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Hip Fracture Registry Toolbox - APFFA

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.entry-header --> <div class="entry-content clear" itemprop="text" > <div class="fl-builder-content fl-builder-content-3556 fl-builder-content-primary fl-builder-global-templates-locked" data-post-id="3556"><div class="fl-row fl-row-full-width fl-row-bg-photo fl-node-60b08d27a513a fl-animation fl-fade-in" data-node="60b08d27a513a" data-animation-delay="0" data-animation-duration="1"> <div class="fl-row-content-wrap"> <div class="uabb-row-separator uabb-top-row-separator" > </div> <div class="fl-row-content fl-row-fixed-width fl-node-content"> <div class="fl-col-group fl-node-60b08d27a513d fl-col-group-custom-width" data-node="60b08d27a513d"> <div class="fl-col fl-node-60b08d27a513e" data-node="60b08d27a513e"> <div class="fl-col-content fl-node-content"> <div class="fl-module fl-module-pp-heading fl-node-60b08d27a5147 fl-animation fl-fade-in" data-node="60b08d27a5147" data-animation-delay="0" data-animation-duration="1"> <div class="fl-module-content fl-node-content"> <div class="pp-heading-content"> <div class="pp-heading pp-left"> <h1 class="heading-title"> <span class="title-text pp-primary-title">The Hip Fracture Registry (HFR) Toolbox</span> </h1> </div> <div class="pp-sub-heading"> <h5 style="text-align: left;">Developed by the APFFA Hip Fracture Registry Working Group, in collaboration with the Fragility Fracture Network (FFN) Hip Fracture Audit Special Interest Group</h5> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="fl-row fl-row-fixed-width fl-row-bg-color fl-node-60b08d27a513f" data-node="60b08d27a513f"> <div class="fl-row-content-wrap"> <div class="uabb-row-separator uabb-top-row-separator" > </div> <div class="fl-row-content fl-row-fixed-width fl-node-content"> <div class="fl-col-group fl-node-60b08d27a5140 fl-col-group-custom-width" data-node="60b08d27a5140"> <div class="fl-col fl-node-60b08d27a5141" data-node="60b08d27a5141"> <div class="fl-col-content fl-node-content"> <div class="fl-module fl-module-rich-text fl-node-60b08d27a5144" data-node="60b08d27a5144"> <div class="fl-module-content fl-node-content"> <div class="fl-rich-text"> <h5>The world-first Hip Fracture Registry (HFR) Toolbox is a practical and informative resource that extracts key findings from existing national and regional hip fracture registries, to advocate for, and support clinicians, hospital administrators, healthcare systems and governments with, establishing a national registry in their respective countries.</h5> <p><strong>The Toolbox:</strong></p> <ul> <li>Explains the fundamental need for hip fracture registries;</li> <li>Features a practical guide on the various components involved in establishing a registry;</li> <li>Offers direction on stakeholder engagement and consolidation; advocating for change; planning and funding a registry; setting up a pilot registry; navigating governance and ethics approval and adopting a minimum common dataset (MCD); and</li> <li>Includes established registry case studies and other useful resources.</li> </ul> <p><span style="color: #333399;"><strong>To learn more about the HFR Toolbox, download our HFR Toolbox Media kit <a style="color: #333399;" href="https://apfracturealliance.org/hfr-toolbox-media-kit/"><u>here</u></a>.</strong></span></p> <p><img class="alignright size-full wp-image-3537" src="https://apfracturealliance.org/wp-content/uploads/2021/05/AdobeStock_242590122-2.jpg" alt="" width="1348" height="899" srcset="https://apfracturealliance.org/wp-content/uploads/2021/05/AdobeStock_242590122-2.jpg 1348w, https://apfracturealliance.org/wp-content/uploads/2021/05/AdobeStock_242590122-2-300x200.jpg 300w, https://apfracturealliance.org/wp-content/uploads/2021/05/AdobeStock_242590122-2-1024x683.jpg 1024w, https://apfracturealliance.org/wp-content/uploads/2021/05/AdobeStock_242590122-2-768x512.jpg 768w" sizes="(max-width: 1348px) 100vw, 1348px" /></p> <p>&nbsp;</p> <hr /> <h4><strong>7 steps to establishing a HFR</strong></h4> <ol> <li>Engage clinical leaders and champions.</li> <li>Consolidate and broaden stakeholder buy-in.</li> <li>Build a case for change.</li> <li>Plan and fund a registry.</li> <li>Adopt a minimum common dataset (MCD)<br /> (Download the  FFN Minimum Common Dataset <a href="https://www.fragilityfracturenetwork.org/what-we-do/special-interest-groups/hip-fracture-audit-sig/"><span style="text-decoration: underline;"><strong>here</strong></span></a>).</li> <li>Set up a pilot registry.</li> <li>Navigate governance and ethics.</li> </ol> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-60b08d27a5155" data-node="60b08d27a5155"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://www.fragilityfracturenetwork.org/what-we-do/special-interest-groups/hip-fracture-audit-sig/" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="View FFN minimum common dataset"> <i class="pp-button-icon pp-button-icon-before fas fa-external-link-alt"></i> <span class="pp-button-text">View FFN minimum common dataset</span> </a> </div> </div> </div> <div class="fl-module fl-module-rich-text fl-node-60b08d27a5153" data-node="60b08d27a5153"> <div class="fl-module-content fl-node-content"> <div class="fl-rich-text"> <p>&nbsp;</p> <hr /> <h4><strong>Purpose of a HFR</strong></h4> <ul> <li>Registries for any health condition provide a mechanism to identify and investigate variations in the provision of patient care.</li> <li>Widescale implementation of HFR's globally can facilitate vast improvements in care for the millions of people who sustain a hip fracture each year.</li> <li>Given the exponential increase in both the incidence and costs associated with hip fractures to date, and those anticipated globally,<sup>1</sup> HFR's act as an essential tool for clinicians, hospital administrators, healthcare systems and governments in the Asia Pacific region, and worldwide, to underpin quality improvement initiatives.</li> <li>Hospitals can utilise HFR's to benchmark their provision of care against best practice clinical standards for acute care, rehabilitation, and secondary fracture prevention.</li> <li>Furthermore, HFR's transform patient-level data into information that can equip and empower hospital teams to identify the key challenges to overcome within their respective institutions, develop solutions to these challenges, and therefore, strive for ongoing improvement in care.</li> </ul> <p><img class="alignnone size-full wp-image-3320" src="https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho.jpg" alt="APFFA" width="2068" height="1379" srcset="https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho.jpg 2068w, https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho-300x200.jpg 300w, https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho-1024x683.jpg 1024w, https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho-768x512.jpg 768w, https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho-1536x1024.jpg 1536w, https://apfracturealliance.org/wp-content/uploads/2020/10/APFFA-Ortho-2048x1366.jpg 2048w" sizes="(max-width: 2068px) 100vw, 2068px" /></p> <hr /> <h4><strong>The driver for change</strong></h4> <ul> <li>By 2050, 1-in-4 people in the Asia Pacific will be aged over 60. This portion of the population is expected to triple between 2010 and 2050, reaching close to 1.3 billion people.<sup>2</sup></li> <li>Within the same timeframe, between 4.5 to 6.3 million hip fractures are predicted to occur worldwide, half of which will occur in Asia.<sup>3</sup></li> <li>More than 1.1 million hip fractures were estimated to have occurred in China, Chinese Taipei, Hong Kong SAR, India, Japan, Malaysia, Singapore, South Korea and Thailand in 2018, incurring an estimated direct cost of USD 7.5 billion. This cost is projected to increase to almost USD 13 billion by 2050.<sup>4</sup></li> <li>Even more concerningly, 1-in-4 patients who sustain a hip fracture die within a year, and less than half of those who survive, regain their previous level of function.<sup>5,6</sup></li> <li>With adequate operational efficiency and funding, registries can improve healthcare, and are likely to prove significantly cost-effective.<sup>7</sup></li> <li>Registries can contribute to government initiatives designed to manage rapidly aging populations, and can further help governments to promote the equitable provision of care.<sup>8</sup></li> </ul> <p><img class="size-full wp-image-3604" src="https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-scaled.jpeg" alt="" width="2560" height="1708" srcset="https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-scaled.jpeg 2560w, https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-300x200.jpeg 300w, https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-1024x683.jpeg 1024w, https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-768x513.jpeg 768w, https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-1536x1025.jpeg 1536w, https://apfracturealliance.org/wp-content/uploads/2021/06/AdobeStock_206244395-2048x1367.jpeg 2048w" sizes="(max-width: 2560px) 100vw, 2560px" /></p> </div> </div> </div> </div> </div> <div class="fl-col fl-node-60b0904356c0c fl-col-small fl-col-has-cols" data-node="60b0904356c0c"> <div class="fl-col-content fl-node-content"> <div class="fl-col-group fl-node-60b09c9ee733c fl-col-group-nested fl-col-group-custom-width" data-node="60b09c9ee733c"> <div class="fl-col fl-node-60b0904e6bd5f" data-node="60b0904e6bd5f"> <div class="fl-col-content fl-node-content"> <div class="fl-module fl-module-rich-text fl-node-60b0904356d05" data-node="60b0904356d05"> <div class="fl-module-content fl-node-content"> <div class="fl-rich-text"> <h2>Download the<br /> HFR Toolbox</h2> <p>Thank you for your interest in the HFR Toolbox. This Toolbox has been developed to help the user to navigate the various stages and complexities of establishing a national Hip Fracture Registry. The Toolbox arms the user with an overview of key lessons learned in the establishment of hip fracture registries to date, and practical tools to support registry development.</p> <p>Both APFFA and FFN highly recommend that each country has 1 national Hip Fracture Registry. The <a href="https://www.fragilityfracturenetwork.org/what-we-do/special-interest-groups/hip-fracture-audit-sig/"><strong><span style="text-decoration: underline;">FFN Hip Fracture Special Audit Interest Group</span></strong></a> and the <span style="text-decoration: underline;"><strong><a href="https://www.fragilityfracturenetwork.org/regionalisation/">FFN Regionalisation Committee</a></strong></span> provide networking opportunities for national registry champions to share their experiences and learn from each other.</p> <p>We strongly advise all clinicians, hospital administrators, healthcare systems and government representatives to collaborate and contribute to 1 national registry in their respective country.</p> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-60c19442b5bc1" data-node="60c19442b5bc1"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/wp-content/uploads/2021/06/APFFA-FFN-Hip-Fracture-Registry-Toolbox-Interactive-v1.0-FINAL.pdf" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="Download HFR ToolboxInteractive pdf (40MB)"> <i class="pp-button-icon pp-button-icon-before fas fa-file-pdf"></i> <span class="pp-button-text">Download HFR Toolbox<br><span style="font-size: 75%">Interactive pdf (40MB)</span></span> </a> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-60c2cff1e181f" data-node="60c2cff1e181f"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/wp-content/uploads/2021/06/APFFA-FFN-Hip-Fracture-Registry-Toolbox-Print-v1.0-FINAL.pdf" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="Download HFR ToolboxPrint pdf (9MB)"> <i class="pp-button-icon pp-button-icon-before fas fa-file-pdf"></i> <span class="pp-button-text">Download HFR Toolbox<br><span style="font-size: 75%">Print pdf (9MB)</span></span> </a> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-6113677ecabc2" data-node="6113677ecabc2"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/wp-content/uploads/2021/08/APFFA-FFN-Hip-Fracture-Registry-Toolbox-Simplified-Chinese-Interactive_FINAL.pdf" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="Download HFR Toolbox简体中文 (8MB)"> <i class="pp-button-icon pp-button-icon-before fas fa-file-pdf"></i> <span class="pp-button-text">Download HFR Toolbox<br><span style="font-size: 75%">简体中文 (8MB)</span></span> </a> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-6113677d6b427" data-node="6113677d6b427"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/wp-content/uploads/2021/08/APFFA-FFN-Hip-Fracture-Registry-Toolbox-Traditional-Chinese-Interactive_FINAL.pdf" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="Download HFR Toolbox繁体中文 (9MB)"> <i class="pp-button-icon pp-button-icon-before fas fa-file-pdf"></i> <span class="pp-button-text">Download HFR Toolbox<br><span style="font-size: 75%">繁体中文 (9MB)</span></span> </a> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-624bdc2394a84" data-node="624bdc2394a84"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/wp-content/uploads/2022/04/APFFA-FFN-Hip-Fracture-Registry-Toolbox_Japanese.pdf" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="Download HFR ToolboxPDFを印刷 (4MB)"> <i class="pp-button-icon pp-button-icon-before fas fa-file-pdf"></i> <span class="pp-button-text">Download HFR Toolbox<br /><span style="font-size: 75%;">PDFを印刷 (4MB)</span></span> </a> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-624bdc251fe1c" data-node="624bdc251fe1c"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/wp-content/uploads/2022/04/APFFA-FFN-Hip-Fracture-Registry-Toolbox_Korean.pdf" target="_blank" class="pp-button" role="button" rel="noopener" aria-label="Download HFR ToolboxPDF 인쇄 (4MB)"> <i class="pp-button-icon pp-button-icon-before fas fa-file-pdf"></i> <span class="pp-button-text">Download HFR Toolbox<br><span style="font-size: 75%">PDF 인쇄 (4MB)</span></span> </a> </div> </div> </div> </div> </div> </div> <div class="fl-col-group fl-node-60c193fb298e9 fl-col-group-nested fl-col-group-custom-width" data-node="60c193fb298e9"> <div class="fl-col fl-node-60b08d27a5142" data-node="60b08d27a5142"> <div class="fl-col-content fl-node-content"> <div class="fl-module fl-module-rich-text fl-node-60b08d27a5145" data-node="60b08d27a5145"> <div class="fl-module-content fl-node-content"> <div class="fl-rich-text"> <h4>HFR Toolbox Media Kit</h4> </div> </div> </div> <div class="fl-module fl-module-pp-smart-button fl-node-60b0904e6be6f" data-node="60b0904e6be6f"> <div class="fl-module-content fl-node-content"> <div class="pp-button-wrap pp-button-width-full pp-button-has-icon"> <a href="https://apfracturealliance.org/hfr-toolbox-media-kit/" target="_self" class="pp-button" role="button" aria-label="View MEDIA KIT"> <i class="pp-button-icon pp-button-icon-before fas fa-file-invoice"></i> <span class="pp-button-text">View MEDIA KIT</span> </a> </div> </div> </div> </div> </div> </div> <div class="fl-col-group fl-node-60b09dda1ecff fl-col-group-nested fl-col-group-custom-width" data-node="60b09dda1ecff"> <div class="fl-col fl-node-60c193f673e78" data-node="60c193f673e78"> <div 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A retrospective observational analysis.</em> BMJ Open, 2014. 4(4): p. e004405.</li> <li>United Nation Population Fund (UNFPA) Asia &amp; the Pacific. <em>Ageing</em>. [cited 2021 May]; Available from: <a href="https://asiapacific.unfpa.org/en/node/15208">https://asiapacific.unfpa.org/en/node/15208</a>.</li> <li>Cheung, C.L., et al., <em>An updated hip fracture projection in Asia: The Asian Federation of Osteoporosis Societies study.</em> Osteoporos Sarcopenia, 2018. 4(1): p. 16-21.</li> <li>Ebeling, P., et al., <em>Secondary prevention of fragility fractures in Asia Pacific: an educational initiative.</em> Osteoporosis International, 2019.</li> <li>National Osteoporosis Foundation, <em>NOF's Clinician's Guide to Prevention and Treatment of Osteoporosis.</em></li> <li>Australian Institute of Health and Welfare. <em>Musculoskeletal fact sheet. Osteoporosis</em>. [Jan, 2020]; Available from: <a href="https://www.aihw.gov.au/getmedia/61866386-568b-41fa-93e4-090ad201ab2b/phe187-osteoporosis-factsheet.pdf.aspx">https://www.aihw.gov.au/getmedia/61866386-568b-41fa-93e4-090ad201ab2b/phe187-osteoporosis-factsheet.pdf.aspx</a></li> <li>Australian Commission on Safety and Quality in Health Care, <em>Economic evaluation of clinical quality registries</em>. 2016.</li> <li>Australian Government, <em>National Clinical Quality Registry and Virtual Registry Strategy  - A National Strategy for Clinical Quality Registries and Virtual Registries 2020-2030</em>. 2020.</li> </ol> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> </div> <div class="fl-row fl-row-fixed-width fl-row-bg-color fl-node-60b08d27a514c" data-node="60b08d27a514c"> <div class="fl-row-content-wrap"> <div class="uabb-row-separator uabb-top-row-separator" > </div> <div class="fl-row-content fl-row-fixed-width fl-node-content"> <div class="fl-col-group fl-node-60b08d27a514d" data-node="60b08d27a514d"> <div class="fl-col fl-node-60b08d27a514e" data-node="60b08d27a514e"> <div class="fl-col-content fl-node-content"> <div class="fl-module fl-module-pp-heading fl-node-60b08d27a514f fl-animation fl-fade-in" data-node="60b08d27a514f" data-animation-delay="0" data-animation-duration="1"> <div class="fl-module-content fl-node-content"> <div class="pp-heading-content"> <div class="pp-heading pp-center"> <h2 class="heading-title"> <span class="title-text pp-primary-title">Share the HFR Toolbox with your colleagues</span> </h2> </div> </div> </div> </div> <div class="fl-module fl-module-rich-text fl-node-60b08d27a5150 share_toolkit_btn" data-node="60b08d27a5150"> <div class="fl-module-content fl-node-content"> <div class="fl-rich-text"> <p style="text-align: center;"><a href="mailto:?&amp;subject=APFFA%20Hip%20Fracture%20Registry%20Toolbox&amp;body=Hi, %0d%0a %0d%0a I have recently accessed the HFR Toolbox, developed by the APFFA Hip Fracture Registry Working Group and the FFN Fracture Audit Special Interest Group, a resource that I thought you may be interested in downloading too. %0d%0a %0d%0a This is a world first, informative and practical resource that extracts key findings from existing national and regional hip fracture registries, to advocate for, and support clinicians, hospital administrators, healthcare systems and governments with establishing a national registry within their respective countries. %0d%0a %0d%0a If you are interested in taking a look at this resource, it can be accessed here: %0d%0a %0d%0a https://apfracturealliance.org/hfr-toolbox/ %0d%0a %0d%0a Kind regards">Share the Toolbox</a></p> </div> </div> </div> <div class="fl-module fl-module-rich-text fl-node-60b08d27a5151" data-node="60b08d27a5151"> <div class="fl-module-content fl-node-content"> <div class="fl-rich-text"> <h5 style="text-align: center;"><a 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