News: For the Immune Globulin Community

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href="" class="fb-share-btn" target="_blank"></a><div class="fb-share-text">share</div></h1> <div class="row content-head"> <div class="col-md-4"></div> <div class="col-md-8"> </div> </div>   <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-13.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>Manufacturer Update</h4> <p>We have been closely monitoring the dynamic situation surrounding the coronavirus disease 2019 (COVID-19). First and foremost, we want to assure you that we are in constant communication with all our manufacturing partners. As of today, their delivery schedules have not been affected and we will continue with business as usual. If there are any changes, we will contact you immediately.<br> We appreciate your partnership with us and will continue to do our very best to meet your expectations.<br> If you have any questions, please contact <a href="mailto:wowcustomerservice@fffenterprises.com?subject=Manufacturer Updates">Wow! Customer Care</a> at (800) 843-7477 or ask for your <a href="mailto:FFFSales@fffenterprises.com?subject=Manufacturer Updates">FFF Sales Representative</a>.</p> </div> </div>  <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-12.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>Immune Globulin (IG) Shortage 2019</h4> <p>The Immune Deficiency Foundation (IDF) has received a research grant to study the use of seasonal flu, chickenpox and shingles vaccines in the primary immunodeficiency (PI) community. The study will be conducted via a survey that will determine the frequency of chickenpox, shingles and seasonal flu infections among individuals with PI. Data collected will provide information about whether immune globulin therapy may modify the clinical occurrence and severity of signs and symptoms of seasonal flu and shingles for PI patients to help immunologists create guidelines and best practices for these vaccines... <span class="bracketed-link"><a href="news-article-10.html">read more</a></span></p> </div> </div>  <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-11.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>PI Community Is Invited to Participate in Immune Deficiency Foundation’s 2017 Flu, Chickenpox and Shingles Survey</h4> <p>The Immune Deficiency Foundation (IDF) has received a research grant to study the use of seasonal flu, chickenpox and shingles vaccines in the primary immunodeficiency (PI) community. The study will be conducted via a survey that will determine the frequency of chickenpox, shingles and seasonal flu infections among individuals with PI. Data collected will provide information about whether immune globulin therapy may modify the clinical occurrence and severity of signs and symptoms of seasonal flu and shingles for PI patients to help immunologists create guidelines and best practices for these vaccines... <span class="bracketed-link"><a href="news-article-09.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-10.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>Shire Launches #PIPostsThanks to Raise <br> Awareness About PI</h4> <p>Shire, manufacturer of immune globulin for the treatment of primary immunodeficiency (PI), has launched a social campaign, #PIPostsThanks, to spotlight the unsung heroes who make a difference in the lives of people living with PI. The #PIPostsThanks campaign kicked off April 22 through 29 during the seventh World PI Week to bring the PI community together to share personal journeys and highlight the efforts of those who help ease the burden of living with PI... <span class="bracketed-link"><a href="news-article-08.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-9.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>2nd Annual Stiff Person Syndrome Symposium <br> Scheduled for May 21</h4> <p>The 2nd Annual Stiff Person Syndrome (SPS) Symposium will be held Sunday, May 21, from 12 p.m. to 3 p.m. at the Hartford Hospital in Hartford, Conn. Organized by Duarte Machado, MD, who is board certified in neurology with subspecialty training in movement disorders, the event’s theme is “Beyond Suffering.”... <span class="bracketed-link"><a href="news-article-07.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-8.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>11th Annual Neuropathy Action <br> Awareness Day Is June 23</h4> <p>The 11th Annual Neuropathy Action Awareness Day will be held Friday, June 23, at the InterContinental Hotel in Los Angeles. This largest neuropathy awareness and education event in the U.S. provides an opportunity for patients to interact with other patients, providers and exhibitors, as well as to learn about neuropathy and how to cope with the disease, policy issues and patient advocacy. The day begins with an exhibit area and educational sessions in the morning, followed by... <span class="bracketed-link"><a href="news-article-06.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-7.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>MMN Quality-of-Life Patient Survey Is Available </h4> <p>The Neuropathy Action Foundation (NAF) has released the results of its first international multifocal motor neuropathy (MMN) quality-of-life patient survey. Of the 214 patients who completed the survey, 71.15 percent are from the U.S., 6.73 percent are from the United Kingdom and the remainder are from 22 other countries. Key findings from the survey include... <span class="bracketed-link"><a href="news-article-05.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-6.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>FDA Approves CUVITRU, Shire’s New SCIG 20% to Treat PI </h4> <p>The U.S. Food and Drug Administration (FDA) has approved Shire’s CUVITRU (immune globulin subcutaneous [human] 20% solution) to treat adult and pediatric patients 2 years and older with primary immunodeficiency disease (PI). CUVITRU is the only 20% subcutaneous IG (SCIG) treatment option without proline and with the ability to infuse up to 60 mL (12 grams) per site and 60 mL per hour, per site, as tolerated, resulting in fewer infusion sites and shorter infusion durations compared with other conventional SCIG treatments... <span class="bracketed-link"><a href="news-article-04.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-5.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>Webinar Series Launched for Young Adults Living with Primary Immunodeficiences</h4> <p>PI Voices is a new young adult webinar series developed by the Immune Deficiency Foundation (IDF) to address the unique needs of young adults living with primary immunodeficiency disease (PI). The series consists of five live webinars covering topics from career management, medical care prioritization, insurance transitions, family planning and health/social life balance. Each offers participants an opportunity to ask questions of panel experts and connect with other audience members who may share their experience of living with PI. The schedule is... <span class="bracketed-link"><a href="news-article-03.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-5.jpg" alt="#" class="image-third-width img-responsive" title="#"/> </div> <div class="col-md-8"> <h4>IDF Webinar to Focus on Body Temperature and Fever Response</h4> <p>The Immune Deficiency Foundation is hosting its second PI CONNECT Research Forum Webinar focusing on body temperature and fever response. Guest presenters Philip A. Mackowiak, MD, emeritus professor of medicine, and Jeff Hasday, MD, PhD, professor of pathology, biochemistry and molecular biology at the University of Maryland School of Medicine, will explain these occurrences and provide attendees with valuable knowledge they can use to improve their visits with medical providers... <span class="bracketed-link"><a href="news-article-02.html" target="_blank">read more</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-4.jpg" alt="In A Pickle Over PANDAS" class="image-third-width img-responsive" title="In A Pickle Over PANDAS"/> </div> <div class="col-md-8"> <h4>New Children’s Book on PANDAS Symptoms and Treatment</h4> <p>A new picture book explaining PANDAS symptoms and treatment written by Melanie Weiss, RN, is sure to be a sweet, compassionate and thoughtful read for both parents and children... <br /> For a sneak peek and to buy the book, visit <span class="bracketed-link"><a href="https://www.pandas-disorder.com/buy.html" target="_blank">www.pandas-disorder.com/buy.html</a></span></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-1.jpg" alt="CIS" class="image-third-width img-responsive" title="CIS"/> </div> <div class="col-md-8"> <h4>CIS/USIDNET Launch PI Webinar Series</h4> <p>The Clinical Immunology Society (CIS) and the U.S. Immunodeficiency Network (USIDNET) are introducing a new webinar series for clinicians that will emphasize discussion of interesting immune deficiency cases. Hosted by the CIS PID Summer School faculty and graduates, the inaugural webinar is scheduled for March 31 at 8 p.m. Eastern time, and includes an “Overview of Recent Literature” by Joyce Yu, MD, and Kate Sullivan, MD, “Mystery Infection in XHIGM” by Otavio Marques, MSc, and Juliana Lessa Mazzucchelli, MD, and “What’s Up with Too Many Lymphocytes?” By Kiran Patel, MD. <br /> <em>Registration closed</em></p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-2.jpg" alt="National Health Information Awards" class="image-third-width img-responsive" title="National Health Information Awards"/> </div> <div class="col-md-8"> <h4>IG Living Wins National Health Information Award</h4> <p>IG Living has won recognition in the National Health Information Awards competition that honors the nation’s best consumer health programs and materials. The IG Living Aug-Sep issue received the Merit Award in the Patient Education Information class/Magazine category.</p> <p>To view all the winners, <a href="https://www.healthawards.com/2013winners/" target="_blank" title="View All 2013 Winners">click here</a>. IG Living is listed on page 16. Click on the link to read the <a href="/magazine/online/IGL_2013-08_Online-Issue/" title="IG Living Aug-Sep 2013 issue" target="_blank">IG Living Aug-Sep issue</a>.</p> </div> </div> <div class="large-hor-devider left-on-stack"></div> <div class="row content-row"> <div class="col-md-4"> <img src="../assets/img/image-third-width-news-3.jpg" class="image-third-width img-responsive" alt=""/> </div> <div class="col-md-8"> <h4>IG Living! Magazine Celebrates Eight Years of Advocacy, Education and Inspiration</h4> <p>IG Living! Magazine, the only publication dedicated to patients who are treated with immune globulin (IG) products and their care providers, celebrates its eight year anniversary with the February-March 2014 issue. The recipient of numerous awards, IG Living has long been a definitive source of information and inspiration to those in the IG community. <span class="bracketed-link"><a href="news-article-01.html" target="_blank">read more</a></span></p> </div> </div> </div>   <div class="col-md-3 sidebar interior" > <div class="row rt-nav hidden-xs hidden-sm"> <ul class="list-group sidebar-nav-v1" id="sidebar-nav"> <li class="list-group-item"><a href="/media-and-events/news.html">News</a></li> <li class="list-group-item"><a href="/media-and-events/media-releases.html">Media Releases</a></li> <li class="list-group-item"><a href="/media-and-events/events.html">Events</a></li> </ul>  <div class="col-md-12">     <div class="rt-col-divider"></div> <div class="rt-col-divider"></div> </div> </div> <div class="row"> <div class="col-md-12"> <div class="rt-col-divider hidden-md hidden-lg"></div>    <div class="sidebar-wrapper latest-issue"> <div class="gray-bg-top" ></div> <h3>Read the Latest Issue Online</h3> <div class="img-container"> <a href="/magazine/current-issue.html" title="IG Living Current Issue"><img src="/assets/img/sidebar-current-issue.jpg" class="img-responsive" alt=""/></a> </div> <h6>Making Connections: Starting a Support Group <span class="bracketed-link" style="font-weight:500;"><a style="font-size:17px;" href="/magazine/current-issue.html" title="IG Living Current Issue">more</a></span></h6> </div>  </div> </div> </div>  </div> </div>   <div class="footer-v2"> <div class="footer"></div> <div class="copyright"> <div class="container"> <div class="col-md-9" style="text-align: center;"> <p style="margin-bottom: 35px;"> <a href="/index.html">Home</a> | <a href="/magazine/learn-about-ig-living.html">About</a> | <a href="https://www.igliving.com/magazine/subscribe.aspx">Subscribe</a> | <a href="/advertise/advertise.html">Advertise</a> | <a href="/site/subscriber-services.html">Contact</a> | <a href="/site/privacy-statement.html">Privacy Statement</a> | <a href="/site/terms-of-use.html">Terms of Service</a> | <a href="/site/consumer-health-data-privacy-policy.html">Consumer Health Data Privacy Policy</a> |  <button id="ot-sdk-btn" class="ot-sdk-show-settings do-not-sell-link">Do Not Sell My Personal Information</button><img src="/assets/img/privacyoptions29x14.png" alt="California Consumer Privacy Act (CCPA) Opt-Out Icon" style="display: inline-block; margin-left: 6px; margin-top: -2px;">  <br><sup class="copyright">©</sup><script>document.write(new Date().getFullYear())</script> FFF Enterprises, Inc. <a style="margin-bottom: -15px;" href="https://www.facebook.com/IGLivingMagazine/" target="_blank" class="btn" title="IGL Facebook page" aria-label="IGL Facebook page"> <i class="fa fa-facebook" aria-hidden="true" aria-label="IGL Facebook page" title="IGL Facebook page"></i> </a> </p> </div> <div class="col-md-3"><p><a href="/"><img src="/assets/img/logo-igl-site-new.png" class="footer-logo" alt="IG Living!"/></a></p></div> </div> </div> </div>  </div>  <script type="text/javascript" src="/assets/js/jquery/jquery-3.6.0.min.js"></script> <script type="text/javascript" src="/assets/js/jquery/jquery-migrate-3.3.2.min.js"></script> <script type="text/javascript" src="/assets/js/bootstrap/bootstrap-3.3.7.min.js"></script> <script type="text/javascript" src="/assets/js/bootstrap/bootstrap-accessibility.min.js"></script> <script type="text/javascript" src="/assets/js/track-focus.min.js"></script> <script type="text/javascript" src="/assets/js/bootstrap/bootstrap-hover-dropdown.min.js"></script> <script type="text/javascript" src="/assets/js/back-to-top.js"></script>  <script type="text/javascript" src="/assets/js/app.js?v=2.0.1"></script>   </body> </html>

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News: For the Immune Globulin Community