ISPOR - Patient-Centered

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<li class="dropdown-submenu "> <a href="/conferences-education/conferences/past-conferences/ispor-rwe-summit-2023/program" target="_self">Program <span class="right-caret"></span> </a> <span class="dropdown-toggle icon-plus"></span> <ul class="dropdown-menu"> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-rwe-summit-2023/program/program-committee" target="_self">Program Committee</a> </li> <li class="dropdown-submenu "> <a href="/conferences-education/conferences/past-conferences/ispor-rwe-summit-2023/program/program" target="_self">Program <span class="right-caret"></span> </a> <span class="dropdown-toggle icon-plus"></span> <ul class="dropdown-menu"> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-rwe-summit-2023/program/program/session" target="_self">Session</a> </li> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-rwe-summit-2023/program/program/paper" target="_self">Paper</a> 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target="_self">Plenary Sessions</a> </li> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-europe-2022/program/spotlight-sessions" target="_self">Spotlight Sessions</a> </li> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-europe-2022/program/posters" target="_self">Posters</a> </li> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-europe-2022/program/educational-symposia" target="_self">Educational Symposia & HEOR Theater</a> </li> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-europe-2022/program/program-committee" target="_self">Program Committee</a> </li> <li class=" "> <a href="/conferences-education/conferences/past-conferences/ispor-europe-2022/program/speaker-poster-presenter-resources" target="_self">Speaker & Poster Presenter Resources</a> </li> <li class=" "> <a 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3</a> </li> </ul> </li> </ul> </li> <li class=""> <a href="/member-groups/online-communities" target="_self" class="">Online Communities</a> </li> </ul>  </div> </div> <div id="Main_TF55916FE001_Col01" class="sf_colsIn col-md-9 ispor-content" data-sf-element="Column 2" data-placeholder-label="Column 2"> <div > <div class="sfContentBlock sf-Long-text" ><h3>Mission</h3><p>To facilitate engagement and partnership of patients in all stages of health-related research and care delivery to improve healthcare access and patient outcomes.</p></div> </div><div class="row" data-sf-element="Row"> <div id="Main_C024_Col00" class="sf_colsIn col-md-12 mg-panel--gray" data-sf-element="Column 1" data-placeholder-label="Column 1"> <div > <div class="sfContentBlock sf-Long-text" ><div class="accordion"><div class="accordion-item"><header><h4>Background</h4><span class="icon-plus pull-right"></span></header><section><p>Patients are a distinct stakeholder group. Outcomes research is rapidly evolving and major changes are already being implemented. One common feature is the agreed consensus on the importance to obtain the input of patients in all processes in the value assessments of medicines for society.</p></section></div></div></div> </div> </div> </div> <div > <div class="sfContentBlock sf-Long-text" ><br /><h3>Manuscript and Reports </h3><hr /><ol class="mg-list-numbered"><li><a href="https://www.ispor.org/publications/journals/value-in-health/abstract/Volume-23--Issue-6/Defining-Patient-Engagement-in-Research--Results-of-a-Systematic-Review-and-Analysis--Report-of-the-ISPOR-Patient-Centered-Special-Interest-Group" data-sf-ec-immutable="">Harrington R. L, Hanna M, Oehrlien E.M, et al. Defining Patient Engagement in Research: Results of a Systematic Review and Analysis: Report of the ISPOR Patient-Centered Special Interest Group. [Editor’s Choice] Value in Health 2020;23(6):677-688</a></li><li><a href="https://www.ispor.org/publications/journals/value-outcomes-spotlight/vos-archives/issue/view/behavioral-economics-examining-human-reactions-to-covid-19/defining-patient-engagement-in-research" data-sf-ec-immutable="">Camp R, Wheeler R, von Gizycki R, and McBurney, R. From the Patients: Defining Patient Engagement in Research. Value & Outcomes 2020;6(4)</a></li><li><a target="_blank" href="/docs/default-source/sig-documents/patient_centered_sig_vos_article_sept-oct_2016.pdf?sfvrsn=d85bddf6_2">Harrington, R, Hareendran, A, Scott, A, et al. Patient Engagement in Health Outcomes Research: A Snapshot from the ISPOR Community. Value & Outcome Spotlight 2016;2(5):11-14</a></li></ol></div> </div> <div > <div class="sfContentBlock sf-Long-text" ><h3>Webinars</h3><hr /><ol class="mg-list-numbered"><li><a href="https://www.ispor.org/education-training/webinars/webinar/patient-involvement-in-value-and-health-technology-assessment-(v-hta)" data-sf-ec-immutable="">Patient Involvement in Value and Health Technology Assessment (V/HTA)</a></li><li><a href="https://www.ispor.org/education-training/webinars/webinar/patient-involvement-in-value-and-health-technology-assessment-(v-hta)" data-sf-ec-immutable=""><a href="https://www.ispor.org/education-training/webinars/webinar/patient-engagement-in-research-an-ispor-definition" data-sf-ec-immutable="" style="font-family:inherit;text-align:inherit;text-transform:inherit;word-spacing:normal;white-space:inherit;font-size:inherit;">Patient Engagement in Research: An ISPOR Definition</a></a></li><li><a href="https://www.ispor.org/conferences-education/education-training/virtual/webinars/webinar/qualitative-content-analysis-training-webinar" data-sf-ec-immutable="">Qualitative Content Analysis Training</a></li><li><a href="https://www.ispor.org/conferences-education/education-training/webinars/webinar/fda-patient-focused-drug-development-(pfdd)-guidance---part-1" data-sf-ec-immutable=""></a><a href="https://www.ispor.org/conferences-education/education-training/webinars/webinar/fda-patient-focused-drug-development-(pfdd)-guidance---part-1" target="_blank" data-sf-ec-immutable="" data-sf-marked="">FDA Patient-Focused Drug Development (PFDD) Guidance - Part 1</a></li><li><a href="https://www.ispor.org/conferences-education/education-training/webinars/webinar/fda-patient-focused-drug-development-(pfdd)-guidance---part-2" target="_blank" data-sf-ec-immutable="" data-sf-marked="">FDA Patient-Focused Drug Development (PFDD) Guidance - Part 2 </a></li><li><a href="https://www.ispor.org/conferences-education/education-training/webinars/webinar/fda-patient-focused-drug-development-(pfdd)-guidance---part-3" target="_blank" data-sf-ec-immutable="">FDA Patient-Focused Drug Development (PFDD) Guidance - Part 3</a></li></ol></div> </div> <div > <div class="sfContentBlock sf-Long-text" ><h3>Presentations </h3><hr /><ol class="mg-list-numbered"><li><a href="https://www.ispor.org/heor-resources/presentations-database/presentation/euro2023-3771/17172" target="_blank" data-sf-ec-immutable=""></a><a href="file:///C:/Users/jsheasley/Downloads/ISPOR2024_'Patient-CenteredResearch'_JointSIGOpenMeeting_COA_PC_HPR_May2024%20(1).pdf" data-sf-ec-immutable="">ISPOR 2024 “Patient-Centered Research” Special Interest Group Joint Open Meeting</a></li><li><a href="https://www.ispor.org/heor-resources/presentations-database/presentation/euro2023-3771/17172" target="_blank" data-sf-ec-immutable="">ISPOR Europe 2023: Are We Patient-Centered Yet? Patient Engagement and Patient-Centered Research in HEOR</a></li><li><a href="https://www.ispor.org/heor-resources/presentations-database/presentation/intl2023-3647/15954" target="_blank" data-sf-ec-immutable="">ISPOR 2023: Using Clinical Outcome Assessments (COAs) in Your Research Study Does Not Necessarily Make It Patient-Centric</a> </li></ol></div> </div> <div > <div class="sfContentBlock sf-Long-text" ><br /><h3>Leadership</h3><hr /></div> </div><div class="row" data-sf-element="Row"> <div id="Main_C027_Col00" class="sf_colsIn col-md-6" data-sf-element="Column 1" data-placeholder-label="Column 1"> <div > <div class="sfContentBlock sf-Long-text" ><br /><h4>Chair</h4></div> </div> <div class="committee-wrapper"> <div class="row"> <div class="media col-sm-12 my-4 col-md-12 col-lg-12"> <div class="media-body"> <h4>Nan Qiao, MSc, PhD, MBBS, MPH</h4> <div> <div style="display:none"><span></span></div> <div><span>Director, Merck & Co. Inc</span></div> <div><span>Lansdale, PA, United States</span></div> </div> </div> </div> </div><div class="row"> </div> </div> <div > <div class="sfContentBlock sf-Long-text" ><br /><h4>Past Chair</h4></div> </div> <div class="committee-wrapper"> <div class="row"> <div class="media col-sm-12 my-4 col-md-12 col-lg-12"> <div class="media-body"> <h4>Jessica Roydhouse, PhD, BA, MPH</h4> <div> <div style="display:none"><span></span></div> <div><span>Select Foundation Senior Research Fellow in Health Services Research, Menzies Institute for Medical Research, University of Tasmania</span></div> <div><span>Hobart, TAS, Australia</span></div> </div> </div> </div> </div><div class="row"> </div> </div> </div> <div id="Main_C027_Col01" class="sf_colsIn col-md-6" data-sf-element="Column 2" data-placeholder-label="Column 2"> <div > <div class="sfContentBlock sf-Long-text" ><br /><h4>Chair-Elect</h4></div> </div> <div class="committee-wrapper"> <div class="row"> <div class="media col-sm-12 my-4 col-md-12 col-lg-12"> <div class="media-body"> <h4>Angie Botto-van Bemden</h4> <div> <div style="display:none"><span></span></div> <div><span>Patient Partner, Musculoskeletal Research International</span></div> <div><span>Holiday, FL, United States</span></div> </div> </div> </div> </div><div class="row"> </div> </div> <div > <div class="sfContentBlock sf-Long-text" ><br /><h4>Operational Lead</h4></div> </div> <div class="committee-wrapper"> <div class="row"> <div class="media col-sm-12 my-4 col-md-12 col-lg-12"> <div class="media-body"> <h4>Birgitta Termander</h4> <div> <div style="display:none"><span></span></div> <div><span>European Organisation for Rare Diseases (Eurordis)</span></div> <div><span>Tvååker, N, Sweden</span></div> </div> </div> </div> </div><div class="row"> </div> </div> </div> </div> <div > <div class="sfContentBlock sf-Long-text" ><br /><h3>Working Groups:</h3><hr /></div> </div> <div > <div class="sfContentBlock sf-Long-text" ><h3>Member Engagement</h3><p>These activities allow for a variety of members to participate and also facilitates disseminating content in Webinars, Journal Clubs, Conference Sessions, etc.</p><h4><strong>Co-Chairs</strong></h4></div> </div> <div class="committee-wrapper"> <div class="row"> <div class="media col-sm-12 my-4 col-md-6 col-lg-6"> <div class="media-body"> <h4>Nora Fayed</h4> <div> <div style="display:none"><span></span></div> <div><span>Associate Professor, Queen's University</span></div> <div><span>Kingston, ON, Canada</span></div> </div> </div> </div> <div class="media col-sm-12 my-4 col-md-6 col-lg-6"> <div class="media-body"> <h4>Sam Llewellyn, BSc</h4> <div> <div><span>Director, Patient Centered Research, Vitaccess</span></div> <div><span>Richmond, LON, United Kingdom</span></div> </div> </div> </div> </div><div class="row"> <div class="media col-sm-12 my-4 col-md-6 col-lg-6"> <div class="media-body"> <h4>Elizabeth Manias, RPh, RN, PhD</h4> <div> <div><span>Professor (Research) and NHMRC Leadership Fellow, School of Nursing and Midwifery, Monash University</span></div> <div><span>Kew, VIC, Australia</span></div> </div> </div> </div> <div class="media col-sm-12 my-4 col-md-6 col-lg-6"> <div class="media-body"> <h4>Radha Sharma</h4> <div> <div><span>Senior Consultant (Director), ConnectHEOR</span></div> <div><span>Edmonton, AB, Canada</span></div> </div> </div> </div> </div><div class="row"> </div> </div> <div > <div class="sfContentBlock sf-Long-text" ><br /><p>Questions or ideas? 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