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Lung Cancer Survivors
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id="community-about-text" class="caw-desc">The American Lung Association connects patients, families, friends and caregivers for support and inspiration as they face lung cancer. 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class="community-post-count"></div><!----><!----></div><!----><div _ngcontent-serverapp-c1809241069 id="post-filter" class="cf-bottom"><app-post-filter _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3417574470><div _ngcontent-serverapp-c3417574470 class="post-topic-filter"><div _ngcontent-serverapp-c3417574470 class="pft-head"><div _ngcontent-serverapp-c3417574470 class="pft-title">Community topics</div><a _ngcontent-serverapp-c3417574470 id="topics_filter_all_topics_pill" class="pft-select-btn"> Select all </a></div><div _ngcontent-serverapp-c3417574470 id="topics_filter_expanded" class="ptf-input expand"><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_0"> ALK mutations and lung cancer </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_1"> Non-small cell lung cancer </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_2"> Non-small cell lung cancer - General </div><div 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class="ptf-chip" id="topic_filter_pill_19"> Treatment options </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_20"> Complementary and alternative medicine </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_21"> Nutrition </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_22"> Good news </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_23"> What, me worry? </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_24"> Hope, friends and humor </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_25"> Survivor stories </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_26"> In memoriam </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_27"> Lung cancer events </div><div _ngcontent-serverapp-c3417574470 class="ptf-chip" id="topic_filter_pill_28"> 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_ngcontent-serverapp-c1809241069 class="pages" id="page-0" data-pageno="1"><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-15487554170780125280" data-ins-parent-element="true" data-post-type="disc" data-post-id="15487554170780125280" data-post-title="November Resource Roundup" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/0eb88e-november-resource-roundup/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/0eb88e-november-resource-roundup/"> November Resource Roundup </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> Posted November 27, 2024 • 4:52 PM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Hello all, below is the American Lung Association’s “Resource Roundup” for November. We wish you and your loved ones a wonderful Thanksgiving: The Lung Association released its signature 2024 “S <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>EliseLungAssociation</span><span _ngcontent-serverapp-c2702069511>0 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><!----><app-call-to-action-prompt _ngcontent-serverapp-c1809241069 _nghost-serverapp-c1555552141><section _ngcontent-serverapp-c1555552141 class="call-action-banner-prompt health-communities-supporting"><img _ngcontent-serverapp-c1555552141 data-size="desktop" alt class="cabp-figure" src="/assets/img/health-communities-supporting.svg"><img _ngcontent-serverapp-c1555552141 data-size="mobile" alt class="cabp-figure" src="/assets/img/health-communities-supporting-mob.svg"><div _ngcontent-serverapp-c1555552141 class="cabp-inner"><!----><!----><h3 _ngcontent-serverapp-c1555552141 class="cabp-title">Inspire has over <span style="color:#f9d3a1">250 health communities</span> supporting more than <span style="color:#f9d3a1">3000 conditions</span></h3><!----><!----><a _ngcontent-serverapp-c1555552141 class="bttn bttn-navy cabp-btn">Join now</a></div></section><!----><!----></app-call-to-action-prompt><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-9994374543138434442" data-ins-parent-element="true" data-post-type="disc" data-post-id="9994374543138434442" data-post-title="Newly diagnosed" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/6a6d9c-newly-diagnosed/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/6a6d9c-newly-diagnosed/"> Newly diagnosed </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 28, 2024 • 1:53 AM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> My husband has a 1.5 cm nodule they are suspecting for cancer and will have biopsy scheduled this month. He is a bladder cancer survivor of 7 yrs. He’s been having scans periodically in those 7 yrs <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Kitty18</span><span _ngcontent-serverapp-c2702069511>6 replies</span><span _ngcontent-serverapp-c2702069511>1 Reactions</span></div></section></ins-anon-post><!----><!----><!----><app-inspire-ad _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3229238076><div _ngcontent-serverapp-c3229238076 class="post-block-ad"><div _ngcontent-serverapp-c3229238076 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-1"></div><div _ngcontent-serverapp-c3229238076 class="pba-foot">Advertisement</div><!----></div></app-inspire-ad><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-5668498200010800673" data-ins-parent-element="true" data-post-type="disc" data-post-id="5668498200010800673" data-post-title="Clinical trial vs standard chemo" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/ba2f01-clinical-trial-vs-standard-chemo/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/ba2f01-clinical-trial-vs-standard-chemo/"> Clinical trial vs standard chemo </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 28, 2024 • 12:50 AM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> I have been taking Tagrisso for 17 months now. Spot progression was popping up almost from each scan. They were treated by radiation. My oncologist now recommends a clinical trial called REGN7075 (p <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>edithmlai</span><span _ngcontent-serverapp-c2702069511>5 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-305773723271655554" data-ins-parent-element="true" data-post-type="disc" data-post-id="305773723271655554" data-post-title="Need advice on Gemcitabine for Lung Cancer" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/dd607a-need-advice-on-gemcitabine-for-lung-cancer/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/dd607a-need-advice-on-gemcitabine-for-lung-cancer/"> Need advice on Gemcitabine for Lung Cancer </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 28, 2024 • 3:02 AM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> I have been on Alimta (chemo), Libtayo (immunotherapy) Every 3 weeks for 1-1/2 years for lung adenicinoma in lining. First 6 treatments included Carboplatin. Have 3 spine bone Mets and been receivin <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>tiffanykfb</span><span _ngcontent-serverapp-c2702069511>5 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-3967007802352861944" data-ins-parent-element="true" data-post-type="disc" data-post-id="3967007802352861944" data-post-title="Stage 3" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/22d0ae-stage-3/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/22d0ae-stage-3/"> Stage 3 </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 26, 2024 • 12:13 AM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Just finished Immunotherapy with imfinzi in september. Aug 30, 2024 scan clear. This was for recurrent cancer in my lymph node in my chest. I had surgery 5/23 and surgeon got 90% Had 3 cycles of chem <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Meemee1047</span><span _ngcontent-serverapp-c2702069511>2 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-5370738149419362804" data-ins-parent-element="true" data-post-type="disc" data-post-id="5370738149419362804" data-post-title="EGFR Resistant" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/65c07e-egfr-resistant/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/65c07e-egfr-resistant/"> EGFR Resistant </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 27, 2024 • 5:06 PM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Dear Community, I was diagnosed with NSCLC stage IV with CNS involvement and with EGFR L858 in August 2024. Aside from that I am active and in good health. (aside from that, Mrs. Lincoln, how was the <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>barb-mill</span><span _ngcontent-serverapp-c2702069511>2 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-1498547164004519246" data-ins-parent-element="true" data-post-type="disc" data-post-id="1498547164004519246" data-post-title="ALK+ stage IV - Lorlatinib overall great response but not for brain met" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/26a3f5-alk-stage-iv-lorlatinib-overall-great-response-but-not-for-brain-met/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/26a3f5-alk-stage-iv-lorlatinib-overall-great-response-but-not-for-brain-met/"> ALK+ stage IV - Lorlatinib overall great response but not for brain met </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 27, 2024 • 9:48 PM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Dear all, my partner and I just received the devastating new that his brain metastasis grew rather fast, while the other mets as well as the main lesion responded amazingly well to Lorlatinib. My p <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>galliansara</span><span _ngcontent-serverapp-c2702069511>7 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><app-inspire-ad _ngcontent-serverapp-c1809241069 _nghost-serverapp-c3229238076><div _ngcontent-serverapp-c3229238076 class="post-block-ad"><div _ngcontent-serverapp-c3229238076 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-6"></div><div _ngcontent-serverapp-c3229238076 class="pba-foot">Advertisement</div><!----></div></app-inspire-ad><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-11253576765760483170" data-ins-parent-element="true" data-post-type="disc" data-post-id="11253576765760483170" data-post-title="EGFR Exon 20" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/930c69-egfr-exon-20/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/930c69-egfr-exon-20/"> EGFR Exon 20 </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 27, 2024 • 3:20 AM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> I had my first chemo of Pemextered and Carboplatin. I have Stage 4 mucinex lung cancer. Does anyone have this mutation. How were you treated. Thank you <!----><!----><!----><span _ngcontent-serverapp-c2702069511><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>NY79</span><span _ngcontent-serverapp-c2702069511>6 replies</span><span _ngcontent-serverapp-c2702069511>2 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-11448581887493577966" data-ins-parent-element="true" data-post-type="disc" data-post-id="11448581887493577966" data-post-title="7 month CT results post VATS for Stage 1a1" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/3fe08e-7-month-ct-results-post-vats-for-stage-1a1/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/3fe08e-7-month-ct-results-post-vats-for-stage-1a1/"> 7 month CT results post VATS for Stage 1a1 </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 26, 2024 • 3:41 PM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Hello Friends, This is my first time posting. I had VATS in May 2024 and was staged at 1a1. I am 57 y/o female and I found the cancer through a CT scan of the lungs incidentally. I am doing well, ba <!----><!----><!----><span _ngcontent-serverapp-c2702069511> ... <!----><a _ngcontent-serverapp-c2702069511 id="post-read-more-link" class="pb-readmore"> Show more </a><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>christine355</span><span _ngcontent-serverapp-c2702069511>6 replies</span><span _ngcontent-serverapp-c2702069511>2 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----><!----><ins-anon-post _ngcontent-serverapp-c1809241069 observeelement class="community-post" _nghost-serverapp-c2702069511 id="post-feed-item-287276156133569245" data-ins-parent-element="true" data-post-type="disc" data-post-id="287276156133569245" data-post-title="Fenbendazole" data-post-group-id="200101" data-post-url="/groups/american-lung-association-lung-cancer-survivors/discussion/ddf7bd-fenbendazole/"><section _ngcontent-serverapp-c2702069511 class="post-block" id="post-section"><div _ngcontent-serverapp-c2702069511 class="pb-head"><h3 _ngcontent-serverapp-c2702069511 class="pb-title"><a _ngcontent-serverapp-c2702069511 id="post-title-link" href="/groups/american-lung-association-lung-cancer-survivors/discussion/ddf7bd-fenbendazole/"> Fenbendazole </a></h3><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-stamp"><div _ngcontent-serverapp-c2702069511> New reply November 24, 2024 • 5:55 AM </div><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-body"><p _ngcontent-serverapp-c2702069511 id="post-snippet" class="pb-desc"> Anyone used or know someone who use Fenbendazole for sclc and the results? <!----><!----><!----><span _ngcontent-serverapp-c2702069511><!----></span></p><!----><!----></div><div _ngcontent-serverapp-c2702069511 class="pb-meta"><span _ngcontent-serverapp-c2702069511>Member_Hedgehog8784</span><span _ngcontent-serverapp-c2702069511>4 replies</span><span _ngcontent-serverapp-c2702069511>0 Reactions</span></div></section></ins-anon-post><!----><!----><!----><!----><!----><!----></div><!----><!----><div _ngcontent-serverapp-c3626312683 class="load-more"><!----></div></div><div _ngcontent-serverapp-c1498454023></div></ins-infinite-scroll><!----><!----></app-post-feed-wrapper><!----></div></div><!----></div></main><aside _ngcontent-serverapp-c1809241069 class="sider-track sider-track-right"><div _ngcontent-serverapp-c1809241069 class="widget-box"><!----><ins-community-members _ngcontent-serverapp-c1809241069 id="desktop-community-members" _nghost-serverapp-c850839045><section _ngcontent-serverapp-c850839045 class="widget-pack community-members-widget"><div _ngcontent-serverapp-c850839045 class="wp-head"><h3 _ngcontent-serverapp-c850839045 class="wp-title">Community members</h3></div><div _ngcontent-serverapp-c850839045 class="wp-body"><!----><p _ngcontent-serverapp-c850839045 id="find-others-text" class="cmw-desc">Members can connect with other members in this 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Share the info with the group here.","f_suppressed":"0","group_id":"200101","name":"Lung cancer events","name_id":"lung-cancer-events","parent_id":null,"sort_order":"28","topic_id":"2367"},{"description":"Found an interesting article about lung cancer that you think others might like? Post it here.","f_suppressed":"0","group_id":"200101","name":"Lung cancer in the news","name_id":"lung-cancer-in-the-news","parent_id":null,"sort_order":"29","topic_id":"1158"},{"description":"Have a question about using the site? An idea for making it better? Post here and let us know how we can help.","f_suppressed":"0","group_id":"200101","name":"Help desk","name_id":"help-desk","parent_id":null,"sort_order":"30","topic_id":"632"}],"web_site":"www.lung.org","welcome_text":"The American Lung Association connects patients, families, friends and caregivers for support and inspiration as they face lung cancer. Here members can share stories, find important information and learn from the experiences of others like themselves.","isPrivate":null},"status":"success"},"getCommunityPosts":{"status":"success","data":{"PostFeed":[{"id":"15487554170780125280","title":"November Resource Roundup","slug":"disc-0eb88e-november-resource-roundup","author":{"avatar":{"small":"/api/member/EliseLungAssociation/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[{"role_type":"GROUP_LDR","group_id":200042,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200101,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200102,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200127,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200221,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200227,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200228,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200237,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200309,"__typename":"SiteRole"},{"role_type":"GROUP_LDR","group_id":200310,"__typename":"SiteRole"}],"nickname":"EliseLungAssociation","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":1158,"name":"Lung cancer in the news","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-27T16:52:43Z","active":"2024-11-27T16:52:43Z","content":"\u003Cp>Hello all, below is the American Lung Association’s “Resource Roundup” for November. We wish you and your loved ones a wonderful Thanksgiving:\u003C/p>\u003Cp>\u003C/p>\u003Cul>\u003Cli>The Lung Association released its signature 2024 \u003Ca target=\"_blank\" rel=\"noopener ugc nofollow\" href=\"https://www.lung.org/research/state-of-lung-cancer\">“State of Lung Cancer” report\u003C/a> on November 19th as part of Lung Cancer Awareness Month. This year’s report found that the 5-year lung cancer survival rates and early diagnosis rates improved. \u003Ca target=\"_blank\" rel=\"noopener ugc nofollow\" href=\"https://www.lung.org/research/state-of-lung-cancer\">Learn more about the report\u003C/a>.\u003C/li>\u003C/ul>\u003Cp>\u003C/p>\u003Cul>\u003Cli>In our recent \u003Ca target=\"_blank\" rel=\"noopener ugc nofollow\" href=\"https://www.lung.org/blog/why-biomarker-testing-vital\">Each Breath blog\u003C/a>, our \u003Ca target=\"_blank\" rel=\"noopener ugc nofollow\" href=\"https://www.lung.org/lung-force/lung-force-heroes\">LUNG FORCE Hero\u003C/a> John shares the story of his lung cancer diagnosis and how biomarker testing made all the difference. \u003Ca target=\"_blank\" rel=\"noopener ugc nofollow\" href=\"https://www.lung.org/blog/why-biomarker-testing-vital\">Check out the blog\u003C/a>. \u003C/li>\u003C/ul>\u003Cp>\u003C/p>\u003Cul>\u003Cli>Did you know the American Lung Association offers a free \u003Ca target=\"_blank\" rel=\"noopener ugc nofollow\" href=\"https://lung.training/courses/lung-cancer-basics.html\">Lung Cancer Basics\u003C/a> course? Through the course, participants can learn about different aspects of lung cancer. The training also covers management tools, educational information about treatment options and support in making practical, healthy decisions for themselves and their families. \u003C/li>\u003C/ul>","reply_count":0,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/0eb88e-november-resource-roundup/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"9994374543138434442","title":"Newly diagnosed","slug":"disc-6a6d9c-newly-diagnosed","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"Kitty18","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":627,"name":"Treatment options","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-27T14:58:35Z","active":"2024-11-28T01:53:03Z","content":"\u003Cp>My husband has a 1.5 cm nodule they are suspecting for cancer and will have biopsy scheduled this month. He is a bladder cancer survivor of 7 yrs. He’s been having scans periodically in those 7 yrs and it was noted in a yr and a half his nodule grew from 1 cm to 1.5 in 18 mths. Of course hoping for best, but I was curious for those who have had radiation as their treatment, what were the side affects, and did you have a good outcome with radiation. My husband is 89 and will not do chemo due to his age, neuropathy issues and hopefully this is only nodule and can just be removed or treated. Being new to this chapter of lung cancer, I find this site to be a good support and im sure will refer to it a lot, along the way as I did when he had bladder cancer. Thanks for support. \u003C/p>","reply_count":6,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/6a6d9c-newly-diagnosed/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["Marie002"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"5668498200010800673","title":"Clinical trial vs standard chemo","slug":"disc-ba2f01-clinical-trial-vs-standard-chemo","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"edithmlai","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":624,"name":"Non-small cell lung cancer - Stage IV","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-27T05:17:17Z","active":"2024-11-28T00:50:29Z","content":"\u003Cp>I have been taking Tagrisso for 17 months now. Spot progression was popping up almost from each scan. They were treated by radiation. My oncologist now recommends a clinical trial called \u003Cspan>REGN7075 (phase 1/2) which is an Immunotherapy. Otherwise, I still have the option to do chemo which is the standard CARBOplatin and PEMEtrexed (ALIMTA). My question is, in general, does anyone have experience with chemo or clinical trial and if clinical trial is really preferred to chemo? To me, clinical trial always is more risky but my oncologist thinks the opposite. \u003C/span>\u003C/p>","reply_count":5,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/ba2f01-clinical-trial-vs-standard-chemo/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"305773723271655554","title":"Need advice on Gemcitabine for Lung Cancer","slug":"disc-dd607a-need-advice-on-gemcitabine-for-lung-cancer","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"tiffanykfb","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":619,"name":"Non-small cell lung cancer","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-27T01:56:26Z","active":"2024-11-28T03:02:55Z","content":"I have been on Alimta (chemo), Libtayo (immunotherapy) Every 3 weeks for 1-1/2 years for lung adenicinoma in lining. First 6 treatments included Carboplatin. Have 3 spine bone Mets and been receiving Zometa (for bones every 6 Weeks) for the past 1-1/2 years as well. \u003Cdiv>Everything was stable until last week (11/21/24) when PET scan showed cancer expanded growth in lining. Oncologist would like to switch Alimta to Gemcitabine. Has anyone been on this chemo drug and can give me any insight to this drug effectiveness and side effects. Any and all info will be appreciated during this trying time.\u003C/div>\u003Cdiv>Thank you \u003Cbr>\u003Cdiv>\u003Cbr>\u003C/div>\u003C/div>","reply_count":5,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/dd607a-need-advice-on-gemcitabine-for-lung-cancer/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"3967007802352861944","title":"Stage 3","slug":"disc-22d0ae-stage-3","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"Meemee1047","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":620,"name":"Non-small cell lung cancer - General","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-25T21:12:32Z","active":"2024-11-26T00:13:53Z","content":"\u003Cp>Just finished Immunotherapy with imfinzi in september. Aug 30, 2024 scan clear. This was for recurrent cancer in my lymph node in my chest. I had surgery 5/23 and surgeon got 90% Had 3 cycles of chemo 33 radiation treatments and a year of im\u003C/p>\u003Cp>u othetapy. Today scan said increased soft tossue density at the right middle lobe base with increased hypodense soft tossue along the suture line with adjacent new consolidation. Oncologist said my right lung is partially collapsed and scheduled me for PET scan tomorrow. He said something about mucous and I do have thick mucous that I cant get up at times. Im ery scared that this is a 2nd recurrence from my original surgery in 2018. Any words of hope out there? \u003C/p>","reply_count":2,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/22d0ae-stage-3/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"5370738149419362804","title":"EGFR Resistant","slug":"disc-65c07e-egfr-resistant","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"barb-mill","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":624,"name":"Non-small cell lung cancer - Stage IV","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-25T20:16:09Z","active":"2024-11-27T17:06:46Z","content":"\u003Cp>Dear Community, I was diagnosed with NSCLC stage IV with CNS involvement and with EGFR L858 in August 2024. Aside from that I am active and in good health. (aside from that, Mrs. Lincoln, how was the play?)\u003C/p>\u003Cp>\u003C/p>\u003Cp>I have been on Tagrisso since then. At the 3 month point a PET scan showed some progression in the bone and maybe slight reduction of the main tumor and small spots in the lung. My oncologist was surprised that there wasn't more of a response and has hopes that in 2 more months there will be more changes.\u003C/p>\u003Cp>\u003C/p>\u003Cp>The doctor is reluctant to start me on chemotherapy due to my age, 81, for fear it will impact my quality of life. However, the recently approved regimen of osimertinib–chemotherapy\u003C/p>\u003Cp>adds about 9 months of PFS over Tagrisso alone.\u003C/p>\u003Cp>OS is unknown with CNS involvement.\u003C/p>\u003Cp>OS, in general, at 24 months is 79% with chemo and 73% with Tagrisso alone.\u003C/p>\u003Cp>\u003C/p>\u003Cp>Is anyone else facing this dilemma, and if so, what are your thoughts? Thank you.\u003C/p>","reply_count":2,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/65c07e-egfr-resistant/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"1498547164004519246","title":"ALK+ stage IV - Lorlatinib overall great response but not for brain met","slug":"disc-26a3f5-alk-stage-iv-lorlatinib-overall-great-response-but-not-for-brain-met","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"galliansara","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":2786,"name":"ALK mutations and lung cancer","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-25T19:45:35Z","active":"2024-11-27T21:48:28Z","content":"\u003Cp>Dear all, \u003C/p>\u003Cp>my partner and I just received the devastating new that his brain metastasis grew rather fast, while the other mets as well as the main lesion responded amazingly well to Lorlatinib. My partner - 42 never smoker, fit and overall healthy - has been experiencing very strong headaches, dizziness and vomit for the past month and we had to insist to get a RMN after the first TAC showed great results. \u003C/p>\u003Cp>What is you experience? Is radiation therapy the only way to go? \u003C/p>\u003Cp>I'm concerned he will get taken off Lorlatinib that was working very well for him. I'd be grateful to hear any experience with this.\u003C/p>\u003Cp>Thank you,\u003C/p>\u003Cp>Sara \u003C/p>\u003Cp>\u003C/p>","reply_count":7,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/26a3f5-alk-stage-iv-lorlatinib-overall-great-response-but-not-for-brain-met/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"11253576765760483170","title":"EGFR Exon 20","slug":"disc-930c69-egfr-exon-20","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"NY79","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":2810,"name":"Non-small cell lung cancer - Adenocarcinoma","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-23T17:16:27Z","active":"2024-11-27T03:20:02Z","content":"\u003Cp>I had my first chemo of Pemextered and Carboplatin. I have Stage 4 mucinex lung cancer. Does anyone have this mutation. How were you treated. Thank you \u003C/p>","reply_count":6,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/930c69-egfr-exon-20/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":2,"reacted_by_me":false,"nicknames":["aznjgal","maureen_Eagle1"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"11448581887493577966","title":"7 month CT results post VATS for Stage 1a1","slug":"disc-3fe08e-7-month-ct-results-post-vats-for-stage-1a1","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"christine355","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":621,"name":"Non-small cell lung cancer - Stage I","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-23T15:09:12Z","active":"2024-11-26T15:41:43Z","content":"\u003Cp>Hello Friends,\u003C/p>\u003Cp>This is my first time posting. I had VATS in May 2024 and was staged at 1a1. I am 57 y/o female and I found the cancer through a CT scan of the lungs incidentally. I am doing well, back to my exercise routine. I had my 7 month CT scan and the results were not what I expected. I am very anxious at the three main findings:\u003C/p>\u003Cp>**Status post right upper lobe wedge resection. Along the inferior aspect of the chain sutures, there is a nonspecific 2.2 x 1.0 cm region of soft tissue density. Recommend comparison to prior imaging and consideration of PET/CT if this is a new or enlarging finding.\u003C/p>\u003Cp>**Pulmonary emphysema.\u003C/p>\u003Cp>**There is a 4 mm sub solid nodule in the left lower lobe\u003C/p>\u003Cp>Not sure is anyone has experience with any of these three things 6/7 months post VATS ? Also, the emphysema really surprised me -- I am a lifelong non smoker and do a lot of cardio with no problem. I also had a normal pulmonary function test in April. Prior to the CT scan I had three x-rays, the only thing that came up in one of those x rays was the 4mm sub solid nodule in May.\u003C/p>\u003Cp>I would really appreciate any insight -- have to get through weekend before I see the Doctor on Monday about these results and I don't think I will be able to sleep.\u003C/p>\u003Cp>Thank you!!! 🙏 Christine\u003C/p>","reply_count":6,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/3fe08e-7-month-ct-results-post-vats-for-stage-1a1/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":2,"reacted_by_me":false,"nicknames":["aznjgal","DantheACMan"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"287276156133569245","title":"Fenbendazole","slug":"disc-ddf7bd-fenbendazole","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"Member_Hedgehog8784","status":4,"__typename":"User"},"groups":[{"name_id":"american-lung-association-lung-cancer-survivors","group_id":200101,"name":"Lung Cancer Survivors","topics":[{"id":2322,"name":"Small cell lung cancer","__typename":"Topic"}],"__typename":"Group"}],"created":"2024-11-23T05:21:59Z","active":"2024-11-24T05:55:59Z","content":"\u003Cp>Anyone used or know someone who use Fenbendazole for sclc and the results?\u003C/p>","reply_count":4,"url":"/groups/american-lung-association-lung-cancer-survivors/discussion/ddf7bd-fenbendazole/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null}]}}}</script></body></html>