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elementor-nav-menu--burger elementor-widget elementor-widget-nav-menu" data-id="a860a23" data-element_type="widget" data-settings="{"submenu_icon":{"value":"<i class=\"fas fa-chevron-down\"><\/i>","library":"fa-solid"},"full_width":"stretch","layout":"horizontal","toggle":"burger"}" data-widget_type="nav-menu.default"> <div class="elementor-widget-container"> <nav class="elementor-nav-menu--main elementor-nav-menu__container elementor-nav-menu--layout-horizontal e--pointer-none"> <ul id="menu-1-a860a23" class="elementor-nav-menu"><li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-715"><a class="elementor-item">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-716"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-722"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-737"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1879"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1893"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1905"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1919"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-736"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" class="elementor-sub-item">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-760"><a class="elementor-item">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2921"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2592"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2801"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-761"><a href="https://vlinderkind.nl/schenking-en-nalatenschap/" class="elementor-sub-item">Schenking en nalatenschap</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2802"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-763"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-762"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2219"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-764"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3667"><a class="elementor-item">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3673"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3672"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-767"><a class="elementor-item">Over ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-772"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-964"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-2372"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-771"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-770"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-769"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-768"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-2313"><a href="https://vlinderkind.nl/team/" class="elementor-item">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2444"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2447"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4386"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-4390 current_page_item menu-item-4398"><a href="https://vlinderkind.nl/coseb/" aria-current="page" class="elementor-sub-item elementor-item-active">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4099"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4003"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4242"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4028"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4083"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item">Campagne Materiaal</a></li> </ul> </li> </ul> </nav> <div class="elementor-menu-toggle" role="button" tabindex="0" aria-label="Menu toggle" aria-expanded="false"> <i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--open eicon-menu-bar"></i><i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--close eicon-close"></i> <span class="elementor-screen-only">Menu</span> </div> <nav class="elementor-nav-menu--dropdown elementor-nav-menu__container" aria-hidden="true"> <ul id="menu-2-a860a23" class="elementor-nav-menu"><li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-715"><a class="elementor-item" tabindex="-1">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-716"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item" tabindex="-1">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-722"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item" tabindex="-1">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-737"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item" tabindex="-1">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1879"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item" tabindex="-1">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1893"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item" tabindex="-1">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1905"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item" tabindex="-1">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-1919"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item" tabindex="-1">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-736"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" class="elementor-sub-item" tabindex="-1">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-760"><a class="elementor-item" tabindex="-1">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2921"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item" tabindex="-1">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2592"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item" tabindex="-1">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2801"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item" tabindex="-1">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-761"><a href="https://vlinderkind.nl/schenking-en-nalatenschap/" class="elementor-sub-item" tabindex="-1">Schenking en nalatenschap</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2802"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item" tabindex="-1">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-763"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item" tabindex="-1">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-762"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item" tabindex="-1">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2219"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item" tabindex="-1">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-764"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item" tabindex="-1">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3667"><a class="elementor-item" tabindex="-1">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3673"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item" tabindex="-1">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3672"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item" tabindex="-1">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-767"><a class="elementor-item" tabindex="-1">Over ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-772"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item" tabindex="-1">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-964"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item" tabindex="-1">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-2372"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item" tabindex="-1">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-771"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item" tabindex="-1">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-770"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item" tabindex="-1">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-769"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item" tabindex="-1">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-768"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item" tabindex="-1">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-2313"><a href="https://vlinderkind.nl/team/" class="elementor-item" tabindex="-1">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2444"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item" tabindex="-1">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-2447"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item" tabindex="-1">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4386"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item" tabindex="-1">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-4390 current_page_item menu-item-4398"><a href="https://vlinderkind.nl/coseb/" aria-current="page" class="elementor-sub-item elementor-item-active" tabindex="-1">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4099"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item" tabindex="-1">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4003"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item" tabindex="-1">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4242"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item" tabindex="-1">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4028"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item" tabindex="-1">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4083"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item" tabindex="-1">Campagne Materiaal</a></li> </ul> </li> </ul> </nav> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-75b9bec" data-id="75b9bec" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-80cb03e elementor-align-justify elementor-mobile-align-center elementor-widget elementor-widget-button" data-id="80cb03e" data-element_type="widget" data-widget_type="button.default"> <div class="elementor-widget-container"> <div class="elementor-button-wrapper"> <a class="elementor-button elementor-button-link elementor-size-sm elementor-animation-shrink" href="https://vlinderkind.nl/doneer/"> <span class="elementor-button-content-wrapper"> <span class="elementor-button-text">doneer</span> </span> </a> </div> </div> </div> </div> </div> </div> </section> <section class="elementor-section elementor-top-section elementor-element elementor-element-ef7affa elementor-hidden-mobile elementor-hidden-desktop elementor-section-boxed elementor-section-height-default elementor-section-height-default" data-id="ef7affa" data-element_type="section" data-settings="{"background_background":"classic","jet_parallax_layout_list":[],"sticky":"top","sticky_on":["desktop"],"sticky_offset":0,"sticky_effects_offset":0}"> <div class="elementor-container elementor-column-gap-default"> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-b60fa17" data-id="b60fa17" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-2384d8f elementor-widget elementor-widget-theme-site-logo elementor-widget-image" data-id="2384d8f" data-element_type="widget" data-widget_type="theme-site-logo.default"> <div class="elementor-widget-container"> <a href="https://vlinderkind.nl"> <img width="300" height="100" src="https://vlinderkind.nl/wp-content/uploads/2023/03/vlinderkind-logo.png" class="attachment-full size-full wp-image-624" alt="Stichting Vlinderkind" /> </a> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-a649426" data-id="a649426" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-e0c63cc elementor-nav-menu__align-center elementor-nav-menu--stretch elementor-nav-menu--dropdown-tablet elementor-nav-menu__text-align-aside elementor-nav-menu--toggle elementor-nav-menu--burger elementor-widget elementor-widget-nav-menu" data-id="e0c63cc" data-element_type="widget" data-settings="{"submenu_icon":{"value":"<i class=\"fas fa-chevron-down\"><\/i>","library":"fa-solid"},"full_width":"stretch","layout":"horizontal","toggle":"burger"}" data-widget_type="nav-menu.default"> <div class="elementor-widget-container"> <nav class="elementor-nav-menu--main elementor-nav-menu__container elementor-nav-menu--layout-horizontal e--pointer-none"> <ul id="menu-1-e0c63cc" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3958"><a class="elementor-item">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" class="elementor-sub-item">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-4390 current_page_item menu-item-4397"><a href="https://vlinderkind.nl/coseb/" aria-current="page" class="elementor-sub-item elementor-item-active">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item">Materiaal</a></li> </ul> </li> </ul> </nav> <div class="elementor-menu-toggle" role="button" tabindex="0" aria-label="Menu toggle" aria-expanded="false"> <i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--open eicon-menu-bar"></i><i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--close eicon-close"></i> <span class="elementor-screen-only">Menu</span> </div> <nav class="elementor-nav-menu--dropdown elementor-nav-menu__container" aria-hidden="true"> <ul id="menu-2-e0c63cc" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item" tabindex="-1">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item" tabindex="-1">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item" tabindex="-1">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item" tabindex="-1">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item" tabindex="-1">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3958"><a class="elementor-item" tabindex="-1">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item" tabindex="-1">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item" tabindex="-1">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item" tabindex="-1">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item" tabindex="-1">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item" tabindex="-1">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item" tabindex="-1">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item" tabindex="-1">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" class="elementor-sub-item" tabindex="-1">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item" tabindex="-1">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item" tabindex="-1">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item" tabindex="-1">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item" tabindex="-1">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item" tabindex="-1">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item" tabindex="-1">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item" tabindex="-1">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item" tabindex="-1">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item" tabindex="-1">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item" tabindex="-1">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item" tabindex="-1">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item" tabindex="-1">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item" tabindex="-1">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item" tabindex="-1">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item" tabindex="-1">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item" tabindex="-1">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item" tabindex="-1">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item" tabindex="-1">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item" tabindex="-1">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item" tabindex="-1">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item" tabindex="-1">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item" tabindex="-1">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item" tabindex="-1">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item" tabindex="-1">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-4390 current_page_item menu-item-4397"><a href="https://vlinderkind.nl/coseb/" aria-current="page" class="elementor-sub-item elementor-item-active" tabindex="-1">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item" tabindex="-1">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item" tabindex="-1">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item" tabindex="-1">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item" tabindex="-1">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item" tabindex="-1">Materiaal</a></li> </ul> </li> </ul> </nav> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-f9b9fb7" data-id="f9b9fb7" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-97fa3b1 elementor-align-justify elementor-mobile-align-center elementor-widget elementor-widget-button" data-id="97fa3b1" data-element_type="widget" data-widget_type="button.default"> <div class="elementor-widget-container"> <div class="elementor-button-wrapper"> <a class="elementor-button elementor-button-link elementor-size-sm elementor-animation-shrink" href="https://vlinderkind.nl/doneer/"> <span class="elementor-button-content-wrapper"> <span class="elementor-button-text">doneer</span> </span> </a> </div> </div> </div> </div> </div> </div> </section> <section class="elementor-section elementor-top-section elementor-element elementor-element-f3d2c0b elementor-hidden-desktop elementor-hidden-tablet elementor-section-boxed elementor-section-height-default elementor-section-height-default" data-id="f3d2c0b" data-element_type="section" data-settings="{"background_background":"classic","sticky":"top","jet_parallax_layout_list":[],"sticky_on":["desktop","tablet","mobile"],"sticky_offset":0,"sticky_effects_offset":0}"> <div class="elementor-container elementor-column-gap-default"> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-5ef8335" data-id="5ef8335" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-7dd6524 elementor-nav-menu__align-start elementor-nav-menu--stretch elementor-nav-menu--dropdown-tablet elementor-nav-menu__text-align-aside elementor-nav-menu--toggle elementor-nav-menu--burger elementor-widget elementor-widget-nav-menu" data-id="7dd6524" data-element_type="widget" data-settings="{"submenu_icon":{"value":"<i class=\"fas fa-chevron-down\"><\/i>","library":"fa-solid"},"full_width":"stretch","layout":"horizontal","toggle":"burger"}" data-widget_type="nav-menu.default"> <div class="elementor-widget-container"> <nav class="elementor-nav-menu--main elementor-nav-menu__container elementor-nav-menu--layout-horizontal e--pointer-none"> <ul id="menu-1-7dd6524" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3958"><a class="elementor-item">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" class="elementor-sub-item">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-4390 current_page_item menu-item-4397"><a href="https://vlinderkind.nl/coseb/" aria-current="page" class="elementor-sub-item elementor-item-active">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item">Materiaal</a></li> </ul> </li> </ul> </nav> <div class="elementor-menu-toggle" role="button" tabindex="0" aria-label="Menu toggle" aria-expanded="false"> <i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--open eicon-menu-bar"></i><i aria-hidden="true" role="presentation" class="elementor-menu-toggle__icon--close eicon-close"></i> <span class="elementor-screen-only">Menu</span> </div> <nav class="elementor-nav-menu--dropdown elementor-nav-menu__container" aria-hidden="true"> <ul id="menu-2-7dd6524" class="elementor-nav-menu"><li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-4100"><a href="https://vlinderkind.nl/campagne-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-item" tabindex="-1">Campagne: Vlinderziekte</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-4030"><a href="https://vlinderkind.nl/persbericht-vlinderziekte-een-verschrikkelijke-kinderziekte/" class="elementor-sub-item" tabindex="-1">Campagne Persbericht</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4243"><a href="https://vlinderkind.nl/qa-campagne-vlinderziekte/" class="elementor-sub-item" tabindex="-1">Q&A Campagne Vlinderziekte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4029"><a href="https://vlinderkind.nl/artikel-wendy-van-teeffelen/" class="elementor-sub-item" tabindex="-1">Artikel Wendy van Teeffelen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4082"><a href="https://vlinderkind.nl/campagne-materiaal/" class="elementor-sub-item" tabindex="-1">Campagne Materiaal</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3958"><a class="elementor-item" tabindex="-1">Over EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3959"><a href="https://vlinderkind.nl/wat-is-eb/" class="elementor-sub-item" tabindex="-1">Wat is EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3961"><a href="https://vlinderkind.nl/hoe-krijg-je-eb/" class="elementor-sub-item" tabindex="-1">Hoe krijg je EB?</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3960"><a href="https://vlinderkind.nl/vormen-van-eb/" class="elementor-sub-item" tabindex="-1">Vormen van EB</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3962"><a href="https://vlinderkind.nl/eb-simplex/" class="elementor-sub-item" tabindex="-1">EB Simplex</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3963"><a href="https://vlinderkind.nl/junctioneel-eb/" class="elementor-sub-item" tabindex="-1">Junctioneel EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3964"><a href="https://vlinderkind.nl/dystrofische-eb/" class="elementor-sub-item" tabindex="-1">Dystrofische EB</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3965"><a href="https://vlinderkind.nl/kindlersyndroom/" class="elementor-sub-item" tabindex="-1">Kindlersyndroom</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3966"><a href="https://vlinderkind.nl/wat-kun-je-eraan-doen/" class="elementor-sub-item" tabindex="-1">Wat kun je eraan doen?</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3967"><a class="elementor-item" tabindex="-1">Help mee</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3968"><a href="https://vlinderkind.nl/doneer/" class="elementor-sub-item" tabindex="-1">Doneer</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3969"><a href="https://vlinderkind.nl/kom-in-actie/" class="elementor-sub-item" tabindex="-1">Kom in actie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3970"><a href="https://vlinderkind.nl/belastingvrij-schenken/" class="elementor-sub-item" tabindex="-1">Belastingvrij schenken</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3971"><a href="https://vlinderkind.nl/online-collecte/" class="elementor-sub-item" tabindex="-1">Online collecte</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3972"><a href="https://vlinderkind.nl/bedrijven/" class="elementor-sub-item" tabindex="-1">Bedrijven</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3973"><a href="https://vlinderkind.nl/scholen/" class="elementor-sub-item" tabindex="-1">Scholen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3974"><a href="https://vlinderkind.nl/statiegeldactie/" class="elementor-sub-item" tabindex="-1">Statiegeldactie</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3975"><a href="https://vlinderkind.nl/vrijwillgerswerk/" class="elementor-sub-item" tabindex="-1">Vrijwillgerswerk</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3976"><a class="elementor-item" tabindex="-1">Vlinderkinderen</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3978"><a href="https://vlinderkind.nl/vlinderkind/" class="elementor-sub-item" tabindex="-1">Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3977"><a href="https://vlinderkind.nl/lotgenotencontact/" class="elementor-sub-item" tabindex="-1">Lotgenotencontact</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3979"><a class="elementor-item" tabindex="-1">Over Ons</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3980"><a href="https://vlinderkind.nl/oorsprong-en-doelstelling/" class="elementor-sub-item" tabindex="-1">Oorsprong en doelstelling</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-has-children menu-item-3981"><a href="https://vlinderkind.nl/bestuur/" class="elementor-sub-item" tabindex="-1">Organisatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-3983"><a href="https://vlinderkind.nl/?jet_download=2368" class="elementor-sub-item" tabindex="-1">Bestuur</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3984"><a href="https://vlinderkind.nl/beleidsplannen/" class="elementor-sub-item" tabindex="-1">Beleidsplannen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3985"><a href="https://vlinderkind.nl/jaarverslagen-en-begrotingen/" class="elementor-sub-item" tabindex="-1">Jaarverslagen en begrotingen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3982"><a href="https://vlinderkind.nl/integriteitsbeleid/" class="elementor-sub-item" tabindex="-1">Integriteitsbeleid</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3986"><a href="https://vlinderkind.nl/onze-erkenningen/" class="elementor-sub-item" tabindex="-1">Onze erkenningen</a></li> </ul> </li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-ancestor current-menu-parent current_page_parent current_page_ancestor menu-item-has-children menu-item-3988"><a href="https://vlinderkind.nl/team/" class="elementor-item" tabindex="-1">Onderzoek</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3990"><a href="https://vlinderkind.nl/subsidie-aanvragen/" class="elementor-sub-item" tabindex="-1">Subsidie aanvragen</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3989"><a href="https://vlinderkind.nl/financiering-onderzoek/" class="elementor-sub-item" tabindex="-1">Gefinancierd onderzoek</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-4388"><a href="https://vlinderkind.nl/de-weg-naar-een-eb-diagnose/" class="elementor-sub-item" tabindex="-1">De weg naar een EB diagnose</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page current-menu-item page_item page-item-4390 current_page_item menu-item-4397"><a href="https://vlinderkind.nl/coseb/" aria-current="page" class="elementor-sub-item elementor-item-active" tabindex="-1">COSEB</a></li> </ul> </li> <li class="menu-item menu-item-type-custom menu-item-object-custom menu-item-has-children menu-item-3991"><a class="elementor-item" tabindex="-1">Media en informatie</a> <ul class="sub-menu elementor-nav-menu--dropdown"> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3995"><a href="https://vlinderkind.nl/actueel/" class="elementor-sub-item" tabindex="-1">Nieuws van Vlinderkind</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3994"><a href="https://vlinderkind.nl/folders-en-brochures/" class="elementor-sub-item" tabindex="-1">Folders en brochures</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3993"><a href="https://vlinderkind.nl/voor-de-pers/" class="elementor-sub-item" tabindex="-1">Voor de pers</a></li> <li class="menu-item menu-item-type-post_type menu-item-object-page menu-item-3992"><a href="https://vlinderkind.nl/materiaal/" class="elementor-sub-item" tabindex="-1">Materiaal</a></li> </ul> </li> </ul> </nav> </div> </div> </div> </div> <div class="elementor-column elementor-col-33 elementor-top-column elementor-element elementor-element-f05e0d3" data-id="f05e0d3" data-element_type="column"> <div class="elementor-widget-wrap elementor-element-populated"> <div class="elementor-element elementor-element-07b2f80 elementor-widget-mobile__width-auto elementor-widget elementor-widget-theme-site-logo elementor-widget-image" data-id="07b2f80" 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href="https://vlinderkind.nl/doneer/"> <span class="elementor-button-content-wrapper"> <span class="elementor-button-text">doneer</span> </span> </a> </div> </div> </div> </div> </div> </div> </section> </div> <div data-elementor-type="wp-page" data-elementor-id="4390" class="elementor elementor-4390" data-elementor-post-type="page"> <div class="elementor-element elementor-element-a90b69a e-flex e-con-boxed e-con e-parent" data-id="a90b69a" data-element_type="container" data-settings="{"jet_parallax_layout_list":[]}"> <div class="e-con-inner"> <div class="elementor-element elementor-element-bbaac89 elementor-widget elementor-widget-heading" data-id="bbaac89" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <style>/*! elementor - v3.22.0 - 24-06-2024 */ .elementor-heading-title{padding:0;margin:0;line-height:1}.elementor-widget-heading .elementor-heading-title[class*=elementor-size-]>a{color:inherit;font-size:inherit;line-height:inherit}.elementor-widget-heading .elementor-heading-title.elementor-size-small{font-size:15px}.elementor-widget-heading .elementor-heading-title.elementor-size-medium{font-size:19px}.elementor-widget-heading .elementor-heading-title.elementor-size-large{font-size:29px}.elementor-widget-heading .elementor-heading-title.elementor-size-xl{font-size:39px}.elementor-widget-heading .elementor-heading-title.elementor-size-xxl{font-size:59px}</style><div class="elementor-heading-title elementor-size-default">Nieuws uit het UMCG</div> </div> </div> <div class="elementor-element elementor-element-2c00863 elementor-widget elementor-widget-heading" data-id="2c00863" data-element_type="widget" data-widget_type="heading.default"> <div class="elementor-widget-container"> <h1 class="elementor-heading-title elementor-size-default">COSEB</h1> </div> </div> <div class="elementor-element elementor-element-07dbd8e elementor-widget elementor-widget-text-editor" data-id="07dbd8e" data-element_type="widget" data-widget_type="text-editor.default"> <div class="elementor-widget-container"> <style>/*! elementor - v3.22.0 - 24-06-2024 */ .elementor-widget-text-editor.elementor-drop-cap-view-stacked .elementor-drop-cap{background-color:#69727d;color:#fff}.elementor-widget-text-editor.elementor-drop-cap-view-framed .elementor-drop-cap{color:#69727d;border:3px solid;background-color:transparent}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap{margin-top:8px}.elementor-widget-text-editor:not(.elementor-drop-cap-view-default) .elementor-drop-cap-letter{width:1em;height:1em}.elementor-widget-text-editor .elementor-drop-cap{float:left;text-align:center;line-height:1;font-size:50px}.elementor-widget-text-editor .elementor-drop-cap-letter{display:inline-block}</style> <p>Er gebeurt wereldwijd veel onderzoek naar nieuwe behandelingen voor EB. Elke behandeling moet in klinische studies bij pati毛nten onderzocht worden om de effectiviteit en veiligheid van de behandeling beter te begrijpen en vast te stellen. Als een behandeling in meerdere klinische studies onderzocht wordt, is het essentieel dat de uitkomsten van die studies goed met elkaar vergeleken kunnen worden, zeker omdat EB een zeldzame ziekte is en behandelingen niet bij<br />honderden pati毛nten tegelijk onderzocht kunnen worden.</p><p>COSEB is een internationaal samenwerkingsinitiatief om Core Outcome Sets te ontwikkelen voor klinische studies naar de vier hoofdvormen van EB (simplex, dystrofische, junctionele en Kindler EB). Een Core Outcome Set (in het Nederlands: kernuitkomstenset) is een gestandaardiseerde set van uitkomstmaten die gemeten moet worden in de klinische studies. Door deze standaardisatie kunnen onderzoeksresultaten beter met elkaar gecombineerd en vergeleken worden, wat leidt tot betere informatie bij het maken van keuzes voor behandelingen.</p><p>Bij de ontwikkeling van Core Outcome Sets wordt de input van pati毛nten vanaf het begin meegenomen: wat vinden zij dat onderzoeken naar nieuwe medicijnen moeten meten? Bijvoorbeeld het effect op jeuk, pijn, verlittekening, of andere aspecten die voor pati毛nten belangrijk zijn.</p><p>Het consortium bestaat uit meer dan 70 leden wereldwijd, met een stuurgroep, adviescommissie en werkgroepen voor de verschillende EB-types. In oktober 2024 was er een bijeenkomst in Wenen met 69 deelnemers om de voortgang te bespreken en de volgende stappen vorm te geven. Het protocol voor het COSEB-project is goedgekeurd door het UMCG en wordt nu gepubliceerd. De concrete volgende stap is het opzetten van internationale interviewstudies om de stem van pati毛nten goed mee te nemen in het onderzoek.</p><p>Het consortium zoekt nog nieuwe leden, ook uit Nederland, om de pati毛ntenstem te vertegenwoordigen in COSEB. Je kunt bijvoorbeeld lid worden van de adviescommissie, of actiever deelnemen als lid van een werkgroep. Wel is het belangrijk dat je goed Engels kunt spreken. Wanneer we de interviewstudies gaan opzetten, zullen we ook de Nederlandse pati毛ntengroep benaderen. We hopen dan deelnemers te vinden die ons willen vertellen welke behandeluitkomsten voor hen echt belangrijk zijn.</p><p>Voor meer informatie of vragen, stuur een mail naar: <a href="mailto:coseb@umcg.nl">coseb@umcg.nl</a></p> </div> </div> <div class="elementor-element elementor-element-cb9482a elementor-widget elementor-widget-image" data-id="cb9482a" data-element_type="widget" data-widget_type="image.default"> <div class="elementor-widget-container"> <img fetchpriority="high" decoding="async" width="800" height="243" src="data:image/svg+xml,%3Csvg%20xmlns='http://www.w3.org/2000/svg'%20viewBox='0%200%20800%20243'%3E%3C/svg%3E" class="attachment-large size-large wp-image-4393" alt="" data-lazy-srcset="https://vlinderkind.nl/wp-content/uploads/2024/11/COSEB-Logo.png 922w, https://vlinderkind.nl/wp-content/uploads/2024/11/COSEB-Logo-300x91.png 300w, https://vlinderkind.nl/wp-content/uploads/2024/11/COSEB-Logo-768x233.png 768w" data-lazy-sizes="(max-width: 800px) 100vw, 800px" 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