Rare Diseases

<!DOCTYPE html>   <html lang="pt">  <head> <meta charset="utf-8" /> <meta http-equiv="X-UA-Compatible" content="IE=edge"> <meta http-equiv="Content-type" content="text/html; charset=utf-8"> <meta name="viewport" content="width=device-width, initial-scale=1, maximum-scale=1, user-scalable=no"> <meta name="msapplication-TileImage" content="/Content/Shotgun/img/favicon/ms-icon-144x144.png?v=4" /> <link rel="apple-touch-icon-precomposed" href="/Content/Shotgun/img/favicon/apple-icon-precomposed.png?v=4" /> <link rel="icon" href="/Content/Shotgun/img/favicon/favicon.ico?v=4" /><style> .coveo-card-layout a::after { display: none !important; } </style> <script>(function(w,d,s,l,i){w[l]=w[l]||[];w[l].push({'gtm.start': new Date().getTime(),event:'gtm.js'});var f=d.getElementsByTagName(s)[0], j=d.createElement(s),dl=l!='dataLayer'?'&l='+l:'';j.async=true;j.src= 'https://www.googletagmanager.com/gtm.js?id='+i+dl;f.parentNode.insertBefore(j,f); })(window,document,'script','dataLayer','GTM-P97VBCW');</script> <meta name="google-site-verification" content="EyIQB7GdOQ83t4xrzV8zE-Gs_mjfgD-VO1TZkSkbKSc" />  <title>Rare Diseases - IQVIA</title>  <link rel="canonical" href="https://www.iqvia.com/solutions/therapeutics/rare-diseases" /> <meta name="description" content="Accelerate your fight against rare diseases with a tailored approach backed by IQVIA's industry-leading data, analytics, technology and deep expertise." /> <meta name="iq:business_area" content="Real World,Consulting,Research and Development Solutions" /> <meta name="iq:market_segment" content="Emerging Biopharma,Traditional or branded Pharma,Generics" /> <meta name="iq:regional_business_unit" content="Global" /> <meta name="iq:therapeutic_areas" content="Oncology,Neurology,Pediatrics,Other" /> <meta property="og:title" content="Rare Diseases" /> <meta property="twitter:title" content="Rare Diseases" /> <meta property="og:image" content="https://www.iqvia.com/-/media/iqvia/images/modules/brandworld/222_doctors-analyzing-data-on-laptop.jpg" /> <meta property="twitter:image" content="https://www.iqvia.com/-/media/iqvia/images/modules/brandworld/222_doctors-analyzing-data-on-laptop.jpg" /> <meta property="og:description" content="<h3>We rise to the challenge with you</h3> <p><strong>Global reach and impact:</strong> IQVIA's rare disease solutions span thousands of clinical sites worldwide, ensuring broad access and efficient trials. Your work brings hope to over 350 million people affected by more than 7,000 rare diseases. </p> <p><strong>Clinical delivery expertise:</strong> Our team includes highly experienced Clinical Research Associates (CRAs) and Patient Leads (PLs) with specialized expertise in rare diseases across all major regions. </p> <p> <strong>Passion and commitment:</strong> Our dedicated team is committed to improving the lives of rare disease patients, ensuring compassionate, patient-centric care. </p> <p> <strong>Global Site Network:</strong> IQVIA&rsquo;s global network accelerates study start-up times, enhances patient recruitment, and leverages key relationships with KOLs and geneticists. </p>" /> <meta property="twitter:description" content="<h3>We rise to the challenge with you</h3> <p><strong>Global reach and impact:</strong> IQVIA's rare disease solutions span thousands of clinical sites worldwide, ensuring broad access and efficient trials. Your work brings hope to over 350 million people affected by more than 7,000 rare diseases. </p> <p><strong>Clinical delivery expertise:</strong> Our team includes highly experienced Clinical Research Associates (CRAs) and Patient Leads (PLs) with specialized expertise in rare diseases across all major regions. </p> <p> <strong>Passion and commitment:</strong> Our dedicated team is committed to improving the lives of rare disease patients, ensuring compassionate, patient-centric care. </p> <p> <strong>Global Site Network:</strong> IQVIA&rsquo;s global network accelerates study start-up times, enhances patient recruitment, and leverages key relationships with KOLs and geneticists. </p>" /> <meta property="og:url" content="https://www.iqvia.com/pt-pt/solutions/therapeutics/rare-diseases" /> <meta property="twitter:site" content="https://www.iqvia.com/pt-pt/solutions/therapeutics/rare-diseases" /> <link href="/Content/Shotgun/css/coveo?v=5f2TXK9t8FlC_0aw4cAoVYcmCiwv63sB9xo1gz4KnGg1" 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class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/pharmaceutical-manufacturers">Pharmaceutical Manufacturers</a></li> </ol> </div> <div class="w-22 "> <h5 class="">HEALTHCARE SEGMENTS</h5> <ol> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/information-partner-services">Information Partner Services</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/financial-institutions">Financial Institutions</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/about-us/commitment-to-public-health">Global Public Health</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/public-health-and-government">Government</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/patient-associations">Patient Associations</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/payers">Payers</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/industry-segments/providers">Providers</a></li> </ol> </div> <div class="w-22 "> <h5 class="">THERAPEUTIC AREAS</h5> <ol> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/cardiovascular">Cardiovascular</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/cell-and-gene-therapy">Cell and Gene Therapy</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/central-nervous-system">Central Nervous System</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/gi-and-hepatology">GI & Hepatology</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/infectious-diseases-and-vaccines">Infectious Diseases and Vaccines</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/oncology">Oncology</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/pediatrics">Pediatrics</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/pt-pt/solutions/therapeutics/rare-diseases">Rare Diseases</a></li> <li class="hover-color-blue"><a class=white-space-no-wrap text-decoration-none href="https://www.iqvia.com/solutions/therapeutics#viewall">View All</a></li> </ol> </div> <div class="w-34 full-bg"> <div class="card-wrapper "> <div class="card"> <img src="/-/media/iqvia/images/our-impact/our-impact.jpeg?h=720&w=1280&hash=83684E8436D9E61011F7A8186B9E33E3"> <h5 class="title">Impacting People's Lives</h5> <p class="description">We strive to help improve outcomes and create a healthier, more sustainable world for people everywhere.</p> <a class="hover-color-blue-with-anim" href="https://www.iqvia.com/pt-pt/about-us/our-impact"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 "> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/rdssolutionartwhite_outlines.png?h=600&w=600&hash=2951AF0F5AF13EB584FD90B004210E65"> </div> <div class="w-33"> <h3>Harness the power to transform clinical development</h3> <p>Reimagine clinical development by intelligently connecting data, technology, and analytics to optimize your trials. The result? Faster decision making and reduced risk so you can deliver life-changing therapies faster.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/research-and-development" style="max-width: 303px;">Research & Development Overview</a> </div> <div class="w-33"> <h6 class="pt-0 border-left pb-11 mt-0">Research & Development Quick Links</h6> <ol class="border-left"> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/clinical-trials">Clinical Trials</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/functional-services">Functional Services</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/decentralized-trials">Decentralized Trials</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/consulting">Consulting</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics">Therapeutic Expertise</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/site-and-investigators">Site and Investigators</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/global-laboratories">Global Laboratories</a></li> </ol> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 "> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/rwesolutionartwhite_outlines.png?h=600&w=600&hash=F6C2B1387FB0C98A6EA794984CB85B6B"> </div> <div class="w-33"> <h3>Real World Evidence. Real Confidence. Real Results.</h3> <p>Generate and disseminate evidence that answers crucial clinical, regulatory and commercial questions, enabling you to drive smarter decisions and meet your stakeholder needs with confidence.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence" style="max-width: 303px;">REAL WORLD EVIDENCE OVERVIEW</a> </div> <div class="w-33"> <h6 class="pt-0 border-left pb-11 mt-0">Real World Evidence Quick Links</h6> <ol class="border-left"> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/real-world-data-and-insights">Real World & Health Data Sets</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/medical-affairs">Medical Affairs</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai">Health Data Apps & AI</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-transformation">Health Data Transformation</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/study-design">Study Design</a></li> </ol> <ol class="border-left"> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/evidence-networks">Evidence Networks</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-economics-and-value">Health Economics & Value</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/regulatory-and-safety">Regulatory and Safety</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/iqvia-nlp-platform">Natural Language Processing</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/insights">Real World Evidence Library</a></li> </ol> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 "> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/commercializationsolutionartwhite_outlines.png?h=600&w=601&hash=87F88AAD474D46B8E87146822C57D5E3"> </div> <div class="w-33"> <h3>See markets more clearly. Opportunities more often.</h3> <p>Elevate commercial models with precision and speed using AI-driven analytics and technology that illuminate hidden insights in data.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/commercialization" style="max-width: 303px;">COMMERCIALIZATION OVERVIEW</a> </div> <div class="w-33"> <h6 class="pt-0 border-left pb-11 mt-0">Commercialization Quick Links</h6> <ol class="border-left"> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/covid-19-and-commercialization">COVID-19 & Commercialization</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/launch-strategy-and-management">Launch Strategy & Management</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/brand-strategy-and-management">Brand Strategy & Management</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/pricing-and-market-access">Pricing & Market Access</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/healthcare-professional-engagement">Healthcare Professional Engagement</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/patient-engagement-and-support">Patient Engagement and Support</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/promotional-strategy">Promotional Strategy</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/established-brands-optimization">Established Brands Optimization</a></li> </ol> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 "> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/compliancesolutionartwhite_outlines.png?h=600&w=600&hash=B1920C3D73F8BBBB31B381CAE5BBE75F"> </div> <div class="w-33"> <h3>Service driven. Tech-enabled. Integrated compliance.</h3> <p>Orchestrate your success across the complete compliance lifecycle with best-in-class services and solutions for safety, regulatory, quality and medical information.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance" style="max-width: 303px;">COMPLIANCE OVERVIEW</a> </div> <div class="w-33"> <h6 class="pt-0 border-left pb-11 mt-0">Safety & Regulatory Compliance Quick Links</h6> <ol class="border-left"> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/safety-and-pharmacovigilance">Safety Pharmacovigilance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/regulatory-compliance">Regulatory Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/quality-compliance">Quality Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/medical-information">Medical Information</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/commercial-compliance">Commercial Compliance</a></li> </ol> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 "> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/techsolutionartwhite_outlines.png?h=600&w=600&hash=3F741080B4AA6100EAE1111FB0649C08"> </div> <div class="w-33"> <h3>Intelligence that transforms life sciences end-to-end.</h3> <p>When your destination is a healthier world, making intelligent connections between data, technology, and services is your roadmap.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/technologies" style="max-width: 303px;">TECHNOLOGIES OVERVIEW</a> </div> <div class="w-33"> <h6 class="pt-0 border-left pb-11 mt-0">Technology Quick Links</h6> <ol class="border-left"> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials">Orchestrated Clinical Trials</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/information-management">Enterprise Information Management</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights">Performance Management & Insights</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/healthcare-professional-engagement/onekey/onekey-hcp-reference-data">Provider Reference Data Network</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/customer-engagement">Customer Engagement</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/commercial-compliance">Commercial Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/safety-regulatory-and-quality">Safety, Regulatory, Quality Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/developer">Developer</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/partner-programs">Partner Programs</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/insights">Technology Insights</a></li> </ol> </div> </div> </div> </div> </div> </div> </div> </div> </div> </li> <li> <a class="color-white" href="#">Products</a> <div class="primary-nav-wrapper"> <div class="content product-selector"> <div class="shadow"></div> <div class="d-flex remove-last"> <div class="w-22 pt-35 pb-35"> <h5 class="">CLINICAL PRODUCTS</h5> <ol> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/planning-suite">Planning Suite</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/planning-suite/grantplan">Grant Plan</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite">Site Suite</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite/clinical-trial-payments">Clinical Trial Payments</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite/investigator-site-portal">Investigator Site Portal</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite/one-home-for-sites">One Home for Sites</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/patient-engagement-suite">Patient Engagement Suite</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/patient-engagement-suite/ecoa">Electronic Clinical Outcome Assessment (eCOA)</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/patient-engagement-suite/interactive-response-technology">Interactive Response Technology (IRT)</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/clinical-data-analytics-solutions">Clinical Data Analytics Solutions</a></li> </ol> </div> <div class="w-22 pt-35 pb-35"> <h5 class="">COMMERCIAL PRODUCTS</h5> <ol> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/information-management">Information Management</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/launch-strategy-and-management">Launch Strategy & Management</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/pricing-and-market-access">Pricing & Market Access</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/brand-strategy-and-management">Brand Strategy & Management</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/promotional-strategy">Promotional Engagement</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights">Performance Management & Insights</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights/orchestrated-analytics">Orchestrated Analytics</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights/orchestrated-analytics/next-best">Next Best Action</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/technologies/customer-engagement">Customer Engagement (OCE)</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/patient-engagement-and-support">Patient Engagement and Support</a></li> </ol> </div> <div class="w-22 pt-35 pb-35"> <h5 class="">COMPLIANCE, SAFETY, REG PRODUCTS</h5> <ol> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/safety-and-pharmacovigilance/iqvia-vigilance-platform">IQVIA Vigilance Platform</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/commercial-compliance">Commercial Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/regulatory-compliance">Regulatory Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/regulatory-compliance/iqvia-rim-smart">RIM Smart</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/quality-compliance">Quality Compliance</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/quality-compliance/smartsolve-eqms">SmartSolve eQMS</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/safety-and-pharmacovigilance">Safety & Pharmacovigilance</a></li> </ol> </div> <div class="w-22 pt-35 pb-35"> <h5 class="">REAL WORLD PRODUCTS</h5> <ol> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai">Health Data Apps & AI</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/analytics-research-accelerator">Analytics Research Accelerator</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/expert-ecosystem">Expert Ecosystem</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/ai-driven-hcp-and-patient-profiling-commercial">AI Patient & HCP Profiling- Commercial</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/ai-driven-patient-and-provider-profiling">AI Patient & Provider Profiling- Med Affairs</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/ai-driven-hcp-and-patient-profiling">AI Patient & HCP Profiling- Healthcare</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/iqvia-nlp-platform">Natural Language Processing</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-economics-and-value/market-access-insights">Market Access Insights</a></li> <li class="hover-color-blue"><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/study-design/health-research-space">Direct-to-Patient Research</a></li> </ol> </div> <div class="w-28 "> <div class="card-wrapper h-100"> <div class="card"> <img src="/-/media/iqvia/images/modules/brandworld/2121_business-woman-using-dashboard-on-screen.png?h=683&w=1024&hash=598F2F336961970EA76EED465B050DDE"> <h5 class="title">CASE STUDY</h5> <p class="description">Data in a Day</p> <a class="hover-color-blue-with-anim" href="https://www.iqvia.com/pt-pt/library/case-studies/data-in-a-day"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> </div> </div> </div> </li> <li> <a class="color-white" href="#">Insights</a> <div class="primary-nav-wrapper"> <div class="content insights"> <div class="shadow"></div> <div class="d-flex remove-last"> <div class="w-50"> <div class="d-flex pt-75"> <div class="w-50"> <h5>BLOGS, WHITE PAPERS & CASE STUDIES</h5> <p>Explore our library of insights, thought leadership, and the latest topics & trends in healthcare. </p> <a class="hover-color-blue-with-anim" href="https://www.iqvia.com/pt-pt/insights/points-of-view"> DISCOVER INSIGHTS <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> <div class="w-50"> <h5>THE IQVIA INSTITUTE</h5> <p>An in-depth exploration of the global healthcare ecosystem with timely research, insightful analysis, and scientific expertise.</p> <a class="hover-color-blue-with-anim" href="https://www.iqvia.com/pt-pt/insights/the-iqvia-institute"> SEE LATEST REPORTS <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> <div class="w-65"> <div class="d-flex"> <div class="w-33"> <div class="card-wrapper"> <div class="card"> <img src="/-/media/iqvia/pdfs/institute-reports/digital-health-trends-2024/iqi-report-digital-health-2024-part-1-12-24-feature-594x345.png?h=345&w=594&hash=CB26A75D15140F5E109A75955E171EBF"> <h5 class="title">INSTITUTE REPORT</h5> <p class="description">Digital Health Trends 2024 - Implications for Research and Patient Care</p> <a 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leadership with a focus on EMEA.</p> <a class="hover-color-blue-with-anim" href="https://www.iqvia.com/pt-pt/locations/emea/emea-thought-leadership"> Learn more <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> <div class="w-33"> <div class="card-wrapper"> <div class="card"> <img src="/-/media/iqvia/images/modules/brandworld/1127_group-of-financial-professionals-analyzing-markets.jpg?h=683&w=1024&hash=D7AA7657AB60304BB7B82999AEDA1D96"> <h5 class="title">WHITE PAPER</h5> <p class="description">DCTs Deliver Big 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<g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/homepagehero_ci.png?h=1058&w=1200&hash=E6F7621F8CB48BC6EA4D48B02F63F8E1"> </div> <div class="w-33"> <h3>Unlock your potential to drive healthcare forward</h3> <p>By making intelligent connections between your needs, our capabilities, and the healthcare ecosystem, we can help you be more agile, accelerate results, and improve patient outcomes.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/about-us/iqvia-connected-intelligence" style="max-width: 303px;">LEARN MORE</a> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <img src="/-/media/iqvia/images/modules/brandworld/2767_portrait-of-two-engineers-using-laptop-casually-chatting-in-high-tech-research.png?h=540&w=1024&hash=6EE14B9365C7977C3B07A43B65C71B45"> </div> <div class="w-33"> <h3>IQVIA AI is Healthcare-grade AI</h3> <p>Building on a rich history of developing AI for healthcare, IQVIA AI connects the right data, technology, and expertise to address the unique needs of healthcare. It's what we call Healthcare-grade AI.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/innovative-models/artificial-intelligence-and-machine-learning" style="max-width: 303px;">LEARN MORE</a> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <h3></h3> <p></p> <a class="btn" href="" style="max-width: 303px;"></a> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <img src="/-/media/iqvia/images/blogs/2116_abstract-background-with-luminous-particles.jpg?h=675&w=1200&hash=6102399574165D0ABCB89791A890BF2D"> </div> <div class="w-33"> <h3>Your healthcare data deserves more than just a cloud.</h3> <p>The IQVIA Human Data Science Cloud is our unique capability designed to enable healthcare-grade analytics, tools, and data management solutions to deliver fit-for-purpose global data at scale.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/human-data-science-cloud" style="max-width: 303px;">LEARN MORE</a> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/innovationhubheroimage.png?h=3175&w=3375&hash=03A3A2DB1F3EFF368CD63BA86426159D"> </div> <div class="w-33"> <h3>Innovations make an impact when bold ideas meet powerful partnerships</h3> <p>The IQVIA Innovation Hub connects start-ups with the extensive IQVIA network of assets, resources, clients, and partners. Together, we can help lead the future of healthcare with the extensive IQVIA network of assets, resources, clients, and partners.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/about-us/innovation-hub" style="max-width: 303px;">LEARN MORE</a> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <img src="/-/media/iqvia/images/navigation/208_woman-using-tablet-on-sofa-cropped_600.jpg?h=683&w=1024&hash=113B49B766D4F49F5E147F481F8316EA"> </div> <div class="w-33"> <h3>Proven, faster DCT solutions</h3> <p>IQVIA Decentralized Trials deliver purpose-built clinical services and technologies that engage the right patients wherever they are. Our hybrid and fully virtual solutions have been used more than any others.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/research-and-development/decentralized-trials" style="max-width: 303px;">LEARN MORE</a> </div> </div> </div> <div class="item bg h-100 align-center"> <div class="d-flex align-center w-100 no-links"> <div class="w-33"> <img src="/-/media/iqvia/images/apple/applewatchpatient.png?h=683&w=1024&hash=E32CDCB8BE1C8513D26ACAADA5B282A9"> </div> <div class="w-33"> <h3>IQVIA Patient Experience Solutions with Apple devices</h3> <p>Empowering patients to personalize their healthcare and connecting them to caregivers has the potential to change the care delivery paradigm.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/about-us/iqvia-patient-experience-solutions-with-apple-devices" style="max-width: 303px;">LEARN MORE</a> </div> </div> </div> </div> </div> </div> </div> </div> </div> </li> <li> <a class="color-white" href="#">Careers</a> <div class="primary-nav-wrapper"> <div class="content careers"> <div class="shadow"></div> <div class="d-flex "> <div class="w-50"> <div class="d-flex pt-75"> <div class="w-50"> <h5>WORKING AT IQVIA</h5> <p>Our mission is to accelerate innovation for a healthier world. Together, we can solve customer challenges and improve patient lives.</p> <a class="hover-color-blue-with-anim" href="https://jobs.iqvia.com/"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> <div class="w-50"> <h5>LIFE AT IQVIA</h5> <p>Careers, culture and everything in between. 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href="https://www.iqvia.com/pt-pt/solutions/industry-segments/pharmaceutical-manufacturers">Pharmaceutical Manufacturers</a></li> </ul> <h6 class="mt-0">HEALTHCARE SEGMENTS</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/industry-segments/information-partner-services">Information Partner Services</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/industry-segments/financial-institutions">Financial Institutions</a></li> <li><a href="https://www.iqvia.com/pt-pt/about-us/commitment-to-public-health">Global Public Health</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/industry-segments/public-health-and-government">Government</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/industry-segments/patient-associations">Patient Associations</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/industry-segments/payers">Payers</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/industry-segments/providers">Providers</a></li> </ul> <h6 class="mt-0">THERAPEUTIC AREAS</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/cardiovascular">Cardiovascular</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/cell-and-gene-therapy">Cell and Gene Therapy</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/central-nervous-system">Central Nervous System</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/gi-and-hepatology">GI & Hepatology</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/infectious-diseases-and-vaccines">Infectious Diseases and Vaccines</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/oncology">Oncology</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/pediatrics">Pediatrics</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics/rare-diseases">Rare Diseases</a></li> <li><a href="https://www.iqvia.com/solutions/therapeutics#viewall">View All</a></li> </ul> <div class="card-wrapper"> <div class="card"> <img src="/-/media/iqvia/images/our-impact/our-impact.jpeg?h=720&w=1280&hash=83684E8436D9E61011F7A8186B9E33E3"> <h4 class="mt-30">Impacting People's Lives</h4> <p>"We strive to help improve outcomes and create a healthier, more sustainable world for people everywhere.</p> <a class="btn-redirect" href="https://www.iqvia.com/pt-pt/about-us/our-impact" target="_blank"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> <div class="tabs"> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/rdssolutionartwhite_outlines.png?h=600&w=600&hash=2951AF0F5AF13EB584FD90B004210E65"> <h5>Harness the power to transform clinical development</h5> <p>Reimagine clinical development by intelligently connecting data, technology, and analytics to optimize your trials. The result? Faster decision making and reduced risk so you can deliver life-changing therapies faster.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/research-and-development">Research & Development Overview</a> <div class="hr"></div> <h6>Research & Development Quick Links</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/clinical-trials">Clinical Trials</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/functional-services">Functional Services</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/decentralized-trials">Decentralized Trials</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/consulting">Consulting</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/therapeutics">Therapeutic Expertise</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/site-and-investigators">Site and Investigators</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/research-and-development/global-laboratories">Global Laboratories</a></li> </ul> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/rwesolutionartwhite_outlines.png?h=600&w=600&hash=F6C2B1387FB0C98A6EA794984CB85B6B"> <h5>Real World Evidence. Real Confidence. Real Results.</h5> <p>Generate and disseminate evidence that answers crucial clinical, regulatory and commercial questions, enabling you to drive smarter decisions and meet your stakeholder needs with confidence.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence">REAL WORLD EVIDENCE OVERVIEW</a> <div class="hr"></div> <h6>Real World Evidence Quick Links</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/real-world-data-and-insights">Real World & Health Data Sets</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/medical-affairs">Medical Affairs</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai">Health Data Apps & AI</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-transformation">Health Data Transformation</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/study-design">Study Design</a></li> </ul> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/evidence-networks">Evidence Networks</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-economics-and-value">Health Economics & Value</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/regulatory-and-safety">Regulatory and Safety</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/iqvia-nlp-platform">Natural Language Processing</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/insights">Real World Evidence Library</a></li> </ul> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/commercializationsolutionartwhite_outlines.png?h=600&w=601&hash=87F88AAD474D46B8E87146822C57D5E3"> <h5>See markets more clearly. Opportunities more often.</h5> <p>Elevate commercial models with precision and speed using AI-driven analytics and technology that illuminate hidden insights in data.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/commercialization">COMMERCIALIZATION OVERVIEW</a> <div class="hr"></div> <h6>Commercialization Quick Links</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/covid-19-and-commercialization">COVID-19 & Commercialization</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/launch-strategy-and-management">Launch Strategy & Management</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/brand-strategy-and-management">Brand Strategy & Management</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/pricing-and-market-access">Pricing & Market Access</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/healthcare-professional-engagement">Healthcare Professional Engagement</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/patient-engagement-and-support">Patient Engagement and Support</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/promotional-strategy">Promotional Strategy</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/established-brands-optimization">Established Brands Optimization</a></li> </ul> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/compliancesolutionartwhite_outlines.png?h=600&w=600&hash=B1920C3D73F8BBBB31B381CAE5BBE75F"> <h5>Service driven. Tech-enabled. Integrated compliance.</h5> <p>Orchestrate your success across the complete compliance lifecycle with best-in-class services and solutions for safety, regulatory, quality and medical information.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance">COMPLIANCE OVERVIEW</a> <div class="hr"></div> <h6>Safety & Regulatory Compliance Quick Links</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/safety-and-pharmacovigilance">Safety Pharmacovigilance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/regulatory-compliance">Regulatory Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/quality-compliance">Quality Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/medical-information">Medical Information</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/commercial-compliance">Commercial Compliance</a></li> </ul> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/techsolutionartwhite_outlines.png?h=600&w=600&hash=3F741080B4AA6100EAE1111FB0649C08"> <h5>Intelligence that transforms life sciences end-to-end.</h5> <p>When your destination is a healthier world, making intelligent connections between data, technology, and services is your roadmap.</p> <a class="btn" href="https://www.iqvia.com/pt-pt/solutions/technologies">TECHNOLOGIES OVERVIEW</a> <div class="hr"></div> <h6>Technology Quick Links</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials">Orchestrated Clinical Trials</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/information-management">Enterprise Information Management</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights">Performance Management & Insights</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/healthcare-professional-engagement/onekey/onekey-hcp-reference-data">Provider Reference Data Network</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/customer-engagement">Customer Engagement</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/commercial-compliance">Commercial Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/safety-regulatory-and-quality">Safety, Regulatory, Quality Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/developer">Developer</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/partner-programs">Partner Programs</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/insights">Technology Insights</a></li> </ul> </div> </div> </div> <div class="item-wrapper-mobile list " data-attribute="products"> <div class="breadcrumbs"><span class="go-home">MAIN</span>/<span>Products</span></div> <div class="breadcrumbs d-none" style="padding-bottom:30px;"><span class="go-main">Products</span>/<span></span></div> <div class="lists"> <div class="tab-item"> <h5>CLINICAL PRODUCTS</h5> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/planning-suite">Planning Suite</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/planning-suite/grantplan">Grant Plan</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite">Site Suite</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite/clinical-trial-payments">Clinical Trial Payments</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite/investigator-site-portal">Investigator Site Portal</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/digital-site-suite/one-home-for-sites">One Home for Sites</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/patient-engagement-suite">Patient Engagement Suite</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/patient-engagement-suite/ecoa">Electronic Clinical Outcome Assessment (eCOA)</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/patient-engagement-suite/interactive-response-technology">Interactive Response Technology (IRT)</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/orchestrated-clinical-trials/clinical-data-analytics-solutions">Clinical Data Analytics Solutions</a></li> </ul> </div> <div class="tab-item"> <h5>COMMERCIAL PRODUCTS</h5> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/information-management">Information Management</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/launch-strategy-and-management">Launch Strategy & Management</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/pricing-and-market-access">Pricing & Market Access</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/brand-strategy-and-management">Brand Strategy & Management</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/promotional-strategy">Promotional Engagement</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights">Performance Management & Insights</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights/orchestrated-analytics">Orchestrated Analytics</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/performance-management-and-insights/orchestrated-analytics/next-best">Next Best Action</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/technologies/customer-engagement">Customer Engagement (OCE)</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/commercialization/patient-engagement-and-support">Patient Engagement and Support</a></li> </ul> </div> <div class="tab-item"> <h5>COMPLIANCE, SAFETY, REG PRODUCTS</h5> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/safety-and-pharmacovigilance/iqvia-vigilance-platform">IQVIA Vigilance Platform</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/commercial-compliance">Commercial Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/regulatory-compliance">Regulatory Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/regulatory-compliance/iqvia-rim-smart">RIM Smart</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/quality-compliance">Quality Compliance</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/quality-compliance/smartsolve-eqms">SmartSolve eQMS</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/safety-regulatory-compliance/safety-and-pharmacovigilance">Safety & Pharmacovigilance</a></li> </ul> </div> <div class="tab-item"> <h5>REAL WORLD PRODUCTS</h5> <ul> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai">Health Data Apps & AI</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/analytics-research-accelerator">Analytics Research Accelerator</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/expert-ecosystem">Expert Ecosystem</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/ai-driven-hcp-and-patient-profiling-commercial">AI Patient & HCP Profiling- Commercial</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/ai-driven-patient-and-provider-profiling">AI Patient & Provider Profiling- Med Affairs</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-data-apps-and-ai/ai-driven-hcp-and-patient-profiling">AI Patient & HCP Profiling- Healthcare</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/iqvia-nlp-platform">Natural Language Processing</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/health-economics-and-value/market-access-insights">Market Access Insights</a></li> <li><a href="https://www.iqvia.com/pt-pt/solutions/real-world-evidence/study-design/health-research-space">Direct-to-Patient Research</a></li> </ul> </div> </div> <div class="card-wrapper"> <div class="card"> <img src="/-/media/iqvia/images/modules/brandworld/2121_business-woman-using-dashboard-on-screen.png?h=683&w=1024&hash=598F2F336961970EA76EED465B050DDE"> <h4 class="mt-30">CASE STUDY</h4> <p>"Data in a Day</p> <a class="btn-redirect" href="https://www.iqvia.com/pt-pt/library/case-studies/data-in-a-day" target="_blank"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" 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href="https://www.iqvia.com/pt-pt/about-us/leadership">Executive Team</a></li> </ul> <h6 class="mt-0">NEWS & RESOURCES</h6> <ul> <li><a href="https://www.iqvia.com/pt-pt/newsroom">News</a></li> <li><a href="https://www.iqvia.com/pt-pt/events">Events & Webinars</a></li> <li><a href="https://www.iqvia.com/pt-pt/analyst-reports">Industry Analyst Reports</a></li> <li><a href="https://www.iqvia.com/pt-pt/about-us/commitment-to-public-health/covid-19-resources">COVID-19 Resources</a></li> <li><a href="https://www.iqvia.com/pt-pt/locations">Our Locations</a></li> </ul> <div class="card-wrapper"> <div class="card"> <img src="/-/media/iqvia/images/navigation/354_professional-man-leading-meeting-in-office-cubicle.jpg?h=683&w=1024&hash=1A73E77D3E5A169DFFAB2A49CB369CB3"> <h4 class="mt-30">INVESTOR RELATIONS</h4> <p>"Visit our investor relations site for more information.</p> <a class="btn-redirect" href="https://ir.iqvia.com/overview/default.aspx" target="_blank"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> <div class="tabs"> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/homepagehero_ci.png?h=1058&w=1200&hash=E6F7621F8CB48BC6EA4D48B02F63F8E1"> <h5>Unlock your potential to drive healthcare forward</h5> <p>By making intelligent connections between your needs, our capabilities, and the healthcare ecosystem, we can help you be more agile, accelerate results, and improve patient outcomes.</p> <a class="btn w-auto mt-30" href="https://www.iqvia.com/pt-pt/about-us/iqvia-connected-intelligence">LEARN MORE</a> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/modules/brandworld/2767_portrait-of-two-engineers-using-laptop-casually-chatting-in-high-tech-research.png?h=540&w=1024&hash=6EE14B9365C7977C3B07A43B65C71B45"> <h5>IQVIA AI is Healthcare-grade AI</h5> <p>Building on a rich history of developing AI for healthcare, IQVIA AI connects the right data, technology, and expertise to address the unique needs of healthcare. It's what we call Healthcare-grade AI.</p> <a class="btn w-auto mt-30" href="https://www.iqvia.com/pt-pt/solutions/innovative-models/artificial-intelligence-and-machine-learning">LEARN MORE</a> </div> <div class="tab-item"> <h5></h5> <p></p> <a class="btn w-auto mt-30" href=""></a> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/blogs/2116_abstract-background-with-luminous-particles.jpg?h=675&w=1200&hash=6102399574165D0ABCB89791A890BF2D"> <h5>Your healthcare data deserves more than just a cloud.</h5> <p>The IQVIA Human Data Science Cloud is our unique capability designed to enable healthcare-grade analytics, tools, and data management solutions to deliver fit-for-purpose global data at scale.</p> <a class="btn w-auto mt-30" href="https://www.iqvia.com/pt-pt/solutions/human-data-science-cloud">LEARN MORE</a> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/innovationhubheroimage.png?h=3175&w=3375&hash=03A3A2DB1F3EFF368CD63BA86426159D"> <h5>Innovations make an impact when bold ideas meet powerful partnerships</h5> <p>The IQVIA Innovation Hub connects start-ups with the extensive IQVIA network of assets, resources, clients, and partners. Together, we can help lead the future of healthcare with the extensive IQVIA network of assets, resources, clients, and partners.</p> <a class="btn w-auto mt-30" href="https://www.iqvia.com/pt-pt/about-us/innovation-hub">LEARN MORE</a> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/navigation/208_woman-using-tablet-on-sofa-cropped_600.jpg?h=683&w=1024&hash=113B49B766D4F49F5E147F481F8316EA"> <h5>Proven, faster DCT solutions</h5> <p>IQVIA Decentralized Trials deliver purpose-built clinical services and technologies that engage the right patients wherever they are. Our hybrid and fully virtual solutions have been used more than any others.</p> <a class="btn w-auto mt-30" href="https://www.iqvia.com/pt-pt/solutions/research-and-development/decentralized-trials">LEARN MORE</a> </div> <div class="tab-item"> <img src="/-/media/iqvia/images/apple/applewatchpatient.png?h=683&w=1024&hash=E32CDCB8BE1C8513D26ACAADA5B282A9"> <h5>IQVIA Patient Experience Solutions with Apple devices</h5> <p>Empowering patients to personalize their healthcare and connecting them to caregivers has the potential to change the care delivery paradigm.</p> <a class="btn w-auto mt-30" href="https://www.iqvia.com/pt-pt/about-us/iqvia-patient-experience-solutions-with-apple-devices">LEARN MORE</a> </div> </div> </div> <div class="item-wrapper-mobile list pb-0" data-attribute="careers"> <div class="breadcrumbs"><span class="go-home">MAIN</span>/<span>Careers</span></div> <div class="breadcrumbs d-none" style="padding-bottom:30px;"><span class="go-main">Careers</span>/<span></span></div> <div class="lists"> <div class="tab-item"> <h5 class="title-sm">WORKING AT IQVIA</h5> <p>Our mission is to accelerate innovation for a healthier world. Together, we can solve customer challenges and improve patient lives.</p> <a class="btn-redirect" href="https://jobs.iqvia.com/" target="_blank"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> <div class="tab-item"> <h5 class="title-sm">LIFE AT IQVIA</h5> <p>Careers, culture and everything in between. Find out what’s going on right here, right now.</p> <a class="btn-redirect" href="https://jobs.iqvia.com/blog" target="_blank"> LEARN MORE <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> <div class="card-wrapper"> <div class="card"> <img src="/-/media/iqvia/images/navigation/website-featured_jpg-2213_cheerful-young-colleagues-using-laptop.jpg?h=683&w=1024&hash=D776A849F30494AB90F889BBB8F30041"> <h4 class="mt-30">WE’RE HIRING</h4> <p>"Improving human health requires brave thinkers who are willing to explore new ideas and build on successes. Unleash your potential with us.</p> <a class="btn-redirect" href="https://jobs.iqvia.com/search-jobs" target="_blank"> SEARCH JOBS <div class="icon"> <svg xmlns="http://www.w3.org/2000/svg" width="7.029" height="12" viewBox="0 0 7.029 12"> <g id="Chevron" transform="translate(-135.26 -19.823)"> <rect id="Rectangle_125" data-name="Rectangle 125" width="8.521" height="1.42" rx="0.71" transform="translate(136.264 19.823) rotate(45)" fill="#959ca0"></rect> <rect id="Rectangle_126" data-name="Rectangle 126" width="8.521" height="1.42" rx="0.71" transform="translate(135.26 30.819) rotate(-45)" fill="#959ca0"></rect> </g> </svg> </div> </a> </div> </div> </div> <div class="item-wrapper-mobile list " data-attribute="contactus"> <div class="breadcrumbs"><span class="go-home">MAIN</span>/<span>Contact Us</span></div> <div class="breadcrumbs d-none" style="padding-bottom:30px;"><span class="go-main">Contact Us</span>/<span></span></div> <div class="lists"> </div> </div> </div> </div> </div> </div> </header>  <section class="mid-level-hero-redesign gradient_indigo__bg"> <div class="mid-level-hero-redesign-inner"> <div class="mid-level-hero-redesign-inner-top"> <div class="text-content"> <h6 class="sub-title">Rare Diseases</h6> <h1 class="title">Small-Sized Trials, Big Impact</h1> <div class="description"><p>In rare disease research, addressing unmet patient needs is driving breakthrough scientific discoveries and treatments. Each study demands a compassionate and expert team to navigate the nuances and tackle the unknowns. With experience that covers the full spectrum of rare diseases, our expertise includes Muscular Dystrophy, genetic syndromes, hematology, metabolic disorders and more. </p></div> <div class="btn"> <a class="cta-btn-redesign" href="#rfp"> <span class="tile">Contact Us</span> <div class="arrow-wrapper"><span class="line"></span><span class="line"></span></div> </a> </div> </div> <div class="media-content"> <img class="back-image" src="/-/media/feature/qims-shotgun-promo/defaultaccentmidheroimage.png?mw=800&hash=B03229E97B59DB49E9F2B15F499C1ACD" data-aos="zoom-in" data-aos-delay="1250"> <div class="main-image round-corners"><img src="/-/media/iqvia/images/modules/brandworld/209_smiling-girl-standing-in-hospital-hallway.jpg?mw=800&hash=FC517451895784DD79054F26C3886708"></div> <div class="mobile-image round-corners"><img src="/-/media/iqvia/images/modules/brandworld/209_smiling-girl-standing-in-hospital-hallway.jpg?mw=800&hash=FC517451895784DD79054F26C3886708"></div> </div> </div> <div class="bottom-text breadcrumbs-hero_outer"> <div class="history-links breadcrumbs-hero_inner"> <a href="https://www.iqvia.com/pt-pt/"><span class="iqvia-icon-home"></span></a> <a href="https://www.iqvia.com/pt-pt/solutions">Solutions</a> <a href="https://www.iqvia.com/pt-pt/solutions/therapeutics">Therapeutics</a> <span>Rare Diseases</span> </div> </div> </div> </section> <nav class="jump-links-top-bar"> <div class="jump-links-top-bar-wrapper"> <div class="nav-wrapper"> <button class="slide-btn slide-prev pointer-event"><i class="fa-solid fa-chevron-left"></i></button> <div class="scroll-wrapper"> <ul> <li> <a href="#PatientPerspective">Patient Perspective</a> </li> <li> <a href="#OurExperience">Our Experience</a> </li> <li> <a href="#IntegratedCapabilities">Integrated Capabilities</a> </li> <li> <a href="#LatestThinking">Latest Thinking</a> </li> </ul> <div class="nav-underline"></div> </div> <button class="slide-next slide-btn"><i class="fa-solid fa-chevron-right"></i></button> </div> <div class="share-wrapper"> <button class="share-bar"> <svg width="16" height="18" viewBox="0 0 16 18" fill="none" xmlns="http://www.w3.org/2000/svg"> <path d="M2.5 10.579C3.60457 10.579 4.5 9.68358 4.5 8.57901C4.5 7.47444 3.60457 6.57901 2.5 6.57901C1.39543 6.57901 0.5 7.47444 0.5 8.57901C0.5 9.68358 1.39543 10.579 2.5 10.579Z" stroke="#959CA0" stroke-linecap="round" stroke-linejoin="round" /> <path d="M13.167 4.57901C14.2716 4.57901 15.167 3.68358 15.167 2.57901C15.167 1.47444 14.2716 0.57901 13.167 0.57901C12.0624 0.57901 11.167 1.47444 11.167 2.57901C11.167 3.68358 12.0624 4.57901 13.167 4.57901Z" stroke="#959CA0" stroke-linecap="round" stroke-linejoin="round" /> <path d="M13.167 16.579C14.2716 16.579 15.167 15.6836 15.167 14.579C15.167 13.4744 14.2716 12.579 13.167 12.579C12.0624 12.579 11.167 13.4744 11.167 14.579C11.167 15.6836 12.0624 16.579 13.167 16.579Z" stroke="#959CA0" stroke-linecap="round" stroke-linejoin="round" /> <path d="M4.24316 9.55942L11.424 13.5986" stroke="#959CA0" stroke-linecap="round" stroke-linejoin="round" /> <path d="M11.424 3.55942L4.24316 7.59858" stroke="#959CA0" stroke-linecap="round" stroke-linejoin="round" /> </svg> </button> <ul class="share-dropdown"> <li data-event="copy"> <span>Copy Link</span> <img src="/Content/Shotgun/img/icons/social_icons/new/Copy.svg" /> </li> </ul> </div> <div class="tablet-view"> <h1 class="title">Rare Diseases</h1> <div class="nav-container-tablet"> <button class="nav-toggle">Jump TO<i class="fa-solid fa-chevron-down"></i></button> <nav class="nav-dropdown"> <ul> <li> <a href="#PatientPerspective">Patient Perspective</a> </li> <li> <a href="#OurExperience">Our Experience</a> </li> <li> <a href="#IntegratedCapabilities">Integrated Capabilities</a> </li> <li> <a href="#LatestThinking">Latest Thinking</a> </li> </ul> </nav> </div> </div> </div> </nav> <section class="rich-text-redesign "> <div class="rich-text-redesign__outer"> <div class="rich-text-redesign__inner"> <div class="page-body"> <h3>We rise to the challenge with you</h3> <p><strong>Global reach and impact:</strong> IQVIA's rare disease solutions span thousands of clinical sites worldwide, ensuring broad access and efficient trials. Your work brings hope to over 350 million people affected by more than 7,000 rare diseases. </p> <p><strong>Clinical delivery expertise:</strong> Our team includes highly experienced Clinical Research Associates (CRAs) and Patient Leads (PLs) with specialized expertise in rare diseases across all major regions. </p> <p> <strong>Passion and commitment:</strong> Our dedicated team is committed to improving the lives of rare disease patients, ensuring compassionate, patient-centric care. </p> <p> <strong>Global Site Network:</strong> IQVIA’s global network accelerates study start-up times, enhances patient recruitment, and leverages key relationships with KOLs and geneticists. </p> </div> </div> </div> </section> <section id="PatientPerspective"></section> <section class="graphic-image-redesign"> <div class="graphic-image__outer"> <div class="graphic-image__wrapper no-padding-top no-padding-bottom"> <div class="graphic-image__large" style="max-width: 1140px;" data-aos="fade-up"> <img src="/-/media/iqvia/graphics/therapeutics/rare-disease/rare_disease_graphic2.svg?mw=1140&hash=C84FA33D1FFCFB432993E95E5C194F96" alt="" /> </div> </div> </div> </section> <section class="rich-text-redesign no-padding-bottom"> <div class="rich-text-redesign__outer"> <div class="rich-text-redesign__inner"> <h3>Key Study Enablers</h3> </div> </div> </section> <section class="accordion-module-redesign"> <div class="accordion-module__outer"> <div class="accordion-module__wrapper"> <div class="accordion-module__inner no-padding-top" data-aos="fade-up"> <div class="accordion-module__image"> <div class="accordion-module__image-box"> <div class="tile-container rounded-top" data-accent-color="dark_blue__bg"> <button class="tile clickable-tile"> <i class="fas fa-chevron-down"></i> <div class="tile-heading dark_blue__text"> Home study visits </div> </button> </div> <div class="tile-container-text dark_blue__bg"> <div class="text"> <p>IQVIA’s home visit solution utilizes directly employed research nurses and phlebotomists, where regulations allow, to deliver study visits in the home setting.</p> </div> </div> <div class="tile-container " data-accent-color="dark_blue__bg"> <button class="tile clickable-tile"> <i class="fas fa-chevron-down"></i> <div class="tile-heading dark_blue__text"> Comprehensive support for patient recruitment and retention </div> </button> </div> <div class="tile-container-text dark_blue__bg"> <div class="text"> <p>IQVIA leverages advanced health technologies and decentralized clinical trials (DCTs) to alleviate patient and caregiver burdens, ensuring better retention rates.</p> </div> </div> <div class="tile-container " data-accent-color="dark_blue__bg"> <button class="tile clickable-tile"> <i class="fas fa-chevron-down"></i> <div class="tile-heading dark_blue__text"> Concierge support and enabling decentralization </div> </button> </div> <div class="tile-container-text dark_blue__bg"> <div class="text"> <p>Our concierge support services facilitate local setup and provide personalized assistance, enhancing the patient and caregiver experience throughout the trial process.</p> </div> </div> <div class="tile-container " data-accent-color="dark_blue__bg"> <button class="tile clickable-tile"> <i class="fas fa-chevron-down"></i> <div class="tile-heading dark_blue__text"> Clinical Trial Educators (CTEs) </div> </button> </div> <div class="tile-container-text dark_blue__bg"> <div class="text"> <p>Dedicated CTEs are deployed to relieve site burden and enhance patient engagement, significantly boosting recruitment efforts.</p> </div> </div> <div class="tile-container rounded-bottom" data-accent-color="dark_blue__bg"> <button class="tile clickable-tile"> <i class="fas fa-chevron-down"></i> <div class="tile-heading dark_blue__text"> Engagement with patient advocacy groups </div> </button> </div> <div class="tile-container-text dark_blue__bg"> <div class="text"> <p>Collaboration with patient advocacy groups to leverage the best strategies for engaging and retaining patients in clinical trials.</p> </div> </div> </div> </div> </div> </div> </div> </section> <section class="rich-text-redesign no-padding-bottom"> <div class="rich-text-redesign__outer"> <div class="rich-text-redesign__inner"> <h3><span>Decentralized Trials tailored to rare diseases</span></h3> </div> </div> </section> <section class="graphic-image-redesign"> <div class="graphic-image__outer"> <div class="graphic-image__wrapper no-padding-top no-padding-bottom"> <div class="graphic-image__large" style="max-width: 1180px;" data-aos="fade-up"> <img src="/-/media/iqvia/graphics/therapeutics/rare-disease/183-rare-disease.svg?mw=1180&hash=489D6E4ADF95E8766DF39E31584C8BCC" alt="" /> </div> </div> </div> </section> <section id="OurExperience"></section> <section class="carousel-stats-redesign dark_blue__bg"> <div class="carousel-stats-redesign-inner"> <div class="swiper carousel-stats-swiper"> <div class="swiper-control"> <div class="swiper-button-prev"></div> <div class="swiper-button-next"></div> <div class="swiper-control-break"></div> </div> <div class="swiper-wrapper"> <div class="swiper-slide"> <h5>Our Experience</h5> <h1>>300 STUDIES in rare disease</h1> <p>in over 70 countries worldwide since 2016</p> </div> <div class="swiper-slide"> <h5>Trusted Partner</h5> <h1>47,000 PATIENTS with rare disease</h1> <p>with > 11,000 site activations from 2018 – 2023</p> </div> <div class="swiper-slide"> <h5>Industry Leader</h5> <h1>>60 STUDIES</h1> <p>in ultra rare disease from 2018-2023</p> </div> </div> </div> </div> </section> <section id="IntegratedCapabilities"></section> <section class="rich-text-redesign"> <div class="rich-text-redesign__outer"> <div class="rich-text-redesign__inner"> <h3>Access the latest in human science and data science to accelerate results</h3> <p><strong>Real World Evidence & Registries:</strong> Leverage real world evidence to support natural history studies and registries, addressing challenges of low patient numbers and difficult endpoints. Feeder registries identify patients and connect them to trial sites. </p> <p> <strong>Regulatory & Genomic Expertise:</strong> Regulatory support from pre-clinical to clinical stage, the IQVIA Laboratories and genetic testing enhance patient identification, crucial for ultra-rare diseases. </p> <p> </p> <p><strong>Innovative Study Designs:</strong> Implement novel, adaptive, basket, and seamless study designs to improve trial efficiency and outcomes. </p> <p> <strong>Accelerate Results with Integrated Capabilities and IQVIA's Connected Intelligence:</strong> Utilize IQVIA's data, actionable insights, advanced technology, and therapeutic expertise to identify the right sites, collaborate with rare disease experts, and make informed commercial decisions. Access extensive global site networks and patient advocacy relationships to enhance trial success. </p> </div> </div> </section> <section class="color_accent__box-redesign dark_blue__bg no-image"> <div class="color_accent__box-redesign___outer"> <div class="color_accent__box-redesign___wrapper" data-aos="fade-up"> <div class="box-content"> <div class="item text-content"> <div class="title">The Bespoke Gene Therapy Consortium</div> <div class="description">IQVIA's commitment to shifting the paradigm in rare disease and cell and gene therapies includes leveraging the BGTC's regulatory playbook. The playbook serves as a guiding framework to expedite the delivery of therapies to patients.<br/><br/>We are actively collaborating with industry and nonprofit partners to develop standardized platform-based approaches and streamline navigation of the regulatory pathway. This ongoing effort aims to advance the clinical development landscape for rare diseases.</div> <div class="def-btn"> <a class="cta-btn-redesign white" target="_blank" rel="noopener noreferrer" href="https://fnih.org/wp-content/uploads/2024/04/BGTC-Regulatory-Playbook-Version-1.0.pdf"> <span class="tile">LEARN MORE</span> <div class="arrow-wrapper"><span class="line"></span><span class="line"></span></div> </a> </div> </div> </div> </div> </div> </section>  <section class="multi-card__carousel-redesign init-js-related no-padding-bottom"> <div class="multi-card__outer"> <div class="multi-card__wrapper"> <div class="multi-card__inner"> <h2 class="eyebrow"> OUR LATEST THINKING ON RARE DISEASE </h2> <div class="swiper swiper-container"> <div class="swiper-wrapper"> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/blogs/2023/09/how-rare-diseases-add-up-making-them-a-high-public-health-priority"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/2775_team-of-medical-research-scientists-work-using-microscope.jpg?mw=600&hash=0FEE13F641B8E4A6DD2B61C3924499C2)"></div> </a> <div class="card-item_wrapper"> <div class="badge">Blog</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/blogs/2023/09/how-rare-diseases-add-up-making-them-a-high-public-health-priority" target=""> How rare diseases add up, making them a high public health priority </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/library/white-papers/harnessing-the-power-of-patient-organisations-a-case-study-of-po-driven-drug-development"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/863_wintery-aerial-view-of-ice-breaker-pushing-through-cracked-ice.png?mw=600&hash=93BB88C79023E81B3C1AEAE78B5F1B35)"></div> </a> <div class="card-item_wrapper"> <div class="badge">White paper</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/library/white-papers/harnessing-the-power-of-patient-organisations-a-case-study-of-po-driven-drug-development" target=""> Harnessing the Power of Patient Organisations: A Case Study of PO-Driven Drug Development in Ultra-Rare Disease </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/library/white-papers/recruiting-rare-disease-patients-just-got-easier"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/2202_family-with-two-children-standing-on-beach-on-holiday.jpg?mw=600&hash=86A7D67F6B78AEB713DBC49AF293D297)"></div> </a> <div class="card-item_wrapper"> <div class="badge">White paper</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/library/white-papers/recruiting-rare-disease-patients-just-got-easier" target=""> Recruiting Rare Disease Patients Just Got Easier </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/locations/asia-pacific/library/case-studies/understanding-lysosomal-storage-disorders-lsd-market"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/2250_office-workers-looking-at-computer-screen.png?mw=600&hash=7932951E11C62322505C5D26BBFA5A54)"></div> </a> <div class="card-item_wrapper"> <div class="badge">CASE STUDY</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/locations/asia-pacific/library/case-studies/understanding-lysosomal-storage-disorders-lsd-market" target=""> Understanding Lysosomal Storage Disorders (LSD) Market </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.nature.com/articles/s41431-022-01097-8"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/1104_rare-diseases_mother-kissing-disabled-son-sitting-on-wheelchair.jpg?mw=600&hash=F0B5CE032F76E76C97545905AA0BEECA)"></div> </a> <div class="card-item_wrapper"> <div class="badge">Publications</div> <h5 class="card-title"> <a class="" href="https://www.nature.com/articles/s41431-022-01097-8" target="_blank"> The natural history of adults with Rubinstein-Taybi syndrome: a families-reported experience </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/blogs/2021/11/changing-the-rare-disease-landscape"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/984_dna-strand.jpg?mw=600&hash=469B40C12980E2440A8C8645B8DBAF7E)"></div> </a> <div class="card-item_wrapper"> <div class="badge">Blog</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/blogs/2021/11/changing-the-rare-disease-landscape" target=""> Changing the Rare Disease landscape…one genome at a time </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/insights/the-iqvia-institute/reports-and-publications/reports/orphan-drugs-in-the-united-states-rare-disease-innovation-and-cost-trends-through-2019"> <div class="img" style="background-image: url(/-/media/iqvia/pdfs/institute-reports/orphan-drugs-in-the-united-states-rare-disease-innovation-and-cost-trends-through-2019/iqi-orphan-drugs-in-the-us-1120-feature-594x345.png?mw=600&hash=E6F90EB7B0C1FDD8CBF4BA037862165C)"></div> </a> <div class="card-item_wrapper"> <div class="badge">Institute Report</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/insights/the-iqvia-institute/reports-and-publications/reports/orphan-drugs-in-the-united-states-rare-disease-innovation-and-cost-trends-through-2019" target=""> Orphan Drugs in the United States: Rare disease innovation and cost trends through 2019 </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/library/white-papers/natural-history-studies-for-rare-diseases"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/148_female-pediatrician.jpg?mw=600&hash=E9E4082D109A76716443A7D4A53AE204)"></div> </a> <div class="card-item_wrapper"> <div class="badge">WHITE PAPER</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/library/white-papers/natural-history-studies-for-rare-diseases" target=""> Natural History Studies for Rare Diseases </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqviabiotech.com/blogs/2020/04/the-benefits-of-conducting-your-natural-history-of-disease-study-early-in-clinical-development"> <div class="img" style="background-image: url(/-/media/iqvia/images/modules/brandworld/235_collaboration-meeting.jpg?mw=600&hash=A69C72B9DC4B6CCFCB2A2181352A29C9)"></div> </a> <div class="card-item_wrapper"> <div class="badge">BLOG</div> <h5 class="card-title"> <a class="" href="https://www.iqviabiotech.com/blogs/2020/04/the-benefits-of-conducting-your-natural-history-of-disease-study-early-in-clinical-development" target="_blank"> The benefits of conducting your natural history of disease study early in clinical development </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" href="https://www.iqvia.com/pt-pt/insights/the-iqvia-institute/reports-and-publications/reports/the-prospects-for-biosimilars-of-orphan-drugs-in-europe"> <div class="img" style="background-image: url(/-/media/iqvia/images/body/institute/the-prospects-for-biosimilars-of-orphan-drugs-in-europe/images/iqvia-institute-the-prospects-for-biosimilars-of-orphan-drugs-in-europe-0720-feature-594x345.png?mw=600&hash=5E262513156F99EDB7658D0564DB537D)"></div> </a> <div class="card-item_wrapper"> <div class="badge">INSTITUTE REPORT</div> <h5 class="card-title"> <a class="" href="https://www.iqvia.com/pt-pt/insights/the-iqvia-institute/reports-and-publications/reports/the-prospects-for-biosimilars-of-orphan-drugs-in-europe" target=""> The Prospects for Biosimilars of Orphan Drugs in Europe </a> </h5> <p class="description"></p> </div> </div> </div> <div class="swiper-slide"> <div class="card-item card-link"> <a class="" 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