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How I Deal With Lupus Fatigue

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.vn-menu-section:not(.lite){background:#fff;border-radius:0 0 5px 5px;border-top:0;left:-20px;margin-left:-3.75rem;max-width:none;height:auto;opacity:0;padding:1.875rem 2.875rem;position:absolute;top:4.6875rem;width:18.75rem;visibility:hidden}.vn-wrapper .vn-links .vn-menu-section:not(.lite) hr{display:none}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul{margin:0}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li{border-bottom:1px solid #c6cedb}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li:last-of-type{border-bottom:0}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li.vn-see-all a{-webkit-box-align:baseline;-ms-flex-align:baseline;align-items:baseline;color:#3557ff;display:-webkit-box;display:-ms-flexbox;display:flex;-webkit-box-pack:start;-ms-flex-pack:start;justify-content:flex-start}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li.vn-see-all a img{height:.75rem;margin-right:.5rem}.vn-wrapper .vn-links 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.vn-subscribe:not(.lite)>button:hover{background-color:#fff;color:#00157c;-webkit-transition:all .3s ease;transition:all .3s ease}.vn-wrapper .vn-subscribe:not(.lite)>button:hover:before{background:url(//img.lb.wbmdstatic.com/webmd_static_vue/091e9c5e82273de2/client/img/mail-navblue.7c5ef9b6.svg) no-repeat}.vn-wrapper .vn-subscribe:not(.lite)>button:before{background:url(//img.lb.wbmdstatic.com/webmd_static_vue/091e9c5e82273de2/client/img/mail.c6992733.svg) no-repeat}}.vn-wrapper .vn-subscribe.vn-mob-gn-sub{margin-left:auto;margin-right:.75rem}.vn-wrapper .vn-subscribe.vn-mob-gn-sub>button{border:none;border-radius:0;border-right:1px solid #c6cedb;color:#fff;font-size:.875rem;font-weight:600}.vn-wrapper .vn-subscribe.vn-mob-gn-sub>button:before{background:url(//img.lb.wbmdstatic.com/webmd_static_vue/091e9c5e82273de2/client/img/mail.c6992733.svg) 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.blogs-hr:after,.blogs-title-common .blogs-hr:before{background:#cccce7;content:" ";-webkit-box-flex:1;-ms-flex-positive:1;flex-grow:1;height:.0625rem;position:relative}body{-webkit-font-smoothing:antialiased;-moz-osx-font-smoothing:grayscale;background:#f8f8f8!important}.module.blogs-topic-list{margin-bottom:.438rem}.module.blogs-topic-list .blog-section-title{line-height:1.2;margin:0 0 0 0}.module.blogs-topic-list ul{-webkit-column-count:1;-moz-column-count:1;column-count:1;-webkit-column-gap:0;-moz-column-gap:0;column-gap:0;display:-webkit-box;display:-ms-flexbox;display:flex;-ms-flex-wrap:wrap;flex-wrap:wrap;margin-top:0;padding:0 0 .438rem 0}.module.blogs-topic-list ul li{-webkit-box-align:center;-ms-flex-align:center;align-items:center;background-color:#fff;border-radius:12.5rem;-webkit-box-sizing:border-box;box-sizing:border-box;display:-webkit-box;display:-ms-flexbox;display:flex;margin:1.5rem 1rem 0 0;text-align:center;cursor:pointer}@media(max-width:63.938em){.module.blogs-topic-list ul li{margin:.75rem 1.25rem 0 0}}@media(max-width:39.938em){.module.blogs-topic-list ul li{margin:1.125rem .625rem 0 0}}.module.blogs-topic-list ul li:hover{background-color:#d2d9ff}.module.blogs-topic-list ul li:hover a{color:#3557ff}.module.blogs-topic-list ul li a{color:#3557ff;font-family:Source Sans Pro,Arial,sans-serif;font-size:1rem;font-weight:400;line-height:1.6;padding:.35rem 1rem .35rem 1rem;letter-spacing:.18px;text-decoration:none}@media(max-width:47.938em){.module.blogs-topic-list ul li a{line-height:normal;padding:.5rem 1rem}}@media(max-width:39.938em){.module.blogs-topic-list ul li a{font-size:.8125rem!important}}</style> <style>.owl-carousel{display:none;width:100%;-webkit-tap-highlight-color:transparent;position:relative;z-index:1}.owl-carousel .owl-stage{position:relative;-ms-touch-action:pan-Y;touch-action:manipulation;-moz-backface-visibility:hidden}.owl-carousel 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class="webmd-row pane" style="" id="ContentPane29" tabindex="-1"><div class="blogs-single-post"><!----><div class="blogs-post-content" data-metrics-module="bl-cntrbtr"><div class="blogs-post-content-title"><span class="blogs-post-header-text">How I Deal With Lupus Fatigue</span></div><div class="blogs-post-hero"><img class="blogs-post-hero-image" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/article_thumbnails/blog_posts/lupus/1800x1200_overworked_woman_sleeping_on_desk.jpg?resize=1024:*&amp;output-quality=20" alt="photo of tired businesswoman sleeping on desk"></div><div class="blogs-post-hero-author"><div class="blogs-post-author"><div class="author-comp-container"><img class="author-thumbnail" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/articles/biographies/600x600_erica_lupinacci.jpg" alt="Erica Lupinacci"><span class="author-content"><span class="author-name">By<a class="bold-content" href="https://blogs.webmd.com/lupus/erica-lupinacci" data-metrics-link="byline">Erica Lupinacci</a></span><span>August 30, 2022</span><span class="author-related-link-header">Diagnosed since 2009</span></span></div></div></div><div class="blogs-post-hero-content"><div class="blogs-post-body-content article__body"><div id="articlePageContent"><div class="blog-post-article-page" data-page="1"><section><h2></h2><p>I don’t think you can understand <a href="https://www.webmd.com/lupus/lupus-fatigue">fatigue</a> until you’ve experienced it yourself. Many people think it’s just feeling tired, needing to sleep, or spending the day on the couch. When I’m fatigued, it feels like my entire body is filled with sand. I feel like I cannot move, and no amount of sleep or rest will fix it. It feels impossible to do my normal tasks. Fatigue can be incredibly overwhelming, physically and emotionally, and I’m still learning how to deal with it.</p><p>For me, fatigue can come at any time. There is often no identifiable trigger. I will be feeling fine, and then all of a sudden it hits me like a ton of bricks. I don’t know why it’s happening or how long it will last. Sometimes, it will be a sign that I’m having a <a href="https://www.webmd.com/lupus/understanding-lupus-prevention">flare-up</a>, or it might just be a bad day.</p><p>The lack of control over something so debilitating makes me really sad and angry. I hate knowing it can sneak up on me and surprise me. The fatigue always seems to come after a period of good days, which is even more upsetting. I find it helpful to not fight whatever I’m feeling at that moment and let myself be mad, heartbroken, and disappointed. Sometimes, I don’t even have the energy to cry, but it makes me feel better to have some sort of emotional release.</p><p>One of the most difficult parts of my fatigue is trying to figure out whether it’s an indication of a flare or just a normal <a href="https://www.webmd.com/lupus/understanding-lupus-symptoms">symptom</a>. It can be confusing because it often feels the same in both situations. I really have to listen to my body, take note of any other symptoms, and see how long the fatigue lasts. It takes a lot of patience and attention to detail, trying to pick up on any signs that lead to a flare. My flares increase in severity very quickly, and catching them right away makes a huge difference. I try to stay on top of this as much as I can while I’m experiencing fatigue.</p></section></div><div class="blog-post-article-page" data-page="2"><section> <p>Unfortunately, there aren’t a lot of things that improve my fatigue, but I know that pushing through it definitely makes it worse. I usually have to cancel any activities I have scheduled and stay home and rest until it gets better. I watch a lot of TV and movies and listen to podcasts. I eat my favorite foods. I take baths. I try to treat myself with extra kindness. None of this is my fault, and I always have to remind myself of that. I just need to take care of myself the best way I possibly can and be patient with myself and my body.</p><p> </p><p><meta charset="utf-8" /></p><p dir="ltr"><b id="docs-internal-guid-45ebc1bf-7fff-85f8-ba17-11d102d091b9">Join the WebMD <a rel="nofollow ugc" href="https://www.facebook.com/groups/webmdlupuscommunity">Lupus conversation on Facebook</a>.</b></p><p> </p><p><sup><em>Photo Credit: Westend61 via Getty Images</em></sup></p></section></div></div><div class="blogs-fb-group-block"><a target="_blank" data-metrics-link="93397"><div class="fbgroup-icon"><svg width="28" height="29" viewbox="0 0 28 29" fill="none" xmlns="https://www.w3.org/2000/svg"><path d="M28 14.3507C28 6.57145 21.732 0.265137 14 0.265137C6.26801 0.265137 0 6.57145 0 14.3507C0 21.3811 5.11957 27.2084 11.8125 28.2651V18.4223H8.25781V14.3507H11.8125V11.2475C11.8125 7.71728 13.9027 5.76731 17.1005 5.76731C18.6323 5.76731 20.2344 6.04242 20.2344 6.04242V9.50878H18.4691C16.73 9.50878 16.1875 10.5946 16.1875 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src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/articles/biographies/600x600_erica_lupinacci.jpg?resize=180px:*"></a></div><div class="blogs-contributor-content"><div class="blogs-contributor-information"><div class="blogs-bio-follow-heading"><h3 class="blogs-cs-title">More blog posts from <a href="https://blogs.webmd.com/lupus/erica-lupinacci" data-metrics-link="cntrbtr"><span class="contributor-name">Erica Lupinacci</span></a></h3><button class="blogs-contributor-follow-button"> Follow </button><div class="blogs-bio-newsletter-modal"><div class="blogs-bio-tooltip"><div class="blogs-bio-tooltip-arrow"></div><span></span></div></div></div></div><div class="blogs-bio-contributor-description"><div class="blogs-cs-description blogs-contributor-link-container"></div><a class="blogs-read-more-link" href="https://blogs.webmd.com/lupus/erica-lupinacci" data-metrics-module="bl-relcntrbtr" data-metrics-link="cntrbtr">Read Full Bio</a></div></div></div><!----></section><div class="blogs-bio-post" data-metrics-module="bl-relcntrbtr"><div class="blogs-flex-container"><!--[--><div class="blogs-flex-item"><div class="blog-post-single blog-post-list"><div class="blog-post-image"><a href="https://blogs.webmd.com/lupus/20221031/ways-i-talk-to-loved-ones-about-my-condition" data-metrics-link="art"><img alt="Ways I Talk to Loved Ones About My Condition" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/article_thumbnails/blog_posts/hiv/1800x1200_hands_holding_cups_of_coffee_in_cafe.jpg?resize=800:*"></a></div><div class="blog-post-content"><!----><h2><a href="https://blogs.webmd.com/lupus/20221031/ways-i-talk-to-loved-ones-about-my-condition" title data-metrics-link="art">Ways I Talk to Loved Ones About My Condition</a></h2><div class="blog-post-text"><p>Telling friends and family about your diagnosis can be extremely intimidating, overwhelming, and nerve-racking ...</p></div><div class="author-comp-container"><!----><span class="author-content"><span class="author-name">By<a class="bold-content" href="https://blogs.webmd.com/lupus/erica-lupinacci" data-metrics-link="cntrbtr"> Erica Lupinacci</a></span><span>October 31, 2022</span><!----></span></div><div class="blog-post-read-more hidden-lg-and-up"><a href="https://blogs.webmd.com/lupus/20221031/ways-i-talk-to-loved-ones-about-my-condition" data-metrics-link="art">Read More<svg xmlns="https://www.w3.org/2000/svg" width="15" height="12" viewBox="0 0 15 12"><defs><filter id="xc8088xqja"><feColorMatrix in="SourceGraphic" values="0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 1.000000 0"></feColorMatrix></filter></defs><g fill="none" fill-rule="evenodd" stroke-linecap="round"><g><g><g filter="url(#xc8088xqja)" transform="translate(-239.000000, -4095.000000) translate(28.000000, 3536.216142) translate(1.000000, 541.768940)"><g stroke="#FFF" stroke-width="2"><path stroke-linejoin="round" d="M0.167 4.833L11.487 4.833" transform="translate(210.995857, 18.250000)"></path><path d="M7.162 0.167L11.898 4.833 7.162 9.5" transform="translate(210.995857, 18.250000)"></path></g></g></g></g></g></svg></a></div></div></div></div><div class="blogs-flex-item"><div class="blog-post-single blog-post-list"><div class="blog-post-image"><a href="https://blogs.webmd.com/lupus/20221025/how-i-navigate-my-relationship-with-a-chronic-illness" data-metrics-link="art"><img alt="How I Navigate My Relationship With a Chronic Illness" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/article_thumbnails/blog_posts/lupus/1800x1200_women_chatting_and_cooking_in_the_kitchen.jpg?resize=800:*"></a></div><div class="blog-post-content"><!----><h2><a href="https://blogs.webmd.com/lupus/20221025/how-i-navigate-my-relationship-with-a-chronic-illness" title data-metrics-link="art">How I Navigate My Relationship With a Chronic Illness</a></h2><div class="blog-post-text"><p>It can feel daunting to date and navigate being in a relationship when living with a chronic illness. We all know it’s hard to date in general ...</p></div><div class="author-comp-container"><!----><span class="author-content"><span class="author-name">By<a class="bold-content" href="https://blogs.webmd.com/lupus/erica-lupinacci" data-metrics-link="cntrbtr"> Erica Lupinacci</a></span><span>October 25, 2022</span><!----></span></div><div class="blog-post-read-more hidden-lg-and-up"><a href="https://blogs.webmd.com/lupus/20221025/how-i-navigate-my-relationship-with-a-chronic-illness" data-metrics-link="art">Read More<svg xmlns="https://www.w3.org/2000/svg" width="15" height="12" viewBox="0 0 15 12"><defs><filter id="xc8088xqja"><feColorMatrix in="SourceGraphic" values="0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 1.000000 0"></feColorMatrix></filter></defs><g fill="none" fill-rule="evenodd" stroke-linecap="round"><g><g><g filter="url(#xc8088xqja)" transform="translate(-239.000000, -4095.000000) translate(28.000000, 3536.216142) translate(1.000000, 541.768940)"><g 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My flares increase in severity very quickly, and catching them right away makes a huge difference. I try to stay on top of this as much as I can while I’m experiencing fatigue.\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"2\" \u002F\u003E\u003Cpagebreak type=\"desktop\" order=\"2\" \u002F\u003E\u003Csection_header is_continued=\"true\"\u003E continued...\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003EUnfortunately, there aren’t a lot of things that improve my fatigue, but I know that pushing through it definitely makes it worse. I usually have to cancel any activities I have scheduled and stay home and rest until it gets better. I watch a lot of TV and movies and listen to podcasts. I eat my favorite foods. I take baths. I try to treat myself with extra kindness. 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