December Data Sharing and Reuse Seminar

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0 1 .708 0L8 10.293l5.646-5.647a.5.5 0 0 1 .708.708l-6 6a.5.5 0 0 1-.708 0l-6-6a.5.5 0 0 1 0-.708z'/%3e%3c/svg%3e") !important; } .messageforemergencies .content{ display:none; } </style></div> </div> </div> </section> </aside> </div> <div id="main-wrapper" class="layout-main-wrapper clearfix"> <div id="main" class="container"> <div class="row block block-core block-page-title-block" id="block-page-title-block"> <div class="content"> <h1 class="title"><span class="field field--name-title field--type-string field--label-hidden">December Data Sharing and Reuse Seminar</span> </h1> </div> </div> <div class="row block block-system block-system-breadcrumb-block" id="block-system-breadcrumb-block"> <div class="content"> <nav role="navigation" aria-label="breadcrumb" style=""> <ol class="breadcrumb"> <li class="breadcrumb-item"> <a href="/">Home</a> </li> <li class="breadcrumb-item"> <a href="/news">News & Events</a> </li> <li class="breadcrumb-item active"> December Data Sharing and Reuse Seminar </li> </ol> </nav> </div> </div> <div class="row row-offcanvas row-offcanvas-left clearfix"> <main class="main-content col" id="content" role="main"> <section class="section"> <a id="main-content" tabindex="-1"></a> <div id="block-system-main-block" class="block block-system block-system-main-block"> <div class="content"> <article data-history-node-id="33196" about="/news/december-data-sharing-and-reuse-seminar" class="node node--type-news node--promoted node--view-mode-full clearfix"> <header> </header> <div class="node__content clearfix"> <p class="publishdate">Friday, December 13, 2024</p> <div class="text-formatted field field--name-field-news-description field--type-text-with-summary field--label-hidden field__item"><p>Johanna Goderre, MPH. will present "<a href="https://scgcorp.zoom.us/webinar/register/WN_rSxKiV-BRgqTWtAaJ6T9tw">Opportunities to Advance Research for Children, Adolescents, and Young Adults with Cancer through Secondary Data Sharing in the New National Childhood Cancer Registry Data Platform</a>" on December 13, 2024, from 12:00 p.m.–1:00p.m. ET.</p><h2>About the Seminar</h2><p>The National Cancer Institute has been working with central cancer registries, medical and pharmacy claims processors, and healthcare providers like children's hospitals, NCI-supported Cancer Centers, and radiation oncology providers through the National Childhood Cancer Registry. The new Data Platform combines population-based cancer registry and real-world data across the cancer care continuum and into survivorship for secondary data analysis by all kinds of researchers, including students. It will improve researchers’ ability to accelerate our scientific understanding of cancer in children, adolescents, and young adults.</p><h2>About the Speaker</h2><p>Ms. Goderre is the Technical Lead for the National Childhood Cancer Registry. She holds an MPH and GIS certification with over 20 years’ experience in health research and evaluation, public health informatics, health systems delivery, and the information systems necessary to support analysis and insight in those fields.  She draws from her experiences in epidemiologic research studies, healthcare systems, and health information exchange efforts to deliver high-quality data and bioinformatics IT systems for state and federal governments. The National Childhood Cancer Registry (NCCR) Data Platform is a groundbreaking tool that addresses infrastructure gaps by increasing accessibility, sharing, and reuse of data.</p><h2>About the Seminar Series</h2><p>The seminar is open to the public and registration is required each month. Individuals who need interpreting services and/or other reasonable accommodations to participate in this event should contact <a href="/cdn-cgi/l/email-protection#6a0b021f18191e2a19090d0905181a4409050755191f08000f091e57380f0b1905040b08060f4f585a2b0909050707050e0b1e030504194f585a0c05184f585a390f0703040b184f585a390f18030f19">Allison Hurst</a> at 301-670-4990. Requests should be made at least five days in advance of the event.</p><p>The National Institutes of Health (NIH) Office of Data Science Strategy hosts this seminar series to highlight exemplars of data sharing and reuse on the second Friday of each month at noon ET. The monthly series highlights researchers who have taken existing data and found clever ways to reuse the data or generate new findings. A different NIH institute or center will also share its data science activities each month.</p></div> <section class="field field--name-comment-node-news field--type-comment field--label-hidden comment-wrapper"> </section> </div> </article> </div> </div> </section> </main> </div> <div class="row lastupdated"> <p>This page last reviewed on November 11, 2024</p> </div> </div> </div> <footer class="site-footer-wrap"> <div class="container"> <div class="site-footer-bottom-wrap"> <section class="row l-region l-region--footer-fifth"> <div id="block-block-content-83129f25-f6bb-41ba-af81-cab85348da55" class="block-content-basic block block-block-content block-block-content83129f25-f6bb-41ba-af81-cab85348da55"> <div class="content"> <div class="text-formatted field field--name-body field--type-text-with-summary field--label-hidden field__item"><footer class="l-footer" role="contentinfo"> <h2 class="element-invisible"> Footer</h2> <ul> <li> <a href="/">Office of Data Science Strategy</a></li> <li> <a href="/sitemap">Site Map</a></li> <li> <a href="https://www.nih.gov/web-policies-notices">Web Policies and Notices</a></li> <li> <a href="https://www.nih.gov/institutes-nih/nih-office-director/office-communications-public-liaison/freedom-information-act-office">FOIA</a></li> <li> <a href="https://edi.nih.gov/no-fear-act">No Fear Act</a></li> <li><a href="https://www.hhs.gov/vulnerability-disclosure-policy/index.html">HHS Vulnerability Disclosure</a></li> </ul> <ul> <li> <a href="https://dpcpsi.nih.gov/">DPCPSI Home</a></li> <li> <a href="https://www.nih.gov/">NIH Home</a></li> <li> <a href="https://oig.hhs.gov/">Office of the Inspector General</a></li> <li> <a href="https://www.usa.gov/">USA.gov</a></li> </ul> <p> NIH…Turning Discovery Into Health<sup>®</sup></p> <p> National Institutes of Health, 9000 Rockville Pike, Bethesda, Maryland 20892</p> <p> <a href="https://www.hhs.gov/">U.S. Department of Health and Human Services</a></p>  </footer>  <div class="back-to-top" style="display: block;"><a href="#" role="button"><span class="icon-arrow-up"></span><span class="text">Back to Top</span></a></div></div> </div> </div> </section> </div> </div> </footer> </div> </div> </div> <script data-cfasync="false" src="/cdn-cgi/scripts/5c5dd728/cloudflare-static/email-decode.min.js"></script><script type="application/json" data-drupal-selector="drupal-settings-json">{"path":{"baseUrl":"\/","pathPrefix":"","currentPath":"node\/33196","currentPathIsAdmin":false,"isFront":false,"currentLanguage":"en"},"pluralDelimiter":"\u0003","suppressDeprecationErrors":true,"gtm":{"tagId":null,"settings":[],"tagIds":["GTM-T9K42VKD"]},"gtag":{"tagId":"G-Y60CQSK2FH","otherIds":[],"events":[],"additionalConfigInfo":[]},"ajaxPageState":{"libraries":"eJxlkOsKwyAMhV_I1UeSpGbWTU0xKWvffraMwvRP4HyHnFyQWUUrrA6h1sgWK4Gf65bRYO-FxAjpIXqkWMLoN_qWEWcSgUDiPktUGv3CnszMiSvybj09YUt6AxdLyyXbaUO7nvOsr9sKafpJE5hDIqcQbGil1xO8YP-H2ZS42HurS7U0qqXdCq0cGme5cPcAOUQpWwQho-gyBchUthGcDSRfEVuPQQ","theme":"nih","theme_token":null},"ajaxTrustedUrl":[],"colorbox":{"opacity":"0.85","current":"{current} of {total}","previous":"\u00ab Prev","next":"Next \u00bb","close":"Close","maxWidth":"98%","maxHeight":"98%","fixed":true,"mobiledetect":true,"mobiledevicewidth":"480px"},"data":{"extlink":{"extTarget":true,"extTargetNoOverride":true,"extNofollow":true,"extNoreferrer":true,"extFollowNoOverride":false,"extClass":"ext","extLabel":"(link is external)","extImgClass":false,"extSubdomains":true,"extExclude":"^(https?:\\\/\\\/)?(\\S*)?(\\.gov)(\\S*)?$","extInclude":"","extCssExclude":"","extCssExplicit":"","extAlert":true,"extAlertText":"You are leaving the Office of Data Science Strategy website.\r\n\r\nThis external link provides additional information that is consistent with the intended purpose of this site. 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