CINXE.COM

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field--type-string field--label-hidden field--item">Netherlands </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-netherlands">Nederlands</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--114 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Canada </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.ca/fr">Français </a></div> <div class="field--item"><a href="https://www.alnylam.ca/">English</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph 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</div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--115 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Spain </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-espana">Español</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--116 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Denmark </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-denmark">Dansk</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--117 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Sweden</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-sverige">Svenska</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--118 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">France</div> </span><span class="link-text"> <div class="field 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paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Germany </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.de/">Deutsch</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--121 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Taiwan</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-taiwan">繁體中文</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--1514 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Ireland </div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-ireland">English</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--123 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">United Kingdom</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="/alnylam-uk">English</a></div> </div> </span> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--language-links paragraph-id--122 paragraph--view-mode--default"> <div class="language-switcher-main"> <span class="label-text"> <div class="field field--name-field-label field--type-string field--label-hidden field--item">Italy</div> </span><span class="link-text"> <div class="field field--name-field-link1 field--type-link field--label-hidden field--items"> <div class="field--item"><a href="https://www.alnylam.it/">Italiano</a></div> </div> </span> </div> </div> </div> </div> </section> </div> </div> </div> </div> </header> <div id="maindiv" class="container-fluid"> <main id="midcontent-area" class="column main-content"> <div id="content"> <div class="region region-content"> <div data-drupal-messages-fallback class="hidden"></div> <article data-history-node-id="242" role="article" about="/patients/genetic-testing-and-counseling-program" typeof="schema:WebPage" class="page full clearfix"> <span property="schema:name" content="Genetic Testing and Counseling Program" class="hidden"></span> <div class="content"> <div class="field field--name-field-add-section field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--sim paragraph-id--499 paragraph--view-mode--default"> <div id="simple-banner-wrapper"> <div class="simple-banner" style=""> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/2021-11/hero-module-patient-testing.jpg" width="1280" height="384" alt="hero-module-patient-testing" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--banner-overlay-html-content paragraph-id--500 paragraph--view-mode--default"> <div class="banner-overlay-html-content-description--component " style="width:1130px; margin:auto;"> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><p class="mobile-eyebrow"><span class="our-secondary-dark">Patients</span></p> <h1 class="secondary-dark text-align-center"><strong>NO-CHARGE GENETIC TESTING AND COUNSELING PROGRAM</strong></h1> <h2 class="text-align-center">Alnylam Act®</h2> <p class="font-20 text-align-center">Alnylam Act® is a sponsored, no-charge, third-party genetic testing and counseling program for people with a family history or suspected diagnosis of certain genetic conditions.</p> <p>The Alnylam Act® program was developed to provide genetic testing and counseling services to people and their families so that they may make more informed decisions about their health. Through the Alnylam Act® program, genetic testing and counseling is offered at no charge to individuals who meet the eligibility criteria. Both genetic testing and genetic counseling are <strong data-renderer-mark="true">available in the U.S. and Canada.</strong></p> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--501 paragraph--view-mode--default"> <div class="description--component" style="width:1130px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><h2 class="text-align-center margin-bottom-32px">Watch the Alnylam Act® Video Introduction</h2> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--video-popup paragraph-id--502 paragraph--view-mode--default"> <div class="video-popup-content" style="width:850px; margin:auto;"> <a data-colorbox-inline=".video-box-502" style="width: 571px; height:326px;"> <div class="three-column-image-box"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/2021-11/patient-video.jpg" width="722" height="406" alt="patient-video" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> <div class="three-column-video-play-button"></div> </div> <div class="video-box-502" style="display: none;"> <div class="field field--name-field-embed-video field--type-video-embed-field field--label-hidden field--item"><div class="video-embed-field-provider-youtube video-embed-field-responsive-video form-group"><iframe width="854" height="480" frameborder="0" allowfullscreen="allowfullscreen" src="https://www.youtube.com/embed/Hjzxtf3hX-o?autoplay=0&start=0&rel=0"></iframe> </div> </div> </div> </a> <div class="video-popup-desc"></div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--503 paragraph--view-mode--default"> <div class="description--component" style="width:1100px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><h3>What Is Genetic Testing?</h3> <hr /><p class="margin-bottom-32px">Genetic testing can identify changes to DNA that may lead to a genetic condition. Results of a genetic test can confirm or rule out a suspected genetic disease or help determine someone’s chance of developing or passing on a genetic condition.</p> <h3>What Is Genetic Counseling?</h3> <hr /><p class="margin-bottom-32px">Genetic counseling is a service that provides information and support for people who have, or may be at risk for, genetic conditions. Genetic counselors are trained healthcare professionals who can discuss genetics, inheritance, and disease risks. They can also discuss the benefits, limitations, and potential implications of genetic testing.</p> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--dark-bg-banner paragraph-id--504 paragraph--view-mode--default" style="background-color: #003366;" > <div id="dark-bg-banner" style="width:1100px; margin:auto;"> <div class="row"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><div class="row genetic-testing-and-counseling-program-dark-bg-banner"> <div class="col-sm-3"><img alt="icon-talk-to-your-doctor" data-entity-type="file" data-entity-uuid="bf1ae3fa-e3aa-4444-93cf-0e80e59a65b7" src="/sites/default/files/inline-images/Screenshot_1-removebg-preview.png" width="115" height="119" loading="lazy" /></div> <div class="col-sm-9"> <h3>Talk to Your Doctor</h3> <p>Start the conversation to see if you could benefit from genetic testing and counseling with Alnylam Act®. Your doctor will handle the process from there.</p> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--html-content-with-background paragraph-id--506 paragraph--view-mode--default"> <div class="html-content-background " style="width:px; background-color: #f8f8f8 ;"> <div class="row inner-block" "> <div class="field field--name-field-html-content-bg field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--body paragraph-id--505 paragraph--view-mode--default"> <div class="description--component" style="width:1100px; margin:auto; "> <div class="field field--name-field-body field--type-text-with-summary field--label-hidden field--item"><h3>We’re Committed to Privacy</h3> <div class="accordion accordion-flush" id="accordionFlushExample"> <div class="accordion-item"> <p class="accordion-header" id="flush-headingOne"><button aria-controls="flush-collapseOne" aria-expanded="false" class="accordion-button collapsed" data-bs-target="#flush-collapseOne" data-bs-toggle="collapse" type="button"><span style="display: -webkit-box;-webkit-line-clamp: 2;-webkit-box-orient: vertical;overflow: hidden;">While the program is sponsored by Alnylam Pharmaceuticals, all services are performed by independent third parties. The Alnylam Act<sup>®</sup> program was created to provide access to genetic testing and counseling to patients as a way to help people make more informed decisions about their health.</span></button></p> <div aria-labelledby="flush-headingOne" class="accordion-collapse collapse" data-bs-parent="#accordionFlushExample" id="flush-collapseOne"> <div class="accordion-body"> <ul><li>While Alnylam provides financial support for this program, tests and services are performed by independent third parties</li> <li>Healthcare professionals must confirm that patients meet certain criteria to use the program</li> <li>Alnylam receives de-identified patient data from this program, but at no time does Alnylam receive patient-identifiable information. Alnylam may use healthcare professional contact information for research purposes</li> <li>Both genetic testing and genetic counseling are available in the U.S. and Canada</li> <li>Healthcare professionals or patients who use this program have no obligation to recommend, purchase, order, prescribe, promote, administer, use, or support any Alnylam product</li> <li>No patients, healthcare professionals, or payers, including government payers, are billed for this program</li> </ul></div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--_-column-heading-image-descripti paragraph-id--509 paragraph--view-mode--default"> <div style="background:; overflow:hidden; padding: 34px 0px 64px 0px" class="patient-philosophy"> <div style="width:1100px; margin:auto;"> <div class="field field--name-field-2-column-pop-content field--type-entity-reference-revisions field--label-hidden field--items"> <div class="field--item"> <div class="paragraph paragraph--type--heading-image-description-popup- paragraph-id--507 paragraph--view-mode--default"> <div class="heading-image-popup-content-area col-sm-4"> <a href="/alnylam-rnai-pipeline/clinical-trials" style="width: 650px; height:400px;"> <div class="image-field"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/2021-11/module_clinical_trials2_2.jpg" width="554" height="361" alt="module_clinical_trials2" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> </a> <div class="image-title"> <div class="field field--name-field-heading-1 field--type-string field--label-hidden field--item">Clinical Trials</div> </div> <div class="description-field"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><p>Find out about studies evaluating the safety and effectiveness of our treatment options.</p> </div> </div> <div class="site-link"> <div class="field field--name-field-cta field--type-link field--label-hidden field--item"><a href="/alnylam-rnai-pipeline/clinical-trials">Learn More ›</a></div> </div> </div> </div> </div> <div class="field--item"> <div class="paragraph paragraph--type--heading-image-description-popup- paragraph-id--508 paragraph--view-mode--default"> <div class="heading-image-popup-content-area col-sm-4"> <a href="/patients/patient-advocacy" style="width: 650px; height:400px;"> <div class="image-field"> <div class="field field--name-field-upload-image field--type-image field--label-hidden field--item"> <img src="/sites/default/files/2021-11/patient-advocacy.jpg" width="535" height="348" alt="patient-advocacy" loading="lazy" typeof="foaf:Image" class="img-responsive" /> </div> </div> </a> <div class="image-title"> <div class="field field--name-field-heading-1 field--type-string field--label-hidden field--item">Patient Advocacy</div> </div> <div class="description-field"> <div class="field field--name-field-description-text-area field--type-text-long field--label-hidden field--item"><p>At Alnylam, we put you at the center of everything we do. We have a team dedicated to collaborating with patient advocacy groups and individuals affected by these rare diseases.</p> </div> </div> <div class="site-link"> <div class="field field--name-field-cta field--type-link field--label-hidden field--item"><a href="/patients/patient-advocacy">Learn More ›</a></div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </article> <section id="block-interstitialmodal" class="block block-block-content block-block-content91077066-95c8-4915-8931-1413e257836b clearfix"> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"> <div class="modal" id="inter-modal" role="dialog" tabindex="-1"> <div class="inner" role="document"> <button aria-label="Close" class="close" data-dismiss="modal" type="button"></button> <div class="content"> <div class="title">You are now leaving Alnylam.com</div> <p>The following content may not be associated with Alnylam Pharmaceuticals.</p> <p>Links to all outside sites are provided as a reference for our visitors.</p> <p>Alnylam Pharmaceuticals does not endorse and is not responsible for the content on sites that are not owned and operated by Alnylam Pharmaceuticals.</p> <a class="confirm button-more" href="">Proceed to Site</a> </div> </div></div></div> </section> <section id="block-newtopfooter" class="block block-block-content block-block-content930ef10f-62f3-4817-9fc8-4b0698cb5538 clearfix"> <div class="field field--name-body field--type-text-with-summary field--label-hidden field--item"><section class="new-footer"><div class="top-dna-lines"> <div class="footer-dna-lines"> <div class="footer-container"> <div class="d-flex"> <div> <h2 class="footer-header">FOLLOW US</h2> <p class="footer-description">Visit our social channels to learn more about the innovative work we are doing at Alnylam.</p> </div> <div class="right-icons d-flex"><a class="js-inter-modal" href="https://www.youtube.com/channel/UCUZReY0GSAJ1w-MULQb9_Rw" 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