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class="label">Following</p><p class="data">17</p></div></a><span><div class="stat-container"><p class="label"><span class="js-profile-total-view-text">Public Views</span></p><p class="data"><span class="js-profile-view-count"></span></p></div></span></div><div class="ri-section"><div class="ri-section-header"><span>Interests</span></div><div class="ri-tags-container"><a data-click-track="profile-user-info-expand-research-interests" data-has-card-for-ri-list="130508466" href="https://www.academia.edu/Documents/in/LGBT_rights"><div id="js-react-on-rails-context" style="display:none" data-rails-context="{"inMailer":false,"i18nLocale":"en","i18nDefaultLocale":"en","href":"https://independent.academia.edu/JoshuaHauser2","location":"/JoshuaHauser2","scheme":"https","host":"independent.academia.edu","port":null,"pathname":"/JoshuaHauser2","search":null,"httpAcceptLanguage":null,"serverSide":false}"></div> <div class="js-react-on-rails-component" style="display:none" data-component-name="Pill" 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data-section="Papers" id="Papers"><h3 class="profile--tab_heading_container">Papers by Joshua Hauser</h3></div><div class="js-work-strip profile--work_container" data-work-id="124012536"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/124012536/PCN376_Examining_Cancer_Related_Distress_Among_a_Group_of_Urban_Dwelling_Veterans"><img alt="Research paper thumbnail of PCN376 - Examining Cancer Related Distress Among a Group of Urban-Dwelling Veterans" class="work-thumbnail" src="https://attachments.academia-assets.com/118317260/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/124012536/PCN376_Examining_Cancer_Related_Distress_Among_a_Group_of_Urban_Dwelling_Veterans">PCN376 - Examining Cancer Related Distress Among a Group of Urban-Dwelling Veterans</a></div><div class="wp-workCard_item"><span>Value in Health</span><span>, 2018</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="9e32400dfff0a2131fab313c443a8af9" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":118317260,"asset_id":124012536,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/118317260/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="124012536"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="124012536"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 124012536; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=124012536]").text(description); $(".js-view-count[data-work-id=124012536]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 124012536; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='124012536']"); 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class="js-work-strip profile--work_container" data-work-id="120540024"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540024/Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum"><img alt="Research paper thumbnail of Development and Dissemination of a Neurology Palliative Care Curriculum" class="work-thumbnail" src="https://attachments.academia-assets.com/115656189/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540024/Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum">Development and Dissemination of a Neurology Palliative Care Curriculum</a></div><div class="wp-workCard_item"><span>Neurology</span><span>, Jan 27, 2022</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">Despite increasing awareness of the importance of a palliative care approach to meet the needs of...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. To meet this need, a group of experts in neuropalliative care and palliative medicine leveraged resources from the Education in Palliative and End-of-life Care (EPEC) program and the National Institutes of Nursing Research to create a library of modules addressing topics relevant for neurology trainees, palliative medicine fellows, and clinicians in practice. In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="8019884d875b462360bb8b942884a0ee" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656189,"asset_id":120540024,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656189/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540024"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540024"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540024; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540024]").text(description); $(".js-view-count[data-work-id=120540024]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540024; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540024']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540024, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "8019884d875b462360bb8b942884a0ee" } } $('.js-work-strip[data-work-id=120540024]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540024,"title":"Development and Dissemination of a Neurology Palliative Care Curriculum","translated_title":"","metadata":{"abstract":"Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. 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In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.","publisher":"Lippincott Williams \u0026 Wilkins","publication_date":{"day":27,"month":1,"year":2022,"errors":{}},"publication_name":"Neurology"},"translated_abstract":"Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. 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In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.","internal_url":"https://www.academia.edu/120540024/Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum","translated_internal_url":"","created_at":"2024-06-04T10:57:48.591-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656189,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656189/thumbnails/1.jpg","file_name":"pdf.pdf","download_url":"https://www.academia.edu/attachments/115656189/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Development_and_Dissemination_of_a_Neuro.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656189/pdf-libre.pdf?1717526524=\u0026response-content-disposition=attachment%3B+filename%3DDevelopment_and_Dissemination_of_a_Neuro.pdf\u0026Expires=1733151938\u0026Signature=PcL7seoXjvSwjaGODhTqFuUhypD7hzC8UF5S1YAd1k2cq2WcnkmRgosy1063SGyOZF~m~2Y0SAsZDeUAE5juDZsZsQjww0hVLVHfCmtgFOI8jOyxQjzJzxATka-wGOu5JUfg1HRiY-IGJdcmkOvZ8LnC0bg4wNElxNPuo6l4sC7Jw~0~vRcsf9Mh8pggnmoVp~FsfHILvypVZ~Z5cUoDk1pk91E81jxvehaHxtGd-6YIDhM6rgRMUPOFBMA9mSy64naN~GRiaOKA700eJtwcb0nWLaVws1V-opQMl1tI7uoqEvbJ8cuGabQrJakWRMb9Rtmz5kdOozWH8YxoCG4ZqQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum","translated_slug":"","page_count":7,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656189,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656189/thumbnails/1.jpg","file_name":"pdf.pdf","download_url":"https://www.academia.edu/attachments/115656189/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Development_and_Dissemination_of_a_Neuro.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656189/pdf-libre.pdf?1717526524=\u0026response-content-disposition=attachment%3B+filename%3DDevelopment_and_Dissemination_of_a_Neuro.pdf\u0026Expires=1733151938\u0026Signature=PcL7seoXjvSwjaGODhTqFuUhypD7hzC8UF5S1YAd1k2cq2WcnkmRgosy1063SGyOZF~m~2Y0SAsZDeUAE5juDZsZsQjww0hVLVHfCmtgFOI8jOyxQjzJzxATka-wGOu5JUfg1HRiY-IGJdcmkOvZ8LnC0bg4wNElxNPuo6l4sC7Jw~0~vRcsf9Mh8pggnmoVp~FsfHILvypVZ~Z5cUoDk1pk91E81jxvehaHxtGd-6YIDhM6rgRMUPOFBMA9mSy64naN~GRiaOKA700eJtwcb0nWLaVws1V-opQMl1tI7uoqEvbJ8cuGabQrJakWRMb9Rtmz5kdOozWH8YxoCG4ZqQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"},{"id":115656190,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656190/thumbnails/1.jpg","file_name":"pdf.pdf","download_url":"https://www.academia.edu/attachments/115656190/download_file","bulk_download_file_name":"Development_and_Dissemination_of_a_Neuro.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656190/pdf-libre.pdf?1717526521=\u0026response-content-disposition=attachment%3B+filename%3DDevelopment_and_Dissemination_of_a_Neuro.pdf\u0026Expires=1733151938\u0026Signature=RCT8Qq3yzt4x8mU8DwittL830h6kioQqcpXqBNkF~RLRLBIcNnAl0HR2ozuWvoQ2jys3Hl8Zv4cJaJpVtJmLS0Vnmu1yngSLqwdP2Ml-5szb~NvIjgGgbcuOWfsQdb4aEkKQ-WiAcCH8bOwvjFrh92wkfvqXze3cpn~W-lafYXpCr44vAU3GZDF4kcBo82Atj3nZTN63mESFIB0oy4GCA0mvSPYe5zG6zgaG~qdC-7gcmh9016nYtSsB9rk-O85ZqIONCTTpkPsCJZ4pKjSTIowlzb0bpwRy2UgGStayoeA92OIsmjCdbjkJ7K9EgSrN~8nCTVdv1BCJq55kNIrbAw__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":623,"name":"Neurology","url":"https://www.academia.edu/Documents/in/Neurology"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":44057,"name":"Curriculum","url":"https://www.academia.edu/Documents/in/Curriculum"}],"urls":[{"id":42646642,"url":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9208408"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540023"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540023/Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs"><img alt="Research paper thumbnail of Museum-Based Education: A Novel Educational Approach for Hospice and Palliative Medicine Training Programs" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540023/Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs">Museum-Based Education: A Novel Educational Approach for Hospice and Palliative Medicine Training Programs</a></div><div class="wp-workCard_item"><span>Journal of Palliative Medicine</span><span>, Nov 1, 2020</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice a...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice and palliative medicine (HPM) training programs. Background: MBE is a pedagogy that uses art and the museum space to promote a variety of skills, including reflective practice, self-awareness, and interprofessional teamwork. While MBE has been extensively applied and studied in undergraduate medical education, it is not a common educational strategy in HPM education. Methods: We summarize the characteristics of MBE initiatives in our institutions, including makeup of fellowship class, MBE site, facilitators, exercises, number of sessions, number of years using MBE, and expenses and funding to support MBE in our training programs. Results: To date, we have used MBE to train 104 HPM fellows. Evaluations from MBE have been overwhelmingly positive. Conclusion: MBE holds great promise as a pedagogic strategy to improve metacognition, tolerance of uncertainty, appreciation of multiple perspectives, and teamwork among hospice and palliative care professionals. Further research is needed to identify best practices for MBE across HPM training programs.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540023"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540023"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540023; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540023]").text(description); $(".js-view-count[data-work-id=120540023]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540023; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540023']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540023, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (false){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "-1" } } $('.js-work-strip[data-work-id=120540023]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540023,"title":"Museum-Based Education: A Novel Educational Approach for Hospice and Palliative Medicine Training Programs","translated_title":"","metadata":{"abstract":"Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice and palliative medicine (HPM) training programs. Background: MBE is a pedagogy that uses art and the museum space to promote a variety of skills, including reflective practice, self-awareness, and interprofessional teamwork. While MBE has been extensively applied and studied in undergraduate medical education, it is not a common educational strategy in HPM education. Methods: We summarize the characteristics of MBE initiatives in our institutions, including makeup of fellowship class, MBE site, facilitators, exercises, number of sessions, number of years using MBE, and expenses and funding to support MBE in our training programs. Results: To date, we have used MBE to train 104 HPM fellows. Evaluations from MBE have been overwhelmingly positive. Conclusion: MBE holds great promise as a pedagogic strategy to improve metacognition, tolerance of uncertainty, appreciation of multiple perspectives, and teamwork among hospice and palliative care professionals. Further research is needed to identify best practices for MBE across HPM training programs.","publisher":"Mary Ann Liebert, Inc.","publication_date":{"day":1,"month":11,"year":2020,"errors":{}},"publication_name":"Journal of Palliative Medicine"},"translated_abstract":"Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice and palliative medicine (HPM) training programs. Background: MBE is a pedagogy that uses art and the museum space to promote a variety of skills, including reflective practice, self-awareness, and interprofessional teamwork. While MBE has been extensively applied and studied in undergraduate medical education, it is not a common educational strategy in HPM education. Methods: We summarize the characteristics of MBE initiatives in our institutions, including makeup of fellowship class, MBE site, facilitators, exercises, number of sessions, number of years using MBE, and expenses and funding to support MBE in our training programs. Results: To date, we have used MBE to train 104 HPM fellows. Evaluations from MBE have been overwhelmingly positive. Conclusion: MBE holds great promise as a pedagogic strategy to improve metacognition, tolerance of uncertainty, appreciation of multiple perspectives, and teamwork among hospice and palliative care professionals. Further research is needed to identify best practices for MBE across HPM training programs.","internal_url":"https://www.academia.edu/120540023/Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs","translated_internal_url":"","created_at":"2024-06-04T10:57:48.362-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[],"slug":"Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs","translated_slug":"","page_count":null,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[],"research_interests":[{"id":588,"name":"Nursing","url":"https://www.academia.edu/Documents/in/Nursing"},{"id":4455,"name":"Medical Education","url":"https://www.academia.edu/Documents/in/Medical_Education"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":28023,"name":"Palliative Medicine","url":"https://www.academia.edu/Documents/in/Palliative_Medicine"},{"id":60361,"name":"Teamwork","url":"https://www.academia.edu/Documents/in/Teamwork"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences"},{"id":256112,"name":"Hospice Care","url":"https://www.academia.edu/Documents/in/Hospice_Care"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1"}],"urls":[{"id":42646641,"url":"https://doi.org/10.1089/jpm.2019.0476"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540022"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540022/Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life"><img alt="Research paper thumbnail of Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life" class="work-thumbnail" src="https://attachments.academia-assets.com/115656188/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540022/Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life">Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life</a></div><div class="wp-workCard_item"><span>Annals of clinical and translational neurology</span><span>, Jul 20, 2021</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="ed7415baf5de21eb06f887c7d285b077" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656188,"asset_id":120540022,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656188/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540022"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540022"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540022; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540022]").text(description); $(".js-view-count[data-work-id=120540022]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540022; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540022']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540022, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "ed7415baf5de21eb06f887c7d285b077" } } $('.js-work-strip[data-work-id=120540022]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540022,"title":"Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life","translated_title":"","metadata":{"publisher":"Wiley","grobid_abstract":"Objective: Previous work in Huntington's disease (HD) has shown that a sense of meaning and purpose (M\u0026P) is positively associated with positive affect and well-being (PAW); however, it was unknown whether HD-validated patientreported outcomes (PROs) influence this association and how M\u0026P impacts PROs in the future. Our study was designed to examine if HD-validated PROs moderate the relationship between M\u0026P and PAW and to evaluate if baseline M\u0026P predicts 12-and 24-month changes in HD-validated PROs. Methods: This was a longitudinal, multicenter study to develop several PROs (e.g., specific for the physical, emotional, cognitive, and social domains) for people with HD (HDQLIFE). The sample consisted of 322 people with HD (n = 50 prodromal, n = 171 early-stage manifest, and n = 101 late-stage manifest HD). A single, multivariate linear mixed-effects model was performed with PAW as the outcome predicted by main effects for M\u0026P and several moderators (i.e., an HD-validated PRO) and interactions between M\u0026P and a given PRO. Linearmixed models were also used to assess if baseline M\u0026P predicted HD-validated PROs at 12 and 24 months. Results: Higher M\u0026P was positively associated with higher PAW regardless of the magnitude of symptom burden, as represented by HD-validated PROs, and independent of disease stage. In our primary analysis, baseline M\u0026P predicted increased PAW and decreased depression, anxiety, anger, emotional/behavioral disruptions, and cognitive decline at 12 and 24 months across all disease stages. Interpretation: These findings parallel those seen in the oncology population and have implications for adapting and developing psychotherapeutic and palliative HD interventions.","publication_date":{"day":20,"month":7,"year":2021,"errors":{}},"publication_name":"Annals of clinical and translational neurology","grobid_abstract_attachment_id":115656188},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540022/Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life","translated_internal_url":"","created_at":"2024-06-04T10:57:48.114-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656188,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656188/thumbnails/1.jpg","file_name":"acn351424.pdf","download_url":"https://www.academia.edu/attachments/115656188/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Meaning_and_purpose_in_Huntington_s_dise.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656188/acn351424-libre.pdf?1717526523=\u0026response-content-disposition=attachment%3B+filename%3DMeaning_and_purpose_in_Huntington_s_dise.pdf\u0026Expires=1733151938\u0026Signature=B0AXYDFSaP4Z0J5eun4oaV0YkxnfXHrVQckWyFkxs9LblkmtoHurVwpgJL0u4w7zBQXib727f2TZQmKADgHMlFw3AmKk3GxOtG~viCbI8c1PItdjKackbXETCZFBM5uPyyDh09DPMXp-0UBfFpaRHKLFl2k6d0-v9ZSiVIeZDLqkDaQcsAX4ja-GnjcFMfUpahZzThRmKN0oq2LErU24Q6V-VIfz4RInnZHPxbXV1cZfrHuA-ToKt9NBMr6-tfotXsU3L6WEeG7Xt0auLSoSmd8eMO8krpv42Nzs4fYqNBr6C1wOyAV8hSSmYJtrLNq4FLTuFy9H1qUEMNVG-JCg3w__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life","translated_slug":"","page_count":12,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656188,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656188/thumbnails/1.jpg","file_name":"acn351424.pdf","download_url":"https://www.academia.edu/attachments/115656188/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Meaning_and_purpose_in_Huntington_s_dise.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656188/acn351424-libre.pdf?1717526523=\u0026response-content-disposition=attachment%3B+filename%3DMeaning_and_purpose_in_Huntington_s_dise.pdf\u0026Expires=1733151938\u0026Signature=B0AXYDFSaP4Z0J5eun4oaV0YkxnfXHrVQckWyFkxs9LblkmtoHurVwpgJL0u4w7zBQXib727f2TZQmKADgHMlFw3AmKk3GxOtG~viCbI8c1PItdjKackbXETCZFBM5uPyyDh09DPMXp-0UBfFpaRHKLFl2k6d0-v9ZSiVIeZDLqkDaQcsAX4ja-GnjcFMfUpahZzThRmKN0oq2LErU24Q6V-VIfz4RInnZHPxbXV1cZfrHuA-ToKt9NBMr6-tfotXsU3L6WEeG7Xt0auLSoSmd8eMO8krpv42Nzs4fYqNBr6C1wOyAV8hSSmYJtrLNq4FLTuFy9H1qUEMNVG-JCg3w__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"},{"id":115656187,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656187/thumbnails/1.jpg","file_name":"acn351424.pdf","download_url":"https://www.academia.edu/attachments/115656187/download_file","bulk_download_file_name":"Meaning_and_purpose_in_Huntington_s_dise.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656187/acn351424-libre.pdf?1717526522=\u0026response-content-disposition=attachment%3B+filename%3DMeaning_and_purpose_in_Huntington_s_dise.pdf\u0026Expires=1733151938\u0026Signature=Zhm5mKiY1XTMCwjvkG7wPCuMcZReYUYFwPsC1QmSbmOqHLvfGO7mQx2-oWYsbR38KCIQn~6iSz9cjuScSMXbUMGkzF2G7J89tHfGTcK3gCou7Y5mTzqzVsABObvkMODDQnTz~gVAgxRiSNv7ArynliZl-BLeR~2DXSIFbzFQh4sy62HGTjYkfXYZ5IZIJj4idHRk3Cwn-dO126gxJ2tGXWFqJ7TTFUdC~4rlid-X069os0sfpKwMJPKVjZVBFUjhG-tkuLqvl4iSHIP4SKSU4oWUT3Qtm61THBQn6syNkGtxoafQZckfZxOEzwA3C4nN1s8RmOEtGGDoy4xzpXtIRg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":226,"name":"Clinical Psychology","url":"https://www.academia.edu/Documents/in/Clinical_Psychology"},{"id":2073,"name":"Anger","url":"https://www.academia.edu/Documents/in/Anger"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":38676,"name":"Anxiety","url":"https://www.academia.edu/Documents/in/Anxiety"},{"id":623821,"name":"ANXIETY","url":"https://www.academia.edu/Documents/in/ANXIETY-1"}],"urls":[{"id":42646640,"url":"http://deepblue.lib.umich.edu/bitstream/2027.42/169327/2/acn351424.pdf"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540020"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540020/Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis"><img alt="Research paper thumbnail of Social Media Perceptions of Legacy-Making: A Qualitative Analysis" class="work-thumbnail" src="https://attachments.academia-assets.com/115656215/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540020/Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis">Social Media Perceptions of Legacy-Making: A Qualitative Analysis</a></div><div class="wp-workCard_item"><span>Palliative medicine reports</span><span>, Dec 1, 2020</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="15688732e9a1c1830ba5e46dfa9ae83c" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656215,"asset_id":120540020,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656215/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540020"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540020"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540020; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540020]").text(description); $(".js-view-count[data-work-id=120540020]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540020; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540020']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540020, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); 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Furthermore, individuals with conditions that afflict the brain face barriers regarding the timing and structure of such interventions. We analyzed data from an online social media forum to understand perceptions of legacy-making. Methods: This is a qualitative descriptive study of Slashdot, a social media website with a focus on science, technology, and politics. In August 2010, a Slashdot user inquired about a loved one with a life-limiting illness and asked for opinions on how to preserve the individual's memories. We conducted a content analysis of the individual comments related to digital legacy-making to identify common themes. Results: Slashdot users contributed 527 replies to the initial inquiry. Users often included bereaved individuals who offered input on the need to preserve information about a loved one, the modalities in which to preserve, and what type of content to preserve. Three key themes emerged related to legacy-making: (1) capture the individual's essence and avoid the minutia, (2) live for now to avoid prolonged suffering, and (3) recognize the equal benefits to all who memorialize. Conclusions: Users in a social media forum articulated the value of capturing their loved ones' essence for posterity, which many believed would help them to avoid prolonged grief. These findings have implications for the development and timing of personalized psychosocial interventions as well as informing application development of evidence-based digital legacy systems.","publication_date":{"day":1,"month":12,"year":2020,"errors":{}},"publication_name":"Palliative medicine reports","grobid_abstract_attachment_id":115656215},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540020/Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis","translated_internal_url":"","created_at":"2024-06-04T10:57:47.893-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656215,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656215/thumbnails/1.jpg","file_name":"pmr.2020.pdf","download_url":"https://www.academia.edu/attachments/115656215/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Social_Media_Perceptions_of_Legacy_Makin.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656215/pmr.2020-libre.pdf?1717526521=\u0026response-content-disposition=attachment%3B+filename%3DSocial_Media_Perceptions_of_Legacy_Makin.pdf\u0026Expires=1733151938\u0026Signature=CLby4fRqobjzhEPwzq2ypQNY2RVLGkfZLTMfUwBfTNKQZfoLsfjROCY2zvRfprypdcPOG~WBrdh25UPxP0mi4MYluzV7rO4bbPKIC5anVjqshgJV6gbSwKTagXMUWBkwN6Z5pRsTOaXOeNPvOnYM2-K4Irt1yeVkDl3Kyemdvh-h92M~jMFtdrqPzZ-ICiPU2tCCJR1hgGTbKdHgb2JKKiU-eMOJM-uQk70YGcX70utFxZQIoGNLuB90qI2pF4sRdwpmoWs8oogRvcxm4-TmeRFXVxVKcVmdvS7MRYKoRiNyFk5qIttQAwjq4l5CQeeGzVUt3SRqSg2-yRyIoVjUSg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis","translated_slug":"","page_count":5,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656215,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656215/thumbnails/1.jpg","file_name":"pmr.2020.pdf","download_url":"https://www.academia.edu/attachments/115656215/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Social_Media_Perceptions_of_Legacy_Makin.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656215/pmr.2020-libre.pdf?1717526521=\u0026response-content-disposition=attachment%3B+filename%3DSocial_Media_Perceptions_of_Legacy_Makin.pdf\u0026Expires=1733151938\u0026Signature=CLby4fRqobjzhEPwzq2ypQNY2RVLGkfZLTMfUwBfTNKQZfoLsfjROCY2zvRfprypdcPOG~WBrdh25UPxP0mi4MYluzV7rO4bbPKIC5anVjqshgJV6gbSwKTagXMUWBkwN6Z5pRsTOaXOeNPvOnYM2-K4Irt1yeVkDl3Kyemdvh-h92M~jMFtdrqPzZ-ICiPU2tCCJR1hgGTbKdHgb2JKKiU-eMOJM-uQk70YGcX70utFxZQIoGNLuB90qI2pF4sRdwpmoWs8oogRvcxm4-TmeRFXVxVKcVmdvS7MRYKoRiNyFk5qIttQAwjq4l5CQeeGzVUt3SRqSg2-yRyIoVjUSg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology"},{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology"},{"id":9246,"name":"Social Media","url":"https://www.academia.edu/Documents/in/Social_Media"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":60270,"name":"Modalities","url":"https://www.academia.edu/Documents/in/Modalities"},{"id":116278,"name":"Psychological Intervention","url":"https://www.academia.edu/Documents/in/Psychological_Intervention"},{"id":144043,"name":"Psychosocial","url":"https://www.academia.edu/Documents/in/Psychosocial"},{"id":178369,"name":"Grief","url":"https://www.academia.edu/Documents/in/Grief"}],"urls":[{"id":42646638,"url":"https://doi.org/10.1089/pmr.2020.0069"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540019"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540019/Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury"><img alt="Research paper thumbnail of Extremely long protection by pyrazole derivatives against chemically induced gastric mucosal injury" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540019/Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury">Extremely long protection by pyrazole derivatives against chemically induced gastric mucosal injury</a></div><div class="wp-workCard_item"><span>PubMed</span><span>, Feb 1, 1991</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenc...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenced through the modulation of alcohol dehydrogenase (ADH) by using either the ADH-inhibitor pyrazole or the noninhibitor derivatives of pyrazole. In time course experiments, the protection by both compounds was evident up to 48 hr before ethanol administration. Both drugs were also protected, from about 24 hr, from gastric mucosal damage induced by aspirin and hydrochloric acid. In order to examine the role of endogenous prostaglandins and sulfhydryls in this protection, indomethacin and N-ethylmaleimide were used, of which only the sulfhydryl alkylator antagonized (by about 50%) the protection by pyrazole and 3-methylpyrazole. Studies with monastral blue B revealed the protective role of both pyrazole and 3-methylpyrazole against early vascular injury in the gastric mucosa. We conclude that because both the ADH-inhibitor pyrazole and the noninhibitor derivatives of pyrazole exert gastro-protection, and because both compounds protect against aspirin and HCI, ADH inhibition is not involved in this protection. We also suggest that although prostaglandins appear to have minimal involvement in the mechanism of protection, endogenous sulfhydryls may be important mediators. Furthermore, the functional and structural mechanism of this protection seems to be the prevention of acute vascular injury.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540019"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540019"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540019; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540019]").text(description); $(".js-view-count[data-work-id=120540019]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540019; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540019']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540019, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (false){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "-1" } } $('.js-work-strip[data-work-id=120540019]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540019,"title":"Extremely long protection by pyrazole derivatives against chemically induced gastric mucosal injury","translated_title":"","metadata":{"abstract":"We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenced through the modulation of alcohol dehydrogenase (ADH) by using either the ADH-inhibitor pyrazole or the noninhibitor derivatives of pyrazole. In time course experiments, the protection by both compounds was evident up to 48 hr before ethanol administration. Both drugs were also protected, from about 24 hr, from gastric mucosal damage induced by aspirin and hydrochloric acid. In order to examine the role of endogenous prostaglandins and sulfhydryls in this protection, indomethacin and N-ethylmaleimide were used, of which only the sulfhydryl alkylator antagonized (by about 50%) the protection by pyrazole and 3-methylpyrazole. Studies with monastral blue B revealed the protective role of both pyrazole and 3-methylpyrazole against early vascular injury in the gastric mucosa. We conclude that because both the ADH-inhibitor pyrazole and the noninhibitor derivatives of pyrazole exert gastro-protection, and because both compounds protect against aspirin and HCI, ADH inhibition is not involved in this protection. We also suggest that although prostaglandins appear to have minimal involvement in the mechanism of protection, endogenous sulfhydryls may be important mediators. Furthermore, the functional and structural mechanism of this protection seems to be the prevention of acute vascular injury.","publication_date":{"day":1,"month":2,"year":1991,"errors":{}},"publication_name":"PubMed"},"translated_abstract":"We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenced through the modulation of alcohol dehydrogenase (ADH) by using either the ADH-inhibitor pyrazole or the noninhibitor derivatives of pyrazole. In time course experiments, the protection by both compounds was evident up to 48 hr before ethanol administration. Both drugs were also protected, from about 24 hr, from gastric mucosal damage induced by aspirin and hydrochloric acid. In order to examine the role of endogenous prostaglandins and sulfhydryls in this protection, indomethacin and N-ethylmaleimide were used, of which only the sulfhydryl alkylator antagonized (by about 50%) the protection by pyrazole and 3-methylpyrazole. Studies with monastral blue B revealed the protective role of both pyrazole and 3-methylpyrazole against early vascular injury in the gastric mucosa. We conclude that because both the ADH-inhibitor pyrazole and the noninhibitor derivatives of pyrazole exert gastro-protection, and because both compounds protect against aspirin and HCI, ADH inhibition is not involved in this protection. We also suggest that although prostaglandins appear to have minimal involvement in the mechanism of protection, endogenous sulfhydryls may be important mediators. Furthermore, the functional and structural mechanism of this protection seems to be the prevention of acute vascular injury.","internal_url":"https://www.academia.edu/120540019/Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury","translated_internal_url":"","created_at":"2024-06-04T10:57:47.694-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[],"slug":"Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury","translated_slug":"","page_count":null,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[],"research_interests":[{"id":140,"name":"Pharmacology","url":"https://www.academia.edu/Documents/in/Pharmacology"},{"id":523,"name":"Chemistry","url":"https://www.academia.edu/Documents/in/Chemistry"},{"id":2425,"name":"Free Radicals","url":"https://www.academia.edu/Documents/in/Free_Radicals"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":86176,"name":"Alcohol","url":"https://www.academia.edu/Documents/in/Alcohol"},{"id":98939,"name":"Pubmed","url":"https://www.academia.edu/Documents/in/Pubmed"},{"id":121705,"name":"Ethanol","url":"https://www.academia.edu/Documents/in/Ethanol"},{"id":195985,"name":"Aspirin","url":"https://www.academia.edu/Documents/in/Aspirin"},{"id":362534,"name":"Amides","url":"https://www.academia.edu/Documents/in/Amides"},{"id":375054,"name":"Rats","url":"https://www.academia.edu/Documents/in/Rats"},{"id":422456,"name":"Oximes","url":"https://www.academia.edu/Documents/in/Oximes"},{"id":801412,"name":"Pyrazoles","url":"https://www.academia.edu/Documents/in/Pyrazoles"},{"id":956327,"name":"Pyrazole","url":"https://www.academia.edu/Documents/in/Pyrazole"},{"id":1033201,"name":"Organometallic Compounds","url":"https://www.academia.edu/Documents/in/Organometallic_Compounds"},{"id":1250248,"name":"Alcohol Dehydrogenase","url":"https://www.academia.edu/Documents/in/Alcohol_Dehydrogenase"},{"id":1866509,"name":"Indomethacin","url":"https://www.academia.edu/Documents/in/Indomethacin"},{"id":2547982,"name":"Gastric mucosa","url":"https://www.academia.edu/Documents/in/Gastric_mucosa"},{"id":3789884,"name":"Pharmacology and pharmaceutical sciences","url":"https://www.academia.edu/Documents/in/Pharmacology_and_pharmaceutical_sciences"}],"urls":[{"id":42646637,"url":"https://pubmed.ncbi.nlm.nih.gov/1993997"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540018"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540018/Patterns_of_Palliative_Care_Beliefs_Among_Adults_in_the_U_S_Analysis_of_a_National_Cancer_Database"><img alt="Research paper thumbnail of Patterns of Palliative Care Beliefs Among Adults in the U.S.: Analysis of a National Cancer Database" class="work-thumbnail" src="https://attachments.academia-assets.com/115656218/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540018/Patterns_of_Palliative_Care_Beliefs_Among_Adults_in_the_U_S_Analysis_of_a_National_Cancer_Database">Patterns of Palliative Care Beliefs Among Adults in the U.S.: Analysis of a National Cancer Database</a></div><div class="wp-workCard_item"><span>Journal of Pain and Symptom Management</span><span>, Dec 1, 2019</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="d3d4370c58cefc9d0da5dbb33142170c" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656218,"asset_id":120540018,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656218/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540018"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540018"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540018; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540018]").text(description); $(".js-view-count[data-work-id=120540018]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540018; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540018']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540018, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "d3d4370c58cefc9d0da5dbb33142170c" } } $('.js-work-strip[data-work-id=120540018]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540018,"title":"Patterns of Palliative Care Beliefs Among Adults in the U.S.: Analysis of a National Cancer Database","translated_title":"","metadata":{"publisher":"Elsevier BV","grobid_abstract":"Background. Palliative care (PC) is associated with increased quality of life for individuals with life-limiting illnesses. Despite growing recognition of the need for public advocacy and involvement, data on public perception of PC are limited. We sought to examine patterns of beliefs, sociodemographic differences, and the impact of information source on perceptions of PC. Measures and Intervention. Data were analyzed from the 2018 Health Information National Trends Survey, a representative sample of public knowledge on cancer-related information. Prevalence of perceptions was estimated among adults who self-identified as knowledgeable about PC; multivariable logistic regression invoking stepwise variable selection was used to determine associations with perceptions. Outcomes. Overall, 42.5% automatically thought of death when thinking about PC, and 31.7% equate PC with hospice care. Lower proportions perceived PC as incompatible with curative medical therapy: 15.1% believed PC means giving up, and 14.5% believed PC requires the discontinuation of other treatments. Perceptions varied by age, race, education attainment, income, and marital status. In adjusted models, source of PC information was not related to differences in PC perception: PC is giving up (P $ 0.28), requirement to stop curative therapy (P $ 0.07), and equation with hospice care (P $ 0.29). Conclusions. Six in every 10 American adults knowledgeable about PC have at least one documented misperception, with differential beliefs by sociodemographic groups. Source of information had little impact on PC beliefs. These findings may help focus future measures to educate the public about the role of PC in health care and address gaps in knowledge. J Pain Symptom Manage 2019;-:-e- .","publication_date":{"day":1,"month":12,"year":2019,"errors":{}},"publication_name":"Journal of Pain and Symptom Management","grobid_abstract_attachment_id":115656218},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540018/Patterns_of_Palliative_Care_Beliefs_Among_Adults_in_the_U_S_Analysis_of_a_National_Cancer_Database","translated_internal_url":"","created_at":"2024-06-04T10:57:47.448-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656218,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656218/thumbnails/1.jpg","file_name":"j.jpainsymman.2019.07.03020240604-1-k9aavu.pdf","download_url":"https://www.academia.edu/attachments/115656218/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Patterns_of_Palliative_Care_Beliefs_Amon.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656218/j.jpainsymman.2019.07.03020240604-1-k9aavu-libre.pdf?1717526523=\u0026response-content-disposition=attachment%3B+filename%3DPatterns_of_Palliative_Care_Beliefs_Amon.pdf\u0026Expires=1733151938\u0026Signature=E2tNf49JW3YPpf7saj7NOhthX8-a9jE3n8WxBFUCvquwn2vSN8930hovBY7EyTaKpKLSqTEprUWDK2C0yXKSkN7Zu9aMp8vf92DsN2xt4UgfwyOXZCY4cPlM2ZS4fwmv-0c21VITqH1BJHuybjNhOQIrl~hIIydNS1Mj5dFeFxmWPHX6Ci~5CDt6ml8DiYZSf5J-RqVXQPkCzsDrQwyneSpnwaQyu4mhp~2SQm4irVSR5nZyRVn54oUCk2Fwu6Wes7uS-P-KVXx43wlcuWBhHMi-K89FYyZypzLDdj2JwJC1YjMgbExnAmPELQ36-7jtkRhacU0hotbe6w6uiEfJOA__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Patterns_of_Palliative_Care_Beliefs_Among_Adults_in_the_U_S_Analysis_of_a_National_Cancer_Database","translated_slug":"","page_count":12,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656218,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656218/thumbnails/1.jpg","file_name":"j.jpainsymman.2019.07.03020240604-1-k9aavu.pdf","download_url":"https://www.academia.edu/attachments/115656218/download_file?st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Patterns_of_Palliative_Care_Beliefs_Amon.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656218/j.jpainsymman.2019.07.03020240604-1-k9aavu-libre.pdf?1717526523=\u0026response-content-disposition=attachment%3B+filename%3DPatterns_of_Palliative_Care_Beliefs_Amon.pdf\u0026Expires=1733151938\u0026Signature=E2tNf49JW3YPpf7saj7NOhthX8-a9jE3n8WxBFUCvquwn2vSN8930hovBY7EyTaKpKLSqTEprUWDK2C0yXKSkN7Zu9aMp8vf92DsN2xt4UgfwyOXZCY4cPlM2ZS4fwmv-0c21VITqH1BJHuybjNhOQIrl~hIIydNS1Mj5dFeFxmWPHX6Ci~5CDt6ml8DiYZSf5J-RqVXQPkCzsDrQwyneSpnwaQyu4mhp~2SQm4irVSR5nZyRVn54oUCk2Fwu6Wes7uS-P-KVXx43wlcuWBhHMi-K89FYyZypzLDdj2JwJC1YjMgbExnAmPELQ36-7jtkRhacU0hotbe6w6uiEfJOA__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":867,"name":"Perception","url":"https://www.academia.edu/Documents/in/Perception"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":32433,"name":"Logistic Regression","url":"https://www.academia.edu/Documents/in/Logistic_Regression"},{"id":1938167,"name":"Health Information National Trends Survey","url":"https://www.academia.edu/Documents/in/Health_Information_National_Trends_Survey"},{"id":1981316,"name":"Marital Status","url":"https://www.academia.edu/Documents/in/Marital_Status"},{"id":3331893,"name":"discontinuation","url":"https://www.academia.edu/Documents/in/discontinuation"},{"id":3763225,"name":"Medical and Health Sciences","url":"https://www.academia.edu/Documents/in/Medical_and_Health_Sciences"}],"urls":[{"id":42646636,"url":"https://www.jpsmjournal.com/article/S0885-3924(19)30447-6/pdf"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540017"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540017/The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting"><img alt="Research paper thumbnail of The Value of Screening for a History of Incarceration in the Palliative Care Setting" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540017/The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting">The Value of Screening for a History of Incarceration in the Palliative Care Setting</a></div><div class="wp-workCard_item"><span>American Journal of Hospice and Palliative Medicine</span><span>, Jun 26, 2023</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">The United States (US) has one of the highest rates of incarceration in the world. Due to the agi...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">The United States (US) has one of the highest rates of incarceration in the world. Due to the aging of the US population as a whole and limited opportunities for early release, the proportion of older people in prison continues to rise. Some correctional health systems have adopted geriatric and palliative care principles to better care for this aging population, many of whom die in prison. However, not everyone who grows old in prison will die behind bars. In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540017"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540017"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540017; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540017]").text(description); $(".js-view-count[data-work-id=120540017]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540017; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540017']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540017, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (false){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "-1" } } $('.js-work-strip[data-work-id=120540017]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540017,"title":"The Value of Screening for a History of Incarceration in the Palliative Care Setting","translated_title":"","metadata":{"abstract":"The United States (US) has one of the highest rates of incarceration in the world. Due to the aging of the US population as a whole and limited opportunities for early release, the proportion of older people in prison continues to rise. Some correctional health systems have adopted geriatric and palliative care principles to better care for this aging population, many of whom die in prison. However, not everyone who grows old in prison will die behind bars. In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.","publisher":"SAGE Publishing","publication_date":{"day":26,"month":6,"year":2023,"errors":{}},"publication_name":"American Journal of Hospice and Palliative Medicine"},"translated_abstract":"The United States (US) has one of the highest rates of incarceration in the world. Due to the aging of the US population as a whole and limited opportunities for early release, the proportion of older people in prison continues to rise. Some correctional health systems have adopted geriatric and palliative care principles to better care for this aging population, many of whom die in prison. However, not everyone who grows old in prison will die behind bars. In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.","internal_url":"https://www.academia.edu/120540017/The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting","translated_internal_url":"","created_at":"2024-06-04T10:57:47.176-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[],"slug":"The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting","translated_slug":"","page_count":null,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[],"research_interests":[{"id":588,"name":"Nursing","url":"https://www.academia.edu/Documents/in/Nursing"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":64336,"name":"Population","url":"https://www.academia.edu/Documents/in/Population"},{"id":106006,"name":"Prison","url":"https://www.academia.edu/Documents/in/Prison"},{"id":144043,"name":"Psychosocial","url":"https://www.academia.edu/Documents/in/Psychosocial"},{"id":627038,"name":"Prison Population","url":"https://www.academia.edu/Documents/in/Prison_Population"}],"urls":[{"id":42646635,"url":"https://doi.org/10.1177/10499091231186400"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540016"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540016/_This_Won_t_Hurt_a_Bit_Is_There_a_Role_for_Music_in_Bedside_Procedures"><img alt="Research paper thumbnail of “This Won’t Hurt a Bit”: Is There a Role for Music in Bedside Procedures?" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540016/_This_Won_t_Hurt_a_Bit_Is_There_a_Role_for_Music_in_Bedside_Procedures">“This Won’t Hurt a Bit”: Is There a Role for Music in Bedside Procedures?</a></div><div class="wp-workCard_item"><span>Critical care explorations</span><span>, Apr 1, 2023</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540016"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540016"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540016; 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Methods A qualitative, cross-sectional study of Chicago homeless service providers (n = 17) consisting of a semi-structured interview and the Attitudes Toward the Homeless Inventory (ATHI). Interviews were analyzed for themes and patterns using inductive approach. Results Four categories of 16 themes describing homeless service providers' perspectives and perceptions: 1) perspectives on work, 2) perspectives on the general population of those experiencing homelessness at large, 3) perceptions of the population of those experiencing homelessness based on client interactions, and 4) perceptions of hospitals and healthcare. Conclusions A richer understanding of the perspectives of homeless service may provide guidance in recruitment and training of workers in this area and offer insight into caring for persons experiencing homelessness in hospital settings.","publication_date":{"day":26,"month":5,"year":2022,"errors":{}},"publication_name":"PLOS ONE","grobid_abstract_attachment_id":115656214},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540015/Perspectives_of_homeless_service_providers_on_their_work_their_clients_and_the_healthcare_system","translated_internal_url":"","created_at":"2024-06-04T10:57:46.656-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656214,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656214/thumbnails/1.jpg","file_name":"file.pdf","download_url":"https://www.academia.edu/attachments/115656214/download_file?st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Perspectives_of_homeless_service_provide.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656214/file-libre.pdf?1717526525=\u0026response-content-disposition=attachment%3B+filename%3DPerspectives_of_homeless_service_provide.pdf\u0026Expires=1733151939\u0026Signature=O~d1v6f7WOG51QRZ2JKQFN0RROmNr5~yia-n2QSYircCKRu0kf3tAoz1EPUoUactxbbfvC~DOMhRGCRklR4x4cWXNvBK-PHC5hXZxESh27dSQHi387kpZMI~tXgEZ-GeOls0IanGJf-eXVWjIiXHNYiNW6Oh5iVztllKuejwnneF4Kc3WKG04p4yk~csPY987cPhcbFujrfBl~1h~GJXadgzmXNtlku7FZqo-3PYxH57JyKf-P1CO07q4XbWzcJqu37zLAfl8sBhCNVhxrnydun~rRR1yGSGi9JNWkaqEe7FOwuoR0Sm-LJXl5q6gs33qp9osC6TfarVCnS9jJmvnQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Perspectives_of_homeless_service_providers_on_their_work_their_clients_and_the_healthcare_system","translated_slug":"","page_count":23,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656214,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656214/thumbnails/1.jpg","file_name":"file.pdf","download_url":"https://www.academia.edu/attachments/115656214/download_file?st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Perspectives_of_homeless_service_provide.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656214/file-libre.pdf?1717526525=\u0026response-content-disposition=attachment%3B+filename%3DPerspectives_of_homeless_service_provide.pdf\u0026Expires=1733151939\u0026Signature=O~d1v6f7WOG51QRZ2JKQFN0RROmNr5~yia-n2QSYircCKRu0kf3tAoz1EPUoUactxbbfvC~DOMhRGCRklR4x4cWXNvBK-PHC5hXZxESh27dSQHi387kpZMI~tXgEZ-GeOls0IanGJf-eXVWjIiXHNYiNW6Oh5iVztllKuejwnneF4Kc3WKG04p4yk~csPY987cPhcbFujrfBl~1h~GJXadgzmXNtlku7FZqo-3PYxH57JyKf-P1CO07q4XbWzcJqu37zLAfl8sBhCNVhxrnydun~rRR1yGSGi9JNWkaqEe7FOwuoR0Sm-LJXl5q6gs33qp9osC6TfarVCnS9jJmvnQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":867,"name":"Perception","url":"https://www.academia.edu/Documents/in/Perception"},{"id":4441,"name":"Health Care","url":"https://www.academia.edu/Documents/in/Health_Care"},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research"},{"id":28235,"name":"Multidisciplinary","url":"https://www.academia.edu/Documents/in/Multidisciplinary"},{"id":64336,"name":"Population","url":"https://www.academia.edu/Documents/in/Population"},{"id":220780,"name":"PLoS one","url":"https://www.academia.edu/Documents/in/PLoS_one"},{"id":908186,"name":"Service Provider","url":"https://www.academia.edu/Documents/in/Service_Provider"},{"id":1222385,"name":"service Business","url":"https://www.academia.edu/Documents/in/service_Business"}],"urls":[{"id":42646633,"url":"https://doi.org/10.1371/journal.pone.0268765"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540014"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540014/Patient_Perspectives_on_Religiously_Affiliated_Care_in_Rural_and_Urban_Colorado"><img alt="Research paper thumbnail of Patient Perspectives on Religiously Affiliated Care in Rural and Urban Colorado" class="work-thumbnail" src="https://attachments.academia-assets.com/115656213/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540014/Patient_Perspectives_on_Religiously_Affiliated_Care_in_Rural_and_Urban_Colorado">Patient Perspectives on Religiously Affiliated Care in Rural and Urban Colorado</a></div><div class="wp-workCard_item"><span>Journal of Primary Care & Community Health</span><span>, 2021</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="d91c47953bcd8a4cc9cc5be24c8f3270" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656213,"asset_id":120540014,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656213/download_file?st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540014"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540014"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540014; 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dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "d91c47953bcd8a4cc9cc5be24c8f3270" } } $('.js-work-strip[data-work-id=120540014]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540014,"title":"Patient Perspectives on Religiously Affiliated Care in Rural and Urban Colorado","translated_title":"","metadata":{"publisher":"SAGE Publishing","grobid_abstract":"Introduction: Religiously affiliated healthcare organizations play an important role in the delivery of care in the United States. There is a gap in the literature regarding patients' attitudes toward receiving care at these institutions, especially in geographically diverse populations. Methods: In this two-site pilot study, we conducted a written survey of 141 adult primary care patients at non-religiously affiliated clinics in rural and urban Colorado. Demographic information, measures of religiosity and spirituality, and opinions regarding religiously affiliated care were collected. Results: 73.3% and 69.6% of patients in rural and urban counties, respectively, had no preference as to the religious affiliation of their care. However, patients in the urban county (24.1%) were more likely than those in the rural county (8.3%) to prefer care that was not affiliated with any religion. Conclusions: This study suggests that concerns such as proximity to care and patient/provider relationships may be more important to patients than the possible religious affiliation of a healthcare organization. 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Recent advances in stroke care now enable patients with severe ischemic stroke owing to large vessel occlusion to safely undergo endovascular thrombectomy (EVT) up to 24 hours since their time of last known well, with the goal of improving functional outcomes by recanalization of the occluded vessel and reperfusion of downstream ischemic brain tissue. The objective of this analysis is to highlight clinical and ethical challenges related to ensuring goal-concordant care in this era of unprecedented advances in acute stroke care. Specifically, there is a salient challenge of whether advanced therapies such as EVT may be justifiably considered comfort focused, given their potential to preempt accumulated neurologic disability and suffering at the end of life. Through the lens of a patient case, we discuss key challenges, lessons learned, and suggestions for future care and research endeavors at the intersection of acute stroke care and palliative care principles. Although therapies such as thrombolysis and EVT may be considered aggressive prima facie, their potential to ameliorate additional disability and potential suffering at the end of life prompt close consideration of the proper role of these therapies on a case-by-case basis in the context of comfortfocused care. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540012"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540012/What_palliative_care_physicians_wish_neurologists_knew"><img alt="Research paper thumbnail of What palliative care physicians wish neurologists knew" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540012/What_palliative_care_physicians_wish_neurologists_knew">What palliative care physicians wish neurologists knew</a></div><div class="wp-workCard_item"><span>Elsevier eBooks</span><span>, 2022</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540012"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540012"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540012; 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540011"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540011/Walls"><img alt="Research paper thumbnail of Walls" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540011/Walls">Walls</a></div><div class="wp-workCard_item"><span>Hastings Center Report</span><span>, May 1, 2020</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">In a field that strives to care for patients and families together, what can palliative care clin...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">In a field that strives to care for patients and families together, what can palliative care clinicians do when patients&#39; families are physically absent? 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The Covid-19 pandemic has put both literal and figurative walls between health care professionals and families. How health care workers respond to these disconnections might have a lasting impact on patients, on families, and on our practice. Recently, I saw this in the case of a patient our palliative care team was consulted to see. Mr. B was minimally responsive and dying from multisystem organ failure of unclear etiology. As in other cases during this pandemic, our team became a facilitator of interaction between the patient and the physically absent family, seeing an intimacy we normally would not, in this case, by being present while our intern held the phone to Mr. B\u0026#39;s ear for an end-of-life call from his wife, son, and daughter. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540009"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540009/Veterans_Veterans_Administration_Health_Care_and_Palliative_Care"><img alt="Research paper thumbnail of Veterans, Veterans Administration Health Care, and Palliative Care" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540009/Veterans_Veterans_Administration_Health_Care_and_Palliative_Care">Veterans, Veterans Administration Health Care, and Palliative Care</a></div><div class="wp-workCard_item"><span>Elsevier eBooks</span><span>, 2011</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540009"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540009"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540009; 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540008"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540008/Heart_Failure_and_Palliative_Care"><img alt="Research paper thumbnail of Heart Failure and Palliative Care" class="work-thumbnail" src="https://attachments.academia-assets.com/115656212/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540008/Heart_Failure_and_Palliative_Care">Heart Failure and Palliative Care</a></div><div class="wp-workCard_item"><span>Elsevier eBooks</span><span>, 2011</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="7b05e8182bf58757339d3cfef5390036" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656212,"asset_id":120540008,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656212/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540008"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540008"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540008; 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Without an appropriately trained workforce, however, appropriate goals of care and associated reductions in hospital utilizations may not be feasible. Marie Curie Cancer Care, British Heart Foundation Scotland and NHS Greater Glasgow and Clyde are working in partnership to improve the quality and access to palliative care for patients and their caregivers living with and dying from advanced heart failure. A training needs assessment has been undertaken as part of this programme in order to inform the development of training specific to heart failure and palliative care. Recent findings The results of the training needs assessment showed that the majority of respondents had some level of training needs to underpin their existing knowledge and skills in relation to palliative care, heart failure or both. Summary Well trained professionals will improve the coordination, earlier identification, quality of care provision and communication between all stakeholders. In doing so, the opportunity to facilitate preferred care wishes and preferred place of care for patients and families is optimised. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540007"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540007/Medical_student_training_in_communication_skills"><img alt="Research paper thumbnail of Medical student training in communication skills" class="work-thumbnail" src="https://attachments.academia-assets.com/115656249/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540007/Medical_student_training_in_communication_skills">Medical student training in communication skills</a></div><div class="wp-workCard_item"><span>Oxford University Press eBooks</span><span>, Feb 1, 2017</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="b0d5e01ec20ea0dd23359b849200d04d" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656249,"asset_id":120540007,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656249/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540007"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540007"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540007; 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However, there is still comparatively little known about the experience of learning with real patients and how that may impact on the SP encounter. Aim: To explore the impact of real patient contact on the experience of communication skills training and SP contact for first-year medical undergraduate students. Methods: As part of the 6-year MBBS undergraduate medical degree at Imperial College London, students are obliged to undertake communication skills training, which involves teaching with simulated and real patients. In 2017 (toward the end of formal teaching), a small sample of Year 1 medical students, who had taken part in extra-curricular teaching with real patients were recruited for the study to compare their performance with a control group in a SP encounter. The performance of both groups was analyzed alongside follow-up focus group data from a sample of the study group. Results: Quantitative analysis revealed there was no significant difference in communication skills during a scored SP interview between students with real patient contact and those without. Focus group data, however, revealed valuable insights into the experience of learning with real patients. Students reported a marked increase in their confidence and ability to naturalize their communication skills as a result of real patient contact. Students also reported that skills gained through real patient contact may not always transfer easily to the SP setting. Conclusion: Real patient contact is an invaluable component of communication training for undergraduate medical students. For successful implementation, there needs to be a clear curricular purpose at pedagogical, practical and organizational levels. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540024"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540024/Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum"><img alt="Research paper thumbnail of Development and Dissemination of a Neurology Palliative Care Curriculum" class="work-thumbnail" src="https://attachments.academia-assets.com/115656189/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540024/Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum">Development and Dissemination of a Neurology Palliative Care Curriculum</a></div><div class="wp-workCard_item"><span>Neurology</span><span>, Jan 27, 2022</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">Despite increasing awareness of the importance of a palliative care approach to meet the needs of...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. To meet this need, a group of experts in neuropalliative care and palliative medicine leveraged resources from the Education in Palliative and End-of-life Care (EPEC) program and the National Institutes of Nursing Research to create a library of modules addressing topics relevant for neurology trainees, palliative medicine fellows, and clinicians in practice. In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="8019884d875b462360bb8b942884a0ee" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656189,"asset_id":120540024,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656189/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540024"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540024"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540024; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540024]").text(description); $(".js-view-count[data-work-id=120540024]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540024; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540024']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540024, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "8019884d875b462360bb8b942884a0ee" } } $('.js-work-strip[data-work-id=120540024]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540024,"title":"Development and Dissemination of a Neurology Palliative Care Curriculum","translated_title":"","metadata":{"abstract":"Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. 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In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.","publisher":"Lippincott Williams \u0026 Wilkins","publication_date":{"day":27,"month":1,"year":2022,"errors":{}},"publication_name":"Neurology"},"translated_abstract":"Despite increasing awareness of the importance of a palliative care approach to meet the needs of persons living with neurologic illness, residency and fellowship programs report meeting this educational need due to a limited pool of neuropalliative care educators and a lack of adequate educational resources. To meet this need, a group of experts in neuropalliative care and palliative medicine leveraged resources from the Education in Palliative and End-of-life Care (EPEC) program and the National Institutes of Nursing Research to create a library of modules addressing topics relevant for neurology trainees, palliative medicine fellows, and clinicians in practice. In this article, we describe the development and dissemination plan of the EPEC Neurology program, initial evidence of efficacy, and opportunities for neurology educators and health services researchers to use these resources.","internal_url":"https://www.academia.edu/120540024/Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum","translated_internal_url":"","created_at":"2024-06-04T10:57:48.591-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656189,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656189/thumbnails/1.jpg","file_name":"pdf.pdf","download_url":"https://www.academia.edu/attachments/115656189/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Development_and_Dissemination_of_a_Neuro.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656189/pdf-libre.pdf?1717526524=\u0026response-content-disposition=attachment%3B+filename%3DDevelopment_and_Dissemination_of_a_Neuro.pdf\u0026Expires=1733151938\u0026Signature=PcL7seoXjvSwjaGODhTqFuUhypD7hzC8UF5S1YAd1k2cq2WcnkmRgosy1063SGyOZF~m~2Y0SAsZDeUAE5juDZsZsQjww0hVLVHfCmtgFOI8jOyxQjzJzxATka-wGOu5JUfg1HRiY-IGJdcmkOvZ8LnC0bg4wNElxNPuo6l4sC7Jw~0~vRcsf9Mh8pggnmoVp~FsfHILvypVZ~Z5cUoDk1pk91E81jxvehaHxtGd-6YIDhM6rgRMUPOFBMA9mSy64naN~GRiaOKA700eJtwcb0nWLaVws1V-opQMl1tI7uoqEvbJ8cuGabQrJakWRMb9Rtmz5kdOozWH8YxoCG4ZqQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Development_and_Dissemination_of_a_Neurology_Palliative_Care_Curriculum","translated_slug":"","page_count":7,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656189,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656189/thumbnails/1.jpg","file_name":"pdf.pdf","download_url":"https://www.academia.edu/attachments/115656189/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Development_and_Dissemination_of_a_Neuro.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656189/pdf-libre.pdf?1717526524=\u0026response-content-disposition=attachment%3B+filename%3DDevelopment_and_Dissemination_of_a_Neuro.pdf\u0026Expires=1733151938\u0026Signature=PcL7seoXjvSwjaGODhTqFuUhypD7hzC8UF5S1YAd1k2cq2WcnkmRgosy1063SGyOZF~m~2Y0SAsZDeUAE5juDZsZsQjww0hVLVHfCmtgFOI8jOyxQjzJzxATka-wGOu5JUfg1HRiY-IGJdcmkOvZ8LnC0bg4wNElxNPuo6l4sC7Jw~0~vRcsf9Mh8pggnmoVp~FsfHILvypVZ~Z5cUoDk1pk91E81jxvehaHxtGd-6YIDhM6rgRMUPOFBMA9mSy64naN~GRiaOKA700eJtwcb0nWLaVws1V-opQMl1tI7uoqEvbJ8cuGabQrJakWRMb9Rtmz5kdOozWH8YxoCG4ZqQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"},{"id":115656190,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656190/thumbnails/1.jpg","file_name":"pdf.pdf","download_url":"https://www.academia.edu/attachments/115656190/download_file","bulk_download_file_name":"Development_and_Dissemination_of_a_Neuro.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656190/pdf-libre.pdf?1717526521=\u0026response-content-disposition=attachment%3B+filename%3DDevelopment_and_Dissemination_of_a_Neuro.pdf\u0026Expires=1733151938\u0026Signature=RCT8Qq3yzt4x8mU8DwittL830h6kioQqcpXqBNkF~RLRLBIcNnAl0HR2ozuWvoQ2jys3Hl8Zv4cJaJpVtJmLS0Vnmu1yngSLqwdP2Ml-5szb~NvIjgGgbcuOWfsQdb4aEkKQ-WiAcCH8bOwvjFrh92wkfvqXze3cpn~W-lafYXpCr44vAU3GZDF4kcBo82Atj3nZTN63mESFIB0oy4GCA0mvSPYe5zG6zgaG~qdC-7gcmh9016nYtSsB9rk-O85ZqIONCTTpkPsCJZ4pKjSTIowlzb0bpwRy2UgGStayoeA92OIsmjCdbjkJ7K9EgSrN~8nCTVdv1BCJq55kNIrbAw__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":623,"name":"Neurology","url":"https://www.academia.edu/Documents/in/Neurology"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":44057,"name":"Curriculum","url":"https://www.academia.edu/Documents/in/Curriculum"}],"urls":[{"id":42646642,"url":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9208408"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540023"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540023/Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs"><img alt="Research paper thumbnail of Museum-Based Education: A Novel Educational Approach for Hospice and Palliative Medicine Training Programs" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540023/Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs">Museum-Based Education: A Novel Educational Approach for Hospice and Palliative Medicine Training Programs</a></div><div class="wp-workCard_item"><span>Journal of Palliative Medicine</span><span>, Nov 1, 2020</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice a...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice and palliative medicine (HPM) training programs. Background: MBE is a pedagogy that uses art and the museum space to promote a variety of skills, including reflective practice, self-awareness, and interprofessional teamwork. While MBE has been extensively applied and studied in undergraduate medical education, it is not a common educational strategy in HPM education. Methods: We summarize the characteristics of MBE initiatives in our institutions, including makeup of fellowship class, MBE site, facilitators, exercises, number of sessions, number of years using MBE, and expenses and funding to support MBE in our training programs. Results: To date, we have used MBE to train 104 HPM fellows. Evaluations from MBE have been overwhelmingly positive. Conclusion: MBE holds great promise as a pedagogic strategy to improve metacognition, tolerance of uncertainty, appreciation of multiple perspectives, and teamwork among hospice and palliative care professionals. Further research is needed to identify best practices for MBE across HPM training programs.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540023"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540023"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540023; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540023]").text(description); $(".js-view-count[data-work-id=120540023]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540023; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540023']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540023, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (false){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "-1" } } $('.js-work-strip[data-work-id=120540023]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540023,"title":"Museum-Based Education: A Novel Educational Approach for Hospice and Palliative Medicine Training Programs","translated_title":"","metadata":{"abstract":"Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice and palliative medicine (HPM) training programs. Background: MBE is a pedagogy that uses art and the museum space to promote a variety of skills, including reflective practice, self-awareness, and interprofessional teamwork. While MBE has been extensively applied and studied in undergraduate medical education, it is not a common educational strategy in HPM education. Methods: We summarize the characteristics of MBE initiatives in our institutions, including makeup of fellowship class, MBE site, facilitators, exercises, number of sessions, number of years using MBE, and expenses and funding to support MBE in our training programs. Results: To date, we have used MBE to train 104 HPM fellows. Evaluations from MBE have been overwhelmingly positive. Conclusion: MBE holds great promise as a pedagogic strategy to improve metacognition, tolerance of uncertainty, appreciation of multiple perspectives, and teamwork among hospice and palliative care professionals. Further research is needed to identify best practices for MBE across HPM training programs.","publisher":"Mary Ann Liebert, Inc.","publication_date":{"day":1,"month":11,"year":2020,"errors":{}},"publication_name":"Journal of Palliative Medicine"},"translated_abstract":"Objective: To describe museum-based education (MBE) as an emerging pedagogy in our four hospice and palliative medicine (HPM) training programs. Background: MBE is a pedagogy that uses art and the museum space to promote a variety of skills, including reflective practice, self-awareness, and interprofessional teamwork. While MBE has been extensively applied and studied in undergraduate medical education, it is not a common educational strategy in HPM education. Methods: We summarize the characteristics of MBE initiatives in our institutions, including makeup of fellowship class, MBE site, facilitators, exercises, number of sessions, number of years using MBE, and expenses and funding to support MBE in our training programs. Results: To date, we have used MBE to train 104 HPM fellows. Evaluations from MBE have been overwhelmingly positive. Conclusion: MBE holds great promise as a pedagogic strategy to improve metacognition, tolerance of uncertainty, appreciation of multiple perspectives, and teamwork among hospice and palliative care professionals. Further research is needed to identify best practices for MBE across HPM training programs.","internal_url":"https://www.academia.edu/120540023/Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs","translated_internal_url":"","created_at":"2024-06-04T10:57:48.362-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[],"slug":"Museum_Based_Education_A_Novel_Educational_Approach_for_Hospice_and_Palliative_Medicine_Training_Programs","translated_slug":"","page_count":null,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[],"research_interests":[{"id":588,"name":"Nursing","url":"https://www.academia.edu/Documents/in/Nursing"},{"id":4455,"name":"Medical Education","url":"https://www.academia.edu/Documents/in/Medical_Education"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":28023,"name":"Palliative Medicine","url":"https://www.academia.edu/Documents/in/Palliative_Medicine"},{"id":60361,"name":"Teamwork","url":"https://www.academia.edu/Documents/in/Teamwork"},{"id":244814,"name":"Clinical Sciences","url":"https://www.academia.edu/Documents/in/Clinical_Sciences"},{"id":256112,"name":"Hospice Care","url":"https://www.academia.edu/Documents/in/Hospice_Care"},{"id":410370,"name":"Public health systems and services research","url":"https://www.academia.edu/Documents/in/Public_health_systems_and_services_research-1"}],"urls":[{"id":42646641,"url":"https://doi.org/10.1089/jpm.2019.0476"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540022"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540022/Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life"><img alt="Research paper thumbnail of Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life" class="work-thumbnail" src="https://attachments.academia-assets.com/115656188/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540022/Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life">Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life</a></div><div class="wp-workCard_item"><span>Annals of clinical and translational neurology</span><span>, Jul 20, 2021</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="ed7415baf5de21eb06f887c7d285b077" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656188,"asset_id":120540022,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656188/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540022"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540022"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540022; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540022]").text(description); $(".js-view-count[data-work-id=120540022]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540022; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540022']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540022, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "ed7415baf5de21eb06f887c7d285b077" } } $('.js-work-strip[data-work-id=120540022]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540022,"title":"Meaning and purpose in Huntington’s disease: a longitudinal study of its impact on quality of life","translated_title":"","metadata":{"publisher":"Wiley","grobid_abstract":"Objective: Previous work in Huntington's disease (HD) has shown that a sense of meaning and purpose (M\u0026P) is positively associated with positive affect and well-being (PAW); however, it was unknown whether HD-validated patientreported outcomes (PROs) influence this association and how M\u0026P impacts PROs in the future. Our study was designed to examine if HD-validated PROs moderate the relationship between M\u0026P and PAW and to evaluate if baseline M\u0026P predicts 12-and 24-month changes in HD-validated PROs. Methods: This was a longitudinal, multicenter study to develop several PROs (e.g., specific for the physical, emotional, cognitive, and social domains) for people with HD (HDQLIFE). The sample consisted of 322 people with HD (n = 50 prodromal, n = 171 early-stage manifest, and n = 101 late-stage manifest HD). A single, multivariate linear mixed-effects model was performed with PAW as the outcome predicted by main effects for M\u0026P and several moderators (i.e., an HD-validated PRO) and interactions between M\u0026P and a given PRO. Linearmixed models were also used to assess if baseline M\u0026P predicted HD-validated PROs at 12 and 24 months. Results: Higher M\u0026P was positively associated with higher PAW regardless of the magnitude of symptom burden, as represented by HD-validated PROs, and independent of disease stage. In our primary analysis, baseline M\u0026P predicted increased PAW and decreased depression, anxiety, anger, emotional/behavioral disruptions, and cognitive decline at 12 and 24 months across all disease stages. Interpretation: These findings parallel those seen in the oncology population and have implications for adapting and developing psychotherapeutic and palliative HD interventions.","publication_date":{"day":20,"month":7,"year":2021,"errors":{}},"publication_name":"Annals of clinical and translational neurology","grobid_abstract_attachment_id":115656188},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540022/Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life","translated_internal_url":"","created_at":"2024-06-04T10:57:48.114-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656188,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656188/thumbnails/1.jpg","file_name":"acn351424.pdf","download_url":"https://www.academia.edu/attachments/115656188/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Meaning_and_purpose_in_Huntington_s_dise.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656188/acn351424-libre.pdf?1717526523=\u0026response-content-disposition=attachment%3B+filename%3DMeaning_and_purpose_in_Huntington_s_dise.pdf\u0026Expires=1733151938\u0026Signature=B0AXYDFSaP4Z0J5eun4oaV0YkxnfXHrVQckWyFkxs9LblkmtoHurVwpgJL0u4w7zBQXib727f2TZQmKADgHMlFw3AmKk3GxOtG~viCbI8c1PItdjKackbXETCZFBM5uPyyDh09DPMXp-0UBfFpaRHKLFl2k6d0-v9ZSiVIeZDLqkDaQcsAX4ja-GnjcFMfUpahZzThRmKN0oq2LErU24Q6V-VIfz4RInnZHPxbXV1cZfrHuA-ToKt9NBMr6-tfotXsU3L6WEeG7Xt0auLSoSmd8eMO8krpv42Nzs4fYqNBr6C1wOyAV8hSSmYJtrLNq4FLTuFy9H1qUEMNVG-JCg3w__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Meaning_and_purpose_in_Huntington_s_disease_a_longitudinal_study_of_its_impact_on_quality_of_life","translated_slug":"","page_count":12,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656188,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656188/thumbnails/1.jpg","file_name":"acn351424.pdf","download_url":"https://www.academia.edu/attachments/115656188/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Meaning_and_purpose_in_Huntington_s_dise.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656188/acn351424-libre.pdf?1717526523=\u0026response-content-disposition=attachment%3B+filename%3DMeaning_and_purpose_in_Huntington_s_dise.pdf\u0026Expires=1733151938\u0026Signature=B0AXYDFSaP4Z0J5eun4oaV0YkxnfXHrVQckWyFkxs9LblkmtoHurVwpgJL0u4w7zBQXib727f2TZQmKADgHMlFw3AmKk3GxOtG~viCbI8c1PItdjKackbXETCZFBM5uPyyDh09DPMXp-0UBfFpaRHKLFl2k6d0-v9ZSiVIeZDLqkDaQcsAX4ja-GnjcFMfUpahZzThRmKN0oq2LErU24Q6V-VIfz4RInnZHPxbXV1cZfrHuA-ToKt9NBMr6-tfotXsU3L6WEeG7Xt0auLSoSmd8eMO8krpv42Nzs4fYqNBr6C1wOyAV8hSSmYJtrLNq4FLTuFy9H1qUEMNVG-JCg3w__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"},{"id":115656187,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656187/thumbnails/1.jpg","file_name":"acn351424.pdf","download_url":"https://www.academia.edu/attachments/115656187/download_file","bulk_download_file_name":"Meaning_and_purpose_in_Huntington_s_dise.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656187/acn351424-libre.pdf?1717526522=\u0026response-content-disposition=attachment%3B+filename%3DMeaning_and_purpose_in_Huntington_s_dise.pdf\u0026Expires=1733151938\u0026Signature=Zhm5mKiY1XTMCwjvkG7wPCuMcZReYUYFwPsC1QmSbmOqHLvfGO7mQx2-oWYsbR38KCIQn~6iSz9cjuScSMXbUMGkzF2G7J89tHfGTcK3gCou7Y5mTzqzVsABObvkMODDQnTz~gVAgxRiSNv7ArynliZl-BLeR~2DXSIFbzFQh4sy62HGTjYkfXYZ5IZIJj4idHRk3Cwn-dO126gxJ2tGXWFqJ7TTFUdC~4rlid-X069os0sfpKwMJPKVjZVBFUjhG-tkuLqvl4iSHIP4SKSU4oWUT3Qtm61THBQn6syNkGtxoafQZckfZxOEzwA3C4nN1s8RmOEtGGDoy4xzpXtIRg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":226,"name":"Clinical Psychology","url":"https://www.academia.edu/Documents/in/Clinical_Psychology"},{"id":2073,"name":"Anger","url":"https://www.academia.edu/Documents/in/Anger"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":38676,"name":"Anxiety","url":"https://www.academia.edu/Documents/in/Anxiety"},{"id":623821,"name":"ANXIETY","url":"https://www.academia.edu/Documents/in/ANXIETY-1"}],"urls":[{"id":42646640,"url":"http://deepblue.lib.umich.edu/bitstream/2027.42/169327/2/acn351424.pdf"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540020"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540020/Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis"><img alt="Research paper thumbnail of Social Media Perceptions of Legacy-Making: A Qualitative Analysis" class="work-thumbnail" src="https://attachments.academia-assets.com/115656215/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540020/Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis">Social Media Perceptions of Legacy-Making: A Qualitative Analysis</a></div><div class="wp-workCard_item"><span>Palliative medicine reports</span><span>, Dec 1, 2020</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="15688732e9a1c1830ba5e46dfa9ae83c" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656215,"asset_id":120540020,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656215/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540020"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540020"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540020; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540020]").text(description); $(".js-view-count[data-work-id=120540020]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540020; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540020']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540020, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "15688732e9a1c1830ba5e46dfa9ae83c" } } $('.js-work-strip[data-work-id=120540020]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540020,"title":"Social Media Perceptions of Legacy-Making: A Qualitative Analysis","translated_title":"","metadata":{"publisher":"Mary Ann Liebert, Inc.","grobid_abstract":"Background: Individuals with life-limiting illnesses experience psychotherapeutic benefits of transmitting their life's history to loved ones; however, the scope and depth of what warrants preservation and who ought to undertake such activity remains less clear. Furthermore, individuals with conditions that afflict the brain face barriers regarding the timing and structure of such interventions. We analyzed data from an online social media forum to understand perceptions of legacy-making. Methods: This is a qualitative descriptive study of Slashdot, a social media website with a focus on science, technology, and politics. In August 2010, a Slashdot user inquired about a loved one with a life-limiting illness and asked for opinions on how to preserve the individual's memories. We conducted a content analysis of the individual comments related to digital legacy-making to identify common themes. Results: Slashdot users contributed 527 replies to the initial inquiry. Users often included bereaved individuals who offered input on the need to preserve information about a loved one, the modalities in which to preserve, and what type of content to preserve. Three key themes emerged related to legacy-making: (1) capture the individual's essence and avoid the minutia, (2) live for now to avoid prolonged suffering, and (3) recognize the equal benefits to all who memorialize. Conclusions: Users in a social media forum articulated the value of capturing their loved ones' essence for posterity, which many believed would help them to avoid prolonged grief. These findings have implications for the development and timing of personalized psychosocial interventions as well as informing application development of evidence-based digital legacy systems.","publication_date":{"day":1,"month":12,"year":2020,"errors":{}},"publication_name":"Palliative medicine reports","grobid_abstract_attachment_id":115656215},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540020/Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis","translated_internal_url":"","created_at":"2024-06-04T10:57:47.893-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656215,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656215/thumbnails/1.jpg","file_name":"pmr.2020.pdf","download_url":"https://www.academia.edu/attachments/115656215/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Social_Media_Perceptions_of_Legacy_Makin.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656215/pmr.2020-libre.pdf?1717526521=\u0026response-content-disposition=attachment%3B+filename%3DSocial_Media_Perceptions_of_Legacy_Makin.pdf\u0026Expires=1733151938\u0026Signature=CLby4fRqobjzhEPwzq2ypQNY2RVLGkfZLTMfUwBfTNKQZfoLsfjROCY2zvRfprypdcPOG~WBrdh25UPxP0mi4MYluzV7rO4bbPKIC5anVjqshgJV6gbSwKTagXMUWBkwN6Z5pRsTOaXOeNPvOnYM2-K4Irt1yeVkDl3Kyemdvh-h92M~jMFtdrqPzZ-ICiPU2tCCJR1hgGTbKdHgb2JKKiU-eMOJM-uQk70YGcX70utFxZQIoGNLuB90qI2pF4sRdwpmoWs8oogRvcxm4-TmeRFXVxVKcVmdvS7MRYKoRiNyFk5qIttQAwjq4l5CQeeGzVUt3SRqSg2-yRyIoVjUSg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Social_Media_Perceptions_of_Legacy_Making_A_Qualitative_Analysis","translated_slug":"","page_count":5,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656215,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656215/thumbnails/1.jpg","file_name":"pmr.2020.pdf","download_url":"https://www.academia.edu/attachments/115656215/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Social_Media_Perceptions_of_Legacy_Makin.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656215/pmr.2020-libre.pdf?1717526521=\u0026response-content-disposition=attachment%3B+filename%3DSocial_Media_Perceptions_of_Legacy_Makin.pdf\u0026Expires=1733151938\u0026Signature=CLby4fRqobjzhEPwzq2ypQNY2RVLGkfZLTMfUwBfTNKQZfoLsfjROCY2zvRfprypdcPOG~WBrdh25UPxP0mi4MYluzV7rO4bbPKIC5anVjqshgJV6gbSwKTagXMUWBkwN6Z5pRsTOaXOeNPvOnYM2-K4Irt1yeVkDl3Kyemdvh-h92M~jMFtdrqPzZ-ICiPU2tCCJR1hgGTbKdHgb2JKKiU-eMOJM-uQk70YGcX70utFxZQIoGNLuB90qI2pF4sRdwpmoWs8oogRvcxm4-TmeRFXVxVKcVmdvS7MRYKoRiNyFk5qIttQAwjq4l5CQeeGzVUt3SRqSg2-yRyIoVjUSg__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":184,"name":"Sociology","url":"https://www.academia.edu/Documents/in/Sociology"},{"id":221,"name":"Psychology","url":"https://www.academia.edu/Documents/in/Psychology"},{"id":9246,"name":"Social Media","url":"https://www.academia.edu/Documents/in/Social_Media"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":60270,"name":"Modalities","url":"https://www.academia.edu/Documents/in/Modalities"},{"id":116278,"name":"Psychological Intervention","url":"https://www.academia.edu/Documents/in/Psychological_Intervention"},{"id":144043,"name":"Psychosocial","url":"https://www.academia.edu/Documents/in/Psychosocial"},{"id":178369,"name":"Grief","url":"https://www.academia.edu/Documents/in/Grief"}],"urls":[{"id":42646638,"url":"https://doi.org/10.1089/pmr.2020.0069"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540019"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540019/Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury"><img alt="Research paper thumbnail of Extremely long protection by pyrazole derivatives against chemically induced gastric mucosal injury" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540019/Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury">Extremely long protection by pyrazole derivatives against chemically induced gastric mucosal injury</a></div><div class="wp-workCard_item"><span>PubMed</span><span>, Feb 1, 1991</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenc...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenced through the modulation of alcohol dehydrogenase (ADH) by using either the ADH-inhibitor pyrazole or the noninhibitor derivatives of pyrazole. In time course experiments, the protection by both compounds was evident up to 48 hr before ethanol administration. Both drugs were also protected, from about 24 hr, from gastric mucosal damage induced by aspirin and hydrochloric acid. In order to examine the role of endogenous prostaglandins and sulfhydryls in this protection, indomethacin and N-ethylmaleimide were used, of which only the sulfhydryl alkylator antagonized (by about 50%) the protection by pyrazole and 3-methylpyrazole. Studies with monastral blue B revealed the protective role of both pyrazole and 3-methylpyrazole against early vascular injury in the gastric mucosa. We conclude that because both the ADH-inhibitor pyrazole and the noninhibitor derivatives of pyrazole exert gastro-protection, and because both compounds protect against aspirin and HCI, ADH inhibition is not involved in this protection. We also suggest that although prostaglandins appear to have minimal involvement in the mechanism of protection, endogenous sulfhydryls may be important mediators. Furthermore, the functional and structural mechanism of this protection seems to be the prevention of acute vascular injury.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540019"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540019"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540019; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540019]").text(description); $(".js-view-count[data-work-id=120540019]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540019; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540019']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540019, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (false){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "-1" } } $('.js-work-strip[data-work-id=120540019]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540019,"title":"Extremely long protection by pyrazole derivatives against chemically induced gastric mucosal injury","translated_title":"","metadata":{"abstract":"We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenced through the modulation of alcohol dehydrogenase (ADH) by using either the ADH-inhibitor pyrazole or the noninhibitor derivatives of pyrazole. In time course experiments, the protection by both compounds was evident up to 48 hr before ethanol administration. Both drugs were also protected, from about 24 hr, from gastric mucosal damage induced by aspirin and hydrochloric acid. In order to examine the role of endogenous prostaglandins and sulfhydryls in this protection, indomethacin and N-ethylmaleimide were used, of which only the sulfhydryl alkylator antagonized (by about 50%) the protection by pyrazole and 3-methylpyrazole. Studies with monastral blue B revealed the protective role of both pyrazole and 3-methylpyrazole against early vascular injury in the gastric mucosa. We conclude that because both the ADH-inhibitor pyrazole and the noninhibitor derivatives of pyrazole exert gastro-protection, and because both compounds protect against aspirin and HCI, ADH inhibition is not involved in this protection. We also suggest that although prostaglandins appear to have minimal involvement in the mechanism of protection, endogenous sulfhydryls may be important mediators. Furthermore, the functional and structural mechanism of this protection seems to be the prevention of acute vascular injury.","publication_date":{"day":1,"month":2,"year":1991,"errors":{}},"publication_name":"PubMed"},"translated_abstract":"We tested the hypothesis that the gastrotoxicity of ethanol and other damaging agents is influenced through the modulation of alcohol dehydrogenase (ADH) by using either the ADH-inhibitor pyrazole or the noninhibitor derivatives of pyrazole. In time course experiments, the protection by both compounds was evident up to 48 hr before ethanol administration. Both drugs were also protected, from about 24 hr, from gastric mucosal damage induced by aspirin and hydrochloric acid. In order to examine the role of endogenous prostaglandins and sulfhydryls in this protection, indomethacin and N-ethylmaleimide were used, of which only the sulfhydryl alkylator antagonized (by about 50%) the protection by pyrazole and 3-methylpyrazole. Studies with monastral blue B revealed the protective role of both pyrazole and 3-methylpyrazole against early vascular injury in the gastric mucosa. We conclude that because both the ADH-inhibitor pyrazole and the noninhibitor derivatives of pyrazole exert gastro-protection, and because both compounds protect against aspirin and HCI, ADH inhibition is not involved in this protection. We also suggest that although prostaglandins appear to have minimal involvement in the mechanism of protection, endogenous sulfhydryls may be important mediators. Furthermore, the functional and structural mechanism of this protection seems to be the prevention of acute vascular injury.","internal_url":"https://www.academia.edu/120540019/Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury","translated_internal_url":"","created_at":"2024-06-04T10:57:47.694-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[],"slug":"Extremely_long_protection_by_pyrazole_derivatives_against_chemically_induced_gastric_mucosal_injury","translated_slug":"","page_count":null,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[],"research_interests":[{"id":140,"name":"Pharmacology","url":"https://www.academia.edu/Documents/in/Pharmacology"},{"id":523,"name":"Chemistry","url":"https://www.academia.edu/Documents/in/Chemistry"},{"id":2425,"name":"Free Radicals","url":"https://www.academia.edu/Documents/in/Free_Radicals"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":86176,"name":"Alcohol","url":"https://www.academia.edu/Documents/in/Alcohol"},{"id":98939,"name":"Pubmed","url":"https://www.academia.edu/Documents/in/Pubmed"},{"id":121705,"name":"Ethanol","url":"https://www.academia.edu/Documents/in/Ethanol"},{"id":195985,"name":"Aspirin","url":"https://www.academia.edu/Documents/in/Aspirin"},{"id":362534,"name":"Amides","url":"https://www.academia.edu/Documents/in/Amides"},{"id":375054,"name":"Rats","url":"https://www.academia.edu/Documents/in/Rats"},{"id":422456,"name":"Oximes","url":"https://www.academia.edu/Documents/in/Oximes"},{"id":801412,"name":"Pyrazoles","url":"https://www.academia.edu/Documents/in/Pyrazoles"},{"id":956327,"name":"Pyrazole","url":"https://www.academia.edu/Documents/in/Pyrazole"},{"id":1033201,"name":"Organometallic Compounds","url":"https://www.academia.edu/Documents/in/Organometallic_Compounds"},{"id":1250248,"name":"Alcohol Dehydrogenase","url":"https://www.academia.edu/Documents/in/Alcohol_Dehydrogenase"},{"id":1866509,"name":"Indomethacin","url":"https://www.academia.edu/Documents/in/Indomethacin"},{"id":2547982,"name":"Gastric mucosa","url":"https://www.academia.edu/Documents/in/Gastric_mucosa"},{"id":3789884,"name":"Pharmacology and pharmaceutical sciences","url":"https://www.academia.edu/Documents/in/Pharmacology_and_pharmaceutical_sciences"}],"urls":[{"id":42646637,"url":"https://pubmed.ncbi.nlm.nih.gov/1993997"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540018"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540018/Patterns_of_Palliative_Care_Beliefs_Among_Adults_in_the_U_S_Analysis_of_a_National_Cancer_Database"><img alt="Research paper thumbnail of Patterns of Palliative Care Beliefs Among Adults in the U.S.: Analysis of a National Cancer Database" class="work-thumbnail" src="https://attachments.academia-assets.com/115656218/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540018/Patterns_of_Palliative_Care_Beliefs_Among_Adults_in_the_U_S_Analysis_of_a_National_Cancer_Database">Patterns of Palliative Care Beliefs Among Adults in the U.S.: Analysis of a National Cancer Database</a></div><div class="wp-workCard_item"><span>Journal of Pain and Symptom Management</span><span>, Dec 1, 2019</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="d3d4370c58cefc9d0da5dbb33142170c" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656218,"asset_id":120540018,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656218/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540018"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540018"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540018; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540018]").text(description); $(".js-view-count[data-work-id=120540018]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540018; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540018']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540018, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "d3d4370c58cefc9d0da5dbb33142170c" } } $('.js-work-strip[data-work-id=120540018]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540018,"title":"Patterns of Palliative Care Beliefs Among Adults in the U.S.: Analysis of a National Cancer Database","translated_title":"","metadata":{"publisher":"Elsevier BV","grobid_abstract":"Background. Palliative care (PC) is associated with increased quality of life for individuals with life-limiting illnesses. Despite growing recognition of the need for public advocacy and involvement, data on public perception of PC are limited. We sought to examine patterns of beliefs, sociodemographic differences, and the impact of information source on perceptions of PC. Measures and Intervention. Data were analyzed from the 2018 Health Information National Trends Survey, a representative sample of public knowledge on cancer-related information. Prevalence of perceptions was estimated among adults who self-identified as knowledgeable about PC; multivariable logistic regression invoking stepwise variable selection was used to determine associations with perceptions. Outcomes. Overall, 42.5% automatically thought of death when thinking about PC, and 31.7% equate PC with hospice care. Lower proportions perceived PC as incompatible with curative medical therapy: 15.1% believed PC means giving up, and 14.5% believed PC requires the discontinuation of other treatments. Perceptions varied by age, race, education attainment, income, and marital status. In adjusted models, source of PC information was not related to differences in PC perception: PC is giving up (P $ 0.28), requirement to stop curative therapy (P $ 0.07), and equation with hospice care (P $ 0.29). Conclusions. Six in every 10 American adults knowledgeable about PC have at least one documented misperception, with differential beliefs by sociodemographic groups. Source of information had little impact on PC beliefs. These findings may help focus future measures to educate the public about the role of PC in health care and address gaps in knowledge. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540017"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540017/The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting"><img alt="Research paper thumbnail of The Value of Screening for a History of Incarceration in the Palliative Care Setting" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540017/The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting">The Value of Screening for a History of Incarceration in the Palliative Care Setting</a></div><div class="wp-workCard_item"><span>American Journal of Hospice and Palliative Medicine</span><span>, Jun 26, 2023</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">The United States (US) has one of the highest rates of incarceration in the world. Due to the agi...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">The United States (US) has one of the highest rates of incarceration in the world. Due to the aging of the US population as a whole and limited opportunities for early release, the proportion of older people in prison continues to rise. Some correctional health systems have adopted geriatric and palliative care principles to better care for this aging population, many of whom die in prison. However, not everyone who grows old in prison will die behind bars. In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540017"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540017"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540017; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540017]").text(description); $(".js-view-count[data-work-id=120540017]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540017; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540017']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540017, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (false){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "-1" } } $('.js-work-strip[data-work-id=120540017]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540017,"title":"The Value of Screening for a History of Incarceration in the Palliative Care Setting","translated_title":"","metadata":{"abstract":"The United States (US) has one of the highest rates of incarceration in the world. Due to the aging of the US population as a whole and limited opportunities for early release, the proportion of older people in prison continues to rise. Some correctional health systems have adopted geriatric and palliative care principles to better care for this aging population, many of whom die in prison. However, not everyone who grows old in prison will die behind bars. In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.","publisher":"SAGE Publishing","publication_date":{"day":26,"month":6,"year":2023,"errors":{}},"publication_name":"American Journal of Hospice and Palliative Medicine"},"translated_abstract":"The United States (US) has one of the highest rates of incarceration in the world. Due to the aging of the US population as a whole and limited opportunities for early release, the proportion of older people in prison continues to rise. Some correctional health systems have adopted geriatric and palliative care principles to better care for this aging population, many of whom die in prison. However, not everyone who grows old in prison will die behind bars. In this article, we explore existing literature that highlights the unique physical, cognitive, and psychosocial challenges that formerly incarcerated patients face. We proceed to argue that palliative care providers should screen for a history of incarceration to identify and address the needs of this patient population. We also offer strategies to create a safe, welcoming environment to discuss past traumas related to these patients’ time in prison.","internal_url":"https://www.academia.edu/120540017/The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting","translated_internal_url":"","created_at":"2024-06-04T10:57:47.176-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[],"slug":"The_Value_of_Screening_for_a_History_of_Incarceration_in_the_Palliative_Care_Setting","translated_slug":"","page_count":null,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[],"research_interests":[{"id":588,"name":"Nursing","url":"https://www.academia.edu/Documents/in/Nursing"},{"id":4482,"name":"Palliative Care","url":"https://www.academia.edu/Documents/in/Palliative_Care"},{"id":26327,"name":"Medicine","url":"https://www.academia.edu/Documents/in/Medicine"},{"id":64336,"name":"Population","url":"https://www.academia.edu/Documents/in/Population"},{"id":106006,"name":"Prison","url":"https://www.academia.edu/Documents/in/Prison"},{"id":144043,"name":"Psychosocial","url":"https://www.academia.edu/Documents/in/Psychosocial"},{"id":627038,"name":"Prison Population","url":"https://www.academia.edu/Documents/in/Prison_Population"}],"urls":[{"id":42646635,"url":"https://doi.org/10.1177/10499091231186400"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540016"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540016/_This_Won_t_Hurt_a_Bit_Is_There_a_Role_for_Music_in_Bedside_Procedures"><img alt="Research paper thumbnail of “This Won’t Hurt a Bit”: Is There a Role for Music in Bedside Procedures?" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540016/_This_Won_t_Hurt_a_Bit_Is_There_a_Role_for_Music_in_Bedside_Procedures">“This Won’t Hurt a Bit”: Is There a Role for Music in Bedside Procedures?</a></div><div class="wp-workCard_item"><span>Critical care explorations</span><span>, Apr 1, 2023</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540016"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540016"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540016; 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540015"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540015/Perspectives_of_homeless_service_providers_on_their_work_their_clients_and_the_healthcare_system"><img alt="Research paper thumbnail of Perspectives of homeless service providers on their work, their clients, and the healthcare system" class="work-thumbnail" src="https://attachments.academia-assets.com/115656214/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540015/Perspectives_of_homeless_service_providers_on_their_work_their_clients_and_the_healthcare_system">Perspectives of homeless service providers on their work, their clients, and the healthcare system</a></div><div class="wp-workCard_item"><span>PLOS ONE</span><span>, May 26, 2022</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="48fd12df78aed4d3d8a7f40493884bd5" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656214,"asset_id":120540015,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656214/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540015"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540015"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540015; 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Methods A qualitative, cross-sectional study of Chicago homeless service providers (n = 17) consisting of a semi-structured interview and the Attitudes Toward the Homeless Inventory (ATHI). Interviews were analyzed for themes and patterns using inductive approach. Results Four categories of 16 themes describing homeless service providers' perspectives and perceptions: 1) perspectives on work, 2) perspectives on the general population of those experiencing homelessness at large, 3) perceptions of the population of those experiencing homelessness based on client interactions, and 4) perceptions of hospitals and healthcare. Conclusions A richer understanding of the perspectives of homeless service may provide guidance in recruitment and training of workers in this area and offer insight into caring for persons experiencing homelessness in hospital settings.","publication_date":{"day":26,"month":5,"year":2022,"errors":{}},"publication_name":"PLOS ONE","grobid_abstract_attachment_id":115656214},"translated_abstract":null,"internal_url":"https://www.academia.edu/120540015/Perspectives_of_homeless_service_providers_on_their_work_their_clients_and_the_healthcare_system","translated_internal_url":"","created_at":"2024-06-04T10:57:46.656-07:00","preview_url":null,"current_user_can_edit":null,"current_user_is_owner":null,"owner_id":130508466,"coauthors_can_edit":true,"document_type":"paper","co_author_tags":[],"downloadable_attachments":[{"id":115656214,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656214/thumbnails/1.jpg","file_name":"file.pdf","download_url":"https://www.academia.edu/attachments/115656214/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Perspectives_of_homeless_service_provide.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656214/file-libre.pdf?1717526525=\u0026response-content-disposition=attachment%3B+filename%3DPerspectives_of_homeless_service_provide.pdf\u0026Expires=1733151939\u0026Signature=O~d1v6f7WOG51QRZ2JKQFN0RROmNr5~yia-n2QSYircCKRu0kf3tAoz1EPUoUactxbbfvC~DOMhRGCRklR4x4cWXNvBK-PHC5hXZxESh27dSQHi387kpZMI~tXgEZ-GeOls0IanGJf-eXVWjIiXHNYiNW6Oh5iVztllKuejwnneF4Kc3WKG04p4yk~csPY987cPhcbFujrfBl~1h~GJXadgzmXNtlku7FZqo-3PYxH57JyKf-P1CO07q4XbWzcJqu37zLAfl8sBhCNVhxrnydun~rRR1yGSGi9JNWkaqEe7FOwuoR0Sm-LJXl5q6gs33qp9osC6TfarVCnS9jJmvnQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"slug":"Perspectives_of_homeless_service_providers_on_their_work_their_clients_and_the_healthcare_system","translated_slug":"","page_count":23,"language":"en","content_type":"Work","owner":{"id":130508466,"first_name":"Joshua","middle_initials":null,"last_name":"Hauser","page_name":"JoshuaHauser2","domain_name":"independent","created_at":"2019-10-11T05:33:04.412-07:00","display_name":"Joshua Hauser","url":"https://independent.academia.edu/JoshuaHauser2"},"attachments":[{"id":115656214,"title":"","file_type":"pdf","scribd_thumbnail_url":"https://attachments.academia-assets.com/115656214/thumbnails/1.jpg","file_name":"file.pdf","download_url":"https://www.academia.edu/attachments/115656214/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&","bulk_download_file_name":"Perspectives_of_homeless_service_provide.pdf","bulk_download_url":"https://d1wqtxts1xzle7.cloudfront.net/115656214/file-libre.pdf?1717526525=\u0026response-content-disposition=attachment%3B+filename%3DPerspectives_of_homeless_service_provide.pdf\u0026Expires=1733151939\u0026Signature=O~d1v6f7WOG51QRZ2JKQFN0RROmNr5~yia-n2QSYircCKRu0kf3tAoz1EPUoUactxbbfvC~DOMhRGCRklR4x4cWXNvBK-PHC5hXZxESh27dSQHi387kpZMI~tXgEZ-GeOls0IanGJf-eXVWjIiXHNYiNW6Oh5iVztllKuejwnneF4Kc3WKG04p4yk~csPY987cPhcbFujrfBl~1h~GJXadgzmXNtlku7FZqo-3PYxH57JyKf-P1CO07q4XbWzcJqu37zLAfl8sBhCNVhxrnydun~rRR1yGSGi9JNWkaqEe7FOwuoR0Sm-LJXl5q6gs33qp9osC6TfarVCnS9jJmvnQ__\u0026Key-Pair-Id=APKAJLOHF5GGSLRBV4ZA"}],"research_interests":[{"id":867,"name":"Perception","url":"https://www.academia.edu/Documents/in/Perception"},{"id":4441,"name":"Health Care","url":"https://www.academia.edu/Documents/in/Health_Care"},{"id":12135,"name":"Qualitative Research","url":"https://www.academia.edu/Documents/in/Qualitative_Research"},{"id":28235,"name":"Multidisciplinary","url":"https://www.academia.edu/Documents/in/Multidisciplinary"},{"id":64336,"name":"Population","url":"https://www.academia.edu/Documents/in/Population"},{"id":220780,"name":"PLoS one","url":"https://www.academia.edu/Documents/in/PLoS_one"},{"id":908186,"name":"Service Provider","url":"https://www.academia.edu/Documents/in/Service_Provider"},{"id":1222385,"name":"service Business","url":"https://www.academia.edu/Documents/in/service_Business"}],"urls":[{"id":42646633,"url":"https://doi.org/10.1371/journal.pone.0268765"}]}, dispatcherData: dispatcherData }); $(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540014"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540014/Patient_Perspectives_on_Religiously_Affiliated_Care_in_Rural_and_Urban_Colorado"><img alt="Research paper thumbnail of Patient Perspectives on Religiously Affiliated Care in Rural and Urban Colorado" class="work-thumbnail" src="https://attachments.academia-assets.com/115656213/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540014/Patient_Perspectives_on_Religiously_Affiliated_Care_in_Rural_and_Urban_Colorado">Patient Perspectives on Religiously Affiliated Care in Rural and Urban Colorado</a></div><div class="wp-workCard_item"><span>Journal of Primary Care & Community Health</span><span>, 2021</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="d91c47953bcd8a4cc9cc5be24c8f3270" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656213,"asset_id":120540014,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656213/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540014"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540014"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540014; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540014]").text(description); $(".js-view-count[data-work-id=120540014]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540014; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540014']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540014, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); dispatcherData = { dispatcher: window.WowProfile.dispatcher, downloadLinkId: "d91c47953bcd8a4cc9cc5be24c8f3270" } } $('.js-work-strip[data-work-id=120540014]').each(function() { if (!$(this).data('initialized')) { new WowProfile.WorkStripView({ el: this, workJSON: {"id":120540014,"title":"Patient Perspectives on Religiously Affiliated Care in Rural and Urban Colorado","translated_title":"","metadata":{"publisher":"SAGE Publishing","grobid_abstract":"Introduction: Religiously affiliated healthcare organizations play an important role in the delivery of care in the United States. There is a gap in the literature regarding patients' attitudes toward receiving care at these institutions, especially in geographically diverse populations. Methods: In this two-site pilot study, we conducted a written survey of 141 adult primary care patients at non-religiously affiliated clinics in rural and urban Colorado. Demographic information, measures of religiosity and spirituality, and opinions regarding religiously affiliated care were collected. Results: 73.3% and 69.6% of patients in rural and urban counties, respectively, had no preference as to the religious affiliation of their care. However, patients in the urban county (24.1%) were more likely than those in the rural county (8.3%) to prefer care that was not affiliated with any religion. Conclusions: This study suggests that concerns such as proximity to care and patient/provider relationships may be more important to patients than the possible religious affiliation of a healthcare organization. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540013"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540013/Goal_Concordant_Care_in_the_Era_of_Advanced_Stroke_Therapies"><img alt="Research paper thumbnail of Goal-Concordant Care in the Era of Advanced Stroke Therapies" class="work-thumbnail" src="https://attachments.academia-assets.com/115656217/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540013/Goal_Concordant_Care_in_the_Era_of_Advanced_Stroke_Therapies">Goal-Concordant Care in the Era of Advanced Stroke Therapies</a></div><div class="wp-workCard_item"><span>Journal of Palliative Medicine</span><span>, Feb 1, 2021</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="0207d19004ccf6632fbb94f6e32e7929" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656217,"asset_id":120540013,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656217/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODMzOSw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540013"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540013"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540013; 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Recent advances in stroke care now enable patients with severe ischemic stroke owing to large vessel occlusion to safely undergo endovascular thrombectomy (EVT) up to 24 hours since their time of last known well, with the goal of improving functional outcomes by recanalization of the occluded vessel and reperfusion of downstream ischemic brain tissue. The objective of this analysis is to highlight clinical and ethical challenges related to ensuring goal-concordant care in this era of unprecedented advances in acute stroke care. Specifically, there is a salient challenge of whether advanced therapies such as EVT may be justifiably considered comfort focused, given their potential to preempt accumulated neurologic disability and suffering at the end of life. Through the lens of a patient case, we discuss key challenges, lessons learned, and suggestions for future care and research endeavors at the intersection of acute stroke care and palliative care principles. Although therapies such as thrombolysis and EVT may be considered aggressive prima facie, their potential to ameliorate additional disability and potential suffering at the end of life prompt close consideration of the proper role of these therapies on a case-by-case basis in the context of comfortfocused care. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540012"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540012/What_palliative_care_physicians_wish_neurologists_knew"><img alt="Research paper thumbnail of What palliative care physicians wish neurologists knew" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540012/What_palliative_care_physicians_wish_neurologists_knew">What palliative care physicians wish neurologists knew</a></div><div class="wp-workCard_item"><span>Elsevier eBooks</span><span>, 2022</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540012"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540012"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540012; 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540011"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540011/Walls"><img alt="Research paper thumbnail of Walls" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540011/Walls">Walls</a></div><div class="wp-workCard_item"><span>Hastings Center Report</span><span>, May 1, 2020</span></div><div class="wp-workCard_item"><span class="js-work-more-abstract-truncated">In a field that strives to care for patients and families together, what can palliative care clin...</span><a class="js-work-more-abstract" data-broccoli-component="work_strip.more_abstract" data-click-track="profile-work-strip-more-abstract" href="javascript:;"><span> more </span><span><i class="fa fa-caret-down"></i></span></a><span class="js-work-more-abstract-untruncated hidden">In a field that strives to care for patients and families together, what can palliative care clinicians do when patients&#39; families are physically absent? 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The Covid-19 pandemic has put both literal and figurative walls between health care professionals and families. How health care workers respond to these disconnections might have a lasting impact on patients, on families, and on our practice. Recently, I saw this in the case of a patient our palliative care team was consulted to see. Mr. B was minimally responsive and dying from multisystem organ failure of unclear etiology. As in other cases during this pandemic, our team became a facilitator of interaction between the patient and the physically absent family, seeing an intimacy we normally would not, in this case, by being present while our intern held the phone to Mr. B\u0026#39;s ear for an end-of-life call from his wife, son, and daughter. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540009"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540009/Veterans_Veterans_Administration_Health_Care_and_Palliative_Care"><img alt="Research paper thumbnail of Veterans, Veterans Administration Health Care, and Palliative Care" class="work-thumbnail" src="https://a.academia-assets.com/images/blank-paper.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540009/Veterans_Veterans_Administration_Health_Care_and_Palliative_Care">Veterans, Veterans Administration Health Care, and Palliative Care</a></div><div class="wp-workCard_item"><span>Elsevier eBooks</span><span>, 2011</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540009"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540009"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540009; 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540008"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540008/Heart_Failure_and_Palliative_Care"><img alt="Research paper thumbnail of Heart Failure and Palliative Care" class="work-thumbnail" src="https://attachments.academia-assets.com/115656212/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540008/Heart_Failure_and_Palliative_Care">Heart Failure and Palliative Care</a></div><div class="wp-workCard_item"><span>Elsevier eBooks</span><span>, 2011</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="7b05e8182bf58757339d3cfef5390036" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656212,"asset_id":120540008,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656212/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540008"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540008"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540008; 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Without an appropriately trained workforce, however, appropriate goals of care and associated reductions in hospital utilizations may not be feasible. Marie Curie Cancer Care, British Heart Foundation Scotland and NHS Greater Glasgow and Clyde are working in partnership to improve the quality and access to palliative care for patients and their caregivers living with and dying from advanced heart failure. A training needs assessment has been undertaken as part of this programme in order to inform the development of training specific to heart failure and palliative care. Recent findings The results of the training needs assessment showed that the majority of respondents had some level of training needs to underpin their existing knowledge and skills in relation to palliative care, heart failure or both. Summary Well trained professionals will improve the coordination, earlier identification, quality of care provision and communication between all stakeholders. In doing so, the opportunity to facilitate preferred care wishes and preferred place of care for patients and families is optimised. 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$(this).data('initialized', true); } }); $a.trackClickSource(".js-work-strip-work-link", "profile_work_strip") }); </script> <div class="js-work-strip profile--work_container" data-work-id="120540007"><div class="profile--work_thumbnail hidden-xs"><a class="js-work-strip-work-link" data-click-track="profile-work-strip-thumbnail" href="https://www.academia.edu/120540007/Medical_student_training_in_communication_skills"><img alt="Research paper thumbnail of Medical student training in communication skills" class="work-thumbnail" src="https://attachments.academia-assets.com/115656249/thumbnails/1.jpg" /></a></div><div class="wp-workCard wp-workCard_itemContainer"><div class="wp-workCard_item wp-workCard--title"><a class="js-work-strip-work-link text-gray-darker" data-click-track="profile-work-strip-title" href="https://www.academia.edu/120540007/Medical_student_training_in_communication_skills">Medical student training in communication skills</a></div><div class="wp-workCard_item"><span>Oxford University Press eBooks</span><span>, Feb 1, 2017</span></div><div class="wp-workCard_item wp-workCard--actions"><span class="work-strip-bookmark-button-container"></span><a id="b0d5e01ec20ea0dd23359b849200d04d" class="wp-workCard--action" rel="nofollow" data-click-track="profile-work-strip-download" data-download="{"attachment_id":115656249,"asset_id":120540007,"asset_type":"Work","button_location":"profile"}" href="https://www.academia.edu/attachments/115656249/download_file?st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&st=MTczMzE0ODM0MCw4LjIyMi4yMDguMTQ2&s=profile"><span><i class="fa fa-arrow-down"></i></span><span>Download</span></a><span class="wp-workCard--action visible-if-viewed-by-owner inline-block" style="display: none;"><span class="js-profile-work-strip-edit-button-wrapper profile-work-strip-edit-button-wrapper" data-work-id="120540007"><a class="js-profile-work-strip-edit-button" tabindex="0"><span><i class="fa fa-pencil"></i></span><span>Edit</span></a></span></span><span id="work-strip-rankings-button-container"></span></div><div class="wp-workCard_item wp-workCard--stats"><span><span><span class="js-view-count view-count u-mr2x" data-work-id="120540007"><i class="fa fa-spinner fa-spin"></i></span><script>$(function () { var workId = 120540007; window.Academia.workViewCountsFetcher.queue(workId, function (count) { var description = window.$h.commaizeInt(count) + " " + window.$h.pluralize(count, 'View'); $(".js-view-count[data-work-id=120540007]").text(description); $(".js-view-count[data-work-id=120540007]").attr('title', description).tooltip(); }); });</script></span></span><span><span class="percentile-widget hidden"><span class="u-mr2x work-percentile"></span></span><script>$(function () { var workId = 120540007; window.Academia.workPercentilesFetcher.queue(workId, function (percentileText) { var container = $(".js-work-strip[data-work-id='120540007']"); container.find('.work-percentile').text(percentileText.charAt(0).toUpperCase() + percentileText.slice(1)); container.find('.percentile-widget').show(); container.find('.percentile-widget').removeClass('hidden'); }); });</script></span><span><script>$(function() { new Works.PaperRankView({ workId: 120540007, container: "", }); });</script></span></div><div id="work-strip-premium-row-container"></div></div></div><script> require.config({ waitSeconds: 90 })(["https://a.academia-assets.com/assets/wow_profile-f77ea15d77ce96025a6048a514272ad8becbad23c641fc2b3bd6e24ca6ff1932.js","https://a.academia-assets.com/assets/work_edit-ad038b8c047c1a8d4fa01b402d530ff93c45fee2137a149a4a5398bc8ad67560.js"], function() { // from javascript_helper.rb var dispatcherData = {} if (true){ window.WowProfile.dispatcher = window.WowProfile.dispatcher || _.clone(Backbone.Events); 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However, there is still comparatively little known about the experience of learning with real patients and how that may impact on the SP encounter. Aim: To explore the impact of real patient contact on the experience of communication skills training and SP contact for first-year medical undergraduate students. Methods: As part of the 6-year MBBS undergraduate medical degree at Imperial College London, students are obliged to undertake communication skills training, which involves teaching with simulated and real patients. In 2017 (toward the end of formal teaching), a small sample of Year 1 medical students, who had taken part in extra-curricular teaching with real patients were recruited for the study to compare their performance with a control group in a SP encounter. The performance of both groups was analyzed alongside follow-up focus group data from a sample of the study group. Results: Quantitative analysis revealed there was no significant difference in communication skills during a scored SP interview between students with real patient contact and those without. Focus group data, however, revealed valuable insights into the experience of learning with real patients. Students reported a marked increase in their confidence and ability to naturalize their communication skills as a result of real patient contact. Students also reported that skills gained through real patient contact may not always transfer easily to the SP setting. Conclusion: Real patient contact is an invaluable component of communication training for undergraduate medical students. For successful implementation, there needs to be a clear curricular purpose at pedagogical, practical and organizational levels. 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