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Now, I balance my desire to experience everything I can with the level of pain I can tolerate."/><meta name="k1" content="diettypes"/><meta name="k2" content="weightmanagement"/><meta name="ROBOTS" content="NOODP"/><meta name="sailthru.image.thumb" content="https://media.post.rvohealth.io/wp-content/uploads/2020/08/9490-female_beer_732x549-thumb-732x549.jpg"/><meta name="sailthru.tags" content="diettypes,weightmanagement"/><meta name="article:published_time" content="2018-09-07T07:00:00.000Z"/><meta name="article:author" content="Chaya Rusk"/><meta property="og:title" content="I Ditched My Restrictive Doctor-Recommend Diet to Live My Life"/><meta property="og:description" content="I was diagnosed with interstitial cystitis (IC), a painful bladder disorder, when I was 16 and followed a strict recommended diet to keep my pain down. But I’ve decided I’m done losing the intimacy shared through food. Now, I balance my desire to experience everything I can with the level of pain I can tolerate."/><meta property="og:type" content="article"/><meta property="og:url" content="https://www.healthline.com/health/restrictive-diet-versus-quality-of-life"/><meta name="twitter:title" content="I Ditched My Restrictive Doctor-Recommend Diet to Live My Life"/><meta name="twitter:description" content="I was diagnosed with interstitial cystitis (IC), a painful bladder disorder, when I was 16 and followed a strict recommended diet to keep my pain down. But I’ve decided I’m done losing the intimacy shared through food. 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Community</h3><p>Bezzy communities provide meaningful connections with others living with chronic conditions. 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data-testid="header-leaderboard" data-sticky="true"><div data-empty="true" class="css-1j2d96m"><div class="css-1hjaa0k"><span class="css-zya54r"></span></div><div id="dlb1__slot" data-adbridg-ad-class="dlb1" data-ad="true" class="css-1jpwf16"></div></div></aside></div><aside data-testid="mobile-leaderboard" class="css-pdceuf"><div class="css-11egx89"><button class="icon-hl-close-thick css-16m9poz"></button><div data-empty="true" class="css-1fteite"><div class="css-1hjaa0k"><span class="css-zya54r"></span></div><div id="mlb1__slot" data-adbridg-ad-class="mlb1" data-ad="true" class="css-bcus5s"></div></div></div></aside><div data-placement="subheader"></div><div><div class="css-m260rd"><div data-article-body="0" class="css-blwnmv"><div class="css-z468a2"><a class="css-e741w6" target="_blank" rel="noopener noreferrer" data-event="Navigation|breadcrumb click|PERSPECTIVE|clicked"><h4 class="css-1rv6y9r">PERSPECTIVE</h4></a><h1 class="css-6jxmuv">I Ditched My Restrictive Doctor-Recommended Diet to Live My Life</h1><div data-preamp="social-proof-lessons" class="css-12cuedr"></div><div data-testid="byline"><section data-testid="byline" class="css-jy1umg"><div><span><span><span><span>Written by <span>Chaya Rusk</span></span></span></span></span> — <a class="css-1c2ok3c css-ro87dg" target="_blank" rel="noopener noreferrer"><span> Updated on April 19, 2019</span></a></div></section></div><div><article class="article-body css-d2znx6 undefined"><div class="css-12va8w7"><span style="font-size:0;line-height:0"></span><div></div><span style="font-size:0;line-height:0"></span><div><p>I couldn’t give up the connections and experiences good food and drink bring any longer.</p></div><div><div><figure class="css-yhe8zq"><span class="css-rwmw5v"><span class="css-mjp0j9"><picture class="css-16pk1is"><source srcSet="//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1575 750w" media="(min-width: 1190px)"/><source srcSet="//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1575 750w" media="(min-width: 990px)"/><source srcSet="//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1845 879w" media="(min-width: 768px)"/><img src="//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1155&h=1528" class="css-1jytyml"/></picture></span><hl-share-overlay class="css-18moxll"><a class="icon-hl-pinterest css-q12qfg" target="_blank" rel="noopener noreferrer nofollow" data-event="Any Page|Image Pinterest Click|Icon Clicked" data-element-event="OPEN|CONTENTBLOCK|Any Page|Article Body|BUTTON|Image Widget Pinterest Click|" href="https://www.pinterest.com/pin/create/button/?url=https%3A%2F%2Fwww.healthline.com%2Fhealth%2Frestrictive-diet-versus-quality-of-life&media=https%3A%2F%2Fimages-prod.healthline.com%2Fhlcmsresource%2Fimages%2Ftopic_centers%2F2018-9%2F9490-female_beer_1296x728-header.jpg&description=I%20Ditched%20My%20Restrictive%20Doctor-Recommend%20Diet%20to%20Live%20My%20Life" title="Share on Pinterest" data-pin-custom="true" data-share-url="https://images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg"><span class="css-8yl26h">Share on Pinterest</span></a></hl-share-overlay></span></figure></div></div><div><p><strong><em>How we see the world shapes who we choose to be — and sharing compelling experiences can frame the way we treat each other, for the better. This is a powerful perspective.</em></strong></p></div><div><div data-preamp="serena-chatbot"></div></div><div><p>Dean Martin once said, “I feel sorry for people who don’t drink. When they wake up in the morning, that’s as good as they’re going to feel all day.” </p></div><div><p>The minutes or hours before I eat or drink anything each morning are as good as I’m going to feel each day. But it’s not due to abstinence — I enjoy a delicious glass of wine. </p></div><div><p>It’s because I have chronic <a href="https://www.healthline.com/health/interstitial-cystitis" class="content-link css-1c2ok3c">interstitial cystitis (IC)</a>, or painful bladder syndrome. It calls for a strict recommended <a href="https://www.ichelp.org/wp-content/uploads/2015/06/Diet-and-IC-2011.pdf" target="_blank" rel="noopener noreferrer" class="content-link css-1c2ok3c">diet</a> to keep symptoms at bay.</p></div><div><p>IC is a painful, chronic bladder inflammation that causes frequent urination, urgency, pain, pressure, and immense <hl-trusted-source source="PubMed Central" rationale="Highly respected database from the National Institutes of Health"><a href="https://www.ncbi.nlm.nih.gov/pubmed/16445303" target="_blank" rel="noopener noreferrer" class="content-link css-1c2ok3c">cost</a></hl-trusted-source>. In my case, it causes <a href="https://www.healthline.com/health/levator-ani-syndrome" class="content-link css-1c2ok3c">pelvic floor dysfunction</a> severe enough to necessitate <a href="https://www.healthline.com/health/overactive-bladder-botox" class="content-link css-1c2ok3c">Botox injections</a> every three months.</p></div><div><p>My lowest pain level is when I first wake up, before I’ve had anything to eat or drink that might irritate my incredibly sensitive bladder. </p></div><div><blockquote class="css-pc7ote">If I eat a spice, enjoy something mildly acidic, or have a coffee or cocktail, my IC kicks up and feels like I have a livid hedgehog somersaulting in my bladder.</blockquote></div><div><p>Still, I’ve decided I’m done losing the intimacy shared through food, the creativity of new culinary endeavors, or just my own hedonistic desire to taste and experience everything I can. </p></div><div><p>Somewhere, my urogynecologist is cringing because she knows what I’m about to tell you: I don’t adhere to the diet. </p></div><div><p>The IC diet is a <a href="https://www.healthline.com/nutrition/elimination-diet" class="content-link css-1c2ok3c">one of elimination</a>, meaning you essentially dial your food intake down to three ingredients and try to tolerate bland, dull food to keep your symptoms low. The elimination part comes in when you welcome a fourth ingredient. </p></div><div><p>Say you’re only eating bread, bananas, and apples — with nothing on them. You might give butter a try and see how you feel. If that butter amps up symptoms, try a different one. </p></div><div><p>Then you must decide whether to accept a baseline of pain with a diet that includes butter, of all the building-block ingredients, or eschew it for a lifetime of lower (but not nonexistent) pain and butterless rolls. </p></div><div><p>I spent much of my time initially thinking about how ketchup is acidic and chocolate is aggravating while picking at piles of bare chicken breast and brown rice. Then I realized that, to me, breaking bread together is essential for bonding with people.</p></div><div class="css-20w1gi"><aside class="css-0 css-0" data-testid="sticky-inline-ad" data-sticky="false"><div><div data-empty="true" class="css-1sq15os"><div class="css-1hjaa0k"><span class="css-zya54r"></span></div><div id="inline2__slot" data-adbridg-ad-class="inline2__slot" data-ad="true" class="css-1t05dkn"></div></div></div></aside></div></div><div class="css-1avyp1d"><span style="font-size:0;line-height:0"></span><h2><div><a class="chartbeat-section" name="Accepting-more-pain-to-revel-in-new-culinary-delights">Accepting more pain to revel in new culinary delights</a></div></h2><span style="font-size:0;line-height:0"></span><div><p>I need to experience, experiment, and taste. My most attuned sense (second to chronic pain, which becomes a sort of sixth sense after you’ve spent enough years suffering) has always been taste. </p></div><div><blockquote class="css-pc7ote">I can manage pain. Withering in a bland, colorless, tasteless, revel-free lifetime, I cannot.</blockquote></div><div><p>Quality of life is an imprecise metric clinicians use, and patients have to define it for themselves. Part of self-advocacy as a patient with a chronic, long-term disorder is developing the assertiveness to claim the life you want.</p></div><div><p>Clinicians frown at my coffee intake and love of tasting menus. But I find it ableist that a common assumption is people with illnesses should be good, compliant patients willing to self-sacrifice to validate the legitimacy of their pain. </p></div><div><p>When I got my diagnosis at 16, I considered the life before me and decided I could deal with more pain than I felt on a restrictive diet. A couple of years later, I took my low-symptom self to Dublin and London for semesters abroad. I ate everything, and most nights were capped off with healthy, shame-free pints. So what if I went to the restroom five times more than my companions? </p></div><div><p>The gap between the doctor-ordered lifestyle limitations and my desire to learn the world through taste was mentally easy for me to jump across.</p></div><div><p>So, I fearlessly indulge in my friend’s homemade curry. I developed a tea obsession that led to bonding with one of my closest friends. On Sundays, my partner and I cook a new recipe, generally something that takes up some time and little more careful mincing and searing.</p></div><div><p>These and many other culinary adventures irritate my leaky bladder wall, which reacts to cayenne pepper like a slug getting salted. </p></div><div><p>Yet these moments and the memories they’ve given me are crucial to the quality of life I have. </p></div><div><blockquote class="css-pc7ote">If the difference is bladder pain rated 4 versus 6, I’d so much rather taste the spiced chocolate chip cookies my colleague made than abstain.</blockquote></div><div><p>At a certain point, pain is pain, and its number score becomes less tempting to scrutinize. </p></div><div><p>People familiar with the IC diet will protest that drinking alcohol is like, well, pouring alcohol into an open wound. While I don’t disagree, I think assessing the value of the drink is everything. Faced with multiple study abroad opportunities where social bonding almost exclusively happened in Dublin and London pubs, I made the choice to prioritize memorable experiences over base, crude pain. </p></div><span class="css-zya54r"></span></div><div class="css-1avyp1d"><span style="font-size:0;line-height:0"></span><h2><div><a class="chartbeat-section" name="There-s-still-consideration-planning-and-balance">There’s still consideration, planning, and balance</a></div></h2><span style="font-size:0;line-height:0"></span><div><p>I stopped the elimination diet nonsense about a decade ago. My one concession today is to avoid spicy dishes after 8 p.m. so sleep isn’t a nocturnal battle between paprika and the milk I’ll have to chug to offset it.</p></div><div><p>I’m still armed with helpmates like <a href="https://www.prelief.com/" target="_blank" rel="noopener noreferrer" class="content-link css-1c2ok3c">Prelief</a>, an <a href="https://www.javacid.com/" target="_blank" rel="noopener noreferrer" class="content-link css-1c2ok3c">acid reducer</a> in my coffee, and <a href="https://www.healthline.com/health/gerd/baking-soda" class="content-link css-1c2ok3c">baking soda-water rescue drinks</a>, I resolved to just do my best with this pain baseline. I’m strategic — I don’t tempt the tapas gods the night before a flight — but I’ll never feel more fulfilled because I was a model patient complying with a diet predicated on emptiness. </p></div><div><p>I start my mornings now on my roof with a big Chemex full of coffee from my favorite shop in the Berkshires. I think about the friends I was with when I discovered the brew, and my life is fuller for the shared experience of exquisite pour-over in a picturesque place. </p></div><div><p>While an easy decision to accept more pain for wholehearted living, it wasn’t an effortless transition. Resisting pain and managing it well enough to avoid succumbing to any number of poor coping mechanisms takes sincere commitment. </p></div><div><p>I’ve angry-cried with the cook’s form of writer’s block in front of my fridge more times than I’ll admit. But I’ve found those quiet moments of frustration have faded as I need more room for planning and remembering moments with friends and family. </p></div><div><p>By making my life a treasure hunt for flavors — whether food, people, or stories — I’ve defied an illness that could’ve stolen my joy.</p></div><div><hr/></div><div><p><em>Chaya is a reluctant bladder owner residing in Cambridge with her partner and their one-eyed, polydactyl cat. Catch her ordering just one more small plate and cooking with prodigious amounts of garlic when she’s not writing about public health and chronic illness.</em></p></div></div></article><span class="css-zya54r"></span></div><div><div class="css-8q0s1n css-10dx3t"><div class="css-15lc7zf"><h3 id="bylineArticleTools">How we reviewed this article:</h3><div class="css-vrhe66"><button type="button" class="css-5sudr5"><div class="css-rre5oz"><span class="css-1d75hb8"><svg xmlns="http://www.w3.org/2000/svg" width="20" height="20" fill="none" viewBox="0 0 20 20"><path fill="currentColor" fill-rule="evenodd" d="M0 10C0 4.477 4.477 0 10 0s10 4.477 10 10-4.477 10-10 10S0 15.523 0 10Zm18.5 0a8.5 8.5 0 1 0-17 0 8.5 8.5 0 0 0 17 0ZM10 4c-.823 0-1.5.677-1.5 1.518C8.5 6.323 9.177 7 10 7c.841 0 1.5-.677 1.5-1.482A1.5 1.5 0 0 0 10 4Zm0 4.5a1 1 0 0 1 1 1V15a1 1 0 1 1-2 0V9.5a1 1 0 0 1 1-1Z" clip-rule="evenodd"></path></svg></span><span>Sources</span></div></button></div><div class="css-1ndif92"><div class="css-1ubyuqj"><div id="article-resources" role="region" class="css-1ugaz02"><div class="css-0">Healthline has strict sourcing guidelines and relies on peer-reviewed studies, academic research institutions, and medical journals and associations. We only use quality, credible sources to ensure content accuracy and integrity. You can learn more about how we ensure our content is accurate and current by reading our <a class="css-1c2ok3c" href="https://www.healthline.com/about/process">editorial policy</a>.</div><ul class="css-1vedeqe"><li class="css-1ti7iub"><cite><span>Interstitialcystitis (IC) & diet. (2011).</span><br/><a class="css-1c2ok3c css-1ivue52" target="_blank" rel="noopener noreferrer" href="https://www.ichelp.org/wp-content/uploads/2015/06/Diet-and-IC-2011.pdf">https://www.ichelp.org/wp-content/uploads/2015/06/Diet-and-IC-2011.pdf</a></cite></li><li class="css-1ti7iub"><cite><span>Wu EQ, et al. (2006). Interstitial cystitis:Cost, treatment and co-morbidities in an employed population.</span><br/><a class="css-1c2ok3c css-1ivue52" target="_blank" rel="noopener noreferrer" href="https://www.ncbi.nlm.nih.gov/pubmed/16445303">https://www.ncbi.nlm.nih.gov/pubmed/16445303</a></cite></li></ul></div></div></div></div><div class="css-k1nhka" data-testid="share-tools"><p>Share this article</p><div class="css-14uyzrw"><div class="button-wrapper print"><a class="css-j5n0jw print button icon icon-hl-print" target="_blank" title="Print this page"></a></div><div class="button-wrapper email"><a class="css-j5n0jw email button icon icon-hl-email" target="_blank" title="Email this page"></a></div><div class="button-wrapper facebook"><a class="css-j5n0jw facebook button icon icon-hl-facebook" 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href="https://www.healthline.com/health/mental-health/myth-vs-reality-panic-attacks?utm_source=ReadNext" data-testid="title-link" data-ga4="Read Next button clicks">Myth vs. Reality: What Does a Panic Attack Feel Like?</a><section data-testid="byline" class="css-8he51f"><div class="css-1pz7193"><div class="css-quwpxp"><lazy-image alt="" src="https://media.post.rvohealth.io/wp-content/uploads/2018/09/TimothyLegg.png"></lazy-image></div></div><div><span><span>Medically reviewed by <a class="css-1c2ok3c css-ro87dg" href="https://www.healthline.com/medical-team">Timothy J. Legg, PhD, PsyD</a></span></span></div></section><p class=""><a class="css-onvglr" data-event="engagement|bottom page content promo click|/health/mental-health/myth-vs-reality-panic-attacks;engagement|bottom page content promo click index|3" data-element-event="INTERNAL LINK|FOOTER|Any Page|Read This Next|LINK|Myth vs. Reality: What Does a Panic Attack Feel Like?|rn2" href="https://www.healthline.com/health/mental-health/myth-vs-reality-panic-attacks?utm_source=ReadNext" data-testid="text-link" data-ga4="Read Next button clicks" aria-hidden="true" tabindex="-1">There are many misconceptions about what panic attacks look and feel like. 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Then, we \u003ca href=\"https://www.healthline.com/health/healthline-scores-how-we-evaluate-mens-telehealth-platforms\"\u003escored each service\u003c/a\u003e to narrow down our list even further.\u003c/p\u003e"},"birth-control-telehealth":{"metrics":[{"description":"telehealth companies evaluated","count":"200+"},{"description":"online birth control providers evaluated","count":"14"}],"explanationTitle":"How we evaluate online birth control services","explanationDescription":"\u003cp\u003eOur \u003ca href=\"https://www.healthline.com/about/vet-brands-and-products\"\u003eMedical Standards and Insights team\u003c/a\u003e has carefully researched and vetted over 11,000 products and services. We evaluate services for consistency with standards of care and best practices, and we look into each brand’s reputation before sharing products and services on Healthline.\u003c/p\u003e\u003cp\u003eTo choose the services on this page, we considered all the birth control services that passed our vetting process. Then, we \u003ca href=\"https://www.healthline.com/health/how-we-review-birth-control\"\u003escored each service\u003c/a\u003e to narrow down our list even further.\u003c/p\u003e"},"hemp":{"metrics":[{"description":"Hemp brands evaluated","count":"230+"},{"description":"Hemp brands met our criteria","count":"57"}],"explanationTitle":"How we evaluate hemp products","explanationDescription":"\u003cp\u003eOur Medical Standards and Insights team has carefully researched and vetted over 11,000 products and services. We fact-check health claims, evaluate ingredients, and look into each brand’s reputation before sharing products and services on Healthline. The brand we feature in this article has passed our strict vetting process and has been thoroughly tested by our reviewers. \u003ca href=\"https://www.healthline.com/about/vet-brands-and-products\"\u003eRead more about how we vet brands and products.\u003c/a\u003e\u003c/p\u003e"}},"isPrependRecipeH2":false,"recipes":[],"hideTabs":true,"tabs":[{"id":"_noHeaderPrefixedContent","title":null,"header":null,"body":[{"tagName":"p","source":"I couldn’t give up the connections and experiences good food and drink bring any longer."},{"tagName":"div","source":"\u003cfigure class=\"css-yhe8zq\"\u003e\u003cspan class=\"css-rwmw5v\"\u003e\u003cspan class=\"css-mjp0j9\"\u003e\u003cpicture class=\"css-16pk1is\"\u003e\u003csource srcSet=\"//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1575 750w\" media=\"(min-width: 1190px)\"/\u003e\u003csource srcSet=\"//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1575 750w\" media=\"(min-width: 990px)\"/\u003e\u003csource srcSet=\"//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1845 879w\" media=\"(min-width: 768px)\"/\u003e\u003cimg src=\"//i0.wp.com/images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg?w=1155\u0026h=1528\" class=\"css-1jytyml\"/\u003e\u003c/picture\u003e\u003c/span\u003e\u003chl-share-overlay class=\"css-18moxll\"\u003e\u003ca class=\"icon-hl-pinterest css-q12qfg\" target=\"_blank\" rel=\"noopener noreferrer nofollow\" data-event=\"Any Page|Image Pinterest Click|Icon Clicked\" data-element-event=\"OPEN|CONTENTBLOCK|Any Page|Article Body|BUTTON|Image Widget Pinterest Click|\" href=\"https://www.pinterest.com/pin/create/button/?url=https%3A%2F%2Fwww.healthline.com%2Fhealth%2Frestrictive-diet-versus-quality-of-life\u0026media=https%3A%2F%2Fimages-prod.healthline.com%2Fhlcmsresource%2Fimages%2Ftopic_centers%2F2018-9%2F9490-female_beer_1296x728-header.jpg\u0026description=I%20Ditched%20My%20Restrictive%20Doctor-Recommend%20Diet%20to%20Live%20My%20Life\" title=\"Share on Pinterest\" data-pin-custom=\"true\" data-share-url=\"https://images-prod.healthline.com/hlcmsresource/images/topic_centers/2018-9/9490-female_beer_1296x728-header.jpg\"\u003e\u003cspan class=\"css-8yl26h\"\u003eShare on Pinterest\u003c/span\u003e\u003c/a\u003e\u003c/hl-share-overlay\u003e\u003c/span\u003e\u003c/figure\u003e"},{"tagName":"p","source":"\u003cstrong\u003e\u003cem\u003eHow we see the world shapes who we choose to be — and sharing compelling experiences can frame the way we treat each other, for the better. This is a powerful perspective.\u003c/em\u003e\u003c/strong\u003e"},{"tagName":"div","attributes":{"data-preamp":"serena-chatbot"},"source":""},{"tagName":"p","source":"Dean Martin once said, “I feel sorry for people who don’t drink. When they wake up in the morning, that’s as good as they’re going to feel all day.” "},{"tagName":"p","source":"The minutes or hours before I eat or drink anything each morning are as good as I’m going to feel each day. But it’s not due to abstinence — I enjoy a delicious glass of wine. "},{"tagName":"p","source":"It’s because I have chronic \u003ca href=\"https://www.healthline.com/health/interstitial-cystitis\" class=\"content-link css-1c2ok3c\"\u003einterstitial cystitis (IC)\u003c/a\u003e, or painful bladder syndrome. It calls for a strict recommended \u003ca href=\"https://www.ichelp.org/wp-content/uploads/2015/06/Diet-and-IC-2011.pdf\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"content-link css-1c2ok3c\"\u003ediet\u003c/a\u003e to keep symptoms at bay."},{"tagName":"p","source":"IC is a painful, chronic bladder inflammation that causes frequent urination, urgency, pain, pressure, and immense \u003chl-trusted-source source=\"PubMed Central\" rationale=\"Highly respected database from the National Institutes of Health\"\u003e\u003ca href=\"https://www.ncbi.nlm.nih.gov/pubmed/16445303\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"content-link css-1c2ok3c\"\u003ecost\u003c/a\u003e\u003c/hl-trusted-source\u003e. In my case, it causes \u003ca href=\"https://www.healthline.com/health/levator-ani-syndrome\" class=\"content-link css-1c2ok3c\"\u003epelvic floor dysfunction\u003c/a\u003e severe enough to necessitate \u003ca href=\"https://www.healthline.com/health/overactive-bladder-botox\" class=\"content-link css-1c2ok3c\"\u003eBotox injections\u003c/a\u003e every three months."},{"tagName":"p","source":"My lowest pain level is when I first wake up, before I’ve had anything to eat or drink that might irritate my incredibly sensitive bladder. "},{"tagName":"blockquote","attributes":{"className":"css-pc7ote"},"source":"If I eat a spice, enjoy something mildly acidic, or have a coffee or cocktail, my IC kicks up and feels like I have a livid hedgehog somersaulting in my bladder."},{"tagName":"p","source":"Still, I’ve decided I’m done losing the intimacy shared through food, the creativity of new culinary endeavors, or just my own hedonistic desire to taste and experience everything I can. "},{"tagName":"p","source":"Somewhere, my urogynecologist is cringing because she knows what I’m about to tell you: I don’t adhere to the diet. "},{"tagName":"p","source":"The IC diet is a \u003ca href=\"https://www.healthline.com/nutrition/elimination-diet\" class=\"content-link css-1c2ok3c\"\u003eone of elimination\u003c/a\u003e, meaning you essentially dial your food intake down to three ingredients and try to tolerate bland, dull food to keep your symptoms low. The elimination part comes in when you welcome a fourth ingredient. "},{"tagName":"p","source":"Say you’re only eating bread, bananas, and apples — with nothing on them. You might give butter a try and see how you feel. If that butter amps up symptoms, try a different one. "},{"tagName":"p","source":"Then you must decide whether to accept a baseline of pain with a diet that includes butter, of all the building-block ingredients, or eschew it for a lifetime of lower (but not nonexistent) pain and butterless rolls. "},{"tagName":"p","source":"I spent much of my time initially thinking about how ketchup is acidic and chocolate is aggravating while picking at piles of bare chicken breast and brown rice. Then I realized that, to me, breaking bread together is essential for bonding with people."}]},{"id":"Accepting-more-pain-to-revel-in-new-culinary-delights","isCollapsable":false,"header":["Accepting more pain to revel in new culinary delights"],"body":[{"tagName":"p","source":"I need to experience, experiment, and taste. My most attuned sense (second to chronic pain, which becomes a sort of sixth sense after you’ve spent enough years suffering) has always been taste. "},{"tagName":"blockquote","attributes":{"className":"css-pc7ote"},"source":"I can manage pain. Withering in a bland, colorless, tasteless, revel-free lifetime, I cannot."},{"tagName":"p","source":"Quality of life is an imprecise metric clinicians use, and patients have to define it for themselves. Part of self-advocacy as a patient with a chronic, long-term disorder is developing the assertiveness to claim the life you want."},{"tagName":"p","source":"Clinicians frown at my coffee intake and love of tasting menus. But I find it ableist that a common assumption is people with illnesses should be good, compliant patients willing to self-sacrifice to validate the legitimacy of their pain. "},{"tagName":"p","source":"When I got my diagnosis at 16, I considered the life before me and decided I could deal with more pain than I felt on a restrictive diet. A couple of years later, I took my low-symptom self to Dublin and London for semesters abroad. I ate everything, and most nights were capped off with healthy, shame-free pints. So what if I went to the restroom five times more than my companions? "},{"tagName":"p","source":"The gap between the doctor-ordered lifestyle limitations and my desire to learn the world through taste was mentally easy for me to jump across."},{"tagName":"p","source":"So, I fearlessly indulge in my friend’s homemade curry. I developed a tea obsession that led to bonding with one of my closest friends. On Sundays, my partner and I cook a new recipe, generally something that takes up some time and little more careful mincing and searing."},{"tagName":"p","source":"These and many other culinary adventures irritate my leaky bladder wall, which reacts to cayenne pepper like a slug getting salted. "},{"tagName":"p","source":"Yet these moments and the memories they’ve given me are crucial to the quality of life I have. "},{"tagName":"blockquote","attributes":{"className":"css-pc7ote"},"source":"If the difference is bladder pain rated 4 versus 6, I’d so much rather taste the spiced chocolate chip cookies my colleague made than abstain."},{"tagName":"p","source":"At a certain point, pain is pain, and its number score becomes less tempting to scrutinize. "},{"tagName":"p","source":"People familiar with the IC diet will protest that drinking alcohol is like, well, pouring alcohol into an open wound. While I don’t disagree, I think assessing the value of the drink is everything. Faced with multiple study abroad opportunities where social bonding almost exclusively happened in Dublin and London pubs, I made the choice to prioritize memorable experiences over base, crude pain. "}]},{"id":"There-s-still-consideration-planning-and-balance","isCollapsable":false,"header":["There’s still consideration, planning, and balance"],"body":[{"tagName":"p","source":"I stopped the elimination diet nonsense about a decade ago. My one concession today is to avoid spicy dishes after 8 p.m. so sleep isn’t a nocturnal battle between paprika and the milk I’ll have to chug to offset it."},{"tagName":"p","source":"I’m still armed with helpmates like \u003ca href=\"https://www.prelief.com/\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"content-link css-1c2ok3c\"\u003ePrelief\u003c/a\u003e, an \u003ca href=\"https://www.javacid.com/\" target=\"_blank\" rel=\"noopener noreferrer\" class=\"content-link css-1c2ok3c\"\u003eacid reducer\u003c/a\u003e in my coffee, and \u003ca href=\"https://www.healthline.com/health/gerd/baking-soda\" class=\"content-link css-1c2ok3c\"\u003ebaking soda-water rescue drinks\u003c/a\u003e, I resolved to just do my best with this pain baseline. I’m strategic — I don’t tempt the tapas gods the night before a flight — but I’ll never feel more fulfilled because I was a model patient complying with a diet predicated on emptiness. "},{"tagName":"p","source":"I start my mornings now on my roof with a big Chemex full of coffee from my favorite shop in the Berkshires. I think about the friends I was with when I discovered the brew, and my life is fuller for the shared experience of exquisite pour-over in a picturesque place. "},{"tagName":"p","source":"While an easy decision to accept more pain for wholehearted living, it wasn’t an effortless transition. Resisting pain and managing it well enough to avoid succumbing to any number of poor coping mechanisms takes sincere commitment. "},{"tagName":"p","source":"I’ve angry-cried with the cook’s form of writer’s block in front of my fridge more times than I’ll admit. But I’ve found those quiet moments of frustration have faded as I need more room for planning and remembering moments with friends and family. "},{"tagName":"p","source":"By making my life a treasure hunt for flavors — whether food, people, or stories — I’ve defied an illness that could’ve stolen my joy."},{"tagName":"hr"},{"tagName":"p","source":"\u003cem\u003eChaya is a reluctant bladder owner residing in Cambridge with her partner and their one-eyed, polydactyl cat. Catch her ordering just one more small plate and cooking with prodigious amounts of garlic when she’s not writing about public health and chronic illness.\u003c/em\u003e"}]}],"hasAffiliateLinks":false,"affiliates":[],"propsFor":{"articleResources":[{"displayLink":"ichelp.org/wp-content/uploads/2015/06/Diet-and-IC-2011.pdf","link":"https://www.ichelp.org/wp-content/uploads/2015/06/Diet-and-IC-2011.pdf","title":{"tagName":"span","source":"Interstitialcystitis (IC) \u0026amp; diet. (2011)."}},{"displayLink":"ncbi.nlm.nih.gov/pubmed/16445303","link":"https://www.ncbi.nlm.nih.gov/pubmed/16445303","title":{"tagName":"span","source":"Wu EQ, et al. (2006). Interstitial cystitis:Cost, treatment and co-morbidities in an employed population."}}],"byline":{"authors":[{"id":3162,"name":{"display":"Chaya Rusk","first":"chaya","last":"rusk"},"type":{"value":"","label":""},"specialties":[],"bio":{},"avatar":{"title":"","src":""}}],"medicalReviewers":[],"id":"wp-569850","updateReason":[],"factCheckedBy":"","factCheckers":[],"articleHistory":[],"articleDates":{"factChecked":{"date":null,"display":""},"medicallyReviewed":{"date":null,"display":""},"published":{"date":1536303600,"display":"September 7, 2018"},"lastUpdates":{"date":1555643211,"display":"April 19, 2019"},"modified":{"date":1680773695,"display":"April 6, 2023"}},"type":"healthfeature","language":"en"},"isCorp":false,"isReference":false,"isPremiumVideo":false,"isStandaloneVideo":false,"isStandaloneRecipe":false,"schemaObj":{"@context":"https://schema.org","publisher":{"@type":"Organization","name":"Healthline Media","logo":{"@type":"ImageObject","url":"https://media.post.rvohealth.io/wp-content/uploads/2023/09/Healthline-Black-Logo.png"}},"@type":"MedicalWebPage","headline":"I Ditched My Restrictive Doctor-Recommended Diet to Live My Life","description":"I was diagnosed with interstitial cystitis (IC), a painful bladder disorder, when I was 16 and followed a strict recommended diet to keep my pain down. 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