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_ngcontent-serverapp-c1809241069 _nghost-serverapp-c3626312683><ins-infinite-scroll _ngcontent-serverapp-c3626312683 _nghost-serverapp-c1498454023 id="users-posts-container"><div _ngcontent-serverapp-c3626312683><div _ngcontent-serverapp-c1809241069 class="pages" id="page-0" data-pageno="1"><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-8970258814346314181" data-ins-parent-element="true" data-post-type="jrnl" data-post-id="8970258814346314181" data-post-title="Get the Inspire app on Android or iPhone" data-post-group-id="200308" data-post-url="/m/TeamInspire/journal/42b6f2-get-the-inspire-app-on-android-or-iphone/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/m/TeamInspire/journal/42b6f2-get-the-inspire-app-on-android-or-iphone/"> Get the Inspire app on Android or iPhone </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply October 22, 2024 • 7:42 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> When it comes to your health, we know that staying connected with your community and content is more important than ever. The Inspire app offers a seamless solution if you’re looking for easy, stream <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>TeamInspire</span><span _ngcontent-serverapp-c2702069511>12 replies</span><span _ngcontent-serverapp-c2702069511>24 Reactions</span></div></section></ins-anon-post><section _ngcontent-serverapp-c1809241069 class="articles-carousel"><ins-search-carousel _ngcontent-serverapp-c1809241069 _nghost-serverapp-c2350682097><div _ngcontent-serverapp-c2350682097 class="search-result-carousel-block"><div _ngcontent-serverapp-c2350682097 class="srcb-head">Related Articles</div><ins-carousel _ngcontent-serverapp-c2350682097 class="srcb-articles srcb-carousel"><div class="glide" id="glide-carousel-1732970641831"><div data-glide-el="track" class="glide__track"><div class="glide__slides"><div _ngcontent-serverapp-c2350682097 carouselslide class="glide__slide"><ins-article-card _ngcontent-serverapp-c2350682097 _nghost-serverapp-c1861685236 id="search-article-0"><div _ngcontent-serverapp-c1861685236 class="article-card-block"><figure _ngcontent-serverapp-c1861685236 class="acb-figure"><img _ngcontent-serverapp-c1861685236 loading="lazy" src="https://static.inspire.com/sponsored-resource-center/images/gb21x26ak63g_3Lp7PSiHg3gWN521EzTaWW_75b95ff5c196a29f57a68aaffbb2c285_GettyImages-501870953-1200x630__1_.jpg" alt></figure><h2 _ngcontent-serverapp-c1861685236 class="acb-title"> What Is Cholesterol? </h2><p _ngcontent-serverapp-c1861685236 class="acb-desc"> Cholesterol is a fat-like substance crucial for healthy cells, hormones, and vitamin D. It's made by the liver and comes from food. Too much "bad" LDL cholesterol can build up plaques, causing heart attacks or strokes. Eating healthy, staying active, and quitting smoking help reduce your risk. </p><div _ngcontent-serverapp-c1861685236 class="acb-category"> Cardiovascular disease </div><div _ngcontent-serverapp-c1861685236 class="acb-subcategory">Resource Center</div></div></ins-article-card></div><div _ngcontent-serverapp-c2350682097 carouselslide class="glide__slide"><ins-article-card _ngcontent-serverapp-c2350682097 _nghost-serverapp-c1861685236 id="search-article-1"><div _ngcontent-serverapp-c1861685236 class="article-card-block"><figure _ngcontent-serverapp-c1861685236 class="acb-figure"><img _ngcontent-serverapp-c1861685236 loading="lazy" src="https://static.inspire.com/sponsored-resource-center/images/gb21x26ak63g_1h5l4TJlAlzVqNhyzdK8lC_7cc435bdc9063e62d3db2d532d905343_1_GettyImages-1062184824-300x300.jpg" alt></figure><h2 _ngcontent-serverapp-c1861685236 class="acb-title"> Taking Action Through Shared Decision-Making With Your Healthcare Provider </h2><p _ngcontent-serverapp-c1861685236 class="acb-desc"> Learn about shared decision-making to work with your healthcare provider to manage your cholesterol levels. Discuss options for treatment, express your preferences, and together choose the best plan for you. This is about teamwork and it is a continuous process. </p><div _ngcontent-serverapp-c1861685236 class="acb-category"> Cardiovascular disease </div><div _ngcontent-serverapp-c1861685236 class="acb-subcategory">Resource Center</div></div></ins-article-card></div><div _ngcontent-serverapp-c2350682097 carouselslide class="glide__slide"><ins-article-card _ngcontent-serverapp-c2350682097 _nghost-serverapp-c1861685236 id="search-article-2"><div _ngcontent-serverapp-c1861685236 class="article-card-block"><figure _ngcontent-serverapp-c1861685236 class="acb-figure"><img _ngcontent-serverapp-c1861685236 loading="lazy" src="https://static.inspire.com/sponsored-resource-center/images/gb21x26ak63g_7rxL1Nth2jgn810qAWeF01_ef1ac4cf5beae9e4d34f13a7d5e3fc2f_Small_Thumbnail__1_.jpg" alt></figure><h2 _ngcontent-serverapp-c1861685236 class="acb-title"> What is Lp(a)? </h2><p _ngcontent-serverapp-c1861685236 class="acb-desc"> Lp(a), or lipoprotein (a), is a type of cholesterol made in the liver that carries fats and proteins in your blood. Think of Lp(a) as a ball with a special protein tag that can stick to blood vessels, causing plaques. High Lp(a) can lead to heart problems. </p><div _ngcontent-serverapp-c1861685236 class="acb-category"> Cardiovascular disease </div><div _ngcontent-serverapp-c1861685236 class="acb-subcategory">Resource Center</div></div></ins-article-card></div><div _ngcontent-serverapp-c2350682097 carouselslide class="glide__slide"><ins-article-card _ngcontent-serverapp-c2350682097 _nghost-serverapp-c1861685236 id="search-article-3"><div _ngcontent-serverapp-c1861685236 class="article-card-block"><figure _ngcontent-serverapp-c1861685236 class="acb-figure"><img _ngcontent-serverapp-c1861685236 loading="lazy" src="https://static.inspire.com/sponsored-resource-center/images/gb21x26ak63g_6dkAbreQyQ03nMqgj0EHjr_3a50e6d669829280f4f561c232cfdc22_Small_Thumbnail__1_.jpg" alt></figure><h2 _ngcontent-serverapp-c1861685236 class="acb-title"> Integrating Lipoprotein(a) Into Clinical Visits </h2><p _ngcontent-serverapp-c1861685236 class="acb-desc"> Healthcare providers consider risk factors, personal and family medical history, and habits to determine your risk of cardiovascular disease. High Lp(a) is an independent risk factor, meaning even if you have no other risks, high Lp(a) alone is enough to increase your risk of cardiovascular disease. Knowing your Lp(a) level is important for a complete risk assessment. </p><div _ngcontent-serverapp-c1861685236 class="acb-category"> Cardiovascular disease </div><div _ngcontent-serverapp-c1861685236 class="acb-subcategory">Resource Center</div></div></ins-article-card></div><div _ngcontent-serverapp-c2350682097 carouselslide class="glide__slide"><ins-article-card _ngcontent-serverapp-c2350682097 _nghost-serverapp-c1861685236 id="search-article-4"><div _ngcontent-serverapp-c1861685236 class="article-card-block"><figure _ngcontent-serverapp-c1861685236 class="acb-figure"><img _ngcontent-serverapp-c1861685236 loading="lazy" src="https://static.inspire.com/sponsored-resource-center/images/gb21x26ak63g_6JdDvuk8zHFTCjEYv2csC2_8429107f6f543da074b6f8e88c1ff414_Small_Thumbnail__2_.jpg" alt></figure><h2 _ngcontent-serverapp-c1861685236 class="acb-title"> Genes and Lp(a) Cascade Screening </h2><p _ngcontent-serverapp-c1861685236 class="acb-desc"> Lp(a) is a type of lipoprotein that is linked to heart disease. Your genes, inherited from your parents, affect Lp(a) levels. High Lp(a) runs in families, so if one person has it, others might too. Cascade screening tests family members to find and help those at risk. </p><div _ngcontent-serverapp-c1861685236 class="acb-category"> Cardiovascular disease </div><div _ngcontent-serverapp-c1861685236 class="acb-subcategory">Resource Center</div></div></ins-article-card></div></div></div></div><a _ngcontent-serverapp-c2350682097 class="srcb-next"><ins-svg-icon _ngcontent-serverapp-c2350682097 icontype="arrow-right" _nghost-serverapp-c33518352><svg _ngcontent-serverapp-c33518352="" fill="currentColor" width="1em" height="1em" viewBox="0 0 1024 1024"><use _ngcontent-serverapp-c33518352="" href="/assets/svgs/symbol-defs.svg?t=7#arrow-right"/></svg></ins-svg-icon></a></ins-carousel></div></ins-search-carousel></section><app-call-to-action-prompt _ngcontent-serverapp-c1809241069 _nghost-serverapp-c1555552141><section _ngcontent-serverapp-c1555552141 class="call-action-banner-prompt give-receive-support"><img _ngcontent-serverapp-c1555552141 data-size="desktop" alt class="cabp-figure" src="/assets/img/give-receive-support.svg"><img _ngcontent-serverapp-c1555552141 data-size="mobile" alt class="cabp-figure" src="/assets/img/give-receive-support.svg"><div _ngcontent-serverapp-c1555552141 class="cabp-inner"><h3 _ngcontent-serverapp-c1555552141 class="cabp-title">By joining Inspire, you can give and receive support from members</h3><a _ngcontent-serverapp-c1555552141 class="bttn bttn-navy cabp-btn">Join now</a></div></section></app-call-to-action-prompt><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-14828921743817432564" data-ins-parent-element="true" data-post-type="disc" data-post-id="14828921743817432564" data-post-title="Seeking individuals receiving in home IVIG under Medicare beginning in Janu" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/b280d9-seeking-individuals-receiving-in-home-ivig-under-medicare-beginning-in-janu/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/b280d9-seeking-individuals-receiving-in-home-ivig-under-medicare-beginning-in-janu/"> Seeking individuals receiving in home IVIG under Medicare beginning in Janu </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted September 19, 2024 • 7:51 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> On the last day Congress in session during 2023 they passed a resolution/law that in-home IVIG would now be covered under Medicare and Medicaid. Whatever CMS does is adopted by the insurance comp <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Teri_hummingbird</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><app-inspire-ad _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3229238076><div _ngcontent-serverapp-c3229238076 class="post-block-ad"><div _ngcontent-serverapp-c3229238076 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-1"></div><div _ngcontent-serverapp-c3229238076 class="pba-foot">Advertisement</div></div></app-inspire-ad><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-18137221186418394538" data-ins-parent-element="true" data-post-type="disc" data-post-id="18137221186418394538" data-post-title="ISO SFEMG Results" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/iso-sfemg-results/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/iso-sfemg-results/"> ISO SFEMG Results </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply July 29, 2024 • 11:36 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> If you had an abnormal single fiber EMG, can you share your results? And also clarify if you are seronegative or not? I’m being told that my SFEMG wasn’t abnormal enough and I have to repeat the te <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>kpkelly</span><span _ngcontent-serverapp-c2702069511>1 replies</span><span _ngcontent-serverapp-c2702069511>1 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-17046137809533998840" data-ins-parent-element="true" data-post-type="disc" data-post-id="17046137809533998840" data-post-title="My tests a Negative and I'm Co fuse" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/my-tests-a-negative-and-im-co-fuse/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/my-tests-a-negative-and-im-co-fuse/"> My tests a Negative and I'm Co fuse </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted July 26, 2024 • 5:03 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Something strange happened this morning. My Mestinon dose had definitely worn off. I was not due for my next dose for about hour. All of a sudden, it seemed like someone took a dimmer switch to my <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>TerriBoland</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-7786126760501078368" data-ins-parent-element="true" data-post-type="disc" data-post-id="7786126760501078368" data-post-title="My tests came back negative but Mestinon helps, why??" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/my-tests-a-negative-and-im-co-fused/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/my-tests-a-negative-and-im-co-fused/"> My tests came back negative but Mestinon helps, why?? </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 30, 2024 • 2:17 AM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> I took the blood tests and came back negative??I took some nerve tests and they were inconclusive? I have a lot of Ocular symptoms,chewing and swallowing issues, and muscle weakness. It also doesn <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>TerriBoland</span><span _ngcontent-serverapp-c2702069511>10 replies</span><span _ngcontent-serverapp-c2702069511>1 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-3178750533717077090" data-ins-parent-element="true" data-post-type="disc" data-post-id="3178750533717077090" data-post-title="Healthy communication?" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/healthy-communication/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/healthy-communication/"> Healthy communication? </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted July 25, 2024 • 9:16 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Do you feel you have a good ongoing relationship ability to effectively communicate with your care team? If not, what do you feel impedes this? <span _ngcontent-serverapp-c2702069511></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>RebekahMGHope</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-6592961964341044686" data-ins-parent-element="true" data-post-type="disc" data-post-id="6592961964341044686" data-post-title="Support" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/support-tbmerm/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/support-tbmerm/"> Support </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted July 12, 2024 • 3:22 AM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> We all have different needs and desires but what are some ways you feel that medicine, friends and family and culture as a whole could offer practical support in your day to day life? What small th <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>RebekahMGHope</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><app-inspire-ad _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3229238076><div _ngcontent-serverapp-c3229238076 class="post-block-ad"><div _ngcontent-serverapp-c3229238076 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-6"></div><div _ngcontent-serverapp-c3229238076 class="pba-foot">Advertisement</div></div></app-inspire-ad><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-2944865202655332529" data-ins-parent-element="true" data-post-type="disc" data-post-id="2944865202655332529" data-post-title="Mental Health and MG" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/mental-health-and-mg/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/mental-health-and-mg/"> Mental Health and MG </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply July 29, 2024 • 11:29 PM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Mental health is just as important as our physical health but it’s often pushed to the side or altogether ignored. But it doesn’t change the incredible need for support in this area. Do you feel you <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>RebekahMGHope</span><span _ngcontent-serverapp-c2702069511>2 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-2687175220655807136" data-ins-parent-element="true" data-post-type="disc" data-post-id="2687175220655807136" data-post-title="Blood pressure medications and myasthenia gravis" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/blood-pressure-medications-and-myasthenia-gravis/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/blood-pressure-medications-and-myasthenia-gravis/"> Blood pressure medications and myasthenia gravis </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply July 12, 2024 • 2:32 AM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> So currently I’m on hydrazlazine 30 mg daily for my high blood pressure. I would like to switch to Labetalol as we are going to try to conceive again soon. (Hydralazine has a 5% chance of cleft lip/pa <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>kmevans14</span><span _ngcontent-serverapp-c2702069511>6 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-16983753306724954160" data-ins-parent-element="true" data-post-type="disc" data-post-id="16983753306724954160" data-post-title="Advance or Stay Put?" data-post-group-id="200308" data-post-url="/groups/myasthenia-gravis/discussion/advance-or-stay-put/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/myasthenia-gravis/discussion/advance-or-stay-put/"> Advance or Stay Put? </a></h3></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted June 17, 2024 • 7:21 AM </div></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> It can be tricky as a patient to know how and when to bring up the possibility of trying a new treatment. Some therapies take a while to work. And trying something new can mean letting go of what you <span _ngcontent-serverapp-c2702069511> ... <a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>RebekahMGHope</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>1 Reactions</span></div></section></ins-anon-post></div><div _ngcontent-serverapp-c3626312683 class="load-more"></div></div><div _ngcontent-serverapp-c1498454023></div></ins-infinite-scroll></app-post-feed-wrapper></div></div></div></main><aside _ngcontent-serverapp-c1809241069 class="sider-track sider-track-right"><div _ngcontent-serverapp-c1809241069 class="widget-box"><ins-community-members _ngcontent-serverapp-c1809241069 id="desktop-community-members" _nghost-serverapp-c850839045><section _ngcontent-serverapp-c850839045 class="widget-pack 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The Inspire app offers a seamless solution if you’re looking for easy, streamlined access to your content and networks. Download the app at the links below or read on for benefits of using the app.\u003C/p>\u003Cp>\u003Ca href=\"https://apps.apple.com/us/app/inspire-health-community/id1495096606?&utm_medium=web&utm_source=CommunityPost&utm_campaign=SeptPost-iOSApp\" target=\"_blank\" rel=\"noopener ugc nofollow\">\u003Cstrong>Get the Inspire app for iOS\u003C/strong>\u003C/a>\u003Cstrong>.\u003C/strong>\u003C/p>\u003Cp>\u003Ca href=\"https://play.google.com/store/apps/details?id=com.inspire.www.pwa&pli=1&utm_medium=web&utm_source=CommunityPost&utm_campaign=SeptPost-androidApp\" target=\"_blank\" rel=\"noopener ugc nofollow\">\u003Cstrong>Get the Inspire app for Android\u003C/strong>\u003C/a>\u003Cstrong>.\u003C/strong>\u003C/p>\u003Col>\u003Cli>\u003Cp>\u003Cstrong>Easy accessibility\u003C/strong>\u003C/p>\u003Cp>The Inspire app allows users to access their content with just one tap. No need to log in every time—simply open the app and you're instantly connected to what matters most.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>On-the-go access\u003C/strong>\u003C/p>\u003Cp>Whether you're commuting, traveling, or just out and about, the Inspire app lets you stay connected to your community. Engage in discussions, post updates, or follow up on content wherever you are.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Enhanced performance\u003C/strong>\u003C/p>\u003Cp>Unlike web-based platforms, the Inspire app is optimized for your device, offering quicker load times, smoother interactions, and a more reliable experience.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Voice-to-text feature\u003C/strong>\u003C/p>\u003Cp>The app's voice-to-text feature lets you create posts and share thoughts hands-free. This is perfect for users who want to multitask or quickly jot down ideas without typing.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Timely notifications\u003C/strong>\u003C/p>\u003Cp>Never miss an important update again! The app sends notifications in real time, ensuring you’re always informed about new content, events, and community activity.\u003C/p>\u003C/li>\u003Cli>\u003Cp>\u003Cstrong>Focused experience\u003C/strong>\u003C/p>\u003Cp>The Inspire app provides a distraction-free environment where you can focus on your content and conversations. With fewer interruptions, you can enjoy a more immersive experience.\u003C/p>\u003C/li>\u003C/ol>","reply_count":12,"url":"/m/TeamInspire/journal/42b6f2-get-the-inspire-app-on-android-or-iphone/","is_followed":false,"privacy":"public","class":"jrnl","reactions":[{"type":"USEFUL","count":6,"reacted_by_me":false,"nicknames":["HowardChang","susie40","lvlabate20","ivaonovivan1973","BlueSunflower","Member_Wallaby2166"],"__typename":"PostReactions"},{"type":"THANKS","count":9,"reacted_by_me":false,"nicknames":["susie40","BlueSunflower","Villanelle","ButILOOKGood","LeesahH","ttp1","mrozekremania727","AngelaLeei","genderqueerpioneer"],"__typename":"PostReactions"},{"type":"SUPPORT","count":9,"reacted_by_me":false,"nicknames":["EDSHelper","lvlabate20","Nana_Porcupine5","Emoji1964","BlueSunflower","desireemusso35","Dmbeyer","mrozekremania727","SophiaMiller"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"14828921743817432564","title":"Seeking individuals receiving in home IVIG under Medicare beginning in Janu","slug":"disc-b280d9-seeking-individuals-receiving-in-home-ivig-under-medicare-beginning-in-janu","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"Teri_hummingbird","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3787,"name":"Symptoms/disease management","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-09-19T19:51:32Z","active":"2024-09-19T19:51:32Z","content":"\u003Cp>\u003Cbr> \u003C/p>\u003Cp>On the last day Congress in session during 2023 they passed a resolution/law that in-home IVIG would now be covered under Medicare and Medicaid. Whatever CMS does is adopted by the insurance companies, boss expecting any insurance companies that previously had not covered in home IVIG would now cover it \u003Cbr> \u003C/p>\u003Cp>There were over 3000 participants in the initial pilot and it was estimated it could take up to two years to convert them over to be covered whether insurance or Medicare/Medicaid.\u003Cbr> \u003C/p>\u003Cp>However, in early 2024 Medigap terminated plans D and F (which I believe are the correct the letters but perhaps not ) which wee the only two plans that cover the immense gap between coverage and actual cost. Those new to the program in 2024 cannot purchase these gap plans.\u003Cbr> \u003C/p>\u003Cp>For those who entered Medicare in 2024 and utilize in-home IVIG, did you find a Medigap plan that covers and if so, what is it and where did you get it? What is your total annual cost out-of-pocket, that you pay in order to get in-home IV? I receive in-home IV every two weeks and would need coverage for that\u003Cbr> \u003C/p>\u003Cp>Thank you for your consideration of this request and for your support\u003C/p>","reply_count":0,"url":"/groups/myasthenia-gravis/discussion/b280d9-seeking-individuals-receiving-in-home-ivig-under-medicare-beginning-in-janu/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"18137221186418394538","title":"ISO SFEMG Results","slug":"disc-iso-sfemg-results","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"kpkelly","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3786,"name":"Newly diagnosed","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-27T21:20:39Z","active":"2024-07-29T23:36:27Z","content":"\u003Cp>If you had an abnormal single fiber EMG, can you share your results? And also clarify if you are seronegative or not? \u003Cbr>\u003Cbr>I’m being told that my SFEMG wasn’t abnormal enough and I have to repeat the test, which doesn’t align with my research. The specific data points may look like this (my actual result):\u003C/p>\u003Cp>\u003Cbr>Mean consecutive difference of 22 potential pairs is abnormal at 46 µs. 3 pairs show abnormality of jitter and 1 shows abnormality of jitter and blocking.\u003C/p>\u003Cp>\u003Cbr>Thank you!\u003C/p>","reply_count":1,"url":"/groups/myasthenia-gravis/discussion/iso-sfemg-results/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["RebekahMGHope"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"17046137809533998840","title":"My tests a Negative and I'm Co fuse","slug":"disc-my-tests-a-negative-and-im-co-fuse","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"TerriBoland","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3787,"name":"Symptoms/disease management","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-26T17:03:36Z","active":"2024-07-26T17:03:36Z","content":"\u003Cp>Something strange happened this morning. My Mestinon dose had definitely worn off. I was not due for my next dose for about hour. All of a sudden, it seemed like someone took a dimmer switch to my eye site. Any ideas??\u003C/p>","reply_count":0,"url":"/groups/myasthenia-gravis/discussion/my-tests-a-negative-and-im-co-fuse/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"7786126760501078368","title":"My tests came back negative but Mestinon helps, why??","slug":"disc-my-tests-a-negative-and-im-co-fused","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"TerriBoland","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3787,"name":"Symptoms/disease management","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-25T22:55:42Z","active":"2024-11-30T02:17:10Z","content":"\u003Cp>I took the blood tests and came back negative??I took some nerve tests and they were inconclusive? \u003C/p>\u003Cp>I have a lot of Ocular symptoms,chewing and swallowing issues, and muscle weakness. It also doesn't help the I also have severe Oesteo arthritis. \u003C/p>\u003Cp>I started Mestinon 4 months ago, 3 x 60 MG per day. It takes about 45 minutes to start working and lasts about 3 hours.\u003C/p>\u003Cp>I work in a very busy Grocery Store Deli. I am running all day. I take my lunch dose at 11:30am. I am also getting tired then. The dose does help the symptoms, but only is effective for about 2 hours. Is this normal?\u003C/p>\u003Cp>My Neuro has increased my dose to 4 x 60mg per day. It gives me a bit more energy for a few hours. Is a fourth dose normal? I don't see anyone taking 4 doses.\u003C/p>\u003Cp>My Neuro is sending me for a Nerve Conduction Study and a CT of my Thymus gland but I have to wait because if delays at the hospital \u003C/p>","reply_count":10,"url":"/groups/myasthenia-gravis/discussion/my-tests-a-negative-and-im-co-fused/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["RebekahMGHope"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"3178750533717077090","title":"Healthy communication?","slug":"disc-healthy-communication","author":{"avatar":{"small":"/api/member/RebekahMGHope/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[{"role_type":"GROUP_LDR","group_id":200308,"__typename":"SiteRole"}],"nickname":"RebekahMGHope","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3791,"name":"Relationship with healthcare team","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-25T21:16:45Z","active":"2024-07-25T21:16:45Z","content":"Do you feel you have a good ongoing relationship ability to effectively communicate with your care team? If not, what do you feel impedes this?","reply_count":0,"url":"/groups/myasthenia-gravis/discussion/healthy-communication/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"6592961964341044686","title":"Support","slug":"disc-support-tbmerm","author":{"avatar":{"small":"/api/member/RebekahMGHope/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[{"role_type":"GROUP_LDR","group_id":200308,"__typename":"SiteRole"}],"nickname":"RebekahMGHope","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3789,"name":"Living with MG","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-12T03:22:25Z","active":"2024-07-12T03:22:25Z","content":"We all have different needs and desires but what are some ways you feel that medicine, friends and family and culture as a whole could offer practical support in your day to day life? \u003Cdiv>\u003Cbr>\u003Cdiv>What small things would make a big impact on your everyday?\u003C/div>\u003C/div>","reply_count":0,"url":"/groups/myasthenia-gravis/discussion/support-tbmerm/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"2944865202655332529","title":"Mental Health and MG","slug":"disc-mental-health-and-mg","author":{"avatar":{"small":"/api/member/RebekahMGHope/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[{"role_type":"GROUP_LDR","group_id":200308,"__typename":"SiteRole"}],"nickname":"RebekahMGHope","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3789,"name":"Living with MG","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-10T01:22:13Z","active":"2024-07-29T23:29:57Z","content":"Mental health is just as important as our physical health but it’s often pushed to the side or altogether ignored. But it doesn’t change the incredible need for support in this area. \u003Cdiv>Do you feel you have the appropriate resources to cope with changes and symptoms to your mental health on this journey with MG?\u003C/div>","reply_count":2,"url":"/groups/myasthenia-gravis/discussion/mental-health-and-mg/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"2687175220655807136","title":"Blood pressure medications and myasthenia gravis","slug":"disc-blood-pressure-medications-and-myasthenia-gravis","author":{"avatar":{"small":"/api/member/kmevans14/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"kmevans14","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3788,"name":"Treatment choice","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-07-06T17:25:03Z","active":"2024-07-12T02:32:24Z","content":"So currently I’m on hydrazlazine 30 mg daily for my high blood pressure. I would like to switch to Labetalol as we are going to try to conceive again soon. (Hydralazine has a 5% chance of cleft lip/palate) When my son was born, may he rest in peace, he did not have cleft lip/palate and I was on hydralazine, but I am trying to make sure things are as safe as possible going into another pregnancy. My neurologist said I could do a beta blocker trial with Labetalol but if my MG symptoms get really bad I need to stop it. Have any of you been on a beta blocker with MG? How did it go? \u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>My family doctor treats for my BP and prescribes my meds, but he’s been a real PITA about switching meds and me wanting to have children. He had tried to tell me I should have a cardiologist prescribe my BP meds, but there is no reason he can’t. (He’s been prescribing me my BP meds since 2021 when I was diagnosed, and he diagnosed me). He is just being difficult. All my specialist doctors are all on board with me and my husband trying to have kids and they are all okay with the BP med switch, but my family doc been a real problem. Idk. I have even thought about changing family doctors but I have known him and been seeing him since I was about 8-10 years old. Change is hard. But he’s on my shit list right now. Idk. Any advice would be great. \u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>Is it unreasonable for me to ask my endocrinologist to take over my BP meds?\u003C/div>","reply_count":6,"url":"/groups/myasthenia-gravis/discussion/blood-pressure-medications-and-myasthenia-gravis/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"16983753306724954160","title":"Advance or Stay Put?","slug":"disc-advance-or-stay-put","author":{"avatar":{"small":"/api/member/RebekahMGHope/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[{"role_type":"GROUP_LDR","group_id":200308,"__typename":"SiteRole"}],"nickname":"RebekahMGHope","status":4,"__typename":"User"},"groups":[{"name_id":"myasthenia-gravis","group_id":200308,"name":"Myasthenia Gravis Community","topics":[{"id":3788,"name":"Treatment choice","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-06-17T07:21:59Z","active":"2024-06-17T07:21:59Z","content":"It can be tricky as a patient to know how and when to bring up the possibility of trying a new treatment. Some therapies take a while to work. And trying something new can mean letting go of what you are currently on and that can be a difficult choice as well. \u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>So how do you know when is the right time to broach the subject with your provider? \u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>A general rule of thumb is if daily quality of life remains poor or symptom management remains difficult (frequent hospitalizations, ongoing struggles with breathing, significant issues with eating/swallowing etc…) it’s likely time to have that conversation to find out what is out there and what might be best for you. \u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>Have you had this conversation with your provider? \u003C/div>","reply_count":0,"url":"/groups/myasthenia-gravis/discussion/advance-or-stay-put/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["RebekahMGHope"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null}]}}}</script></body></html>