a general lack of consistency in current methods and published guidelines, the TCA group saw a need to develop a holistic perspective that synthesized the full spectrum of published methods. This process resulted in the development of Translation and Cultural Adaptation of Patient Reported Outcomes Measures-Principles of Good Practice (PGP), a report on current methods, and an appraisal of their strengths and weaknesses. The TCA Group undertook a review of evidence from current practice, a review of the literature and existing guidelines, and consideration of the issues facing the pharmaceutical industry, regulators, and the broader outcomes research community. Each approach to translation and cultural adaptation was considered systematically in terms of rationale, components, key actors, and the potential benefits and risks associated with each approach and step. The results of this review were subjected to discussion and challenge within the TCA group, as well as consultation with the outcomes research community at large. Through this review, a consensus emerged on a broad approach, along with a detailed critique of the strengths and weaknesses of the differing methodologies. The results of this review are set out as "Translation and Cultural Adaptation of Patient Reported Outcomes Measures-Principles of Good Practice" and are reported in this document.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/9662145" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="9f5655466d763bedaa1098381f7fa506" rel="nofollow" data-download="{"attachment_id":35859275,"asset_id":9662145,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/35859275/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="23075798" href="https://independent.academia.edu/WildDiane">Diane Wild</a><script data-card-contents-for-user="23075798" type="text/json">{"id":23075798,"first_name":"Diane","last_name":"Wild","domain_name":"independent","page_name":"WildDiane","display_name":"Diane Wild","profile_url":"https://independent.academia.edu/WildDiane?f_ri=27171","photo":"https://0.academia-photos.com/23075798/10047646/11208142/s65_diane.wild.jpg_oh_48672109c37eea2d0ef94294bf76319d_oe_566fb676___gda___1446390286_2ee87c549bb70e6704d0f763951ce3d7"}</script></span></span></li><li class="js-paper-rank-work_9662145 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="9662145"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 9662145, container: ".js-paper-rank-work_9662145", }); 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$(".js-view-count[data-work-id=9662145]").text(description); $(".js-view-count-work_9662145").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_9662145").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="9662145"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">19</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7125" rel="nofollow" href="https://www.academia.edu/Documents/in/Culture">Culture</a>, <script data-card-contents-for-ri="7125" type="text/json">{"id":7125,"name":"Culture","url":"https://www.academia.edu/Documents/in/Culture?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="14406" rel="nofollow" href="https://www.academia.edu/Documents/in/Health">Health</a><script data-card-contents-for-ri="14406" type="text/json">{"id":14406,"name":"Health","url":"https://www.academia.edu/Documents/in/Health?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=9662145]'), work: {"id":9662145,"title":"Principles of Good Practice for the Translation and Cultural Adaptation Process for Patient-Reported Outcomes (PRO) Measures: Report of the ISPOR Task Force for Translation and Cultural Adaptation","created_at":"2014-12-07T10:46:34.968-08:00","url":"https://www.academia.edu/9662145/Principles_of_Good_Practice_for_the_Translation_and_Cultural_Adaptation_Process_for_Patient_Reported_Outcomes_PRO_Measures_Report_of_the_ISPOR_Task_Force_for_Translation_and_Cultural_Adaptation?f_ri=27171","dom_id":"work_9662145","summary":"In 1999, ISPOR formed the Quality of Life Special Interest group (QoL-SIG)-Translation and Cultural Adaptation group (TCA group) to stimulate discussion on and create guidelines and standards for the translation and cultural adaptation of patient-reported outcome (PRO) measures. After identifying a general lack of consistency in current methods and published guidelines, the TCA group saw a need to develop a holistic perspective that synthesized the full spectrum of published methods. This process resulted in the development of Translation and Cultural Adaptation of Patient Reported Outcomes Measures-Principles of Good Practice (PGP), a report on current methods, and an appraisal of their strengths and weaknesses. The TCA Group undertook a review of evidence from current practice, a review of the literature and existing guidelines, and consideration of the issues facing the pharmaceutical industry, regulators, and the broader outcomes research community. Each approach to translation and cultural adaptation was considered systematically in terms of rationale, components, key actors, and the potential benefits and risks associated with each approach and step. The results of this review were subjected to discussion and challenge within the TCA group, as well as consultation with the outcomes research community at large. Through this review, a consensus emerged on a broad approach, along with a detailed critique of the strengths and weaknesses of the differing methodologies. The results of this review are set out as \"Translation and Cultural Adaptation of Patient Reported Outcomes Measures-Principles of Good Practice\" and are reported in this document.","downloadable_attachments":[{"id":35859275,"asset_id":9662145,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":23075798,"first_name":"Diane","last_name":"Wild","domain_name":"independent","page_name":"WildDiane","display_name":"Diane Wild","profile_url":"https://independent.academia.edu/WildDiane?f_ri=27171","photo":"https://0.academia-photos.com/23075798/10047646/11208142/s65_diane.wild.jpg_oh_48672109c37eea2d0ef94294bf76319d_oe_566fb676___gda___1446390286_2ee87c549bb70e6704d0f763951ce3d7"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":7125,"name":"Culture","url":"https://www.academia.edu/Documents/in/Culture?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":14406,"name":"Health","url":"https://www.academia.edu/Documents/in/Health?f_ri=27171","nofollow":true},{"id":16635,"name":"Health Services Research","url":"https://www.academia.edu/Documents/in/Health_Services_Research?f_ri=27171"},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":27659,"name":"Applied Economics","url":"https://www.academia.edu/Documents/in/Applied_Economics?f_ri=27171"},{"id":30347,"name":"Translation","url":"https://www.academia.edu/Documents/in/Translation?f_ri=27171"},{"id":46182,"name":"Pharmaceutical industry","url":"https://www.academia.edu/Documents/in/Pharmaceutical_industry?f_ri=27171"},{"id":138027,"name":"Translating","url":"https://www.academia.edu/Documents/in/Translating?f_ri=27171"},{"id":138569,"name":"Advisory Committees","url":"https://www.academia.edu/Documents/in/Advisory_Committees?f_ri=27171"},{"id":321836,"name":"Spectrum","url":"https://www.academia.edu/Documents/in/Spectrum?f_ri=27171"},{"id":323006,"name":"Outcomes Research","url":"https://www.academia.edu/Documents/in/Outcomes_Research?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":1003988,"name":"Good Practice","url":"https://www.academia.edu/Documents/in/Good_Practice?f_ri=27171"},{"id":1296027,"name":"Special Interest Group","url":"https://www.academia.edu/Documents/in/Special_Interest_Group?f_ri=27171"},{"id":2471462,"name":"Sickness Impact Profile","url":"https://www.academia.edu/Documents/in/Sickness_Impact_Profile?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_13122955" data-work_id="13122955" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/13122955/Gastroparesis_Cardinal_Symptom_Index_GCSI_Development_and_validation_of_a_patient_reported_assessment_of_severity_of_gastroparesis_symptoms">Gastroparesis Cardinal Symptom Index (GCSI): Development and validation of a patient reported assessment of severity of gastroparesis symptoms</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: Patient-rated symptom assessments are needed for evaluating the effectiveness of medical treatments and for monitoring outcomes in gastroparesis. Objective: This paper summarizes the development and psychometric evaluation of... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_13122955" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: Patient-rated symptom assessments are needed for evaluating the effectiveness of medical treatments and for monitoring outcomes in gastroparesis. Objective: This paper summarizes the development and psychometric evaluation of a new instrument, the Gastroparesis Cardinal Symptom Index (GCSI), for assessing severity of symptoms associated with gastroparesis. Methods: The GCSI was based on reviews of the medical literature, patient focus groups, and interviews with clinicians. A sample of 169 patients with a documented diagnosis of gastroparesis participated in the psychometric evaluation study. Patients completed the GCSI, the SF-36 Health Survey, and disability days questions at baseline and after 8 weeks. A randomly selected sub-sample of 30 subjects returned at 2 weeks to assess test-retest reliability. Clinicians rated severity of symptoms, and both clinicians and patients rated change in gastroparesisrelated symptoms over the 8 week study. Results: The GCSI is based on three subscales: post-prandial fullness/early satiety (4 items); nausea/vomiting (3 items), and bloating (2 items). Internal consistency reliability was 0.84 for the GCSI total score and ranged from 0.83 to 0.85 for the subscale scores. Two week test-retest reliability was 0.76 for the total score and ranged from 0.68 to 0.81 for subscale scores. Construct validity was supported, given that we observed significant relationships between clinician assessed symptom severity and GCSI total score, significant differences between gastroparesis and dyspepsia patients (n ¼ 760) on GCSI total (p < 0.0001) and subscale scores (p < 0.03 to p < 0.0001), moderate and significant relationships between GCSI total and SF-36 scores, and significant associations between GCSI total score and reports of restricted activity and bed disability days. Patients with greater symptom severity, as rated by clinicians, reported more symptom severity on GCSI total score. GSCI total scores were responsive to changes in overall gastroparesis symptoms as assessed by clinicians (p < 0.0001) and patients (p ¼ 0.0004). Conclusion: The findings of this study indicate that the GCSI is a reliable and valid instrument for measuring symptom severity in patients with gastroparesis.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/13122955" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6ff71ec4c1449b59fe6133cb84541afe" rel="nofollow" data-download="{"attachment_id":45684211,"asset_id":13122955,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45684211/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="32377864" href="https://ulb.academia.edu/DominiqueDubois">Dominique Dubois</a><script data-card-contents-for-user="32377864" type="text/json">{"id":32377864,"first_name":"Dominique","last_name":"Dubois","domain_name":"ulb","page_name":"DominiqueDubois","display_name":"Dominique Dubois","profile_url":"https://ulb.academia.edu/DominiqueDubois?f_ri=27171","photo":"https://0.academia-photos.com/32377864/11642018/12981539/s65_dominique.dubois.jpg_oh_015c3e2adef435a4015ecc38be0ba701_oe_57683262"}</script></span></span></li><li class="js-paper-rank-work_13122955 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="13122955"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 13122955, container: ".js-paper-rank-work_13122955", }); 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$(".js-view-count[data-work-id=13122955]").text(description); $(".js-view-count-work_13122955").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_13122955").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="13122955"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">21</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12426" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment_Outcome">Treatment Outcome</a>, <script data-card-contents-for-ri="12426" type="text/json">{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="22506" rel="nofollow" href="https://www.academia.edu/Documents/in/Adolescent">Adolescent</a>, <script data-card-contents-for-ri="22506" type="text/json">{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a><script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=13122955]'), work: {"id":13122955,"title":"Gastroparesis Cardinal Symptom Index (GCSI): Development and validation of a patient reported assessment of severity of gastroparesis symptoms","created_at":"2015-06-20T07:56:10.531-07:00","url":"https://www.academia.edu/13122955/Gastroparesis_Cardinal_Symptom_Index_GCSI_Development_and_validation_of_a_patient_reported_assessment_of_severity_of_gastroparesis_symptoms?f_ri=27171","dom_id":"work_13122955","summary":"Background: Patient-rated symptom assessments are needed for evaluating the effectiveness of medical treatments and for monitoring outcomes in gastroparesis. Objective: This paper summarizes the development and psychometric evaluation of a new instrument, the Gastroparesis Cardinal Symptom Index (GCSI), for assessing severity of symptoms associated with gastroparesis. Methods: The GCSI was based on reviews of the medical literature, patient focus groups, and interviews with clinicians. A sample of 169 patients with a documented diagnosis of gastroparesis participated in the psychometric evaluation study. Patients completed the GCSI, the SF-36 Health Survey, and disability days questions at baseline and after 8 weeks. A randomly selected sub-sample of 30 subjects returned at 2 weeks to assess test-retest reliability. Clinicians rated severity of symptoms, and both clinicians and patients rated change in gastroparesisrelated symptoms over the 8 week study. Results: The GCSI is based on three subscales: post-prandial fullness/early satiety (4 items); nausea/vomiting (3 items), and bloating (2 items). Internal consistency reliability was 0.84 for the GCSI total score and ranged from 0.83 to 0.85 for the subscale scores. Two week test-retest reliability was 0.76 for the total score and ranged from 0.68 to 0.81 for subscale scores. Construct validity was supported, given that we observed significant relationships between clinician assessed symptom severity and GCSI total score, significant differences between gastroparesis and dyspepsia patients (n ¼ 760) on GCSI total (p \u003c 0.0001) and subscale scores (p \u003c 0.03 to p \u003c 0.0001), moderate and significant relationships between GCSI total and SF-36 scores, and significant associations between GCSI total score and reports of restricted activity and bed disability days. Patients with greater symptom severity, as rated by clinicians, reported more symptom severity on GCSI total score. GSCI total scores were responsive to changes in overall gastroparesis symptoms as assessed by clinicians (p \u003c 0.0001) and patients (p ¼ 0.0004). Conclusion: The findings of this study indicate that the GCSI is a reliable and valid instrument for measuring symptom severity in patients with gastroparesis.","downloadable_attachments":[{"id":45684211,"asset_id":13122955,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":32377864,"first_name":"Dominique","last_name":"Dubois","domain_name":"ulb","page_name":"DominiqueDubois","display_name":"Dominique Dubois","profile_url":"https://ulb.academia.edu/DominiqueDubois?f_ri=27171","photo":"https://0.academia-photos.com/32377864/11642018/12981539/s65_dominique.dubois.jpg_oh_015c3e2adef435a4015ecc38be0ba701_oe_57683262"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":75826,"name":"Europe","url":"https://www.academia.edu/Documents/in/Europe?f_ri=27171"},{"id":98134,"name":"United States","url":"https://www.academia.edu/Documents/in/United_States?f_ri=27171"},{"id":104434,"name":"Construct Validity","url":"https://www.academia.edu/Documents/in/Construct_Validity?f_ri=27171"},{"id":113272,"name":"Focus Group","url":"https://www.academia.edu/Documents/in/Focus_Group?f_ri=27171"},{"id":138995,"name":"Dyspepsia","url":"https://www.academia.edu/Documents/in/Dyspepsia?f_ri=27171"},{"id":289271,"name":"Aged","url":"https://www.academia.edu/Documents/in/Aged?f_ri=27171"},{"id":298035,"name":"Validity and Reliability","url":"https://www.academia.edu/Documents/in/Validity_and_Reliability?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":344588,"name":"Self Assessment","url":"https://www.academia.edu/Documents/in/Self_Assessment?f_ri=27171"},{"id":375247,"name":"Evaluation Studies","url":"https://www.academia.edu/Documents/in/Evaluation_Studies?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":466424,"name":"Internationality","url":"https://www.academia.edu/Documents/in/Internationality?f_ri=27171"},{"id":525333,"name":"total P","url":"https://www.academia.edu/Documents/in/total_P?f_ri=27171"},{"id":749302,"name":"Indexation","url":"https://www.academia.edu/Documents/in/Indexation?f_ri=27171"},{"id":842184,"name":"Quality Life","url":"https://www.academia.edu/Documents/in/Quality_Life?f_ri=27171"},{"id":1265252,"name":"Health Survey","url":"https://www.academia.edu/Documents/in/Health_Survey?f_ri=27171"},{"id":1881146,"name":"Medical Treatment","url":"https://www.academia.edu/Documents/in/Medical_Treatment?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_8632013" data-work_id="8632013" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/8632013/Parental_involvement_Social_anxiety_Parent_Emotion_Adolescent_Can_parent_training_for_parents_with_high_levels_of_expressed_emotion_have_a_positive_effect_on_their_childs_social_anxiety_improvement">Parental involvement. Social anxiety. Parent. Emotion. Adolescent. Can parent training for parents with high levels of expressed emotion have a positive effect on their child's social anxiety improvement?</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Highlights • Benefit of parental involvement in therapy when parents exhibit high expressed emotion (EE). • Addition of parent training improves child's symptom reduction and diagnosis remission. • At follow-up, adolescents’... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_8632013" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Highlights <br /> <br />•  Benefit of parental involvement in therapy when parents exhibit high expressed emotion (EE). <br />•  Addition of parent training improves child's symptom reduction and diagnosis remission. <br />•  At follow-up, adolescents’ treatment outcomes were maintained. <br />• Parents’ EE status changed from high to low after receiving parent training. <br />. Decrease in parental EE level had further impact on the child's improvement. <br /> <br />Abstract <br />The role that parents’ involvement may play in improving their child's social anxiety is still under debate. This paper aimed to investigate whether training parents with high expressed emotion (EE) could improve outcomes for adolescent social anxiety intervention. Fifty-two socially anxious adolescents (aged 13–18 years), whose parents exhibited high levels of expressed emotion, were assigned to either (a) a school-based intervention with an added parent training component, or (b) a school-based program focused solely on intervening with the adolescent (no parental involvement). Post-treatment and 12-month follow-up findings showed that school-based intervention with parent training was superior to the adolescent-specific program, yielding significant reductions in diagnosis remission, social and depressive symptomatology, particularly when the EE status of parents changed. Overall, the findings suggest that high-EE parents of children with social anxiety need to be involved in their child's therapy.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/8632013" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="83eb49a6d4d4677de01fd3c6ae320953" rel="nofollow" data-download="{"attachment_id":34994053,"asset_id":8632013,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/34994053/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="37848" href="https://ujaen.academia.edu/LuisJoaquinGarciaLopez">LuisJoaquin Garcia-Lopez, Ph.D.</a><script data-card-contents-for-user="37848" type="text/json">{"id":37848,"first_name":"LuisJoaquin","last_name":"Garcia-Lopez, Ph.D.","domain_name":"ujaen","page_name":"LuisJoaquinGarciaLopez","display_name":"LuisJoaquin Garcia-Lopez, Ph.D.","profile_url":"https://ujaen.academia.edu/LuisJoaquinGarciaLopez?f_ri=27171","photo":"https://0.academia-photos.com/37848/1897205/2249641/s65_luisjoaquin.garcia-lopez_ph.d..jpg"}</script></span></span></li><li class="js-paper-rank-work_8632013 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="8632013"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 8632013, container: ".js-paper-rank-work_8632013", }); });</script></li><li class="js-percentile-work_8632013 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 8632013; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_8632013"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_8632013 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="8632013"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 8632013; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=8632013]").text(description); $(".js-view-count-work_8632013").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_8632013").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="8632013"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">53</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="221" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychology">Psychology</a>, <script data-card-contents-for-ri="221" type="text/json">{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="226" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Psychology">Clinical Psychology</a>, <script data-card-contents-for-ri="226" type="text/json">{"id":226,"name":"Clinical Psychology","url":"https://www.academia.edu/Documents/in/Clinical_Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="238" rel="nofollow" href="https://www.academia.edu/Documents/in/Community_Psychology">Community Psychology</a>, <script data-card-contents-for-ri="238" type="text/json">{"id":238,"name":"Community Psychology","url":"https://www.academia.edu/Documents/in/Community_Psychology?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="254" rel="nofollow" href="https://www.academia.edu/Documents/in/Emotion">Emotion</a><script data-card-contents-for-ri="254" type="text/json">{"id":254,"name":"Emotion","url":"https://www.academia.edu/Documents/in/Emotion?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=8632013]'), work: {"id":8632013,"title":"Parental involvement. Social anxiety. Parent. Emotion. Adolescent. Can parent training for parents with high levels of expressed emotion have a positive effect on their child's social anxiety improvement?","created_at":"2014-10-04T04:59:57.169-07:00","url":"https://www.academia.edu/8632013/Parental_involvement_Social_anxiety_Parent_Emotion_Adolescent_Can_parent_training_for_parents_with_high_levels_of_expressed_emotion_have_a_positive_effect_on_their_childs_social_anxiety_improvement?f_ri=27171","dom_id":"work_8632013","summary":"Highlights\r\n\r\n• Benefit of parental involvement in therapy when parents exhibit high expressed emotion (EE).\r\n• Addition of parent training improves child's symptom reduction and diagnosis remission.\r\n• At follow-up, adolescents’ treatment outcomes were maintained.\r\n• Parents’ EE status changed from high to low after receiving parent training.\r\n. Decrease in parental EE level had further impact on the child's improvement.\r\n\r\nAbstract\r\nThe role that parents’ involvement may play in improving their child's social anxiety is still under debate. This paper aimed to investigate whether training parents with high expressed emotion (EE) could improve outcomes for adolescent social anxiety intervention. Fifty-two socially anxious adolescents (aged 13–18 years), whose parents exhibited high levels of expressed emotion, were assigned to either (a) a school-based intervention with an added parent training component, or (b) a school-based program focused solely on intervening with the adolescent (no parental involvement). Post-treatment and 12-month follow-up findings showed that school-based intervention with parent training was superior to the adolescent-specific program, yielding significant reductions in diagnosis remission, social and depressive symptomatology, particularly when the EE status of parents changed. Overall, the findings suggest that high-EE parents of children with social anxiety need to be involved in their child's therapy.","downloadable_attachments":[{"id":34994053,"asset_id":8632013,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":37848,"first_name":"LuisJoaquin","last_name":"Garcia-Lopez, Ph.D.","domain_name":"ujaen","page_name":"LuisJoaquinGarciaLopez","display_name":"LuisJoaquin Garcia-Lopez, Ph.D.","profile_url":"https://ujaen.academia.edu/LuisJoaquinGarciaLopez?f_ri=27171","photo":"https://0.academia-photos.com/37848/1897205/2249641/s65_luisjoaquin.garcia-lopez_ph.d..jpg"}],"research_interests":[{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology?f_ri=27171","nofollow":true},{"id":226,"name":"Clinical Psychology","url":"https://www.academia.edu/Documents/in/Clinical_Psychology?f_ri=27171","nofollow":true},{"id":238,"name":"Community 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u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/28151016/Esiti_riferiti_dal_paziente_Patient_Reported_Outcome_Concetti_metodi_strumenti_Dossier_238_2014">Esiti riferiti dal paziente. Patient Reported Outcome. Concetti, metodi, strumenti. Dossier 238/2014</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Progetto CCM (anno 2009) "Valutazione della performance: programma di Valutazione delle decisioni e delle attività delle strutture sanitarie" -"Definire un metodo di rilevazione degli esiti riferiti dai pazienti" Obiettivo n. 6 "Sviluppo... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_28151016" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Progetto CCM (anno 2009) "Valutazione della performance: programma di Valutazione delle decisioni e delle attività delle strutture sanitarie" -"Definire un metodo di rilevazione degli esiti riferiti dai pazienti" Obiettivo n. 6 "Sviluppo di apposito questionario per la misura degli esiti riferiti dal paziente. Stesura e pubblicazione di un rapporto contenente i risultati del programma" Unità operativa 6 Agenzia sanitaria e sociale regionale dell'Emilia-Romagna La collana Dossier è curata dall'Area di programma Sviluppo delle professionalità per l'assistenza e la salute dell'Agenzia sanitaria e sociale regionale dell'Emilia-Romagna responsabile Corrado Ruozi redazione e impaginazione Federica Sarti Stampa Regione Emilia-Romagna, Bologna, aprile 2014 Copia del volume può essere richiesta a Federica Sarti -Agenzia sanitaria e sociale regionale dell'Emilia-Romagna oppure può essere scaricata dal sito Internet</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/28151016" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="d94aba74127e0907c593ac4b7f35c242" rel="nofollow" data-download="{"attachment_id":48485638,"asset_id":28151016,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/48485638/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="30578919" href="https://independent.academia.edu/StefaniaRodella">Stefania Rodella</a><script data-card-contents-for-user="30578919" type="text/json">{"id":30578919,"first_name":"Stefania","last_name":"Rodella","domain_name":"independent","page_name":"StefaniaRodella","display_name":"Stefania Rodella","profile_url":"https://independent.academia.edu/StefaniaRodella?f_ri=27171","photo":"https://0.academia-photos.com/30578919/13736023/14875214/s65_stefania.rodella.jpg"}</script></span></span></li><li class="js-paper-rank-work_28151016 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="28151016"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 28151016, container: ".js-paper-rank-work_28151016", }); 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$(".js-view-count[data-work-id=28151016]").text(description); $(".js-view-count-work_28151016").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_28151016").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="28151016"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="82844" rel="nofollow" href="https://www.academia.edu/Documents/in/Health_related_Quality_of_Life">Health related Quality of Life</a><script data-card-contents-for-ri="82844" type="text/json">{"id":82844,"name":"Health related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=28151016]'), work: {"id":28151016,"title":"Esiti riferiti dal paziente. Patient Reported Outcome. Concetti, metodi, strumenti. Dossier 238/2014","created_at":"2016-08-31T05:35:43.875-07:00","url":"https://www.academia.edu/28151016/Esiti_riferiti_dal_paziente_Patient_Reported_Outcome_Concetti_metodi_strumenti_Dossier_238_2014?f_ri=27171","dom_id":"work_28151016","summary":"Progetto CCM (anno 2009) \"Valutazione della performance: programma di Valutazione delle decisioni e delle attività delle strutture sanitarie\" -\"Definire un metodo di rilevazione degli esiti riferiti dai pazienti\" Obiettivo n. 6 \"Sviluppo di apposito questionario per la misura degli esiti riferiti dal paziente. Stesura e pubblicazione di un rapporto contenente i risultati del programma\" Unità operativa 6 Agenzia sanitaria e sociale regionale dell'Emilia-Romagna La collana Dossier è curata dall'Area di programma Sviluppo delle professionalità per l'assistenza e la salute dell'Agenzia sanitaria e sociale regionale dell'Emilia-Romagna responsabile Corrado Ruozi redazione e impaginazione Federica Sarti Stampa Regione Emilia-Romagna, Bologna, aprile 2014 Copia del volume può essere richiesta a Federica Sarti -Agenzia sanitaria e sociale regionale dell'Emilia-Romagna oppure può essere scaricata dal sito Internet","downloadable_attachments":[{"id":48485638,"asset_id":28151016,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":30578919,"first_name":"Stefania","last_name":"Rodella","domain_name":"independent","page_name":"StefaniaRodella","display_name":"Stefania Rodella","profile_url":"https://independent.academia.edu/StefaniaRodella?f_ri=27171","photo":"https://0.academia-photos.com/30578919/13736023/14875214/s65_stefania.rodella.jpg"}],"research_interests":[{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":82844,"name":"Health related Quality of Life","url":"https://www.academia.edu/Documents/in/Health_related_Quality_of_Life?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_21256135" data-work_id="21256135" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/21256135/Evaluation_and_treatment_of_female_sexual_disorders">Evaluation and treatment of female sexual disorders</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Prevalence data suggest that more than 40% of women experience sexual problems and that 12% of these women are distressed by the problem. In the 1960s, Masters and Johnson introduced what is now considered the classic linear model of... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_21256135" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Prevalence data suggest that more than 40% of women experience sexual problems and that 12% of these women are distressed by the problem. In the 1960s, Masters and Johnson introduced what is now considered the classic linear model of female sexual response based on a physiologic foundation. Recently, Rosemary Basson introduced a nonlinear interconnected model which emphasizes the importance of emotional intimacy and satisfaction as integral components of the female sexual response cycle. According to the Diagnostic and Statistical Manual (DSM-IV TR), there are six female sexual disorders: hypoactive sexual desire disorder, aversion disorder, sexual arousal disorder, female orgasmic disorder, vaginismus, and dyspareunia. Despite the high prevalence, few healthcare professionals take the time or feel adequately trained to assess and treat these sexual problems. Sexuality questionnaires play an integral role in the diagnosis and treatment of male and female sexual dysfunctions. They are used to (1) identify/diagnose individuals with a particular dysfunction, (2) assess the severity of the dysfunction, (3) measure improvement or satisfaction with treatment, (4) examine the impact of the dysfunction on the individual's quality of life (relationship satisfaction, mood, sexual confidence), and (5) study the impact of the dysfunction on the partner and his or her quality of life. Patient-reported outcomes (PRO) are increasingly important in both clinical practice and research settings. The instruments reviewed have played a significant role in furthering our understanding of the impact of female sexual function on the patient and partner and its treatment. It is important for the clinician and researcher to familiarize themselves with the best available measures for identifying specific dysfunctions, measuring distress due to the sexual dysfunction, assessing treatment efficacy, and objectively evaluating the quality of life issues of women with these dysfunctions. However, even the best PRO cannot replace the clinician-patient interview and the careful gathering of the patient's sexual history. PROs should always be interpreted and integrated with the woman's history.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/21256135" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="7e9d33069585211fb564219982c44f9c" rel="nofollow" data-download="{"attachment_id":41784764,"asset_id":21256135,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/41784764/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="42380362" href="https://independent.academia.edu/SAlthof">Stanley Althof</a><script data-card-contents-for-user="42380362" type="text/json">{"id":42380362,"first_name":"Stanley","last_name":"Althof","domain_name":"independent","page_name":"SAlthof","display_name":"Stanley Althof","profile_url":"https://independent.academia.edu/SAlthof?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_21256135 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="21256135"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 21256135, container: ".js-paper-rank-work_21256135", }); 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$(".js-view-count[data-work-id=21256135]").text(description); $(".js-view-count-work_21256135").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_21256135").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="21256135"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">10</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="1319" rel="nofollow" href="https://www.academia.edu/Documents/in/Sexual_Dysfunction">Sexual Dysfunction</a>, <script data-card-contents-for-ri="1319" type="text/json">{"id":1319,"name":"Sexual Dysfunction","url":"https://www.academia.edu/Documents/in/Sexual_Dysfunction?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="52836" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Practice">Clinical Practice</a><script data-card-contents-for-ri="52836" type="text/json">{"id":52836,"name":"Clinical Practice","url":"https://www.academia.edu/Documents/in/Clinical_Practice?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=21256135]'), work: {"id":21256135,"title":"Evaluation and treatment of female sexual disorders","created_at":"2016-01-30T11:07:48.943-08:00","url":"https://www.academia.edu/21256135/Evaluation_and_treatment_of_female_sexual_disorders?f_ri=27171","dom_id":"work_21256135","summary":"Prevalence data suggest that more than 40% of women experience sexual problems and that 12% of these women are distressed by the problem. In the 1960s, Masters and Johnson introduced what is now considered the classic linear model of female sexual response based on a physiologic foundation. Recently, Rosemary Basson introduced a nonlinear interconnected model which emphasizes the importance of emotional intimacy and satisfaction as integral components of the female sexual response cycle. According to the Diagnostic and Statistical Manual (DSM-IV TR), there are six female sexual disorders: hypoactive sexual desire disorder, aversion disorder, sexual arousal disorder, female orgasmic disorder, vaginismus, and dyspareunia. Despite the high prevalence, few healthcare professionals take the time or feel adequately trained to assess and treat these sexual problems. Sexuality questionnaires play an integral role in the diagnosis and treatment of male and female sexual dysfunctions. They are used to (1) identify/diagnose individuals with a particular dysfunction, (2) assess the severity of the dysfunction, (3) measure improvement or satisfaction with treatment, (4) examine the impact of the dysfunction on the individual's quality of life (relationship satisfaction, mood, sexual confidence), and (5) study the impact of the dysfunction on the partner and his or her quality of life. Patient-reported outcomes (PRO) are increasingly important in both clinical practice and research settings. The instruments reviewed have played a significant role in furthering our understanding of the impact of female sexual function on the patient and partner and its treatment. It is important for the clinician and researcher to familiarize themselves with the best available measures for identifying specific dysfunctions, measuring distress due to the sexual dysfunction, assessing treatment efficacy, and objectively evaluating the quality of life issues of women with these dysfunctions. However, even the best PRO cannot replace the clinician-patient interview and the careful gathering of the patient's sexual history. PROs should always be interpreted and integrated with the woman's history.","downloadable_attachments":[{"id":41784764,"asset_id":21256135,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":42380362,"first_name":"Stanley","last_name":"Althof","domain_name":"independent","page_name":"SAlthof","display_name":"Stanley Althof","profile_url":"https://independent.academia.edu/SAlthof?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":1319,"name":"Sexual Dysfunction","url":"https://www.academia.edu/Documents/in/Sexual_Dysfunction?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":52836,"name":"Clinical Practice","url":"https://www.academia.edu/Documents/in/Clinical_Practice?f_ri=27171","nofollow":true},{"id":56503,"name":"Linear Model","url":"https://www.academia.edu/Documents/in/Linear_Model?f_ri=27171"},{"id":117796,"name":"Urogynecology","url":"https://www.academia.edu/Documents/in/Urogynecology?f_ri=27171"},{"id":208587,"name":"Female Sexual Dysfunction","url":"https://www.academia.edu/Documents/in/Female_Sexual_Dysfunction?f_ri=27171"},{"id":210691,"name":"Sexual Arousal","url":"https://www.academia.edu/Documents/in/Sexual_Arousal?f_ri=27171"},{"id":222719,"name":"Interconnect Modeling","url":"https://www.academia.edu/Documents/in/Interconnect_Modeling?f_ri=27171"},{"id":723979,"name":"Sexual Function","url":"https://www.academia.edu/Documents/in/Sexual_Function?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_15140026" data-work_id="15140026" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/15140026/The_Upper_Limb_Functional_Index_Development_and_Determination_of_Reliability_Validity_and_Responsiveness">The Upper Limb Functional Index: Development and Determination of Reliability, Validity, and Responsiveness</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Purpose. Current upper limb regional self-report outcome measures are criticized for poor clinical utility, including length, ease, and time to complete and score, missing responses, and poor psychometric properties. To address these... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_15140026" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Purpose. Current upper limb regional self-report outcome measures are criticized for poor clinical utility, including length, ease, and time to complete and score, missing responses, and poor psychometric properties. To address these concerns a new measure, the Upper Limb Functional Index (ULFI), was developed with reliability, validity, and responsiveness being determined in a prospective study. Methods. Patients from nine Australian outpatient settings completed the ULFI and two established scales, the Disabilities of the Arm, Shoulder, and Hand (DASH) (n ¼ 214) and the Upper Extremity Functional Scale (UEFS) (n ¼ 64) concurrently to enable construct and criterion validity to be assessed. Two subgroups were used to assess test-retest reliability at 48-hour intervals (n ¼ 46) and responsiveness through distribution-based methods (n ¼ 29). Internal consistency, change scores, and missing responses were calculated. Practical characteristics of the scale were assessed. Results. The ULFI correlated with the DASH (r ¼ 0.85; 95% CI) and UEFS (r ¼ 0.78; 95% confidence interval [CI]), demonstrated testretest reliability (intraclass correlation coefficient ¼ 0.96; 95% CI) and internal consistency (Cronbach alpha ¼ 0.89). The change scores of the ULFI with standard error of the measurement was 4.5% or 1.13 ULFI-points and minimal detectable change at the 90% CI was 10.4% or 2.6 ULFI-points. Responsiveness indices were standardized response mean at 1.87 and effect size at 1.28. The ULFI demonstrated an impairment range of 0-100%, with no missing responses and a combined patient completion and therapist scoring time of less than 3 minutes. Conclusions. The ULFI demonstrated sound psychometric properties, practical characteristics, and clinical utility thereby making it a viable clinical outcome tool for the determination of upper limb status and impairment. The ULFI is suggested as the preferred upper limb regional tool due to its superior practical characteristics and clinical utility, and comparable psychometric properties without a tendency toward item redundancy.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/15140026" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="8bd556c870ceca2e3272b334aa5ab584" rel="nofollow" data-download="{"attachment_id":43539974,"asset_id":15140026,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/43539974/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="34178023" href="https://independent.academia.edu/BurkettBrendan">Brendan Burkett</a><script data-card-contents-for-user="34178023" type="text/json">{"id":34178023,"first_name":"Brendan","last_name":"Burkett","domain_name":"independent","page_name":"BurkettBrendan","display_name":"Brendan Burkett","profile_url":"https://independent.academia.edu/BurkettBrendan?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span></li><li class="js-paper-rank-work_15140026 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="15140026"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 15140026, container: ".js-paper-rank-work_15140026", }); });</script></li><li class="js-percentile-work_15140026 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 15140026; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_15140026"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_15140026 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="15140026"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 15140026; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=15140026]").text(description); $(".js-view-count-work_15140026").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_15140026").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="15140026"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">13</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="16386" rel="nofollow" href="https://www.academia.edu/Documents/in/Hand_Therapy">Hand Therapy</a>, <script data-card-contents-for-ri="16386" type="text/json">{"id":16386,"name":"Hand Therapy","url":"https://www.academia.edu/Documents/in/Hand_Therapy?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="62112" rel="nofollow" href="https://www.academia.edu/Documents/in/Prospective_studies">Prospective studies</a><script data-card-contents-for-ri="62112" type="text/json">{"id":62112,"name":"Prospective studies","url":"https://www.academia.edu/Documents/in/Prospective_studies?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=15140026]'), work: {"id":15140026,"title":"The Upper Limb Functional Index: Development and Determination of Reliability, Validity, and Responsiveness","created_at":"2015-08-24T03:32:18.133-07:00","url":"https://www.academia.edu/15140026/The_Upper_Limb_Functional_Index_Development_and_Determination_of_Reliability_Validity_and_Responsiveness?f_ri=27171","dom_id":"work_15140026","summary":"Purpose. Current upper limb regional self-report outcome measures are criticized for poor clinical utility, including length, ease, and time to complete and score, missing responses, and poor psychometric properties. To address these concerns a new measure, the Upper Limb Functional Index (ULFI), was developed with reliability, validity, and responsiveness being determined in a prospective study. Methods. Patients from nine Australian outpatient settings completed the ULFI and two established scales, the Disabilities of the Arm, Shoulder, and Hand (DASH) (n ¼ 214) and the Upper Extremity Functional Scale (UEFS) (n ¼ 64) concurrently to enable construct and criterion validity to be assessed. Two subgroups were used to assess test-retest reliability at 48-hour intervals (n ¼ 46) and responsiveness through distribution-based methods (n ¼ 29). Internal consistency, change scores, and missing responses were calculated. Practical characteristics of the scale were assessed. Results. The ULFI correlated with the DASH (r ¼ 0.85; 95% CI) and UEFS (r ¼ 0.78; 95% confidence interval [CI]), demonstrated testretest reliability (intraclass correlation coefficient ¼ 0.96; 95% CI) and internal consistency (Cronbach alpha ¼ 0.89). The change scores of the ULFI with standard error of the measurement was 4.5% or 1.13 ULFI-points and minimal detectable change at the 90% CI was 10.4% or 2.6 ULFI-points. Responsiveness indices were standardized response mean at 1.87 and effect size at 1.28. The ULFI demonstrated an impairment range of 0-100%, with no missing responses and a combined patient completion and therapist scoring time of less than 3 minutes. Conclusions. The ULFI demonstrated sound psychometric properties, practical characteristics, and clinical utility thereby making it a viable clinical outcome tool for the determination of upper limb status and impairment. The ULFI is suggested as the preferred upper limb regional tool due to its superior practical characteristics and clinical utility, and comparable psychometric properties without a tendency toward item redundancy.","downloadable_attachments":[{"id":43539974,"asset_id":15140026,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":34178023,"first_name":"Brendan","last_name":"Burkett","domain_name":"independent","page_name":"BurkettBrendan","display_name":"Brendan Burkett","profile_url":"https://independent.academia.edu/BurkettBrendan?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":16386,"name":"Hand Therapy","url":"https://www.academia.edu/Documents/in/Hand_Therapy?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":62112,"name":"Prospective studies","url":"https://www.academia.edu/Documents/in/Prospective_studies?f_ri=27171","nofollow":true},{"id":203835,"name":"Psychometric Properties","url":"https://www.academia.edu/Documents/in/Psychometric_Properties?f_ri=27171"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":549280,"name":"Reproducibility of Results","url":"https://www.academia.edu/Documents/in/Reproducibility_of_Results?f_ri=27171"},{"id":749302,"name":"Indexation","url":"https://www.academia.edu/Documents/in/Indexation?f_ri=27171"},{"id":780852,"name":"Upper Extremity","url":"https://www.academia.edu/Documents/in/Upper_Extremity?f_ri=27171"},{"id":963781,"name":"Upper Limb","url":"https://www.academia.edu/Documents/in/Upper_Limb?f_ri=27171"},{"id":1262481,"name":"Pain Measurement","url":"https://www.academia.edu/Documents/in/Pain_Measurement?f_ri=27171"},{"id":1312754,"name":"Prospective Study","url":"https://www.academia.edu/Documents/in/Prospective_Study?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_13042532 coauthored" data-work_id="13042532" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/13042532/Guidelines_for_the_Design_and_Conduct_of_Clinical_Studies_in_Knee_Articular_Cartilage_Repair_International_Cartilage_Repair_Society_Recommendations_Based_on_Current_Scientific_Evidence_and_Standards_of_Clinical_Care">Guidelines for the Design and Conduct of Clinical Studies in Knee Articular Cartilage Repair: International Cartilage Repair Society Recommendations Based on Current Scientific Evidence and Standards of Clinical Care</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objective: To summarize current clinical research practice and develop methodological standards for objective scientific evaluation of knee cartilage repair procedures and products. Design: A comprehensive literature review was performed... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_13042532" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objective: To summarize current clinical research practice and develop methodological standards for objective scientific evaluation of knee cartilage repair procedures and products. Design: A comprehensive literature review was performed of high-level original studies providing information relevant for the design of clinical studies on articular cartilage repair in the knee. Analysis of cartilage repair publications and synopses of ongoing trials were</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/13042532" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a18da335715d306db7a225e45ca9bcc5" rel="nofollow" data-download="{"attachment_id":45747985,"asset_id":13042532,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/45747985/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="32276503" href="https://unibo.academia.edu/ElizavetaKon">Elizaveta Kon</a><script data-card-contents-for-user="32276503" type="text/json">{"id":32276503,"first_name":"Elizaveta","last_name":"Kon","domain_name":"unibo","page_name":"ElizavetaKon","display_name":"Elizaveta Kon","profile_url":"https://unibo.academia.edu/ElizavetaKon?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-13042532">+2</span><div class="hidden js-additional-users-13042532"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/DSaris">D. Saris</a></span></div><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://vcu.academia.edu/KenZaslav">Ken Zaslav</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-13042532'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-13042532').html(); } } new HoverPopover(popoverSettings); })();</script></li><li class="js-paper-rank-work_13042532 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="13042532"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 13042532, container: ".js-paper-rank-work_13042532", }); });</script></li><li class="js-percentile-work_13042532 InlineList-item InlineList-item--bordered hidden u-tcGrayDark"><span class="percentile-widget hidden"><span class="u-mr2x percentile-widget" style="display: none">•</span><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 13042532; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-percentile-work_13042532"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_13042532 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="13042532"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 13042532; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=13042532]").text(description); $(".js-view-count-work_13042532").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_13042532").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="13042532"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">15</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="4531" rel="nofollow" href="https://www.academia.edu/Documents/in/Clinical_Trial">Clinical Trial</a>, <script data-card-contents-for-ri="4531" type="text/json">{"id":4531,"name":"Clinical Trial","url":"https://www.academia.edu/Documents/in/Clinical_Trial?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="6514" rel="nofollow" href="https://www.academia.edu/Documents/in/Product_Design">Product Design</a>, <script data-card-contents-for-ri="6514" type="text/json">{"id":6514,"name":"Product Design","url":"https://www.academia.edu/Documents/in/Product_Design?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="44293" rel="nofollow" href="https://www.academia.edu/Documents/in/Literature_Review">Literature Review</a><script data-card-contents-for-ri="44293" type="text/json">{"id":44293,"name":"Literature Review","url":"https://www.academia.edu/Documents/in/Literature_Review?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=13042532]'), work: {"id":13042532,"title":"Guidelines for the Design and Conduct of Clinical Studies in Knee Articular Cartilage Repair: International Cartilage Repair Society Recommendations Based on Current Scientific Evidence and Standards of Clinical Care","created_at":"2015-06-17T01:40:47.647-07:00","url":"https://www.academia.edu/13042532/Guidelines_for_the_Design_and_Conduct_of_Clinical_Studies_in_Knee_Articular_Cartilage_Repair_International_Cartilage_Repair_Society_Recommendations_Based_on_Current_Scientific_Evidence_and_Standards_of_Clinical_Care?f_ri=27171","dom_id":"work_13042532","summary":"Objective: To summarize current clinical research practice and develop methodological standards for objective scientific evaluation of knee cartilage repair procedures and products. 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Saris","profile_url":"https://independent.academia.edu/DSaris?f_ri=27171","photo":"/images/s65_no_pic.png"},{"id":32406328,"first_name":"Ken","last_name":"Zaslav","domain_name":"vcu","page_name":"KenZaslav","display_name":"Ken Zaslav","profile_url":"https://vcu.academia.edu/KenZaslav?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":4531,"name":"Clinical Trial","url":"https://www.academia.edu/Documents/in/Clinical_Trial?f_ri=27171","nofollow":true},{"id":6514,"name":"Product Design","url":"https://www.academia.edu/Documents/in/Product_Design?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":44293,"name":"Literature Review","url":"https://www.academia.edu/Documents/in/Literature_Review?f_ri=27171","nofollow":true},{"id":66110,"name":"Clinical research","url":"https://www.academia.edu/Documents/in/Clinical_research?f_ri=27171"},{"id":78188,"name":"Cartilage","url":"https://www.academia.edu/Documents/in/Cartilage?f_ri=27171"},{"id":226451,"name":"Cartilage Repair","url":"https://www.academia.edu/Documents/in/Cartilage_Repair?f_ri=27171"},{"id":413196,"name":"Randomized Controlled Trial","url":"https://www.academia.edu/Documents/in/Randomized_Controlled_Trial?f_ri=27171"},{"id":538554,"name":"Study design","url":"https://www.academia.edu/Documents/in/Study_design?f_ri=27171"},{"id":546356,"name":"Clinical Study","url":"https://www.academia.edu/Documents/in/Clinical_Study?f_ri=27171"},{"id":994520,"name":"Design and Implementation","url":"https://www.academia.edu/Documents/in/Design_and_Implementation?f_ri=27171"},{"id":1145265,"name":"Knee Joint","url":"https://www.academia.edu/Documents/in/Knee_Joint?f_ri=27171"},{"id":1146501,"name":"Articular Cartilage","url":"https://www.academia.edu/Documents/in/Articular_Cartilage?f_ri=27171"},{"id":1631043,"name":"Control Group","url":"https://www.academia.edu/Documents/in/Control_Group?f_ri=27171"},{"id":1666741,"name":"Clinical evaluation","url":"https://www.academia.edu/Documents/in/Clinical_evaluation?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_9335648" data-work_id="9335648" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/9335648/Primary_Anatomic_Double_Bundle_Anterior_Cruciate_Ligament_ReconstructionA_Preliminary_2Year_Prospective_Study">Primary Anatomic Double-Bundle Anterior Cruciate Ligament ReconstructionA Preliminary 2Year Prospective Study</a></div></div><div class="u-pb4x u-mt3x"></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/9335648" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="a6beb5f79edc9655c72d68cf8748f543" rel="nofollow" data-download="{"attachment_id":35593042,"asset_id":9335648,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/35593042/download_file?st=MTczOTgxMzQ4Miw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down 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data-has-card-for-ri="60" rel="nofollow" href="https://www.academia.edu/Documents/in/Mechanical_Engineering">Mechanical Engineering</a>, <script data-card-contents-for-ri="60" type="text/json">{"id":60,"name":"Mechanical Engineering","url":"https://www.academia.edu/Documents/in/Mechanical_Engineering?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="1131" rel="nofollow" href="https://www.academia.edu/Documents/in/Biomedical_Engineering">Biomedical Engineering</a>, <script data-card-contents-for-ri="1131" type="text/json">{"id":1131,"name":"Biomedical Engineering","url":"https://www.academia.edu/Documents/in/Biomedical_Engineering?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="12426" rel="nofollow" href="https://www.academia.edu/Documents/in/Treatment_Outcome">Treatment Outcome</a>, <script data-card-contents-for-ri="12426" type="text/json">{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="22506" rel="nofollow" href="https://www.academia.edu/Documents/in/Adolescent">Adolescent</a><script data-card-contents-for-ri="22506" type="text/json">{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=9335648]'), work: {"id":9335648,"title":"Primary Anatomic Double-Bundle Anterior Cruciate Ligament ReconstructionA Preliminary 2Year Prospective 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Engineering","url":"https://www.academia.edu/Documents/in/Biomedical_Engineering?f_ri=27171","nofollow":true},{"id":12426,"name":"Treatment Outcome","url":"https://www.academia.edu/Documents/in/Treatment_Outcome?f_ri=27171","nofollow":true},{"id":22506,"name":"Adolescent","url":"https://www.academia.edu/Documents/in/Adolescent?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171"},{"id":44530,"name":"Muscle strength","url":"https://www.academia.edu/Documents/in/Muscle_strength?f_ri=27171"},{"id":48627,"name":"Anterior Cruciate Ligament","url":"https://www.academia.edu/Documents/in/Anterior_Cruciate_Ligament?f_ri=27171"},{"id":62112,"name":"Prospective studies","url":"https://www.academia.edu/Documents/in/Prospective_studies?f_ri=27171"},{"id":538554,"name":"Study design","url":"https://www.academia.edu/Documents/in/Study_design?f_ri=27171"},{"id":627171,"name":"Joint Instability","url":"https://www.academia.edu/Documents/in/Joint_Instability?f_ri=27171"},{"id":980294,"name":"Range of Motion","url":"https://www.academia.edu/Documents/in/Range_of_Motion?f_ri=27171"},{"id":1312754,"name":"Prospective Study","url":"https://www.academia.edu/Documents/in/Prospective_Study?f_ri=27171"},{"id":1863718,"name":"The American","url":"https://www.academia.edu/Documents/in/The_American?f_ri=27171"},{"id":2195821,"name":"Activity of Daily Living","url":"https://www.academia.edu/Documents/in/Activity_of_Daily_Living?f_ri=27171"},{"id":2463621,"name":"Postoperative Complications","url":"https://www.academia.edu/Documents/in/Postoperative_Complications?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_33888479 coauthored" data-work_id="33888479" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/33888479/The_Use_of_Osteopathic_Manual_Therapy_and_Rehabilitation_for_Subacromial_Impingement_Syndrome_A_Case_Report">The Use of Osteopathic Manual Therapy and Rehabilitation for Subacromial Impingement Syndrome: A Case Report</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Rotator cuff dysfunction is common in athletes involved with overhead sports. Secondary subacromial impingement is a common cause of pain for patients with rotator cuff dysfunction. Exercise rehabilitation and manual therapy can be used... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_33888479" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Rotator cuff dysfunction is common in athletes involved with overhead sports. Secondary subacromial impingement is a common cause of pain for patients with rotator cuff dysfunction. Exercise rehabilitation and manual therapy can be used in the treatment of subacromial impingement to decrease pain, increase functionality and support a return to activity. The current case report describes a 24-year old patient with supraspinatus tendinosis and secondary subacromial impingement who was experiencing pain when playing tennis, and during daily activities involving overhead movements. Osteopathic manual therapy and rehabilitation was undertaken leading to significant improvements in pain and function over a 6-week period.  The current case report describes an evidence-informed approach to the management of subacromial <br />impingement syndrome whilst incorporating a manual therapy technique, balanced ligamentous tension, that has received little attention in the literature.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/33888479" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="6534918685688457a6418c5ce33bf8bc" rel="nofollow" data-download="{"attachment_id":53862884,"asset_id":33888479,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/53862884/download_file?st=MTczOTgxMzQ4Myw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="23940614" href="https://vu.academia.edu/chrismacfarlane">chris macfarlane</a><script data-card-contents-for-user="23940614" type="text/json">{"id":23940614,"first_name":"chris","last_name":"macfarlane","domain_name":"vu","page_name":"chrismacfarlane","display_name":"chris macfarlane","profile_url":"https://vu.academia.edu/chrismacfarlane?f_ri=27171","photo":"/images/s65_no_pic.png"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-33888479">+1</span><div class="hidden js-additional-users-33888479"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://unimelb.academia.edu/BrettVaughan">Brett Vaughan</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-33888479'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-33888479').html(); 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Secondary subacromial impingement is a common cause of pain for patients with rotator cuff dysfunction. Exercise rehabilitation and manual therapy can be used in the treatment of subacromial impingement to decrease pain, increase functionality and support a return to activity. The current case report describes a 24-year old patient with supraspinatus tendinosis and secondary subacromial impingement who was experiencing pain when playing tennis, and during daily activities involving overhead movements. Osteopathic manual therapy and rehabilitation was undertaken leading to significant improvements in pain and function over a 6-week period. The current case report describes an evidence-informed approach to the management of subacromial\r\nimpingement syndrome whilst incorporating a manual therapy technique, balanced ligamentous tension, that has received little attention in the literature.","downloadable_attachments":[{"id":53862884,"asset_id":33888479,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":23940614,"first_name":"chris","last_name":"macfarlane","domain_name":"vu","page_name":"chrismacfarlane","display_name":"chris macfarlane","profile_url":"https://vu.academia.edu/chrismacfarlane?f_ri=27171","photo":"/images/s65_no_pic.png"},{"id":32342436,"first_name":"Brett","last_name":"Vaughan","domain_name":"unimelb","page_name":"BrettVaughan","display_name":"Brett Vaughan","profile_url":"https://unimelb.academia.edu/BrettVaughan?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":59802,"name":"Osteopathy","url":"https://www.academia.edu/Documents/in/Osteopathy?f_ri=27171","nofollow":true},{"id":80560,"name":"Shoulder","url":"https://www.academia.edu/Documents/in/Shoulder?f_ri=27171","nofollow":true},{"id":153763,"name":"Osteopathic Medicine","url":"https://www.academia.edu/Documents/in/Osteopathic_Medicine?f_ri=27171","nofollow":true},{"id":337088,"name":"Shoulder impingement rehabilitation","url":"https://www.academia.edu/Documents/in/Shoulder_impingement_rehabilitation?f_ri=27171"},{"id":2195492,"name":"Osteopathic Manual Medicine","url":"https://www.academia.edu/Documents/in/Osteopathic_Manual_Medicine?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_31626709 coauthored" data-work_id="31626709" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/31626709/Functionality_and_feedback_a_realist_synthesis_of_the_collation_interpretation_and_utilisation_of_patient_reported_outcome_measures_data_to_improve_patient_care">Functionality and feedback: a realist synthesis of the collation, interpretation and utilisation of patient-reported outcome measures data to improve patient care</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Background: The feedback of patient-reported outcome measures (PROMs) data is intended to support the care of individual patients and to act as a quality improvement (QI) strategy. Objectives: To (1) identify the ideas and assumptions... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_31626709" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Background: The feedback of patient-reported outcome measures (PROMs) data is intended to support the care of individual patients and to act as a quality improvement (QI) strategy.<br />Objectives: To (1) identify the ideas and assumptions underlying how individual and aggregated PROMs data are intended to improve patient care, and (2) review the evidence to examine the circumstances in which and processes through which PROMs feedback improves patient care.<br />Design: Two separate but related realist syntheses: (1) feedback of aggregate PROMs and performance data to improve patient care, and (2) feedback of individual PROMs data to improve patient care.<br />Interventions: Aggregate – feedback and public reporting of PROMs, patient experience data and performance data to hospital providers and primary care organisations. Individual – feedback of PROMs in<br />oncology, palliative care and the care of people with mental health problems in primary and secondary care settings.<br />Main outcome measures: Aggregate – providers’ responses, attitudes and experiences of using PROMs and performance data to improve patient care. Individual – providers’ and patients’ experiences of using<br />PROMs data to raise issues with clinicians, change clinicians’ communication practices, change patient management and improve patient well-being.<br />Data sources: Searches of electronic databases and forwards and backwards citation tracking.<br />Review methods: Realist synthesis to identify, test and refine programme theories about when, how and why PROMs feedback leads to improvements in patient care.<br />Results: Providers were more likely to take steps to improve patient care in response to the feedback and public reporting of aggregate PROMs and performance data if they perceived that these data were credible,<br />were aimed at improving patient care, and were timely and provided a clear indication of the source of the problem. However, implementing substantial and sustainable improvement to patient care required<br />system-wide approaches. In the care of individual patients, PROMs function more as a tool to support patients in raising issues with clinicians than they do in substantially changing clinicians’ communication practices with patients. Patients valued both standardised and individualised PROMs as a tool to raise issues,<br />but thought is required as to which patients may benefit and which may not. In settings such as palliative care and psychotherapy, clinicians viewed individualised PROMs as useful to build rapport and support the<br />therapeutic process. PROMs feedback did not substantially shift clinicians’ communication practices or focus discussion on psychosocial issues; this required a shift in clinicians’ perceptions of their remit.<br />Strengths and limitations: There was a paucity of research examining the feedback of aggregate PROMs data to providers, and we drew on evidence from interventions with similar programme theories (other<br />forms of performance data) to test our theories.<br />Conclusions: PROMs data act as ‘tin openers’ rather than ‘dials’. Providers need more support and guidance on how to collect their own internal data, how to rule out alternative explanations for their<br />outlier status and how to explore the possible causes of their outlier status. There is also tension between PROMs as a QI strategy versus their use in the care of individual patients; PROMs that clinicians find useful in assessing patients, such as individualised measures, are not useful as indicators of service quality.<br />Future work: Future research should (1) explore how differently performing providers have responded to aggregate PROMs feedback, and how organisations have collected PROMs data both for individual patient care and to improve service quality; and (2) explore whether or not and how incorporating PROMs into patients’ electronic records allows multiple different clinicians to receive PROMs feedback, discuss it with patients and act on the data to improve patient care.<br />Study registration: This study is registered as PROSPERO CRD42013005938.<br />Funding: The National Institute for Health Research Health Services and Delivery Research programme</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/31626709" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="444335ffdcc59f1616e92f2570c1dd2c" rel="nofollow" data-download="{"attachment_id":51951410,"asset_id":31626709,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/51951410/download_file?st=MTczOTgxMzQ4Myw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="42254658" href="https://leeds.academia.edu/JudyWright">Judy M Wright</a><script data-card-contents-for-user="42254658" type="text/json">{"id":42254658,"first_name":"Judy","last_name":"Wright","domain_name":"leeds","page_name":"JudyWright","display_name":"Judy M Wright","profile_url":"https://leeds.academia.edu/JudyWright?f_ri=27171","photo":"https://0.academia-photos.com/42254658/12075172/13451586/s65_judy.wright.jpg"}</script></span></span><span class="u-displayInlineBlock InlineList-item-text"> and <span class="u-textDecorationUnderline u-clickable InlineList-item-text js-work-more-authors-31626709">+1</span><div class="hidden js-additional-users-31626709"><div><span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a href="https://independent.academia.edu/EGibbons1">E Gibbons</a></span></div></div></span><script>(function(){ var popoverSettings = { el: $('.js-work-more-authors-31626709'), placement: 'bottom', hide_delay: 200, html: true, content: function(){ return $('.js-additional-users-31626709').html(); 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container.find('.percentile-widget').removeClass('hidden'); }); });</script></li><li class="js-view-count-work_31626709 InlineList-item InlineList-item--bordered hidden"><div><span><span class="js-view-count view-count u-mr2x" data-work-id="31626709"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 31626709; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=31626709]").text(description); $(".js-view-count-work_31626709").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_31626709").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="31626709"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">2</a>  </div><span class="InlineList-item-text u-textTruncate u-pl9x"><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="151736" rel="nofollow" href="https://www.academia.edu/Documents/in/Realist_Synthesis">Realist Synthesis</a><script data-card-contents-for-ri="151736" type="text/json">{"id":151736,"name":"Realist Synthesis","url":"https://www.academia.edu/Documents/in/Realist_Synthesis?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=31626709]'), work: {"id":31626709,"title":"Functionality and feedback: a realist synthesis of the collation, interpretation and utilisation of patient-reported outcome measures data to improve patient care","created_at":"2017-02-27T02:52:09.970-08:00","url":"https://www.academia.edu/31626709/Functionality_and_feedback_a_realist_synthesis_of_the_collation_interpretation_and_utilisation_of_patient_reported_outcome_measures_data_to_improve_patient_care?f_ri=27171","dom_id":"work_31626709","summary":"Background: The feedback of patient-reported outcome measures (PROMs) data is intended to support the care of individual patients and to act as a quality improvement (QI) strategy.\nObjectives: To (1) identify the ideas and assumptions underlying how individual and aggregated PROMs data are intended to improve patient care, and (2) review the evidence to examine the circumstances in which and processes through which PROMs feedback improves patient care.\nDesign: Two separate but related realist syntheses: (1) feedback of aggregate PROMs and performance data to improve patient care, and (2) feedback of individual PROMs data to improve patient care.\nInterventions: Aggregate – feedback and public reporting of PROMs, patient experience data and performance data to hospital providers and primary care organisations. Individual – feedback of PROMs in\noncology, palliative care and the care of people with mental health problems in primary and secondary care settings.\nMain outcome measures: Aggregate – providers’ responses, attitudes and experiences of using PROMs and performance data to improve patient care. Individual – providers’ and patients’ experiences of using\nPROMs data to raise issues with clinicians, change clinicians’ communication practices, change patient management and improve patient well-being.\nData sources: Searches of electronic databases and forwards and backwards citation tracking.\nReview methods: Realist synthesis to identify, test and refine programme theories about when, how and why PROMs feedback leads to improvements in patient care.\nResults: Providers were more likely to take steps to improve patient care in response to the feedback and public reporting of aggregate PROMs and performance data if they perceived that these data were credible,\nwere aimed at improving patient care, and were timely and provided a clear indication of the source of the problem. However, implementing substantial and sustainable improvement to patient care required\nsystem-wide approaches. In the care of individual patients, PROMs function more as a tool to support patients in raising issues with clinicians than they do in substantially changing clinicians’ communication practices with patients. Patients valued both standardised and individualised PROMs as a tool to raise issues,\nbut thought is required as to which patients may benefit and which may not. In settings such as palliative care and psychotherapy, clinicians viewed individualised PROMs as useful to build rapport and support the\ntherapeutic process. PROMs feedback did not substantially shift clinicians’ communication practices or focus discussion on psychosocial issues; this required a shift in clinicians’ perceptions of their remit.\nStrengths and limitations: There was a paucity of research examining the feedback of aggregate PROMs data to providers, and we drew on evidence from interventions with similar programme theories (other\nforms of performance data) to test our theories.\nConclusions: PROMs data act as ‘tin openers’ rather than ‘dials’. Providers need more support and guidance on how to collect their own internal data, how to rule out alternative explanations for their\noutlier status and how to explore the possible causes of their outlier status. There is also tension between PROMs as a QI strategy versus their use in the care of individual patients; PROMs that clinicians find useful in assessing patients, such as individualised measures, are not useful as indicators of service quality.\nFuture work: Future research should (1) explore how differently performing providers have responded to aggregate PROMs feedback, and how organisations have collected PROMs data both for individual patient care and to improve service quality; and (2) explore whether or not and how incorporating PROMs into patients’ electronic records allows multiple different clinicians to receive PROMs feedback, discuss it with patients and act on the data to improve patient care.\nStudy registration: This study is registered as PROSPERO CRD42013005938.\nFunding: The National Institute for Health Research Health Services and Delivery Research programme","downloadable_attachments":[{"id":51951410,"asset_id":31626709,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":42254658,"first_name":"Judy","last_name":"Wright","domain_name":"leeds","page_name":"JudyWright","display_name":"Judy M Wright","profile_url":"https://leeds.academia.edu/JudyWright?f_ri=27171","photo":"https://0.academia-photos.com/42254658/12075172/13451586/s65_judy.wright.jpg"},{"id":60934738,"first_name":"E","last_name":"Gibbons","domain_name":"independent","page_name":"EGibbons1","display_name":"E Gibbons","profile_url":"https://independent.academia.edu/EGibbons1?f_ri=27171","photo":"/images/s65_no_pic.png"}],"research_interests":[{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":151736,"name":"Realist Synthesis","url":"https://www.academia.edu/Documents/in/Realist_Synthesis?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_28282401" data-work_id="28282401" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/28282401/Development_and_psychometric_evaluation_of_the_patient_assessment_of_upper_gastrointestinal_symptom_severity_index_PAGI_SYM_in_patients_with_upper_gastrointestinal_disorders">Development and psychometric evaluation of the patient assessment of upper gastrointestinal symptom severity index (PAGI-SYM) in patients with upper gastrointestinal disorders</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">Objective: Describe the development and evaluation of a new self-report instrument, the patient assessment of upper gastrointestinal disorders-symptom severity index (PAGI-SYM) in subjects with gastroesophageal reflux disease (GERD),... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_28282401" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">Objective: Describe the development and evaluation of a new self-report instrument, the patient assessment of upper gastrointestinal disorders-symptom severity index (PAGI-SYM) in subjects with gastroesophageal reflux disease (GERD), dyspepsia, or gastroparesis. Methods: Recruited subjects with GERD (n ¼ 810), dyspepsia (n ¼ 767), or gastroparesis (n ¼ 169) from the US, France, Germany, Italy, the Netherlands, and Poland. Subjects completed the PAGI-SYM, SF-36, a disease-specific HRQL measure (PAGI-QOL), and disability day questions. Two-week reproducibility was evaluated in 277 stable subjects. We evaluated construct validity by correlating subscale scores with SF-36, PAGI-QOL, disability days, and global symptom severity scores. Results: The final 20-item PAGI-SYM has six subscales: heartburn/regurgitation, fullness/early satiety, nausea/vomiting, bloating, upper abdominal pain, and lower abdominal pain. Internal consistency reliability was good (a ¼ 0.79-0.91); test-retest reliability was acceptable (Intraclass correlation coefficients a ¼ 0.60-0.82). PAGI-SYM subscale scores correlated significantly with SF-36 scores (all p < 0.0001), PAGI-QOL scores (all p < 0.0001), disability days (p< 0.0001), and global symptom severity (p < 0.0001). Mean PAGI-SYM scores varied significantly in groups defined by disability days (all p < 0.0001), where greater symptom severity was associated with more disability days. Conclusions: Results suggest the PAGI-SYM, a brief symptom severity instrument, has good reliability and evidence supporting construct validity in subjects with GERD, dyspepsia, or gastroparesis.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/28282401" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="ac8a797324cfbb0bf838074d7a53df1f" rel="nofollow" data-download="{"attachment_id":48612062,"asset_id":28282401,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/48612062/download_file?st=MTczOTgxMzQ4Myw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="32377864" href="https://ulb.academia.edu/DominiqueDubois">Dominique Dubois</a><script data-card-contents-for-user="32377864" type="text/json">{"id":32377864,"first_name":"Dominique","last_name":"Dubois","domain_name":"ulb","page_name":"DominiqueDubois","display_name":"Dominique Dubois","profile_url":"https://ulb.academia.edu/DominiqueDubois?f_ri=27171","photo":"https://0.academia-photos.com/32377864/11642018/12981539/s65_dominique.dubois.jpg_oh_015c3e2adef435a4015ecc38be0ba701_oe_57683262"}</script></span></span></li><li class="js-paper-rank-work_28282401 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="28282401"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 28282401, container: ".js-paper-rank-work_28282401", }); 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$(".js-view-count[data-work-id=28282401]").text(description); $(".js-view-count-work_28282401").attr('title', description).tooltip(); }); });</script></span><script>$(function() { $(".js-view-count-work_28282401").removeClass('hidden') })</script></div></li><li class="InlineList-item u-positionRelative" style="max-width: 250px"><div class="u-positionAbsolute" data-has-card-for-ri-list="28282401"><i class="fa fa-tag InlineList-item-icon u-positionRelative"></i>  <a class="InlineList-item-text u-positionRelative">18</a>  </div><span class="InlineList-item-text u-textTruncate u-pl10x"><a class="InlineList-item-text" data-has-card-for-ri="2599" rel="nofollow" href="https://www.academia.edu/Documents/in/Psychometrics">Psychometrics</a>, <script data-card-contents-for-ri="2599" type="text/json">{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="7470" rel="nofollow" href="https://www.academia.edu/Documents/in/Quality_of_life">Quality of life</a>, <script data-card-contents-for-ri="7470" type="text/json">{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="27171" rel="nofollow" href="https://www.academia.edu/Documents/in/Patient_reported_outcome_measures">Patient reported outcome measures</a>, <script data-card-contents-for-ri="27171" type="text/json">{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}</script><a class="InlineList-item-text" data-has-card-for-ri="75826" rel="nofollow" href="https://www.academia.edu/Documents/in/Europe">Europe</a><script data-card-contents-for-ri="75826" type="text/json">{"id":75826,"name":"Europe","url":"https://www.academia.edu/Documents/in/Europe?f_ri=27171","nofollow":true}</script></span></li><script>(function(){ if (true) { new Aedu.ResearchInterestListCard({ el: $('*[data-has-card-for-ri-list=28282401]'), work: {"id":28282401,"title":"Development and psychometric evaluation of the patient assessment of upper gastrointestinal symptom severity index (PAGI-SYM) in patients with upper gastrointestinal disorders","created_at":"2016-09-06T05:41:34.692-07:00","url":"https://www.academia.edu/28282401/Development_and_psychometric_evaluation_of_the_patient_assessment_of_upper_gastrointestinal_symptom_severity_index_PAGI_SYM_in_patients_with_upper_gastrointestinal_disorders?f_ri=27171","dom_id":"work_28282401","summary":"Objective: Describe the development and evaluation of a new self-report instrument, the patient assessment of upper gastrointestinal disorders-symptom severity index (PAGI-SYM) in subjects with gastroesophageal reflux disease (GERD), dyspepsia, or gastroparesis. Methods: Recruited subjects with GERD (n ¼ 810), dyspepsia (n ¼ 767), or gastroparesis (n ¼ 169) from the US, France, Germany, Italy, the Netherlands, and Poland. Subjects completed the PAGI-SYM, SF-36, a disease-specific HRQL measure (PAGI-QOL), and disability day questions. Two-week reproducibility was evaluated in 277 stable subjects. We evaluated construct validity by correlating subscale scores with SF-36, PAGI-QOL, disability days, and global symptom severity scores. Results: The final 20-item PAGI-SYM has six subscales: heartburn/regurgitation, fullness/early satiety, nausea/vomiting, bloating, upper abdominal pain, and lower abdominal pain. Internal consistency reliability was good (a ¼ 0.79-0.91); test-retest reliability was acceptable (Intraclass correlation coefficients a ¼ 0.60-0.82). PAGI-SYM subscale scores correlated significantly with SF-36 scores (all p \u003c 0.0001), PAGI-QOL scores (all p \u003c 0.0001), disability days (p\u003c 0.0001), and global symptom severity (p \u003c 0.0001). Mean PAGI-SYM scores varied significantly in groups defined by disability days (all p \u003c 0.0001), where greater symptom severity was associated with more disability days. Conclusions: Results suggest the PAGI-SYM, a brief symptom severity instrument, has good reliability and evidence supporting construct validity in subjects with GERD, dyspepsia, or gastroparesis.","downloadable_attachments":[{"id":48612062,"asset_id":28282401,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":32377864,"first_name":"Dominique","last_name":"Dubois","domain_name":"ulb","page_name":"DominiqueDubois","display_name":"Dominique Dubois","profile_url":"https://ulb.academia.edu/DominiqueDubois?f_ri=27171","photo":"https://0.academia-photos.com/32377864/11642018/12981539/s65_dominique.dubois.jpg_oh_015c3e2adef435a4015ecc38be0ba701_oe_57683262"}],"research_interests":[{"id":2599,"name":"Psychometrics","url":"https://www.academia.edu/Documents/in/Psychometrics?f_ri=27171","nofollow":true},{"id":7470,"name":"Quality of life","url":"https://www.academia.edu/Documents/in/Quality_of_life?f_ri=27171","nofollow":true},{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true},{"id":75826,"name":"Europe","url":"https://www.academia.edu/Documents/in/Europe?f_ri=27171","nofollow":true},{"id":104434,"name":"Construct Validity","url":"https://www.academia.edu/Documents/in/Construct_Validity?f_ri=27171"},{"id":127182,"name":"Self Disclosure","url":"https://www.academia.edu/Documents/in/Self_Disclosure?f_ri=27171"},{"id":138995,"name":"Dyspepsia","url":"https://www.academia.edu/Documents/in/Dyspepsia?f_ri=27171"},{"id":317739,"name":"Intraclass Correlation Coefficient","url":"https://www.academia.edu/Documents/in/Intraclass_Correlation_Coefficient?f_ri=27171"},{"id":327850,"name":"Questionnaires","url":"https://www.academia.edu/Documents/in/Questionnaires?f_ri=27171"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1?f_ri=27171"},{"id":413194,"name":"Analysis of Variance","url":"https://www.academia.edu/Documents/in/Analysis_of_Variance?f_ri=27171"},{"id":749302,"name":"Indexation","url":"https://www.academia.edu/Documents/in/Indexation?f_ri=27171"},{"id":842184,"name":"Quality Life","url":"https://www.academia.edu/Documents/in/Quality_Life?f_ri=27171"},{"id":1180715,"name":"Abdominal Pain","url":"https://www.academia.edu/Documents/in/Abdominal_Pain?f_ri=27171"},{"id":1234281,"name":"Gastroesophageal Reflux","url":"https://www.academia.edu/Documents/in/Gastroesophageal_Reflux?f_ri=27171"},{"id":1242973,"name":"Gastroesophageal Reflux Disease","url":"https://www.academia.edu/Documents/in/Gastroesophageal_Reflux_Disease?f_ri=27171"},{"id":2463800,"name":"Severity of Illness Index","url":"https://www.academia.edu/Documents/in/Severity_of_Illness_Index?f_ri=27171"},{"id":2518519,"name":"health status indicators","url":"https://www.academia.edu/Documents/in/health_status_indicators?f_ri=27171"}]}, }) } })();</script></ul></li></ul></div></div><div class="u-borderBottom1 u-borderColorGrayLighter"><div class="clearfix u-pv7x u-mb0x js-work-card work_56072599" data-work_id="56072599" itemscope="itemscope" itemtype="https://schema.org/ScholarlyArticle"><div class="header"><div class="title u-fontSerif u-fs22 u-lineHeight1_3"><a class="u-tcGrayDarkest js-work-link" href="https://www.academia.edu/56072599/PedsQL_3_2_Diabetes_Module_for_Children_Adolescents_and_Young_Adults_Reliability_and_Validity_in_Type_1_Diabetes">PedsQL 3.2 Diabetes Module for Children, Adolescents, and Young Adults: Reliability and Validity in Type 1 Diabetes</a></div></div><div class="u-pb4x u-mt3x"><div class="summary u-fs14 u-fw300 u-lineHeight1_5 u-tcGrayDarkest"><div class="summarized">The objective of the study was to report on the measurement properties of the revised and updated Pediatric Quality of Life Inventory (PedsQL) 3.2 Diabetes Module for children, adolescents, and young adults with type 1 diabetes. The... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_56072599" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">The objective of the study was to report on the measurement properties of the revised and updated Pediatric Quality of Life Inventory (PedsQL) 3.2 Diabetes Module for children, adolescents, and young adults with type 1 diabetes. The 33-item PedsQL 3.2 Diabetes Module and PedsQL Generic Core Scales were completed in a 10-site national field test study by 656 families of patients ages 2-25 years with type 1 diabetes. The 15-item Diabetes Symptoms Summary Score and 18-item Diabetes Management Summary Score were derived from the factor analysis of the items. The Diabetes Symptoms and Diabetes Management Summary Scores evidenced excellent reliability (patient self-report α = 0.88-0.90; parent proxy report α = 0.89-0.90). The Diabetes Symptoms and Diabetes Management Summary Scores demonstrated construct validity through medium to large effect size correlations with the Generic Core Scales Total Scale Score ( = 0.43-0.67, &lt; 0.001). HbA was significantly correlated with the Diabetes Sym...</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/56072599" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="3fd4e81f1495913a8642cb0365bff9c9" rel="nofollow" data-download="{"attachment_id":71638338,"asset_id":56072599,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/71638338/download_file?st=MTczOTgxMzQ4Myw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="56024758" href="https://tamu.academia.edu/RobertHeffer">Robert Heffer</a><script data-card-contents-for-user="56024758" type="text/json">{"id":56024758,"first_name":"Robert","last_name":"Heffer","domain_name":"tamu","page_name":"RobertHeffer","display_name":"Robert Heffer","profile_url":"https://tamu.academia.edu/RobertHeffer?f_ri=27171","photo":"https://0.academia-photos.com/56024758/65678294/54018387/s65_robert.heffer.jpg"}</script></span></span></li><li class="js-paper-rank-work_56072599 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="56072599"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 56072599, container: ".js-paper-rank-work_56072599", }); 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The 33-item PedsQL 3.2 Diabetes Module and PedsQL Generic Core Scales were completed in a 10-site national field test study by 656 families of patients ages 2-25 years with type 1 diabetes. The 15-item Diabetes Symptoms Summary Score and 18-item Diabetes Management Summary Score were derived from the factor analysis of the items. The Diabetes Symptoms and Diabetes Management Summary Scores evidenced excellent reliability (patient self-report α = 0.88-0.90; parent proxy report α = 0.89-0.90). The Diabetes Symptoms and Diabetes Management Summary Scores demonstrated construct validity through medium to large effect size correlations with the Generic Core Scales Total Scale Score ( = 0.43-0.67, \u0026lt; 0.001). 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The test properties weresatisfactoryexcept for somewhatlow internal consistency in the... <a class="more_link u-tcGrayDark u-linkUnstyled" data-container=".work_3985350" data-show=".complete" data-hide=".summarized" data-more-link-behavior="true" href="#">more</a></div><div class="complete hidden">This study described the psychometric properties of the Swedish version of the Outcome Questionnaire( OQ-45.2) in as ubstance abuse sample ( N ¼ 227). The test properties weresatisfactoryexcept for somewhatlow internal consistency in the social role subscale.T he results weres imilar to those obtained in other countries but systematic international comparisons are still lacking.</div></div></div><ul class="InlineList u-ph0x u-fs13"><li class="InlineList-item logged_in_only"><div class="share_on_academia_work_button"><a class="academia_share Button Button--inverseBlue Button--sm js-bookmark-button" data-academia-share="Work/3985350" data-share-source="work_strip" data-spinner="small_white_hide_contents"><i class="fa fa-plus"></i><span class="work-strip-link-text u-ml1x" data-content="button_text">Bookmark</span></a></div></li><li class="InlineList-item"><div class="download"><a id="dc8362c416a40bee459d02519f20a048" rel="nofollow" data-download="{"attachment_id":31540340,"asset_id":3985350,"asset_type":"Work","always_allow_download":false,"track":null,"button_location":"work_strip","source":null,"hide_modal":null}" class="Button Button--sm Button--inverseGreen js-download-button prompt_button doc_download" href="https://www.academia.edu/attachments/31540340/download_file?st=MTczOTgxMzQ4Myw4LjIyMi4yMDguMTQ2&s=work_strip"><i class="fa fa-arrow-circle-o-down fa-lg"></i><span class="u-textUppercase u-ml1x" data-content="button_text">Download</span></a></div></li><li class="InlineList-item"><ul class="InlineList InlineList--bordered u-ph0x"><li class="InlineList-item InlineList-item--bordered"><span class="InlineList-item-text">by <span itemscope="itemscope" itemprop="author" itemtype="https://schema.org/Person"><a class="u-tcGrayDark u-fw700" data-has-card-for-user="4789218" href="https://liu-se.academia.edu/Bj%C3%B6rnPhilips">Björn Philips</a><script data-card-contents-for-user="4789218" type="text/json">{"id":4789218,"first_name":"Björn","last_name":"Philips","domain_name":"liu-se","page_name":"BjörnPhilips","display_name":"Björn Philips","profile_url":"https://liu-se.academia.edu/Bj%C3%B6rnPhilips?f_ri=27171","photo":"https://0.academia-photos.com/4789218/2038615/2402237/s65_bj_rn.philips.jpg"}</script></span></span></li><li class="js-paper-rank-work_3985350 InlineList-item InlineList-item--bordered hidden"><span class="js-paper-rank-view hidden u-tcGrayDark" data-paper-rank-work-id="3985350"><i class="u-m1x fa fa-bar-chart"></i><strong class="js-paper-rank"></strong></span><script>$(function() { new Works.PaperRankView({ workId: 3985350, container: ".js-paper-rank-work_3985350", }); 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The test properties weresatisfactoryexcept for somewhatlow internal consistency in the social role subscale.T he results weres imilar to those obtained in other countries but systematic international comparisons are still lacking.","downloadable_attachments":[{"id":31540340,"asset_id":3985350,"asset_type":"Work","always_allow_download":false}],"ordered_authors":[{"id":4789218,"first_name":"Björn","last_name":"Philips","domain_name":"liu-se","page_name":"BjörnPhilips","display_name":"Björn Philips","profile_url":"https://liu-se.academia.edu/Bj%C3%B6rnPhilips?f_ri=27171","photo":"https://0.academia-photos.com/4789218/2038615/2402237/s65_bj_rn.philips.jpg"}],"research_interests":[{"id":27171,"name":"Patient reported outcome measures","url":"https://www.academia.edu/Documents/in/Patient_reported_outcome_measures?f_ri=27171","nofollow":true}]}, }) } })();</script></ul></li></ul></div></div></div><div class="u-taCenter Pagination"><ul class="pagination"><li class="next_page"><a 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