Paediatric Gastroenterology, Hepatology and Nutrition UK National Census 2021 - report

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class="block-submenu-work-we-do"> <h2 class="visually-hidden">Submenu work we do</h2> <ul class="menu menu--main"> <li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/work-we-do/rcpch-strategy-2024-27"><span>RCPCH strategy</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/british-paediatric-surveillance-unit"><span>British Paediatric Surveillance Unit</span></a> </li> <li class="expanded dropdown active"> <a href="/work-we-do/clinical-audits" class="has-children"><span>Clinical audits</span></a> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <ul class="menu menu--main sub-menu"> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/child-protection-service-delivery-standards"><span>Child Protection Service Delivery Standards</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/epilepsy12"><span>Epilepsy12 Audit</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/nnap"><span>National Neonatal Audit Programme</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/npda"><span>National Paediatric Diabetes Audit</span></a> </li> <li class="expanded dropdown active"> <a href="/resources/pghan-national-census-2021"><span>Paediatric Gastroenterology, Hepatology and Nutrition Audit</span></a> </li> </ul> </li> <li class="expanded dropdown"> <a href="/work-we-do/equality-diversity-inclusion"><span>Equality, diversity and inclusion</span></a> </li> </ul></li><li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/work-we-do/global-child-health"><span>Global child health</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/public-affairs"><span>Public affairs</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/QI-patient-safety" class="has-children"><span>Quality improvement and patient safety</span></a> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <ul class="menu menu--main sub-menu"> <li class="expanded dropdown"> <a href="/work-we-do/QI-patient-safety/invited-review-service"><span>Invited Review Service</span></a> </li> <li class="expanded dropdown"> <a href="https://safety.rcpch.ac.uk/"><span>Patient Safety Portal</span></a> </li> <li class="expanded dropdown"> <a href="https://qicentral.rcpch.ac.uk/"><span>QI Central</span></a> </li> </ul> </li> <li class="expanded dropdown"> <a href="/work-we-do/rcpch-and-us"><span>RCPCH &Us - for children, young people and families</span></a> </li> </ul></li><li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/work-we-do/research-activities"><span>Research activities</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/thrive-paediatrics"><span>Thrive Paediatrics</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/workforce-information-planning"><span>Workforce information and planning</span></a> </li> </ul> </nav> </div> </div> </div> </div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15647"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-10/group-of-young-people-in-ring-looking-down-smiling-strategy.jpg?itok=dkw33jZm" width="315" height="157" alt="Group of young people in a ring looking down and smiling" typeof="foaf:Image" title="" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Our new College strategy</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">Covering the next three years and with four strategic goals, our strategy aims to meet our members' priorities to support their working lives and be a powerful advocate for children and young people.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/work-we-do/rcpch-strategy-2024-27" class="our-new-college-strategy">Strategy</a></div> </div> </div></div> </div> </div> </li> <li class="mega-menu--item link-5"> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <a href="/resources" aria-expanded="false" id="megamenu-resources10" aria-controls="megamenu-sub-resources18" data-drupal-link-system-path="node/107">Resources</a> <div class="mega-menu--container"> <div class="field--name-field-mi-blocks field--type-entity-reference-revisions mega-menu--items"> <div class="paragraph-type-submenu_block col-sm-6 mega-menu--item"><div class="paragraph paragraph--type-submenu-block paragraph--view-mode-default ds-1col clearfix container-fluid"> <div class="container"> <div class="field field--name-submenu field--type-ds field--label-hidden field--item"><nav class="block-submenu-resources"> <h2 class="visually-hidden">Submenu resources</h2> <ul class="menu menu--main"> <li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/resources/all-resources" class="has-children"><span>All resources</span></a> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <ul class="menu menu--main sub-menu"> <li class="expanded dropdown"> <a href="/resources/consultation-responses"><span>Consultation responses</span></a> </li> </ul> </li> <li class="expanded dropdown"> <a href="/resources/clinical-guidelines"><span>Clinical guidelines</span></a> </li> <li class="expanded dropdown"> <a href="/resources/engaging-children-young-people"><span>Engaging children and young people</span></a> </li> <li class="expanded dropdown"> <a href="/resources/external-second-opinions"><span>External second opinions</span></a> </li> <li class="expanded dropdown"> <a href="/resources/facing-future-standards-paediatric-care"><span>Facing the Future service standards</span></a> </li> </ul></li><li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/resources/growth-charts"><span>Growth charts</span></a> </li> <li class="expanded dropdown"> <a href="/resources/journals"><span>Journals</span></a> </li> <li class="expanded dropdown"> <a href="/resources/medicines"><span>Medicines resources</span></a> </li> <li class="expanded dropdown"> <a href="/resources/rcpch-archive"><span>RCPCH archive</span></a> </li> <li class="expanded dropdown"> <a href="/resources/research-funding-opportunities"><span>Research funding opportunities</span></a> </li> <li class="expanded dropdown"> <a href="/resources/transition-adult-services"><span>Transition to adult services</span></a> </li> </ul> </nav> </div> </div> </div> </div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-10839"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2022-02/medicines.png?itok=6Fd-s1Bx" width="315" height="157" alt="giving medicine to children" typeof="foaf:Image" title="" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Discharge and medication safety</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">We have six recommendations to improve the safety of liquid medicines during the transition from hospital to home care. </div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/resources/management-unlicensed-liquid-medicines-recommendations" class="discharge-and-medication-safety">Medication safety guideline</a></div> </div> </div></div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15560"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-09/thrive-graphic-news.png?itok=AkcTgF0X" width="315" height="157" alt="Icon - hands holding a heart with a medical cross inside" title="Thrive Paediatrics" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Thrive Paediatrics resource hub</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">Especially for members, our new hub offers evidence and good practice examples in wellbeing, plus stories from paediatricians' lived experience.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/resources/thrive-resource-hub" class="thrive-paediatrics-resource-hub">Resource hub</a></div> </div> </div></div> </div> </div> </li> <li class="mega-menu--item link-2"> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <a href="/key-topics" aria-expanded="false" id="megamenu-key-topics15" aria-controls="megamenu-sub-key-topics11" data-drupal-link-system-path="key-topics">Key topics</a> <div class="mega-menu--container"> <div class="field--name-field-mi-blocks field--type-entity-reference-revisions mega-menu--items"> <div class="paragraph-type-submenu_block col-sm-6 mega-menu--item"><div class="paragraph paragraph--type-submenu-block paragraph--view-mode-default ds-1col clearfix container-fluid"> <div class="container"> <div class="field field--name-submenu field--type-ds field--label-hidden field--item"><nav class="block-submenu-key-topics"> <h2 class="visually-hidden">Submenu key topics</h2> <ul class="menu menu--main"> <li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/key-topics/air-pollution"><span>Air pollution companion</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/child-health-inequalities-climate-change"><span>Child health inequalities and climate change</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/child-health-inequalities-poverty"><span>Child health inequalities and poverty</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/child-mental-health"><span>Child mental health</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/child-protection"><span>Child protection and safeguarding</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/climate-change"><span>Climate change</span></a> </li> </ul></li><li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/key-topics/genomics"><span>Genomics</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/nhs-ten-year-plan"><span>NHS 10 Year Health Plan</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/nutrition-obesity"><span>Nutrition and obesity</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/prevention-ill-health"><span>Prevention of ill health</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/winter-planning"><span>Winter planning</span></a> </li> <li class="expanded dropdown"> <a href="/key-topics/your-wellbeing"><span>Your wellbeing</span></a> </li> </ul> </nav> </div> </div> </div> </div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15800"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-11/shutterstock_2018424023-infant-in-adults-arms.jpg?itok=ieopY5Fp" width="315" height="157" alt="Small baby, being held by adult wearing scrubs and mask" typeof="foaf:Image" title="" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">10 Year Health Plan for the NHS</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">We want to ensure children and young people are at the centre of the Government's plan. Our policy briefing outlines our four overarching recommendations and how members in England can input.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/key-topics/nhs-ten-year-plan/policy-briefing" class="_0-year-health-plan-for-the-nhs">Briefing</a></div> </div> </div></div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15574"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-09/Air-pollution-news.png?itok=pwuHqICR" width="315" height="157" alt="Repeated icons - children playing under cloud" title="Air pollution" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Our new Air Pollution Companion</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">Learn about air pollution and child health, with sections to help build your knowledge, talk to patients and advocate for change. Plus how to join a clean air community and explore clean air clinics.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/key-topics/air-pollution" class="our-new-air-pollution-companion">Companion</a></div> </div> </div></div> </div> </div> </li> <li class="mega-menu--item link-6"> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <a href="/news-events" aria-expanded="false" id="megamenu-news-and-events1" aria-controls="megamenu-sub-news-and-events13" data-drupal-link-system-path="node/137">News and events</a> <div class="mega-menu--container"> <div class="field--name-field-mi-blocks field--type-entity-reference-revisions mega-menu--items"> <div class="paragraph-type-submenu_block col-sm-3 mega-menu--item"><div class="paragraph paragraph--type-submenu-block paragraph--view-mode-default ds-1col clearfix container-fluid"> <div class="container"> <div class="field field--name-submenu field--type-ds field--label-hidden field--item"><nav class="block-submenu-news-events"> <h2 class="visually-hidden">Submenu news and events</h2> <ul class="menu menu--main"> <li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/news-events/news"><span>News</span></a> </li> <li class="expanded dropdown"> <a href="/news-events/president-updates"><span>President's updates</span></a> </li> <li class="expanded dropdown"> <a href="/news-events/podcasts"><span>Podcasts</span></a> </li> <li class="expanded dropdown"> <a href="/news-events/events"><span>Events</span></a> </li> <li class="expanded dropdown"> <a href="/news-events/rcpch-conference"><span>RCPCH Conference</span></a> </li> <li class="expanded dropdown"> <a href="https://roombookings.rcpch.ac.uk"><span>Meeting room hire</span></a> </li> </ul> </nav> </div> </div> </div> </div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15040"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-05/steve_turner-org-yellow_1.jpg?itok=Fdf_wNaX" width="315" height="157" alt="Professor Steve Turner, RCPCH President" title="Professor Steve Turner, RCPCH President" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">From Professor Steve Turner...</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">As RCPCH President, Steve shares regular updates with members by email and on this website - such as his regular feature on #WDYCD4Y: What Does Your College Do For You.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/news-events/president-updates" class="from-professor-steve-turner">President's updates</a></div> </div> </div></div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-3923"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2018-09/CYP%20engagement%20courses%20-%20adult%20and%20children%20in%20library%20environment.png?itok=_oQJZb8i" width="315" height="157" alt="" typeof="foaf:Image" title="" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Our engagement course in Scotland</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">How can you engage children and young people in your health service? Develop your skills in this new course in Stirling on Wednesday 27 November, when we'll dive into the tools for active engagement.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/education-careers/courses/rcpch-course/recipes-engagement-course-scotland" class="our-engagement-course-in-scotland">Course</a></div> </div> </div></div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15339"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-07/conf25_website-sidebar.png?itok=NpLNKkCD" width="315" height="157" alt="Repeated dynamic child in a circle icon " title="RCPCH Conference 2025" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">RCPCH Conference 2025</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">We've started preparing for next year's big event, which takes place from 26 to 28 March in Glasgow and online. And early bird tickets are now available, so you can book between now and 3 February for 15% off.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/news-events/rcpch-conference" class="rcpch-conference-2025">About Conference</a></div> </div> </div></div> </div> </div> </li> </ul> </section> </div> </div> <div class="slide-content"> <div class="region region-mobile-header"> <section class="block-userdropdownmenu-2 block block-rcpch-general block-user-menu"> <div class="quick-links-dropdown"> <button class="btn btn-default quick-links-dropdown-desktop dropdown-toggle" id="quick-links" data-toggle="dropdown" aria-haspopup="true" aria-expanded="false">Quick links<span class="caret"></span></button> <button class="hidden-lg btn fa fa-angle-down quick-links-dropdown-tablet btn-default dropdown-toggle" id="quick-links" data-toggle="dropdown" aria-haspopup="true" aria-expanded="false">Quick links</button> <ul class="dropdown-menu" aria-labelledby="quick-links"><li class="hidden-xs hidden-sm hidden-md"><a href="/saml_login" target="_blank">Log in</a></li><li class="hidden-xs hidden-sm hidden-md"><a href="/user/signup" target="_blank">Register</a></li><li role="separator" class="divider"></li><li><a href="/education-careers/examinations" target="_blank">Exams</a></li><li><a href="http://www.eportfolio.rcpch.ac.uk" target="_blank">ePortfolio</a></li><li><a href="http://www.eportfolio.rcpch.ac.uk/" target="_blank">CPD Diary</a></li><li><a href="http://learning.rcpch.ac.uk/" target="_blank">RCPCH Learning</a></li><li><a href="https://childprotection.rcpch.ac.uk/" target="_blank">Child Protection Portal</a></li><li><a href="https://adc.bmj.com/content/current" target="_blank">Archives of Disease in Childhood</a></li><li><a href="https://bmjpaedsopen.bmj.com/" target="_blank">BMJ Paediatrics Open</a></li><li><a href="/membership/committees" target="_blank">RCPCH Committees</a></li></ul></div> </section> <nav class="block-headermenu-2"> <ul class="menu nav"> <li class="expanded dropdown"> <a href="/get-involved" title="Support our work in child health - 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Many are hosted online.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/education-careers/courses/rcpch-course" class="our-upcoming-courses">Upcoming courses</a></div> </div> </div></div> </div> </div> </li> <li class="is-active mega-menu--item link-8"> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <a href="/work-we-do" aria-expanded="false" id="megamenu-work-we-do8" aria-controls="megamenu-sub-work-we-do13" data-drupal-link-system-path="node/425">Work we do</a> <div class="mega-menu--container"> <div class="field--name-field-mi-blocks field--type-entity-reference-revisions mega-menu--items"> <div class="paragraph-type-submenu_block col-sm-9 mega-menu--item"><div class="paragraph paragraph--type-submenu-block paragraph--view-mode-default ds-1col clearfix container-fluid"> <div class="container"> <div class="field field--name-submenu field--type-ds field--label-hidden field--item"><nav class="block-submenu-work-we-do"> <h2 class="visually-hidden">Submenu work we do</h2> <ul class="menu menu--main"> <li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/work-we-do/rcpch-strategy-2024-27"><span>RCPCH strategy</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/british-paediatric-surveillance-unit"><span>British Paediatric Surveillance Unit</span></a> </li> <li class="expanded dropdown active"> <a href="/work-we-do/clinical-audits" class="has-children"><span>Clinical audits</span></a> <button class="hidden-lg fa fa-angle-down open-arrow" aria-label="Expand"></button> <ul class="menu menu--main sub-menu"> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/child-protection-service-delivery-standards"><span>Child Protection Service Delivery Standards</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/epilepsy12"><span>Epilepsy12 Audit</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/nnap"><span>National Neonatal Audit Programme</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/clinical-audits/npda"><span>National Paediatric Diabetes Audit</span></a> </li> <li class="expanded dropdown active"> <a href="/resources/pghan-national-census-2021"><span>Paediatric Gastroenterology, Hepatology and Nutrition Audit</span></a> </li> </ul> </li> <li class="expanded dropdown"> <a href="/work-we-do/equality-diversity-inclusion"><span>Equality, diversity and inclusion</span></a> </li> </ul></li><li class="menu-column"><ul> <li class="expanded dropdown"> <a href="/work-we-do/global-child-health"><span>Global child health</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/public-affairs"><span>Public affairs</span></a> </li> <li class="expanded dropdown"> <a href="/work-we-do/QI-patient-safety" class="has-children"><span>Quality improvement and patient safety</span></a> <button class="hidden-lg fa fa-angle-down 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</li> </ul> </nav> </div> </div> </div> </div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15647"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-10/group-of-young-people-in-ring-looking-down-smiling-strategy.jpg?itok=dkw33jZm" width="315" height="157" alt="Group of young people in a ring looking down and smiling" typeof="foaf:Image" title="" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Our new College strategy</div> <div class="field 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field--label-hidden field--item">We have six recommendations to improve the safety of liquid medicines during the transition from hospital to home care. </div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/resources/management-unlicensed-liquid-medicines-recommendations" class="discharge-and-medication-safety">Medication safety guideline</a></div> </div> </div></div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15560"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-09/thrive-graphic-news.png?itok=AkcTgF0X" width="315" height="157" alt="Icon - hands holding a heart with a medical cross inside" title="Thrive Paediatrics" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">Thrive Paediatrics resource hub</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">Especially for members, our new hub offers evidence and good practice examples in wellbeing, plus stories from paediatricians' lived experience.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/resources/thrive-resource-hub" class="thrive-paediatrics-resource-hub">Resource hub</a></div> </div> </div></div> </div> </div> </li> <li class="mega-menu--item link-2"> <button class="hidden-lg fa fa-angle-down 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Develop your skills in this new course in Stirling on Wednesday 27 November, when we'll dive into the tools for active engagement.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/education-careers/courses/rcpch-course/recipes-engagement-course-scotland" class="our-engagement-course-in-scotland">Course</a></div> </div> </div></div> <div class="paragraph-type-cta_block col-sm-3 mega-menu--item"><div class="container-fluid paragraph paragraph--type--cta-block paragraph--view-mode--default"> <div class="container"> <div class="field field--name-field-ctab-image field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-menu-items media-image-15339"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/menu_items/public/2024-07/conf25_website-sidebar.png?itok=NpLNKkCD" width="315" height="157" alt="Repeated dynamic child in a circle icon " title="RCPCH Conference 2025" typeof="foaf:Image" class="img-responsive" /> </div> </div> </div> <div class="field field--name-field-ctab-title field--type-string field--label-hidden field--item">RCPCH Conference 2025</div> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">We've started preparing for next year's big event, which takes place from 26 to 28 March in Glasgow and online. And early bird tickets are now available, so you can book between now and 3 February for 15% off.</div> <div class="field field--name-field-ctab-link field--type-link field--label-hidden field--item"><a href="/news-events/rcpch-conference" class="rcpch-conference-2025">About Conference</a></div> </div> </div></div> </div> </div> </li> </ul> </section> </div> </nav> </div> </header> <div id="content-top" class="top-container"> <div class="container"> <div class="region region-content-top"> <div data-drupal-messages-fallback class="hidden"></div> <ol class="breadcrumb"> <li > <a href="/">Home</a> </li> <li > <a href="/resources">Resources</a> </li> </ol> </div> </div> </div> <div class="main-container content-container"> <div class="container"> <div class="row"> <section class="main-content-column col-sm-8"> <div id="main-content"></div> <div class="region region-content"> <h1 class="page-header"> <span>Paediatric Gastroenterology, Hepatology and Nutrition UK National Census 2021 - report</span> </h1> <div class="full-page-content node-document "> <div class="user-and-links"> <div class="field--bundle-author field field--name-field-sh-author field--type-entity-reference-revisions field--label-hidden field--item"><div class="paragraph paragraph--type-author paragraph--view-mode-default ds-1col clearfix container-fluid"> <div class="container"> <div class="field field--name-field-au-author-link field--type-entity-reference field--label-hidden field--item"><div class="node node--type-team-profile node--view-mode-author ds-1col clearfix"> <div class="field field--name-field-tp-logo field--type-entity-reference field--label-hidden field--item"><div class="media media-image view-mode-author media-image-14441"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <img loading="lazy" src="/sites/default/files/styles/author_50x50/public/2023-12/icon_rcpch-dynamic-child-aqua-180-px.png?itok=LxNa0_ME" width="50" height="50" alt="Icon: Dynamic child from RCPCH logo" typeof="foaf:Image" title="" class="img-responsive" /> </div> </div> </div> <div class="field field--name-node-title field--type-ds field--label-hidden field--item"> <a href="/about-us/our-team/audits-team" hreflang="en">Audits team</a> </div> </div> </div> </div> </div> </div> <div class="print__wrapper print__wrapper--pdf form-group"><a href="/print/pdf/node/4250" class="print__link print__link--pdf" target="_blank">Save as PDF</a></div> </div> <div class="intro-text clearfix"> <div class="field field--name-field-sh-introduction field--type-string-long field--label-hidden field--item">This report, published jointly by the British Society of Paediatric Gastroenterology, Hepatology and Nutrition (BSPGHAN) and RCPCH, highlights the main findings and recommendations identified through an audit of the provision of paediatric gastroenterology, hepatology and nutrition services for infants, children and young people with a wide range of conditions across the UK.<br /> <br /> Its recommendations offer healthcare professionals and providers expert guidance to drive improvement where needed.</div> </div> <div class="gray-box"> <div class="field field--name-field-dc-status field--type-entity-reference field--label-inline"> <div class="field--label">Status</div> <div class="field__items"> <div class="field--item"><a href="/stamp/partnership" hreflang="en">Partnership</a></div> </div> </div> <div class="field field--name-node-changed-date field--type-ds field--label-inline"> <div class="field--label">Last modified</div> <div class="field--item">16 December 2021</div> </div> <div class="field field--name-node-post-date field--type-ds field--label-inline"> <div class="field--label">Post date</div> <div class="field--item">16 December 2021</div> </div> </div> <div class="body-box"> <div class="field field--name-table-of-contents field--type-ds field--label-above"> <div class="field--label">Table of contents</div> <div class="field--item"><ul><li><a href="#key-findings-and-recommendations" class="smooth-scroll">Key findings and recommendations</a></li><li><a href="#voicematters" class="smooth-scroll">#VoiceMatters</a></li><li><a href="#background" class="smooth-scroll">Background</a></li><li><a href="#downloadBox" class="smooth-scroll">Downloads</a></li></ul></div> </div> <div class="field field--name-table-of-contents-sidebar field--type-ds field--label-above"> <div class="field--label">Contents</div> <div class="field--item"><ul><li><a href="#key-findings-and-recommendations" class="smooth-scroll">Key findings and recommendations</a></li><li><a href="#voicematters" class="smooth-scroll">#VoiceMatters</a></li><li><a href="#background" class="smooth-scroll">Background</a></li><li><a href="#downloadBox" class="smooth-scroll">Downloads</a></li></ul></div> </div> <div class="field field--name-field-sh-body field--type-text-long field--label-hidden field--item"><p>On this page you can <a href="#downloadBox">download the full report below</a> and access a summary of the key findings and recommendations. A supporting appendix of full audit results will be available soon.</p> <p>The PGHAN Audit Steering Group would like to thank all their colleagues across the UK who have put time and effort into collecting and submitting information for the audit whilst continuing to provide care to children, young people and their families during the incredibly challenging circumstances of the COVID-19 pandemic.</p> <h2 id="key-findings-and-recommendations">Key findings and recommendations</h2> <blockquote> <p>The findings of the report make a compelling case to formalise networks for the provision of PGHAN services. This is essential for the equitable delivery of high-quality care across the UK.</p> <p class="author-text">PGHAN Audit Steering Group</p> </blockquote> <p class="author-text">PGHAN Audit report findings and recommendations were identified by members of the PGHAN Audit Steering Group. Ten key recommendations across five domains of care are set out for commissioners, NHS Health Boards and Trusts and patients and families to improve the provision and quality of care provided to those with gastrointestinal, liver, and nutritional conditions and disorders.</p> <p class="author-text">These five domains are:</p> <ol><li class="author-text">Operational Delivery Networks</li> <li class="author-text">Workforce Requirements within a Network</li> <li class="author-text">Network Governance</li> <li class="author-text">Provision of PGHAN Care within the UK</li> <li class="author-text">Recovery of PGHAN Services following the COVID‐19 Pandemic</li> </ol><div class="align-center media media--type-embed-code media--view-mode-full-content ds-1col clearfix"> <div class="field field--name-embed-code field--type-ds field--label-hidden field--item"><div style="position:relative;padding-top:max(60%,326px);height:0;width:100%"><iframe sandbox="allow-top-navigation allow-top-navigation-by-user-activation allow-downloads allow-scripts allow-same-origin allow-popups allow-modals allow-popups-to-escape-sandbox" allowfullscreen="true" style="position:absolute;border:none;width:100%;height:100%;left:0;right:0;top:0;bottom:0;" data-cookiecategory="marketing" data-src="https://e.issuu.com/embed.html?backgroundColor=%23F3F3F3&d=rcpch_pghan_summary_a4_r7&hideIssuuLogo=true&u=joballrcpch"></iframe></div></div> </div> <blockquote> <p>Our audit data demonstrates considerable variation in the level of provision by specialist centres with respect to on-call arrangements for specialist care or advice, paediatric endoscopy services, network governance arrangements, and staffing levels between centres, and regions, within the UK.</p> <p class="author-text">Dr Edward Gaynor and Dr John Fell, Consultant Paediatric Gastroenterologists, PGHAN Audit Clinical leads</p> </blockquote> <h2 id="voicematters">#VoiceMatters</h2> <p>The #VoiceMatters section of the PGHAN Audit report, prepared by the RCPCH Children & Young People Engagement team and RCPCH &Us network, raises the views of children, young people and their families. These can be used to inform practice and discussions within clinical teams and Multidisciplinary team (MDT) colleagues, as well as improve understanding and awareness of patient and family experiences.</p> <blockquote> <p>There are not enough specialist doctors, here and at another big hospital. My GP doesn’t understand about the gastro condition, so I had to research and give information to the GP.</p> <p class="author-text">RCPCH &Us</p> </blockquote> <blockquote> <p>My gastro service is good at solving the problem, they forward you on to alternative clinics and follow up quickly.</p> <p class="author-text">RCPCH &Us</p> </blockquote> <h2 id="background">Background</h2> <p>From 2020 to early 2021, BSPGHAN and RCPCH conducted a national audit to provide a comprehensive understanding of the provision of PGHAN services in the UK. The audit was based on quality standards produced jointly by both organisations in 2017.</p> <dl class="ckeditor-accordion"><dt>Setting the quality standards for paediatric services </dt> <dd> <p>In 2010, RCPCH set out standards for high quality, safe and sustainable acute general paediatric services in its publication, <a href="/resources/facing-future-standards-acute-general-paediatric-services">Facing the Future: Standards for Acute General Paediatric Services</a>.</p> <p>As this document was being revised, paediatric clinical directors highlighted the interaction between secondary and tertiary services was highlighted as an area of concern where they would welcome further guidance.</p> <p>BSPGHAN and the College particularly recognised that areas of improvement were required in gastroenterology, hepatology and nutrition to ensure that children and young people receive timely, high quality services as close to home as possible. They subsequently worked together to develop and publish the <a href="/resources/quality-standards-specialist-paediatric-gastroenterology-hepatology-nutrition">Quality Standards for Paediatric Gastroenterology, Hepatology and Nutrition</a> in 2017.</p> </dd> <dt>Developing the national audit</dt> <dd> <p>Following the publication of these quality standards, BSPGHAN and the RCPCH conducted a national audit in 2020 to provide a comprehensive understanding of the provision of PGHAN services and to:</p> <ul><li>improve health outcomes and the quality of life for all infants, children and young people receiving care for gastroenterology, liver or intestinal disorders throughout the UK</li> <li>identify any unwarranted variation in care and ensure that equitable services are available for all infants, children and young people in the provision of gastroenterology, hepatology and nutrition services across the UK audit paediatric centres against measures which align with nine quality standards focusing on providing specialist gastroenterology, hepatology and nutrition services in the UK</li> <li>understand how paediatric services are providing care to local populations and whether system leaders are planning and commissioning services effectively in networks</li> <li>inform the RCPCH, its members and healthcare professionals of future work that is needed to improve the quality of care provided to infants, children and young people with PGHAN needs.</li> </ul><p>The PGHAN Audit was launched by the audit clinical leads and project coordinator at the BSPGHAN annual general meeting in January 2020, pictured below.</p> <div class="align-center media media-image view-mode-full-content media-image-7150"> <div class="field field--name-field-media-image field--type-image field--label-hidden field--item"> <picture><source srcset="/sites/default/files/styles/max_1200px_1x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=KBTbuyKq 1x, /sites/default/files/styles/max_1200px_2x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=fKhGUIZi 2x" media="all and (min-width: 1200px)" type="image/jpeg" width="756" height="567"></source><source srcset="/sites/default/files/styles/max_992px_1x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=qYGN0ExU 1x, /sites/default/files/styles/max_992px_2x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=KCc2v9vi 2x" media="all and (min-width: 992px)" type="image/jpeg" width="756" height="567"></source><source srcset="/sites/default/files/styles/max_768px_1x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=i59_CyG_ 1x, /sites/default/files/styles/max_768px_2x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=MCs00ybO 2x" media="all and (min-width: 768px)" type="image/jpeg" width="756" height="567"></source><source srcset="/sites/default/files/styles/max_768px_1x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=i59_CyG_ 1x, /sites/default/files/styles/max_768px_2x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=MCs00ybO 2x" type="image/jpeg" width="756" height="567"></source><img loading="lazy" src="/sites/default/files/styles/max_1200px_1x/public/2020-02/pghan_audit_team_at_bspghan_annual_general_meeting_-_january_2020.jpg?itok=KBTbuyKq" width="756" height="567" alt="" typeof="foaf:Image" title="" class="img-responsive" /></picture></div> </div> </dd> <dt>Collecting the data</dt> <dd> <p>The audit received 107 data submissions by the data entry deadline of 28 February 2021 from centres within NHS Health Boards and Trusts across the UK as follows:</p> <ul><li>27 Self-Declared Gastroenterology and Nutrition Specialised Centres</li> <li>3 Self-Declared Hepatology Specialised Centres</li> <li>77 Non-specialist Centres</li> </ul></dd> <dt>The audit steering group</dt> <dd> <p>The PGHAN Audit was delivered by the Audits Team at the RCPCH, and its methodology and plan of work is overseen by a steering group comprised of representatives of the following organisations:</p> <ul><li>British Society of Paediatric Gastroenterology, Hepatology and Nutrition</li> <li>British Association of Parental and Enteral Nutrition</li> <li>Coeliac UK</li> <li>Crohn’s & Colitis UK</li> <li>Crohn’s in Childhood Research Association</li> </ul><p>The audit steering group was chaired by Dr John Fell, Lead Paediatric Gastroenterologist at the Chelsea and Westminster Hospital and Dr Ed Gaynor, Consultant in Paediatric Gastroenterology, Great Ormond Street Hospital (GOSH) as co-chair.</p> </dd> </dl></div> </div> <div id="downloadBox" class="download-box"> <div class="field field--name-field-dc-external-links field--type-link field--label-above media-public-file"> <div class="field--label">External links</div> <div class="field--item file"><span class="file-icon"></span><span class="file-link"><a href="https://bspghan.org.uk/" target="_blank">British Society of Paediatric Gastroenterology, Hepatology and Nutrition</a></span></div> </div> <div class="field field--name-field-sh-downloads field--type-entity-reference field--label-above"> <div class="field--label">Downloads</div> <div class="field__items"> <div class="field--item"><div class="media media-public-file view-mode-full-content media-public_file-10522"> <div class="field field--name-field-media-public-file field--type-file field--label-hidden field--item"><span class="file file--mime-application-pdf file--application-pdf icon-before"><span class="file-icon"></span><span class="file-link"><a href="https://www.rcpch.ac.uk/sites/default/files/2021-12/PGHAN-UK-national-census-report-2021-BSPGHAN-and-RCPCH.pdf" type="application/pdf; length=2148226" target="_blank" title="PGHAN-UK-national-census-report-2021-BSPGHAN-and-RCPCH.pdf">PGHAN national census 2021 - full report</a></span><span class="file-size">2.05 MB</span></span></div> </div> </div> <div class="field--item"><div class="media media-public-file view-mode-full-content media-public_file-10523"> <div class="field field--name-field-media-public-file field--type-file field--label-hidden field--item"><span class="file file--mime-application-pdf file--application-pdf icon-before"><span class="file-icon"></span><span class="file-link"><a href="https://www.rcpch.ac.uk/sites/default/files/2021-12/PGHAN-UK-national-census-report-2021-summary-BSPGHAN-and-RCPCH.pdf" type="application/pdf; length=353610" target="_blank" title="PGHAN-UK-national-census-report-2021-summary-BSPGHAN-and-RCPCH.pdf">PGHAN national census 2021 - summary of recommendations</a></span><span class="file-size">345.32 KB</span></span></div> </div> </div> </div> </div> </div> <div class="tags"> <div class="field 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