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_ngcontent-serverapp-c1809241069 class="pages" id="page-0" data-pageno="1"><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-8970258814346314181" data-ins-parent-element="true" data-post-type="jrnl" data-post-id="8970258814346314181" data-post-title="Get the Inspire app on Android or iPhone" data-post-group-id="200203" data-post-url="/m/TeamInspire/journal/42b6f2-get-the-inspire-app-on-android-or-iphone/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/m/TeamInspire/journal/42b6f2-get-the-inspire-app-on-android-or-iphone/"> Get the Inspire app on Android or iPhone </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply October 22, 2024 • 7:42 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> When it comes to your health, we know that staying connected with your community and content is more important than ever. The Inspire app offers a seamless solution if you’re looking for easy, stream <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>TeamInspire</span><span _ngcontent-serverapp-c2702069511>12 replies</span><span _ngcontent-serverapp-c2702069511>23 Reactions</span></div></section></ins-anon-post><app-call-to-action-prompt _ngcontent-serverapp-c1809241069 _nghost-serverapp-c1555552141><section _ngcontent-serverapp-c1555552141 class="call-action-banner-prompt understand-your-journey"><img _ngcontent-serverapp-c1555552141 data-size="desktop" alt class="cabp-figure" src="/assets/img/understand-your-journey.svg"><img _ngcontent-serverapp-c1555552141 data-size="mobile" alt class="cabp-figure" src="/assets/img/understand-your-journey.svg"><div _ngcontent-serverapp-c1555552141 class="cabp-inner"><h3 _ngcontent-serverapp-c1555552141 class="cabp-title">Join Inspire and connect with others who understand your journey</h3><a _ngcontent-serverapp-c1555552141 class="bttn bttn-navy cabp-btn">Join now</a></div></section></app-call-to-action-prompt><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-10208099569586911924" data-ins-parent-element="true" data-post-type="disc" data-post-id="10208099569586911924" data-post-title="Still in limbo, 8 yrs and counting…" data-post-group-id="200203" data-post-url="/groups/multiple-sclerosis/discussion/709910-still-in-limbo-8-yrs-and-counting/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/multiple-sclerosis/discussion/709910-still-in-limbo-8-yrs-and-counting/"> Still in limbo, 8 yrs and counting… </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply October 04, 2024 • 11:05 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> I’ve had symptoms for well over a decade now (I’m 47), which I didn’t think much about til 2016. After a long discussion with a friend, who IS diagnosed, I decided to bite the bullet and begin this j <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>AnnieJmafia</span><span _ngcontent-serverapp-c2702069511>3 replies</span><span _ngcontent-serverapp-c2702069511>2 Reactions</span></div></section></ins-anon-post><app-inspire-ad _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3229238076><div _ngcontent-serverapp-c3229238076 class="post-block-ad"><div _ngcontent-serverapp-c3229238076 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-1"></div><div _ngcontent-serverapp-c3229238076 class="pba-foot">Advertisement</div></div></app-inspire-ad><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-18141510690546122590" data-ins-parent-element="true" data-post-type="disc" data-post-id="18141510690546122590" data-post-title="Do I have MS after all? Please help." data-post-group-id="200203" data-post-url="/groups/multiple-sclerosis/discussion/do-i-have-ms-after-all-please-help/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/multiple-sclerosis/discussion/do-i-have-ms-after-all-please-help/"> Do I have MS after all? Please help. </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply August 08, 2024 • 10:43 AM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> i have posted recently so I hope some of you will read my last post "Trying to find a diagnosis." I apologize for not addressing this in my previous post. My rheumatologist is looking into possible m <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>kwtmom</span><span _ngcontent-serverapp-c2702069511>8 replies</span><span _ngcontent-serverapp-c2702069511>2 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-16906128887873838933" data-ins-parent-element="true" data-post-type="disc" data-post-id="16906128887873838933" data-post-title="Looking for other HSCT non-responders" data-post-group-id="200203" data-post-url="/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/"> Looking for other HSCT non-responders </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply July 09, 2024 • 5:43 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Hello wonderful community. I am based in Australia and have been trying to find other people who have had a stem cell transplant and have unfortunately relapsed or progressed with their MS. There is <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>stefaniacfischer</span><span _ngcontent-serverapp-c2702069511>2 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-7660626754231531410" data-ins-parent-element="true" data-post-type="jrnl" data-post-id="7660626754231531410" data-post-title="Introducing the new Inspire app for Android" data-post-group-id="200203" data-post-url="/m/TeamInspire/journal/introducing-the-new-inspire-app-for-android-1sw25y/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/m/TeamInspire/journal/introducing-the-new-inspire-app-for-android-1sw25y/"> Introducing the new Inspire app for Android </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply October 22, 2024 • 12:35 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> We are excited to announce that the new Inspire Android app is available and ready for download. Now, Android users can connect with other patients and caregivers from our convenient, easy-to-use app <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>TeamInspire</span><span _ngcontent-serverapp-c2702069511>60 replies</span><span _ngcontent-serverapp-c2702069511>46 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-985793867579639798" data-ins-parent-element="true" data-post-type="jrnl" data-post-id="985793867579639798" data-post-title="How has trusting your gut impacted your health journey?" data-post-group-id="200203" data-post-url="/m/StephShuff/journal/how-has-trusting-your-gut-impacted-your-health-journey/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/m/StephShuff/journal/how-has-trusting-your-gut-impacted-your-health-journey/"> How has trusting your gut impacted your health journey? </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply April 18, 2024 • 6:52 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from ac <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>StephShuff</span><span _ngcontent-serverapp-c2702069511>152 replies</span><span _ngcontent-serverapp-c2702069511>55 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-12833646086257706218" data-ins-parent-element="true" data-post-type="disc" data-post-id="12833646086257706218" data-post-title="Unusual diagnosis late in life" data-post-group-id="200203" data-post-url="/groups/multiple-sclerosis/discussion/unusual-diagnosis-late-in-life/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/multiple-sclerosis/discussion/unusual-diagnosis-late-in-life/"> Unusual diagnosis late in life </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply October 02, 2024 • 5:54 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Hello, I've recently been diagnosed with MS - final "concluding" evidence was a full MRI w/contrast that revealed numerous revealing "spots" on my spine and brain. What's unusual (I'm led to belie <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Man0</span><span _ngcontent-serverapp-c2702069511>4 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><app-inspire-ad _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3229238076><div _ngcontent-serverapp-c3229238076 class="post-block-ad"><div _ngcontent-serverapp-c3229238076 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-6"></div><div _ngcontent-serverapp-c3229238076 class="pba-foot">Advertisement</div></div></app-inspire-ad><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-7637875126234567326" data-ins-parent-element="true" data-post-type="disc" data-post-id="7637875126234567326" data-post-title="Help an Inspire Member" data-post-group-id="200203" data-post-url="/groups/multiple-sclerosis/discussion/help-an-inspire-member/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/multiple-sclerosis/discussion/help-an-inspire-member/"> Help an Inspire Member </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted November 07, 2023 • 3:54 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> We received a question in the Cervical Cancer and HPV Support Community where a member could use some help from the MS community, especially those taking TYSABRI. Find out more here: https://www <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Christine_Inspire</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-15494026241374416681" data-ins-parent-element="true" data-post-type="disc" data-post-id="15494026241374416681" data-post-title="Looking for additional help" data-post-group-id="200203" data-post-url="/groups/multiple-sclerosis/discussion/looking-for-additional-help/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/multiple-sclerosis/discussion/looking-for-additional-help/"> Looking for additional help </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted October 31, 2023 • 2:00 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> A post was recently shared in the scleroderma community asking if anyone had a dual diagnosis of scleroderma and multiple sclerosis. Can anyone in this community offer any help or insights? Check o <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Christine_Inspire</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-13385510025545459518" data-ins-parent-element="true" data-post-type="jrnl" data-post-id="13385510025545459518" data-post-title="Please share your thoughts: How can we improve clinical trials?" data-post-group-id="200203" data-post-url="/m/Brian/journal/please-share-your-thoughts-how-can-we-improve-clinical-trials/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/m/Brian/journal/please-share-your-thoughts-how-can-we-improve-clinical-trials/"> Please share your thoughts: How can we improve clinical trials? </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 21, 2024 • 4:37 AM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Dear Members, Many of us have been involved in clinical trials, or have considered enrolling in one, or have supported someone who has. At Inspire, we believe that all of us, as patients and caregiv <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Brian</span><span _ngcontent-serverapp-c2702069511>532 replies</span><span _ngcontent-serverapp-c2702069511>52 Reactions</span></div></section></ins-anon-post></div><div _ngcontent-serverapp-c3626312683 class="load-more"></div></div><div _ngcontent-serverapp-c1498454023></div></ins-infinite-scroll></app-post-feed-wrapper></div></div></div></main><aside _ngcontent-serverapp-c1809241069 class="sider-track sider-track-right"><div _ngcontent-serverapp-c1809241069 class="widget-box"><ins-community-members _ngcontent-serverapp-c1809241069 id="desktop-community-members" _nghost-serverapp-c850839045><section _ngcontent-serverapp-c850839045 class="widget-pack 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No need to log in every time—simply open the app and you're instantly connected to what matters most.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>On-the-go access\u003C/strong>\u003C/p>\u003Cp>Whether you're commuting, traveling, or just out and about, the Inspire app lets you stay connected to your community. Engage in discussions, post updates, or follow up on content wherever you are.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Enhanced performance\u003C/strong>\u003C/p>\u003Cp>Unlike web-based platforms, the Inspire app is optimized for your device, offering quicker load times, smoother interactions, and a more reliable experience.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Voice-to-text feature\u003C/strong>\u003C/p>\u003Cp>The app's voice-to-text feature lets you create posts and share thoughts hands-free. This is perfect for users who want to multitask or quickly jot down ideas without typing.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Timely notifications\u003C/strong>\u003C/p>\u003Cp>Never miss an important update again! The app sends notifications in real time, ensuring you’re always informed about new content, events, and community activity.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Focused experience\u003C/strong>\u003C/p>\u003Cp>The Inspire app provides a distraction-free environment where you can focus on your content and conversations. With fewer interruptions, you can enjoy a more immersive experience.\u003C/p>\u003C/li>\u003C/ol>","reply_count":12,"url":"/m/TeamInspire/journal/42b6f2-get-the-inspire-app-on-android-or-iphone/","is_followed":false,"privacy":"public","class":"jrnl","reactions":[{"type":"USEFUL","count":6,"reacted_by_me":false,"nicknames":["HowardChang","susie40","lvlabate20","ivaonovivan1973","BlueSunflower","Member_Wallaby2166"],"__typename":"PostReactions"},{"type":"THANKS","count":9,"reacted_by_me":false,"nicknames":["susie40","BlueSunflower","Villanelle","ButILOOKGood","LeesahH","ttp1","mrozekremania727","AngelaLeei","genderqueerpioneer"],"__typename":"PostReactions"},{"type":"SUPPORT","count":8,"reacted_by_me":false,"nicknames":["EDSHelper","lvlabate20","Nana_Porcupine5","Emoji1964","BlueSunflower","desireemusso35","Dmbeyer","mrozekremania727"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"10208099569586911924","title":"Still in limbo, 8 yrs and counting…","slug":"disc-709910-still-in-limbo-8-yrs-and-counting","author":{"avatar":{"small":"/api/member/AnnieJmafia/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"AnnieJmafia","status":4,"__typename":"User"},"groups":[{"name_id":"multiple-sclerosis","group_id":200203,"name":"Multiple Sclerosis","topics":[{"id":2262,"name":"Taking charge: How to be a proactive patient","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-09-05T03:08:13Z","active":"2024-10-04T23:05:46Z","content":"\u003Cp>I’ve had symptoms for well over a decade now (I’m 47), which I didn’t think much about til 2016. After a long discussion with a friend, who IS diagnosed, I decided to bite the bullet and begin this journey for answers. My neurological exam in 2016 pointed toward definite MS, but once I had my baseline MRI, I only had one lesion on my brain stem, and a questionable spot on my spinal cord, between C2-3. I was told “Probable MS”, and sent on my way. That dr had the rudest bedside manner, and was highly impatient with children (I had a 3yr old and an infant, so I found a new one. Same “probable” opinion, but he did order a LP. He said I didn’t have any visible o-bands, so said at this point there isn’t enough evidence for a proper DX. He still prescribed Gabapentin, and gradually upped the dose to 1800mg a day. It helped some with the pain, but I still had bilateral parasthesia & frequent bouts of optic neuritis. He did give me a DX for chronic severe migraine & left it at that. \u003Cbr>\u003Cbr>Fast forward several years, I lost my insurance (basic state medicaid) and was forced to find another dr. The new Dr ordered another MRI (as if the multiple discs I brought with me from yearly MRIs were of someone else’s brain) and informed me that my lesions had completely, and miraculously disappeared. He said I didn’t have probable MS. Talk about confusing!! I moved to another state shortly after that, and my symptoms are still with me. Vertigo, parasthesia (which the new Dr claimed was carpal tunnel… which I have already had surgery for, well before all this started!), Optic neuritis, migraine w/ aura, weird skin sensations, random body pains, balance issues, fatigue, intolerance to extreme heat/cold temps, sudden odd gait, and muscle spasticity, including the dreaded “hug”. Bloodwork shows no D or B-12 deficiencies, and thyroid, CBC, and other labs are all normal. Ugh…. I’m so over not knowing for sure whether this is MS or not! Has anyone else had similar experience on their journey to DX? How long does it take for drs to actually listen to what the patients are going thru before they dx?\u003C/p>","reply_count":3,"url":"/groups/multiple-sclerosis/discussion/709910-still-in-limbo-8-yrs-and-counting/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":1,"reacted_by_me":false,"nicknames":["RoxBell"],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["RoxBell"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"18141510690546122590","title":"Do I have MS after all? Please help.","slug":"disc-do-i-have-ms-after-all-please-help","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"kwtmom","status":4,"__typename":"User"},"groups":[{"name_id":"multiple-sclerosis","group_id":200203,"name":"Multiple Sclerosis","topics":[{"id":2268,"name":"Emotions","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-06-22T23:20:30Z","active":"2024-08-08T10:43:15Z","content":"\u003Cdiv>i have posted recently so I hope some of you will read my last post \"Trying to find a diagnosis.\" I apologize for not addressing this in my previous post. My rheumatologist is looking into possible myasthenia gravis\u003C/div>\u003Cdiv>My recent symptoms are fluctuating dramatic leg weakness, recent numbness in lower leg, blurry vision, some confusion. I fell over a year ago because of sudden weakness and broke my leg and wrist. Even though I have had extensive physical therapy I now walk with a cane. Recently, using prednisone for a sinus infection, I was able to walk without my cane even though I had been unable to do that for over a year. That is why my rheumatologist is looking at this. I have not communicated to him about my recent MS concerns.\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>Now I am wondering if my symptoms could be caused by MS. I had a local neurologist that has since retired that I used in the 1990s. He was a wonderful doctor. During that time he told me he thought I probably had MS. He said he just could not prove it. He did 3 MRI scans which showed white spots/lesions in my brain. I searched and found the reports from those MRIs and they indeed mention possible MS. The reason I looked to see if I had any records is because I recently read something about \"white spots on MRI pointing to possible MS\". I had not considered MS as a possible answer to my problems because I went so long without other symptoms. I have had other MRIs done which evidently did not show the white spots, but I had not mentioned past MRIs to most of my recent doctors. I also don't know if it has to be a certain kind of MRI to find the \"white spots\".\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>The report states: Abnormal MRI of the cranium due to multiple high signal type lesions seeing throughout the white matter of both hemispheres. These are noted to be prominent frontally and occipitally can a pariventricular and white matter distribution throughout both sides. Clinical correlation is suggested for possible small vascular disease or possible MS.\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>Thank you.\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>","reply_count":8,"url":"/groups/multiple-sclerosis/discussion/do-i-have-ms-after-all-please-help/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":1,"reacted_by_me":false,"nicknames":["susanthecurious"],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["susanthecurious"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"16906128887873838933","title":"Looking for other HSCT non-responders","slug":"disc-looking-for-other-hsct-non-responders","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"stefaniacfischer","status":4,"__typename":"User"},"groups":[{"name_id":"multiple-sclerosis","group_id":200203,"name":"Multiple Sclerosis","topics":[{"id":2263,"name":"Treatments and therapies","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-05-20T23:41:47Z","active":"2024-07-09T17:43:00Z","content":"\u003Cp>Hello wonderful community.\u003C/p>\u003Cp>I am based in Australia and have been trying to find other people who have had a stem cell transplant and have unfortunately relapsed or progressed with their MS. There is not a lot of information out there and even less support for those of us who are walking the journey of HSCT not working for us. \u003C/p>\u003Cp>I had 2 years of no MS symptoms after the transplant, 1 relapse in 2022 and now having another relapse, with progressed disease activity and much worse symptoms. I have not found any real support for the emotional journey of being a non-responder and am looking to get some sense of community and peer support. \u003C/p>\u003Cp>I am hoping to find some people with whom I can share my story and listen to the stories of others who are in the same boat as me. \u003C/p>\u003Cp>Fingers crossed :)\u003C/p>","reply_count":2,"url":"/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"7660626754231531410","title":"Introducing the new Inspire app for 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Syndrome","topics":[],"__typename":"Group"},{"name_id":"undiagnosed-medical-problems","group_id":200149,"name":"Undiagnosed Medical Problems","topics":[],"__typename":"Group"},{"name_id":"united-leukodystrophy-foundation","group_id":200168,"name":"United Leukodystrophy Foundation","topics":[],"__typename":"Group"},{"name_id":"urology","group_id":200231,"name":"Urology","topics":[],"__typename":"Group"},{"name_id":"vhl-support","group_id":200150,"name":"VHL","topics":[],"__typename":"Group"},{"name_id":"vascular-disease","group_id":200198,"name":"Vascular Disease","topics":[],"__typename":"Group"},{"name_id":"vasculitis-voices","group_id":200321,"name":"Vasculitis Voices","topics":[],"__typename":"Group"},{"name_id":"vegetarians-and-vegans","group_id":200026,"name":"Vegetarians and Vegans","topics":[],"__typename":"Group"},{"name_id":"viral-infections","group_id":200151,"name":"Viral 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Depression","topics":[],"__typename":"Group"}],"created":"2024-02-22T15:28:48Z","active":"2024-04-18T18:52:40Z","content":"\u003Cp>Hello! My name is Steph Shuff, and I am a writer working here at Inspire. Every month, I help to write, edit, and publish our Monthly Dose newsletter, a monthly email that highlights articles from across Inspire on a range of topics. \u003C/p>\u003Cp>The articles we share in the Monthly Dose cover everything from health tips, to our partners, to our members. It is something that I love putting together every month, especially when it means I get to connect with our members. \u003C/p>\u003Cp>Now, every month, I plan to create a post on Inspire (like this one) announcing the release of our latest newsletter, linking you to the \u003Ca href=\"https://www.inspire.com/resources/\" rel=\"noopener ugc nofollow\">Inspire resource center\u003C/a> and encouraging you to read, share, and discuss. \u003C/p>\u003Cp>In this month's \u003Ca href=\"https://www.inspire.com/resources/inspire-updates/staying-inspired-follow-your-instincts/\" rel=\"noopener ugc nofollow\">Staying Inspired column\u003C/a>, I reflect on the concept of intuition and what our instincts mean for our health. \u003C/p>\u003Cp>In the discussion below, I'd love to hear from you about the gut instinct that helped you along your health journey. Maybe it was a nagging feeling that something wasn't right. Maybe it was a strong reaction to a doctor that led you to switch providers. Or maybe it was a feeling you got about a loved one's health that helped them get answers. I have experienced all three of these scenarios. Rarely have I regretted trusting my gut when it comes to my health.\u003C/p>\u003Cp>Share your experiences below and don't forget to read\u003Ca href=\"https://www.inspire.com/resources/inspire-updates/staying-inspired-follow-your-instincts/\" rel=\"noopener ugc nofollow\"> this month's Monthly Dose\u003C/a>. \u003C/p>\u003Cp>\u003Ci>Not sure if you’re receiving the Monthly Dose email? Go to your Settings menu, then click Email preferences, and select “Yes” next to Inspire news.\u003C/i>\u003C/p>\u003Cp>\u003Cbr> \u003C/p>","reply_count":152,"url":"/m/StephShuff/journal/how-has-trusting-your-gut-impacted-your-health-journey/","is_followed":false,"privacy":"public","class":"jrnl","reactions":[{"type":"USEFUL","count":14,"reacted_by_me":false,"nicknames":["Danielle-Inspire","Vinteresting-1","Jess_Inspire","NancyMcShane","LouSutherland","Emoji1964","avian9591","WaterWarriorMoe","Sully16","Kellie_Joy","kelvinspire","PamDhesi","VesnaTerzich","Tia_theallergymama"],"__typename":"PostReactions"},{"type":"THANKS","count":20,"reacted_by_me":false,"nicknames":["Danielle-Inspire","Vinteresting-1","Jess_Inspire","Nina47","LynneBurke","Toronto61-Ileo","LouSutherland","Emoji1964","nvacchiano","WaterWarriorMoe","MamaBear1216","kelvinspire","JackiePark","1YNOT2","priscampbell","Member_Gazelle6963","TracyMckeon","Tzuelzke","AMHJ","ThunderStorm9"],"__typename":"PostReactions"},{"type":"SUPPORT","count":21,"reacted_by_me":false,"nicknames":["Danielle-Inspire","Lennie220","Vinteresting-1","Jess_Inspire","Toronto61-Ileo","lvlabate20","NADFVanessa","Emoji1964","TeeRu","JeudiFriedman","ElisaC127","Kellie_Joy","JackiePark","Shannonrichards","agustinlatam","lightedrealms33","AishaV","dreamlifejake","lila-tea","Pbucci412","christinaharvye"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"12833646086257706218","title":"Unusual diagnosis late in life","slug":"disc-unusual-diagnosis-late-in-life","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"Man0","status":4,"__typename":"User"},"groups":[{"name_id":"multiple-sclerosis","group_id":200203,"name":"Multiple Sclerosis","topics":[{"id":2260,"name":"Newly diagnosed","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-02-05T05:05:10Z","active":"2024-10-02T17:54:47Z","content":"\u003Cp>Hello,\u003C/p>\u003Cp>I've recently been diagnosed with MS - final \"concluding\" evidence was a full MRI w/contrast that revealed numerous revealing \"spots\" on my spine and brain.\u003C/p>\u003Cp>What's unusual (I'm led to believe) is that MS traditionally hits its victims in the youthful 20-40 age range. In my case, I'm late 60's for 1st occurrence.\u003C/p>\u003Cp>Has anyone else experienced this? I'm asking men in particular, because I have a theory. In my case, I also have/had prostate cancer that was treated 2 years ago. So far there's been no signs of metastasis, but I noticed the locations of the MS-related spots in my spine and brain images were eerily similar to some images I'd seen of other men depicting where their PCa had metastasized. My theory is that some rogue cancer cells had escaped into my nervous system (my cancer at time of surgery had become quite aggressive) and they may have been traversing my spine and brain, looking to metastasize. 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At Inspire, we believe that all of us, as patients and caregivers, should be at the center of our care. So while clinical trials play a big role in testing the safety and effectiveness of new treatments, we’d like to learn how these trials can be conducted in a patient-first manner.\u003C/p>\u003Cp>We want to hear from you: What could be done to improve clinical trials? Please reply to this post and share your thoughts and ideas.\u003C/p>\u003Cp>If you’ve participated in a clinical trial, what was your experience like? Was there anything about the trial that made it feel like it wasn’t designed for people like you? What specific changes would have made the trial better suited to your needs as a patient?\u003C/p>\u003Cp>If you’ve never participated in a clinical trial, would you consider it? Why or why not?\u003C/p>\u003Cp>We will create a summary of everyone's ideas, without identifying anyone by name, to share back with all of you and with the broader medical community. If you would prefer your response not be included in any summary, simply write \"Do not share\" in your reply.\u003C/p>\u003Cp>Thank you! Your ideas have the potential to change clinical trials for the better.\u003C/p>\u003Cp> \u003C/p>\u003Cp>Together, we’re better,\u003Cbr>Brian \u003Cbr>Founder, Inspire\u003C/p>","reply_count":532,"url":"/m/Brian/journal/please-share-your-thoughts-how-can-we-improve-clinical-trials/","is_followed":false,"privacy":"public","class":"jrnl","reactions":[{"type":"USEFUL","count":17,"reacted_by_me":false,"nicknames":["Dslimmer","sgreenwell34","Emoji1964","beingcelestial","MillyMillington","CarePartnerPatti","Windy53Lindy","Sherri1952","Rachael_L","xmsbid","lauriesegura1969","AppleLizz","deb_Gigi","TammyGreen","janicejdrew","WayfarerWildeWood","RockingTheHighBP"],"__typename":"PostReactions"},{"type":"THANKS","count":12,"reacted_by_me":false,"nicknames":["Emoji1964","beingcelestial","Belle_Eagle","CarePartnerPatti","xmsbid","svalentine1031","avian9591","deb_Gigi","wenteewa","Enidj","weberjuly2019","Emma998"],"__typename":"PostReactions"},{"type":"SUPPORT","count":23,"reacted_by_me":false,"nicknames":["sgreenwell34","temp_nick_sr_3988353570","Emoji1964","jadeyC91","HowardChang","Lisa-B_Koala4","CarePartnerPatti","diray","Kfm12","Crankypanky2019","Ldenap","zinacoats333","avian9591","deb_Gigi","Heartdisease","GregLanier70","weberjuly2019","erica_7179","Anna_Hawk","pureguy","Jessica-Liu","chloebetter2023","Phillie-S"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null}]}}}</script></body></html>