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Patient Journey | ASGCT - American Society of Gene & Cell Therapy |
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class="navDropToggle"></div> </li> <li> <a href="/support">Support</a> </li> </ul> <a href="asgct.org" class="px-1 is-external is-hidden-desktop">ASGCT.org</a> </div> </nav> <div class="c-banner" style="background: url('/getattachment/Patient-Journey/CT-finder-page-(3).png.aspx') 50%/cover no-repeat;"> <div class="c-banner-content container"> <h1>Patient Journey</h1> <hr /> <p class="is-large">Helpful information to guide you through the challenging journey from diagnosis to pursuing a gene therapy.</p> </div> </div> </header> <main class="c-main" id="content"> <section class="section wrap pattern pb-x1" style="background: url('/PatientEducation/media/PatientEducation/square-background.png') repeat;"> <div class="container pt-6"> <div class="columns"> <div class="column is-10 is-offset-1"> <div class="c-tile-wrap mb-5"> <div class="c-tile"> <a href="/patient-journey/identifying-a-genetic-disease" class="c-tile-link"> <h3>Identifying a Genetic Disease</h3> <hr /> <p>Genetic testing, in a variety of forms, is one way to identify rare genetic diseases.</p> </a> </div> <div class="c-tile"> <a href="/patient-journey/next-steps-with-a-diagnosis" class="c-tile-link"> <h3>Next Steps With a Diagnosis</h3> <hr /> <p>Here are information and resources to take some first steps after you've received a confirmed diagnosis of a rare genetic disorder.</p> </a> </div> <div class="c-tile"> <a href="/patient-journey/patient-focused-policy-positions" class="c-tile-link"> <h3>Patient-Focused Policy Positions</h3> <hr /> <p>ASGCT regularly publishes and submits comments, testimonies, and articles focused on patient experiences and outcomes.</p> </a> </div> <div class="c-tile"> <a href="/patient-journey/stimulating-research" class="c-tile-link"> <h3>Stimulating Research</h3> <hr /> <p>Patients and advocates play an important role to initiate gene therapy research.</p> </a> </div> <div class="c-tile"> <a href="/patient-journey/considering-a-clinical-trial" class="c-tile-link"> <h3>Considering a Clinical Trial</h3> <hr /> <p>Here's a glimpse into using the clinical trials finder and what to expect when entering a clinical trial.</p> </a> </div> <div class="c-tile"> <a href="/patient-journey/ethical-issues-germline-gene-editing" class="c-tile-link"> <h3>Ethical Issues: Germline Gene Editing</h3> <hr /> <p>This page addresses key ethical questions that patients, their families, and the public might have about this technology.</p> </a> </div> <div class="c-tile"> <a href="/patient-journey/ethical-issues-illegitimate-clinical-trials" class="c-tile-link"> <h3>Ethical Issues: Unproven Stem Cell Products</h3> <hr /> <p>Learn about some of the signs that might help you decide whether a provider of cell therapies can be trusted.<br /> </p> </a> </div> </div> </div> </div> </div> </section> </main> <footer class="c-footer"> <div class="c-footer-primary"> <section class="section"> <div class="container"> <div class="columns"> <div class="column c-footer-section"> 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