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There are around 2,000 Australians living with MND, and 2 people die from the disease every day."> <meta property="fb:app_id" content="663948653737735"> <meta property="og:title" content="Nursing Care of Motor Neurone Disease (MND) | Ausmed"> <meta property="og:type" content="website"> <meta property="og:url" content="https://www.ausmed.com/learn/articles/nursing-care-of-patients-with-motor-neuron-disease"> <meta property="og:image" content="https://ausmed-images.s3.ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20150708_cover2.jpg"> <meta property="og:description" content="The term motor neurone disease (MND) refers to a group of progressive neurological diseases that attack motor neurons in the body, eventually causing the muscles to waste away. To date, there is no known cure or effective treatment for MND. 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_nghost-ausmed-cpd-state-c1746938471></ui-streamline-icon><span _ngcontent-ausmed-cpd-state-c4044900820>Share</span></button></div><div _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__title"><h1 _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__h1">Nursing Care of Motor Neurone Disease (MND)</h1><div _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__image"><img class="img-fluid w-100 h-100" src="https://ausmed-images.s3.ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20150708_cover2.jpg" alt="Cover image for: Nursing Care of Motor Neurone Disease (MND)"></div></div><div _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__meta"><div _ngcontent-ausmed-cpd-state-c4044900820 class="cpd-badge-bg"><cpd-badge _ngcontent-ausmed-cpd-state-c4044900820 size="sm" _nghost-ausmed-cpd-state-c3257604799><div _ngcontent-ausmed-cpd-state-c3257604799 class="cpd-display cpd-display-sm"><div _ngcontent-ausmed-cpd-state-c3257604799 class="cpd-display-item"><div _ngcontent-ausmed-cpd-state-c3257604799>CPDTime.</div></div><div _ngcontent-ausmed-cpd-state-c3257604799 class="cpd-display-count">8m</div></div></cpd-badge></div><span _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__meta-item"> Updated 05 Oct 2023 </span></div><div _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__actions"><app-backdrop-spotlight _nghost-ausmed-cpd-state-c4169711516><div _ngcontent-ausmed-cpd-state-c4169711516><button role="button" id="headerCPDBtn" class="btn-primary mr-sm-2"><ui-streamline-icon name="add" size="f-caption" theme="bold" class="sl-icon sl-btn-icon" _nghost-ausmed-cpd-state-c1746938471></ui-streamline-icon> Document (it's free) </button></div></app-backdrop-spotlight></div><div _ngcontent-ausmed-cpd-state-c4044900820 class="resource-detail-header__bg"><img width="140%" style="margin: -3rem;" src="https://ausmed-images.s3.ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20150708_cover2.jpg"></div></div></resource-detail-shared-header><div class="d-flex flex-column flex-xl-row gap-7 mt-6 mb-6 mb-lg-7"><article class="mt-3 mx-7 mx-md-11 mx-xl-6"><section><div longcontentevent class="page-article--document"></div><div><p style="font-size:20px">General awareness of <strong>motor neurone disease (MND)</strong> rose quickly after the Ice Bucket Challenge went viral in 2014.</p> <p>How has the management of this condition advanced since then?</p> <p>The term MND refers to a group of <strong>progressive neurological diseases that attack motor neurons in the body</strong>, eventually causing the muscles to waste away (Healthdirect 2022; QBI 2023).</p> <p>To date, there is no known cure or effective treatment for MND. There are around 2,000 Australians living with MND, and 2 people die from the disease every day (QBI 2019).</p> <p>MND causes simple limb movements, swallowing, talking, and even breathing to become increasingly difficult (Better Health Channel 2021).</p> <h2>What Causes Motor Neurone Disease?</h2> <p>The cause of MND remains relatively unknown.</p> <p>Researchers have found that hereditary factors account for around 5 to 10% of cases, but most cases remain unidentified. Current research into this area is looking at not only genetic factors, but also nerve growth factors, the repair and ageing of motor neurons, and immune-mediated damage, as well as viruses, toxins, and chemical interactions with nerve cell control and communication (Better Health Channel 2021).</p> <figure> <center><img src="https://ausmed-images.s3-ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20201007_r_body_V2.jpg" alt="motor neurone disease diagram"> </center> </figure> <h2>Risk Factors for Motor Neurone Disease</h2> <p>MND affects both adults and children. In children, MND is often genetic, and the symptoms are usually present at birth or appear in early childhood. In adults, the symptoms often appear after the age of 50 (NINDS 2020). It appears to be more common in males than in females (QBI 2019).</p> <h2>Symptoms of Motor Neurone Disease</h2> <p>MND is a progressive condition that gradually worsens. Symptoms may begin unilaterally before spreading (Healthdirect 2022).</p> <p>Symptoms might include:</p> <ul> <li>Aching, cramping or twitching muscles</li> <li>Clumsiness and stumbling</li> <li>Weakness in the arms, legs, hands and voice</li> <li>Slurred speech</li> <li>Difficulty chewing and swallowing</li> <li>Fatigue</li> <li>Muscle wastage</li> <li>Weight loss</li> <li>Emotional lability (exaggerated mood changes)</li> <li>Respiratory issues.</li> </ul> <p><small>(Better Health Channel 2021)</small></p> <h2>Complications of Motor Neuron Disease</h2> <p><strong>The average life expectancy of someone with MND is 27 months from diagnosis</strong> (QBI 2019). In addition to physical symptoms, up to 50% of people living with MND will also display changes in their cognition, language, behaviour and personality as the disease progresses (Better Health Channel 2021).</p> <p>Due to the physical effects of MND, patients may become dependent on others for all aspects of their day-to-day life - from mobility to eating (Better Health Channel 2021).</p> <p>People with MND may also experience pain, constipation, pressure injuries, psychological distress and other difficulties (Leeds Teaching Hospitals NHS Trust n.d.).</p> <p>The most common cause of death among people with MND is respiratory failure (MND Australia 2021a).</p> <h2>Diagnosing Motor Neuron Disease</h2> <p>There is no single diagnostic test for MND, but a combination of the following may be used:</p> <ul> <li>Electromyography (EMG)</li> <li>Nerve conduction studies</li> <li>MRI scan</li> <li>Blood tests</li> <li>Lumbar puncture</li> <li>Muscle biopsy.</li> </ul> <p><small>(MND Australia 2021b)</small></p> <h2>The Nurse’s Role</h2> <p>The nurse’s role becomes increasingly important as MND progresses and patients may require increasing support and assistance for their day-to-day activities. The nurse will also be a member of the interprofessional team caring for the person if the individual is hospitalised.</p> <p>As a nurse, you will need to be aware of the potential complications of the disease’s progression - such as aspiration - and ensure care is targeted to prevent these complications from eventuating. This could be as simple as ensuring the patient is sitting upright when eating.</p> <p>The carers of those with MND may struggle with the physical and emotional demands and stress from their role, so be considerate to the needs of carers and support them during the disease’s progression.</p> <h2>Treatment of Motor Neuron Disease</h2> <p>Although MND is currently incurable, some medicines are effective in helping patients remain in the milder stages of the disease for longer, possibly prolonging their survival by two to three months. Symptoms can also be managed with the help of an interprofessional healthcare team who assists with interventions to improve quality of life during the disease’s progression (QBI 2023).</p> <h2>Current Research</h2> <figure> <center><img src="https://cdn.ausmed.com/ausmed-blog-images/2015/07/20150708-image2.jpg" alt="ice bucket challenge"> </center> </figure> <p>Current research focuses on a multitude of areas within MND - from what causes it, to how to treat it. Funding is essential to ensure this research continues.</p> <p>No doubt we’ve all heard about - or perhaps even participated in - the Ice Bucket Challenge. This particular initiative raised more than $115 million dollars (USD) for MND worldwide in 2014. Research funded by this campaign has already led to the identification of the gene NEK1, which is associated with about 3% of MND cases (Rogers 2016).</p></div><resource-detail-overview _nghost-ausmed-cpd-state-c3044419385><div _ngcontent-ausmed-cpd-state-c3044419385 class="d-flex flex-column gap-7"><section _ngcontent-ausmed-cpd-state-c3044419385></section><section _ngcontent-ausmed-cpd-state-c3044419385><h3 _ngcontent-ausmed-cpd-state-c3044419385 class="mt-0 mb-3"> Topics <a _ngcontent-ausmed-cpd-state-c3044419385 href="/learn/all-topics"><ui-streamline-icon _ngcontent-ausmed-cpd-state-c3044419385 name="arrow-right-1" theme="bold" size="f-caption" color="text-neutral-700" class="ml-1" _nghost-ausmed-cpd-state-c1746938471></ui-streamline-icon></a></h3><resource-topics _ngcontent-ausmed-cpd-state-c3044419385 class="resource-topics" _nghost-ausmed-cpd-state-c2546394269><button _ngcontent-ausmed-cpd-state-c2546394269 class="btn btn-sm topic__container border-neutral-300"><div _ngcontent-ausmed-cpd-state-c2546394269 class="fw-medium f-small">Disability</div></button><button _ngcontent-ausmed-cpd-state-c2546394269 class="btn btn-sm topic__container border-neutral-300"><div _ngcontent-ausmed-cpd-state-c2546394269 class="fw-medium f-small">Chronic Illness</div></button><button _ngcontent-ausmed-cpd-state-c2546394269 class="btn btn-sm topic__container border-neutral-300"><div _ngcontent-ausmed-cpd-state-c2546394269 class="fw-medium f-small">Neurology</div></button></resource-topics></section><section _ngcontent-ausmed-cpd-state-c3044419385 class="d-flex flex-column gap-4"><div class="d-flex flex-column border border-neutral-300" style="border-radius: 0.5rem;"><div class="d-flex flex-row align-items-center justify-content-between p-4"><h3 class="mb-0">References</h3><div><ui-streamline-icon name="arrow-down-1" theme="bold" size="f-paragraph" _nghost-ausmed-cpd-state-c1746938471></ui-streamline-icon></div></div><div class="p-4" hidden><div></div><div><ul class="list-group list-group-references"> <li class="list-group-item">Better Health Channel 2021, <em>Motor Neurone Disease (MND)</em>, Victoria State Government, viewed 3 October 2023, <a href="https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/motor-neurone-disease" target="_blank">https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/motor-neurone-disease</a></li> <li class="list-group-item">Healthdirect 2022, <em>Motor Neurone Disease (MND)</em>, Australian Government, viewed 3 October 2023, <a href="https://www.healthdirect.gov.au/motor-neurone-disease-mnd" target="_blank">https://www.healthdirect.gov.au/motor-neurone-disease-mnd</a></li> <li class="list-group-item">Leeds Teaching Hospitals NHS Trust n.d., <em>How Symptoms of MND Are Managed</em>, National Health Service, viewed 3 October 2023, <a href="https://www.leedsth.nhs.uk/a-z-of-services/leeds-motor-neurone-disease-mnd-care-centre/your-condition-and-treatment/how-symptoms-of-mnd-are-managed/" target="_blank">https://www.leedsth.nhs.uk/a-z-of-services/leeds-motor-neurone-disease-mnd-care-centre/your-condition-and-treatment/how-symptoms-of-mnd-are-managed/</a></li> <li class="list-group-item">MND Australia 2021b, <em>Diagnosing MND</em>, MND Australia, viewed 3 October 2023, <a href="https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/diagnosing-mnd" target="_blank">https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/diagnosing-mnd</a></li> <li class="list-group-item">MND Australia 2021a, <em>Supporting End of Life</em>, MND Australia, viewed 3 October 2023, <a href="https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/end-of-life" target="_blank">https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/end-of-life</a></li> <li class="list-group-item">Queensland Brain Institute 2023, <em>Motor Neuron Disease (MND)</em>, The University of Queensland, viewed 3 October 2023, <a href="https://qbi.uq.edu.au/brain/brain-diseases/motor-neurone-disease" target="_blank">https://qbi.uq.edu.au/brain/brain-diseases/motor-neurone-disease</a></li> <li class="list-group-item">Queensland Brain Institute 2019, <em>Motor Neuron Disease (MND) Facts and Figures</em>, The University of Queensland, viewed 3 October 2023, <a href="https://qbi.uq.edu.au/brain/brain-diseases-and-disorders/motor-neurone-disease/motor-neurone-disease-mnd-facts-and-figures" target="_blank">https://qbi.uq.edu.au/brain/brain-diseases-and-disorders/motor-neurone-disease/motor-neurone-disease-mnd-facts-and-figures</a></li> <li class="list-group-item">Rogers, K 2016, ‘The ‘Ice Bucket Challenge’ Helped Scientists Discover a New Gene Tied to A.L.S.’, <em>The New York Times</em>, 27 July, viewed 3 October 2023, <a href="https://www.nytimes.com/2016/07/28/health/the-ice-bucket-challenge-helped-scientists-discover-a-new-gene-tied-to-als.html" target="_blank">https://www.nytimes.com/2016/07/28/health/the-ice-bucket-challenge-helped-scientists-discover-a-new-gene-tied-to-als.html</a></li> </ul></div></div></div><div class="d-flex flex-column border border-neutral-300" style="border-radius: 0.5rem;"><div class="d-flex flex-row align-items-center justify-content-between p-4"><h3 class="mb-0">Additional Resources</h3><div><ui-streamline-icon name="arrow-down-1" theme="bold" size="f-paragraph" _nghost-ausmed-cpd-state-c1746938471></ui-streamline-icon></div></div><div class="p-4" hidden><div></div><div><ul class="list-group"> <li class="list-group-item"><a href="https://www.mndaustralia.org.au/" target="_blank">MND Australia</a></li> </ul></div></div></div></section></div></resource-detail-overview><section class="mb-4"><learning-assessment _nghost-ausmed-cpd-state-c1282328874><div _ngcontent-ausmed-cpd-state-c1282328874 class="d-flex flex-column border border-neutral-300 p-4" style="border-radius: 0.5rem;"><div _ngcontent-ausmed-cpd-state-c1282328874 class="d-flex align-items-sm-center flex-column flex-sm-row justify-content-between"><div _ngcontent-ausmed-cpd-state-c1282328874 class="d-block d-sm-flex align-items-center order-2 order-md-1"><h3 _ngcontent-ausmed-cpd-state-c1282328874 class="mr-sm-2">Test Your Knowledge</h3></div><p _ngcontent-ausmed-cpd-state-c1282328874 class="f-4 mb-0 d-flex justify-content-end text-neutral-800 fw-normal order-1 order-md-2">Question 1 of 3</p></div><div _ngcontent-ausmed-cpd-state-c1282328874 class="mt-4"><p _ngcontent-ausmed-cpd-state-c1282328874 class="f-4 mb-4 fw-normal text-dark">True or false: Most cases of motor neurone disease have no identified cause.</p><div _ngcontent-ausmed-cpd-state-c1282328874><div _ngcontent-ausmed-cpd-state-c1282328874 class="form-check"><input _ngcontent-ausmed-cpd-state-c1282328874 type="radio" name="mcqRadios" class="form-check-input" id="0opt0" value="True"><label _ngcontent-ausmed-cpd-state-c1282328874 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"position": 1, "item": { "@id": "https://www.ausmed.com", "name": "Home" } }, { "@type": "ListItem", "position": 2, "item": { "@id": "https://www.ausmed.com/learn", "name": "Online CPD" } }, { "@type": "ListItem", "position": 3, "item": { "@id": "https://www.ausmed.com/learn/articles", "name": "Articles" } }, { "@type": "ListItem", "position": 4, "item": { "@id": "https://www.ausmed.com/learn/articles/nursing-care-of-patients-with-motor-neuron-disease", "name": "Nursing Care of Motor Neurone Disease (MND)" } } ] }</script></json-ld><json-ld><script type="application/ld+json">{ "@context": "https://schema.org", "@type": "Article", "mainEntityOfPage": { "@type": "WebPage", "@id": "https://www.ausmed.com/learn/articles/nursing-care-of-patients-with-motor-neuron-disease" }, "name": "Nursing Care of Motor Neurone Disease (MND)", "headline": "Nursing Care of Motor Neurone Disease (MND)", "image": [ "https://ausmed-images.s3.ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20150708_cover2.jpg" ], "author": [ { "@type": "Person", "name": "Sally Moyle" } ], "description": "The term motor neurone disease (MND) refers to a group of progressive neurological diseases that attack motor neurons in the body, eventually causing the muscles to waste away. \nTo date, there is no known cure or effective treatment for MND. There are around 2,000 Australians living with MND, and 2 people die from the disease every day.", "datePublished": "2023-10-04T14:00:00.000Z", "url": "https://www.ausmed.com/learn/articles/nursing-care-of-patients-with-motor-neuron-disease", "publisher": { "@type": "Organization", "name": "Ausmed Education Pty Ltd", "logo": { "@type": "ImageObject", "url": "https://www.ausmed.com/images/full-colour-logo.png" } } }</script></json-ld></article-detail></div></div></ng-component></div><site-footer _nghost-ausmed-cpd-state-c1314779409><div _ngcontent-ausmed-cpd-state-c1314779409 id="site-footer" class="site-footer"><div _ngcontent-ausmed-cpd-state-c1314779409 class="page-content page-content--lg px-0 px-md-4 py-4"><div _ngcontent-ausmed-cpd-state-c1314779409 class="container-fluid"><div _ngcontent-ausmed-cpd-state-c1314779409 class="site-footer__inner"><section _ngcontent-ausmed-cpd-state-c1314779409 class="footer-section footer-section--top"><a _ngcontent-ausmed-cpd-state-c1314779409 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(MND)","activityType":"blog","min":8,"categories":["a29df85e-01a7-4d64-bfc6-456297399907","720dbc81-0555-402b-af7b-231f805bef0e"],"topics":["da8c28f9-49cc-4314-8fb3-6b4262acdee2","187f0dd2-05b7-40cb-8fa3-6c7edd1e247d","2e1536a3-01f6-44e8-9b2c-dd384db362d2"],"keywords":["Disability","Chronic Illness","Neurology"],"professions":["Nurse Practitioner","Other","Registered Nurse","Enrolled Nurse","Non-Practising","Student Nurse or Midwife"],"educatorNames":["Sally Moyle"],"createDate":"2015-07-07T10:45:11.000Z","updateDate":"2023-10-05T01:30:01.000Z","availableDate":"2023-10-04T14:00:00.000Z","expiryDate":"2025-10-04T14:00:00.000Z","ausmedGoals":["035d035a-723b-4ca9-828f-3c27722534ca"],"bundles":["33cce188-ee06-4ac8-a185-82c4efd472ba"],"blogDetail":{"resourceID":"efc5b1ac-9563-4717-b8cb-d3a23eb84f33","status":"Published","providerName":"Ausmed Education","website":"https://www.ausmed.com/articles/nursing-care-of-patients-with-motor-neuron-disease/","content":"\u003Cp style=\"font-size:20px\">General awareness of \u003Cstrong>motor neurone disease (MND)\u003C/strong> rose quickly after the Ice Bucket Challenge went viral in 2014.\u003C/p>\n\n\u003Cp>How has the management of this condition advanced since then?\u003C/p>\n\n\u003Cp>The term MND refers to a group of \u003Cstrong>progressive neurological diseases that attack motor neurons in the body\u003C/strong>, eventually causing the muscles to waste away (Healthdirect 2022; QBI 2023).\u003C/p>\n\n\u003Cp>To date, there is no known cure or effective treatment for MND. There are around 2,000 Australians living with MND, and 2 people die from the disease every day (QBI 2019).\u003C/p>\n\n\u003Cp>MND causes simple limb movements, swallowing, talking, and even breathing to become increasingly difficult (Better Health Channel 2021).\u003C/p>\n\n\u003Ch2>What Causes Motor Neurone Disease?\u003C/h2>\n\n\u003Cp>The cause of MND remains relatively unknown.\u003C/p>\n\n\u003Cp>Researchers have found that hereditary factors account for around 5 to 10% of cases, but most cases remain unidentified. Current research into this area is looking at not only genetic factors, but also nerve growth factors, the repair and ageing of motor neurons, and immune-mediated damage, as well as viruses, toxins, and chemical interactions with nerve cell control and communication (Better Health Channel 2021).\u003C/p>\n\n\u003Cfigure>\n\u003Ccenter>\u003Cimg src=\"https://ausmed-images.s3-ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20201007_r_body_V2.jpg\" alt=\"motor neurone disease diagram\">\n\u003C/center>\n\u003C/figure>\n\n\u003Ch2>Risk Factors for Motor Neurone Disease\u003C/h2>\n\n\u003Cp>MND affects both adults and children. In children, MND is often genetic, and the symptoms are usually present at birth or appear in early childhood. In adults, the symptoms often appear after the age of 50 (NINDS 2020). It appears to be more common in males than in females (QBI 2019).\u003C/p>\n\n\u003Ch2>Symptoms of Motor Neurone Disease\u003C/h2>\n\n\u003Cp>MND is a progressive condition that gradually worsens. Symptoms may begin unilaterally before spreading (Healthdirect 2022).\u003C/p>\n\n\u003Cp>Symptoms might include:\u003C/p>\n\n\u003Cul>\n\t\u003Cli>Aching, cramping or twitching muscles\u003C/li>\n\t\u003Cli>Clumsiness and stumbling\u003C/li>\n\t\u003Cli>Weakness in the arms, legs, hands and voice\u003C/li>\n\t\u003Cli>Slurred speech\u003C/li>\n\t\u003Cli>Difficulty chewing and swallowing\u003C/li>\n\t\u003Cli>Fatigue\u003C/li>\n\t\u003Cli>Muscle wastage\u003C/li>\n\t\u003Cli>Weight loss\u003C/li>\n\t\u003Cli>Emotional lability (exaggerated mood changes)\u003C/li>\n\t\u003Cli>Respiratory issues.\u003C/li>\n\u003C/ul>\n\n\u003Cp>\u003Csmall>(Better Health Channel 2021)\u003C/small>\u003C/p>\n\n\u003Ch2>Complications of Motor Neuron Disease\u003C/h2>\n\n\u003Cp>\u003Cstrong>The average life expectancy of someone with MND is 27 months from diagnosis\u003C/strong> (QBI 2019). In addition to physical symptoms, up to 50% of people living with MND will also display changes in their cognition, language, behaviour and personality as the disease progresses (Better Health Channel 2021).\u003C/p>\n\n\u003Cp>Due to the physical effects of MND, patients may become dependent on others for all aspects of their day-to-day life - from mobility to eating (Better Health Channel 2021).\u003C/p>\n\n\u003Cp>People with MND may also experience pain, constipation, pressure injuries, psychological distress and other difficulties (Leeds Teaching Hospitals NHS Trust n.d.).\u003C/p>\n\n\u003Cp>The most common cause of death among people with MND is respiratory failure (MND Australia 2021a).\u003C/p>\n\n\u003Ch2>Diagnosing Motor Neuron Disease\u003C/h2>\n\n\u003Cp>There is no single diagnostic test for MND, but a combination of the following may be used:\u003C/p>\n\n\u003Cul>\n\t\u003Cli>Electromyography (EMG)\u003C/li>\n\t\u003Cli>Nerve conduction studies\u003C/li>\n\t\u003Cli>MRI scan\u003C/li>\n\t\u003Cli>Blood tests\u003C/li>\n\t\u003Cli>Lumbar puncture\u003C/li>\n\t\u003Cli>Muscle biopsy.\u003C/li>\n\u003C/ul>\n\n\u003Cp>\u003Csmall>(MND Australia 2021b)\u003C/small>\u003C/p>\n\n\u003Ch2>The Nurse’s Role\u003C/h2>\n\n\u003Cp>The nurse’s role becomes increasingly important as MND progresses and patients may require increasing support and assistance for their day-to-day activities. The nurse will also be a member of the interprofessional team caring for the person if the individual is hospitalised.\u003C/p>\n\n\u003Cp>As a nurse, you will need to be aware of the potential complications of the disease’s progression - such as aspiration - and ensure care is targeted to prevent these complications from eventuating. This could be as simple as ensuring the patient is sitting upright when eating.\u003C/p>\n\n\u003Cp>The carers of those with MND may struggle with the physical and emotional demands and stress from their role, so be considerate to the needs of carers and support them during the disease’s progression.\u003C/p>\n\n\u003Ch2>Treatment of Motor Neuron Disease\u003C/h2>\n\n\u003Cp>Although MND is currently incurable, some medicines are effective in helping patients remain in the milder stages of the disease for longer, possibly prolonging their survival by two to three months. Symptoms can also be managed with the help of an interprofessional healthcare team who assists with interventions to improve quality of life during the disease’s progression (QBI 2023).\u003C/p>\n\n\u003Ch2>Current Research\u003C/h2>\n\n\u003Cfigure>\n\u003Ccenter>\u003Cimg src=\"https://cdn.ausmed.com/ausmed-blog-images/2015/07/20150708-image2.jpg\" alt=\"ice bucket challenge\">\n\u003C/center>\n\u003C/figure>\n\n\u003Cp>Current research focuses on a multitude of areas within MND - from what causes it, to how to treat it. Funding is essential to ensure this research continues.\u003C/p>\n\n\u003Cp>No doubt we’ve all heard about - or perhaps even participated in - the Ice Bucket Challenge. This particular initiative raised more than $115 million dollars (USD) for MND worldwide in 2014. Research funded by this campaign has already led to the identification of the gene NEK1, which is associated with about 3% of MND cases (Rogers 2016).\u003C/p>","thumbnailImages":["https://ausmed-images.s3.ap-southeast-2.amazonaws.com/ausmed.com/ausmed-articles/20150708_cover2.jpg","https://cdn.ausmed.com/ausmed-blog-images/2015/07/20150708-cover.jpg"],"excerpt":"General awareness of motor neurone disease (MND) rose quickly after the Ice Bucket Challenge went viral in 2014. How has the management of this condition advanced since then?\n","reviewDate":"2025-07-04T14:00:00.000Z","publishDate":"2015-07-07T14:00:00.000Z","guidelines":["a3ac727a-fe5d-41e4-85ce-24a2b0d97866","dcaed7e0-6d01-4740-9a68-e3ad3719e49d","40a58630-3c02-4196-89c7-15b794b961e1"],"references":"\u003Cul class=\"list-group list-group-references\">\n\t\u003Cli class=\"list-group-item\">Better Health Channel 2021, \u003Cem>Motor Neurone Disease (MND)\u003C/em>, Victoria State Government, viewed 3 October 2023, \u003Ca href=\"https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/motor-neurone-disease\" target=\"_blank\">https://www.betterhealth.vic.gov.au/health/conditionsandtreatments/motor-neurone-disease\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">Healthdirect 2022, \u003Cem>Motor Neurone Disease (MND)\u003C/em>, Australian Government, viewed 3 October 2023, \u003Ca href=\"https://www.healthdirect.gov.au/motor-neurone-disease-mnd\" target=\"_blank\">https://www.healthdirect.gov.au/motor-neurone-disease-mnd\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">Leeds Teaching Hospitals NHS Trust n.d., \u003Cem>How Symptoms of MND Are Managed\u003C/em>, National Health Service, viewed 3 October 2023, \u003Ca href=\"https://www.leedsth.nhs.uk/a-z-of-services/leeds-motor-neurone-disease-mnd-care-centre/your-condition-and-treatment/how-symptoms-of-mnd-are-managed/\" target=\"_blank\">https://www.leedsth.nhs.uk/a-z-of-services/leeds-motor-neurone-disease-mnd-care-centre/your-condition-and-treatment/how-symptoms-of-mnd-are-managed/\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">MND Australia 2021b, \u003Cem>Diagnosing MND\u003C/em>, MND Australia, viewed 3 October 2023, \u003Ca href=\"https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/diagnosing-mnd\" target=\"_blank\">https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/diagnosing-mnd\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">MND Australia 2021a, \u003Cem>Supporting End of Life\u003C/em>, MND Australia, viewed 3 October 2023, \u003Ca href=\"https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/end-of-life\" target=\"_blank\">https://www.mndaustralia.org.au/mnd-connect/for-health-professionals-service-providers/end-of-life\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">Queensland Brain Institute 2023, \u003Cem>Motor Neuron Disease (MND)\u003C/em>, The University of Queensland, viewed 3 October 2023, \u003Ca href=\"https://qbi.uq.edu.au/brain/brain-diseases/motor-neurone-disease\" target=\"_blank\">https://qbi.uq.edu.au/brain/brain-diseases/motor-neurone-disease\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">Queensland Brain Institute 2019, \u003Cem>Motor Neuron Disease (MND) Facts and Figures\u003C/em>, The University of Queensland, viewed 3 October 2023, \u003Ca href=\"https://qbi.uq.edu.au/brain/brain-diseases-and-disorders/motor-neurone-disease/motor-neurone-disease-mnd-facts-and-figures\" target=\"_blank\">https://qbi.uq.edu.au/brain/brain-diseases-and-disorders/motor-neurone-disease/motor-neurone-disease-mnd-facts-and-figures\u003C/a>\u003C/li>\n\t\u003Cli class=\"list-group-item\">Rogers, K 2016, ‘The ‘Ice Bucket Challenge’ Helped Scientists Discover a New Gene Tied to A.L.S.’, \u003Cem>The New York Times\u003C/em>, 27 July, viewed 3 October 2023, \u003Ca href=\"https://www.nytimes.com/2016/07/28/health/the-ice-bucket-challenge-helped-scientists-discover-a-new-gene-tied-to-als.html\" target=\"_blank\">https://www.nytimes.com/2016/07/28/health/the-ice-bucket-challenge-helped-scientists-discover-a-new-gene-tied-to-als.html\u003C/a>\u003C/li>\n\u003C/ul>","additionalResources":"\u003Cul class=\"list-group\">\n\t\u003Cli class=\"list-group-item\">\u003Ca href=\"https://www.mndaustralia.org.au/\" target=\"_blank\">MND Australia\u003C/a>\u003C/li>\n\u003C/ul>","blogEducators":[{"relationID":"dd21a7f0-64ba-4621-902c-06b4c177858f","resourceID":"efc5b1ac-9563-4717-b8cb-d3a23eb84f33","educatorID":"b3b03aac-90e3-4f85-a35d-40df1531fb51","educatorModel":{"educatorID":"b3b03aac-90e3-4f85-a35d-40df1531fb51","email":"sallymoyle@hotmail.com","firstName":"Sally","lastName":"Moyle","createDate":"2017-02-27T17:04:18.000Z","updateDate":"2022-09-18T23:48:33.000Z","alias":"sally-moyle","contactDetail":{"position":"Clinical Nurse Specialist, Clinical Nurse Educator","department":"","organisation":"Epworth","qualifications":"","photoURL":"https://ausmed-images.s3.amazonaws.com/ausmed.com/ausmed-educator/moyle-sally.jpg?stamp=1663544906526","country":"AUS","allowPost":true,"allowEmail":true,"allowTextMsg":true},"eventDetail":{"topics":["f25f93cf-3689-41d7-92b2-c8182dcc83fc","64cb9e92-20f8-4ea1-87da-680fef5d18f1","7f699888-d86f-42ab-ac90-bb67e0a03ad4"],"biographyNames":["Default",""],"biographies":["Sally Moyle is a rehabilitation nurse educator with Epworth HealthCare. She has completed her masters of nursing (clinical nursing and teaching) and has experience in many nursing sectors including rehabilitation, orthopaedic, neurosurgery, emergency, aged care and general surgery. Sally is passionate about education in nursing in order to produce the best nurses possible.",""],"extraBio":"","brochureBio":""},"types":"Educator"}}],"blogExtraDetail":{"resourceID":"efc5b1ac-9563-4717-b8cb-d3a23eb84f33"}},"aliasObject":{"alias":"nursing-care-of-patients-with-motor-neuron-disease","resourceID":"efc5b1ac-9563-4717-b8cb-d3a23eb84f33","resourceType":"blog","metaTitle":"Nursing Care of Motor Neurone Disease (MND) | Ausmed","metaDescription":"The term motor neurone disease (MND) refers to a group of progressive neurological diseases that attack motor neurons in the body, eventually causing the muscles to waste away. \nTo date, there is no known cure or effective treatment for MND. There are around 2,000 Australians living with MND, and 2 people die from the disease every day."},"assessment":{"assessmentID":"f954dd32-b801-4e85-b608-e2fc2d49b0ef","resourceID":"efc5b1ac-9563-4717-b8cb-d3a23eb84f33","passMark":100,"isRandom":true,"questions":[{"questionID":"34086fe4-c4e2-4e31-9ea1-2a8ebf852ae8","assessmentID":"f954dd32-b801-4e85-b608-e2fc2d49b0ef","qType":"Multiple Choice","order":4,"text":"True or false: Motor neurone disease is a singular condition. ","options":["True","False"],"answer":1},{"questionID":"504d1205-64bf-4915-901c-fac395d91fbe","assessmentID":"f954dd32-b801-4e85-b608-e2fc2d49b0ef","qType":"Multiple Choice","order":2,"text":"True or false: Most cases of motor neurone disease have no identified cause.","options":["True","False"],"answer":0},{"questionID":"1e810955-5b34-492f-bf0c-0435cff377ae","assessmentID":"f954dd32-b801-4e85-b608-e2fc2d49b0ef","qType":"Multiple Choice","order":5,"text":"True or false: Motor neurone disease is curable. ","options":["True","False"],"answer":1}]},"source":"ausmed"}}</script></body></html>