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Health – Future of Privacy Forum
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padding: 20px 0; border-bottom: none; } .press-releases-most-recent a.press-release.item:hover { color: #004a8b; } .press-releases-most-recent a.press-release.item:hover .read-more { color: black; text-decoration: none; } .press-releases-most-recent a.press-release.item .read-more { display: block; text-transform: uppercase; text-decoration: underline; margin-top: 12px; } .content-basic a.main-btn { border-bottom: 2px solid #01b8fc; } @media (max-width: 900px) { .press-releases-most-recent { flex-direction: column; } } .wp-container-core-group-layout-1.wp-container-core-group-layout-1 > .fpf-attribution.contact-sidebar { margin-left: 20px !important; } /* Updated the Twitter social media icon in the footer */ .x-twitter { padding-top: 3px; } .x-twitter a svg { height: 19px; } /* Adjusted max width for author inserts on blog posts */ .fpf-authors { max-width: 40%; } @media (max-width: 600px) { .fpf-authors { max-width: 100%; } } ol.wp-block-footnotes { font-size: var(--wp--preset--font-size--small) !important; line-height: 1.5; list-style: numeral; } /* Override to force the slideshow arrows to always show */ .fpf-featured-posts-block .splide__arrows { opacity: 1; } .social-icons .twitter::before { content: "" !important; } /****************************** * Training Program landing page * styles added by Aaron Bolton on * behalf of Incite Creative, Inc. * * aaron@incitecreativeinc.com * * Dated edited: 05/06/2014 * ****************************/ .training-h2, .training-h2 *{ font-size: 47px; } .training-blue-bg{ background-color: #01b8fc; } .training-light-gray-bg{ background-color: #f0f0f0; } .training-ul{ list-style: none !important; } .training-ul li{ background-image: url('https://fpf.org/wp-content/uploads/2024/05/blue-chevron.png'); background-size: 11px; background-repeat: no-repeat; background-position: left 5px; padding-left: 20px; } .training-testimonials .uagb-tm__desc{ background-image: url('https://fpf.org/wp-content/uploads/2024/05/green-quote-left.png'); background-size: 32px; background-repeat: no-repeat; background-position: top center; padding-top: 40px; } .training-testimonials.quote-left .uagb-tm__desc{ background-position: top left; } .max-width-1600{ max-width: 1600px; } /****************************** * End Training Program styles. * ****************************/ .scrollable-in-mobile { width: 100%; overflow-x: auto; } body.parent-pageid-239391 .page-content, body.parent-pageid-241801 .page-content{ max-width: 100%; padding: 0; } body.parent-pageid-239391 .title-page, body.parent-pageid-241801 .title-page, body.page-id-240364 .title-page, body.page-id-239391 .title-page { display: none; } @media (max-width: 800px) { .page-id-239391 .spectra-image-gallery__media.spectra-image-gallery__media--carousel img { height: 100px; width: auto; margin: 0 auto; } } /* * The eventbrite registration button colors was being overridden by UAGB block CSS. */ 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14' fill='none' xmlns='http://www.w3.org/2000/svg'> <path d='M1.79581 7.84293H0V6.59686L7.95288 0L15.8691 6.59686V7.84293H14.1099V14H9.71204V9.67539H6.19372V14H1.79581V7.84293Z' fill='currentColor' /> </svg> </a> > Health</div> </div> </div><div class="basic-content"> <div class="container"> <div class="content-basic content-sidebar"> <div class="content-left blog-content-left"> <div class="sidebar__btn"><a href="">FILTER <i class="fas fa-bars"></i><i class="fas fa-times"></i></a></div> <p>Healthcare technologies are rapidly evolving, producing new data types and innovative data uses. Data and technology can bring significant enhancements to the healthcare system, deepen patients’ and consumers’ engagement and understanding about their health, and be used as part of initiatives meant to improve health outcomes. It is critical to analyze how sensitive health and wellness data affect individual privacy and understand what it means for doctors, researchers, and companies to responsibly use such data. The FPF health team continues to build on its prior work on Consumer Wearables and Wellness Apps and Devices and Privacy Best Practices for Consumer Genetic Testing Services by exploring and addressing issues at the forefront and intersection of health, data, and privacy. Of main focus are the privacy challenges related to the collection, use, and sharing of both medical data and data that falls outside of the scope of HIPAA and FDA regulations. FPF brings together stakeholders to analyze how new technologies and data practices in the health ecosystem can impact individual privacy and promote the more effective and ethical use of data.</p> <div class="fpf-featured-posts"> <h2>Featured</h2> <div class='posts-featured'><div class="featured-post authored-post"> <a href="https://fpf.org/blog/fpf-analysis-of-new-requirements-for-generative-ai-use-by-healthcare-entities-in-patient-communications/" class="authored-post__img"> <img width="300" height="200" src="https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-300x200.jpg" class="attachment-medium size-medium wp-post-image" alt="doctor,using,computer,backup,data,on,cloud,computer,technology,and" decoding="async" fetchpriority="high" srcset="https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-300x200.jpg 300w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-1024x681.jpg 1024w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-768x511.jpg 768w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-1536x1022.jpg 1536w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-2048x1363.jpg 2048w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/fpf-analysis-of-new-requirements-for-generative-ai-use-by-healthcare-entities-in-patient-communications/">FPF Analysis of New Requirements for Generative AI Use by Healthcare Entities in Patient Communications </a> </div> <a href="https://fpf.org/blog/fpf-analysis-of-new-requirements-for-generative-ai-use-by-healthcare-entities-in-patient-communications/" class="authored-post__more">Read More</a> </div><div class="featured-post authored-post"> <a href="https://fpf.org/blog/consumer-health-data-privacy-notices-by-the-numbers/" class="authored-post__img"> <img width="300" height="300" src="https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-300x300.jpg" class="attachment-medium size-medium wp-post-image" alt="fpf chdpp 1080x1080 2 (1)" decoding="async" srcset="https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-300x300.jpg 300w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-1024x1024.jpg 1024w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-150x150.jpg 150w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-768x768.jpg 768w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1.jpg 1080w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/consumer-health-data-privacy-notices-by-the-numbers/">Consumer Health Data Privacy Notices by the Numbers</a> </div> <a href="https://fpf.org/blog/consumer-health-data-privacy-notices-by-the-numbers/" class="authored-post__more">Read More</a> </div><div 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<a href="https://fpf.org/resource/fpf-health-wellness-mapping-the-2024-health-privacy-landscape-a-2023-retrospective/" class="authored-post__more">Read More</a> </div><div class="featured-post authored-post"> <a href="https://fpf.org/blog/itpi-the-significance-of-inclusion-in-clinical-trials-and-medical-research-databases/" class="authored-post__img"> <img width="300" height="169" src="https://fpf.org/wp-content/uploads/2022/03/50998460629_586cf3c9a0_b-300x169.jpeg" class="attachment-medium size-medium wp-post-image" alt="50998460629 586cf3c9a0 b" decoding="async" srcset="https://fpf.org/wp-content/uploads/2022/03/50998460629_586cf3c9a0_b-300x169.jpeg 300w, https://fpf.org/wp-content/uploads/2022/03/50998460629_586cf3c9a0_b-768x432.jpeg 768w, https://fpf.org/wp-content/uploads/2022/03/50998460629_586cf3c9a0_b.jpeg 1024w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/itpi-the-significance-of-inclusion-in-clinical-trials-and-medical-research-databases/">The Significance of Inclusion in Clinical Trials and Medical Research Databases</a> </div> <a href="https://fpf.org/blog/itpi-the-significance-of-inclusion-in-clinical-trials-and-medical-research-databases/" class="authored-post__more">Read More</a> </div><div class="featured-post authored-post"> <a href="https://fpf.org/blog/fpf-and-leading-health-equity-organizations-issue-principles-for-privacy-equity-in-digital-contact-tracing-technologies/" class="authored-post__img"> <img width="300" height="210" src="https://fpf.org/wp-content/uploads/2021/08/Screen-Shot-2021-08-04-at-1.53.35-PM-300x210.png" class="attachment-medium size-medium wp-post-image" alt="Digital Contact Tracing" decoding="async" srcset="https://fpf.org/wp-content/uploads/2021/08/Screen-Shot-2021-08-04-at-1.53.35-PM-300x210.png 300w, https://fpf.org/wp-content/uploads/2021/08/Screen-Shot-2021-08-04-at-1.53.35-PM-1024x718.png 1024w, https://fpf.org/wp-content/uploads/2021/08/Screen-Shot-2021-08-04-at-1.53.35-PM-768x538.png 768w, https://fpf.org/wp-content/uploads/2021/08/Screen-Shot-2021-08-04-at-1.53.35-PM-1536x1077.png 1536w, https://fpf.org/wp-content/uploads/2021/08/Screen-Shot-2021-08-04-at-1.53.35-PM-2048x1436.png 2048w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/fpf-and-leading-health-equity-organizations-issue-principles-for-privacy-equity-in-digital-contact-tracing-technologies/">FPF and Leading Health & Equity Organizations Issue Principles for Privacy & Equity in Digital Contact Tracing Technologies</a> </div> <a href="https://fpf.org/blog/fpf-and-leading-health-equity-organizations-issue-principles-for-privacy-equity-in-digital-contact-tracing-technologies/" class="authored-post__more">Read More</a> </div><div class="featured-post authored-post"> <a href="https://fpf.org/blog/privacy-best-practices-for-consumer-genetic-testing-services/" class="authored-post__img"> <img width="300" height="136" src="https://fpf.org/wp-content/uploads/2018/07/FPF-Genetics-Infographic-FINAL-2-300x136.jpg" class="attachment-medium size-medium wp-post-image" alt="Fpf Genetics Infographic Final 2" decoding="async" srcset="https://fpf.org/wp-content/uploads/2018/07/FPF-Genetics-Infographic-FINAL-2-300x136.jpg 300w, https://fpf.org/wp-content/uploads/2018/07/FPF-Genetics-Infographic-FINAL-2-1024x465.jpg 1024w, https://fpf.org/wp-content/uploads/2018/07/FPF-Genetics-Infographic-FINAL-2-768x349.jpg 768w, https://fpf.org/wp-content/uploads/2018/07/FPF-Genetics-Infographic-FINAL-2.jpg 1200w" sizes="(max-width: 300px) 100vw, 300px" /> </a> <div class="authored-post__title"> <a href="https://fpf.org/blog/privacy-best-practices-for-consumer-genetic-testing-services/">Privacy Best Practices for Consumer Genetic Testing Services</a> </div> <a href="https://fpf.org/blog/privacy-best-practices-for-consumer-genetic-testing-services/" class="authored-post__more">Read More</a> </div></div> </div> <div class='posts-list facetwp-template'> <!--fwp-loop--> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/out-not-outed-privacy-for-sexual-health-orientations-and-gender-identities/"> <img width="2560" height="1707" src="https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-scaled.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="washington,,dc, ,oct.,8,,2019:,rally,for,lgbtq,rights" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-scaled.jpg 2560w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-300x200.jpg 300w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-1024x683.jpg 1024w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-768x512.jpg 768w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-1536x1024.jpg 1536w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_1525868423-2048x1365.jpg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/out-not-outed-privacy-for-sexual-health-orientations-and-gender-identities/">Out, Not Outed: Privacy for Sexual Health, Orientations, and Gender Identities</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Oct 11, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a></div> <div class="spotlight__tag"> <a href='?_issues=health-data' rel='tag'>Health</a><a href='?_issues=us-legislation' rel='tag'>U.S. Legislation</a> </div> </div> <div class="spotlight__text"> <p>Co-authored by: Judy Wang (FPF Intern), Jeter Sison (FPF Intern), Jordan Wrigley (FPF Data and Policy Analyst, Health & Wellness) On National Coming Out Day, it’s important to recognize that Coming Out is a right of passage for many LGBTQ+ individuals and a decision that they should be empowered to make for themselves. Protections for […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/fpf-analysis-of-new-requirements-for-generative-ai-use-by-healthcare-entities-in-patient-communications/"> <img width="2560" height="1703" src="https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-scaled.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="doctor,using,computer,backup,data,on,cloud,computer,technology,and" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-scaled.jpg 2560w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-300x200.jpg 300w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-1024x681.jpg 1024w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-768x511.jpg 768w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-1536x1022.jpg 1536w, https://fpf.org/wp-content/uploads/2024/10/shutterstock_2354896143-2048x1363.jpg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/fpf-analysis-of-new-requirements-for-generative-ai-use-by-healthcare-entities-in-patient-communications/">FPF Analysis of New Requirements for Generative AI Use by Healthcare Entities in Patient Communications </a></h6> <div class="spotlight__header"> <div class="spotlight__data">Oct 07, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a></div> <div class="spotlight__tag"> <a href='?_issues=health-data' rel='tag'>Health</a> </div> </div> <div class="spotlight__text"> <p>Co-Authored by Judy Wang, FPF Communications Intern On September 28, Governor Gavin Newsom signed California AB 3030, among a host of AI bills. CA AB 3030 amended the California Health & Safety Code and requires specified healthcare entities to disclose the use of generative artificial intelligence (AI) in provider-patient communications through visual or verbal disclaimers […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/consumer-health-data-privacy-notices-by-the-numbers/"> <img width="1080" height="1080" src="https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="fpf chdpp 1080x1080 2 (1)" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1.jpg 1080w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-300x300.jpg 300w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-1024x1024.jpg 1024w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-150x150.jpg 150w, https://fpf.org/wp-content/uploads/2024/08/FPF-CHDPP-1080x1080-2-1-768x768.jpg 768w" sizes="(max-width: 1080px) 100vw, 1080px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/consumer-health-data-privacy-notices-by-the-numbers/">Consumer Health Data Privacy Notices by the Numbers</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Aug 07, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a></div> <div class="spotlight__tag"> <a href='?_publication_types=infographic' rel='tag'>Infographics</a><a href='?_issues=health-data' rel='tag'>Health</a> </div> </div> <div class="spotlight__text"> <p>Today, FPF is releasing an infographic that provides insights into how organizations are responding to the transparency requirements of recently enacted U.S. state health privacy laws. The infographic reflects a survey of privacy notices on the websites of 180+ companies across a variety of industries and sectors, from pharmaceutical to apparel. Two key laws enacted […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/ai-forward-fpfs-annual-dc-privacy-forum-explores-intersection-of-privacy-and-ai/"> <img width="2560" height="1920" src="https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-scaled.jpeg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="fpf annual meeting june 2024 41" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-scaled.jpeg 2560w, https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-300x225.jpeg 300w, https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-1024x768.jpeg 1024w, https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-768x576.jpeg 768w, https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-1536x1152.jpeg 1536w, https://fpf.org/wp-content/uploads/2024/06/FPF-Annual-Meeting-June-2024-41-2048x1536.jpeg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/ai-forward-fpfs-annual-dc-privacy-forum-explores-intersection-of-privacy-and-ai/">AI Forward: FPF’s Annual DC Privacy Forum Explores Intersection of Privacy and AI</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Jun 28, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/adrienne-cuffley/'>Adrienne Cuffley</a></div> <div class="spotlight__tag"> <a href='?_publication_types=event' rel='tag'>Events</a><a href='?_issues=ai-ml' rel='tag'>Artificial Intelligence</a><a href='?_issues=global' rel='tag'>Global</a><a href='?_issues=global-legislation' rel='tag'>Global Legislation</a><a href='?_issues=health-data' rel='tag'>Health</a><a href='?_issues=latam' rel='tag'>Latin America</a><a href='?_issues=research-and-ethics' rel='tag'>Research & Ethics</a><a href='?_issues=us-legislation' rel='tag'>U.S. Legislation</a><a href='?_issues=education' rel='tag'>Youth & Education Privacy</a> </div> </div> <div class="spotlight__text"> <p>The Future of Privacy Forum (FPF) hosted its inaugural DC Privacy Forum: AI Forward on Wednesday, June 5th. Industry experts, policymakers, civil society, and academics explored the intersection of data, privacy, and AI. In Washington, DC’s southwest Waterfront at the InterContinental, participants joined in person for a full-day program consisting of keynote panels, AI talks, […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/top-six-major-privacy-enforcement-trends-a-u-s-legislation-retrospective/"> <img width="2560" height="1383" src="https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-scaled.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="businessman,on,blurred,background,using,planet,earth,network,sphere,interface" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-scaled.jpg 2560w, https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-300x162.jpg 300w, https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-1024x553.jpg 1024w, https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-768x415.jpg 768w, https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-1536x830.jpg 1536w, https://fpf.org/wp-content/uploads/2024/02/shutterstock_1036740940-2048x1107.jpg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/top-six-major-privacy-enforcement-trends-a-u-s-legislation-retrospective/">Top Six Major Privacy Enforcement Trends: A U.S. Legislation Retrospective</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Jun 26, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/bailey-sanchez/'>Bailey Sanchez</a>, <a href='https://fpf.org/person/jordan-francis/'>Jordan Francis</a></div> <div class="spotlight__tag"> <a href='?_publication_types=policy-issue-brief' rel='tag'>Policy & Issue Briefs</a><a href='?_issues=biometrics' rel='tag'>Biometrics</a><a href='?_issues=health-data' rel='tag'>Health</a><a href='?_issues=mobility-location' rel='tag'>Mobility & Location</a><a href='?_issues=us-legislation' rel='tag'>U.S. Legislation</a><a href='?_issues=education' rel='tag'>Youth & Education Privacy</a> </div> </div> <div class="spotlight__text"> <p>Enforcement activity intensifies as U.S. consumer privacy laws continue to evolve and come into effect. In 2023 and 2024 alone, there have been dozens of enforcement actions at the U.S. federal and state levels, some of which reveal or touch on significant throughlines for privacy policy issues, such as what constitutes a privacy violation or […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/reproductive-rights-have-been-privacy-rights-for-50-years/"> <img width="1000" height="667" src="https://fpf.org/wp-content/uploads/2024/06/shutterstock_2105244446.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="washington,,dc,,usa, ,december,1,,2021:,abortion,rights,rally" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/06/shutterstock_2105244446.jpg 1000w, https://fpf.org/wp-content/uploads/2024/06/shutterstock_2105244446-300x200.jpg 300w, https://fpf.org/wp-content/uploads/2024/06/shutterstock_2105244446-768x512.jpg 768w" sizes="(max-width: 1000px) 100vw, 1000px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/reproductive-rights-have-been-privacy-rights-for-50-years/">Reproductive Rights Have Been Privacy Rights For 50 Years</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Jun 24, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a></div> <div class="spotlight__tag"> <a href='?_issues=health-data' rel='tag'>Health</a><a href='?_issues=us-legislation' rel='tag'>U.S. Legislation</a> </div> </div> <div class="spotlight__text"> <p>About fifty years ago, the U.S. Supreme Court decided a case that would provide the basis for federal privacy protections for reproductive health decisions. The importance of protecting reproductive information and choice, particularly where abortion was concerned, was the basis for Roe v. Wade (1973) and Planned Parenthood v. Casey (1992), which provided women and […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/the-dna-of-genetic-privacy-legislation-montana-tennessee-texas-and-virginia-enter-2024-with-new-genetic-privacy-laws-incorporating-fpfs-best-practices/"> <img width="2560" height="1440" src="https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-scaled.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="abstract,plexus,dna,oragnic,background" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-scaled.jpg 2560w, https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-300x169.jpg 300w, https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-1024x576.jpg 1024w, https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-768x432.jpg 768w, https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-1536x864.jpg 1536w, https://fpf.org/wp-content/uploads/2024/03/shutterstock_2229121541-2048x1152.jpg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/the-dna-of-genetic-privacy-legislation-montana-tennessee-texas-and-virginia-enter-2024-with-new-genetic-privacy-laws-incorporating-fpfs-best-practices/">The DNA of Genetic Privacy Legislation: Montana, Tennessee, Texas, and Virginia Enter 2024 with New Genetic Privacy Laws Incorporating FPF’s Best Practices</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Mar 07, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/niharika-vattikonda/'>Niharika Vattikonda</a>, <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a></div> <div class="spotlight__tag"> <a href='?_issues=health-data' rel='tag'>Health</a><a href='?_issues=us-legislation' rel='tag'>U.S. Legislation</a> </div> </div> <div class="spotlight__text"> <p>In 2023, four states enacted new genetic privacy laws regulating direct-to-consumer genetic testing companies. This blog post provides details on what these new laws cover and how they compare to FPF’s widely-adopted Best Practices for Consumer Genetic Testing Services. Genetic privacy has been under increasing scrutiny at the state and federal levels, and regulators are […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/fpf-health-wellness-mapping-the-2024-health-privacy-landscape-a-2023-retrospective/"> <img width="1500" height="1072" src="https://fpf.org/wp-content/uploads/2024/10/Health_132232103.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="health 132232103" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/10/Health_132232103.jpg 1500w, https://fpf.org/wp-content/uploads/2024/10/Health_132232103-300x214.jpg 300w, https://fpf.org/wp-content/uploads/2024/10/Health_132232103-1024x732.jpg 1024w, https://fpf.org/wp-content/uploads/2024/10/Health_132232103-768x549.jpg 768w" sizes="(max-width: 1500px) 100vw, 1500px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/fpf-health-wellness-mapping-the-2024-health-privacy-landscape-a-2023-retrospective/">FPF Health & Wellness: Mapping the 2024 Health Privacy Landscape, A 2023 Retrospective</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Feb 12, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a></div> <div class="spotlight__tag"> <a href='?_issues=health-data' rel='tag'>Health</a> </div> </div> <div class="spotlight__text"> <p>In 2024, health and wellness-focused companies are increasingly integrating AI to streamline their services–with the expansion of AI-enabled digital health, the universe of potential health inferences will also expand, triggering new concerns about patient and consumer privacy. At this intersection of reproductive health privacy and AI concerns, state legislators and federal regulators appear poised to […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/regulating-health-lessons-for-navigating-the-complex-code-of-ai-and-healthcare-regulations/"> <img width="2560" height="1403" src="https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-scaled.jpg" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="medical,facilities,and,communication,network.,medical,technology." decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-scaled.jpg 2560w, https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-300x164.jpg 300w, https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-1024x561.jpg 1024w, https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-768x421.jpg 768w, https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-1536x842.jpg 1536w, https://fpf.org/wp-content/uploads/2024/01/shutterstock_2198342367-2048x1122.jpg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/regulating-health-lessons-for-navigating-the-complex-code-of-ai-and-healthcare-regulations/">Regu(AI)ting Health: Lessons for Navigating the Complex Code of AI and Healthcare Regulations</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Jan 22, 2024</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/amber-ezzell/'>Amber Ezzell</a></div> <div class="spotlight__tag"> <a href='?_issues=ai-ml' rel='tag'>Artificial Intelligence</a><a href='?_issues=health-data' rel='tag'>Health</a> </div> </div> <div class="spotlight__text"> <p>Authors: Stephanie Wong, Amber Ezzell, & Felicity Slater As an increasing number of organizations utilize artificial intelligence (“AI”) in their patient-facing services, health organizations are seizing the opportunity to take advantage of the new wave of AI-powered tools. Policymakers, from United States (“U.S.”) government agencies to the White House, have taken heed of this trend, […]</p> </div> </div> </div> <div class="spotlight__colum--post"> <div class="spotlight__img"> <a href="https://fpf.org/blog/fpf-files-comments-for-the-ftc-health-breach-notification-rule-addressing-specific-definitions-and-clarity-of-scope/"> <img width="2240" height="1260" src="https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog.png" class="attachment-post-thumbnail size-post-thumbnail wp-post-image" alt="cfpb comments blog" decoding="async" loading="lazy" srcset="https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog.png 2240w, https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog-300x169.png 300w, https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog-1024x576.png 1024w, https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog-768x432.png 768w, https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog-1536x864.png 1536w, https://fpf.org/wp-content/uploads/2023/01/CFPB-Comments-Blog-2048x1152.png 2048w" sizes="(max-width: 2240px) 100vw, 2240px" /> </a> </div> <div class="spotlight__body"> <h6 class="title"><a href="https://fpf.org/blog/fpf-files-comments-for-the-ftc-health-breach-notification-rule-addressing-specific-definitions-and-clarity-of-scope/">FPF Files Comments for the FTC Health Breach Notification Rule Addressing Specific Definitions and Clarity of Scope</a></h6> <div class="spotlight__header"> <div class="spotlight__data">Aug 10, 2023</div> <div class="spotlight__authors">By: <a href='https://fpf.org/person/jordan-wrigley/'>Jordan Wrigley</a>, <a href='https://fpf.org/person/tatiana-rice/'>Tatiana Rice</a>, <a href='https://fpf.org/person/felicity-slater/'>Felicity Slater</a>, <a href='https://fpf.org/person/stephanie-wong/'>Stephanie Wong</a></div> <div class="spotlight__tag"> <a href='?_publication_types=filing' rel='tag'>Filings</a><a href='?_issues=cybersecurity' rel='tag'>Cybersecurity</a><a href='?_issues=health-data' rel='tag'>Health</a><a href='?_issues=us-legislation' rel='tag'>U.S. Legislation</a> </div> </div> <div class="spotlight__text"> <p>On August 8th, the Future of Privacy Forum (FPF) filed comments with the U.S. Federal Trade Commission (the Commission) regarding the Notice of Proposed Rulemaking (NPRM) to clarify the scope and application of the Health Breach Notification Rule (HBNR). The HBNR was promulgated in 2009 as part of the American Recovery and Reinvestment Act as […]</p> </div> </div> </div> </div> <div class="facetwp-facet facetwp-facet-pager_ facetwp-type-pager" data-name="pager_" data-type="pager"></div> </div> <div class="sidebar"> <h2>Explore</h2> <div class="facetwp-facet facetwp-facet-search facetwp-type-search" data-name="search" data-type="search"></div> <h4>authors</h4> <div class="facetwp-facet facetwp-facet-authors facetwp-type-checkboxes" data-name="authors" data-type="checkboxes"></div> <h4>dates</h4> <div class="facetwp-facet facetwp-facet-dates facetwp-type-checkboxes" data-name="dates" data-type="checkboxes"></div> <!-- <hr> --> </div> </div> </div> </div> <!-- Footer --> <footer class="footer"> <div class="container footer__container"> <div class="related-sites"> <div class="related-sites__title"> Related Sites </div> <ul id="menu-related-sites" class="related-sites__links"><li id="menu-item-26" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-26"><a target="_blank" rel="noopener" href="https://techpolicy.org.il/">Israel Tech Policy Institute</a></li> <li id="menu-item-25" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-25"><a target="_blank" rel="noopener" href="https://studentprivacycompass.org/">Student Privacy Compass</a></li> <li id="menu-item-237301" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-237301"><a target="_blank" rel="noopener" href="https://studentprivacypledge.org/">Student Privacy Pledge</a></li> </ul> </div> <ul id="menu-social" class="footer__social"><li id="menu-item-30" class="x-twitter menu-item menu-item-type-custom menu-item-object-custom menu-item-30"><a title="X" target="_blank" rel="noopener" href="https://twitter.com/futureofprivacy"><svg xmlns="http://www.w3.org/2000/svg" viewBox="0 0 512 512" fill="currentColor"><!--!Font Awesome Free 6.5.1 by @fontawesome - https://fontawesome.com License - https://fontawesome.com/license/free Copyright 2024 Fonticons, Inc.--><path d="M389.2 48h70.6L305.6 224.2 487 464H345L233.7 318.6 106.5 464H35.8L200.7 275.5 26.8 48H172.4L272.9 180.9 389.2 48zM364.4 421.8h39.1L151.1 88h-42L364.4 421.8z"/></svg></a></li> <li id="menu-item-31" class="youtube menu-item menu-item-type-custom menu-item-object-custom menu-item-31"><a title="Youtube" target="_blank" rel="noopener" href="https://www.youtube.com/futureofprivacy">Youtube</a></li> <li id="menu-item-32" class="linkedin menu-item menu-item-type-custom menu-item-object-custom menu-item-32"><a title="LinkedIn" target="_blank" rel="noopener" href="https://www.linkedin.com/company/the-future-of-privacy-forum">LinkedIn</a></li> <li id="menu-item-233398" class="instagram menu-item menu-item-type-custom menu-item-object-custom menu-item-233398"><a title="Instagram" target="_blank" rel="noopener" href="https://www.instagram.com/futureofprivacy/">Instagram</a></li> </ul> </div> <div class="container footer__container"> <div class="footer__logo"> <a href=""> <!-- <img src="https://fpf.org/wp-content/themes/fpf/img/logo-footer.svg" alt="FPF"> --> <img src="https://fpf.org/wp-content/themes/fpf/img/logo-footer-15th-anniversary.png" alt="FPF"> </a> </div> <ul id="menu-footer" class="footer__links"><li id="menu-item-33" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-33"><a href="/privacy-policy/">Privacy Policy</a></li> <li id="menu-item-124581" class="optanon-show-settings menu-item menu-item-type-custom menu-item-object-custom menu-item-124581"><a>Cookie Preferences</a></li> <li id="menu-item-35" class="menu-item menu-item-type-custom menu-item-object-custom menu-item-35"><a target="_blank" rel="noopener" href="https://creativecommons.org/licenses/by/4.0/">Creative Commons Attribution</a></li> </ul> </div> </footer> <div class="modal-search" id="search"> <div class="modal-search__wrap"> <form action="/" class="subscribe-form__form modal-search__form"> <input type="hidden" name="s"> <input type="text" name="_search" placeholder="Search" value=""> <button type="submit"><i class="fa fa-search" aria-hidden="true"></i></button> </form> </div> </div> <!-- Matomo --><script type="text/javascript"> /* <![CDATA[ */ var _paq = window._paq = window._paq || []; 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