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<h2>INTRODUCING MIABIS: STANDARDISING BIOBANK DATA SHARING</h2> <p>Welcome to MIABIS, the Minimum Information About Biobank data Sharing initiative! MIABIS is dedicated to standardising data elements used to describe biobanks, research on samples, and associated data. Our goal is to enhance interoperability among biobanks sharing their valuable data and samples.</p> <p>MIABIS Core 2.0, established by <a href="https://www.liebertpub.com/doi/abs/10.1089/bio.2015.0070" style="text-decoration:underline;">Merino-Martinez et al. in 2016</a>, defined general attributes at an aggregated/metadata level for describing biobanks, sample collections, and (research) studies. Building upon this foundation, new MIABIS components have been approved by BBMRI-ERIC to describe samples and sample donors at the individual level (<a href="https://www.liebertpub.com/doi/10.1089/bio.2019.0129" style="text-decoration:underline;">Eklund et al., 2020</a>). MIABIS Core was updated to version 3.0 by <a href="https://www.liebertpub.com/doi/full/10.1089/bio.2023.0074" style="text-decoration:underline;">Eklund et al. in 2024</a> including minimal information describing biobanks, (sample and data) collections, research resources (previously called studies) and networks – on aggregate level.</p> <p>Our terminology work follows the MIABIS governance model introduced by BBMRI-ERIC in 2016. This model organises MIABIS definition work into focused components, each with a predefined scope based on specific use cases and the involvement of experts in working groups. The finalisation of MIABIS components and their entities is subject to approval by the BBMRI-ERIC Management Committee.</p> <p>We foster collaboration through working groups composed of volunteer participants from BBMRI-ERIC National Nodes and domain experts. MIABIS is a dynamic initiative, that is constantly evolving to meet the needs of the biobanking community.</p> <p>For more detailed information and attribute tables, visit the <a href="https://github.com/BBMRI-ERIC/miabis/tree/master?tab=readme-ov-file#miabis-minimum-information-about-biobank-data-sharing" style="text-decoration:underline;">MIABIS GitHub page</a>. We invite you to join our efforts by emailing <strong><a href="mailto:miabis@lists.bbmri-eric.eu">miabis@lists.bbmri-eric.eu</a></strong>. If you encounter any issues or have suggestions, submit them on the <a href="https://github.com/BBMRI-ERIC/miabis/issues" style="text-decoration:underline;">MIABIS GitHub page</a> or write to us directly. – Together, let’s shape the future of biobank data sharing!</p> </div> </div> </div> <div class="clear"></div><div class="lc-text"> <div class="innerwrap"> <div class="trans"> <p><img fetchpriority="high" decoding="async" class="aligncenter wp-image-73601 size-full" src="https://www.bbmri-eric.eu/wp-content/uploads/miabis-erd-poster.png" alt="MIABIS Diagram" width="714" height="555" /></p> </div> </div> </div> <div class="clear"></div><div class="lc-text"> <div class="innerwrap"> <div class="leftblock"> <h2>THE MIABIS CORE</h2> <p><a href="https://github.com/BBMRI-ERIC/miabis/tree/master/00Core">MIABIS Core</a> is the essential foundation for initiating collaboration with biobanks and facilitating the exchange of biological samples and data. This framework sets out to harmonise attributes within biobanking and biomedical research, promoting the reuse of biological resources. Developed in accordance with epidemiological literature and terminology, <a href="https://github.com/BBMRI-ERIC/miabis/tree/master/00Core/V3">MIABIS Core 3.0</a> is the latest version, featuring 32 attributes organised in a modular structure for ease of adherence and extensibility.</p> <p>MIABIS Core focuses on four main entities: “<a href="https://github.com/BBMRI-ERIC/miabis/blob/master/00Core/V3/Data-describing-Biobank.md">Biobank</a>” “<a href="https://github.com/BBMRI-ERIC/miabis/blob/master/00Core/V3/Data-describing-Collection.md">Collection</a>” “<a href="https://github.com/BBMRI-ERIC/miabis/blob/master/00Core/V3/Data-describing-ResearchResource.md">Research Resource</a>” and “<a href="https://github.com/BBMRI-ERIC/miabis/blob/master/00Core/V3/Data-describing-Network.md">Network</a>“. These entities serve as key components, providing a standardised and comprehensive framework for describing essential elements within the biobanking ecosystem. By adhering to MIABIS Core, collaborators can ensure a consistent and efficient exchange of information, fostering seamless collaboration in the pursuit of advancing biomedical research.</p> </div> <div class="rightblock"> <h2>THE INDIVIDUAL-LEVEL COMPONENTS</h2> <div class=""><p>In complement to the MIABIS Core terminology, the MIABIS Individual-level components address the demand for more granular information f.e. on samples and sample donors. While the MIABIS Core terminology offers aggregated details on biobanks, sample and data collections, research resources, and networks, the Individual-level components extend this framework to include specific entities for detailed information on <a href="https://github.com/BBMRI-ERIC/miabis/tree/master/Sample%2BSampleDonor%2BEvent">samples, donors and events</a>.</p> <p>This enhancement allows for a more nuanced and sophisticated approach to queries, providing researchers and collaborators with the ability to delve into individual-level data. The components, including Sample, Sample Donor, and Event v1.0, have been meticulously developed (<a href="https://www.liebertpub.com/doi/10.1089/bio.2019.0129">Eklund et al., 2020</a>), offering a richer and more detailed perspective on biological samples and their donors within the MIABIS framework.</p> </div> </div> </div> </div> <div class="clear"></div><div class="lc-text"> <div class="innerwrap"> <div class="trans"> <p><strong>Additional components under active development – feel free to join our working groups <a href="mailto:miabis@lists.bbmri-eric.eu">miabis@lists.bbmri-eric.eu</a><br /> </strong></p> <ul> <li aria-level="1"><a href="https://github.com/BBMRI-ERIC/miabis/tree/master/DatasetTypes">Data describing Dataset Types</a> (to be including data describing image collections (<a href="https://eurradiolexp.springeropen.com/articles/10.1186/s41747-021-00214-4">Scapicchio et al., 2021</a>)) – on aggregate level</li> <li aria-level="1"><a href="https://github.com/BBMRI-ERIC/miabis/tree/master/BiobankServices">Data describing Biobank Services</a> – on aggregate level</li> <li aria-level="1"><a href="https://github.com/BBMRI-ERIC/miabis/tree/master/DigitalPathology">Data describing Digital Pathology</a> – on individual level</li> <li aria-level="1">Data describing SOPs (in preparation) – on aggregate level</li> </ul> </div> </div> </div> <div class="clear"></div> <div class="clear"></div> </div> <div class="bannerFooter bggrey container"> <div class="innerwrap"> <div class="bannerPartLeft"> <img src="https://www.bbmri-eric.eu/wp-content/themes/bbmri-eric/img/European-emblem-EU.png" alt="" class="footereulogo"> <img src="https://www.bbmri-eric.eu/wp-content/themes/bbmri-eric/img/bannerarrow.jpg" alt="" class="bannerarrow"> </div> <div class="bannerPartRight"> <div class="bannertext"> The website was co-funded within ADOPT BBMRI-ERIC, a project that has received funding from the European Union’s Horizon 2020 research and innovation programme under grant agreement No 676550. </div> </div> </div> </div> <footer id="footer"> <div class="innerwrap"> <div class="footerBlock1 footerblock"> <img src="https://www.bbmri-eric.eu/wp-content/themes/bbmri-eric/img/bbmri-eric-logo-ohnezusatz.png" alt="" class="logobottom"> <p>Neue Stiftingtalstrasse 2/B/6<br /> 8010 Graz, Austria</p> <p>Phone: <a href="tel:00433163499170">+43 316 34 99 170</a><br /> Fax: +43 316 34 99 17-99<br /> Mail: <a href="mailto:contact@bbmri-eric.eu">contact@bbmri-eric.eu</a></p> <p> </p> <p> </p> </div> <div class="footerBlock2 footerblock footerBlockfav"> <h3>Favourites</h3> <ul class="footerlinklist"> <li class=""> <a href="https://www.bbmri-eric.eu/about/" > About us </a> </li> <li class=""> <a href="https://www.bbmri-eric.eu/news-event/" > News & Events </a> </li> <li class=""> <a href="https://www.bbmri-eric.eu/publications/" > Publications </a> </li> </ul> </div> <div class="footerBlock3 footerblock footerBlockquicklinks"> </div> <div class="footerBlock4 footerblock"> <h3>Quicklinks</h3> <ul class="footerlinklist"> <li class=""> <a href="https://directory.bbmri-eric.eu/menu/main/app-molgenis-app-biobank-explorer/biobankexplorer" target=blank> Directory </a> </li> <li class=""> <a href="https://negotiator.bbmri-eric.eu/login.xhtml" target=blank> Negotiator </a> </li> <li class=""> <a href="https://www.bbmri-eric.eu/national-nodes/" > National Nodes </a> </li> </ul> </div> <div class="break"></div> <div class="findusblock footerBlock1 footerblock"> <h3>How to find us</h3> <form name="search_route" method="get" action="https://maps.google.com/" target="_blank"> <input name="saddr" type="text" id="saddr" placeholder="Your location..." class="footerinput"> <input name="daddr" type="hidden" id="daddr" value="Neue Stiftingtalstrasse 2/B/6, 8010 Graz , AUSTRIA"> <input type="image" id="footersubmit" class="footersubmit" name="submit" src="https://www.bbmri-eric.eu/wp-content/themes/bbmri-eric/img/arrow-left-hell.png" alt="find" /> </form> </div> <div class="newsletterblock footerBlock2 footerblock"> <h3>Newsletter sign-up</h3> <form method="get" id="newsletter" action="https://www.bbmri-eric.eu/" style="display:none;"> <div> <input type="text" value="" name="email" id="newsletterinput" class="footerinput" placeholder="Your E-Mail..." /> <input type="image" id="newslettersubmit" class="footersubmit" name="submit" src="https://www.bbmri-eric.eu/wp-content/themes/bbmri-eric/img/arrow-left-hell.png" alt="save" /> </div> </form> <script>(function() { window.mc4wp = window.mc4wp || { listeners: [], forms: { on: function(evt, cb) { window.mc4wp.listeners.push( { event : evt, callback: cb } ); 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