HealthMeasures

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Physician Attitudes Regarding the Care of Cancer Survivors (SPARCCS)</a></li> <li><a href="/physician_surveys/precision.html">National Survey of Precision Medicine in Cancer Treatment</a></li> </ul> </li> <li><a class="active" href="/healthmeasures/">HealthMeasures</a></li> <li><a href="/pro-ctcae/">Patient-Reported Outcomes Version of the Common Terminology Criteria for Adverse Events (PRO-CTCAE庐)</a></li> <li><a href="/poc/">Patterns of Care (POC) Studies</a> <ul> <li><a href="/poc/access.html">Requesting Access to POC Data and Updating/Changing POC Data Requests</a></li> <li><a href="/poc/publications.html">Publications of Patterns of Care Data</a></li> <li><a href="/poc/eligibility.html">Study Patient Eligibility and Data Items from Prior POC Studies</a></li> <li><a href="/poc/explorer/">POC*Explorer</a></li> </ul> </li> <li><a href="/heroic/">Interagency Consortium to Promote Health Economics Research on Cancer (HEROiC)</a> <ul> <li><a href="/heroic/membership.html">HEROiC Membership</a></li> <li><a href="/heroic/conference-2023.html">HEROiC Conference on Health Economic Research Collaborations to Improve Cancer Care (2023)</a></li> <li><a href="/heroic/conference.html">Future of Cancer Health Economics Research Virtual Conference (2020)</a></li> </ul> </li> <li><a href="/hpvuptake/">HPV Vaccine Uptake</a></li> <li><a href="/aya/">Adolescent and Young Adult Health Outcomes and Patient Experience Study (AYA-HOPE)</a> <ul> <li><a href="/aya/overview.html">Overview and Key Objectives</a></li> <li><a href="/aya/survey.html">Survey Instruments</a></li> <li><a href="/aya/status.html">AYA HOPE Publications</a></li> </ul> </li> <li><a href="/social-determinants/">Social Determinants of Health by U.S. Census Tract</a></li> </ul> </div> </nav> </div> </div> <div class="col-lg-9 col-md-8"> <h2>Overview</h2> <p>From 2014-2019, four patient-centered measurement systems, developed and validated with support from the National Institutes of Health (NIH) were brought together and made available to the public as a single resource. The resource, known as HealthMeasures, was funded by a trans-NIH cooperative agreement (U2CCA186878) supported by 14 NIH Institutes and Centers and made available at <a href="https://www.healthmeasures.net">www.healthmeasures.net</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>.</p> <p><a href="https://www.healthmeasures.net/">HealthMeasures</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a> remains an online resource that provides access to the following comprehensive measurement systems:</p> <ul class="spaced"> <li><strong><a href="https://www.healthmeasures.net/explore-measurement-systems/nih-toolbox">NIH Toolbox for Assessment of Neurological and Behavioral Function<sup>®</sup></a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>:</strong> Stand-alone performance and self/parent report measures and domain level batteries measuring cognitive, motor, sensory, and emotional functioning from ages 3-85.</li> <li><strong><a href="https://www.healthmeasures.net/explore-measurement-systems/promis">PROMIS: Patient Reported Outcomes Measurement Information System<sup>®</sup></a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>:</strong> Self and proxy reports of multiple domains of physical, mental and social health for children ages 5-17 and adults of all ages.</li> <li><a href="https://www.healthmeasures.net/explore-measurement-systems/neuro-qol"><strong>Neuro-QoL: The Neurology Quality of Life Measurement System:</strong></a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a> PROMIS-compatible self-report measures of health domains relevant across neurological conditions for children ages 8-17 and adults of all ages.</li> <li><a href="https://www.healthmeasures.net/explore-measurement-systems/ascq-me"><strong>ASCQ-Me: Adult Sickle Cell Quality of Life Measurement System®:</strong></a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a> PROMIS-compatible self-report measures of health domains relevant to adults with sickle cell disease.</li> </ul> <h2>Background</h2> <p>The HealthMeasures resource provides state-of-the-science assessment of physical, mental, and social health, as well as performance measures of cognition, motor and sensory function, for use across a range of chronic diseases as well as the general population. These measures provide clinicians, researchers, healthcare administrators and policymakers with efficient, precise, valid and responsive measures of symptoms, functional abilities and general health perceptions surrounding life quality and satisfaction.</p> <h2>Access & Availability</h2> <p>To access HealthMeasures, visit <a href="https://www.healthmeasures.net/">www.healthmeasures.net</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>. The HealthMeasures site includes <a href="https://www.healthmeasures.net/resource-center/measurement-science/slides-introducing-healthmeasures">introductory slides</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a> along with information on <a href="https://www.healthmeasures.net/explore-measurement-systems/selecting-among-measurement-systems/summary-table">assessment delivery systems</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a> that include the measures.</p> <p>All HealthMeasures content for self-reported measures, including questions, <a href="https://www.healthmeasures.net/score-and-interpret/interpret-scores">scoring information</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>, and <a href="https://www.healthmeasures.net/score-and-interpret/interpret-scores">interpretation guides</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>, is publicly available free of charge. In order to sustain the HealthMeasures resource, Northwestern University has developed a cost-recovery structure for certain applications and <a href="https://www.healthmeasures.net/resource-center/about-us/consultation-services-collaboration">consulting services</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>. More information is available on the <a href="https://www.healthmeasures.net/">HealthMeasures website</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>.</p> <p>Although the measures in the HealthMeasures resource were developed and initially validated in English and Spanish within the U.S., they are increasingly being used around the world. Some measures have been <a href="https://www.healthmeasures.net/explore-measurement-systems/promis/measure-development-research/promis-international">translated</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a> into more than 40 languages and are being deployed in over 50 different countries.</p> <div class="styled-listWrap"> <div class="card-gray card-icon ms-sm-5"> <img src="/images/dccps/icon-2x-funding.png" alt=""> <h2 class="card-title">Funding</h2> <div class="card-content"> <p>HealthMeasures was funded as a 5-year trans-NIH cooperative agreement grant (<a href="https://grantome.com/grant/NIH/U2C-CA186878-01">U2C CA186878</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a>). The goal was to make HealthMeasures a sustainable resource, independent from NIH funding. To support the transition to full independence, NIH reduced funding annually over the course of the award and strategic public-private partnerships were required. The agreement was awarded in August 2014 to Northwestern University and included five performance sites (University of California at Los Angeles, University of California at San Diego, University of North Carolina, University of Pittsburgh, and American Institutes of Research).</p> <div class="styled-list me-3"> <strong class="list-title">This trans-NIH initiative was led by NCI and supported by the following 13 NIH Institutes, Centers, and Offices:</strong> <ul class="bg-white"> <li><a href="https://www.nhlbi.nih.gov/">National Heart, Lung, and Blood Institute (NHLBI)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.nia.nih.gov/">National Institute on Aging (NIA)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.niams.nih.gov/">National Institute of Arthritis and Musculoskeletal and Skin Diseases (NIAMS)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.nidcd.nih.gov/">National Institute on Deafness and Other Communication Disorders (NIDCD)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.niddk.nih.gov/">National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://nida.nih.gov/">National Institute on Drug Abuse (NIDA)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.nimh.nih.gov/">National Institute of Mental Health (NIMH)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.ninds.nih.gov/">National Institute of Neurological Disorders and Stroke (NINDS)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.ninr.nih.gov/">National Institute of Nursing Research (NINR)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.nccih.nih.gov/">National Center for Complementary and Integrative Health (NCCIH)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://obssr.od.nih.gov/">Office of Behavioral and Social Sciences Research (OBSSR)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://orwh.od.nih.gov/">Office of Research on Women's Health (ORWH)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> <li><a href="https://www.nichd.nih.gov/about/org/ncmrr">National Center for Medical Rehabilitation Research (NCMRR)</a><a class="extlink" href="/extlinks.html"><img src="/images/dccps/external.gif" alt="External Web Site Policy" title="External Web Site Policy"></a></li> </ul> </div> </div> </div> </div> <h2>Contact</h2> <div class="cardWrap"> <div class="card-50"> <div class="card-accent card-contact bg-lightgray"> <div class="card-content"> <h3 class="card-title"><a href="/about/staff/bios/smith.html">Ashley Wilder Smith, PhD, MPH</a></h3> <a href="/about/orb/">Outcomes Research Branch</a> </div> </div> </div> </div> </div> </div> </div> <div class="lastUpdate footerGray"> <div class="container d-flex align-items-center"> <div><strong>Last Updated:</strong> 19 Apr, 2024</div> </div> </div> </main> <footer role="contentinfo"> <a class="returntop" href="#skip"><span>Return to Top</span></a> <div class="container"> <div class="row links"> <div class="col-md"> <h2>Healthcare Delivery Research Program</h2> <ul class="list-unstyled"> <li><a href="/">HDRP Home</a></li> <li><a href="/funding/">Funding & Grants</a></li> <li><a href="/data/">Data & Tools</a></li> <li><a href="/networks/">Research Networks</a></li> <li><a href="/areas/">Areas of Interest</a></li> <li><a href="/media/">News & Events</a></li> <li><a href="/about/">About HDRP</a></li> </ul> </div> <div class="col-md"> <h2>DCCPS</h2> <ul class="list-unstyled"> <li><a 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