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aria-hidden="true"> <ul id="menu-2-a860a23" class="elementor-nav-menu"><li class="menu-item menu-item-type-custom menu-item-object-custom current-menu-ancestor current-menu-parent menu-item-has-children menu-item-715"><a class="elementor-item" tabindex="-1">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-716"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item" tabindex="-1">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-722"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item" tabindex="-1">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-737"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item" tabindex="-1">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1879"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item" tabindex="-1">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1893"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item" tabindex="-1">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1905"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item" tabindex="-1">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1919"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item" tabindex="-1">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-728 current_page_item menu-item-736"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" aria-current="page" class="elementor-sub-item elementor-item-active" tabindex="-1">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-760"><a class="elementor-item" tabindex="-1">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2921"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item" tabindex="-1">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2592"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item" tabindex="-1">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2801"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item" tabindex="-1">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-761"><a href="https://vlinderkind.nl/schenking-en-nalatenschap/" class="elementor-sub-item" tabindex="-1">Schenking en nalatenschap</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2802"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item" tabindex="-1">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-763"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item" tabindex="-1">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-762"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item" tabindex="-1">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2219"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item" tabindex="-1">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-764"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item" tabindex="-1">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3667"><a class="elementor-item" tabindex="-1">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3673"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item" tabindex="-1">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3672"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item" tabindex="-1">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-767"><a class="elementor-item" tabindex="-1">Over ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-772"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item" tabindex="-1">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-964"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item" tabindex="-1">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-2372"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item" tabindex="-1">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-771"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item" tabindex="-1">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-770"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item" tabindex="-1">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-769"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item" tabindex="-1">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-768"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item" tabindex="-1">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-2313"><a href="https://vlinderkind.nl/team/" class="elementor-item" tabindex="-1">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2444"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item" tabindex="-1">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2447"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item" tabindex="-1">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4386"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item" tabindex="-1">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4398"><a href="https://vlinderkind.nl/coseb/" class="elementor-sub-item" tabindex="-1">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4099"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item" tabindex="-1">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4003"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item" tabindex="-1">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4242"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item" tabindex="-1">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4028"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item" tabindex="-1">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4083"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item" tabindex="-1">Campagne Materiaal</a></li> </ul> </li> </ul> </nav> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column 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elementor-section-height-default" data-id="ef7affa" data-element_type="section" data-settings="{"background_background":"classic","jet_parallax_layout_list":[],"sticky":"top","sticky_on":["desktop"],"sticky_offset":0,"sticky_effects_offset":0}"> <div class="elementor-container elementor-column-gap-default"> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-b60fa17" data-id="b60fa17" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-2384d8f elementor-widget elementor-widget-theme-site-logo elementor-widget-image" data-id="2384d8f" data-element_type="widget" data-widget_type="theme-site-logo.default"> <div class="elementor-widget-container"> <a href="https://vlinderkind.nl"> <img width="300" height="100" src="https://vlinderkind.nl/wp-content/uploads/2023/03/vlinderkind-logo.png" class="attachment-full size-full wp-image-624" alt="Stichting Vlinderkind" /> </a> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a649426" data-id="a649426" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-e0c63cc elementor-nav-menu__align-center elementor-nav-menu--stretch elementor-nav-menu--dropdown-tablet elementor-nav-menu__text-align-aside elementor-nav-menu--toggle elementor-nav-menu--burger elementor-widget elementor-widget-nav-menu" data-id="e0c63cc" data-element_type="widget" data-settings="{"submenu_icon":{"value":"<i class=\"fas fa-chevron-down\"><\/i>","library":"fa-solid"},"full_width":"stretch","layout":"horizontal","toggle":"burger"}" data-widget_type="nav-menu.default"> <div class="elementor-widget-container"> <nav class="elementor-nav-menu--main elementor-nav-menu__container elementor-nav-menu--layout-horizontal e--pointer-none"> <ul id="menu-1-e0c63cc" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom current-menu-ancestor current-menu-parent menu-item-has-children menu-item-3958"><a class="elementor-item">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-728 current_page_item menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" aria-current="page" class="elementor-sub-item elementor-item-active">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4397"><a href="https://vlinderkind.nl/coseb/" class="elementor-sub-item">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item">Materiaal</a></li> </ul> </li> </ul> </nav> <div class="elementor-menu-toggle" role="button" tabindex="0" aria-label="Menu toggle" aria-expanded="false"> <i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--open eicon-menu-bar"></i><i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--close eicon-close"></i> <span class="elementor-screen-only">Menu</span> </div> <nav class="elementor-nav-menu--dropdown elementor-nav-menu__container" aria-hidden="true"> <ul id="menu-2-e0c63cc" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item" tabindex="-1">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item" tabindex="-1">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item" tabindex="-1">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item" tabindex="-1">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item" tabindex="-1">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom current-menu-ancestor current-menu-parent menu-item-has-children menu-item-3958"><a class="elementor-item" tabindex="-1">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item" tabindex="-1">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item" tabindex="-1">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item" tabindex="-1">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item" tabindex="-1">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item" tabindex="-1">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item" tabindex="-1">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item" tabindex="-1">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-728 current_page_item menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" aria-current="page" class="elementor-sub-item elementor-item-active" tabindex="-1">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item" tabindex="-1">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item" tabindex="-1">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item" tabindex="-1">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item" tabindex="-1">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item" tabindex="-1">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item" tabindex="-1">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item" tabindex="-1">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item" tabindex="-1">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item" tabindex="-1">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item" tabindex="-1">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item" tabindex="-1">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item" tabindex="-1">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item" tabindex="-1">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item" tabindex="-1">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item" tabindex="-1">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item" tabindex="-1">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item" tabindex="-1">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item" tabindex="-1">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item" tabindex="-1">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item" tabindex="-1">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item" tabindex="-1">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item" tabindex="-1">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item" tabindex="-1">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item" tabindex="-1">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4397"><a href="https://vlinderkind.nl/coseb/" class="elementor-sub-item" tabindex="-1">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item" tabindex="-1">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item" tabindex="-1">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item" tabindex="-1">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item" tabindex="-1">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item" tabindex="-1">Materiaal</a></li> </ul> </li> </ul> </nav> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-f9b9fb7" data-id="f9b9fb7" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-97fa3b1 elementor-align-justify elementor-mobile-align-center elementor-widget elementor-widget-button" data-id="97fa3b1" data-element_type="widget" data-widget_type="button.default"> <div class="elementor-widget-container"> <div class="elementor-button-wrapper"> <a class="elementor-button elementor-button-link elementor-size-sm elementor-animation-shrink" href="https://vlinderkind.nl/doneer/"> <span class="elementor-button-content-wrapper"> <span class="elementor-button-text">doneer</span> </span> </a> </div> </div> </div> </div> </div> </div> </section> <section class="elementor-section elementor-top-section elementor-element elementor-element-f3d2c0b elementor-hidden-desktop elementor-hidden-tablet elementor-section-boxed elementor-section-height-default elementor-section-height-default" data-id="f3d2c0b" data-element_type="section" data-settings="{"background_background":"classic","sticky":"top","jet_parallax_layout_list":[],"sticky_on":["desktop","tablet","mobile"],"sticky_offset":0,"sticky_effects_offset":0}"> <div class="elementor-container elementor-column-gap-default"> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-5ef8335" data-id="5ef8335" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-7dd6524 elementor-nav-menu__align-start elementor-nav-menu--stretch elementor-nav-menu--dropdown-tablet elementor-nav-menu__text-align-aside elementor-nav-menu--toggle elementor-nav-menu--burger elementor-widget elementor-widget-nav-menu" data-id="7dd6524" data-element_type="widget" data-settings="{"submenu_icon":{"value":"<i class=\"fas fa-chevron-down\"><\/i>","library":"fa-solid"},"full_width":"stretch","layout":"horizontal","toggle":"burger"}" data-widget_type="nav-menu.default"> <div class="elementor-widget-container"> <nav class="elementor-nav-menu--main elementor-nav-menu__container elementor-nav-menu--layout-horizontal e--pointer-none"> <ul id="menu-1-7dd6524" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom current-menu-ancestor current-menu-parent menu-item-has-children menu-item-3958"><a class="elementor-item">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-728 current_page_item menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" aria-current="page" class="elementor-sub-item elementor-item-active">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4397"><a href="https://vlinderkind.nl/coseb/" class="elementor-sub-item">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item">Materiaal</a></li> </ul> </li> </ul> </nav> <div class="elementor-menu-toggle" role="button" tabindex="0" aria-label="Menu toggle" aria-expanded="false"> <i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--open eicon-menu-bar"></i><i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--close eicon-close"></i> <span class="elementor-screen-only">Menu</span> </div> <nav class="elementor-nav-menu--dropdown elementor-nav-menu__container" aria-hidden="true"> <ul id="menu-2-7dd6524" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item" tabindex="-1">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item" tabindex="-1">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item" tabindex="-1">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item" tabindex="-1">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item" tabindex="-1">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom current-menu-ancestor current-menu-parent menu-item-has-children menu-item-3958"><a class="elementor-item" tabindex="-1">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item" tabindex="-1">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item" tabindex="-1">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item" tabindex="-1">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item" tabindex="-1">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item" tabindex="-1">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item" tabindex="-1">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item" tabindex="-1">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-728 current_page_item menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" aria-current="page" class="elementor-sub-item elementor-item-active" tabindex="-1">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item" tabindex="-1">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item" tabindex="-1">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item" tabindex="-1">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item" tabindex="-1">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item" tabindex="-1">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item" tabindex="-1">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item" tabindex="-1">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item" tabindex="-1">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item" tabindex="-1">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item" tabindex="-1">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item" tabindex="-1">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item" tabindex="-1">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item" tabindex="-1">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item" tabindex="-1">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item" tabindex="-1">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item" tabindex="-1">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item" tabindex="-1">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item" tabindex="-1">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item" tabindex="-1">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item" tabindex="-1">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item" tabindex="-1">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item" tabindex="-1">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item" tabindex="-1">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item" tabindex="-1">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4397"><a href="https://vlinderkind.nl/coseb/" class="elementor-sub-item" tabindex="-1">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item" tabindex="-1">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item" tabindex="-1">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item" tabindex="-1">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item" tabindex="-1">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item" tabindex="-1">Materiaal</a></li> </ul> </li> </ul> </nav> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-f05e0d3" data-id="f05e0d3" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-07b2f80 elementor-widget-mobile__width-auto elementor-widget elementor-widget-theme-site-logo elementor-widget-image" data-id="07b2f80" data-element_type="widget" data-widget_type="theme-site-logo.default"> <div class="elementor-widget-container"> <a href="https://vlinderkind.nl"> <img width="300" height="100" src="https://vlinderkind.nl/wp-content/uploads/2023/03/vlinderkind-logo.png" class="attachment-full size-full wp-image-624" alt="Stichting Vlinderkind" /> </a> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-393a163" data-id="393a163" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-0bf6b69 elementor-align-right elementor-mobile-align-right elementor-widget elementor-widget-button" data-id="0bf6b69" data-element_type="widget" data-widget_type="button.default"> <div class="elementor-widget-container"> <div class="elementor-button-wrapper"> <a class="elementor-button elementor-button-link elementor-size-sm elementor-animation-shrink" href="https://vlinderkind.nl/doneer/"> <span class="elementor-button-content-wrapper"> <span class="elementor-button-text">doneer</span> </span> </a> </div> </div> </div> </div> </div> </div> </section> </div> <main id="content" class="site-main post-728 page type-page status-publish hentry"> <div class="page-header"> <h1 class="entry-title">Wat kun je eraan doen?</h1> </div> <div class="page-content"> <h1>Wat kun je er aan doen?</h1> <p>Epidermolysis Bullosa is vooralsnog niet te genezen. Door het voortdurende gevaar van infecties en complicaties is aangepaste verzorging en verbinding noodzakelijk.</p> <p>Omdat er <a href="https://vlinderkind.nl/vormen-van-eb/">verschillende typen EB</a> bestaan waarvan de effecten en gevolgen heel persoonlijk en afhankelijk van de mate van de aandoening zijn, is het onmogelijk via deze website iedereen van passende informatie te voorzien. Persoonlijke verzorging en medische behandeling moeten altijd in nauw overleg met de behandelend arts worden afgestemd.</p> <p><img fetchpriority="high" decoding="async" src="https://vlinderkind.nl/wp-content/uploads/2023/04/watkunjeeraandoen.jpeg" sizes="(max-width: 370px) 100vw, 370px" srcset="https://vlinderkind.nl/wp-content/uploads/2023/04/watkunjeeraandoen.jpeg 370w, https://vlinderkind.nl/wp-content/uploads/2023/04/watkunjeeraandoen-300x130.jpeg 300w" alt="" width="370" height="160" /></p> <p>Hieronder vind je enkele algemene verzorgingsadviezen die het dagelijks leven van EB-pati毛nten zo draaglijk mogelijk maken.</p> <p><a role="button" href="https://vlinderkind.nl/doneer/"><br /> steun ons & doneer<br /> </a></p> <h2></h2> <h2>Over EB</h2> <h2>Verbandmiddelen</h2> <ul> <li>Wonden genezen sneller in een vochtige bedekte omgeving. Kies dus voor wondverband dat een vochtige wondgenezing stimuleert.</li> <li>Het verbandmateriaal mag geen plakrand hebben i.v.m. het risico van het kapottrekken van de huid.</li> <li>Kies voor verbandmateriaal dat op maat te maken is of in meerdere maten te verkrijgen is zodat het altijd goed past op de wond.</li> <li>Kies voor verband met een siliconenlaag dat zonder schade kan worden verwijderd.</li> </ul> <h2>Baden</h2> <p>Baden of voorzichtig douchen helpt bij het verwijderen van korsten en weefselafval. Het helpt ook om de hoeveelheid bacteri毛n te verminderen, waardoor infecties kunnen worden voorkomen. Verder is het verwijderen van verbandmiddelen minder pijnlijk door het wekende effect van het water. Het is belangrijk om na het baden de huid niet af te drogen maar droog te deppen. Bij uitgebreide wonden kan men eventueel ook drogen met een haardroger (dan wel in zachte, koele stand).</p> <h2>Zalven en cr猫mes</h2> <p>Vocht- en vetinbrengende lotions, zalven, cr猫mes en badoli毛n kunnen verkoelend, beschermend, jeukstillend, verzachtend of afdekkend werken. Ze worden gebruikt om de conditie van de huid te verbeteren en jeuk en infecties te bestrijden. Vetzalven worden vaak voorgeschreven bij baby鈥檚 en kleine kinderen om de onder- en bovenrand van de luier en de pijpjes mee in te smeren. Dit vermindert de wrijving op de benen, buik en rug bij het dragen van een luier. Vetzalven kunnen ook gebruikt worden om de hechtende eigenschappen van opgeplakt materiaal te verweken waarna het materiaal zonder schade aan de huid kan worden verwijderd.</p> <h2>Kleding en schoenen</h2> <p>Kies ventilerende, zachte kleding met zo min mogelijk naden om de kans op blaarvorming te verminderen. Voor baby’s kan de kleding binnenstebuiten worden gedraaid zodat de naden niet de huid raken. Stoffen zoals satijn, zijde en zacht katoen zijn ideaal voor zowel beddengoed als kleding. Hoewel loszittende, lichtgewicht kleding doorgaans comfortabel is, helpen panty’s of leggings verbanden vast te houden en benen te beschermen.</p> <p>Schoenen moeten zacht, licht en makkelijk aan te trekken zijn. Ze moeten ook breed genoeg zijn in het kader van extra opvulling door verbandmiddelen. Zachte slippers, gevoerd met bijvoorbeeld schapenvacht, werken vaak beter dan conventionele schoenen.</p> <p> </p> </div> </main> <div data-elementor-type="footer" data-elementor-id="160" class="elementor elementor-160 elementor-location-footer" data-elementor-post-type="elementor_library"> <section class="elementor-section elementor-top-section elementor-element elementor-element-00bfd34 elementor-section-boxed elementor-section-height-default elementor-section-height-default" data-id="00bfd34" data-element_type="section" data-settings="{"background_background":"classic","jet_parallax_layout_list":[]}"> <div class="elementor-container elementor-column-gap-default"> <div class="elementor-column elementor-col-100 elementor-top-column elementor-element elementor-element-fbb308d" data-id="fbb308d" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <section class="elementor-section elementor-inner-section elementor-element elementor-element-1b50748 elementor-section-boxed elementor-section-height-default elementor-section-height-default" data-id="1b50748" data-element_type="section" data-settings="{"jet_parallax_layout_list":[]}"> <div class="elementor-container elementor-column-gap-default"> <div class="elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-27474e9" data-id="27474e9" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-caa70e4 elementor-widget elementor-widget-heading" data-id="caa70e4" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <style>/*! elementor - v3.22.0 - 24-06-2024 */ .elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading 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<div class="elementor-element elementor-element-c074465 elementor-widget elementor-widget-jet-listing-dynamic-link" data-id="c074465" data-element_type="widget" data-widget_type="jet-listing-dynamic-link.default"> <div class="elementor-widget-container"> <a href="mailto:info@vlinderkind.nl" class="jet-listing-dynamic-link__link"><i class="jet-listing-dynamic-link__icon far fa-envelope" aria-hidden="true"></i><span class="jet-listing-dynamic-link__label">info@vlinderkind.nl</span></a> </div> </div> <div class="elementor-element elementor-element-d534620 elementor-icon-list--layout-traditional elementor-list-item-link-full_width elementor-widget elementor-widget-icon-list" data-id="d534620" data-element_type="widget" data-widget_type="icon-list.default"> <div class="elementor-widget-container"> <ul class="elementor-icon-list-items"> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-text">IBAN: NL31 INGB 0000 0067 37</span> </li> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-text">KvK-nr.: 08087249</span> </li> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-text">RSIN: 816245800</span> </li> <li class="elementor-icon-list-item"> <span class="elementor-icon-list-text">BTW-nr.: 8162 4580 0B01</span> </li> </ul> </div> </div> <div class="elementor-element elementor-element-ab067c1 elementor-view-stacked elementor-widget__width-auto elementor-shape-circle elementor-widget elementor-widget-icon" data-id="ab067c1" data-element_type="widget" data-widget_type="icon.default"> <div class="elementor-widget-container"> <div class="elementor-icon-wrapper"> <a class="elementor-icon" href="https://www.facebook.com/stichtingvlinderkind/" target="_blank"> <i aria-hidden="true" class="fab fa-facebook-f"></i> </a> </div> </div> </div> <div class="elementor-element elementor-element-8b5f9aa elementor-view-stacked elementor-widget__width-auto elementor-shape-circle elementor-widget elementor-widget-icon" 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href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/"> <span class="elementor-icon-list-text">Jaarverslagen & begrotingen</span> </a> </li> </ul> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-inner-column elementor-element elementor-element-5d9d807" data-id="5d9d807" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-190b6a7 elementor-widget__width-initial erkenning elementor-widget elementor-widget-image" data-id="190b6a7" data-element_type="widget" data-widget_type="image.default"> <div class="elementor-widget-container"> <a href="https://www.cbf.nl/organisatie/vlinderkind" target="_blank"> <img width="1920" height="1169" src="data:image/svg+xml,%3Csvg%20xmlns='http://www.w3.org/2000/svg'%20viewBox='0%200%201920%201169'%3E%3C/svg%3E" class="elementor-animation-shrink attachment-full size-full wp-image-1018" alt="" 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data-widget_type="image.default"> <div class="elementor-widget-container"> <a href="https://www.belastingdienst.nl/wps/wcm/connect/bldcontentnl/belastingdienst/zakelijk/bijzondere_regelingen/goede_doelen/algemeen_nut_beogende_instellingen/wat_is_een_anbi" target="_blank"> <img width="273" height="217" src="data:image/svg+xml,%3Csvg%20xmlns='http://www.w3.org/2000/svg'%20viewBox='0%200%20273%20217'%3E%3C/svg%3E" class="elementor-animation-shrink attachment-full size-full wp-image-1021" alt="" data-lazy-src="https://vlinderkind.nl/wp-content/uploads/2023/04/ANBI_FC.jpeg" /><noscript><img width="273" height="217" src="https://vlinderkind.nl/wp-content/uploads/2023/04/ANBI_FC.jpeg" class="elementor-animation-shrink attachment-full size-full wp-image-1021" alt="" /></noscript> </a> </div> </div> </div> </div> </div> </section> </div> </div> </div> </section> <section class="elementor-section elementor-top-section elementor-element elementor-element-b0342a5 elementor-section-boxed 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