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MS Data Alliance

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/_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fdata_alliance_main.6dd30260.jpg&amp;w=2048&amp;q=75 2048w, /_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fdata_alliance_main.6dd30260.jpg&amp;w=3840&amp;q=75 3840w" src="/_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fdata_alliance_main.6dd30260.jpg&amp;w=3840&amp;q=75"/><div class="absolute inset-0 w-full h-full bg-gradient-to-r from-[#2d669f] to-theme-emsp-green backdrop-blur-sm opacity-75"></div><div class="absolute z-20 flex flex-col justify-end h-full pb-8 mx-8"><h1 class="max-w-2xl mt-10 mb-4 text-4xl font-extrabold tracking-tight text-white sm:text-6xl">MS Data Alliance</h1><div class="flex items-center justify-start "><p class="font-semibold text-white md:max-w-xl md:py-8 md:text-lg rounded-2xl ">The MS Data Alliance is a collaborative effort to speed up the process of research and innovation for treatments and care for those with MS. In 2022 the MSDA held its 2nd Stakeholder Engagement Meeting on “The use of Great Data and AI to reveal progression in MS” and launched its first Fellowship Programme in order support someone to set up a data initiative in Central and Eastern European or the Balkan Region. </p></div></div></div><main class="mb-40"> <div class="flex justify-between gap-10 flex-col md:flex-row"><div class="relative flex flex-col overflow-hidden md:w-4/12"><div class="absolute top-0 left-0 w-full h-full -z-10 bg-slate-100 rounded-2xl" style="transform:translateY(-100%) translateZ(0)"></div><div class="p-8 text-gray-800 grow"> The &#x27;Multiple Sclerosis Data Alliance&#x27; (MSDA) aims to implement a minimal data set and quality standards, approved by the European Medicine Agency (EMA), in a variety of MS data registries and cohorts. This improvement of collection and analysis of real-world evidence can result in better research outcomes, as well as informed policies for decision-makers, regulators, and patients. </div><div class="p-8 text-gray-800"><div class="mb-2 text-sm">Additional Resources:</div><div class="mb-2"><a href="https://msdataalliance.com/" class="flex items-center" target="_blank" rel="noreferrer"><div class="min-w-4"><svg stroke="currentColor" fill="currentColor" stroke-width="0" viewBox="0 0 512 512" height="1em" width="1em" xmlns="http://www.w3.org/2000/svg"><path d="M326.612 185.391c59.747 59.809 58.927 155.698.36 214.59-.11.12-.24.25-.36.37l-67.2 67.2c-59.27 59.27-155.699 59.262-214.96 0-59.27-59.26-59.27-155.7 0-214.96l37.106-37.106c9.84-9.84 26.786-3.3 27.294 10.606.648 17.722 3.826 35.527 9.69 52.721 1.986 5.822.567 12.262-3.783 16.612l-13.087 13.087c-28.026 28.026-28.905 73.66-1.155 101.96 28.024 28.579 74.086 28.749 102.325.51l67.2-67.19c28.191-28.191 28.073-73.757 0-101.83-3.701-3.694-7.429-6.564-10.341-8.569a16.037 16.037 0 0 1-6.947-12.606c-.396-10.567 3.348-21.456 11.698-29.806l21.054-21.055c5.521-5.521 14.182-6.199 20.584-1.731a152.482 152.482 0 0 1 20.522 17.197zM467.547 44.449c-59.261-59.262-155.69-59.27-214.96 0l-67.2 67.2c-.12.12-.25.25-.36.37-58.566 58.892-59.387 154.781.36 214.59a152.454 152.454 0 0 0 20.521 17.196c6.402 4.468 15.064 3.789 20.584-1.731l21.054-21.055c8.35-8.35 12.094-19.239 11.698-29.806a16.037 16.037 0 0 0-6.947-12.606c-2.912-2.005-6.64-4.875-10.341-8.569-28.073-28.073-28.191-73.639 0-101.83l67.2-67.19c28.239-28.239 74.3-28.069 102.325.51 27.75 28.3 26.872 73.934-1.155 101.96l-13.087 13.087c-4.35 4.35-5.769 10.79-3.783 16.612 5.864 17.194 9.042 34.999 9.69 52.721.509 13.906 17.454 20.446 27.294 10.606l37.106-37.106c59.271-59.259 59.271-155.699.001-214.959z"></path></svg></div><div class="ml-2">MS Data Alliance</div></a></div></div></div><div class="md:w-7/12"><p>The &#x27;Multiple Sclerosis Data Alliance&#x27; (MSDA) aims to implement a minimal data set and quality standards, approved by the European Medicine Agency (EMA), in a variety of MS data registries and cohorts. This improvement of collection and analysis of real-world evidence can result in better research outcomes, as well as informed policies for decision-makers, regulators, and patients.</p><br/><br/><img loading="lazy" width="1200" height="455" decoding="async" data-nimg="1" class="rounded-2xl overflow-hidden" style="color:transparent" srcSet="/_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fmsda1.5d6d8bb6.jpg&amp;w=1200&amp;q=75 1x, /_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fmsda1.5d6d8bb6.jpg&amp;w=3840&amp;q=75 2x" src="/_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fmsda1.5d6d8bb6.jpg&amp;w=3840&amp;q=75"/></div></div> <br/> <br/> <br/> <div class="flex justify-between gap-10 flex-col md:flex-row-reverse"><div class="relative flex flex-col overflow-hidden md:w-4/12"><div class="absolute top-0 left-0 w-full h-full -z-10 bg-slate-100 rounded-2xl" style="transform:translateY(-100%) translateZ(0)"></div><div class="p-8 text-gray-800 grow"><p>MSDA seeks to change people&#x27;s perceptions regarding the high degree of importance and multiple applications of reliable real-world data. This is necessary to ensure that health authorities have adequate evidence to make sound decisions. MSDA’s purpose is to foster research and improve results for those affected by Multiple Sclerosis, with a special emphasis on Patient Reported Outcomes and Patient Relevant Outcomes.</p><br/><p>MSDA began as a result of EMSP&#x27;s endeavours to standardise the collection of MS data in Europe. Now, led by the European Charcot Foundation (ECF), it is an independent multi-stakeholder initiative with EMSP as one of its six main partners. ECF provides the legal entity for the project.</p></div><div class="p-8 text-gray-800"><div class="mb-2 text-sm">Additional Resources:</div><div class="mb-2"><a href="https://emsp.org/news/ms-data-alliance-stakeholder-engagement-meeting-2022/" class="flex items-center" target="_blank" rel="noreferrer"><div class="min-w-4"><svg stroke="currentColor" fill="currentColor" stroke-width="0" viewBox="0 0 512 512" height="1em" width="1em" xmlns="http://www.w3.org/2000/svg"><path d="M326.612 185.391c59.747 59.809 58.927 155.698.36 214.59-.11.12-.24.25-.36.37l-67.2 67.2c-59.27 59.27-155.699 59.262-214.96 0-59.27-59.26-59.27-155.7 0-214.96l37.106-37.106c9.84-9.84 26.786-3.3 27.294 10.606.648 17.722 3.826 35.527 9.69 52.721 1.986 5.822.567 12.262-3.783 16.612l-13.087 13.087c-28.026 28.026-28.905 73.66-1.155 101.96 28.024 28.579 74.086 28.749 102.325.51l67.2-67.19c28.191-28.191 28.073-73.757 0-101.83-3.701-3.694-7.429-6.564-10.341-8.569a16.037 16.037 0 0 1-6.947-12.606c-.396-10.567 3.348-21.456 11.698-29.806l21.054-21.055c5.521-5.521 14.182-6.199 20.584-1.731a152.482 152.482 0 0 1 20.522 17.197zM467.547 44.449c-59.261-59.262-155.69-59.27-214.96 0l-67.2 67.2c-.12.12-.25.25-.36.37-58.566 58.892-59.387 154.781.36 214.59a152.454 152.454 0 0 0 20.521 17.196c6.402 4.468 15.064 3.789 20.584-1.731l21.054-21.055c8.35-8.35 12.094-19.239 11.698-29.806a16.037 16.037 0 0 0-6.947-12.606c-2.912-2.005-6.64-4.875-10.341-8.569-28.073-28.073-28.191-73.639 0-101.83l67.2-67.19c28.239-28.239 74.3-28.069 102.325.51 27.75 28.3 26.872 73.934-1.155 101.96l-13.087 13.087c-4.35 4.35-5.769 10.79-3.783 16.612 5.864 17.194 9.042 34.999 9.69 52.721.509 13.906 17.454 20.446 27.294 10.606l37.106-37.106c59.271-59.259 59.271-155.699.001-214.959z"></path></svg></div><div class="ml-2">2nd MS Data Alliance Stakeholder Engagement Meeting </div></a></div><div class="mb-2"><a href="https://www.msdataalliance.org/academy/fellowshipProgram" class="flex items-center" target="_blank" rel="noreferrer"><div class="min-w-4"><svg stroke="currentColor" fill="currentColor" stroke-width="0" viewBox="0 0 512 512" height="1em" width="1em" xmlns="http://www.w3.org/2000/svg"><path d="M326.612 185.391c59.747 59.809 58.927 155.698.36 214.59-.11.12-.24.25-.36.37l-67.2 67.2c-59.27 59.27-155.699 59.262-214.96 0-59.27-59.26-59.27-155.7 0-214.96l37.106-37.106c9.84-9.84 26.786-3.3 27.294 10.606.648 17.722 3.826 35.527 9.69 52.721 1.986 5.822.567 12.262-3.783 16.612l-13.087 13.087c-28.026 28.026-28.905 73.66-1.155 101.96 28.024 28.579 74.086 28.749 102.325.51l67.2-67.19c28.191-28.191 28.073-73.757 0-101.83-3.701-3.694-7.429-6.564-10.341-8.569a16.037 16.037 0 0 1-6.947-12.606c-.396-10.567 3.348-21.456 11.698-29.806l21.054-21.055c5.521-5.521 14.182-6.199 20.584-1.731a152.482 152.482 0 0 1 20.522 17.197zM467.547 44.449c-59.261-59.262-155.69-59.27-214.96 0l-67.2 67.2c-.12.12-.25.25-.36.37-58.566 58.892-59.387 154.781.36 214.59a152.454 152.454 0 0 0 20.521 17.196c6.402 4.468 15.064 3.789 20.584-1.731l21.054-21.055c8.35-8.35 12.094-19.239 11.698-29.806a16.037 16.037 0 0 0-6.947-12.606c-2.912-2.005-6.64-4.875-10.341-8.569-28.073-28.073-28.191-73.639 0-101.83l67.2-67.19c28.239-28.239 74.3-28.069 102.325.51 27.75 28.3 26.872 73.934-1.155 101.96l-13.087 13.087c-4.35 4.35-5.769 10.79-3.783 16.612 5.864 17.194 9.042 34.999 9.69 52.721.509 13.906 17.454 20.446 27.294 10.606l37.106-37.106c59.271-59.259 59.271-155.699.001-214.959z"></path></svg></div><div class="ml-2">MSDA fellowship program</div></a></div></div></div><div class="md:w-7/12"><p>EMSP plays a key part in the project to create and advance the MSDA educational program. This program is intended to supply MS patients, advocates, and people with MS, as well as their family and other stakeholders, with resources on MS data and its application, collection techniques, and how it can ultimately improve the lives of those affected by MS.</p><br/><br/><img loading="lazy" width="2048" height="905" decoding="async" data-nimg="1" class="rounded-2xl overflow-hidden" style="color:transparent" srcSet="/_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fmsda2.77e9cffb.jpg&amp;w=2048&amp;q=75 1x, /_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fmsda2.77e9cffb.jpg&amp;w=3840&amp;q=75 2x" src="/_next/image/?url=%2F_next%2Fstatic%2Fmedia%2Fmsda2.77e9cffb.jpg&amp;w=3840&amp;q=75"/><br/><br/><p>On 16 November 2022 the 2nd MS Data Alliance Stakeholder Engagement Meeting on “The use of Great Data and AI to reveal progression in MS” aimed to facilitate and speed-up the interdisciplinary conversations, collaborations and innovations at the intersection of data science and medicine. The event boasted over 65 attendees in person and an additional 100 virtual viewers.</p><br/><br/><p>While the meeting was mainly focusing on Artificial Intelligence and Great Data to reveal progression in MS, it was also marked by the announcement of the MSDA fellowship program.</p></div></div></main></div><section id="previous-editions" class="w-full mx-auto h-full w-full"><div class="max-w-[1200px] mx-auto h-full w-full px-4"><div class=""><div class="flex flex-col w-full max-w-4xl p-8 mx-auto min-h-64 md:flex-row bg-slate-100 rounded-2xl"><div class="flex flex-col items-center justify-center gap-2 md:p-8 md:w-1/2"><p class="text-3xl font-black text-slate-800">Discover previous EMSP annual reports</p><p class="text-gray-500">Select an option using the dropdown button then click on the button to proceed.</p></div><div class="flex items-center justify-center mt-4 md:w-1/2 md:mt-0"><div class="flex items-center justify-center"><div class="max-h-20"><style data-emotion="css 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