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.ai-modal-img[_ngcontent-serverApp-c1188379037]{align-self:center;width:238px;height:138px}@media (max-width: 575px){.ai-modal[_ngcontent-serverApp-c1188379037] .ai-modal-img[_ngcontent-serverApp-c1188379037]{width:172px;height:100px}}@media (max-width: 575px){.ai-modal[_ngcontent-serverApp-c1188379037]{padding:36px 30px}}.ch-create[_ngcontent-serverApp-c1188379037]{display:flex;align-self:center;justify-content:center;gap:10px;max-width:155px;line-height:24px}.ch-create[_ngcontent-serverApp-c1188379037] .svg-icon[_ngcontent-serverApp-c1188379037]{margin:-4px -2px 0 0;font-size:18px}@media (min-width: 768px){.ch-create[_ngcontent-serverApp-c1188379037] .svg-icon[_ngcontent-serverApp-c1188379037]{font-size:20px;margin-top:-5px 0 0 0}}.ai-modal-title[_ngcontent-serverApp-c1188379037]{font-weight:700;font-size:36px;line-height:42px;text-align:center;color:#001a72}@media (max-width: 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_nghost-serverapp-c3626312683><ins-infinite-scroll _ngcontent-serverapp-c3626312683 _nghost-serverapp-c1498454023 id="users-posts-container"><div _ngcontent-serverapp-c3626312683><div _ngcontent-serverapp-c1188379037 class="pages" id="page-0" data-pageno="1"><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-17886307496142078118" data-ins-parent-element="true" data-post-type="disc" data-post-id="17886307496142078118" data-post-title="Surgery" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/fae639-surgery/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/fae639-surgery/"> Surgery </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> Posted February 24, 2025 • 2:00 AM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> I am going to be 54 in a few days. My pancreas is necrotic, wide spread and all encompassing. I am going in for another ercp to clean sludge, stones, some rot, and to place stints. My team has done <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>KK_Thomas</span><span _ngcontent-serverapp-c3260463804>0 replies</span><span _ngcontent-serverapp-c3260463804>1 Reactions</span></div></section></ins-anon-post><app-call-to-action-prompt _ngcontent-serverapp-c1188379037 _nghost-serverapp-c1759620688><section _ngcontent-serverapp-c1759620688 class="call-action-banner-prompt understand-your-journey"><img _ngcontent-serverapp-c1759620688 data-size="desktop" alt="join-prompt-desktop-image" class="cabp-figure" src="/assets/img/understand-your-journey.svg"><img _ngcontent-serverapp-c1759620688 data-size="mobile" alt="join-prompt-mobile-image" class="cabp-figure" src="/assets/img/understand-your-journey.svg"><div _ngcontent-serverapp-c1759620688 class="cabp-inner"><h3 _ngcontent-serverapp-c1759620688 class="cabp-title">Join Inspire and connect with others who understand your journey</h3><a _ngcontent-serverapp-c1759620688 class="bttn bttn-navy cabp-btn">Join now</a></div></section></app-call-to-action-prompt><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-13552746600031166432" data-ins-parent-element="true" data-post-type="disc" data-post-id="13552746600031166432" data-post-title="Diabetes" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/ec20f1-diabetes/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/ec20f1-diabetes/"> Diabetes </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> Posted February 22, 2025 • 10:59 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> So, I have chronic pancreatitis. The organ is now necrotic, widespread. So, as my PC doc says, “it’s a rotten hunk of crap. So, symptoms include I can’t regulate body temp, I eat a low fat heart he <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>KK_Thomas</span><span _ngcontent-serverapp-c3260463804>0 replies</span><span _ngcontent-serverapp-c3260463804>1 Reactions</span></div></section></ins-anon-post><app-inspire-ad _ngcontent-serverapp-c1188379037 _nghost-serverapp-c3840075257><div _ngcontent-serverapp-c3840075257 class="post-block-ad"><div _ngcontent-serverapp-c3840075257 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-1"></div><div _ngcontent-serverapp-c3840075257 class="pba-foot">Advertisement</div></div></app-inspire-ad><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-6229570158679376742" data-ins-parent-element="true" data-post-type="disc" data-post-id="6229570158679376742" data-post-title="Chronic abdominal pain saga: anyone else relate?" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/6f7398-chronic-abdominal-pain-saga-anyone-else-relate/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/6f7398-chronic-abdominal-pain-saga-anyone-else-relate/"> Chronic abdominal pain saga: anyone else relate? </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 22, 2025 • 10:04 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> Hello I'm new to the form about 5 years ago I had upper abdominal pain and back pain radiating went to er they ran test my blood sugar were up.the er didn't know what the problem was I told to follow <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>nardgossett</span><span _ngcontent-serverapp-c3260463804>11 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-2427032883193492069" data-ins-parent-element="true" data-post-type="disc" data-post-id="2427032883193492069" data-post-title="Flank Pain" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/f01e68-flank-pain/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/f01e68-flank-pain/"> Flank Pain </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 22, 2025 • 7:42 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> I have been having a new kind of pain. My pancreas pain has always been on my left side under sternum. For the last three days it feels like I am being run through, in, up, and through where I imagi <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>KK_Thomas</span><span _ngcontent-serverapp-c3260463804>3 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-5856921612201659990" data-ins-parent-element="true" data-post-type="disc" data-post-id="5856921612201659990" data-post-title="Puestow" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/95bb5c-puestow/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/95bb5c-puestow/"> Puestow </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> Posted February 18, 2025 • 10:47 AM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> Can anyone comment on their results after a Puestow procedure? <span _ngcontent-serverapp-c3260463804></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>KK_Thomas</span><span _ngcontent-serverapp-c3260463804>0 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-4766981266488345457" data-ins-parent-element="true" data-post-type="disc" data-post-id="4766981266488345457" data-post-title="Pineapple: friend or foe? 🍍🤔" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/f5aacf-pineapple-friend-or-foe/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/f5aacf-pineapple-friend-or-foe/"> Pineapple: friend or foe? 🍍🤔 </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 18, 2025 • 7:02 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> Has anyone ever had trouble with pineapple? It’s so hard to say what foods cause what; but I’m starting to wonder if pineapple makes me nauseous. I’ve had acute pancreatitis several times and I know <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>lynchkevinjames</span><span _ngcontent-serverapp-c3260463804>1 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-5205945925577373278" data-ins-parent-element="true" data-post-type="disc" data-post-id="5205945925577373278" data-post-title="Quality of Life" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/93b06f-quality-of-life/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/93b06f-quality-of-life/"> Quality of Life </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 24, 2025 • 11:21 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> Hello. I have never been on any social anything online before, and do not really know how to start. I have been “living” with chronic pancreatitis for about 6 years now. I am my husbands full time c <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>KK_Thomas</span><span _ngcontent-serverapp-c3260463804>7 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><app-inspire-ad _ngcontent-serverapp-c1188379037 _nghost-serverapp-c3840075257><div _ngcontent-serverapp-c3840075257 class="post-block-ad"><div _ngcontent-serverapp-c3840075257 class="inspire-ads pba-body" id="community-aside-interstitial-ad-300x250-0-0-6"></div><div _ngcontent-serverapp-c3840075257 class="pba-foot">Advertisement</div></div></app-inspire-ad><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-13517262682933689322" data-ins-parent-element="true" data-post-type="disc" data-post-id="13517262682933689322" data-post-title="Sphincter of Odi issues - stent placement" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/befaea-sphincter-of-odi-issues-stent-placement/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/befaea-sphincter-of-odi-issues-stent-placement/"> Sphincter of Odi issues - stent placement </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 19, 2025 • 6:05 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> Ugh!!! I’ve finally reached the point in which I have agreed to have a stent in my pancreas. Any advice for before, during, after? My life is very functional when I’m not having an acute attack. How <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>mcglamma</span><span _ngcontent-serverapp-c3260463804>19 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-4226303949020520110" data-ins-parent-element="true" data-post-type="disc" data-post-id="4226303949020520110" data-post-title="Celiac plexus block: pain relief or new worries?" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/936c12-celiac-plexus-block-pain-relief-or-new-worries/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/936c12-celiac-plexus-block-pain-relief-or-new-worries/"> Celiac plexus block: pain relief or new worries? </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 15, 2025 • 2:50 AM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> My doctor has suggested I have a Celiac Plexus block done for the pain . I'm nervous it will cause more problems . What have others experience been with this procedure ? It would be done by EUS <span _ngcontent-serverapp-c3260463804></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>ljchase</span><span _ngcontent-serverapp-c3260463804>1 replies</span><span _ngcontent-serverapp-c3260463804>0 Reactions</span></div></section></ins-anon-post><ins-anon-post _ngcontent-serverapp-c1188379037 observeelement class="community-post" _nghost-serverapp-c3260463804 id="post-feed-item-10261938805889732752" data-ins-parent-element="true" data-post-type="disc" data-post-id="10261938805889732752" data-post-title="Chronic pain got you feeling like this is it?" data-post-group-id="200264" data-post-url="/groups/pancreatitis/discussion/10f279-chronic-pain-got-you-feeling-like-this-is-it/"><section _ngcontent-serverapp-c3260463804 class="post-block" id="post-section"><div _ngcontent-serverapp-c3260463804 class="pb-head"><h3 _ngcontent-serverapp-c3260463804 class="pb-title"><a _ngcontent-serverapp-c3260463804 id="post-title-link" href="/groups/pancreatitis/discussion/10f279-chronic-pain-got-you-feeling-like-this-is-it/"> Chronic pain got you feeling like this is it? </a></h3></div><div _ngcontent-serverapp-c3260463804 class="pb-stamp"><div _ngcontent-serverapp-c3260463804> New reply February 14, 2025 • 8:56 PM </div></div><div _ngcontent-serverapp-c3260463804 class="pb-body"><p _ngcontent-serverapp-c3260463804 id="post-snippet" class="pb-desc"> Am I gonna die from this? I have chronic pancreatitis and I have fits every so many weeks every 2 or 3 months I feel like I’m in the hospital. I’m on creon but it seems to not work so I barely take i <span _ngcontent-serverapp-c3260463804> ... <a _ngcontent-serverapp-c3260463804 id="post-read-more-link" class="pb-readmore"> Show more </a></span></p></div><div _ngcontent-serverapp-c3260463804 class="pb-meta"><span _ngcontent-serverapp-c3260463804>shannonhall1319</span><span _ngcontent-serverapp-c3260463804>3 replies</span><span _ngcontent-serverapp-c3260463804>1 Reactions</span></div></section></ins-anon-post></div><div _ngcontent-serverapp-c3626312683 class="load-more"></div></div><div _ngcontent-serverapp-c1498454023></div></ins-infinite-scroll></app-post-feed-wrapper></div></div></div></main><aside _ngcontent-serverapp-c1188379037 class="sider-track sider-track-right"><div _ngcontent-serverapp-c1188379037 class="widget-box"><ins-community-members _ngcontent-serverapp-c1188379037 id="desktop-community-members" _nghost-serverapp-c850839045><section _ngcontent-serverapp-c850839045 class="widget-pack 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resources","name_id":"educational-resources","parent_id":null,"sort_order":"14","topic_id":"3209"}],"web_site":"www.pancreasfoundation.org","isPrivate":null},"status":"success"},"getCommunityPosts":{"status":"success","data":{"PostFeed":[{"id":"17886307496142078118","title":"Surgery","slug":"disc-fae639-surgery","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"KK_Thomas","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3202,"name":"Treating chronic pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-24T02:00:35Z","active":"2025-02-24T02:00:35Z","content":"I am going to be 54 in a few days. My pancreas is necrotic, wide spread and all encompassing. I am going in for another ercp to clean sludge, stones, some rot, and to place stints. My team has done all they can and after the ercp tell me to speak with a surgeon. So far, I know I’m not a candidate for transplant or islet cell transplants. I have diabetes 1 and 2, which I have noticed is called diabetes 3c on some posts here. A Puestow surgery has been tossed in air, but as a maybe. My splenic vein is constricted, I’m chronically anemic, but can’t take iron as I have ibs-c and constipation is a trigger for pancreantitis, at least for me. Stress being the other most prevalent trigger.\u003Cdiv>I am caregiver to both husband and son. I am hospitalized averaging a week every month or two. It terrifies me to think what will happen to them without me. It also terrifies me to continue this level of pain. I cannot take opioids due to ibs-c, can’t take IBUPROFEN or the like and Tylenol, well, that screws with my ulcers and ibs. \u003C/div>\u003Cdiv>So, I take a thc/cbg 1:1 edible about 40 mg a day. It is the only thing that helps with pain and allows me to eat without vomiting. It also doesn’t mess with any other bodily system. I just don’t drive. It brings constant pain of 8 to a 6 or 7, but won’t get me down from a 9 or 10. I have had 3 pain induced heart attacks. It is the worst pain I can imagine.\u003C/div>\u003Cdiv>What surgeries have anybody gone through? Regrets? If you knew more, what would you do differently?\u003C/div>\u003Cdiv>Thankyou for any replies \u003C/div>","reply_count":0,"url":"/groups/pancreatitis/discussion/fae639-surgery/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["CynthiaForrest"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"13552746600031166432","title":"Diabetes","slug":"disc-ec20f1-diabetes","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"KK_Thomas","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3202,"name":"Treating chronic pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-22T22:59:18Z","active":"2025-02-22T22:59:18Z","content":"So, I have chronic pancreatitis. The organ is now necrotic, widespread. So, as my PC doc says, “it’s a rotten hunk of crap. So, symptoms include I can’t regulate body temp, I eat a low fat heart healthy diet, constant pain, and diabetes 1 and 2. I am not a candidate for transplant or ilet cell transplant.\u003Cdiv>I wear a continuous glucose monitor and take jardiance and metformin. Through diet, I can keep my sugars fairly steady, but have bouts of high highs and low lows.\u003C/div>\u003Cdiv>I am going to participate in a teaching seminar on insulin pumps. I had some pretty terrible things happen to me as a child. I have ptsd and needles are a trigger that I try to avoid. When hospitalized, I can only have iv’s in my hand.\u003C/div>\u003Cdiv>My question is if anybody here uses an insulin pump, what kind? How do you like it? Do you wish you used a different method?\u003C/div>\u003Cdiv>I have had a lot of success handling my blood sugar with my g7 glucose monitor. It was a game changer. I’ve been told that other brands are very disappointing. I figure there must be different kinds of pumps.\u003C/div>\u003Cdiv>Thankyou for your response.\u003C/div>","reply_count":0,"url":"/groups/pancreatitis/discussion/ec20f1-diabetes/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["CynthiaForrest"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"6229570158679376742","title":"Chronic abdominal pain saga: anyone else relate?","slug":"disc-6f7398-chronic-abdominal-pain-saga-anyone-else-relate","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"nardgossett","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3975,"name":"Exocrine Pancreatic Inefficiency (EPI)","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-20T23:28:40Z","active":"2025-02-22T22:04:58Z","content":"\u003Cp>Hello I'm new to the form about 5 years ago I had upper abdominal pain and back pain radiating went to er they ran test my blood sugar were up.the er didn't know what the problem was I told to follow up with pcp Dr he ran some blood work didn't know what the problem so I was referred to my first Gastrologist were i had several test egd almost other test I was losing weight without trying since I lost so much weight I was told that it affected my gallbladder so it was removed even after gallbladder removal still had the pain had mrcp to look closer at pancreas and to see if there were anything else I was told that there were nothing wrong still having diarrhea and abdominal and back pain so I was referred to medical academy for a second opinion was told that there were nothing else they could do to alter what have been done so I tried a Gastrologist to see if there were more Gastrologist ran more images did a stool sample my pancreas was not working well so I was put on creon to break down food now I've been getting radiating pain in abdominal and back and legs and arms I had a Eus done was told told there was nothing structurely wrong with my pancreas just fatty infiltration can anyone tell me if there going thru the same \u003C/p>","reply_count":11,"url":"/groups/pancreatitis/discussion/6f7398-chronic-abdominal-pain-saga-anyone-else-relate/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"2427032883193492069","title":"Flank Pain","slug":"disc-f01e68-flank-pain","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"KK_Thomas","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3202,"name":"Treating chronic pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-20T21:44:38Z","active":"2025-02-22T19:42:31Z","content":"I have been having a new kind of pain. My pancreas pain has always been on my left side under sternum. For the last three days it feels like I am being run through, in, up, and through where I imagine my liver is. Initially the pain is in between my two bottom ribs on my right flank side and sometimes travels around my diaphragm taking my breath and lose my footing. \u003Cdiv>I called my primary to put in some blood orders, and except for a somewhat high blood sugar, I just had breakfast, but because of my necrotic pancreas I have diabetes 1 and 2. My results look good, so my liver is not clogged, which is what I thought might be going on. This will be day 3 with this pain. I am currently at the VA hospital for an appt for husband and I can’t help but cry out and stumble when the pain hits. I do have neuropathy in limbs, stomach, and intestines, so I suppose it could be that, but it seems more choreographed than random nerve pain. \u003C/div>\u003Cdiv>Does anyone else feel this? Anything help?\u003C/div>\u003Cdiv>Thankyou\u003C/div>","reply_count":3,"url":"/groups/pancreatitis/discussion/f01e68-flank-pain/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"5856921612201659990","title":"Puestow","slug":"disc-95bb5c-puestow","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"KK_Thomas","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3202,"name":"Treating chronic pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-18T10:47:01Z","active":"2025-02-18T10:47:01Z","content":"Can anyone comment on their results after a Puestow procedure?","reply_count":0,"url":"/groups/pancreatitis/discussion/95bb5c-puestow/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"4766981266488345457","title":"Pineapple: friend or foe? 🍍🤔","slug":"disc-f5aacf-pineapple-friend-or-foe","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"lynchkevinjames","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3207,"name":"Nutrition","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-18T00:49:43Z","active":"2025-02-18T19:02:38Z","content":"\u003Cp>Has anyone ever had trouble with pineapple? It’s so hard to say what foods cause what; but I’m starting to wonder if pineapple makes me nauseous. I’ve had acute pancreatitis several times and I know what I feel isn’t that bad, but it was very similar type of pain and sick feeling (just much more mild and tolerable) after eating pineapple. But of course I ate other things so it’s impossible to know for sure. Thought I would ask if anyone else noticed pineapple as a trigger food. \u003C/p>","reply_count":1,"url":"/groups/pancreatitis/discussion/f5aacf-pineapple-friend-or-foe/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"5205945925577373278","title":"Quality of Life","slug":"disc-93b06f-quality-of-life","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"KK_Thomas","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3202,"name":"Treating chronic pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-17T10:40:25Z","active":"2025-02-24T23:21:11Z","content":"Hello. I have never been on any social anything online before, and do not really know how to start.\u003Cdiv>I have been “living” with chronic pancreatitis for about 6 years now. I am my husbands full time caregiver of an iliostomy done wrong for 16 years. I am also a caregiver to a developmentally challenged adult son whose diagnosis of cancer free finally came after an agonizing 6 years.\u003C/div>\u003Cdiv>My pancreas’s necrosis is widespread and I now have diabetes 1 and 2.\u003C/div>\u003Cdiv>After years of shaming for alleged life choices, my father died from pancreatic cancer. I have the recessive cystic fibrosis gene and a propensity for pancreantitis.\u003C/div>\u003Cdiv>I have to go in again for sludge, stones, and rot cleanup and place some stints, but I am being pressured from all sides of my team to speak to a surgeon. Many options are now off the table for me.\u003C/div>\u003Cdiv>Without going into everything leading up to present day, does anyone have any feedback on some surgeries others have had? Good and bad? I would certainly appreciate it.\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>It is not only the quality of my life that is on the line. I need to make a decision that will greatly affect two loved one’s health…the life or death kind.\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>So, Thankyou again for any response. As I said, I’m new at this social type messaging.\u003Cbr>\u003Cdiv>\u003Cbr>\u003C/div>\u003Cdiv>\u003Cbr>\u003C/div>\u003C/div>","reply_count":7,"url":"/groups/pancreatitis/discussion/93b06f-quality-of-life/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"13517262682933689322","title":"Sphincter of Odi issues - stent placement","slug":"disc-befaea-sphincter-of-odi-issues-stent-placement","author":{"avatar":{"small":"/api/member/mcglamma/avatar/s","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"mcglamma","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3203,"name":"Treating acute pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-15T18:58:33Z","active":"2025-02-19T18:05:57Z","content":"Ugh!!!\u003Cdiv>I’ve finally reached the point in which I have agreed to have a stent in my pancreas.\u003C/div>\u003Cdiv>Any advice for before, during, after?\u003C/div>\u003Cdiv>My life is very functional when I’m not having an acute attack. However, I was feeling on the verge of an attack for about 8 days before the Super Bowl when I had an acute attack during the second half—ER, hospitalized until Tuesday evening. I had a smoothie with 8 grams of fat for lunch on Wed which kicked off a flare that lasted half an hour, but I was able to control with Advil and walking around. I’m kind of afraid to eat now.\u003C/div>\u003Cdiv>I’ve got big plans this summer with hikes and swims. Thinking if I get this done now, hopefully won’t be an issue by June.\u003C/div>\u003Cdiv>Again, hate to have anyone cut on my pancreas (I do however have an incredible GI who has been with me 6 years and does lots of these procedures). Any thoughts?\u003C/div>","reply_count":19,"url":"/groups/pancreatitis/discussion/befaea-sphincter-of-odi-issues-stent-placement/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"4226303949020520110","title":"Celiac plexus block: pain relief or new worries?","slug":"disc-936c12-celiac-plexus-block-pain-relief-or-new-worries","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"ljchase","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3204,"name":"Pain management","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-13T16:08:45Z","active":"2025-02-15T02:50:01Z","content":"\u003Cp>My doctor has suggested I have a Celiac Plexus block done for the pain . I'm nervous it will cause more problems . What have others experience been with this procedure ? It would be done by EUS \u003C/p>","reply_count":1,"url":"/groups/pancreatitis/discussion/936c12-celiac-plexus-block-pain-relief-or-new-worries/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"SUPPORT","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null},{"id":"10261938805889732752","title":"Chronic pain got you feeling like this is it?","slug":"disc-10f279-chronic-pain-got-you-feeling-like-this-is-it","author":{"avatar":{"small":"/assets/images/you-small.png","__typename":"Avatar"},"friendship":null,"site_roles":[],"nickname":"shannonhall1319","status":4,"__typename":"User"},"groups":[{"name_id":"pancreatitis","group_id":200264,"name":"Pancreatitis","topics":[{"id":3200,"name":"Diagnosing chronic pancreatitis","__typename":"Topic"}],"__typename":"Group"}],"created":"2025-02-13T01:53:37Z","active":"2025-02-14T20:56:56Z","content":"\u003Cp>Am I gonna die from this? I have chronic pancreatitis and I have fits every so many weeks every 2 or 3 months I feel like I’m in the hospital. I’m on creon but it seems to not work so I barely take it. I feel like my lifespan has shortened am I right? Am I going to likely die from some pancreatic something another? (Maybe I’m being a little overdramatic because I’m sick right now with a pancreatic episode). I’m already sick and tired of being sick so much. is this what the rest of my life Is gonna be like? I don’t even drink. I just don’t understand.?\u003C/p>","reply_count":3,"url":"/groups/pancreatitis/discussion/10f279-chronic-pain-got-you-feeling-like-this-is-it/","is_followed":false,"privacy":"public","class":"disc","reactions":[{"type":"USEFUL","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"THANKS","count":0,"reacted_by_me":false,"nicknames":[],"__typename":"PostReactions"},{"type":"SUPPORT","count":1,"reacted_by_me":false,"nicknames":["CynthiaForrest"],"__typename":"PostReactions"}],"__typename":"Post","files":[],"sticky":false,"experiment_id":null}]}}}</script></body></html>