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Notre démarche open science | Health Data Hub
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science</span> </h1> </div> <div class="rich-text__header-text"> <p><span>Convaincu que les découvertes les plus impactantes seront issues de l’intelligence collective, le Health Data Hub soutient et accompagne l’écosystème de la santé numérique dans la démarche open science.</span></p> </div> <div class="rich-text__header-socials"> Partager <ul class="actualite__share list-inline text-right hidden-xs"> <li> <span class="tac_adlcshare" data-href="https://www.twitter.com/intent/tweet?url=https%3A%2F%2Fwww.health-data-hub.fr%2Fopen-science&text=&via=adlc_" data-social="Twitter"> </span> </li> <li> <span class="tac_adlcshare" data-href="https://www.linkedin.com/shareArticle?url=https%3A%2F%2Fwww.health-data-hub.fr%2Fopen-science" data-social="LinkedIn"> </span> </li> <li> <span class="tac_adlcshare" data-href="https://www.facebook.com/sharer.php?u=https%3A%2F%2Fwww.health-data-hub.fr%2Fopen-science" data-social="Facebook"> </span> </li> </ul> <span class="tac_addtoanyshare"></span> <span class="a2a_kit a2a_kit_size_35 addtoany_list" data-a2a-url="https://www.health-data-hub.fr/open-science" data-a2a-title="Notre démarche open science"> <a class="a2a_button_linkedin"></a><a class="a2a_button_twitter"></a><a class="a2a_button_email"></a> </span> </div> </div> </div> </div> </div> </div> </div> <div class="rich-text__bloc-text" data-aos="fade-up" data-aos-easing="linear"> <div class="container"> <div class="row"> <div class="col-12 col-md-10 col-lg-8 offset-md-1 offset-lg-2 "> <p><strong>Avec ses partenaires, le Health Data Hub développe, met à disposition et maintient à jour une série d’outils visant à faciliter la prise en main des données de santé. Comprendre les données, tant leur organisation que leurs biais, leurs potentiels et leurs limites, constitue un effort important pour chaque porteur de projet. C'est pourquoi le HDH propose de mutualiser et partager les connaissances, en mettant en place une démarche open science destinée à l’écosystème de la santé.</strong></p><p> </p><h3 dir="ltr"><strong>La démarche open science du Health Data Hub</strong></h3><p dir="ltr">Fort<span> de son engagement en faveur de l’open science, le Health Data Hub (HDH) accompagne les acteurs de l’écosystème de santé dans l’ouverture de leurs ressources en proposant des solutions simplifiées et adaptées. </span></p><p dir="ltr"><span>Pour centraliser les codes et algorithmes disponibles en open source, nous avons créé la </span><a href="https://www.health-data-hub.fr/bibliotheque-ouverte-algorithmes-sante"><span>Bibliothèque Ouverte d'Algorithmes en Santé</span></a><span> (BOAS). Ce projet collaboratif vise à référencer, documenter et rendre accessibles ces ressources, facilitant ainsi leur réutilisation par la communauté. </span></p><p dir="ltr"><span>Nous proposons également une solution dédiée au partage des données de santé anonymisées en open data. Cet accompagnement couvre toutes les étapes opérationnelles, techniques et réglementaires de l'ouverture des données.</span></p><p dir="ltr"><span>Pour en savoir plus sur les démarches open source et open data du HDH, vous pouvez télécharger les guides de contribution et visionner les replays des interventions dédiées à lors de la journée Open Science 2024 : </span></p><p dir="ltr"><span>⏩ Guides de contribution : </span><a href="https://www.health-data-hub.fr/sites/default/files/2024-09/%5BBOAS%5D%20Guide%20de%20contribution%20et%20de%20r%C3%A9f%C3%A9rencement%20d%27un%20algorithme%20%C3%A0%20la%20BOAS.pdf"><span>open source</span></a><span> // </span><a href="https://www.health-data-hub.fr/sites/default/files/2024-09/%5BOpen%20Data%5D%20Guide%20de%20bonnes%20pratiques%20d%27ouverture%20des%20bases%20de%20donn%C3%A9es.pdf"><span>open data</span></a></p><p dir="ltr"><span>⏩ Présentations lors de la Journée open science 2024 : </span><a href="https://www.youtube.com/watch?v=EWt_HoOGjc0"><span>open source</span></a><span> // </span><a href="https://www.youtube.com/watch?v=EWt_HoOGjc0"><span>open data</span></a></p><p><span>Au-delà de cet accompagnement, nous partageons également nos bonnes pratiques pour garantir une ouverture optimale et efficace des ressources. Nous avons notamment mis en place des templates de documentation standardisés pour la documentation des ressources à ouvrir :</span></p><p dir="ltr"><span>⏩ En </span><a href="https://www.health-data-hub.fr/sites/default/files/2024-09/%5BOpen%20Source%5D%20Template%20de%20readme%20BOAS.docx"><span>open source</span></a><span> </span></p><p dir="ltr"><span>⏩ En </span><a href="https://www.health-data-hub.fr/sites/default/files/2024-09/%5BOpen%20Data%5D%20Template%20readme%20.docx"><span>open data</span></a></p><p dir="ltr"><span>Ces initiatives témoignent de notre engagement continu dans la promotion et le soutien vis-à-vis de l’ouverture et de l'accessibilité de la science dans le domaine de la santé. </span></p><p><span>Pour en savoir plus sur l’offre de service du HDH, vous pouvez nous contacter à l’adresse </span><a href="mailto:opensource@health-data-hub.fr"><span>opensource@health-data-hub.fr</span></a><span> </span></p><h3> </h3><h3><strong>Rencontrez-nous et nos partenaires et informez-vous sur la science ouverte</strong></h3><p dir="ltr"><span>Nous organisons régulièrement des événements fédérateurs dans le but de rassembler les acteurs de l’innovation et contribuer à l’ouverture des connaissances dans le domaine des données de santé. </span></p><p dir="ltr"><span>Revivez la première édition de la journée de l’open science en santé, organisée le 30 avril 2024 </span><a href="https://www.youtube.com/playlist?list=PLEfaDuEBt7WOI1ogtHsbNcKwPIG9cMcXZ"><span>ici</span></a><span>. !</span></p><p><span>Régulièrement se tiennent des </span><a href="https://www.meetup.com/fr-FR/Health-Data-Hub/?_locale=fr-FR"><span>meetups</span></a><span> destinés à promouvoir les travaux d’ouverture des acteurs de l’écosystème. Ces moments d’échange conviviaux favorisent la collaboration et le partage des connaissances. Pour rester informés des prochains meetups, rejoignez notre communauté et inscrivez- vous à notre newsletter.</span></p><p> </p><h3><span><strong>Retrouvez aussi...</strong></span></h3><p dir="ltr"><span>Une représentation du modèle des données sur le </span><a href="https://health-data-hub.shinyapps.io/dico-snds/"><span>dictionnaire interactif.</span></a><span> </span></p><p dir="ltr"><span>Une </span><a href="https://documentation-snds.health-data-hub.fr/"><span>documentation collaborative</span></a><span> décrivant certaines tables et variables. Un </span><a href="https://gitlab.com/healthdatahub"><span>espace pour partager des programmes</span></a><span> est prévu. </span></p><p><span>Des </span><a href="https://www.data.gouv.fr/fr/datasets/donnees-synthetiques-de-la-base-principales-du-systeme-national-des-donnees-de-sante/"><span>données totalement synthétiques</span></a><span> permettant de tester vos programmes du point de vue fonctionnel.</span></p> </div> </div> </div> </div> <div class="rich-text__bloc-contenus-lies"> <div class="contenus-lies row margin-left no-gutters"> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Replay de la journée de l'open… </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://www.youtube.com/playlist?list=PLEfaDuEBt7WOI1ogtHsbNcKwPIG9cMcXZ"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Documentation collaborative </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://documentation-snds.health-data-hub.fr/"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Dictionnaire interactif </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://health-data-hub.shinyapps.io/dico-snds/"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Forum d'entraide </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://entraide.health-data-hub.fr/"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Données synthétiques </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://www.data.gouv.fr/fr/datasets/donnees-synthetiques-de-la-base-principales-du-systeme-national-des-donnees-de-sante/"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Notebook de prise en main du SNDS </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://documentation-snds.health-data-hub.fr/formation_snds/notebook.html"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Gitlab </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://gitlab.com/healthdatahub"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Meetups à venir </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://www.meetup.com/fr-FR/Health-Data-Hub/?_locale=fr-FR"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Présentations passées </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://documentation-snds.health-data-hub.fr/evenements/meetup.html#le-cepidc"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> <div class="contenu-lie"> <a href="" class="contenu-lie__media" > </a> <div class="contenu-lie__content"> <div class="contenu-lie__title"> <h3> Starter Kit </h3> </div> <div class="contenu-lie__text"> <p></p> </div> <div class="contenu-lie__link"> <a class="arrow-link hover-blue arrow-slice" href="https://www.health-data-hub.fr/starter-kit"> Découvrir <svg fill="#000000" width="34" viewBox="0 0 34 17" xmlns="http://www.w3.org/2000/svg"> <path d="M28.197 10.205l-3.915 3.904c-.663.66-.663 1.735 0 2.396.662.66 1.74.66 2.403 0l6.82-6.8c.321-.32.495-.748.495-1.201 0-.448-.18-.881-.495-1.202l-6.82-6.8c-.944-.94-2.075-.333-2.403 0-.663.661-.663 1.736 0 2.396l3.915 3.904H1.7c-.937 0-1.7.76-1.7 1.695 0 .947.763 1.708 1.7 1.708h26.497z" fill-rule="evenodd"></path> </svg> </a> </div> </div> </div> </div> </div> <div class="en-ce-moment z-index-1 " data-aos="fade-right" data-aos-easing="linear"> <div class="container-fluid 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