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.vn-menu-section:not(.lite){background:#fff;border-radius:0 0 5px 5px;border-top:0;left:-20px;margin-left:-3.75rem;max-width:none;height:auto;opacity:0;padding:1.875rem 2.875rem;position:absolute;top:4.6875rem;width:18.75rem;visibility:hidden}.vn-wrapper .vn-links .vn-menu-section:not(.lite) hr{display:none}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul{margin:0}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li{border-bottom:1px solid #c6cedb}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li:last-of-type{border-bottom:0}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li.vn-see-all a{-webkit-box-align:baseline;-ms-flex-align:baseline;align-items:baseline;color:#3557ff;display:-webkit-box;display:-ms-flexbox;display:flex;-webkit-box-pack:start;-ms-flex-pack:start;justify-content:flex-start}.vn-wrapper .vn-links .vn-menu-section:not(.lite) ul li.vn-see-all a img{height:.75rem;margin-right:.5rem}.vn-wrapper .vn-links 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.vn-subscribe:not(.lite)>button:hover{background-color:#fff;color:#00157c;-webkit-transition:all .3s ease;transition:all .3s ease}.vn-wrapper .vn-subscribe:not(.lite)>button:hover:before{background:url(//img.lb.wbmdstatic.com/webmd_static_vue/091e9c5e82273de2/client/img/mail-navblue.7c5ef9b6.svg) no-repeat}.vn-wrapper .vn-subscribe:not(.lite)>button:before{background:url(//img.lb.wbmdstatic.com/webmd_static_vue/091e9c5e82273de2/client/img/mail.c6992733.svg) no-repeat}}.vn-wrapper .vn-subscribe.vn-mob-gn-sub{margin-left:auto;margin-right:.75rem}.vn-wrapper .vn-subscribe.vn-mob-gn-sub>button{border:none;border-radius:0;border-right:1px solid #c6cedb;color:#fff;font-size:.875rem;font-weight:600}.vn-wrapper .vn-subscribe.vn-mob-gn-sub>button:before{background:url(//img.lb.wbmdstatic.com/webmd_static_vue/091e9c5e82273de2/client/img/mail.c6992733.svg) 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.blog-post-single.blog-post-list{-webkit-box-orient:horizontal;-webkit-box-direction:normal;-ms-flex-direction:row;flex-direction:row}}@media screen and (max-width:47.938rem){.blogs-bio-post{margin-bottom:3.188rem;padding:1rem 1rem .5rem 1rem}.blogs-bio-post .blogs-flex-item{margin-bottom:1rem}.blogs-bio-post .blog-section-title{font-weight:600}.blogs-bio-post .blog-post-single .blog-post-image img{width:5rem}.blogs-bio-post .blog-post-single .blog-post-content{margin:0 0 0 1rem}.blogs-bio-post .blog-post-single .blog-post-content h2 a{font-size:1rem;line-height:1.6rem}.blogs-bio-post .blog-post-single .blog-post-content .blog-post-text{display:none}.blogs-bio-post .blogs-biopost-view{margin-top:.5rem}}.blogs-title-common{width:100%}@media(min-width:320px)and (max-width:767px){.blogs-title-common{width:auto}}.blogs-title-common .blog-section-title{color:#00157c;cursor:default;display:-webkit-box;display:-ms-flexbox;display:flex;text-align:left;font-family:Source Sans 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.blogs-hr:after,.blogs-title-common .blogs-hr:before{background:#cccce7;content:" ";-webkit-box-flex:1;-ms-flex-positive:1;flex-grow:1;height:.0625rem;position:relative}body{-webkit-font-smoothing:antialiased;-moz-osx-font-smoothing:grayscale;background:#f8f8f8!important}.module.blogs-topic-list{margin-bottom:.438rem}.module.blogs-topic-list .blog-section-title{line-height:1.2;margin:0 0 0 0}.module.blogs-topic-list ul{-webkit-column-count:1;-moz-column-count:1;column-count:1;-webkit-column-gap:0;-moz-column-gap:0;column-gap:0;display:-webkit-box;display:-ms-flexbox;display:flex;-ms-flex-wrap:wrap;flex-wrap:wrap;margin-top:0;padding:0 0 .438rem 0}.module.blogs-topic-list ul li{-webkit-box-align:center;-ms-flex-align:center;align-items:center;background-color:#fff;border-radius:12.5rem;-webkit-box-sizing:border-box;box-sizing:border-box;display:-webkit-box;display:-ms-flexbox;display:flex;margin:1.5rem 1rem 0 0;text-align:center;cursor:pointer}@media(max-width:63.938em){.module.blogs-topic-list ul li{margin:.75rem 1.25rem 0 0}}@media(max-width:39.938em){.module.blogs-topic-list ul li{margin:1.125rem .625rem 0 0}}.module.blogs-topic-list ul li:hover{background-color:#d2d9ff}.module.blogs-topic-list ul li:hover a{color:#3557ff}.module.blogs-topic-list ul li a{color:#3557ff;font-family:Source Sans Pro,Arial,sans-serif;font-size:1rem;font-weight:400;line-height:1.6;padding:.35rem 1rem .35rem 1rem;letter-spacing:.18px;text-decoration:none}@media(max-width:47.938em){.module.blogs-topic-list ul li a{line-height:normal;padding:.5rem 1rem}}@media(max-width:39.938em){.module.blogs-topic-list ul li a{font-size:.8125rem!important}}</style> <style>.owl-carousel{display:none;width:100%;-webkit-tap-highlight-color:transparent;position:relative;z-index:1}.owl-carousel .owl-stage{position:relative;-ms-touch-action:pan-Y;touch-action:manipulation;-moz-backface-visibility:hidden}.owl-carousel 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class="webmd-row pane" style="" id="ContentPane29" tabindex="-1"><div class="blogs-single-post"><div class="blogs-post-content" data-metrics-module="bl-cntrbtr"><div class="blogs-post-content-title"><span class="blogs-post-header-text">Why It Matters How Myasthenia Gravis Is Portrayed in Media </span></div><div class="blogs-post-hero"><img class="blogs-post-hero-image" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/article_thumbnails/blog_posts/myasthenia_gravis/1800x1200-young-woman-watching-tv-on-bed.jpg?resize=1024:*&output-quality=20" alt="photo of young woman watching tv"></div><div class="blogs-post-hero-author"><div class="blogs-post-author"><div class="author-comp-container"><img class="author-thumbnail" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/articles/biographies/600x600_misha_page.jpg" alt="Misha Grayson Coleman"><span class="author-content"><span class="author-name">By<a class="bold-content" href="https://blogs.webmd.com/myasthenia-gravis/misha-grayson-coleman" data-metrics-link="byline">Misha Grayson Coleman</a></span><span>October 29, 2024</span><span class="author-related-link-header">Diagnosed since 2021</span></span></div></div></div><div class="blogs-post-hero-content"><div class="blogs-post-body-content article__body"><div id="articlePageContent"><div class="blog-post-article-page" data-page="1"><section><h2></h2><p><span lang="EN">Living with MG is a journey shaped by resilience, adaptability, and a daily dose of humor in the face of unpredictability. </span></p><p><span lang="EN">Yet, the most surprising part of living with this rare autoimmune condition, which causes sudden bouts of muscle weakness, isn’t the symptoms. It's the way the media shapes my experience, and the understanding (or lack thereof) others have about MG. </span></p><p><span lang="EN">Media can be a powerful bridge that helps society understand health conditions. But for those of us living with MG, the narrative is either absent or wildly inaccurate. This fuels misunderstandings and can create a sense of isolation, leaving us feeling we live in a world that doesn’t quite see us.</span></p><p><span lang="EN">Growing up, I remember passing by a bus stop with a public service announcement (PSA) that made me feel uneasy. It was black and white, stark and haunting, with big, bold letters urging, “GIVE US A SMILE.” There was a baby in the image, along with two other individuals, including a man whose face was twisted in a way that looked almost like a snarl. </span></p></section><section><pagebreak /> <p><span lang="EN">I remember thinking, “Why would anyone design an ad like that?” As a kid, I never looked closer to find out what it was really about. I only knew it creeped me out, and I went out of my way to avoid it. </span></p><p><span lang="EN">Years later, after being diagnosed with MG, I stumbled upon that same image in an online article. It turned out that the PSA was meant to raise awareness about MG. I was floored, this unnerving image, which I’d always felt distanced from, was talking about my condition.</span></p><p><span lang="EN">Reflecting on that PSA now, I feel it missed the mark. The disturbing portrayal didn’t make people like me, who would one day join the MG community, feel represented, understood, or supported. </span></p><p><span lang="EN">Instead, it positioned us as objects of pity, or fear. </span></p><p><span lang="EN">I realize I’m not the only one who felt unsettled. Friends who saw the same PSA had the same reaction. They thought it was sad or disturbing. None of us came away understanding MG better. We came away avoiding that bus stop. </span></p></section></div><div class="blog-post-article-page" data-page="2"><section> <p><span lang="EN">And that’s a big problem. Because when an awareness campaign leans on shocking or unsettling imagery, it risks creating stigma rather than understanding. The message gets lost in translation. The only thing people remember is how uncomfortable it makes them.</span></p><p><span lang="EN">For many, medical awareness campaigns are their first introduction to rare conditions like MG. And for a condition as hidden and complex as MG, the responsibility of these campaigns to represent it accurately is huge. </span></p><p><span lang="EN">Few people know that MG causes muscle weakness that can fluctuate daily, or that it can affect something as simple as holding up your own head. This lack of familiarity often leads to wild misconceptions, and it’s up to awareness campaigns to bridge that gap in a way that’s respectful, realistic, and, ideally, empowering. </span></p><p><span lang="EN">Seeing a PSA that associates MG with distorted faces or pity rather than resilience doesn’t help. People with MG aren’t scary or pitiful. We’re people living with a challenging condition that deserves understanding, not discomfort.</span></p></section><section><pagebreak /> <p><span lang="EN">The impact of accurate representation is personal, too. </span></p><p><span lang="EN">It doesn’t just affect how others perceive us, but it also affects how we perceive ourselves. Seeing our struggles, victories, and humor reflected in the media, portrayed with compassion and accuracy, would be validating. Without that representation, isolation grows. </span></p><p><span lang="EN">Sometimes it feels like MG is so hidden it might as well be invisible. That makes it hard to feel connected to the world. Lack of media representation has a real effect on our mental health, creating a kind of double invisibility – not only is our condition invisible, but it seems as though our stories don’t exist either in the broader social landscape.</span></p><p><span lang="EN">Beyond understanding, media representation drives practical outcomes. </span></p><p><span lang="EN">Chronic illnesses often get research funding in proportion to their public visibility. With greater media exposure, MG could attract the attention it needs for more research, better treatments, and maybe one day, a cure. The media has the power to drive social and medical change. </span></p><p><span lang="EN">But as long as MG remains out of the spotlight, we’re left scrambling for awareness and resources.</span></p></section></div><div class="blog-post-article-page" data-page="3"><section> <p><span lang="EN">The good news is that it’s not an impossible problem to address. There are simple yet powerful ways for the media to improve representation. Integrating MG into TV shows, movies, and books could create a relatable, humanized portrayal, bridging the gap between public understanding and the real lives of those of us living with MG. </span></p><p><span lang="EN">When characters with MG appear on screen, even fictional ones, it makes our experience relatable, helping others to see the invisible aspects of our condition and the resilience it requires. </span></p><p><span lang="EN">In fact, there are already small steps in the right direction. For instance, I remember reading recently that the superhero character Madame Web has MG as part of her backstory. While her recent movie portrayal didn’t include it, the very presence of her character in mainstream media suggests that awareness of MG is beginning to grow. </span></p><p><span lang="EN">With more authentic portrayals and consultation with the MG community, these characters could offer powerful and respectful representations, giving a real face to the challenges and strengths of living with MG.</span></p></section><section> <p><span lang="EN">Representation isn’t just about awareness. It’s about seeing ourselves, connecting with others, and feeling like we’re part of the world. To see an accurate portrayal of MG in the media wouldn’t just educate others. It’d give us a sense of solidarity and acknowledgment, something we often go without. </span></p><p><span lang="EN">While we wait for the media to catch up, we continue to share our stories, raise awareness, and hope for a future where MG is represented for what it truly is. And maybe someday, people won’t have to avoid bus stops or look away. They’ll look closer, and they’ll understand.</span></p><p> </p><p><i><span lang="EN"><sup>Photo Credit: E+/Getty Images</sup></span></i></p></section></div></div><div class="blogs-post-social-copy-right"><div class="blogs-post-social-share"><div class="module module-social-share-container social-share-tools" data-e2e="social-sharebar"><div class="plugin plugin-socialshare" data-metrics-module="fm-shr"><div class="share-container"><div class="webmd-icon-share"></div><div class="share-text">Share</div></div><div class="share-icons"><div class="share-icons-tooltip"><a class="plugin-socialshare-link plugin-socialshare-facebook" data-metrics-type="ad-hoc" data-sharetype="facebook" title="Share on Facebook" rel="noopener" role="link" tabindex="0" data-metrics-module="fm-shr" data-metrics-link="fb"><div class="social-icon-container"><i class="webmd-icon-facebook"></i></div><span class="visually-hidden">Share on Facebook</span></a><a class="plugin-socialshare-link plugin-socialshare-twitter" 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class="blogs-contributor-information"><div class="blogs-bio-follow-heading"><h3 class="blogs-cs-title">More blog posts from <a href="https://blogs.webmd.com/myasthenia-gravis/misha-grayson-coleman" data-metrics-link="cntrbtr"><span class="contributor-name">Misha Grayson Coleman</span></a></h3><button class="blogs-contributor-follow-button"> Follow </button><div class="blogs-bio-newsletter-modal"><div class="blogs-bio-tooltip"><div class="blogs-bio-tooltip-arrow"></div><span></span></div></div></div></div><div class="blogs-bio-contributor-description"><div class="blogs-cs-description blogs-contributor-link-container"></div><a class="blogs-read-more-link" href="https://blogs.webmd.com/myasthenia-gravis/misha-grayson-coleman" data-metrics-module="bl-relcntrbtr" data-metrics-link="cntrbtr">Read Full Bio</a></div></div></div></section><div class="blogs-bio-post" data-metrics-module="bl-relcntrbtr"><div class="blogs-flex-container"><div class="blogs-flex-item"><div class="blog-post-single blog-post-list"><div class="blog-post-image"><a href="https://blogs.webmd.com/myasthenia-gravis/20241119/new-research-brings-hope-for-living-with-myasthenia-gravis" data-metrics-link="art"><img alt="New Research Brings Hope for Living With Myasthenia Gravis" src="https://img.lb.wbmdstatic.com/vim/live/webmd/consumer_assets/site_images/article_thumbnails/blog_posts/myasthenia_gravis/1800x1200-woman-outside-silhouette.jpg?resize=800:*"></a></div><div class="blog-post-content"><h2><a href="https://blogs.webmd.com/myasthenia-gravis/20241119/new-research-brings-hope-for-living-with-myasthenia-gravis" title data-metrics-link="art">New Research Brings Hope for Living With Myasthenia Gravis</a></h2><div class="blog-post-text"><p>For those living with chronic conditions like myasthenia gravis (MG), staying informed about its medical advancements is essential.</p></div><div class="author-comp-container"><span class="author-content"><span class="author-name">By<a class="bold-content" href="https://blogs.webmd.com/myasthenia-gravis/misha-grayson-coleman" data-metrics-link="cntrbtr"> Misha Grayson Coleman</a></span><span>November 19, 2024</span></span></div><div class="blog-post-read-more hidden-lg-and-up"><a href="https://blogs.webmd.com/myasthenia-gravis/20241119/new-research-brings-hope-for-living-with-myasthenia-gravis" data-metrics-link="art">Read More<svg xmlns="https://www.w3.org/2000/svg" width="15" height="12" viewBox="0 0 15 12"><defs><filter id="xc8088xqja"><feColorMatrix in="SourceGraphic" values="0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 1.000000 0"></feColorMatrix></filter></defs><g fill="none" fill-rule="evenodd" stroke-linecap="round"><g><g><g filter="url(#xc8088xqja)" transform="translate(-239.000000, -4095.000000) translate(28.000000, 3536.216142) translate(1.000000, 541.768940)"><g stroke="#FFF" stroke-width="2"><path stroke-linejoin="round" d="M0.167 4.833L11.487 4.833" transform="translate(210.995857, 18.250000)"></path><path 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On tough days, it can feel like you're at the mercy of your body. But symptom-heavy days can be opportunities to tap into creativity and mindfulness.</p></div><div class="author-comp-container"><span class="author-content"><span class="author-name">By<a class="bold-content" href="https://blogs.webmd.com/myasthenia-gravis/misha-grayson-coleman" data-metrics-link="cntrbtr"> Misha Grayson Coleman</a></span><span>October 15, 2024</span></span></div><div class="blog-post-read-more hidden-lg-and-up"><a href="https://blogs.webmd.com/myasthenia-gravis/20241015/when-mg-unlocks-your-creativity" data-metrics-link="art">Read More<svg xmlns="https://www.w3.org/2000/svg" width="15" height="12" viewBox="0 0 15 12"><defs><filter id="xc8088xqja"><feColorMatrix in="SourceGraphic" values="0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 0 1.000000 0 0 0 1.000000 0"></feColorMatrix></filter></defs><g fill="none" fill-rule="evenodd" stroke-linecap="round"><g><g><g filter="url(#xc8088xqja)" transform="translate(-239.000000, -4095.000000) translate(28.000000, 3536.216142) 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Connect with her \u003Ca href=\"https:\u002F\u002Fwww.instagram.com\u002Fremishn\u002F\"\u003Ehere\u003C\u002Fa\u003E.\u003C\u002Fp\u003E"}}},"link_friendlyurl":"https:\u002F\u002Fblogs.webmd.com\u002Fmyasthenia-gravis\u002Fmisha-grayson-coleman"}}},"wbmd_sites_not_allowed_on_group":"","wbmd_relv2_subj_cd_group":"","wbmd_relv3_subj_cd_group":{"wbmd_relv3_subj_cd":"M35.9"},"wbmd_c_cons_revw_dt":"","wbmd_c_sec_med_revw_dt":"","wbmd_c_prim_top_id":{"object_type":"wbmd_lookup","wbmd_lookup_type":"consumer_topic_id","wbmd_storage_val":"4094","wbmd_disp_nm":"Brain & Nervous System"},"wbmd_c_edtr_revr_dt":"","wbmd_no_index":"0","wbmd_c_sec_authr_group":"","wbmd_c_audnc_age_group":"","wbmd_c_audnc_geo_group":"","wbmd_c_sec_top_id_group":"","wbmd_c_audnc_gndr_group":"","wbmd_c_audnc_lfstyl_group":"","wbmd_c_audnc_read_lvl_group":"","wbmd_c_audnc_ethn_group":"","wbmd_c_tm_of_yr_group":"","wbmd_secnd_category_group":{"wbmd_secnd_category":{"object_type":"wbmd_lookup","wbmd_lookup_type":"aboutness_category","wbmd_storage_val":"living-with-myasthenia-gravis","wbmd_disp_nm":"Living With Myasthenia Gravis","title":"Blogs - Myasthenia Gravis - Living With"}},"wbmd_c_art_thmbnl":{"directive":"imageurl","chronic_id":"e7a1fe47-bae7-428d-b9b0-b7239004d821","path":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002F1800x1200-young-woman-watching-tv-on-bed.jpg","object_type":"wbmd_cons_img","wbmd_c_alt_tag":"photo of young woman watching tv","wbmd_c_width":"","wbmd_c_ht":""},"wbmd_c_channel_id":{"wbmd_storage_val":"1000177","wbmd_disp_nm":"Blog - Myasthenia Gravis"},"wbmd_c_frnd_nm":"why-it-matters-how-myasthenia-gravis-is-portrayed-in-media ","wbmd_c_asset_name":"why-it-matters-how-myasthenia-gravis-is-portrayed-in-media ","wbmd_c_teaser":"","wbmd_c_mini_article":{"chronic_id":"0000000000000000","directive":"expand","object_type":"wbmd_cons_shrt_txt"},"wbmd_language_locale":{"object_type":"wbmd_lookup","wbmd_lookup_type":"language","wbmd_storage_val":"en_US ","wbmd_disp_nm":"American English"},"wbmd_relations":""}},"module_data":{"content_section":{"cons_feature":{"title":"Why It Matters How Myasthenia Gravis Is Portrayed in Media ","subheadline":"","thumbnail_image":{"directive":"imageurl","_chronic_id":"e7a1fe47-bae7-428d-b9b0-b7239004d821","path":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002F1800x1200-young-woman-watching-tv-on-bed.jpg","object_type":"wbmd_cons_img","name":"1800x1200-young-woman-watching-tv-on-bed.jpg","description":"THUMBNAIL Young African woman watching TV at home","height":"1200","width":"1800","source":"VIM","credit":"E+\u002FGetty Images","contentURL":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002F1800x1200-young-woman-watching-tv-on-bed.jpg"},"media_asset":{"directive":"friendlyurl","_chronic_id":"e7a1fe47-bae7-428d-b9b0-b7239004d821","path":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002F1800x1200-young-woman-watching-tv-on-bed.jpg","object_type":"wbmd_cons_img","i_chronicle_id":"e7a1fe47-bae7-428d-b9b0-b7239004d821","r_object_id":"","r_object_type":"wbmd_cons_img","title":"1800x1200-young-woman-watching-tv-on-bed.jpg","wbmd_desc_user":"THUMBNAIL Young African woman watching TV at home","wbmd_keywords":"","wbmd_c_alt_tag":"photo of young woman watching tv","wbmd_c_width":"","wbmd_c_ht":"","name":"1800x1200-young-woman-watching-tv-on-bed.jpg","description":"THUMBNAIL Young African woman watching TV at home","height":"1200","width":"1800","source":"VIM","credit":"E+\u002FGetty Images","contentURL":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002F1800x1200-young-woman-watching-tv-on-bed.jpg"},"section_groups":{"#cdata-section":"\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"1\" \u002F\u003E\u003Cpagebreak type=\"desktop\" order=\"1\" \u002F\u003E\u003Csection_header\u003E\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003ELiving with MG is a journey shaped by resilience, adaptability, and a daily dose of humor in the face of unpredictability. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EYet, the most surprising part of living with this rare autoimmune condition, which causes sudden bouts of muscle weakness, isn’t the symptoms. It's the way the media shapes my experience, and the understanding (or lack thereof) others have about MG. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EMedia can be a powerful bridge that helps society understand health conditions. But for those of us living with MG, the narrative is either absent or wildly inaccurate. This fuels misunderstandings and can create a sense of isolation, leaving us feeling we live in a world that doesn’t quite see us.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EGrowing up, I remember passing by a bus stop with a public service announcement (PSA) that made me feel uneasy. It was black and white, stark and haunting, with big, bold letters urging, “GIVE US A SMILE.” There was a baby in the image, along with two other individuals, including a man whose face was twisted in a way that looked almost like a snarl. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"2\" \u002F\u003E\u003Cpagebreak \u002F\u003E\u003Csection_header is_continued=\"true\"\u003E continued...\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EI remember thinking, “Why would anyone design an ad like that?” As a kid, I never looked closer to find out what it was really about. I only knew it creeped me out, and I went out of my way to avoid it. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EYears later, after being diagnosed with MG, I stumbled upon that same image in an online article. It turned out that the PSA was meant to raise awareness about MG. I was floored, this unnerving image, which I’d always felt distanced from, was talking about my condition.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EReflecting on that PSA now, I feel it missed the mark. The disturbing portrayal didn’t make people like me, who would one day join the MG community, feel represented, understood, or supported. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EInstead, it positioned us as objects of pity, or fear. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EI realize I’m not the only one who felt unsettled. Friends who saw the same PSA had the same reaction. They thought it was sad or disturbing. None of us came away understanding MG better. We came away avoiding that bus stop. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"3\" \u002F\u003E\u003Cpagebreak type=\"desktop\" order=\"2\" \u002F\u003E\u003Csection_header is_continued=\"true\"\u003E continued...\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EAnd that’s a big problem. Because when an awareness campaign leans on shocking or unsettling imagery, it risks creating stigma rather than understanding. The message gets lost in translation. The only thing people remember is how uncomfortable it makes them.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EFor many, medical awareness campaigns are their first introduction to rare conditions like MG. And for a condition as hidden and complex as MG, the responsibility of these campaigns to represent it accurately is huge. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EFew people know that MG causes muscle weakness that can fluctuate daily, or that it can affect something as simple as holding up your own head. This lack of familiarity often leads to wild misconceptions, and it’s up to awareness campaigns to bridge that gap in a way that’s respectful, realistic, and, ideally, empowering. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003ESeeing a PSA that associates MG with distorted faces or pity rather than resilience doesn’t help. People with MG aren’t scary or pitiful. We’re people living with a challenging condition that deserves understanding, not discomfort.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"4\" \u002F\u003E\u003Cpagebreak \u002F\u003E\u003Csection_header is_continued=\"true\"\u003E continued...\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EThe impact of accurate representation is personal, too. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EIt doesn’t just affect how others perceive us, but it also affects how we perceive ourselves. Seeing our struggles, victories, and humor reflected in the media, portrayed with compassion and accuracy, would be validating. Without that representation, isolation grows. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003ESometimes it feels like MG is so hidden it might as well be invisible. That makes it hard to feel connected to the world. Lack of media representation has a real effect on our mental health, creating a kind of double invisibility – not only is our condition invisible, but it seems as though our stories don’t exist either in the broader social landscape.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EBeyond understanding, media representation drives practical outcomes. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EChronic illnesses often get research funding in proportion to their public visibility. With greater media exposure, MG could attract the attention it needs for more research, better treatments, and maybe one day, a cure. The media has the power to drive social and medical change. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EBut as long as MG remains out of the spotlight, we’re left scrambling for awareness and resources.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"5\" \u002F\u003E\u003Cpagebreak type=\"desktop\" order=\"3\" \u002F\u003E\u003Csection_header is_continued=\"true\"\u003E continued...\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EThe good news is that it’s not an impossible problem to address. There are simple yet powerful ways for the media to improve representation. Integrating MG into TV shows, movies, and books could create a relatable, humanized portrayal, bridging the gap between public understanding and the real lives of those of us living with MG. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EWhen characters with MG appear on screen, even fictional ones, it makes our experience relatable, helping others to see the invisible aspects of our condition and the resilience it requires. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EIn fact, there are already small steps in the right direction. For instance, I remember reading recently that the superhero character Madame Web has MG as part of her backstory. While her recent movie portrayal didn’t include it, the very presence of her character in mainstream media suggests that awareness of MG is beginning to grow. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EWith more authentic portrayals and consultation with the MG community, these characters could offer powerful and respectful representations, giving a real face to the challenges and strengths of living with MG.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E\u003Csection_group\u003E\u003Cpagebreak type=\"mobile\" order=\"6\" \u002F\u003E\u003Csection_header is_continued=\"true\"\u003E continued...\u003C\u002Fsection_header\u003E\u003Csection_text\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003ERepresentation isn’t just about awareness. It’s about seeing ourselves, connecting with others, and feeling like we’re part of the world. To see an accurate portrayal of MG in the media wouldn’t just educate others. It’d give us a sense of solidarity and acknowledgment, something we often go without. \u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E\u003Cspan lang=\"EN\"\u003EWhile we wait for the media to catch up, we continue to share our stories, raise awareness, and hope for a future where MG is represented for what it truly is. And maybe someday, people won’t have to avoid bus stops or look away. They’ll look closer, and they’ll understand.\u003C\u002Fspan\u003E\u003C\u002Fp\u003E\u003Cp\u003E \u003C\u002Fp\u003E\u003Cp\u003E\u003Ci\u003E\u003Cspan lang=\"EN\"\u003E\u003Csup\u003EPhoto Credit: E+\u002FGetty Images\u003C\u002Fsup\u003E\u003C\u002Fspan\u003E\u003C\u002Fi\u003E\u003C\u002Fp\u003E\u003C\u002Fsection_text\u003E\u003Chighlights\u003E\u003C\u002Fhighlights\u003E\u003Cpull_quotes\u003E\u003C\u002Fpull_quotes\u003E\u003C\u002Fsection_group\u003E"},"citations":{"#cdata-section":""},"related_links_header":"","related_links_text":{"#cdata-section":""}}},"is_cons_topic_outline_present":false}},"091e9c5e82273f1c":{"module_settings":{"chronic_id":"091e9c5e82273f1c","title":"bl-nl","object_type":"wbmd_pb_module","wbmd_pb_module_category":"","wbmd_pb_module_xsl":{"path":"\u002Fwebmd\u002FPageBuilder_Assets\u002FXSL\u002FHTML\u002Fvue-webmd-blogs-cs.xsl","object_type":"wbmd_pb_xsl","chronic_id":"091e9c5e82275ecf"},"Class":"HTML"},"module_data":{"contentText":"","Article":{"chronic_id":"","directive":"expandcontentandbasicmeta","object_type":"wbmd_cons_shrt_txt","wbmd_lookup_type":"","wbmd_storage_value":""}}},"091e9c5e82273f1d":{"module_settings":{"chronic_id":"091e9c5e82273f1d","title":"bl-relcntrbtr","object_type":"wbmd_pb_module","wbmd_pb_module_category":"","md_pb_module_label2_group":{"wbmd_pb_module_label2":{"IsDefault":"wbmd_module_label2","i_chronicle_id":"091e9c5e812f8968","wbmd_disp_nm":"Middle","wbmd_storage_val":"middle"}},"wbmd_pb_module_xsl":{"path":"\u002Fwebmd\u002FPageBuilder_Assets\u002FXSL\u002FRSS\u002Fvue-webmd-blogs-bioposts.xsl","object_type":"wbmd_pb_xsl","chronic_id":"091e9c5e82275ed0"},"Class":"RSS"},"module_data":{"rss_url":"\u002Fsearch\u002F2\u002Fapi\u002Fblogs_newruntime?q=channel_id:1000177%20AND%20-isdeleted:true%20AND%20author_bio_id_s:DCTM_095284e1-5df8-4929-8e59-b682e22e0387&excludeID=e10a61a7-4dd8-4e9b-b8b5-cdf4a60526a8&moduletitle=Latest%2520Posts&count=2&start=0","show_link_count":"2"},"rss_data":{"blogName":"Myasthenia Gravis","numFound":38,"startNum":0,"moduleTitle":"Latest%20Posts","item":[{"id":"DCTM_06f45373-ed5b-4fdd-b41c-9b3c7499d8a8","title":"New Research Brings Hope for Living With Myasthenia Gravis","description":"For those living with chronic conditions like myasthenia gravis (MG), staying informed about its medical advancements is essential.","image":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002F1800x1200-woman-outside-silhouette.jpg","url":"https:\u002F\u002Fblogs.webmd.com\u002Fmyasthenia-gravis\u002F20241119\u002Fnew-research-brings-hope-for-living-with-myasthenia-gravis","channel":"Blog - Myasthenia Gravis","publicationDate":"2024-11-19T09:00:00Z","publicationSource":"WebMD Blog - Patient","author":{"url":"https:\u002F\u002Fblogs.webmd.com\u002Fmyasthenia-gravis\u002Fmisha-grayson-coleman","name":" Misha Grayson Coleman","image":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticles\u002Fbiographies\u002F600x600_misha_page.jpg","relatedLinksHeader":"Diagnosed since 2021"},"secCategorymvs":["myasthenia-gravis-diagnosis-management","living-with-myasthenia-gravis"],"isFunded":true,"topic":["Brain & Nervous System"],"primaryTopicId":"4094","lastReviewDate":"","reviewPublicationDate":"2024-11-19T09:00:00Z"},{"id":"DCTM_2e449784-77b7-4e36-810b-fc8ee085a4b7","title":"When MG Unlocks Your Creativity","description":"Living with Myasthenia Gravis (MG) means dealing with changing symptoms. On tough days, it can feel like you're at the mercy of your body. But symptom-heavy days can be opportunities to tap into creativity and mindfulness.","image":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticle_thumbnails\u002Fblog_posts\u002Fmyasthenia_gravis\u002Fyoung-woman-painting-ceramic-mug-in-studio\u002F1800x1200-young-woman-painting-ceramic-mug-in-studio.jpg","url":"https:\u002F\u002Fblogs.webmd.com\u002Fmyasthenia-gravis\u002F20241015\u002Fwhen-mg-unlocks-your-creativity","channel":"Blog - Myasthenia Gravis","publicationDate":"2024-10-15T09:00:00Z","publicationSource":"WebMD Blog - Patient","author":{"url":"https:\u002F\u002Fblogs.webmd.com\u002Fmyasthenia-gravis\u002Fmisha-grayson-coleman","name":" Misha Grayson Coleman","image":"\u002Fwebmd\u002Fconsumer_assets\u002Fsite_images\u002Farticles\u002Fbiographies\u002F600x600_misha_page.jpg","relatedLinksHeader":"Diagnosed since 2021"},"secCategorymvs":["living-with-myasthenia-gravis"],"isFunded":true,"topic":["Brain & Nervous System"],"primaryTopicId":"4094","lastReviewDate":"","reviewPublicationDate":"2024-10-15T09:00:00Z"}]}},"091e9c5e8259d8ec":{"module_settings":{"chronic_id":"091e9c5e8259d8ec","title":"bl-lang","object_type":"wbmd_pb_sharedmodule","wbmd_pb_module_category":"","Class":"RSS"},"module_data":{"rss_url":"https:\u002F\u002Fimg.lb.wbmdstatic.com\u002Fwebmd_static_vue\u002Ffile-explorer\u002Fwebmd\u002Fblogs\u002Fblogs-language-translation.json"},"rss_data":{"es_es":{"contributors":"Colaboradores","featured blog posts":"Entradas de blog destacadas","peer advice video series":"Serie de videos de consejos entre pacientes","filter posts to your interest":"Entradas recientes sobre","next-page":"Siguiente Pagina","by":"Por","article-disclaimer":"\u003Cp\u003E\u003Cspan class='blogs-disclaimer-important'\u003EImportante:\u003C\u002Fspan\u003E Las opiniones expresadas en los Blogs de WebMD son únicamente las del Usuario, que puede o no tener formación médica o científica. Estas opiniones no representan las opiniones de WebMD. Los blogs no son revisados por un médico de WebMD ni por cualquier miembro del personal editorial de WebMD para verificar su exactitud, equilibrio, objetividad o cualquier otra razón, excepto el cumplimiento de nuestros términos y condiciones. Algunas de estas opiniones pueden contener información sobre tratamientos o usos de medicamentos que no han sido aprobados por la Administración de Alimentos y Medicamentos (FDA, por sus siglas en inglés). WebMD no respalda ningún producto, servicio o tratamiento específico.\u003C\u002Fp\u003E\u003Cp\u003ENo considere los Blogs de WebMD como un consejo médico. Nunca demore o ignore la búsqueda de asesoramiento profesional de su médico u otro profesional de la salud debido a algo que haya leído en WebMD. Siempre debe hablar con su médico antes de comenzar, suspender o cambiar cualquier parte prescrita de su plan de atención o tratamiento. 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