Neuro-Oncology Caregiver Program

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<div class="component-content"> <div class="eyebrow article-breadcrumb"> <a href="/services">Patient & Family Support Services </a> </div> </div> </div> </div> <div class="hero-badge-hero"> </div> <h1 class="hero-title display1"> Neuro-Oncology Caregiver Program </h1> </div> </div> </div><div class="component share-print-email container clinic-share"> <div class="component-content"> <div class="share-component"> <a aria-label="Print Page" href="#" rel="nofollow" class="icon-ui-print" title="Print"></a> <a aria-label="Share Page" data-email-body="Thought you might want to see this:" class="icon-ui-share" data-email-body="Thought you might want to see this:" data-email-subject="Take a look at this link from UCSF"></a> </div> <div class="clearfix"></div> </div> </div><div class="component article-intro column-layout col-2-66-33 container"> <div class="component-content"> <div class="article-content left-col"> <div class="font-larger article-text rich-text"> <p>At UCSF, we understand that a brain tumor diagnosis affects not only our patients, but also their families and loved ones. To enhance the excellent medical care we provide, we established the <strong>UCSF Neuro-Oncology Gordon Murray Caregiver Program</strong>. Our goal is to optimize quality of life for both our patients and their caregivers by ensuring caregivers have the resources and support they need.</p> </div> </div> <div class="article-info right-col"> <div class="article-related-conditions"> <div class="eyebrow">Related Conditions</div> <div class="condition"> <div class="condition-name"> <a href="/conditions/brain-tumor"> Brain Tumor </a> </div> </div> </div> <div class="article-contact"> <div class="eyebrow">UCSF Neuro-Oncology Gordon Murray Caregiver Program</div> <div class="article-contact-address"> <div> </div> </div> <p><span class="icon-ui-phone"></span>(415) 514-5674</p> </div> </div> </div> </div> <div class="component content container"> <div class="component-content"> <div class="page-content"> <div class="component column-layout col-2-66-33"> <div class="component-content"> <div class="left-col"> <div class="component rich-text paragraph1"> <div class="component-content"> <h2>Our services</h2> <p>We commonly advise caregivers on the following topics: </p> <ul> <li>Disease information, including symptoms, medication side effects and what to expect</li> <li>Navigating the health care system</li> <li>Financial, disability and insurance information</li> <li>Guidance for completing advance health care directives</li> <li>Connecting with local and community resources for supportive care</li> <li>Caregiver-to-caregiver peer support</li> <li>Educational workshops designed for neuro-oncology caregivers</li> <li>Support groups</li> </ul> <h2>Inpatient Caregiver Program</h2> <p>This program is designed to reach caregivers at the time of their loved one's surgery. Our caregiver nurse meets with family members in the hospital to provide valuable health information and beginning instruction on basic caregiver skills. Our aim is to prepare caregivers to look after the patient from the time of discharge to the first follow-up visit.</p> <h3>Educational video</h3> <p>The video below has recommendations to guide caregivers when their loved one goes home, particularly in the first two to three weeks after surgery, and offers tips for getting organized. The purpose of the presentation is to improve the patient's transition from the hospital to home and reduce postoperative issues during recovery.</p> <p>Topics include:</p> <ul> <li>Organizing and administering medications</li> <li>Communicating with the patient’s doctors, nurses, social workers and other health care team members</li> <li>Managing and monitoring the surgical incision</li> <li>Watching for medication side effects</li> <li>Addressing potential postoperative complications</li> <li>Knowing when and whom to call if questions arise</li> <li>Strategies for getting organized</li> <li>Caregiver self-care</li> </ul> </div> </div> <div class="component custom-media-component-wrapper col-xs-12"> <div class="component-content"> <h2 class="heading1 field-title">Explore what we do</h2> <div class="component custom-media-component custom-media-component medium-right col-xs-12"> <div class="component-content"> <div><a data-vimeoid="" class="media-wrapper"> <div class="image-wrapper"> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/custom-media/unique-program-supports-loved-ones-of-patients-with-brain-cancer-720x278-2x.jpg?rev=4a6492246d9149ce9506efc8cb675eb9" alt="" /> </div> <div class="icon"><span class="icon-ui-blank"></span></div> </a></div><div class="content-wrapper"><div class="large-icon"><span class="icon-ui-blank"></span></div><h2 class="title field-title">Unique program supports loved ones caring for patients with brain cancer</h2><p class="field-description">Our program supports family members and friends caring for patients undergoing brain tumor treatment.</p><div class="link-wrapper"><a href="/education/brain-tumor-caregivers" data-variantitemid="{99CF8519-55CF-4F6E-811E-C80BB26A5145}" data-variantfieldname="Link">Read the story</a></div></div> </div> </div> </div> </div> <div class="component vimeo-video col-xs-12"> <div class="component-content"> <div class="video-339253685"> <div class="video-overlay"></div> <div class="video-details"> <span class="svg-ui-play_NoGradient"></span> Play video </div> </div> <div class="embed-responsive embed-responsive-16by9"> <iframe class="embed-responsive-item" src="https://player.vimeo.com/video/339253685?dnt=1" frameborder="0" webkitallowfullscreen mozallowfullscreen allowfullscreen allow="autoplay" title="Play video"></iframe> </div> </div> </div> <div class="component rich-text paragraph1 col-xs-12"> <div class="component-content"> <h2>Recommended Resources</h2> <p><div class="continue-reading"><span class="read-more btn btn-drawer"><a>Continue reading </a></span><div></p> <h3>Caregiver resources</h3> <ul> <li><a href="/education/caregiver-information">Caregiver Information: List of Resources</a></li> <li><a href="/-/media/project/ucsf/ucsf-health/pdf/ucsf_caregiver_handbook.pdf?rev=54e181d65bb245cba8c41773f42ebf85&hash=D845BBEE8D8AC1244954225E3B84EC5C">Orientation to Caregiving Handbook</a></li> <li><a href="/-/media/project/ucsf/ucsf-health/pdf/transition_of_care_handbook.pdf?rev=88fce68da0604d87852b304f48ac3545&hash=636AC6FA6F9AB68C7604182D4B49962B">Transitions in Care Handbook</a></li> </ul> <h3>Caregiver support</h3> <ul> <li><a href="/services/cancer-support-groups">UCSF Brain Tumor Caregiver Support Group</a></li> <li><a href="/services/peer-support-programs-for-cancer">Caregiver Connection Program</a></li> </ul> <h3>Resources for health care providers</h3> <ul> <li><a href="/-/media/project/ucsf/ucsf-health/pdf/brain_tumor_patients_for_healthcare_providers.pdf?rev=9ccb2ff5c3e04678b3282cc3cc1b94cc&hash=E248A4B9FA46D87B320C401E026D21C3">Manual for Health Care Providers: End-of-Life Care for Brain Tumor Patients</a></li> </ul> <h3>Family and caregiver events</h3> <ul> <li><a href="http://www.miltonmarksfamilycamp.org/">Milton Marks Neuro-Oncology Family Camp</a></li> </ul> <h3>Other caregiver resources</h3> <ul> <li><a href="http://www.netofcare.org/">Net of Care</a>: Caregiving resources provided by Beth Israel University Hospital and Albert Einstein College of Medicine</li> <li><a href="http://lotsahelpinghands.com/about-us/">Lotsa Helping Hands</a>: A care calendar website</li> <li><a href="http://www.helpforcancercaregivers.org/">Help for Cancer Caregivers</a>: A personalized self-care web tool for caregivers</li> <li><a href="https://caregiver.org/">Family Caregiver Alliance</a>: Provides caregiving resources around the country, with educational literature available on various relevant topics.</li> <li><a href="https://wiki.library.ucsf.edu/display/NeurologyCaregiverCorner/Home">Neurology Caregiver Corner</a>: More resources for caregivers of patients with neurological diseases</li> </ul> <h2>Make a donation</h2> <p>The UCSF Neuro-Oncology Gordon Murray Caregiver Program is philanthropically funded. These services would not be possible without the support of our generous donors. To learn more about the history of our program and how you can support our work, please visit <a href="http://neurosurgery.ucsf.edu/index.php/support_brain_tumor_research.html">braintumorcenter.ucsf.edu</a>.</div></div></p> </div> </div> </div> <div class="right-col"> </div> </div> </div> <div class="component clinic-cards cards-component col-xs-12"> <div class="component-content "> <div> <h2 class="heading1 title-anchor"> Related clinics </h2> <div class="view-all"> </div> </div> <div class="cards"> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/clinics/cancer-survivorship-and-wellness-institute" target="|Custom" class="phantom-link" title="Cancer Survivorship and Wellness Institute"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/clinic/street/1825-fourth-street-pcmb-2x.jpg?h=376&w=974&rev=391521351aca40f783cafc7573e2c2db&hash=F6A9B928B19E8DC8CC0654514B1D413D" alt="" width="2880" height="1112"/> <div class="field-icon"> <a href="https://www.google.com/maps/place/See+both+of+our+San+Francisco+locations." target="_blank"> <span class="icon-ui-location"></span> </a> </div> <p class="font-larger"> Cancer Survivorship and Wellness Institute </p> <p class="eyebrow">Bakar Precision Cancer Medicine Building</p> <p> See both of our San Francisco locations.</p> <div class="field-read-more-link"> <div class="font-smaller"> <span class="icon-ui-phone"></span>(415) 514-2880 </div> </div> </div> </div> </div> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/clinics/cancer-symptom-management" target="_self" class="phantom-link" title="Cancer Symptom Management"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/clinic/street/1825-fourth-street-pcmb-2x.jpg?h=376&w=974&rev=391521351aca40f783cafc7573e2c2db&hash=F6A9B928B19E8DC8CC0654514B1D413D" alt="" width="2880" height="1112"/> <div class="field-icon"> <a href="https://www.google.com/maps/place/1825 Fourth St.+San Francisco+CA+94158" target="_blank"> <span class="icon-ui-location"></span> </a> </div> <p class="font-larger"> Cancer Symptom Management </p> <p class="eyebrow">Bakar Precision Cancer Medicine Building</p> <p> 1825 Fourth St. <br> San Francisco, CA 94158 </p> <div class="field-read-more-link"> <div class="font-smaller"> <span class="icon-ui-phone"></span>(415) 885-7671 </div> </div> </div> </div> </div> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/clinics/osher-center-for-integrative-health" target="_self" class="phantom-link" title="Osher Center for Integrative Health"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/clinic/street/1545-divisadero-street-2x.jpg?h=376&w=974&rev=ea1ba59a26504b57adb756baff60b40c&hash=7BD353680DF4801E2E3E99DCCE5983AC" alt="" width="2880" height="1112"/> <div class="field-icon"> <a href="https://www.google.com/maps/place/1545 Divisadero St.+San Francisco+CA+94115" target="_blank"> <span class="icon-ui-location"></span> </a> </div> <p class="font-larger"> Osher Center for Integrative Health </p> <p> 1545 Divisadero St., Fourth Floor <br> San Francisco, CA 94115 </p> <div class="field-read-more-link"> <div class="font-smaller"> <span class="icon-ui-phone"></span>(415) 353-7700 </div> <div class="font-smaller"> <span class="icon-decorative-hours"></span>M-F, 8 a.m. - 5 p.m. </div> </div> </div> </div> </div> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/clinics/psycho-oncology" target="_self" class="phantom-link" title="Psycho-Oncology"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/clinic/street/1600-divisadero-street-2x.jpg?h=376&w=974&rev=79ec3f1e3d5a4f0585a3cc173eb34173&hash=005BB25AC6981CD433E21742E3DBE6BE" alt="" width="2880" height="1112"/> <div class="field-icon"> <a href="https://www.google.com/maps/place/1825 Fourth St.+San Francisco+CA+94158" target="_blank"> <span class="icon-ui-location"></span> </a> </div> <p class="font-larger"> Psycho-Oncology </p> <p class="eyebrow">Bakar Precision Cancer Medicine Building</p> <p> 1825 Fourth St. <br> San Francisco, CA 94158 </p> <div class="field-read-more-link"> <div class="font-smaller"> <span class="icon-ui-phone"></span>(415) 353-7019 </div> </div> </div> </div> </div> </div> </div> </div><div class="component patient-services cards-component"> <div class="component-content"> <div class="patient-services-header"> <h2 class="heading1 title-anchor"> Support services </h2> <div class="view-all"> <a href="/services">View All</a> </div> </div> <div class="cards"> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/services/neurology-support-groups" class="phantom-link" title="Neurology Support Groups"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/service/hero/neurology-support-groups-2x.jpg?h=376&w=842&rev=4cdd21358872432cad4446f2057c800d&hash=450E3BA8CC2F1CACEBDE516928A00715" alt="" width="2880" height="1288" /> <div class="field-icon support-group"> <div class="eyebrow"> Support Group </div> </div> <p class="font-larger"> Neurology Support Groups </p> <p> Find support for caregivers, families and patients dealing with aneurysm and AVM disorders, Parkinson's, MS and other neurological disorders. </p> <span class="field-read-more-link"><span class="include-ucsf-arrow"></span></span> </div> </div> </div> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/services/art-for-recovery" class="phantom-link" title="Art for Recovery"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/service/hero/art-for-recovery-2x.jpg?h=376&w=973&rev=bf039ce6cca54b9cb4ea98f1cc83c537&hash=93A330CC3F0AF06DBBB02331E74D0705" alt="" width="2880" height="1112" /> <div class="field-icon support-group"> <div class="eyebrow"> Support Group </div> </div> <p class="font-larger"> Art for Recovery </p> <p> Creativity can help people with serious illnesses cope, heal and express what they're going through. 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Learn more. </p> <span class="field-read-more-link"><span class="include-ucsf-arrow"></span></span> </div> </div> </div> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/services/core-and-more-class" class="phantom-link" title="Core & More Class for Cancer Patients"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/service/hero/core-and-more-class-2x.jpg?h=376&w=973&rev=4bb4146d730d48919cedbcb26699306f&hash=4AF7C0E7159A49FD0BBB3F730FA8AE3F" alt="" width="2880" height="1112" /> <div class="field-icon fitness"> <div class="eyebrow"> Fitness </div> </div> <p class="font-larger"> Core & More Class for Cancer Patients </p> <p> A strong body helps you fight cancer and enjoy life. Join this class to stabilize your core, strengthen your muscles and improve overall fitness. For cancer patients and caregivers! </p> <span class="field-read-more-link"><span class="include-ucsf-arrow"></span></span> </div> </div> </div> <div class="card"> <div class="component-content"> <div class="card-content"> <a href="/services/friend-to-friend-specialty-shops" class="phantom-link" title="Friend to Friend Specialty Shops"></a> <img loading="lazy" src="/-/media/project/ucsf/ucsf-health/service/hero/friend-to-friend-specialty-shops-2x.jpg?h=376&w=973&rev=9c2750dbf5434bfd81bf2ab2a0fe5ca3&hash=36434E1B51656495BBF538CE0174F70F" alt="" width="2880" height="1112" /> <div class="field-icon patient-resource"> <div class="eyebrow"> Patient Resource </div> </div> <p class="font-larger"> Friend to Friend Specialty Shops </p> <p> A one-stop boutique for patients with cancer. 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