Endometriosis: The condition that can take over seven years to diagnose

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src="https://web.archive.org/web/20191008075836im_/https://ichef.bbci.co.uk/news/200/cpsprodpb/1589C/production/_109102288_p07q33mp.jpg" class="responsive-image__image vxp-image-replace" alt="Woman's stomach painted with bruises and blood and wrapped in chains" width="1024" height="576" tabindex="-1"/> </div> <div class="vxp-badge"> <span class="vxp-badge__icon vxp-badge__icon--video"></span> <span class="off-screen">Video duration </span> <span class="vxp-badge__text">4:51</span> </div> </div> <div class="vxp-carousel__body"> <a href="/web/20191008075836/https://www.bbc.co.uk/news/av/stories-49925760/endometriosis-the-condition-that-can-take-over-seven-years-to-diagnose" class="vxp-carousel__headline-link"> <span class="vxp-carousel__headline">Endometriosis: 'They think I'm a drug addict'</span> </a> <a href="#media-player-controls" class="vxp-carousel__jumpto-player off-screen" aria-hidden="true" tabindex="-1">Jump to media player</a> <span class="vxp-carousel__summary">Three women out of 13,500 who took part in BBC research, explain how the condition affects them.</span> <div class="vxp-carousel__info-list vxp-carousel__element--hidden"> <ul class="mini-info-list"> <li class="mini-info-list__item"> <div class="mini-info-list__date vxp-date" data-seconds="1570399192" data-datetime="6 October 2019">06 Oct</div> </li> </ul> </div> <div class="vxp-carousel__share-tools" data-origin="page"> <ul class="vxp-sharetools sharetools"> <li class="vxp-share__channel-desktop vxp-share__channel-out--facebook vxp-share__channel-click-extracted--facebook" aria-hidden="true"> <a class="extracted__channel-link extracted__channel-link--facebook" 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data-uri="/web/20191008075836oe_/https://www.bbc.co.uk/news/av/stories-43568829/endometriosis-what-lena-dunham-s-condition-means-to-us"> <div class="vxp-carousel__image vxp-carousel__element--hidden"> <div class="responsive-image responsive-image--16by9 "> <img src="https://web.archive.org/web/20191008075836im_/https://ichef.bbci.co.uk/news/200/cpsprodpb/79FF/production/_100613213_p062m6ml.png" class="responsive-image__image vxp-image-replace" alt="group of women posing for a photo shoot" width="1024" height="576" tabindex="-1"/> </div> <div class="vxp-badge"> <span class="vxp-badge__icon vxp-badge__icon--video"></span> <span class="off-screen">Video duration </span> <span class="vxp-badge__text">8:49</span> </div> </div> <div class="vxp-carousel__body"> <a href="/web/20191008075836/https://www.bbc.co.uk/news/av/stories-43568829/endometriosis-what-lena-dunham-s-condition-means-to-us" class="vxp-carousel__headline-link"> <span class="vxp-carousel__headline">Me and my endometriosis</span> </a> <a href="#media-player-controls" class="vxp-carousel__jumpto-player off-screen" aria-hidden="true" tabindex="-1">Jump to media player</a> <span class="vxp-carousel__summary">Girls' creator Lena Dunham has had her left ovary removed. 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src="https://web.archive.org/web/20191008075836im_/https://ichef.bbci.co.uk/news/200/cpsprodpb/14FF3/production/_107830068_p07gkwb9.jpg" class="responsive-image__image vxp-image-replace" alt="Olympic champion cyclist Elinor Barker reveals her struggle with endometriosis" width="1024" height="576" tabindex="-1"/> </div> <div class="vxp-badge"> <span class="vxp-badge__icon vxp-badge__icon--video"></span> <span class="off-screen">Video duration </span> <span class="vxp-badge__text">2:24</span> </div> </div> <div class="vxp-carousel__body"> <a href="/web/20191008075836/https://www.bbc.co.uk/sport/av/cycling/48946764" class="vxp-carousel__headline-link"> <span class="vxp-carousel__headline">‘I felt pain for hours and couldn’t stand up’</span> </a> <a href="#media-player-controls" class="vxp-carousel__jumpto-player off-screen" aria-hidden="true" tabindex="-1">Jump to media player</a> <span class="vxp-carousel__summary">Olympic champion cyclist Elinor Barker tells BBC Sport Wales the pain 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Then she found running." width="1024" height="576" tabindex="-1"/> </div> <div class="vxp-badge"> <span class="vxp-badge__icon vxp-badge__icon--video"></span> <span class="off-screen">Video duration </span> <span class="vxp-badge__text">1:54</span> </div> </div> <div class="vxp-carousel__body"> <a href="/web/20191008075836/https://www.bbc.co.uk/news/av/health-47006228/running-from-endometriosis-i-feel-in-control-again" class="vxp-carousel__headline-link"> <span class="vxp-carousel__headline">Only when I stopped training, did my symptoms return</span> </a> <a href="#media-player-controls" class="vxp-carousel__jumpto-player off-screen" aria-hidden="true" tabindex="-1">Jump to media player</a> <span class="vxp-carousel__summary">Cecile lived with painful symptoms of endometriosis for years. 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src="https://web.archive.org/web/20191008075836im_/https://ichef.bbci.co.uk/news/200/cpsprodpb/F5EE/production/_104485926_diag.png" class="responsive-image__image vxp-image-replace" alt="Alex Roach was 20 when she was told she had endome" width="976" height="549" tabindex="-1"/> </div> <div class="vxp-badge"> <span class="vxp-badge__icon vxp-badge__icon--video"></span> <span class="off-screen">Video duration </span> <span class="vxp-badge__text">3:44</span> </div> </div> <div class="vxp-carousel__body"> <a href="/web/20191008075836/https://www.bbc.co.uk/news/av/uk-wales-46291384/endometriosis-diagnosis-a-relief-to-know-i-wasn-t-mad" class="vxp-carousel__headline-link"> <span class="vxp-carousel__headline">Diagnosis 'relief to know I wasn't mad'</span> </a> <a href="#media-player-controls" class="vxp-carousel__jumpto-player off-screen" aria-hidden="true" tabindex="-1">Jump to media player</a> <span class="vxp-carousel__summary">A woman who waited years for an endometriosis diagnosis backs a report calling for earlier help.</span> <div class="vxp-carousel__info-list vxp-carousel__element--hidden"> <ul class="mini-info-list"> <li class="mini-info-list__item"> <div class="mini-info-list__date vxp-date" data-seconds="1543191892" data-datetime="26 November 2018">26 Nov 18</div> </li> </ul> </div> <div class="vxp-carousel__share-tools" data-origin="page"> <ul class="vxp-sharetools sharetools"> <li class="vxp-share__channel-desktop vxp-share__channel-out--facebook vxp-share__channel-click-extracted--facebook" aria-hidden="true"> <a class="extracted__channel-link extracted__channel-link--facebook" onclick="window.open('https://web.archive.org/web/20191008075836/http://www.facebook.com/dialog/feed?app_id=58567469885&redirect_uri=http%3A%2F%2Fwww.bbc.co.uk%2Fnews%2Fspecial%2Fshared%2Fvj_sharetools%2Ffb_red_uri.html&link=https%3A%2F%2Fwww.bbc.co.uk%2Fnews%2Fav%2Fuk-wales-46291384%2Fendometriosis-diagnosis-a-relief-to-know-i-wasn-t-mad%3FSThisFB&display=popup', '_blank', 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src="https://web.archive.org/web/20191008075836im_/https://ichef.bbci.co.uk/news/200/cpsprodpb/B400/production/_99808064_p05wjz8c.jpg" class="responsive-image__image vxp-image-replace" alt="Amy Vreeke" width="1024" height="576" tabindex="-1"/> </div> <div class="vxp-badge"> <span class="vxp-badge__icon vxp-badge__icon--video"></span> <span class="off-screen">Video duration </span> <span class="vxp-badge__text">2:30</span> </div> </div> <div class="vxp-carousel__body"> <a href="/web/20191008075836/https://www.bbc.co.uk/news/av/health-42874093/endometriosis-my-vagina-tried-to-kill-me" class="vxp-carousel__headline-link"> <span class="vxp-carousel__headline">'My vagina tried to kill me'</span> </a> <a href="#media-player-controls" class="vxp-carousel__jumpto-player off-screen" aria-hidden="true" tabindex="-1">Jump to media player</a> <span class="vxp-carousel__summary">Comedian Amy Vreeke has endometriosis and has written a comedy show about her condition.</span> <div 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data-playable="{"settings":{"counterName":"news.stories.media_asset.49925760.page","edition":"Domestic","pageType":"eav1","uniqueID":"49925760","ui":{"locale":{"lang":"en-gb"}},"externalEmbedUrl":"https:\/\/www.bbc.co.uk\/news\/av\/embed\/p07q0t5c\/49925760","insideIframe":false,"statsObject":{"clipPID":"p07q0t57"},"playlistObject":{"title":"Endometriosis: The condition that can take more than seven years to diagnose","holdingImageURL":"https:\/\/ichef.bbci.co.uk\/images\/ic\/$recipe\/p07q33mp.jpg","guidance":"","embedRights":"allowed","summary":"Endometriosis: The condition that can take more than seven years to diagnose","liveRewind":false,"simulcast":false,"items":[{"vpid":"p07q0t5c","live":false,"duration":291,"kind":"programme"}]}},"otherSettings":{"advertisingAllowed":true,"continuousPlayCfg":{"enabled":true,"dataProvider":{"endpoint":"\/news\/video_and_audio\/api\/meta\/av\/stories-49925760\/endometriosis-the-condition-that-can-take-over-seven-years-to-diagnose\/group\/see-alsos"}},"isAutoplayOnForAudience":false}}"></figure> </div> </div> <div class="vxp-media__body"> <span class="off-screen">Video</span> <h1 class="vxp-media__headline">Endometriosis: The condition that can take over seven years to diagnose</h1> <div class="vxp-media__summary"><p>Endometriosis affects one in 10 women and can cause debilitating pain, extremely heavy periods and sometimes infertility. On average, it takes seven and a half years to diagnose in the UK. Why? According to one of the UK's leading specialists, one reason is the "gender pain gap", wherein women in pain aren't taken as seriously as men. </p><p>More than 13,500 women have taken part in <a href="https://web.archive.org/web/20191008075836/https://www.bbc.co.uk/news/health-49897873" class="story-body__link">BBC research revealing the devastating effect</a> of endometriosis.</p><p>Today, following the BBC's findings, MPs will announce launching an inquiry into the condition. </p><p><i>Produced by: Charlotte Pritchard</i></p><p><i>Filmed by: Brandon Brown and Ahmen Khawaja</i></p><p><i>Edited and co-produced by: Alex Gatenby</i></p></div> <ul class="vxp-media__info-list mini-info-list"> <li class="mini-info-list__item"> <div class="mini-info-list__date vxp-date" data-seconds="1570399192" data-datetime="6 October 2019">06 Oct 2019</div> </li> </ul> <div class="vxp-media__share-tools"> <ul class="vxp-sharetools sharetools"> <li class="vxp-share__channel-desktop 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These incredible ladies are speaking out after spending years in agonising pain, fighting to get a diagnosis.","updatedTime":{"date":"2018-03-28 17:57:51","timezone_type":3,"timezone":"Europe\/London"},"duration":"PT8M49S","allowOffSiteEmbedding":true,"advertisingAllowed":true,"altText":"Me and my endometriosis","istatsCounterName":null,"image":{"href":"https:\/\/web.archive.org\/web\/20191008075836\/https:\/\/ichef.bbci.co.uk\/images\/ic\/$recipe\/p062m79k.jpg"},"curie":"","kind":"programme","live":false,"section":"Stories"},"advert":{"section":"\/news\/stories","editorAdFlag":true,"assetId":"43568829","adCampaignKeyword":null,"shortHeadline":"Endometriosis: What Lena Dunham's condition means to us","assetType":"AV","uri":"\/news\/av\/stories-43568829\/endometriosis-what-lena-dunham-s-condition-means-to-us"}},{"media":{"caption":"Olympic champion Barker reveals struggle with endometriosis","entityType":"Clip","externalId":"p07gkvzp","id":{"type":"videos","key":"primary","numericId":48946765},"mediaType":"video","augmented":true,"parentPid":"p07gkvzl","isRevoked":false,"description":"Olympic champion cyclist Elinor Barker reveals to BBC Sport Wales that the pain caused by endometriosis almost forced her to quit the sport.\n\nThe 24-year-old won Olympic, World, European and Commonwealth titles while suffering from the condition, which can cause pain, heavy periods, fatigue or even infertility.\n\nBarker says she went undiagnosed for years and at times the pain was so bad she was unable to stand up.\n\nShe eventually had a successful operation last year, which she says \u2018felt like I\u2019d taken a weight jacket off\u2019.","updatedTime":{"date":"2019-07-10 23:31:02","timezone_type":3,"timezone":"Europe\/London"},"duration":"PT2M24S","allowOffSiteEmbedding":true,"advertisingAllowed":true,"altText":"\u2018I felt pain for hours and couldn\u2019t stand up\u2019","istatsCounterName":null,"image":{"href":"https:\/\/web.archive.org\/web\/20191008075836\/https:\/\/ichef.bbci.co.uk\/images\/ic\/$recipe\/p07gkwb9.jpg"},"curie":"","kind":"programme","live":false,"section":"Cycling"},"advert":{"section":"\/sport\/cycling","editorAdFlag":true,"assetId":"48946764","adCampaignKeyword":null,"shortHeadline":"Olympic champion Barker reveals struggle with endometriosis","assetType":"AV","uri":"\/sport\/av\/cycling\/48946764"}},{"media":{"caption":"Running from endometriosis: 'I feel in control again'","entityType":"Clip","externalId":"p06z69tf","id":{"type":"videos","key":"primary","numericId":47007533},"mediaType":"video","augmented":true,"parentPid":"p06z3l0t","isRevoked":false,"description":"Cecile lived with painful symptoms of endometriosis for years. Then she found running.","updatedTime":{"date":"2019-01-26 16:27:30","timezone_type":3,"timezone":"Europe\/London"},"duration":"PT1M54S","allowOffSiteEmbedding":true,"advertisingAllowed":true,"altText":"Only when I stopped training, did my symptoms return","istatsCounterName":null,"image":{"href":"https:\/\/web.archive.org\/web\/20191008075836\/https:\/\/ichef.bbci.co.uk\/images\/ic\/$recipe\/p06z6b01.jpg"},"curie":"","kind":"programme","live":false,"section":"Health"},"advert":{"section":"\/news\/health","editorAdFlag":true,"assetId":"47006228","adCampaignKeyword":null,"shortHeadline":"Running from endometriosis: 'I feel in control again'","assetType":"AV","uri":"\/news\/av\/health-47006228\/running-from-endometriosis-i-feel-in-control-again"}},{"media":{"caption":"\"There isn't being enough done to recognise and diagnose the disease,\" says Alex Roach","entityType":"Clip","externalId":"p06sfbry","id":{"type":"videos","key":"primary","numericId":46291385},"mediaType":"video","augmented":true,"parentPid":"p06sfbrt","isRevoked":false,"description":"Alex Roach was 20 when she was told she had endometriosis, seven years after first suffering severe pain when her periods began.\n\nShe has had three lots of surgery because of the condition, which causes the womb lining to grow in other parts of the body and can lead to crippling pain, fatigue and infertility.\n\nAs the disease cannot be cured, she may need further surgery and her ability to conceive could be affected.\n\nShe has backed the findings of Welsh Government investigatory report which calls for improved understanding of the condition in medical staff, earlier diagnosis and treatment, better education and more specialist help.\n\nShe said of her eventual diagnosis: \"It was quite bittersweet. It was a relief to know I wasn't mad.\"","updatedTime":{"date":"2018-11-21 14:40:02","timezone_type":3,"timezone":"Europe\/London"},"duration":"PT3M44S","allowOffSiteEmbedding":true,"advertisingAllowed":true,"altText":"Diagnosis 'relief to know I wasn't mad'","istatsCounterName":null,"image":{"href":"https:\/\/web.archive.org\/web\/20191008075836\/https:\/\/ichef.bbci.co.uk\/images\/ic\/$recipe\/p06sfffy.jpg"},"curie":"","kind":"programme","live":false,"section":"Wales"},"advert":{"section":"\/news\/wales","editorAdFlag":true,"assetId":"46291384","adCampaignKeyword":null,"shortHeadline":"Endometriosis diagnosis: 'A relief to know I wasn't mad'","assetType":"AV","uri":"\/news\/av\/uk-wales-46291384\/endometriosis-diagnosis-a-relief-to-know-i-wasn-t-mad"}},{"media":{"caption":"Comedian Amy Vreeke has endometriosis and has written a comedy show about her condition.","entityType":"Clip","externalId":"p05wjylw","id":{"type":"videos","key":"primary","numericId":42874094},"mediaType":"video","augmented":true,"parentPid":"p05wjylr","isRevoked":false,"description":"Comedian Amy Vreeke was diagnosed with endometriosis and wrote a comedy show about her condition to help challenge taboos. The 26-year-old from Manchester has endometriosis, and was only diagnosed after years of being wrongly told she had everything from IBS to an STI, and much more in between. \n\nShe only realised what she had after reading Lena Dunham\u2019s autobiography, in which the Girls writer described her own symptoms and struggles with endometriosis. \n\nAmy is hoping her candid material and discussions about her body and condition will encourage more women to have conversations about their periods and their symptoms.\n\n\u201cThe reason why people aren\u2019t diagnosed for so long is because women don\u2019t feel comfortable talking about it, because they don\u2019t know if they can or if they\u2019ll be judged or if it\u2019s going to create a weird atmosphere,\u201d she says.\n\n\u201cWe need to not have that atmosphere around discussing subjects like that.\u201d \n\nThis clip is originally from BBC Radio 5 live.","updatedTime":{"date":"2018-01-30 11:06:58","timezone_type":3,"timezone":"Europe\/London"},"duration":"PT2M30S","allowOffSiteEmbedding":true,"advertisingAllowed":false,"altText":"'My vagina tried to kill me'","istatsCounterName":null,"image":{"href":"https:\/\/web.archive.org\/web\/20191008075836\/https:\/\/ichef.bbci.co.uk\/images\/ic\/$recipe\/p05wjz8c.jpg"},"curie":"","kind":"programme","live":false,"section":"Health"},"advert":{"section":"\/news\/health","editorAdFlag":true,"assetId":"42874093","adCampaignKeyword":null,"shortHeadline":"Endometriosis: 'My vagina tried to kill me'","assetType":"AV","uri":"\/news\/av\/health-42874093\/endometriosis-my-vagina-tried-to-kill-me"}}]</script> <div class="vxp-related-content-component" role="complementary"> <div class="vxp-column--single"> <div class="vxp-related-content" data-post-load-url="/news/video_and_audio/related" data-presenter-name="related-content"> <div class="vxp-related-content__stream"> <h2 class="vxp-related-content__title">More On: <span class="vxp-related-content__topic"><span></h2> </div> <div class="vxp-spinner-circle__overlay"> <div class="vxp-spinner-circle">Loading...</div> </div> </div> </div> </div> <div class="vxp-recommended-component vxp-component--post-load" role="complementary"> <div class="vxp-column--single"> <div class="vxp-recommended vxp-component--data" data-post-load-url="/news/video_and_audio/recommended/headlines" data-post-load-id="headlines"> <h2 class="vxp-recommended__title"><span>Video Top Stories</span></h2> <ul class="vxp-recommended__list vxp-component--html"> </ul> </div> </div> </div> <div class="vxp-recommended-component vxp-component--post-load" role="complementary"> <div class="vxp-column--single"> <div class="vxp-recommended vxp-component--data" data-post-load-url="/news/video_and_audio/recommended/must_see" data-post-load-id="mustsee"> <h2 class="vxp-recommended__title"><span>Must See</span></h2> <ul class="vxp-recommended__list vxp-component--html"> </ul> </div> </div> </div> <div class="vxp-mostpopular-component vxp-component--post-load" role="complementary"> <div class="vxp-column--single"> <div class="vxp-mostpop__bg"> <div class="vxp-mostpop__container"> <div class="vxp-mostpop vxp-component--data" data-post-load-url="/news/video_and_audio/most_watched" data-post-load-id="mostpopular"> <h2 class="vxp-mostpop__title"><span>Most watched</span></h2> <div class="vxp-mostpop__items vxp-component--html"></div> </div> </div> </div> </div> </div> <div class="vxp-page-trust-component"> <div class="trust-project"> <div class="trust-project__inner"> <a href="https://web.archive.org/web/20191008075836/https://www.bbc.co.uk/news/help-41670342" class="trust-project__link"><span class="svg-icon--24 svg-icon--info-caption" data-grunticon-embed></span><span class="trust-project__link-text">Why you can trust BBC News</span></a> </div> </div> </div> </div> <div id="core-navigation" class="navigation--footer"> <h2 class="navigation--footer__heading">BBC News Navigation</h2> <nav id="navigation--bottom" class="navigation navigation--bottom " role="navigation" aria-label="BBC News"> <span class="navigation-core-title">Sections</span> <ul class="navigation--bottom__toplevel"> <li class=""> <a href="/web/20191008075836/https://www.bbc.co.uk/news" class=""> <span>Home</span> </a> </li> <li class=""> <a href="/web/20191008075836/https://www.bbc.co.uk/news/uk" data-panel-id="js-navigation-panel-UK" class="navigation-arrow"> <span>UK</span> </a> <div class="navigation-panel navigation-panel--closed js-navigation-panel-UK"> <div class="navigation-panel__content"> <ul class="navigation-panel-secondary"> <li><a href="/web/20191008075836/https://www.bbc.co.uk/news/uk"><span>UK Home</span></a></li> <li> <a href="/web/20191008075836/https://www.bbc.co.uk/news/england"><span>England</span></a> </li> <li> <a href="/web/20191008075836/https://www.bbc.co.uk/news/northern_ireland"><span>N. 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Endometriosis: The condition that can take over seven years to diagnose - BBC News