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Looking for other HSCT non-responders - Multiple sclerosis
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.mab-role.mab-role-leader[_ngcontent-serverApp-c160424285]{font-size:12px}.member-avatar-block.mab-ml[_ngcontent-serverApp-c160424285]{width:68px;height:68px}.member-avatar-block.mab-ml[_ngcontent-serverApp-c160424285] .mab-role[_ngcontent-serverApp-c160424285]{width:22px;height:22px;font-size:12px;right:-5px;bottom:-5px}.member-avatar-block.mab-ml[_ngcontent-serverApp-c160424285] .mab-role.mab-role-leader[_ngcontent-serverApp-c160424285]{font-size:14px}.member-avatar-block.mab-xs[_ngcontent-serverApp-c160424285]{width:27px;height:27px}.member-avatar-block.mab-xs[_ngcontent-serverApp-c160424285] .mab-role[_ngcontent-serverApp-c160424285]{width:18px;height:18px;font-size:8px;right:-5px;bottom:-5px}.member-avatar-block.mab-xs[_ngcontent-serverApp-c160424285] .mab-role.mab-role-leader[_ngcontent-serverApp-c160424285]{font-size:10px}.mab-role[_ngcontent-serverApp-c160424285]{width:25px;height:25px;border-radius:50%;background:#d0d3d4;font-size:14px;color:#fff;display:flex;align-items:center;justify-content:center;position:absolute;right:-3px;border:1px solid white;bottom:-3px}.mab-role.mab-role-inspire[_ngcontent-serverApp-c160424285]{background:#0072ce;color:#fff}.mab-role.mab-role-a-logo[_ngcontent-serverApp-c160424285]{background:#0063c3;color:#fff}.mab-role.mab-role-leader[_ngcontent-serverApp-c160424285]{background:#ffce00;color:#000}.mab-role.mab-role-ai[_ngcontent-serverApp-c160424285]{background:#b88bc9;color:#fff}.mab-role.mab-role-expert[_ngcontent-serverApp-c160424285]{background:#f58c77;color:#fff}.member-avatar-container[_ngcontent-serverApp-c160424285]{display:flex;gap:13px;align-items:center;cursor:pointer}</style><style ng-app-id="serverApp">.bookmark-component-block[_ngcontent-serverApp-c3349184846]{position:relative;z-index:0}.bcb-btn[_ngcontent-serverApp-c3349184846]{display:flex;align-items:center;color:#6e6f70;-moz-column-gap:10px;column-gap:10px;font-size:14px;cursor:pointer;font-weight:500}.bcb-btn.active[_ngcontent-serverApp-c3349184846]{color:#009dfc}@media (max-width: 767px){.bcb-text[_ngcontent-serverApp-c3349184846]{display:none}}.bcb-tooltip[_ngcontent-serverApp-c3349184846]{border:1px solid #005cc9;border-radius:10px;color:#001a72;text-align:center;padding:10px 16px;line-height:1.2;background:#e5f5ff;font-size:12px;width:160px;position:absolute;z-index:1;top:100%;right:0;left:auto;visibility:hidden;opacity:0;transform:translateY(20px);transition:all .1s ease-in-out .5s}.bcb-tooltip.active[_ngcontent-serverApp-c3349184846]{visibility:visible;opacity:1;transform:translateY(10px)}@media (min-width: 992px){.bcb-tooltip[_ngcontent-serverApp-c3349184846]{transform:translate(-50%) translateY(20px);left:50%;right:auto}.bcb-tooltip.active[_ngcontent-serverApp-c3349184846]{transform:translate(-50%) translateY(10px)}}.bttn[_ngcontent-serverApp-c3349184846]{height:45px;font-size:16px;display:flex;width:100%}.bttn[_ngcontent-serverApp-c3349184846]:not(:last-child){margin-bottom:15px}.bttn[_ngcontent-serverApp-c3349184846] span[_ngcontent-serverApp-c3349184846]{max-width:165px;width:100%;display:flex;align-items:center}</style><style ng-app-id="serverApp">.reaction-response-block[_ngcontent-serverApp-c1171685927]{position:relative;flex:0 0 auto;margin-left:auto}.reaction-response-block.active[_ngcontent-serverApp-c1171685927] .rrb-menu[_ngcontent-serverApp-c1171685927]{visibility:visible;opacity:1;transform:translateY(0);transition:all .1s linear}.rrb-btn[_ngcontent-serverApp-c1171685927]{margin-left:auto;display:flex;align-items:center;font-weight:600}.rrb-btn[_ngcontent-serverApp-c1171685927] .rrb-icon#rrb-like[_ngcontent-serverApp-c1171685927]{margin-right:8px}.rrb-btn[_ngcontent-serverApp-c1171685927] .rrb-icon[_ngcontent-serverApp-c1171685927]:not(:first-child){margin-left:-.5rem}.rrb-icon[_ngcontent-serverApp-c1171685927]{background:radial-gradient(ellipse at center,#fff 50%,#fff0 51%)}.rrb-icon[iconType=heart-o][_ngcontent-serverApp-c1171685927], .rrb-icon.heart-o[_ngcontent-serverApp-c1171685927]{color:#b40013}.rrb-icon[iconType=check-o][_ngcontent-serverApp-c1171685927], .rrb-icon.check-o[_ngcontent-serverApp-c1171685927]{color:#001a72}.rrb-icon[iconType=like-o][_ngcontent-serverApp-c1171685927], .rrb-icon.like-o[_ngcontent-serverApp-c1171685927]{color:#09b0d3}.rrb-icon[_ngcontent-serverApp-c1171685927]{font-size:24px;flex:0 0 auto}.rrb-menu[_ngcontent-serverApp-c1171685927]{position:absolute;z-index:1;background:#fff;top:100%;border:1px solid #e2e5e4;border-radius:.5rem;box-shadow:0 .125rem .3125rem #d0d0d080;display:block;color:#000;padding:10px;right:0;margin-top:.625rem;display:flex;flex-direction:column;row-gap:6px;transform:translateY(-20px);visibility:hidden;opacity:0;transition:all .1s ease-in-out .5s}.rrb-emote[_ngcontent-serverApp-c1171685927]{display:flex;align-items:center;white-space:nowrap;cursor:pointer}.rrb-avatar[_ngcontent-serverApp-c1171685927]{position:relative;margin:0 10px 0 0}.rrb-avatar[_ngcontent-serverApp-c1171685927] .rrb-icon[_ngcontent-serverApp-c1171685927]{font-size:16px;position:absolute;right:-5px;bottom:-1px}.rrb-avatar[_ngcontent-serverApp-c1171685927] img[_ngcontent-serverApp-c1171685927]{width:24px;height:24px;border-radius:50%;overflow:hidden;object-fit:cover;background:#f8f9fb}.rrb-label[_ngcontent-serverApp-c1171685927]{text-overflow:ellipsis;overflow:hidden;min-width:0;flex:1 1 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1200px){.give-receive-support[_ngcontent-serverApp-c1759620688] .cabp-figure[_ngcontent-serverApp-c1759620688]{width:220px;top:10px;bottom:auto}}</style><script class="structured-data" type="application/ld+json">{"@context":"http://schema.org/","@type":"DiscussionForumPosting","@id":"https://www.inspire.com/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/","discussionUrl":"https://www.inspire.com/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/","mainEntityOfPage":"https://www.inspire.com/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/","url":"https://www.inspire.com/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/","accessMode":"auditory, tactile, textual, visual, textOnVisual","datePublished":"2024-05-20T23:41:47Z","dateModified":null,"headline":"Looking for other HSCT non-responders","articleBody":"<p>Hello wonderful community.</p><p>I am based in Australia and have been trying to find other people who have had a stem cell transplant and have unfortunately relapsed or progressed with their MS. There is not a lot of information out there and even less support for those of us who are walking the journey of HSCT not working for us. </p><p>I had 2 years of no MS symptoms after the transplant, 1 relapse in 2022 and now having another relapse, with progressed disease activity and much worse symptoms. I have not found any real support for the emotional journey of being a non-responder and am looking to get some sense of community and peer support. </p><p>I am hoping to find some people with whom I can share my story and listen to the stories of others who are in the same boat as me. </p><p>Fingers crossed :)</p>","author":{"@type":"Patient","name":"stefaniacfischer","sameAs":"https://www.wikidata.org/wiki/Q181600"},"interactionStatistic":[],"publisher":{"@type":"Organization","@id":"kg:/g/11g7zdf6gx","name":"Inspire","url":"https://www.inspire.com","naics":"519130","additionalType":["https://en.wikipedia.org/wiki/Online_health_communities%22","%22https://www.wikidata.org/wiki/Q210980"],"logo":{"@type":"ImageObject","url":"https://lh5.googleusercontent.com/p/AF1QipMwBXZHE-6QKo7bBWUG2BmvCNNBDQejirerHnP3=w1808-h768-k-no"}},"publishingPrinciples":"https://www.inspire.com/about/guidelines/","commentCount":2,"audience":{"@type":"Patient","sameAs":"https://www.wikidata.org/wiki/Q181600"},"comment":[{"@type":"Comment","datePublished":"2024-05-22T01:31:53Z","text":"<p>Hello stefaniacfischer,<br><br>Welcome to Inspire! If you do not receive more replies, please check other discussions about being a HSCT non-responder in this community. You can see more discussions by typing your search terms in the box near the magnifying glass at the top of the page or by clicking the link below.<br><br><a href=\"https://www.inspire.com/search/?query=HSCT%20non-responder&g=200203&_=1716341428313\" rel=\"noopener ugc nofollow\" target=\"_blank\">Search: HSCT non-responder</a><br><br>We hope this helps!<br><br>-TeamInspire</p>","upvoteCount":3,"interactionStatistic":[],"author":{"@type":"Patient","name":"TeamInspire","sameAs":"https://www.wikidata.org/wiki/Q181600"}},{"@type":"Comment","datePublished":"2024-07-09T17:43:00Z","text":"<p>I had HSCT one yr ago and unsure if I suffer from residual nerve death vs intermittent inflamation. If higher doses of prednisone help Sx then recurrence likely and Ocrevus might be suggested. I recall (only) 50% of HSCT recipients do not require meds after 2-3 years or so. If you have extra frozen, stored SC, MAYBE you can try again with more aggressive chemo before? Recombinant DNA, omitting/inserting sequences, if/when identified, may be the next frontier?</p>","upvoteCount":3,"interactionStatistic":[],"author":{"@type":"Patient","name":"unsubscribe321","sameAs":"https://www.wikidata.org/wiki/Q181600"}}]}</script><style ng-app-id="serverApp">.rbw-bar[_ngcontent-serverApp-c467064033]{padding:18px 20px;border-radius:28px;background:#f8f9fb;border:1px solid #e2e5e4;color:#787878;font-size:14px}@media (max-width: 767px){.rbw-bar[_ngcontent-serverApp-c467064033]{padding:10px 15px;border-radius:16px}}.prb-body[_ngcontent-serverApp-c467064033]{background:#f8f9fb;border-left:5px solid #f8f9fb;padding:15px;border-radius:10px;font-size:18px;margin-top:10px}@media print{.prb-body[_ngcontent-serverApp-c467064033]{-webkit-print-color-adjust:exact;print-color-adjust:exact}}.prb-body[_ngcontent-serverApp-c467064033] *:first-child{margin-top:0}.prb-body[_ngcontent-serverApp-c467064033] 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class="pb-profile"><ins-member-avatar _ngcontent-serverapp-c3073719069 class="pb-avatar" _nghost-serverapp-c160424285><div _ngcontent-serverapp-c160424285 id="post-avatar-link" class="member-avatar-container"><figure _ngcontent-serverapp-c160424285 id="post-avatar" class="member-avatar-block"><div _ngcontent-serverapp-c160424285><img _ngcontent-serverapp-c160424285 loading="lazy" id="post-avatar-image" src="/api/member/stefaniacfischer/avatar/m"><!----></div><!----></figure><!----></div><!----></ins-member-avatar><div _ngcontent-serverapp-c3073719069 class="pb-meta"><a _ngcontent-serverapp-c3073719069 class="pb-username" id="post-author-name-link"> stefaniacfischer </a><!----><!----><!----><div _ngcontent-serverapp-c3073719069 id="post-date" class="pb-stamp"> May 20, 2024 • 11:41 PM <!----></div><!----></div></div></ins-post-head><div _ngcontent-serverapp-c719915444 class="pb-ortho no-print"><app-bookmark _ngcontent-serverapp-c268690243 bookmarkwrapper _nghost-serverapp-c233444020><ins-bookmark _ngcontent-serverapp-c233444020 id="bookmark" _nghost-serverapp-c3349184846><div _ngcontent-serverapp-c3349184846 class="bookmark-component-block"><a _ngcontent-serverapp-c3349184846 class="bcb-btn"><ins-svg-icon _ngcontent-serverapp-c3349184846 class="svg-icon" _nghost-serverapp-c33518352><svg _ngcontent-serverapp-c33518352="" fill="currentColor" width="1em" height="1em" viewBox="0 0 1024 1024"><use _ngcontent-serverapp-c33518352="" href="/assets/svgs/symbol-defs.svg?t=7#bookmark-o"/></svg></ins-svg-icon><!----></a><div _ngcontent-serverapp-c3349184846 class="bcb-tooltip">Sign in or join to bookmark</div><!----></div><!----><!----></ins-bookmark></app-bookmark><!----><!----><ins-ellipsis-menu _ngcontent-serverapp-c719915444 _nghost-serverapp-c2062330557><div _ngcontent-serverapp-c2062330557 id="ellipsis-icon" class="ellipsis-more"><div _ngcontent-serverapp-c2062330557><a _ngcontent-serverapp-c2062330557 id="ellipses_menu_btn" class="em-btn"><ins-svg-icon _ngcontent-serverapp-c2062330557 icontype="more" class="svg-icon" _nghost-serverapp-c33518352><svg _ngcontent-serverapp-c33518352="" fill="currentColor" width="1em" height="1em" viewBox="0 0 1024 1024"><use _ngcontent-serverapp-c33518352="" href="/assets/svgs/symbol-defs.svg?t=7#more"/></svg></ins-svg-icon></a><!----></div><!----></div><!----></ins-ellipsis-menu><!----></div></div><!----><!----><!----><div _ngcontent-serverapp-c719915444 class="pb-body"><div _ngcontent-serverapp-c719915444 insclicktoinnerhtmlanchor id="post-snippet" class="pb-desc"><p>Hello wonderful community.</p><p>I am based in Australia and have been trying to find other people who have had a stem cell transplant and have unfortunately relapsed or progressed with their MS. There is not a lot of information out there and even less support for those of us who are walking the journey of HSCT not working for us. </p><p>I had 2 years of no MS symptoms after the transplant, 1 relapse in 2022 and now having another relapse, with progressed disease activity and much worse symptoms. I have not found any real support for the emotional journey of being a non-responder and am looking to get some sense of community and peer support. </p><p>I am hoping to find some people with whom I can share my story and listen to the stories of others who are in the same boat as me. </p><p>Fingers crossed :)</p></div><!----><!----></div><div _ngcontent-serverapp-c719915444 class="pb-condition"><a _ngcontent-serverapp-c719915444 id="community-link" class="pb-community" href="/groups/multiple-sclerosis"><img _ngcontent-serverapp-c719915444 loading="lazy" src="/resources-design/groups/multiple-sclerosis/logo.png"><!----><span _ngcontent-serverapp-c719915444>Multiple Sclerosis</span><!----></a><!----><!----></div><!----><div _ngcontent-serverapp-c719915444 id="post-footer-container" class="pb-foot no-print"><div _ngcontent-serverapp-c719915444 class="pb-share"><app-share-post _ngcontent-serverapp-c268690243 modalid="discussion" _nghost-serverapp-c1631520143 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_ngcontent-serverapp-c467064033 class="reply-block-wrapper"><!----><div _ngcontent-serverapp-c467064033 class="preview-reply-block"><section _ngcontent-serverapp-c467064033 id="reply_content" class="prb-body"><div _ngcontent-serverapp-c467064033 class="prb-head"><div _ngcontent-serverapp-c467064033 class="rhb-meta"><a _ngcontent-serverapp-c467064033 class="rhb-name">TeamInspire </a><!----><!----><span _ngcontent-serverapp-c467064033 class="rhb-stamp">May 22, 2024 • 1:31 AM</span></div></div><div _ngcontent-serverapp-c467064033 class="prb-stamp"><!----><!----></div><!----><div _ngcontent-serverapp-c467064033 id="replyContent" insclicktoinnerhtmlanchor><p>Hello stefaniacfischer,<br><br>Welcome to Inspire! If you do not receive more replies, please check other discussions about being a HSCT non-responder in this community. You can see more discussions by typing your search terms in the box near the magnifying glass at the top of the page or by clicking the link below.<br><br><a href="https://www.inspire.com/search/?query=HSCT%20non-responder&g=200203&_=1716341428313" rel="noopener ugc nofollow" target="_blank">Search: HSCT non-responder</a><br><br>We hope this helps!<br><br>-TeamInspire</p></div><!----><!----><span _ngcontent-serverapp-c467064033 class="rbw-foot">0 Reactions</span><ins-photo-carousel _ngcontent-serverapp-c467064033 _nghost-serverapp-c12763384><!----><!----><!----><!----></ins-photo-carousel><!----></section></div><!----></div></ins-anon-reply><!----><!----><!----><!----><!----><!----><!----><!----><!----></section><!----><!----><!----><section _ngcontent-serverapp-c3335267229 id="reply-list-item" class="reply-post-block" data-ins-parent-element="true" data-post-type="disc_cmnt" data-post-id="5898905567235735600" data-tracking-id="5898905567235735600"><ins-anon-reply _ngcontent-serverapp-c3335267229 _nghost-serverapp-c467064033><div _ngcontent-serverapp-c467064033 class="reply-block-wrapper"><!----><div _ngcontent-serverapp-c467064033 class="preview-reply-block"><section _ngcontent-serverapp-c467064033 id="reply_content" class="prb-body"><div _ngcontent-serverapp-c467064033 class="prb-head"><div _ngcontent-serverapp-c467064033 class="rhb-meta"><a _ngcontent-serverapp-c467064033 class="rhb-name">unsubscribe321 </a><!----><!----><span _ngcontent-serverapp-c467064033 class="rhb-stamp">Jul 9, 2024 • 5:43 PM</span></div></div><div _ngcontent-serverapp-c467064033 class="prb-stamp"><!----><!----></div><!----><div _ngcontent-serverapp-c467064033 id="replyContent" insclicktoinnerhtmlanchor><p>I had HSCT one yr ago and unsure if I suffer from residual nerve death vs intermittent inflamation. If higher doses of prednisone help Sx then recurrence likely and Ocrevus might be suggested. I recall (only) 50% of HSCT recipients do not require meds after 2-3 years or so. If you have extra frozen, stored SC, MAYBE you can try again with more aggressive chemo before? Recombinant DNA, omitting/inserting sequences, if/when identified, may be the next frontier?</p></div><!----><!----><span _ngcontent-serverapp-c467064033 class="rbw-foot">0 Reactions</span><ins-photo-carousel _ngcontent-serverapp-c467064033 _nghost-serverapp-c12763384><!----><!----><!----><!----></ins-photo-carousel><!----></section></div><!----></div></ins-anon-reply><!----><!----><!----><!----><!----><!----><!----><!----><!----></section><!----><!----><!----><!----><!----><!----><!----><!----></article><!----><div _ngcontent-serverapp-c3335267229 class="comment-control-bottom" hidden><!----><!----><!----></div><!----><!----><!----><!----><!----><!----><!----><ins-custom-modal _ngcontent-serverapp-c3335267229 id="modal_privilege_delete_reply" class="cmw-hide" _nghost-serverapp-c342721892><!----><div _ngcontent-serverapp-c342721892 id="ins-modal-wrapper" class="custom-modal-wrapper"><div _ngcontent-serverapp-c342721892 class="cmw-dialog"><a _ngcontent-serverapp-c342721892 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class="fcb-copyright">Copyright 2025 Inspire | ClinicaHealth, Inc DBA Inspire</div></div></div></ins-footer><!----><ins-modal-listener _nghost-serverapp-c110737693><!----></ins-modal-listener><!----><!----><!----><!----></app-root><img id="zenna" style="display: none"><noscript>Please enable JavaScript to continue using this application.</noscript><script src="/inspire-web/runtime.8f40012bd206dea1.js" type="module"></script><script src="/inspire-web/main.578d848ca3869aba.js" type="module"></script> <script id="serverApp-state" 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There is not a lot of information out there and even less support for those of us who are walking the journey of HSCT not working for us. \u003C/p>\u003Cp>I had 2 years of no MS symptoms after the transplant, 1 relapse in 2022 and now having another relapse, with progressed disease activity and much worse symptoms. 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If you do not receive more replies, please check other discussions about being a HSCT non-responder in this community. You can see more discussions by typing your search terms in the box near the magnifying glass at the top of the page or by clicking the link below.\u003Cbr>\u003Cbr>\u003Ca href=\"https://www.inspire.com/search/?query=HSCT%20non-responder&g=200203&_=1716341428313\" rel=\"noopener ugc nofollow\" target=\"_blank\">Search: HSCT non-responder\u003C/a>\u003Cbr>\u003Cbr>We hope this helps!\u003Cbr>\u003Cbr>-TeamInspire\u003C/p>","class":"disc_cmnt","author":{"nickname":"TeamInspire","status":4,"avatar":{"small":"/api/member/TeamInspire/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[{"role_type":"SUPERUSER","group_id":null,"__typename":"SiteRole"},{"role_type":"GLOBAL_LDR","group_id":null,"__typename":"SiteRole"}],"__typename":"User"},"reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"files":[],"level":"second","noOfChildRepliesToShow":2,"url":"reply/9163782462582851740","comments":[],"isChainDeleted":false,"counter":1},{"id":"5898905567235735600","parent":{"__typename":"Post","url":"reply/undefined"},"tracking_id":"5898905567235735600","created":"2024-07-09T17:43:00Z","page_num":1,"__typename":"FullComment","content":"\u003Cp>I had HSCT one yr ago and unsure if I suffer from residual nerve death vs intermittent inflamation. If higher doses of prednisone help Sx then recurrence likely and Ocrevus might be suggested. I recall (only) 50% of HSCT recipients do not require meds after 2-3 years or so. If you have extra frozen, stored SC, MAYBE you can try again with more aggressive chemo before? Recombinant DNA, omitting/inserting sequences, if/when identified, may be the next frontier?\u003C/p>","class":"disc_cmnt","author":{"nickname":"unsubscribe321","status":4,"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"__typename":"User"},"reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"files":[],"level":"second","noOfChildRepliesToShow":2,"url":"reply/5898905567235735600","comments":[],"isChainDeleted":false,"counter":2}],"__typename":"Post"}}},"getRelatedPosts":{"status":"success","data":{"Search":{"posts":{"total_hits":1,"hits":[{"__typename":"Post","id":"16906128887873838933","tracking_id":"16906128887873838933","slug":"disc-looking-for-other-hsct-non-responders","class":"disc","created":"2024-05-20T23:41:47Z","active":"2024-07-09T17:43:00Z","updated":null,"depth":0,"author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"stefaniacfischer","status":4,"__typename":"User"},"content":"\u003Cp>Hello wonderful community.\u003C/p>\u003Cp>I am based in Australia and have been trying to find other people who have had a stem cell transplant and have unfortunately relapsed or progressed with their MS. There is not a lot of information out there and even less support for those of us who are walking the journey of HSCT not working for us. \u003C/p>\u003Cp>I had 2 years of no MS symptoms after the transplant, 1 relapse in 2022 and now having another relapse, with progressed disease activity and much worse symptoms. I have not found any real support for the emotional journey of being a non-responder and am looking to get some sense of community and peer support. \u003C/p>\u003Cp>I am hoping to find some people with whom I can share my story and listen to the stories of others who are in the same boat as me. \u003C/p>\u003Cp>Fingers crossed :)\u003C/p>","is_bookmarked":false,"reply_count":2,"url":"/groups/multiple-sclerosis/discussion/looking-for-other-hsct-non-responders/","title":"Looking for other HSCT non-responders","privacy":"public","muted":false,"cmnt_policy":"open","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"groups":[{"name_id":"multiple-sclerosis","group_id":200203,"name":"Multiple Sclerosis","url":"/groups/multiple-sclerosis/","topics":[{"id":2263,"name":"Treatments and therapies","__typename":"Topic"}],"__typename":"Group"}],"is_followed":false,"ti_followed":false,"sticky":false}],"__typename":"PostSearchResult"},"__typename":"SearchResult"}}}}</script></body></html>