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FPF and Leading Health & Equity Organizations Issue Principles for Privacy & Equity in Digital Contact Tracing Technologies

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Digital Contact Tracing Technologies </h1> </div> </div> <div class="basic-content"> <div class="container"> <div class="content-basic content-sidebar"> <div class="content-left"> <div class="sidebar__btn"><a href="">FILTER <i class="fas fa-bars"></i><i class="fas fa-times"></i></a></div> <div class="single-header__date"> August 5, 2021 </div> <div class="social-media-shares social-icons"> <a target="_blank" class="facebook" href="https://www.facebook.com/sharer/sharer.php?u=https%3A%2F%2Ffpf.org%2Fblog%2Ffpf-and-leading-health-equity-organizations-issue-principles-for-privacy-equity-in-digital-contact-tracing-technologies%2F"> Share on Facebook </a> <a target="_blank" class="linkedin" 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href="https://twitter.com/intent/tweet?text=FPF+and+Leading+Health+%26%23038%3B+Equity+Organizations+Issue+Principles+for+Privacy+%26%23038%3B+Equity+in+Digital+Contact+Tracing+Technologies&amp;url=https%3A%2F%2Ffpf.org%2Fblog%2Ffpf-and-leading-health-equity-organizations-issue-principles-for-privacy-equity-in-digital-contact-tracing-technologies%2F"> Share on Twitter </a> <!--<a target="_blank" class="google-plus" href="https://plus.google.com/share?url=https%3A%2F%2Ffpf.org%2Fblog%2Ffpf-and-leading-health-equity-organizations-issue-principles-for-privacy-equity-in-digital-contact-tracing-technologies%2F"> Share on Google+ </a>--> <a target="_blank" class="email" href="/cdn-cgi/l/email-protection#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"> Share through Email </a> </div> <div class="fpf-authors"> <div class="author"> <div class="author__wrap"> <div class="author__img ibg" style="background-image: url(https://fpf.org/wp-content/uploads/2021/02/A.FPF-Headshots-Oct-2023-22-1-1024x663.jpg);"></div> <div class="author__body"> <div class="author__name">Nancy Levesque</div> <div class="author__job-title">Senior Director of Communications</div> <div class="author__links"> <div class="author__about-link"> <a href="https://fpf.org/person/nancy-levesque/">About Nancy</a> </div> <div class="author__blog-link"><a href="https://fpf.org/person/nancy-levesque/#blog">Blogs by Nancy</a></div> </div> <div class="social-media-accounts social-icons"> <a href='https://www.linkedin.com/in/nancylevesque/' class='linkedin'>LinkedIn</a> </div> </div> </div> </div></div> <p>With support from the Robert Wood Johnson Foundation, FPF engaged leaders within the privacy and equity communities to develop <a href="https://fpf.org/privacy-pandemics-digital-contact-tracing-technologies/?utm_source=FPF+website&amp;utm_medium=website&amp;utm_campaign=DCTT">actionable guiding principles</a> and a framework to help bolster the responsible implementation of digital contact tracing technologies (DCTT). Today, seven privacy, civil rights, and health equity organizations signed on to these guiding principles for organizations implementing DCTT.</p> <p>“We learned early in our Privacy and Pandemics initiative that unresolved ethical, legal, social, and equity issues may challenge the responsible implementation of digital contact tracing technologies,” said Jules Polonetsky, CEO of the Future of Privacy Forum. “So we engaged leaders within the civil rights, health equity, and privacy communities to create a set of actionable principles to help guide organizations implementing digital contact tracing that respects individual rights.”</p> <p>Contact tracing has long been used to monitor the spread of various infectious diseases. In light of COVID-19, governments and companies began deploying digital exposure notification using Bluetooth and geolocation data on mobile devices to boost contact tracing efforts and quickly identify individuals who may have been exposed to the virus. However, as DCTT begins to play an important role in public health, it is important to take necessary steps to ensure equity in access to DCTT and understand the societal risks and tradeoffs that might accompany its implementation today and in the future. Governance efforts that seek to better understand these risks will be better able to bolster public trust in DCTT technologies.&nbsp;</p> <figure class="wp-block-pullquote"><blockquote><p>“LGBT Tech is proud to have participated in the development of the Principles and Framework alongside FPF and other organizations. We are heartened to see that the focus of these principles is on historically underserved and under-resourced communities everywhere, like the LGBTQ+ community. We believe the Principles and Framework will help ensure that the needs and vulnerabilities of these populations are at the forefront during today&#8217;s pandemic and future pandemics.&#8221;</p><cite>Carlos Gutierrez, Deputy Director, and General Counsel, LGBT Tech</cite></blockquote></figure> <p>“If we establish practices that protect individual privacy and equity, digital contact tracing technologies could play a pivotal role in tracking infectious diseases,” said Dr. Rachele Hendricks-Sturrup, Research Director at the Duke-Margolis Center for Health Policy. “These principles allow organizations implementing digital contact tracing to take ethical and responsible approaches to how their technology collects, tracks, and shares personal information.”</p> <p>FPF, together with Dialogue on Diversity, the National Alliance Against Disparities in Patient Health (NADPH), BrightHive, and LGBT Tech, developed the principles, which advise organizations implementing DCTT to commit to the following actions:</p> <div class="wp-block-group is-layout-flow wp-block-group-is-layout-flow"> <ol class="wp-block-list"><li><strong>Be Transparent About How Data Is Used and Shared.&nbsp;</strong></li></ol> <ol class="wp-block-list" start="2"><li><strong>Apply Strong De-Identification Techniques and Solutions.&nbsp;</strong></li></ol> <ol class="wp-block-list" start="3"><li><strong>Empower Users Through Tiered Opt-in/Opt-out Features and Data Minimization.&nbsp;</strong></li></ol> <ol class="wp-block-list" start="4"><li><strong>Acknowledge and Address Privacy, Security, and Nondiscrimination Protection Gaps.&nbsp;</strong></li></ol> <ol class="wp-block-list" start="5"><li><strong>Create Equitable Access to DCTT.&nbsp;</strong></li></ol> <ol class="wp-block-list" start="6"><li><strong>Acknowledge and Address Implicit Bias Within and Across Public and Private Settings</strong>.</li></ol> <ol class="wp-block-list" start="7"><li><strong>Democratize Data for Public Good While Employing Appropriate Privacy Safeguards.&nbsp;</strong></li></ol> <ol class="wp-block-list" start="8"><li><strong>Adopt Privacy-By-Design Standards That Make DCTT Broadly Accessible.&nbsp;</strong></li></ol> <p></p> </div> <p>Additional supporters of these principles include the Center for Democracy and Technology and Human Rights First. </p> <p><strong>To learn more and sign on to the DCTT Principles visit <a href="https://fpf.org/privacy-pandemics-digital-contact-tracing-technologies/?utm_source=FPF+website&amp;utm_medium=website&amp;utm_campaign=DCTT">fpf.org/DCTT</a>. </strong></p> <p><em>Support for this program was provided by the Robert Wood Johnson Foundation. The views expressed here do not necessarily reflect the views of the Foundation.</em></p> <div class="single-footer"> <div class="single-footer__date"> <span>Published: </span> <span>Last Updated: August 5, 2021</span> </div> <div class="single-footer__tags post-tags"> Tags: <a href="https://fpf.org/tag/health/" rel="tag">Health</a> </div> </div> </div> <div class="sidebar"> <h2>Explore</h2> <div class='facetwp-template' style='display: none;'><!--fwp-loop--> <h2>The African Union’s Continental AI Strategy: Data Protection and Governance Laws Set to Play a Key Role in AI Regulation</h2><h2>U.S. Legislative Trends in AI-Generated Content: 2024 and Beyond</h2><h2>Processing of Personal Data for AI Training in Brazil: Takeaways from ANPD’s Preliminary Decisions in the Meta Case</h2><h2>Do LLMs Contain Personal Information? 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srcset="https://fpf.org/wp-content/uploads/2024/09/shutterstock_2465401337-300x200.jpg 300w, https://fpf.org/wp-content/uploads/2024/09/shutterstock_2465401337-1024x683.jpg 1024w, https://fpf.org/wp-content/uploads/2024/09/shutterstock_2465401337-768x512.jpg 768w, https://fpf.org/wp-content/uploads/2024/09/shutterstock_2465401337-1536x1024.jpg 1536w, https://fpf.org/wp-content/uploads/2024/09/shutterstock_2465401337-2048x1365.jpg 2048w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/call-for-nominations-15th-annual-privacy-papers-for-policymakers-award/">Call for Nominations: 15th Annual Privacy Papers for Policymakers Award</a> </div> <a href="https://fpf.org/blog/call-for-nominations-15th-annual-privacy-papers-for-policymakers-award/" class="authored-post__more">Read More</a> </div> <div class="authored-post"> <a href="https://fpf.org/blog/future-of-privacy-forum-launches-effort-to-advance-privacy-enhancing-technologies-in-support-of-ai-executive-order-convenes-experts-and-meets-with-white-house/" class="authored-post__img"> <img width="300" height="169" src="https://fpf.org/wp-content/uploads/2023/09/shutterstock_1208863036-300x169.jpg" class="attachment-medium size-medium wp-post-image" alt="cyber,security,,information,privacy,,data,protection.,internet,and,technology,concept" decoding="async" srcset="https://fpf.org/wp-content/uploads/2023/09/shutterstock_1208863036-300x169.jpg 300w, https://fpf.org/wp-content/uploads/2023/09/shutterstock_1208863036-1024x576.jpg 1024w, https://fpf.org/wp-content/uploads/2023/09/shutterstock_1208863036-768x432.jpg 768w, https://fpf.org/wp-content/uploads/2023/09/shutterstock_1208863036-1536x864.jpg 1536w, https://fpf.org/wp-content/uploads/2023/09/shutterstock_1208863036-2048x1152.jpg 2048w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/future-of-privacy-forum-launches-effort-to-advance-privacy-enhancing-technologies-in-support-of-ai-executive-order-convenes-experts-and-meets-with-white-house/">FPF Launches Effort to Advance Privacy-Enhancing Technologies in Support of AI Executive Order, Convenes Experts, and Meets With White House</a> </div> <a href="https://fpf.org/blog/future-of-privacy-forum-launches-effort-to-advance-privacy-enhancing-technologies-in-support-of-ai-executive-order-convenes-experts-and-meets-with-white-house/" class="authored-post__more">Read More</a> </div> <div class="authored-post"> <a href="https://fpf.org/blog/future-of-privacy-forum-launches-the-fpf-center-for-artificial-intelligence/" class="authored-post__img"> <img width="300" height="300" src="https://fpf.org/wp-content/uploads/2024/06/FPF-Center-for-AI-SM-1080x1080-v2-1-1-300x300.jpg" class="attachment-medium size-medium wp-post-image" alt="fpf center for ai sm 1080x1080 v2 1 1" decoding="async" srcset="https://fpf.org/wp-content/uploads/2024/06/FPF-Center-for-AI-SM-1080x1080-v2-1-1-300x300.jpg 300w, https://fpf.org/wp-content/uploads/2024/06/FPF-Center-for-AI-SM-1080x1080-v2-1-1-1024x1024.jpg 1024w, https://fpf.org/wp-content/uploads/2024/06/FPF-Center-for-AI-SM-1080x1080-v2-1-1-150x150.jpg 150w, https://fpf.org/wp-content/uploads/2024/06/FPF-Center-for-AI-SM-1080x1080-v2-1-1-768x768.jpg 768w, https://fpf.org/wp-content/uploads/2024/06/FPF-Center-for-AI-SM-1080x1080-v2-1-1.jpg 1080w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/future-of-privacy-forum-launches-the-fpf-center-for-artificial-intelligence/">Future of Privacy Forum Launches the FPF Center for Artificial Intelligence</a> </div> <a href="https://fpf.org/blog/future-of-privacy-forum-launches-the-fpf-center-for-artificial-intelligence/" class="authored-post__more">Read More</a> </div> </div> <a href="#" class="view-more 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data-value=\"2012\"><span class=\"facetwp-display-value\">2012<\/span><span class=\"facetwp-counter\">(83)<\/span><\/div><div class=\"facetwp-checkbox\" data-value=\"2011\"><span class=\"facetwp-display-value\">2011<\/span><span class=\"facetwp-counter\">(89)<\/span><\/div><div class=\"facetwp-checkbox\" data-value=\"2010\"><span class=\"facetwp-display-value\">2010<\/span><span class=\"facetwp-counter\">(106)<\/span><\/div><div class=\"facetwp-checkbox\" data-value=\"2009\"><span class=\"facetwp-display-value\">2009<\/span><span class=\"facetwp-counter\">(173)<\/span><\/div><div class=\"facetwp-checkbox\" data-value=\"2008\"><span class=\"facetwp-display-value\">2008<\/span><span class=\"facetwp-counter\">(18)<\/span><\/div><\/div><a class=\"facetwp-toggle\">See {num} more<\/a><a class=\"facetwp-toggle facetwp-hidden\">See 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