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class="mc-cardHero__rgnMain"><h1 class="mc-cardHero__title" ><div class="af-text">Why Diversity Matters</div></h1><div class="mc-cardHero__description" ><div class="af-text"><h4><a href="https://www.ctpop.org/" title="CTPoP"><span style="color:#ffffff;">< Back to Home Page</span></a></h4></div></div></div><div class="mc-cardHero__rgnShare"><div class="mc-a2aShare act-component -skinLight -popLeft"><div class="mc-a2aShare__rgnInner act-component-inner"><div class="mc-a2aShare__shareButton jsShareTrigger"><a><i class="fas fa-share-alt"></i></a></div><div class="mc-a2aShare__shareFlyout jsShareFlyout"><div class="mc-a2aShare__a2aButtons"><div class="a2a_kit a2a_kit_size_32 a2a_default_style toolkit-share" data-a2a-icon-color="#00386C" data-a2a-url="https://www.ctpop.org/why-diversity-matters"><a class="a2a_button_facebook"></a><a class="a2a_button_twitter"></a><a class="a2a_button_linkedin"></a><a class="a2a_button_email"></a></div></div><div class="mc-a2aShare__closeButton jsShareClose"><a><i class="far fa-times"></i></a></div></div></div></div></div></div></div></div><div class="oc-articleDetail__rgnSections"><div class="oc-compoList act-component"><div class="oc-compoList__rgnInner act-component-inner"><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-12 col-md-12 col-sm-12"><div class="mc-contentBasic act-component"><div class="mc-contentBasic__rgnInner act-component-inner"><h2 class="mc-contentBasic__title" ><div class="af-text"></div></h2><div class="mc-contentBasic__body" ><div class="af-text"><h2>Why is diversity important in clinical trials?</h2><p>Clinical trials help researchers decide if new treatments are safe and if they work. Different people can have different reactions to a treatment. This might be because of their age, sex, weight, race, ethnicity, or other factors. Through clinical trials, researchers may find differences that help the treatment work for different groups. They may find that some people need a different dose or need to take the treatment at different times. Or they may even find that the study treatment does not work for some groups at all.  </p><p>Clinical trials also provide early access to experimental treatments for a range of diseases. Prioritizing diversity within studies will help ensure people of color are not left out of these potentially lifesaving opportunities and move us closer to a more equitable healthcare system.</p></div></div></div></div></div></div></div></div></div></div><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__titleWrapper"><div class="act-pane__title" ><div class="af-text">Why you should join a clinical trial?”</div></div></div><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-6 col-md-12 col-sm-12"><div class="mc-tileVideo act-component -fontMedium -defaultOverlay"><div class="mc-tileVideo__rgnInner act-component-inner"><div class="mc-tileVideo__image" ><img src="/sites/ctpop/files/2021-10/women%20in%20CTS.png" alt="women in CTS" class="af-image"></div><div class="mc-tileVideo__rgnMediaOverlay"><div class="mc-tileVideo__rgnMediaOverlayInner"><div class="mc-tileVideo__play jsTriggerVideoPopup" data-video-source="youtube" data-video-id="n78mTCgZDY4" ><i class="fal fa-play-circle"></i></div><div class="mc-tileVideo__title" ><div class="af-text">Why Should All Women Consider Participating in Clinical Trials?</div></div><div class="modal fade oc-lightbox -video jsVideoLightbox" tabindex="-1" role="dialog" aria-hidden="true" id="sPBm7F"><div class="modal-dialog modal-dialog-centered" role="document"><div class="modal-content"><div class="modal-header"><button type="button" class="close" data-dismiss="modal" aria-label="Close"><span aria-hidden="true">×</span></button></div><div class="modal-body"><div class="embed-responsive embed-responsive-16by9"><div class="mc-tileVideo__video" ><iframe width="100%" class="af-video--youtube" src="https://www.youtube.com/embed/n78mTCgZDY4?enablejsapi=1" frameborder="0" webkitallowfullscreen mozallowfullscreen allowfullscreen></iframe></div></div></div></div></div></div></div></div></div></div></div><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-6 col-md-12 col-sm-12"><div class="mc-tileVideo act-component -fontMedium -defaultOverlay"><div class="mc-tileVideo__rgnInner act-component-inner"><div class="mc-tileVideo__image" ><img src="/sites/ctpop/files/2021-10/Encouraging%20AAs%20o%20Enroll.png" alt="Encouraging Enrollment" class="af-image"></div><div class="mc-tileVideo__rgnMediaOverlay"><div class="mc-tileVideo__rgnMediaOverlayInner"><div class="mc-tileVideo__play jsTriggerVideoPopup" data-video-source="youtube" data-video-id="xZUTyXZtbNA" ><i class="fal fa-play-circle"></i></div><div class="mc-tileVideo__title" ><div class="af-text">Researcher Story: Encouraging African Americans to Participate in Research Studies</div></div><div class="modal fade oc-lightbox -video jsVideoLightbox" tabindex="-1" role="dialog" aria-hidden="true" id="gSyQgs"><div class="modal-dialog modal-dialog-centered" role="document"><div class="modal-content"><div class="modal-header"><button type="button" class="close" data-dismiss="modal" aria-label="Close"><span aria-hidden="true">×</span></button></div><div class="modal-body"><div class="embed-responsive embed-responsive-16by9"><div class="mc-tileVideo__video" ><iframe width="100%" class="af-video--youtube" src="https://www.youtube.com/embed/xZUTyXZtbNA?enablejsapi=1" frameborder="0" webkitallowfullscreen mozallowfullscreen allowfullscreen></iframe></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div></div><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-12 col-md-12 col-sm-12"><div class="mc-contentBasic act-component"><div class="mc-contentBasic__rgnInner act-component-inner"><div class="mc-contentBasic__body" ><div class="af-text"><h2>There are historical cases where people of color were mistreated in clinical trials... How can I be assured things are different now?</h2><p> </p><p>Today, all patients and research participants -- including people of color -- are kept safe by law and ethics committees, including <a href="https://www.cancer.gov/publications/dictionaries/cancer-terms/def/institutional-review-board" rel="noopener" target="_blank">Institutional Review Boards (IRB)</a>, that oversee clinical trials. Every clinical trial at every facility, by federal authority, must be approved and monitored by an IRB. IRBs include doctors, nurses, scientists, and community advocates who make sure that each clinical trial is ethical, does not have unnecessary risks, and that patients' rights are protected.</p><p>Once approved by the IRB, the study's organizers must follow a careful and detailed plan, called a <a href="https://hub.ucsf.edu/protocol-development#:~:text=The%20protocol%20is%20a%20document,integrity%20of%20the%20data%20collected." rel="noopener" target="_blank">protocol</a>, that spells out exactly what will happen during the clinical trial. Patients will know the full details of the protocol prior to joining.</p><p><a href="https://www.research.va.gov/programs/csp/participation.cfm#Informed%20consent" rel="noopener" target="_blank">Informed consent laws</a> are used for this purpose as well. They require clinical trial researchers to provide complete, up-front information, including all of the study's benefits and risks for participants.</p><p>The <a href="https://www.fda.gov/science-research/science-and-research-special-topics/clinical-trials-and-human-subject-protection" rel="noopener" target="_blank">U.S. Food and Drug Administration (FDA)</a> also plays a primary role by reviewing clinical research and upholding ethical and legal protections as part of the final public approval process. The agency continues to work with federal partners, manufacturers, medical professionals, and health advocates to ensure that all participants are properly treated, and all data is collected appropriately in clinical trials.</p></div></div></div></div></div></div></div></div></div></div><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90 -sameHeight"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__titleWrapper"><div class="act-pane__title" ><div class="af-text">How people who join trials are protected?</div></div></div><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-6 col-md-12 col-sm-12"><div class="mc-tileVideo act-component -fontMedium -defaultOverlay"><div class="mc-tileVideo__rgnInner act-component-inner"><div class="mc-tileVideo__image" ><img src="/sites/ctpop/files/2021-10/IRB-Video-HHS_1.png" alt="IRB-Video-HH" 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-hasBottom"><div class="mc-cardPlainText__rgnInner act-component-inner"><div class="mc-cardPlainText__rgnMain"><div class="mc-cardPlainText__title" ><div class="af-text">How are companies working to increase diversity in clinical trials and protect those who participate?</div></div><div class="mc-cardPlainText__description" ><div class="af-text">The biopharmaceutical industry acknowledges past wrongdoings and continues to develop and put in place measures that close gaps in clinical trial representation...</div></div></div><div class="mc-cardPlainText__rgnBottom"><div class="mc-cardPlainText__ctaLink" ><a class="af-link" href="/how-are-companies-working-increase-diversity-clinical-trials-and-protect-those-who-participate" aria-label="Learn more" >Learn more</a></div></div></div></div></div><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-6 col-md-12 col-sm-12"><div class="mc-cardPlainText act-component -styleRegularShare -hasBottom"><div class="mc-cardPlainText__rgnInner act-component-inner"><div class="mc-cardPlainText__rgnMain"><div class="mc-cardPlainText__title" ><div class="af-text">Are there specific resources for people of color who are interested in learning more?</div></div><div class="mc-cardPlainText__description" ><div class="af-text">There are government, faith-based and community advocacy organizations that provide detailed information about clinical trials and why diversity matters... </div></div></div><div class="mc-cardPlainText__rgnBottom"><div class="mc-cardPlainText__ctaLink" ><a class="af-link" href="/diversity-matters" aria-label="Learn more" >Learn more</a></div></div></div></div></div></div></div></div></div></div><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-12 col-md-12 col-sm-12"><div 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Whitepaper</a></div></div></div></div></div></div></div></div></div></div><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-12 col-md-12 col-sm-12"><div class="mc-boxTextCTA act-component -skinPurpleV2 -btnskinPurpleV2 -btnsolidButtonDefaultInvert"><div class="mc-boxTextCTA__rgnInner act-component-inner"><div class="mc-boxTextCTA__rgnMain"><div class="mc-boxTextCTA__title" ><div class="af-text">BIO's Clinical Trial Diversity Summit</div></div><div class="mc-boxTextCTA__description" ><div class="af-text"><h4>Building a Sustainable & Equitable Clinical Development Ecosystem</h4><p>In June 2021, BIO convened stakeholders from across the clinical development spectrum to engage in meaningful discussion on advancing health equity in clinical trials. Because ensuring clinical trial diversity is not just at the heart of BIO’s Equality Agenda— it’s driving the future development and availability of innovative medical products.</p></div></div><div class="mc-boxTextCTA__ctaLink"><a class="af-link -skinPurpleV2 solidButtonDefaultInvert " href="https://www.ctpop.org/bio-clinical-trial-diversity-summit" aria-label="Learn More">Learn More</a></div></div></div></div></div></div></div></div></div></div><div class="oc-compoList__rgnSection"><div class="oc-widgetPane act-pane -rgnWidth90 -sameHeight"><div class="oc-widgetPane__rgnInner section-inner act-pane-inner"><div class="act-pane__titleWrapper"><div class="act-pane__title" ><div class="af-text">Helpful Resources</div></div></div><div class="act-pane__content"><div class="oc-widgetPane__rgnList row"><div class="oc-widgetPane__rgnCell rowFirst rowLast col-lg-12 col-md-12 col-sm-12"><div class="embedGeneralSectionPane"><div class="oc-widgetPane act-pane -rgnWidth100"><div 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