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Lawmakers Consider End-of-Life Care for Pregnant Women | The Texas Tribune

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padding-top: .5em"> <div style="background:url(//web.archive.org/web/20150418213047im_/http://s3.amazonaws.com/static.texastribune.org/media/membership/TT-supportus-flag.png) no-repeat; width: 120px; height:60px; background-size: 120px 60px;"></div> </a> </div> <div class="below_nav"> <h1 id="logo"><a href="/web/20150418213047/http://www.texastribune.org/"><img src="https://web.archive.org/web/20150418213047im_/https://s3.amazonaws.com/static.texastribune.org/common/images/logo.png" width="453" height="50" alt="The Texas Tribune"></a></h1> <time datetime="2015-04-18T16:30:47.566126">Saturday, April 18, 2015</time> </div> </header> </div> <div class="wrapper content-wrapper"> <div id="site_content" class="content "> <div class="grid"> <div class="cell w-8 main_column"> <article class="last"> <header> <h1>Lawmakers Consider End-of-Life Care for Pregnant Women</h1> <ul class="meta separator"><li class="byline"> by <a href="/web/20150418213047/http://www.texastribune.org/about/staff/alexa-ura/" rel="author">Alexa Ura</a></li><li><time datetime="Wed, 15 Apr 2015 16:44:34 -0500" title="2015-04-15 16:44"> April 15, 2015 </time></li><li class="comments"><a class="comments" href="/web/20150418213047/http://www.texastribune.org/2015/04/15/lawmakers-consider-end-life-care-pregnant-women/comments/"><span class="value">24</span><span class="label">Comments</span></a></li></ul> </header> <aside> <ul class="social_links"> <li class="comment"> <a href="/web/20150418213047/http://www.texastribune.org/2015/04/15/lawmakers-consider-end-life-care-pregnant-women/comments/" title=""> <i class="icon-comments-alt"></i> <span>Comment</span> </a> </li> <li class="republish"> <a href="/web/20150418213047/http://www.texastribune.org/content/republish/85271/"> <i class="icon-share"></i> <span>Republish</span> </a> </li> <li class="email"> <a href="/web/20150418213047/http://www.texastribune.org/cdn-cgi/l/email-protection#ab94d8dec9c1cec8df96ffc3ce8e999bffced3cad88e999bffd9c2c9dec5ce918e999be7cadcc6cac0ced9d88e999be8c4c5d8c2cfced98e999beec5cf86c4cd86e7Xife%20Care%20for%20Pregnant%20Women&amp;body=I%20read an article%20that%20you%20might%20be%20interested%20in%20at%20The%20Texas%20Tribune:%20Lawmakers%20Consider%20End-of-Life%20Care%20for%20Pregnant%20Women%2C%20by%20Alexa Ura.%20http://www.texastribune.org/2015/04/15/lawmakers-consider-end-life-care-pregnant-women/%0DThe%20family%20of%20the%20late%26nbsp%3BMarlise%20Mu%26ntilde%3Boz%2C%20a%20pregnant%20Fort%20Worth%20woman%20who%20in%202013%20was%20kept%20on%20life%20support%20against%20her%20family%26rsquo%3Bs%20wishes%2C%20asked%20state%20lawmakers%20on%20Wednesday%20to%20help%20prevent%20other%20families%20from%20going%20through%20similar%20trauma." title="" class="email"> <i class="icon-envelope"></i> <span>Email</span> </a> </li> <li class="twitter"> <a href="https://web.archive.org/web/20150418213047/http://twitter.com/share?text=Lawmakers Consider End-of-Life Care for Pregnant Women&amp;url=http://trib.it/1EHRXxq&amp;via=TexasTribune&amp;related=TexasTribune,TribData"> <i class="icon-twitter"></i> <span>Tweet</span> </a> </li> <li class="facebook"> <a href="https://web.archive.org/web/20150418213047/http://www.facebook.com/sharer.php?u=http://www.texastribune.org/2015/04/15/lawmakers-consider-end-life-care-pregnant-women/"> <i class="icon-facebook"></i> <span>Recommend</span> </a> </li> </ul> </aside> <div class="content"> <div class="media article_detail unprose"> <a href="//web.archive.org/web/20150418213047/http://s3.amazonaws.com/static.texastribune.org/media/images/2015/03/12/UP9A3464_jpg_800x1000_q100.jpg" title="Erick Mu帽oz, widow of Marlise Mu帽oz, speaks during a press conference at Texas Capitol, where &quot;Marlise's Law&quot; was introduced on March 12, 2015." class="lightbox"> <img src="//web.archive.org/web/20150418213047im_/http://s3.amazonaws.com/static.texastribune.org/media/images/2015/03/12/UP9A3464_jpg_312x1000_q100.jpg" alt="Erick Mu帽oz, widow of Marlise Mu帽oz, speaks during a press conference at Texas Capitol, where &quot;Marlise's Law&quot; was introduced on March 12, 2015."> </a> <div class="photo_links"> <a href="//web.archive.org/web/20150418213047/http://s3.amazonaws.com/static.texastribune.org/media/images/2015/03/12/UP9A3464_jpg_800x1000_q100.jpg" title="Erick Mu帽oz, widow of Marlise Mu帽oz, speaks during a press conference at Texas Capitol, where &quot;Marlise's Law&quot; was introduced on March 12, 2015." class="lightbox enlarge">Enlarge</a> <cite>photo by: Marjorie Kamys Cotera</cite> </div> <div class="photo_caption">Erick Mu帽oz, widow of Marlise Mu帽oz, speaks during a press conference at Texas Capitol, where &quot;Marlise&#39;s Law&quot; was introduced on March 12, 2015.</div> </div> <p dir="ltr"><span>In soft-spoken pleas, the family of the late<strong>&nbsp;</strong>Marlise Mu&ntilde;oz, a pregnant Fort Worth woman who in 2013 was kept on life support against her family&rsquo;s wishes, asked state lawmakers on Wednesday to help prevent other families from going through similar trauma.</span></p> <p dir="ltr">Mu&ntilde;oz&rsquo;s mother, Lynn Machado, described to the House State Affairs Committee the pain she felt&nbsp;watching her brain-dead daughter's body "decompose" while she was kept on life support for 62 days.</p> <p dir="ltr"><span>&ldquo;We felt angry, frustrated and helpless,&rdquo; Machado said. &ldquo;We felt our hands were bound and tied by government.&rdquo;</span></p> <p dir="ltr"><span>At 14 weeks pregnant, Mu&ntilde;oz collapsed because of a pulmonary embolism and was nearly dead when her husband, Erick Mu&ntilde;oz, found her. After doctors pronounced her brain-dead, she was kept on life support because of a state law that requires doctors to maintain life-sustaining care for pregnant patients.</span></p> <p dir="ltr">A <a href="https://web.archive.org/web/20150418213047/http://www.capitol.state.tx.us/tlodocs/84R/billtext/pdf/HB03183I.pdf#navpanes=0">legislative proposal</a><span>&nbsp;known as "Marlise's Law"</span>&nbsp;by state Rep. <a href="https://web.archive.org/web/20150418213047/http://www.texastribune.org/directory/elliott-naishtat/">Elliott Naishtat</a>, D-Austin, would&nbsp;remove that requirement and allow pregnant women to be taken off life support.</p><div class="ad_container ad_container--adify"> <div class="ad adunit mobile tablet standard" data-adunit="TexasTribune_Content_StoryPage_InsideStory_468x60">&nbsp;</div> </div> <p dir="ltr"><span>During the hearing, supporters of the bill, including Erick Mu&ntilde;oz, told the committee that the proposal would give families more control over their loved ones&rsquo; wishes. &ldquo;Give families the opportunity to avoid the pain and suffering that my family&rdquo; endured, Erick Mu&ntilde;oz said.</span></p> <p dir="ltr"><span>But opponents of the bill asked the committee to weigh the value of a an unborn child&rsquo;s life in keeping pregnant women on life support even if they are brain-dead.</span></p> <p dir="ltr"><span>&ldquo;We need to look and realize that it&rsquo;s still the life of a pre-born child, and as Texans we need to protect those children regardless of the fact that sometimes that may be difficult,&rdquo; said Cecilia Wood with Concerned Women for America. </span></p> <p>When she added that &ldquo;it&rsquo;s never okay&rdquo; to follow the family&rsquo;s wishes if &ldquo;it takes away the life of the child,&rdquo; state Rep. <a href="https://web.archive.org/web/20150418213047/http://www.texastribune.org/directory/sylvester-turner/">Sylvester Turner</a>, Democrat of Houston, questioned what timeline the state should follow.</p> <p dir="ltr"><span>&ldquo;I&rsquo;m trying to understand: At what point would it have been okay for her to have been disconnected from the life support?&rdquo; Turner asked. </span></p> <p>Wood responded that a pregnant women should be kept on life support &ldquo;until the child is no longer alive&rdquo; or can be delivered.</p> <p dir="ltr"><span>Naishtat&rsquo;s proposal is one of two </span><a href="https://web.archive.org/web/20150418213047/http://www.texastribune.org/2015/03/12/competing-bills-filed-over-end-life-care-pregnant-/"><span>competing bills</span></a><span> about who should have the authority to decide whether to terminate a brain-dead pregnant woman&rsquo;s life.</span></p> <p dir="ltr"><span>State Rep. </span><a href="https://web.archive.org/web/20150418213047/http://www.texastribune.org/directory/matt-krause/"><span>Matt Krause</span></a><span>, a Republican of Fort Worth, has also introduced a </span><a href="https://web.archive.org/web/20150418213047/http://www.legis.state.tx.us/tlodocs/84R/billtext/html/HB01901I.htm"><span>measure</span></a><span> that is essentially the opposite of Naishtat&rsquo;s bill. That proposal</span><span>&nbsp;would strengthen the requirement that pregnant patients be kept on life-sustaining support, including in cases in which the patient is brain-dead.</span></p><div class="ad_container ad_container--adify"> <div class="ad adunit mobile tablet standard" data-adunit="TexasTribune_Content_StoryPage_InsideStory2_468x60">&nbsp;</div> </div> <p dir="ltr"><span>(Mu&ntilde;oz was taken off life support after a </span><span>Tarrant County district judge ruled that state law around life-sustaining care for pregnant patients does not apply if the patient is brain-dead.)</span></p> <p dir="ltr"><span>Several members of the committee expressed other concerns about keeping pregnant women on life support. State Rep. <a href="https://web.archive.org/web/20150418213047/http://www.texastribune.org/directory/jessica-farrar/">Jessica Farrar</a>, D-Houston, questioned who should bear hospital costs for life support that is continued against a woman's advance directive.</span>&nbsp;Rep.&nbsp;<a href="https://web.archive.org/web/20150418213047/http://www.texastribune.org/directory/charlie-geren/">Charlie Geren</a>, R-Fort Worth, made it clear that he wanted more medical information about the deterioration of a brain-dead pregnant woman&rsquo;s body on life support.</p> <p dir="ltr"><span>After public testimony ended, Naishtat said his bill only intended to change one line of state law so that women&rsquo;s decisions about their end-of-life care will not be voided because they are pregnant.</span></p> <p dir="ltr"><span>&ldquo;That&rsquo;s not fair,&rdquo; Naishtat told the committee. &ldquo;That hurts families very much, and this is a simple fix.&rdquo;</span></p> <p dir="ltr"><span>The bill was left pending in committee.</span></p> <p><em><span id="docs-internal-guid-0714fec7-beda-0ed9-8b70-7ccf7b614ef4">This story was produced in partnership with <a href="https://web.archive.org/web/20150418213047/http://www.kaiserhealthnews.org/">Kaiser Health News</a>, an editorially independent program of the Henry J. Kaiser Family Foundation, a nonprofit, nonpartisan health policy research and communication organization not affiliated with Kaiser Permanente.</span></em></p> </div> <aside> <ul class="social_links"> <li class="comment"> <a href="/web/20150418213047/http://www.texastribune.org/2015/04/15/lawmakers-consider-end-life-care-pregnant-women/comments/" title=""> <i class="icon-comments-alt"></i> <span>Comment</span> </a> </li> <li class="republish"> <a href="/web/20150418213047/http://www.texastribune.org/content/republish/85271/"> <i class="icon-share"></i> <span>Republish</span> </a> </li> <li class="email"> <a href="/web/20150418213047/http://www.texastribune.org/cdn-cgi/l/email-protection#c8f7bbbdaaa2adabbcf59ca0adedfaf89cadb0a9bbedfaf89cbaa1aabda6adf2edfaf884a9bfa5a9a3adbabbedfaf88ba7a6bba1acadbaedfaf88da6ace5a7aee584Xife%20Care%20for%20Pregnant%20Women&amp;body=I%20read an article%20that%20you%20might%20be%20interested%20in%20at%20The%20Texas%20Tribune:%20Lawmakers%20Consider%20End-of-Life%20Care%20for%20Pregnant%20Women%2C%20by%20Alexa Ura.%20http://www.texastribune.org/2015/04/15/lawmakers-consider-end-life-care-pregnant-women/%0DThe%20family%20of%20the%20late%26nbsp%3BMarlise%20Mu%26ntilde%3Boz%2C%20a%20pregnant%20Fort%20Worth%20woman%20who%20in%202013%20was%20kept%20on%20life%20support%20against%20her%20family%26rsquo%3Bs%20wishes%2C%20asked%20state%20lawmakers%20on%20Wednesday%20to%20help%20prevent%20other%20families%20from%20going%20through%20similar%20trauma." title="" class="email"> <i class="icon-envelope"></i> <span>Email</span> </a> </li> <li class="twitter"> <a href="https://web.archive.org/web/20150418213047/http://twitter.com/share?text=Lawmakers Consider End-of-Life Care for Pregnant Women&amp;url=http://trib.it/1EHRXxq&amp;via=TexasTribune&amp;related=TexasTribune,TribData"> <i class="icon-twitter"></i> <span>Tweet</span> </a> </li> <li 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