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hidden="hidden" data-v-095b8014><div class="dropdown flex lg:flex-row lg:overflow-hidden" data-v-095b8014><div class="menu-details lg:w-45 lg:py-11 lg:px-12" data-v-095b8014><ul class="menu-links py-3 lg:py-0" data-v-095b8014><li role="none" class="our-impact links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/always-ready" aria-label="click to visit The Campaign for Mass General" data-track-impact="Navigation | Header | The Campaign for Mass General" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>The Campaign for Mass General</span></a></li><li role="none" class="our-impact links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/building-for-the-future-of-health-care" aria-label="click to visit The Building for the Future of Health Care" data-track-impact="Navigation | Header | The Building for the Future of Health Care" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>The Building for the Future of Health Care</span></a></li><li role="none" class="our-impact links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/our-impact/top-quality-care" aria-label="click to visit Top Quality Care" data-track-impact="Navigation | Header | Top Quality Care" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Top Quality Care</span></a></li><li role="none" class="our-impact links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/our-impact/innovative-research" aria-label="click to visit Innovative Research" data-track-impact="Navigation | Header | Innovative Research" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Innovative Research</span></a></li><li role="none" class="our-impact links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/our-impact/education" aria-label="click to visit Excellence in Education" data-track-impact="Navigation | Header | Excellence in Education" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Excellence in Education</span></a></li><li role="none" class="our-impact links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/our-impact/strong-communities" aria-label="click to visit Strong Communities" data-track-impact="Navigation | Header | Strong Communities" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Strong Communities</span></a></li></ul></div> <div class="image lg:w-55 relative hidden lg:block lg:overflow-hidden" data-v-095b8014><span data-v-4c874eb7 data-v-095b8014><img data-src="https://admin.giving.massgeneral.org/assets/SPS_6859_BearwalkMGH-2.jpg" src="https://admin.giving.massgeneral.org/assets/SPS_6859_BearwalkMGH-2.jpg" alt="A Mass General researcher" class="lazy-image lg:absolute lg:inset-0 slide-fade" data-v-4c874eb7></span></div></div></div></div></li> <li role="listitem" class="px-6 lg:px-0 where-give lg:mr-10 " data-v-095b8014><button aria-expanded="false" aria-controls="dropdown" class="parent flex flex-row items-center finish mobile-only-finish w-full py-5 lg:py-2 justify-between" data-v-095b8014><span class="text-md lg:text-base font-bold text-dark_blue" data-v-095b8014>Where to Give</span> <span class="ml-2 lg:hidden teal_dark" data-v-095b8014><svg width="8" height="12" viewBox="0 0 8 12" fill="none" xmlns="http://www.w3.org/2000/svg" role="img" aria-label="nav chevron"> <path d="M1 1L6 6L1 11" stroke="#007B83" stroke-width="2"/> </svg></span> <span class="ml-2 slide-loop hidden lg:inline-block teal_dark" data-v-095b8014><svg width="8" height="5" viewBox="0 0 8 5" fill="none" xmlns="http://www.w3.org/2000/svg" role="img" aria-label="desktop nav chevron"> <path d="M7 1L4 4L1 1" stroke="#007B83"/> </svg></span></button> <div class="slide-wrapper lg:absolute lg:right-0 lg:flex lg:flex-col z-50" data-v-095b8014><div aria-hidden="true" hidden="hidden" data-v-095b8014><div class="dropdown flex lg:flex-row lg:overflow-hidden" data-v-095b8014><div class="menu-details lg:w-45 lg:py-11 lg:px-12 w-full" data-v-095b8014><div class="menu-byline finish pb-4 pt-4 lg:pt-0 fade-in" data-v-095b8014><a href="/where-to-give/the-mgh-fund/" tabindex="-1" data-v-095b8014><div class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>The MGH Fund</div> <div class="font-medium italic text-base-sm font-header byline dark_blue" data-v-095b8014>Support our greatest needs</div></a></div> <ul class="menu-links py-3 line-after" data-v-095b8014><li role="none" class="where-give links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/where-to-give/cancer-center/" aria-label="click to visit Cancer Center" data-track-where="Navigation | Header | Cancer Center" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Cancer Center</span></a></li><li role="none" class="where-give links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/where-to-give/community-health/" aria-label="click to visit Community Health" data-track-where="Navigation | Header | Community Health" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Community Health</span></a></li><li role="none" class="where-give links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/where-to-give/corrigan-minehan-heart-center/" aria-label="click to visit Corrigan Minehan Heart Center" data-track-where="Navigation | Header | Corrigan Minehan Heart Center" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Corrigan Minehan Heart Center</span></a></li><li role="none" class="where-give links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/where-to-give/diversity-equity-inclusion/" aria-label="click to visit Diversity, Equity and Inclusion" data-track-where="Navigation | Header | Diversity, Equity and Inclusion" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Diversity, Equity and Inclusion</span></a></li><li role="none" class="where-give links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/where-to-give/education/" aria-label="click to visit Education" data-track-where="Navigation | Header | Education" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Education</span></a></li><li role="none" class="where-give links py-3 lg:py-2 fade-in" data-v-095b8014><a href="/where-to-give/neuroscience/" aria-label="click to visit Neuroscience" data-track-where="Navigation | Header | Neuroscience" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm text-dark_blue" data-v-095b8014>Neuroscience</span></a></li></ul> <div class="learn-more pt-3 pb-3 lg:pb-0" data-v-095b8014><a href="" role="link" class="main-btn btn-slide slide-base slide-minimal ml-0 fade-in persistent" type="" target="_self" aria-label="click to learn more about where to give." data-v-31279f50 data-v-095b8014>View More <svg xmlns="http://www.w3.org/2000/svg" width="19" height="10" viewBox="0 0 19 10" fill="none" role="img" aria-label="arrow"><path d="M0 5H18" stroke="#324458" stroke-width="2"></path><line x1="18.2929" y1="5.70711" x2="13.2929" y2="0.707107" stroke="#324458" stroke-width="2"></line><line y1="-1" x2="7.07107" y2="-1" transform="matrix(-0.707107 0.707107 0.707107 0.707107 19 5)" stroke="#324458" stroke-width="2"></line></svg></a></div></div> <div class="image lg:w-55 relative hidden lg:block lg:overflow-hidden" data-v-095b8014><span data-v-4c874eb7 data-v-095b8014><img data-src="https://admin.giving.massgeneral.org/assets/RS62313_VanAukenT_massgeneral_20190611_2261-lpr-1-2.png" src="https://admin.giving.massgeneral.org/assets/RS62313_VanAukenT_massgeneral_20190611_2261-lpr-1-2.png" alt="Lab technician running medical tests" class="lazy-image lg:absolute lg:inset-0 slide-fade" data-v-4c874eb7></span></div></div></div></div></li> <li role="listitem" class="px-6 lg:px-0 how-give lg:mr-10 " data-v-095b8014><button aria-expanded="false" aria-controls="dropdown" class="parent flex flex-row items-center finish mobile-only-finish w-full py-5 lg:py-2 justify-between" data-v-095b8014><span class="text-md lg:text-base font-bold text-dark_blue" data-v-095b8014>How to Give</span> <span class="ml-2 lg:hidden teal_dark" data-v-095b8014><svg width="8" height="12" viewBox="0 0 8 12" fill="none" xmlns="http://www.w3.org/2000/svg" role="img" aria-label="nav chevron"> <path d="M1 1L6 6L1 11" stroke="#007B83" stroke-width="2"/> </svg></span> <span class="ml-2 slide-loop hidden lg:inline-block teal_dark" data-v-095b8014><svg width="8" height="5" viewBox="0 0 8 5" fill="none" xmlns="http://www.w3.org/2000/svg" role="img" aria-label="desktop nav chevron"> <path d="M7 1L4 4L1 1" stroke="#007B83"/> </svg></span></button> <div class="slide-wrapper lg:absolute lg:right-0 lg:flex lg:flex-col z-50" data-v-095b8014><div aria-hidden="true" hidden="hidden" data-v-095b8014><div class="dropdown flex lg:flex-row lg:overflow-hidden" data-v-095b8014><div class="menu-details lg:w-45 lg:py-11 lg:px-12 w-full" data-v-095b8014><ul class="menu-links py-3 line-after" data-v-095b8014><li role="none" class="how-give links py-3 lg:py-2" data-v-095b8014><a href="/donate" aria-label="click to visit Make a One-Time Gift" data-track-how="Navigation | Header | Make a One-Time Gift" tabindex="-1" class="link" data-v-095b8014><span class="font-semibold md:text-sm fade-in text-dark_blue" data-v-095b8014>Make a One-Time Gift</span></a></li><li role="none" class="how-give links py-3 lg:py-2" data-v-095b8014><a href="/donate?recurring_donation=1" aria-label="click to visit Make a Monthly 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Give today. <svg xmlns="http://www.w3.org/2000/svg" width="19" height="10" viewBox="0 0 19 10" fill="none" role="img" aria-label="arrow"><path d="M0 5H18" stroke="#324458" stroke-width="2"></path><line x1="18.2929" y1="5.70711" x2="13.2929" y2="0.707107" stroke="#324458" stroke-width="2"></line><line y1="-1" x2="7.07107" y2="-1" transform="matrix(-0.707107 0.707107 0.707107 0.707107 19 5)" stroke="#324458" stroke-width="2"></line></svg></a></div></div></div> <div class="campaign-countdown-wrap" data-v-46a289b4><span class="campaign-countdown-title" data-v-46a289b4>Giving Tuesday starts in:</span> <!----></div></div></div></div></section> <div id="content" data-fetch-key="data-v-38351a38:0" data-v-38351a38 data-v-18eba48c><!----> <h1 class="font-header text-2xl mb-4 mt-8 lg:text-8xl text-center dark_blue" data-v-38351a38>Search Results</h1> <div class="search-input mx-6 mb-10" data-v-2d80ca2c data-v-38351a38><div role="search" class="relative flex" data-v-2d80ca2c><label for="searchIndex" class="sr-only" data-v-2d80ca2c>Search Mass General Giving</label> <div class="relative search-con w-full md:ml-auto mr-1 md:mr-2" data-v-2d80ca2c><!----> <input data-identity="search-input-mobile" id="searchIndex" type="search" name="search" maxlength="-1" placeholder="Search" aria-owns="results" aria-autocomplete="both" autocomplete="off" class="search md:hidden " data-v-2d80ca2c> <input data-identity="search-input-desktop" id="searchIndex" type="search" name="search" maxlength="-1" placeholder="Search Massachusetts General Hospital Giving" aria-owns="results" aria-autocomplete="both" autocomplete="off" class="search hidden md:block " data-v-2d80ca2c> <!----> <ul id="results" role="listbox" class="text-left absolute suggestions p-5 pb-1 z-10 w-full search" style="display:none;" data-v-2d80ca2c></ul></div> <button role="link" to="" href="" class="main-btn btn-slide slide-base slide-primary search md:mr-auto" type="submit" target="" aria-label="click to search for your entered query" data-v-31279f50 data-v-2d80ca2c>Search</button> <!----></div></div> <div class="divide hidden lg:block" data-v-14c96dec data-v-38351a38><div class="container md:mx-auto width-content" data-v-14c96dec><div class="divider-line gray_lightest height-small " data-v-14c96dec></div></div></div> <!----> <div id="stories" class="results-wrapper py-8 px-6" data-v-38351a38><p class="text-center font-header font-light text-md darkblue_primary dark_blue" data-v-38351a38>Searching...</p> <!----> <!----> <div class="grid grid-cols-1 md:grid-cols-3 gap-4 md:gap-8 container-xl mx-auto md:px-0" data-v-38351a38><div data-v-38351a38><span datestart="" dateend="" location="" timestart="" timeend="" ctatext="Learn More" ctatype="minimal" class="story-card card grid-cols-1" data-v-069e2887 data-v-38351a38><a href="/stories/doctor-recommends-intermittent-fasting" role="link" data-track-gtm="General Click | Story Card | " class="story-card card grid [object Object] dark_blue grid-cols-1" data-v-069e2887><!----> <div class="content col-span-2 md:col-span-3 p-4 md:p-5 md:pt-4 self-center" data-v-069e2887><p class="font-accent text-xs font-normal uppercase my-0 dark_blue" data-v-069e2887></p> <h2 class="font-header text-md md:text-4xl mt-2 dark_blue" data-v-069e2887>Doctor Recommends Intermittent Fasting</h2> <p class="text-sm hidden md:inline-block dark_blue" data-v-069e2887>Angela Fitch, MD, associate director of the Mass General Weight Center, discusses intermittent fasting and how it can help patients lose weight.</p></div> <!----></a></span></div><div data-v-38351a38><span datestart="" dateend="" location="" timestart="" timeend="" ctatext="Learn More" ctatype="minimal" class="story-card card grid-cols-1" data-v-069e2887 data-v-38351a38><a href="/stories/exploring-psychedelic-medicine" role="link" data-track-gtm="General Click | Story Card | " class="story-card card grid [object Object] dark_blue grid-cols-1" data-v-069e2887><!----> <div class="content col-span-2 md:col-span-3 p-4 md:p-5 md:pt-4 self-center" data-v-069e2887><p class="font-accent text-xs font-normal uppercase my-0 dark_blue" data-v-069e2887></p> <h2 class="font-header text-md md:text-4xl mt-2 dark_blue" data-v-069e2887>Exploring the Power of Psychedelics</h2> <p class="text-sm hidden md:inline-block dark_blue" data-v-069e2887>Mass General Psychiatrist-in-Chief Emeritus Jerrold F. Rosenbaum, MD, explains the promising science behind psychedelic medicine.</p></div> <!----></a></span></div><div data-v-38351a38><span datestart="" dateend="" location="" timestart="" timeend="" ctatext="Learn More" ctatype="minimal" class="story-card card grid-cols-1" data-v-069e2887 data-v-38351a38><a href="/stories/former-pediatric-patient-gives-back-to-child-life-program" role="link" data-track-gtm="General Click | Story Card | " class="story-card card grid [object Object] dark_blue grid-cols-1" data-v-069e2887><!----> <div class="content col-span-2 md:col-span-3 p-4 md:p-5 md:pt-4 self-center" data-v-069e2887><p class="font-accent text-xs font-normal uppercase my-0 dark_blue" data-v-069e2887></p> <h2 class="font-header text-md md:text-4xl mt-2 dark_blue" data-v-069e2887>Former Pediatric Patient Gives Back to Child Life Program</h2> <p class="text-sm hidden md:inline-block dark_blue" data-v-069e2887>Lena Papadakis says that her passion for supporting child life comes from her own 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supporters"}},cards:{title:"Your support will fuel previously unimaginable possibilities in research and patient care. ",subtitle:"At Mass General, the most visionary minds in medicine work together to bring bold breakthroughs from the lab to our patients' bedsides — providing compassionate care and producing revolutionary results. ",featured:{card_type:"Video",story_card:{ID:1072270,post_author:ac,post_date:"2024-03-27 13:03:00",post_date_gmt:"2024-03-27 17:03:00",post_content:"As a young boy, Viet Tran thought the world of his older cousin, Scott Nguyen. Every Sunday, Scott and Quyen, his childhood sweetheart, who later became his wife, came to Viet’s house in Medford, Mass., and took Viet and his sister Chau out for breakfast sandwiches. Scott taught Viet how to ride a bike. He checked in on him at every family gathering. He became a role model for Viet, setting an example as a hardworking home builder, husband and father of three.\r\n\r\nSo, when Scott was diagnosed with Stage 4 gastrointestinal cancer in July 2022, and died of the illness at the age of 49 in March 2023, the loss rocked Viet and his family. But on April 15, they’re taking their next steps forward together — at the 128th Boston Marathon®.\r\n\r\nIn memory of Scott and to honor the care he received at Mass General Cancer Center’s \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\u002Ftreatments-and-services\u002Fgastrointestinal-cancers\" target=\"_blank\" rel=\"noopener\"\u003ETucker Gosnell Center for Gastrointestinal Cancers,\u003C\u002Fa\u003E Viet, Chau and Quyen are all running to raise funds for \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fchildren\u002Fcancer\" target=\"_blank\" rel=\"noopener\"\u003EMass General for Children\u003C\u002Fa\u003E’s pediatric cancer research. The family hopes their efforts make it possible for children with cancer to have access to the same leading-edge treatments that Scott received.\r\n\r\n“It’s a really positive thing for all of us to run this race together, in the hardest year we’ve ever experienced as a family,” says Viet, who, at 27 years old, recently earned a master’s degree in mathematical finance from Boston University. He now works at Fidelity Investments in the firm’s Boston office. “This shows that we can push through grief and be positive and live life to the fullest. What I want is to make sure Scott’s memory lives on through us and his kids.”\r\n\u003Ch2\u003EFrom Refugee to Role Model\u003C\u002Fh2\u003E\r\nScott came from Vietnam to the U.S. in the early 1980s as a refugee. After settling in Philadelphia with his family, Scott came to Boston during high school to work for Viet’s dad at his residential construction company. Viet was born when Scott was in college at Northeastern University, and he has fond memories of Scott and Quyen living at his house before they moved into their own place.\r\n\r\n“He was a really great man,” Viet says. “He married the love of his life, they raised three beautiful children, and he went out and built his own hardwood flooring business over the course of 25 years. But Scott’s biggest motivation was to take care of all of us. It was inspiring for me, growing up and seeing someone prioritize the right things, like caring for his family and making an impact on the community.”\r\n\r\nWhen Scott was diagnosed, Viet says that his care team at \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\" target=\"_blank\" rel=\"noopener\"\u003EMass General Cancer Center\u003C\u002Fa\u003E did everything they could do to treat his cancer. But, given the advanced nature and progression of Scott’s illness, their care eventually transitioned to focus on Scott’s quality of life for his terminal illness, and on comforting the family.\r\n\r\n“What stands out for me is the support the Mass General Cancer Center team gave to me and family, giving us that time to just be with Scott,” Viet says. “I’ll forever be grateful that we could spend his final few minutes with him. I’m sure they’ve been through that experience with other patients, but I’ll never forget their support.”\r\n\r\n[caption id=\"attachment_1072354\" align=\"alignleft\" width=\"350\"]\u003Cimg class=\"size-full wp-image-1072354\" src=\"https:\u002F\u002Fcdn4.giving.massgeneral.org\u002Fassets\u002FViet-group.jpg\" alt=\"L-R: Quyen (Scott's wife), Chau (Viet's sister), Jeff (Scott's brother), Scott and Viet, at his childhood home in Medford, Mass.\" width=\"350\" height=\"336\" \u002F\u003E Back L-R: Quyen (Scott's wife), Jeff (Scott's brother) and Scott; Front L-R: Chau (Viet's sister) and Viet, at their childhood home in Medford, Mass.[\u002Fcaption]\r\n\u003Ch2\u003EHonoring a Legacy\u003C\u002Fh2\u003E\r\nViet was captain of the track and field team in high school, running the 1600- and 3200-meter races, so completing his hometown marathon had been a dream for a while. When Viet ran the New York Marathon in November 2023, Quyen, who works for Mass General Brigham, sent him information about the hospital’s \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fevents\u002Fmass-general-marathon-team\u002F\"\u003EBoston Marathon team.\u003C\u002Fa\u003E He signed up right away.\r\n\r\n“The care that Scott received at Mass General Cancer Center was second to none, so I knew we’d be supporting a wonderful cause,” Viet says. “This is the best hospital for people looking to get any kind of treatment, and I hope the money we raise helps outcomes for kids with pediatric cancer.”\r\n\r\nThe marathon will be a little more than a year after Scott’s death. Viet remembers one of Scott’s dying wishes was for the Tran-Nguyen family to stick together and look out for each other, so running alongside Chau and Quyen from Hopkinton to Boylston Street seems like a natural way to fulfill that wish.\r\n\r\n“I’m looking forward to that sense of euphoria that comes with running and seeing the crowds,” Viet says. “We’re doing something that’s very difficult, but having family, friends and the people in my life supporting me, my sister and Quyen is going to be an amazing experience.”\r\n\r\n\u003Cem\u003EIf you would like to support Viet, please visit his \u003Ca href=\"https:\u002F\u002Fwww.givengain.com\u002Fproject\u002Fviet-raising-funds-for-massachusetts-general-hospital-66710\" target=\"_blank\" rel=\"noopener\"\u003Efundraising page.\u003C\u002Fa\u003E\u003C\u002Fem\u003E\r\n\r\n\u003Cem\u003ETo learn more about Mass General’s marathon team, \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fevents\u002Fmass-general-marathon-team\u002F\"\u003Eclick here.\u003C\u002Fa\u003E\u003C\u002Fem\u003E",post_title:"Running in the Family",post_excerpt:"In memory of his cousin Scott, Viet Tran is running the Boston Marathon® with his sister and Scott’s wife to raise funds for pediatric cancer research at Mass General for Children.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"running-in-the-family",to_ping:a,pinged:a,post_modified:"2024-03-27 13:03:07",post_modified_gmt:"2024-03-27 17:03:07",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1072270",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,hide_from_search:c,enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:c,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:bX,name:cv,slug:cw,term_group:b,term_taxonomy_id:bX,taxonomy:r,description:ex,parent:b,count:ey,filter:d},{term_id:dl,name:nu,slug:nv,term_group:b,term_taxonomy_id:dl,taxonomy:r,description:nw,parent:b,count:ga,filter:d}],how_to_give:c,template:O,cta_selector:[{ID:1071178,post_author:ac,post_date:"2024-02-06 14:05:39",post_date_gmt:"2024-02-06 19:05:39",post_content:a,post_title:nx,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"how-to-give-cta-copy-copy",to_ping:a,pinged:a,post_modified:"2024-02-06 14:19:19",post_modified_gmt:"2024-02-06 19:19:19",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?post_type=cta&#038;p=1071178",menu_order:b,post_type:kR,post_mime_type:a,comment_count:f,filter:d}],hero_style:ai,key_takeaways:c,story_sidebar_logo:c,cta_sidebar:c,page_selector:a},image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fviet-banner.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Frunning-in-the-family\u002F",category:[{term_id:bv,name:dF,slug:dG,term_group:b,term_taxonomy_id:bv,taxonomy:dH,description:a,parent:b,count:cX,filter:d,acf:c}],where_to_give:[{term_id:bX,name:cv,slug:cw,term_group:b,term_taxonomy_id:bX,taxonomy:r,description:ex,parent:b,count:ey,filter:d,acf:{related_tag_page:{ID:hv,post_author:au,post_date:hw,post_date_gmt:hx,post_content:a,post_title:cv,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:cw,to_ping:a,pinged:a,post_modified:hy,post_modified_gmt:hz,post_content_filtered:a,post_parent:aG,guid:hA,menu_order:hB,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_page:c,related_contact_page:c,related_tag_link_type:n,related_donate_link_type:do0,related_contact_link_type:n,related_donate_link:{title:hC,url:hD,target:a}}},{term_id:dl,name:nu,slug:nv,term_group:b,term_taxonomy_id:dl,taxonomy:r,description:nw,parent:b,count:ga,filter:d,acf:{related_tag_link_type:n,related_tag_page:{ID:1058282,post_author:au,post_date:"2021-06-16 13:33:00",post_date_gmt:"2021-06-16 17:33:00",post_content:"\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003EMass General excels in connecting clinical care with research, which makes it the ideal place to bring new discoveries and treatments from the lab bench to the bedside. We seek to \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003Eintroduce \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003EJunior Investigator Awards to fund promising \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003Eresearchers\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003E, establish a Research Innovation and Discovery Endowment Fund to focus on transformative pediatric research and create a Pediatric Biobank Endowment to \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003Egenerate\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW36952027 BCX0\"\u003E future opportunities for research and discovery. \u003C\u002Fspan\u003E\r\n\u003Cul\u003E\r\n \t\u003Cli data-leveltext=\"\" data-font=\"Symbol\" data-listid=\"7\" aria-setsize=\"-1\" data-aria-posinset=\"2\" data-aria-level=\"1\"\u003E\u003Cspan data-contrast=\"auto\"\u003EOur child life specialists, social workers and other staff are key to MGHfC's team-based care model. They work tirelessly to support parents who are coming to terms with a child's diagnosis, young children preparing for a procedure and adolescents navigating transitions from childhood to adulthood. However, their services aren't always covered by insurance. Establishing an endowed fund would give MGHfC a reliable funding for these essential services.\u003C\u002Fspan\u003E\u003Cspan data-ccp-props=\"{&quot;134233279&quot;:true}\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fli\u003E\r\n\u003C\u002Ful\u003E\r\n\u003Cspan data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",post_title:"Mass General for Children",post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"massgeneral-for-children",to_ping:a,pinged:a,post_modified:"2023-12-14 16:42:39",post_modified_gmt:"2023-12-14 21:42:39",post_content_filtered:a,post_parent:aG,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002F?page_id=1058282",menu_order:144,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_link_type:do0,related_donate_link:{title:"Support Mass General for 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Brown, MD",name:"bearwalk-cinema-4",status:u,uploaded_to:dn,date:"2021-10-20 16:59:52",modified:"2022-01-29 01:14:09",menu_order:b,mime_type:t,type:w,subtype:M,icon:x,width:h,height:cO,sizes:{thumbnail:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-220x220.jpg","thumbnail-width":h,"thumbnail-height":h,medium:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-227x300.jpg","medium-width":227,"medium-height":p,medium_large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-768x1016.jpg","medium_large-width":k,"medium_large-height":cN,large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-774x1024.jpg","large-width":k,"large-height":cN,"1536x1536":"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-1161x1536.jpg","1536x1536-width":1161,"1536x1536-height":cr,"2048x2048":"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-1547x2048.jpg","2048x2048-width":1547,"2048x2048-height":eL,"mgh-mobile":bi,"mgh-mobile-width":h,"mgh-mobile-height":cO,"mgh-tablet":bi,"mgh-tablet-width":h,"mgh-tablet-height":cO,"mgh-desktop-1":bi,"mgh-desktop-1-width":h,"mgh-desktop-1-height":cO,"mgh-desktop-2":bi,"mgh-desktop-2-width":h,"mgh-desktop-2-height":cO,"mgh-max-size":bi,"mgh-max-size-width":h,"mgh-max-size-height":cO,"mgh-card-mobile":bi,"mgh-card-mobile-width":oa,"mgh-card-mobile-height":o,"mgh-card-tablet":bi,"mgh-card-tablet-width":gh,"mgh-card-tablet-height":i,"mgh-card-desktop":bi,"mgh-card-desktop-width":gh,"mgh-card-desktop-height":i,"mgh-card-highlight-mobile":bi,"mgh-card-highlight-mobile-width":oa,"mgh-card-highlight-mobile-height":o,"mgh-card-highlight-tablet":bi,"mgh-card-highlight-tablet-width":h,"mgh-card-highlight-tablet-height":cO,"mgh-card-highlight-desktop":bi,"mgh-card-highlight-desktop-width":h,"mgh-card-highlight-desktop-height":cO,"mgh-event-card-mobile":bi,"mgh-event-card-mobile-width":mv,"mgh-event-card-mobile-height":am,"mgh-event-card-tablet":bi,"mgh-event-card-tablet-width":gh,"mgh-event-card-tablet-height":i,"mgh-event-card-desktop":bi,"mgh-event-card-desktop-width":gh,"mgh-event-card-desktop-height":i,"mgh-social":bi,"mgh-social-width":h,"mgh-social-height":cO,"post-thumbnail":"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDrBrownHeadshot3-1568x2075.jpg","post-thumbnail-width":cs,"post-thumbnail-height":2075}},image_alt:"David Brown in front of Emergency Department",name:"David F. M. Brown, MD",title:"President, Massachusetts General Hospital",text_placement:eM,desktopwidth:n_},{acf_fc_layout:gP,twcss:hI,photo:{ID:ob,id:ob,title:"Campaign-Prospectus-mockup",filename:"Campaign-Prospectus-mockup.jpg",filesize:67464,url:aN,link:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Falways-ready\u002Fcampaign-prospectus-mockup\u002F",alt:a,author:ac,description:a,caption:a,name:"campaign-prospectus-mockup",status:u,uploaded_to:dn,date:oc,modified:oc,menu_order:b,mime_type:t,type:w,subtype:M,icon:x,width:R,height:dt,sizes:{thumbnail:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FCampaign-Prospectus-mockup-220x220.jpg","thumbnail-width":h,"thumbnail-height":h,medium:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FCampaign-Prospectus-mockup-300x228.jpg","medium-width":p,"medium-height":228,medium_large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FCampaign-Prospectus-mockup-768x582.jpg","medium_large-width":k,"medium_large-height":568,large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FCampaign-Prospectus-mockup-1024x777.jpg","large-width":k,"large-height":569,"1536x1536":aN,"1536x1536-width":R,"1536x1536-height":dt,"2048x2048":aN,"2048x2048-width":R,"2048x2048-height":dt,"mgh-mobile":aN,"mgh-mobile-width":760,"mgh-mobile-height":gi,"mgh-tablet":aN,"mgh-tablet-width":1013,"mgh-tablet-height":B,"mgh-desktop-1":aN,"mgh-desktop-1-width":R,"mgh-desktop-1-height":dt,"mgh-desktop-2":aN,"mgh-desktop-2-width":R,"mgh-desktop-2-height":dt,"mgh-max-size":aN,"mgh-max-size-width":R,"mgh-max-size-height":dt,"mgh-card-mobile":aN,"mgh-card-mobile-width":od,"mgh-card-mobile-height":o,"mgh-card-tablet":aN,"mgh-card-tablet-width":D,"mgh-card-tablet-height":169,"mgh-card-desktop":aN,"mgh-card-desktop-width":hL,"mgh-card-desktop-height":i,"mgh-card-highlight-mobile":aN,"mgh-card-highlight-mobile-width":od,"mgh-card-highlight-mobile-height":o,"mgh-card-highlight-tablet":aN,"mgh-card-highlight-tablet-width":I,"mgh-card-highlight-tablet-height":z,"mgh-card-highlight-desktop":aN,"mgh-card-highlight-desktop-width":I,"mgh-card-highlight-desktop-height":z,"mgh-event-card-mobile":aN,"mgh-event-card-mobile-width":145,"mgh-event-card-mobile-height":am,"mgh-event-card-tablet":aN,"mgh-event-card-tablet-width":hL,"mgh-event-card-tablet-height":i,"mgh-event-card-desktop":aN,"mgh-event-card-desktop-width":hL,"mgh-event-card-desktop-height":i,"mgh-social":aN,"mgh-social-width":R,"mgh-social-height":dt,"post-thumbnail":aN,"post-thumbnail-width":R,"post-thumbnail-height":dt}},photoalt:"Prospectus",image_stretch:s,label:a,title:"A pivotal moment in medicine.",bodytext:"\u003Cp\u003EView the full prospectus for The Campaign for Mass General\u003C\u002Fp\u003E\n",link:{title:"View",url:"https:\u002F\u002Fgiving.massgeneral.org\u002Fthe-campaign-for-mass-general-prospectus",target:a},linkdisplay:ep,desktopwidth:gT},{acf_fc_layout:"Cta",twcss:hJ,cta_post:c,image:c,image_alt:a,title:"Join us.",description:"What does it take to reach the point, where we can transform the future of health care? It takes all of us — and that includes you. Just imagine what we can do together.",primary_link:{title:"Give now",url:fC,target:a},primary_link_type:k$,secondary_link:a,transparent_bkg:c}],wherehow_to_give_detail_template:{byline:nO,cta:a,logo:c,logo_alt:a,related_menu:c,in_page_menu:c,personalize_closing_cta:c,closing_cta:{headline:a,description:a,button:P,background_image:c,alt:a,color_scheme:"Blue"},related_tag:a},our_impact_detail_template:{byline:"The Campaign For Mass General"},expire_url_redirect:a,enable_override:c,hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,hide_from_search:c},image:aV,link:"https:\u002F\u002Fgiving.massgeneral.org\u002Falways-ready\u002F",page_role:[{term_id:oe,name:"Where to Give Page",slug:"where-to-give-page",term_group:b,term_taxonomy_id:oe,taxonomy:hM,description:a,parent:b,count:gj,filter:d,acf:c}],pp_notify_user:[{term_id:fK,name:"EB171",slug:"eb171",term_group:b,term_taxonomy_id:fK,taxonomy:bY,description:a,parent:b,count:168,filter:d,acf:c},{term_id:of,name:og,slug:og,term_group:b,term_taxonomy_id:of,taxonomy:bY,description:a,parent:b,count:85,filter:d,acf:c},{term_id:oh,name:"SRN10",slug:oi,term_group:b,term_taxonomy_id:oh,taxonomy:bY,description:a,parent:b,count:184,filter:d,acf:c},{term_id:oj,name:"TMI0",slug:"tmi0",term_group:b,term_taxonomy_id:oj,taxonomy:bY,description:a,parent:b,count:362,filter:d,acf:c}],author:[{term_id:ew,name:hN,slug:hO,term_group:b,term_taxonomy_id:ew,taxonomy:cL,description:ok,parent:b,count:ol,filter:d,acf:c}]},stories:{story_1:{ID:1071829,post_author:ac,post_date:"2024-03-25 13:48:32",post_date_gmt:"2024-03-25 17:48:32",post_content:"When Linda Sherman was diagnosed with stage three pancreatic cancer in 2021, she had no idea what her future looked like. But now she is on the other side of a successful treatment regimen, feeling well and helping to ensure that the treatment she received is available to others for years to come.\r\n\u003Ch2\u003EReceiving Remarkable Care\u003C\u002Fh2\u003E\r\nWhen Linda was diagnosed in July of 2021, she placed all of her trust in her team at \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center?cmp=capbm&amp;utm_medium=cpc&amp;utm_source=google&amp;utm_campaign=MGH%20-%20Cancer%20-%20Brand&amp;utm_content=Mass%20General%20Cancer%20Center&amp;utm_term=mass%20general%20cancer&amp;gclid=CjwKCAiAxaCvBhBaEiwAvsLmWIwCdFcfOApqfgz8t1gceHjiYx-URRUvm6wsmn1CYxdqvNDHxMmobxoCjgkQAvD_BwE\" target=\"_blank\" rel=\"noopener\"\u003EMass General Cancer Center\u003C\u002Fa\u003E. After a series of abnormal blood tests and scans, she was called in to the hospital for a meeting with her future oncology team. “The first person who walked into the room was Dr. David Ryan, and he calmly said, ‘You have stage three pancreatic cancer, and we have a clinical trial we’d like to enroll you in,’” Linda recalls. “I’m not sure I heard much after that.”\r\n\r\nBeing from the greater Boston area, Linda knew she would receive high-quality, compassionate care at Mass General. She went home and asked friends and family about the reputations of her cancer care team: \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F17127\u002Fdavid-ryan\" target=\"_blank\" rel=\"noopener\"\u003EDavid Ryan, MD,\u003C\u002Fa\u003E Chief of Hematology and Oncology and Clinical Director of Mass General Cancer Center, \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F17595\u002Fted-hong\" target=\"_blank\" rel=\"noopener\"\u003ETed Hong, MD\u003C\u002Fa\u003E, Director of Gastrointestinal Radiation and \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16840\u002Fcarlos-fernandez-del-castillo\" target=\"_blank\" rel=\"noopener\"\u003ECarlos Fernandez-del Castillo, MD,\u003C\u002Fa\u003E Director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fsurgery\u002Fgastrointestinal-and-oncologic-surgery\u002Ftreatments-and-services\u002Fpancreas-and-biliary-surgery\" target=\"_blank\" rel=\"noopener\"\u003EPancreas and Biliary Surgery Program\u003C\u002Fa\u003E. Hearing nothing but praise, she agreed to proceed with the suggested course of action. She was immediately enrolled in a novel clinical trial for patients with localized pancreatic cancer, meant to combat as much of the cancer as possible before a patient receives surgery to remove any remaining tumor in the pancreas.\r\n\u003Ch2\u003EBeating the Odds\u003C\u002Fh2\u003E\r\nIn October of 2022, Linda completed the last step of her treatment and has been living her life free of cancer since that day. She now only returns to the hospital for check-ins every three months. Linda credits the work of Drs. Ryan, Hong, and Fernandez-del Castillo with her incredible recovery.\r\n\r\nAfter being successfully treated, Linda and her husband wanted to find a way to thank her care team, and to help provide other patients with the positive treatment experience she’d had. Now cancer-free, she is funding the very same clinical trial that treated her cancer, allowing her doctors to continue the analysis of the results of the trial for an additional three years.\r\n\u003Ch2\u003ESupport from All Areas\u003C\u002Fh2\u003E\r\nLinda’s treatment at Mass General involved providers from across the hospital — oncologists, surgeons, radiologists, nurses, physical therapists, dietitians and acupuncturists. “It was so wonderful to have all of these amazing services right there where I was receiving treatment. All of the folks that helped care for me were unfailingly kind and thoughtful,” she says.\r\n\r\n“It’s difficult to express this adequately, but I am so incredibly grateful for the high-quality and consistently excellent care I received at Mass General,” she adds. “Every single person I interacted with, even those just stepping in for a moment to help, were thoughtful, attentive, professional and exceptionally good at what they do. They always made me feel taken care of in ways that I know helped me to focus on getting through the difficult times.” Linda is especially grateful to her infusion nurse, Kristin Copenheaver-Smith, RN, who was an integral member of her care team from chemotherapy all the way to immunotherapy infusions, and Melissa Woolwine, NP, of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\u002Ftreatments-and-services\u002Fgastrointestinal-cancers\u002Fteam\" target=\"_blank\" rel=\"noopener\"\u003EGastrointestinal Cancers Treatment Team\u003C\u002Fa\u003E, who met with Linda throughout treatment to provide information and support.\r\n\u003Ch2\u003EA Chance to Say Thank You\u003C\u002Fh2\u003E\r\nBefore being diagnosed with cancer, Linda began her journey as a Mass General donor giving annually to the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fwhere-to-give\u002Fthe-mgh-fund\u002F\"\u003EMGH Fund,\u003C\u002Fa\u003E and as a member of the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fwhere-to-give\u002Fthe-mgh-fund\u002Fthe-1811-society\u002F\"\u003E1811 Society.\u003C\u002Fa\u003E After receiving compassionate, personalized care from her team of nurses while in treatment, Linda made a gift to \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\u002Feveryday-amazing\u002Fcaring-for-a-cure\" target=\"_blank\" rel=\"noopener\"\u003ECaring For A Cure,\u003C\u002Fa\u003E a nurse-led program at Mass General that aims to improve the journey of patients and families being treated for cancer through research, resources and awareness. Following her successful cancer treatment, Linda and her husband wanted to find a way to thank her oncology team.\r\n\r\nThey approached the team about the possibility of making a philanthropic gift, and were informed that the clinical trial Linda had been a part of was in need of additional funding. They decided to make a gift, and thanks to the Shermans, the trial and related research are now fully funded for another three years.\r\n\r\n“It would have been such a shame for the trial to end due to lack of funding — the research we’re doing in this area is extremely promising,” says Dr. Hong.\r\n\r\n“We’re just nothing but grateful,” says Linda, her voice full of emotion. “And I hope my story of a positive outcome with the support of Mass General will give hope to others facing a terrible diagnosis.”\r\n\r\n\u003Cem\u003ETo learn more about how you can support pancreatic cancer research at Mass General, please \u003Ca href=\"http:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Jordyn+Rappaport&amp;about=Pancreatic Cancer Research\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"Pancreatic Cancer Survivor Funds Clinical Trial For Future Patients",post_excerpt:"Linda Sherman was successfully treated for stage three pancreatic cancer at Mass General Cancer Center. Now, she is funding the very same clinical trial that treated her cancer and gave her hope for the future.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"pancreatic-cancer-survivor-funds-clinical-trial-for-future-patients",to_ping:a,pinged:a,post_modified:"2024-03-25 13:48:39",post_modified_gmt:"2024-03-25 17:48:39",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1071829",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hide_from_search:c,hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,enable_override:c,template:O,expire_url_redirect:a,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,cta_sidebar:c,page_selector:a,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:bX,name:cv,slug:cw,term_group:b,term_taxonomy_id:bX,taxonomy:r,description:ex,parent:b,count:ey,filter:d},{term_id:gk,name:om,slug:on,term_group:b,term_taxonomy_id:gk,taxonomy:r,description:oo,parent:b,count:gj,filter:d}],how_to_give:c,GlobalComponentsEditor:c},image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FSherman.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fpancreatic-cancer-survivor-funds-clinical-trial-for-future-patients\u002F",category:[{term_id:bv,name:dF,slug:dG,term_group:b,term_taxonomy_id:bv,taxonomy:dH,description:a,parent:b,count:cX,filter:d,acf:c}],where_to_give:[{term_id:bX,name:cv,slug:cw,term_group:b,term_taxonomy_id:bX,taxonomy:r,description:ex,parent:b,count:ey,filter:d,acf:{related_tag_page:{ID:hv,post_author:au,post_date:hw,post_date_gmt:hx,post_content:a,post_title:cv,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:cw,to_ping:a,pinged:a,post_modified:hy,post_modified_gmt:hz,post_content_filtered:a,post_parent:aG,guid:hA,menu_order:hB,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_page:c,related_contact_page:c,related_tag_link_type:n,related_donate_link_type:do0,related_contact_link_type:n,related_donate_link:{title:hC,url:hD,target:a}}},{term_id:gk,name:om,slug:on,term_group:b,term_taxonomy_id:gk,taxonomy:r,description:oo,parent:b,count:gj,filter:d,acf:{related_tag_link_type:n,related_tag_page:{ID:kW,post_author:"584",post_date:"2021-06-14 16:48:34",post_date_gmt:"2021-06-14 20:48:34",post_content:a,post_title:lP,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"the-mgh-fund",to_ping:a,pinged:a,post_modified:"2024-09-09 18:14:22",post_modified_gmt:"2024-09-09 22:14:22",post_content_filtered:a,post_parent:aG,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002F?page_id=1058242",menu_order:133,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_link_type:do0,related_donate_page:c,related_contact_link_type:n,related_contact_page:c,related_donate_link:{title:gJ,url:k_,target:a}}}],story_type:[{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d,acf:c}],pp_notify_user:[{term_id:bw,name:dI,slug:dp,term_group:b,term_taxonomy_id:bw,taxonomy:bY,description:a,parent:b,count:dJ,filter:d,acf:c}],author:[{term_id:op,name:oq,slug:"marie-walton",term_group:b,term_taxonomy_id:op,taxonomy:cL,description:a,parent:b,count:W,filter:d,acf:c}]},story_2:{ID:1072238,post_author:or,post_date:"2024-03-25 13:49:31",post_date_gmt:"2024-03-25 17:49:31",post_content:"Now in its fourth year, \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002F\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital’s\u003C\u002Fa\u003E \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Feducation-and-training\u002Fyouth-research-and-education\" target=\"_blank\" rel=\"noopener\"\u003EYouth Neurology Education and Research Program\u003C\u002Fa\u003E, funded by the Biogen Foundation, Massachusetts Life Sciences Center, and the Muscular Dystrophy Association, is a paid summer internship program that offers students from diverse backgrounds the opportunity to learn about the field of neurology, build a strong professional network, gain valuable work experience, and identify career paths in health care that they are interested in pursuing.\r\n\r\n“This program is so vital because it allows us to attract young people from all walks of life and support them as they become future leaders in the field of neurology. This is one way we can help accelerate scientific discoveries and ensure that clinicians are just as diverse as the communities we serve,” says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F18517\u002Fnicte-mejia-gonzalez\" target=\"_blank\" rel=\"noopener\"\u003ENicte Mejia, MD, MPH, FAAN\u003C\u002Fa\u003E, Director of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fabout\u002Fdiversity\" target=\"_blank\" rel=\"noopener\"\u003EMass General Neurology Community Health, Diversity and Inclusion\u003C\u002Fa\u003E who created the Youth Neurology Education and Research Program in 2020.\r\n\u003Ch2\u003EBuilding a Strong Foundation\u003C\u002Fh2\u003E\r\nAya ElHassan first participated in the Youth Neurology Education and Research Program in 2021, when she worked in Mass General’s \u003Ca href=\"https:\u002F\u002Fneurovalue.mgh.harvard.edu\u002F\" target=\"_blank\" rel=\"noopener\"\u003ENeuroValue Lab\u003C\u002Fa\u003E as a summer intern studying gender disparities in epilepsy patient care under the mentorship of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F19690\u002Flidia-maria-moura\" target=\"_blank\" rel=\"noopener\"\u003ELidia Moura, MD, MPH, PhD\u003C\u002Fa\u003E and Maria Andrea Donahue, MD. Aya excelled and was invited back to participate in the program as an intern in Dr. Moura’s lab in 2022, following her graduation from Wellesley College. Soon after, she was hired to become a full-time member of the NeuroValue Lab.\r\n\u003Cblockquote\u003E“Even as an intern, I felt comfortable volunteering to work on projects I was interested in, and my mentors were always more than open to letting me try new things.”\u003C\u002Fblockquote\u003E\r\nIn 2023, Aya was peer mentor to Youth Neurology Program interns Sarisha Ray, sophomore at the University of Massachusetts Amherst, and Jenessa Otabor, freshman at Howard University, who were also working in the NeuroValue Lab under the mentorship of Dr. Moura. “They were both such hard workers,” Aya says. “I learned so much acting as their peer mentor and I felt so proud to see everything they accomplished by the end of the summer.”\r\n\r\nToday, Aya is continuing her work in Dr. Moura’s lab as a full-time Clinical Research Coordinator. For Aya, the Youth Neurology Program summer internship led her to pursue a career at the intersection of neurology and public health, helping her secure full-time employment at Mass General — she loves her job and has already been promoted to Clinical Research Coordinator II at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fresearch\u002Fvalue-team\" target=\"_blank\" rel=\"noopener\"\u003ECenter for Value Based Health Care and Sciences.\u003C\u002Fa\u003E\r\n\r\n“Even as an intern, I felt comfortable volunteering to work on projects I was interested in, and my mentors were always more than open to letting me try new things,” Aya says. “Participating in this program as both a student and a peer mentor, gaining exposure to so many different areas of research and clinical care, has helped me determine that I want to pursue a career in health care quality improvement.”\r\n\r\n[caption id=\"attachment_1072337\" align=\"alignleft\" width=\"350\"]\u003Cimg class=\"wp-image-1072337 size-full\" src=\"https:\u002F\u002Fcdn4.giving.massgeneral.org\u002Fassets\u002Fneuroscholars.jpg\" alt=\"\" width=\"350\" height=\"335\" \u002F\u003E L-R: Aya ElHassan, Jenessa Otabor and Sarisha Ray[\u002Fcaption]\r\n\u003Ch2\u003EDiscerning Career Paths\u003C\u002Fh2\u003E\r\nFor Youth Neurology Program interns Jenessa and Sarisha, participating in the program with Dr. Moura as their mentor and Aya as their peer mentor meant gaining exposure to a wide variety of career paths, ranging from qualitative research to neurology clinical care to even neurosurgery.\r\n\r\nThe program helped Jenessa discover that she wanted to pursue more complex research and contribute to ameliorating health disparities, leading her to change her college major to chemical engineering. Jenessa recalls the impact of being able to attend lectures at Mass General and Harvard Medical School and to learn of the many different paths she could take to pursue a career in researching health disparities. “I’m interested in understanding the mechanics behind why certain diseases disproportionately affect minority groups, in understanding what’s happening in the body,” she says.\r\n\r\nJenessa explains the impact of listening to researchers of diverse backgrounds discussing their work, and especially other Black female scientists. “I really believe that if you’re the smartest person in the room, you’re in the wrong room,” Jenessa says. “So, while I wasn’t able to understand everything speakers discussed, it was amazing exposure to all of the possibilities in front of me.”\r\n\u003Ch2\u003EA Vision for the Future\u003C\u002Fh2\u003E\r\nThrough her internship, Sarisha found herself drawn to the role of practicing clinician, something she hadn’t previously thought she wanted to do.\r\n\u003Cblockquote\u003E\"Watching Dr. Moura, a fellow woman of color, interact with patients of different backgrounds, dealing with different diagnoses, and treating them all with so much respect and compassion was beyond inspiring, and confirmed for me that this is what I want to do.”\u003C\u002Fblockquote\u003E\r\nSarisha says shadowing Dr. Moura at her clinic was the moment she knew she wanted to pursue a career as a clinician. “I didn’t expect to have an ‘aha moment,” Sarisha explains, “but watching Dr. Moura, a fellow woman of color, interact with patients of different backgrounds, dealing with different diagnoses, and treating them all with so much respect and compassion was beyond inspiring, and confirmed for me that this is what I want to do.”\r\n\r\nSarisha recalls a particularly impactful moment when Dr. Moura had to deliver the news of an epilepsy diagnosis to a young patient, whose mother began to cry — not because of the news of her child’s diagnosis, she said, but because she was overwhelmed by Dr. Moura’s kindness.\r\n\r\nFor Aya, Jenessa and Sarisha, participating in Mass General’s Youth Neurology Education and Research Program made a deep impact on their paths forward — helping confirm their passions while strengthening their skills and building their networks for success.\r\n\r\n\u003Cem\u003ETo learn more about how you can support the Youth Neurology Education and Research Program, please \u003Ca href=\"http:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tara+Brady&amp;about=Youth Neurology Education and Research Program\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"Youth Neurology Program Inspires Students to Pursue Their Passions",post_excerpt:"Students in Mass General’s Youth Neurology Education and Research Program learn and work alongside esteemed clinicians, researchers and peer mentors, giving them the chance to explore future career options in neurology.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"youth-neurology-program-inspires-students-to-pursue-their-passions",to_ping:a,pinged:a,post_modified:"2024-03-29 12:32:33",post_modified_gmt:"2024-03-29 16:32:33",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1072238",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hide_from_search:c,hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,enable_override:c,template:O,expire_url_redirect:a,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,cta_sidebar:c,page_selector:[{ID:1064261,post_author:or,post_date:"2022-11-02 21:50:44",post_date_gmt:"2022-11-03 01:50:44",post_content:"Since it \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fopening-new-doors-to-neurology-careers\u002F\" target=\"_blank\" rel=\"noopener\"\u003Elaunched\u003C\u002Fa\u003E in 2020, the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Feducation-and-training\u002Fyouth-research-and-education\" target=\"_blank\" rel=\"noopener\"\u003EYouth Neurology Education and Research Program\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital\u003C\u002Fa\u003E focuses on increasing diversity in the neurology workforce, making the field more representative of people living with neurological disease. Conditions like stroke, Alzheimer’s disease, and Parkinson’s disease, to name a few, disproportionately burden women, Black, Latinx, Native American and low-income communities, yet people from these communities remain underrepresented within the field of neurology.\r\n\r\nThe Youth Neurology Education and Research Program aims to empower future clinicians and researchers from underrepresented communities to pursue careers in neurology and increase patient access to a more diverse neurology workforce. This program is made possible by a charitable partnership with the Biogen Foundation, primary funder for the past three years, whose support has led to additional funding in the program’s third year from Massachusetts Life Sciences Center.\r\n\r\n[caption id=\"attachment_1041688\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-full wp-image-1041688\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FNicte-Mejia-headshot_cropped_220_220.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Nicte Mejia, MD, MPH, FAAN[\u002Fcaption]\r\n\r\nThe program offers high school and undergraduate students the opportunity to spend a summer working and learning alongside neuroscientists at Mass General. These students have the chance to conduct impactful, real-world research, shadow clinical faculty in their areas of interest, hone their leadership skills, become part of a diverse professional network, and engage in longitudinal career support. Formal salaried employment reduces the financial barriers often precluding participation in a competitive internship. All interns have access to longitudinal professional development support, including help as they apply to college, graduate school, or jobs. Program staff often serve as a resource for students using LinkedIn, writing cover letters, polishing personal statements, and determining how to tactfully consider job or educational opportunities. There is also funding available to help cover career related expenses, such as standardized exams like the medical college admission test (MCAT). Beginning in 2022, all interns received food and travel stipends recognizing the added cost of in-person participation in this program.\r\n\u003Ch2\u003EEvolving to Eliminate Barriers\u003C\u002Fh2\u003E\r\nProgram director \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F18517\u002Fnicte-mejia-gonzalez\" target=\"_blank\" rel=\"noopener\"\u003ENicte Mejia, MD, MPH, FAAN,\u003C\u002Fa\u003E and coordinators work directly with students to proactively identify their goals, needs and concerns, and continually tailor program offerings based on what they learn.\r\n\r\nAs she prepared for 2022 as the program’s first in-person year, Sarah Micucci, former program coordinator who is now a medical student, noted that many internship applicants were expressing concerns about not having workplace-appropriate attire. With this feedback, Sarah reached out to second-hand clothing stores in the community, ultimately partnering with Thrifty Threads in Brookline, to gather clothes donations appropriate for the incoming group of summer interns.\r\n\r\n[caption id=\"attachment_1064270\" align=\"alignleft\" width=\"350\"]\u003Cimg class=\"size-full wp-image-1064270\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002Fclothes-donation.jpg\" alt=\"A room filled with clothes donations for program participants seeking workplace-appropriate attire.\" width=\"350\" height=\"174\" \u002F\u003E A room filled with clothes donations for program participants seeking workplace-appropriate attire.[\u002Fcaption]\r\n\r\n“This program helped remove the indirect cost of trying to learn — it allowed me to stop thinking about outside worries and just focus on going to work and making a positive impact,” says Adam Khanboubi, an undergraduate participant in the program. With a goal to become a neurospine specialist, Adam also hopes to one day launch a foundation of his own that works to address racial disparities in neurological research.\r\n\u003Ch2\u003EThe Importance of Representation\u003C\u002Fh2\u003E\r\nThe values and goals of the program also extend to the program staff themselves, largely comprised of future health professionals of backgrounds underrepresented in neurology, sharing similar identities with the program participants they work with. The 88 interns who participated in this program in 2020-2022 predominantly identify as female or non-binary (73%), Black, Latinx, or Indigenous (83%), immigrant (34%), and first-generation students (83%), representing communities disproportionately affected by neurologic disease and largely underrepresented in the neurology workforce. Program staff understand where they’re coming from and the obstacles they face and serve as a safe space for students to express themselves without fear of judgement.\r\n\r\nJanani Ganesh, high school program participant, explains, “I live in a community where everyone has a parent in medicine, but mine aren’t familiar with health care. So, to find community, and other people who understood my experience and what it was like to be the first person in their family to pursue medicine, was really impactful.” Janani hopes to become a neurosurgeon and work for the United Nations providing care to people in war-torn countries. As part of the program, she had the opportunity to observe \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F19026\u002Fbrian-nahed\" target=\"_blank\" rel=\"noopener\"\u003EBrian Nahed, MD, MSC,\u003C\u002Fa\u003E and his team perform a surgery and recalls, “I didn’t feel grossed out or squeamish, and I thought ‘this is something I could actually do.’”\r\n\r\nGiven the program’s immediate success, the team is exploring ways to expand the comprehensive offerings even further, to incorporate additional resources to help students navigate their pursuit of future school and job opportunities, offer mental health resources geared specifically to the needs of program participants, and continue to ensure that students receive adequate compensation.\r\n\r\n\u003Cem\u003ETo learn more about how to support the Mass General Youth Neurology Education and Research Program, please \u003Ca href=\"http:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tara+Brady&amp;about=Youth Neurology Education and Research Program\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"Neurology at Mass General: Breaking Down Barriers",post_excerpt:"Established in 2020, the Youth Neurology Education and Research Program at Massachusetts General Hospital is working to make the field of neurology more representative of the patients it serves. Through constant evaluation and refinement, the program is breaking down barriers and leveling the playing field for students from communities underrepresented in science and medicine.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"neurology-at-mass-general-breaking-down-barriers",to_ping:a,pinged:a,post_modified:"2022-11-04 13:35:08",post_modified_gmt:"2022-11-04 17:35:08",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1064261",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d},{ID:1045453,post_author:q,post_date:"2021-01-20 20:00:34",post_date_gmt:"2021-01-21 01:00:34",post_content:"When \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F18517\u002FNicte-Mejia\"\u003ENicte Mejia, MD, MPH, FAAN,\u003C\u002Fa\u003E began her neurology training in 2005, women in neurology were a rarity — including Latinas like her. Today, not a lot has changed. Only about 30 percent of neurology faculty at teaching hospitals across the United States are women, while \u003Cspan title=\"Inserted by Jenni Bohonak - 12\u002F15\u002F2020 2:37pm\" data-cid=\"2\" data-userid=\"69\" data-username=\"Jenni Bohonak\" data-time=\"1608061025713\"\u003Eabout \u003C\u002Fspan\u003E3 percent are Latino, about 2 percent are Black and less than 1 percent are Indigenous.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EThe internship aims to inspire, equip and empower students to pursue neurology careers.\u003C\u002Fblockquote\u003E\r\nAs director of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fabout\u002Fdiversity\"\u003EMass General Neurology Community Health, Diversity and Inclusion,\u003C\u002Fa\u003E Dr. Mejia aims to make the field of neurology more diverse and inclusive. In 2020, thanks to the support of the Biogen Foundation, she launched the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Feducation-and-training\u002Fyouth-research-and-education\"\u003EMass General Youth Neurology Education and Research Program\u003C\u002Fa\u003E to inspire, equip and empower students to pursue neurology careers.\r\n\r\nStroke, Alzheimer’s, Parkinson’s, epilepsy and other diseases of the brain and nervous system are major causes of disability and premature death worldwide. These life-altering conditions disproportionally affect women, Black, Latino, Native American and low-income communities, Dr. Mejia says. “It is also these populations that are underrepresented in the field of neurology,” she says.\r\n\r\n[caption id=\"attachment_1041688\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-1041688\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FNicte-Mejia-headshot_cropped_220_220-220x220.jpg\" alt=\"Nicte Meija, MD, MPH, FAAN\" width=\"220\" height=\"220\" \u002F\u003E Nicte Mejia, MD, MPH, FAAN[\u002Fcaption]\r\n\r\n“This project is really about equity,” Dr. Mejia says. “It means the world partnering with the Biogen Foundation to invest in the future of neurology by providing paid opportunities for educational and professional growth for youth from underrepresented backgrounds across Massachusetts,” she adds.\r\n\u003Ch2\u003EA New Internship for Neurology\u003C\u002Fh2\u003E\r\nBecause of the COVID-19 pandemic, the summer 2020 internship program shifted from a hands-on, in-person experience, to a virtual format.\r\n\r\nA vision to support as many students as possible, combined with the reduction of in-person expenses, made it possible to expand enrollment from 10 to 31 high school and college students across 11 neurology labs at Mass General and Biogen. Most participants lived in Chelsea, Revere and Boston and were connected to the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fresearch\u002Feducation\u002Fcommunity-outreach\u002Fhigh-school-and-undergraduate-programs#:~:text=The%20Mass%20General%20Youth%20Scholars%20Program%20is%20a,focuses%20on%20career%20exploration,%20research%20and%20college%20readiness.\"\u003EMass General Youth Scholars Program.\u003C\u002Fa\u003E\r\n\r\nThe neurology internship's three goals — to inspire, equip and empower — involve mentorship and training. Interns were paired with neurology mentors with expertise in a variety of research. Then, working remotely, students collected, analyzed and interpreted scientific data and participated in online conferences related to career advancement, innovation and leadership skills.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EAbout 350 students from 16 countries joined the 31 student interns for an online weekly series on neurology careers.\u003C\u002Fblockquote\u003E\r\nAbout 350 students across 16 countries joined the 31 student interns for a weekly Inspire Speaker Series that highlighted the careers of neurology experts. At the summer’s end, students presented their research. Since then, the program continues to help students achieve their academic and career goals.\r\n\u003Ch2\u003ESupport from the Biogen Foundation\u003C\u002Fh2\u003E\r\n“The Biogen Foundation is proud to collaborate with Mass General in developing the first-of-its kind Youth Neurology Education and Research Program to inspire the next generation of neurologists and make science education and science careers accessible to diverse populations,” says Kate Dawson, MD, senior vice president of Biogen’s Therapeutics Development Unit, chair of the Biogen Foundation, and a prior resident and alumna of the Mass General Department of Neurology.\r\n\r\n“As leaders, we must continue to build the intentional, talent pipeline while providing students with the encouragement and resources they need to succeed,\" adds Dr. Dawson. \"Our scientists were so impressed with the students’ passion and commitment to the program.”\r\n\u003Ch2\u003EInspiring Students: Adrianna\u003C\u002Fh2\u003E\r\nRevere High School student intern Adrianna Fusco, 17, enjoyed learning from her mentor, neuropsychologist \u003Ca title=\"Visit https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fdoctors\u002F20059\u002Fyakeel-quiroz-gaviria (click to open in a new window)\" href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fdoctors\u002F20059\u002Fyakeel-quiroz-gaviria\" target=\"_blank\" rel=\"noopener\"\u003EYakeel Quiroz-Gaviria, PhD,\u003C\u002Fa\u003E\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fresearch\u002Fsupport\u002Fmgh-research-scholars\u002Fscholar-profiles\u002Fquiroz-mgh-research-scholar-profile\"\u003E MGH Research Scholar 2020-2025\u003C\u002Fa\u003E, and her research team. “They made it a very comfortable environment for students to say things, or make mistakes, which is really important in science,” Adrianna says.\r\n\r\nDuring the pandemic, Adrianna has worried about her mother, a grocery store account manager, and her father, a postal worker, both of whom are working on the frontlines. For her research topics, she looked at the relationships between lifestyle factors, like physical activity and social connections, and the risk for cognitive decline in racially and ethnically diverse older individuals.\r\n\r\n[caption id=\"attachment_1041696\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1041696 size-thumbnail\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FArianna_with_great_grandmother_cropped_220_220-220x220.jpg\" alt=\"Adrianna Fusco with her great-grandmother Phyllis.\" width=\"220\" height=\"220\" \u002F\u003E Adrianna Fusco\u003Cspan title=\"Inserted by Jenni Bohonak - 12\u002F15\u002F2020 4:01pm\" data-cid=\"22\" data-userid=\"69\" data-username=\"Jenni Bohonak\" data-time=\"1608066119501\"\u003E, age 12,\u003C\u002Fspan\u003E with her great-grandmother Phyllis \u003Cspan title=\"Inserted by Jenni Bohonak - 12\u002F15\u002F2020 4:01pm\" data-cid=\"4\" data-userid=\"69\" data-username=\"Jenni Bohonak\" data-time=\"1608066082142\"\u003EGaglione in 2015\u003C\u002Fspan\u003E.[\u002Fcaption]\r\n\r\nShe also brought one of her own ideas to the internship, which spurred the start of the \u003Ca href=\"https:\u002F\u002Fmapp.mgh.harvard.edu\u002F\"\u003EMAPP Youth Ambassadors Program\u003C\u002Fa\u003E in which Adrianna and other young people are educating our community about Alzheimer’s disease. As part of this work, Adrianna wants to inspire students through art and writing contests to learn more about neurologic diseases — so they can share that information with their families and recognize signs of Alzheimer’s.\r\n\u003Ch2\u003EFinding Answers\u003C\u002Fh2\u003E\r\nFor Adrianna, the field of neurology may answer questions about an experience that deeply affected her. Her great-grandmother Phyllis Gaglione developed Alzheimer’s disease, and, in a short time, changed from a person she could confide in, to someone who was withdrawn and forgot Adrianna’s name. After Phyllis’ death three years ago, Adrianna has wondered what happened inside her great-grandmother’s brain. What caused the change, how it can be prevented for other patients and what can she do to help other people with Alzheimer’s?\r\n\r\nWhile Adrianna knows that neurology is not a field that has attracted many women, she is not deterred. She plans to attend Union College in New York on a full scholarship in the fall of 2021. “I find that inspiring and I like that I get to prove myself,” Adrianna says. “I feel really grateful that I had this internship. It was eye-opening and it will help me decide what I will study in college.”\r\n\r\n\u003Cem\u003ETo support the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Feducation-and-training\u002Fyouth-research-and-education\"\u003EMass General Youth Neurology Education and Research Program,\u003C\u002Fa\u003E please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tara+Brady&amp;about=neurology+internship\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fem\u003E",post_title:"Opening New Doors to Neurology Careers",post_excerpt:"A summer internship, supported by the Biogen Foundation, inspires, equips and empowers students to pursue careers in neurology.",post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"opening-new-doors-to-neurology-careers",to_ping:a,pinged:a,post_modified:"2022-08-22 14:42:50",post_modified_gmt:"2022-08-22 18:42:50",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fopening-new-doors-to-neurology-careers\u002F",menu_order:67,post_type:y,post_mime_type:a,comment_count:f,filter:d},{ID:hP,post_author:au,post_date:hQ,post_date_gmt:hR,post_content:a,post_title:bd,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:be,to_ping:a,pinged:a,post_modified:hS,post_modified_gmt:hT,post_content_filtered:a,post_parent:aG,guid:hU,menu_order:ge,post_type:n,post_mime_type:a,comment_count:f,filter:d}],story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d}],how_to_give:c,GlobalComponentsEditor:c},image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fyouth-neurology2.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fyouth-neurology-program-inspires-students-to-pursue-their-passions\u002F",category:[{term_id:bv,name:dF,slug:dG,term_group:b,term_taxonomy_id:bv,taxonomy:dH,description:a,parent:b,count:cX,filter:d,acf:c}],where_to_give:[{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d,acf:{related_tag_link_type:n,related_tag_page:{ID:hP,post_author:au,post_date:hQ,post_date_gmt:hR,post_content:a,post_title:bd,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:be,to_ping:a,pinged:a,post_modified:hS,post_modified_gmt:hT,post_content_filtered:a,post_parent:aG,guid:hU,menu_order:ge,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_link_type:n,related_donate_page:{ID:os,post_author:au,post_date:ot,post_date_gmt:ou,post_content:a,post_title:ov,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:ow,to_ping:a,pinged:a,post_modified:ox,post_modified_gmt:oy,post_content_filtered:a,post_parent:hV,guid:oz,menu_order:b,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_contact_link_type:n,related_contact_page:c,related_donate_link:{title:oA,url:oB,target:a}}}],story_type:[{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d,acf:c}],pp_notify_user:[{term_id:bw,name:dI,slug:dp,term_group:b,term_taxonomy_id:bw,taxonomy:bY,description:a,parent:b,count:dJ,filter:d,acf:c}],author:[{term_id:oC,name:oq,slug:dp,term_group:b,term_taxonomy_id:oC,taxonomy:cL,description:a,parent:b,count:hs,filter:d,acf:c}]},story_3:{ID:1072209,post_author:ac,post_date:"2024-04-03 12:00:02",post_date_gmt:"2024-04-03 16:00:02",post_content:"Only about 30% of people who attempt to climb Argentina’s Mount Aconcagua — the tallest mountain in the Americas — reach the summit of the 22,837-foot peak. For Lane Glenn, a lifetime athlete who, in 2021, started planning his trip there, it wasn’t the odds that almost kept him home. It was his heart.\r\n\r\nIn late 2022, cardiology tests revealed Lane had an aortic aneurysm, which occurs when a weak spot in the wall of the aorta begins to bulge. \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16551\u002Feric-isselbacher\" target=\"_blank\" rel=\"noopener\"\u003EEric Isselbacher, MD, MSC,\u003C\u002Fa\u003E cardiologist at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fheart-center\" target=\"_blank\" rel=\"noopener\"\u003ECorrigan Minehan Heart Center\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital\u003C\u002Fa\u003E and co-director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fheart-center\u002Ftreatments-and-services\u002Fthoracic-aortic-center\" target=\"_blank\" rel=\"noopener\"\u003EMass General Thoracic Aortic Center,\u003C\u002Fa\u003E told Lane he likely had been born with an abnormally weak aorta. The bulge had been slowly growing his entire life and was in danger of rupturing.\r\n\r\n“He told me that, more than likely, it would have been my fate to die on the mountain if we hadn’t discovered this,” says 56-year-old Lane, who has served as the president of Northern Essex Community College in Lawrence, Massachusetts, since 2011.\r\n\r\nInstead, thanks to a successful operation by \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F18899\u002Fthor-sundt\" target=\"_blank\" rel=\"noopener\"\u003EThor Sundt, MD,\u003C\u002Fa\u003E chief of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fheart-center\u002Ftreatments-and-services\u002Fcardiac-surgery\" target=\"_blank\" rel=\"noopener\"\u003EDivision of Cardiac Surgery\u003C\u002Fa\u003E and director of the Corrigan Minehan Heart Center, and the care of Dr. Isselbacher and the Heart Center team, Lane made it to Mount Aconcagua — one year, eleven weeks and five days after his surgery to repair the aneurysm.\r\n\r\n[caption id=\"attachment_1023551\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-1023551\" src=\"https:\u002F\u002Fcdn4.giving.massgeneral.org\u002Fassets\u002Fisselbacher-headshot-220x220.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Eric M. Isselbacher, MD, MSC[\u002Fcaption]\r\n\u003Ch2\u003EA Lifetime of Adventure\u003C\u002Fh2\u003E\r\nLane first began experiencing irregular heartbeats in 2003 while training for a triathlon. At one point, he had rapid heartbeats that reached a frightening 300 beats per minute. Doctors performed an ablation, which burns or freezes sections inside the heart to create small scars that break up electrical signals that cause irregular heartbeats. The ablation was unsuccessful, so Lane received a pacemaker and defibrillator, along with an official diagnosis of idiopathic ventricular tachycardia — irregular heartbeats without a real explanation — and he kept competing in half marathons and triathlons. The defibrillator malfunctioned a few years later, so he had it removed and underwent another ablation. This time, the procedure was successful.\r\n\r\nFast forward to late 2022, and Lane began experiencing strange cardiac sensations again while running. He wore a monitor to record his heart’s rhythm and had an echocardiogram, which revealed a sizable aortic aneurysm. His cardiologist in Newburyport referred Lane to Dr. Isselbacher, who told him that he needed surgery.\r\n\r\n“I told him that I was already planning the trip to Aconcagua and that I still wanted to go,” Lane says. “He told me that I was in good shape, and I could recover from this well. So, we counted backward from when I was planning to be in South America, and that’s when we scheduled the surgery.”\r\n\r\n“Lane leads an active life, and he wanted to continue to lead an active life. We wanted to make that possible for him,” says Dr. Isselbacher. “A huge part of our ‘whole patient approach’ is about meeting patients where they are.”\r\n\r\n[caption id=\"attachment_1072224\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-full wp-image-1072224\" src=\"https:\u002F\u002Fcdn4.giving.massgeneral.org\u002Fassets\u002FSundtHS.jpg\" alt=\"Thor Sundt, MD\" width=\"220\" height=\"220\" \u002F\u003E Thor Sundt, MD[\u002Fcaption]\r\n\u003Ch2\u003ECrawl, Walk, Run\u003C\u002Fh2\u003E\r\nDr. Sundt successfully performed open-heart surgery in October 2022 to replace Lane’s bulging ascending aorta with a synthetic graft. Dr. Sundt told Lane he would likely be back to 80% of his fitness six weeks after surgery, 90% by six months and then, back to his normal physical abilities a year post-operation. With the approval of his care team, Lane was walking three to five miles a day two weeks after the surgery and ran a 5K at the six-week mark — his eyes trained on Aconcagua.\r\n\r\n“I was so grateful that Mass General had people on staff willing to talk to a crazy adventure athlete who wanted to push his recovery,” Lane says. “They consulted with me, looked at my baseline fitness and age profile and told me how much I could do.”\r\n\r\n“For me, cardiac surgery is about more than saving lives,” Dr. Sundt says. “It’s about returning patients to the lives they love.”\r\n\u003Ch2\u003EA New Kind of Summit\u003C\u002Fh2\u003E\r\nWhen December 2023 arrived, and Lane was about to climb Aconcagua, he felt more anxious than he had in the past. “I’ve been on lots of mountains, but I’ve never been up one after open-heart surgery, and I’ve never been up one as high as Aconcagua,” he says. “The oxygen level is only about one-third of what it is at sea level. I didn’t know how my body would perform, even without the open-heart surgery.”\r\n\u003Cblockquote\u003E“From beginning to end, from the time I was referred there through post-operative care, every nurse, physician and staff member I encountered was friendly, understanding, responsive and skillful.\"\u003C\u002Fblockquote\u003E\r\nBut his body did perform. Lane’s recovery and training had gone so well that the surgery didn’t cross his mind. His labored breathing was due to the high altitude, just like everyone else’s. And even though high winds and freezing temperatures stopped Lane and the other climbers right below the summit, he still considered the trip a success.\r\n\r\n“I know that attitude can’t overcome degenerative physical illness, but it can absolutely aid in recovery,” says Lane. “I’ve been a lifelong optimist, and I think that helped me build confidence for a swift recovery. A positive attitude coupled with skilled care, which Mass General certainly provides, means a lot when it comes to putting one foot in front of the other.”\r\n\r\nLane and his brothers are debating a return to Aconcagua to reach the summit, or possibly heading to Denali in Alaska. Wherever his next adventure takes him, he’s grateful to Mass General’s Heart Center team for putting him back on the road less traveled.\r\n\r\n“From beginning to end, from the time I was referred there through post-operative care, every nurse, physician and staff member I encountered was friendly, understanding, responsive and skillful,” Lane says. “It’s been the best experience I could have had for something as intimidating and frightening as heart surgery.”\r\n\r\n\u003Cem\u003ETo learn more about making a gift to the Corrigan Minehan Heart Center, please \u003Ca href=\"http:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Christina+Ferraiola&amp;about=Heart Center\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"The Heart of an Athlete",post_excerpt:"Roughly a year after his surgery at Mass General for an aortic aneurysm, Lane Glenn still achieved the adventure of a lifetime: climbing Argentina’s Mount Aconcagua.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"the-heart-of-an-athlete",to_ping:a,pinged:a,post_modified:"2024-06-12 09:17:49",post_modified_gmt:"2024-06-12 13:17:49",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1072209",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,hide_from_search:c,enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:c,story_type:{term_id:ct,name:eq,slug:eN,term_group:b,term_taxonomy_id:ct,taxonomy:_,description:a,parent:b,count:br,filter:d},where_to_give:[{term_id:cu,name:di,slug:gl,term_group:b,term_taxonomy_id:cu,taxonomy:r,description:gm,parent:b,count:gn,filter:d}],how_to_give:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,cta_sidebar:c,page_selector:a,swiftype_keywords:a,custom_swiftype_boost:a},image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FLane-hiking.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fthe-heart-of-an-athlete\u002F",category:[{term_id:bv,name:dF,slug:dG,term_group:b,term_taxonomy_id:bv,taxonomy:dH,description:a,parent:b,count:cX,filter:d,acf:c}],where_to_give:[{term_id:cu,name:di,slug:gl,term_group:b,term_taxonomy_id:cu,taxonomy:r,description:gm,parent:b,count:gn,filter:d,acf:{related_tag_link_type:n,related_tag_page:{ID:oD,post_author:au,post_date:oE,post_date_gmt:oF,post_content:a,post_title:di,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:hl,to_ping:a,pinged:a,post_modified:oG,post_modified_gmt:oH,post_content_filtered:a,post_parent:aG,guid:oI,menu_order:oJ,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_link_type:do0,related_donate_page:c,related_contact_link_type:n,related_contact_page:c,related_donate_link:{title:oK,url:oL,target:a}}}],story_type:[{term_id:ct,name:eq,slug:eN,term_group:b,term_taxonomy_id:ct,taxonomy:_,description:a,parent:b,count:br,filter:d,acf:c}],pp_notify_user:[{term_id:go,name:gp,slug:gp,term_group:b,term_taxonomy_id:go,taxonomy:bY,description:a,parent:b,count:oM,filter:d,acf:c},{term_id:bw,name:dI,slug:dp,term_group:b,term_taxonomy_id:bw,taxonomy:bY,description:a,parent:b,count:dJ,filter:d,acf:c}],author:[{term_id:ez,name:hE,slug:hF,term_group:b,term_taxonomy_id:ez,taxonomy:cL,description:a,parent:b,count:dl,filter:d,acf:c}]}}},campaign:{takeover_hero:s,expiration_start_date:"November 12, 2024 5:00 am",expiration_date:"December 3, 2024 11:59 pm",hero_campaign:{headline:"Giving Tuesday is December 3",description:"Don't wait! 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Breakthroughs"}},{story:{ID:1066461,post_author:au,post_date:"2023-05-16 10:56:50",post_date_gmt:"2023-05-16 14:56:50",post_content:"Elizabeth Murphy’s diagnosis of stage 3 invasive ductal carcinoma breast cancer left her in disbelief. She was 23 years old, working with children with autism and on the verge of starting graduate school. But, if her breast cancer diagnosis was a surprise, what came next was a shock wave — and one that her team deftly managed thanks to the coordination between cancer treatment and genetics at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\u002Fabout\u002Fcommunity-locations\u002Fwaltham\" target=\"_blank\" rel=\"noopener\"\u003ECancer Early Detection and Diagnostics Clinic\u003C\u002Fa\u003E at \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\u002Fabout\u002Fcommunity-locations\u002Fwaltham\" target=\"_blank\" rel=\"noopener\"\u003EMass General Cancer Center's Waltham location\u003C\u002Fa\u003E.\r\n\r\n“When my biopsy came back as cancer, the Mass General team was like, ‘We’ll see you tomorrow,’” says Elizabeth. “They told me I was way too young for this to happen, and they knew something else was going on.”\r\n\r\nAs part of the program’s multidisciplinary approach, Elizabeth underwent genetic testing that revealed a rare mutation — affecting about one in 200,000 people — in her PTEN gene. That gene provides instructions for making an enzyme that is found in almost all tissues in the body. The enzyme acts as a tumor suppressor, which means that it helps regulate cell division by keeping cells from growing and dividing too rapidly or in an uncontrolled way. Elizabeth’s mutation meant that she was at risk for more than the breast cancer already in her body. She was also at risk for endometrial, colon and thyroid cancer.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F17464\u002Fbeverly-moy\" target=\"_blank\" rel=\"noopener\"\u003EBeverly Moy, MD, MPH\u003C\u002Fa\u003E and the team at Mass General considered this knowledge to be power over Elizabeth’s potential illnesses. They had what they needed to come up with a plan.\r\n\r\n“Dr. Moy said to me on my first visit, ‘You and I are going to grow old together,’” Elizabeth says. “She’s been with me through it all. In that first appointment, you’re so overwhelmed, so to have someone like that at your side is awesome.”\r\n\r\n[caption id=\"attachment_1066662\" align=\"alignleft\" width=\"350\"]\u003Cimg class=\"wp-image-1066662 size-full\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FElizabeth-Murphy-inline.jpg\" alt=\"\" width=\"350\" height=\"410\" \u002F\u003E Elizabeth underwent 17 rounds of chemotherapy and 25 rounds of radiation to treat her breast cancer. She also had surgery to perform a double mastectomy with reconstruction and remove 24 lymph nodes.[\u002Fcaption]\r\n\u003Ch2\u003ECombining Cancer Evaluation and High-Risk Genetics\u003C\u002Fh2\u003E\r\nThe Cancer Early Detection and Diagnostics Clinic at the Mass General Cancer Center in Waltham prioritizes a comprehensive approach to ensure that all patients have the latest treatment options for cancer risk management and early detection, including novel technologies and genetic methods for newly diagnosed cancer patients. In Elizabeth’s case, the specific genetic makeup of her mutation had never been recorded before, so her genetic counselor took extra time to run the results and explain them to Elizabeth.\r\n\r\n“What I appreciate most about this model is our expedited access to top experts in cancer evaluation and high-risk genetics,” Dr. Moy says. “It provides the best quality care for patients like Elizabeth, since she has a coordinated approach in managing her complex cancer screening and detection needs.”\r\n\r\nElizabeth underwent 17 rounds of chemotherapy and 25 rounds of radiation to treat her breast cancer. She also had surgery to perform a double mastectomy with reconstruction and remove 24 lymph nodes.\r\n\r\n“Since my cancer was already spreading to my lymph nodes, the fact that the team jumped on it so quickly saved my life,” Elizabeth says. She was diagnosed on April 27, 2021, and her first chemotherapy infusion was a few days later on May 4.\r\n\r\n[caption id=\"attachment_1066666\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-full wp-image-1066666\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FMoyWaltham.jpg\" alt=\"Beverly Moy, MD, MPH\" width=\"220\" height=\"220\" \u002F\u003E Beverly Moy, MD, MPH[\u002Fcaption]\r\n\r\n“When I met with Dr. Moy, she said, ‘I’m throwing everything at you. You’re way too young to have to deal with this long term. I’m looking to cure you,’” Elizabeth continues. “I really appreciated her because she told everything to me straight. She told me it was going to be a very intense regimen of chemo, but it was going to stop the cancer from progressing and metastasizing. It was a huge game changer that made the difference between whether we were going to cure this or whether I was going to be dealing with it for the rest of my life.”\r\n\u003Ch2\u003E“Their priority is to take care of \u003Cem\u003Eyou\u003C\u002Fem\u003E.”\u003C\u002Fh2\u003E\r\nTo manage her risk of developing other cancers, Elizabeth has an endometrial biopsy once a year, a thyroid scan once a year and a colonoscopy every three years. She finished her active treatments for breast cancer in April 2022 and is on an oral medication to lessen her chances of a recurrence. Elizabeth also picked up her graduate school dream again: she is about to graduate from Boston College with a master’s degree in social work, only a summer behind her planned timeline.\r\n\r\nAt 23, Elizabeth often felt isolated when it came to her cancer experience — there weren’t many other young adults going through what she was. To share her experience, she participated in Mass General’s cancer mentorship program and connected with a 32-year-old who lives with the same genetic mutation. Elizabeth also hopes to volunteer with pediatric cancer patients once she finishes school.\r\n\r\n“I want others to know that they’re not alone in this,” Elizabeth says. “Finding a patient community is huge. I tell people to ask every single question that comes into your brain, because you’re not the first person to ask this question — the doctors here have heard it all. And, at the end of the day, their priority is to take care of you.”\r\n\r\n\u003Cem\u003ETo learn more about how to support the Cancer Early Detection and Diagnostics Clinic, please \u003Ca href=\"http:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Megan+Daniels&amp;about=Cancer Evaluation and Management Program\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"A Surprise, a Shock and a Team to Handle it all",post_excerpt:"At the Cancer Early Detection and Diagnostics Clinic at the Mass General Cancer Center in Waltham, patients like Elizabeth Murphy find novel, coordinated approaches to manage complex cancer screening and detection needs.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"a-surprise-a-shock-and-a-team-to-handle-it-all",to_ping:a,pinged:a,post_modified:"2023-06-08 15:03:34",post_modified_gmt:"2023-06-08 19:03:34",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1066461",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:c,story_type:{term_id:ct,name:eq,slug:eN,term_group:b,term_taxonomy_id:ct,taxonomy:_,description:a,parent:b,count:br,filter:d},where_to_give:[{term_id:bX,name:cv,slug:cw,term_group:b,term_taxonomy_id:bX,taxonomy:r,description:ex,parent:b,count:ey,filter:d}],how_to_give:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a},image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMurphy-banner.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fa-surprise-a-shock-and-a-team-to-handle-it-all\u002F",category:[{term_id:bv,name:dF,slug:dG,term_group:b,term_taxonomy_id:bv,taxonomy:dH,description:a,parent:b,count:cX,filter:d,acf:c}],where_to_give:[{term_id:bX,name:cv,slug:cw,term_group:b,term_taxonomy_id:bX,taxonomy:r,description:ex,parent:b,count:ey,filter:d,acf:{related_tag_page:{ID:hv,post_author:au,post_date:hw,post_date_gmt:hx,post_content:a,post_title:cv,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:cw,to_ping:a,pinged:a,post_modified:hy,post_modified_gmt:hz,post_content_filtered:a,post_parent:aG,guid:hA,menu_order:hB,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_page:c,related_contact_page:c,related_tag_link_type:n,related_donate_link_type:do0,related_contact_link_type:n,related_donate_link:{title:hC,url:hD,target:a}}}],story_type:[{term_id:ct,name:eq,slug:eN,term_group:b,term_taxonomy_id:ct,taxonomy:_,description:a,parent:b,count:br,filter:d,acf:c}],pp_notify_user:[{term_id:go,name:gp,slug:gp,term_group:b,term_taxonomy_id:go,taxonomy:bY,description:a,parent:b,count:oM,filter:d,acf:c},{term_id:bw,name:dI,slug:dp,term_group:b,term_taxonomy_id:bw,taxonomy:bY,description:a,parent:b,count:dJ,filter:d,acf:c}],author:[{term_id:ez,name:hE,slug:hF,term_group:b,term_taxonomy_id:ez,taxonomy:cL,description:a,parent:b,count:dl,filter:d,acf:c}]},category:{value:"compassion",label:"Compassionate Care"}},{story:{ID:1067544,post_author:au,post_date:"2023-06-22 08:08:56",post_date_gmt:"2023-06-22 12:08:56",post_content:"“Nurses have a unique window into a patient’s experience of care,” says \u003Ca href=\"https:\u002F\u002Fresearchers.mgh.harvard.edu\u002Fprofile\u002F379478\u002FDiane-Carroll\" target=\"_blank\" rel=\"noopener\"\u003EDiane Carroll, RN, PhD, FAAN, FAHA,\u003C\u002Fa\u003E Nurse Researcher in the \u003Ca href=\"https:\u002F\u002Fwww.mghpcs.org\u002Fmunncenter\u002Findex.asp\" target=\"_blank\" rel=\"noopener\"\u003EYvonne L. Munn Center for Nursing Research\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital.\u003C\u002Fa\u003E\r\n\r\nAt Mass General, Dr. Carroll has turned that perspective into decades of clinical nursing research, focusing primarily on her area of expertise as a cardiac nurse. In addition to her clinical work to ease recovery and improve outcomes for cardiac patients and their families, Dr. Carroll mentors nurses interested in research aimed at improving the care of patients in the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fheart-center\" target=\"_blank\" rel=\"noopener\"\u003ECorrigan Minehan Heart Center\u003C\u002Fa\u003E as well as other clinical areas at Mass General. She has published more than 100 articles in research journals about these research projects.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fnursing-patientcare\u002Fabout\u002Fleadership\u002Fdebbie-burke\" target=\"_blank\" rel=\"noopener\"\u003EDebbie Burke, RN, DNP, MBA, NEA-BC,\u003C\u002Fa\u003E Senior Vice President for Patient Care and Chief Nurse, says hospital leadership is committed to encouraging clinical research initiated by nurses.\r\n\r\n“Nursing research and a culture of inquiry are critical to advancing care for our patients,” says Dr. Burke. “Research helps shape our clinical practice.”\r\n\r\n[caption id=\"attachment_1067549\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-full wp-image-1067549\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FCarroll.jpg\" alt=\"Diane Carroll, RN, PhD, FAAN, FAHA\" width=\"220\" height=\"220\" \u002F\u003E Diane Carroll, RN, PhD, FAAN, FAHA[\u002Fcaption]\r\n\u003Ch2\u003EUnderstanding the Needs of the Patient and Their Family\u003C\u002Fh2\u003E\r\n“Nurses deliver relationship-based care,” says Dr. Carroll. “When nurses are in the hospital room, they are aware of the specific needs of the patient and their family and understand their expectations.”\r\n\r\nDr. Carroll says the clinical research generated by nurses is driven by the patients nurses care for. Over the years, nurses have studied ways they can deliver family-centered care for cardiac patients; defined the trajectory for recovery from cardiac surgery to reflect an individual’s goals; and explored non-pharmacological nursing interventions to reduce stress in cardiac patients.\r\n\u003Ch2\u003EThe Positive Power of Music\u003C\u002Fh2\u003E\r\nDr. Carroll’s own most recent study is measuring the effects of music on cardiac surgery patients.\r\n\r\n“Cardiac surgery inpatients are susceptible to numerous stressful factors, including fear, pain, sleeplessness, communication problems and the inability to relax in such an alien environment,” Dr. Carroll says. “Current practice to alleviate these stressful factors involves the administration of sedatives and pain medications that are thought to increase hospital length of stay. While previous studies of the impact of music on serum cortisol — the stress response hormone — have been mixed, there has not been a consideration of the parallel psychological, physical and neuroendocrine effects of music.”\r\n\u003Cblockquote\u003E\"Reducing patients' pain and anxiety helps put them on a strong footing toward a quicker recovery and a return home.\"\u003C\u002Fblockquote\u003E\r\nThe study, which aims to enroll 80 patients, measures all those responses in each patient to a 30-minute music intervention, consisting of symphonic and nature sounds. Early results showed positive impact of music on patients in the cardiac surgery critical care unit.\r\n\r\n“Reducing patients' pain and anxiety helps put them on a strong footing toward a quicker recovery and a return home,” says Dr. Carroll.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fnursing-patientcare\u002Fabout\u002Fleadership\u002Fgaurdia-banister\" target=\"_blank\" rel=\"noopener\"\u003EGaurdia Banister, PhD, RN, NEA-BC, FAAN,\u003C\u002Fa\u003E Director of the Yvonne L. Munn Center for Nursing Research and the Connell-Jones Endowed Chair in Nursing and Patient Care Research, says Dr. Carroll is an extraordinary leader in this work and a role model for nurses in all stages of their careers. “Not only is she committed to advancing nursing research to improve patient care, but she has also mentored hundreds of nurses interested in that area,” she says.\r\n\u003Ch2\u003EThe Role of Philanthropy\u003C\u002Fh2\u003E\r\nMany nurse-initiated studies have a positive impact on patients — but often don’t fit within the limited research parameters of foundations or government agencies. The generosity of donors allows studies to move forward, improving the quality of life and patient experience.\r\n\r\n“Research ensures that our care is always based in evidence,” says Dr. Burke. “Philanthropy allows our nurses to pursue research that makes such a difference to our patients.”\r\n\r\n\u003Cem\u003EIf you would like to \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fmunn\u002F\"\u003Esupport\u003C\u002Fa\u003E or learn more about nursing research at Mass General, please \u003Ca href=\"http:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Lindsey+McMillan&amp;about=Nursing Research\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"Nursing Research: A Special Perspective",post_excerpt:"How nursing-led research results in care improvements come from research driven by relationship-based care.",post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"nursing-research-a-special-perspective",to_ping:a,pinged:a,post_modified:"2023-06-22 11:07:56",post_modified_gmt:"2023-06-22 15:07:56",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1067544",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:c,story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:cu,name:di,slug:gl,term_group:b,term_taxonomy_id:cu,taxonomy:r,description:gm,parent:b,count:gn,filter:d},{term_id:er,name:gU,slug:gV,term_group:b,term_taxonomy_id:er,taxonomy:r,description:gW,parent:b,count:gX,filter:d}],how_to_give:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a},image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fnursing-research.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fnursing-research-a-special-perspective\u002F",category:[{term_id:bv,name:dF,slug:dG,term_group:b,term_taxonomy_id:bv,taxonomy:dH,description:a,parent:b,count:cX,filter:d,acf:c}],where_to_give:[{term_id:cu,name:di,slug:gl,term_group:b,term_taxonomy_id:cu,taxonomy:r,description:gm,parent:b,count:gn,filter:d,acf:{related_tag_link_type:n,related_tag_page:{ID:oD,post_author:au,post_date:oE,post_date_gmt:oF,post_content:a,post_title:di,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:hl,to_ping:a,pinged:a,post_modified:oG,post_modified_gmt:oH,post_content_filtered:a,post_parent:aG,guid:oI,menu_order:oJ,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_link_type:do0,related_donate_page:c,related_contact_link_type:n,related_contact_page:c,related_donate_link:{title:oK,url:oL,target:a}}},{term_id:er,name:gU,slug:gV,term_group:b,term_taxonomy_id:er,taxonomy:r,description:gW,parent:b,count:gX,filter:d,acf:{related_tag_link_type:n,related_tag_page:{ID:1061347,post_author:au,post_date:"2021-12-16 07:01:45",post_date_gmt:"2021-12-16 12:01:45",post_content:a,post_title:"Nursing and Patient Care Services",post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"nursing-and-patient-care-services",to_ping:a,pinged:a,post_modified:"2023-12-06 17:45:41",post_modified_gmt:"2023-12-06 22:45:41",post_content_filtered:a,post_parent:aG,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?page_id=1061347",menu_order:b,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_donate_link_type:do0,related_donate_page:{ID:1061332,post_author:aY,post_date:"2021-12-15 14:02:03",post_date_gmt:"2021-12-15 19:02:03",post_content:a,post_title:"Nursing and Patient Care Donation Page",post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"nursing",to_ping:a,pinged:a,post_modified:"2021-12-15 14:32:42",post_modified_gmt:"2021-12-15 19:32:42",post_content_filtered:a,post_parent:hV,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?page_id=1061332",menu_order:b,post_type:n,post_mime_type:a,comment_count:f,filter:d},related_contact_link_type:n,related_contact_page:c,related_donate_link:{title:"Support Nursing and Patient Care at Mass General",url:"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fnursing\u002F",target:a}}}],story_type:[{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d,acf:c}],pp_notify_user:[{term_id:bw,name:dI,slug:dp,term_group:b,term_taxonomy_id:bw,taxonomy:bY,description:a,parent:b,count:dJ,filter:d,acf:c}],author:[{term_id:oU,name:"Terry Byrne",slug:"terry-byrne",term_group:b,term_taxonomy_id:oU,taxonomy:cL,description:"Terry Byrne Terry Byrne tb689 145 TBYRNEDALTON@mgh.harvard.edu",parent:b,count:bX,filter:d,acf:c}]},category:{value:"revolutionary",label:"Revolutionary Results"}}]}],hero_components:c,expire_url_redirect:a,enable_override:c,hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,hide_from_search:c,swiftype_keywords:a,custom_swiftype_boost:a};mY.author_meta={ID:aY,user_nicename:oi,user_email:"SRNORMAN@mgh.harvard.edu",user_registered:"2021-08-25 19:39:54",display_name:"Sarah Norman",first_name:"Sarah",last_name:"Norman"};mY.yoast_head="\u003C!-- This site is optimized with the Yoast SEO plugin v23.5 - https:\u002F\u002Fyoast.com\u002Fwordpress\u002Fplugins\u002Fseo\u002F --\u003E\n\u003Ctitle\u003EMass General Giving - Home\u003C\u002Ftitle\u003E\n\u003Cmeta name=\"description\" content=\"Mass General is thinking big about the future of medicine. 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12:27:10",post_date_gmt:"2024-11-15 17:27:10",post_content:"For Noreen and David Crandall, the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002Fservices\u002Fhouse-call-program\" target=\"_blank\" rel=\"noopener\"\u003EDaniella Lipper ALS House Calls Program\u003C\u002Fa\u003E at \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002F\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital\u003C\u002Fa\u003E has been a game changer.\r\n\r\n“Managing amyotrophic lateral sclerosis (ALS) is overwhelming,” says Noreen, whose husband David has been living with the fatal disease since 2020. “The opportunity to have a nurse provide comforting care in our home allows David to maintain his dignity, while reducing the stress around spending an entire day getting in and out of the city for an appointment in the clinic.”\r\n\r\nThe Daniella Lipper ALS House Calls Program — established by the EGL Charitable Foundation and named after Daniella Lipper, a patient of ALS clinician \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16904\u002Fmerit-cudkowicz\" target=\"_blank\" rel=\"noopener\"\u003EMerit Cudkowicz, MD, MSc\u003C\u002Fa\u003E — supports nurses and nurse practitioners who visit homes in Massachusetts to provide medical, emotional and social support to ALS patients and their loved ones.\r\n\r\nThe nursing team delivers expert medical care that includes taking vitals, symptom management and support, cleaning or changing feeding tubes or checking ventilation machines that support breathing. The team also shares information about research opportunities. The program is carried out in conjunction with Compassionate Care ALS, a non-profit organization that evaluates equipment needs, gives free wheelchairs and other equipment and helps patients add ramps and lifts to improve access to their home.\r\n\u003Ch2\u003EDelivering Better-Than-Standard Care\u003C\u002Fh2\u003E\r\n“The House Calls Program allows us to deliver care the way it should be delivered,” says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F19109\u002Fjames-berry\" target=\"_blank\" rel=\"noopener\"\u003EJames D. Berry, MD\u003C\u002Fa\u003E, who sees patients with ALS while serving as the Williamson Winthrop ALS Scholar, Averill Healey Endowed Chair in ALS and chief of the Motor Neuron Division at Mass General. “Bringing ALS care into the home allows us to provide better-than-standard care, reduces medical isolation and improves patients’ connection to our clinic by providing more frequent touchpoints.”\r\n\r\n“The impact this program has on our patients is immeasurable,” says Jen Scalia, NP, who directs the ALS House Calls program and co-directs the ALS Multidisciplinary Care Clinic at Mass General. “It provides the kind of holistic care we know improves quality of life for individuals living with ALS.”\r\n\u003Ch2\u003EHome Visits Augmented with Virtual Visits\u003C\u002Fh2\u003E\r\nThe Crandalls receive a House Call once every three months and as needed. They also have virtual visits with Dr. Berry. However, almost none of the services offered through the \u003Ca href=\"https:\u002F\u002Fwww.youtube.com\u002Fwatch?v=HxBEXesJwnA&amp;t=13s\" target=\"_blank\" rel=\"noopener\"\u003EHouse Calls Program\u003C\u002Fa\u003E are covered by insurance.\r\n\r\n[caption id=\"attachment_1071669\" align=\"alignleft\" width=\"350\"]\u003Cimg class=\"wp-image-1071669 size-full\" src=\"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fcrandall-family.jpg\" alt=\"\" width=\"350\" height=\"350\" \u002F\u003E The Crandall family.[\u002Fcaption]\r\n\r\n“The EGL Charitable Foundation’s extraordinary gift ensures this amazing program will always be available to our patients,” says Dr. Berry. “We are all truly humbled by the Lipper family’s thoughtful commitment to others living with ALS.”\r\n\u003Cblockquote\u003E“The House Calls program is not just about convenience for patients. It is the complement to personalized medicine — namely, personalized care.”\u003C\u002Fblockquote\u003E\r\n“We work closely with our patients to develop innovative new programs,” says Dr. Cudkowicz, who, in addition to caring for patients like Daniella, serves as chair of the Neurology Department and director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\" target=\"_blank\" rel=\"noopener\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at Mass General. “Daniella had this brilliant idea, and Dr. Berry and our team came up with a plan, but we could not have made it a reality without the EGL Charitable Foundation’s generosity.”\r\n\r\n“The House Calls program is not just about convenience for patients. It is the complement to personalized medicine — namely, personalized care,” says Daniella Lipper. “Absent any treatments to cure ALS, or even to make it a chronic but manageable disease, such care must remain the focus of any treatment plan.”\r\n\u003Ch2\u003ESeeing the Person Beyond the Disease\u003C\u002Fh2\u003E\r\nFor the nurses who care for individuals with ALS, the opportunity to meet people in their home environment is an eye-opening experience.\r\n\r\n“I am able to see who they really are: wonderful people outside of their illness,” says Kristen Kingsley, RN, who has been with the program since its launch seven years ago, but who has worked with ALS patients throughout her 20-year career as a nurse. “I see their family photos on the wall, learn about their hobbies, their children, their pets.”\r\n\r\nAs ALS progresses, it becomes increasingly difficult for individuals to leave their home. Challenges include lack of transportation, access to technology and difficulty navigating areas with limited accessibility.\r\n\u003Cblockquote\u003E“The generosity of EGL Charitable Foundation sustains the program and allows us to think about ways to expand it to other areas across the country and around the world.”\u003C\u002Fblockquote\u003E\r\n“David’s disease affected his diaphragm, so we needed a breathing machine and did some voice banking to support his communication needs,” says Noreen. “But, as the disease progressed, he lost control of the muscles in his neck, requiring his head to be strapped in to remain upright, making it difficult to travel comfortably, let alone navigating his wheelchair or trying to use the bathroom in an unfamiliar place.”\r\n\r\n“The generosity of the EGL Charitable Foundation sustains the program and allows us to think about ways to expand it to other areas across the country and around the world,” says Dr. Berry.\r\n\u003Ch2\u003EPACT Program Provides Parent Guidance\u003C\u002Fh2\u003E\r\nIn addition to the House Calls Program, the EGL Charitable Foundation also supports the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcancer-center\u002Fpatient-and-family-resources\u002Fsupportive-care\u002Fpact\" target=\"_blank\" rel=\"noopener\"\u003EParenting at a Challenging Time (PACT) Program\u003C\u002Fa\u003E, which offers guidance to help parents and grandparents talk about ALS with children and young adults in the family. The PACT team also helps parents to identify ways to support children’s coping with changes in a parent’s mobility, speech and breathing, and to address children’s anticipatory grief.\r\n\r\nBecause Kristen is a consistent visitor, the Crandalls have come to trust her advice and deeply appreciate her care.\r\n\r\n“Kristen has been our beacon of hope,” Noreen says. “She coaches us on how to stay in front of this disease. She is David’s biggest advocate, and knowing we can rely on her has made such a difference in our ability to handle decisions we have to make.”\r\n\r\n\u003Cem\u003EMake a gift to the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate?re_fund=231144&amp;is_designation=1&amp;designation=ALS%20House%20Call%20Program\"\u003EDaniella Lipper ALS House Call Program\u003C\u002Fa\u003E or the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fals-pact-program\"\u003EDaniella Lipper ALS PACT Program\u003C\u002Fa\u003E. To learn more, \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Emily+Monteiro&amp;about=ALS+House+Calls+PACT\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:jh,post_excerpt:ji,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"als-house-calls-helps-patients-stay-connected-to-care",to_ping:a,pinged:a,post_modified:"2024-11-21 16:20:45",post_modified_gmt:"2024-11-21 21:20:45",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1076624",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hide_from_search:c,swiftype_keywords:a,custom_swiftype_boost:a,hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,enable_override:c,template:O,expire_url_redirect:a,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,cta_sidebar:c,GlobalComponentsEditor:c,page_selector:a,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d},{term_id:cq,name:el,slug:em,term_group:b,term_taxonomy_id:cq,taxonomy:r,description:eJ,parent:b,count:eK,filter:d}],how_to_give:c},featured_media:1076630}},{title:gM,type:y,external_id:"1066379",image:jj,link:jk,short_text:gN,story_type:aS,event_data:c,post_data:{ID:fE,post_author:au,post_date:jl,post_date_gmt:jm,post_content:jn,post_title:gM,post_excerpt:gN,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:jo,to_ping:a,pinged:a,post_modified:jp,post_modified_gmt:jq,post_content_filtered:a,post_parent:b,guid:jr,menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:[{acf_fc_layout:js,twcss:a,accordion:[{question:jt,answer:ju},{question:jv,answer:jw}]},{acf_fc_layout:fF,twcss:a,image:{ID:fG,id:fG,title:fH,filename:jx,filesize:jy,url:Q,link:jz,alt:en,author:ac,description:en,caption:a,name:fH,status:u,uploaded_to:fE,date:jA,modified:jB,menu_order:b,mime_type:t,type:w,subtype:M,icon:x,width:jC,height:jD,sizes:{thumbnail:jE,"thumbnail-width":h,"thumbnail-height":h,medium:jF,"medium-width":p,"medium-height":fI,medium_large:jG,"medium_large-width":k,"medium_large-height":fJ,large:jH,"large-width":k,"large-height":fJ,"1536x1536":jI,"1536x1536-width":cr,"1536x1536-height":jJ,"2048x2048":jK,"2048x2048-width":eL,"2048x2048-height":jL,"mgh-mobile":Q,"mgh-mobile-width":B,"mgh-mobile-height":jM,"mgh-tablet":Q,"mgh-tablet-width":N,"mgh-tablet-height":jN,"mgh-desktop-1":Q,"mgh-desktop-1-width":bT,"mgh-desktop-1-height":jO,"mgh-desktop-2":Q,"mgh-desktop-2-width":jP,"mgh-desktop-2-height":bt,"mgh-max-size":Q,"mgh-max-size-width":jQ,"mgh-max-size-height":V,"mgh-card-mobile":Q,"mgh-card-mobile-width":ah,"mgh-card-mobile-height":jR,"mgh-card-tablet":Q,"mgh-card-tablet-width":D,"mgh-card-tablet-height":jS,"mgh-card-desktop":Q,"mgh-card-desktop-width":eo,"mgh-card-desktop-height":i,"mgh-card-highlight-mobile":Q,"mgh-card-highlight-mobile-width":i,"mgh-card-highlight-mobile-height":o,"mgh-card-highlight-tablet":Q,"mgh-card-highlight-tablet-width":I,"mgh-card-highlight-tablet-height":jT,"mgh-card-highlight-desktop":Q,"mgh-card-highlight-desktop-width":jU,"mgh-card-highlight-desktop-height":z,"mgh-event-card-mobile":Q,"mgh-event-card-mobile-width":J,"mgh-event-card-mobile-height":aD,"mgh-event-card-tablet":Q,"mgh-event-card-tablet-width":eo,"mgh-event-card-tablet-height":i,"mgh-event-card-desktop":Q,"mgh-event-card-desktop-width":eo,"mgh-event-card-desktop-height":i,"mgh-social":Q,"mgh-social-width":jV,"mgh-social-height":av,"post-thumbnail":jW,"post-thumbnail-width":cs,"post-thumbnail-height":fK}},image_credit:a,caption:a,image_alt:en,desktopwidth:fL},{acf_fc_layout:dd,twcss:jX,text:jY,desktopwidth:cH},{acf_fc_layout:gO,twcss:a,quote:jZ,link:a,user:c,image:c,image_alt:a,name:j_,title:j$,text_placement:eM,desktopwidth:cH}],story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d}],how_to_give:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:[{key_takeaway:ka},{key_takeaway:kb},{key_takeaway:kc},{key_takeaway:kd}],story_sidebar_logo:c,page_selector:a,hide_donate_button:c,hide_primary_navigation:c,hide_footer_donate_now:c,hide_from_search:c,cta_sidebar:c},featured_media:1066397}},{title:ke,type:y,external_id:"1064874",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FJames-Berry3.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fdigital-datas-potential-for-future-als-treatments-and-care\u002F",short_text:kf,story_type:aS,event_data:c,post_data:{ID:1064874,post_author:au,post_date:"2023-02-07 15:29:38",post_date_gmt:"2023-02-07 20:29:38",post_content:"\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F19109\u002Fjames-berry\" target=\"_blank\" rel=\"noopener\"\u003EJames Berry, MD, MPH\u003C\u002Fa\u003E, the Winthrop Family Scholar in ALS Sciences, Averill Healey Endowed Chair in ALS, Associate Chief for Neurotherapeutics and Chief of the Division of ALS and Motor Neuron Diseases at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital,\u003C\u002Fa\u003E is working to develop tools to leverage digital data to more accurately quantify behavior and function in ALS, reduce clinical trial burden for people with ALS and hasten drug development.\r\n\r\n“Unlike traditional ALS outcome measures, which provide sparse data, digital biomarkers can reflect changes in function quickly and accurately,” says Dr. Berry. “The huge digital datasets are statistically powerful, facilitate more efficient clinical trials and inform clinical care.” Dr. Berry presented his research at the \u003Ca href=\"https:\u002F\u002Fyoutu.be\u002FniZvPXTW758\" target=\"_blank\" rel=\"noopener\"\u003ELisa S. Krivickas, MD Memorial lecture\u003C\u002Fa\u003E on January 19, named in honor of a cherished Mass General physician known for her mentoring, teaching, research and clinical contributions to the field of ALS.\r\n\u003Ch2\u003EThe Power of Digital Devices\u003C\u002Fh2\u003E\r\nStudies involving collection of digital data at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\" target=\"_blank\" rel=\"noopener\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at Mass General include:\r\n\u003Cul\u003E\r\n \t\u003Cli\u003EThe Symptom Monitoring for ALS in Real-Time (SMART) study, which uses the Beiwe Smartphone App and Data Portal on patients’ personal cellphones. Smartphones allow for audio capture to measure data like verbal communication and cough analysis. A second SMART study included wearables to measure step and activity count.\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EThe Digital ALS Study, being conducted in partnership with Biogen, provided phones to patients with ALS and focused on active data collection like patient reported outcome measures, cognitive assessments, speech recordings, fine motor and dexterity and walking\u002Fbalance.\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EThe Nq Medical Study, which stores and analyzes the characteristics of participants’ typing (not the content they type) from a smartphone virtual keyboard.\u003C\u002Fli\u003E\r\n\u003C\u002Ful\u003E\r\n\u003Ch2\u003EPutting Data to Work\u003C\u002Fh2\u003E\r\nBecause search engines can track searches that reflect events in real life, Dr. Berry has also undertaken a retrospective study looking at how his team can use internet search data to identify people with ALS and if that data can then be used to reduce the diagnostic delay prevalent in ALS. “There are huge troves of data completely unmined for ALS and neurology research,” says Dr. Berry. “Let’s think creatively about how to leverage them.”\r\n\r\nAnother promising study, \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002Fresearch\u002Fprevent-als\" target=\"_blank\" rel=\"noopener\"\u003EPREVENT ALS,\u003C\u002Fa\u003E identifies the earliest biological and clinical changes due to ALS in pre-symptomatic gene carriers. In this study, digital biomarkers allow frequent monitoring of initial symptoms in real-time, that can be easy to miss in an annual visit. This “early access” can lead to earlier interventions, which have been shown to be effective.\r\n\u003Ch2\u003EWhat’s Next?\u003C\u002Fh2\u003E\r\nDr. Berry and his colleagues’ future plans for digital data use in ALS include sharing existing data to find powerful new analyses, study new and best in class devices, create ways to incorporate digital endpoints into trials seamlessly and incorporate and adapt digital approaches into the PREVENT ALS Study.\r\n\r\nTo adopt digital outcomes widely in the future, Dr. Berry says researchers will need to gather data to show utility, feel comfortable with usability and compliance, understand change over time and adhere to regulatory considerations.\r\n\r\n\u003Ch3\u003E\u003Cstrong\u003EPlease \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002F?winthrop-family-scholar-fund&amp;re_fund=024201&amp;is_designation=1&amp;designation=Winthrop%20Family%20Scholar%20Fund%20in%20ALS%20Research\"\u003Emake a gift\u003C\u002Fa\u003E to help scientists discover new treatments for people living with ALS. For more information, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Emily+Monteiro&amp;about=Healey+Center\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fstrong\u003E\u003C\u002Fh3\u003E\r\n\r\n\u003Chr \u002F\u003E",post_title:ke,post_excerpt:kf,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"digital-datas-potential-for-future-als-treatments-and-care",to_ping:a,pinged:a,post_modified:"2023-05-18 14:57:46",post_modified_gmt:"2023-05-18 18:57:46",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1064874",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:[{acf_fc_layout:gP,twcss:a,photo:{ID:kg,id:kg,title:"Research Presidents Message",filename:"Research-Presidents-Message-e1527597238460-1.jpg",filesize:86947,url:aw,link:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fstories\u002Fmass-general-research-keeps-patient-focus\u002Fresearch-presidents-message-e1527597238460\u002F",alt:kh,author:q,description:kh,caption:a,name:"research-presidents-message-e1527597238460",status:u,uploaded_to:1044749,date:"2021-04-04 19:43:57",modified:"2022-02-18 21:44:32",menu_order:b,mime_type:t,type:w,subtype:M,icon:x,width:aT,height:cI,sizes:{thumbnail:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FResearch-Presidents-Message-e1527597238460-1-220x220.jpg","thumbnail-width":h,"thumbnail-height":h,medium:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FResearch-Presidents-Message-e1527597238460-1-300x185.jpg","medium-width":p,"medium-height":ki,medium_large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FResearch-Presidents-Message-e1527597238460-1-768x474.jpg","medium_large-width":k,"medium_large-height":gQ,large:aw,"large-width":k,"large-height":gQ,"1536x1536":aw,"1536x1536-width":aT,"1536x1536-height":cI,"2048x2048":aw,"2048x2048-width":aT,"2048x2048-height":cI,"mgh-mobile":aw,"mgh-mobile-width":B,"mgh-mobile-height":bU,"mgh-tablet":aw,"mgh-tablet-width":aT,"mgh-tablet-height":cI,"mgh-desktop-1":aw,"mgh-desktop-1-width":aT,"mgh-desktop-1-height":cI,"mgh-desktop-2":aw,"mgh-desktop-2-width":aT,"mgh-desktop-2-height":cI,"mgh-max-size":aw,"mgh-max-size-width":aT,"mgh-max-size-height":cI,"mgh-card-mobile":aw,"mgh-card-mobile-width":ah,"mgh-card-mobile-height":gR,"mgh-card-tablet":aw,"mgh-card-tablet-width":D,"mgh-card-tablet-height":kj,"mgh-card-desktop":aw,"mgh-card-desktop-width":gS,"mgh-card-desktop-height":i,"mgh-card-highlight-mobile":aw,"mgh-card-highlight-mobile-width":kk,"mgh-card-highlight-mobile-height":o,"mgh-card-highlight-tablet":aw,"mgh-card-highlight-tablet-width":I,"mgh-card-highlight-tablet-height":kl,"mgh-card-highlight-desktop":aw,"mgh-card-highlight-desktop-width":584,"mgh-card-highlight-desktop-height":z,"mgh-event-card-mobile":aw,"mgh-event-card-mobile-width":J,"mgh-event-card-mobile-height":km,"mgh-event-card-tablet":aw,"mgh-event-card-tablet-width":gS,"mgh-event-card-tablet-height":i,"mgh-event-card-desktop":aw,"mgh-event-card-desktop-width":gS,"mgh-event-card-desktop-height":i,"mgh-social":aw,"mgh-social-width":aT,"mgh-social-height":cI,"post-thumbnail":aw,"post-thumbnail-width":aT,"post-thumbnail-height":cI}},photoalt:"Stock image of pipette and test tubes",image_stretch:s,label:a,title:a,bodytext:"\u003Cp\u003EThis story is just one example of the groundbreaking efforts taking place at Mass General, home to the largest hospital-based research enterprise in the U.S. — the \u003Cb\u003EMass General Research Institute.\u003C\u002Fb\u003E The Research Institute encompasses and provides support to thousands of scientists, hundreds of laboratories, and helps to guide, connect and promote this unrivaled community of investigators as they advance the future of medicine, from the bench to the bedside, to the community and world. \u003C\u002Fp\u003E\n",link:{title:"More",url:"https:\u002F\u002Fgiving.massgeneral.org\u002Fwhere-to-give\u002Fresearch-institute\u002F",target:a},linkdisplay:ep,desktopwidth:gT}],story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d}],how_to_give:c,override_global_call_to_action:c,footer_donate_overwrite:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a},featured_media:1064882}},{title:kn,type:y,external_id:"1064797",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FHOAC.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Ffeeling-at-home-and-giving-back-to-the-healey-center\u002F",short_text:ko,story_type:bs,event_data:c,post_data:{ID:1064797,post_author:ac,post_date:kp,post_date_gmt:kq,post_content:"Musician John Driskell Hopkins founded Hop On A Cure following his December 2021 diagnosis of amyotrophic lateral sclerosis (ALS) at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\" target=\"_blank\" rel=\"noopener\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital.\u003C\u002Fa\u003E\r\n\r\nHopkins is widely known as a member of the multi-GRAMMY-winning country music group Zac Brown Band and as a songwriter and performer in his own right. He launched Hop On A Cure to increase awareness of ALS and raise funds for new research into ways to treat ALS, which currently has no known cure.\r\n\r\nThis week, Hop On A Cure announced the awarding of its first grant — $100,000 to the Healey Center to fund the development of effective therapies, identify cures and, ultimately, prevent the disease.\r\n\r\n“We are incredibly grateful for this important funding from Hop On A Cure,” says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F19109\u002Fjames-berry\" target=\"_blank\" rel=\"noopener\"\u003EJames Berry, MD, MPH,\u003C\u002Fa\u003E neurologist at the Healey Center, Winthrop Family Scholar in ALS Sciences, Averill Healey Endowed Chair in ALS and director of the MGH Neurological Clinical Research Institute (NCRI). “The support will bolster our evaluation of ALS biomarkers to help explain ALS biology and identify new therapeutic targets. It will also expand our studies using digital data and artificial intelligence to quantify ALS symptoms and hasten trials.”\r\n\r\nHop On A Cure founder John Driskell Hopkins’s support was inspired by his experience as a patient of the Healey Center.\r\n\r\n“My wife Jennifer and I feel at home at the Healey Center. Dr. James Berry and his team go above and beyond to make their patients feel safe and welcome,” Hopkins says. “They take the patient’s care into consideration on a very personal level and bring an open mind when discussing potential treatments and ideas. I’ve often said about arriving at the center, ‘I hate going up this elevator, but I love coming down this elevator.’ Somehow, I always feel comforted when I’m leaving.\"\r\n\r\n\u003Cem\u003EYou can help scientists discover new treatments for people living with ALS, with a donation to the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fhealey-center\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS.\u003C\u002Fa\u003E For more information, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Alexandra+Van+Strien&amp;about=Healey+Center\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fem\u003E",post_title:kn,post_excerpt:ko,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"feeling-at-home-and-giving-back-to-the-healey-center",to_ping:a,pinged:a,post_modified:kp,post_modified_gmt:kq,post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1064797",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{override_global_call_to_action:c,footer_donate_overwrite:c,enable_override:c,template:O,expire_url_redirect:a,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d}],how_to_give:c,GlobalComponentsEditor:c},featured_media:1064822}},{title:kr,type:y,external_id:"1062780",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FDaniel-Barvin-family-PREVENT-ALS.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fsupporting-efforts-to-prevent-als\u002F",short_text:ks,story_type:aS,event_data:c,post_data:{ID:1062780,post_author:ac,post_date:"2022-05-06 16:07:22",post_date_gmt:"2022-05-06 20:07:22",post_content:"\u003Cp class=\"p1\"\u003EWhen Daniel Barvin learned he carries the C9orf72 gene expansion that causes Amyotrophic Lateral Sclerosis (ALS), he chose to learn as much as he could, because, he says, “knowledge is power.”\u003C\u002Fp\u003E\r\n\u003Cp class=\"p2\"\u003EAlthough he admits it was a shock to learn his life might not last as long as he thought, “sharing my story and building this community has made my life so fulfilling and meaningful.”\u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p3\"\u003EBarvin watched his uncle, aunt and then his father succumb to the disease over a 20-year period before realizing they all carried an ALS gene.\u003C\u002Fp\u003E\r\n\u003Cp class=\"p1\"\u003EALS is a progressive, neurodegenerative disease with no cure. It attacks nerve cells in the brain and spinal cord, robbing individuals of their ability to move, speak and finally, to breathe. Treatments for ALS are limited, and there are no cures, but researchers around the world are studying the disease so they can slow progression, reverse damage, cure and ultimately prevent ALS. Only 10-20 percent of cases are hereditary or “familial,” like Barvin, while the causes of the remaining 80 percent of “sporadic” cases of ALS are unknown and challenging to predict.\u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p3\"\u003E“My father, aunt and uncle were blindsided by this disease,” says Barvin, 34. “I want to be the last generation ravaged by ALS.”\u003C\u002Fp\u003E\r\n\r\n\u003Ch2 class=\"p3\"\u003EUncovering Causes to Find Answers for Everyone with ALS\u003C\u002Fh2\u003E\r\n\u003Cp class=\"p4\"\u003EBarvin’s determination to learn more led him to the research program at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\" target=\"_blank\" rel=\"noopener\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital\u003C\u002Fa\u003E. He became an early participant in a study that has grown into \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002Fresearch\u002Fprevent-als\" target=\"_blank\" rel=\"noopener\"\u003EPREVENT ALS\u003C\u002Fa\u003E, a bold effort to get ahead of this devastating disease and stop it before it starts.\u003C\u002Fp\u003E\r\n\u003Cp class=\"p4\"\u003EPREVENT ALS looks at individuals with ALS-causative gene mutations who do not yet have symptoms using cutting-edge tools like digital monitoring and an evaluation of the gut microbiome that connects bacteria in the GI tract to brain health and has been linked to ALS. By following participants over time, a nationwide network of researchers, led by \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F19109\u002Fjames-berry\" target=\"_blank\" rel=\"noopener\"\u003EJames D. Berry, MD, MPH,\u003C\u002Fa\u003E at Mass General, Timothy Miller, MD, at Washington University, Neil Shneider, MD, PhD, and Matt Harms, MD, at Columbia University, hope to identify the earliest symptoms and molecular changes caused by ALS so they can diagnosis the disease earlier and start treatments before many motor neurons are lost.\u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\r\n\r\n[caption id=\"attachment_1017774\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-1017774\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FJ-Berry-1-220x220.jpg\" alt=\"James D. Berry, MD, MPH\" width=\"220\" height=\"220\" \u002F\u003E James D. Berry, MD, MPH[\u002Fcaption]\r\n\u003Cp class=\"p1\"\u003E“At the cellular level, familial and sporadic ALS look surprisingly similar,” says Dr. Berry. So, studies evaluating the causes of familial ALS will not only benefit familial ALS, they will also help understand all ALS and act as the keys to treatments. \u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p4\"\u003E“We are confident that what we learn about the group of people with familial ALS will lead to answers for every patient with ALS,” he says. \u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p1\"\u003EResearch into ALS is only one of several studies around neurodegenerative diseases underway at Mass General.\u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p1\"\u003E“Our collaborative research efforts in the Healey Center and across the neurosciences at Mass General are revealing similarities among neurodegenerative disorders,” says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16904\u002Fmerit-cudkowicz\" target=\"_blank\" rel=\"noopener\"\u003EMerit Cudkowicz, MD MSc,\u003C\u002Fa\u003E Chief of Neurology and director of the Healey Center. “We are at an exciting and very promising time as we work to find therapies for ALS, Alzheimer’s disease, Parkinson’s and Huntington’s disease. We are so grateful for the support of patients, families and friends who help us move ever closer to our goal of curing ALS and all neurodegenerative diseases.”\u003C\u002Fp\u003E\r\n\r\n\u003Ch2 class=\"p4\"\u003ESmith Family Foundation Personal Connection Inspires Gift\u003C\u002Fh2\u003E\r\n\u003Cp class=\"p4\"\u003EKey to the success of the study will be enrolling more individuals with ALS-causative genes. To support that work and the cost of the testing required, The Eddie and Jo Allison Smith Family Foundation has provided the Healey Center with a $1 million matching gift opportunity.\u003C\u002Fp\u003E\r\n\u003Cp class=\"p4\"\u003E“We like to see other people come to the table,” says Sam Soliman, executive vice president of the Smith Family Foundation, “and we are happy to encourage more people to support this research.”\u003C\u002Fp\u003E\r\n\r\n\r\n[caption id=\"attachment_1017773\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1017773 size-thumbnail\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FM-Cudkowicz-1-220x220.jpg\" alt=\"Merit Cudkowicz, MD, MSc\" width=\"220\" height=\"220\" \u002F\u003E Merit Cudkowicz, MD, MSc[\u002Fcaption]\r\n\u003Cp class=\"p4\"\u003EAlthough the Smith Family Foundation, based in North Carolina, has been around for nearly three decades, supporting a wide variety of community and medical charities, the work of the Healey Center hit home.\u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p2\"\u003E“Eddie’s only son Chris received great care from Dr. Merit and the team at Mass General when he was facing ALS,” says Soliman. “The care and compassion they showed him and the drive they exhibited to push forward efforts to find the cures really impressed us.”\u003C\u002Fp\u003E\r\n\r\n\u003Ch2 class=\"p3\"\u003ETelling His Story to Encourage Participation\u003C\u002Fh2\u003E\r\n\u003Cp class=\"p3\"\u003EBarvin’s experience as a research participant also inspired him.\u003Cspan class=\"s2\"\u003E “\u003C\u002Fspan\u003EThey helped me see beyond my own predicament and look to how I could help others,” he says.\u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\r\n\u003Cp class=\"p3\"\u003EHe takes every opportunity to speak out, advocating for potential and actual ALS gene holders and their families and encouraging participation and support for research studies such as PREVENT ALS. Last year, he became the Director of Strategic Planning and Operations at Coya Therapeutics, a clinical stage cell therapy platform company developing first-in-class therapeutics for ALS and other neurodegenerative diseases.\u003C\u002Fp\u003E\r\n\u003Cp class=\"p4\"\u003E“Few people were talking about this publicly,” he says, “but the only way we will get to the cures is to step up and participate in this revolutionary new research and share our experiences to support each other.”\u003C\u002Fp\u003E\r\n\u003Cp class=\"p4\"\u003E\u003Cem\u003ETo learn more about you can join the Eddie and Jo Allison Smith Family Foundation to support our PREVENT ALS initiative, please contact \u003Ca href=\"mailto:emonteiro7@mgh.harvard.edu\" target=\"_blank\" rel=\"noopener\"\u003EEmily Monteiro\u003C\u002Fa\u003E or \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fprevent-als\"\u003Eclick here\u003C\u002Fa\u003E to double your impact by making a gift today. \u003Cspan class=\"Apple-converted-space\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fem\u003E\u003C\u002Fp\u003E",post_title:kr,post_excerpt:ks,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"supporting-efforts-to-prevent-als",to_ping:a,pinged:a,post_modified:"2022-05-06 16:07:42",post_modified_gmt:"2022-05-06 20:07:42",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1062780",menu_order:b,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{enable_override:c,expire_url_redirect:a,GlobalComponentsEditor:c,story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d}],how_to_give:c,override_global_call_to_action:c,footer_donate_overwrite:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a},featured_media:1062781}},{title:kt,type:y,external_id:"1060282",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FGreen-family3.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fwhy-i-give-tim-green\u002F",short_text:ku,story_type:eq,event_data:c,post_data:{ID:1060282,post_author:ac,post_date:"2021-09-24 09:46:02",post_date_gmt:"2021-09-24 13:46:02",post_content:"In my life, many of my dreams have come true.\r\n\r\nBeing an NFL player was a childhood dream. It came true when I was drafted by the Atlanta Falcons in 1986 and played in the NFL for eight years. I earned a law degree during that time and became a TV football announcer for Fox Sports. Football paid for my own education and my kids’; it opened doors in writing, business, television and law. Football built our family home on a beautiful lake and paid for land for our kids to build their own homes nearby.\r\n\r\nMy second childhood dream was to become a writer. Since the third grade, I’ve thought books are magic. They take me away to another time and place, they make me laugh and cry, and in their heroes I see something I want to be. So, I started to make magic of my own, and this dream came true for me, too. I have written \u003Ca href=\"https:\u002F\u002Ftimgreenbooks.com\u002Fbooks\u002Fyoung-adult\u002F\" target=\"_blank\" rel=\"noopener\"\u003E40 novels for kids and adults\u003C\u002Fa\u003E.\r\n\r\n[caption id=\"attachment_1060287\" align=\"alignleft\" width=\"350\"]\u003Cimg class=\"size-full wp-image-1060287\" src=\"\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002Ftim-merit2.jpg\" alt=\"Tim supports Merit Cudkowicz, MD, and her team at the Sean M. Healey &amp; AMG Center for ALS\" width=\"350\" height=\"324\" \u002F\u003E Tim supports Merit Cudkowicz, MD, pictured here, and her team at the Sean M. Healey &amp; AMG Center for ALS[\u002Fcaption]\r\n\r\nIn 2016, I was diagnosed with amyotrophic lateral sclerosis (ALS). One of my first symptoms was the loss of strength and coordination in my fingers. As a writer who typed every day for 35 years, I was loath to let the disease take writing away from me. At that time, I could text on my smartphone. So, I wrote a 300-page novel with my thumbs. When my thumbs went the way of my fingers, I typed with technology that used the motion of my eyes and head to type, and I wrote another book.\r\n\r\nSince 2017, \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16904\u002Fmerit-cudkowicz\" target=\"_blank\" rel=\"noopener\"\u003EMerit Cudkowicz, MD,\u003C\u002Fa\u003E and her team of experts at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\" target=\"_blank\" rel=\"noopener\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at Mass General have provided me with outstanding care that has helped to slow the progression of the disease, allowing me to fight back hard against ALS and live my life to the fullest. To help support Merit and the remarkable work being done at Mass General, I donate money through TACKLE ALS and spend my time meeting with various ALS groups and other families affected by ALS. I will also be donating all of the proceeds from my latest book, \u003Ca href=\"https:\u002F\u002Fwww.harpercollins.com\u002Fproducts\u002Ffinal-season-tim-green\" target=\"_blank\" rel=\"noopener\"\u003E\u003Cem\u003EFinal Season,\u003C\u002Fem\u003E\u003C\u002Fa\u003E a deeply personal story based on my ALS diagnosis and how my family faced it together.\r\n\r\nNow, I have a new dream that someday, Merit and her colleagues will find a cure for ALS. While I may not see that dream come to fruition during my own lifetime, I will continue to write for my readers — and for myself — and to give back.\r\n\r\n\u003Ci\u003ETim Green is generously donating proceeds from the sale of his book, \u003C\u002Fi\u003E\u003Ca href=\"https:\u002F\u002Fwww.harpercollins.com\u002Fproducts\u002Ffinal-season-tim-green\" target=\"_blank\" rel=\"noopener\"\u003EFinal Season,\u003C\u002Fa\u003E\u003Ci\u003E to Massachusetts General Hospital through Tackle ALS to support ALS research and treatment efforts at the Sean M. Healey &amp; AMG Center for ALS.\u003C\u002Fi\u003E\r\n\r\n[caption id=\"attachment_1035924\" align=\"alignleft\" width=\"300\"]\u003Cimg class=\"wp-image-1035924 size-medium\" src=\"\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FBanner-no-image_Why-we-give-e1628200866989-300x221.jpg\" alt=\"\" width=\"300\" height=\"221\" \u002F\u003E \"Why We Give\" celebrates the ordinary and extraordinary reasons people choose to support Mass General. Everyone has a different story and every story shared is a chance to inspire others. If you would like to share why you give to Mass General, we welcome your stories. Thank you to our incredible community of supporters.[\u002Fcaption]",post_title:kt,post_excerpt:ku,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"why-i-give-tim-green",to_ping:a,pinged:a,post_modified:"2022-04-26 13:14:13",post_modified_gmt:"2022-04-26 17:14:13",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1060282",menu_order:kv,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{override_global_call_to_action:c,footer_donate_overwrite:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a,story_type:{term_id:ct,name:eq,slug:eN,term_group:b,term_taxonomy_id:ct,taxonomy:_,description:a,parent:b,count:br,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d}],how_to_give:c,GlobalComponentsEditor:c,start_date:f,expire_url_redirect:a,enable_override:c},featured_media:1060286}},{title:kw,type:y,external_id:"1059617",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fdarlene-sawicki2.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fals-nurse-honored-for-making-a-difference\u002F",short_text:kx,story_type:fM,event_data:c,post_data:{ID:1059617,post_author:q,post_date:"2021-04-08 14:00:02",post_date_gmt:"2021-04-08 18:00:02",post_content:"On March 3, 2021, \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fnursing-patientcare\u002Fabout\u002Fleadership\u002Fdarlene-sawicki\"\u003EDarlene Sawicki, MSN, NP-BC,\u003C\u002Fa\u003E became the first nurse at Massachusetts General Hospital to be formally recognized for the critical role nurses play in the lives of people living with ALS (amyotrophic lateral sclerosis) and their families.\r\n\u003Cblockquote\u003E\"Darlene’s nursing model focuses on providing our patients with the best possible experience, reminding us that treating people with humanity may be even more important than our medical expertise.”\u003C\u002Fblockquote\u003E\r\nTo families navigating the brutal trajectory of ALS, Ms. Sawicki is more than a caregiver. She is a mentor, nursing leader, teacher, healer and friend. And thanks to the generosity of a patient family, she was named the incumbent of the new David Richards Endowed Nursing Chair in ALS.\r\n\r\nThe chair honors Ms. Sawicki for her compassion and leadership in teaching ALS nurses how to advocate for comprehensive patient care. This endowment supports Ms. Sawicki now and ensures funds are available to ALS nurses forever.\r\n\r\n“You taught us what the words ‘caring’ and ‘healing’ really mean,” said one attendee at the virtual chair celebration, whose husband was a patient at ALS Clinic at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002F\"\u003EHealey Center for ALS at Mass General\u003C\u002Fa\u003E. “Those are lessons in life we will all take forward.”\r\n\u003Ch2\u003ENurses Ease Burden of ALS\u003C\u002Fh2\u003E\r\nAt the virtual chair celebration, nearly 80 patients, family members and colleagues shared an outpouring of love and respect for Ms. Sawicki, director of Advanced Practice Providers at Mass General and co-director of the ALS Clinic.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16904\u002FMerit-Cudkowicz\"\u003EMerit Cudkowicz, MD, MSc\u003C\u002Fa\u003E, chief of Neurology, whose practice is dedicated to people living with ALS, and who has been a longtime advocate and mentor of Ms. Sawicki, said that while the clinic is working hard to find cures for ALS, “we are also committed to easing the burden of the illness on people living with ALS and their families.”\r\n\r\nDr. Cudkowicz added, “Darlene’s nursing model focuses on providing our patients with the best possible experience, reminding us that treating people with humanity may be even more important than our medical expertise.”\r\n\u003Ch2\u003EPatients Always First\u003C\u002Fh2\u003E\r\nMs. Sawicki’s determination to meet patients where they are, paved the way for a House Calls program led by nurses. She also developed a primary nurse model, providing patients and families with a dedicated nurse who could get to know them and be available 24\u002F7 for advice or simply to offer a sympathetic ear.\r\n\u003Cblockquote\u003E“It is such a privilege for me to have patients give me permission to walk alongside them at such an intimate moment, to really trust me.\"\u003C\u002Fblockquote\u003E\r\n“I cannot think of anyone better suited to carry this recognition than Darlene,” said Debra Burke, RN, DNP, MBA, NEA-BC, senior vice president for Patient Care and chief nurse at Mass General. “She has dedicated the better part of her career to building the neurology nursing community.”\r\n\r\nSaid another family member about Ms. Sawicki: “Your capacity for love and care, along with your availability whenever we needed you, are truly extraordinary.”\r\n\r\nThese sentiments were echoed by many patients and family members who spoke of Ms. Sawicki’s honesty and empathy and most importantly, her availability. For her part, Ms. Sawicki said the honor of the chair belonged to everyone.\r\n\r\n“It is such a privilege for me to have patients give me permission to walk alongside them at such an intimate moment, to really trust me,” Ms. Sawicki said. “I have been given so much, by all my patients, their families, and all the amazing nurses and colleagues who work with me.”\r\n\r\n\u003Cem\u003EYou can help scientists discover new treatments for people living with ALS, with a donation to the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fhealey-center\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS.\u003C\u002Fa\u003E For more information, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Emily+Monteiro&amp;about=Healey+Center\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fem\u003E",post_title:kw,post_excerpt:kx,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"als-nurse-honored-for-making-a-difference",to_ping:a,pinged:a,post_modified:"2021-12-06 17:49:57",post_modified_gmt:"2021-12-06 22:49:57",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-nurse-honored-for-making-a-difference\u002F",menu_order:43,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{template:O,page_selector:a,GlobalComponentsEditor:c,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,story_type:{term_id:fN,name:fM,slug:"hospital-news",term_group:b,term_taxonomy_id:fN,taxonomy:_,description:a,parent:b,count:J,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:er,name:gU,slug:gV,term_group:b,term_taxonomy_id:er,taxonomy:r,description:gW,parent:b,count:gX,filter:d}],how_to_give:c,cta_selector:a,override_global_call_to_action:c,footer_donate_overwrite:c,start_date:f,expire_url_redirect:a},featured_media:1059618}},{title:ky,type:y,external_id:"1045476",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FJason_fish-fundraiser2-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fteen-reels-in-the-funds-to-help-advance-als-research\u002F",short_text:kz,story_type:bs,event_data:c,post_data:{ID:1045476,post_author:q,post_date:"2021-02-18 20:00:32",post_date_gmt:"2021-02-19 01:00:32",post_content:"When Jason Gibson was about seven years old, he caught his first striped bass with Chris Smith, under a blue North Carolina sky. Growing up, Chris was like a “second father” to Jason, who is close friends with Chris’s son, Blake.\r\n\r\nJason, now 17, remembers Chris as active and vibrant — he loved fishing, mountain-biking, laughing and helping others.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EThere is no cure for ALS, but at Mass General there is a lot of hope.\u003C\u002Fblockquote\u003E\r\nIn 2019, Chris was diagnosed with ALS, also known as amyotrophic lateral sclerosis, a rare progressive, neurodegenerative disease that affects nerve cells in the brain and spinal cord. The disease can move swiftly, causing a loss of muscle control and affecting a person’s ability to walk, talk, eat and breathe.\r\n\r\nThere is no cure, but there is a lot of hope at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\"\u003EMassachusetts General Hospital,\u003C\u002Fa\u003E the only place in the United States with an \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fhealey-center-eap\u002F\"\u003EEarly Access Protocol Program\u003C\u002Fa\u003E that offers patients experimental therapies. Chris is a patient of the center, under the care of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16904\u002Fmerit-cudkowicz\"\u003EMerit Cudkowicz, MD, MSc,\u003C\u002Fa\u003E chief of Neurology at Mass General and director of the Healey Center.\r\n\u003Ch2\u003EA Special Bond with Chris\u003C\u002Fh2\u003E\r\nJason and his parents, Tracy Wilson Gibson and Andrew Gibson, visited Chris at his North Carolina home and saw how his active life had declined.\r\n\r\n[caption id=\"attachment_1042659\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1042659 size-thumbnail\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FChirs-Blake-and-Jason-cropped-300-300-220x220.jpg\" alt=\"Chris Smith, Jason Gibson and Blake Smith biking in xxyear.\" width=\"220\" height=\"220\" \u002F\u003E (left to right) Chris Smith, Jason Gibson and Blake Smith biking in 2017.[\u002Fcaption]\r\n\r\nAfterward, Jason wished he could go back to middle school when Chris, Blake, Jason and his dad, Andrew, took weekend fishing trips to places like Morehead City, North Carolina, for deep sea fishing and the Roanoke River for striped bass. Jason also remembered sleepovers with other friends at Chris’s farm, when Chris was the only one willing to fish with him at 5 a.m.\r\n\r\nChris often looked after people, Jason recalls. On a trip to Colorado, it was Chris who helped Jason while they were mountain-biking.\r\n\r\n“Instead of going on with the others and having a good time on the mountain, going fast and doing jumps, I remember Chris stayed right behind me, just to make sure I wouldn’t fall or get hurt, and to push me on, which was really kind,” Jason says.\r\n\u003Ch2\u003EFishing to Help People Living with ALS\u003C\u002Fh2\u003E\r\nAfter their visit in August 2020, Jason and his mother, Tracy, wanted to find a way to help Chris. Since a love for fishing was something that Jason and Chris shared, Jason decided to use his qualification in a national fishing tournament as a fundraiser to rally the Chapel Hill community to help Chris and other people living with ALS.\r\n\r\nJason and Tracy quickly got to work. They contacted officials at the Big Bass Zone Junior Championship, who agreed to help publicize their fundraiser and they connected with Mass General’s Development Office to set up a \u003Ca href=\"https:\u002F\u002Fbecause.massgeneral.org\u002Fevent\u002Ffishing-for-als-warriors\u002Fe302558\"\u003EBeCause fundraising webpage.\u003C\u002Fa\u003E Tracy came up with the idea of people pledging a per-pound donation based on the size of the fish Jason caught.\r\n\u003Ch2\u003ECommunity Supports ALS Fundraiser\u003C\u002Fh2\u003E\r\nThey announced the fundraiser through emails and social media posts including Instagram fishing posts to Jason’s followers and on Tracy’s Facebook page where she publishes inspirational stories. People said they appreciated the fundraiser because it gave them a way to help the Smith family, Tracy says. She contacted local media and the story ran in local newspapers, and Jason spoke about the fundraiser during a video interview at the bass tournament in October.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003E\"Fundraising was a lovely way for an entire community to put our arms around a family going through a really hard time.\"\u003C\u002Fblockquote\u003E\r\nJason had dreamed of winning the tournament’s grand prize of a bass fishing boat, but the sparkling clear, lake waters in Idaho proved challenging for Jason who was more at ease in Carolina’s murky lakes. Still, he caught a two-pounder and raised $15,000 for the Healey Center. Jason says he has more to learn about fishing but is glad his efforts will help Chris and others.\r\n\r\nTracy is proud of how Jason tried fundraising. At first, she felt daunted trying to help him, but soon learned fundraising is easy and rewarding, when you believe in the mission.\r\n\r\n“When something like this happens, it’s hard to know what you can do to help someone,” Tracy says. “Fundraising was a lovely way for an entire community to put our arms around a family going through a really hard time.”\r\n\r\n\u003Cem\u003EYou can help scientists discover new treatments for people living with ALS, with a donation to the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fhealey-center\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS.\u003C\u002Fa\u003E For more information, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Emily+Monteiro&amp;about=Healey+Center\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fem\u003E",post_title:ky,post_excerpt:kz,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"teen-reels-in-the-funds-to-help-advance-als-research",to_ping:a,pinged:a,post_modified:"2021-08-24 13:20:48",post_modified_gmt:"2021-08-24 17:20:48",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fteen-reels-in-the-funds-to-help-advance-als-research\u002F",menu_order:58,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,override_global_call_to_action:c,footer_donate_overwrite:c,template:O,cta_selector:a,key_takeaways:c,story_sidebar_logo:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fbecause_logo-r.png",page_selector:a,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d}],how_to_give:[{term_id:gL,name:"Community Fundraising",slug:kA,term_group:b,term_taxonomy_id:gL,taxonomy:"how_to_give",description:"Members of the community have all sorts of reasons for raising money for Mass General. Whatever your reason, we invite you to be part of our BeCause community. The efforts of friends like you fuel life-changing and life-saving care, research and education at Mass General.",parent:b,count:cE,filter:d}],GlobalComponentsEditor:c,start_date:f},featured_media:1045477}},{title:kB,type:y,external_id:"1045436",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fals-chaplain-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fals-chaplain-offers-spiritual-support-and-more\u002F",short_text:kC,story_type:fM,event_data:c,post_data:{ID:1045436,post_author:q,post_date:"2020-10-21 14:01:29",post_date_gmt:"2020-10-21 18:01:29",post_content:"When the COVID-19 outbreak reached its peak in April in Massachusetts, Taylor Stirrat, RN, a nurse at the \u003Ca title=\"Sean M. Healey &amp; AMG Center for ALS\" href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\"\u003EMassachusetts General Hospital,\u003C\u002Fa\u003E and her colleagues were stressed out. Caring for their patients with ALS (amyotrophic lateral sclerosis) on an out-patient basis, they also struggled to balance their reactions to the pandemic with the urge to help on the front lines.\n\u003Cblockquote\u003E\"I get so much energy and joy from seeing a person spiritually grow.\"\u003C\u002Fblockquote\u003E\n\"We decided we needed a 'Joe' session,\" says Taylor, referencing the hospital and ALS spiritual care provider Joe Meekins. Joe has been meeting regularly with the ALS staff for the last three years, helping them understand their feelings when it comes to caring for sick patients.\n\u003Ch2\u003EJoe Answers the Call\u003C\u002Fh2\u003E\nJust 28 years old, Joe felt a call to pastoral ministry in his early teen years, but wasn't planning on a career ministering to hospital patients. After receiving his Master of Divinity and Master of Arts in Counseling at Gordon-Conwell Theological Seminary in 2014, he served a year-long residency at Mass General as part of his clinical pastoral training. At year's end, Joe was hooked. \"I get so much energy and joy from seeing a person spiritually grow,\" says Joe. \"To see a patient take suffering or a loss from an enemy to a tool, and to give them the space for that change to happen in their life — there is nothing better. That shift is everything.\"\n\n[caption id=\"attachment_1040394\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1040394 size-full\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002FMeekinsthumbnail-1.jpg\" alt=\"Joe Meekins\" width=\"220\" height=\"220\" \u002F\u003E Joe Meekins[\u002Fcaption]\n\nJoe is not immune to his own suffering, experiencing several losses in his own life that he had to work through. \"You can only go as deep with others as you've gone with yourself,\" says Meekins. \"Those experiences help me to come alongside others emotionally and spiritually during their struggles.\n\u003Ch2\u003EMore than Spiritual Support\u003C\u002Fh2\u003E\nIn addition to helping staff boost their strength and resiliency, Joe also helps ALS patients cope with their diagnosis, care and end-of-life decisions. \"He helps unearth a lot about patients and their beliefs, which helps us to be better clinicians and prepare for the more difficult conversations,\" says Sarah Luppino, RN BSN, associate site director\u002FALS clinic nurse. \"He's rooted in a very strong faith that drives and centers him and also teaches us the practice of centering ourselves. He has this inspiring way of looking at the world — connecting for us how one’s beliefs play into their care decisions.\"\n\u003Cblockquote\u003E\"He gave us a space to stop for a moment and feel how we were feeling. He helped to get our feet back under us.\"\u003C\u002Fblockquote\u003E\n\"Our patients are so wonderful and invite us into their families,\" says Jen Scalia, NP, nurse manager for the ALS Clinic. \"Losing patients is so difficult for all of our staff. Having Joe there to help us think about death differently and how to support ourselves has been hugely helpful. And he's done an amazing job of showing patients how their spirituality can help relieve both their physical and spiritual suffering.\"\n\n“The health and resiliency of our staff is so important, and integral to our ability to care for our patients,\" says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002Fdoctors\u002F16904\u002Fmerit-cudkowicz\"\u003EMerit Cudkowicz, MD, MSc,\u003C\u002Fa\u003E director of the Healey Center for ALS. \"We're so fortunate to be able to work with Joe and benefit from his expertise and support.\"\n\nAfter a 90-minute zoom session with Meekins, the team was feeling stronger and more connected. \"We were feeling very uncertain with the COVID-19 outbreak,\" says Sarah, who originally asked Joe to work with the ALS staff — including research coordinators, nurses and physicians — after seeing how he connected with patients in clinic. \"He gave us a space to stop for a moment and feel how we were feeling. He helped to get our feet back under us.\"\n\n\u003Cem\u003ETo learn more about the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\"\u003ESean M. Healey &amp; AMG Center for ALS\u003C\u002Fa\u003E, or to make a donation, please \u003C\u002Fem\u003E\u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Emily+Monteiro&amp;about=Healey Center for ALS\"\u003E\u003Cem\u003Econtact us\u003C\u002Fem\u003E\u003C\u002Fa\u003E\u003Cem\u003E.\u003C\u002Fem\u003E\n\n\u003Cem\u003EThis story \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002Fnews\u002F2020-09-30-ALS-chaplain-program-joe-meekins\"\u003Efirst appeared\u003C\u002Fa\u003E on the Sean M. Healey &amp; AMG Center for ALS news page.\u003C\u002Fem\u003E",post_title:kB,post_excerpt:kC,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"als-chaplain-offers-spiritual-support-and-more",to_ping:a,pinged:a,post_modified:"2021-04-12 06:40:10",post_modified_gmt:"2021-04-12 10:40:10",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-chaplain-offers-spiritual-support-and-more\u002F",menu_order:91,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,start_date:f},featured_media:1045438}},{title:kD,type:y,external_id:"1045199",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fals-research-banner-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fbold-healey-center-trial\u002F",short_text:kE,story_type:aS,event_data:c,post_data:{ID:1045199,post_author:q,post_date:"2019-10-31 15:39:01",post_date_gmt:"2019-10-31 19:39:01",post_content:"\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003EThe Sean M. Healey &amp; AMG Center at Massachusetts General Hospital\u003C\u002Fa\u003E is taking a bold new approach to therapy development for amyotrophic lateral sclerosis (ALS), launching a “platform trial,” in which several therapies are tested simultaneously.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EThe Healey Center effort is a first for ALS research, although the model has been successful in cancer research.\u003C\u002Fblockquote\u003E\r\nThe Healey Center effort is a first for ALS research, although the model has been successful in cancer research. The trial will greatly accelerate therapy development by allowing investigators to test more drugs, increase patient access to trials and reduce the cost by quickly and efficiently evaluating the effectiveness of multiple therapies.\r\n\r\nALS, also known as “Lou Gehrig’s Disease,\" is an illness that attacks motor neurons that control muscle movement, causing progressive paralysis. Currently, only limited treatments are available and there is no cure. Recently, however, amazing advances in understanding the biology of ALS create more hope that effective treatments will be discovered soon.\r\n\u003Ch2\u003EDozens of Promising Therapies\u003C\u002Fh2\u003E\r\n“Traditional clinical trials study one treatment to answer one question, and often take up to two years to complete,” says Merit Cudkowicz, MD, MSc, director of the Healey Center and chief of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002F\"\u003ENeurology at Mass General\u003C\u002Fa\u003E. “The master trial allows us to test several therapies and add or drop therapies once their effectiveness is determined without the need to stop and restart the trial. With this tool, testing can continue until cures are found.\r\n\r\n[caption id=\"attachment_114506\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-114506\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002FALS-box-220x220-1-220x220.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Read more about ALS research and care at Mass General:\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Frare-als-form-studied\u002F\"\u003E ALS: Rare Form of Disease Studied for Clues\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-house-call-program\u002F\"\u003E ALS House Call Program Sets New Care Standard\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fresearchers-explore-als-genetics\u002F\"\u003E ALS: Disease Models are Key Step Toward Therapy\u003C\u002Fa\u003E[\u002Fcaption]\r\n\r\n“The combination of advances in genetics, along with an infusion of research funding thanks to the Ice Bucket Challenge led to the identification of dozens of promising therapies in the laboratory,” Dr. Cudkowicz adds. “The challenge was getting those therapies into clinical trials where we could evaluate their effectiveness quickly and provide meaningful options for our patients.”\r\n\r\n\u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fhealey-center-fights-als\u002F\"\u003ESean M. Healey\u003C\u002Fa\u003E, founder and executive chairman of \u003Ca href=\"https:\u002F\u002Fwww.amg.com\u002F\"\u003EAffiliated Managers Group (AMG)\u003C\u002Fa\u003E, was diagnosed with ALS in 2018. \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fhealey-gift-sparks-als-effort\u002F\"\u003EThe Healey Center opened\u003C\u002Fa\u003E a few months later, thanks to a $40 million donation driven by Mr. Healey, along with members of AMG’s board and senior management team, supported by The AMG Charitable Foundation.\r\n\u003Ch2\u003EHealey Center Collaboration\u003C\u002Fh2\u003E\r\nThe Healey Center’s goal is to accelerate the development of new therapies to treat ALS by creating a worldwide collaborative research effort that includes academic and pharmaceutical scientists and patients and their families.\r\n\r\nPlans for the platform trial were developed with advice and guidance from the experts from Healey Center’s scientific advisory committee, \u003Ca href=\"https:\u002F\u002Fwww.berryconsultants.com\u002F\"\u003EBerry Consultants\u003C\u002Fa\u003E and the \u003Ca href=\"https:\u002F\u002Fwww.neals.org\u002F\"\u003ENortheast ALS Consortium (NEALS)\u003C\u002Fa\u003E, the largest ALS clinical trial network in the world.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EThe enrollment of patients for the trials will begin in early 2020 ...\u003C\u002Fblockquote\u003E\r\nThe enrollment of patients for the trials will begin in early 2020 and 54 treatment centers from across the U.S. are expected to participate, ensuring broad access for people with ALS.\r\n\r\nHome of the nation’s largest hospital-based research program, Mass General has been on the forefront of medical innovation for more than 200 years, providing compassionate care while bringing bold breakthroughs from the lab to patients’ bedsides.\r\n\r\n\u003Cem\u003ETo learn more about how you can support research and care at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003ESean M. Healey and AMG Center for ALS\u003C\u002Fa\u003E, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tricia+Keck&amp;about=Healey+Center\"\u003Econtact us\u003C\u002Fa\u003E. \u003C\u002Fem\u003E",post_title:kD,post_excerpt:kE,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"bold-healey-center-trial",to_ping:a,pinged:a,post_modified:"2021-08-05 16:39:16",post_modified_gmt:"2021-08-05 20:39:16",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fbold-healey-center-trial\u002F",menu_order:236,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,key_takeaways:c,override_global_call_to_action:c,footer_donate_overwrite:c,story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:es,name:gY,slug:gZ,term_group:b,term_taxonomy_id:es,taxonomy:r,description:g_,parent:b,count:g$,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d},{term_id:cq,name:el,slug:em,term_group:b,term_taxonomy_id:cq,taxonomy:r,description:eJ,parent:b,count:eK,filter:d}],how_to_give:c,GlobalComponents:c,cta_selector:a,template:O,story_sidebar_logo:c,page_selector:a,GlobalComponentsEditor:c,start_date:f},featured_media:1045200}},{title:kF,type:y,external_id:"1045093",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fdementia-banner-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fresearchers-target-dementia-protein\u002F",short_text:kG,story_type:aS,event_data:c,post_data:{ID:1045093,post_author:q,post_date:"2019-08-06 11:00:00",post_date_gmt:"2019-08-06 15:00:00",post_content:"An imaging technology that revolutionized the diagnosis of Alzheimer’s disease may one day be the basis of a new therapy to treat it. Recently, a team from the Massachusetts General Hospital\u003Ca href=\"https:\u002F\u002Fcgm.massgeneral.org\u002F\"\u003E Center for Genomic Medicine\u003C\u002Fa\u003E and Dana-Farber Cancer Institute used modified versions of the particles used in positron emission tomography (PET) scans to clear patient-derived brain cells of the tiny clumps believed to cause Alzheimer’s disease and other forms of dementia.\r\n\r\n[caption id=\"attachment_1016526\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-full wp-image-1016526\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002Fhaggarty-headshot.jpg\" alt=\"Stephen Haggarty, PhD\" width=\"220\" height=\"220\" \u002F\u003E Stephen Haggarty, PhD[\u002Fcaption]\r\n\r\nPET is a neuroimaging technique that uses molecule-sized compounds, known as ligands, to create three-dimensional images of the location and concentration of specific target proteins in the body. Like the ligands used in PET scans, these new compounds bind to the toxic form of a protein called tau that accumulates in the brain of patients with dementia. But instead of highlighting the accumulated tau for detection during a scan, these new compounds tag it for destruction by the body.\r\n\r\n“PET ligands are one of the most exciting developments in the field of neuroscience,” says \u003Ca href=\"http:\u002F\u002Fwww.haggartylab.org\u002Fstephen-j-haggarty\u002F\"\u003EStephen Haggarty, PhD\u003C\u002Fa\u003E, director of the \u003Ca href=\"http:\u002F\u002Fwww.haggartylab.org\u002F\"\u003EChemical Neurobiology Laboratory\u003C\u002Fa\u003E in the Mass General \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002F\"\u003EDepartment of Neurology\u003C\u002Fa\u003E, and co-senior author of the study. “That same specificity that lets us see disease-causing tau in living brains, now enables us to target it for degradation inside human neurons,” adds Dr. Haggarty, who is also a Stuart and Suzanne Steele MGH Research Scholar, 2017-2022.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EHospital-based research programs are taking the lead in the quest for new therapies.\u003C\u002Fblockquote\u003E\r\n\u003Ch2\u003EBroad Implications for Treatment\u003C\u002Fh2\u003E\r\nAs more and more pharmaceutical companies abandon their Alzheimer’s programs following a string of high-profile clinical trial failures, hospital-based research programs are taking the lead in the quest for new therapies. Mass General is home to the largest hospital-based research enterprise in the United States.\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fresearch\u002F\"\u003E The Mass General Research Institute\u003C\u002Fa\u003E promotes, supports and guides research at the hospital.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fresearch\u002Fsupport\u002Fresearch-scholars.aspx\"\u003EThe MGH Research Scholars program\u003C\u002Fa\u003E is one of the institute’s signature efforts. Funded through philanthropy, the program is designed to provide exceptional early- and mid-career investigators with the funding they need to make transformative advances in their research.\r\n\r\nThis new application of PET ligands, described in the online journal \u003Ca href=\"https:\u002F\u002Felifesciences.org\u002Farticles\u002F45457\"\u003EeLife\u003C\u002Fa\u003E, could have broad implications for the treatment and diagnosis of Alzheimer’s and other tau-related diseases such as frontotemporal dementia (FTD).\r\n\u003Ch2\u003ETau and Dementia\u003C\u002Fh2\u003E\r\nIn healthy brains, tau is believed to stabilize the shape and function of brain cells — but in its mutant form, tau can accumulate, restricting the flow of the electrical and chemical signals the brain uses to communicate and ultimately causing the death of the affected cells.\r\n\r\n[caption id=\"attachment_1017121\" align=\"alignleft\" width=\"400\"]\u003Cimg class=\"wp-image-1017121\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002Ftau-3.jpg\" alt=\"On the left, a cell culture taken from a patient with dementia, with the mutant tau highlighted in red. On the right, the same culture after treatment. \" width=\"400\" height=\"207\" \u002F\u003E On the left, a cell culture taken from a patient with dementia, with the mutant tau highlighted in red. On the right, the same culture after treatment.[\u002Fcaption]\r\n\r\nTau clusters are recognized as a hallmark of several forms of dementia, but until recently, they could only be identified postmortem. That changed with introduction of tau-specific PET ligands, which enable researchers to visualize the density and location of tau deposits in patient brains. This capacity to visualize tau-related disease in living patients caught Dr. Haggarty’s attention.\r\n\r\nTo target mutant tau, Dr. Haggarty and his colleagues started with a tau-specific PET ligand. But instead of adding the radioactive molecule required for a PET scan, they added a second ligand designed to attract an enzyme called the ubiquitin E3 ligase. The ubiquitin E3 ligase tags damaged or aberrant proteins for destruction by the body’s cellular recycling and disposal system. Together, these two ligands create a “degrader” molecule that seeks out mutant tau and marks it for elimination.\r\n\r\nThe team tested their approach in cell cultures derived from patients with frontotemporal dementia caused by tau mutations. The new compound worked with surprising efficiency — clearing 90% of tau in a matter of hours.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EDr. Haggarty believes additional philanthropic investment will help unlock the full potential of this new therapeutic approach.\u003C\u002Fblockquote\u003E\r\n“For a protein like tau, which was traditionally considered undruggable, this unprecedented level of speed and precision opens up exciting new avenues for targeted therapy,” says Catarina Silva, PhD, co-first author of the study. This strategy of targeted protein degradation has gotten a lot of attention in oncology, but according to Dr. Haggarty, this is the first demonstration of the technique in human neurons. The team is now testing the approach in other neurodegenerative disease including Parkinson’s disease, ALS and Huntington’s disease.\r\n\u003Ch2\u003EInspiration from Oncology\u003C\u002Fh2\u003E\r\nDr. Haggarty believes that the success of this new approach is due to the fact the team tested the degrader molecules using patient-derived cells to produce genetically accurate models.\r\n\r\nThe team’s focus now shifts to refining and optimizing the degrader molecules for the clinic — and that means investment in drug development. Their work to date has received generous support from the Tau Consortium, a research program funded and managed by the Rainwater Charitable Trust, but Dr. Haggarty believes that additional philanthropic investment will help unlock the full potential of this new therapeutic approach.\r\n\r\n“You’ll see a degrader molecule in the clinic in a matter of years,” Dr. Haggarty says. “It’s not a matter of if, but when with this exciting new therapeutic modality.”\r\n\u003Cem\u003E\r\nTo learn more about how you can support the work of researchers like Dr. Haggarty or the MGH Research Scholars program, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=\u002FSusan+Buchanan&amp;about=Research+Institute\"\u003Econtact us\u003C\u002Fa\u003E. \u003C\u002Fem\u003E\r\n\u003Cdiv class=\"well\"\u003E\r\n\u003Ch2\u003EThe Research Institute: Saving Lives Through Science\u003C\u002Fh2\u003E\r\n\u003Cimg class=\"alignright size-thumbnail wp-image-77504\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002FMGHRI_220a-220x66-1.png\" alt=\"mghri_220a\" width=\"220\" height=\"66\" \u002F\u003EThe Massachusetts General Hospital Research Institute is the largest hospital-based research program in the United States, with a community of more than 8,500 people working across more than 30 institutes, centers and departments.\r\n\r\nOur researchers work side-by-side with physicians to pioneer the latest scientific advancements for curing disease and healing patients in Boston, across the United States and around the world.\r\n\r\n\u003Cem\u003ETo learn more about the Research Institute, please visit \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\u002Fresearch\u002F\"\u003Eour website\u003C\u002Fa\u003E.\u003C\u002Fem\u003E\r\n\r\n\u003C\u002Fdiv\u003E",post_title:kF,post_excerpt:kG,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"researchers-target-dementia-protein",to_ping:a,pinged:a,post_modified:"2022-09-29 10:15:30",post_modified_gmt:"2022-09-29 14:15:30",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fresearchers-target-dementia-protein\u002F",menu_order:270,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,start_date:f,override_global_call_to_action:c,footer_donate_overwrite:c,enable_override:c,expire_url_redirect:a,template:O,cta_selector:a,key_takeaways:c,story_sidebar_logo:c,page_selector:a,story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:ha,name:"Health and Wellness",slug:"health-wellness",term_group:b,term_taxonomy_id:ha,taxonomy:r,description:aR,parent:b,count:cu,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d},{term_id:cq,name:el,slug:em,term_group:b,term_taxonomy_id:cq,taxonomy:r,description:eJ,parent:b,count:eK,filter:d},{term_id:hb,name:"Psychiatry",slug:"psychiatry",term_group:b,term_taxonomy_id:hb,taxonomy:r,description:"\u003Cspan class=\"TextRun SCXW227757035 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003EWe\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003E'\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003Ere committed to acting fearlessly and creatively to shape the future of mental health care.\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003E \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003EWe seek to transform the mental health landscape with bold approaches\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003E. T\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003Ehese visionary efforts\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003E \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003Ewill be crucial to the future of mental health care, and now is the time to strengthen them.\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW227757035 BCX0\"\u003E Please join us. \u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW227757035 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",parent:b,count:114,filter:d},{term_id:kH,name:"Radiology",slug:"radiology",term_group:b,term_taxonomy_id:kH,taxonomy:r,description:"\u003Cspan class=\"TextRun SCXW202158241 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"\u003E\u003Cspan class=\"NormalTextRun SCXW202158241 BCX0\"\u003EWe\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW202158241 BCX0\"\u003E’\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW202158241 BCX0\"\u003Ere playing a leading role in the era of image-driven patient care, helping diagnose diseases earlier, monitor treatments more effectively and deliver therapies with greater precision. \u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW202158241 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",parent:b,count:kI,filter:d},{term_id:es,name:gY,slug:gZ,term_group:b,term_taxonomy_id:es,taxonomy:r,description:g_,parent:b,count:g$,filter:d}],how_to_give:c,GlobalComponentsEditor:c},featured_media:1045094}},{title:kJ,type:y,external_id:"1059525",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FHealey-Banner-2a-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fhealey-center-fights-als\u002F",short_text:kK,story_type:bs,event_data:c,post_data:{ID:1059525,post_author:q,post_date:"2019-06-06 11:00:46",post_date_gmt:"2019-06-06 15:00:46",post_content:"Until his 57th birthday, Sean Healey led a life of great success and good fortune. He was chairman and CEO of \u003Ca href=\"https:\u002F\u002Fwww.amg.com\u002F\"\u003EAffiliated Managers Group (AMG)\u003C\u002Fa\u003E, a company he built from a startup to one of the largest investment management firms in the world. With two adult children, he had just remarried, and his new wife was pregnant with their daughter, Araminta. But in May of 2018, his life took a tragic turn when he was diagnosed with amyotrophic lateral sclerosis (ALS). Patients with the incurable neurodegenerative disease have an average life expectancy of three years.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003E“Nothing prepares you for a diagnosis of ALS,” Mr. Healey says.\u003C\u002Fblockquote\u003E\r\n“Nothing prepares you for a diagnosis of ALS,” Mr. Healey says.\r\n\r\nALS, also known as “Lou Gehrig’s Disease,” attacks motor neurons that control muscle movement, causing progressive paralysis and ultimately death. Scientists do not know what causes ALS in the vast majority of cases, and there is no current effective treatment for the disease. Every year, approximately 150,000 people are diagnosed with ALS – one nearly every three minutes. Even with visibility and the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-hopesals-fundraisersresearch\u002F\"\u003Efundraising generated by the Ice Bucket Challenge in 2014\u003C\u002Fa\u003E, awareness of and support for the disease is still limited. Diseases with a similar reach receive more research funding from the National Institutes of Health, perhaps because the swift and deadly toll of ALS limits the number of advocates and spokespeople.\r\n\r\n[caption id=\"attachment_1014595\" align=\"alignleft\" width=\"400\"]\u003Cimg class=\"wp-image-1014595\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FHealey-Inset-1-e1557769648422.jpg\" alt=\"Despite dealing with his symptoms, Sean Healey participates in advisory meetings and attends events that bring individuals with ALS together with researchers and clinicians.\" width=\"400\" height=\"487\" \u002F\u003E Despite dealing with his symptoms, Sean Healey participates in advisory meetings and attends events that bring individuals with ALS together with researchers and clinicians.[\u002Fcaption]\r\n\u003Ch2\u003EChallenge of a Lifetime\u003C\u002Fh2\u003E\r\nFaced with his greatest personal challenge, Mr. Healey reached out to one of the world’s leading ALS specialists, \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002Fdoctor.aspx?id=16904#\"\u003EMerit Cudkowicz, MD\u003C\u002Fa\u003E, chief of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002F\"\u003ENeurology\u003C\u002Fa\u003E at Massachusetts General Hospital. Just five months after his first meeting with Dr. Cudkowicz, Mr. Healey, together with his colleagues and friends, established the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003ESean M. Healey and AMG Center for ALS\u003C\u002Fa\u003E at Mass General to focus on finding a cure for this dreadful disease.\r\n\r\n“There is an enormous advantage in having Mass General, the leading hospital research facility in the world, be the home for this research,” Mr. Healey says. “My vision for the Healey Center is that it will allow Dr. Cudkowicz and her team to build on the tremendous progress they have already made and provide a platform for global efforts to combat this disease.”\r\n\r\nThis challenge, and the opportunity to make a difference, inspired Mr. Healey to establish the Healey Center. After many decades of limited progress on ALS research, recent advances in brain research and a broad set of promising therapeutics have made the prospect of effective treatment and ultimately a cure for ALS more realistic.\r\n\r\n“We are at an inflection point in ALS research where increased research funding will make a huge impact on the speed and likelihood of finding effective treatments,” Dr. Cudkowicz says.\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003E\u003Cimg class=\"alignright size-medium wp-image-1014839\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FHealey-Logo-6b-300x77.jpg\" alt=\"\" width=\"300\" height=\"77\" \u002F\u003E\u003C\u002Fa\u003E\r\n\u003Ch2\u003ESeeing the Big Picture\u003C\u002Fh2\u003E\r\nChallenges are nothing new for Mr. Healey. As an undergraduate student-athlete at Harvard (he was a wrestler), he was told he should be satisfied with B’s and C’s. Instead, Healey made Phi Beta Kappa. After becoming an editor at the Harvard Law Review, he decided a career in law wasn’t for him. Then, as a 32-year-old executive in the Mergers and Acquisitions group at Goldman Sachs, he decided to join AMG, then a small startup. From 1995, he built the boutique investment management company into a global powerhouse that manages more than $800 billion in assets from 39 partner firms. Now, he hopes to use that experience to accelerate the search for a cure for ALS.\r\n\r\n“It is tragically ironic that my beloved brother, who my family thinks of as an invincible superman, received this diagnosis,” says Regan Healey Asnes, Mr. Healey’s younger sister. “But my brother always accomplishes what he sets out to do, so I am sure that together with Merit Cudkowicz, he will play a key role in helping to defeat ALS.”\r\n\r\n[caption id=\"attachment_1014847\" align=\"alignleft\" width=\"450\"]\u003Cimg class=\"wp-image-1014847\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FMerit-Cudkowicz-Giving-1-1024x802.jpg\" alt=\"Merit Cudkowicz, MD, chief of Neurology at Mass General and director of the Sean M. Healey and AMG Center for ALS, is one of the world’s leading ALS specialists.\" width=\"450\" height=\"353\" \u002F\u003E Merit Cudkowicz, MD, chief of Neurology at Mass General and director of the Sean M. Healey and AMG Center for ALS, is one of the world’s leading ALS specialists.[\u002Fcaption]\r\n\r\nMr. Healey recalls Dr. Cudkowicz using the word “hope” the first time they spoke. “Not naïve hope, but hope balanced by a realistic assessment of what the disease involves,” he says. “She was also refreshingly honest about my options, and eager to hear my opinion about how I wanted to approach my treatment.”\r\n\r\nFrom their very first meeting, Dr. Cudkowicz says, Mr. Healey wanted to understand how he could contribute to the broader effort to find a cure for ALS. “Many individuals with ALS are very engaged in their care and generous with their time and resources,” she says, “but Mr. Healey immediately saw the big picture and the need for a research center with a collaborative, global reach to accomplish our goals.”\r\n\r\nDr. Cudkowicz has devoted her career to improving the treatment of people with ALS. She says her patients and their families inspire her to overcome research barriers and work toward the cure.\r\n\u003Ch2\u003EThe Power of Collaborative Networks\u003C\u002Fh2\u003E\r\nIn addition to her own research and patient care, Dr. Cudkowicz and her team at Mass General have been tireless in their efforts to create collaborative networks – across North America and around the world – to encourage and accelerate research and increase patient access to experimental treatments. She created the first trial network in ALS, called \u003Ca href=\"https:\u002F\u002Fwww.neals.org\u002Fabout-us\u002Four-mission\u002F\"\u003ENEALS\u003C\u002Fa\u003E. The network now consists of 137 centers around the world collaborating on developing treatments for ALS.\r\n\r\nWithin a month after his diagnosis, Mr. Healey and his longtime friend and AMG board member Patrick T. Ryan, began talking to Dr. Cudkowicz about how to leverage her existing network and the research at Mass General to expand the efforts to find a cure.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003E“Providing smart people with the support they need to pursue the best ideas ensures success.”\r\n— Sean Healey\u003C\u002Fblockquote\u003E\r\n“At first, you imagine all you can do is give money,” Mr. Healey says, “and while that is crucial, it became clear that there are also enormous structural, organizational, financial and even legal issues that need to be factored in to the creation of an enterprise like this. The opportunity to provide guidance, support and insight from my entrepreneurial experience building a successful business has been quite fulfilling.”\r\n\u003Ch2\u003EA Center Devoted to New Therapies\u003C\u002Fh2\u003E\r\nIn November 2018, \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fhealey-gift-sparks-als-effort\u002F\"\u003Ewith an initial gift of $40 million from AMG and friends, family and colleagues, the Sean M. Healey &amp; AMG Center for ALS at Mass General opened\u003C\u002Fa\u003E. The Healey Center’s goal is to accelerate the development of new therapies to treat ALS by creating a worldwide collaborative research effort that includes academic and pharmaceutical scientists and patients and their families.\r\n\r\nMr. Ryan says the outpouring of support from Mr. Healey’s friends and business partners reflects the strong bonds Mr. Healey has built over the years. “Sean is incredibly loyal and devoted to his friends, and has always made his personal relationships with his affiliate managers a priority,” he says.\r\n\r\n[caption id=\"attachment_1014958\" align=\"alignleft\" width=\"450\"]\u003Cimg class=\"wp-image-1014958\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FHealey-Giving-Inset-1024x713.jpg\" alt=\"Peter L. Slavin, MD, Mass General president (left), joined Merit Cudkowicz, MD, chief of Neurology and director of the Healey Center, and Sean Healey in celebrating the Healey gift. \" width=\"450\" height=\"313\" \u002F\u003E Peter L. Slavin, MD, Mass General president (left), joined Merit Cudkowicz, MD, chief of Neurology and director of the Healey Center, and Sean Healey in celebrating the Healey gift.[\u002Fcaption]\r\n\r\nMr. Healey says recruiting and retaining the right people was pivotal to AMG’s success and is a priority for the Healey Center, as well.\r\n\r\n“Merit and I immediately saw eye to eye on the notion that with the right team and the right mindset anything is possible,” Mr. Healey says. “Providing smart people with the support they need to pursue the best ideas ensures success.”\r\n\u003Ch2\u003ELeading ALS Experts Gather\u003C\u002Fh2\u003E\r\nDr. Cudkowicz says Mr. Healey’s appreciation for building a committed community of ALS leaders is particularly important to her. One day after the official launch of the Healey Center, Dr. Cudkowicz and Mr. Healey met with the Center’s Science Advisory Council, a group of the world’s leading experts in ALS research. The SAC members come from Asia, Europe and North America and will guide strategic decisions of the Healey Center.\r\n\r\n“We have a pipeline of promising therapeutics,” says Dr. Cudkowicz. “But historically, clinical trials in ALS evaluate only one drug at a time, leading to high costs and lengthy start-up and execution times. The Healey Center will dramatically change this paradigm by launching the first platform trial initiative in ALS.”\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003E“The enthusiasm around our new approaches is so encouraging,” Dr. Cudkowicz says.\u003C\u002Fblockquote\u003E\r\nPlatform trials allow multiple drugs to be tested in parallel, using specialized statistical tools. New drugs can be added as they become available, decreasing or eliminating the gap in time from identification of a therapy to testing. Platform trials have already led to effective treatments in the cancer field and Dr. Cudkowicz is confident this success can be replicated in ALS research.\r\n\u003Ch2\u003EEnthusiasm for Center’s New Approach\u003C\u002Fh2\u003E\r\nSeveral weeks after the first SAC meeting, the members met with more than a dozen pharmaceutical companies to discuss partnerships in developing therapies for ALS. The first platform trial will begin later this year and test three therapies.\r\n\r\n“The enthusiasm around our new approaches is so encouraging,” Dr. Cudkowicz says. “One byproduct of this enthusiasm is the interest we are seeing from researchers and pharmaceutical companies working on other neurological diseases such as Alzheimer’s disease and Parkinson’s disease. There is enormous potential for researchers working with the Healey Center to discover promising treatments for these disorders, too.”\r\n\r\n[caption id=\"attachment_114506\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-114506\" src=\"\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FALS-box-220x220-2-220x220.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Read more about ALS research and care at Mass General:\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Frare-als-form-studied\u002F\"\u003E ALS: Rare Form of Disease Studied for Clues\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-house-call-program\u002F\"\u003E ALS House Call Program Sets New Care Standard\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fresearchers-explore-als-genetics\u002F\"\u003E ALS: Disease Models are Key Step Toward Therapy\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Ffamily-fights-als-together\u002F\"\u003E A Family Takes on ALS\u003C\u002Fa\u003E[\u002Fcaption]\r\n\r\nThe SAC members also stressed the critical need to attract the best and brightest researchers from a range of scientific backgrounds to focus on ALS. Two initiatives already launched include establishing Research Scholar awards and an annual Healey Prize for Innovation to be presented at the International Motor Neuron Disease Symposium.\r\n\u003Ch2\u003ECommitment and Connection\u003C\u002Fh2\u003E\r\nDespite dealing with his symptoms, which make speech increasingly difficult, Mr. Healey participates in advisory meetings and attends events around the world that bring individuals with ALS together with researchers and clinicians.\r\n\r\n“Getting to the cure is vital,” he says, “but in the meantime, providing information and options for people with ALS and their families – about progress and opportunities to participate in research – will help make people feel less alone.”\r\n\r\nHis commitment and main focus, he says, is on future ALS patients. “If the support I can help provide today, helps Merit and her team find the cure and reduce the toll this disease takes, that will be the greatest contribution I could make.”\r\n\r\n\u003Cem\u003ETo learn more about how you can support research and care at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003ESean M. Healey and AMG Center for ALS\u003C\u002Fa\u003E, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tricia+Keck&amp;about=Healey+Center\"\u003Econtact us\u003C\u002Fa\u003E. \u003C\u002Fem\u003E",post_title:kJ,post_excerpt:kK,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"healey-center-fights-als",to_ping:a,pinged:a,post_modified:"2021-08-05 17:56:44",post_modified_gmt:"2021-08-05 21:56:44",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fhealey-center-fights-als\u002F",menu_order:kl,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{override_global_call_to_action:c,footer_donate_overwrite:c,template:O,cta_selector:a,hero_style:ai,key_takeaways:c,story_sidebar_logo:c,page_selector:a,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d}],how_to_give:c,GlobalComponentsEditor:c,start_date:f},featured_media:1059527}},{title:kL,type:y,external_id:"1044955",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FHealey-Banner-e1544802400598-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fhealey-gift-sparks-als-effort\u002F",short_text:kM,story_type:bs,event_data:c,post_data:{ID:1044955,post_author:q,post_date:"2018-12-20 12:00:00",post_date_gmt:"2018-12-20 17:00:00",post_content:"Massachusetts General Hospital is spearheading a revolutionary new approach to amyotrophic lateral sclerosis (ALS) research and care with the opening of a new center, thanks to a $40 million donation – the third largest gift in the hospital’s history. The gift is driven by Sean Healey, executive chairman of \u003Ca href=\"https:\u002F\u002Fwww.amg.com\u002F\"\u003EAffiliated Managers Group, Inc. (AMG),\u003C\u002Fa\u003E along with members of AMG’s board of directors and senior management team, supported by The AMG Charitable Foundation.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003E“There has never been a better time for action,” says Merit Cudkowicz, MD, chief of Neurology.\u003C\u002Fblockquote\u003E\r\nMr. Healey was diagnosed in May 2018 with ALS, a neurological disease that attacks the nerve cells in the spinal cord and brain, robbing individuals of the ability to move, speak and ultimately, breathe.\r\n\u003Ch2\u003EA Time for ALS Action\u003C\u002Fh2\u003E\r\n“There has never been a better time for action,” says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002Fdoctor.aspx?id=16904#\"\u003EMerit Cudkowicz, MD\u003C\u002Fa\u003E, chief of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002F\"\u003EMass General Neurology\u003C\u002Fa\u003E and director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003ESean M. Healey and AMG Center for ALS at Mass General\u003C\u002Fa\u003E. “Basic research in ALS has led to the discovery of at least 20 promising therapies. This transformative gift will immediately be put to work to test these therapies in patients and move the successful ones forward toward effective treatments.”\r\n\r\nAccording to Dr. Cudkowicz, the Healey Center will bridge the gap between promising discoveries in the lab and effective therapies for patients; support senior scientists by allowing them to focus 100 percent of their time on their research; attract the best minds from around the world; and award grants to forward-thinking innovators from any field to join the cause and find the cure.\r\n\r\n[caption id=\"attachment_114506\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-114506\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002FALS-box-220x220-1-220x220.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Read more about ALS research and care at Mass General:\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Frare-als-form-studied\u002F\"\u003E ALS: Rare Form of Disease Studied for Clues\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-house-call-program\u002F\"\u003E ALS House Call Program Sets New Care Standard\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fresearchers-explore-als-genetics\u002F\"\u003E ALS: Disease Models are Key Step Toward Therapy\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Ffamily-fights-als-together\u002F\"\u003E A Family Takes on ALS\u003C\u002Fa\u003E[\u002Fcaption]\r\n\r\n“The Healey Center will harness the global research and patient community to expand patient access to trials, deliver personalized care and ultimately deliver the cure for people with the disease,” she says. “The center will benefit people with ALS both locally and globally.”\r\n\u003Ch2\u003EInspired by Patients' Determination\u003C\u002Fh2\u003E\r\nThrough the Healey Center, Mass General will establish the first master protocol trial in ALS, an approach used successfully in cancer research. With this tool, trial speed and efficiency will be increased, providing more treatment options for more patients. The Healey Center also will introduce a science advisory council comprised of experts from the U.S. and across the globe.\r\n\r\n“Sean’s determination and that of all our patients inspires us to redouble our efforts to find the cure for this disease,” says Dr. Cudkowicz. “Thanks to the resources the Healey Center is providing, we will marshal the community’s collective efforts and fast forward the field.”\r\n\r\n\u003Cem\u003ETo learn more about how you can support research and care at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003ESean M. Healey and AMG Center for ALS\u003C\u002Fa\u003E, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tricia+Keck&amp;about=Healey+Center\"\u003Econtact us\u003C\u002Fa\u003E. \u003C\u002Fem\u003E\r\n\r\n\u003Cem\u003EThis story was \u003Ca href=\"https:\u002F\u002Falsnewstoday.com\u002Fnews-posts\u002F2018\u002F12\u002F06\u002Fals-research-center-funded-20-million-affiliated-managers-group\u002F\" target=\"_blank\" rel=\"noopener\"\u003Efirst published\u003C\u002Fa\u003E by MGH Hotline. \u003C\u002Fem\u003E",post_title:kL,post_excerpt:kM,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"healey-gift-sparks-als-effort",to_ping:a,pinged:a,post_modified:"2022-01-11 18:36:35",post_modified_gmt:"2022-01-11 23:36:35",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fhealey-gift-sparks-als-effort\u002F",menu_order:hc,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,start_date:f,override_global_call_to_action:c,footer_donate_overwrite:c,template:O,expire_url_redirect:a,cta_selector:a,key_takeaways:c,story_sidebar_logo:c,page_selector:a,story_type:{term_id:aC,name:bs,slug:cF,term_group:b,term_taxonomy_id:aC,taxonomy:_,description:a,parent:b,count:cG,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d},{term_id:cq,name:el,slug:em,term_group:b,term_taxonomy_id:cq,taxonomy:r,description:eJ,parent:b,count:eK,filter:d}],how_to_give:c,GlobalComponentsEditor:c},featured_media:1044956}},{title:kN,type:y,external_id:"1044948",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FTackleALS-Banner-e1543350391693-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fals-effort-involves-nfl-player\u002F",short_text:kO,story_type:fM,event_data:c,post_data:{ID:1044948,post_author:aY,post_date:"2018-12-01 15:00:42",post_date_gmt:"2018-12-01 20:00:42",post_content:"Massachusetts General Hospital is teaming up with Tim Green, former NFL football player, children's book author and sports TV commentator, in an exciting new social media campaign aimed at knocking down barriers in amyotrophic lateral sclerosis (ALS) and bringing research to the next level. Mr. Green was diagnosed with ALS in 2016 and since has dedicated his time and efforts to raising awareness about this devastating disease.\n\n[caption id=\"attachment_114478\" align=\"alignleft\" width=\"300\"]\u003Cimg class=\"wp-image-114478\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FTackleALS-Inset.jpg\" alt=\"Former NFL player Tim Green hopes Tackle ALS will spark dramatic advances in the treatment of ALS. (photo by Jimmy Cribbs)\" width=\"300\" height=\"355\" \u002F\u003E Former NFL player Tim Green hopes Tackle ALS will spark dramatic advances in the treatment of ALS. (photo by Jimmy Cribbs)[\u002Fcaption]\n\nMr. Green’s plan to “\u003Ca href=\"https:\u002F\u002Fwww.tackleals.com\u002F\"\u003ETackle ALS\u003C\u002Fa\u003E” is similar to the popular fundraising Ice Bucket Challenge campaign – but with a competitive edge as friends, families and colleagues, serve as team captains to compete against each other to raise the most money. The campaign kicked off on Oct. 16, 2018, with a soft launch including Mr. Green’s close family and friends.\n\u003Ch2\u003EALS Rates Surge\u003C\u002Fh2\u003E\n“We are at a critical inflexion point for ALS therapy development,” says \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002Fdoctor.aspx?id=16904\"\u003EMerit Cudkowicz, MD\u003C\u002Fa\u003E, chief of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002F\"\u003ENeurology\u003C\u002Fa\u003E, and director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fals\u002Fhealeycenter\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS at Mass General\u003C\u002Fa\u003E. “We know so much more about the science now. There are thousands of people studying ALS. There are more than 100 companies investigating new treatments and targets for ALS. Now is the time.”\n\nALS is a serious neurological disease that attacks the brain and spinal cord. People with ALS lose muscle function in their limbs, and it affects speech, swallowing and breathing. ALS, which typically occurs in people ages 40 to 70, progresses rapidly over the course of three to five years.\n\nCurrently there are an estimated 35,000 people living with ALS in the United States, and about 500,000 worldwide. That number is expected to grow as the population ages. By 2040, rates are expected to increase by 70 percent.\n\n[caption id=\"attachment_114506\" align=\"alignright\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-114506\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002FALS-box-220x220-1-220x220.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Read more about ALS research and care at Mass General:\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Frare-als-form-studied\u002F\"\u003E ALS: Rare Form of Disease Studied for Clues\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-house-call-program\u002F\"\u003E ALS House Call Program Sets New Care Standard\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fresearchers-explore-als-genetics\u002F\"\u003E ALS: Disease Models are Key Step Toward Therapy\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Ffamily-fights-als-together\u002F\"\u003E A Family Takes on ALS\u003C\u002Fa\u003E[\u002Fcaption]\n\u003Ch2\u003EAccelerating ALS Research\u003C\u002Fh2\u003E\nAll funds raised by Tackle ALS will benefit ALS research to accelerate treatment development. The Mass General ALS investigators are dedicated to the global initiative to accelerate bringing science discoveries to patients through innovative trial approaches. Identifying effective therapies during these clinical trials will bring investigators closer to FDA approval and the discovery of potential treatments and cures.\n\n“This is the time in ALS where funding will make a huge impact on the discovery of effective treatments,” Dr. Cudkowicz says. “Regulatory agencies both in Europe and the U.S. are behind and supportive of innovative ways to do trials that accelerate the whole process. The engagement of our patients, families and generous donors is making a revolutionary new phase of research possible.”\n\nCurrently there are more than 70 teams signed up for the Tackle ALS challenge. The teams have raised more than $1.3 million.\n\n\u003Cem\u003ETo join the movement in finding a cure for ALS, donate to Mass General's team at the \u003Ca href=\"https:\u002F\u002Fwww.tackleals.com\u002F\"\u003ETackle ALS website\u003C\u002Fa\u003E. \u003C\u002Fem\u003E",post_title:kN,post_excerpt:kO,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"als-effort-involves-nfl-player",to_ping:a,pinged:a,post_modified:"2021-08-24 20:51:45",post_modified_gmt:"2021-08-25 00:51:45",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fals-effort-involves-nfl-player\u002F",menu_order:358,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,start_date:f},featured_media:1044950}},{title:kP,type:y,external_id:"1044812",image:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fmind-2018-article-835-1.jpg",link:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fbrain-disease-research-event\u002F",short_text:kQ,story_type:aS,event_data:c,post_data:{ID:1044812,post_author:q,post_date:"2018-08-03 17:15:04",post_date_gmt:"2018-08-03 21:15:04",post_content:"Determined collaboration and groundbreaking technology have led to exciting advances in efforts to solve the challenges of brain diseases, researchers from the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fmind\" target=\"_blank\" rel=\"noopener\"\u003EMassGeneral Institute for Neurodegenerative Diseases\u003C\u002Fa\u003E (MIND) told patients, families and friends recently.\r\n\u003Cdiv class=\"col-xs-12 col-sm-6 col-md-6 pull-left\" style=\"padding-left: 0;\"\u003E\u003Ciframe src=\"https:\u002F\u002Fwww.youtube.com\u002Fembed\u002FpATQBt7T8yk\" frameborder=\"0\"\u003E\u003C\u002Fiframe\u003E\u003C\u002Fdiv\u003E\r\nOn May 16, 2018, nearly 100 people attended the event at the MIND labs at the Charlestown Navy Yard. MIND's Visiting Day gathering included a reception and presentations by researchers working in amyotrophic lateral sclerosis (ALS), frontotemporal disorders, Parkinson’s disease and dystonia.\r\n\r\nMIND founder Anne Young, MD, PhD, and \u003Ca href=\"https:\u002F\u002Fresearchers.mgh.harvard.edu\u002Fprofile?profile_id=1520993\" target=\"_blank\" rel=\"noopener\"\u003EMerit Cudkowicz, MD, MSc\u003C\u002Fa\u003E, chair of \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002F\" target=\"_blank\" rel=\"noopener\"\u003ENeurology\u003C\u002Fa\u003E, highlighted the  interdisciplinary collaborative environment at MIND. Both emphasized the great impact philanthropy plays in supporting promising ideas at their earliest stages, encouraging scientists in different specialty areas to share ideas, equipment and insights to accelerate their research.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EAdvances in each field can help accelerate progress in other fields when common symptoms or biological mechanisms are identified ...\u003C\u002Fblockquote\u003E\r\n\u003Ch2\u003ENew Tools, Extraordinary Images\u003C\u002Fh2\u003E\r\nNew imaging and genomics allow researchers to pinpoint with extraordinary accuracy the pathways behind many neurological disorders. These innovative technologies provide clinicians with a better understanding of a disease, and encourage the basic science investigators to identify therapies that can target a specific area of the brain.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002Fdoctor.aspx?id=17354&amp;firstName=Bradford&amp;lastName=Dickerson&amp;initial=Clark&amp;title=MD&amp;ageGroup=A&amp;query=%7B%22center%22%3A%22%22%2C%22program%22%3A%22%22%2C%22locations%22%3A%5B%5D%2C%22languages%22%3A%5B%5D%2C%22gender%22%3A%22%22%2C%22term%22%3A%22Dickerson%2C%20Bradford%20Clark%2C%20MD%22%2C%22letter%22%3A%22%22%2C%22page%22%3A1%2C%22numberOfPages%22%3A15%2C%22numberPerPage%22%3A50%2C%22range%22%3A%7B%22Item1%22%3A0%2C%22Item2%22%3A49%7D%2C%22isEmpty%22%3Atrue%2C%22centerPreSelected%22%3Afalse%2C%22saytLimit%22%3A20%7D&amp;departmentList=Neurology\" target=\"_blank\" rel=\"noopener\"\u003EBrad Dickerson, MD,\u003C\u002Fa\u003E who specializes in frontotemporal disorders, provided an overview of the research efforts to find cures for neurological diseases, a process that starts and ends with patients. Clinicians document symptoms, perform tests and neurological exams, measure structural, functional and molecular changes in the brain through imaging and fluid samples (such as spinal fluid), develop laboratory models to understand disease mechanisms and screen treatments.\r\n\r\nThis research helps identify potential therapies that are brought to our patients for testing in clinical trials. This work is often done independently in separate clinics and laboratories by neurologists studying diseases traditionally classified as distinct, such as frontotemporal dementia and amyotrophic lateral sclerosis, or primary progressive aphasia and Alzheimer’s disease. But advances in each field can help accelerate progress in other fields when common symptoms or biological mechanisms are identified that link these seemingly distinct illnesses to each other.\r\n\r\n[caption id=\"attachment_110238\" align=\"alignleft\" width=\"425\"]\u003Cimg class=\"wp-image-110238\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002FMIND-presenters-1024x684-1.jpeg\" alt=\"MIND Visiting Day presenters included, from left, Drs. Brad Dickerson, Todd Herrington, Anne Young, Merit Cudkowicz, Cristopher Bragg, Nutan Sharma and Mark Albers.\" width=\"425\" height=\"284\" \u002F\u003E MIND Visiting Day presenters included, from left, Drs. Brad Dickerson, Todd Herrington, Anne Young, Merit Cudkowicz, Cristopher Bragg, Nutan Sharma and Mark Albers.[\u002Fcaption]\r\n\u003Ch2\u003EBrain Disease Similarities Explored\u003C\u002Fh2\u003E\r\n“As one example, we are increasingly interested in whether multiple different neurodegenerative diseases share abnormalities in the brain’s inflammatory responses,” Dr. Dickerson said. “This might allow us to screen new therapies that may reduce that neuroinflammation in more than one disease as a way to slow progressive decline. Clinical imaging and biomarkers provide critical data in real time so that we can track the impact of therapies being tested on brain function and ultimately on symptoms.”\r\n\r\n\u003Ca href=\"https:\u002F\u002Fresearchers.mgh.harvard.edu\u002Fprofile?profile_id=2493337\" target=\"_blank\" rel=\"noopener\"\u003EMark Albers, MD, PhD\u003C\u002Fa\u003E, who specializes in memory disorders, talked about the challenges confronted by the immune system as a person ages. “Activation of the immune system within older individuals may trigger an orderly propagation of dysfunction and death within neural systems,” he said. “When one neuron dies, it makes neighboring neurons vulnerable, and when the relevant cells disappear it is harder to understand what went wrong.”\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EMIND’s interdisciplinary collaboration has created opportunities for “basket” trials that allow for the evaluation of a therapy on several diseases ...\u003C\u002Fblockquote\u003E\r\n\u003Ch2\u003EInvestigating Inflammation\u003C\u002Fh2\u003E\r\nMIND’s interdisciplinary collaboration, however, has created opportunities for “basket” trials that allow for the evaluation of a therapy on several diseases within the same clinical trial. Dr. Albers is currently exploring the effectiveness of an FDA-approved drug called ruxolitinib, which reduces anti-inflammatory signals and is used to treat blood disorders associated with aging. Dr. Albers is hopeful this drug can reduce inflammation in three neurodegenerative diseases, and will test the effectiveness of the drug to reduce inflammatory biomarkers and clinical outcomes on three different diseases at the same time.\r\n\r\nWhile the initial “basket” trials focus on inflammation, other researchers are looking at movement disorders, which affect patients with Parkinson’s, ALS and dystonia.\r\n\r\n\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002Fdoctor.aspx?id=19705&amp;firstName=Todd&amp;lastName=Herrington&amp;initial=M.&amp;title=MD,%20PhD&amp;ageGroup=A&amp;query=%7B%22center%22%3A%22%22%2C%22program%22%3A%22%22%2C%22locations%22%3A%5B%5D%2C%22languages%22%3A%5B%5D%2C%22gender%22%3A%22%22%2C%22term%22%3A%22Herrington%2C%20Todd%20M.%2C%20MD%2C%20PhD%22%2C%22letter%22%3A%22%22%2C%22page%22%3A1%2C%22numberOfPages%22%3A15%2C%22numberPerPage%22%3A50%2C%22range%22%3A%7B%22Item1%22%3A0%2C%22Item2%22%3A49%7D%2C%22isEmpty%22%3Atrue%2C%22centerPreSelected%22%3Afalse%2C%22saytLimit%22%3A20%7D&amp;departmentList=Neurology\"\u003ETodd M. Herrington, MD, PhD,\u003C\u002Fa\u003E approaches the brain as an electrical system in his efforts to reduce the toll of movement disorders, while \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002Fdoctor.aspx?id=17303&amp;firstName=Nutan&amp;lastName=Sharma&amp;initial=&amp;title=MD,%20PhD&amp;ageGroup=C&amp;query=%7B%22center%22%3A%22%22%2C%22program%22%3A%22%22%2C%22locations%22%3A%5B%5D%2C%22languages%22%3A%5B%5D%2C%22gender%22%3A%22%22%2C%22term%22%3A%22Sharma%2C%20Nutan%2C%20MD%2C%20PhD%22%2C%22letter%22%3A%22%22%2C%22page%22%3A1%2C%22numberOfPages%22%3A15%2C%22numberPerPage%22%3A50%2C%22range%22%3A%7B%22Item1%22%3A0%2C%22Item2%22%3A49%7D%2C%22isEmpty%22%3Atrue%2C%22centerPreSelected%22%3Afalse%2C%22saytLimit%22%3A20%7D&amp;departmentList=Neurology#\"\u003ENutan Sharma, MD, PhD\u003C\u002Fa\u003E, and \u003Ca href=\"https:\u002F\u002Fresearchers.mgh.harvard.edu\u002Fprofile?profile_id=11993052\" target=\"_blank\" rel=\"noopener\"\u003ECristopher Bragg, PhD\u003C\u002Fa\u003E, are looking closely at one specific form of dystonia to shed light on other movement disorders.\r\n\u003Cdiv class=\"mceTemp\"\u003E\u003C\u002Fdiv\u003E\r\n\u003Ch2\u003ELeveraging New Technologies\u003C\u002Fh2\u003E\r\n“The production of dopamine is disrupted in people with Parkinson’s disease, but other areas of the brain are also dysregulated,” Dr. Herrington said. “I am eager to leverage the \u003Ca href=\"https:\u002F\u002Fwww.martinos.org\u002F\" target=\"_blank\" rel=\"noopener\"\u003EMartinos Center for Biomedical Imaging\u003C\u002Fa\u003E’s advanced neuroimaging technologies so that we can target individual brain circuits and use deep brain stimulation to reduce the impact of Parkinson’s disease on patients, particularly tremors, slowness and stiffness.”\r\n\r\nDr. Sharma and Dr. Bragg, talked about their research breakthrough in X-Linked Dystonia Parkinsonism, a rare disease that has provided insights into other movement disorders.\r\n\r\n“By finding the gene that causes this form of dystonia we are learning a great deal about the disease mechanisms, which will provide great information as we test potential therapies for this disease and other movement disorders,” Dr. Bragg said.\r\n\r\n\u003Cem\u003ETo learn more about how you can support research at MIND, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Tricia_+Keck&amp;about=MIND\"\u003Econtact us\u003C\u002Fa\u003E. \u003C\u002Fem\u003E\r\n\u003Cdiv class=\"well\"\u003E\r\n\u003Ch2\u003EMIND: Collaborating for a Cure\u003C\u002Fh2\u003E\r\n\u003Cimg class=\"alignright size-thumbnail wp-image-95481\" src=\"\u002F\u002Fmghrebuildprod.wpengine.com\u002Fassets\u002Fmind-logo-original-220x72-1.jpg\" alt=\"\" width=\"220\" height=\"72\" \u002F\u003EThe MassGeneral Institute for Neurodegenerative Disease (MIND) is committed to finding treatments and cures to improve the lives of patients with neurodegenerative disorders including Alzheimer’s, amyotrophic lateral sclerosis (ALS), Huntington’s and Parkinson’s disease.\r\n\r\nFounded in 2001, MIND unites scientists and physician-scientists across disciplines with the common goal of translating laboratory findings into therapies that can reach patients in the clinic. Researchers in MIND laboratories work collaboratively to achieve the most promising results.\r\n\r\n\u003Cem\u003ETo learn more about MIND, please visit \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fmind\" target=\"_blank\" rel=\"noopener\"\u003Eour website.\u003C\u002Fa\u003E\u003C\u002Fem\u003E\r\n\r\n\u003C\u002Fdiv\u003E",post_title:kP,post_excerpt:kQ,post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"brain-disease-research-event",to_ping:a,pinged:a,post_modified:"2021-12-27 12:10:50",post_modified_gmt:"2021-12-27 17:10:50",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fbrain-disease-research-event\u002F",menu_order:398,post_type:y,post_mime_type:a,comment_count:f,filter:d,acf:{hero_style:ai,start_date:f,override_global_call_to_action:c,footer_donate_overwrite:c,template:O,expire_url_redirect:a,cta_selector:a,key_takeaways:c,story_sidebar_logo:c,page_selector:a,story_type:{term_id:W,name:aS,slug:cc,term_group:b,term_taxonomy_id:W,taxonomy:_,description:a,parent:b,count:bu,filter:d},where_to_give:[{term_id:S,name:aB,slug:bk,term_group:b,term_taxonomy_id:S,taxonomy:r,description:aR,parent:b,count:bl,filter:d},{term_id:$,name:bd,slug:be,term_group:b,term_taxonomy_id:$,taxonomy:r,description:bR,parent:b,count:bS,filter:d},{term_id:cq,name:el,slug:em,term_group:b,term_taxonomy_id:cq,taxonomy:r,description:eJ,parent:b,count:eK,filter:d},{term_id:es,name:gY,slug:gZ,term_group:b,term_taxonomy_id:es,taxonomy:r,description:g_,parent:b,count:g$,filter:d}],how_to_give:c,GlobalComponentsEditor:c},featured_media:1044816}}]}},searchSettings:{ok:s,status_code:aU,cache_hit:T,data:{acf:{donation_page_default_image:c,donation_page_default_link:fC,no_result_cta:[{ID:1058678,post_author:q,post_date:"2021-06-21 18:02:25",post_date_gmt:"2021-06-21 22:02:25",post_content:a,post_title:"Donate CTA: The MGH Fund",post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"cta-the-mgh-fund",to_ping:a,pinged:a,post_modified:"2024-04-01 12:04:40",post_modified_gmt:"2024-04-01 16:04:40",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002F?post_type=cta&#038;p=1058678",menu_order:b,post_type:kR,post_mime_type:a,comment_count:f,filter:d}],no_result_item_suggestions:[{ID:1045401,post_author:q,post_date:"2020-08-20 14:30:21",post_date_gmt:"2020-08-20 18:30:21",post_content:"\u003Cem\u003E\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fendocrinology\u002Fendocrine-unit\u002Fdoctors\u002F20501\u002FAngela-Fitch?TRILIBIS_EMULATOR_UA=Mozilla%2F5.0+(Windows+NT+6.1%3B+WOW64%3B+rv%3A26.0)+Gecko%2F20100101+Firefox%2F26.0\"\u003EAngela Fitch, MD, FACP, FOMA,\u003C\u002Fa\u003E associate director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdigestive\u002Fweight-center\u002F\"\u003EMassachusetts General Hospital Weight Center,\u003C\u002Fa\u003E treats adult and pediatric patients for obesity, diabetes management and weight loss. She has used intermittent fasting, where eating is restricted for periods of time, combined with a healthy diet, to help patients lose weight and feel healthier.\u003C\u002Fem\u003E\r\n\r\n\u003Cstrong\u003EWhat is intermittent fasting and why might it be helpful?\u003C\u002Fstrong\u003E\r\nIntermittent fasting means setting a period of time when you do not eat. This allows the body to better metabolize food and can help patients lose weight. It may have other benefits, too, such as decreasing cancer risk, managing autoimmune diseases and even adding years to a person’s life.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EIt actually matters when we eat. Not just what we eat, or how much.\u003C\u002Fblockquote\u003E\r\nOur eating patterns differ from those of our ancestors’. They likely went for long periods without food. They ate their largest meal closer to mid-day and went to bed early. Sometimes, they had little food to survive on.\r\n\r\nFor many of us, food is plentiful, always available, and most of what we eat is processed. We are more sedentary than our ancestors, and we sleep less and eat more food, more often.\r\n\r\nIntermittent fasting is really about getting our eating in-line with our circadian rhythms, the physical, mental and behavioral changes in our bodies that follow a daily cycle. These rhythms are most influenced by daylight. Irregular rhythms have been linked to obesity, sleep disorders, diabetes and depression. It actually matters when we eat. Not just what we eat, or how much.\r\n\r\n\u003Cstrong\u003EWhat plan do you recommend for intermittent fasting?\u003C\u002Fstrong\u003E\r\nThere are three things to consider. \u003Cstrong\u003EFirst\u003C\u002Fstrong\u003E, the quality of the food you consume. You should eat mostly whole foods from plants or animals. And you should limit processed items, such as cookies, cereals, crackers and chips.\r\n\r\n[caption id=\"attachment_1038441\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1038441 size-full\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002Ffitch-2.jpg\" alt=\"Angela Fitch, MD\" width=\"220\" height=\"220\" \u002F\u003E Angela Fitch, MD[\u002Fcaption]\r\n\r\n\u003Cstrong\u003ESecond,\u003C\u002Fstrong\u003E the quantity of food you are eating. After fasting, you can’t binge-eat. If you are trying to use intermittent fasting to lose weight, you should cut your calorie consumption by 30 percent — in addition to limiting the window of time in which you are eating each day.\r\n\r\nAnd \u003Cstrong\u003Ethird,\u003C\u002Fstrong\u003E the timing. I suggest beginning with 10 consecutive fasting hours each day. Every few weeks, add a fasting hour, until you reach 16 hours, or a comfortable point. Longer than 12 hours of fasting produces metabolic health benefits. But at more than 16 hours, those benefits level off.\r\n\r\nDuring fasting, water and drinks with no calories, such as coffee and tea without sugar, cream or sweeteners are permitted. Most patients prefer to eat dinner, then fast, which allows them to sleep through some of their fasting hours and eat breakfast later in the day. Eating more in the morning and less in the evening is better for metabolic fitness but it is hard to do because eating is also a social activity, especially for dinner.\r\n\r\nOther options include consuming 500 calories every other day. Or a fasting-mimicking diet, where eating is restricted for five consecutive days and special foods, mostly fats, like olives and fatty acids, and some protein and bone broth are consumed.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EAt Mass General, we encourage patients to eat healthy 80 percent of the time and help them not beat themselves up about the other 20 percent.\u003C\u002Fblockquote\u003E\r\n\u003Cstrong\u003EWho can try intermittent fasting?\u003C\u002Fstrong\u003E\r\nMost people can try intermittent fasting. But if you have diabetes, kidney disease or heart failure, talk with your doctor first. Intermittent fasting is not recommended for a person who has an eating disorder or women who are pregnant or breastfeeding. Some early effects that may subside after a few weeks include dehydration, constipation and hunger.\r\n\r\n\u003Cstrong\u003EWhy does intermittent fasting work?\u003C\u002Fstrong\u003E\r\nAfter 12 hours of fasting, insulin levels in our blood drop, allowing our bodies to burn more fat as fuel. This is helpful for patients who are insulin resistant, meaning their bodies make more insulin than normal. They may have tried healthy eating and exercise to shed pounds without success because their bodies are set to a fat-storage mode. (Insulin resistance is a precursor to type 2 diabetes.)\r\n\r\n[caption id=\"attachment_1003274\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-1003274\" src=\" https:\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FGelsomin-banner.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Learn more about obesity and weight loss:\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fcharged\u002Fepisodes\u002Fangela-fitch\"\u003EDr. Fitch Talks About Obesity \u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fadvances.massgeneral.org\u002Fdigestive-health\u002Farticle.aspx?id=1127#:~:text=Fitch%2C%20MD%2C%20FACP%2C%20FOMA%2C%20is%20the%20associate%20director,obesity%20by%20promoting%20healthy%20weight%20attainment%20and%20management.\"\u003EHealthy Eating Resolutions\u003C\u002Fa\u003E\u003Cbr \u002F\u003E• \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fblum-center\u002Fevents\u002F5-tips-to-maintain-a-healthy-weight\"\u003E Five Tips for a Healthy Weight\u003C\u002Fa\u003E[\u002Fcaption]\r\n\r\nUsing bloodwork, we can identify these patients and offer intermittent fasting, either alone, or in combination with nutritional guidance and medication.\r\n\r\nI think intermittent fasting works well because it gives people structure. I educate my patients that in order to successfully lose weight, they must also consider factors such as accountability and creating a metabolic advantage, which fasting provides by giving the body a way to convert more of its fat to fuel.\r\n\r\n\u003Cstrong\u003EHow can family members help a person who needs to lose weight?\u003C\u002Fstrong\u003E\r\nFamilies and couples should approach weight loss together. Without paying attention to our eating and lifestyle, by 2030, half of us are predicted to have the disease of obesity. Many patients who struggle with their weight, blame themselves. Society blames them as well. At the Mass General Weight Center, we encourage patients to eat healthy 80 percent of the time. We help them not to beat themselves up for the other 20 percent when they enjoy a special meal or treat.\r\n\r\n\u003Cstrong\u003EDr. Fitch’s Six P’s for Successful Weight Loss\u003C\u002Fstrong\u003E\r\n\u003Col\u003E\r\n \t\u003Cli\u003EPlan your meal portions.\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EPlants should fill your plate.\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EProtein should be included with meals and snacks.\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EPillow: Get enough sleep. (7 to 9 hours for healthy adults)\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EPower: Be physically active, and do strength training.\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EPause: Fast from eating for at least 10 hours and more than 12, if it fits your lifestyle.\u003C\u002Fli\u003E\r\n\u003C\u002Fol\u003E\r\n\u003Cem\u003ETo make a donation to support the work of Dr. Fitch and her colleagues at the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdigestive\u002Fweight-center\u002F\"\u003EMass General Weight Center,\u003C\u002Fa\u003E please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002F\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fem\u003E",post_title:"Doctor Recommends Intermittent Fasting",post_excerpt:"Angela Fitch, MD, associate director of the Mass General Weight Center, discusses intermittent fasting and how it can help patients lose weight.",post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"doctor-recommends-intermittent-fasting",to_ping:a,pinged:a,post_modified:"2021-10-05 11:51:11",post_modified_gmt:"2021-10-05 15:51:11",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fdoctor-recommends-intermittent-fasting\u002F",menu_order:kS,post_type:y,post_mime_type:a,comment_count:f,filter:d,fronted_path:"stories\u002Fdoctor-recommends-intermittent-fasting"},{ID:1045500,post_author:q,post_date:"2021-03-16 14:00:09",post_date_gmt:"2021-03-16 18:00:09",post_content:"\u003Cstrong\u003E\u003Cem\u003E\u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fpsychiatry\u002Fdoctors\u002F16505\u002Fjerry-rosenbaum\"\u003EJerrold F. Rosenbaum, MD\u003C\u002Fa\u003E,\u003C\u002Fem\u003E\u003C\u002Fstrong\u003E\u003Cem\u003E is psychiatrist-in-chief emeritus and served as chief of the Massachusetts General Hospital \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fpsychiatry\u002F\"\u003EDepartment of Psychiatry\u003C\u002Fa\u003E from 2002 to 2019. He is the Stanley Cobb Professor of Psychiatry at Harvard Medical School and the founder and director of the Center for the Neuroscience of Psychedelics.\u003C\u002Fem\u003E\r\n\r\n[caption id=\"attachment_100232\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"size-thumbnail wp-image-100232\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002Frosenbaum-400-1-220x220.jpg\" alt=\"Psychedelic Medicine Jerrold Rosenbaum, MD\" width=\"220\" height=\"220\" \u002F\u003E Jerrold F. Rosenbaum, MD[\u002Fcaption]\r\n\r\n\u003Cstrong\u003EWhat prompted your interest in the neuroscience of psychedelics?\u003C\u002Fstrong\u003E\r\n\r\nI began to investigate the potential of psychedelic-assisted therapies several years ago to help patients with depression struggling with the burden of “rumination.” People with this “stuck thinking” experience an often brutal and unrelenting form of dwelling on painful thoughts, events, and regrets, and it can take the form of inescapable and unsuccessful attempts at problem solving. When intense, rumination wears a person down. It typically resists our current array of treatments.\r\n\r\nCurrent research indicates that people who ruminate have decreased activity in the default mode network of the brain. Since psychedelics, specifically psilocybin, a compound derived from a psychoactive mushroom, changes the connectivity of the default mode, might it create a window of opportunity to change the brain? Psychedelics appear to make the brain receptive to change and thus have enormous potential, I believe, to promote improvements in mental health conditions, specifically those not responsive to current treatments.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003EWhat we do here we believe will one day change many, many lives for the better.\u003C\u002Fblockquote\u003E\r\n\u003Cstrong\u003EWhat is the reason for the recent focus on psychedelic medicine?\u003C\u002Fstrong\u003E\r\n\r\nClinical studies now support the long-held conviction that these agents can be adapted for their unique therapeutic potential and inspire researchers to make up for the decades of lost opportunity for researching this therapeutic potential. In response to the use of LSD and other psychedelics during the 1960s by groups that the government wished to suppress, psychedelics were placed into the most restrictive category of drugs, which pretty much prohibited significant research for the next 30 years.\r\n\r\n\u003Cstrong\u003EWhy Mass General?\u003C\u002Fstrong\u003E\r\n\r\nWe have the infrastructure and the research expertise to investigate how these drugs change the brain. Our researchers have pioneered advances in brain imaging, molecular neuroscience and innovative clinical study design.\r\n\r\n[caption id=\"attachment_1059614\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1059614 size-thumbnail\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FArielle-1-220x220.jpg\" alt=\"Arielle Soussan was a brilliant and sensitive young woman who radiated kindness and cared deeply about the world.\" width=\"220\" height=\"220\" \u002F\u003E Related: \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Farielles-legacy-supports-research-on-psychedelics\u002F\" target=\"_blank\" rel=\"noopener\"\u003EArielle’s Legacy Supports Research on Psychedelics\u003C\u002Fa\u003E[\u002Fcaption]\r\n\r\nFor example, the Martinos Center is the best in class brain imaging facility, where we can conduct unique neuroimaging studies. The Haggarty Lab has the technology to study brains in a dish (organoids) while probing how these drugs interact with neural systems and neurochemistry.\r\n\r\nWhat we do here we believe will one day change many, many lives for the better.\r\n\r\n\u003Cem\u003ETo learn more about how you can support the research and treatment of depression, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Molly+McCarthy&amp;about=Depression\"\u003Econtact us\u003C\u002Fa\u003E.\u003C\u002Fem\u003E",post_title:"Exploring the Power of Psychedelics",post_excerpt:"Mass General Psychiatrist-in-Chief Emeritus Jerrold F. Rosenbaum, MD, explains the promising science behind psychedelic medicine.",post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"exploring-psychedelic-medicine",to_ping:a,pinged:a,post_modified:"2021-11-24 15:42:00",post_modified_gmt:"2021-11-24 20:42:00",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fexploring-psychedelic-medicine\u002F",menu_order:hb,post_type:y,post_mime_type:a,comment_count:f,filter:d,fronted_path:"stories\u002Fexploring-psychedelic-medicine"},{ID:1060111,post_author:q,post_date:"2021-08-12 15:41:25",post_date_gmt:"2021-08-12 19:41:25",post_content:"\u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fwhere-to-give\u002Fmassgeneral-hospital-for-children\u002F\"\u003E\u003Cimg class=\"alignleft wp-image-1013223 size-medium\" src=\"\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002Fmghfc-logo-pad-300x117.png\" alt=\"\" width=\"300\" height=\"117\" \u002F\u003E\u003C\u002Fa\u003E\r\n\r\nLena Papadakis of North Hampton, New Hampshire, was born a triplet, weighing just two pounds. She spent her first three months of life in the Neonatal Intensive Care Unit (NICU) at \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fchildren\u002F\"\u003EMassGeneral Hospital for Children. \u003C\u002Fa\u003EAnd for most of her childhood, she continued to have complex medical issues that resulted in numerous hospital stays. You can read more about Lena’s story \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fchildren\u002Fneonatology\u002Flenas-story-personal-experience-inspires-preemie-to-pursue-a-career-in-medicine\"\u003Ehere.\u003C\u002Fa\u003E\r\n\r\nNow, at age 22, Lena, is a Boston University graduate planning to attend medical school and the founder of \u003Ca href=\"https:\u002F\u002Fwww.preemietopremed.org\u002Fthe-mission\"\u003EPreemie to Pre-Med,\u003C\u002Fa\u003E a nonprofit organization that raises money for child life programs at hospitals.\r\n\r\n“When a child life specialist took a doll and demonstrated what a catheter line meant or what this surgery meant or how to take care of a scar, it made it seem less scary and helped spark my interest in medicine,” Lena says.\r\n\u003Ch2\u003EFundraising During the Pandemic\u003C\u002Fh2\u003E\r\nIn the early days of the COVID-19 pandemic, when Lena learned that hospitals shut down their student and volunteer programs, she decided she still wanted to help.\r\n\u003Cblockquote class=\"pull-quote-blockquote\"\u003E\"We had a team of 30 college students who came together and helped make this possible.\"\u003C\u002Fblockquote\u003E\r\nHer mother, \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fmarathon-runner-b-papadakis\u002F\"\u003EB Papadakis,\u003C\u002Fa\u003E who ran on the 2019 Mass General Emergency Response marathon team as a way to thank the hospital that saved her three daughters’ lives, suggested Lena try fundraising.\r\n\r\n[caption id=\"attachment_1047679\" align=\"alignleft\" width=\"300\"]\u003Cimg class=\"size-medium wp-image-1047679\" src=\"\u002F\u002Fcdn.giving.massgeneral.org\u002Fassets\u002FLena-with-doll-300x300.png\" alt=\"Lena Papadakis with her doll from child life.\" width=\"300\" height=\"300\" \u002F\u003E Lena Papadakis with her doll from Child Life.[\u002Fcaption]\r\n\r\nLena reached out to friends in Boston and around the country who were also interested in pursuing medical careers.\r\n\r\nThey publicized their fundraising through social media, college newspapers and television news. Together, they raised more than $32,000, which included monetary donations as well as iPads and gift cards for the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fchildren\u002Fchild-life\"\u003EJohn Hancock Child Life and Wellness Program at MassGeneral Hospital for Children.\u003C\u002Fa\u003E\r\n\r\n“It was an amazing experience. One of the things I want to highlight was that it was not a singular effort on my part. We had a team of about 30 college students who came together and helped make this possible,” Lena says.\r\n\r\n\u003Cem\u003EPlease \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Courtney+Connolly&amp;about=child+life\"\u003Econtact us\u003C\u002Fa\u003E to learn more about the John Hancock Child Life and Wellness Program at MassGeneral Hospital for Children.\u003C\u002Fem\u003E",post_title:"Former Pediatric Patient Gives Back to Child Life Program",post_excerpt:"Lena Papadakis says that her passion for supporting child life comes from her own experience.",post_status:g,comment_status:aa,ping_status:aa,post_password:a,post_name:"former-pediatric-patient-gives-back-to-child-life-program",to_ping:a,pinged:a,post_modified:"2021-10-01 03:19:52",post_modified_gmt:"2021-10-01 07:19:52",post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fformer-pediatric-patient-gives-back-to-child-life-program\u002F",menu_order:eO,post_type:y,post_mime_type:a,comment_count:f,filter:d,fronted_path:"stories\u002Fformer-pediatric-patient-gives-back-to-child-life-program"}],no_results_search_text:"Learn more about how your support fuels previously unimaginable possibilities in research and patient care. ",number_of_top_searches_to_return:"16",override_popular_search_terms:s,popular_search_terms:"ALS\r\nMarathon Team\r\nTermeer Center\r\nKrantz Family Center for Cancer Research \r\nCorrigan Minehan Heart Center\r\n\r\n\r\n",swiftype_extra_settings:{post_types_default_boost_values:{our_impact_default_boost:fD,post_default_boost:kT,event_default_boost:"3",page_contact_role_default_boost:fD,page_donation_role_default_boost:"4",page_how_to_give_role_default_boost:hd,page_where_to_give_role_default_boost:hd,page_default_boost:fD},enable_boost_values_by_date:s,global_boost_date:"20180201",global_date_boost_value:".01"}}}},pages:e$,currentPage:T},"data-v-55c6afcc:0":{postData:{image:{ID:kU,id:kU,title:"65882_Top view of MGH",filename:"RS65882_Top-view-1-1-scr-e1624562149946.jpg",filesize:122070,url:aE,link:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fwhere-to-give\u002Fthe-mgh-fund\u002Frs65882_top-view-1-1-scr\u002F",alt:kV,author:q,description:a,caption:a,name:"rs65882_top-view-1-1-scr",status:u,uploaded_to:kW,date:"2021-06-14 20:44:46",modified:"2021-06-17 18:45:54",menu_order:b,mime_type:t,type:w,subtype:M,icon:x,width:cJ,height:de,sizes:{thumbnail:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FRS65882_Top-view-1-1-scr-e1624562149946-220x220.jpg","thumbnail-width":h,"thumbnail-height":h,medium:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FRS65882_Top-view-1-1-scr-e1624562149946-300x140.jpg","medium-width":p,"medium-height":h$,medium_large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FRS65882_Top-view-1-1-scr-e1624562149946-768x359.jpg","medium_large-width":k,"medium_large-height":hc,large:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FRS65882_Top-view-1-1-scr-e1624562149946-1024x479.jpg","large-width":k,"large-height":hc,"1536x1536":aE,"1536x1536-width":cJ,"1536x1536-height":de,"2048x2048":aE,"2048x2048-width":cJ,"2048x2048-height":de,"mgh-mobile":aE,"mgh-mobile-width":B,"mgh-mobile-height":he,"mgh-tablet":aE,"mgh-tablet-width":N,"mgh-tablet-height":479,"mgh-desktop-1":aE,"mgh-desktop-1-width":cJ,"mgh-desktop-1-height":de,"mgh-desktop-2":aE,"mgh-desktop-2-width":cJ,"mgh-desktop-2-height":de,"mgh-max-size":aE,"mgh-max-size-width":cJ,"mgh-max-size-height":de,"mgh-card-mobile":aE,"mgh-card-mobile-width":ah,"mgh-card-mobile-height":kX,"mgh-card-tablet":aE,"mgh-card-tablet-width":D,"mgh-card-tablet-height":kY,"mgh-card-desktop":aE,"mgh-card-desktop-width":L,"mgh-card-desktop-height":kZ,"mgh-card-highlight-mobile":aE,"mgh-card-highlight-mobile-width":276,"mgh-card-highlight-mobile-height":o,"mgh-card-highlight-tablet":aE,"mgh-card-highlight-tablet-width":I,"mgh-card-highlight-tablet-height":222,"mgh-card-highlight-desktop":aE,"mgh-card-highlight-desktop-width":B,"mgh-card-highlight-desktop-height":z,"mgh-event-card-mobile":aE,"mgh-event-card-mobile-width":J,"mgh-event-card-mobile-height":76,"mgh-event-card-tablet":aE,"mgh-event-card-tablet-width":aX,"mgh-event-card-tablet-height":J,"mgh-event-card-desktop":aE,"mgh-event-card-desktop-width":L,"mgh-event-card-desktop-height":kZ,"mgh-social":aE,"mgh-social-width":cJ,"mgh-social-height":de,"post-thumbnail":aE,"post-thumbnail-width":cJ,"post-thumbnail-height":de}},image_alt:kV,title:"Donate",description:"Together, we can shape the future of health care. ",primary_link:{title:hf,url:k_,target:a},primary_link_type:k$,secondary_link:a,template:O,expire_url_redirect:a}}},error:P,state:{modal:c,modalContent:a,donatecta:c,hideDonateElements:{},mainMenuCTA:{enable_override:c,link_configuration:c},footerMenu:{featured:{items:[{ID:la,post_author:q,post_date:df,post_date_gmt:hg,post_content:"Inspiration. You can find it in every Mass General story. ",post_title:lb,post_excerpt:a,post_status:g,comment_status:e,ping_status:e,post_password:a,post_name:"stories-2",to_ping:a,pinged:a,post_modified:df,post_modified_gmt:fO,post_content_filtered:a,post_parent:b,guid:"https:\u002F\u002Fgiving.massgeneral.org\u002F?p=1058131",menu_order:T,post_type:C,post_mime_type:a,comment_count:f,filter:d,db_id:la,menu_item_parent:f,object_id:"1058067",object:n,type:ax,type_label:ay,url:"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fstories\u002F",title:lb,target:a,attr_title:a,classes:[a],xfn:a,acf:{description:"Find out what makes Mass General unique. 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And we need your help to write the next chapter.",36,1536,1568,24,35,"Cancer Center","cancer-center","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fhomepage\u002F","Banner Campaigns","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002F","\u002Fwhere-to-give\u002Fhome-base\u002F","\u002Fmgh-development-careers","\u002Fhow-to-give\u002Fmy-giving-helps",143,106,"donor-story",643,"container-md",515,1044,"2021-08-17 23:16:42","author",516,992,291,"PropertyValueSpecification","search_term_string","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Flegacy-challenge\u002F","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002F2023-fye-triple-match\u002F","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday-today\u002F","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday-2024\u002F","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday\u002F","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fmodal_campaign\u002Fgivingtuesday-2024\u002F",322,365,486,95,272,226,758,1069764,"RichTextWysiwyg",488,"2021-08-03 23:02:16","2021-08-05 12:14:40","2024-03-13 10:27:05","Corrigan Minehan Heart Center",1451,202,49,118,1060462,"link","mcw47",1199,1120,558,910,"_blank","617","\u002Fthe-charley-davidson-childrens-cancer-fund","2024 &#8211; MGH Fund &#8211; Giving Tuesday",4,1440,"2021-08-08 23:46:06","status-publish","hentry","entry",683,"Giving News","giving-news","category","MCW47",212,316,1328,"follow","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMGH-Campaign-Logo__2-Color-Logo-scaled-2-1.png","change-status","draft","og:locale","og:type","og:title","og:url","og:site_name","article:publisher","article:modified_time","og:image","og:image:width","2000","og:image:height","1333","og:image:type","twitter:card","twitter:site","index, follow, max-image-preview:large, max-snippet:-1, max-video-preview:-1","wp","https:\u002F\u002Fapi.w.org\u002F{rel}","2021-06-30 22:00:45","2023-07-11 18:39:16",1061080,"light_teal","within","Neuroscience","neuroscience","Sean M. Healey & AMG Center for ALS at Mass General",346,"primary","Patient Story",993,524,"2022-06-02 18:24:23",5,1058059,155,"\u003Cspan class=\"TextRun SCXW97712042 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003EImagine a future where we \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun AdvancedProofingIssueV2 SCXW97712042 BCX0\"\u003Ehave the ability to\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003E transform the care of cancer patients by detecting and treating their disease\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003E \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003Ebefore it spreads.\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003E \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003EWith your help, we\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003E'\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003Ell seize these opportunities\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003E and \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003Eturn this ambitious vision into reality.\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW97712042 BCX0\"\u003E \u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW97712042 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",1087,998,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fhomepage\u002F#primaryimage","Legacy Challenge - Massachusetts General Hospital Giving","noindex","noindex, follow","2023 FYE Triple Match - Massachusetts General Hospital Giving","Giving Tuesday - Day Of - Massachusetts General Hospital Giving","Giving Tuesday - Massachusetts General Hospital Giving","image\u002Fpng","png","We are driven to unlock the mysteries of the brain to improve patient outcomes.",82,2048,"left","patient-story",6,"2021-08-05 16:14:40",682,193,1602,"required name=search_term_string","type-banner_campaign","2024-11-29 16:04:08","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fwp-json\u002Fwp\u002Fv2\u002Fbanner_campaign","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fwp-json\u002Fwp\u002Fv2\u002Ftypes\u002Fbanner_campaign","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2411-MGHFund-GT-Modal.jpg","https:\u002F\u002Fgiving.massgeneral.org","email_only",void 0,"Legacy Challenge","dark_teal","above",1063817,"2023 FYE Triple Match",1068489,"2023-09-08 17:53:57","Giving Tuesday &#8211; Day Of","2311-MGHFund-GT-Line-BannerBlue","2311-MGHFund-GT-Line-BannerBlue.jpg",194113,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday\u002F2311-mghfund-gt-line-bannerblue\u002F","A line art drawing of a hand holding a heart, with the Giving Tuesday logo beside.","Image for Giving Tuesday 2023 web assets","2311-mghfund-gt-line-bannerblue","2023-11-17 19:29:51","2023-11-17 19:30:04","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2311-MGHFund-GT-Line-BannerBlue-220x220.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2311-MGHFund-GT-Line-BannerBlue-300x143.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2311-MGHFund-GT-Line-BannerBlue-768x365.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2311-MGHFund-GT-Line-BannerBlue-1024x486.jpg","Support our Million Dollar Match","Donate Now",1075021,"Double your impact. Give today.","Giving Tuesday starts in:","Giving Tuesday is almost here!","Giving Tuesday","https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate","1",1066379,"ImageDisplay",1066415,"healeyctrsign",183,458,958,"body","Hospital News",27,"2021-08-04 03:02:16","Massachusetts General Hospital","2024-03-13 14:27:05","The Campaign for Mass General","SPS_6859_BearwalkMGH",986,1620,1045,210,"617.726.2200",598,57,"125 Nashua Street, Boston, MA, USA",1060573,94,2560,1920,173,113,"Learn more","Phillip and Susan Ragon Building",160,576,32,37,"heart-center","\u003Cspan class=\"TextRun SCXW239748059 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"\u003E\u003Cspan class=\"NormalTextRun SCXW239748059 BCX0\"\u003EWe\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW239748059 BCX0\"\u003E’\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW239748059 BCX0\"\u003Ere shifting our focus to continuous care across the lifespan, partnering with our patients to prevent illness; diagnosing it early when it does occur; and personalizing treatment for the best possible outcome.\u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW239748059 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",38,1018,"cg191","2024-11-04T14:51:15+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fhomepage\u002F#breadcrumb","2023-06-01T11:58:28+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Flegacy-challenge\u002F#breadcrumb","2023-09-28T16:15:58+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002F2023-fye-triple-match\u002F#breadcrumb","2023-11-28T21:10:26+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday-today\u002F#breadcrumb","2024-11-22T21:04:06+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday-2024\u002F#breadcrumb","2023-11-17T19:30:17+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002Fgiving-tuesday\u002F#breadcrumb","2024-11-18T17:16:03+00:00","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fmodal_campaign\u002Fgivingtuesday-2024\u002F#breadcrumb",147,"42","\u003Cp\u003Efor signing up to receive the latest news from\u003Cbr \u002F\u003E\nMass General. Look for your next edition of\u003Cbr \u002F\u003E\n\u003Cem\u003EInside Mass General\u003C\u002Fem\u003E in your inbox.\u003C\u002Fp\u003E\n","Sign up for our newsletter.","\u002Fmy-giving-helps","Support the MGH Fund","\u002Fmy-giving-helps-winter-raffle",18,"Leading the Charge in ALS Therapy Research and Development","Mass General physician-investigators are considered leaders in the research and discovery of novel, effective therapies for patients with amyotrophic lateral sclerosis (ALS). Merit Cudkowicz, MD, MSc, director of the Sean M. Healey & AMG Center for ALS, shares her insights.","Quote","FloatingFeature",463,123,342,"w-full","Nursing and Patient Care","nursing-and-patient-care","For over 200 years, Mass General nurses and health professions colleagues have been pioneers in clinical practice. Invest in the next 200 years of nursing and patient care services excellence. ",21,"Research Institute","research-institute","\u003Cspan class=\"TextRun SCXW170387659 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"\u003E\u003Cspan class=\"NormalTextRun SCXW170387659 BCX0\"\u003EBreakthrough science and compassionate care come together at Mass General like nowhere else. We invite you to advance transformative science \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW170387659 BCX0\"\u003Ein partnership \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW170387659 BCX0\"\u003Ewith the world\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW170387659 BCX0\"\u003E'\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW170387659 BCX0\"\u003Es leading interdisciplinary biomedical research teams\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW170387659 BCX0\"\u003E.\u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW170387659 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",139,70,50,351,"5",359,"Give Now","2021-06-03 04:43:02","2021-06-02 15:59:39","Top Quality Care","Innovative Research","Excellence in Education","corrigan-minehan-heart-center","2021-07-15 02:34:06",7,"Boston","MA","image\u002Fsvg+xml","svg+xml",9,"Homepage",987,1058070,"2021-06-02 21:15:55","2021-06-03 01:15:55","2023-10-31 11:15:11","2023-10-31 15:15:11","https:\u002F\u002Fgiving.massgeneral.org\u002Fneuroscience-copy\u002F",161,"Support the Mass General Cancer Center","\u002Fdonate\u002Fcancer-center","Kelsey Abbruzzese","kelsey-abbruzzese",341,"SectionId","my-16","mt-16",282,278,"page_role","Mass General Giving","mass-general-giving",1059171,"2021-07-08 17:07:14","2021-07-08 21:07:14","2023-12-06 17:14:34","2023-12-06 22:14:34","https:\u002F\u002Fgiving.massgeneral.org\u002F?page_id=1059171",1058686,"https:\u002F\u002Fgiving.massgeneral.org\u002Fsearch\u002F?keyword=",{},1058745,"planned_giving","2021-06-23 20:32:50",140,"6LfHki8bAAAAAIoGUybSsxR4usvUpETe_eRmBXRL",1067273,"\u003Csvg viewBox=\"0 0 100 95\" fill=\"none\" xmlns=http:\u002F\u002Fwww.w3.org\u002F2000\u002Fsvg xmlns:xlink=http:\u002F\u002Fwww.w3.org\u002F1999\u002Fxlink\u003E\r\n\u003Cg style=\"mix-blend-mode:screen\"\u003E\r\n\u003Crect y=\"0.735352\" width=\"100\" height=\"93.5294\" fill=\"url(#pattern0)\"\u002F\u003E\r\n\u003C\u002Fg\u003E\r\n\u003Cdefs\u003E\r\n\u003Cpattern id=\"pattern0\" patternContentUnits=\"objectBoundingBox\" width=\"1\" height=\"1\"\u003E\r\n\u003Cuse xlink:href=\"#image0_4326_30718\" transform=\"matrix(0.0105519 0 0 0.0125 0.142857 -0.0125)\"\u002F\u003E\r\n\u003C\u002Fpattern\u003E\r\n\u003Cimage id=\"image0_4326_30718\" xlink:href=\"data:image\u002Fpng;base64,iVBORw0KGgoAAAANSUhEUgAAAEAAAABSCAYAAADkd9JOAAAEm0lEQVR4Ae2bvW8UMRDF8zdSIkSFUvPRBdEgARIVILooFQXQICKKNFCkipCoAIkGkCgoIiQaPtqg3xKvLJ\u002Ft8dize3u3u9JpfV7b897z2DPrXHZ2vOvC5WsX5\u002FDxKP8vXtrdu\u002FL8xdHhx0+fv5xt+QVHuMK5Y0\u002Fh67fvp1vOe4UenDsRUGPl6Uwq4L4zB7dPzSfcFwFmvwRmvwkSChABT9j2\u002FeD3n79nK2HQTwpiSVBqA9mU+hgnn3O2TOdNIZrCCYcsydzDRYDFA5YlsOwBqc1lU+qXTXCJAo1hMJcdnv74+QsXW+eH7C51gb1pCZAj5ATAcLOBXCIiPMN2ijz1YBeGkB+fvHv\u002FIWfkxs37e\u002FIow7TAdg4b2JstS6\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\u002Flgsh9EPRDSHFj5Yv2wlAGO6E6fo7mxd2eL2QwnAuKNsjMxa6d8GfLKxsqUHuPEH\u002FZsAgKX83gEpuQ8hAHbB6I9ttgJw\u002FZITmxLytPFBUi7tJ7UDI1jNiDMQAKVfikjAwudDCYAdsPrjN4thPfuA9AFSDgVq+W7uBSXndVrAQwoAFjA3z7xzf0KMlmCuPTMUCmC5v2AbzL6NajHIsnJktM9cvPbBUbbKL3w8Jpuhpfs78qnZsBbBZBlY7f6lJzp4Q8mJkj\u002FTqbLJ7wSls72Ucb++lLzzDCsRwO7GrL63CoAb+uu9FAh9Wpff2gWoJe9EahUBAWrEd\u002Fa7DLDGAwhpvDI3GT9HwRi1r99huO2JlRYw7q\u002FlkrIleYezRYSmSdAK4MJck1HHOrgzZk2YbMKiEcCRD3Cbf9WKMIoA2jDXqgqkSnOFZgGk3+yMTd6JVypCswC5ja81zDkytXfISbmCSgAah5+UAI582H4d33MixPCsCM7GQt5cE\u002FNTAk21Ho5whXMnhHZXnSoxLa4+alm97WkBTKF997Y4B7dPiQ138T9DU523ob4TYPZLYPabIKFgLmGQN9WVMOgnBbGkYRvrfM7\u002FALVovPqbZiUYAAAAAElFTkSuQmCC\"\u002F\u003E\r\n\u003C\u002Fdefs\u003E\r\n\u003C\u002Fsvg\u003E","Impact Health Care Today – Without Writing a Check!","Act now to receive a matching gift through the Mass General Legacy Challenge, up to $25,000, before June 30. ","Join the Challenge","https:\u002F\u002Fgiving.massgeneral.org\u002Flegacychallenge","There is still time to give to Mass General.","\u002Fwhere-to-give\u002Fhome-base","\u002Fraffle-purchase","\u002Flegacychallenge","Triple the impact of your support","The MGH Fund Triple Match Challenge ends September 30","Please help us meet our ambitious $250,000 fundraising goal — when your tax-deductible gift to the MGH Fund will be matched two-to-one, tripling its impact.","Triple Your Impact","https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fgive-to-the-mgh-fund?september&utm_content=mgh-fund-2023-september-appeal-web-assets&atlas_attribution=countdown-timer","Time left to triple your impact:","\u002Fmarathon-team-application","\u002Fmgh-fund-triple-match-challenge","\u002Ffueling-the-engine-of-cancer-discovery","\u002Fproduct","\u002Fstories\u002Ftest-story","MGHFund banner 0923","MGHFund-banner-0923.jpg",201945,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fbanner_campaign\u002F2023-fye-triple-match\u002Fmghfund-banner-0923\u002F","mghfund-banner-0923","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMGHFund-banner-0923-220x220.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMGHFund-banner-0923-300x143.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMGHFund-banner-0923-768x365.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMGHFund-banner-0923-1024x486.jpg",1061170,"Today is Giving Tuesday! Support the MGH Fund now and have your gift matched, dollar-for-dollar.","https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fgive-to-the-mgh-fund?givingtuesday&utm_content=mgh-fund-2023-November-GT-web-assets&atlas_attribution=countdown-timer","Time left to double your impact:","Giving Tuesday Starts Now",{},1076546,"2409-MGHFund-FYE-Banner","2409-MGHFund-FYE-Banner.jpg",25578,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?attachment_id=1075021","A line drawing depicting a clock.","Image for MGH Fund FY24 FYE campaign","2409-mghfund-fye-banner",1075020,"2024-08-28 17:36:11","2024-08-28 17:36:55","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2409-MGHFund-FYE-Banner-220x220.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2409-MGHFund-FYE-Banner-300x143.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2409-MGHFund-FYE-Banner-768x365.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002F2409-MGHFund-FYE-Banner-1024x486.jpg","Don't wait! Double your impact now - make your gift to the MGH Fund today, and it will be matched dollar-for-dollar.","https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fgive-to-the-mgh-fund?november&utm_campaign=mgh-fund-2024-november-giving-tuesday-web-assets&atlas_attribution=countdown-timer","\u002Fpatrick-ellinor","\u002Fmgb-integration","\u002Fhow-to-give\u002Fplan-a-gift","\u002Fthe-smiley-fund","Support the MGH Fund this Giving Tuesday and have your gift matched, dollar-for-dollar.","https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fgive-to-the-mgh-fund?november&utm_content=mgh-fund-2023-November-GT-web-assets&atlas_attribution=countdown-timer","https:\u002F\u002Fgiving.massgeneral.org\u002Fsearch\u002F?tags%5B%5D=ALS","ALS House Calls Helps Patients Stay Connected to Care","The EGL Charitable Foundation recently endowed a unique Mass General program that provides in-home care to patients living with amyotrophic lateral sclerosis (ALS).","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FALS2.jpg","https:\u002F\u002Fgiving.massgeneral.org\u002Fstories\u002Fleading-the-charge-in-als-therapy-research-and-development\u002F","2023-05-04 10:38:32","2023-05-04 14:38:32","Physician-investigators at \u003Ca href=\"http:\u002F\u002Fwww.massgeneral.org\" target=\"_blank\" rel=\"noopener\"\u003EMassachusetts General Hospital\u003C\u002Fa\u003E are leading worldwide efforts to tailor the research and discovery of novel, effective therapies for patients with amyotrophic lateral sclerosis (ALS). Among neurodegenerative diseases, ALS is the most rapidly fatal, with treatment limited to symptom management and mortality from onset generally within three years.\r\n\r\n\"Partnerships with researchers and philanthropic support both at home and abroad have facilitated the rapid discovery of effective treatment options for ALS patients,\" explains \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fdoctors\u002F16904\u002Fmerit-cudkowicz\" target=\"_blank\" rel=\"noopener\"\u003EMerit Cudkowicz, MD, MSc,\u003C\u002Fa\u003E chair of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\" target=\"_blank\" rel=\"noopener\"\u003EDepartment of Neurology\u003C\u002Fa\u003E and director of the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\" target=\"_blank\" rel=\"noopener\"\u003ESean M. Healey &amp; AMG Center for ALS.\u003C\u002Fa\u003E \"Our ability to simultaneously perform multiple clinical trials worldwide has prolonged the lives of ALS patients and transformed the landscape of ALS research.\"\r\n\u003Ch2\u003EOptimizing and Accelerating Discovery\u003C\u002Fh2\u003E\r\nDr. Cudkowicz was an original co-founder and co-director of the Northeast ALS (NEALS) Consortium, which began in 1995 as a collaboration between nine academic centers and has since grown to 140 research centers worldwide. Their goal was to drive ALS research toward clinical trials that would increase the spectrum of therapeutic options for patients.\r\n\r\nUntil relatively recently, translation of advances in the understanding of ALS pathophysiology was hindered by a lack of infrastructure and coordination necessary to support clinical trials. Additionally, disease heterogeneity within the patient population often precluded the identification of appropriate outcomes for trials of a given therapy.\r\n\r\nAddressing these limitations in the discovery process requires the flexibility and funding to rapidly adapt the drugs being tested to patient responses. In 2018, the launch of the Sean M. Healey &amp; AMG Center for ALS offered an opportunity to initiate the \u003Ca href=\"https:\u002F\u002Fwww.massgeneral.org\u002Fneurology\u002Fals\u002Fresearch\u002Fplatform-trial\" target=\"_blank\" rel=\"noopener\"\u003EPlatform Trial for ALS.\u003C\u002Fa\u003E Platform trials utilize a master protocol to simultaneously evaluate multiple treatments, including combinations of treatments, and perform comparisons of competing treatments across a patient cohort.\r\n\r\n[caption id=\"attachment_1066401\" align=\"alignleft\" width=\"220\"]\u003Cimg class=\"wp-image-1066401 size-full\" src=\"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FMeritTN.jpg\" alt=\"\" width=\"220\" height=\"220\" \u002F\u003E Merit E. Cudkowicz, MD, MSc[\u002Fcaption]\r\n\r\n\u003Cstrong\u003EThe outcomes support the efficiency of this approach:\u003C\u002Fstrong\u003E\r\n\u003Cul\u003E\r\n \t\u003Cli\u003EDecreases in the time for patients to obtain treatments by 50%\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EReductions in research costs by at least 30%\u003C\u002Fli\u003E\r\n \t\u003Cli\u003EIncreases in patient receipt of therapeutic interventions by 67%\u003C\u002Fli\u003E\r\n\u003C\u002Ful\u003E\r\nDr. Cudkowicz attributes the speed with which the platform trial was established to the wealth of experience with clinical trials at NEALS, the infrastructure at Mass General, and the generosity of Sean Healey and AMG.\r\n\r\n\"Platform trials generally require years to design and obtain funding,\" she says. \"We stood up the Platform Trial for ALS within one year of its initial design and obtained data on four drugs approximately two years later.\"\r\n\r\nThe rapid progress in these trials continues: Enrollment will begin in May 2023 for a trial of the seventh drug to be tested in five years. Although over 80 companies have applied to be part of the Healey ALS Platform Trial for ALS, Dr. Cudkowicz describes the search for new drugs as an ongoing process of outreach and evaluation.\r\n\r\n\"Although not all of the companies have drugs prepared for a Phase 2 trial, the opportunity to identify solid science at an early stage is invaluable.\"\r\n\u003Ch2\u003ETransforming Ideas Into Innovations\u003C\u002Fh2\u003E\r\nApproximately 10% of ALS-affected patients present a family history of the disease (fALS), with the remaining patients classified as having sporadic ALS (sALS). Although different, the genetic presentation in both patient subsets results in the degeneration and death of motor neurons. ALS research has demonstrated promising results in identifying and addressing the mechanistic origins of neuronal dysfunction and death.","leading-the-charge-in-als-therapy-research-and-development","2023-12-06 17:12:56","2023-12-06 22:12:56","https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?p=1066379","Accordion","Rescuing Neurons From Degeneration","\u003Cp\u003EHealthy cells, including neurons, require mitochondria for energy and a functional endoplasmic reticulum to direct proper protein folding, modification, and transport. Dysfunction in either or both initiates a stress response that can ultimately lead to cell death. In one case, identifying compounds capable of targeting and rescuing each respective function resulted in the founding of a company and its subsequent role in ALS research.\u003C\u002Fp\u003E\n\u003Cp\u003EPreclinical evidence demonstrated the efficacy of combining both compounds to increase neuron survival. A randomized, double-blind, placebo-controlled trial (CENTAUR) designed and conducted through the NEALS Consortium revealed that the combination drug (AMX0035) significantly slowed ALS progression and increased survival by 6.5 months. Dr. Cudkowicz was also the senior author on papers reporting results from patients enrolled in the open-label extension (OLE) of the trial, which revealed increased survival up to 10.5 months and reduced risk of death and tracheostomy or permanent assisted ventilation.\u003C\u002Fp\u003E\n\u003Cp\u003EThe OLE data were key to Health Canada and Food and Drug Administration approvals of the drug (Albrioza in Canada and Relyvrio in the U.S.) for treating adult ALS patients in 2022. The ongoing phase 3 trial (PHOENIX) to obtain additional safety and efficacy data finished enrollment in February 2023. Dr. Cudkowicz describes this as an opportunity to treat a larger population of ALS patients over a longer period of time.\u003C\u002Fp\u003E\n\u003Cp\u003E&#8220;The CENTAUR study included only patients with rapidly progressing ALS,&#8221; she explains. &#8220;The expanded inclusion criteria and longer timeline required by the European Medicines Agency for the PHOENIX study offer an opportunity to confirm treatment efficacy in a much broader global population of ALS patients.&#8221;\u003C\u002Fp\u003E\n","Targeting RNA to Address the Effects of ALS-Related Mutations","\u003Cp\u003EPathologies associated with genetic alterations present in both fALS and sALS patients involve consequences stemming from the transcription of mutated genes. Subsequent translation of mutated transcripts can produce proteins demonstrating either gain or loss of function, mislocalization within the cell or a combination of both.\u003C\u002Fp\u003E\n\u003Cp\u003ERecent evidence has reinforced the effectiveness of antisense oligonucleotides (ASOs) as a viable treatment modality through their ability to address these effects at the translation stage. ASOs are short, synthetic ssRNAs designed to selectively bind a complementary sequence present in specific RNAs. Their clinical utility is highlighted by an ability to be administered intrathecally, which promotes access to targets associated with neurodegeneration in both the brain and spinal cord.\u003C\u002Fp\u003E\n\u003Cp\u003ESince the discovery of SOD1 as the first ALS-associated gene, reported in Nature by Robert Brown, MD, PhD—formerly of Mass General—and his collaborators, significant effort has focused on the effects accompanying its mutations and the wide variability in their clinical presentation. Among those efforts was a Phase I\u002FII conducted through the NEALS Consortium in 2016 that published its findings in The New England Journal of Medicine (NEJM), showing that the dosing strategy for an ASO targeting SOD1 mRNA (Tofersen) to reduce the synthesis of misfolded SOD1 variants implicated in ALS pathogenesis.\u003C\u002Fp\u003E\n\u003Cp\u003EThe subsequent phase III trial, results summarized in the NEJM, and its OLE study reported the following effects of intrathecal administration of Tofersen to SOD1 ALS patients:\u003C\u002Fp\u003E\n\u003Cul\u003E\n\u003Cli\u003ELower levels of SOD1 protein\u003C\u002Fli\u003E\n\u003Cli\u003ESignificantly lower levels of a biomarker of axonal damage (neurofilament light chain), suggesting a substantial slowing of neurodegeneration\u003C\u002Fli\u003E\n\u003Cli\u003EStabilized or improved clinical presentations during the longer-term follow-up period\u003C\u002Fli\u003E\n\u003C\u002Ful\u003E\n\u003Cp\u003EAs a co-principal investigator on the trial, Dr. Cudkowicz explains that although the primary endpoints were not met according to the six-month timeline, the longer-term outcomes are very encouraging. In fact, they are still following patients that participated in the Phase I trial.\u003C\u002Fp\u003E\n\u003Cp\u003E&#8220;Advances in ASO technology along with these findings reinforce my early belief in their potential as an effective gene therapy for ALS patients,&#8221; she says. &#8220;Our data suggest that although this strategy may require longer timelines, the outcomes appear largely in favor of the patients.&#8221;\u003C\u002Fp\u003E\n","healeyctrsign.jpg",171703,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fstories\u002Fleading-the-charge-in-als-therapy-research-and-development\u002Fhealeyctrsign\u002F","2023-04-19 17:30:32","2023-04-19 17:30:50",2096,1280,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-220x220.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-300x183.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-768x469.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-1024x625.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-1536x938.jpg",938,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-2048x1251.jpg",1251,469,625,904,1572,1638,122,136,290,590,1769,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002Fhealeyctrsign-1568x958.jpg","mt-6 mb-14","\u003Ch2\u003EThe Right Place to Address the Most Difficult Problems\u003C\u002Fh2\u003E\n\u003Cp\u003EAccording to Dr. Cudkowicz, Mass General fosters a culture of collaboration that promotes a unique ecosystem.\u003C\u002Fp\u003E\n\u003Cp\u003E&#8220;Our trials have been consistently supported by every discipline and area within Mass General. The ability to engage in the research and perform the number of trials we have requires levels of support and effort that may not have been possible elsewhere,&#8221; she says.\u003C\u002Fp\u003E\n\u003Cp\u003EAlthough a substantial focus is put on the researchers involved in these discoveries, too little is often afforded to the patients who make such clinical trials possible. The Mass General community makes significant efforts to prioritize and accommodate ALS patients and their families.\u003C\u002Fp\u003E\n\u003Cp\u003E&#8220;We want every patient to have access to both excellent care and opportunities to benefit from the latest research,&#8221; says Dr. Cudkowicz. These aspects of excellent care include home visits to accommodate patients and providing care to caregivers.\u003C\u002Fp\u003E\n\u003Cp\u003E&#8220;We represent a beacon of hope for ALS patients that come here knowing they have access to the latest clinical trials,&#8221; she adds. &#8220;We want to ensure they receive the best care possible during that process.&#8221;\u003C\u002Fp\u003E\n\u003Cp\u003E\u003Cem\u003EThis story first appeared in Mass General&#8217;s \u003Ca href=\"https:\u002F\u002Fadvances.massgeneral.org\u002Fneuro\u002Farticle.aspx?id=1521\" target=\"_blank\" rel=\"noopener\"\u003EAdvances in Motion.\u003C\u002Fa\u003E\u003C\u002Fem\u003E\u003C\u002Fp\u003E\n\u003Cp\u003E\u003Cem\u003EYou can help scientists discover new treatments for people living with ALS, with a donation to the \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fhealey-center\u002F\"\u003ESean M. Healey &amp; AMG Center for ALS.\u003C\u002Fa\u003E For more information, please \u003Ca href=\"https:\u002F\u002Fgiving.massgeneral.org\u002Fcontact\u002F?route_to=Emily+Monteiro&amp;about=Healey+Center\"\u003Econtact us.\u003C\u002Fa\u003E\u003C\u002Fem\u003E\u003C\u002Fp\u003E\n","\"We represent a beacon of hope for ALS patients that come here knowing they have access to the latest clinical trials. We want to ensure they receive the best care possible during that process.\"","Merit Cudkowicz, MD, MSc","Chair of the Department of Neurology","Massachusetts General Hospital physician-investigators established Platform Trials for ALS, allowing rapid testing of multiple investigational therapies and comparing competing treatments among patients","Ongoing clinical trials worldwide for ALS aim to identify new treatments and confirm the efficacy of proven therapies in a broader population of patients","The successful relyvrio and tofersen clinical trials offer new hopes of treatments for ALS","Merit Cudkowicz, MD, MSc, chief of Neurology at Mass General, highlights the importance of collaboration and patient-centered care","Digital Data's Potential for Future ALS Treatments and Care","If cardiologists can rely on heart monitors to capture critical patient data and reduce heart disease, why can’t neurologists rely on digital devices to quantify movement, speech or cognition to improve outcomes for people living with ALS (Amyotrophic lateral sclerosis)?",1044751,"The MGH Research Scholars program provides exceptional early and mid-career investigators with the funding to make transformative advances in their research.",185,138,209,293,101,"Feeling at Home and Giving Back to the Healey Center","Following his amyotrophic lateral sclerosis (ALS) diagnosis at Massachusetts General Hospital, Grammy-winning musician John Driskell Hopkins of Zac Brown Band gives $100,000 to advance research at the Healey Center.","2023-01-26 14:37:59","2023-01-26 19:37:59","Supporting Efforts to PREVENT ALS","Smith Family Foundation offers a fundraising challenge to advance research to stop ALS before it starts.","Why I Give: Tim Green","Being an NFL player was a childhood dream for Tim Green. Today, his dream is to find a cure for ALS, the disease he is tackling along with his team at the Sean M. Healey & AMG Center for ALS at Mass General.",10,"ALS Nurse Honored for Making a Difference","Darlene Sawicki, MSN, NP-BC, was recently named the incumbent of the new David Richards Endowed Nursing Chair in ALS.","Teen Reels in Funds to Help Advance ALS Research","A North Carolina teen used a fishing tournament to raise funds for the Healey Center at Mass General where his family's friend, Chris Smith, is a patient.","community-fundraising","ALS Chaplain Offers Spiritual Support and More","Support from Joe Meekins, Mass General ALS chaplain, helps patients, families and staff cope.","Healey Center's Bold Trial Accelerates ALS Research","The Sean M. Healey & AMG Center is launching an innovative ALS research effort that will involve testing several promising therapies at once.","Researchers Target a Protein that Causes Dementia","A new technology developed by Mass General and Dana-Farber shows potential for treating Alzheimer’s and other forms of dementia.",52,12,"Challenge and Opportunity","Diagnosed with ALS, successful business executive Sean Healey has joined forces with Mass General to focus on finding a cure.","ALS: New Center Aims to Change the Field","Thanks to a transformative, $40 million gift, Mass General has opened a new center that will pursue a revolutionary approach to research and care for ALS.","ALS: Mass General and Former NFL Player Team Up","Mass General has joined former NFL football player Tim Green in a fundraising effort designed to bring ALS research to the next level.","Event Highlights Progress on Brain Disease Research","Researchers from the MassGeneral Institute for Neurodegenerative Diseases (MIND) detailed some of the latest advances in brain disease research at MIND's 2018 Visiting Day.","cta",115,"2",1058243,"MGH lit in blue, external shot from above",1058242,93,104,172,"https:\u002F\u002Fgiving.massgeneral.org\u002Fdonate\u002Fgive-to-the-mgh-fund\u002F","donation",1058131,"Stories",1058135,1058132,1058133,1059844,1055748,1055749,"Mass General Brigham",1055750,"Harvard Medical School",1058119,1058121,"privacy-policy",1058123,"social-media-policy",1071909,"Terms of Use and Copyright Notice",1060735,1063124,"The Building for the Future of Health Care",1058093,1058095,"2021-06-03 03:20:08",1058090,"\u002Four-impact\u002Feducation",1058096,"Strong Communities","\u002Four-impact\u002Fstrong-communities",1060736,119024,1058071,1058087,1058074,1059911,1058083,1059276,1055786,"2021-06-02 16:26:38",237,102,"The MGH Fund",1059813,"Make a One-Time Gift",1059815,"2021-08-03 22:54:43","Make a Monthly Gift",1059814,"Make a Tribute Gift",1059278,"Start a Fundraiser",1059749,1059283,"Give as an MGH Employee","my-giving-helps",1059284,1060043,8,1055766,"2021-06-02 16:06:55","Donate now.","Support Mass General today to deliver quality medical care in our community and the world.","Stay informed",{},"mghdevelopment@mgh.harvard.edu",Array(4),"Massachusetts General Hospital is a non-profit 501(c)(3) organization, and donations are tax deductible to the full extent allowed by law. 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",{},1064097,"footerlogo","2022-10-06 14:33:45",31,105,107,51,83,66,{},1064095,"fullheaderlogo","2022-10-06 14:32:52",250,{},1064096,"miniheaderlogo","2022-10-06 14:33:10",232,"Thank you for your response.","022768","GENERAL","MGH Fund\r\nRed Sox Foundation and the Mass General Home Base Program Fund\r\nCancer Center Priorities Fund\r\nCaring for a Cure - Lunder 10 Nursing Fund\r\nCure Diabetes Now Fund\r\nHealey Center for ALS - Gift Fund\r\n2022 Pediatric Cancer Marathon Team Fund\r\nDr. Bradford Dickerson Dementia Research Fund\r\nEveryday Amazing Race Fund\r\n2022 Emergency Response Marathon Team Fund\r\n2022 Home Base Boston Marathon Fund\r\nRare and Refractory Tumor Therapeutics Fund\r\nNeurology Department Fund\r\nTACKLE ALS Fund\r\nLurie Center Clinical Operations Fund\r\nGranite State Quest Fund\r\nCystic Fibrosis Fund\r\nMultiple Myeloma Research Fund\r\nAspire Gala Event Fund\r\nHome Base SWFL Events Fund\r\nMGH Emergency Response Fund\r\nJames Berry Research Fund\r\nMass General Hospital for Children Fund\r\nBreast Cancer Priorities Fund\r\nHome Base Southwest Florida Fund\r\nSurvivorship Program Fund\r\nResearch Fund for Dr. Florian Eichler\r\nMelanoma Research Fund for Dr. Lawrence\r\nPediatric Hematology Oncology Fund\r\nSchmahmann Laboratory Fund for Cerebellum and Ataxia\r\nHealey Center for ALS - Expanded Access Program (EAP)\r\nCharley Davidson Children's Cancer Fund\r\nMeg Dostal Fund for Oligodendroglioma Research in Neuro-Oncology\r\nMartin Non-Research Sundry Fund\r\nBrain Tumor Center Education and Research Fund\r\nAndrea Cahill Fund for Neurofibromatosis 2 Research\r\nPancreatic Cancer Research Fund\r\nStorybook Ball Fund\r\nBe a Piece of the Solution Fund\r\nCenterStage Fund\r\nMelanoma Research Fund\r\nMGH Down Syndrome Program\r\nNeuroimmunological Diseases Fund for Dr. Levy\r\nESSCO - MGH Breast Cancer Research Fund\r\nTargeted Therapy for Acute Leukemia Fund\r\nDepartment of Nursing Fund\r\nTransplant Fund\r\nAlzheimer's Disease Research Center Fund\r\nCancer Center Director's Fund\r\nMGH Stem Cell Transplant Discovery Fund\r\nCeliac Research Center Fund\r\nGastrointestinal Cancer Fund\r\nFriends of the MassGeneral Hospital for Children Fund\r\nNeurosurgery Research Fund\r\nLipin and Ellis Fund for Esophageal Cancer Research\r\nNICU Fund\r\nMedical Genetics Fund\r\nBreast Friends Fund\r\nMass General\u002FNorth Shore Cancer Center Fund\r\nDr. Philip J. 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Kacmarek Fund for Respiratory Therapy Quality Improvement and Research\r\nNovel Advancements in Kidney Disease and Transplantation\r\nHematology\u002FOncology Educational Fund\r\nCharles E. Bradley Fund\r\nLee Baer, PhD Fund for OCD Research and Teaching\r\nElectrophysiology Program Training Fund\r\nCenter for Law, Brain and Behavior Fund\r\nHead and Neck Cancer Fund\r\nPalliative Care Service Fund\r\nBurn Center Development Fund\r\nPsychiatry Academy Fund\r\nBreast Cancer Investigation Fund\r\nInpatient Project Research Fund\r\nCritical Care Research Fund\r\nJeffrey and Mary Ellen Jay Endowed Chair in Heart Failure\r\nChief of Nephrology Fund\r\nLymphoma Research Fund\r\nRonald I. Dozoretz, MD Endowed Chair in Psychiatry\r\nCognitive Behavioral Therapy Clinic for Children and Young Adults Fund\r\nHome Base\r\nMedical Research\r\nHematology Development Fund ","mghdevelopment@partners.org","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FMGH-Campaign-Logo__2-Color-Logo-scaled-2-2.png",42.367998,-71.0650515,14,"ChIJmZ_S1ZNw44kR7CfozTyFiak","125","Nashua Street","Nashua St","Massachusetts","02114","United States","US",{},"homepage","upload",1060733,"2021-10-22 00:39:38","video\u002Fmp4","video","mp4","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fwp-includes\u002Fimages\u002Fmedia\u002Fvideo.png",3840,2160,1060734,"SPS_6859_BearwalkMGH.jpg",54656,"https:\u002F\u002Fadmin.giving.massgeneral.org\u002Falways-ready\u002Fsps_6859_bearwalkmgh\u002F","Research At Mass General","Default image for home page mobile","sps_6859_bearwalkmgh","2021-10-07 20:20:49","2022-11-30 16:20:09","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FSPS_6859_BearwalkMGH-220x220.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FSPS_6859_BearwalkMGH-300x200.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FSPS_6859_BearwalkMGH-768x512.jpg","https:\u002F\u002Fadmin.giving.massgeneral.org\u002Fassets\u002FSPS_6859_BearwalkMGH-1024x683.jpg","Pediatrics","pediatrics","\u003Cspan class=\"TextRun SCXW120044959 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"auto\"\u003E\u003Cspan class=\"NormalTextRun SCXW120044959 BCX0\"\u003EImagine a future where early diagnosis and advanced treatment options optimize health and prevent chronic illness, keeping\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW120044959 BCX0\"\u003E \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW120044959 BCX0\"\u003Ekids healthier and thriving into adulthood. With your help, we will seize these opportunities\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW120044959 BCX0\"\u003E and turn this ambitious vision into reality. \u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW120044959 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E","Marathon Team",1060732,1060700,"The Campaign for Mass General Video",1072764,"marathon-image-card2","2024-04-10 00:08:06",353,482,903,765,1059807,204,1059897,1059670,"2021-07-28 16:33:41",1060582,"We've always been ready.","mb-16",1060487,"2021-09-28 15:57:50",44,"ColumnContent",1060572,1058794,1059997,1073004,"2024-04-24 19:44:42",1065703,"w-1\u002F2",1060685,98,1060584,"2021-10-08 17:54:58",170,497,951,"npr4",962,"srn10",964,"Mass General Giving Mass General Giving mass-general-giving 1054713 admin@giving.massgeneral.org",1332,"MGH Fund: Support Our Greatest Needs","mgh-fund-support-our-greatest-needs","\u003Cspan class=\"TextRun SCXW133992257 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"\u003E\u003Cspan class=\"NormalTextRun SCXW133992257 BCX0\"\u003EFor the first time in history, advances in technology, genetics and data are converging in ways that \u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun AdvancedProofingIssueV2 SCXW133992257 BCX0\"\u003Eopen up\u003C\u002Fspan\u003E\u003Cspan class=\"NormalTextRun SCXW133992257 BCX0\"\u003E previously unimaginable possibilities in research and treatment. Mass General needs your help to capitalize on these possibilities and shape the future of health care\u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"TextRun SCXW133992257 BCX0\" lang=\"EN-US\" xml:lang=\"EN-US\" data-contrast=\"none\"\u003E\u003Cspan class=\"NormalTextRun SCXW133992257 BCX0\"\u003E. \u003C\u002Fspan\u003E\u003C\u002Fspan\u003E\u003Cspan class=\"EOP SCXW133992257 BCX0\" data-ccp-props=\"{}\"\u003E \u003C\u002Fspan\u003E",1017,"Marie Walton","623",1065192,"2023-02-21 15:09:19","2023-02-21 20:09:19","Donate to the Neurology Chief’s Catalyst Endowed Fund","neurology-chief-catalyst-fund","2023-02-21 15:09:29","2023-02-21 20:09:29","https:\u002F\u002Fadmin.giving.massgeneral.org\u002F?page_id=1065192","Support the Department of Neurology at Mass General","\u002Fdonate\u002Fneurology",1043,1058072,"2021-06-02 21:22:41","2021-06-03 01:22:41","2023-12-06 13:25:50","2023-12-06 18:25:50","https:\u002F\u002Fgiving.massgeneral.org\u002Fcancer-center-copy\u002F",158,"Support the Corrigan Minehan Heart Center","\u002Fdonate\u002Fcorrigan-minehan-heart-center",29,1069726,"Double your impact",1069738,1060370,"campaign-logo-tr",72,1059453,378,"1 minute","2021-06-23T20:37:24+00:00","ImageObject",503,"https:\u002F\u002Fcdn3.giving.massgeneral.org\u002Fassets\u002FSPS_6859_BearwalkMGH72.jpg","Welcome to Mass General","Please log in below to access this content. 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