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href="/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024">IBCA newsletter, 22 July 2024</a> </li> </ol> </nav> </div> </div> <main role="main" id="content" class="html-publication" lang="en"> <span id="Top"></span> <div class="publication-external"> <ul class="organisation-logos"> <li class="organisation-logos__logo"> <div class="gem-c-organisation-logo"> <a class="gem-c-organisation-logo__container gem-c-organisation-logo__link " href="/web/20240906001746/https://www.gov.uk/government/organisations/infected-blood-compensation-authority"> <span class="gem-c-organisation-logo__name">Infected Blood<br>Compensation Authority</span> </a> </div> </li> </ul> </div> <header class="gem-c-inverse-header gem-c-inverse-header--padding-top "> <div class="gem-c-title gem-c-title--inverse govuk-!-margin-top-3 govuk-!-margin-bottom-0"> <span class="govuk-caption-xl gem-c-title__context"> Correspondence </span> <h1 class="gem-c-title__text govuk-heading-xl"> IBCA newsletter, 22 July 2024 </h1> </div> <p class="publication-header__last-changed">Published 4 September 2024</p> </header> <div id="contents"> <div class="govuk-grid-row"> <div class="govuk-grid-column-one-quarter-from-desktop contents-list-container"> <nav data-module="ga4-link-tracker" aria-label="Contents" class="gem-c-contents-list" role="navigation"> <h2 class="gem-c-contents-list__title"> Contents </h2> <ol class="gem-c-contents-list__list"> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":1}" href="#working-with-you---thank-you-for-your-contributions-so-far">Working with you - thank you for your contributions so far</a> </li> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":2}" href="#our-progress-so-far">Our progress so far</a> </li> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":3}" href="#whats-happening-with-the-feedback-from-engagement-sessions">What’s happening with the feedback from engagement sessions?</a> </li> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":4}" href="#getting-involved---we-welcome-your-input-and-advice">Getting involved - we welcome your input and advice</a> </li> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":5}" href="#recruiting-a-community-representative">Recruiting a Community Representative</a> </li> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":6}" href="#advisory-panel-for-communications">Advisory Panel for Communications</a> </li> <li class="gem-c-contents-list__list-item gem-c-contents-list__list-item--numbered"> <span aria-hidden="true"></span> <a class="gem-c-contents-list__link govuk-link govuk-link--no-underline" data-ga4-link="{"event_name":"select_content","section":"Contents","type":"contents list","index_total":7,"index_link":7}" href="#a-quick-reminder---please-be-aware-of-fraud">A quick reminder - please be aware of fraud</a> </li> </ol> </nav> <div class="gem-c-print-link govuk-!-display-none-print govuk-!-margin-top-0 govuk-!-margin-bottom-6"> <button class="govuk-link govuk-body-s gem-c-print-link__button" data-module="print-link">Print this page</button> </div> </div> <div class="print-wrapper"> <div class="meta-data meta-data--display-print"> <p> <img class="meta-data-licence" 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To view this licence, visit <a href="https://web.archive.org/web/20240906001746/https://www.nationalarchives.gov.uk/doc/open-government-licence/version/3">nationalarchives.gov.uk/doc/open-government-licence/version/3</a> or write to the Information Policy Team, The National Archives, Kew, London TW9 4DU, or email: <a href="https://web.archive.org/web/20240906001746/mailto:psi@nationalarchives.gov.uk">psi@nationalarchives.gov.uk</a>. </p> <p> Where we have identified any third party copyright information you will need to obtain permission from the copyright holders concerned. </p> <p> This publication is available at https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024 </p> </div> </div> <div class="main-content-container"> <div class="gem-c-govspeak-html-publication"> <div class="gem-c-govspeak govuk-govspeak direction-ltr" data-module="govspeak"> <div class="govspeak"> <h2 id="working-with-you---thank-you-for-your-contributions-so-far">Working with you - thank you for your contributions so far</h2> <p>Hello,</p> <p>Since the long-awaited announcement in May that compensation will be paid in recognition of the wrongs inflicted by the infected blood scandal, we have been discussing the Government’s proposals with groups of people who represent a broad range of those who have suffered so terribly. This will ensure the Government can take into account what you think in finalising its proposals and to consider how a compensation scheme will work in practice. Time to do this was necessarily limited because of the legal requirements for the relevant regulations to be made by 23 August.</p> <p>An enormous thank you to everyone who took the time and energy to do this, and also to all of you for your ongoing understanding as we get the Infected Blood Compensation Authority up and running as quickly as possible. The dignity and commitment shown by all those who we met humbles us and has strengthened our determination to get a compassionate, fair, effective and transparent process up and running as soon as possible.</p> <p>Inevitably, setting up an organisation capable of delivering this is complicated and we feel getting it right for the community is just as important as speed. We are only too aware that all those who are entitled to compensation have already waited too long; far too long. So we know it’s very important that we’re open about our progress and keep you informed and involved. We’re sorry we weren’t able to start these updates sooner because of the election period, but this regular note aims to ensure you’re kept updated from now on.</p> <p>Sir Robert Francis KC (Chair) and David Foley (Chief Executive) </p> <h2 id="our-progress-so-far">Our progress so far</h2> <p>Since we published our <a href="https://web.archive.org/web/20240906001746/https://www.gov.uk/government/news/sir-robert-franciss-statement-of-intent" class="govuk-link">Statement of Intent</a> in May we’ve been creating an independent body; the Infected Blood Compensation Authority (we’ll refer to it as IBCA for ease). IBCA is focussed on delivering a compensation scheme that’s simple to use, easy to access and securely pays out money as quickly as possible. To do this, the Government is required to lay regulations in Parliament setting out the scheme, which needs to happen before we can deliver the payments process and start making payments.</p> <p>In the last two months we’ve started to create the organisation and recruit a team to design and deliver that. We’ll provide more details about the new team in the next update.</p> <p>Some of the activities we’re already working on include:</p> <ul> <li>starting to design a compensation service, and testing early versions with some of you who volunteered to be involved, with one-to-one interviews this month;</li> <li>working out how many case managers - and with what skills - we need to support you as you claim compensation, both online and over the phone depending on your needs and preferences;</li> <li>working with existing financial support schemes to understand how we can reduce the need for you to provide information again (we’ll ask for your agreement where there’s any personal data you haven’t already agreed to share).</li> </ul> <p>We know what you really need to hear is how soon compensation will be paid. We’re aiming for the first payments to be made before the end of 2024, but this does depend on how quickly we can build a service that balances speed with ease of use and data security. </p> <p>We’ll need to start small to ensure we get this right, working with you through every stage of the development, and in the meantime we absolutely commit to keeping you updated regularly on how that work is progressing. </p> <h2 id="whats-happening-with-the-feedback-from-engagement-sessions">What’s happening with the feedback from engagement sessions?</h2> <p>During June, we ran a series of engagement sessions with community representatives to ask what you thought about proposals for the compensation scheme announced by the Government in May, before the election.</p> <p>These sessions were wide-ranging and asked for views on:</p> <ul> <li>the current Infected Blood Support Schemes across the UK;</li> <li>how different infections and impacts could be considered (known as severity bandings);</li> <li>whether the compensation proposal accurately reflects the full range of individuals’ future financial and care needs and requirements;</li> <li>How we can build equality into a compensation scheme.</li> </ul> <p>Our report will be sent to the Government and include recommendations for the compensation scheme, based on these engagement sessions, and we plan to publish it when finalised this summer.</p> <h2 id="getting-involved---we-welcome-your-input-and-advice">Getting involved - we welcome your input and advice </h2> <p>We’re committed to those impacted by the infected blood scandal being at the centre of our planning and delivery for the compensation scheme, including how we ensure it’s designed around you. Below are the latest opportunities to support our work, with more to follow in coming months.</p> <h2 id="recruiting-a-community-representative">Recruiting a Community Representative </h2> <p>We’re recruiting a permanent role for a user consultant that can help us shape everything the IBCA does - from building the service to ensuring our staff understand how best to support you. This role will only be open to those who have lived experience of the infected blood scandal, to ensure we have first-hand advice on the impact of our work. We’ll share an update when the job advert is live for those who may be interested in applying.</p> <h2 id="advisory-panel-for-communications">Advisory Panel for Communications</h2> <p>To help us shape regular communications and make sure we’re reaching those who are infected and affected in the community, we welcome volunteers who are willing to look at, comment on or contribute to news and updates, including products like this newsletter. We will be reaching out to those of you who have already told us that you’d like to take part in providing input into our design and delivery (by signing up here: <a rel="external" href="https://web.archive.org/web/20240906001746/https://www.smartsurvey.co.uk/s/6AT30R/?m=81384916ma8rl" class="govuk-link">Smart Survey</a>).</p> <h2 id="a-quick-reminder---please-be-aware-of-fraud">A quick reminder - please be aware of fraud </h2> <p>If you have any doubts about a message or phone call from us being genuine, please contact us to check, using the details from our current website: <a href="https://web.archive.org/web/20240906001746/https://www.gov.uk/government/organisations/infected-blood-compensation-authority" class="govuk-link">https://www.gov.uk/government/organisations/infected-blood-compensation-authority</a></p> <p>Always report suspicious text messages or scam calls, free of charge to 7726. </p> <p>Your provider can find out where the text came from and block or ban the sender.</p> <p>You can report fraud or cyber crime any time at <a rel="external" href="https://web.archive.org/web/20240906001746/http://www.actionfraud.police.uk/" class="govuk-link">www.actionfraud.police.uk</a> or call 0300 123 2040. 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"https://web.archive.org/web/20240906001746/https://www.gov.uk/government/organisations/infected-blood-compensation-authority" }, "mainEntity": [ { "@type": "Question", "name": "Working with you - thank you for your contributions so far", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#working-with-you---thank-you-for-your-contributions-so-far", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#working-with-you---thank-you-for-your-contributions-so-far", "text": "\u003cp\u003eHello,\u003c/p\u003e\u003cp\u003eSince the long-awaited announcement in May that compensation will be paid in recognition of the wrongs inflicted by the infected blood scandal, we have been discussing the Government’s proposals with groups of people who represent a broad range of those who have suffered so terribly. This will ensure the Government can take into account what you think in finalising its proposals and to consider how a compensation scheme will work in practice. Time to do this was necessarily limited because of the legal requirements for the relevant regulations to be made by 23 August.\u003c/p\u003e\u003cp\u003eAn enormous thank you to everyone who took the time and energy to do this, and also to all of you for your ongoing understanding as we get the Infected Blood Compensation Authority up and running as quickly as possible. The dignity and commitment shown by all those who we met humbles us and has strengthened our determination to get a compassionate, fair, effective and transparent process up and running as soon as possible.\u003c/p\u003e\u003cp\u003eInevitably, setting up an organisation capable of delivering this is complicated and we feel getting it right for the community is just as important as speed. We are only too aware that all those who are entitled to compensation have already waited too long; far too long. So we know it’s very important that we’re open about our progress and keep you informed and involved. We’re sorry we weren’t able to start these updates sooner because of the election period, but this regular note aims to ensure you’re kept updated from now on.\u003c/p\u003e\u003cp\u003eSir Robert Francis KC (Chair) and David Foley (Chief Executive) \u003c/p\u003e" } }, { "@type": "Question", "name": "Our progress so far", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#our-progress-so-far", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#our-progress-so-far", "text": "\u003cp\u003eSince we published our \u003ca href=\"https://www.gov.uk/government/news/sir-robert-franciss-statement-of-intent\" class=\"govuk-link\"\u003eStatement of Intent\u003c/a\u003e in May we’ve been creating an independent body; the Infected Blood Compensation Authority (we’ll refer to it as IBCA for ease). IBCA is focussed on delivering a compensation scheme that’s simple to use, easy to access and securely pays out money as quickly as possible. To do this, the Government is required to lay regulations in Parliament setting out the scheme, which needs to happen before we can deliver the payments process and start making payments.\u003c/p\u003e\u003cp\u003eIn the last two months we’ve started to create the organisation and recruit a team to design and deliver that. We’ll provide more details about the new team in the next update.\u003c/p\u003e\u003cp\u003eSome of the activities we’re already working on include:\u003c/p\u003e\u003cul\u003e\n \u003cli\u003estarting to design a compensation service, and testing early versions with some of you who volunteered to be involved, with one-to-one interviews this month;\u003c/li\u003e\n \u003cli\u003eworking out how many case managers - and with what skills - we need to support you as you claim compensation, both online and over the phone depending on your needs and preferences;\u003c/li\u003e\n \u003cli\u003eworking with existing financial support schemes to understand how we can reduce the need for you to provide information again (we’ll ask for your agreement where there’s any personal data you haven’t already agreed to share).\u003c/li\u003e\n\u003c/ul\u003e\u003cp\u003eWe know what you really need to hear is how soon compensation will be paid. We’re aiming for the first payments to be made before the end of 2024, but this does depend on how quickly we can build a service that balances speed with ease of use and data security. \u003c/p\u003e\u003cp\u003eWe’ll need to start small to ensure we get this right, working with you through every stage of the development, and in the meantime we absolutely commit to keeping you updated regularly on how that work is progressing. \u003c/p\u003e" } }, { "@type": "Question", "name": "What’s happening with the feedback from engagement sessions?", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#whats-happening-with-the-feedback-from-engagement-sessions", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#whats-happening-with-the-feedback-from-engagement-sessions", "text": "\u003cp\u003eDuring June, we ran a series of engagement sessions with community representatives to ask what you thought about proposals for the compensation scheme announced by the Government in May, before the election.\u003c/p\u003e\u003cp\u003eThese sessions were wide-ranging and asked for views on:\u003c/p\u003e\u003cul\u003e\n \u003cli\u003ethe current Infected Blood Support Schemes across the UK;\u003c/li\u003e\n \u003cli\u003ehow different infections and impacts could be considered (known as severity bandings);\u003c/li\u003e\n \u003cli\u003ewhether the compensation proposal accurately reflects the full range of individuals’ future financial and care needs and requirements;\u003c/li\u003e\n \u003cli\u003eHow we can build equality into a compensation scheme.\u003c/li\u003e\n\u003c/ul\u003e\u003cp\u003eOur report will be sent to the Government and include recommendations for the compensation scheme, based on these engagement sessions, and we plan to publish it when finalised this summer.\u003c/p\u003e" } }, { "@type": "Question", "name": "Getting involved - we welcome your input and advice ", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#getting-involved---we-welcome-your-input-and-advice", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#getting-involved---we-welcome-your-input-and-advice", "text": "\u003cp\u003eWe’re committed to those impacted by the infected blood scandal being at the centre of our planning and delivery for the compensation scheme, including how we ensure it’s designed around you. Below are the latest opportunities to support our work, with more to follow in coming months.\u003c/p\u003e" } }, { "@type": "Question", "name": "Recruiting a Community Representative ", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#recruiting-a-community-representative", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#recruiting-a-community-representative", "text": "\u003cp\u003eWe’re recruiting a permanent role for a user consultant that can help us shape everything the IBCA does - from building the service to ensuring our staff understand how best to support you. This role will only be open to those who have lived experience of the infected blood scandal, to ensure we have first-hand advice on the impact of our work. We’ll share an update when the job advert is live for those who may be interested in applying.\u003c/p\u003e" } }, { "@type": "Question", "name": "Advisory Panel for Communications", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#advisory-panel-for-communications", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#advisory-panel-for-communications", "text": "\u003cp\u003eTo help us shape regular communications and make sure we’re reaching those who are infected and affected in the community, we welcome volunteers who are willing to look at, comment on or contribute to news and updates, including products like this newsletter. We will be reaching out to those of you who have already told us that you’d like to take part in providing input into our design and delivery (by signing up here: \u003ca rel=\"external\" href=\"https://www.smartsurvey.co.uk/s/6AT30R/?m=81384916ma8rl\" class=\"govuk-link\"\u003eSmart Survey\u003c/a\u003e).\u003c/p\u003e" } }, { "@type": "Question", "name": "A quick reminder - please be aware of fraud ", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#a-quick-reminder---please-be-aware-of-fraud", "acceptedAnswer": { "@type": "Answer", "url": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024/ibca-newsletter-22-july-2024#a-quick-reminder---please-be-aware-of-fraud", "text": "\u003cp\u003eIf you have any doubts about a message or phone call from us being genuine, please contact us to check, using the details from our current website: \u003ca href=\"https://www.gov.uk/government/organisations/infected-blood-compensation-authority\" class=\"govuk-link\"\u003ehttps://www.gov.uk/government/organisations/infected-blood-compensation-authority\u003c/a\u003e\u003c/p\u003e\u003cp\u003eAlways report suspicious text messages or scam calls, free of charge to 7726. \u003c/p\u003e\u003cp\u003eYour provider can find out where the text came from and block or ban the sender.\u003c/p\u003e\u003cp\u003eYou can report fraud or cyber crime any time at \u003ca rel=\"external\" href=\"http://www.actionfraud.police.uk/\" class=\"govuk-link\"\u003ewww.actionfraud.police.uk\u003c/a\u003e or call 0300 123 2040. In Scotland, report it to the Police by calling 101. If you are a victim of fraud, report it to your bank.\u003c/p\u003e\u003cp\u003eIf you do not wish to receive further emails from us, please click the link below, and you will be automatically removed from our mailing list.\u003c/p\u003e\u003cp\u003e\u003ca rel=\"external\" href=\"https://www.smartsurvey.co.uk/s/6AT30R/?m=81384916ma8rl\u0026amp;optout=1\" class=\"govuk-link\"\u003ehttps://www.smartsurvey.co.uk/s/6AT30R/?m=81384916ma8rl\u0026amp;optout=1\u003c/a\u003e\u003c/p\u003e" } } ] } </script><script type="application/ld+json"> { "@context": "https://web.archive.org/web/20240906001746/http://schema.org", "@type": "BreadcrumbList", "itemListElement": [ { "@type": "ListItem", "position": 1, "item": { "name": "Home", "@id": "https://web.archive.org/web/20240906001746/https://www.gov.uk/" } }, { "@type": "ListItem", "position": 2, "item": { "name": "Health and social care", "@id": "https://web.archive.org/web/20240906001746/https://www.gov.uk/health-and-social-care" } }, { "@type": "ListItem", "position": 3, "item": { "name": "Blood regulation and safety", "@id": "https://web.archive.org/web/20240906001746/https://www.gov.uk/health-and-social-care/medicines-medical-devices-blood-blood-regulation-safety" } }, { "@type": "ListItem", "position": 4, "item": { "name": "IBCA newsletter, 22 July 2024", "@id": "https://web.archive.org/web/20240906001746/https://www.gov.uk/government/publications/ibca-newsletter-22-july-2024" } } ] } </script> </body> </html>

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