Ouvrir la Science - Qualit茅 des bases de donn茅es en sant茅

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lang-item-5 lang-item-en"><a lang="en-GB" hreflang="en-GB" href="https://www.ouvrirlascience.fr/the-quality-of-health-databases/">EN</a></li> <li class="loupe"> <a href="https://www.ouvrirlascience.fr/recherche"> <img src="https://www.ouvrirlascience.fr/wp-content/themes/coso2021/images/loupe.svg" aria-label="Recherche" alt=""> </a> </li> </ul> </div> </nav> </div> </header> <main role="main"> <div id="breadcrumb" class="padding-left-right background-blanc"> </div> <div id="breadcrumb" class="padding-left-right"> <a href="https://www.ouvrirlascience.fr/accueil/">Accueil</a> > <a href="/category/groupes">Projets</a> > Qualit茅 des bases de donn茅es en sant茅 </div> <div id="projectSingle" class="padding-left-right background-blanc"> <div class="textProjets"> <div class="projectTitle"> <h1 >Qualit茅 des bases de donn茅es en sant茅</h1> </div> <div class="projectThemes flexRow"> <div class="projetTheme font12">Donn茅es de la recherche</div> <div class="projetTheme font12">Evaluation</div> </div> <div class="projectSingleResume font20"> Favoriser la qualit茅 et le partage des bases de donn茅es dans le cadre de projets de recherche et d鈥檌nnovation en sant茅. </div> <div class="moreProject" id="moreProject"> Lire Plus </div> <div class="moreProject noshowProjectButton" id="lessProject"> Voir moins </div> <script> $('#moreProject').click(function(){ $( "#projectSingleContent" ).removeClass('noshowProject'); $( "#moreProject" ).addClass('noshowProjectButton'); $( "#lessProject" ).toggleClass('noshowProjectButton'); }); $('#lessProject').click(function(){ $( "#projectSingleContent" ).toggleClass('noshowProject'); $( "#moreProject" ).toggleClass('noshowProjectButton'); $( "#lessProject" ).toggleClass('noshowProjectButton'); }); </script> <div id="projectSingleContent" class="noshowProject"> <p>De nombreuses 茅quipes et organisations investissent de mani猫re importante dans la constitution de bases de donn茅es 脿 des fins de recherche (registres des agences sanitaires, cohortes de recherche, entrep么ts hospitaliers, etc.). Ces bases ont d鈥檃utant plus d鈥檌nt茅r锚t qu鈥檈lles sont de plus en plus partag茅es pour dynamiser la recherche et mieux valoriser les investissements.</p> <p>La qualit茅 des donn茅es est un des piliers de cette valorisation. La dimension quantitative ne pourrait suffire. Les risques li茅s 脿 l鈥檃bsence de qualit茅 des donn茅es, 脿 leur diffusion et leur utilisation sont de nature d茅cisionnelle, m茅diatique et sociale, scientifique, et/ou industrielle. Dans son rapport <a href="https://www.has-sante.fr/upload/docs/application/pdf/2019-07/rapport_analyse_prospective_20191.pdf" target="_blank" rel="noopener">Num茅rique, quelle (R)茅volution </a>publi茅 en 2019, la Haute Autorit茅 de Sant茅 (HAS) souligne d鈥檃illeurs que dans le domaine de l鈥檌ntelligence artificielle et plus largement du num茅rique sant茅, l鈥櫭﹖hique impose des algorithmes minimisant les biais.</p> <p>Le groupe de travail a comme objectif l鈥櫭﹍aboration d鈥檜n outil d鈥檃uto-茅valuation pour identifier les points forts et les points faibles de la gestion de la qualit茅 et du partage des donn茅es<b>. </b>Il propose une m茅thodologie pour d茅crire leur qualit茅 et 茅clairer les chercheurs et les industriels qui souhaitent les exploiter. Elle pourrait 锚tre utilis茅e dans des projets en cours de d茅ploiement pour favoriser le partage tels que Heath Data Hub, France Cohortes, catalogues de laboratoires pharmaceutiques, etc.</p> </div> </div> <div class="roadMap flexRow"> <div class="projectDate flexColumn"> <div class="dateprojet"> Date d茅but </div> <div class="dateyear"> 2021 </div> </div> </div> <div id="projectMenu"class="flexrow"> <div class="menuItem" id="menuItem-1">Missions</div> <div class="menuItem" id="menuItem-3">Productions associ茅es</div> <div class="menuItem" id="menuItem-4">L'茅quipe</div> </div> <form class="choiceProject"> <select name="menuchoice" id="menuchoice"> <option value="menuITem-1">Missions</option> <option value="menuITem-3">Productions associ茅es</option> <option value="menuItem-4">L'茅quipe</option> </select> </form> <div id="projectItem"> <div class="menuContent" id="menuContent-1"> <div class="projectObjectives"> <ul> <li>Proposer un questionnaire permettant une auto-茅valuation de la gestion de la qualit茅 pour les responsables de bases de donn茅es en sant茅</li> </ul> </div> </div> <div class="menuContent" id="menuContent-3"> <div class="docsList flexRow"> <div class="document background-jaune" id="doc-15986" data-number="1" data-nature="" data-axe="donnees" data-theme="evaluation" data-year="2022" data-valid="coso" > <a href="https://www.ouvrirlascience.fr/questionnaire-dauto-evaluation-de-la-gestion-de-la-qualite-dune-base-de-donnees-en-sante-pour-le-partage-a-des-fins-de-recherche/" class="documentItem"> <div class="docHeader"> </div> <div class="docCadre"> <img src="https://www.ouvrirlascience.fr/wp-content/uploads/2023/09/coquillettes-1-212x300-1.png" alt="Auto-茅valuation de la qualit茅 d鈥檜ne base de donn茅es en sant茅" class="imgContain"/> <div class="docTitleCoquillette"> Auto-茅valuation de la qualit茅 d鈥檜ne base de donn茅es en sant茅 </div> </div> <div class="docDate font13"> 2022 </div> </a> </div> </div> </div> <div class="menuContent" id="menuContent-4"> <div class="projectPilotes"> <div class="projectTeamPresentation"> Pilotes </div> <div class="projectPiloteText flexRow"> <div class="pilote"> <div class="pilotePhoto"> <img src="https://www.ouvrirlascience.fr/wp-content/uploads/2022/06/Photo_Yohann-Foucher.jpg" alt="photo Yohann Foucher"> </div> <div class="piloteName"> <a href="?menu=4#integratedPilote-yohann-foucher" onclick="onclick_page(event);">Yohann Foucher</a> </div> <div class="piloteDescription"> Charg茅 de mission 芦 Donn茅es de Sant茅禄, minist猫re de l始Enseignement sup茅rieur, de la Recherche et de l始Innovation </div> <div id="integratedPilote-yohann-foucher" class="modalDialog"> <div class="flexColumn"> <div class="modalHeader"> <div class="modalClose"> <a href="#close" title="Close" class="close" onclick="close_page(event);">Retour</a> </div> <div class="printPilote" id="pilote-15791" onclick="printDiv(15791);"></div> </div> <div class="piloteBreadcrumb"> <a href="https://www.ouvrirlascience.fr">Accueil</a> > <a href="/category/groupes">Projets</a> > <a href="/"></a> > Yohann Foucher </div> <div class="modalContent" id="printModale-15791"> <div id="piloteLeft"> <div class="piloteLeftImg"> <img src="https://www.ouvrirlascience.fr/wp-content/uploads/2022/06/Photo_Yohann-Foucher.jpg" alt="photo Yohann Foucher"> </div> <div class="piloteName"> Yohann Foucher </div> <div class="piloteDescription"> Charg茅 de mission 芦 Donn茅es de Sant茅禄, minist猫re de l始Enseignement sup茅rieur, de la Recherche et de l始Innovation </div> <div class="piloteData"> <img src="https://www.ouvrirlascience.fr/wp-content/themes/coso2021/images/mail.svg" alt=""> <a href="mailto:Yohann.Foucher@recherche.gouv.fr">Yohann.Foucher@recherche.gouv.fr</a> </div> <div class="piloteData"> <a href=" www.linkedin.com/in/yohann-foucher/" target="_blank"> <img src="https://www.ouvrirlascience.fr/wp-content/themes/coso2021/images/linkedin.svg" alt="linkedin"> </a> </div> <div class="piloteDataColor"> <a href=" https://orcid.org/0000-0003-0330-7457" target="_blank">ORCID</a> </div> </div> <div id="piloteRight"> <p>Yohann Foucher est enseignant-chercheur en Biostatistique. Ses activit茅s de recherche concernent principalement la mod茅lisation des donn茅es de sant茅 de vie r茅elle, que ce soit pour des 茅tudes pr茅dictives ou causales. Il est auteur de plus de 99 publications scientifiques dans ce domaine. En parall猫le, il est charg茅 de mission au minist猫re de l’Enseignement sup茅rieur, de la Recherche et de l’Innovation (MESRI) pour les questions relatives aux donn茅es de sant茅 et 脿 la sant茅 num茅rique.</p> </div> </div> </div> </div> </div> </div> </div> <div class="projectMembers"> <div class="projectTeamPresentation"> Membres </div> <div class="projectTeamText"> <ul> <li><strong> Emmanuel BACRY</strong> (Directeur scientifique, Health Data Hub)</li> <li><strong>Christophe BONALDI</strong> (Statisticien, Sant茅 Publique France)</li> <li><strong>Philippe-Jean BOUSQUET</strong> (Directeur de la Direction Observation, Science des donn茅es, 脡valuation, INCA)</li> <li><strong>Paulo CARITA</strong> (脡conomie de la sant茅, Sanofi)</li> <li><strong>Romain CASEY</strong> (Docteur en 茅pid茅miologie, Observatoire Fran莽ais de la Scl茅rose en Plaques)</li> <li><strong>Marcel GOLDBERG</strong> (脡pid茅miologiste, cohorte Constances, INSERM)</li> <li><strong>Emilie LANOY</strong> (Statisticienne, Institut Gustave Roussy)</li> <li><strong>Laurie LEVY-BACHELOT</strong> (Directrice des 茅tudes en vie r茅elle, MSD)</li> <li><strong>Marie ZINS</strong> (脡pid茅miologiste, cohorte Constances, INSERM)</li> </ul> </div> </div> </div> </div> </div> <div id="saisir" class="padding-left-right"> <div class="saisirDisplay flexRow"> <div class="saisirText">Une suggestion, une question 脿 nous faire remonter ?</div> <div class="saisirLinks flexColumn"> <a href="https://www.ouvrirlascience.fr/contact-fr" class="seeCategoryLong"> saisir le comit茅 </a> </div> </div> </div> <div class="linkServices background-blanc padding-left-right"> <div class="services"> <a href="https://www.ouvrirlascience.fr/category/blog"> <div class="rectangle rectangleBlog background-jaune flexColumn"> <div class="serviceBlogContent"> Blog </div> </div> <div class="serviceTitle"> Blog </div> <div class="serviceSlogan"> Lire les derniers articles </div> </a> </div> <div class="services"> <a 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