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Team — The Stop ALD Foundation
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data-collection-id="532fae7ce4b063a5e10817b8" data-edit-main-image="Banner" > <!-- // CATEGORY NAV --> <div class="sqs-layout sqs-grid-12 columns-12" data-type="page" data-updated-on="1704415174814" id="page-532fae7ce4b063a5e10817b8"><div class="row sqs-row"><div class="col sqs-col-12 span-12"><div class="sqs-block image-block sqs-block-image sqs-col-2 span-2 float float-left" data-block-type="5" id="block-926c06729de7a71b483d"><div class="sqs-block-content"> <div class=" image-block-outer-wrapper layout-caption-hidden design-layout-inline combination-animation-none individual-animation-none individual-text-animation-none " data-test="image-block-inline-outer-wrapper" > <figure class=" sqs-block-image-figure intrinsic " style="max-width:100px;" > <div class="image-block-wrapper" data-animation-role="image" > <div class="sqs-image-shape-container-element has-aspect-ratio " style=" position: relative; padding-bottom:100%; overflow: hidden;-webkit-mask-image: -webkit-radial-gradient(white, black); " > <img data-stretch="false" data-src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg" data-image="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg" data-image-dimensions="100x100" data-image-focal-point="0.5,0.5" alt="amber-salzman.jpg" data-load="false" elementtiming="system-image-block" src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg" width="100" height="100" alt="" sizes="(max-width: 640px) 100vw, (max-width: 767px) 100vw, 100vw" style="display:block;object-fit: cover; width: 100%; height: 100%; object-position: 50% 50%" onload="this.classList.add("loaded")" srcset="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=100w 100w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=300w 300w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=500w 500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=750w 750w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=1000w 1000w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=1500w 1500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637078019-2EI4MKU3O3M9Z86UG8RT/amber-salzman.jpg?format=2500w 2500w" loading="lazy" decoding="async" data-loader="sqs"> </div> </div> </figure> </div> </div></div><div class="sqs-block html-block sqs-block-html" data-block-type="2" data-border-radii="{"topLeft":{"unit":"px","value":0.0},"topRight":{"unit":"px","value":0.0},"bottomLeft":{"unit":"px","value":0.0},"bottomRight":{"unit":"px","value":0.0}}" id="block-66daa1058f12b5ec169f"><div class="sqs-block-content"> <div class="sqs-html-content"> <p class="" style="white-space:pre-wrap;"><strong><em>Amber Salzman, Ph.D.</em></strong><em><br>President</em><br><a href="mailto:amber@stopald.org">amber@stopald.org</a></p><p class="" style="white-space:pre-wrap;">Amber oversees and directs all work of The Stop ALD Foundation. Amber is responsible for the Foundation's strategy, focus, execution, team development, and culture. In addition to Amber's role with the Foundation, she serves as the CEO of <a href="https://epic-bio.com" target="_blank">Epic Bio</a>, a company developing therapies to dynamically control gene expression and treat complex disease. Previously, Amber was President & CEO of Adverum (NASDAQ:ADVM) and prior to that was with GlaxoSmithKline (GSK) for 25 years and as a member of GSK R&D executive team she was responsible for Operations for Medicine Development across therapeutic areas, planning and managing drug development projects and clinical trials with over 30,000 active patients around the world. Amber holds a Bachelor's degree from Temple University and a Ph.D. in Mathematics from Bryn Mawr College. Honors include being inducted into Temple University's League of Entrepreneurial Women Hall of Fame. Amber serves as an Advisory Board member for Drexel University's School of Public Health.</p> </div> </div></div><div class="sqs-block image-block sqs-block-image sqs-col-2 span-2 float float-left" data-block-type="5" id="block-1f661a35de2f87e06fee"><div class="sqs-block-content"> <div class=" image-block-outer-wrapper layout-caption-hidden design-layout-inline combination-animation-none individual-animation-none individual-text-animation-none " data-test="image-block-inline-outer-wrapper" > <figure class=" sqs-block-image-figure intrinsic " style="max-width:100px;" > <div class="image-block-wrapper" data-animation-role="image" > <div class="sqs-image-shape-container-element has-aspect-ratio " style=" position: relative; padding-bottom:100%; overflow: hidden;-webkit-mask-image: -webkit-radial-gradient(white, black); " > <img data-stretch="false" data-src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg" data-image="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg" data-image-dimensions="100x100" data-image-focal-point="0.5,0.5" alt="Robert-Lapin-President-CBI-Board-of-Trustees-.jpg" data-load="false" elementtiming="system-image-block" src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg" width="100" height="100" alt="" sizes="(max-width: 640px) 100vw, (max-width: 767px) 100vw, 100vw" style="display:block;object-fit: cover; width: 100%; height: 100%; object-position: 50% 50%" onload="this.classList.add("loaded")" srcset="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=100w 100w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=300w 300w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=500w 500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=750w 750w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=1000w 1000w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=1500w 1500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395637785613-ZM0L6ZZVWVUGOX8V25ZZ/Robert-Lapin-President-CBI-Board-of-Trustees-.jpg?format=2500w 2500w" loading="lazy" decoding="async" data-loader="sqs"> </div> </div> </figure> </div> </div></div><div class="sqs-block html-block sqs-block-html" data-block-type="2" data-border-radii="{"topLeft":{"unit":"px","value":0.0},"topRight":{"unit":"px","value":0.0},"bottomLeft":{"unit":"px","value":0.0},"bottomRight":{"unit":"px","value":0.0}}" id="block-aa274e522aa33ca1801e"><div class="sqs-block-content"> <div class="sqs-html-content"> <p class="" style="white-space:pre-wrap;"><strong><em>Bobby Lapin, Esq.</em></strong><em><br>Development Director & General Counsel</em><br><a href="mailto:bobby@stopald.org">bobby@stopald.org</a></p><p class="" style="white-space:pre-wrap;">Bobby heads up the fundraising efforts for The Stop ALD Foundation. In this capacity, Bobby works with major foundations, corporations, and individuals on an ongoing basis so The Stop ALD Foundation has the funds necessary to find a cure for ALD as quickly as possible. Bobby also is The Stop ALD Foundation's General Counsel, handing all legal matters. Bobby is a founding partner of <a href="http://www.lapinlanda.com/" target="_blank">Lapin, & Landa</a>, a well respected Houston law firm. Bobby received his BA, with distinction, from Stanford University. He received his JD, with honors, from the University of Texas.</p> </div> </div></div><div class="sqs-block image-block sqs-block-image sqs-col-2 span-2 float float-left" data-block-type="5" id="block-1d06fb500981b393d833"><div class="sqs-block-content"> <div class=" image-block-outer-wrapper layout-caption-hidden design-layout-inline combination-animation-none individual-animation-none individual-text-animation-none " data-test="image-block-inline-outer-wrapper" > <figure class=" sqs-block-image-figure intrinsic " style="max-width:336px;" > <div class="image-block-wrapper" data-animation-role="image" > <div class="sqs-image-shape-container-element has-aspect-ratio " style=" position: relative; padding-bottom:100%; overflow: hidden;-webkit-mask-image: -webkit-radial-gradient(white, black); " > <img data-stretch="false" data-src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg" data-image="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg" data-image-dimensions="336x336" data-image-focal-point="0.5,0.5" alt="Steve Barsh Headshot With Jacket WEB RES 200706.jpg" data-load="false" elementtiming="system-image-block" src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg" width="336" height="336" alt="" sizes="(max-width: 640px) 100vw, (max-width: 767px) 100vw, 100vw" style="display:block;object-fit: cover; width: 100%; height: 100%; object-position: 50% 50%" onload="this.classList.add("loaded")" srcset="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=100w 100w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=300w 300w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=500w 500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=750w 750w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=1000w 1000w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=1500w 1500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638607305-LWF8U8RHMHWBVFTHA2U7/Steve+Barsh+Headshot+With+Jacket+WEB+RES+200706.jpg?format=2500w 2500w" loading="lazy" decoding="async" data-loader="sqs"> </div> </div> </figure> </div> </div></div><div class="sqs-block html-block sqs-block-html" data-block-type="2" data-border-radii="{"topLeft":{"unit":"px","value":0.0},"topRight":{"unit":"px","value":0.0},"bottomLeft":{"unit":"px","value":0.0},"bottomRight":{"unit":"px","value":0.0}}" id="block-2e5dd336c4f015938f6d"><div class="sqs-block-content"> <div class="sqs-html-content"> <p class="" style="white-space:pre-wrap;"><strong><em>Steve Barsh</em></strong><em><br>Vice President</em><br><a href="mailto:steve@stopald.org">steve@stopald.org</a></p><p class="" style="white-space:pre-wrap;">Steve's work at The Stop ALD Foundation involves strategy, marketing, operations, and how to best leverage IT. Steve has over 20 years of experience leading and building multi-national software and technology companies. His experience ranges from starting companies and raising venture capital to leading a publicly traded firm and selling his first private firm to a <em>Fortune</em> 100 company. He has held the CEO position in an Internet venture, software anti-piracy company, and a software engineering products and consulting firm. He has worked as a VP in a <em>Fortune</em> 100 owning P&L responsibility. He offers asales and marketing oriented leadership style coupled with a deep understanding of technology. Steve has been a sought-after speaker and spokesperson having delivered effective and persuasive presentations in North America, South America, Europe, Asia, and the Middle East. His media appearances have included NBC Nightly News, CNN<em>fn</em>, CNBC, and a multitude of NBC, ABC, and CBS local affiliates. Steve is a project faculty member of The Wharton School where he teachers in the Global Consulting Practicum program. Steve graduated from the University of Michigan with a BS in computer science concentrating in software engineering. He lives with his wife and two children in suburban Philadelphia.</p> </div> </div></div><div class="sqs-block image-block sqs-block-image sqs-col-2 span-2 float float-left" data-block-type="5" id="block-3836253d6c92f63b80f4"><div class="sqs-block-content"> <div class=" image-block-outer-wrapper layout-caption-hidden design-layout-inline combination-animation-none individual-animation-none individual-text-animation-none " data-test="image-block-inline-outer-wrapper" > <figure class=" sqs-block-image-figure intrinsic " style="max-width:220px;" > <div class="image-block-wrapper" data-animation-role="image" > <div class="sqs-image-shape-container-element has-aspect-ratio " style=" position: relative; padding-bottom:100%; overflow: hidden;-webkit-mask-image: -webkit-radial-gradient(white, black); " > <img data-stretch="false" data-src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg" data-image="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg" data-image-dimensions="220x220" data-image-focal-point="0.5,0.5" alt="per_3sisters1122_94694a_8col.jpg" data-load="false" elementtiming="system-image-block" src="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg" width="220" height="220" alt="" sizes="(max-width: 640px) 100vw, (max-width: 767px) 100vw, 100vw" style="display:block;object-fit: cover; width: 100%; height: 100%; object-position: 50% 50%" onload="this.classList.add("loaded")" srcset="https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=100w 100w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=300w 300w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=500w 500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=750w 750w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=1000w 1000w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=1500w 1500w, https://images.squarespace-cdn.com/content/v1/52e89bfae4b06b90fc8aa357/1395638797955-71QDS41WU0YHITJL9H62/per_3sisters1122_94694a_8col.jpg?format=2500w 2500w" loading="lazy" decoding="async" data-loader="sqs"> </div> </div> </figure> </div> </div></div><div class="sqs-block html-block sqs-block-html" data-block-type="2" data-border-radii="{"topLeft":{"unit":"px","value":0.0},"topRight":{"unit":"px","value":0.0},"bottomLeft":{"unit":"px","value":0.0},"bottomRight":{"unit":"px","value":0.0}}" id="block-6d34b21074f764393b11"><div class="sqs-block-content"> <div class="sqs-html-content"> <p class="" style="white-space:pre-wrap;"><strong><em>Eve Lapin</em></strong><em><br>Secretary & Treasurer</em><br><a href="mailto:eve@stopald.org">eve@stopald.org</a></p><p class="" style="white-space:pre-wrap;">Eve graduated Magna Cum Laude with a BA in Computer Science from Temple University and was elected to Phi Beta Kappa. She earned her Master of Social Work from the University of Houston and was elected to the Phi Kappa Phi honor society.</p><p class="" style="white-space:pre-wrap;"> </p> </div> </div></div></div></div></div> </section> <div class="sqs-layout sqs-grid-12 columns-12 empty" data-layout-label="Team Footer Content" data-type="block-field" id="collection-532fae7ce4b063a5e10817b8"><div class="row sqs-row"><div class="col sqs-col-12 span-12"></div></div></div> <!-- <div class="page-divider bottom-divider"></div> --> <div class="info-footer-wrapper clear"> <div class="info-footer"> <div class="sqs-layout sqs-grid-12 columns-12 empty" data-layout-label="Info Footer Content" data-type="block-field" data-updated-on="1395639618818" id="infoFooterBlock"><div class="row sqs-row"><div class="col sqs-col-12 span-12"></div></div></div> <div id="socialLinks" class="social-links sqs-svg-icon--list" data-content-field="connected-accounts"> <a href="http://www.facebook.com/stopald" target="_blank" class="sqs-svg-icon--wrapper facebook"> <div> <svg class="sqs-svg-icon--social" viewBox="0 0 64 64"> <use class="sqs-use--icon" xlink:href="#facebook-icon"></use> <use class="sqs-use--mask" xlink:href="#facebook-mask"></use> </svg> </div> </a> <a href="https://twitter.com/StopALD" target="_blank" class="sqs-svg-icon--wrapper twitter"> <div> <svg class="sqs-svg-icon--social" viewBox="0 0 64 64"> <use class="sqs-use--icon" xlink:href="#twitter-icon"></use> <use class="sqs-use--mask" xlink:href="#twitter-mask"></use> </svg> </div> </a> </div> </div> </div> <footer id="footer" class="clear"> <div class="sqs-layout sqs-grid-12 columns-12" data-layout-label="Footer Content" data-type="block-field" data-updated-on="1395639683170" id="footerBlock"><div class="row sqs-row"><div class="col sqs-col-12 span-12"><div class="sqs-block html-block sqs-block-html" data-block-type="2" id="block-7d9d7fddc71929b3cf64"><div class="sqs-block-content"> <div class="sqs-html-content"> <p>Copyright (c) 2004 - Present by The Stop ALD Foundation. 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