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We follow a rigorous process to develop our guidance."></button></article><figcaption class="Spotlight_caption__jSuZG">We produce evidence-based guidance to support the health and care system, ensure value for money, and provide people with access to the best quality care.</figcaption></figure></div><div class="Spotlight_stories__VV4pV"><ul class="Spotlight_storyList__6QNYX"><li class="card" data-component="card"><div class="card__image"><picture><source srcSet="https://a.storyblok.com/f/243782/1800x1201/0b40b17f8d/clinician-and-patient.jpg/m/708x0/filters:format%28avif%29:quality%2880%29" type="image/avif"/><source srcSet="https://a.storyblok.com/f/243782/1800x1201/0b40b17f8d/clinician-and-patient.jpg/m/708x0/filters:format%28webp%29:quality%2880%29" type="image/webp"/><img src="https://a.storyblok.com/f/243782/1800x1201/0b40b17f8d/clinician-and-patient.jpg/m/708x0/filters:format%28jpeg%29:quality%2880%29" alt="Female clinician consulting with male patient"/></picture></div><div class="card__text"><header class="card__header"><p class="card__heading"><a href="https://indepth.nice.org.uk/how-nice-makes-its-decisions/index.html">A simple guide to how NICE makes its decisions</a></p></header><span class="tag tag--outline" data-component="tag">In-depth</span></div></li><li class="card" data-component="card"><div class="card__image"><picture><source srcSet="https://a.storyblok.com/f/243782/800x600/71a267aa2b/older-man-and-carer.jpg/m/708x0/filters:format%28avif%29:quality%2880%29" type="image/avif"/><source srcSet="https://a.storyblok.com/f/243782/800x600/71a267aa2b/older-man-and-carer.jpg/m/708x0/filters:format%28webp%29:quality%2880%29" type="image/webp"/><img src="https://a.storyblok.com/f/243782/800x600/71a267aa2b/older-man-and-carer.jpg/m/708x0/filters:format%28jpeg%29:quality%2880%29" alt="A female clinician talks to an older patient"/></picture></div><div class="card__text"><header class="card__header"><p class="card__heading"><a href="https://indepth.nice.org.uk/NICE-at-25/index.html">25 years of helping to get the best care to people fast</a></p></header><span class="tag tag--outline" data-component="tag">In-depth</span></div></li></ul></div></div></div></section><article class="PromoBox_promoBox__AlglV" data-tracking="promo-box"><div class="PromoBox_container__T9NOL"><div class="grid grid--loose"><div data-g="12 md:7" data-component="grid-item" class="PromoBox_contentContainer__1TT8q"><h2 class="PromoBox_heading__VV7OC">NICE 25: What are our future challenges and opportunities?</h2><div class="PromoBox_body__CwoBf"><div class="StoryblokRichText_storyblokRichTextWrapper__jAYnD " data-testid="storyblok-rich-text"><p>On NICE’s 25th anniversary, our partners and collaborators in the health care system discuss what the future holds for NICE.</p></div></div><a href="https://www.youtube.com/watch?v=RRDz047so4E" class="btn" data-component="button--primary">Find out more about NICE 25</a></div><div data-g="12 md:5" 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We have done all we can to try and achieve that.","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]},{"type":"paragraph","content":[{"text":"“Once again ","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]},{"text":"I would like to thank the breast cancer community for their hard work on this issue and I am sorry the outcome was not what we, nor they and the patients they represent, expected.”","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"We were set to act swiftly on receipt of an agreed new cost-effective price with updated guidance and patient access to the treatment within days.","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]},{"type":"paragraph","content":[{"text":"In the talks both ourselves and NHS England continued to offer as much flexibility as possible, but despite the intervention of Secretary of State for Health Wes Streeting, the companies did not put forward a cost-effective price that would have enabled us to recommend Enhertu as value for money for the taxpayer.","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]},{"type":"paragraph","content":[{"text":"Enhertu remains the only breast cancer treatment we’ve been unable to recommend for 6 years and breaks a line of 21 positive breast cancer recommendations. 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increase in positive decisions for cancer medicines and non-cancer medicines.","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"The proportion of positive decisions where the new additional severity weighting was used is higher (84.4%) than with end of life (82.7%)","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"We are saying yes to a greater proportion of new cancer treatments.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"bullet_list","content":[{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"The proportion of positive cancer recommendations overall is higher (79% compared to 78%) and","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"The proportion of positive recommendations for advanced cancer treatments is higher (81% compared to 69%)","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"Our committees can now give greater weight to severe conditions and conditions characterised by a poor quality of life such as hepatitis D and cystic fibrosis – neither would qualify for additional weighting under the narrower end of life criteria.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]}]}]},"metadata":[],"component":"newsArticle","introText":"Talks with the makers of Enhertu have ended without agreement, meaning guidance that does not recommend Enhertu for advanced breast cancer will remain unchanged.","resources":[],"relatedNews":[]},"slug":"nice-responds-to-failure-of-talks-to-reach-price-agreement-on-enhertu","full_slug":"news/articles/nice-responds-to-failure-of-talks-to-reach-price-agreement-on-enhertu","default_full_slug":null,"sort_by_date":null,"position":-2220,"tag_list":[],"is_startpage":false,"parent_id":420552799,"meta_data":null,"group_id":"32e8cb90-c9d5-4b0d-8ab3-3e866f32f303","first_published_at":"2024-11-19T16:45:04.410Z","release_id":null,"lang":"default","path":null,"translated_slugs":[]},{"name":"A safe space for bold ideas – implementing a sandbox approach in health technology assessment","created_at":"2024-11-19T16:05:47.230Z","published_at":"2024-11-19T16:40:44.332Z","alternates":[],"id":581420351,"uuid":"80771f6c-de12-4290-a9bf-612ded59865e","content":{"_uid":"9b0649da-0771-4a84-94f4-eb47d1718069","date":"2024-11-19 00:00","image":{"id":18588573,"alt":"","name":"","focus":"","title":"","source":"","filename":"https://a.storyblok.com/f/243782/1800x1202/4b0eb6ad34/collaboration.jpg","copyright":"","fieldtype":"asset","meta_data":{},"is_external_url":false},"title":"A safe space for bold ideas – implementing a sandbox approach in health technology assessment","author":[{"name":"Dr Dalia Dawoud","created_at":"2024-01-23T13:33:23.491Z","published_at":"2024-11-19T16:43:57.351Z","alternates":[],"id":431444407,"uuid":"6d100a5d-48cb-4fc5-aa10-8ec1eb102f0e","content":{"_uid":"87c4e8eb-2bd4-4632-ac62-ec2b0858e488","name":"Dr Dalia Dawoud","image":{"id":13834116,"alt":"","name":"","focus":"","title":"","source":"","filename":"https://a.storyblok.com/f/243782/200x200/8db9c12cbf/dalia_dawoud.jpg","copyright":"","fieldtype":"asset","meta_data":{},"is_external_url":false},"jobTitle":"associate director of research in NICE’s Science Policy and Research Programme","component":"author"},"slug":"dr-dalia-dawoud","full_slug":"news/blogs/authors/dr-dalia-dawoud","default_full_slug":null,"sort_by_date":null,"position":-70,"tag_list":[],"is_startpage":false,"parent_id":416560259,"meta_data":null,"group_id":"fa2cd088-326e-4772-acf1-06c919e0ce0d","first_published_at":"2024-01-23T13:34:23.773Z","release_id":null,"lang":"default","path":null,"translated_slugs":[]},{"name":"Jamie Elvidge","created_at":"2024-10-31T09:29:33.428Z","published_at":"2024-11-19T16:05:27.827Z","alternates":[],"id":571988433,"uuid":"2e1628fd-7dfd-49ea-bc90-d4da324c3d97","content":{"_uid":"7c6b9a25-b6a9-4100-a319-382d55d06045","name":"Jamie Elvidge","image":{"id":17906946,"alt":"Jamie Elvidge","name":"","focus":"","title":"","source":"","filename":"https://a.storyblok.com/f/243782/500x512/8698e5d5ac/jamie-elvidge.png","copyright":"","fieldtype":"asset","meta_data":{"alt":"Jamie Elvidge","title":"","source":"","copyright":""},"is_external_url":false},"jobTitle":"senior scientific adviser in NICE’s Science Policy and Research Programme ","component":"author"},"slug":"jamie-elvidge","full_slug":"news/blogs/authors/jamie-elvidge","default_full_slug":null,"sort_by_date":null,"position":-520,"tag_list":[],"is_startpage":false,"parent_id":416560259,"meta_data":null,"group_id":"10ff16b8-195d-449a-912c-c9f6f2e80f78","first_published_at":"2024-10-31T09:30:19.956Z","release_id":null,"lang":"default","path":null,"translated_slugs":[]}],"content":{"type":"doc","content":[{"type":"paragraph","content":[{"text":"In today's rapidly evolving healthcare landscape, health technology assessment (HTA) agencies face a difficult challenge: keeping up with the fast-paced development of innovative technologies. Traditional assessment methods sometimes struggle to evaluate new treatments. HTA agencies must continue to evolve to avoid potentially delaying patient access to life-changing innovations.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"heading","attrs":{"level":2},"content":[{"text":"The sandbox solution","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"The sandbox concept, originally developed in the financial technology sector, creates a safe and controlled environment where new ideas, products, or processes can be explored and developed without impacting existing systems or users. In the context of HTA, a sandbox allows agencies to experiment with innovative assessment methods and collaborate with stakeholders, isolated from the pressures of live evaluations.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"type":"hard_break"},{"type":"hard_break"},{"text":"As part of the EU-funded ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"Next Generation Health Technology Assessment (HTx) project","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.htx-h2020.eu/","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":", we conducted a literature review to explore the extent of sandbox use in healthcare and assessed its potential for HTA organisations. We followed this up by testing the sandbox approach to address some known HTA challenges. Finally, we developed a series of recommendations to help HTA agencies implement this innovative testing ground.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"heading","attrs":{"level":2},"content":[{"text":"Key findings","type":"text","marks":[{"type":"bold"},{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Through our literature review, ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"The sandbox approach and its potential for use in health technology assessment","type":"text","marks":[{"type":"link","attrs":{"href":"https://link.springer.com/article/10.1007/s40258-021-00665-1","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":", we found that:","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"bullet_list","content":[{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"regulatory sandboxes in healthcare are relatively new and primarily used in high-income countries","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"they mainly support the adoption of new technologies, particularly in digital health","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"despite its potential, this approach was not being used in HTA.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]}]},{"type":"paragraph","content":[{"text":"We concluded that HTA agencies should consider this approach to facilitate developing policies, methods and processes for innovative and disruptive health technologies.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"heading","attrs":{"level":2},"content":[{"text":"Recommendations for implementation","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Our paper, ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"Implementing a sandbox approach in health technology assessment: benefits and recommendations","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.cambridge.org/core/journals/international-journal-of-technology-assessment-in-health-care/article/implementing-a-sandbox-approach-in-health-technology-assessment-benefits-and-recommendations/91B4A85A24A73CE4CE2C114486663207","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":", provides guidance on effective implementation.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Key recommendations for HTA agencies include:","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"bullet_list","content":[{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"use sandboxes in an anticipatory way: align with horizon-scanning efforts to prepare for upcoming challenges","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"focus on technical solutions: HTA sandboxes are most useful for challenges expected to have objective technical solutions","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":" ","type":"text"},{"text":"(rather than challenges relating to values or ethics, for example)","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"communicate clearly: define the sandbox scope, objectives and safe space concept to manage stakeholder expectations and mitigate potential conflicts.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]}]},{"type":"heading","attrs":{"level":2},"content":[{"text":"Applying the concept","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"This work has laid the foundations for NICE's own sandbox - our ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"HTA Innovation Laboratory","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/hta-lab","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":". The HTA Lab presents an exciting opportunity for NICE, and our stakeholder community. Through a process of co-creation, it is helping us develop solutions to complex HTA issues. We’ve already used it in the development of:","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"bullet_list","content":[{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"a new approach to appraising medicines which are highly likely to need a managed access agreement","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/hta-lab-projects#rema","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"our guidance on virtual ward platform technologies for people with acute respiratory infections","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/hta-lab-projects#virtualwards","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":".","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]}]},{"type":"paragraph","content":[{"text":"Current HTA Lab projects include:","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"bullet_list","content":[{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"AI in HTA","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/hta-lab-projects#ai","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"comparing environmental impacts of health technologies","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/hta-lab-projects#environment","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]}]}]},{"type":"list_item","content":[{"type":"paragraph","content":[{"text":"emerging treatments for metabolic dysfunction-associated steatohepatitis","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/hta-lab-projects#mash","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":".","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]}]},{"type":"heading","attrs":{"level":2},"content":[{"text":"Shaping the future","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Sandboxes can play an important role in shaping the future of HTA. As healthcare rapidly evolves, particularly in areas like AI and personalised medicine, the flexibility and innovation fostered by sandboxes will be crucial in ensuring organisations like NICE have HTA methods that keep pace with technological advancements. By embracing this concept, HTA agencies can position themselves at the forefront of healthcare innovation, driving improvements in patient care.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"heading","attrs":{"level":2},"content":[{"text":"Find out more","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"NICE participates in ","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]},{"text":"various methodological research projects","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/about/what-we-do/our-research-work/our-projects-and-partners","uuid":null,"anchor":null,"target":"_blank","linktype":"url"}},{"type":"textStyle","attrs":{"color":"#228096"}}]},{"text":" with partners around the world, such as HTx. These partnerships help us improve our work. They also help us anticipate and adapt to policy developments, including changes in health and social care delivery.","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]},{"type":"paragraph","content":[{"text":"You can learn more about one of our other key outputs from the HTx project in our blog post: ","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]},{"text":"Introducing CHEERS-AI: improving health economic evaluation reporting for AI technologies","type":"text","marks":[{"type":"link","attrs":{"href":"https://www.nice.org.uk/news/blogs/introducing-cheers-ai:-improving-health-economic-evaluation-reporting-for-ai-technologies","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":".","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]},{"type":"paragraph","content":[{"text":"If you'd like to learn more about our ongoing research projects or discuss potential collaborations, please ","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]},{"text":"reach out to our research team","type":"text","marks":[{"type":"link","attrs":{"href":"mailto:research@nice.org.uk","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":". Contact us today to explore how we can work together to advance healthcare methodological research.","type":"text","marks":[{"type":"textStyle","attrs":{"color":"black"}}]}]}]},"metadata":[],"component":"blogPost","introText":"Colleagues in our Science Policy and Research Programme discuss their international research, paving the way for next generation health technology assessment."},"slug":"a-safe-space-for-bold-ideas-implementing-a-sandbox-approach-in-health-technology-assessment","full_slug":"news/blogs/a-safe-space-for-bold-ideas-implementing-a-sandbox-approach-in-health-technology-assessment","default_full_slug":null,"sort_by_date":null,"position":-560,"tag_list":[],"is_startpage":false,"parent_id":420552804,"meta_data":null,"group_id":"0b1dd4a5-6fb6-4ab2-ac30-634e452c8a40","first_published_at":"2024-11-19T16:14:20.519Z","release_id":null,"lang":"default","path":null,"translated_slugs":[]},{"name":"Two technologies recommended for people with chronic tic disorders and Tourette syndrome","created_at":"2024-11-18T16:45:54.833Z","published_at":"2024-11-19T13:38:41.062Z","alternates":[],"id":580614705,"uuid":"08785ada-b926-4079-9a91-249fe9fa4a44","content":{"_uid":"59796119-3c67-48d7-a8e9-669035956a53","date":"2024-11-19 00:00","image":{"id":18546566,"alt":"","name":"","focus":"","title":"","source":"","filename":"https://a.storyblok.com/f/243782/2121x1414/e1d1103512/support-worker-helping-a-young-man-using-a-laptop.jpg","copyright":"","fieldtype":"asset","meta_data":{},"is_external_url":false},"title":"Two technologies recommended for people with chronic tic disorders and Tourette syndrome","content":{"type":"doc","content":[{"type":"paragraph","content":[{"text":"Two technologies that could reduce the severity of the symptoms of chronic tic disorders and Tourette syndrome have been recommended for use in draft guidance from NICE.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"It is the first time a NICE committee has recommended digital therapies for these conditions which developers believe could also improve the user’s ability to go about their everyday life.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"We surveyed people with chronic tic disorders and Tourette syndrome, and their parents or carers, about their experiences and received 1,508 responses. In response some said that for most people it can take a long time to get a diagnosis (most people need to wait at least 6 months to 2 years). The acceptance of using digital technologies varied between people who completed the survey but it highlighted present treatment options are limited.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Tics are fast, repetitive muscle movements that result in difficult to control body movements or sounds. Examples of tics might include blinking, grimacing, head jerking, head banging, finger clicking, coughing, grunting, sneezing, repeating a sound or phrase (in approximately 10% of people this can be something offensive, such as swearing). When both motor and vocal tics are present for more than 1 year, this is commonly known as Tourette syndrome.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"We have launched a consultation on the recommendations reached by the independent committee on recommendations to allow the use of Online Remote Behavioural Intervention for Tics (ORBIT) and Neupulse (once appropriately regulated) by NHS patients for the next three years. Further evidence will be generated during this time on the technology’s long-term clinical effectiveness, how they affect the person’s quality of life, and which patients benefit most from using them.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"ORBIT is accessed via a web browser and is an online guided self-help intervention which uses videos, animations and interactive scripts to help children and young people aged 9 to 17 years. It is supported by an online therapist across a 10-week programme to deliver a form of behavioural therapy called an exposure with response-prevention intervention, which involves practicing confronting the thoughts, images, objects, and situations that makes a person anxious and provokes their tic.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Neupulse is a wearable wrist-worn device linked to a mobile phone app, used to treat those over the age of 12. The device delivers low-intensity electrical pulses to the median nerve to reduce tic frequency and severity. Users are supported by written and video-based guidance and a technical support helpline.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"Each technology would only be offered after clinical assessment with a GP. The first line treatment option will remain as psychoeducation, which combines the elements of cognitive-behaviour therapy and education, before offering one of the two technologies could be offered.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"It is estimated that Tourette syndrome affects ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"one school child in every hundred","type":"text","marks":[{"type":"link","attrs":{"href":"https://bestpractice.bmj.com/topics/en-gb/1042","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":", with more than 300,000 children and adults in the UK living with the condition. Experts estimate less than 20% of children and young people with tic disorders ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"currently have access","type":"text","marks":[{"type":"link","attrs":{"href":"https://pubmed.ncbi.nlm.nih.gov/37488511/","uuid":null,"anchor":null,"target":null,"linktype":"url"}},{"type":"textStyle","attrs":{"color":""}}]},{"text":" to behavioural therapies.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"blok","attrs":{"id":"835537de-07fa-4fa6-b279-9e130d1b3e68","body":[{"_uid":"i-5af1bf7b-7d0e-47c9-b870-ebaf5ee1ee75","component":"quote","quoteText":{"type":"doc","content":[{"type":"paragraph","content":[{"text":"Our committee heard that diagnosis, treatment and support for people with chronic tic disorders and Tourette syndrome can be variable depending on which part of the country they live in. For many it can take several months to receive a diagnosis, and our patient survey has highlighted that treatment options can be limited. Our committee’s recommendation of these two technologies could increase treatment options and ","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]},{"text":"could allow more convenient treatment for people wherever they live be that urban or rural given the inconsistency in access.","type":"text"}]}]},"quoteAuthor":"Mark Chapman, director of HealthTech at NICE"}]}},{"type":"paragraph","content":[{"text":"Neupulse can be used once it has appropriate regulatory approval – it is currently working towards CE and UKCA marking (expected 2026) – and meets the standards within NHS England’s Digital Technology Assessment Criteria (DTAC).","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"After the consultation, responses will be considered by the committee who may then alter their recommendations before final guidance is published on our website.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]},{"type":"paragraph","content":[{"text":"A consultation on the draft recommendations has begun and comments can be submitted until Tuesday 17 December 2024.","type":"text","marks":[{"type":"textStyle","attrs":{"color":""}}]}]}]},"metadata":[],"component":"newsArticle","introText":"Draft guidance issued for consultation recommends two technologies to help people manage their condition. ","resources":[{"_uid":"73e83abd-41a0-4961-a6bb-56bab6d5f045","link":{"id":"","url":"https://www.nice.org.uk/guidance/indevelopment/gid-hte10056/consultation/html-content-5","linktype":"url","fieldtype":"multilink","cached_url":"https://www.nice.org.uk/guidance/indevelopment/gid-hte10056/consultation/html-content-5"},"title":"Digital therapy for chronic tic disorders and Tourette syndrome: early value assessment","component":"relatedLink"}],"relatedNews":[]},"slug":"two-technologies-recommended-for-people-with-chronic-tic-disorders-and-tourette-syndrome","full_slug":"news/articles/two-technologies-recommended-for-people-with-chronic-tic-disorders-and-tourette-syndrome","default_full_slug":null,"sort_by_date":null,"position":-2210,"tag_list":[],"is_startpage":false,"parent_id":420552799,"meta_data":null,"group_id":"2633806e-d4ac-4892-b483-41adda9aade3","first_published_at":"2024-11-19T00:15:00.263Z","release_id":null,"lang":"default","path":null,"translated_slugs":[]}]},"__N_SSP":true},"page":"/","query":{},"buildId":"nPtE9ZhzdAiprqYEkzKqu","runtimeConfig":{"buildNumber":"10.0.2148+r5C25139","environment":"live","authEnvironment":"live","baseURL":"https://www.nice.org.uk","cookieBannerScriptURL":"https://cdn.nice.org.uk/cookie-banner/cookie-banner.min.js","publicBaseURL":"","search":{"baseURL":"https://search-api.nice.org.uk/api"},"cacheControl":{"defaultCacheHeader":"public, s-max-age=300, max-age=120, stale-while-revalidate=1800"},"jotForm":{"baseURL":"https://nice.jotform.com"},"storyblok":{"accessToken":"rFI0YRpDyqZpxXvUhbJB3gtt","ocelotEndpoint":"https://next-web-api.nice.org.uk/storyblok","enableRootCatchAll":false},"denyRobots":false,"nodeConfigServerKey":"server","nodeConfigPublicKey":"public"},"isFallback":false,"isExperimentalCompile":false,"gssp":true,"scriptLoader":[]}</script></body></html>

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