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This particularly applies to type 2 diabetes, which is associated with lifestyles and living conditions. The importance of diabetes is due to the prevalence of type 2 diabetes and its potentially avoidable risk factors. It is often associated with comorbidities and complications, a reduction in health-related quality of life and in healthy</span><span class="MsoCommentReference" lang="EN-GB" xml:lang="EN-GB"> </span><span lang="EN-GB" xml:lang="EN-GB">and general life expectancy. As such, the condition is also costly to the health system.</span></p> <h5 class="MsoNormal"><strong><span lang="EN-GB" xml:lang="EN-GB">Diabetes surveillance at the Robert Koch Institute</span></strong></h5> <p><span lang="EN-GB" xml:lang="EN-GB">Against this background, the Robert Koch Institute (RKI) is conducting a research project to establish a national diabetes surveillance and to extend it to a surveillance of non-communicable diseases (NCD surveillance) in Germany. The project is funded by the Federal Ministry of Health. In the public health context, surveillance refers to the systematic and continous collection and analysis of health-related data. The aim of diabetes surveillance, therefore, is to establish periodic, indicator-based diabetes reporting to provide prompt and action-oriented information on health policy, health research, health care and public health practices by operationalising the links between data garnered from </span><abbr lang="EN-GB" title="Robert Koch Institute" xml:lang="EN-GB">RKI</abbr><span lang="EN-GB" xml:lang="EN-GB"> health monitoring and other relevant sources at the federal and regional levels. The findings should serve as a decision-making aid for planning, implementing and evaluating measures aimed at improving diabetes prevention and care. As a model project, the project is intended to create important requirements for establishing surveillance of other public health-relevant </span><abbr lang="EN-GB" title="non-communicable diseases" xml:lang="EN-GB">NCD</abbr><span lang="EN-GB" xml:lang="EN-GB">, including <a class="RichTextExtLink ExternalLink" href="https://www.rki.de/DE/Content/Gesundheitsmonitoring/Studien/MHS/mhs_node.html" target="_blank" rel="noopener noreferrer" title="External link External link to the website of the Mental Health Surveillance at the Robert Koch Institute (Opens new window)">mental health</a>, as part of an intended comprehensive public health surveillance.</span></p> <p><span lang="EN-GB" xml:lang="EN-GB">In the <strong>first four-year project</strong> phase ‘Developing National Diabetes Surveillance at the Robert Koch Institute’, the following milestones were achieved:</span></p> <ol><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Develop a conceptual framework and define core indicators to measure risk factors, frequency of diabetes, the consequences of the illness and quality of care</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Evaluate the available data sources, identify data gaps and assess the integration of secondary data for relevant indicators</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Coordinate on the content and format of a periodic national diabetes report that takes international best practices into account</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Draw up a prototype National Diabetes Report</span></li><li><span lang="EN-GB" xml:lang="EN-GB">Assess how National Diabetes Surveillance can be applied to the surveillance of other chronic diseases</span></li></ol> <p><span lang="EN-GB" xml:lang="EN-GB">The <strong>subsequent two-year project phase</strong> ‘Continuation of ongoing project-related funding for diabetes surveillance’ included the following milestones:</span></p> <ol><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Establish and further develop an indicator-based time series through the recurring use and supplementation of the data integrated into the first project phase</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Adapt and complement the indicator set in accordance with changing requirements</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Strengthen diabetes reporting and ensure that it is geared towards all phases of life and vulnerable target groups</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Further link the regionalised results from diabetes surveillance to those from health reporting undertaken at the federal state level</span></li><li class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">Ensure that the results are made available in a user-friendly and action-oriented manner</span></li></ol> <p lang="en-GB" xml:lang="en-GB">The <strong>following one-and-a-half-year project phase</strong> ‘Extension of the project Diabetes Surveillance with expansion to an NCD Surveillance’ comprised the following milestones:</p> <ol><li lang="en-GB" xml:lang="en-GB">Update of indicator-based time series and analysis of selected indicators for people with a migration background</li><li lang="en-GB" xml:lang="en-GB">Inventory of national/international <abbr title="non-communicable disease">NCD</abbr> surveillance systems and definition of a core set of indicators for selected additional <abbr title="non-communicable disease">NCD</abbr></li><li lang="en-GB" xml:lang="en-GB">Pilot evaluations on cause-specific mortality and premature mortality and data linkage of secondary data with data on social and physical environment</li><li lang="en-GB" xml:lang="en-GB">Update of diabetes surveillance formats</li><li lang="en-GB" xml:lang="en-GB">Concept development for outcome dissemination of a targeted <abbr title="non-communicable disease">NCD</abbr> surveillance</li></ol> <p lang="en-GB" xml:lang="en-GB">For the <strong>current one-and-a-half-year project phase</strong> ‘Extension of the project Diabetes Surveillance with expansion to an NCD Surveillance - Continuation", the following milestone are planned:</p> <ol><li lang="en-GB" xml:lang="en-GB">Continuation of diabetes surveillance with expansion to include central indicators of <abbr title="non-communicable disease">NCD</abbr> surveillance </li><li lang="en-GB" xml:lang="en-GB">Piloting of projections on frequencies of selected <abbr title="non-communicable disease">NCD</abbr> using diabetes as an example </li><li lang="en-GB" xml:lang="en-GB">Development of the methodology of a high-frequency surveillance for the process of <abbr title="Robert Koch Institute">RKI</abbr> data collection </li><li lang="en-GB" xml:lang="en-GB">Further development of the dissemination of results as a basis for a planned ‘Health Information System’</li></ol> <p class="MsoNormal"><span lang="EN-GB" xml:lang="EN-GB">The first three phases of the project were overseen by an interdisciplinary scientific advisory board. For the current project phase, a continued exchange with experts from the advisory board is planned. In order to ensure that milestones set out above are achieved, the project works with other actors from health policy and public health at the federal and state levels, the Federal Centre for Health Education, professional medical associations and national and international scientific cooperation partners from public health. Furthermore, methodological cooperation projects are also provided with targeted support.</span></p> <div class="sectionRelated"> <h2>More information</h2> <ul class="links"><li><a class="external" href="https://edoc.rki.de/handle/176904/2602" title="External link to the publication named Diabetes Surveillance in Germany – Background, concept and prospects by Gabrys et al." target="_blank">Gabrys L, Schmidt C, Heidemann C et al. (2017) Diabetes Surveillance in Germany – Background, concept and prospects. Journal of Health Monitoring 2(1):83-95</a></li><li><a class="external" href="https://doi.org/10.1515/pubhef-2021-0081" title="External link to the publication of Heidemann et al. titled Diabetes surveillance at the Robert Koch Institute – pilot project for the development of an NCD surveillance in Germany (german only)" target="_blank">Heidemann C, Reitzle L, Ziese T et al. (2021) Diabetes surveillance at the Robert Koch Institute – pilot project for the development of an NCD surveillance in Germany. Public Health Forum 29(4):277-281 (german only)</a></li><li><a class="external" href="https://link.springer.com/article/10.1007/s11428-023-01069-6" title="External link to the publication of Tuncer et al. with the titel Update zur Nationalen Diabetes-Surveillance" target="_blank">Tuncer O, Du Y, Baumert J et al. (2023) Update zur Nationalen Diabetes-Surveillance. Überblick zu Indikatoren aus den Handlungsfeldern Diabetesfrüherkennung und -behandlung verbessern, Diabeteskomplikationen reduzieren und Krankheitslast und -kosten senken. Die Diabetologie 19:561-570</a></li> </ul> <h2>Additional information (external links)</h2> <ul class="links"><li><a class="external" href="http://www.who.int/nmh/en/" title="Webseite der World Health Organization zu nichtübertragbaren Erkrankungen und Mental Health" target="_blank">WHO - Noncommunicable diseases and mental health</a></li><li><a class="external" href="http://www.who.int/nmh/publications/ncd-action-plan/en/" title="Externer Link zum Global Action Plan for the Prevention and Control of NCDs 2013-2020 der Weltgesundheitsorganisation" target="_blank">World Health Organization (WHO) (2013) Global Action Plan for the Prevention and Control of NCDs 2013-2020</a></li><li><a class="external" href="https://doi.org/10.1016/S0140-6736(18)31258-3" title="Externer Link zur Publikation von Nishtar et al. zum Bericht über die unabhängige Kommission zu nichtübertragbaren Erkrankungen der Weltgesundheitsorganisation" target="_blank"><span class="title-text">Nishtar S, Niinistö S, Sirisena M et al. (2018) Time to deliver: report of the WHO Independent High-Level Commission on NCDs. The Lancet 392(10143):245-252</span></a></li> </ul></div> </div> <div id="supplement" class="large-4 small-12 columns"> <div id="navSecondary"> <h2>Section menue</h2> <div class="navMain"> <ul> <li class="first "><strong>Background and goals</strong> </li> <li class=" "><a href="Webs/Diabsurv/EN/project/methodology/methodology-node.html" title="Methodology">Methodology</a> </li> <li class=" "><a href="Webs/Diabsurv/EN/project/team/team-node.html" title="Team">Team</a> </li> <li class=" "><a href="Webs/Diabsurv/EN/project/scientific_advisory_board/scientific_advisory_board-node.html" title="Scientific advisory board">Scientific advisory board</a> </li> <li class="last "><a href="Webs/Diabsurv/EN/project/News/nachrichten_node.html">News</a> </li> </ul></div> </div> </div></div> <div id="navBreadcrumbs"> <p class="aural">You are here:</p> <ol> <li class="first"> <a href="Webs/Diabsurv/EN/homepage/home-node.html" title="Diabetes in Germany">Homepage</a> </li> <li> <a href="Webs/Diabsurv/EN/project/project-node.html" title="Project">Project</a> </li> <li> <strong>Background and goals</strong> </li> </ol> </div> <div id="footer" class="footer--background-primary footer--color-light"> <div id="navFunctionsWrapper" class="row"> <div class="small-7 columns"> <h2 class="footer--color-light">This Page</h2> <ul id="navFunctions"> <li id="navFunctionsRecommend"> </li> </ul> </div> <div class="small-5 columns"> <p class="navToTop"> <a href="Webs/Diabsurv/EN/project/background/background-node.html#Start">to the top</a> </p> </div> </div> <div id="siteInfo"> <h2 class="aural">Subnavigation of all website sections</h2> <div class="row"> <div class="smallAccordion medium-6 large-3 columns"> <div class="tabs-container"> <h3 class="heading footer--color-light">Project</h3> <ul> <li ><strong>Background and goals</strong></li> <li ><a href="Webs/Diabsurv/EN/project/methodology/methodology-node.html" title="Methodology">Methodology</a></li> <li ><a href="Webs/Diabsurv/EN/project/team/team-node.html" title="Team">Team</a></li> <li ><a href="Webs/Diabsurv/EN/project/scientific_advisory_board/scientific_advisory_board-node.html" title="Scientific advisory board">Scientific advisory board</a></li> </ul> </div> </div> <div class="smallAccordion medium-6 large-3 columns"> <div class="tabs-container"> <h3 class="heading footer--color-light">Results</h3> <ul> <li ><a href="Webs/Diabsurv/EN/diabetes-in-germany/adults/adults-node.html" title="Adults">Adults</a></li> <li ><a href="Webs/Diabsurv/EN/diabetes-in-germany/child/children-and-adolescents-node.html" title="Children and adolescents">Children and adolescents</a></li> </ul> </div> </div> <div class="smallAccordion medium-6 large-3 columns"> <div class="tabs-container"> <h3 class="heading footer--color-light">Cooperations</h3> <ul> <li ><a href="Webs/Diabsurv/EN/cooperations/partners/partners-node.html" title="Partners">Partners</a></li> <li ><a href="Webs/Diabsurv/EN/cooperations/projects/cooperation_projects-node.html" title="Cooperation projects">Cooperation projects</a></li> </ul> </div> </div> <div class="smallAccordion medium-6 large-3 columns"> <div class="tabs-container"> <h3 class="heading footer--color-light">Publications</h3> <ul> <li ><a href="Webs/Diabsurv/EN/publications/national_reports/national_reports-node.html" title="Reports">Reports</a></li> <li ><a href="Webs/Diabsurv/EN/publications/scientific_publications/scientific_publ-node.html" title="Scientific publications">Scientific publications</a></li> </ul> </div> </div> </div> </div> <div class="copyright row"> <div class="small-12 columns"> <p> <span class="footer--color-light">© Robert Koch-Institut - 2024 </span> <a href="Webs/Diabsurv/EN/service/imprint/imprint-node.html">Imprint</a> <a href="Webs/Diabsurv/EN/service/privacy-policy/privacy-policy-node.html">Privacy Policy</a> </p> </div> </div> </div> </div> </div></div> <script type="text/javascript" src="SiteGlobals/Frontend/Webs/Diabsurv/JavaScript/init/EN/global.js?v=11"></script>  <noscript><p><img src="//piwik.itzbund.de/js/?idsite=61&rec=1" style="border:0;" alt="" /></p></noscript>  </body> </html>