DIPG Support

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('https:' == d.location.protocol ?'https://':'http://') + 'secure.wufoo.com/scripts/embed/form.js'; s.onload = s.onreadystatechange = function() { var rs = this.readyState; if (rs) if (rs != 'complete') if (rs != 'loaded') return; try { m1dv0k7b0bt96w5 = new WufooForm(); m1dv0k7b0bt96w5.initialize(options); m1dv0k7b0bt96w5.display(); } catch (e) { } }; var scr = d.getElementsByTagName(t)[0], par = scr.parentNode; par.insertBefore(s, scr); })(document, 'script'); </script> </div> </aside> <article class="col-md-9"> <h1>DIPG / DMG Support</h1> <p class="lead">A Diagnosis of DIPG can be devastating, but it is important to know that you don't have to go at it alone. There are various foundations and organizations that provide financial, family, and medical support to patients and parents battling DIPG – and a majority of these organizations were started and are run by the parents of children who battled DIPG.</p> <p class="lead">In addition, we have created a <a href="/what-to-do-when-diagnosed/" title="What To Do When Diagnosed">guide to help you navigate the beginning of this journey</a> and inform you of where to go next.</p> <hr> <h3>Family Support</h3> <p>In addition to raising funds for pediatric cancer research, <a target="_blank" href="https://www.thecurestartsnow.org/" title="thecurestartsnow.org" rel="noopener">The Cure Starts Now</a> offers a variety of programs to help both families and patients in the battle against DIPG.</p> <div class="row"> <div class="col-sm-6 col-md-4"> <div class="panel"><a href="https://dipgwarrior.org/" target="_blank" rel="noopener"><img src="/media/2409/dipg-warrior.png" class="img-70" alt="DIPG Warrior"></a> <p>Whether you are recently in the fight, or just want to honor your child who is no longer battling, <a href="https://dipgwarrior.org/" target="_blank" rel="noopener">DIPG Warrior</a> is your go-to DIPG support program. Get personalized one-on-one support or connect with over 550 other DIPG/DMG families.<br><br></p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel"><a href="https://dmgwarrior.org/" target="_blank" rel="noopener"><img src="/media/z24j5sde/dmg-warrior-logo.png" class="img-70" alt="DMG Warrior"></a> <p>Whether you are recently in the fight, or just want to honor your child who is no longer battling, <a href="https://dmgwarrior.org/" target="_blank" rel="noopener">DMG Warrior</a> is your go-to DMG support program. Get personalized one-on-one support or connect with over 550 other DMG/DIPG families.<br><br></p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel"><a href="https://www.facebook.com/groups/dipgwarriors" target="_blank" rel="noopener"><img alt="" src="/media/3795/dipg-support-group-image.jpg" class="img-70"></a> <p>The <a href="https://www.facebook.com/groups/dipgwarriors" target="_blank" rel="noopener">DIPG/DMG Support Group</a> on Facebook is a great resource for families who have been impacted by DIPG/DMG. This group is an open forum to ask questions and learn about the latest DIPG/DMG resources and treatment from others that have experience with DIPG/DMG.</p> </div> </div> </div> <hr> <h3>Medical Support</h3> <div class="row"> <div class="col-md-4 col-md-push-8"><a href="/research/dipgdmg-registry/" title="DIPG/DMG Registry"><img src="/media/2408/dipg-registry.png" alt="DIPG Registry" class="" style="padding: 15px;"></a><br><img src="/media/2413/siope.png" alt="SIOPE: The European Society for Paediatric Oncology" class="" style="padding: 15px;"></div> <div class="col-md-8 col-md-pull-4"> <p>Receiving a diagnosis of DIPG and going through treatment are difficult for patients and their families. The Cure Starts Now, in collaboration with the DIPG Collaborative members, completely fund the <a href="http://dipgregistry.org" target="_blank" rel="noopener">DIPG Registry</a> and the European <a href="https://www.siope.eu/" target="_blank" rel="noopener"></a>SIOPE Registry. The DIPG Registry and website provides information about ongoing and planned research, as well as contact information for DIPG experts if you or your doctor would like to arrange a consultation.</p> </div> </div> <hr> <h3>Financial Support</h3> <p>Battling DIPG puts a heavy burden on families. From medical bills to travel, it can all be overwhelming. Various <a href="http://dipgcollaborative.org" target="_blank" rel="noopener">DIPG Collaborative</a> partners offer financial assistance to families of children with brain cancer and are listed below.</p> <div class="row"> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="http://brookehealey.com/" target="_blank" rel="noopener"><img src="/media/2407/brookehealey.png" alt="Brooke Healey Foundation"></a> <p><a href="http://brookehealey.com/" target="_blank" rel="noopener">The Brooke Healey Foundation</a> is a New Jersey based organization dedicated to fighting DIPG and other pediatric cancers. They fund research through the DIPG Collaborative, directly help families through out the United States, and award scholarships.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="http://www.reflectionsofgrace.org/" target="_blank" rel="noopener"><img src="/media/2412/reflections-of-grace.png" alt="Reflections of Grace"></a> <p><a href="http://www.reflectionsofgrace.org/" target="_blank" rel="noopener">Reflections Of Grace Foundation</a> offers financial assistance grants to families of children with brain cancer.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="http://lovechloe.org" target="_blank" rel="noopener"><img src="/media/2410/love-chloe.png" alt="Love Chloe Foundation"></a> <p>The <a href="http://lovechloe.org" target="_b">Love, Chloe Foundation</a> offers financial assistance to families in Central Kansas. This support is available to children undergoing treatment for any form of cancer.</p> </div> </div> </div> <div class="row"> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://aidansavengers.com/" target="_blank" rel="noopener"><img src="/media/2406/aidans-avengers.png" alt="Aidan's Avengers"></a> <p><a href="https://aidansavengers.com/" target="_blank" rel="noopener">Aidan's Avengers</a> family support program provides financial support to families of children diagnosed with brain tumors in PA, NJ, DE, MD and NY.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="http://laurensfightforcure.com/" target="_blank" rel="noopener"><img src="/media/4175/lffc.png" alt="Lauren's Fight For Cure"></a> <p><a href="http://laurensfightforcure.com/" target="_blank" rel="noopener">Lauren's Fight for Cure</a> is a Southeast Indiana Foundation that offers young adults diagnosed with DIPG end of life gifts or financial assistance grants. For those diagnosed after their 18th birthday, they may be considered for a wish trip.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://braintumorcopays.org/" target="_blank" rel="noopener"><img alt="" src="/media/4391/musella_logo.png"></a> <p><a href="https://braintumorcopays.org/" target="_blank" rel="noopener">The Brain Tumor Drug Copayment Assistance Program</a><span>, a program of the </span><a href="https://virtualtrials.org/">Musella Foundation</a><span> For Brain Tumor Research & Information, Inc., provides financial assistance to families who need help covering the cost of certain drugs used to treat Primary Malignant Brain Tumors (Grade 3 or 4).</span></p> </div> </div> </div> <div class="row"> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://www.ytfoundation.org/resources" target="_blank" rel="noopener"><img alt="Yuvaan Tiwari" src="/media/4568/ytf-logo-formatted.jpg"></a> <p><a href="https://www.ytfoundation.org/resources" target="_blank" rel="noopener">The Yuvaan Tiwari Foundation</a> provides financial support to families in the U.S. with a child diagnosed with DMG/DIPG. Applicants may request support for travel to hospitals, accommodation, medical treatments, or a special gift/experience for the child.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://www.aubreighsarmyfoundation328.com/" target="_blank" rel="noopener"><img alt="Aubreigh's Army Foundation 328" src="/media/4396/aubs-army_full-color.jpg"></a> <p><a href="https://www.aubreighsarmyfoundation328.com" target="_blank" rel="noopener">Aubreigh’s Army Foundation 328</a> is a Foundation based out of Mobile, Alabama. Helping DIPG families indirectly with financial support for medical bills and patients undergoing treatment.</p> </div> </div> </div> <hr> <h3>Miscellaneous Support</h3> <p>Untraditional support can be very special and provide DIPG families with some unique opportunities. Various partners have offered their services below.</p> <div class="row"> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://goldhopeproject.com/" target="_blank" rel="noopener"><img src="/media/4909/s-corfee_goldhope-tee.jpg" alt="The Gold Hope Project"></a> <p><a href="https://goldhopeproject.com/" target="_blank" rel="noopener">The Gold Hope Project</a> is a group of photographers that gives families battling a pediatric cancer diagnosis a free professional portrait session for their warriors.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://www.curebraincancer.org.au/" target="_blank" rel="noopener"><img src="/media/4952/cure-brain-cancer.png" alt="Cure Brain Cancer" style="padding-top: 20px; padding-bottom: 20px;"></a> <p><a href="https://www.curebraincancer.org.au/" target="_blank" rel="noopener">Cure Brain Cancer Foundation</a> launched the National Advocacy Service (NAS) in collaboration with Peace of Mind Foundation. The NAS is available for Australian individuals and families affected by brain cancer and assists by helping them access support services such as the National Disability Insurance Scheme (NDIS), Centrelink and other government programs.</p> </div> </div> <div class="col-sm-6 col-md-4"> <div class="panel support"><a href="https://rundipg.org/" target="_blank" rel="noopener"><img src="/media/pqbf21gl/rundipg-logo.jpg" alt="RUN DIPG" style="max-width: 50%; padding-top: 20px; padding-bottom: 20px;"></a> <p><a href="https://rundipg.org/" target="_blank" rel="noopener">RUN DIPG</a> is founded by Associate Professor Matt Dun and Dr Phoebe Hindley (Dun). The unique understanding of Australian medical system and global research landscape yet being DIPG parents is how RUN DIPG can support.</p> </div> </div> </div> <footer class="footnotes"> </footer> </article> </div> </div> </main> <footer id="footer"> DIPG.org is proud to be a part of <strong>The Cure Starts Now Cancer Resource Network</strong>:<br /><a href="https://thecurestartsnow.org" target="_blank">The Cure Starts Now</a> | <a href="https://dipg.org" target="_blank">DIPG.org</a> | <a href="https://medulloblastoma.org" target="_blank">Medulloblastoma.org</a><br /><br />10280 Chester Road, Cincinnati, Ohio 45215 | 513-772-4888<br />Copyright 2022 The Cure Starts Now. All Rights Reserved.<br /><br />Special thanks to the <a href="http://dipgregistry.org" target="_blank" rel="noopener">DIPG Registry</a> and <a href="http://dipgcollaborative.org" target="_blank" rel="noopener">DIPG Collaborative</a><br /><br />Image Courtesy the Waneka Family and C. 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