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Improve MS diagnosis - MS International Federation

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href="https://www.msif.org/living-with-ms/my-story-of-ms/ling-pi/">Ling, Malaysia</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/oumaima-benyaich/">Alexia, Cyprus</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/christelle-taute/">Christelle, South Africa</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/sanae-hazim/">Hao, China</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/living-with-ms/my-story-of-ms/sean-hegarty/">Sean, UK</a></li> </ul> </div> </li> </ul> </div> </li> <li class=" menu-item menu-item-type-post_type menu-item-object-page menu-item-21 menu-item-has-children dropdown" aria-haspopup="true" data-toggle="dropdown" tabindex="-1"> <a href="/research/" tabindex="0">Research</a> <div class="dropdown-menu-container" data-level="2" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/research/">Research</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/about-us/who-we-are-and-what-we-do/advocacy/atlas/">AtlasofMS.org</a> </li> <li class="dropdown-submenu" aria-haspopup="true" data-toggle="dropdown" role="menuitem" tabindex="-1"> <a href="https://www.msif.org/research/challenges-of-ms-research/">Key topics in MS research</a> <div class="dropdown-menu-container" data-level="3" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/research/challenges-of-ms-research/">Key topics in MS research</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/clinical-trials-and-clinical-developments/">Clinical research and trials</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/epstein-barr-virus-and-ms/">Epstein-Barr virus and MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/ms-registries-putting-people-with-ms-at-the-heart-of-research/">MS registries</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/proms/">Patient Reported Outcomes for MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/research-into-ms-and-quality-of-life/">Quality of life research in MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/progressive-ms/">Research into Progressive MS</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/challenges-of-ms-research/stem-cell-therapy-for-ms/">Stem cell therapy for MS</a></li> </ul> </div> </li> <li class="dropdown-submenu" aria-haspopup="true" data-toggle="dropdown" role="menuitem" tabindex="-1"> <a href="https://www.msif.org/research/awards-grants-and-fellowships/">Awards, grants and fellowships</a> <div class="dropdown-menu-container" data-level="3" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/research/awards-grants-and-fellowships/">Awards, grants and fellowships</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/du-pre-grants/">Du Pré Grants</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/mcdonald-fellowships/">McDonald Fellowships</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/charcot-award/">Charcot Award</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/young-investigator-award/">Young Investigator Award</a></li> <li role="menuitem" tabindex="-1"><a href="https://www.msif.org/research/awards-grants-and-fellowships/global-ms-research-fellowships/">Global MS research fellowships</a></li> </ul> </div> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/catchup-progressivemswebcast/">The Progressive MS Alliance webcasts</a> </li> </ul> </div> </li> <li class=" menu-item menu-item-type-post_type menu-item-object-page current-page-ancestor current-menu-ancestor current-menu-parent current-page-parent current_page_parent current_page_ancestor menu-item-12347 menu-item-has-children dropdown" aria-haspopup="true" data-toggle="dropdown" tabindex="-1"> <a href="/access-to-ms-healthcare/" tabindex="0">Access & advocacy</a> <div class="dropdown-menu-container" data-level="2" role="menu" aria-hidden="true"> <h3><a href="https://www.msif.org/access-to-ms-healthcare/">Access & advocacy</a></h3> <ul class="dropdown-menu"> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/improve-access-to-ms-treatment/">Improve access to MS treatment</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/improve-ms-diagnosis/">Improve MS diagnosis</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/getting-the-healthcare-i-need/">Getting the healthcare I need</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/get-the-evidence/">Get the evidence</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/how-to-get-started-in-advocacy/">How to get started in advocacy</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/learn-from-others/">Learn from others</a> </li> <li role="menuitem" tabindex="-1"> <a href="https://www.msif.org/access-to-ms-healthcare/msifs-work-on-access-to-ms-healthcare/">MSIF work on access</a> </li> </ul> </div> </li> <li class=" menu-item menu-item-type-post_type menu-item-object-page menu-item-8302" tabindex="-1"> <a href="/resources/" 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<div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/staff/">Our staff</a> </div> </li> <li class="mobile-nav-item mobile-nav-item-children"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/governance/" data-goto-menu="menu-1502">How we are governed</a> </div> </li> <li class="mobile-nav-item mobile-nav-item-children"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/how-we-are-funded/" data-goto-menu="menu-5824">How we are funded</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/reports-and-resources/">Annual accounts</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/about-us/conflicts-impact/">Conflict’s impact on people affected by MS</a> </div> </li> <li 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href="https://www.msif.org/access-to-ms-healthcare/improve-ms-diagnosis/">Improve MS diagnosis</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/getting-the-healthcare-i-need/">Getting the healthcare I need</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/get-the-evidence/">Get the evidence</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/how-to-get-started-in-advocacy/">How to get started in advocacy</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/learn-from-others/">Learn from others</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/access-to-ms-healthcare/msifs-work-on-access-to-ms-healthcare/">MSIF work on access</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1488"> <button class="mobile-nav-back" data-goto-menu="menu-1515"><span class="mobile-nav-back-content">Back</span></button> <div class="mobile-nav-list-wrapper"> <ul class="mobile-nav-list"> <li class="mobile-nav-item mobile-nav-item-parent"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/charcot-award/">Charcot Award</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/charcot-award/charcot-award-winners/">Charcot Award winners</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1507"> <button class="mobile-nav-back" data-goto-menu="menu-1515"><span class="mobile-nav-back-content">Back</span></button> <div class="mobile-nav-list-wrapper"> <ul class="mobile-nav-list"> <li class="mobile-nav-item mobile-nav-item-parent"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/mcdonald-fellowships/">McDonald Fellowships</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/mcdonald-fellowships/mcdonald-fellowship-recipients/">McDonald Fellowship recipients</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1489"> <button class="mobile-nav-back" data-goto-menu="menu-1515"><span class="mobile-nav-back-content">Back</span></button> <div class="mobile-nav-list-wrapper"> <ul class="mobile-nav-list"> <li class="mobile-nav-item mobile-nav-item-parent"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/du-pre-grants/">Du Pré Grants</a> </div> </li> <li class="mobile-nav-item"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/du-pre-grants/du-pre-grant-recipients/">Du Pré Grant recipients</a> </div> </li> </ul> </div> </div> <div class="mobile-nav-container" id="menu-1515"> <button class="mobile-nav-back" data-goto-menu="menu-21"><span class="mobile-nav-back-content">Back</span></button> <div class="mobile-nav-list-wrapper"> <ul class="mobile-nav-list"> <li class="mobile-nav-item mobile-nav-item-parent"> <div class="mobile-nav-actions"> <a class="mobile-nav-anchor" href="https://www.msif.org/research/awards-grants-and-fellowships/">Awards, grants and fellowships</a> </div> </li> <li class="mobile-nav-item mobile-nav-item-children"> <div class="mobile-nav-actions"> <a 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Consider what can be done to improve awareness and improve early diagnosis.</p> <div class="row"> <div class="col-md-6"> <p class="last-updated">Last updated: 13th September 2024</p> </div> </div> </div> </div> </div> </header> <div class="container"> <div class="row"> <section class="content col-md-9"> <div class="page-banner"> <figure class="image-block"> <img src="data:image/svg+xml;base64,PHN2ZyB4bWxucz0iaHR0cDovL3d3dy53My5vcmcvMjAwMC9zdmciIHZpZXdCb3g9IjAgMCA0ODAgMzQ2IiB3aWR0aD0iNDgwIiBoZWlnaHQ9IjM0NiIgZGF0YS11PSJodHRwJTNBJTJGJTJGd3d3Lm1zaWYub3JnJTJGd3AtY29udGVudCUyRnVwbG9hZHMlMkYyMDIzJTJGMDYlMkZMYW5nZG9uXzIzMDIyMF8wMDQtc2NhbGVkLWUxNjg1NjIzNjg0NzU3LTQ4MHgwLWMtZGVmYXVsdC5qcGciIGRhdGEtdz0iNDgwIiBkYXRhLWg9IjM0NiIgZGF0YS1iaXA9IiI+PC9zdmc+" data-spai="1" data-src-sm="http://www.msif.org/wp-content/uploads/2023/06/Langdon_230220_004-scaled-e1685623684757-480x0-c-default.jpg" data-src-md="http://www.msif.org/wp-content/uploads/2023/06/Langdon_230220_004-scaled-e1685623684757-700x0-c-default.jpg" data-src-lg="http://www.msif.org/wp-content/uploads/2023/06/Langdon_230220_004-scaled-e1685623684757-900x0-c-default.jpg" alt=""> <p class="image-caption">Shahdar visiting hospital for a check up with his wife.</p> </figure> </div> <script type="text/javascript"> jQuery(function() { var section_i = 0; // if(jQuery("section.content > h2, section.content > h3").length > 1) { jQuery("section.content > h2, section.content > h3").each(function() { if(jQuery(this).hasClass("anchor-links-ignore")) { } else { section_i++; jQuery(this).attr({"id":"section-"+section_i}); jQuery(".anchor-links").append('<li><a href="#section-'+section_i+'">'+jQuery(this).text()+'</a></li>'); } }); jQuery(".anchor-links-wrapper").show(); // } jQuery(document).on("click", ".anchor-links li a", function(e) { e.preventDefault(); jQuery("html,body").animate({"scrollTop":jQuery(jQuery(this).attr("href")).offset().top - jQuery("header.header").outerHeight()}); }); }); </script> <style type="text/css"> .anchor-links-wrapper { display: none; border-bottom: 10px solid #eee; padding: 0px 0 10px 0; clear: both; } </style> <div class="anchor-links-wrapper"> <h3 class="anchor-links-ignore">What’s on this page?</h3> <ul class="anchor-links"></ul> </div> <h2>What needs to be done?</h2> <p>MSIF believes that:</p> <p><strong>Each country should have a national plan or guidelines for the healthcare of people with MS.</strong></p> <ul> <li>Such plans should aim to include the most recent global diagnostic criteria for MS</li> </ul> <p><strong>Organisations/networks that focus on neurological conditions should work together to enable earlier diagnosis of neurological conditions, including MS. </strong></p> <ul> <li><span style="font-size: 12pt;">In particular, they should collaborate on shared challenges such as:</span> <ul> <li><span style="font-size: 12pt;">The number and training of neurologists, and other professionals involved in neurological care.</span></li> <li><span style="font-size: 12pt;">Access to cost-effective diagnostic tests and equipment.</span></li> </ul> </li> </ul> <h2>Challenges in diagnosing MS</h2> <p><em>An early diagnosis is vital to enable early treatment with disease modifying therapies that can minimise relapses and reduce future disability. Even if disease modifying therapies are not available, an early diagnosis is still crucial as it allows for lifestyle changes to help manage the disease and improve quality of life. </em></p> <p>Data from the <a href="http://www.atlasofms.org">Atlas of MS</a> shows that:</p> <ol> <li>The majority (83%) of countries worldwide have barriers that prevent early diagnosis of MS. Globally the most commonly reported barrier is a lack of awareness of MS symptoms amongst the public and healthcare professionals. In low and lower middle income countries other barriers are also common, including the availability of qualified healthcare professionals as well as the availability and cost of the diagnostic equipment and tests.</li> <li>Use of the most recent criteria for diagnosing MS (<a href="https://www.thelancet.com/article/S1474-4422(17)30470-2/fulltext" target="_blank" rel="noopener">McDonald 2017</a>) correlates with country wealth. There is almost universal use (98%) in high income countries compared to less than half (40%) of low income countries using the criteria. The most common barrier cited for not using McDonald 2017 is a lack of awareness or training for neurologists.</li> </ol> <p>Find out more about <a href="https://www.msif.org/news/2023/06/16/global-barriers-to-ms-diagnosis/">global barriers to MS diagnosis</a> here, and <a href="https://www.msif.org/news/2023/07/20/is-it-ms-or-something-else/">learn about the most recent guidelines for the differential diagnosis of MS here</a>.</p> <h2>What can you do to help?</h2> <h3>Get the evidence</h3> <p>Data about MS in your country/region is a powerful tool for change. Access country-level data about MS and barriers to diagnosis through the <a href="http://www.atlasofms.org">Atlas of MS</a> website, and see how your country compares with other countries in your region.</p> <p>In 2023, MSIF in collaboration with several experts from around the world published data on <a href="https://www.msif.org/news/2023/06/16/global-barriers-to-ms-diagnosis/">global barriers to diagnosis</a> in the journal Neurology. This publication can be used to strengthen and make the case for improving MS diagnosis. <a href="https://n.neurology.org/content/early/2023/06/15/WNL.0000000000207481">Access the publication here</a>, as well as an <a href="https://n.neurology.org/content/early/2023/06/30/WNL.0000000000207530">editorial written about the topic</a>, and <a href="https://blogs.neurology.org/global/global-disparities-in-the-multiple-sclerosis-patient-journey-illustrative-commentary-from-kenya/">a blog from Professor Dilraj Sokhi providing a perspective from Kenya</a>. We can provide slides that illustrate the main messages in this publication &#8211; please email <a href="mailto:access@msif.org">access@msif.org</a> if you would like to use them.</p> <h3>Get help with advocacy</h3> <p>Find out more about <a href="https://www.msif.org/how-to-get-started-in-advocacy/">what advocacy is, how to get started</a>, and <a href="https://www.msif.org/learn-from-others/">how other organisations have successful advocated to improve access to diagnosis</a>.</p> <h3>The WHO&#8217;s 10-year plan to improve healthcare for neurological conditions</h3> <p>The World Health Organization&#8217;s intersectoral global action plan (IGAP) has recommendations for improving access to diagnosis for neurological disorders. <a href="https://www.msif.org/access-to-ms-healthcare/global-action-plan-for-neurology/">Find out more here about how you can use the IGAP as an advocacy tool</a>.</p> <h3>Learn from others</h3> <p>There have been many advocacy successes across the global MS movement that have resulted in improved access to MS healthcare. Equally, there have been challenges and lessons learned. <a href="https://www.msif.org/access-to-ms-healthcare/learn-from-others/">You can learn from case studies, advice and tips from individuals and organisations around the world here.</a></p> <section class="block-group block-group-4"> <div class="container"> <div class="row"> <a href="https://www.msif.org/access-to-ms-healthcare/get-the-evidence/" class="bg-primary-teal block block-simple" data-gtm-event="banner"> <div class="block-inner"> <h2>Get the evidence</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> <a href="https://www.msif.org/access-to-ms-healthcare/how-to-get-started-in-advocacy/" class="bg-primary-blue block block-simple" data-gtm-event="banner"> <div class="block-inner"> <h2>How to get started in advocacy</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> <a href="https://www.msif.org/access-to-ms-healthcare/learn-from-others/" class="bg-primary-teal block block-simple" data-gtm-event="banner"> <div class="block-inner"> <h2>Learn from others</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> <a href="https://www.msif.org/access-to-ms-healthcare/contact-us-for-advice/" class="bg-secondary-deep-blue block block-simple" data-gtm-event="banner"> <div class="block-inner"> <h2>Contact us for advice</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> </div> </div> </section> <div class="page-tags clearfix"> <h4>Page Tags:</h4> <ul class="clearfix"> <li><a href="https://www.msif.org/tag/advocacy">advocacy</a></li> <li><a href="https://www.msif.org/tag/diagnosis">diagnosis</a></li> <li><a href="https://www.msif.org/tag/access-to-healthcare">access to healthcare</a></li> <li><a href="https://www.msif.org/tag/diagnostic-criteria">diagnostic criteria</a></li> <li><a href="https://www.msif.org/tag/barriers-to-diagnosis">barriers to diagnosis</a></li> </ul> </div> </section> <section class="sidebar col-md-3"> <div> <section class="widget widget-links"> <header> <h3>Related information</h3> </header> <ul class="links"> <li><a href="http://www.atlasofms.org">Atlas of MS</a></li> <li><a href="http://www.msif.org/about-ms/diagnosing-ms/">Information about MS diagnosis</a></li> <li><a href="http://www.msif.org/news/2023/06/16/global-barriers-to-ms-diagnosis/">Global barriers to MS diagnosis</a></li> <li><a href="http://n.neurology.org/content/early/2023/06/30/WNL.0000000000207530">Worldwide Disparity in the Effectiveness of the Diagnostic Process in Multiple Sclerosis</a></li> <li><a href="http://www.msif.org/news/2023/07/20/is-it-ms-or-something-else/">Is it MS or something else?</a></li> <li><a href="http://blogs.neurology.org/global/global-disparities-in-the-multiple-sclerosis-patient-journey-illustrative-commentary-from-kenya/">Global disparities in the multiple sclerosis patient journey: Illustrative commentary from Kenya</a></li> <li><a href="http://www.msif.org/news/2024/09/11/improving-awareness-of-ms-in-africa-with-young-neurologists-leading-the-way/">Improving awareness of MS in Africa with young neurologists leading the way</a></li> <li><a href="http://"></a></li> </ul> </section> </div> <a href="https://www.msif.org/access-to-ms-healthcare/contact-us-for-advice/" class="bg-secondary-deep-blue block block-simple widget" data-gtm-event="banner"> <div class="block-inner"> <h2>Contact us for advice</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> <a href="https://www.msif.org/access-to-ms-healthcare/" class="bg-primary-teal block block-simple widget" data-gtm-event="banner"> <div class="block-inner"> <h2>Access to MS healthcare</h2> <footer> <span class="btn btn-primary">Learn more</span> </footer> </div> </a> </section> </div> </div> </main> <div id="root-footer"></div> </div> <footer class="footer" id="footer" role="contentinfo"> <div class="footer-top"> <div class="container"> <div class="row"> <div class="col-md-4"> <div class="footer-heading"><a href="/contact-us">Contact us</a></div> <p>MS International Federation<br> 7-14 Great Dover Street<br> London SE1 4YR<br> United Kingdom</p> </div> <div class="col-md-4"> <div class="footer-heading">Follow us</div> <p class="hidden-xs">Keep in touch with our work on Twitter, Facebook and YouTube.</p> <ul class="social-links"> <li class="twitter"><a href="https://twitter.com/MSIntFederation" title="Follow us on Twitter">Twitter</a></li> <li class="facebook"><a href="https://www.facebook.com/pages/Multiple-Sclerosis-International-Federation/110033075774139" title="Like us on Facebook">Facebook</a></li> <li class="youtube"><a href="https://www.youtube.com/user/MSIFmedia" title="Subscribe to our YouTube channel">YouTube</a></li> </ul> </div> <div class="col-md-4"> <div class="footer-heading">Translate this site</div> <p>Parts of this site are available in Arabic and Spanish. 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