How MS organisations and advocates can help - MS Data AllianceMS Data Alliance

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professionals can help </a> <a class="dropdown-item" href="https://msdataalliance.com/covid-19/for-ms-registers-and-data-custodians/"> How MS registries and data custodians can help </a> <a class="dropdown-item" href="https://msdataalliance.com/covid-19/for-ms-organisations-and-advocates/"> How MS organisations and advocates can help <span class="sr-only">(current)</span> </a> </div> </li> <li class="nav-item dropdown"> <a class="nav-link dropdown-toggle" href="#" id="351" data-toggle="dropdown" aria-haspopup="true" aria-expanded="false"> Activities </a> <div class="dropdown-menu" aria-labelledby="351"> <a class="dropdown-item" href="https://msdataalliance.com/activities/stakeholder-focus-group-meeting-18-nov-2020/"> Stakeholder Focus Group Meeting, 18 Nov. 2020 </a> <a class="dropdown-item" href="https://msdataalliance.com/activities/planned-activities-2020/"> Planned Activities 2020: cancelled/changed due to COVID-19 </a> <a class="dropdown-item" href="https://msdataalliance.com/activities/stakeholder-engagement-meeting/"> MSDA Stakeholder Engagement Meeting, 20 Nov. 2019 </a> </div> </li> <li class="nav-item"> <a class="nav-link" href="https://msdataalliance.com/newsletter/"> Newsletter </a> </li> <li class="nav-item"> <a class="nav-link" href="https://msdataalliance.com/contactus/"> Contact Us </a> </li> </ul> </div> </div> </nav> <main> <div class="main__background"></div> <div> <div class="container"> <div class="row"> <div class="col"> <h1>How MS organisations and advocates can help</h1> </div> </div> <div class="content default"> <div class="row"> <div class="col"> <p><center></p> <div style="width: 640px;" class="wp-video"> <video class="wp-video-shortcode" id="video-601-1" width="640" height="360" poster="https://www.msdataalliance.com/wp-content/uploads/2020/05/weneedyourhelpPLAYorange.jpg" preload="metadata" controls="controls"><source type="video/mp4" src="https://www.msdataalliance.com/wp-content/uploads/2020/04/COVID19_and_MS_animation.mp4?_=1" /><a href="https://www.msdataalliance.com/wp-content/uploads/2020/04/COVID19_and_MS_animation.mp4">https://www.msdataalliance.com/wp-content/uploads/2020/04/COVID19_and_MS_animation.mp4</a></video></div> <h2>Are you from an MS organization?<br /> <span style="font-size: 18pt;">Find out how you can support the Global Data Sharing Initiative</span></h2> <p style="text-align: left;"> <div class="vision-map vision-map-4"data-json-src="https://msdataalliance.com/wp-content/uploads/vision/4/config.json?ver=1586617631" data-item-id="4" tabindex="1" style="display:none;" > <div class="vision-store"> <div class="vision-lr vision-lr-1 vision-lr-type-svg" data-id="1" data-title="Read more 1" ></div> <div class="vision-lr vision-lr-2 vision-lr-type-svg" data-id="2" data-title="Read more 2" ></div> <div class="vision-lr vision-lr-3 vision-lr-type-svg" data-id="3" data-title="Read more 3" ></div> <div class="vision-lr vision-lr-4 vision-lr-type-svg" data-id="4" data-title="Read more 4" ></div> <div class="vision-tt vision-tt-1" data-id="1" ><p>To list of initiatives</p></div> <div class="vision-tt vision-tt-2" data-id="2" ><p>To list of initiatives</p></div> <div class="vision-tt vision-tt-3" data-id="3" ><p>To list of initiatives</p></div> <div class="vision-tt vision-tt-4" data-id="4" ><p>Direct access to platform</p></div> <div class="vision-pp vision-pp-1" data-id="1" ></div> <div class="vision-pp vision-pp-2" data-id="2" ></div> <div class="vision-pp vision-pp-3" data-id="3" ></div> <div class="vision-pp vision-pp-4" data-id="4" ></div> </div> </div>  </p> <p style="text-align: left;"><span style="font-size: 14pt; color: #25316a;">As the COVID-19 pandemic reaches more countries, people with MS are looking to patient organizations for advice on their risks. We urgently need information on how different disease-modifying therapies for MS affect a person鈥檚 risk of developing severe COVID-19 symptoms.</span></p> <p style="text-align: left;">We are calling on MS organizations to support the COVID-19 and MS global data sharing initiative by:</p> <ul style="text-align: left;"> <li><span style="font-size: 12pt;"><span style="font-weight: 400; font-size: 12pt;"><span style="color: #25316a;"><strong>Encouraging people with MS </strong></span></span>to report to a COVID-19 patient data initiative, regardless of whether they have experienced any symptoms. <span style="color: #f68d00;"><a style="color: #f68d00;" href="https://msdataalliance.com/covid-19/covid-19-and-ms-global-data-sharing-initiative-2/">The existing COVID-19 data initiatives for people with MS can be found </a>here.</span></span></li> <li><span style="font-size: 12pt;"><span style="font-weight: 400; font-size: 12pt;"><span style="color: #25316a;"><strong>Encouraging the MS neurologists and clinicians in your networks </strong></span></span>to start reporting on the COVID-19 status of their patients with MS. This can be done <span style="color: #f68d00;"><a style="color: #f68d00;" href="https://msdataalliance.com/covid-19/for-healthcare-professionals/">through one of the existing COVID-19 data initiatives</a></span>.</span></li> <li><span style="font-size: 12pt;"><span style="font-weight: 400; font-size: 12pt;"><span style="color: #25316a;"><strong>Spread the word </strong></span></span>about the Global Data Sharing Initiative so we can encourage widespread collaborative data collection and data sharing in all areas of the world.</span></li> </ul> <p style="text-align: left;"> <div class="vision-map vision-map-17"data-json-src="https://msdataalliance.com/wp-content/uploads/vision/17/config.json?ver=1587479375" data-item-id="17" tabindex="1" style="display:none;" > <div class="vision-store"> <div class="vision-lr vision-lr-1 vision-lr-type-svg" data-id="1" data-title="Link QMENTA" ></div> <div class="vision-tt vision-tt-1" data-id="1" ></div> <div class="vision-pp vision-pp-1" data-id="1" ></div> </div> </div>  </p> <p></center></p> </div> </div> </div> </div> </div>  <div id="fb-root"></div> <script> (function(d, s, id) { var js, fjs = d.getElementsByTagName(s)[0]; 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