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Putting patients first |Ipsen Patient Care & Support

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</ul> <li class="nav-item "> <a class="nav-link cool-link " target="_self" href="https://www.ipsen.com/stories/">Stories</a> </li> </ul> </div> </div> </div> </nav> <!--Logo with Global Menu-bar end--> </div> </div> </section> <!-- Header section End --> <article id="post-32" class="post-32 page type-page status-publish hentry entry"> <div class="single-page-template" > <div class="main-container" role="main" id="main"> <header class="entry-header alignwide"> </header><!-- .entry-header --> <div class="entry-content"> <section class="sub-page-banner bg-img" style="background-image:url(https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/05/11161603/MicrosoftTeams-image-6.png)"> <div class="container content-sec" role="main" id="main"> <nav aria-label="breadcrumb"> <ol class="breadcrumb"> <li class="breadcrumb-item"><a href="https://www.ipsen.com">Home</a></li><li class="breadcrumb-item active"><a class="link-pointer-events-none" href="#" aria-current="page">Patients</a></li></ol> </nav> <h1 class="visible">Patients</h1> <p class="visible">At Ipsen, patients motivate every decision we make.</p> </div> </section> <!-- Hero Carousel Start Here--> <section class="hero-section blue-filter"> <div class="hero_gridwidth container"><!-- container class shown if gridlayout choosen --> <div id="heroCarousel" class="carousel slide herocaro hero-banner-no-bg-image" data-bs-ride="carousel" data-enableplaybtn="1" data-autoplay= "" data-autospeed= "" > <!-- Slider Indicator--> <div class="carousel-indicators hidden"> <button type="button" data-bs-target="#heroCarousel" data-bs-slide-to="0" class="active" aria-current="true" aria-label="Slide 0"></button> </div> <!-- Items --> <div class="carousel-inner"> <!-- Hero Banner with carousel HTML --> <div class="carousel-item active"> <img decoding="async" class="bd-placeholder-img visible" width="100%" height="100%" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/05/16082540/Module-2-%E2%80%93-hero-image_Putting-patients-first_Misha_089_1980x720pix.jpg" aria-hidden="true" title="Hero Banner" alt="Hero Banner" /> <div class="container align-left"> <div class="carousel-caption"> <h2 class="visible text-start">Putting patients first</h2> <div class="visible text-start">At Ipsen, patients motivate every decision we make. We work side-by-side with them to improve their lives and deliver outcomes that make a meaningful difference. </div> </div> </div> </div> </div> </div> </div> </section> <!-- Hero Carousel End Here--> <div class="wp-block-columns is-layout-flex wp-container-core-columns-is-layout-1 wp-block-columns-is-layout-flex"> <div class="wp-block-column is-layout-flow wp-block-column-is-layout-flow" style="flex-basis:100%"> <section class="title-text "> <div class="container"> <div class="title-text-inner" style="background-color:#DBEAF5;"> <!-- If heading is enabled then it's visible --> <div class="text-head-dash visible"> <span class="dash"></span> <p class="heading-para"> WORKING WITH PATIENTS, FOR PATIENTS </p> </div> <!-- If subtitle is enabled then it's visible --> <div class="text-head-dash hidden"> <h2 class="heading-para"> </h2> </div> <!-- If description is enabled then it's visible --> <div class="text-parbase visible"> <p><p>Ipsen works with patients, their families, and more than 250 patient organizations around the world at a global, regional, and national level. Our key priorities are generating data and sharing experiences. We want to guarantee that patients are truly given a seat at the table when it comes to their care and the developments that Ipsen is making. We believe this kind of close collaboration and inclusion is essential to ensure we chart the right course.  Our goal is to understand and respond to patients’ needs, helping them and their caregivers at different points throughout their experiences. At Ipsen, we believe in working together with patients, for patients.</p> </p> </div> <!-- If button is enabled then it's visible --> </div> </div> </section> <!-- Ipsen Quotes Start --> <section class="quotes-section "> <div class="container"> <div class="quote-sec-inner" style="background-image: url(https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/04/19085624/Group-252.png);background-color: #DBEAF5;"> <div class="row"> <div class="column-1 col-xl-4 col-md-6 col-xs-12 "> <div class="quote-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2024/03/12134247/Salndra-SILVESTRI_Quote_446x360pix.png" alt="Sandra Silvestri, M.D., Ph.D." title="Sandra Silvestri, M.D., Ph.D." > </div> </div> <div class="column-2 col-xl-8 col-md-6 col-xs-12 "> <div class="quote-content"> <div class="quote-para "> <p class="para charcoal-grey "> <p>Patients drive our science in Oncology, Neuroscience and Rare Disease. Being in touch with what matters to patients and their families helps us understand their needs and work together to bring meaningful improvements to their lives.</p> </p> </div> <div class="quote-sign-div"> <div class="quote-author-div"> <div class="quote-dash-div"> <span class="quote-dash"> </span> <p class="quote-author primary-blue"> Sandra Silvestri, M.D., Ph.D. </p> </div> <p class="quote-author-role charcoal-grey "> EVP, Chief Medical Officer, Head of Global Medical Affairs, Patient Safety and Patient Affairs </p> </div> </div> </div> </div> </div> </div> </div> </section> <!-- Ipsen Quotes End --> <section class="video-card "> <div class="container"> <!-- Block Details --> <div class="video-card-header"> <h2 class="video-card-block-title hidden"></h2> <p class="charcoal-grey video-card-block-summary hidden"> </p> </div> <!-- Video Iframe embed --> <div class="video-embed"> <iframe title="Ipsen Global Onco Showreel for ESMO 23.07.24" src="https://player.vimeo.com/video/1003541770?app_id=122963&#038;autoplay=1&#038;muted=1&#038;controls=1&#038;loop=1&#038;autopause=1&#038;background=0" width="640" height="360" frameborder="0" allow="autoplay; fullscreen; picture-in-picture; clipboard-write; encrypted-media" frameborder="0" allow="autoplay; fullscreen; picture-in-picture" data-ot-ignore></iframe> </div> <!-- Block CTA --> <div class="cta-block hidden"> </div> </div> </section> <section class="title-text "> <div class="container"> <div class="title-text-inner" style="background-color:#DBEAF5;"> <!-- If heading is enabled then it's visible --> <div class="text-head-dash visible"> <span class="dash"></span> <p class="heading-para"> OUR WORK WITH PATIENT ORGANIZATIONS </p> </div> <!-- If subtitle is enabled then it's visible --> <div class="text-head-dash hidden"> <h2 class="heading-para"> </h2> </div> <!-- If description is enabled then it's visible --> <div class="text-parbase visible"> <p><p>It all starts with listening. At Ipsen, we enter into dialogue with the patient community as early as possible when developing new medicines. Our focus is on long-term strategic engagement and partnerships with patient organizations.</p> </p> </div> <!-- If button is enabled then it's visible --> <div class="btn-txt"> <a aria-label="Collaborate with us OUR WORK WITH PATIENT ORGANIZATIONS" class="btn-link section-btn cta-visible" role="link" href="https://www.ipsen.com/patients/collaborate-with-us/" target="_self"> Collaborate with us </a> </div> </div> </div> </section> <section class="slim-card left"> <div class="container"> <div class="slim-card-inner"> <div class="slim-manual-section slim-manual-side-carousel slim-manual-carousel"> <div class="container"> <div class="slim-manual-side-inner"> <div class="row normal-div"> <div class="column-1 col-lg-3 col-md-4 col-sm-12"> <div class="slim-manual-side-sec"> <h2 class="slimcard-type visible">Making a difference </h2> <p class="slimcard-summary visible"> Ipsen is committed to working closely and inclusively with the patient community to impact medical care and patient outcomes in our focus fields of Oncology, Rare Disease and Neuroscience. </p> </div> </div> <div class="column-2 col-lg-9 col-md-8 col-sm-12"> <div class="slim-manual-side-glider-contain multiple"> <div class="glider-contain"> <div class="slim-manual-side-glider"> <div class="slim-manual-glider-item glider-slide left-0 active visible" data-gslide="0" tab-index="0"> <a href="https://www.ipsen.com/patients/together-for-oncology/" aria-label="Together for Oncology" target="_self"> <div class="slim-manual-slim-card"> <div class="slim-manual-slim-card-inner"> <a href="https://www.ipsen.com/patients/together-for-oncology/" aria-label="Together for Oncology" target="_self"> <div class="slim-manual-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/09/04161808/Module-7-%E2%80%93-Franchise-work-with-patients_ONCOLOGY_Ronny_181204-209-300x200-1.png" aria-label="Together for Oncology" title="Together for Oncology" > </div> </a> <div class="slim-manual-content-sec"> <h3>Together for Oncology</h3> <p>We collaborate with patient communities across a range of different cancers, so that together we can develop solutions that truly make a difference to patients’ lives.</p> </div> </div> </div> </a> </div> <div class="slim-manual-glider-item glider-slide left-1 " data-gslide="1" tab-index="0"> <a href="https://www.ipsen.com/patients/together-for-rare-disease/" aria-label="Together for Rare Disease" target="_self"> <div class="slim-manual-slim-card"> <div class="slim-manual-slim-card-inner"> <a href="https://www.ipsen.com/patients/together-for-rare-disease/" aria-label="Together for Rare Disease" target="_self"> <div class="slim-manual-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/09/04140500/Together-for-Rare-Disease_Savannah_Card-270x200pix.png" aria-label="Together for Rare Disease" title="Together for Rare Disease" > </div> </a> <div class="slim-manual-content-sec"> <h3>Together for Rare Disease</h3> <p>We transform our science to make a meaningful difference to the lives of people living with rare diseases.</p> </div> </div> </div> </a> </div> <div class="slim-manual-glider-item glider-slide left-2 " data-gslide="2" tab-index="0"> <a href="https://www.ipsen.com/patients/together-for-neuroscience/" aria-label="Together for Neuroscience" target="_self"> <div class="slim-manual-slim-card"> <div class="slim-manual-slim-card-inner"> <a href="https://www.ipsen.com/patients/together-for-neuroscience/" aria-label="Together for Neuroscience" target="_self"> <div class="slim-manual-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/09/04161807/Module-7-%E2%80%93-Franchise-work-with-patients_NEUROSCIENCE_Diana_ipsen-128-300x200-1.png" aria-label="Together for Neuroscience" title="Together for Neuroscience" > </div> </a> <div class="slim-manual-content-sec"> <h3>Together for Neuroscience</h3> <p>Ipsen has worked together with many Global and European communities, supporting people affected by neurological conditions.</p> </div> </div> </div> </a> </div> </div> </div> </div> </div> </div> <div class="slimcard-btn-sec"> </div> </div> </div> </div> </div> </div> </section> <!--Regular card with carousel --> <section class="p-slider blue-bg" > <div class="slider-heading-container"> <h2 class="slider-title visible">Top Patient Stories </h2> <p class="charcoal-grey visible">Browse all patient stories</p> </div> <!-- glider insert --> <div class="glider-contain multiple"> <!-- buttons --> <div class="slider-btns"> <button aria-label="Previous" aria-labelledby="glider-product-prev" role="button" title="Previous" class="glider-product-prev"> <span style="background-image:url(https://www.ipsen.com/wp-content/themes/ipsen-main/dist/images/blue-left-arrow.png);"></span> </button> <button aria-label="Next" aria-labelledby="glider-product-next" role="button" title="Next" class="glider-product-next"> <span style="background-image:url(https://www.ipsen.com/wp-content/themes/ipsen-main/dist/images/blue-right-arrow.png);"></span> </button> </div> <div class="glider-product"> <!-- product box-latest story listing--> <div class="product-box" aria-label="Living with Rare Liver Diseases: Unique challenges, Shared Experiences "> <a title="Living with Rare Liver Diseases: Unique challenges, Shared Experiences " href="https://www.ipsen.com/rare-diseases/living-with-rare-liver-diseases-unique-challenges-shared-experiences/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/03/03113721/Living-with-Rare-Disease.jpg" alt="Living with Rare Liver Diseases: Unique challenges, Shared Experiences " title="Living with Rare Liver Diseases: Unique challenges, Shared Experiences " > </div> </div> <!-- text-container --> <div class="p-box-text"> 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Three such conditions—Primary Biliary Cholangitis (PBC), Progressive Familial Intrahepatic Cholestasis (PFIC), and Alagille Syndrome (ALGS)—share commonalities yet are unique in their caus</p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation "> <a title="Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation " href="https://www.ipsen.com/rare-diseases/scientific-journey-from-coal-to-diamond-myths-and-misperceptions-in-rare-disease-innovation/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/03/24105342/Jennifer-ODRD-LinkedIn-Image_16x9-1.png" alt="Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation " title="Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation " > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Rare Disease </button> <span class="time-stamp visible">24 March 2025</span> <span class="time-stamp visible">3 mins read</span> <div class="text-div"> <p class="text-div-para">Scientific Journey from Coal to Diamond: Myths and Misperceptions in Rare Disease Innovation </p> <p>In storytelling, you might hear of a superhero who squeezes coal with immense strength and heat, instantly creating a flawless diamond. 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The conversation reminded me that behind every polic</p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Rare Disease Day 2025: Imagining More for the Rare Disease Community "> <a title="Rare Disease Day 2025: Imagining More for the Rare Disease Community " href="https://www.ipsen.com/rare-diseases/rare-disease-day-2025-imagining-more-for-the-rare-disease-community/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/02/27143811/Ipsen_Rare-Disease-Day-2025_MyIpsen-Banner.png" alt="Rare Disease Day 2025: Imagining More for the Rare Disease Community " title="Rare Disease Day 2025: Imagining More for the Rare Disease Community " > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Rare Disease </button> <span class="time-stamp visible">01 March 2025</span> <span class="time-stamp visible">2 mins read</span> <div class="text-div"> <p class="text-div-para">Rare Disease Day 2025: Imagining More for the Rare Disease Community </p> <p>Every day, millions of people around the world face the immense challenges of living with a rare disease. For these individuals and their families, resilience is essential, and hope becomes a lifeline. Rare Disease Day is a moment to honour their courage, amplify their voices, and reaffirm our share</p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Imagining More for Rare Diseases: Reflections on the Path Ahead"> <a title="Imagining More for Rare Diseases: Reflections on the Path Ahead" href="https://www.ipsen.com/rare-diseases/imagining-more-for-rare-diseases-reflections-on-the-path-ahead/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/02/27143811/Ipsen_Rare-Disease-Day-2025_MyIpsen-Banner.png" alt="Imagining More for Rare Diseases: Reflections on the Path Ahead" title="Imagining More for Rare Diseases: Reflections on the Path Ahead" > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Rare Disease </button> <span class="time-stamp visible">27 February 2025</span> <span class="time-stamp visible">3 mins read</span> <div class="text-div"> <p class="text-div-para">Imagining More for Rare Diseases: Reflections on the Path Ahead</p> <p>An article by Josep Catlla, Executive Vice President, Chief Corporate Affairs Officer</p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Driving continuous progress in cancer care"> <a title="Driving continuous progress in cancer care" href="https://www.ipsen.com/oncology/driving-continuous-progress-in-cancer-care/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/02/03111612/Sandra-1.png" alt="Driving continuous progress in cancer care" title="Driving continuous progress in cancer care" > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Oncology </button> <span class="time-stamp visible">04 February 2025</span> <span class="time-stamp visible">1 mins read</span> <div class="text-div"> <p class="text-div-para">Driving continuous progress in cancer care</p> <p>While being diagnosed with cancer isn’t unique- around 20m people are diagnosed with cancer globally each year, and that number is projected to double in next 20 years—how it affects each person is. </p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Neuro Connections"> <a title="Neuro Connections" href="https://www.ipsen.com/neuroscience/neuro-connections/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/01/11181410/neuroconnections_1082x620px-1.png" alt="Neuro Connections" title="Neuro Connections" > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Neuroscience </button> <span class="time-stamp visible">24 January 2025</span> <span class="time-stamp visible">0 mins read</span> <div class="text-div"> <p class="text-div-para">Neuro Connections</p> <p>Watch our three-part vodcast series, Neuro Connections, developed in collaboration with the World Stroke Organization, where we discuss current post-stroke care challenges and potential solutions with global specialists, advocates and healthcare professionals. </p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Together for ALGS Awareness Day"> <a title="Together for ALGS Awareness Day" href="https://www.ipsen.com/rare-diseases/together-for-algs-awareness-day/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2025/01/14185549/Image1.jpg" alt="Together for ALGS Awareness Day" title="Together for ALGS Awareness Day" > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Rare Disease </button> <span class="time-stamp visible">22 January 2025</span> <span class="time-stamp visible">2 mins read</span> <div class="text-div"> <p class="text-div-para">Together for ALGS Awareness Day</p> <p>Only 1 in 30,000 children are born with ALGS each year. This January, we are standing with the Alagille Syndrome Alliance to help raise awareness of this rare cholestatic liver disease and be #ALGSAware.</p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Assessing the benefits of early intervention in post-stroke care "> <a title="Assessing the benefits of early intervention in post-stroke care " href="https://www.ipsen.com/neuroscience/assessing-the-benefits-of-early-intervention-in-post-stroke-care/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2024/12/16125856/S-SILVESTRI_Ipsen-com_1082x620pix.jpg" alt="Assessing the benefits of early intervention in post-stroke care " title="Assessing the benefits of early intervention in post-stroke care " > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Neuroscience </button> <span class="time-stamp visible">16 December 2024</span> <span class="time-stamp visible">2 mins read</span> <div class="text-div"> <p class="text-div-para">Assessing the benefits of early intervention in post-stroke care </p> <p>With over 12 million people a year experiencing a stroke globally and over 100 million living with the effects and consequences of stroke, the burden of stroke is high and set to increase.</p> </div> </div> </a> </div> <!-- product box-latest story listing--> <div class="product-box" aria-label="Advocating for babies with Biliary Atresia "> <a title="Advocating for babies with Biliary Atresia " href="https://www.ipsen.com/rare-diseases/advocating-for-babies-with-biliary-atresia/"> <!-- img-container --> <div class="p-img-container"> <div class="p-img"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2024/11/29180516/Ipsen.com-thumbnail.jpg" alt="Advocating for babies with Biliary Atresia " title="Advocating for babies with Biliary Atresia " > </div> </div> <!-- text-container --> <div class="p-box-text"> <button tabindex="-1" class="btn-link card-btn visible" style="background-color:#224a81;"> Rare Disease </button> <span class="time-stamp visible">30 November 2024</span> <span class="time-stamp visible">2 mins read</span> <div class="text-div"> <p class="text-div-para">Advocating for babies with Biliary Atresia </p> <p>Biliary Atresia (BA) is a rare liver disease that usually appears in the first month of a baby’s life.1 In this disease, the bile ducts in the liver may not develop as expected, or become obstructed shortly after birth, causing&#8230;</p> </div> </div> </a> </div> </div> </div> <div class="cta-block hidden"> </div> </section> <!-- Text & Media Block Code --> <section class="two-col-section text-media-section"> <div class="container two-section-innner "> <div class="response-inner" style="background-image: url('')"> <div class="row "> <div class="col-xs-12 col-sm-12 col-md-6"> <div class="img-video-section"> <img decoding="async" src="https://www.ipsen.com/websites/ipsen_com_v2/wp-content/uploads/2023/05/11100554/Module-5-%E2%80%93-discover-the-right-team_06_181206-602_Supply-Chain-Purchasing-scaled.jpg" alt="Media Image" title="Media Image"> </div> </div> <div class=" col-xs-12 col-sm-12 col-md-6"> <div class="section-content"> <div class="heading-dash"> </div> <p class="section-head-two"> Making clinical trials accessible and understandable </p> <p>We are committed to ensuring that all our published research is freely available to everyone. 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