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href="mailto:?subject=Sharing%20ASCO%E2%80%99s%20CancerLinQ%20and%20HealthVerity%20Collaborate%20to%20Accelerate%20Cancer%20Research%20by%20Linking%20Real-World%20Datasets&body=One June 8, CancerLinQ® LLC and HealthVerity, Inc., today announced a collaboration that will create the nation’s premier real-world oncology data ecosystem to advance cancer care and research for government and public health agencies.%0D%0Ahttps%3A%2F%2Fsociety.asco.org%2Fabout-asco%2Fpress-center%2Fnews-releases%2Fcancerlinq-and-healthverity-collaborate-linking-datasets">Share via Email</a> <a class="share-link share-twitter" share-title="ASCO%E2%80%99s%20CancerLinQ%20and%20HealthVerity%20Collaborate%20to%20Accelerate%20Cancer%20Research%20by%20Linking%20Real-World%20Datasets" target="_blank" href="https://twitter.com/intent/tweet/?text=One June 8, CancerLinQ® LLC and HealthVerity, Inc., today announced a collaboration that will create the 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Accelerate Cancer Research by Linking Real-World Datasets&summary=One June 8, CancerLinQ® LLC and HealthVerity, Inc., today announced a collaboration that will create the nation’s premier real-world oncology data ecosystem to advance cancer care and research for government and public health agencies.&source=https://society.asco.org/about-asco/press-center/news-releases/cancerlinq-and-healthverity-collaborate-linking-datasets">Share on LinkedIn</a> </div> </div> </div> </div> </div> </div> <div class="panels-flexible-region panels-flexible-region-blog_page-center"> <div class="inside panels-flexible-region-inside panels-flexible-region-blog_page-center-inside"> <div class="panel-pane pane-node-title no-title block odd"> <div class="block-inner clearfix"> <div class="block-content"> <h2>ASCO’s CancerLinQ and HealthVerity Collaborate to Accelerate Cancer Research by Linking Real-World Datasets</h2> </div> </div> </div> <div class="panel-separator"></div><div class="panel-pane pane-node-content no-title block even"> <div class="block-inner clearfix"> <div class="block-content"> <article id="node-181821" class="node node-release article odd node-full clearfix" about="/about-asco/press-center/news-releases/cancerlinq-and-healthverity-collaborate-linking-datasets" typeof="sioc:Item foaf:Document" role="article"> <div class="node-content"> <div class="field field-name-field-subtitle field-type-text field-label-hidden view-mode-full"><div class="field-items"><div class="field-item even">The collaboration aims to fulfill a shared vision of improving cancer care and research by connecting disparate real-world data to generate deeper insights into unique cancer journeys.</div></div></div><div class="group-date-contact field-group-div"><div class="group-release-date field-group-div"><div class="field field-name-field-date field-type-datetime field-label-hidden view-mode-full"><div class="field-items"><div class="field-item even"><div class="release-status">For immediate release</div><span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2022-06-08T11:29:00-04:00">June 8, 2022</span></div></div></div></div><div class="group-release-contact field-group-div"><h3><span>Contact</span></h3><div class="field field-name-field-contact-name field-type-text field-label-hidden view-mode-full"><div class="field-items"><div class="field-item even">ASCO: Amanda Narod HealthVerity: Jen Kaczmarczyk, jkaczmarczyk@healthverity.com</div></div></div><div class="field field-name-field-email field-type-email field-label-hidden view-mode-full"><div class="field-items"><div class="field-item even"><a href="mailto:Amanda.Narod@asco.org">Amanda.Narod@asco.org</a></div></div></div></div></div><div class="field field-name-body field-type-text-with-summary field-label-hidden view-mode-full"><div class="field-items"><div class="field-item even" property="content:encoded"><p><em>Philadelphia and Alexandria,</em> <em>VA</em>—CancerLinQ<sup>®</sup> LLC, a wholly owned nonprofit subsidiary of the American Society of Clinical Oncology, and HealthVerity, Inc., today announced a collaboration that will create the nation’s premier real-world oncology data ecosystem to advance cancer care and research for government and public health agencies. The collaboration leverages HealthVerity’s Privacy-Preserving Record Linkage (PPRL) technology to make CancerLinQ oncology data fully interoperable with de-identified patient data from the nation’s largest ecosystem of healthcare and consumer data providers. Qualified researchers will now have the ability to explore longitudinal patient journeys across a multitude of data types that better reveal the context around the origin, progression, treatment, and outcomes for a full breadth of cancer diagnoses.</p> <p>With only 5 percent of patients with cancer participating in clinical trials, the use of real-world oncology data in research can help expand the pool of knowledge from which researchers can learn. CancerLinQ and HealthVerity allow researchers to learn from all patients with cancer - not only those enrolled in clinical trials–by providing access to broadscale, patient-longitudinal, real-world data that can provide researchers with a more comprehensive view of unique patient journeys.</p> <p>“CancerLinQ is driven by its goal of improving the care of every single patient with cancer,” said Sean Khozin, MD, MPH, chief executive officer (CEO) of CancerLinQ. “To that end, this new collaboration helps us bring together disparate data-sets that capture the longitudinal experience of patients with cancer, giving us the ability to unlock insights that inform high-quality, equitable patient care and research.”</p> <p>“We are thrilled to be working alongside CancerLinQ to offer researchers a more comprehensive way to study the complex journeys of cancer patients,” said Andrew Kress, CEO of HealthVerity. “By leveraging the HealthVerity IPGE platform to connect real-world datasets in a HIPAA-compliant and privacy protected manner, we are creating an incredible opportunity for public health and government agencies to make the discoveries that could one day lead to cures for most forms of cancer.”</p> <p>CancerLinQ has one of the largest and most-diverse real-world-oncology databases that include de-identified data from more than six million patients with cancer and benign hematological conditions from all 50 states. The CancerLinQ network is a growing ecosystem of over 100 cancer centers and community oncology practices.</p> <p>The HealthVerity IPGE platform is an integrated technology and real-world data infrastructure platform based on four foundational elements—identity, privacy, governance, and exchange—which allow disparate data to be accurately resolved to unique privacy-protected identities, linked, and exchanged for a myriad of use cases.</p> <p>To learn more about the collaboration and how you can access one of the nation’s largest interoperable de-identified real-world oncology data ecosystem, visit <a href="https://www.cancerlinq.org/" target="_blank">CancerLinQ.org</a>.</p> </div></div></div><section class="field field-name-field-release-aboutasco field-type-text-long field-label-above view-mode-full"><h2 class="field-label">About ASCO<span class="colon">:</span> </h2><div class="field-items"><div class="field-item even"><p>Founded in 1964, the American Society of Clinical Oncology, Inc. (ASCO®) is committed to the principle that knowledge conquers cancer. Together with the Association for Clinical Oncology, ASCO represents nearly 45,000 oncology professionals who care for people living with cancer. Through research, education, and promotion of high quality, equitable patient care, ASCO works to conquer cancer and create a world where cancer is prevented or cured, and every survivor is healthy. Conquer Cancer, the ASCO Foundation, supports ASCO by funding groundbreaking research and education across cancer’s full continuum. Learn more at <a href="http://www.asco.org/" target="_blank">www.ASCO.org</a>, explore patient education resources at <a href="http://www.cancer.net/" target="_blank">www.Cancer.Net</a>, and follow us on <a href="https://www.facebook.com/ASCOCancer" target="_blank">Facebook</a>, <a href="https://twitter.com/ASCO" target="_blank">Twitter</a>, <a href="https://www.linkedin.com/company/american-society-of-clinical-oncology" target="_blank">LinkedIn</a>,<a href="https://www.instagram.com/ascocancer/" target="_blank"> Instagram</a>, and <a href="https://www.youtube.com/user/ASCOcancer" target="_blank">YouTube</a>.</p> <p><strong>About CancerLinQ</strong></p> <p>CancerLinQ® is a real-world oncology data platform developed by ASCO that collects and aggregates longitudinal EHR data from oncology practices throughout the United States. CancerLinQ improves the quality of patient care and accelerates discovery by securely compiling, harmonizing, analyzing, and de-identifying vast amounts of information on patient characteristics (e.g., molecular profiles, comorbidities), treatments, and long-term side effects. By using data from over six million patients in near real time, CancerLinQ can identify trends and associations between myriad variables, thereby enabling physicians to generate new hypotheses and apply those conclusions to improve care in real-world settings. To learn more about collaborations, visit <a href="https://www.cancerlinq.org/about/collaborations" target="_blank">Collaborations | ASCO CancerLinQ</a>.</p> <p> </p> <p><strong>About HealthVerity</strong></p> <p>Pharmaceutical manufacturers, payers, and government organizations have partnered with HealthVerity to solve some of their most complicated use cases through transformative technologies and real-world data infrastructure. The HealthVerity IPGE platform, based on the foundational elements of Identity, Privacy, Governance, and Exchange, enables the discovery of real-world data across the broadest healthcare data ecosystem, the building of more complete and accurate patient journeys and the ability to power best-in-class analytics and applications with flexibility and ease. Together with our partners, HealthVerity has built the modern way to data for the health insights economy. To learn more about the HealthVerity IPGE platform, visit <a href="http://www.healthverity.com/" target="_blank">www.healthverity.com</a>.</p> </div></div></section> </div> <span property="dc:title" content="" class="rdf-meta element-hidden"></span></article> </div> </div> </div> </div> </div> <div class="panels-flexible-region panels-flexible-region-blog_page-right panels-flexible-region-last "> <div class="inside panels-flexible-region-inside panels-flexible-region-blog_page-right-inside panels-flexible-region-inside-last"> <div class="panel-pane pane-block pane-print-ui-print-links pane-print-ui no-title block even"> <div class="block-inner clearfix"> <div class="block-content"> <span class="print_pdf"><a href="https://society.asco.org/printpdf/about-asco/press-center/news-releases/cancerlinq-and-healthverity-collaborate-linking-datasets" title="Display a PDF version of this page." class="print-pdf" rel="nofollow">Download News Release</a></span> </div> </div> </div> <div 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