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Patient/Family Involvement | British Geriatrics Society
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</div> <main role="main"> <div class="outer-wrapper"> <section id="content"> <h1 id="page-title">Patient/Family Involvement</h1> <div class="content-main"> <div class="view view-topic-node view-id-topic_node view-display-id-page_1 collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette view-dom-id-cf76f9f903e130a8e187943addb7c084"> <div class="view-header"> <div class="topic-intro"><h5>The topic content is divided into the information types below</h5></div> <div class="topics-view-switch"> <span class="view-mode-switch latest-view-default">Resources</span> <span class="view-mode-switch latest-view-events">Events</span> <span class="view-mode-switch latest-view-policies">Policy</span> <span class="view-mode-switch latest-view-news">News</span> <span class="view-mode-switch latest-view-blogs">Blogs</span> <span class="view-mode-switch latest-view-resource-series">Resources series</span> <span class="view-mode-switch latest-view-sig">Special interest groups</span> </div> </div> <div class="view-content view-content-main"> <div class="views-row views-row-1 views-row-odd views-row-first"> <a href="/resources/7-cga-in-primary-care-settings-creating-a-problem-list" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>7. CGA in Primary Care Settings: Creating a problem list</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-01-28T00:00:00+00:00">28 January 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Creating a problem list as part of Comprehensive Geriatric Assessment can help identify all the issues to consider and will be helpful in drawing up a care plan.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Good practice guide </div> </div></div></a> </div> <div class="views-row views-row-2 views-row-even"> <a href="/resources/proactive-care-of-older-people-undergoing-surgery" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Proactive care of older people undergoing surgery</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2012-05-23T00:00:00+01:00">23 May 2012</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>More older people are undergoing surgery, but postoperative outcomes are worse than for younger patients. This case study looks at the Proactive Care of Older People undergoing Surgery (POPS) team at Guy's and St Thomas's.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Case study </div> </div></div></a> </div> <div class="views-row views-row-3 views-row-odd"> <a href="/resources/delirium-hub-education-and-training" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Delirium Hub: Education and training</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-11-24T00:00:00+00:00">24 November 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This section of the Delirium Hub contains resources which focus on staff training and how to educate patients and relatives.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> </div></div></a> </div> <div class="views-row views-row-4 views-row-even"> <a href="/languageguide" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Preferred language when referring to older people in a health context</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2024-04-24T00:00:00+01:00">24 April 2024</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This list of preferred and non-preferred terminology has been compiled to help healthcare professionals, academic authors and the general public avoid language that might be deemed unacceptable or inappropriate when describing the health of older people. </p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Good practice guide </div> </div></div></a> </div> <div class="views-row views-row-5 views-row-odd"> <a href="/resources/agenda-issue-91-person-centred-care" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>AGENDA: Issue 91 | Person-centred care</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2024-01-08T00:00:00+00:00">08 January 2024</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This issue looks at how placing older people at the centre of their care helps to ensure their needs and wishes are met. <em>This content is limited to members only.</em></p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional"> <div class="card-content-members-only">Members only</div> </div> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Newsletters </div> </div></div></a> </div> <div class="views-row views-row-6 views-row-even"> <a href="/resources/trevor-howell-guest-lecture-2022" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Trevor Howell Guest Lecture 2022</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2023-08-16T00:00:00+01:00">16 August 2023</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This lecture, titled <em>Impact beyond the patient in front of us,</em> was given by Professor Finbarr C Martin on 17 November 2022 at the BGS Autumn Meeting 2022.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Video/podcast </div> </div></div></a> </div> <div class="views-row views-row-7 views-row-odd"> <a href="/resources/frailty-language-and-perceptions" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Frailty: Language and Perceptions</h3> </div> <div class="card-date-display-override"> Published June 2015 </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This report, originally published in June 2015, summarises research commissioned by BGS and Age UK on older people's attitudes and feelings towards language around frailty.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Report </div> </div></div></a> </div> <div class="views-row views-row-8 views-row-even"> <a href="/resources/deconditioning-information-for-providers-of-services-for-older-people-and-the-public" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Deconditioning information for providers of services for older people and the public </h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2022-04-19T00:00:00+01:00">19 April 2022</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>The National Falls Prevention Co-ordination Group (NFPCG) Deconditioning task and finish sub-group have developed a suite of five resources intended to support individuals, health and care professionals and commissioners to take action to help older adults become more active and recondition following activity restrictions in the COVID-19 pandemic.</p> </div> </div> </div> </div><div class="card-footer"> </div></div></a> </div> <div class="views-row views-row-9 views-row-odd"> <a href="/resources/bgs-position-statement-person-centred-acute-hospital-care-for-people-with-dementia" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>BGS Position Statement: Person-centred acute hospital care for people with dementia</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2022-01-07T00:00:00+00:00">07 January 2022</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Around half of people aged over 70 who are admitted to hospital as an emergency have a cognitive disorder such as dementia. This BGS position statement sets out the principles of good person-centred care for older people admitted to acute hospitals with dementia.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Position statement </div> </div></div></a> </div> <div class="views-row views-row-10 views-row-even"> <a href="/resources/presentation-recordings-2021-south-east-and-south-west-thames-joint-region-meeting" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Presentation Recordings: 2021 South East and South West Thames Joint Region Meeting</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-11-05T00:00:00+00:00">05 November 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Presentations from 2021 South East and South West Thames Joint Region Meeting (4 CPD Points)</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional"> <div class="card-content-members-only">Members only</div> </div> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Presentation </div> </div></div></a> </div> <div class="views-row views-row-11 views-row-odd"> <a href="/cpocfrailty" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Guideline for the care of people living with frailty undergoing elective and emergency surgery</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-09-28T00:00:00+01:00">28 September 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>The Centre for Perioperative Care, working in collaboration with the British Geriatrics Society, has published guidance for the care of people living with frailty undergoing elective and emergency surgery that encompasses the whole perioperative pathway.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Good practice guide </div> </div></div></a> </div> <div class="views-row views-row-12 views-row-even"> <a href="/resources/end-of-life-care-in-frailty-spiritual-and-cultural-issues" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>End of Life Care in Frailty: Spiritual and cultural issues</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-05-12T00:00:00+01:00">12 May 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This section of the BGS guidance on end of life care in older people looks at the religious, spiritual and cultural aspects that may influence appropriate end of life care.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Clinical guidelines </div> </div></div></a> </div> <div class="views-row views-row-13 views-row-odd"> <a href="/resources/fun-guarding-is-safe-the-enemy-of-fun" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Fun-guarding: Is safe the enemy of fun?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-01T00:00:00+01:00">01 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>'Fun' and 'safe' do not have to be opposite concepts, writes Susan Shenkin.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Article </div> </div></div></a> </div> <div class="views-row views-row-14 views-row-even"> <a href="/resources/fun-guarding-when-my-time-comes" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Fun-guarding: When my time comes</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-01T00:00:00+01:00">01 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Trisha Elliott reflects on how she would like fun to be guarded when she approaches frailty in older age.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Article </div> </div></div></a> </div> <div class="views-row views-row-15 views-row-odd"> <a href="/resources/fun-guarding-does-it-bring-joy" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Fun-guarding: Does it bring joy?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-01T00:00:00+01:00">01 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Consider whether an activity will bring joy to an older person over whether it is socially appropriate, says Jenni Mack.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Article </div> </div></div></a> </div> <div class="views-row views-row-16 views-row-even"> <a href="/resources/fun-guarding-putting-a-value-on-fun" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Fun-guarding: Putting a value on fun</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-01T00:00:00+01:00">01 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Talk to residents about what they want to achieve and you might be surprised, says Caroline Benham.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Article </div> </div></div></a> </div> <div class="views-row views-row-17 views-row-odd"> <a href="/resources/fun-guarding-involving-the-family" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Fun-guarding: Involving the family</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-01T00:00:00+01:00">01 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Many of our most important and fun moments relate to our family, explains David Attwood.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Article </div> </div></div></a> </div> <div class="views-row views-row-18 views-row-even"> <a href="/resources/fun-guarding-in-care-homes-as-important-as-safeguarding" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Fun-guarding in care homes: As important as safeguarding?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-01T00:00:00+01:00">01 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>The first article in our fun-guarding series, George Coxon sets out what fun-guarding is and why it is important.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-series"> In a series </div> <div class="card-resource-type"> Article </div> </div></div></a> </div> <div class="views-row views-row-19 views-row-odd"> <a href="/resources/rcp-falls-and-fragility-audit-programme-fffap-patient-resources" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>RCP Falls and Fragility Audit Programme (FFFAP) patient resources</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-05-09T00:00:00+01:00">09 May 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>The Royal College of Physicians Falls and Fragility Fracture Audit Programme (FFFAP) has developed a series of patient and public centred resources to support better care.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Fact sheet </div> </div></div></a> </div> <div class="views-row views-row-20 views-row-even views-row-last"> <a href="/resources/care-homes-in-wales-your-questions-answered" class="card resource-card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Care homes in Wales: Your questions answered</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-03-19T00:00:00+00:00">19 March 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>The Older People’s Commissioner for Wales has published an information guide for older people and their families giving information about care homes.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-resource-type"> Fact sheet </div> </div></div></a> </div> </div> <h2 class="element-invisible">Pages</h2><div class="item-list"><ul class="pager"><li class="pager-current first">1</li> <li class="pager-item"><a title="Go to page 2" href="/topics/patientfamily-involvement?page=1">2</a></li> <li class="pager-next"><a title="Go to next page" href="/topics/patientfamily-involvement?page=1">next ›</a></li> <li class="pager-last last"><a title="Go to last page" href="/topics/patientfamily-involvement?page=1">last »</a></li> </ul></div> <div class="attachment attachment-after"> <div class="view view-topic-node view-id-topic_node view-display-id-sig collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette"> <div class="view-empty"> We currently have no content associated with this topic, please visit one of the other tabs </div> </div><div class="view view-topic-node view-id-topic_node view-display-id-news collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette"> <div class="view-empty"> We currently have no content associated with this topic, please visit one of the other tabs </div> </div><div class="view view-topic-node view-id-topic_node view-display-id-blogs collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette"> <div class="view-content view-content-main"> <div class="views-row views-row-1 views-row-odd views-row-first"> <a href="/AntCare2" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Anticipatory Care Series: The NHS can’t stop you from growing older</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2022-09-27T00:00:00+01:00">27 September 2022</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>One of the joys of general practice is seeing the same patients over time and getting to know them and their families. I worked in the same small practice for over twenty years and saw people go from active sixty-somethings, slowing down in their seventies, and then becoming frail in their eighties.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-2 views-row-even"> <a href="/blog/%E2%80%98digital-equity-for-all-ages%E2%80%99-on-un-international-day-of-older-persons-2021" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>‘Digital Equity for All Ages’ on UN International Day of Older Persons 2021</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-10-01T00:00:00+01:00">01 October 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>This year’s theme for the International Day of Older Persons is digital equity for all ages. This is timely given the acceleration of the use of digital communications and services during the pandemic and the risks that some people, particularly older people, could be left behind. In Wales 41% of people over the age of 75 are not online and are at an increasing disadvantage in many aspects of life as a result.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-3 views-row-odd"> <a href="/blog/care-home-visits-during-the-pandemic-a-look-into-the-past-and-a-view-into-the-future" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Care home visits during the pandemic - a look into the past and a view into the future</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-05-21T00:00:00+01:00">21 May 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Although we’ve been in the grip of the pandemic for a little over a year now, in reality it feels more like a decade, with new restrictions, new lockdowns, and fortunately - thanks to vaccines and increased testing -, finally some new emerging hope that we may soon regain a semblance of normality.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-4 views-row-even"> <a href="/blog/%E2%80%9Cwe-heal-not-in-isolation-but-in-togetherness%E2%80%9D-%E2%80%93-a-role-for-the-care-home-care-coordinator" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3> “We heal, not in isolation, but in togetherness” – a role for the Care Home Care Coordinator?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-05-20T00:00:00+01:00">20 May 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Resy Manalo, Lalaine Lopez Pesario, Gilbert Barnedo, Elsie Sazuze, Suzanne Loverseed and Karen Hutton are some of the care home workers who lost their lives during the coronavirus pandemic.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-5 views-row-odd"> <a href="/blog/communicating-through-the-mask" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Communicating through the mask</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2021-01-06T00:00:00+00:00">06 January 2021</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Effective communication lies at the heart of all good healthcare. It is particularly important in the care of older people, because of the complexity of common exchanges.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-6 views-row-even"> <a href="/blog/the-sandwich-generation" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>The Sandwich Generation </h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-12-30T00:00:00+00:00">30 December 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>I can’t believe that I hadn’t heard of the Sandwich Generation until I became a slice of meat squashed between two slices of bread. It was October 2019: my mother-in-law had sustained a large frontal lobe haemorrhage and my father-in-law was already living with Parkinson’s disease.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-7 views-row-odd"> <a href="/blog/take-a-breath-a-personal-view-on-care-home-visiting" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Take a breath: a personal view on care home visiting</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-12-22T00:00:00+00:00">22 December 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>I have been a nurse since 1986, mainly working in end of life or dementia care. I have had a variety of roles in the hospital, care home, community and hospice settings. I have been a family carer (alongside my brother and sister) since 2002.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-8 views-row-even"> <a href="/blog/bgs-hosts-five-nation-care-home-meeting" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>BGS hosts five nation care home meeting</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-10-09T00:00:00+01:00">09 October 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Chaired by BGS Past President Dr Eileen Burns, the five nation care home meeting gave participants an opportunity to share their experiences of managing COVID in care home settings and to compare what worked well and what didn’t.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-9 views-row-odd"> <a href="/blog/keeping-contact-alive-during-covid-19" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Keeping contact alive during COVID-19</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-09-28T00:00:00+01:00">28 September 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>On the 20th March the usual discussion, laughter, sounds of people coming and going, and noises of normal life fell eerily silent. We had gone into a national state of ‘lock down’. I had always avoided using the phrase if we had needed to close our care home to visitors previously, but now it actually felt appropriate. We were locked down and locked in.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-10 views-row-even"> <a href="/blog/miniature-heroes-kids-contributing-to-older-adult-needs-during-covid-19" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Miniature Heroes: Kids contributing to older adult needs during COVID-19</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-07-31T00:00:00+01:00">31 July 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>The BGS is committed to celebrating all endeavours that seek to improve care for older people. As many of us know, this takes input, expertise and often kindness, from a wide range of people, encompassing healthcare professionals, but also volunteers, carers and family members.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-11 views-row-odd"> <a href="/blog/the-work-of-older-people-and-informal-caregivers-in-managing-a-change-in-health" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>The work of older people and informal caregivers in managing a change in health</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-07-09T00:00:00+01:00">09 July 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Out of hospital care for older people, such as hospital-at-home, is being delivered in a number of countries as an alternative to hospitalisation for a select group of older people.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-12 views-row-even"> <a href="/blog/trying-to-make-effective-mindful-communication-through-ppe-as-easy-as-abc" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Trying to Make Effective, Mindful Communication Through PPE as Easy as ABC!</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-06-03T00:00:00+01:00">03 June 2020</span> </div> <div class="card-display-date"> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-13 views-row-odd"> <a href="/blog/talking-about-dying-during-covid-19" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Talking about dying during COVID-19</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-04-30T00:00:00+01:00">30 April 2020</span> </div> <div class="card-display-date"> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-14 views-row-even"> <a href="/blog/coronavirus-%E2%80%93-don%E2%80%99t-forget-about-the-carers" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Coronavirus – don’t forget about the carers!</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-03-30T00:00:00+01:00">30 March 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>We live in the worst of times and now, perhaps the very worst of times. The thing, I’ve always found, about being a ‘carer’ is that you don’t realise that you’re a carer until you’re quite advanced into the job.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-15 views-row-odd"> <a href="/blog/covid-19-supporting-and-caring-from-afar" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>COVID-19: Supporting and Caring from Afar</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-03-26T00:00:00+00:00">26 March 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>We are in exceptional times, and people are providing care in extraordinary ways. On the 30th January 2020, the World Health Organisation (WHO) announced that the COVID-19 (Coronavirus) outbreak was a Public Health Emergency of International Concern.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-16 views-row-even"> <a href="/blog/in-praise-of-inefficiency" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>In praise of inefficiency</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-01-29T00:00:00+00:00">29 January 2020</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>I love being a doctor and hospitals have long been something of a comfort zone; predictable, with protocols, and plans, and SOPs. To me, they often feel more controlled than the unpredictable world outside.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-17 views-row-odd"> <a href="/blog/at-what-age-do-adults-stop-being-adults" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>At what age do adults stop being adults?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2020-01-07T00:00:00+00:00">07 January 2020</span> </div> <div class="card-display-date"> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-18 views-row-even"> <a href="/blog/are-%E2%80%9Cfrailty-units%E2%80%9D-and-%E2%80%9Cdementia-wards%E2%80%9D-the-anathema-of-pure-person-centred-care" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>Are “frailty units” and “dementia wards” the anathema of pure person-centred care?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-10-29T00:00:00+00:00">29 October 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>Person-centred care, for those who are enthusiastic about it like me, can at times feel like a religion. To be a pure follower of this approach, it means respecting the holistic aspects of a person, including perhaps interests and beliefs.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-19 views-row-odd"> <a href="/blog/how-well-do-we-manage-patients-with-diverse-religious-and-cultural-needs-at-the-end-of-life" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>How well do we manage patients with diverse religious and cultural needs at the end of life?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-09-18T00:00:00+01:00">18 September 2019</span> </div> <div class="card-display-date"> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> <div class="views-row views-row-20 views-row-even views-row-last"> <a href="/blog/how-do-we-recognise-and-act-upon-the-duality-of-being-a-family-caregiver-and-clinician" class="card"> <div class="card-text"><div class="card-content"> <div class="card-title"> <h3>How do we recognise and act upon the duality of being a family caregiver and clinician?</h3> </div> <div class="card-date-display-override"> <span class="date-display-single" property="dc:date" datatype="xsd:dateTime" content="2019-09-16T00:00:00+01:00">16 September 2019</span> </div> <div class="card-display-date"> </div> <div class="card-summary"> <div class="card-summary-wrapper"> <div class="card-summary"> <p>In 2018, as part of a Florence Nightingale Foundation <a>travel</a> scholarship, I spent over a month visiting the islands of Ireland and New Zealand. I went to find out more about advance care planning, hospice research activity, knowledge mobilisation and models of care for people living with dementia.</p> </div> </div> </div> </div><div class="card-footer"> <div class="card-views-conditional-1"> <div class="card-type">Blog</div> </div> </div></div></a> </div> </div> <h2 class="element-invisible">Pages</h2><div class="item-list"><ul class="pager"><li class="pager-current first">1</li> <li class="pager-item"><a title="Go to page 2" href="/topics/patientfamily-involvement?page=1">2</a></li> <li class="pager-next"><a title="Go to next page" href="/topics/patientfamily-involvement?page=1">next ›</a></li> <li class="pager-last last"><a title="Go to last page" href="/topics/patientfamily-involvement?page=1">last »</a></li> </ul></div> <div class="view-footer"> <div class="view-results">23 results</div><div class="view-mode"><span class="layout-trigger"><span class="view-mode-label">View as</span><span class="trigger-grid active">Grid</span><span class="trigger-list">List</span></span></div> </div> </div><div class="view view-topic-node view-id-topic_node view-display-id-events collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette"> <div class="view-empty"> We currently have no content associated with this topic, please visit one of the other tabs </div> </div><div class="view view-topic-node view-id-topic_node view-display-id-policies collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette"> <div class="view-empty"> We currently have no content associated with this topic, please visit one of the other tabs </div> </div><div class="view view-topic-node view-id-topic_node view-display-id-resource_series collapsible-filters match-heights search-page-content-type-tpl views-row-alt-separation row-max-4 view-card-default-palette"> <div class="view-empty"> We currently have no content associated with this topic, please visit one of the other tabs </div> </div> </div> <div class="view-footer"> <div class="view-results">28 results</div><div class="view-mode"><span class="layout-trigger"><span class="view-mode-label">View as</span><span class="trigger-grid active">Grid</span><span class="trigger-list">List</span></span></div> </div> </div> </div> </section> </div> </main> <footer id="site-footer" role="contentinfo"> <section class="footer-first"> <div class="outer-wrapper"> <section class="block block-views"> <div class="view view-footer-sections view-id-footer_sections view-display-id-orgs view-display-grid view-dom-id-d1255ae76a105ec1ac482eed68d11899"> <div class="view-header"> <script> if(jQuery('#Main.CRM_Contribute_Form_Contribution_Main').length > 0){ jQuery('#Main.CRM_Contribute_Form_Contribution_Main').on('submit',function(e){ setTimeout(function(){ e.preventDefault(); 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